The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > beeletcher alumni progress
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The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > beeletcher alumni progress |
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beeletcher Member in Phase 2
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Hi Moderators, I started my Minocycline yesterday, a 25mg capsule. I have been waiting for something to happen, nothing yet. I understand from other members that this takes a little while. I am feeling a little energetic! I will patiently wait. Benicar: q6h, 40mg, since Aug.25/08 Symptoms:bone pain in shoulders, elbows, wrists, worse at night, hot flashes,starting hoarseness-straining to talk,stiff neck,inner shakiness,stiff jaw,twitching thumb,sore rt rib cage. All these are tolerable and interesting. Light exposure: none. Darkened apartment, Noirs inside. Out after it gets dark to get groceries or walk. Noirs used in stores. My 25D was 30.8 ng/ml on Aug 11. Could this be slowing down my bacteria killing? I have no stress at this time and no commitments and I am taking it easy. I will check in in a few days. Thanks, Brenda |
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natalie17 Moderator 
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Hi Brenda, Thanks for letting us know you have started minocycline. See What should I know about Minocycline? Please review the information threads pinned to the top of this forum so you will be able to independently locate answers to frequently asked questions. Be sure to read other progress reports on your MP journey. They will help you learn how to report, how to manage immunopathology and sometimes you will discover the answer to a question you forgot to ask. During Phase One you will learn to identify your immune response symptoms and manage all aspects of the MP....avoiding natural light and vitamin D, getting adequate rest, pacing activities, eating well, using palliative meds appropriately and managing the immune response by adjusting Benicar and minocycline. It may take a week or two to feel the effects of each new minocycline dose level. It is best to err on the side of caution and stay at each dose level for 3-4 doses to make sure symptoms are tolerable. Don't ramp up until you are able to tolerate a symptom increase unless experience tells you that an increase would dampen intolerable symptoms. See When to increase antibiotics An increase in any symptom that correlates with MP therapy is probably due to immunopathology. These symptoms can be controlled by adjusting MP medications and using palliative meds as needed. My 25D was 30.8 ng/ml on Aug 11. Could this be slowing down my bacteria killing? It may be supressing your immune system but if you are taking all precautions to avoid D then sometimes it just takes time for it to decrease. Be sure to check and re-check your foods agaisnt the Foods to Avoid. The Importance of Reducing 25-D see others 25-D Coming Down at Last ... Take care, Natalie |
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beeletcher Member in Phase 2
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Thanks Natalie for your info. Benicar 40mgs q6h. Minocycline 25mgs every 48 hours. I have had 4 doses. Started Sept 1st. Palliative meds: Homeopathic Nux vomica for heartburn. Arnica montana cream for shoulder pain. Light exposure: 2 hours in total this week. Cloudy. Covered and Noirs. Symptoms: Light sensitivity-8 (even before I started MP) Light headed-3,BP 90/64 not a problem Hot flashes/chills-3 Bone pain(shoulder to hands)-3 to 8(one episode) Loose stools-2 Jaw/back/rib/teeth/neck aches-2, noticable but not intolerable Heartburn-one episode 8 Muscle weakness-3, a few times Hoarsness-3, a few times only Comments: All symptoms are declining. Worst was 44 hours after 2nd dose of Mino-bone pain in lt shoulder. I am feeling well with a fair amount of energy. I think I am ready to ramp up to 50mgs minocycline. I have made a graph to plot the IP to see if there is a pattern. Plan: Start 50mgs minocycline on Sept 9th. Will get 25D checked tomorrow according to my docs order for a monthly 25D. Any comments? Thanks, Brenda |
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beeletcher Member in Phase 2
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Hi Moderators, just checking in. Benicar: 40mg/q6h Mino:now at 50mgs,every 48,except today,trying 72hours. Palliative meds:none Light:approx 3hrs over the week,covered,Noirs,in and out Symptoms:Light sens:7 Lightheaded:3 Hot flashes/chills:3 Bone pain:4 to 7(worse lying down)(mostly lt arm) Neck/back ache:3 Muscle weakness:3,not always Hoarseness:3,a few times Heart palps: few on 2 evenings Ear ache:after walking in the cold,&sore lymphs nodes behind ears Rib/rt chest ache when walking:3 Comments: Concerned over last 25D.See signature.The only thing I can implicate is my goat's milk, no Vit D added(emailed company),but 10%Vit A.Will not drink any this month. All my other dairy sources have no D and <6%VitA. Also wondering why my bone pain happens when my arm is horizontal. Is it more of a tendon pain at the bone attachment? Humerus and radius is where the pain is. Plan: Continue at 50mgs Mino,watch for more symptoms without goat's milk. Will ramp up if I feel less IP this week. I want to try Benicar for my bone pain at night. |
