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Dr Trevor Marshall Research Team

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Posted: Mon Apr 16th, 2007 02:42 |
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Dr Joe Mercola is a well-meaning and thoughtful physician. He gave us valuable help back in 2002, publishing the "Remission from Sarcoidosis" article on his website when nobody else would listen. Unfortunately he has failed to keep pace with the advances in scientific knowledge over the last five years. He is just plain wrong about the biological effects of Splenda. I am sorry that his writings on that topic have caused you un-necessary concern.
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Joy Guest

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Posted: Tue Apr 17th, 2007 22:40 |
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I was about to jump in here to recommend people suffering coffee and tea withdrawals try the Celestial Seasonings Caffeine-Free Tea substitute. Really tastes like proper English black tea when doctored with a dab of honey and D-free milk. I've been enjoying it almost nightly for awhile now.
But examining the ingredients I am horrified to see hawthorn berries right in there as one of the main ingredients. The foods list says hawthorn is not advisable while on the MP. Dr. D'Adamo (the Eat Right 4 Your Blood Type Diet naturopath) says hawthorn is the most beneficial herb for Type A's (which I am), and he cannot recommend it highly enough. I wonder why it doesn't work on the MP? Any insights?
Oh well, so that goes in the bin along with everything else now.
____________________ CFS, FM, MCS, RA, Uveitis, Neuropathy, MGUS, porphyria, low thyroid.
Non-MP Meds: Armour Thyroid, Lotemax steroid eye drop (3/day). Milk thistle, lutein, calcium, probiotics. NoIRs, gloves, hat.
Began Ph 1 9/06, Phase 2 1/07. 25D: 32,17,5,4,4
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tickbite Guest

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Posted: Tue Apr 17th, 2007 23:13 |
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Joy,
I'm sure you already know this, but I don't think it's the caffeine per-se in tea and coffee but the chlorogenic acid.
____________________ "Lyme","CFS", Meningitis
Phase3 8-2-07, MP on hold 11/2007
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Jeannine R.N. Board Staff

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Posted: Wed Apr 18th, 2007 00:42 |
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| So what is the word on Stevia? I cannot use splenda. Jeannine
____________________ CFS FM Lyme Morgellon's 125D49 Ph1Aug06 25D <4(april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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Joy Guest

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Posted: Wed Apr 18th, 2007 01:05 |
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Tickbite,
Yes, I know that. This is just something I've used as a substitute for some years now because I can't tolerate caffeine. For a good 20 years I've gotten rapid pulse and heartbeat from it. Even 1/4 cup Starbucks decaf will keep me up till 4 a.m. I've never known why before, but my mother is also equally sensitive to it.
Funny, though, as I used to handle it just fine when I was younger. About 20 years ago I started to not be able to handle it (concurrent with the onset of RA and other Th1 illnesses -- coincidence??)
____________________ CFS, FM, MCS, RA, Uveitis, Neuropathy, MGUS, porphyria, low thyroid.
Non-MP Meds: Armour Thyroid, Lotemax steroid eye drop (3/day). Milk thistle, lutein, calcium, probiotics. NoIRs, gloves, hat.
Began Ph 1 9/06, Phase 2 1/07. 25D: 32,17,5,4,4
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IngeD Advocate

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Posted: Wed Apr 18th, 2007 01:17 |
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Hi Jeanninehope: here is more info
Sugar Substitutes on stevia and other substitutes. Neither Stevia nor Splenda are contraindicated on the MP. Regards, Inge.
____________________ Rickettsiosis per neurop chron bronch adhesions IBS pre-diabetes HTN 125D51 Ph1Jan07 25D26.4(Dec06) 25D12.8 (Jun07) 25D8.4 (Jun08) Valium NoIRs limited outings covered lo lux home Ph3
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wrotek Member in Phase 3

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Posted: Wed Apr 18th, 2007 11:24 |
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Maybe decaf has some caffeine in it after all ?
Withdrawal is from caffeine, so i don't understand really using any caffeine free substitutions to decrease withdrawal symptoms.
____________________ Lyme reflux chronic pain fatigue depression 125D36 Ph1Sep05 Ph2Oct06 Ph3Apr07 homebound in low lux NoIRs 25D<7 Oct06
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Dr Trevor Marshall Research Team

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Posted: Wed Apr 18th, 2007 12:33 |
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Wrotek.
No, withdrawal is from anything your body (or mind) has become dependent upon. For example, one's body has withdrawal symptoms from prednisone, and one needs to wean very slowly...
Similarly, one would need to withdraw from Chlorogenic Acid, if one had been ingeting it in sufficient concentrations to have been suppressing the immune system...
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tickbite Guest

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Posted: Wed Apr 18th, 2007 12:36 |
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Wrotek,
I'm not so sure withdrawal is solely from the caffeine. Obviously the CGA was sort-of modulating your herx too. Which would mean that the withdrawal symptoms for Th1 sufferers would be a tad more than usual I couldn't imagine what those pots of coffee some of us were drinking was doing to their recovery progress......
____________________ "Lyme","CFS", Meningitis
Phase3 8-2-07, MP on hold 11/2007
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wrotek Member in Phase 3

