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bookdad
Member in Phase 3
| Joined: | Tue Aug 16th, 2005 |
| Location: | Riverdale, Utah USA |
| Posts: | 262 |
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Posted: Thu Aug 6th, 2009 20:10 |
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Dr Marshall, Sir, I have a question if you have a minute to consider it. In reading other areas on the site I came across a blurb about how you thought that a series of other illnesses could predispose our bodies to become susceptible to Th1 infection. My question is, have we done a medical history on the cohort and collated that info to see if there is a possible corollary? I would think that this would be very valuable in future diagnosis processes. Please forgive my ignorance if this has already been done. Good luck in China!
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Sarcoidosis/lungs RA Ph1Nov05 Ph2Mar06 Ph3Aug06 lite exp r/t to work cover up NoIRs Ph5 Aug 09
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Dr Trevor Marshall
Foundation Staff
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Posted: Thu Aug 6th, 2009 23:58 |
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have we done a medical history on the cohort
I did apply for an NIH grant to hire people to help us do that, but it was rated low priority by the NIH. With >750 actively reporting members right now, a comprehensive retrospective study will be the responsibility of others, I am afraid. It took us a long time to just gather the data we used to prepare the presentation on MP outcomes at Porto last year 
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bookdad
Member in Phase 3
| Joined: | Tue Aug 16th, 2005 |
| Location: | Riverdale, Utah USA |
| Posts: | 262 |
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Posted: Fri Aug 7th, 2009 01:57 |
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| how can I help?
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Sarcoidosis/lungs RA Ph1Nov05 Ph2Mar06 Ph3Aug06 lite exp r/t to work cover up NoIRs Ph5 Aug 09
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 878 |
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Posted: Sat Aug 8th, 2009 15:45 |
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Hi Bookdad,
If you want to help, Saj (wytnez) is updating our doctors' list, and maybe she can use your help. In my opinion, that's a fairly important project.
You can read more about it here:
http://www.marshallprotocol.com/view_topic.php?id=13304&forum_id=47&jump_to=181759#p181759
Best,
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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jcwat101
Research Professional
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
| Posts: | 1800 |
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Posted: Sat Aug 8th, 2009 15:54 |
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I want to add that although what Paul mentioned is not what you were specifically interested in, anything you or others can help on should help us move closer toward our many goals, including being able to gather more data, like the type you mentioned. At this point, we are rather limited in what we can due to our small number of volunteers combined with an enormous task.
Joyce Waterhouse
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.com
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Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
| Posts: | 2200 |
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Posted: Sat Aug 8th, 2009 20:42 |
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Yes, please note, anyone wanting to help us get to the much desired task of reviewing results from the cohort...
That task comes a little further down the priority list below responding to members, developing the new MP knowledge base, travel, papers, presentations, & working on the doctor's list. (note: the link Paul gave may not be visible if you don't have specific permissions.)
Last edited on Sat Aug 8th, 2009 20:42 by Joyful
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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Sunset
Health Professional
| Joined: | Tue Oct 16th, 2007 |
| Location: | USA |
| Posts: | 123 |
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Posted: Wed Aug 12th, 2009 03:16 |
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Amy and Paul, thank you, thank you, thank you! 
You both did a wonderful job presenting the alternative theory on the potentially harmful effects of Vitamin D supplementation and the impact of adding vitamin D to the food supply of a population as it relates to chronic disease in 5 minutes each!
I'm so glad that you both can talk very fast!
I'm curious, did you have any questions from anyone afterward? Do you think what you presented was well received or did it fall on deaf ears?
Dr Marshall, your Phase 3 clinical trial in China couldn't have started at a better time! Good luck and Thank you!
Best regards,
Sunset  Last edited on Wed Aug 12th, 2009 03:24 by Sunset
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FM, CFS, migr HA, low adrenal, RBC coinfection 11/07 1,25D70, 25D48, 7/08 25-D 21;11/08 25-D 22; 2/09 25-D 15.6; 7/09 25-D 11; 10/09 25-D 5ng/mL. olmesart 40mg+20mg SL, T4 25mcg QAM, T3 7.5mcg BID. NoIRs/limit lite exp
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Cynthia Schnitz
Member in Phase 3
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Posted: Wed Aug 12th, 2009 20:45 |
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| Hi Paul (and Amy). I have been looking on Bacteriality for 'a short little blurb on Bacteriality complete with our comments' about your 5 minutes talks. Did I look in the wrong place/missed it? Or is this still in the works. Cynthia
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Ph1 10/08, Ph2 12/08, Ph3 6/09, 125/25D 47/43 preMP, 25D14 12/09, Estradiol .75mg, Calcium anomaly(gone?), Spondylitis, early Diverticulosis, early Macular Degeneration(AMD), Type II Diabetes (unconfirmed,PreDiabetes?), returning sense smell
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 878 |
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Posted: Wed Aug 12th, 2009 20:47 |
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Hi Sunset and Cynthia,
We're going to put up a post on Bacteriality in the next day or so, and I'll post a link announcing it in this thread. It should satiate your curiosity.
Best,
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 878 |
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Posted: Thu Aug 13th, 2009 20:25 |
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Here is our comments on our visit to D.C.:
http://bacteriality.com/2009/08/10/iom/
Hope you enjoy.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Ron
Member in Phase 2
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Posted: Thu Aug 13th, 2009 21:51 |
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Wow Paul, Amy! That is extensive!!!
Please, do come to Bruges in October!
Ron
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Dad with RA, MP 01/08| 25D-16.8| Apr08 7.1 Sep08 11.6 Mar09 7.6 Jul09 17 Dec09 10.4| oxycodon, NoIRs, limited outings covered up
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Rico
Moderator
| Joined: | Wed May 31st, 2006 |
| Location: | |
| Posts: | 350 |
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Posted: Fri Aug 14th, 2009 01:49 |
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Wow, Paul and Amy. Not only am I impressed by your speeches and in the company you made them, but by such a detailed analysis and giving us very good insight into what's going on behind the scenes. After reading your article, I know exactly what you mean by "bad taste in our mouths". Nonetheless, I congratulate you both on a job well done!
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No diagnosis/some symptoms; wife with Sarc on MP; Olm 40mg q6h| avoid D| 1,25D=63 25D=32 (May 2006) 1,25D=44; 25D=10(Dec 2006)PhaseI(May06) PhaseII(Aug06) PhaseIII(Aug07)
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 858 |
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Posted: Tue Aug 18th, 2009 21:42 |
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Loved your talks and your Bacteriality article entitled "Second-guessing Consensus on Vitamin D." Thanks in particular for making me laugh out loud with...
"With this in mind, isn’t it a bit less plausible that, when it comes to the ability of the human body to naturally adjust its vitamin D levels for optimal health, current humans are a complete evolutionary bust and must be given truckloads of pills in order to remain healthy?"
I often wonder that myself and also wonder how Americans can truly believe that 70% of today's youth are Vitamin D deficient. Of course, with that current fiction and the push to increase D in kids, the future looks bleak. Thank God for Dr. Marshall, you and Paul, and all the folk who are saying, "Now wait just one minute."
Thanks again, Claire
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38mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
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Frans
Member in Phase 2
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Posted: Fri Feb 5th, 2010 15:06 |
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Paul, Ames,
Is there any change in status ? Has IOM come to a conclusion as far as you know ?
Best, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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