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VEZ R.N. Health Professional
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Thanks for checking in B. It takes quite some time for the 25, Vit D levels to come down to therapeutic levels. A small amount of milk without added Vit D would not keep your levels elevated. Watch your sun exposure and read labels on your foods staying away from those foods known to be high in D. Be sure you are getting enough calcium: SEE: Don't I need to take a calcium supplement to prevent osteoporosis? You will have many symptoms during your recovery period. It is important that you become independent in medication management and gain experience by adjusting MP meds using your personal tool kit to manage immune system reactions. This skill will carry you smoothly through the protocol. You are doing a good job, keep up the nice work and take good care. Best,VEZ  |
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beeletcher Member in Phase 2
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Thanks Vez, I have a question: I waited 72 hour between my 50mgs Mino doses. I got more herxing then, the night before and also last night. Should a person stay on the 72 hours between or go back to every 48 hours? Thanks, Brenda |
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Aussie Barb Research Team 
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Brenda The aim or the key is for you to achieve and maintain tolerable symptoms (physically, mentally, and emotionally) by adjustment of your meds dosing and schedule as suited individually to you within the guidelines. Some find: extending to 3 day dosing achieves more tolerable symptoms. or some find 3 day dosing may increase immune response. Dont let symptoms go to intolerable, take your dose at a shorter time if necessary to hold your symptoms at tolerable. all best, Barb ... |
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beeletcher Member in Phase 2
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Thanks Barb for your quick reply. Brenda |
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beeletcher Member in Phase 2
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Hi Moderators, just checking in. Benicar: 40mgs/q6h. Mino: 50mgs,back to every 48hrs. Palliative meds:aspirin(one night),Ibuprofen(one night),both bone pain (8). 2hr Healing Touch(helped with shoulder pain). Light: About 3 hrs since last post,covered, Noirs. Walk in morning in dark. Symptoms: Basically the same as last post,ears ok. Except: Light phenomenon on retina,first thing in am, splotchy blackness for about 30 minutes,every day since Sep 14. Severe chills for 2 nights,with bone pain. Comments: Tried Mino 50mg every 72hrs:once, more IP, next time not. Tried Mino,25mgs q24hrs,more IP second day,with severe chills and bone pain,just before Benicar dose. Stopped the goat's milk. Plan: Will continue Mino at 50mgs q48hrs for a few more days. Can't seem to find a pattern to my IP,except worse at night. Thanks, Brenda |
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natalie17 Moderator
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Hi Brenda, I see you've been on 50mgs of mino for quite a while now (16 days or so). You might find your symptoms decrease with an increase of mino. Remember to keep a record of how you reacted to extended and frequent mino dosing. It will be valuable information for the future. Natalie  |
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beeletcher Member in Phase 2
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Hi Natalie, This is where I get mixed up. I am feeling pretty crummy tonight and had to take an extra Benicar. So on Friday I will take 75mg Mino and see if my symptoms decrease. I am keeping a very accurate diary. Thanks, Brenda |
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beeletcher Member in Phase 2
