The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Adrianne's MP update
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The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Adrianne's MP update |
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Adrianne Member in Phase 3 
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Adrianne on Benicar - http://www.marshallprotocol.com/forum19/8389.html Well, I took my first dose of mino (25mg.) yesterday morning, February 14th. After a couple of hours it "hit" me. I felt very strange, a bit nauseated and felt unable to function. That feeling lasted for about an hour and I really haven't noticed anything since then. My energy level has been better than normal and the brain fog that I experienced when on Benicar only has given away to clarity. I asked my son (Mark N) who has become somewhat of an MP guru why I wasn't herxing. When he started on the mino his reaction was rapid and dramatic. He said that it was probably because my "D" levels were probably still too high and he is advising me to take it very slowly. He suggested dosing with mino every third day and to really be diligent about getting my "D" levels down. I have not yet had a "D" test but am scheduled to have one done in a couple of weeks. I am fine-tuning my diet. Mark watches me in dismay as I eat these really wonderful chicken and apple sausages. They do not seem fatty to me but he says that all sausages have a lot of fat and that there is vitamin D in the fat and I am setting myself back by eating them  Terrible to live with the MP patrol monitoring me at all times (just kidding  ) Anyway, it is almost fun to do the protocol together and we can laugh at each other in our NoIRs and rejoice in watching each other herx because we know that we are getting better. |
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Adrianne Member in Phase 3
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Would like to mention a couple of other things. My CBC results indicated that I was anemic and doc recommended an iron supplement. I started my iron supplementation the same day that I took my first dose of minocycline (February 14, AM). Around midday I noticed that the palms of my hands were discolored, kind of like an ashy black. I tried washing it off and it wouldn't come off. Then I found info on this website which contraindicated iron supplementation because it helps sustain the little buggers. I did not continue with the iron supplementation. The blackness on my palms faded after about an hour. Don't know if this was related to the mino or to to the iron supplement. Also, have had severe muscle problems for about 30 years. The muscles in my neck and shoulder areas and more recently my hip area, are always in spasm. These spasms always worsen if I have even the most minute amounts of sugar, and it seems that sugar is present in just about everything these days. Chocolate and milk affect me in much the same way, though not as severe. My reaction to these things is just about instantaneous. Once my neck and shoulder muscles get sore and tighten up more it's just a matter of time before a migraine headache develops. Anyway, last night I had a teeny amount of fudge Rice Dream (an "ice cream" made from rice and sweetened with with rice syrup). Within moments I felt my neck muscles hurting. If I go to bed when this is happening I will most surely wake up quite ill the next day. Well, the Benicar has been relaxing me quite nicely and I am sleeping well since starting it. That alone has been a MAJOR improvement in my life. Well, guess what! I woke up this morning feeling perfectly fine. No achy neck,no migraine headache! I imagine it has has a lot to do with the Benicar addressing inflammation issues? I am also getting regular chiropractic treatment and I know that that is helping also. By the way, I have been to many doctors in the past 30 years concerning this issue. Usually they would say that this was very strange and they didn't know how to help me. |
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Foundation Staff. . 
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Adrianne, Have you considered that the hand discoloration may have been an immunopathologic reaction, particularly since it was temporary? Doctors usually assess skin color because pallor (paleness) or cyanosis (blue-coloration) may indicate anemia or poor blood flow/oxygenation. Another likely explanation (especially if there was any pain in the hands) for discolored hands may be Raynaud's Syndrome, a collection of symptoms that some Th1 patients experience. Raynaud's is actually temporary spasms of periphery arteries. See Raynaud's Phenomenon and Hand Pain. Please also see My doctor says I am anemic. What should I do? Anemia and Th1 diseases Belinda |
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Foundation Staff . 
