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Meredith
member
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Posted: Mon Aug 25th, 2008 05:40 |
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Hi there
Im in NZ and feeling a bit isolated! I believe there are only 9 of us doing the MP here although I have only had contact with 1 other. Im struggling to get benicar into NZ and have yet to start the protocol because of this (the cost is huge). Im just feeling desperate at this point and so envious that the Australian authorities have acknowledged the drugs involved in the protocol.
For the time being (and having not yet received my first order even after 4 weeks) I am getting my beni via a Canadian web pharmacy. Does anyone over there in Australia have any advice? Is there any way I can get it from Australia?? Do I need to move there!?! (not really an option)
Any help or advice would be gratefully received.
Desperate in NZ
Meredith
Please feel free to private message if you would prefer.
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CFS, depression, arthritis, 25D16(Aug08), 25D18.8(Dec08) noirs, light exp. commute/work 12 hours/week, Ph1 Sept08, Ph 2 Oct08
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headsuppoka
member
| Joined: | Fri Mar 28th, 2008 |
| Location: | New Zealand |
| Posts: | 8 |
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Offline
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Posted: Tue Aug 26th, 2008 11:21 |
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i get votum from info@inter-apotheke.de
it gets to NZ usually in less than one week. email them your rx, cc details, address and order the votum or olmetec from them. be sure to order less than 100 tablets or else customs will seize them.
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CFS Ph1June08 NoIRs covered up low lux home light exp commute 25D26(April08)
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RobertTownsend
Health Professional
| Joined: | Wed Oct 19th, 2005 |
| Location: | |
| Posts: | 129 |
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Posted: Fri Aug 29th, 2008 09:19 |
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POSSIBLE AVAILABILITY OF OLMESARTAN THROUGH A NEW ZEALAND COMPOUNDING PHARMACY
I have been having discussion with a few compounding pharmacies in New Zealand with a view to having one ( and only one - becuase of the the small numbers of patients) stock bulk olmesartan for supply to the New Zealand MPers. I have located suitable bulk stocks in Australia and have confirmed that the NZ compounders are able to import such stocks from this Australian source.
However this becomes a chicken and egg problem - the NZ compounder will not import in bulk unless they are reasonably assured that at least 10 or more people would start to use the service. The single disadvantage is that the product would only be supplied in gel cap capsules - so they cannot be sucked or cut in half, as is the case with the tablets imported from Germany.
The other stumbling block is of course price - unless we get a commitment from NZers to use this supplier if it became available, we might not be able to get the price down to something comparable to the present German source ( though without the hassle of personal importation)
Could those who would be willing to support this approach let me know by personal message
Robert Townsend
Melbourne
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CFS 4yrs,crippled knees;Oct05 Phase 1;Feb 06 Phase 2 ; Mar06 1,25D-61pMol/L 25D-23nMol/K;Jul06 Ph3 start ;July 08 dose tapering some abx,daytime fatigue much lower, skin still very light sensitive ;knee mobility very constrained with limited walking
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Meredith
member
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Posted: Fri Aug 29th, 2008 12:34 |
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Fantastic news!
All NZ MPers- lets get behind this inititive of Roberts so we can get a reasonable supply and hopefully also lower the cost of importation. Just a regular reliable supply is a fanastic start!
Well done Robert!!
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CFS, depression, arthritis, 25D16(Aug08), 25D18.8(Dec08) noirs, light exp. commute/work 12 hours/week, Ph1 Sept08, Ph 2 Oct08
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Guss Wilkinson
Member
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Posted: Sun Aug 31st, 2008 23:38 |
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Hi Robert
I would certainly be prepared to commit to buying from NZ.
Cheers
Guss
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Dx Sarc May 2002 Stage 2. Estimate Sarc since 1987. Lungs, Joints, Kidneys & Liver.(Started MP: Oct 2003 - stopped permanently June 2012) The MP doesn't seem to have worked for me.
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staples
member
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Posted: Fri Sep 5th, 2008 02:59 |
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yep im with ya Robert, anything would be better than they way it is now in nz.
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Sarcoidosis/Lungs/VD25=18.7/1.25=19.9/ph1 July 11,08,glacier glasses (Alpina), shortness of breath, tiredness, dizziness,brain fog,depression.
VD25=10.8ng/ml
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baza
member
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Posted: Sun Sep 7th, 2008 01:04 |
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Hi Robert,
I would be interested in buying Benicar supplied locally.
thanks
Barry
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Baza: Pre MP, Dx LungSarc 04/2007, Stage 2. Ulcerative Colitis, L Bowel removed 95, Hyperparathyroidism 2 glands removed 2001, Hyperthyroidism 02, Fatigue, Dyspnea, migraines, severe GI probs. Probiotic. Avoid D, Light/Sun.
