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Dr Trevor Marshall
Foundation Staff
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Posted: Mon Aug 3rd, 2009 23:27 |
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Tuesday August 4th, Amy and Paul are representing the Foundation (you) at the Open Public Workshop of the Institute of Medicine, of the National Academies, in Washington DC.
Details are here:
http://www.iom.edu/Default.aspx?ID=61170
The agenda can be downloaded from here:
http://www.iom.edu/?id=71285
The first presentation of the day, the IOM committee's special report on the state of Vitamin D in the literature, will be WEBCAST from 8:10 to 9:15am EST (5:10-6:15 PST) Tuesday August 4th.
The (lengthy) report is also available for download, and AFAIK it basically says that the literature is not certain about anything at this point in time.
Enjoy !
My personal thanks go to Amy and Paul for taking on this task on our behalf 
(and thanks to Joyce for helping to give us some ideas and focus on this issue )
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 879 |
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Posted: Tue Aug 4th, 2009 00:19 |
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Hi All,
Amy and I are currently on the "Bolt Bus" now, streaking our way down the eastern seaboard. At the rest stop, Amy purchased a bowl of cheddar and broccoli soup, and I opted for a submarine sandwich.
Our comments will be only five minutes a piece, but we have labored over statements that communicate as much as we can in a short time.
Best,
Paul
____________________
Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Dr Trevor Marshall
Foundation Staff
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Posted: Tue Aug 4th, 2009 00:53 |
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WiFi on a bus
https://www.boltbus.com/
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Frans
Member in Phase 2
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Posted: Tue Aug 4th, 2009 13:13 |
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| Have fun guys !
____________________
Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Frans
Member in Phase 2
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Posted: Tue Aug 4th, 2009 13:17 |
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| Oh wow, the agenda is filled with names belonging to the vitamin d council ... that should make for interesting conversation ....
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Dr Trevor Marshall
Foundation Staff
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Posted: Tue Aug 4th, 2009 13:33 |
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The webcast was rather interesting, as it highlighted (IMO) the inability of Evidence Based Medicine to extract reliable data from studies which had been hobbled by a lack of knowledge about the expected outcomes. Or more importantly, where the expected outcome was often incorrect and insufficient.
While listening to the explanation of the methodology behind the report, and how they had based the report on thousands of papers scrounged from a PubMed keyword search, the thought came to my mind that 12,000 monkeys sitting at typewriters were only a little bit more likely than just 12 typewriting monkeys to come up with a paragraph of Shakespeare during our lifetime.
I recorded the webcast. I am hoping the IOM makes available recordings of the entire day's proceedings, as the Chairman said it was all being recorded
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Frans
Member in Phase 2
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Posted: Tue Aug 4th, 2009 13:55 |
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Dr Trevor Marshall wrote: I recorded the webcast
Hmm, I missed it, timedifference doesn't help Can we access your recording somewhere, Trevor ?
Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Ron
Member in Phase 2
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Posted: Tue Aug 4th, 2009 13:58 |
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It will probably be listed here soon:
http://www.nap.edu/webcast/webcast_list.php
I missed it too, behind the office firewall... 
Ron
____________________
Dad with RA, MP 01/08| 25D-16.8| Apr08 7.1 Sep08 11.6 Mar09 7.6 Jul09 17 Dec09 10.4| oxycodon, NoIRs, limited outings covered up
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Dr Trevor Marshall
Foundation Staff
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Posted: Tue Aug 4th, 2009 14:10 |
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Frans,
You can find the 9 megabyte Real Media audio file at:
http://MarshallProtocol.com/video/IOM_4aug09.rm
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Frans
Member in Phase 2
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Posted: Tue Aug 4th, 2009 15:08 |
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Thanks Trevor.
I downloaded the report too and stumbled onto this, on page 315:
"However, there is an underlying suspicion of publication bias against studies having either null or negative outcomes and reporting bias toward “significant” outcomes in the literature. Thus, it is important to consider these biases when reviewing the overall findings of any systematic review."
Oof ... yet, not surprising ...
Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 879 |
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Posted: Tue Aug 4th, 2009 17:31 |
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Dr. Barry Kramer had a real great speech about the limitations of research and the importance of exercising caution.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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JohnMcC
Member in Phase 2
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Posted: Tue Aug 4th, 2009 18:35 |
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paulalbert wrote: limitations of research and the importance of exercising caution.
Limitations of specifically directed/funded research and caution in case of a cure...or am I just a cynical TH1 survivor....
