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Mellie
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Posted: Sun Nov 20th, 2005 15:32 |
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I noticed a post by Carole talking about "trigger thumb". Is this also related to the sarc? And if so, how and what is causing it?
When I started coughing back in 2002, I also noticed at that time that I constantly started needing to "crack" my thumbs. It seems they want to get "stuck" if I don't crack them. I must do this at least every few minutes. Is this leading up to "trigger thumb"?
I recall that many years ago, my late husband, who died from primary systemic amyloidosis (a very deadly autoimmune disease, and, IMH unscientific opinion, acts very much like sarcoidosis), got trigger thumb and carpal tunnel in both hands. It was ONE of his first symptoms of amyloids. The trigger thumb was also one of my first signs of sarc.
I keep saying it, but I am very blown away by the similiarities of our diseases, yet they are not the same disease. That is why I so believe in Trevor's theory of the bacteria. And every day I wonder if something as simple as the MP could have "cured" him. Yet, they are doing stem cell transplants on these patients...one of the few "cures" they have found to slow it down (or chemo or dex, etc). The meds are almost as deadly as that disease. I'm not worried that I have amyloidosis; I know I don't. But sometimes, I just have to get this off my chest! 
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Cough-1/02; Eye L.Node Joint Muscle Anxiety Heart Palps Tinnitus Feet-1/05; Dizziness-7/06; Thyroid out-6/95; ACE 57-1/05; 69-6/05; Synthroid. Limit D foods & sun since 6/05. Have Noirs. MP Doc appt. Oct 3.
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debbie
Guests visiting Phase 1/2/3
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Posted: Sun Nov 20th, 2005 16:48 |
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| i was diagnosed with thumb arthiritis and carpal tunnel. trigger thumb is a common condition associated with these diagnosis of arthiritis and carpal tunnel. a year ago i was finally diagnosed with the causutive agent of all my medical diagnosises,-lyme disease and co infections. which means that all my diagnosises including trigger finger are caused by cwd bacteria which causes th1 inflammatory disease. i feel trigger finger is yet another th1 symptom that will be cured by the mp. to me there is no sense tryng to get any more non curable disease diagnosises, i am just going for the big cure, good luck deb
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deb.premp.3/05.pcrlyme+.d125-71.d25-31.mp4/16/05
benicar,celexa.4/23mino.5/5quer5/30 z+m,lithium
6/29d125-41,d25-26,11/05modph2,12/05125-29,25-30
1/06 ph3,4/06 125-35,25-19;8/06d25-18
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Carole
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| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 676 |
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Posted: Sun Nov 20th, 2005 18:39 |
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Hello, Mellie and Debbie!
Yes, I also feel that inflammation is the key element in this malady. I know of a secretary who regularly suffers from trigger fingers and needs help almost annually. Her surgeon said that it is job-related, from typing all day. (I think I need to talk with her about Th1 inflammation. Actually, her surgeon is the arrogant one who ignored my warnings about possible drug reactions.  )
I remember my second surgeon in Indy thinking that it was unusual that both of my thumbs were affected at the same time. I've had many, many issues throughout the years before my diagnosis, but that was a new one. It was also reported that the pulley of my left thumb was very thick, and there was also a small nodule there. (The surgery actually consists of removing a section of the pulley flexor sheath to allow a release.)
Wishing you both the best . . . Carole
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| AC
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P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
| Location: | USA |
| Posts: | 2125 |
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Posted: Sun Nov 20th, 2005 19:53 |
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Hello all, one of my early herx's was trigger finger acting up. I have had the symptoms of carpal tunnel for years with the peripheral neuropathy that has not gotten any worse on MP, a slight bit better. Both my mom and friend Rose (both on MP) have had surgery on hands, and Rose on her feet too. I feel certain TH1 activity is related to these problems. I think the MP will cut 'em off at the pass and I will avoid carpal tunnel surgery! P.B.
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Freddie Ash
Member in Phase 3
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Posted: Sun Nov 20th, 2005 20:10 |
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HI ALL
This is Fred in WV. I never heard of a trigger thumb. I do know that my right thumb, since being on the MP, had a hard lump in it, numbness, sore, and red. I have showed it to dermatologist and my family doctor but they did not say anything. Could this be trigger thumb???
Your friend in sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Carole
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| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 676 |
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Posted: Sun Nov 20th, 2005 20:27 |
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Hello, Freddie!
