The Marshall Protocol Study Site > PROF. MARSHALL'S PERSPECTIVE > Prof. Marshall's Perspective > 6th Intl Congress on Autoimmunity, Porto, Sept 2008
|
|
The Marshall Protocol Study Site > PROF. MARSHALL'S PERSPECTIVE > Prof. Marshall's Perspective > 6th Intl Congress on Autoimmunity, Porto, Sept 2008 |
|
| Moderated by: Dr Trevor Marshall | ||
| Author | Post | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
|
Dr Trevor Marshall Research Team 
|
The 6th International Congress on Autoimmunity in Porto, Portugal, was a wonderful success. Thanks to everyone who has gotten us to this point, especially those whose donations have helped us to mount such a large effort at this important biennial conference. The videos of the presentations are available at http://vimeo.com/1787405 http://vimeo.com/1789735 http://vimeo.com/1788640 http://vimeo.com/1790302 Written transcripts of these presentations have been produced. First, the presentation of Cpt. Tom Perez: http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_TomPerez.pdf My presentation is at: http://autoimmunityResearch.org/transcripts/ICA2008_Transcript_TrevorMarshall.pdf The presentation of Dr Greg Blaney: http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_GregBlaney.pdf The presentation of Amy Proal: http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_AmyProal.pdf And there is a video of "Memories" at http://vimeo.com/1811379 Print these up for your Doc  Thanks to Tom, Janet, and everybody who helped with this transcript effortHere is the detailed info from prior to the conference----------------------------------------- The special session I will co-Chair, "VDR and Vit D in Autoimmune Disease," has now been scheduled. Please see: http://TrevorMarshall.com/old_papers/ICA2008_co-Chair_invite.pdf and http://www.abstractserver.com/autoimmunity2008/planner/sp.php?&go=iplannershowsession&sessID=10 You can click the abstracts in that last link to view exactly what will be discussed Meg is tying it all together with a poster on our study design: http://AutoimmunityResearch.org/ica2008/ICA2008_Mangin_Abstract.pdf As planned, Joyce and Amy will be giving oral presentations: http://AutoimmunityResearch.org/ica2008/ICA2008_Proal_Abstract.pdf http://AutoimmunityResearch.org/ica2008/ICA2008_Waterhouse_Abstract.pdf While Greg Blaney and I will start the session with our (full-length) presentations http://AutoimmunityResearch.org/ica2008/ICA2008_Blaney_Abstract.pdf http://AutoimmunityResearch.org/ica2008/ICA2008_Marshall_Abstract.pdf Congratulations to all my colleagues for getting their abstracts through the peer-review process! As more details come to hand I will add them to this thread. FYI, the preliminary conference details are at URL http://www.kenes.com/autoimmunity/ Finally, here is a photo of my ICA presentation in Budapest during 2004:  Last edited on Tue Nov 4th, 2008 22:32 by Dr Trevor Marshall |
||||||||||
|
Joyful Board Staff 
|
Yes ... Congratulations ... to Trevor, Meg, Amy, Joyce & Greg on the acceptance of your abstracts!!! Surely the MP science will be forwarded significantly in this venue with all of you providing your insights and understanding to this congress. ~  ~ ~ ~ ~ ~ |
||||||||||
|
Rico Moderator
|
Very good. Congratulations! Will the presentations be taped? |
||||||||||
|
Dr Trevor Marshall Research Team
|
Heck, I hope so, Rico. We will have adequate capability to do that ourselves, in any case. |
||||||||||
|
Dr Trevor Marshall Research Team
|
The final program for Porto is starting to take shape. Thanks to everyone who has gotten us to this point, especially those whose donations have helped us to mount such a large effort at this important biennial conference. The special session I will co-Chair, "VDR and Vit D in Autoimmune Disease," has now been scheduled. Please see: http://www.abstractserver.com/autoimmunity2008/planner/sp.php?&go=iplannershowsession&sessID=10 and http://TrevorMarshall.com/old_papers/ICA2008_co-Chair_invite.pdf You can click the abstracts in that first link to view what will be discussed Meg is tying it all together with a poster on our study design: http://AutoimmunityResearch.org/ica2008/ICA2008_Mangin_Abstract.pdf |
||||||||||
|
Ruth Goold Health Professional
|
The abstracts indicate that some very interesting discussion could arise in your session. I know that the MPers will do well - hope you have fun, too, Ruth |
||||||||||
|
ronsotoo Member in Phase 1
|
Congratulations and Good luck to all, Dr. Marshall, Meg, Amy, Paul, Joyce and the rest of group for your presentation in 6th Intl Congress on Autoimmunity, Portugal, In September. Looking forward for the conference videos/reports and Amy's updated in her blog. Wish you all a safe, fun and successful trip. |