Self preserving nonsense - how cautious was the world with penicillin and the like, made billions for Pharma companies and so it goes on in the name of research...
Paul, I hope you both show these folks what integrity looks like - I do believe that you have an unenviable task.
Looking forward to your report...
____________________
Diagnosed Sarc by biopsy Jan93
25/04/05(25D-41 1,25D-94 ACE 35)
25/09/08(25D-30 1,25D-63 ACE 35) Phase1 28/09/08
3/12/08 (25D 10.8 1.25D 27.5) Mod Phase 2 22/01/09
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
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| Posts: | 879 |
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Posted: Wed Aug 5th, 2009 04:11 |
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Thank, John.
Amy and I just got back. The 5-minute comments went surprisingly well. Everyone agreed with us. The whole Vitamin D Council carried us out on their shoulders.
Actually, that's not quite true.... We made our comments, and a lot of the vitamin D "champions" looked at us weirdly. Some people were receptive actually.
The committee members' heard us, and they asked some critical questions (to the pro-vitamin D crowd) that suggest to me like they weren't necessarily accepting everything being said to them. Anyway, mission accomplished.
We might put together a short little blurb on Bacteriality complete with our comments.
By the way, thank you to Trevor and Joyce for help with editing our comments.
Best,
Paul and Amy
____________________
Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Ron
Member in Phase 2
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Posted: Wed Aug 5th, 2009 05:53 |
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Great work Paul and Amy!
Looking forward to that blurb! 
____________________
Dad with RA, MP 01/08| 25D-16.8| Apr08 7.1 Sep08 11.6 Mar09 7.6 Jul09 17 Dec09 10.4| oxycodon, NoIRs, limited outings covered up
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Toni D
Moderator
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Posted: Wed Aug 5th, 2009 08:55 |
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Thanks to both of you for being our mouthpiece.
Feel good and be blessed this fine day.
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DX sarcoid-1970 glaucoma high BP asthma allergies| Meds-Lasix Xopenex Nevanac Cardizem Nizoral Cream| NoIRs No D/sun | 08/05 25D=26, 1,25D=38| 07/07 25D=<4| BeniQ6H 09/27/05| ModPh2 07/06; Ph2 09/07|Ph3 04/08| 12/08 25D=<4| 05/09 25D=<4, 1,25D=27
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Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
| Posts: | 2256 |
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Offline
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Posted: Wed Aug 5th, 2009 09:38 |
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Yes! Thank you for speaking for all of us who 'get it' that the current popularity of a supplement known as 'Vitamin' D will have serious health consequences world wide for years to come.
I will look for your comments on Bacteriality.
Good job!
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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JohnMcC
Member in Phase 2
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Posted: Wed Aug 5th, 2009 14:19 |
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paulalbert wrote: Thank, John.
Amy and I just got back. The 5-minute comments went surprisingly well. Everyone agreed with us. The whole Vitamin D Council carried us out on their shoulders.
Made me laugh out loud...Thank you
John
____________________
Diagnosed Sarc by biopsy Jan93
25/04/05(25D-41 1,25D-94 ACE 35)
25/09/08(25D-30 1,25D-63 ACE 35) Phase1 28/09/08
3/12/08 (25D 10.8 1.25D 27.5) Mod Phase 2 22/01/09
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Dr Trevor Marshall
Foundation Staff
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Posted: Thu Aug 6th, 2009 04:23 |
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Great Work Paul and Amy !!!
I just arrived in Dalian, China, where I am going to give a talk on the MP and Cancers, in about 48 hours
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Ron
Member in Phase 2
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Posted: Thu Aug 6th, 2009 11:23 |
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Dr Trevor Marshall wroteI just arrived in Dalian, China, where I am going to give a talk on the MP and Cancers, in about 48 hours
Hopefully you will be video taping that!
And don't forget to switch on those lapel microphones. 
____________________
Dad with RA, MP 01/08| 25D-16.8| Apr08 7.1 Sep08 11.6 Mar09 7.6 Jul09 17 Dec09 10.4| oxycodon, NoIRs, limited outings covered up
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Freddie Ash
Member in Phase 3
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Posted: Thu Aug 6th, 2009 12:04 |
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HI ALL
This is Fred in WV. I want to thank Dr Marshall, Paul & Amy for speaking for all of us also. I can never thank you enought for what each one of you have done for not only me and all the MPers here but for the whole world. Keep up the great work.
The work that Dr Marshall is doing in China is making my doctors listen a little closer to what I have to say about the Marshall Protocol.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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