I don't have the pamphlet handy, but you can find the details of the problem if you google trigger thumbs. I know that the Indiana Hand Center had information on their site, as well: http://www.indianahandcenter.com/medical_arthritis.html
This is what I said to DaveW:
Hello again, Dave!
Trigger thumbs are like trigger fingers--they literally get stuck in a certain position. This comes from inflammation involving the tendon. In my case, my thumbs started to feel "strange" and weak. They sometimes tingled and/or ached. When I would bend them after several months of the above, I would feel a snap or a pop. Finally, one became fixed in a bent position and the other in a straight position. The swelling and pain intensified throughout this time in my thumbs and the surrounding area in my palm.
Actually there is more involved like the sheath, pulleys, etc., but I don't remember all of the specifics. I do remember that I thought I was herxing after just beginning Phase 2, so I temporarily stopped everything but the Benicar. Nothing I tried helped, so I was referred to a surgeon.
Good luck, Freddie!  . . . Carole
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| AC
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Freddie Ash
Member in Phase 3
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Posted: Mon Nov 21st, 2005 16:45 |
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HI CAROLE
This is Fred in WV. This is not what my thumb is doing, but I have what you described in my little fingers from time to time. Thanks again.
Your friend in sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Carole
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| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 676 |
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Posted: Tue Nov 22nd, 2005 01:40 |
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Hello again, Freddie!
I'm having that now with my left little finger and palm! How interesting!
Have a great Thanksgiving! . . . Carole
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| AC
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sallee
Guests visiting Phase 1/2/3
| Joined: | Sat Sep 10th, 2005 |
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| Posts: | 18 |
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Posted: Thu May 11th, 2006 16:42 |
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| I saw a few old posts of people who were suffering from trigger finger and I was wondering if the MP has resolved this problem for you. Can anybody comment?
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CFS/FMS, Benicar q4-8h since Aug'05, Aug '05 25D=37,125D=92; May'07 25D=12;
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Thu May 11th, 2006 21:52 |
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Sallee
Here are some related topics.. You may wish to contact some of these Members by PM if they do not see/respond to this post..
Please Explain Trigger Thumb? ..
steroid shot in finger ..
Morton's Neuroma -Nerve Inflammation..
re surgery or steroids etc..
Information from the FAQ I need to have surgery. What should I know about anesthesia and the Marshall Protocol?
Dr. Marshall wrote: If your surgery is elective and can be postponed until more of your inflammation is resolved you may have a better outcome because high levels of angiotensin can cause poor wound healing.
"Patients with Th1 inflammatory diseases tend to have problems healing after surgery, and we deprecate all but the most urgent interventions until the patient recovers more fully." <<<
Why do I need to ask for a local anesthetic without epinephrine? Your Dentist and your Surgeon need to know
I need to take a different antibiotic for awhile. What should I do?
PAIN CONTROL
My immune response / symptoms are too strong. What should I do? re adjsuting meds.
Why are my symptoms more intense after exposure to Light & / or Vitamin D? Light exposure can also increase these symptoms.
When you can, please fill further required details into your signature line < see this link for details to include Thank You ..
Let us know if you have any questions about implementing MP. Thanks. all best, Barb ...
Later Information ADD:
Debbie y wrote: June 2006:
I have a Dupuytren's contracture on my index finger.One amazing thing I noticed after my FIRST dose of the new med is that the pain was almost completely gone and my finger which is normally bent, was able to be straightend out completely. My husband and I stared at this finger for almost 20 minutes before we turned the lights off to go to sleep! I could bend and straighten it without any problem. I could not straighten it out at all before. This finger has been like this since last year and before the MP was started. I am now fascinated and may be able to cancel the surgeon's appt. and just give this more time as I have just begun Phase 2. The mino did not affect it, it was after I added the the next antibiotic. This protocol continues to amaze me!
May 2008:
I have had a history of Dupuytren's contracture. In fact, I have a very long history of trigger finger problems from diabetes, Dequervain's and carpal tunnel.
I am now in phase 3 and have been on MP for 2.5 years. I did have 1 prednisone shot in my finger but that was a very long time ago. As I have progressed on MP I have no pain in my finger anymore and it is totally functional. No stiffness either. Even my erythema in my palms has dramatically improved.
