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Aussie Barb
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Posted: Thu Nov 23rd, 2006 14:52 |
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DThomas: Sarcoidosis: Someone told me recently that the "Sparkle" was back.
Thanks for the links on SAD and depression. What a wonderful benefit of the MP and a confirmation that something good is going on inside me! I have, over the past 7-8 years been treated for SAD, Seasonal Affective Disorder during the winter months. Now I don't feel depressed at all like I have in years past. I don't feel the "weight" of depression. In fact, I feel very positive about life in general.
Someone told me recently that the "Sparkle" was back. It's amazing how you look when you feel happy about life and the future possibilities.
December 06:
My biggest improvement so far has been depression. For years I had SAD, Seasonal Affective Disorder, and took antidepressant meds each winter. This year, I have no signs or symptoms of SAD.
April 07:
Good news, I made it through the entire winter with no depression! Even with he IP's this was one of the best winters in many years.
DThomas Debra: Day 54 MP: greatly encouraged by my progress.
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Debra: DX Sarcoidosis, 1991, Lungs, skin, throat, sinus, 10/9/06 D25=21; 1D25=41, avoiding light & D;wearing NOIRs; Synthoroid .5mcg, zyrtec, off prednisone 10/20/06, began benicar 40mg q6h 10/22/06, Started Mino 25mgQ48h on 11/4/06, Phase II 1/10/07
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Aussie Barb
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Posted: Sat Nov 25th, 2006 22:48 |
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Tom: CFS-18years: I am in a different place, a better place, another level.
Member in Phase 2
Well, where do I begin? It’s been an incredible month. All of my strange symptoms lifted and left me with greater strength and focus then I have experienced in years. I know that I have a long way to go but I could feel the change. I am in a different place, a better place, another level.
I spent thanksgiving with family and held my own in conversation. I even was inspired enough to visit friends who lived locally. I could never have thought of this even 2 months earlier. This might be one slow train out of the station but it never stops moving.
I hope all of you had a much better Thanksgiving.
The very best to all.
Tom 
see also Tom: I have been pleasantly surprised at my cognitive improvement.
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Tom: CFS-18years,D tests Sept 08:1,25D=50pgml & 25D=32ngml/Dec22: 1,25D=34pgml & 25D=22pgml/Jan 1,06 Light, D, Noirs /Jan 9,06 MP-beni 40mg q6h/Feb 25,06 Mino 100mg QOD.Phase 2-March 17,06
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Aussie Barb
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Posted: Tue Nov 28th, 2006 00:22 |
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DianeC wrote: Back in 1998 testing revealed that I was a lupus suspect. My only regret is that I did not start MP sooner!!
Member in Phase 3
Glad to see that you found this site! Back in 1998 testing revealed that I was a lupus suspect. Conventional medicine had me on immunosuppressant drugs and after 3 years I was so much worse off because those drugs only suppress the illness and allow it to flourish.
Then for the next 3 years I had been prescribed doxycycline. It was evident at that point that I had a bacterial infection because the doxy was somewhat effective. But after 3 years on doxy, my brain felt like mush, I could not think straight because of the severe brain fog. I developed osteoporosis and osteoarthritis and I had trouble walking because of severe leg pain which caused me to limp. The orthopedic surgeon told me that in 2007 I would need a hip replacement!
Then in 2004 someone convinced me to try supplements but that failed because I was ingesting so much Vitamin D and folic acid which was feeding the inflammation!
I had heard about the Marshall Protocol but wish in retrospect that I had acted sooner and started the protocol earlier because it is truly giving me optimal health and giving me my life back for the first time ever! I have had absolutely no problem with minocycline.
I am now in Phase 3 and doing great! It is the first treatment program where I have more control as to when I will feel good or bad and I can adjust my meds accordingly!
- I am now practically running up and down the stairs now with no pain, no limping etc and I will not be needing that hip replacement next year!
So to summarize.........your lupus diagnosis is probably not lupus at all (it is just a label) most probably it is the cell wall deficient bacteria. When you do take minocycline, you will probably develop immune response symptoms and that is great because that means that it is targeting the problem. That means that you will feel worse before you get better but you can control the symptoms to the point of being tolerable. I do hope that you will decide to start MP My only regret is that I did not start sooner!!
Best wishes to you!!   
DianeC
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DianeC: dx chronic fatigue/ lupus osteoporosis osteoarthritis, hip replacement dx for 2007 9/05 tests: 25-D 40 1,25-D 52 1/10/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 D-25 18 10/06 Phase3
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Aussie Barb
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Posted: Tue Nov 28th, 2006 00:38 |
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ralph Sarcoidosis: wrote: My family have noticed the extra spring in my feet.