||||||||||
|
wytnez Moderator 
|
I am so excited and blessed to be a part of this new and innovative treatment for TH1 illnesses. I imagine my full recovery each day and I cannot wait until the nay sayers confess their error!!!! Can't wait to get the DVDs of the presentation. Saj |
||||||||||
|
Knochen Moderator
|
Will you be blogging from the conference, or do we have to await your return? |
||||||||||
|
Dr Trevor Marshall Research Team
|
Knochen, I don't know if we will have WiFi readily available in Porto. Let's see what happens... Meg, Belinda and I all have laptops, if there is connectivity... |
||||||||||
|
Dr Trevor Marshall Research Team
|
Two weeks to go... |
||||||||||
|
scooker48 Member in Phase 3 
|
Dr. Marshall, I have reviewed the abstracts of the upcoming conference, and want to confirm that all the speakers are "on our side". That is, supplementation of Vitamin D in the human diet is not beneficial; it is harmful to the human immune system. If so, this means the ARF is collaborating with individuals in Israel, Netherlands, Italy, and Iran? And may I ask was "supported by an unrestricted educational grant" from ARF means? With highest respect and good wishes, Sherry |
||||||||||
|
Dr Trevor Marshall Research Team
|
An unrestricted grant means that the sponsor has no control at all over the content of the session. The conference content has been selected by the conference's Scientific Committee. Not all the presentations will be made from the background of what we have discovered, obviously the four we are presenting will do so Also it looks as though the Israeli group are pretty close to understanding our message The aim of conference presentations is to let the others working in this field know what we have found, and expose our discoveries to peer-review by the delegates. |
||||||||||
|
Cocoa Member in Phase 2/3
|
Hi there, How can I access the abstracts of the other conference presenters? I have tried clicking around on the conference website but cannot find the link  .Also, specifically, does someone have a link to the Israelis' abstract Dr. Marshall mentions? Thank you, Cocoa |
||||||||||
|
cwylie1 Member in Phase 3 
|
Congrats to all of you!  I am excited that the MP will be presented on the world stage such as this. I hope you have a terrific experience and that your presentations will be well received. Of course, I look forward to being able to obtain a DVD of the pertinent presentations for myself and my MD following your return.  Thank you for everything you all do for us and the MP. With respect and admiration, Carol |
||||||||||
|
benk Member in Phase 3 
|
Cocoa: the link you asked for is http://www.abstractserver.com/autoimmunity2008/planner/sp.php?&go=iplannershowsession&sessID=10 |
||||||||||
|
Cocoa Member in Phase 2/3
|
Thank you Benk. |
||||||||||
|
edj2001 Moderator 
|
Good luck to the ARF team in Porto next week!!!  I am sure your excellent and groundbreaking presentations will be received with interest and excitement in the scientific community. Safe trip. Looking forward to the usual Oscar winning feed back Gene Last edited on Sat Sep 6th, 2008 01:59 by edj2001 |
||||||||||
|
LeAnne Member in Phase 3 
|
I just want to say thanks to Dr. Marshall and to everyone that has a part in this conference. I hope the conference is a great success. I wish I could be there. My prayers for safety and success will be with you all. Good Luck! LeAnne Last edited on Mon Sep 8th, 2008 05:42 by LeAnne |
||||||||||
|
Linden Member
|
All the best to the Porto team. Hope it all goes well and I hope you all have a great time. Linden |
||||||||||
|
Foundation Staff . 
|
Hello to everyone from the crew at Porto. The opening ceremonies last evening were very impressive and we are geared up to present our poster and presentations today. The conference is well organized and attended by 1500 so we should have many opportunities to engage scientists and clinicians. More later....... |
||||||||||
|
Jeannine Board Staff 
|
Can't wait to see and hear all that went on at the confrenece! We are all here rooting and cheering you all. Knock their socks of with the poster presentations!!! I am praying you get to network and collaborate with like minded individuals which will allow the Mp science to be embraced by mainstream medicine. Jeannine |
||||||||||
|
Aunt Diana Moderator 
|
Great!! Dittos, Jeannine. How exciting it must be....have fun! |
||||||||||
|
Foundation Staff .