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It does seem like sugar is present in everything these days because we consume so many processed foods. Foods in their natural state are recommended. For the occasional sweet tooth urge, you might try a product sweetened with Splenda or a sugar alcohol. |
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Adrianne Member in Phase 3
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Thank you Belinda and Meg. All feedback is much appreciated! I took my first dose of mino (25mg) Feb. 14, as I reported. My son Mark encouraged me to wait a third day, as long as I was still herxing, before taking my next dose. I am glad that I did because that third day I experienced significant herxing all day long, more so than on the first two days. It was mainly in the form of fatigue, brain fog and a really runny nose! Yesterday I had my second dose of mino. This morning, when I woke up, my husband commented that I had been breathing normally as opposed to stopping breathing and then gasping for air. I guess I suffer from sleep apnea, though it has never been officially diagnosed. I certainly do feel more rested when I wake up now! I also had lower back pain that started for no apparent reason. Hurt most with movement. Lasted a day and then just went away. Also experienced strange prickles on my skin in different areas. Today, Sunday I spent most of the latter part of the day sneezing and blowing my nose, even though I know that I don't have a cold. This herxing is most interesting! You never know what is coming next!  |
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jrfoutin Research Team 
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Adrianne, Some find immunopathologic responses increase more on the third day. Meg Mangin R.N. recently wrote: ...if you are experiencing immunopathology symptoms on the third day, every 3rd day dosing of minocycline is a good strategy for you. Some don't clear abx as quickly as others, so the expected response time frame may be slightly different. Charting can help you determine a pattern in your responses that will help you throughout the MP, and also can inform your discussions with doctor, too. Best to you, Adrianne--Janet |
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Adrianne Member in Phase 3
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Yesterday was day 3 since my last mino dose. There was no noticable herxing so I decided to go ahead and take my next dose in the afternoon. Again, nothing. Went to sleep and was awakened by a really intense pain in my lower left breast. It hurt so badly and came and went throughout the night. It is sore and mildly painful this morning. I can't detect a lump or anything. I remember feeling pain there in the past. Would a breast exam and mammography be advisable at this time? Also, a couple of years ago I had a heart incident, I think. For several weeks I had pain around the area of the heart where the aorta is. At least, that is what it felt like. I saw my doctor who is an MD and Naturopathic physician. He did some testing on me and said it was some kind of bacteria and gave me several supplements. It did eventually go away. Well, last night that pain came back, also. Herxing, which I assume this is, can be scary sometimes! |
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jrfoutin Research Team
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Adrianne, You may find a lot of previous aches and pains emerging. This is typical. If you have had anything that seemed to be around the heart, then do post for moderator input, chart and report patterns to your doctor. As for testing every time you have an immunopathologic event, it is a great comfort to know there are not that many tests needed while you are doing the MP. Not only will the endless stream of testing be expensive and time consuming, it also may encourage health care providers to suggest or even insist on offering you options that will stop your progress on the MP. Since you are not the first to notice these kinds of symptoms, there are MP resources to review that might help you as you learn to read your own immunopathologic responses and taking the correct action for each: The symptoms experienced are due to Immunopathology. The aim or the key is for you to achieve and maintain tolerable symptoms (physically, mentally, and emotionally) by adjustment of your meds dosing and schedule as suited individually to you within the guidelines. If your Dr agrees: to minimise symptoms - you can take extra half tablet (20mg) Benicar any time during cycle, or adjust dosage to 40mg Q4H. see also in BenicarQuiklink many Members report chewing or sublingual gives faster absorption/relief.. My immunopathology symptoms are too strong. What should I do? .. Any time that your symptoms are going past tolerable: please check these precautions and the options one at a time to assess: do not hesitate to use any of the adjustments suitable to you. Tools to check: << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you. Phase One is the training ground for getting the feel of your immunopathological response symptoms and gaining personal experience in managing all aspects of MP. ie eg including your meds and etc.. When should I be concerned about cardiac symptoms? Downloadable MP Documents These Quick-Scan Tracking Charts may be helpful to you in spotting patterns that can inform better decisions about MP abx options. Best to you Adrianne--Janet |
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Adrianne Member in Phase 3
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I forgot to take my Benicar, for the first time, this afternoon. I was out doing errands when I started to feel fretful and somewhat depressed. I rushed home to take that missed dose. Within minutes I could feel blessed relief. I never before realized how much of an effect inflammation can have on your psyche! I really like the calm peaceful feeling that the Benicar promotes. |
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Aussie Barb Research Team 
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Thank you Adrianne It is a good idea to always carry your meds with you in case of delays.. and as you have reported, it is all gained experience.. for yourself and for those reading here.. What times should I take my Benicar? What if I forget a dose? all best, Barb .. |
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Adrianne Member in Phase 3
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Since starting the MP I have noticed a more rapid heartbeat. i notice it mainly when I am lying down to go to sleep or when I am doing physically demanding chores around the house. As I am working, I find myself getting very winded, very quickly. Are these symptoms related to herxing? |
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Adrianne Member in Phase 3
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I just re-read your posting on "cardiac symptoms" and I understand this issue better now. It is quite mind-boggling to think that if I weren't addressing these inflammation issues now with the MP, what kind of life-threatening illness I would be dealing with in the future. The MP, with all of the inconveniences,is certainly worth it!  |
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MarkN Member in Phase 3 
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Hi mom |
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Adrianne Member in Phase 3
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Hi son . Thanks for encouraging me to go on the MP! |
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Foundation Staff .