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Hi Moderators, just checking in: Benicar: 40mgs/q6h,every 4hrs when working. Mino:75mgs/q48h,started Sep 26. Just took 4th dose today. Palliative meds:Ibuprofen once(bone pain),aspirin once(bone pain). Light:Total 3hrs,in and out of car. Had sunflare 5hrs after hanging clothes out for 15mins at noon(covered).Benicar taken(40).Helped. Symptoms: Light sens:7 Retinal blackness:3,every morning for 30 minutes. Lightheaded:3(usual bp is 80/60).Not a problem. Fatigue:3,mostly evenings. Hot flashes:2 Chills:none since increasing Mino to 75mgs. Bone pain:4-7,worse laying down. Muscle weakness,palps,hoarseness:all occasional Rib/chest aches while walking:3 Low back pain:2,while standing too long. Stiff neck:2 SOB:2, on stairs only. Comments: I feel better since increasing Mino.I can see more of a pattern with Herx since stopping goat's milk. Perhaps my 25D is decreasing.Worked 3-5hrs days first time since MP. Extra Benicar worked wonders. It actually feels good to be out in the community again. Can the Benicar accumulate? Last night was the first time my shoulder didn't hurt while sleeping. Yeh! Plan: I'll go back to Benicar q6hrs tomorrow, if I find the Herx tolerable I would like to ramp to 100Mino in the next few days. My doc will be away mid Oct, so want to have Rx from her to start phase 2. Should I apply for Phase 2 now? Thanks to everyone for the great work you do! It will be so great to see my health and energy restored over the next few years! Brenda |
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natalie17 Moderator
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Hi Brenda, Glad you've lost the chills and slept without shoulder pain . Based on your report, it looks like you should be thinking about progressing to phase two. Please see How do I know if I'm ready for phase two? for information on how to request the questionnaire. Please send for it asap so there will be no delay in your progression to phase 2. When you see or call your doctor, be sure to ask about the tests you need to monitor your progress on the MP. Before you commence the next phase, please post in the Phases Two and Three forum so we can discuss the details of your next antibiotic. We look forward to welcoming you there when you have received a response to your completed questionnaire. Look forward to seeing you in the phase 2/3 forum. Thanks, Natalie |
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beeletcher Member in Phase 2
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Hi Natalie, Thanks again. I have got the questionnaire. I will be getting my standing order bloodwork today which includes a 25D, so I will fill out the questionnaire after I have got the result. Also I want to experiment with the Mino. I had a bad blood pressure day yesterday, so I am not taking any Mino today and see what the 72 hour interval does. I also want to try the lower dose, every 12 hour Mino to see if it acts like an anti-inflammatory for me. I am keeping graphs of my IP and want to be prepared going into Phase 2. Brenda |
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beeletcher Member in Phase 2
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Hi Moderators, just checking in, Benicar: 40mgs/q6h,every 4 hrs when working. Mino:75mg/q48hrs except tried 72hrs between, then 2 days 50mg/q12hrs. Info for toolkit. Palliative meds:none Light:3.5hrs,in and out.Covered/Noirs. Symptoms:same as previous post except: Sore eye sockets:5(one day, too much light at work). Lightheaded/low bp:7,every morning,lowest is 66/50,this is what I was calling retinal blackness. Eat salt/fluids, better after 1/2 hour. Shoulder pain:5,when lying down. Comments: Mino: 50mg/q12hrs is an anti-inflammatory for me. 25D has dropped again. I'm getting there! Plan: Start 100mg Mino tomorrow. Send in Phase 2 questionnaire today. See doctor again Oct 15. Thanks again to everyone! Brenda |
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Aussie Barb Research Team
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Thank you Brenda. You may now make your next post in the phase 2/3 forum so we can discuss your plan for progressing to phase 2 before you start. Thank you, Barb .... |
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beeletcher Member in Phase 2
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Hi Moderators and Happy New Year! Just checking in. Phase 2 meds: Benicar: 40mg/q6hrs. Palliative meds: none. Light exposure: The same. We are having shorter days. mostly 5min trips in and out of car. Symptoms: Fatigue: 5 Joint pain/bone pain/stiffness: Increased with increased Mino: 6. Have to keep moving/worse at night keeping still. Losing use of right hand doing simple things. Temp fluctuations: 5, no chills. Nausea: 2, under fluorescent lights. Noirs on. Lymph drainage: less: 2. Good things: Can tolerate more light indoors. After one week living with 3 cats on Christmas vacation, I had NO symptoms of my lifetime of cat allergies! Yeh! Comments: Can see a pattern develop with IP. More IP but tolerable. Vit D will be checked next week. I feel like it is down. Plan: Will increase Mino soon. After I see my Vit D level. Not much happening in January, so I can tolerate more IP. Thanks for everything you do. I see Th1 in everyone I know. I hope one day that my family will give MP a try. Brenda |
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beeletcher Member in Phase 2