|
Our oral presentations went very well yesterday and there was a lot of interest in my poster. The sessions by other speakers continue today and we hope to have many opportunities for networking during the breaks. Hope all is well with everyone...... |
||||||||||
|
Scarlett Member in Phase 3
|
Meg, Thanks for more good news from Porto. Continued good luck to all and tons of gratitude to each of you!!!! Know you are missed in your old post, but grateful for your continued push for MP. Scarlett |
||||||||||
|
Foundation Staff .
|
Hello to everyone! This is Belinda.. posting under Meg's name, to get a quick note off. It's a beautiful, sunny Saturday afternoon in Portugal and the conference sessions are ongoing. This conference is quite well attended. It's the largest I've ever attended. All the taxi drivers in town know about the conference, which makes it easier to find our way to the meeting hall. Last night several of us walked a ways to the funicular, which is a sort of cable car transport that takes you up or down the hill. We rode the funicular down the hill to the side of the Duro River. We saw open boats loaded with huge wooden kegs going down the river. That must have been Port Wine! After strolling along the river, we found the restaurant that our hotel had recommended, the Chez Lapin. We were quite surprised that no one at the restaurant was interested in seating us. The workers were busy tidying up. We finally asked if we could eat there, and were told that the restaurant didn't open until 7:30 pm. It was 7:00, which would be peak dinnertime in the USA. When we returned to the place at 7:35, it was already getting full. One of the house specials was rabbit, so several of us tried the stewed rabbit. Pork is another favorite in Port, we've found, but all the food has been tasty.We rode the funicular up the hill and walked back to our hotel. Everybody walks here. There is a plaza across the street from our hotel, and it seems to be full of people hurrying to one place or another during daylight hours. You will get to see our presentations from Thursday as soon as possible. The whole crew did very well. Gotta get back to the sessions.. Belinda |
||||||||||
|
Aunt Diana Moderator
|
Thank you for the update, Belinda. Sounds like a beautiful place. I think we are all waiting with great anticipation to hear how things have gone. Go team!! |
||||||||||
|
ggauthier Member in Phase 2/3 
|
Bonjour de France,bravo d'avoir été à ce grand congrès, j'espère que votre participation au congrès à été apprécié. Pourra t-on avoir des traductions de documents d'abstracts pour l'association de France, ceci nous intéressent de pouvoir expliquer aux malades les diverses recherches effectuées pour nos maladies. Encore merci. Georges |
||||||||||
|
Martin78 Member in Phase 1 
|
Hello Will there be posted any news/reports/videos from the team's presentations at the congress in Porto? Br Martin |
||||||||||
|
Rico Moderator
|
Here are 2 conference videos... http://vimeo.com/1787405 http://vimeo.com/1788640 Very keen on seeing the other presentations and curious as to how well material was received. |
||||||||||
|
terrylmcc Member in Phase 3 
|
Welcome Back Dr. Marshall, Meg, Amy. I hope you gained some ground at the autoimmune conference. Is the audio ok on the videos? I have a Mac computer and i don't know if it's a computer problem, or if the echo in the room is causing the audio to cut in and out? I've been anxious to watch the new videos from Porto. If it seems ok on other peoples computer. You can PM me or post here. I hope its just my computer. Thanks --Terry |
||||||||||
|
Dr Trevor Marshall Research Team
|
It has been a lot of work putting these videos together, as the venue was not ideal, and so I am running a little late. I should finish Cpt. Tom Perez and Dr Greg Blaney's presentations tomorrow.. |
||||||||||
|
Dr Trevor Marshall Research Team
|
Terry, Your Mac may not be keeping up with the HD data rate. There is a Button on the right edge of the video display saying "HD On." Toggle it to "HD Off" and let me know if that helps |
||||||||||
|
terrylmcc Member in Phase 3
|
Thank you so much, The HD was on, and i turned it off, and it is perfect! I know how hard you have worked to help all of us. My best to you. --Terry Last edited on Tue Sep 23rd, 2008 04:57 by terrylmcc |
||||||||||
|
Dr Trevor Marshall Research Team
|
I just uploaded Captain Tom Perez's presentation to http://vimeo.com/1789735 It may take an hour or so to be processed by Vimeo. Thanks to Joyce, Joyful, Janet, and everybody else who helped gather and process to the data which Tom presented at Porto. And especial thanks to Joyce for taking on such an active support role in Porto. ---------------- Cpt. Tom Perez has joined the Board of Directors of the Foundation, and is taking an active part in our planning of ongoing activities. Once I finish these videos I will be putting together an announcement letting everybody know how the Foundation will be moving forward over the next few years, capitalizing on its emerging acceptance by mainstream Medicine |
