The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Barney in phase 3
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The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Barney in phase 3 |
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BARNEY Moderator 
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DAY 34 BP 119/48 P 77 from > full benicar .... THIS IS THE FIRST DAY ON MINOCIN, TOOK 25 MG AT 12.01 AM. HAD A GOOD NIGHT'S SLEEP. NO PROBLEMS SO FAR. NO SWEATING, NOT COLD, JUST FEEL REAL NORMAL. NEED TO CLEAN HOUSE, AT LEAST DISHES, BUT HAVE NOT HAD ANYONE TO GIVE ME A SWIFT KICK TO GET THEM DONE. HATE DISHES. OH WELL IT IS A CHORE WE CANNOT GET OUT OF. HOPE ALL IS WELL WITH EVERYONE, HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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dga5000 Member in Phase 2/3 
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Hi Barney Glad to hear you've been able to start the mino. Been on it a few days now and from what I can tell it normally hits you the next day. Keep up the good work! Dan |
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BARNEY Moderator
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Dan, Thanks for the encouragment. Hang in there, we will make it!! It has been almost 24 hours, so far so good. Barney |
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Big John Member in Phase 2/3 
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Hi Bonita! Relax with the dish thing... Trust me they will be there when you feel like doing them. May be a bit fuzzy,  but you will recognize them! Tired is one of the most familiar experiences while on the MP. Enjoy the future months with rest and recovery! Can;t fight it! So lets enjoy it!  |
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BARNEY Moderator
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BIG JOHN, YOU WOULD THINK I COULD GET THE DISHES DONE, WHEN ALL I HAVE TO DO IS PUT THEM IN THE DISHWASHER, BUT I JUST KEEP LOOKING AT THEM AND LIKE YOU SAY THEY WILL BE THERE UNTIL I'M READY. WELL, I BROKE DOWN AND THEY ARE DONE NOW. NEED TO LOTS OF OTHER HOUSEWORK THAT I AM GOING TO IGNORE. I AM DOING JUST WHAT YOU SAID, RESTING AND ENJOYING MY QUIET TIME. FAMILY AND FRIENDS ARE CHECKING IN ON ME (BY PHONE) ALL THE TIME, SO I FEEL BLESSED. THANK YOU FOR THE ENCOURAGEMENT. I AM TOTALLY AMAZED AT HOW WELL I AM DOING, BUT I AM VERY DILLIGENT ABOUT STAYING OUT OF THE SUN AND OFF VIT D. TAKE CARE, HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Reenie inactive member
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Did you know... a cat sleeps on average 16hrs/day, then, as they age, their sleep levels increase? Maybe we're all just cat people...?  |
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Big John Member in Phase 2/3
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Maybe so, I do have a urge to scratch once in a while! Last edited on Fri Feb 4th, 2005 04:55 by Big John |
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BARNEY Moderator
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Reenie, I wish I was a kitty-kat. I could handle 16 hours straight. Most of my sleep is broken most of the time, either by the phone, my dog wanting in or out, or bathroom calls. But...I am thankful for the good sleep I do get. Fell asleep in the recliner twice today. I will be going to bed shortly (as soon as I take my nighttime pill). I know if we Hang in there, we will make it!!!! Barney |
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BARNEY Moderator
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DAY 35 BP 138/75 P 87 Tonite will be my 2nd minocin (that's 48 hrs after the first). No herxing that I can think of. Been sleepy, falling asleep in the recliner while watching tv. Not doing much of anything but resting. Uneventful day. Still on Benicar q3hrs, etc. Doing good. Hang in there, we will make it!!!!! Barney |
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BARNEY Moderator
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DAY 36 BP 95/68 P 86 I guess I bragged to soon. Lymph nodes in neck feel swollen. Pain in neck and shoulders has hurt pretty bad all day and the pain pills are hardly working. I will take a quercetin (pure, 400mg) when I go to bed. Very sleepy and it's only 8:30pm. I am doing well otherwise, sugar readings are now down to a reasonable amount. Am really getting intense on diet, no D, only low carb. Hang in there, we will make it!!!!!!!!! Barney |
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Big John Member in Phase 2/3
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Allright Bonita! Sounds like the sugar thing is under control. You are doing well. Getting some herx, getting some rest, keep smiling! |
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Reenie inactive member
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BARNEY, All sounds GOOD!  |
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BARNEY Moderator