Member in Phase 2
Hi All,
In Phase 2: Getting out of bed of a morning appears much better. I don't feel like I have been hit by a bus when I wake up. I seem to have more energy at times in particular at night. It just so happens I have experimented going out a little more recently as I started Phase 2.
I must say whilst I'm no way near being in the cured comfort zone, I do feel since starting PH II that I definitely got more energy.
My family have noticed the extra spring in my feet and have pressured me a few times to go out more than I had planned. To date I have resisted and stood my ground. They understand but they don't. You know what I mean. They think because Im more mobile that its all over and everything can get back to normal. Not quite guys..... After 8 months of hard work not going to throw it down the gurgler.
With going out using the Quadblock Sensitive I am finding it quite good that not getting much symptoms. I am taking the Benicar 20mg/q2h as well. I do suffer at night after exposure on that day additional tiredness. I can live with that. I will continue to be vigilant in monitoring My Vit D to ensure its at a level where my immune system will be actively killing those bugs.
regards,
Ralph
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Ralph: Lungsarc 1/3/05 fatigue, bod/ache, irr/heartbt/ taking no meds| Avoid D, Light/sun, Noirs,24-7-06 25D=8/ 1,25D=39,4-9-06 25D=14, BeniCom 2/4/06 q6h, Start Ph 2 22-6-06 Minimal light sensitivity |indoors. 3/10/06 VitD-6.8,1,25-31.5 progressing well.
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Aussie Barb
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Posted: Fri Dec 1st, 2006 16:00 |
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Debbie D. Just wanted everyone to know that my energy is returning and feel much more "normal" since I began Marshall Protocol.... Doing well, Debbie
Member in Phase 3
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Debbie D.: Pulmonary Sarcoidosis, Menniers, Thyroid, UTI, Sinus, Cough, Depression Anxiety, herniated disks; 9/26/04 Noir/125D=27 25D=19 Phase 1, (1/05) and Phase 2/3 (3/06)
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Aussie Barb
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Posted: Fri Dec 1st, 2006 21:24 |
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Carolyn FMS/CFS: wrote: I am feeling somewhat better lately.
Member in Phase 2
The thing that I notice the most is that in the mornings when I awaken I don't feel bad. All of my life I have felt so bad when I first wake up. I had to drink at least 2 cups of coffee to be able to get ready for work. I would finally begin feeling better at noon or even later.
The last couple of weeks when I wake up I have felt more human. I haven't had to struggle and coax myself out of bed.
Many thanks, Carolyn
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Carolyn: Depression, 1966; Dx2000 FMS/CFS, Psoriasis, Tinnitus, Muscle Joint Pain; tailbone pain; poss Sarcoidosis; RLS; PLMD; MP 8/04;1,25D 59/25D 37;2Abx 1/27/05; 11/05 1,25D 37; 25D 13; 5/06 1,25D 34/25D 6; 3abx 6/06; back to 2abx 7/06/2006;10/06 1,25D 44;25D 7; dysfunctional sacrum
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Aussie Barb
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Posted: Fri Dec 1st, 2006 22:38 |
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VEZ wrote: I have more of a sense of well being than I have had in a long time as well, like feeling grounded..
Health Professional
Feeling pretty good overall with tolerable symptoms.
I do have more energy than I have had in a long time and I am grateful for this.
Even though I still have this cough and some wheezing, my lungs feel stronger than they have in a very long time. I can take some very deep breaths without coughing which is great.
I am very grateful for this amazing treatment....though I know I have quite a long road ahead of me... as far as I am concerned this IS the right treatment for me....I can feel the difference already in five months.........thank you is not enough......I will make it.
VEZ
March 2007:
PROGRESS:
I drove about 30 miles one way and did some shopping and had a nice lunch with a friend. It was overcast here but sunny when I arrived as it was south of where I live. I wore zinc oxide, my darkest Noirs while driving. I did not have to wear glasses shopping or during lunch. I did not have too much difficulty when I returned home but was tired and did rest for awhile in a dark room. Thanks for all of your help...
more March 2007:
Yesterday was a great day...I could not believe how much energy I had and how good I felt and......it was VERY sunny here with temp around 70 degrees. We had a preview of summer and I did have some time outside, covered and slathered in ZO with NoIRS but outside!!! No problems or ill effects to report.
I was able to go grocery shopping without using my NoIRS in the store, (used darkest outside), carry in all groceries, walk the property when sun went down a little, cook dinner, wash clothes, and tidy up the home and have a guest over for tea and I did feel quite well. Very little coughing and very few aches and pains. I still have the brain fog but hey, I am not complaining.