||||||||||
|
ggauthier Member in Phase 2/3
|
Thank you, merci pour les liens. |
||||||||||
|
Frans Member in Phase 2 
|
Dr Trevor Marshall wrote: I just uploaded Captain Tom Perez's presentation Trevor, is this the same cpt Perez we see at your presentation at the FDA? Frans PS No need to answer, just heard it in the presentation itself, cool !! Last edited on Tue Sep 23rd, 2008 16:36 by Frans |
||||||||||
|
Ron Member in Phase 2 
|
Dr Trevor Marshall wrote: Cpt. Tom Perez has joined the Board of Directors of the Foundation That is great news!!! Can't wait to get home and watch his presentation. Thank you team for all the hard work! Ron |
||||||||||
|
paulalbert Board Staff 
|
Note Amy's report on Bacteriality: http://bacteriality.com/2008/09/22/coa/ Paul |
||||||||||
|
joedegs Member
|
Sorry for my ignorance but who is Cpt. Tom Perez and what doex this mean for the future of the MP? Thanks in advance. Joe |
||||||||||
|
Dr Trevor Marshall Research Team
|
Have you watched the video of Tom's presentation? I introduce Tom at the start of the video. Tom has been one of our members for some time. He recently retired from the FDA, and accepted the Autoimmunity Research Foundation Board's invitation to join it as a Director. |
||||||||||
|
joedegs Member
|
No I am sorry I have not watched them yet. I plan to do so tonight. Thanks for your reply and congratulations on all your success at Porto! |
||||||||||
|
Martin78 Member in Phase 1
|
Hi Sorry for the "bagatelle" questions, but I am curious (and encouraged) by a new member of the board .Is "Captain" refering to a military degree/position? and; MPH = Master of Public Health ? Thank you BR Martin |
||||||||||
|
Dr Trevor Marshall Research Team
|
Martin, I have already given you that answer in my introduction to Tom's presentation video. Is it too much to ask you to just watch the video? We have all spent a lot of time getting the Porto conference together, and then making the videos available for everybody to study... (MPH=Master of Public Health) |
||||||||||
|
Martin78 Member in Phase 1
|
I have seen both videos twice and I cannot find any mentionings about military background, in my country "Captain" is usually (almost only I would say) used in the military or at seas.. thats why I was courios. I appriciate the work you all have done with sharing the presentations with us as much as anyone. Last edited on Tue Sep 23rd, 2008 21:19 by Martin78 |
||||||||||
|
Dr Trevor Marshall Research Team
|
I introduce Tom by saying: "Tom Perez is a Captain in the Commissioned Corps of the US Public Health Services. He recently retired from active duty after 25 years at the US FDA, the Center for Drug Evaluation and Research, the last decade of which was spent in the management of CDER Drug Advisory Committees." http://www.usphs.gov/ I think we need some volunteers to create text transcripts of these presentations. Is there anybody with some time to spare who can help us with this effort? |
||||||||||
|
Foundation Staff. . 
|
Captain Thomas Perez is a retired member of the commissioned corp of the United States Department of Public Health. We are delighted he considers a seat on the board of Autoimmunity Research, Inc. worthy of his time and expertise. Belinda |
||||||||||
|
Martin78 Member in Phase 1
|
Aha.. this clears things up. It is a corps, hence "Captain". Thank you! I can do the first 5 minutes and email you, I will stop at 5:00. Anyone up fpr the challenge to take the next 5? or to the end? Its about 11 minutes? BR Martin I have completed the first 5 minutes, maybee it took me half an hour.. I will complete the rest since noone responeded. First I need a break., Last edited on Tue Sep 23rd, 2008 22:32 by Martin78 |
||||||||||
|
paulalbert Board Staff
|
I have a transcript of Amy's. Don't worry about that. Paul |
||||||||||
|
Ron Member in Phase 2
|
Started transcribing Dr. Marshall's presentation. Let's see how far I can get. |
||||||||||
|
Ron Member in Phase 2
|
OK, it's past midnight here. The transcript is done up to 11:18 or about one third of the presentation. I have emailed the result to Dr. Marshall. If anyone is willing to do the rest while I am sleeping please go ahead. Ron |
||||||||||
|
Martin78 Member in Phase 1
|
Great work Ron, I'm at about 7mins, will finish tomorow. (its kind of slow-work..) Br Martin |
||||||||||
|
Dr Trevor Marshall Research Team
|
I got Ron's first 11:18 minutes, finishing at:"But it does allow it to happen because these microbiota have figured out how to overcome innate immunity. They have overcome the last line of defense"When we have a complete copy I will proof-read it |
||||||||||
|
Rico Moderator
|
Congratulations on the presentations! Surely, the scientists who were present there cannot ignore it. I wanted to ask if it would be possible to make available Tom's slide which contained the list of diagnoses and the success rate on the MP? I found it very difficult, if not impossible, to read it as the text was rather small on the video. Thanks! |