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Alumni update: I am plodding along, handling the IP and keeping good records. Phase 2 meds Benicar: 40mg/q6hrs. Palliative meds: Homeopathic Nux vomica for heartburn. Healing touch once/wk. Light exposure: Same. In/out of car, short trips. Symptoms: Fatigue: 5. Need more sleep now. Joint/bone pain: 5 Temp fluc: Rare Lymph drainage(under lt collar bone): 3, daily. That's a good thing. Nausea: 4, increasing. Fullness in stomach after eating/burping. Occ abn pain. Uterine heaviness: 3, like I am going to get a period, haven't had one for 1 year. Short of breath: 3, noticed this as I bought a flute. Numbness in hands overnight: Occasional. Good things: My blood sugars are easier to control with some lows, even though I am not active. Comments: My last 25D(Jan 6) was up again to 32!! Christmas overeating! ESR is now 36, normal is 0-20. My worst days are Day 4, 5, and 6. Will have bloodwork done on Feb 2. I have searched on the site about the uterine pain. I would think I have Sarcoid (Th1) there and in my stomach. Thanks again for all you do! Brenda |
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BARNEY Moderator 
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Brenda, I really believe that the sarc is everywhere in our bodies...I have had it in so many places it is unbelievable. Are you resting as much as you can and a little more? Are you drinking plenty of water? I discovered that I need to stay even more hydrated when I am having to be out in the sun (driving, etc). You can try this and see if it works for you like it did for me. Glad your sugars are better and mine was a little better last night....I am hanging in there for MP to cure it tooooooooooo. HANG IN THERE, WE WILL MAKE IT!!!!BARNEY |
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beeletcher Member in Phase 2
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Hi Barney, It has been a long time. I ended up in hospital for 10 days because of my extreme dehydration and starvation. Then I got a deep vein thrombosis in my leg. I am now on Warfarin and will be for 3 months. My Mom came to look after me and she has saved my life. I am getting my energy back and my bowels are back to normal. I will be posting what happened in the next couple of days. It was very scary. Runaway IP. I never want to go through that again. I am on no MP meds, not even Benicar as I was vomiting that up also. So thanks for your kind words. I will be proceeding with caution as far as the MP is concerned. I will not start anything until after I have time to really study the website and get my leg healed up. Brenda |
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Aunt Diana Moderator 
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Brenda, I'm sorry you have had such an intense experience. Phase 2 is not to be taken lightly as you have just found out. I have looked back over your recent posts to get an idea of what could have gone wrong and I don't see any dosages of meds taken. It just says Phase 2 meds. Do you know what dosages you were at and how long you stayed on them so we can perhaps see what went wrong and help assure it doesn't happen again. Phase 2 can be very tricky. The Zith is extremely powerful..many people cannot handle it and need to start at very tiny doses. I had to switch to Modified Phase 2 and avoid Zith altogether until I had worked my bacterial load down. The moderators were very helpful at walking me through what I needed to do to avoid powerful IP as much as possible. It is very important that you post every week and keep us informed so you don't get caught out and no one knows what you've been taking. It's a good idea to print out the Phase 2 guidelines and keep them in a folder as a quick reference. It's also good to have the printout of what to do if you need to go to the hospital . When I did need to go I just took that with me and it helped the hospital staff understand what I could and could not be given. I'm glad your mother was able to help you....sounds like you had a terrible time. |
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BARNEY Moderator
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Bea, Please read the PM I sent you HANG IN THERE, WE WILL MAKE IT!!!!BARNEY |
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beeletcher Member in Phase 2
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Hi Aunt Diana, Thanks for your reply. I plan on posting a long one in the next couple of days. I hadn't posted more often because I just didn't have the energy and I live alone. I never thought that the nausea I was feeling could have been IP as I never had it before. Also some people around me had vomiting and diarrhea, so I thought that I had got a bug. So I never stopped the Zith early enough or taken more Benicar. I was blown away by the power of the Zith. It really scared me. As of now I am not even taking the Benicar because I kept vomiting it as I got better. So I will be doing lots of studying on the MP site. I will be going very slowly again but not right now. I have had a cold (IP) and I am aching a bit in my joints, so I am hoping that I am doing a little killing on my own. Is this possible? I will be following the modified phase 2 like you did. I am getting more energy every day and drove the car today for the first time because my clot is much better. Watch for my post and if there is anything that I should be doing, let me know. I need some helpful experience. Brenda |
