The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Jason's progress
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The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Jason's progress |
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healingjason Member in Phase 3
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Started 7 April 07 on 40 mg Q8H. Jason is into his second week of Benicar (3 x 40mg every 8 hours). No adverse effects so far. Just maybe he is sleeping better - 3 unbroken sleeps so far when these have been as scarce as hen's teeth in recent months and years! However, this could be due to the onset of cooler nights and/or a menthol vaporiser which we have used to address his nasal congestion which he gets from time to time and too often for my liking, including during his first week on Benicar which kept him awake for several hours. Often, we have no inkling that he will be congested at night, that is to say, there is no obvious cold or flu symptoms present during the day. I'm told that the nasal passage contains many bacteria. perhaps they only become apparent while the body is resting or is horizontal? I am trying to keep him off vitamin D foods as best I can and I have had him wearing a broad brimmed hat outside. |
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Carole Board Staff 
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Hello, Jason's father! It is great to hear that Jason is now able to rest better during the night! Uninterrupted, restful sleep is very important for everyone. Your physician may want to consider minocycline at this time, if all seems to be stable. How long should I stay on Benicar? Why don't I feel better? When should I start minocycline? The goal is to keep the immune response tolerable, so please stay in touch so that the moderators may keep abreast of any situation that may arise. This link about Children and the MP will be helpful as your young son progresses on the protocol. Best wishes to all! . . . Carole  |
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healingjason Member in Phase 3
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Posting on day 5 of the minocycline 25mg plus Benicar 40 mg Q8H. Jason has now had 3 doses of mino at 25 mg on alternate days. He has been on the Benicar for a month now. He will not swallow any tablet or small piece of tablet, a capsule or even a green pea in his dinner. He has taken the crushed half of mino tablet OK 'dissolved' in lemon cordial. At this small dose, it is not very bitter nor noticeable - I took a dose too. On the morning of day 4, I posted Aussie Barb to infrom her that Jason was a little hyper but certainly no evidence of a headache, dizziness or tiredness and I was a bit concerned that there had been no adverse reaction at all, implying no herxing and therefore no CWD bugs. By lunch time on day 4, my wife was called by the school. Jason had been pale and withdrawn and they asked whether he had been sick at all. By the time I spoke with them he had improved and there was no need to take him home. After school, he was very cranky and upset and wanted constant comforting. By bed time he had improved and he slept soundly. Day 4 seems like it has involved some herxing. I gave the 3rd mino dose this morning. John |
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Dr Trevor Marshall Research Team 
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John, It is known that Doxycycline cannot be given in water, but we know little about the way you are giving the minocycline. I would strongly suggest you split the dose into small gelatine capsules, so it can be taken normally by mouth. Additionally, I think there is a pill-form of minocyline in Oz (which could be manually split), but will leave it to the Aussies to tell you about that Glad to hear that things are looking good ..Trevor.. |
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Dr Trevor Marshall Research Team
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John, I am told there are problems with your using capsules. I am nervous about the efficacy and dosage consistency of using cordials. You might look into the tablets. I don't think mino tabs taste all that bad, do they? |
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PeterM Member in Phase 2/3 
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Hi John, I'm in Melbourne too and I'm using Minomycin, which are quite small pills, which can also be split easily with a pill cutter. |
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IngeD Moderator 
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I have the tablets. They are called Akamin and come in 50 mg. I don't know how they taste though....as I simply swallow them. They are very small and very easy to swallow. Inge. |
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healingjason Member in Phase 3
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All Thank you all for your comments on this topic. I have contacted the researchers doing the minocycline NIMH study with ASD children in America and they advise the following mehtods are being used to give mino to the study children: 1. capsules for children that can swallow; and for those that can't 2. an oral suspension - a compounded syrup of 50 mg of mino in 5 ml of syrup; or 3. mino powder emptied from the capsule and sprinkled on food. The children will be given mino at a dose of 1.4 mg/kg and no more than 100 mg per day. Also, vitamin B6 will be given at a dose of 0.6 mg/kg b.i.d (don't know what b.i.d means nor the role of B6). I was told that "In Huntington's Disease mino has been found active at 100 mg/day in adults which calculates to a dose of 1.4 mg/kg assuming a 70 kg adult (Bonelli, R.M. et al. (2004). This is the dose chosen for this study and is one-half of the dose considered to be safe in the long-term treatment of acne in adolescents and young adults." The mino will be given for 6 months with a further 3 months for responders. I can supply further information on the study to the Board if they wish. John |
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Dr Trevor Marshall Research Team
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John, We know more about how antibiotics work in these diseases than the NIMH, or indeed anybody else. Do not pay any attention to the doses you are being quoted by NIMH. Pay attention to what the MP guidance documents, and the moderators, are suggesting that we have found to be effective with the other kids on the MP |
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healingjason Member in Phase 3
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Trevor Rest assured, I was not proposing to use the doses proposed by the NIMH. I posted more for interest and to alert people to the fact that their dosing is generally double the MP dosing (being given every day) and their ceiling of 100 mg is the MP ceiling as well. This information could be used by the Board to assist in assuaging concerns that some folk may have about the safety of using mino with ASD kids or kids generally. Mostly, I wanted to alert folk to the administration issue with ASD kids and how the NIMH are addressing this. John |
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healingjason Member in Phase 3
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A final postscript on the administration issue. The NIMH people have told me that their pharmacy was not able to make a STABLE liquid formulation of minocycline. For those that don't swallow capsules, the children take the powder mixed in food. They did suggest that it might be possible for a pharmacist to provide a pleasant-tasting syrup into which a dose of medicine could be poured just before ingestion. John |
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Dr Trevor Marshall Research Team
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their pharmacy was not able to make a STABLE liquid formulation of minocycline I guess that is the point I was trying to get across, albeit, clumsily It is important for a caregiver to be fairly certain that a consistent dose of antibiotic is being administered The moderators have had good success with several food-based methods, and hopefully one of those will be useful until Jason can manage the tablets and capsules. |
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Grace Member in Phase 3
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John, If Jason can have peanutbutter, try 25mg Mino cut in half again ie 2 x 1/4 tab and put it in a teaspoon of crunchy peanutbutter  Can you get panadol into him when he needs it? Grace Last edited on Fri May 4th, 2007 00:43 by Grace |
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robyno Member in Phase 3 