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Posted: Wed Apr 18th, 2007 13:58 |
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Very interesting idea that chlorogenic acid can so be addictive . I wonder if it is addictive to healthy people as well.
It would explain why people trying to quit coffee, switch to decaf. Last edited on Wed Apr 18th, 2007 14:00 by wrotek
____________________ Lyme reflux chronic pain fatigue depression 125D36 Ph1Sep05 Ph2Oct06 Ph3Apr07 homebound in low lux NoIRs 25D<7 Oct06
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IngeD Advocate

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Posted: Wed Apr 18th, 2007 14:43 |
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there is also the taste thing! If you like coffee but want to give up caffeine then decaf at least still has the taste...nothing else is quite like it....hot chocolate is too sweet and herbal teas are just not the same...neither are the herbal coffees...unfortuantely doesn't help us.....they don't make caffeine free and cga free and probably by the time that is extracted you won't recognise the taste anymore Inge.
____________________ Rickettsiosis per neurop chron bronch adhesions IBS pre-diabetes HTN 125D51 Ph1Jan07 25D26.4(Dec06) 25D12.8 (Jun07) 25D8.4 (Jun08) Valium NoIRs limited outings covered lo lux home Ph3
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Jeannine R.N. Board Staff

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Posted: Wed Apr 18th, 2007 16:36 |
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Thanks Inge for the link....However I was referring to the content of Chlorogenic Acid in Stevia as it is from a plant...Guess I should have been more specific...but the link helped
I know things in moderation are ok....but just wanted to see if anyone else had anything to say about the Chlorogenic Acid level in Stevia....
I found a scienific article but I dont have access to it...
http://www.springerlink.com/content/j2573u7341495341/
....I did find this on the web...
http://www.rain-tree.com/stevia.htm
I guess with the amount of steiva on would use that it might not really matter??
Just interesting......Jeannine
____________________ CFS FM Lyme Morgellon's 125D49 Ph1Aug06 25D <4(april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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tickbite Guest

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Posted: Wed Apr 18th, 2007 17:36 |
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It's called water people, dang! haha. Someone has always gotta be trying to drink something other than water! It's only temporary!
____________________ "Lyme","CFS", Meningitis
Phase3 8-2-07, MP on hold 11/2007
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Meg Mangin R.N. Research Team

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Posted: Wed Apr 18th, 2007 19:54 |
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Joy,
Folks are advised not to take hawthorn supplements because they might lower blood pressure. I doubt the amount of hawthorn in a cup of tea is enough to be of concern. 
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Joy Guest

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Posted: Thu Apr 19th, 2007 02:57 |
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Thanks, Meg. I may continue with it, then, just occasionally. It gives your mind and taste-buds the feeling of drinking something like real tea, and I do miss my English tea. Probably wouldn't do much physically for a caffeine/CA withdrawal, but at least you're drinking something similar this way and don't feel quite as deprived.
The ingredients are:
Blackberry leaves
roasted chicory root
hawthorn berries
beet root
natural tea flavor
hibiscus flowers
Hopefully the blackberry leaves are okay? Someone said blackberries may contain chlorogenic acid, hopefully not the leaves?
____________________ CFS, FM, MCS, RA, Uveitis, Neuropathy, MGUS, porphyria, low thyroid.
Non-MP Meds: Armour Thyroid, Lotemax steroid eye drop (3/day). Milk thistle, lutein, calcium, probiotics. NoIRs, gloves, hat.
Began Ph 1 9/06, Phase 2 1/07. 25D: 32,17,5,4,4
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Dody Member in Phase 2

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Posted: Sat Apr 21st, 2007 17:06 |
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And apples too?!! Dang.
Dody
____________________ Lyme arrhythmia Lithium Valium Tylenol Mucinex NoIRs low lux home lite exp r/t to work cover up outside Mod Ph2Jul07 Ph2Apr08 D25 12 Feb08
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Martha Member in Phase 2
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Posted: Sun Apr 22nd, 2007 16:54 |
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Is garlic safe??? We eat lots of it in our family. Hubby's cholesterol is a bit high and he won't take statins. His dad had heart problems his whole life (well from his 30's on). I've heard that garlic is great for heart disease.
Much thanks,
Martha
____________________ Scleroderma resumed MP Feb07 after 2 yr hiatus due to pregnancy D2512 & D12545 NoIRS D25-8 (Sep07) Ph2Feb08
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mercuryspice Member in Phase 3
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Posted: Mon Apr 23rd, 2007 00:27 |
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i'm getting confused by reading all of this. Will a few cups of coffee a week interfere with my progress on the MP? It helps to keep me awake when I need to do something. What does it do to the 1,25 d level?
thanks lisa
____________________ Lyme 25d 11, 125D44 25D11 Ph1 Sep06 ModPh2Jan07 Ph2Oct 07 Ph3May08 motrin flexeril wellbutrin prozac ativan NoIRs lite exp r/t to school
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Dr Trevor Marshall Research Team

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Posted: Mon Apr 23rd, 2007 00:57 |
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A few cups a week is fine. Two cups a day is marginal A few cups every day might be a problem
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mercuryspice Member in Phase 3
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Posted: Mon Apr 23rd, 2007 18:20 |
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thanks so much for simplifying it for me. Sometimes my lyme brain can't understand all of the science stuff
lisa
____________________ Lyme 25d 11, 125D44 25D11 Ph1 Sep06 ModPh2Jan07 Ph2Oct 07 Ph3May08 motrin flexeril wellbutrin prozac ativan NoIRs lite exp r/t to school
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