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Aunt Diana Moderator
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Hi Brenda, Glad your on the mend. It is very possible that your own immune system is hard at work, even without the abx, and is continuing to kill bugs. That is what it feels like for me. Looking forward to hearing your full report in the phase 2 forum....it is good for others to read it as well. This is how we help each other by sharing our experiences. |
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beeletcher Member in Phase 2
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Dear Aunt Diana, I just posted about my runaway IP experience. I had posted twice when I had got the diarrhea but there weren't anymore monderators and no one answered me. Thanks for your help. I will start the Benicar tomorrow. Brenda |
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BARNEY Moderator
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Bee, I have sent you a PM which you never answered.....Please read it and contact me about it! Aussie Barb alerted us that you needed help re posting in the phase 2 forum, (Aunt Diana & I). We are watching you and how you are progressing....but you need to at least stay on the Benicar as a safeguard. Please let me know if you read my PM. HANG IN THERE, WE WILL MAKE IT!!!! |
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beeletcher Member in Phase 2
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Hi Barney, Was the PM that you sent about dehydration? I am very good about drinking water. When I was sick I forced myself and also drank something called Gastrolyte, for electrolyte balance. I hope this is the PM you are referring to. I have put some posts in phase 2/3 and also in alumni by mistake so I am really mixed up! I hope I haven't lost yours! Brenda |
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BARNEY Moderator
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Bee, The pm was about dehydration. Two MPers had suffered from it and ended up in the hospital. So we all need to remember to drink. I, too, get busy and just don't remember to drink. I also get tired of plain water, so I will put a half slice of orange, lemon or lime in it, just enough flavor it differently, but not all the time. Putting ice in my water helps also. I also drink ice tea, some spiced teas in the winter (hot). Please be careful of certain drinks that may contain Vit D. They sell a lot of enhanced with minerals/vitamin drinks nowadays. What really scared the begeegers (if there is such a word) out of me, is the fact that you stopped your Benicar. It is organ protective (I only have 1 kidney) and I would have increased it to stop the herx rather than stopping it. You are not protected if you do not take it. I posted in phase 2/3, on Sheila's post to her, how I work the Benicar. Please go to that site and read my post on March 20. I am in stage 5 of MP no abx, Benicar only. I still have plenty of herx as the bugs are dying off but with extra Benicar and Tylenol, I rarely have to take a pain pill anymore. We are watching and keeping an eye on you. Also you might want to go to Phase 2/3 and read Elephant in the Room which will help you understand a few more things. It is also very important for you to educate yourself to save your life from these terrible diseases we suffer from....so please go to FAQ and Required Reading. Print out the Phase 1 & 2 keeping a note book so that you can read and reread. I will send you a few links for other very important things to read. Hope this helps you to understand and feel more assured. HANG IN THERE, WE WILL MAKE IT!!!!BARNEY Last edited on Sun Mar 22nd, 2009 13:33 by BARNEY |
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beeletcher Member in Phase 2
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Hi Barney, You are a doll. Please read my post just now. I have started vomiting from the Benicar of the filler. B |
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beeletcher Member in Phase 2
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Hi Barney, I have heard from the Pharmacy. They think it is the filler, Avicel, that is causing my vomiting. I am to send the pills back and they will replace them, without that filler. Wish me luck! Brenda |
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BARNEY Moderator
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I will not only wish you luck but pray this is the answer. HANG IN THERE, WE WILL MAKE IT!!!!BARNEY |
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beeletcher Member in Phase 2
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Thanks! Brenda |
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