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John When I was a kid I couldn't swallow tablets (they would make me choke) so my Dad used to crush the panadol or whatever and give it to me in a spoonful of ice-cream. I thought that was great and couldn't taste anything but the ice-cream. So maybe doing that with one of Jason's favourite foods would be the way to go? Regards, Robyn |
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healingjason Member in Phase 3
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Started Jason on 50 mg of mino yesterday after 8 days on 25mg. A possible herx on day 8 as he was sniffly/runny nose and had nasal congestion at night. However, this cleared up the next day and I gave him the 50mg mino. A feature of Jason's illness has been continual nasal congestion, especially at night which seems to affect his ability to sleep. This can arise without any apparent cold or flu symptoms during the day. When an infant, there were times that he could barely sleep because he became so stuffy that his breathing would stop and he would wake continually to take a breath. Fortunately, he is not as bad as this now. We have put eucalyptus oil lotion under and around his chin so that the gentle 'fumes' clear his nasal passages. We now use a device which we plug into the mains ewith eucalyptus oil. I think this helps too. John |
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IngeD Moderator
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Vick vapor rub may also help. Rubbed into chest and back. I think it lasts a bit longer than eucalyptus oil. Would have to check that it has no contraindicated ingredients though. Inge. |
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DNStog Moderator 
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If you're looking for Minocycline in tablet form, Dynacin 50mg, is the US name for it. While Dynacin is considered a generic form of Minocycline, it is actually a lot more expensive. I paid over $60.00 for 30 tablets, out of pocket, last year at CVS because my insurance company wouldn't cover it. They are very easy to cut for smaller dosing. The 30 tablets went a long way for me when ramping Mino so I still have quite a few tablets still available for future use. My MP doctor mentioned that his patients have found that insurance companies will usually pay for 15 at a time. Hope this helps...Donna Sorry, I just read your post regarding Jason's aversion to swallowing tablets. The tablets are VERY small, particularly when halved or quartered which is what you would need them for until he reaches 50mg. Perhaps you could purchase one tablet from your pharmacist and see if Jason can take in a favorite food. Last edited on Mon May 7th, 2007 04:03 by DNStog |
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Grace Member in Phase 3
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Try a vaporizer, and don't let room get too cold during the night Grace |
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berj4 Member
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Hi John, I am curious how your son is doing on the 'mino'. Have you seen any positive changes yet? Is there an expected timeline as to when you might be able to see any positive results? I am excited to read that there are more studies being done on treating autism using minocycline, but I really couldn't find any information on how those studies have been going. My youngest son is 8 and has been diagnosed with autism. Any additional feedback you can provide would be greatly appreciated. berj4 |
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Dr Trevor Marshall Research Team
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Minocycline alone is inadequate to induce recovery from the Th1 inflammatory diseases (including ASD). You need to make the VDR do its job properly by using the agonist 'Benicar.' We have extensive data from the other diseases which clearly show that any one antibiotic is inadequate to induce recovery, and that multiple antibiotics alone don't induce recovery either. So the current studies using antibiotics in these diseases are only nibbling at the heels of what we have already achieved. More details can be found in our peer-reviewed publications. For example, look at "VDR Nuclear Receptor Competence is the Key to Recovery from Chronic Inflammatory and Autoimmune Disease" http://autoimmunityresearch.org/karolinska-handout.pdf |
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healingjason Member in Phase 3
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berj4 I think Jason is sleeping better due to the Benicar claming him. He has been on minocycline for a little over one week so far too early to observe other positive signs I think. URLs for the NIMH Minocycline study can be found by Googling minocycline and autism. The NIMH trial is based on doses of mino used to successfully treat Huntingtons's Disease in adults. The NIMH disease model is very different to the MP. It seems to be that the autistic brain is inflamed and minocycline is a good anti-inflammatory and it is being used for this property not its bacterial killing property for which it was developed. The MP posits that the inflammation in the autistic brain is the direct result of excessive numbers of bacteria which can be killed by enabling the immune system (with Benicar and vitamin D restrictions) together with certain specific antibiotics (including minocycline) which have this capacity as well. The MP has not been tried with ASD children until now with Jason but it has cured 2 children who had ADHD, albeit where their ADHD was a secondary condition to other illnesses that the MP was targeting (Lyme and sarcoidosis/uveitis). I don’t know if the brain healing occurred after the other primary issues were overcome or if brain healing was concurrent with other healing. For my Jason I think it is only (!!) his brain that has to be healed. However, how the MP works or does not work for him remains to be seen. Perhaps the moderators with knowledge of the 2 children mentioned can comment on how long a mainly brain-based infection might be overcome. A key difference between the NIMNH trial and the MP is that the NIMH people do not seem to have a strong view in advance that the mino therapy will necessarily help - it is very much a trial and parents have been given no great hopes that the protocol will work. With the MP, the view is that as the bacterial load is successfully reduced healing must come. Hence, if there can be certainty that the pathogenic bacteria are present then full and complete healing should come, albeit over a long period, as much as 1-3 years for most suffering from Th1 illnesses. John |
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Dr Trevor Marshall Research Team
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John, I beg to differ. The NIMH don't have a model, in any normal sense of the word. They don't have a clue what they are doing. As you say, they are just trying this drug or that drug with this or that supposed healing property. On the other hand we have a molecular-biology-based model for chronic inflammatory disease which is well developed and well tested. The only variable is whether ASD is a chronic inflammatory disease described by the model. When a patient responds according to the model's predictions then we can be pretty certain that the progress of that patient will be along the same trajectory as others who have gone before. So as long as Jason follows the expected symptomatic and healing trajectory then we can have confidence in the outcome. There is no black-magic, no experimental drugs, just a model based on how the body actually works This is a paradigm shift in medicine, but it is not our vision alone. The Commissioner of the FDA himself recently stated to congress: This new science combines an understanding of disease and its origins at the molecular level (including adverse events resulting from treatment) with new methods of signal detection, data mining, and analysis. This enables researchers to generate hypotheses about, and confirm the existence and cause of safety problems, as well as explore the unique genetic and biologic features of individuals that will determine how he or she responds to treatment. This science of safety encompasses the entire life cycle of a product, from pre-market animal and human safety testing to widespread clinical use beyond original indications. http://www.fda.gov/ola/2007/overview050107.html |
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berj4 Member
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Thank you for the information and quick response! I wish the best for you and your son, and I will definately keep checking this message board to read on updates you provide. This sounds very exciting, and I hope your son responds well to the treatment and gets better. berj4 |
