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Toni D
Moderator
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Posted: Tue Oct 2nd, 2007 23:26 |
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Meredith,
Here is a link to the new procedure for acquiring the name of MP doctors in your area: http://www.marshallprotocol.com/forum11/9355.html
Hope all is well with you. Feel good and be blessed.
ps--I think you've posted in the wrong forum; however, one of the moderators will have to redirect your post later.
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DX sarcoid-1970 glaucoma high BP asthma allergies| Meds-Lasix Xopenex Nevanac Cardizem Nizoral Cream| NoIRs No D/sun | 08/05 25D=26, 1,25D=38| 07/07 25D=<4| BeniQ6H 09/27/05| ModPh2 07/06; Ph2 09/07|Ph3 04/08| 12/08 25D=<4| 05/09 25D=<4, 1,25D=27
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Ames
Board Staff
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Posted: Sat Oct 6th, 2007 22:18 |
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Hi guys,
Just wanted to check in. Theres a new piece up on Bacteriality about diet and disease.
"Diet and Disease: Eating for Health"
http://bacteriality.com/2007/10/02/diet/
I also just put up an interview with Reenie (MP patient with CFS and fibro). Her story is particularly inspiring to me because many of my symptoms are similar to hers. She is doing very well.
http://bacteriality.com/2007/10/06/interview4/
Best,
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Ames
Board Staff
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Posted: Fri Oct 12th, 2007 17:32 |
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Hi guys,
I just put up a new piece on Bacteriality. It covers exactly how the MP antibiotics work, how Benicar works, and also discusses why low-dose, pulsed antibiotics must be used in order to kill L-form bacteria effectively.
I think it's important to stress to doctors that Trevor selected the MP antibiotics based on years of research and precise knowledge of their effects at the molecular level.
http://bacteriality.com/2007/10/11/antibiotics/
Best,
AmyLast edited on Fri Oct 12th, 2007 17:33 by Ames
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Ames
Board Staff
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Posted: Tue Oct 16th, 2007 17:33 |
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Hi,
I just put up an interview with board moderator Belinda Fenter on Bacteriality
http://bacteriality.com/2007/10/15/interview5/
I found it interesting to learn about the early days of the MP.....
Best,
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Robertrr
Member in Phase 3
| Joined: | Thu Jul 14th, 2005 |
| Location: | Austin, Texas USA |
| Posts: | 384 |
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Posted: Tue Oct 16th, 2007 18:44 |
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Hi Amy,
I just read the new interviews and articles. Wow, what a great job and web site! Thanks so much for putting that together for all of us to use as a reference site and as a site to refer others to.
Keep up the good work!
Robert
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Sarcoidosis 125D44 25D28 Ph1Jul05 Ph2Sep05 Ph3May06 D25-8(Feb07) May08 NoIRs outside otherwise normal light exposure
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Toni D
Moderator
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Posted: Wed Oct 17th, 2007 06:45 |
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Great articles, fluent, easy to read. Terrific job, Amy
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DX sarcoid-1970 glaucoma high BP asthma allergies| Meds-Lasix Xopenex Nevanac Cardizem Nizoral Cream| NoIRs No D/sun | 08/05 25D=26, 1,25D=38| 07/07 25D=<4| BeniQ6H 09/27/05| ModPh2 07/06; Ph2 09/07|Ph3 04/08| 12/08 25D=<4| 05/09 25D=<4, 1,25D=27
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Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | Restville, Again |
| Posts: | 1771 |
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Offline
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Posted: Wed Oct 17th, 2007 08:59 |
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Another excellent piece, you are really helping to get the message out!
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Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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Ames
Board Staff
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Posted: Sat Oct 20th, 2007 20:35 |
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Robert, Toni, Joyful...thank you for such nice comments. I'm so glad you enjoy the articles!
Just wanted to let you know that I just put a new piece up on the site called "Babies and Bacteria: How pathogens may affect an infant during the first weeks of life"
http://bacteriality.com/2007/10/17/infants/
I feel the research discussed in this article really sheds light on how a chronic disease develops - essentially many of the bacteria that we encounter during the first weeks of life can persist in our bodies and change the way our immune systems handles bacteria during the rest of our lives. I had several illnesses as a very young child and I'm sure those infections were the start of the CFS I developed later in life.
Best,
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Ames
Board Staff
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Posted: Thu Oct 25th, 2007 18:32 |
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Hi!
