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TikBitten
Member in Phase 3
| Joined: | Thu Mar 13th, 2008 |
| Location: | USA |
| Posts: | 72 |
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Posted: Sat May 16th, 2009 07:07 |
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Carricol wrote: I was thinking of something more descriptive and less benign.
How about "The Secosteroid Formally Known as Vitamin D"
TB
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Dx:Neurborreliosis 8/05|25D=46 1,25D=62 10/07|Avoid Sun&VitD since 10/07|Started Ph1&NoIRs 3/08|25D=18 3/08|25D=17 6/08|ModPh2 6/08|Ph2 9/08 stopped NoIRs|Ph3 1/09|25D=13 3/09|25D=10 5/09|25D=11 7/09|25D=15 9/09
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BARNEY
Moderator
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Posted: Sat May 16th, 2009 07:57 |
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I agree w/Ticbitten and Stuckpak.
HANG IN THERE, WE WILL MAKE IT!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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TikBitten
Member in Phase 3
| Joined: | Thu Mar 13th, 2008 |
| Location: | USA |
| Posts: | 72 |
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Posted: Sun May 17th, 2009 06:20 |
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| Actually, how about "Sec-D" instead of "Vit-D"???
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Dx:Neurborreliosis 8/05|25D=46 1,25D=62 10/07|Avoid Sun&VitD since 10/07|Started Ph1&NoIRs 3/08|25D=18 3/08|25D=17 6/08|ModPh2 6/08|Ph2 9/08 stopped NoIRs|Ph3 1/09|25D=13 3/09|25D=10 5/09|25D=11 7/09|25D=15 9/09
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TikBitten
Member in Phase 3
| Joined: | Thu Mar 13th, 2008 |
| Location: | USA |
| Posts: | 72 |
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Posted: Sun May 17th, 2009 06:23 |
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| Kind of catchy isn't it?
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Dx:Neurborreliosis 8/05|25D=46 1,25D=62 10/07|Avoid Sun&VitD since 10/07|Started Ph1&NoIRs 3/08|25D=18 3/08|25D=17 6/08|ModPh2 6/08|Ph2 9/08 stopped NoIRs|Ph3 1/09|25D=13 3/09|25D=10 5/09|25D=11 7/09|25D=15 9/09
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TikBitten
Member in Phase 3
| Joined: | Thu Mar 13th, 2008 |
| Location: | USA |
| Posts: | 72 |
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Posted: Sun May 17th, 2009 06:28 |
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Even updated my profile (below) so it reads more naturally, whadya' think?
TB
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Dx:Neurborreliosis 8/05|25D=46 1,25D=62 10/07|Avoid Sun&VitD since 10/07|Started Ph1&NoIRs 3/08|25D=18 3/08|25D=17 6/08|ModPh2 6/08|Ph2 9/08 stopped NoIRs|Ph3 1/09|25D=13 3/09|25D=10 5/09|25D=11 7/09|25D=15 9/09
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BARNEY
Moderator
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Posted: Sun May 17th, 2009 07:22 |
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Tic,
You are toooo funny!! Actually we should start a class action law suit to make them call it secosteriod. What you think of that idea?
Barney
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 879 |
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Posted: Sun May 17th, 2009 12:38 |
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I found an interesting thread this morning at an online forum called Nudist Forum. It's titled, "Why Am I Sick?"
http://www.truenudists.com/forum/viewthread.php?id=1480&post=15509
In the thread, at least several nudists are complaining about being sick with what we call Th1 disease. Maybe if they read more studies on vitamin D's efficacy, they'd stop being sick. 
Paul
wow, all the symptoms you wrote about are ones that i`ve been having troubles with. For years now, I`ve been tested and retested for diabetes, low testosterone and a number of other tests.
~lookn4sun (butt naked)
I was just talking to a naturopathic doctor about finding ways to be proactive about my health. She asked me if I am prone to the winter blues, and I said YES!!!
~screalgirl (barefoot)
I also suffer from lethargy, muscle aches, neuralgia, IBS, SADs...thought it was all residual of my four bouts with Lyme Disease.
~Cuddlebutton (supernudist)
My doctors have tried everything with my neck including Botox injections, and nothing has helped. It`s worse now than it was before the surgery I had. I have very limited movement from side to side, makes it hard to drive sometimes, and at times the pain is almost unbearable to the point that I have to sit and hold my head up with my hands.
~superdad (supernudist)
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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BARNEY
Moderator
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Posted: Sun May 17th, 2009 13:42 |
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Paul,
Did you tell them that the sun is hard on their bodies? lol
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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scooker48
Member in Phase 3
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Posted: Sun May 17th, 2009 14:38 |
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We live in a highly liturgous society, and the strongest "guild" or "union" is the AMA, in my humble opinion.
It could very well be the only way to fight them is in the courts.
Since reading the MP website, I have thought of "vitamin D" as "vitamin DEATH".
Sherry
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Necrotizing granulomas biopsy 10/88; Dx 12/04 Sarcoid liver spleen. 2/2/05: VitD 25/VitD125 62. 11/7/09 D25 at 6, Liver function normal 4/08; Wear NoIRs outside. No K creme used. 5/09 Liver and kidneys normal. ACE still high at 113 on 11/7/09.
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Ron
Member in Phase 2
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Posted: Sun May 17th, 2009 14:40 |
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scooker48 wrote: Since reading the MP website, I have thought of "vitamin D" as "vitamin DEATH".
I think we have a winner! 