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healingjason Member in Phase 3
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Jason has been phase 1 now for 7-8 weeks now, including 3 weeks of Benicar only. He is now up to 75mg of mino and I intend to raise this to 100 mg in 2 days time. Unfortunately, there have been no cognitive improvements that I could attribute to the MP. This is not to rule in or out the roloe of the MP in bringin about some improvements he has shown in socialising and playing. The most significant improvement has been with sleep, although this is by no means perefect. He continues to wake at night, though not every night, but I sense that he settles more quickly and is more relaxed than in the past. As to herxing, it is hard to know whether he is or he isn't. He has continued to have nasal congestion which I have posted on. I am mindful of Meg's comment as follows: Symptoms similar to upper respiratory infections (sinus infection, cold, flu, ear infection or bronchitis) are often due to Th1 inflammation and the immonopathology which occurs during treatment with the Marshall Protocol. Dr Marshall wrote: "The MP will make no difference to the course of a cold. If anything, it will allow the immune system a better chance to fight the virus. On the other hand, flu-like symptoms are a very common manifestation of Herx reaction. They come and go more quickly than a viral cold does. The MP will make no difference to the course of a cold. If anything, it will allow your immune system a better chance to fight the virus." Jason has had a bad cough but this could have been a cold which I had also. However, Jason overcame his cough a lot quicker than I did with my cough. His nasal symptoms have also come and gone somewhat in the way Trevor describes. I have also noted the comments of Greg Blaney, MD: Finally, if the major complaint is neurological, improvement is often seen only after a number of months on phase 3. If this comment is apposite then we are looking at a very long process before cognitive improvements become obvious. I very much appreciate the keen interest of many in my boy's progress. John |
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healingjason Member in Phase 3
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Sep 4th, 2007 I should post my assessment of how Jason is doing on the MP thusfar. We started the Benicar in early April so we have been going 5 months now and have reached a modified phase 2 protocol. I can see no negatives. I can positives with respect to sleep, mood and behaviour. Jason has always had terrible sleep disturbance and he is still waking up crying most nights but not every night. The difference I feel now is that he settles back to sleep much more readily and sleeps through to the morning when before he could easily wake again. Also, to settle him after waking, we would often need to sit with him and watch Wiggles tapes to settle him down. I can recall only one occasion this has been necessary since we started the MP in contrast to many nights previously when this has been necessary. We had a major problem with Jason compulsively and repetitively wanting to play with and ceaselessly handle dirt, gravel, bark chips etc in preference to any other play. They call this 'stimming' or Jason being 'sensory' . The latter term is a reference to his 'sensory integration dysfunction' which means he needs to have his senses 'fed' or aroused in a more primitive baby-type way compared to normal children. The teachers (to their very great credit) have been trying to channel his hunger for sensory input (as they call it) into more socially appropriate activities, such as playing on and with playground equipment. The teachers report that Jason is having a great time climbing and jumping on playground equipment and that he has been really good with respect to the 'stimming' etc and only on the odd occasion does he have to be reminded not to play with the bark etc. In the teacher's own words, "Things are looking good. Progress is being made. When I have seen Jason recently he has been very settled and very happy. Hope it is the same at your end." I am not getting too carried away. The teachers (quite reasonably) will attribute any improvements to their increased efforts to more closely monitor Jason's sensory behaviour as they don't know about the MP. This means their comments will be consistent with a true blind study. Of course, I am quietly hoping the MP cure is creeping up on us in the way the cure for other illnesses is described on the Board. However, I am not getting ahead of myself and Jason has a very long way to go as he has yet to develop speech. The improvements we are seeing could be attributed to other factors eg maturity, education etc. Were he to develop speech after age 10 years would put the MP's creditability beyond doubt. John Oct 12th, 2007: I have a few further musings on whether Jason is making progress on the MP and on the theme that a cure for Th1 disease is almost imperceptible and creeps up on sufferers. I have reported on the study site the chronic nasal congestion that has plagued Jason’s sleep over many years. I have had to use eucalyptus gel to assist his breathing and allow him to rest and sleep. I can’t recall when I last used this. Jason also seems to be very happy, almost blissful these days and this has been reported on by teachers. We have bought him a scooter and it is a treat to see him glide around the house and take it with him to all the nooks and crannies of the house, especially the pantry!. He obviously derives great pleasure from scooting and the influence of this cannot be discounted – I’m sure occupational therapists would see it as a calming therapy tool to address sensory integration dysfunction. Finally, as reported before, Jason has taken to relating to all manner of people who enter the house by taking their hand and getting them to sit very close to him – it is his way of saying hello. This is a far cry from the high point of his autism when he was aloof and totally disinterested in people. Still a long way to go but these apparent developments do give me hope. April 10th 2008: Jason is doing just fine at present. Perhaps the relative lack of herxing is a godsend. I am heartened by some emotional developments in the little guy. Of course, I don’t know if this is due to maturation or some other factor but Jason is much more alive to me and takes great pleasure in my company. For example, when I put him in the school bus in the past he would just ignore me and his wave goodbye was mechanical and learned. Now he looks back at me through the window with a big smile as the bus departs. John healingjason: Autism: positive development re play/ interacting. |
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healingjason Member in Phase 3
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While one swallow does not make a summer, I should report a very positive development that we hope is not just a one-off. For the first time, we were able to see Jason play football with his older (13 year old) brother. They kicked a soccer ball to each other and exchanged catches of the ball for a good period of time. Jason was taking great pleasure in this, as was his brother, and this is an absolute first. We have been able to train him to exchange catches but he has only done this fleetingly and in a very wooden fashion, that is, without getting any intrinsic pleasure from the activity. As I have reported, what we are seeing is a very happy little boy – very cheeky, impish and more certain of himself. No great cognitive improvements yet but very much improved in terms of sociability and emotional maturity. His eyes seem to be now opening to the joys of relating to people. We have just started phase 2 and Jason has been on the MP for 12 months. There has been no obvious herxing to observe so it does not seem like he is killing bacteria in the usual way but we are very happy with his emotional state and social interactions. I gather that many adult MPers come out of a gloom and depression while they are recovering. I don’t know if this occurs alongside herxing or whether this follows herxing. Can anybody advise or comment on this? What I am getting at is that Jason could be an atypical case – he could be slowly improving (given his growing positive state of mind) – but this seems to be occurring without the discomfort which seems to signify a herxing/killing bacteria reaction in most MPers. Do MPers recover without these more obvious signs of herxing? Can killing be going on under the radar so to speak? Without obvious cognitive