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Immunopathology is the logical suspect for someone on the MP who develops tachycardia. |
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Adrianne Member in Phase 3
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I took my third dose of mino (50 mg.) yesterday morning. I was okay during the day and was able to keep busy with housework and go to the chiropractor later in the afternoon. The only herxing I had to deal with was occassional rapid heart beat and mild fatigue. Last night, as I lay down to go to sleep, my rapid heartbeat continued. At one point it got so rapid for a few seconds that it was quite frightening. I tried not to lay on my left side not wanting to put pressure on the heart. After a long time, I finally fell asleep only to wake up at 4:30AM with chills. I put a couple extra blankets on but that did not help. I dealt with the chills for a couple of hours when my alarm to take Benicar went off. The chills were less bothersome after the Benicar and I was able to go back to sleep. When I woke up my heart was still beating rapidly. This morning I am weak, my skin is sensitive to touch and I am running a low-grade fever (99.3). I wonder if going out yesterday in the bright sunshine brought on these more intense symptoms. I covered up as well as I could but sometimes exposure is unavoidable. I have not yet experienced any light sensitivity (at least with my eyes) and it is easy to forget the NoIrs because of that. Still collecting all kinds of mucous in the back of my throat. Also, developed a crack in the fold line of my finger. Just appeared and was quite painful. I imagine that if the body has to develop cracks in the skin, it will do so to eliminate toxins. Anyway, this episode is the most intense herxing I've experienced so far. Glad you are all here. Wouldn't want to go at this alone  |
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Carole Board Staff 
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Hello, Adrianne! It is very interesting how our bodies let us know in obvious ways when we need to be more attentive. The red flags are flying when your symptoms are sustained or your immune response becomes intolerable. Thankfully, Benicar adjustments can be a quick fix; but reducing the abx is another option. Do not be concerned in following the "suggested" timeline for ramping. Let your body tell you when the time is right. As members acquire more experience (even with trial and error), they become more attuned and proceed accordingly. Yes, I'm afraid that exposure to light can present multiple challenges. When I was just 3-4 months into the MP, light filtering through the car window or brief gardening tasks outside (even with layers of clothing) presented immediate and delayed problems. Take heed to the warnings, Adrianne, as those pioneers have made impressive footsteps for all of us to follow. Best wishes and take care as you begin the journey to wellness! . . . Carole |
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Adrianne Member in Phase 3
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Well, I had a very difficult day. Had fever, headache, achiness and intense fatigue. Really feels like have the flu. I have not had the flu or even a cold in many (at least 20) years. It is early evening and my temp is now 101.3. Can I take aspirin to relieve the head pain? I don't want to suppress any herxes but I feel awful. Will extra Benicar be a good alternative? I shall try that now. Will wait to hear about the aspirin. Thanks! |
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jrfoutin Research Team
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Adrianne, Looking forward to seeing your D tests soon! I totally agree with Carole. You don't have to have eye pain to be sensitive to light, either. AVOIDING SUNLIGHT and BRIGHT LIGHTS is helpful. A reminder that when you are going outdoors that extra Benicar as well as protecting yourself from light exposure by covering up to help keep symptoms minimal: Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... When and why should I vary my Benicar schedule? Since you just started Mino a couple of weeks ago, you might like to learn about how to help put on the brakes with abx too if Benicar isn't enough (it usually is): rest, relaxation, and hydration etc.. Tools to check. We do not recommend the routine use of aspirin. Rest is a very important part of managing and healing.. By being pushed to the limit of the tolerable immune response our body is working to capacity. Can't possibly explain how important Ph1 is to learn to take it easy. Your body has a big task to do. R&R helps. Good to see your avatar Adrianne!--Janet PAIN: PAIN CONTROL We do not recommend the routine use of aspirin. You are right not to take pain meds unless you need them. Adjusting the MP meds is the best way to manage immunopathology. But if that is not enough, don't be afraid to try pain medication if you need it. |
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Adrianne Member in Phase 3
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I had a difficult night. I was very hot and was sweating profusely. Didn't get much sleep. This morning I was feeling nauseous and I was still sweating. Just a few minutes ago I started to feel really, really sick.Everything started to black out and sounds faded but I didn't lose consciousness. I started to sweat even more, soaking my clothes completely. This episode lasted about three minutes. Now that it's over I feel much better. The only thing I really feel right now is the the painful stiffness in my neck which came with the fever. I am planning to go back down to 25 mg. of mino for a while and see how it will go. |
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Adrianne Member in Phase 3
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Thank you so much Janet and Carole. Your input and support are most valuable. Was supposed to have my "D" test done today but had to cancel because I was too ill to go to the doctor's. Will re-schedule. |
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Knochen Moderator
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Boy, you sound like you had exactly the same reaction to the 50mg mino dose that I had. 3rd round of it was the one that hit me like a brick. (and there I was, thinking I wasn't going to have much herxing! Ha!) Take heart though, 50mg took me quite a while, but once I pushed through to 75mg, things got a lot more stable and predictable for some reason. Maybe enough of the "easy" bugs had been killed by then. I hope it's the same for you and that things get better in a few weeks. Keep it tolerable, you've got a bit of a hike ahead. You'll be amazed at how the herxes change from day to day. And that occasional Good Day is so nice! |
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jrfoutin Research Team