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DAY 37 BP 120/91 p 86 I am not sure, but I think this should be my last post on this site, since I am on Quercetin plus mino/benicar. Please advise. What a bad bad bad bad bad bad bad night. I can hardly swallow, not because it hurts my throat, but it hurts the right side of my mouth, my ear (my ear is killing me like an ear ache or like somebody drove about a 6 inch diamater spike in it, my tooth (which had a complete root canal and should not be able to hurt) feels just like it has a tooth ache. This will make me think twice before I put that next minocin in my mouth. HOWEVER, I will take it because I want to see what it feels like to be (normal) well. It is weird tho, I can touch either spot with my finger and it does not hurt. Very weird!!!! I am going to put my very warm 'hot sox' on the outside of my right jaw (that hurts too) and see if I can ease this pain along with a pain pill. ttyl Barney |
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BARNEY Moderator
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Still day 37, I whipped the herx. 1 pain pill, 1 asprin, 1 quercetin, and warmed my rice sock up and held it on the right side of my head. Almost feeling good again. Still just a smigen of herxing left. Did I do the right things? Is heat okay? Barney |
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dga5000 Member in Phase 2/3
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Hey Barney Glad you managed to ease your pain. Sounds horrible and you did well to get through it. Not tried quercetin yet myself but glad you found it helped. Keep going! Dan |
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Aussie Barb Research Team 
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Hi Barney Dr Marshall recommends tylenol rather than aspirin, sounds like you are herxing well and managing well.. all best, Barb ... |
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BARNEY Moderator
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Barb, I had been thinking about Tylenol. I used to use it, 20 years ago. The fiorinal that I take has asprin in it, I add another asprin to take the pain away. This the only pain meds that I have not had any problems with. I think I will buy a small bottle and try it in place of the Fiorinal. Do you know why Dr M prefers it? I am herxing a little still but it is bearable. I am due to take 25 mg again tonite. I need to go to the next town (60 miles) and do some serious shopping and am thinking I may wait till tomorrow nite to take the Mino. Is there any problem with that or would I be messing up my healing pattern? Thank you. Barney |
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BARNEY Moderator
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Dan & Big John, Thanks for your comments and input. All thoughts are welcome. Hope you guys are doing well. Take care of yourselves. Hang in there, we will make it!!!Barney |
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Reenie inactive member
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BARNEY, Aspirin is a blood thinner. If you can avoid taking aspirin and meds which contain it, all the better while on the MP. If you must take products containing aspirin, please be careful. Blood thinners are cautioned while on the MP, but not forbidden. There's no reason why you can't alter your mino dosing, especially if you're still feeling herx. By all means, wait and get yourself some supplies first. If you need to skip a day or alter your timing to fit a Dr's appt or some other errand, do so. Take care PS would you kindly update your sig line to include your mino start date and dose? TIA |
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BARNEY Moderator
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Reenie, I did as you requested and added dates to meds. Also please note that I switched to Fiorocet (which contains tylenol instead of asprin). Will see how it works. It usually does not work for me without an added asprin but we will see how it goes. Herxing is just hurting enough to be irritating so I took it and a quercetin and will apply the warm sock so it will finish going away. I hope I have put everything on correctly. Very sleepy and a little brain fog. Will follow your advice and get supplies in before any more mino. Will take it tomorrow after I get back from shopping. Of course, I will cover up good to go and hopefully be there after dark. Got dishes in dishwasher and did a couple loads of clothes that were necessary. Other than that, it can all wait since no one else lives here to complain. Thanks for the help. I am going to go take a nap but will check the site before I turn in for the night. If you need anything else, please let me know. THANKS!!Barney |
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BARNEY Moderator
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Reenie, PS The swelling in my lymph nodes in my neck had gotten almost the size of a pinpong ball, but the swelling has subsided quite a bit, almost down to what I consider normal. Barney (sorry, I forgot to mention this). |
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Reenie inactive member