improvement, notably, the development of speech, we are still speculating as to whether Jason is improving on the MP but it is nice to be able to enjoy him so much more these days regardless of whether he makes further gains or not. In the interests of further chronicling Jason’s progress, this is what Jason’s teacher wrote on 22 April. The teacher is blind to any therapy we are giving Jason. “Jason is really happy and settled at school. He is really participating in activities such as construction and cooking where he peels, grates and finds materials and foodstuffs. He doesn’t really eat the end result (vegetable patties) but is happy to work in the group.” I have also noticed a greater interest by Jason in mimicking activities at home – shovelling sand into the wheelbarrow, using the watering can to water plants etc when he has showed little interest in the past in imitating other people’s actions and activities. These are classic imitation activities that ordinary toddlers engage in (prior to speech), revealing an interest in the social world in particular, that autistics don’t. Indeed, behaviour therapy given to ASD children is designed to teach imitation as it is not an inner motivation in these children. I hope I am not getting too carried away or reading too much into these small steps forward. John  |
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healingjason Member in Phase 3
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More small steps forward Jason’s teacher reported as follows: Jason has had a good day. This week I have noticed that Jason is staying at activities longer than at the start of the year. “WELL DONE JASON” (teacher’s emphasis). I hope he keep this up. Jason was also rewarded with a sticker on his windcheater stating “fantastic”. I can say that Jason’s daily reports from the teachers have been very very positive, especially with respect to his mood and behaviour. I have mentioned that the teachers are blind to the fact that Jason is on the MP. Jason is very much loved at home and at school these days because he is so happy and amenable to direction . Many of his peers are very difficult to manage at school I gather, although most are higher functioning in terms of receptive and expressive language. For some reason Jason cannot speak nor understand more than fairly basic language but his understanding is improving. His playing with his brother is also growing and he likes nothing more than rough ‘n tumble play. May 12th, 2008 Jason continues to do well. Indeed, his school bus driver was moved to say to me this morning, totally unsolicited, that ‘he has come a long way this year.’ Of course, Jason has a very long way to go (more than most ASD children I would think) but I think he is improving a lot, on his terms, and others seem to be seeing this as well. Wow – could it really be true that Jason is getting better, slowly but inexorably? May 14th, 2008 For the record, this is a further report of comments from Jason’s teachers "Jason has had another great day today. He really enjoyed the morning session walk and fine motor session. He is really enjoying the activities within the classroom and loves getting involved.[my emphasis]." |
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healingjason Member in Phase 3
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More good reports from Jason’s teachers – see below 14 May 2008 “Jason was quite settled and happy today. During fine motor, he sat at each work station and did the work. He is more and more able to stay seated and complete the work”. 15 May 2008 “Ditto for Jason today. He seems to be fixated with me [his male teacher] at the moment, always hanging around me, touching me, and smiling – ah well. He seems very happy in general.” 16 May 2008 “Another good day for Jason. He’s participating well and has a smile for everyone. His ‘noise levels’ are up – he’s doing a lot more verbalising. He’s very settled.” From the bus driver again “He’s always happy.” From my mother who sees Jason once or twice a year. My mother was moved to remark to my wife that “maybe he will surprise us all”. John June 4th 2008: Light: exposure from 8 am to 4.30 pm most days Symptoms: sleeping very soundly when this has been very rare in the past; has experienced no nasal congestion notwithstanding we are in winter down under and that this has been a longstanding chronic issue over many years; no great cognitive gains yet but very settled and happy at home and at school Report since last report on 4 June 2008: Last cycle on phase 2. Symptoms: sleeping very soundly when this has been very rare in the past; still no great cognitive gains yet but very settled and happy at home and at school. It is worth recording more positive reports from Jason’s school teachers Jason has been a delight today. He is responding quite well to instructions plus, generally, I have noticed [him] making a connection with others - me in particular. [June 24] Jason has been fine, participating well, and generally very happy. [19 June] A bit of good news I have not passed on is that I can get Jason to routinely swallow minocycline (Minomycin) tablets. These are very small hard tablets which I put in his mouth and follow with a drink. He seems to have sussed to swallowing them and will readily swallow 2 tablets at a time.Basically, I persisted and put the tablet in the back of his throat and gave him the drink straight after. |
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healingjason Member in Phase 3
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So far so good. Jason is very relaxed. Indeed, we are going to celebrate my wife’s birthday by all of us staying in a hotel in the country together. This will include dining in the restaurant, albeit a casual one. We could not contemplate such a thing in the past as Jason would not wait patiently for his food and would tantrum. He will now wait happily eating out and he looks forward to the food coming without any dramas. We are approaching a sort of normality and can venture out as a family more often. Jason’s mid year report included the following commentary that any parent of any child would welcome. For us, it is especially wonderful. It is an absolute pleasure to work with Jason. In the early stages of term 1, he seemed quite wary and apprehensive within the classroom. However, he appears to be very happy and settled. He has a cheerful outlook, and staff very much enjoy his company, as do his peers. While Jason’s cognitive skills are still very limited - no speech and very limited understanding - he has clearly stolen some hearts! Why he is so much more relaxed and settled and engaging is the tantalizing question. Could it be the MP? Cheers John July 22nd: Perhaps I have been a little too cavalier in not appreciating the big improvement in Jason’s sleeping. This was the bane of our lives for many years and was very disheartening, not to say exhausting on all of us. Jason may not always sleep through the night but when he wakes he goes back very quickly and sleeps very deeply these days. We do not need to stay up with him to settle him any more. There is no way this sleep improvement can be attributed to an educational therapy. Some psychologists promote various methods as they perceive sleep waking as attention seeking or something that can be addressed by behaviour therapy. Perhaps the improvement can be attributed to maturity or the colder weather but I like to think otherwise. The sleep improvement parallels the improvement in Jason’s mood and temperament. He is so relaxed and happy that I wonder if he has decided to stop right where is now! Of course, my great wish and hope is that he will make significant cognitive improvements which are a long time coming. John |
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healingjason Member in Phase 3
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Possible cognitive progress? Some thoughts As I have posted, Jason is doing well but, cognitively, he is still a long way from home. As we are nearly half way through phase 3, I expect he will need to be at the top of phase 3 for a good 6 months (at least) or more. Time will tell. Some faint suggestions he is improving cognitively. Jason is using his voice to express happiness and anxiety and "yes" and "no". We know his affirmative sounds (his "yes") and negative sounds (his "no"), often paired with hand actions (eg waving us away). He is also starting to point to objects he seeks, paired with sounds, though not the normal pointing (using index finger only) that a normally developing infant uses. Still, the "pointing" is done with great eye contact and with verbal urgings. I put sought after foods on a shelf at a height he cannot reach and for which he must request in some way (an old language facilitator trick used to kick start language in healthy kids). Very primitive communication of course for an 11 year old but we all must crawl at some time before we can walk. Still too early to get excited I think. John |