||||||||||
|
Dr Trevor Marshall Research Team
|
Rico, The chart with only the Autoimmunity diagnoses on it is at URL: http://MarshallProtocol.com/MP_results_chart_auto_only.jpg while the chart including CFS and Fibro is at URL: http://MarshallProtocol.com/MP_results_chart.jpg It was interesting that CFS was being posited as a potential Autoimmune Disease by at least one speaker during the conference. We had removed that data as not being germane to the conference theme. That was before we arrived in Porto |
||||||||||
|
jrfoutin Research Team 
|
I have Captain Perez's presentation transcript and will provide a PDF with slides shortly. If someone has finished Dr Marshalls text transcript, I can drop in the slide presentation for a fuller transcript.--Janet |
||||||||||
|
Joyful Board Staff
|
Excellent job by all! Any honest researcher can not ignore what was so clearly presented and illustrated by the members of the protocol cohort.For those of you who want more details, here are the survey results Capt Perez used in his presentation: AI only results:One small note: On the MP results slide, you may notice that there are no 'indeterminate' results for the FM and CFS bar chart at the bottom. This is because when that chart was created, the 'indeterminate' responses were added in with the 'not improved' categories. Funny I didn't catch that earlier. Last edited on Wed Sep 24th, 2008 10:25 by Joyful |
||||||||||
|
Dr Trevor Marshall Research Team
|
I just uploaded Dr Greg Blaney's presentation to http://vimeo.com/1790302 It should be processed and viewable in about an hour. Now its time for a week or two of rest, I think |
||||||||||
|
Martin78 Member in Phase 1
|
Jrfoutin: Do you already have the Perez transcript, I mean his actual words in writing? If so I will not nother to complete my writings... |
||||||||||
|
jcwat101 Research Professional 
|
I should add that the CFS data is only a subset of CFS patients on the MP-- those who also had FM or an AI disease. So, if you have CFS and started minocycline in 2007 or before and didn't get surveyed, it is because you didn't have FM or an AI disease in your signature line as well as CFS. Also, we had approximatley a 75% survey return rate for AI diseases. For people who's only diagnosis of those we were looking for was FM, the survey return rate was 50%. I speculate that the lower return rate may be due to FM patients perceiving there to be more alternative approaches due to so many approaches being marketed at them, while the AI patients see primarily the less appealing immunosuppressive approaches as their alternatives and thus are more likely to stick with the MP. I would add that I don't think one can equate not returning a survey to not doing well on the MP or quitting. I know of some cases who are doing well but did not fill out a survey. And I also know how hard it was to get in touch with some people. Some did not respond until the fourth or fifth attempt to contact them. Also, some change their email addresses so they may not even have received the survey. Joyce Waterhouse Last edited on Wed Sep 24th, 2008 16:26 by jcwat101 |
||||||||||
|
Ron Member in Phase 2
|
Just finished the transcript and sent it to Dr. Marshall. Ron |
||||||||||
|
Dody Member in Phase 3 
|
Excellent and exciting presentations all!! Thank you. --Dody |
||||||||||
|
Dr Trevor Marshall Research Team
|
I have finished editing the final video from Porto. This contains fragments of the Welcoming and Poster Sessions, as well as some of the 'extra-curricular activities'... http://vimeo.com/1811379 |
||||||||||
|
Aunt Diana Moderator
|
Trevor, When I go to the link it asks me to log in with a password. Is there a password? or a way around this? Thank you.......and thanks for all the work you all put into this. Every day my life gets better because of you and this discovery. |
||||||||||
|
Dr Trevor Marshall Research Team
|
My mistake. It is fixed now. http://vimeo.com/1811379 |
||||||||||
|
Rico Moderator
|
Trevor, will you summarize for us the type of reception you and the rest received re your discoveries? Was it an "ooh, ahh" type reception, or was it "hmm, this sounds interesting" reception? Was it as positive as you had hoped? |
||||||||||
|
Dr Trevor Marshall Research Team
|
Rico, you can tell from the questions following my talk that at least one member of the audience understood the implications of the metagenomic microbiota. That said, it will take a while for what we said to sink into the consciousness of most of the delegates. However, the Internet videos of our presentations should pretty dramatically expand the outreach of what we had to say The written transcripts will be even more effective, especially when members take them in to share with their Doctors |
||||||||||
|
Dr Trevor Marshall Research Team
|