June 2007:
Prior to the MP whenever I worked physically, either outdoors or doing work indoors after a time my body would literally ache, though I would push myself through it my spine and all my bones would hurt so much I would take Motrin. I have had some pretty long days lately, planting, and gardening etc and though tired, my body does not hurt. I find this the most amazing thing as I have lived with aching for so long I began to think it was normal.
Overall I am doing well and grateful beyond words for the chance to get my life back and for all of the tireless efforts of this board, staff and the genius of Dr. Marshall.
I am approaching my one year mark on June 28th...Amazing!
see also
Vez update: I feel stronger than I have felt in years
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VEZ: lung granulomas x 13 yrs neuro cardiac symptoms chronic cough joint pain TMJ tinnitis Factor V Leiden| armour|probiotic avoid light/D NoIR| 6/30 Benicar q8+prn 8/28 mino| 6/30 1,25D-58.3 25D-33.6 TSH 10.6
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Aussie Barb
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Posted: Sat Dec 2nd, 2006 18:32 |
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UshiAad: Diagnosis ME 1993: things are getting better !!
Member in Phase 3
I went on holiday for a month and I even did some sports (sort of) and it felt great, even have that good old feeling of feeling better after some exercise. Muscle vibration in the upper body is basically absent (only if I exagerate something they remind me) and legs a lot better. I can more or less move around freely, which is a great sensation, sometimes I even forget to plan before I move myself around !!
Even if I will not improve any further, which I don’t think, the MP is already worth it as I am getting my life back.
I like the MP map Wrotek made, although I do feel a bit on my own in Ushuaia, Argentina South America ! Anybody out there !? I think it is also very usefull to convince ‘outsiders’ about the number of people everywhere who took the (right!) decision to start the MP.
Although it is still way to go I am getting more hair again !! After getting ill in 1993 within a year I lost most of it …
Planning my next antibiotics combinations ahead of time. Having written this down I do realise that planning so far ahead is a very good and positive sign that things are getting better !!
June 2007:
The most interesting nowadays is starting to get some sport acitivty going. It feels for the first time in 15 years that I can do something on a sustainable level (if I don’t overdo it of course).
Even the winter time here in southern Argentina doesn’t seem to cause some relapse (typically winter would be the worst period of the year for me). I even could get over a cold which before was quite impossible so my good old immune system seems to relearn some things.
Allthough sleep has been a problem in the past nowadays fine.
January 2008
My energy level is quite good, can even do some sports, to which body responds but more and more in a normal way (exercise still is ‘the’ yardstick to see where I am on my path to recovery), response to alcohol (glass of wine; which has been off-limits for a decade) is another good yardstick and although it is not an on demand test my ‘últimate’ test is to see whether my body can get over a cold (get a fever for the first time in 15 years, sneezing is already nearly normal)
La Vita e Bella Life is Beautiful
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UshiAad: Diagnosis ME 1993, D free diet and low light since 20/7/5, pulsed mino from 24/8/5 till 19/9/5 and Benicar since 21/9/5; Benicar/Mino since 3/10/5; 25D 4/10/5 6; 1,25D 4/10/5 21, NoIR's since 6/11/5; Phase 2 since 25/12/5; Phase 3 since June 2006
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Aussie Barb
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Posted: Sun Dec 3rd, 2006 16:45 |
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rc45guy Type1 Diabetes Jan89, insulin pump, 6.8 HbA1c. Sarc Mar03, CFS: improvements.
Member in Phase 2
I have noticed decreasing amounts of insulin needed since being on the MP (my basal is 31U/day and I average about 60U-70U/day). After I take my mino, then about 30min later my BS falls.
Anyway
(1) I have lost about 15% o my body weight over the past 6mo (220 to 190),
(b)my appetite is decreased,
(c)I'm exercising quite a bit, and
(d)I'm eating less carbs (about 50-75/day). Of course, all of these factors play a part in the decreased insulin usage. My basal rate has gone down from about 80U/day to 30U/day.
I'm playing racquetball 2x/week, which I couldn't have dreamed about doing before the MP, lol.
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rc45guy: Dx - Sarc Mar03, CFS, Type1 Diabetes Jan89, insulin pump, 6.8 Hb A1c ; No add'l meds; D tests May05:1,25D=55 & 25D<=5, avoiding light & D, NoIR 207s, Bolle100s, Phase 2
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Aussie Barb
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Posted: Wed Dec 6th, 2006 18:38 |
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Ival: RA: This past month has been my most active month ever since starting the Marshall Protocol. I have been able to do something just about every day.