It is easier to be further along on MP and look back. You realize that if you are patient, things will go away, it REALLY is true. I avoided any more surgeries. Even my old scars from previous surgeries did some funny things earlier in ph 2 but again, all of it has gone. And did not last long. Keep getting things monitored but from what I've been through, carefully waiting and watching prevented me from a whole lot of misery. Good luck!
Mod Note: Dupuytren's Contracture is sometimes confused with Trigger finger Trigger finger is not the same as Dupuytren's contracture - a condition that causes thickening and shortening of the connective tissue in the palm of the hand - though it may occur in conjunction with this disorder.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Carole
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| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 676 |
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Posted: Fri May 12th, 2006 02:15 |
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Hello, Sallee--
As you may have read in my other posts, I had bilateral trigger thumb surgery a year and a half ago; and since October, I have had a trigger "little" finger. I wanted to try an alternative to the cortisone shot and to surgery, so I opted for the splint. However, I only wore it for less than 24 hours, so I have been carefully attempting to shield it from more trauma.
So far, it really hasn't progressed as my thumbs did. After a few months, my thumbs locked into the bent and straight positions. It's now been seven months, and it "catches" on occasion, but seems to be less painful as time passes. I feel my inflammation still plays a major role, but I can often touch my thumb and little finger together with greater ease.
I believe as my D levels continue to decline, the inflammation is resolving at a more rapid rate. I haven't yet accomplished making a "perfect" fist, but perhaps one day I may. I'll remain hopeful that it, too, will resolve.
Take care . . . Carole
June 11th 2006: Moderator add from Carole posts:
As you may have read from my previous posts, I have also had the "trigger thumb and finger" issue, as well as toe and foot problems. The trigger thumbs were very hard to manage because of the obvious need to grasp. One can better manage the lesser need to use the "little trigger finger," with which I am presently plagued.
After the bilateral trigger thumb surgery in November 2004, it took about a year for my thumbs to completely recover (strength and pain-wise). I've elected to "wait and see" the outcome of the little finger issue, which began in October of 2005. The swelling and flexibility have improved, especially within the last few weeks as I have progressed to the full Phase III of M, Z, and C. It occasionally locks for a few seconds, but is manageable. I personally believe that the reduction in my overall inflammation has made a favorable impact on this issue. However, if I have a nodule, it may one day have to be taken care of. Nevertheless, I'll just wait patiently for now.
My foot and toes are also improving since September 2005. I will have a slight, occasional aggravation with pain and pressure, but I believe it is now only herx. I'm able to speed-walk our spaniel and comfortably wear most any casual or dress shoe, as I no longer limp from pain.
The full Phase III is making a BIG difference overall, which has taken me over two years to achieve. I wish you the best with your surgery and progress on the protocol.
Take care . . . Carole
Hello again,
I can appreciate your hesitations re surgery; but when a thumb is involved, it is very inconvenient (not even counting the pain). Let me add more information for your consideration.
Negative aspects: First of all, you probably read of my blood pressure and heart issues with the first surgery attempt. Even with that near-death episode, I felt it was necessary to have my thumbs repaired. I was very worried about a repeat of the same scenario, but took the risk (with problems). The second surgeon was concerned about the time period that had elapsed in which my thumbs had remained locked (for more than 2 months). It was very painful to manually unlock them for examination or when I accidentally bumped them, but he eluded to the longer they were immobile, the less likely they could be successfully repaired.
Positive aspects: Even though my thumbs did not return to the same "operational" strength and totally painfree state, the "movement and usage" of my thumbs were WONDERFUL! Instead of wearing dresses or skirts, I wore slacks so that I would not have to pull and tug on pantyhose.
I am still very protective of them today. I definitely use them, but they do become "uncomfortable and a little problematic" at times.
If I were you, I would not "overuse" them, especially with gardening tasks. If they have not become locked, you may have a chance to recover. That's what I am personally hoping for--for you and for me.
If you wish, you are welcome to send me a PM. I will be happy to call you, if you want to discuss this further. I have no medical background, but plenty of personal experiences.
Take care . . . Carole
P.S. To answer your last two questions--
1.) Instead of following doctor's orders and taking a few days off, I went to school the next day. I was also ahead of schedule in recovery, in that I did my "thumb exercises" as prescribed and received an excellent report from the therapist. 2.) With "locked" thumbs, yes, I would do it again.
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| AC
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