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paulalbert
Advocate
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 618 |
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Posted: Fri May 9th, 2008 02:16 |
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Thanks for the offer, Trevor.
I tell you, I am a bit worried about version control, and it is all I can do to keep track of the versions I've produced alone. Further, we're not particularly sure that we'd like the video broken up. If you watch it all the way through, you may agree that it doesn't quite lend itself to chapters. Besides, on most machines it does load pretty fast.
Do you all agree?
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / MP Gallery
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Dr Trevor Marshall
Research Team
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Posted: Fri May 9th, 2008 02:38 |
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Paul,
A number of our members are still on dial-up connections, and the whole 100+ meg is downloaded each time they start to look at the video. Frankly, I don't know whether there is an easy answer, and I agree that version control is an issue.
Hopefully anybody thinking about cutting and pasting will hold off until the final version is online 
..Trevor..
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Martin78
inactive member
| Joined: | Sun Jul 15th, 2007 |
| Location: | Norway |
| Posts: | 128 |
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Posted: Fri May 9th, 2008 09:54 |
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I dont have the editing competence to do this sorry  and I dont know the script well enough to decide if it is able to cut in to smaller chapters..
I was just suggesting that a version consisting of 3-4 "chapters" would make it easier for those not on the protocol to feed their doctors "bit by bit", taking into consideration that a standard consulation is like 30 minutes or so...
But then again a "too good edited" approach: "Convince your doc to do the MP on 1-2-3 - kind of thing" might not be the best strategy either, and might even raise more sceptisism. Doctors like to "find out things on their own", "bring the solution to the table/get the credits".. they hate beeing told what to do.
When I showed Dr. Blaneys presentation to my doctor I noted exactly when the interesting stuff on the dvd started, and I just forwarded to that point, and it worked fine...besides my doc was already familiar with the MP so I didnt have to work out a strategy to get help.
Anyhow, when the final version is ready I think it would be a good idea to also post the slideshow as a permanent thread at the curemyth1.org site
Enjoy your holiday! And again: I am really impressed by the workload you two are laying down on this, you seem like an endless source of new ideas and quality contributions! You must be really happy having this team aboard Trevor.
BR
Martin
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Fatigue "B-sxs" wt loss itch night sweats pain ancle/legs/chest irritation depression hypercalcemia 125D98 Ph1Apr08 Valium NoIRs limited outings covered 25D56 (April08)
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paulalbert
Advocate
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 618 |
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Posted: Fri May 9th, 2008 16:32 |
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We do want this to work for everyone. Is anyone still having trouble loading and viewing this video? If so, what's your connection speed (modem, cable, DSL, T1, etc.) and how does this compare to your experience on YouTube?
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / MP Gallery
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NorCalJim
Member in Phase 3
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Posted: Fri May 9th, 2008 17:58 |
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Thanks for the info on how to download the entire file. I was able to download it in about 14 minutes (DSL) then encode it with MyDVD and burn it onto a DVD to watch on a standard player...
NorCalJim
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Ankylosing spondylitis Ph1Mar07 Ph2Jun07 Ph3Nov07, no other meds or supps 25D18 (May07) 25D16 (Feb08) NoIRs in/out cover up out
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Aunt Diana
Advocate
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Posted: Sat May 10th, 2008 02:48 |
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Hi Paul,
I've been "out of it" for a week or so, with a pretty strong neuro herx, but just caught this thread and remember having a hard time when I tried to view the film. I have a cable connection. As I recall the picture wouid stop and start and the sound was not going along with the picture....with my brain fog I couldn't deal with it.
I was able to view the UTube film but even that, at times was a bit "iffy". If you think I should try again...where do I go and what do I do.....duh....my brain is on idle.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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ShrnHml
Guest
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Posted: Sat May 10th, 2008 03:18 |
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| Here's my 2 cents worth: make it into a DVD and sell it for a profit to the Foundation. I would much rathr lie on my sofa and watch it than sit for 90 minutes in a chair in front of my computer. Kudos to everyone involved. .......Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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arhayw
Member in Phase 3
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Posted: Sat May 10th, 2008 04:36 |
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We have a cable connection and the video quality was fine--better than YouTube. Download time was fast too.
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CFS FM hypothyroid 125D56 25D99 Ph1Jun04 25D30(Nov07)25D24(Mar08) Ph2Mar05 Ph3May06 abx brk Sep06 r/t KFTs Ph1Dec06 ModPh2Jul07 Ph1Jan08 25D37(Feb08) abx brk Feb08 r/t >sxs Cytomel Calcium NoIRs occ outings covered
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Aunt Diana
Advocate
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Posted: Sun May 11th, 2008 03:10 |
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| I agree with Sharon.....I would pay for a DVD gladly.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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paulalbert
Advocate
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 618 |
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Posted: Sun May 11th, 2008 22:38 |
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The people have spoken! Well, sort of. It seems a couple people want DVDs. Maybe that will happen. For now, I won't comment on that.