There's a new article up on Bacteriality;
"Duke University researchers connect vitamin D to brain lesions"
http://bacteriality.com/2007/10/24/brain_lesions/
"....elderly men and women who consumed higher levels of calcium and, in particular, vitamin D are significantly more likely to have greater volumes of brain lesions, indicating regions of damage that can increase risk of cognitive impairment, dementia, depression and death."
Not very surprising to those of us on the MP, right?
Best,
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | Restville, Again |
| Posts: | 1771 |
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Offline
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Posted: Fri Oct 26th, 2007 00:29 |
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Right!
I printed this right up and mailed it to a family member who is so very worried about getting dementia because of their parents experiences late in life.
Hopefully they will begin to look at things differently.
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Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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Mary
Member
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Posted: Fri Oct 26th, 2007 03:08 |
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Amy,
Thanks for your great articles..and for sharing them at this site! Very informative, simple to read and to understand.
mary
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Not MP: Chronic Lyme RA. Been ill for 22+ years 8/04 tests D25 47,1,25D 39,CRP 3.3 high.. Benicar for BP only.
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Martin78
Member in Phase 1
| Joined: | Sun Jul 15th, 2007 |
| Location: | Oslo, Norway |
| Posts: | 194 |
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Posted: Fri Oct 26th, 2007 04:33 |
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Dear Amy
I learned that you have a twin sister, me myslf have a twin brother suffering from bipolar dissorder and some day I atleast hope he will be given the possibility of doing his D-tests.
The Noregian Sarc. Organisation claims sarcoidosis to be more prevelent amongst twins, but they cannot back this up by research. I wonder, have you ever commed across such papers?
BR
Martin
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Sjøgrens Syndrome|Fatigue|wt loss|itch|night sweats|pain|ancle|legs|ches|irritat|depr| hypercalcemia|initial 125D 98|Probe Apr08|Valium| 25D30 Jan15.09|Ph1 Jan15.09|visit my site: http://www.youngsjogrens.com
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Ames
Board Staff
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Posted: Fri Oct 26th, 2007 22:27 |
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Hi Martin,
Yes I do have a twin sister. That's cool that you have a twin brother but I'm very sorry he's suffering from bipolar disorder. My boyfriend's brother has bipolar disorder so I'm learning more about how hard it is to manage the illness. I also hope that his brother will also eventually do the MP.
I am actually in the process of writing an article about how Th1 disease spreads in families. What's important to understand is that is not similar genes that caused both you and your twin to fall ill with Th1 disease, but rather the fact that you were both likely both exposed to a great deal of L-form bacteria.
I don't know of any studies that have looked at the incidence of sarcoidosis in twins, althought I am confident that if research was done on the subject it would be found that twins are definitely more likely to both fall ill with sarc seeing as they often pass around many of the same pathogens.
The following studies do point out that spouses and family members have a greater chance of developing sarc if other members of the family are infected with bacteria that cause the disease...
"A six-year study of the Th1 disease sarcoidosis, conducted by the National Heart, Lung and Blood Institute at the National Institutes of Health (NIH) in Maryland found that among the 215 study participants who had been diagnosed with sarcoidosis, there were five husband-and-wife couples that both had the disease. Yet sarcoidosis is such a rare disease that based on statistics there should have been none. They also noted that the risk for sarcoidosis increased nearly five-fold in parents and siblings with the disease.
There have been other case reports of familial clustering of sarcoidosis. A case-controlled study of residents of the Isle of Man found that 40 percent of people with sarcoidosis had been in contact with a person known to have the disease, compared with 1 to 2 percent of the control subjects. One study reported three cases of sarcoidosis among 57 firefighters who apprenticed together."
Best,
AmyLast edited on Fri Oct 26th, 2007 22:28 by Ames
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 773 |
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Offline
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Posted: Fri Oct 26th, 2007 22:48 |
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Hey Amy,
Thanks for the post about Vit D and brain lesions. I had heard about that and yet the October AARP has a comment by some sort of expert telling seniors to take calcium and Vit D. I am not up to it, but I'd certainly appreciate someone putting together at least a succient letter to the editor of AARP about that with the link to the research you site. (And also the research that shows that Vit D has not positive affect on bone gain.)
Perhaps they'd take a full length article if you wrote one. (Giving them a letter to the editor as a back up perhaps.)
Thanks for all that you are doing, Claire
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34mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
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Martin78
Member in Phase 1
| Joined: | Sun Jul 15th, 2007 |
| Location: | Oslo, Norway |
| Posts: | 194 |
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Posted: Sun Oct 28th, 2007 17:01 |
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Hi Amy
Thank you for your answer, looking forward to your next article.