Member in Phase 3
The day after thanksgiving I went down to Daytona to the big Rod run car show. The whole infield is full of muscle cars and hot rods. I had to walk a good four or five miles during the two days we were there. It was not pain free but not enough pain to really complain about.
Last week we had a big stock car race in Pensacola other than a little stiff back and neck from being out in the cold weather I did fine for the four days that I was at the track.
I missed my gold of working on one of the cars this year which surprisingly got me depressed for a little while. After I sat there and put it all in perspective I started laughing because I sure don’t have anything to get depressed about.
I’m probably going to miss my goal of going back to work by the end of this year but not by much. I’m not going to be able to work with all the heavy equipment that I used to use for a while yet. So I’m going to get an office job for a while doing paperwork and use my brain since it seems to be functioning most of the time.
Since January will be one year since starting phase three my plan is to switch antibiotics and if all is manageable I will get serious about going back to work.
I’m still having immunopathology effects but they’re not limiting my activities very much. My spine is having the most die off lately. Some days I walk around like I have Ankylosing Spondlitis. But other than walking like an old man it is really not limiting me very much.
I believe my improvement of arthritis symptoms this past month has been a direct relationship to the improvement of my GI tract. My G I track is not 100% yet but it is better than it has ever been in my life. I’ve had very little sun sensitivity this month even though I’ve had a lot of eye immunopathology .
Thanks to everyone involved in this protocol Ival
February 2007:
I’m in the 27 cycle of the full phase three antibiotics.
All of my immunopathalogy has become very manageable. My upper spine and muscles continue to improve but with a lot of immunopathalogy. Other than my back all of my arthritis pain is pretty much just a nuisance in the background. The last three months have just been unbelievable.
I’ve had so much energy since the beginning of the year that I have finally been able to go back to work. I still feel the fatigue coming on but it is not bad at all. I wanted to make sure that I was going to be able to continue to work before I posted. I’ve been back working for seven weeks and I’ve been holding up remarkably well. I’ve got a nice little dark office where I play on a computer all day. I was hired to get a couple software programs talking to each other.
When I started on the Marshal Protocol 21 months ago I already had stop working the year before. I was just about bedridden with chronic fatigue, arthritis pain and muscles stiffness. I stayed in bed about 60% of the day I pretty much thought my life was over.
This is definitely the E=MC2 of medicine. The beginning was not too much fun but the endings pretty amazing. There needs to be a new word in the English language to describe what it is like recovering from a Th1 disease. It’s a strange feeling describing what it’s like to regain your health.
Thanks to everyone involved in this protocol Ival
see also:
Interview with Ival Meyer - arthritis, dyslexia
Ival: MP is the right treatment for RA
Ival: Here is my little speech I gave at the Los Angeles conference. see DVDs.
Ival: I've got my life back
Ival: improvements..8 months ... 1 year....
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Ival: diag RA 2001 Male 47: MP 4/12/05/ Benicar Q6h Ph1 4/26/05/ 25D13ngml 125D 44pgml Ph2/6/1/05 Ph3/1/25/06
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Aussie Barb
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Posted: Thu Dec 7th, 2006 18:06 |
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Jeanninehope: CFS, FM, Lyme, Morgellons: I feel my old self coming back and it has only been six months on phase 1.
The last week or two I have been feeling a real difference...It kind of sneaks up on you... I feel less tired and am not irritable...I feel comfortable with myself and even have motivation to do things... which even on antidepressants this level of mental stability was never achieved...(I wish I had know about the MP ten years ago when my symptoms started as depression and panic attacks and sleeping a lot..but I am thankful it is here now...as I learned a lot about life being ill)... I can read and not have to re-read to comprehend. I feel my old self coming back and it has only been six months on phase 1.
OH yeah my moodiness and brain fog has even lessened do I dare say it is going! WOW I can taste a "NORMAL" life returning....I know it is early and I still have a way to go but I am ready!!!
I am still at home mostly but am able to get out whenever...I still sleep til noon but feel more refreshed when waking up...I had no idea I would be seeing results this soon!
I am now thinking about all the things I have always wanted to do and am planning for the future! I am even finding myself wanting children when I have never wanted them due to not being able to even fathom taking care of them because I was so tired and sick I couldnt take care of myself ...well I could but it was a struggle and I needed lots of support...This disease has even affected romantic relationships to the point of not being able to do anything and enjoy it without focusing on the disease. However, I see this as a thing of the past...as I am recovering.