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All sounds good. Are you drinking alot of water? My chiropractor mentioned that to me when I told her my neck was swollen. She said sounded like my lymph nodes were working hard and to drink alot of water. It was odd that I was also thirstier than usual around that time. Coincidence? Maybe... In My Opinion, I think my thyroid was acting up; maybe herxing going on in there. PS Thanks for the updated sig line. When you post again, pls be sure to remind me of your mino dosing/herxing, so we can "keep track" of how it's going. |
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BARNEY Moderator
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DAY 38 B/P 124/71 P94 Reenie, I drink more water than anyone I know. At least a gallon or more a day. It seems like I never quit drinking, plus everything else that I drink, tea etc. They just checked my thyroid less than a year ago. It was fine, but I go back to the doc in March, I can ask her to check it again. I have swollen lymph nodes in a lot in the past but not as big as this time. I figured it was big time herxing. I am sure there are lots of bugs in the nodes. I also have a rash in my mouth on the right side. I had a good day except for a little swelling left in the right side of face and mouth is still a little sore, did feel a little tiny pain in ear for a while otherwise just the usual fatigue. Things got all messed up and I did not get to go get supplies today and I had skipped my 25mg Mino dose last night for that reason. I am going tomorrow (Tuesday), I will take 25mg Mino when I get home. If you need any more info, please let me know. Barney |
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BARNEY Moderator
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DAY 39 B/P 108/74 P 78 I HAVE SOME QUESTIONS. I WENT TO GET MY COMMODITIES THIS MORNING. IT WAS INSIDE A BUILDING BUT HAD TO DRIVE THERE (COVERED/NOIRS) AND WALK A QUARTER BLOCK TO THE BUILDING (AND BACK), SAT INSIDE FOR 2 HOURS WAITING (FORGOT THE BUILDING HAD WINDOWS NEAR THE CEILING AND THE FRONT DOOR WAS OPEN. MY EYES REALLY HURT. I UPPED MY 20 MG BENICAR TO EVERY 2 HRS. IS THIS CORRECT? WON'T BE GOING TO COMMODITIES ANY MORE, IT WAS NOT WORTH THE PRICE I PAY HEALTHWISE. WHEN I GOT UP THIS MORNING, I FELT SORT OF ITCHY ALL OVER, MOUTH IS STILL A TINY DAB SORE, NOTHING LIKE IT WAS. NODES STILL A LITTLE TOUCHY BUT NOT ANY WORSE THAN USUAL, EAR IS NOT HURTING. LEFT EYE IS ITCHY TO SOME DEGREE. IS THIS A HERXING AFFECT? AM GOING OUT TONITE TO GET THE SUPPLIES I WAS UNABLE TO GET LAST NIGHT. WITH ALL THIS, SHOULD I GO AHEAD AND TAKE MY 25MG MINO I HAVE BEEN PUTTING OFF (WHEN I GO TO BED TONIGHT)? HOW MUCH QUERCETIN SHOULD I TAKE TODAY? PLEASE ADVISE IF I AM CORRECT IN ALL OF THESE THINGS? I ALSO NOTICED THAT AFTER SITTING IN THAT BUILDING, I RESEMBLED A DRUNK WALKING. I WILL TELL YOU ONE THING, I THINK I WILL JUST LEARN TO STAY IN EXCEPT FOR DOCTOR APTS OR PICKING UP MEDS THAT I CANNOT GET SOMEONE TO PICK UP FOR ME. THANKS, BARNEY |
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Reenie inactive member
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Barney, From the amount of light exposure you must have gotten, I would say you've increased your 1,25-D quite a lot. You won't be able to tell the full effect until about 6hrs after the exposure and you'll feel it for at least the next two days.  Yes, taking your Benicar 20mg, q2h, would be a good idea, until you feel the negative effects of the light wear off. (check w/Dr of course) Although the light exposure feels like herx, it's not. Do NOT take Quercetin, as it will only make you feel worse, until you get your Benicar blockade stabilized again, after the effects from the light exposure wear off. It would also be a good idea to skip mino for the next couple of days. Take a look at, Why is my 'herx' more intense after I go outdoors or get more light? and THE EFFECT OF SUNLIGHT/DAYLIGHT AND BRIGHT LIGHTS |
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BARNEY Moderator
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Reenie, Thanks for the info, I will do as you say and see what happens from the light exposure. I will check with my doc also, re: the 20 mg. benicar q2hrs. I will not do a stupid trick like that again. It is not worth it. Thanks again. Barney |
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BARNEY Moderator
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DAY 40 BP 123/74 P80 Yesterday after the light exposure, I took a pain pill and rested for several hours and took a short nap. By 4pm, I was feeling a lot better, eyes not hurting, no pain anywhere else. Went back to q3hr Benicar schedule. Had a good time with my friend shopping and had a great meal out. It was devine (Texas Roadhouse). Got home around 11pm. It was 120 mile round trip after dark. Had a great night's sleep, got up at 6am, have felt great all day so far. I feel like I am teetering on a fence just waiting for the double whamy from the light exposure. If I am still feeling fine at midnight tonight, I think I will try the mino again. I am so thankful for what MP has done so far. I have not had the severe headaches and neckaches I had before I started MP. They were harindous and I did not think they would ever stop. I have not even had to go back to the Chriopractor all of January and none of February so far. I also have had such a drastic reduction in smell sensetivites, it is unreal. I can handle almost any scent I come in contact with and some of them actually smell 'normal' and good. WHAT A BLESSING. IF I GOT NOTHING ELSE FROM THE MP, IT WOULD BE WELL WORTH ANYTHING I HAVE GONE THRU. THANKS TO ALL OF YOU ON THE RESEARCH TEAM AND ADMIN AND STAFF. COULD NOT DO IT WITHOUT ANY OF YOU. THANK YOU FOR YOUR TIME AND KNOWLEDGE. BARNEY |