I will investigate this claim further since they so clearly state this and let you know.
BR
Martin
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Sjøgrens Syndrome|Fatigue|wt loss|itch|night sweats|pain|ancle|legs|ches|irritat|depr| hypercalcemia|initial 125D 98|Probe Apr08|Valium| 25D30 Jan15.09|Ph1 Jan15.09|visit my site: http://www.youngsjogrens.com
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Ames
Board Staff
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Posted: Sun Oct 28th, 2007 20:20 |
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Hello!
Martin - A glimpse at the people reporting on this study site is a clear example of how Th1 disease runs in families - in terms of bacteria being passed among family members. There are many couples and siblings on the MP.
EClaire,
Thanks for the heads up on the AARP article. There seems to be an article hyping "vitamin" D's "benefits" everywhere I look. It's the same 'ol claims, which are backed up with no actual science - at least in the terms of the fact that not one of them provides a model of what vitamin D actually DOES in the body in order to provide all these supposed benefits. In contrast, Trevor has mapped out myriad pathways and receptors affected by the secosteroid/hormone by using molecular modeling. Hmmm....I wonder who is right? AARP would be a good place to make a statement. Maybe I'll toy with writing a letter. I just wonder if they'd published it. We'll see....
There is also a new interview up on Bacteriality. It's an interview with Robyn Russel. Her son Matt started the MP with a host of severe symptoms and is now is very close to complete recovery. I smiled the entire time I wrote the piece because his story is so inspiring and such a clear example of the ability of the MP to dramatically change lives.
http://bacteriality.com/2007/10/28/interview6/
Best,
Amy
____________________
CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Jeff
Member in Phase 3
| Joined: | Tue Jun 5th, 2007 |
| Location: | Delaware USA |
| Posts: | 30 |
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Posted: Tue Oct 30th, 2007 06:18 |
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My boyfriend's brother has bipolar disorder so I'm learning more about how hard it is to manage the illness. I also hope that his brother will also eventually do the MP.
Amy, do you mean to suggest that you feel confident that his bipolar disorder is a result of Lyme or are there other Th1 disease L-Forms that often or even typically manifest symptoms of bipolar disorder? Do you know of any good articles/research supporting this?
Thanks for the great work you're doing.
Jeff
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Lyme/neuro Parkinson's 125D41 Ph1Sep07 Ph2 Mar08 Ph3 May08 NoIRs coverup 2h lite daily driving D25<7 May08
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GeorgeinRollaMO
Member in Phase 3
| Joined: | Tue Aug 10th, 2004 |
| Location: | Rolla, Missouri USA |
| Posts: | 489 |
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Posted: Tue Oct 30th, 2007 07:31 |
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Jeff,
There is only ONE Th1 disease!!!
All of the names that I suppose that you want to hear are sets of symptoms that the medical community have given names to in their ignorance of the cause... Th1 inflammation.
Pay attention to your reading!!! 
Wishing all wellness!!! 
Dark Vader...aka, George
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Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Dr Trevor Marshall
Research Team
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Posted: Tue Oct 30th, 2007 08:36 |
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It looks like the Autoimmune Disease folk are also starting to realize that there is but one type of disease, and that it runs in families. Take a look at this advert for the AARDA on YouTube:
http://www.youtube.com/watch?v=eZKIcLx7gFA
(somebody needs to let them know what we have been doing)
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Ames
Board Staff
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Posted: Tue Oct 30th, 2007 19:21 |
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Hi Jeff,
That's right - all Th1 diseases have the same pathogenesis - they all result from infection by different forms of persistent bacteria. It is the species of bacteria that differ between people with different symptoms. The species of bacteria and other pathogens that a person accumulates over a lifetime (their infectious history) eventually determines what symptoms they develop.
On a separate note, I wanted to let you guys know that I have updated my vitamin D article based on a new paper written by Joyce Waterhouse PhD. I added a short discussion about the relationship of 25-D to Parathyroid Hormone based on her work. I feel it's important, because many doctors justify telling patients to supplement with vitamin D because they incorrectly think that it will lower PTH (elevated PTH has been linked to bone loss.)
Here is a link to Joyce's Article:
"Vitamin D, the Vitamin D Receptor and Chronic Disease -
Brain Lesions, Vascular Calcification and Osteoporosis:
Two Views of Vitamin D Supplementation and Parathyroid Hormone"
http://SynergyHN.com/lesions
It's definitely worth a read and an excellent document to show to doctors who are hesitant to accept the fact that vitamin D in not helpful in chronic disease.....
____________________
CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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