I also saw the LAX panel discussion. I recommend the DVDs to everyone! I really liked the family aggregation lecture on the Chicago DVDs! Makes the world of sense!
Thank you staff and Dr. Marshall!! Merry Christmas and a Happy New Year! I am getting my life back!!!
We may endure for a night but JOY comes in the morning...
Jeannine
March 2007:
I was also thinking the other day that when not herxing I can do MATH like never before in my brain!!! This is exciting.....I was never able to do this before no matter how hard I tried and it was embarrassing as well as fustrating...I also have noted awhile back that I can read faster easier and comprehend more...that is when brain is clearer... menses are regular now.
The MP is amazing...No easy feat but very doable....
more March 2007:
OH MY!!! Since I am in Mod Phase Two I have been getting up at dawn the past week or so and I was able to be awake without sleepiness... I use to get so sleepy the Dr's thought I might have a sleeping disorder...I was fatigued but just being awake during the day without sleepiness was AMAZING!!!!!!!
Well more good news......I am sleeping and feeling like jumping out of bed to do things..I have never felt like this in my life!!!!!!!!!!!.Today I was able to do five hours of running around in the city before getting fatigued and that was with standing...
I would have never imagined.... My eyes are not sensitive that much and I am able to go out for long periods with K creme and covering, glasses etc...for shopping and driving....I was able to take my glasses off today in the BRIGHT store without any consequences...I even just now caught my self here on the computer typing without them...
My six pm med alarm just went off I couldnt believe I have been up all day without crashing or just laying around...I have been active ALL DAY!!!!...This has been the best I have felt in my life!!!!!!!!!
We may endure for a night but joy comes in the morning....
Jeannine
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Jeannine: 30yr/old: CFS FM Lyme Morgellons| pain fatigue depression flulike joints pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D- | prozac20mgqd| MPstart 7/14/06 Beni40Q6 P1 8/06| Mod Ph2
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Aussie Barb
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Posted: Sat Dec 9th, 2006 18:34 |
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Lori - Lyme
neuro immunopathology and sensation returning:
LINKS to Member progress and improving Health
Resource of individual links to Members recovery experiences
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Aussie Barb
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Posted: Tue Dec 12th, 2006 00:01 |
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prugg21: Pam: MCS/CFS/FM 22+yrs: making encouraging progress on the MP.
Sleep: I love this new ability to sleep! I so want it to last forever. I finally woke up feeling not so badly today, much more energy, 90% and way less weakness in muscles.
Sleeping adequate amounts recently and if I do wake up, it doesn't take long to fall back to sleep. YAY! I'm so happy with this development, I can't tell you. Was afraid to comment on it before, afraid I'd jinx it. Sometimes my energy is improved from it, sometimes not, brain power is somewhat better too. It just seems to improve the overall quality of life, I'm not so involved with on and off napping and grogginess and exhaustion that goes along with that (similar to having a new baby).
Light: I'm finding I'm not as affected by fluorescent lighting as I was several months. ago. No longer feel excessively weak and terribly faint as I did then.
I'm noticing my light sensitivity seems to be declining some. I'm having more trouble with seeing things inside with my 10% Noirs on.
Migraines: I have not had one migraine since starting the protocol. Still having mild transient headaches, but these are declining lately too. I used to have a migraine at least 2-3 times per month, even with severe food restrictions and extreme chemical, pollen, mold, and dust avoidance.
MCS: Good things I've noticed are that I tried reading a newspaper this week and didn't react to the ink (used to give me a headache if not a migraine). I also had 2 other 2nd hand exposures (meaning another family member had an exposure) which normally would've given me big problems and while I could notice it, they were not big deals.
One of these exposures was to spray paint, my daughter came in contact with. She was rendered a total insomniac for a night from it, I had mild tightness in my throat. Normally this would've given me a lot of coughing, mucous production and fibromyalgia pains in muscles. The other exposure was particleboard at the mall. Before, this would cause me to miss most of a night's sleep and be sick with flu-like symptoms for 24 hrs. This time, a somewhat restless night's sleep. Period. Felt fine the next day.
Ability: Feeling better emotionally today. Energy about 75%, getting some Xmas cards, etc done.
I was able to attend a party and felt fine even though the host's home was not a "safe" one for me and of course there was lots of perfume in the air. In fact, there were brain teaser games and I actually WON one of them. Wow, imagine that, me with my mush for brains winning something that requires some functional thought processes in a group of healthy people with smells abounding that normally remove my ability to think well?
What an esteem booster, not to mention encouraging as far as progress on the protocol.
I did 3 hrs under fluorescents without getting to the fainting stage, that's a huge improvement for me.