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healingjason Member in Phase 3
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(filelink) Belinda wrote: Just thowing out a few ideas here: - Not seeing a great deal of immunopathology is a blessing in a way, because Jason isn't obviously suffering or anxious as a result of it. - Jason may have developed a higher-than-normal threshhold for pain, which may be working to his advantage now. - His age and limited ability to communicate may simply not allow you to identify the range of his immunopathology. I noticed you've mentioned observing possible reactions in the past, like a runny nose. - All things considered, aren't improvements more important than immunopathology? All the best, Belinda .......<<< In the spirit of keeping the discussion focused on the IP issue, I think there may be merit in the point in Belinda's post about pain sensitivity that may be especially relevant to Jason's case. You and the Board may wish to take my comments on this below into account before responding. Jason used to have a high pain threshold as a toddler, that is, he would not readily feel pain. He would fall and not cry. This is relatively common in autistics. I believe he still shows this in the hypo-sensitivity he exhibits. Jason is believed to have what is called 'sensory integration dysfunction' in that he seeks/craves more sensory input than most because his senses are under responsive. The idea is that he is unduly sensory 'hungry' because his senses are desensitised somewhat. He shows abnormal sensory behaviours by, for example, his liking of raw onion, garlic and chilli (very un-childlike) and his inordinate love of 'feeling' things - sifting and handling sand, gravel, bark chips, shaving cream - you name it. He is the opposite of many autistics who are hyper-sensitive (hate being touched, hate dirt, hate soap etc) - he is the exact opposite. He used to try to eat dirt and other non-food objects - a disorder called pica - which I think was explained as an abnormal liking for stimulating receptors in the mouth. At his kindergarten, the staff used to try and overcome the hypersensitivity of the children by exposing them to shaving cream and other sensory sensations - Jason behaved very differently from most of the ASD children and just loved these activities! I think this hypo-sensitivity could mean that were he to have normal sensory reactions then he would show more discomfort - feel more pain - from bacteri killing than he does. In other words, he could be actually killing bugs but his senses do not sense this (by way of feelings of pain or nay other reaction). I guess this is a bit speculative but there seems to be a logic too. I do very much appreciate the Board taking my concerns very seriously and I look forward to their advice. John |
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healingjason Member in Phase 3
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MP meds: Phase 3. Non-MP meds: none Light: exposure from 8 am to 5.30 pm most days but sunscreen used and mostly covered up Symptoms: bit of a runny nose and nasal congestion which seems like IP as it is not enough to depress Jason or keep him away from school. No great cognitive gains yet but continues to be very settled and happy at home and at school. ----------------------------------------------------------------------------- I may have been a bit downbeat about progress with Jason. Family members have commented that we are too close to Jason to see the changes in him, especially with respect to how more settled and more sociable he is. I know many of you reading this post are very interested and rooting for Jason to get well and for me not to get disheartened at the slow rate of progress. In recognition of this, I should report that we are entering spring here Down Under and we happened to go out as a family at dusk last night (no significant sun/light exposure!) to play some basketball and tennis. We were very delighted with Jason’s interest in these activities which he has never shown before. He tried to hit the tennis ball with a racquet (a first) and was participating in throwing the basketball to each other. He even tried to shoot a hoop! While his effort was pretty pathetic, what was encouraging was that he knew what to do and to aim the ball upward toward the hoop. In the past, he has had to be inordinately coaxed and cajoled and encouraged to participate in these sorts of activities. While we still did a lot of this, he was definitely more responsive. It was a beautiful evening weather–wise and we stayed out until it was quite dark. I felt Jason really got into the spirit of being together as a family. He did run off from time to time but this seemed more in the nature of enjoying being outside than being anti-social/autistic. All in all, very encouraging. It seems like we are trying to turn around a giant ocean liner which has been heading in the wrong detection for a long time. I think we have to be more grateful that the liner is slowing and that there are hints that it will turn eventually. Trevor is clearly convinced he has explained the cause of autism (or most instances of autism) and he has given the world the cure. We just have to be patient and do the best we can to apply the cure and hope that the departures from the ideal treatment protocol are not too profound. To think that we can rid Jason of autism sounds too good to be true but that would be giving in to the cynical timid mind when we can otherwise choose to trust and hope. John |
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Karon Member in Phase 3 
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Dear Jason's Daddy John, You are amazing! I have been following you and Jason for months now. I have a beatiful son named Jake. He is 9 almost 10. He has been a little "odd" since being put on Digixon at birth for ASD/VSD. I took him off this drug at 3 mo.old after doing research on the internet about the drug as he was not responding normally to me. He was suppossed to be tested every week for toxic liver but never NOT ONE TIME was he. The Dr.s said they never heard of such a thing when I brought the info to them. He has since been "cleared" of this diagnosis at 5 yrs old. The Heart Spec. said "Are you sure he had VSD/ASD??? Its gone as if it was never there. I am GREATFUL!! He was force fed formula in the hospital (I am a breast feeder) So this was a huge crime aganist us. When I argued about the formula feeding The Dr. said to me "You want to be a good mom don't you? You don't want him to starve do you??) Jake was hours old!!! We were in the hospital for 6 days after an urgent C-Sec due to low heart rate. He was full term. I had two babies at home before Jake came along with NO PROBLEMS!. With Jake however I had health insurance....So the games began!! I feel that on a scale on 1 to 10 Jake is a .5 to .75 autisic. I am planning to put him on the MP as soon as I get into a comfortable pace in PH 3. I am early in PH2. Jake functoins quite well and is very smart. I feel he is about 6 months behind the "norm" emotionally and socially. He has phases of fixations on things or behaviours. Trucks.and hand motions right now. Hates to sit and read or write more than the average boy his age. Loves working on the computer though and is quite good at it. I have no idea right now why I am compelled to tell you this???.....I think you may have a message or two for me. I am curious about the Beni and Mino dosage you find to be good for your son. Will he go through all phases and abx's? Your son has come a long long way on this journey...In my opinion it all up from here! You were meant to be his daddy... Just another parent affected by the "BUGS" and mistakes of the all knowing and self important DR.'s  Karon (Jakes mommy)  |
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healingjason Member in Phase 3