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BARNEY Moderator
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DAY 41 BP 139/76 P 84 Well, I chickened out at midnight, even tho I felt okay, I did not take the mino. But, I did get up at 6 am and took 25 mg mino. It is about 5:40pm, and all is well so far, just waiting for the ball to drop, to see where the bugs are going to put up a fight next. Sort of an uneventful day. Raining here, no sunshine. We usually have 354 days of sunshine here, this has been a very unusual winter. We were in a drought for several years and now we almost have caught back up on water levels. That is nice because I love my well water (no cholorine, no flouride). Hang in there, we will make it!!!!!! Barney |
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BARNEY Moderator
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DAY 42 BP 120/65 P 82 Still raining. We may need to borrow Noah's Ark real soon. I will be taking more mino tonite. 25 mg. at midnight with my 40mg Benicar. Not needing a nebulizer any more, just realized I have not touched my nebulizer in quite a while. This is getting better daily. About to go to bed as I am very sleepy. Hang in there, we will make it!!!! |
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BARNEY Moderator
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DAY 43 BP 123/81 P88 Nothing happening, no herxing. Will take 50 mg tomorrow night at midnight. Been a very boring day. Nothing good on TV. So much rain, our streets are soggy, decided best not to go out. Barney |
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BARNEY Moderator
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DAY 44 BP 128/79 p85 No herxing today. Planning to up the mino to 50 mg in the morning. Should get some results then. Barney |
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BARNEY Moderator
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DAY 45 = FEBRUARY 14, 2005 BP 117/86 P 95 BP 130/82 P82 BENICAR 20 MG Q3HRS, MINOCIN 50 MG Had to run an errand which required me to cover and go out until 12 noon. Reactions: puffy feeling around eyes for about 3 hrs and then seem to go away. Feel asleep in recliner watching tv - got up - checked emails and went to bed after taking 50 mg minocin with my 9 pm Benicar 20 mg. Was just to sleepy to think enough to write my post for the day, sorry. BARNEY |
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BARNEY Moderator
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DAY 46, PHASE 1 FEB 15, 2005, BP 114/90 P 81 BENICAR 20 MG Q3HRS, 40 MG MIDNIGHT (FORGOT TO PUT THIS ON MY POST FOR LAST NIGHT) . Up at 5:40 am, ate breakfast and could stay awake, Went back to bed after taking pain pill, shoulders huring real bad. Pain pill did not even touch the pain. Got up at 12 noon, pain still in shoulders bad, tried to tough it out for a while, but ended up taking another pain pill around 3pm. I noticed a real cold feeling for a little while (noticed this before when taking minocin but not relate it to this until today). Got the pain down to bearable. Went to Walmart and Peppers after dark. Sweated the whole time I was out. That subsided after I arrived home. Doing well and not herxing as bad as I had anticipated. I have been reading Reenie's site today, was glad to know that I am not the only one who does not get dressed some days (stay in night clothes). I am not having any problems with being in my 'cave', no depression, although, some bordem. If I would just do something (which I have plenty to do), I would not have bordem but some days just do not want to do anything I should do. Not really fond of doing housework some days and since I live alone, I figure if I can stand the dirty dishes etc. there is no one else to complain. Besides I get the remote control all to myself. Guess that's all folks! Hang in there, we will make it!!!! Barney |
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Aussie Barb Research Team
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Hi Barney from reading your post I am wondering if the pain was from the light exposure the day before? and I was wondering if you remembered that you could increase the Benicar 20mg to Q2H re the outing time and for 12 hrs after to minimise the symptoms.. as you say why do the housework or get dressed up.. the Queen is allowed to do what she likes.. Barney...all best, Barb .... |
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BARNEY Moderator
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Hey Aussie Barb, I do not know whether to lay the pain onto the sun exposure or herxing. Since I've never had that symptom to light exposure, I assumed it was herxing. Your opinion? How do you determine herxing vs. light expos.? Actually after I pushed the send button, I realized I did not post the Benicar correctly. I was trying to keep all in mind for 2 days posting and did not look at my journal correctly. I probably did this wrong but I uped the Benicar to 40 mg an hour before I went out and when I got back at approx 12 noon I took another 40 mg Benicar. Did I blow it? If this was light expos only, why am I not herxing at 50 mg minocin? Barney |