I went to see my chiropractor / reflexologist yesterday for the first time since before starting the MP. He said the only thing he could find wrong was the esoph. reflux and it wasn't nearly as bad as before. He couldn't find anything else out of whack. I was incredulous. He checked several different ways he has of checking and couldn't find anything amiss. So, needless to say, I am amazed and stunned. It's hard not to be after years of being so messed up in most ways possible.
My energy is remaining much higher than usual, around 85-95% which makes me really happy especially this time of year. I still do rest a major part of the time, I just have energy to do some of the things I want to do in between.
December Holidays 06:
My energy has still been up there, yesterday was SO good, I almost forgot to notice I am sick. It snowed and since it usually only does that every couple of yrs here, I went out and enjoyed it for a little bit, walking and taking pictures. All covered up with zinc lotion on face. I only needed 1 pair of outdoor Noirs on, but it was overcast, so I'll probably still need at least my indoor and outdoor together for our sunny southern AZ days. Just a month or so ago, I needed 2 pairs of outdoors on for daytime. My energy lasted really well most of the day, I finished a skirt I was making for my daughter and only got tired in my shoulders and back at the end of it.
A quote I ran across recently:
"Diseases are the crises of purification, of toxic elimination. Symptoms are the natural defenses of the body. We call them diseases, but in fact they are the cure of diseases." Hippocrates
February 2007:
... able to get some things done around the house, actually able to do some cleaning, organizing and paperwork for 2 straight hrs before having to rest.
I realized that I have not felt faint on standing at all this week or easily out of breath on trying to do anything physical. That feels like a major improvement. It's so nice to be able to just stand up without having to bend over!
Pam
see also Phase One Alumni Pam's Progress
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Pam: MCS/CFS/FM 22+yrs, Gerd, migraines, insomnia, avoiding light & D, NoIRS, benicar 3/30/06 20mg Q3H, mino 4/18/06, mod/ph2-10/17/06, probx, estriol, 3/06 1,25D=27pg/ml, 9/15/06-25D=26mg/ml 11/13/06 -25D=21mg/ml
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Aussie Barb
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Posted: Tue Dec 12th, 2006 14:36 |
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jrfoutin: Janet wrote brain fog cleared and I won my life back.
Member Advocate
I have had very, very serious brain fog. Before the MP I was having trouble remembering much of my life and recent events (long and short term memory). It was very upsetting.
When I would speak I would forget what I was saying, or even that I was talking. It got to be a trademark conversation frustration in our home culminating when my husband would just say "Finish it!" when I would start a sentence and then... nothing. It bothered both of us deeply. No matter how much I tried, I was bound and gagged with brain fog.
My father, who suffers from Parkinsonian disorders, was doing about the same thing at about the same time, so I was alarmed. To me, this is one symptom resolution that would have been worth any agony and any difficulty of the MP to resolve.
It used to take me the better part of a day to make one post. Now I do this and similar things quite quickly.
Just as all healing on the MP, symptoms follow where the bacteria have invaded. My fog had to be cleaned up. The most challenging part of the MP for me to date was ModPh2 when both physical and mental malaise was profound. There were a couple of times when I felt locked in nothingness. Fortunately, and as per all immunopathology on the MP, brain fog cleared and I won my life back.
So there you have it. I am an example. When did brain fog end? For me, it generally resolved somewhere around the end of ModPh2, very early in the MP. I was quite light sensitive to about the end of Ph2, about the same time that the last remnants of this particular symptom seemed to go away completely. (I still use NoIRs and keep lights low.)
Your mileage may vary based on your bacteria complexity and load.
January 2007:
I sailed through staying up for New Year better than my husband. That is a lot. I used to fall asleep at 10.
Choose well, get well--Janet
see also JRFoutin Milestone Markers Sarc-Th1, Notes from Phase II and III
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Janet: Dec99:Sarc, Sep00:offPred, Mar05:no-D+lo-light+NoIRs, 8/09/05:125D=61|25D=12;P1, 10/6/05ModP2, 12/31/05P2, 6/28/06:125D=40|25D=under4, 7/11/06P3 10/19/06:125D=37|25D=under4
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Aussie Barb
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Posted: Wed Dec 13th, 2006 20:23 |
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redsandraven: neurosarcoidosis: I have noticed some things really getting better.
Member in Phase 2
Plugging right along . I herx, but not really bad. Just flu like symptoms. Mine are the worst on the second day of every new dose.
My eyesight is better.
My skin tags are disappearing and
my scars are fading.
I still have brain fog but only when I get too tired.