Janet has finished type-setting the first of the Transcripts from Porto, the presentation of Cpt. Tom Perez. You can find it at http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_TomPerez.pdf This is one you need to print for Doc Thanks to Tom, Janet, and everybody who helped with this effort..Trevor.. ps: We still have some transcript texts due to come in, don't we?? |
||||||||||
|
Ron Member in Phase 2
|
Very well done! I will print a few and take it to the doctor's. Which transcript are we awaiting? Can I help? |
||||||||||
|
Dr Trevor Marshall Research Team
|
I think Dr Greg Blaney's presentation is the one outstanding Last edited on Sun Sep 28th, 2008 18:53 by Dr Trevor Marshall |
||||||||||
|
Martin78 Member in Phase 1
|
Hello, Janet had already prepared the transcript of Perez' presentation so I didnt complete my work. I was wondering if any "vimeo" experts could tell me if its possible to download the presentations from the vimeo site? This makes it easier for me to show doctors (using my lap top) the presentation during my concultations. They seem to have problems with letting me log on to the internet from their computer when I am at their office... Is this possible? BR Martin |
||||||||||
|
Ron Member in Phase 2
|
Martin, It works very well with the DownloadHelper plugin for Firefox. Ron |
||||||||||
|
benk Member in Phase 3
|
Glitch at http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_TomPerez.pdf I saw only one page; pressed "page down" key and nothing happened. I thought that 1 page was all there was to it. But when I printed it, I got also pages 2 to 4 |
||||||||||
|
Rico Moderator
|
I see only one page but if I use the arrows (even page-up and page-down), it does scroll. Make sure the Num Lock is off when using the numeric keypad to scroll... |
||||||||||
|
Dr Trevor Marshall Research Team
|
I have uploaded a new copy of Cpt Perez's presentation, which has a few minor typos fixed. |
||||||||||
|
DMiller Member in Phase 3
|
I'm curious as to why sarcoidosis wasn't included in Tom's chart. |
||||||||||
|
Dr Trevor Marshall Research Team
|
I presented our data on Sarcoidosis in 2004 at the 4th Intl Congress on Autoimmunity in Budapest, following publication of "Sarcoidosis Succumbs..." http://dx.doi.org/10.1016/j.autrev.2003.10.001 Sarcoidosis is 'a done deal', even if the rest of the world haven't caught up with that just yet. My own Porto presentation mentions that Sarcoidosis was reported at Budapest. |
||||||||||
|
Dr Trevor Marshall Research Team
|
Incidentally, a leading Sarcoidosis 'expert', Dr Bob Baughman, was speaking at the Porto conference. Meg and Belinda both spoke with him, and reported his mind is still stuck in the TNF-alpha immunosuppression-groove. http://www.abstractserver.com/autoimmunity2008/planner/sp.php?&go=iplannershowsession&sessID=28 The great physicist, Max Planck, surveying his own career in his Scientific Autobiography, sadly remarked that "a new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die, and a new generation grows up that is familiar with it." Sarcoidosis patients should not be waiting for Dr Baughman, or his colleagues, to understand what we have achieved. If they had the intellectual capacity to do so, then it would have already become apparent. |
||||||||||
|
Rico Moderator
|
Are the transcripts of the other presentations, including Dr Blaney's, available yet? |
||||||||||
|
Ron Member in Phase 2
|
The transcript of Dr. Marshall's presentation was sent to him last week. Paul has a transcript of Amy's and I began transcribing Dr. Blaney's presentation but have not gotten very far yet. Please go ahead with that one if you want to. |
||||||||||
|
Cocoa Member in Phase 2/3
|
Hi All, I've tried to watch some of the video presentations on Vimeo and even with the HD turned off, it keeps stopping and starting, making it virtually impossible to watch. one video takes a very long time to stream. This happens for YouTube videos also, but with them when I stream them once I am able to replay without interruptions to the streaming, but on Vimeo replaying after the the intial play still includes the stopping and starting. Can you recommend anything or do I have to abandon my Vimeo quest? Thank you, Cocoa . |
||||||||||
|
Ron Member in Phase 2
|
Cocoa: have you tried waiting for the download bar to become filled with grey? It sounds like you have a slow connection. You can pause playback and resume when the bar filled and the file download has completed. Probably best to try this with HD turned off. |
||||||||||
|
Ron Member in Phase 2
|