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Glad to see your post Adrianne. Adequate hydration, especially if you are sweating a lot, can probably lesson some of the dizzy sensation. Also.. Why am I dizzy and/or fainting? Do take care when changing positions... getting up more slowly, holding firmly, etc, so that you do not fall and hurt yourself. and do check with your Dr if necessary.. Dr Blaney wrote: I would suggest that the patient ensure that they avoid any other toxic exposure such as cleaning products, chemicalized foods, unnecessary meds supplements etc. plus adjust lifestyle to support the process. ie rest, fresh foods, water. You can also rock back and forth between 25mg mino and 50mg, or try 3 day dosing if your Dr agrees. No rush, just steady. Best to you Adrianne--Janet |
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Adrianne Member in Phase 3
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Thanks for the encouragement Knochen! It sure is reassuring to know that others have walked down the path I am now on and have lived to tell about it! |
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Adrianne Member in Phase 3
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Hello everybody! I feel like I have been getting to know you all more each day as I read your posts. I have been herxing more tolerably since I went back to 25 mg. of mino instead of 50. I needed a chance to catch my breath! Speaking of breath, one of my new herxes has been a dry cough which comes if I breathe too deeply. About 10 or so years ago I got a severe bronchitis which lasted for 3 months and kept me up most nights because that's when the cough was at its worst. I haven't had a cough since. I wonder if this is a symptom revisited from that past illness. In addition, my post-nasal drip continues constantly. All this is interspersed with big wet sneezes which I catch in big napkins because tissues just would not do the job. My left ear, which has felt stuffed up for many years, has developed an earache. I have occassional sharp pains in my knees too, just like I used to have when I had really severe CFS about 13 years ago. I am scheduled to see my doctor on Tuesday and get a "D" test done. As I mentioned a couple of weeks ago, the last time I went I got the results of my CBC test and the doctor was very concerned about my elevated white blood cell count (15.17H x10E3/uL) and low iron. He said that he wanted to do another CBC the next time I came in because of this concern. He mentioned that if my white blood cell count were a little higher that he would start suspecting leukemia. As frightening as this sounds, from a MP point of view is this re-test necessary at this time? The response that I got from my initial posting of this information seemed to indicate that these test results were not unusual for people with Th1 disease. Please advise and thank you so much for your help as always! |
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P.Bear R.N. Inactive Staff
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Adrianne, It is fine to get a CBC done on occasion to check your status; but not absolutely necessary everytime you go. Your levels will waver with herxing and many people will have a slight dip in hemoglobin and hematocrit upon starting Benicar and the MP. I would not be too concerned about leukemia with your WBC test result, but if it helps your doc feel better to track it that is fine. All your symptoms really remind me of when I started the MP. It seems every big or little problem one has had over the years is revisited once the bugs start dying. best, P.B. |
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jrfoutin Research Team
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Adrianne, I have always found What do my lab tests mean? to be accurate and very comforting, especially for questions you have right now. Good for you to know when you discuss your test results with your doctor. Best to you Adrianne--Janet |
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Adrianne Member in Phase 3
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Hi everyone. Just a quick update. After a brief return to 25 mg mino from 50 mg, I took 50 mg mino Saturday night. Was somewhat okay on Sunday morning, although my sinus drip was still there, as always, and my nose was runny like a faucet. By afternoon, I started to get the chills again. I was shaking like a leaf coming home from church. The chills continued all afternoon and then I got a fever which went up to 101. In the evening I developed a bronchial cough and I hacked away several hours. This calmed down before I went to bed. I had some difficulty sleeping last night. The chills ended for the most part and then I just felt like I was burning up. I took a Tylenol PM and that helped me to get some rest. I also kept getting a stabbing pain in the back of my left thigh. My neck is still stiff from last week. I don't know if that has anything to do with a herx. Based on info that I got from this website regarding the use of the Waterlase in dentistry, I found a dentist nearby who uses it. I had my first appointment this morning. I had a cavity drilled -no needle and I didn't feel any pain or discomfort. Thanks to whoever posted that information! |
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Carole Board Staff
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Hello, Adrienne! I'm sorry to read that you had a rough day yesterday. Hopefully, you are feeling better today. Did you adjust your Benicar dosage during this time? If your physician approves in times of distress, 40 mg. of Benicar every 4 hours and/or 20 mg. in between can certainly make a difference in better tolerating immunopathology. Sadly, symptoms may linger for weeks or even months. You just need to focus on maintaining a "tolerable" immune response. I'm glad you at least had a successful visit to the dentist! Take care! . . . Carole |
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Adrianne Member in Phase 3
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I took another dose of mino (25 mg.) last night. Again I woke up shivering and shaking. Husband put another blanket over me and came close to me to warm me up. It took a while before I settled down. I have been having a real problem with temperature regulation. I am either shivering and feeling very cold or sweating and feeling very hot. My hands and feet are cold and clammy all the time. Today I have been coughing a lot. I've been extremely fatigued and so took a nice long nap. I sure am thankful that I'm in a position to be able to do this. Thank you Carole and Janet for your feedback. My doctor agreed to postpone another CBC. I will be re-tested in 3 months. Also, I was wondering if when you adjust your Benicar dosing to ease symptoms, are you slowing down the bug-killing process? That would affect my decision to take extra Benicar, especially if the symptoms are somewhat tolerable. |
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Carole Board Staff
