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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19446 |
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Posted: Tue May 24th, 2005 05:59 |
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BARNEY wrote: DAY 143, 5/23/05,PHASE 2, DAY 14, CYCLE 4, BP 115/74/P92, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 100MG MINO, 1 ACIDOP, NO 2ND ANTIB., 1 PAIN PILL(AFTER WORKING ON COOLER), ALL TOLERABLE
I WANTED TO SHARE SOME OF MY MP EXPERIENCES, BEFORE I GET BRAIN FOG AND FORGET THEM. I HOPE MY COMPUTER WILL NOT DIE BEFORE I DO THIS:
1. People are totally blown away at the woman traveling alone at night until they learn you cannot tollerate any sun. However, they make it very plain that they cannot do what I am doing. (I tell them they would if they knew they were dying,)
2. No matter how young they can understand the sun will make you sick if you go outside. My greatgrandson kept saying ' you get sick when you go out in the sun?' He knew we could go out after dark, but in the meantime we could play in the house and he was okay with that.
3. Big screen tv's really put the light out. Absolutely necessary to remember to put the NOIRs on so your eyes did not get a BLAST of light.
4. When away at someone else's house, you must discuss meals with them. My granddaughter is going to continue her education as a chef and her male friend from chef class decided to cook a fancy meal for us. Everything they made they had to really think what I could and could not eat. They forgot and put milk in the pudding in the parfait. They were discouraged that I could not even taste it. I was getting too much light exposure on this trip, I did not want to add Vit D in my food. My grandson-in-law ate it for me.
5. When I reduced the mino to 50Mg Q12hrs my knee backed off hurting but I got very nausated. So I backed off to 50mg QD and all was well. I thought my knee was going to have to be replaced after all, it had really gotten bad with pain. I now believe it is the antibiotics killing bugs. It feels great tonite, but I am starting back up on my meds, so I figure it will start hurting again.
6. You can overcome the anxiety you get on MP if you just sit and talk with yourself that you are going to be okay.
7. the drive back was a breeze, no anxiety at all, HOWEVER, the muscle pain in the top of my leg between knee and hip got to be almost unbearable pushing the accelerator. (no cruise).
8. My feet did swell from the light exposure at my (other) granddaughter's house, but my hands, face and eyes did not swell this time.
9. I had the strangest time with a runny nose the whole time I was at the graduation, never had that since on MP. It quit as soon as we left that building. Don't know that I would throw that onto MP?
Well, I guess I have run off the mouth enough, better go to bed.
Was good to get out, but am very glad I am back in my cave, I missed it.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY Here... Barney: 64jointsarc,77dxskinsarc,80dxlungsarc, 81dxasthma/migranes,95 r kidney removed(cyst)/ dxdiabetic/gallb removed,96totalhyst(cysts & endrom)01 dxfibm,04 I,25D53=25D25/MP/altuterol, finocet,Benicarq3hrs1/1/05,Mino 2/2/05,Quer 2/6/05 1,25D 52, 25D 22 3/23/05
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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