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Dad with RA, MP 01/08| 25D-16.8| Apr08 7.1 Sep08 11.6 Mar09 7.6 Jul09 17 Dec09 10.4| oxycodon, NoIRs, limited outings covered up
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BARNEY
Moderator
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Posted: Sun May 17th, 2009 15:11 |
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Sherry & Ron,
Great name!!!!
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Cynthia Schnitz
Member in Phase 3
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Posted: Sun May 17th, 2009 15:40 |
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| Would 'Hormone D' be correct, or does that just apply to 1,25D? Cynthia
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Ph1 10/08, Ph2 12/08, Ph3 6/09, 125/25D 47/43 preMP, 25D14 12/09, Estradiol .75mg, Calcium anomaly(gone?), Spondylitis, early Diverticulosis, early Macular Degeneration(AMD), Type II Diabetes (unconfirmed,PreDiabetes?), returning sense smell
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 859 |
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Posted: Mon May 18th, 2009 03:39 |
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I like Barney's idea about suing "Vitamin D" providers because of the lack of truth in advertising.
Claire
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38mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
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Deedee
Member in Phase 2
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Posted: Mon May 18th, 2009 14:09 |
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I was a bit surprised to see this on the Vitamin D guru, Mercola, website in regard to taking fish oil and cod liver oil:
Are there any contraindications?
If you have been diagnosed with the relatively uncommon condition of sarcoidosis, you should rigidly avoid sunshine and vitamin D, and you should not consume cod liver oil.
http://products.mercola.com/faq/cod-liver-fish-oil.htm
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Sarc in lymph nodes. D14. Back to Phase I, 100 mino Benicar 4X/day. Lipids high. 7/07 check-up: Normal PFTs/CXR improved; Quecentin/guaifensin if lymph nodes hurt. Spleen pains. Began MP 8/08
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jcwat101
Research Professional
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
| Posts: | 1809 |
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Posted: Mon May 18th, 2009 16:22 |
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Cynthia,
Hormone D would only be possibly for the 1,25D form and so I don't think that would be the way to do it.
Joyce Waterhouse
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.com
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Sunset
Health Professional
| Joined: | Tue Oct 16th, 2007 |
| Location: | USA |
| Posts: | 123 |
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Posted: Wed May 27th, 2009 01:43 |
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This was in a Mercola.com article/ infomercial segment entitled:
Could This Powerful Breakthrough Beat Cancer and Auto-Immune Diseases?
http://articles.mercola.com/sites/articles/archive/2009/05/26/Powerful-Breakthrough-Beats-Cancer-and-AutoImmune-Diseases.aspx
The article/ interview is about the use of low-dose naltrexone (LDN) to treat these patients. And of course Mercola interjects during the interview that he's glad the doctor is doing the right tests for Vitamin D, blah, blah, blah....
Says Dr. Berkson,
"It is difficult for many to believe that one drug can accomplish so many tasks. But LDN does not treat symptoms as most drugs do. It actually works way "upstream" to modulate the basic mechanisms that result in the disease state."
Does this concept sound familiar to anybody?
I'm curious to know if the use of low-dose naltrexone is simply another palliative measure for these Th1 health conditions; something like the way Vitamin D can work initially for these same patients.
Any thoughts?Last edited on Wed May 27th, 2009 03:53 by Sunset
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FM, CFS, migr HA, low adrenal, RBC coinfection 11/07 1,25D70, 25D48, 7/08 25-D 21;11/08 25-D 22; 2/09 25-D 15.6; 7/09 25-D 11; 10/09 25-D 5ng/mL. olmesart 40mg+20mg SL, T4 25mcg QAM, T3 7.5mcg BID. NoIRs/limit lite exp
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kenc
Member in Phase 3
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Posted: Wed May 27th, 2009 02:20 |
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| I tried LDN low-dose naltrexone. It did't work for my Crohn's disease or any other condition I have.
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Crohn's Disease 1984, 24May05 1,25D=33 25D=8.4, 6Sep05 1,25D=29 25D=12, 11Jun07 25D=<10.4 1,25D=10, 15Sep07 1,25D=14.2 25D=16, 12Jul05 Phase1 + pred, 12Jul06 Phase2 + pred/dexa, 14Aug07 Phase2, prednisone, dexamethasone, testosterone, aspirin, levothyr
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kenc
Member in Phase 3
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Posted: Wed May 27th, 2009 02:40 |
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Sunset,
It is believed to up-regulate vital elements of your immune system by increasing your body’s production of metenkephalin and endorphins (your natural opioids), hence improving your immune function.
I'm not sure how speculative the above statement on LDN at Mercola's website is. However, if it's true then there should be some immunopathology. Otherwise, according to the Marshall Pathogensis the mechanism is palliation.
Ken
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Crohn's Disease 1984, 24May05 1,25D=33 25D=8.4, 6Sep05 1,25D=29 25D=12, 11Jun07 25D=<10.4 1,25D=10, 15Sep07 1,25D=14.2 25D=16, 12Jul05 Phase1 + pred, 12Jul06 Phase2 + pred/dexa, 14Aug07 Phase2, prednisone, dexamethasone, testosterone, aspirin, levothyr
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
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Posted: Wed May 27th, 2009 03:53 |
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In my opinion, the people who say these things have zero credibility. How can an opioid of any kind improve immune function? It makes no sense.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Deedee
Member in Phase 2
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Posted: Wed May 27th, 2009 04:20 |
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Paul, you said what I was thinking. I don't give anything Mercola says any weight.
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Sarc in lymph nodes. D14. Back to Phase I, 100 mino Benicar 4X/day. Lipids high. 7/07 check-up: Normal PFTs/CXR improved; Quecentin/guaifensin if lymph nodes hurt. Spleen pains. Began MP 8/08
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