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Hello, Adrianne! I still have a little temperature disregulation on occasion, but nothing that I cannot manage. For instance, we have a heated mattress pad with dual controls. When I am chilled and cannot get warm, this always does the trick. On regular temperature days for me, I usually keep it on the next to the lowest setting just for comfort when crawling into bed. I will often turn it off during the night. On the other hand, I usually awake perspiring when it is time for my first Benicar of the day, which quickly regulates the situation. One thing for sure, Adrianne, is that the extremes will one day dissipate. In the meantime, if it takes Benicar to do the trick, then that's an easy one! Don't be concerned about jeopardizing the destruction of pathogens because it will all fall into place. Please remember that your aim is for "tolerable" immune response. Rest assured that the additional Benicar, if your doctor approves at strategic times, will not present problems for concern.Best wishes and take care as you pursue the pathogens! . . . Carole Last edited on Wed Mar 7th, 2007 21:40 by Carole |
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Adrianne Member in Phase 3
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Hello everybody! The pattern is continuing. Ever since I started 50 mg. of mino I start with chills a few hours later and then fever which lasts for about a day and then when the fever is over, hot and cold sweats. If I am sleeping, I wake up drenched. I am very physically weak during those times and can't do much. I rest a lot and also spend lots of time on this very extensive website learning all sorts of wonderful things about the MP! Just wanted to mention that I've had bursitis in my left hip a couple of years now, which prevents me from sleeping on my left side. I can't sleep on my back either because of constant post-nasal drip accumulation in my throat (even before the MP). So, my right side is the only option left and I think I am wearing it out. Anyway, the hip problem is an "-itis" and the sinus problem is probably an "-itis", too. I am so happy to be on a protocol that will address both of these issues. Also wanted to mention that ever since being on the MP I have not had any bouts with migraine headaches! I have suffered with debilitating migraines since I was in my late twenties (although they have been less severe and less frequent the last few years). This is a major relief for me! Thanks Carole for all of your encouragement. You approach things in such a practical, down-to-earth way! Last edited on Sat Mar 10th, 2007 20:45 by Adrianne |
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jrfoutin Research Team
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Adrianne, Lottie says she keeps some dry towels close to bed for quick action. Such a simple solution I wish I had thought of it. I found one hip got a lot of sleep action too and pillow adjustments have helped. My family does like the memory foam but there are many bed options right now to reduce pressure on any one physical (muscle/skeletal/organ) structure. Sleep does get better on the MP in so many ways. It is fun to see how many "itis" issues get resolved. Glad you are here!--Janet |
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Knochen Moderator
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Also wanted to mention that ever since being on the MP I have not had any bouts with migraine headaches! I have suffered with debilitating migraines since I was in my late twenties (although they have been less severe and less frequent the last few years). This is a major relief for me! I had much the same thing happen. I had been declared a refractory case by a major headache clinic in the Boston area years ago, and my neurologist also threw up his hands and just tried to relieve the attacks rather than prevent them. I have been nearly 9 MONTHS without a migraine since starting the MP. Had a couple of days where it felt like one was trying to get started (you know the senstion I'm sure), but that was about it. The fact that the MP is going to cure my other problems as well just makes it that much better. I didn't expect the migraines would just go *poof* as soon as I got up to speed on the benicar. I can hardly wait to walk into my neurologist when I am done and tell him how I did it. I suspect he'll listen, too! I'm so glad that you are seeing some relief even at the beginning like I did, it makes it so much easier to stay the course because you know it's working. Take your time and expect some bumps along the way, every dosage level seems to have its own tricks. |
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Adrianne Member in Phase 3
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Thanks Janet! Yes, my sleep is so much better now. Not only do I sleep but it is a good, deep sleep. I even have lots of dreams. I know this because many of them are interrupted by my alarm for Benicar I do already have a memory foam mattress pad on the bed--on top of an already cushy mattress. But this is an improvement from when I also had an egg crate pad on top of that! Towels are a great idea. Being wet is not very comfortable. Thanks again! |
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Adrianne Member in Phase 3
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Knochen, how very exciting that you have not had any migraine headaches for so long! You are much further down the MP road than I am, so this is very good to hear. This alone would make the MP worth it, but ah, there is so much more..... |
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Adrianne Member in Phase 3
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The doctor's office just called with the results of my "D" test. It is 9.1. Yey!!  Of course, I never did that expensive "D" test initially, so I don't know where I have come from.I am still at 50 mg. mino and still herxing pretty well on it. Each time I take it I experience hot and cold chills and fever. It knocks me out pretty well! On Sunday, while in church, I experienced a new symptom. My kidneys started to hurt and I was quite uncomfortable and weak. Since then they do not hurt as much but are somewhat sore and I feel them mainly with movement. Also, I noticed twice that my urine had a strange odor to it. Other than that, I continue to hack away with that dry cough. I am thankful that it does not bother me when I am sleeping. My runny nose has stopped for the most part and everything is more thick and solid and I don't have much ability to taste or to smell. I continue to have travelling pains in various places such as my right ankle, my knees, back of right thigh and my feet (arches). When I don't have a fever my body temperature is quite low--about 96 degrees or a little above that. My blood pressure is quite low. My most recent reading was 70/42. Since I have had some pretty unpleasant IP, I am upping my Benicar to q6h. That way I am less likely to have gaps in my blockade. I don't think there is any doubt in my mind now, based on my response to the MP, that I do have TH1 disease and that I am on the right track! |