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Aussie Barb Research Team
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Hi Barney both herx and light exposure cause a rise in the 1,25D. >. some info for you > Why is my 'herx' more intense after exposure to Light & / or Vitamin D ? When and why should I vary my Benicar schedule? says >> Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated (6 hour half-life)." These options should help keep the 1,25-D down to minimize symptoms and help avoid any unnecessary lifestyle interruptions.<<<<< eg interruptions to washing up and housework.. all best, Barb ... |
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BARNEY Moderator
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Barb, Let me start over again: 6am 20 mg Benicar, 9am 40 mg Benicar, 12noon 40 mg Benicar, 3pm 20 mg Benicar, 6pm20 mg Benicar, 9pm 20 mg Benicar, 12 midnight 40 mg Benicar and 50 mg. Minocin. This was more often than every 4 hours. Am I correct in dosage and times as related to your last post? Barney |
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Aussie Barb Research Team
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Barney I have copied it here 6am 20 mg Benicar, 9am 40 mg Benicar, 12noon 40 mg Benicar, << HOME > keep the 4 hour x 40mg going for 12 hours after the final exposure 3pm 20 mg Benicar, 6pm20 mg Benicar, 9pm 20 mg Benicar, 12 midnight 40 mg Benicar You have done well, and what the FAQ explains is >> When herxing and being exposed to light simultaneously, these two phenomena can cause a much more elevated rise in 1,25-D than either would independently, causing what feels like a more intense herx. << so that is to say the light exposure can cause the herx to be more intense than the herx on it's own.. could be why the symptoms were more difficult.. hope that helps Barney, all best, Barb .. |
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BARNEY Moderator
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Barb, I hope I don't sound as dense to you as I sound to myself. Two more questions, Should I have done 40 mg at 9pm also? Should I have waited to take the minocin tonight instead of last night? THANKS , BARNEY |
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Aussie Barb Research Team
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Hey Barney not at all. I can talk about it all night with you and I am fine.. as long as you are xox as you know the 40mg x 4 hrly is equal to 20mg x 2hrly, and I think you have taken 20mg x 3 hrly for some of that... that you thought to take it frequently is great.. that is 200mg for the day. Taking the mino the next day instead, may have also given you a little more time to get thru the rise in 1,25D.. If you think of it as the light causing the rise in 1,25D and the herx causing a rise in 1,25D (same) (which is an add on to the light) and that Benicar 40mg x 4hrly x time can lower the 1,25D to relieve herx and light symptoms. keep asking if need be, Barb .... |
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BARNEY Moderator
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Barb, I believe I now understand what you are trying to teach me. I have to go out again tomorrow (my supply of Benicar is getting low). So I will take 20 mg Benicar q2hrs all day tomorrow until midnight and then I will take 40 mg. I will also skip minocin tomorrow night and wait until the next day for the light exposure to be gone. Am I thinking correctly? This should be the last day this week I should have to go out for light exposure, I hope. I guess while I am out I should pick up more minocin. Only a few caps left. I will try to get everything while I am out tomorrow. Thanks Barb. xoxo Barney |
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Aussie Barb Research Team
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Barney, sounds good.. less natural light / bright light the better.. Barb ... |
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BARNEY Moderator
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Barb, Thank you for all your help. I think I have a better understanding of all. My eyes are telling me to get off the computer so goodnight dear friend. ttyl Barney xxooxox |
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Aussie Barb Research Team
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I have to check that your computer screen brightness & contrast is turned down? and that you wear NoIRs at pc too? havagoodnight Barney, Barb .. |
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BARNEY Moderator
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Aussie Barb, I think you misunderstood what I meant when I said my eyes were telling me to get off the computer and go to bed. I meant they were heavy with sleep, not that the computer was bothering my eyes. It was like 1 am and I had been up since 6am. So I was getting pretty tired. Sorry for the misunderstanding. xoxox Barney |