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Hi Karon What lovely comments you make. Regardless of the outcome of this journey, it has been a very special privilege for me to be part of the MP community in its efforts to help my Jason. I can now sense a very great groundswell of support out there for us from the many fine and intelligent folk out there who believe the MP will do great things for Jason. This is essential nourishment when doubts creep in that Jason is not making enough progress. I came across this while Googling on this matter and I think it is very apposite - ... today a new awakening in faith has made us realize we are not only called into healing for ourselves, but also in various degrees into healing each other. Only someone facing or sharing a serious sickness, pain or tragedy knows how hard it is. They know how hard it is to cope with the fear and uncertainty. They know how terrifying it is when the doubt comes. They know how hard it is to throw a mountain into the sea. But remember what Jesus told us in Matthew 17:19-20 when he said "I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, `Move from here to there' and it will move. Nothing will be impossible for you." Faith as small as a mustard seed sounds a little like hope to me, and that's a good start. I hope this expression of religious thought and belief does not break any posting rules. It is hard not to be religious when you are faced with the Herculean task of overcoming a chronic incurable disease in a tender innocent so I hope I can be forgiven for this. John PS Information on Benicar and Mino doses are on the various separate fora/threads that deal with Jason in phase 1, 2 and 3. Best wishes Last edited on Fri Sep 12th, 2008 09:49 by healingjason |
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Joyful Board Staff 
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Only someone facing or sharing a serious sickness, pain or tragedy knows how hard it is. They know how hard it is to cope with the fear and uncertainty. They know how terrifying it is when the doubt comes. They know how hard it is to throw a mountain into the sea. Thank you for sharing this. It is so true. People are often driven to find community by their painful experiences... ...and then they discover they needed community all along, but didn't know it! |
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healingjason Member in Phase 3
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No great cognitive gains yet but continues to be very settled and happy at home and at school. Sleeping very solidly. I have remarked before on Jason sleeping a whole lot better for many months now. He now wakes in a pleasant and refreshed state - indeed, he prefers to lie in like most normal kids do. We are continuing to get favourable reports from school as to his behaviour and attention to the teachers. He is very patient, relaxed and easy to manage at home. |
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Sue from St. Louis Member in Phase 2 
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John, You might check with your insurance. My Doc wrote the Rx for Mino to be split into 25 mg and our insurance paid for the "compounded" capsules each 25 mg. I am following the journeys of the autism kids. I was a teacher and principal and worked with these children (in self-contained special ed room with mainstreaming and a friend has a grandson who's been diagnosed with autism. I foward the autism posts to them. Good luck. If MP works this will me a monumental breakthrough. Sue from St. Louis |
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healingjason Member in Phase 3
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The doctor’s visit went well. He is happy to press on and noted how clam and settled Jason was. He was able to test his blood pressure which was normal. Jason sat patiently for 40 minutes or so with good eye contact. A feature of his behaviour has been how relaxed and calm he is these days. A typical comment which is worth posting is as follows from a teacher at his school – Jason has had a very good day today! He has been quire relaxed today! Quite a delight! Jason has clearly won a heart with this particular teacher who is a substitute relief teacher who only sees Jason from time to time. I am always reviewing Jason’s progress of course and comparing this with the length of time he has been on the protocol which is now 18 months. I am under pressure to prove that the MP is working. Unfortunately, any improvements are seen as being due to maturation rather the MP. Being calmer and more relaxed could be attributed to either. The other changes that are significant include the elimination of nasal congestion which was intractable and would emerge independently of a cold and at night only (as I have posted). I can’t see how this clinical physical symptom could have been caused by other than bacteria in the nasal passage and this just does not occur anymore. This is a major achievement in my view. Jason’s sleep is better but it is not perfect. This does not worry me as the sleep difficulties could be an expression of herxing and Jason is always able to settle very quickly and he likes to lie in these days rather than get up cranky. All in all, his sleep is much more restful than it was. Could this be put down to maturation? On the cognitive front, progress is very subtle at best. I appreciate that MPers have commented that cognitive progress will be slow to emerge. I do worry that this may never come and that Jason will only make progress in emotional terms and that his brain is just too damaged to expect a cognitive miracle. Does it stretch credulity too far to hope that a 11 year old will start to speak and otherwise develop cognitively at such a late age? I note that brain damaged stroke victims are able to develop speech from a mute situation (though these folk have acquired the skill in the past) and this seems to suggest that the brain can heal itself. I note the recent book of Nornam Doidge, The Brain that Changes Itself, which seems to be encouraging. Wouldn’t it be perfect to have an updated chapter devoted to autism one day based on Jason’s experience! see - http://www.abc.net.au/7.30/content/2008/s2360105.htm Jason is starting to be more consistent in taking himself to the toilet to do a bowel motion. He had this skill as a younger pre-MP child for a brief period but lost it. We have worked very hard to try to fully toilet train him and it seems it is something that Jason just has to twig to in his own time (like everything that is learned I suppose). The greater problem is that he cannot communicate a desire to go – he simply takes himself. Where the location of as toilet is unknown to him or he des not have the freedom to take himself (such as at school) he is at risk of soiling himself. The issues with toilet training should give folk an appreciation of the degree of Jason’s impairment. It makes me wonder whether his impairment is just too great to expect the MP to perform a miracle. Perhaps some greater emotional stability, such as we are seeing, is as much as we can hope for. I do appreciate everybody’s involvement and encouragement and realise that this is an unprecedented marathon (insofar as it is unknown how the MP will work or not with a severely impaired ASD child) and, so far, there are only good signs. John |
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BARNEY Moderator 
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John, You hang in there, Jason will make it a long way farther than you can imagine. MP is just a total miracle in itsself. You will just be blown away at what will happen. I truly believe this. HANG IN THERE, WE WILL MAKE IT!!!!BARNEY |
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healingjason Member in Phase 3
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For the record, Jason has developed another sty eye infection. I reported on an earlier incidence of this type of infection in September 2007 – then a few months into the MP. I think staphylococci is implicated in these infections and that mino should assist in clearing this up. His earlier infection went away and I therefore expect this one will too. No other family members get these infections. Jason continues to make ‘slow and steady progress’ and I remain hopeful that he is getting better slowly but surely. He is very affectionate to a lot more folk those days, especially his older brother which is a new development. In fact, his interest in engaging in play with him reminds me of Jason as a very young infant before he regressed – very primitive play but squeals of delight and joy as they engage in rambunctious play. A long way still from a cure but better this progress than none at all. John Further Thoughts: I thought the Board and members who follow this thread would be interested to ponder a speculation I have about the path of recovery Jason (or any severely autistic child) might follow on the MP. I have posted many times on the slow pace of progress on the MP and many members have been kind enough to respond and have exhorted me to be patient. In my last post, I passed the comment that Jason is now ‘…very affectionate to a lot more folk those days, especially his older brother which is a new development. In fact, his interest in engaging in play with him reminds me of Jason as a very young infant before he regressed – very primitive play but squeals of delight and joy as they engage in rambunctious play.’ This comment was given without a lot of thought. I have since thought that this comment might be a clue to the recovery path Jason might follow. That is, he will need to get back to where he was before he regressed before he develops further (acquires speech etc) or more obvious evidence of a cure emerges. He will need to be more like a healthy 18 month old infant – curious, playful, interested in people etc before language development will kick in. This scenario would be consistent with the slow pace of progress so far. I also happened to be viewing some old photos and couldn’t help noticing the very great difference in responsiveness to the camera before and after Jason ‘became’ autistic. As a very young infant, he looked directly at the camera and his eyes had great vitality whereas after he regressed he looks at the camera (if he looks at all) very sullenly and absently (horrible to revisit actually). We also have photos of Jason playing with his brother as a very happy normal infant and he appears to have now recovered this desire to play with his brother – wanting to be chased and tickled in particular, as he did as a toddler. I am wondering whether he will need to reach the level he reached before regressing first before progress becomes more obvious. What I am thinking is that the MP might only need to take him to a healthy 18 month level before ‘nature’ will take over and he will, thereafter, more or less develop by himself. Jason has, of course, acquired some skills notwithstanding his disease which would be at a level higher than an 18 month old toddler and perhaps it is possible that these skills could come to co-exist with other healthy toddler behavioral skills brought on by the MP. I acknowledge there is a controversy over when autism emerges and that parents are supposed to be slow in recognizing signs of autism, implying that children don’t ‘regress’ into autism but are already autistic to a greater degree than is commonly understood. I think it is possible that Jason may have been developing more slowly than his peers before we realized this but I do believe he did suffer a very great change for the worst and that he could now be recovering an attitude to life and to people that he once had. In any event, it is not terribly important whether he had certain skills or not as a toddler. What is important is that he develops skills now with the help of the MP. Time will tell whether he does pick up the positive behaviors that I think he did have as a ‘pre-autism’ toddler and whether these precede language acquisition, assuming Jason does get there in the end. There could be a very great mystery that will gradually unfold before us or the little developments we are seeing could have happened anyway and these may not be followed by language after all. I do worry that the developments reached could be falling well short of what one could exist of a ‘typical’ MPer that has reached maximum dosing insofar as the antibiotics are concerned and I wonder how long my doctor or Trevor can justify maximum dosing without more signs of a cure. I recognize that sun infractions may be a compromising factor. Jason or severe autism may be at the very outer limits of what diseases are amenable to treatment by the MP. However, there are no obvious precedents to know what symptom changes can be expected on the MP for a severely affected autistic child so perhaps plodding on at a very slow and steady pace is warranted for many more months yet. John |
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healingjason Member in Phase 3
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For the record, Jason has had the symptoms of a mild cold - cough, fatigue and slight runny nose. However, he is recovering quickly. This makes me wonder, yet again, whether this is an IP episode or not. I have been advised by the Board previously of the possibility that sinus and cold symptoms may be an IP episode (herx) rather than a viral infection. No other family member has contracted a cold virus from him so perhaps it is IP. Alternatively, perhaps his weakened immune system makes him more prone to catching colds. As I have posted, Jason does not seem to herx much on the MP and I have surmised that maybe one symptom of his autism illness, hypo-sensitivity, is relevant to this phenomenon. I have also commented that nasal congestion, which was very common prior to Jason going on the MP, has subsided a lot which makes me think his immune system has been strengthened by the MP and, hopefully, he is dealing with brain bugs rather than bugs in his nasal passages. On the behaviour and development front, the major battle of course, Jason is continuing to show subtle improvements. His final school report included a ‘Principal’s Award’. Whether this was a sop to dedicated partents who are trying to do the best for Jason or a reflection of genuine improvements worthy of the Principal’s commendation I do not know. His main teacher commented thus I have enjoyed a positive relationship with Jason, as have all other adults, as the year has progressed. For the most part, he has been happy and settled in the class. Jason's willingness to stay on task during activities (and remain within a group) has increased significantly during the year. We wish him ‘all the best’ for next year, and expect that he continues to make progress at…’. Jason is improving, albeit ever so slowly. Whether this would have happened without the MP cannot be known as the improvements are still not significant enough yet to signify that Jason will recover, as expected from the theory. He is at the very low functioning end of the ASD spectrum – no speech and very limited language understanding. However, he is improving a lot socially and seems to be much more confident in dealing with people and the outside world generally. Perhaps as this confidence grows it will bring forth a greater desire to empathise and participate with others and thereby bring on speech. He certainly is communicating more in a non-verbal way. Still hoping. John |
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BARNEY Moderator
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John, I always treat everything like it is a herx...even if it appears to be a cold...that was how I made sense of everything on MP....and it has paid off. If it went on longer than I felt a herx could be ....I took care of it. (ie allergy time...if the symptoms continued..then I would take care of it with allergy meds). Hope this helps. Sometimes, when I know it is a herx...I take 20mg extra Benicar which would relax the herx. I am just in awe of Jason's recoveries, especially in school. You are setting the way for other parents of autistic children...so please keep up the good work. This is my opinion...MP is the greatest thing for our illnesses and we are showing the world that healing is possible. Please have a very MERRY CHRISTMAS AND A HAPPY AND HEALTHIER NEW YEAR, for you and yours!!! HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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healingjason Member in Phase 3
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Thanks Barney. Best to you too and all the folks on the MP. I am now thinking jason has had a mild viral infection rather than a herx as I have now developed cold symptoms too, presumably, I have caught the cold from him. John |
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healingjason Member in Phase 3