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Carole Board Staff
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Congratulations, Adrianne, on your progress thus far! The symptoms you have mentioned can definitely be addressed by the MP. I have also experienced many of those, and I can honestly say that they are now behind me. In addition to the general all-over pain elimination, relief from chronic sinus issues has been very welcomed. Decades of sinus drainage and pressure, sore throats, and migraines have now been replaced with the ability to breathe freely through my nose. Please remember that the Benicar dosage can even be adjusted to better tolerate the immune response. My lowest ever BP reading was once raised by an extra in-between Benicar. Soon you, too, will be able to "smell the roses," Adrienne! Take care! . . . Carole Last edited on Wed Mar 14th, 2007 03:29 by Carole |
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MarkN Member in Phase 3
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I am pleased to report that mom had some good brain herx yesteday Last edited on Sat Mar 17th, 2007 15:35 by MarkN |
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Adrianne Member in Phase 3
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Thank you, Carole. I certainly am looking forward to "smelling the roses". I have a bit more cleaning-up to do, but at least I know that I am on my way! My last dose of mino (50 mg.) resulted in no noticeable IP! Amazing, especially considering what I went through previously with the 50 mg. doses. On 3/15 (AM)I took my first dose of 75 mg. mino. I was kind of apprehensive, based on what I had experienced at the 50 mg. level. I kept waiting for signs of IP but nothing seemed to be happening. I took advantage of this little break to do some mild exercise. At night, when I went to bed, I started having a tickle in my throat which caused me to cough uncontrollably for about an hour. Then it stopped and I was able to sleep. Yesterday, I felt quite depressed and couldn't stop the tears. I am dealing with difficult circumstances but yesterday the glass was more half empty than half full. Perhaps that was another IP symptom. I have been busy purchasing items which will help me cover up more during the coming months. It gets so hot and humid here I can't imagine how I will be able to cover up and survive. I got a dark, long-sleeved shirt made out of moisture-wicking fabric and a nice dark brown cotton blouse which I can throw over my indoor clothes when I have to go out. I have found a nice SP wide-brimmed hat which I will purchase this week. My son. Mark N, ordered a good supply of zinc oxide powder which we will mix into moisturizing cream for sun protection. Also just received a pair of 2% NoIrs. It's been getting brighter and sunnier and my 10% NoIrs don't seem adequate enough. Slowly but surely, it is coming together! Last edited on Sat Mar 17th, 2007 16:28 by Adrianne |
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Knochen Moderator
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Yesterday, I felt quite depressed and couldn't stop the tears. I am dealing with difficult circumstances but yesterday the glass was more half empty than half full. Perhaps that was another IP symptom. I get the worst of the neural symptoms with light exposure. Your situation sounds pretty typical, and the fact you've only had the 10% NoIRs make it a strong possibility that you had a light induced flare, IMHO. Not a lot of fun! (I ran the snow blower to clear the driveway today and suffered -OK, am suffering - from the glare that got around my 2% glasses. The effort of doing the work probably contributed as well.) We all end up finding our limits on the MP, and maybe you found one yesterday with extra stress and light. Just remember to click your heels together and say "There's no place like herx" to keep your perspective. Other than that, be willing to let things go for a bit and retreat or rest as you need it. Treat those neural reactions  with respect. |
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Adrianne Member in Phase 3
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Knochen, thanks for your input! I think you hit the nail on the head. Yesterday I spent a good part of the day running errands all over the place and then going to the chiropractor. It was a bright sunny day and I was wearing a 3/4 sleeve cardigan, so there was some sun exposure on my arms, as well as my neck and face. I started to fall apart emotionally not long after arriving home from my outing. Even though I did not mention this in my posting, you already knew! |
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Adrianne Member in Phase 3
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Today I took my third dose of 75 mg. mino. After I take it I feel it circulating throughout my system in a pleasant kind of way for several hours. Anyway, since I have been on 75 mg. of mino, I have had only very mild IP. I have been experiencing pain in the joints of my fingers, especially on the right hand. They come, stay awhile and then leave. I have been also getting the sharp pains through my knees again. These hit suddenly and can be intense. I don't think I've posted about the ringing in my ears before. This started to happen quite frequently when I began the MP. I am still experiencing occassional ringing. I also get short-lived pain in either of my ears from time to time. I am quite surprised at the milder response that I am getting on 75 mg compared to when I was at 50 mg. I am wondering if increasing the Benicar to q6h around the same time that I increased my mino dosage, has anything to do with it. So, no gory details to report at the moment but I'll be sure sure to let you know when they start showing up! Wanted to add that I purchased a Timex pill-minder box which has 4 boxes and alerts me to take my Benicar 4 x daily. No more late doses for me! Last edited on Tue Mar 20th, 2007 03:31 by Adrianne |
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jcwat101 Research Professional 
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Adrianne, I just wondered if you were using anything to protect the areas of skin exposed to the light? You might look at the Sunscreen Overview post ( http://marshallprotocol.com/forum2/7758.html) for information on some of the options. Joyce Waterhouse P.S. I just saw your post from a few days ago, so it appears you are working on trying the zinc oxide. If it alone isn't enough, some use both zinc oxide and keto cream (though covering up well is best) Last edited on Fri Mar 23rd, 2007 22:18 by jcwat101 |
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Adrianne Member in Phase 3
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Thanks Joyce! I am still waiting for the zinc oxide to arrive. I am going to mix it with my favorite natural moisturizing cream. A sunscreen solution is a must for me because it gets VERY HOT and VERY HUMID here in North Carolina and covering up completely may not always be an option. Also, thank you for directing to me to the link on sunscreen. It has such a wealth of information! |