The transcript of Dr. Greg Blaney's presentation is finished, hopefully Janet can do something useful with it. While I was listening to this presentation, some questions came to mind. Dr. Blaney compares the delayed immune response of some patients on the MP with IRIS, or "so-called Immune Reconstitution Inflammatory Syndrome that is seen in AIDS-patients with high dose HAART". He illustrates this with a case study in which a patient's 1,25-D level shoots up to 200nmol/L after a couple of years on the MP and presumable still on Benicar. Why does this happen? And will the Olmesartan then still protect the organs from run-away immunopathology? Another question: Dr. Blaney states that he " used Olmesartan even though you can use some of the other ARB’s". Isn't it so that Olmesartan possesses unique molecular properties and that only this ARB is usable? |
||||||||||
|
Dr Trevor Marshall Research Team
|
will the Olmesartan then still protect the organs from run-away immunopathology? As far as I am aware, Dr Blaney has lost none of his patients to this point. So I guess that means their organs survived the IP Another question: Dr. Blaney states that he "used Olmesartan even though you can use some of the other ARB’s". Isn't it so that Olmesartan possesses unique molecular properties and that only this ARB is usable? Greg was speaking about the Angiotensin blockade leading to NuclearFactor-kappaB suppression and symptom palliation. One or two other ARBs can provide this benefit. However only Olmesartan provides the VDR agonism, and also has beneficial effects on several other key receptors. Greg meant for this to be a historical statement, not anything that he would contemplate doing nowadays. |
||||||||||
|
Rico Moderator
|
Ron, I had approx the same 1,25-D measurement at the beginning of this year (I think it was around 190-195nmol/L). I wondered at the time why my 1,25-D level would have been so high considering I had been on the MP for 1.5 years, taking Olmesartan all that time. In fact, it was higher then than when it was measured just before starting the MP. I was told by Dr B that it was probably transient immunopathology (herxheimer) which caused it to rise. I'm assuming he's seen this in several of his patients. But even at that high level (close to 80 pg/ml), I really didn't notice much IP (my symptoms are minor compared to many people here as I caught this Th1 illness before it took over my life - although I have to admit it was worse than I even realized, but that's another story). Now, I haven't heard his presentation since it first came out last week, so I've forgotten, but didn't he say the same about his case study with 200nmol/L? That the high level was transient IP (not sure what terminology he used)? Last edited on Sun Oct 5th, 2008 16:50 by Rico |
||||||||||
|
Ron Member in Phase 2
|
Dr. Blaney did not use the term 'transient' but I'm sure he was talking about 'Stage 5' of the MP. Good to hear that this transition did not affect you very much. I'm still a bit worried though and wonder how it will affect someone with very severe RA as Dr. Marshall also states: For those of us that were really ill to start with, there appear to be far too many of those "patches" of bugs popping up for the immune system to go after Only time will tell I guess. |
||||||||||
|
Dr Trevor Marshall Research Team
|
The transcript of Dr Blaney has now been finished, and is online at http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_GregBlaney.pdf Thanks to everybody who helped us with this. Trevor |
||||||||||
|
Sunset Health Professional
|
Thank you Dr. Marshall and your devoted team at the MP Study site. I have a much clearer picture of the secondary role of co-infections in TH1 illness after viewing these presentations given at the conference. I just wish there was a quick fix to autoimmune dysfunction. But given the potentially serious side effects of too much treatment too fast, and the benefit of clearing all possible infections as completely as possible, it just does not make sense to cut corners. I guess I will just need to have patience with the recovery process. Best regards to all, Sunset |
||||||||||
|
Martin78 Member in Phase 1
|
Hi I have tried to download the transcripts to my computer so that I can email them to a rheumatalogist of mine, but I am experiencing problems. I have searched the ARF site, but I cannot find a site where all the transcripts (Marshall, Blaney, Ames, Perez) are collected together. I have also tried the links in this thread, but with various luck. Are there any site where all the transcripts are collected together to download? When I open Perez' transcript it dosent open in the "full adobe picture" with a save-button, when i press the mouse button the pages turn to the next one, but i cannot find a way to save the actual pdf. This is however not a problem with Blaney's transcript. Can someone please direct me to a page where I can find links all the transcripts (at the same page) and where they can be opened in adobe where the "save file" function is enabled? Thank you very much! I really think these transcripts are very valuable as I find many doctors dont have speakers (!) on their office computers and cannot watch the presentations.. further its easier for them to bring the transcripts home to read aswell I cannot wait to email Perez' transcript to a stubborn rhemautaologist as RA patients are very well represented in the studyresults he is presenting BR Martin |
