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IngeD Member*

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Posted: Sun Jan 8th, 2012 06:53 |
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Interesting reading all the comments in this thread again. I had a look over my spreadsheet of activities and notice definately a correlation between excessive exercise and IP flareups. I can manage alternate days of hydrotherapy with gentle walking on the day inbetween and making sure I rest on the weekend. But if that pattern changes and I exercise more heavily 3 days in a row or don't rest a couple of days at the end of the week the IP immediately gets intolerable.
So mainly my exercise plan is: tuesday and thursday 60 minutes of hydrotheraphy (walking and exercising in the water) and on the other week days no more than 20 minutes of walking. If I stick to that I am fine.
Maybe it is the body getting rid of the toxins. Maybe the immune system can only get enough engergy if we don't exert ourselves. Maybe mild exercise stimulates the immune system. Maybe all of the above.
I was wondering again if it was all a coincidence but the pattern is too obvious and the comments in this thread convinced me so I will proceed very slowly. 
____________________ MP start Jan'07 | Rickettsiosis, gastric ulcers, peripheral neuropathy, chronic bronchitis, adhesions/IBS/Crohn's, pre-diabetes, hypertension | initial 125D=51, 25D=26 | last 25D= 8.4 ng/mL Mar '11 |9.2 ng/ml Feb 12
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keithw Board Staff

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Posted: Sun Jan 8th, 2012 09:00 |
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I have found the same as you, however things are now starting to change for me and I am finding my recovery time is shorter.
While I don't actually exercise I am starting to partake a lot more of life and while I still need to rest frequently my up time is getting longer and my IP is much reduced so I would say that if you let your body be the judge instead of your situation it may be possible to ease through this stage.

____________________ WeanPred May09 no breaks SLE, CNS vasculitis, avascular necrosis, arthritis both shoulders Ph1Aug09 Ph2Nov09 Ph3Feb10 25D35(May09)18(Mar10)16.7(Jul10)13.6(Jan11)13.2 (Oct 11)14.8(Aug 12) Entering stage 5.
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k Member*
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
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Posted: Sun Jan 8th, 2012 09:07 |
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| That's how it's been for me too Keith. Up time gets longer, what I'm able to do increases, after-effects decrease in severity, recovery times get shorter...
____________________ CFS menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1.Oct07 Ph2.Feb08 Ph3.Sept08 BeniOnly.Aug09 MinoRestart.Dec09 |25D=50(Jul07) 23(Oct07) 13.2(Jan08) 12.8(Oct08) 10(Sept09) 12.8(Jun10) 12.4(May11) 8.3(Apr12)
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pgeek Board Staff

| Joined: | Fri Dec 18th, 2009 |
| Location: | Israel |
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Posted: Sat Jan 14th, 2012 19:23 |
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k wrote:
R.e. cardio vs core exercises - my experience is that any type of physical exercise or movement can stir up herx in me.
Same here - the herx is mainly fatigue for me.
This is a surprisingly effective way to work core strength (and hamstring flexibility, depending on how you do it):
http://www.youtube.com/watch?v=xgy8ChWm4YU
& it only takes a few minutes, so it doesn't take too much stamina.
(That said I've exhausted myself & had to have a nap doing similar things a few times )Last edited on Sat Jan 14th, 2012 19:29 by pgeek
____________________ Chronic Prostatitis, IBD(?)|Covered (+ ZnO in sun) |Sunglasses |25D: <4Jan12 (4Mar11/10Dec10/14Jan10| !!!COUCH MUSHROOM DESPERADO!!!
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Daki Member
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Posted: Fri Jul 27th, 2012 13:45 |
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Hi,
Interesting debate.
I tried some exercieses by link above.
Tai Chi Stretching I did do quite easy besides squot /my Achilles tendons are still stiff/. Past one hour I felt in my left arm pricking till burning. In the night appeared Herxes in both legs - numbness, so that I was woken.
Otherwise The Five Tibetians or any excercises from Pilates I tolerate well. And of course I like swimming and bicycling.
But if I overdo it, I taste fatique and exhaustion soon and usually increased IPs do not let on them long wait.
The exercises do well for me when I feel myself refreshing, simply to said.

____________________ lyme boreliosis since 2002 + allergy,1-abx since sep.09,2-abx since dec.09,3-abx since apr.11,2-abx since jul.12,0-abx since mar.13, 25D=26 XI.06-09, 25D=20 II.12-10, 25D=11 VI.28-10, 25D=8 I.14-11, 25D=8.76 X.19-11, 25D=3 IV.24-13.
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Chloe Ringer Member
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Posted: Sat Jul 28th, 2012 17:30 |
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I believe the effects of exercise must be quite variable, depending on the particular individual, life-time physical fitness, stage of recovery, type of disease symptoms, etc.
Personally, I would be terribly depressed if I could not exercise, having been a life-long devotee of dance and walking. Before I understood the source of all my joint and muscle pain (Lyme), I took up yoga. There were times when I could only lie on the floor and wait for the pain to subside, but I persevered. Today, years later, there are still moments of joint pain, fatigue and dizziness. However, overall, I feel so much stronger and healthier now thanks to the yoga. Some of my muscle restriction is actually resolving, and my range of motion has greatly improved. One should select the type and amount of exercise very carefully, of course, but, in my opinion, exercise can only make life better.
____________________ MP Dec'09(no breaks)/LymeDisease'78(#1)'05(#2),high liver enzymes, liver/stomach inflammation, high mitochondrial antibodies, autoimmune hepatitis, joint/muscle pain, dizziness, IBS, brain fog,neuropathy, neck/sinus pain, fatigue,osteoporosis/last 25D=7
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IngeD Member*

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Posted: Sat Jul 28th, 2012 19:56 |
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You are right Chloe it's up to the individual. In my case exercise does stimulate the immune system and increases IP and I mean not simply joint and muscle pain but pain all over. On some days it feels the same as taking antibiotics which also increase IP for me. On other days I can almost walk a marathon and feel no ill effects, hence I know it's not a matter of muscle weakness. However I agree with you in that overall increased fitness makes you stronger and better able to cope. So it's a very personal thing and people need to approach with caution.
My first foray into exercise ended up with a runaway immune system that took 4 months to get back under control so I would recommend people introduce exercise extremely slowly as advised on this site! IngeD
____________________ MP start Jan'07 | Rickettsiosis, gastric ulcers, peripheral neuropathy, chronic bronchitis, adhesions/IBS/Crohn's, pre-diabetes, hypertension | initial 125D=51, 25D=26 | last 25D= 8.4 ng/mL Mar '11 |9.2 ng/ml Feb 12
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