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Adrianne Member in Phase 3
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Beni 40mg q6h, Mino 100mg q48h, probiotics Hello everybody! After relatively mild IP symptoms on 75 mg. mino (compared to 50 mg.), I took my first dose of 100 mg. mino yesterday morning. I was a little apprehensive but so far all is tolerable. Yesterday I started out with some more ringing in my ears. Also had pain in my left ear. By the way, I don't seem to be hearing very well lately. There is some pressure in my left ear. I hope that this is due to IP and that it will eventually resolve. I have also developed swollen ankles, especially the right one. There is some pain associated with the swelling. This is a symptom that has re-appeared from last year. Wondering if it is IP or I am just reacting to the warmer weather. Another condition that is exacerbated is my carpal tunnel problem. I usually have problems with it only at night and it usually involves numbness and tingling. Now I am feeling more pain and tenderness in the wrists and the tingling and numbness occur even in the daytime. Dental pain has been intense at times in two problem areas. I am waiting a bit to have it checked out because hopefully these are IP symptoms which will resolve. Fatigue is ever-present but I am keeping up pretty well with all the basic (really basic) responsibilities. Vacuuming never seems to get done and I can't seem to get help with it. The other day, I walked into Costco and they had all these Roomba robot vacuums stacked up near the entrance. I decided to give it a try. Well, it would have worked out except that it kept getting caught in the fringes of all my area rugs. So back to the ol' vacuum cleaner which I just may have the energy to push around between mino doses! |
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MarkN Member in Phase 3
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Mom, Sounds like you are a mess, I'm happy for you. Sorry to hear about the vacuuming. I'll have to check my calendar. |
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Aussie Barb Research Team
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Thank you Adrianne Benicar: If your Dr agrees: to minimise symptoms - you can take extra half tablet (20mg) Benicar any time during cycle, or adjust dosage to 40mg Q4H. see also BenicarQuiklink many Members report chewing or sublingual gives faster absorption/relief.. Using your Dr approved pain med regularly can be helpful. see this FAQ Where can I find phase two and three? for information re sending an email for the Questionnaire to fill and return so that you have plenty of time to read and discuss the Information with Staff before going to your Dr. When you are given feedback and access to the Information in the Phase 2/3 Forum - We then encourage you to begin a new progress report there in that forum to discuss the Staff recommendations as to which meds and dosing are most suitable to your individual situation, in preparation for discussing with your Dr so s/he can write the scripts. Thank you.. all best, Barb ... |
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Adrianne Member in Phase 3
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I have just hit the one year mark on the MP! On this day last year I started taking Benicar to do a therapeutic probe. I was astonished at the changes that started to take place. After taking Benicar for only a couple of days, I started to experience deep, refreshing sleep. This was wonderful since I had struggled with insomnia for a few years. Also, after two weeks on Benicar I had not had even one migraine headache. This was wonderful to me since I had battled chronic migraine headaches for at least 30 years. I was convinced that the MP was for me. My MP journey to date has been nothing short of amazing. I started out with many health problems which I had considered to be separate issues. I had always addressed each problem with an appropriate treatment. However, I had so many problems it was hard to deal with them all and I wasn't ever able to actually get anything resolved. How wonderful it was to learn, after being on the MP for a while, that practically all of my health issues were being addressed because the underlying problem was inflammation due to the presence of CWD bacteria. The MP, over the course of a year, has targeted just about every health issue I have been dealing with and even health issues which I had dealt with in the past that seemed to have left a population of CWD bacteria behind (areas of old injuries and illnesses). I have experienced almost continual immunopathology symptoms, some mild, some quite intense and frightening. Areas if improvement include: No headaches of any kind (migraine, tension or sinus). If I feel headachy, extra Benicar melts it away within moments. Better digestion and bowel function Symptoms of hypoglycemia: gone for the most part Muscle pain and achiness greatly reduced. Extra Benicar helps with this symptom also. Improvement in long-standing inflammation in the left TMJ/ear area. Have a ways to go before it is resolved but I am definitely making progress. Heart symptoms (rapid and sometimes irregular heartbeats, pain) occur only very occassionally at this time. Kidney pain - only occassionally and very mild Dental pain much reduced, especially the area where a molar was extracted years ago. It used to ache off and on but now there is no pain at all. Joints in fingers don't ache very much any more. Energy level has increased. This is more noticeable at the end of an antibiotic cycle when herxing decreases for me. These are some some obvious improvements but I am experiencing consistent herxing and so I know that many more good things are in the works. I will be entering Phase 3 in a couple of days and I am looking forward to killing lots more bugs with the "big guns". With PERSISTENCE and PATIENCE the MP can work miracles! |
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eClaire Member in Phase 2 
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Congrats Adrianne on all the positive changes that your first year on the MP has brought! And thanks for being the supportive person that you are! Claire |
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Adrianne Member in Phase 3
