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Leesa
Member in Phase 3
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Posted: Sat Jun 3rd, 2006 19:59 |
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I have an update on Camp Sundown....this message is from them via email AFTER I sent them a few emails. I indicated that I could not come this summer but was asking if we could have an MP Camp there:
Sorry we won't see you this year Leesa, but feel free to pass all the information along to your group. We'd be delighted to host a MP session or two.
Caren Mahar
I would love to discuss this at the LA conference and would love to see if we could have an MP Camp there in 2007. Can someone on the MP board comment on what we ould do to start planning???????? (I would help plan it)
Also, LeAnne, I like my gloves and they are from http://www.sunprecautions.com. I am thinking of order fingerless gloves for when I am inside at places, but still feel like I need gloves. I like my tan ones the best!
I took my kids to the Children's Museum this week too...more windows than I'd like so I stayed very covered up and we did not stay long, but it was fun to go!!
Leesa
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Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19545 |
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Posted: Fri Jun 9th, 2006 01:10 |
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Leesa
Staff have looked at your Camp Info, and you may be able to have more informal discussion at the Conference or after, as Conference preparations are the Staff priority at the moment. Thanks ..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Jeannine
Board Staff
| Joined: | Sun Aug 28th, 2005 |
| Location: | USA |
| Posts: | 947 |
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Posted: Fri Jun 9th, 2006 01:51 |
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I think a camp would be a wonderful and fun experience. Let me know if you need help planning in the future.
Jeannine
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CFS FM Lyme Morgellon's Depression/Anxiety 125D49 Ph1Aug06 25D <4(april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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ChrisTownsend
Member
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Posted: Fri Sep 29th, 2006 01:11 |
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Hi Claudia
I have a light weight steamer ( a Rip Curl I think the 2/3 mm version) which I thought I would use in the cooler months.
Then I found out that it was only SPF50 in UV ratings, which might be good if your simply trying not to get sunburnt, but way short of what we need ( considering our whole bodies are being exposed)
So I decided I would only use the steamer to swim after the sun went down. Problem of course is that by that time of the day I am generally too tired ! But it is something safe to look forward to .
Regards
RobertTownsend
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Started MP Dec 05, 24D 30 1,25D 58 Type 1 Diabetes for 2 years, Hashimotos 10 years, mild osteoporosis Phase 2 Apr 06 Phase 3 Oct 06
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Claudia
Member in Phase 3
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Posted: Sat Sep 30th, 2006 02:25 |
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Chris - Aww, I thought you meant the steamer would be a complete light block-out...  would any of the thicker wetsuits block out light completely?
Hang on a min... if it's a wetsuit, made of rubber and all that, how would ANY light get in?? Are you sure it's only SPF50? Maybe it's something to do with regularions in Australia on SPF ratings? I've read that no sunscreen product in Australia is allowed to be rated over SPF30, except to say "30+" They don't want to get people's hopes up?? dunno what the logic. Perhaps on swimwear "50" is the limit, even if it's made out of solid bricks?
Claudia
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MP Phase1 23Mar_06; Phase2 July 10_06; Phase3 Nov 4_06. Dx Thyroiditis (Thyroxine); arthritis; glaucoma; CFS (1988-92);Kidney & bladder probs. Feb06 1,25D=43.3; Aug07 1,25D=27.5; Feb06 25D=44; Aug07 25D=28; Nov07 25D=36; Mar08 25D=16.4
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Sedona
Member in Phase 3
| Joined: | Sat Feb 11th, 2006 |
| Location: | Alabama USA |
| Posts: | 198 |
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Posted: Tue Jul 3rd, 2007 05:34 |
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Hello:
Can you tell me where this camp will be help and if it really is in the works and what I can do if anything to help. I am sure my husband would get the time to come also and it would be nice to meet some of the people I have spoken to out here.
Please let me know if this will happen.
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Sedona: Neural/Lung Sarc/ biopsy 9/96 & 9/01| Feb06 avoid light comm Ph1| 1,25D=60 25D=27 Nov06| Ph2 05/06| Ph3 11/06 |4/9/08 25,D=7 1,25D=54| homebound low lux NoIRs| mucinex cont. oxygen|
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Foundation Staff
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| Joined: | Sat Jul 10th, 2004 |
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| Posts: | 17283 |
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Posted: Wed Jul 4th, 2007 17:39 |
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| Leesa has gotten her life back and is so busy with work/family she doesn't have time to post often now. You may contact her via private message to see if she has done any follow up regarding this camp.
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