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I think it time to provide an update on progress with Jason. We are coming to the end of the summer vacation Down Under and Jason has behaved beautifully this holidays. We have had a number of people over and Jason has accepted, nay welcomed them into our home. In the past, Jason would often become distressed on these occasions (hence there were very few) or would retreat to a room on his own and watch his DVDs alone. Last night, he happily moved amongst the people and was not at all interested in retreating on his own – a first to my knowledge since he became autistic. As a testament to his vastly improved behaviour, it occurred to me yesterday while waiting in a queue at the supermarket that I was not anxious while Jason was at my side. In the past, this has often proved stressful because Jason would not wait easily or would embarrass us in some way or another. He now just nestles in next to me and is very comfortable waiting and is very happy to take in the surroundings - all the people coming and going etc. He now likes nothing more than going to the mall or the supermarket (lots of light I know) which is a blessed relief for us and it is a pleasure to have him with us which is not something I would have said in times past. Perhaps this is an instance of the "insidious" nature of the healing that occurs on the MP. That is, you suddenly recognise or acknowledge that a subtle improvement has occurred, something you tend to take for granted when it has actually not been present for the duration of the illness. Jason also now seeks out his older brother to play and is starting to cautiously venture out and approach other children, though ever so slowly. I suppose I cannot rule out improvement that would have occurred without the MP as ASD children apparently do well and even recover without medical interventions – see pubmed: Can children with autism recover? If so, how? Of course, Jason has a very long way to go and whether he is cured or comes close to a cure appears to be a long way off. It seems like he will be on the MP meds for the estimated full length of time estimated for MPers to recover – Trevor has stated that it will take 2-5 years. I have a strong belief in the theory (though still not shared) but I do worry that his sun and light infractions may be slowing progress. As we don’t know the nature of the microbiota we are dealing nor have any clinical precedents, I guess it is just impossible to know ahead of time whether Jason can recover or do well. We do know that Jason’s disablement has been very profound, in terms of his very low functioning, even compared to his autistic peers, and this suggests to me a very pathogenic mictoibiota in terms of the effects they have had and are still having on Jason’s functioning. I also know from a laboratory screen done many years ago on a limited number of CFS adults and autistic children that his likely intracellular bacterial burden has been extremely high (see an early post on Tim Roberts’ work). I hang onto this as an objective measure of the degree of difficulty we are dealing with. I think there is slow and steady progress – certainly no regression – and allied to a belief in Trevor’s science and prognostocations, this gives me hope, despite the length of time it is taking for more obvious signs of a cure to present themselves. John |
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BARNEY Moderator
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What a truly wonderful report!!!! We are so happy for your family and especially for Jason (who seems to be calming so great). I read all your reports to my husband and he compares them to my healing. Jason definitely is healing...the extent we will see...but I just know it will be great. I am so thankful for your posts, they will help others who follow. HANG IN THERE, WE WILL MAKE IT!!!!BARNEY |
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expate Member in Phase 3 
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Just to let you know I do follow Jason's progress and appreciate your dedication. Odette |
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healingjason Member in Phase 3
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Cause for great hope? We celebrated Jason’s 12th birthday a few days ago and we were thrilled to see him react so excitedly to the extended family singing ‘Happy birthday’ around him with the birthday cake in front of him. I had feared he would be oblivious to the occasion (as he has always been) and that he would not know how to blow the candles out. I need not have worried. Not only did he blow the candles out with great gusto but he positively beamed with delight at all the attention he was getting. So much so that we went through the ritual again, much to his and all our enjoyment! Our best birthday celebration ever. Later on we all rode our bicycles around the yard with Jason in pursuit squealing delightedly and then taking his turn to ride around too – he can balance but has to yet to master how to apply the brakes – he uses his feet. While he has yet to utter a word he continues to respond more and more to people and this gives me hope. John |
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Freddie Ash Member in Phase 3 
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HI JOHN This is Fred in WV. Thank you so much for posting this great report on Jason. I believe the MP it the only way to go and the only hope we all have with all these TH1 diseases. Keep up the good work John and keep on reporting to us about Jason. Remember, we are all in this together and I am pulling for us. Your friend in Sarcoidosis Freddie |
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BARNEY Moderator
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DITTO!!!! I love reading your posts of Jason's progress....what a wonderful birthday party. HANG IN THERE, WE WILL MAKE IT!!!BARNEY |
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healingjason Member in Phase 3
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I know many folk are interested in Jason’s progress and I am happy to report the (written) ‘General Comments’ of his teachers as follows - Jason has settled well into Room 14. Initially he was distressed at times but is now much calmer and happier. Jason has been relating well to staff and other students and is a valued member of the class. Jason has been concentrating very hard on his work tasks and is progressing well in all areas. Well done Jason! While Jason has yet to utter a word he understands quite a lot (he continues to surprise us). It is totally vexing (and disappointing) that he cannot develop any speech when he is keen to communicate in many different ways, albeit relatively limited to requesting such things as food, assistance with the DVD player and wanting a rough ‘n tumble play etc. I suppose we have to be thankful that he is at peace with the world and himself and, absent this, he would, presumably, not have a platform to want to develop a greater understanding of the world around him and, hopefully, one day, learn to speak and socialise in more complex ways than he does now. He is developing simple living skills at home and is especially interested in cooking and food preparation. However, he is blissfully ignorant of so many things - which is a blessing of sorts. I am keenly awaiting Jason’s 25D blood test results to see if his progress is being limited by too much ingested vitamin D. I expect to get those results in a few days. John PS Jason has had a slight runny nose for many days now but he does not seem to have a cold. If he has, it is very mild. We are still in winter Down Under. As I have often discused, I wonder if this is more likely IP symptoms. |
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Sue from St. Louis Member in Phase 2
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As an educator for 40 years, I am interested in your son's progress. The rate of autism is increasing dramatically. Why aren't you following the correct medications and all of the MP directions? Any progress you think you are seeing can't be a result of MP when you don't give Jason the MP meds as prescribed. Does anyone in Jason's families have a Th1 disease? My grandson was diagnosed with ADD (attention deficit disorder). I have sarcoidosis and his mother (my daughter) has CFS and lupus symptoms. We've both been on MP for some time, but I've had to go very slow to control the IP as I know I have a very high bacterial count. As I've put the puzzle pieces together, I'm sure I've had the bacteria since I was a child. Looking forward to your response. Sue from St. Louis |
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healingjason Member in Phase 3
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Sue You should read the latest posts in the "Jason in phase 3 " thread" - http://www.marshallprotocol.com/forum35/9326-9.html These discuss Jason's 25D blood level which is low enough to suggest that his compliance with the MP is OK, that is, the sun and light exposure he is getting is not enough to suppress his immune system as shown by a low 25D level. Jason has always been complying with the dietary restrictions and the meds. Therefore, his progress can be attributed to the MP (and/or other factors such as maturity or remedial education) and his failure to recover to this point cannot be attributed to non-compliance with the MP. Most likely, his failure to move faster or recover can be put down to his pathogen load. John No other family member is known to have Th1 disease at this time. This does not mean that I dismiss the possibility that a family member could have Th1 pathogens, rather, there are no symptoms yet to suggest a recognisable disease in anyone else. Last edited on Tue Aug 25th, 2009 02:01 by healingjason |
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