For those of you like Diana, who have trouble loading the video, may recommend this strategy:
1. press play on the video.
2. press pause.
3. do something else for a while.
4. press play.
5. it should play pretty nicely, because that first play triggered the loading in the background
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / MP Gallery
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paulalbert
Advocate
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 618 |
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Posted: Tue May 13th, 2008 15:14 |
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Open request-- does someone want to burn a small stack of DVDs and send them out to people who request them? We could get you reimbursed by charging a nominal fee via PayPal.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / MP Gallery
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Dr Trevor Marshall
Research Team
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Posted: Tue May 13th, 2008 19:33 |
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I can burn the DVDs quite easily, but Liz is already spending a stack of time sending out DVDs, the addressing and mailing is quite time-consuming, which is why I haven't volunteered 
I would see that a DVD with both the Karolinska interviews and Amy's summary would be the way to go.
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Aunt Diana
Advocate
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Posted: Tue May 13th, 2008 19:38 |
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| I will volunteer if someone will show me how to do it. I would love to do it.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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arhayw
Member in Phase 3
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Posted: Tue May 13th, 2008 19:43 |
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My mom and I are also happy to help out, though we are technologically backward and have had problems burning DVDs in the past. Addressing and mailing is well within reach--no coaching required!
Renee
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CFS FM hypothyroid 125D56 25D99 Ph1Jun04 25D30(Nov07)25D24(Mar08) Ph2Mar05 Ph3May06 abx brk Sep06 r/t KFTs Ph1Dec06 ModPh2Jul07 Ph1Jan08 25D37(Feb08) abx brk Feb08 r/t >sxs Cytomel Calcium NoIRs occ outings covered
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NorCalJim
Member in Phase 3
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Posted: Tue May 13th, 2008 21:38 |
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As I said in an earlier post I've already managed to put Amy's summary on a DVD, so have some rudimentory skills and basic software if needed to put something together and duplicate it for the other volunteers to send out....
NorCalJim
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Ankylosing spondylitis Ph1Mar07 Ph2Jun07 Ph3Nov07, no other meds or supps 25D18 (May07) 25D16 (Feb08) NoIRs in/out cover up out
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paulalbert
Advocate
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 618 |
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Posted: Tue May 13th, 2008 21:45 |
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Thanks for the interest, all.
1. Do you think it makes sense to charge a nominal fee for the cost of the DVD as well as postage? If so, how much?
2. For those of you succeeding in burning DVDs, can you find a way to put on the Karolinska interviews too?
I was also contacted by Gene saying he could lend a hand.
Whenever we decide, I'll share a full-res version of the video. It may be 300-400 MB.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / MP Gallery
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NorCalJim
Member in Phase 3
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Posted: Tue May 13th, 2008 22:47 |
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Paul,
Putting several clips on a DVD with a basic menu to choose between them would be no problem. I believe standard DVD resolution is 720x480 but the Vimeo clip looked pretty good on my TV at home, pretty close to standard broadcast quality...
Jim
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Ankylosing spondylitis Ph1Mar07 Ph2Jun07 Ph3Nov07, no other meds or supps 25D18 (May07) 25D16 (Feb08) NoIRs in/out cover up out
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paulalbert
Advocate
| Joined: | Fri Jul 16th, 2004 |
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| Posts: | 618 |
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Posted: Wed May 14th, 2008 02:29 |
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Sounds good, Jim.
Any thoughts on how much it would cost to produce and send such a DVD?
We should have a final version of the movie in a week or two.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / MP Gallery
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NorCalJim
Member in Phase 3
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Posted: Wed May 14th, 2008 03:47 |
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Paul,
I'd be happy to donate my time for the setup of the menus and a master image so that's free. I can price the rest but I'd give a ballpark figure of maybe $3-$4 each delivered. This would be for computer burned DVD-R disks with hand written or no labels in a proper shipping sleeve which I think would be fine for a grassroots effort at getting this info out to those that could benefit.
Note that computer burned disks aren't quite as compatible as mass produced ones but will work on most (95%) of settop players and pretty much any computer with a DVD drive.
Jim
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Ankylosing spondylitis Ph1Mar07 Ph2Jun07 Ph3Nov07, no other meds or supps 25D18 (May07) 25D16 (Feb08) NoIRs in/out cover up out
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slunn
Member in Phase 2
| Joined: | Tue Feb 26th, 2008 |
| Location: | United Kingdom |
| Posts: | 32 |
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Posted: Wed May 14th, 2008 19:06 |
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I happy to help burn and distribute dvd's in (or from) the UK if it's any help.
Stu
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CFS : Cognitive issues/Joint Pain/Fatigue | PH2(mod) 25Jun08 | 25-D 8.4 19Jun08 | no PX | Covered outside, mainly low lux inside and permanent eye protection.
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