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Meredith
member
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Posted: Mon Sep 8th, 2008 00:58 |
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Some other helpful info for new NZ MPers. You can buy Noirs from the Foundation for the Blind via their website
https://www.rnzfb.org.nz/equipmentshop/products/glasses/
$65 including postage
Meredith
Admin add: from PROTECTING YOUR EYES
You will want the style that fits your head best to block the most light.
You will need at least two pair:
-amber 2% (these are the darkest)for outdoor use
-amber 10% (these are medium) for indoor use
It is a good idea to purchase a third pair when you can graduate to using less eye protection. These are the:
-amber 40% (these are the lightest)
These are the specifications to ask for.
dark amber for outdoors
100% UV Protection.
100% Blue Light Protection (the amber is the blue block)
100% Infrared Protection
2% visible light for outdoors
medium amber for indoors
100% UV Protection.
100% Blue Light Protection (the amber is the blue block)
100% Infrared Protection
10% visible light for indoors
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CFS, depression, arthritis, 25D16(Aug08), 25D18.8(Dec08) noirs, light exp. commute/work 12 hours/week, Ph1 Sept08, Ph 2 Oct08
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Meredith
member
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Posted: Sun Sep 14th, 2008 05:18 |
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Hi Robert
Have you any news on progress for this? I know of a few others who have not yet begun the MP who would if they could source it from NZ.
Hopefully those who have responded here and the others who will join will be enough for the company to begin importation.
Thanks again for your initiative.
Meredith
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CFS, depression, arthritis, 25D16(Aug08), 25D18.8(Dec08) noirs, light exp. commute/work 12 hours/week, Ph1 Sept08, Ph 2 Oct08
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Aussie Barb
member
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19539 |
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Posted: Sun Sep 14th, 2008 05:52 |
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For those who cannot access this thread: see curemy site
NEW ZEALAND Members please notify interest
Thanks, Barb ...
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♥Barb♥: Dx Inflammation - Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04-Aug2010| barbliv @ hotmail.com | ABC of MP| Barb's Story|
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SarahT
member
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Posted: Tue Oct 7th, 2008 23:51 |
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Hi Robert
Thanks - great to see someone taking an initiative. I think it would be preferable to be able to source overseas manufactured Olmesartan (preferably a cheaper generic) from a locally based wholesaler, rather than having it specially compunded here; but certainly that would be better than the current situation provided it is not cost prohibitive.
My GP made an initial approach to Michael Seymour, Pharmacy Director of Radius Pharmacy (a national chain) in May - but no traction so far. I see there are (at least) 22 New Zealanders on the Protocol. Perhaps with the added weight of the others we may succeed! I have his contact details - perhaps we can arrange some sort of joint request.
Please feel free to contact me.
kind regards
Sarah
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joint pain(early RA)/fatigue;family sarc/renal failure; Mino 25mg 20Sep08; 50mg 15Oct08
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Seth
Member*
| Joined: | Sun Jul 11th, 2010 |
| Location: | |
| Posts: | 342 |
| Status: |
Offline
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Posted: Fri Feb 24th, 2012 23:54 |
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This could be some potentially good news for people on the MP:
Pharmac changes rules on drug access
http://www.nzherald.co.nz/health-wellbeing/news/article.cfm?c_id=1501238&objectid=10787608
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Sarcoidosis |dx-Sep'09|Ph1-Mar'10|Ph2-Jul'10|Ph3-Jan'11|O-only-Aug'11|bone marrow biopsy|splenomegaly,lungs,joint/muscle/stomach pain,sweats,fatigue,headaches,mood swings,brain fog |25D<10ng/ml-Dec'10-June'11| DEATH TO THE BUGS!
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Guss Wilkinson
Member
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Posted: Sun Feb 26th, 2012 17:53 |
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My interpretation is that funding might be available, although it seems unlikely we would qualify - I hope it makes it easier to get the olmesartan into the country - my latest order has once again been stopped by customs. It will take a month or two before I get it.
Will look into this more closely.
Cheers
Guss
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Dx Sarc May 2002 Stage 2. Estimate Sarc since 1987. Lungs, Joints, Kidneys & Liver.(Started MP: Oct 2003 - stopped permanently June 2012) The MP doesn't seem to have worked for me.
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