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MP Meds: 40 mg. benicar q8h with occassional 20 mg. in-betweeners + Phase 3 meds Light: More exposure due to Thanksgiving travel. No noticable adverse effects. Symptoms: Lots happening in my head. Have been feeling stuffy and clogged up. Occassional post nasal drip and lots of sneezes. Left ear has been feeling stopped up and have had much difficulty hearing conversation not directed toward me. Dental pain. especially in root-canaled tooth. Joint pain and tenderness, especially left elbow (mostly upon awakening) and rt. big toe. Fleeting, sharp pains in knees, achiness in fingers. Parasthesia in right hand when sleeping. Lots of general fatigue but this is offset somewhat by being able to sleep much better. Loss sense of taste and of smell continues. All IP has been quite tolerable! Comments: For the first time since starting the MP, I did some travelling (for Thanksgiving) I was amazed at how well I weathered the trip! In fact, I fared better than I ever did during past trips! I felt fine the whole time and had a wonderful visit. I was covered and wearing NoIRs during the trip and I wore my 10% NoIRs indoors during daylight hours since the windows were not covered. |
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Adrianne Member in Phase 3
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Yey!! As of today I have completed two years on the MP! If I had to make one statement regarding my experience with the MP, it would be this: "Who knew I had so many bugs?!" (Answer: Dr. Marshall,, of course!) I have experienced immunopathology almost everywhere in my body. Turns out that all my problem areas have been nothing less than bug resorts! These bugs thrived and multiplied through the years with virtually no threat to their existence. Then one day, exactly two years ago, I decided on a whim to pop one of my son's Benicars just to see what would happen. I continued on and it did not take very long for me to realize that I had hit the jackpot, as far as my quest for health was concerned. As for the bugs, it probably didn't take too long for them to realize that there was trouble in paradise. After two years, the bug-killing is continuing. I have had no shortage of IP symptoms, that's for sure. The first year, the MP was the focus of my life. There was no way it could have been anything less. However, this past year it has been pushed more and more into the background as my energy and zest for life have been increasing. Yes, there are the down times but I can pretty much regulate that with my antibiotics schedule and dosing. It is all second nature now and I don't have to give it very much thought for the most part. I am able to take care of cooking, essential cleaning, laundry, grocery shopping and other errands with relative ease. I have yet to tackle bigger household projects but I know that the ability to handle such things will come in time. I participate in a couple of church-related activities per week and no one outside of my family knows that I am on the MP, though they may be a little curious about my fit-over NoIRs which I wear outdoors, even on cloudy days or at dusk. I no longer wear them indoors, however, even if I am in a place where there is natural light coming in through the windows, and I find that I am perfectly comfortable with that. A few times during the day I will pop my head out the door to call my kitty in and I don't usually have my NoIRs on. Sometimes a big blast of sunshine hits my face and eyes and I have not noticed any averse reactions. I am definitely still a work in progress. I still have immunopathology in my joints, heart, kidneys, colon, ears, skin etc. etc., but I FEEL BETTER IN EVERY WAY! Body is stronger and I certainly have more stamina. I have been exercising regularly pretty much for the past year. I started off really slowly but now I am able to do complete workouts (15 to 45 mins.) I have achieved some weight loss, almost 20 lbs, something that I was unable to succeed in pre-MP, no matter how much I exercised. Also, my mind has been sharper and clearer lately. However, my physical strength and mental clarity are totally dependent on a good night's rest. If I don't get good rest, I can't function well physically or mentally. Unfortunately, insomnia is still an issue as well as frequent wake-ups. I still allow myself the luxury of staying in bed late or taking a nap, if I need to. Also, I would like to mention that I am still migraine-free since starting the MP. This is huge because the headaches were excrutiating and they incapacitated me for 2-3 days at a time. I got them regularly for about 25 years. Words are not adequate to express the gratitude which I feel for Dr. Marshall and his work. I not only get to experience my own recovery but I am watching my son, also on the MP, come back to life. This journey is certainly worth it. |
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Joyful Board Staff 
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Wow... Thanks for posting. Your experience really is encouraging!!! |
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Shari Gold Member in Phase 3
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Adrianne - This is so amazing!!! I read your post at your one year mark and then jumped to this last post at your two year mark. I am in the beginning of my 7th month and it is nothing short of a miracle. For folks who are not as sick as we are .. trying to convey the MP experience and the shifts that are happening islike trying to speak an alien foreign language to earthlings. Today I had a glimmer of what good is to come. Shopping in the grocery at night tonight, I felt light and no aches an pains. Driving home, my mind felt sharper than it has in years and while the lights were a little difficult at times to drive w/ I can't help but marvel at how the night seeems sharp and clear and shiny ... like I am seeing the world w/ new eyes for the first time. Your post here really resonated w/ me .. it is nice to read someone's journey who is just a little bit ahead, but so much farther down the line! Thank you!!!! Shari |
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Aunt Diana Moderator 
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So happy to hear how well you are doing. |
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expate Member in Phase 3 
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Thank you for sharing. It is instruction for all who seek.dette |
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Adrianne Member in Phase 3
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Thank you Joyful, Shari, Diana and Odette! You all are a great encouragement to me, also. Shari, I also enjoy those little glimpses of wellness which usually come so unexpectedly. I had one this past Sunday. We usually sit in the balcony at church. For quite a while walking up the stairs to the balcony was a major challenge. If no one was around my husband would push me up on my hindquarters just to give me a boost . Hoisting my weary body up the stairs was just too hard. I would usually arrive at the top breathless and feeling as I were going to black out. A lot of this had to do with the fact that I have to wake up quite early on Sundays and I am usually quite tired and I don't function well when I am tired. Anyway, this past Sunday I just bounded up the stairs feeling agile and as light as a feather. I wasn't even gasping for breath at the top. Just love those little surprises! |
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