My depression is much better,my anxiety is better but I have to keep a check on my temper. Probably because I am coming out of a very long fog and it's time to get it together.
Wishing you all the best Holiday season and a great new year . Redsandraven
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Redsandraven: neurosarcoidosis dio th1 fatigue brain fog migraines bells palsey (neurological incident sept 05)| 6/13/06: 25D=20 1,25D=49| mino 100 mgs q48h ben 40 mgs Ph 2
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Aussie Barb
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Posted: Sun Dec 17th, 2006 02:40 |
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Summaries:
Christina re JRA: personal experience.
Vez Sarcoidosis: I feel stronger than I have felt in years
Knochen cruising along Reiter's Syndrome 25+ yrs
Chris progress: added to Sarcoidosis 20 months later ... and 20 months better.
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Aussie Barb
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Posted: Sun Dec 17th, 2006 17:31 |
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DThomas: Sarcoidosis: Started MP 10/22...Day 54 on Benicar...Day 43 Benicar & Mino My family and I are greatly encouraged by my baby stepping progress.
Benicar 40q6h / Mino 100mg q48h / avoiding light and protecting myself outdoors / avoiding D and folic acid / wearing Noirs and sunscreen with zinc oxide outside / Zyrtec as needed / probiotics / Flexeril as needed
Yesterday I had the stamina to cook for two family parties and attended both and felt really well. I am comparing the "wellness" to last year. Last year I was only able to go to one party and I took one small desert for dinner, at that I was too tired to enjoy being with the family. This year, with a new hope, I enjoyed the family and we were among the last to leave the party. The extreme fatigue I was watching for did not hit me. I still have a long way to go, but I and my family are greatly encouraged by my baby stepping progress.
Another plus, my weight loss is now 18 pounds...I had no idea I ate so much dairy! I have now lost all of my prednisone weight and a couple of extra pounds too!
Watching and waiting.
Debra
February 2007:
Proof that the MP is working...last year I couldn't put two thoughts together on paper, everything was a struggle! And now, after 3 1/2 months I feel confident in discussing these issues with anyone. (Medco re Benicar )
My energy level is high and I still don't have any depression. Yipee!
March 07:
I had the stamina to make deserts and have everyone over too! Even 6 months ago I wouldn't have dreamed of doing that on the spur of the moment, but I didn't even think twice about it. All the food was ready in about 3 hours and I felt really good playing the hostess for all. Thanks to the MP of course, otherwise the favorite deserts for future son-in-law Ryan would have turned out to be just a fleeting thought on my part.
Thanks MP!
July 07:
I havent looked forward to weekends for a long time because I hated that brain foggy exhaustion that took over about half-way through a busy Saturday.
But, we got 30 kids quilts made at our quilting event and I had so much fun with my niece and nephew. After sewing for about 6 hours and dealing with a 6 and 1 year old, I had enough energy to take them to see a movie last night. I was tired, but not the weird brain-foggy kind of tired. This morning I had no signs of a busy Saturday. My energy level is normal to high for me. In fact, I got up early and got me and the 2 kids ready for church and we got there on time! And, we had to take them home which is about a 5 hour round-trip. And I still feel good. (Sun protected of course!)
I have no lung pain when I breathe, no pain in either the lower or upper part of my lungs, still SOB at times, but no pain. Still no signs of depression! And, the bottom of my feet have stopped hurting!
April 2008:
Tomorrow will be 18 months for me! So I wanted to list a few things that are better.
-My right knee doesn't hurt when I walk at all!
-Finally, after about 6 years of taking sleeping meds I'm sleeping on my own and waking refreshed. Amazing.
-Voice is still very coarse, but the ability to talk waxes and wanes fairly predictably with the meds.
-I don't seem to be as sun sensitive as I have been...but I'm still not pushing things very much.  Taking very small baby steps to see how that goes.
-Weight loss is now at about 30 lbs or so. I didn't keep up with it at the beginning...too much prednisone weight to fret over the numbers. And, I still need to take off about 10lbs. I'm losing about 1 1/2 to 2 lbs a week now.
- Prior to starting the MP I had many episodes where my epiglottis blocked my airway -I have only had that happen once in the last year. (Sarc on the epiglottis has caused it to be malformed - remains the same)
- I no longer have to borrow from tomorrow's energy for today...only someone who has done that will understand it.
-One of the most impressive is the "yeast infections" I have had what was called a yeast infection more or less for 20 years, haven't had a problem with those kind of symptoms for 6 or 8 months!
I'm sure there are more improvements that I just can't remember. It seems like the improvements sort of "sneak up" on you. One day you just realize you don't have that problem any more and can't remember when you had it last.