||||||||||
|
paulalbert Board Staff
|
With the exception of just a couple transcripts, we're pretty much done with the publications and presentation section of our searchable wiki. Have a look. And if you're just interested in transcripts of Congress on Autoimmunity, check out that tag. For the record, some of this text was extracted my emailing it to myself through gmail and viewing as HTML. Paul |
||||||||||
|
Ron Member in Phase 2
|
Martin, Try right-clicking the link to the pdf file. Should work. Ron |
||||||||||
|
Martin78 Member in Phase 1
|
Thanks for quick replys! Ron, I have tried to right click, I only get the possibility to save the "link" not the file... . Paul, thanks this looks great on the screen, but I cannot find any link to actually download the transcripts in pdf format on the pages your link is refering too.. sorry, maybee I am brainfogged, but what I am looking for is just a site with the same kind of links that is in this thread for all the transcripts... that opens them in adobe and lets me save them to my computer so I can email them... I am sure more people will find this helpfull as I believe many share my strategy of distributing these transcripts one by one.... (to not overwhelm our poor "specialists"....) BR Martin |
||||||||||
|
paulalbert Board Staff
|
Martin, Why do you need a PDF if you have a perfectly formatted web-based document - one to which you can easily email a URL? PDFs are antiquated technology from an unreliable time. Try printing it out. It looks pretty good. So long as you're connected to the Internet, you're good. But... if you really want a PDF, I will email you one. If you have a Mac (I assume you don't), it's just a couple clicks. Paul Last edited on Sat Oct 18th, 2008 01:39 by paulalbert |
||||||||||
|
Martin78 Member in Phase 1
|
Paul Because I think the persons I plan to email it too is still stucked with "antiquated technology from an unreliable time" in more than one respect Hence pdf. documents might just be the media they are comfortable with...Even if it does looks good after printing it out from the screen, I think the "target receivers" might be more comfortable with a document, rather then just an url to another "crazy web-site on the internet"... But... what ever, it was just a request... allthough my experience tells me that what one person might desire also applies to others. BTW: I have had a peak at your new project, wow! All the best, Martin you are right: I dont have a mac  Last edited on Sat Oct 18th, 2008 01:49 by Martin78 |
||||||||||
|
Dr Trevor Marshall Research Team
|
Martin, I use Firefox as my browser http://getfirefox.com When I right click over a link I get the choice to "save link as" which means it will copy the contents of that link to disk. "Copy link location" means it just copies the URL of that link to the clipboard. |
||||||||||
|
Martin78 Member in Phase 1
|
Dr, Marshall I also use Firefox (just started), now I have been able to download and save Blaneys transcript following your instructions. Thank you. Where can I download the other transcripts aswell? Anywhere where all 4 transcripts are available in the same post? or website? THANK YOU Br Martin I also managed to download Perez' transcript (allthough i got some strange message from adobe (which I tried to print screen into this post (with no luck i think)... I think its something about the programme trying to automaticly go into full screenb mode or something..  are Yours and Ames' also available in this thread orsomewhere else? Last edited on Sat Oct 18th, 2008 02:15 by Martin78 |
||||||||||
|
Dr Trevor Marshall Research Team
|
Amy's and my transcripts should be available in a week or two. |
||||||||||
|
paulalbert Board Staff
|
Amy's transcript: http://mpkb.mp-dev.com/doku.php?id=home:publications:proal_congress_on_autoimmunity_2008 Minus the final sentence. Paul Last edited on Sun Oct 19th, 2008 01:23 by paulalbert |
||||||||||
|
Martin78 Member in Phase 1
|
Thank you |
||||||||||
|
Robertrr Member in Phase 3 
|
Hmmm, I use firefox...and get a message that says "topic does not yet exist" at the web page. This is on Amy's presentation. Any magic words I need to use :-) ? Robert Last edited on Sat Oct 18th, 2008 21:56 by Robertrr |
||||||||||
|
Dr Trevor Marshall Research Team
|
Janet has finished putting together the transcription of my presentation at Porto. You can find it at: http://autoimmunityResearch.org/transcripts/ICA2008_Transcript_TrevorMarshall.pdf |
||||||||||
|
Ron Member in Phase 2
|
Dr Trevor Marshall wrote: Janet has finished putting together the transcription of my presentation at Porto.Nice work! |
||||||||||
|
Martin78 Member in Phase 1
|
Great! |
||||||||||
|
Dr Trevor Marshall Research Team
|
The presentation of Amy Proal is now online: http://AutoimmunityResearch.org/transcripts/ICA2008_Transcript_AmyProal.pdf |
||||||||||