July 2008:
My ENT doc visit last week. My voice is so much better. I have most of the lower tones back, but I'm still missing some of the high tones. When I try to sing a high note I sound like an adolescent boy. It's very comical.
Per the scope my vocal chords have very little inflammation now and all is "stable." My ENT is watching me very closely, IMO, more so, because I am on the MP. He has a few sarc patients and I believe that he is comparing our progress. He has been telling his other sarc patients about the MP, so maybe he'll be a full fledged supporter in the future.
Debra
DThomas: the "Sparkle" is back. the entire winter with no SAD depression!
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Debra: 1991 Sarcoidosis lungs, skin, throat, sinus, MP10/06, D25 10, Synthroid, Ambien, light r/t working, NoIRs sunscreen, cover up, low lux home
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Aussie Barb
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Posted: Sun Dec 17th, 2006 19:01 |
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Saphire: 3 Months 15 days/ 40mg Benicar Q5H - Day 7/100 mg mino
The past week has seen an improvement in my stamina and in my digestive health. Headaches and Thyroid meds gone.
I have begun going out to Church and some Christmas events. Almost all gifts were purchased on-line this year though.
As I'm at the 100mg level of mino, it seems time to start beginning preparations for Phase 2 of the MP. My husband is going to have his D levels checked next month. We just want to see what those are. He has symptoms that would make it a wise thing to do. The really hard thing to accept are the people around you that have fairly serious symptoms of Th1 but won't even consider the MP as an option. I guess just getting my own health back is a very worthwhile goal for now.
Headaches are no longer a problem and the Dr. has said that I don't need my thyroid meds any more.
Peace to all, Saphire
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Saphire: CFS, fatigue, digestive issues, brain fog, cold, tinnitus, low stamina, light sensitive, / NoIR's on, windows covered, avoiding D sup (8/06 1,25-D 31pg/mL, 25-D 29ng-nL)(9/29/06 25-D 31ng-nL)
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Aussie Barb
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Posted: Sun Dec 24th, 2006 18:26 |
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Phase One Alumni Summary:
Robertrr: Sarcoidosis: MP for 18 months: results just keep getting better and better..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Thu Dec 28th, 2006 02:22 |
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Christina RA 21 years: I've been very active which has been really great. I have been totally overdoing it many days but I seem to recover much more quickly than I used to. All in all I feel better.
Member in Phase 2
It's been quite busy this holiday season with all the Christmas shopping and festivities.
Yesterday I had a really good day and was very productive with cleaning the house. I bet I climbed my two flights of stairs 20 times yesterday with only moderate amounts of pain. Since I overdid it yesterday I was pretty sore today but I could tell it was overuse, not an RA flare-up.
If I continue my upward trend, I expect to feel pretty good over this next week.
My food sensitivities seem to be lessening. I've been eating pork again lately and also foods with milk in them and I seem to be fine. Before these foods always made my joints scream. I still have to be careful with the quantity of food I eat at one time. If I stuff myself in one sitting I can count on major joint pain the next day. Although I ate a lot of different foods over the course of the day on Christmas, the day after I was very productive and actually had a good arthritis day. Weird - that would have NEVER been possible in the past. So, it was either a Christmas miracle or an MP miracle....and I'm placing my bets on the MP.
I will post more regularly again, now that the holidays are almost over. I am expecting my days to become less busy now.
I hope everyone is having a nice holiday season.
January 2007:
I have been noticing the oh so subtle improvements and even though I'm not close to being cured, I certainly realize how far I have come since day #1 on the MP. I'm glad to have hope for the future. I look forward to us living the majority of our lives disease free.
January 31st 07:
I have been very busy. I have cleaned out every closet in my house and several cabinets. I have actually had energy. Now I need to conquer the storage area in our basement (UGH)! I am actually looking forward to it BECAUSE I CAN DO IT! It's funny, even on my bad days I'm still pretty darn productive (relatively speaking).
I just can't tell you all how happy I am I decided to do this protocol. I am not well yet but I can tell I am truly moving in that direction. It will be one year on March 5 and I am pleased with my progress. It should only get better from here!
see also:
Christina re JRA: personal experience.
Christina RA personal experience
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Christina: Age 35; Sero-neg RA 21 years; started MP 3-5-06; On 12-20-05: 25D=28, 125D=28; On 4-12-06: 25D=12, 125D=28; DX osteopenia due to pred overuse (now off); took all DMARDs w/no success; previous usage of Mino for a year, ceased 3/2/06; started Mod Ph2 8-5-06
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