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BARNEY Moderator
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DAY 47 FEB 16, 2005 BP 132/96 P 79 BENICAR Q2HRS 20 MG AND 40MG AT BEDTIME Did as Barb and I discussed last night since I had to have sun exposure today for about 3 hours to go get meds and run a couple other errands. The main things I feel when I have extended sun exposure are: my face feels 'puffy' and my eyes feel 'swollen or puffy'. this lasts a few hours and fatigue. My eyes hurt while I am out in the sunlight. I not only wear my NOIRs for outside but I also wear presc glasses that are darkened also. Shoulders have not hurt this time but I also have not had more minocin. I covered up well. We will see what tomorrow brings and I may take 50 mg minocin tomorrow night if all goes well from exposure. I have been up since 5:30am. I just can't seem to sleep in. So I guess I will bid farewell and good night /go to bed. Hang in there, we will make it!! BARNEY |
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Aussie Barb Research Team
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Barney it is so good to see you being able to ID what the light exposure does to you as an individual.... and then knowing what to do to protect yourself ..... phase 1 is the training ground for all this.. a time for us to learn how to adjust our lifestyle and meds and all.... ready for # 2.... all good, Barb ... |
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BARNEY Moderator
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Barb, I am ready for almost anything that will make me well. #2? I thought I had to be on 100 mg mino first? Am I misunderstanding when to proceed? Let me know what I need to do and I'll do it. More light exposure sxs are next day getting up at 5 or 5:30 and feeling great and abundance of energy and then within an hour feeling like I need to go to bed and sleep the rest of the day. Shoulder and back pain, not to bad after a pain pill and warm rice sox, but nonetheless there. I always hate myself after I go out. I do have a question=== grapefruit is one thing that does not normally bother my sugar level. But...I have read in magazines that if you take a blood pressure medicine that grapefruit can interfer with the medicine. Since we do not take Benicar for the reason of high blood pressure....would this still be the fact? Should I or should I not eat grapefruit because of the Benicar? Will it interefer with what the Benicar is doing for us? THANKS BARNEY |
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Aussie Barb Research Team
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Barney I said "phase 1 is the training ground for all this.. a time for us to learn how to adjust our lifestyle and meds and all.... ready for # 2...." meaning phase 1 training time is getting us all ready for managing phase 2 better. I will look into the other and someone will get back to you.. Barb .. |
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Dr Trevor Marshall Research Team 
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Barney, Grapefruit interferes with digestive enzymes, and prevents some drugs from being absorbed properly. Your pharmacist could look up if there are any known effects on Benicar absorption, but in general it is a good idea if you only eat/drink grapefruit either 2 hours before, or 2 hours after, you take any medications. ..Trevor.. |
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BARNEY Moderator
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Trevor & Barb, Thank you for your replies about both subjects. I will give that grapefruit I have been hoarding in the crisper for quite some time (afraid to eat it), to someone else who is not on BP meds, if I can find that person. I don't think I know anyone who is not on BP meds. THANKS!! Barney |
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BARNEY Moderator
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DAY 48, FEB 17 2005 BP 118/71 P 84 20MG BENICAR Q3HRS, 40MG BEDTIME, 50 MG MINOCIN Found out that there is a next day sx of sun exposure, I get up at 5 or 5:30 am filled with energy, have breakfast, sit down to watch the news and start to fall back to sleep and am very willing to get in bed and sleep till noon. Then the rest of the day is good. I start to feel the security of my cave again and am very glad I do not have to go out in the sun again. Hoping I can stay in for at least a week. Going to take 50 mg minocin tonight before I go to bed. Have been doing some good deeds tonight and feeling like I am floating on clouds for doing them. Got up to a clean kitchen this morning, can't say as much for bedtime. Oh well, we all have to eat and that requires dirting dishes (and darn, washing them too) Getting sleepy, and I can't think of anything else I need to post tonite. Barney PS Trevor..I just gave my friend the grapefruit, no need for having a problem if you can prevent it. |
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BARNEY Moderator
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DAY 49 FEB 18, 2005 BP 131/77 P82 20MG BENICAR Q3HRS, 40MG BEDTIME PLUS 50MG MINOCIN, 1 ACIDOPHILUS CAP. Went to bed and could not sleep. I do not do well just lying in bed waiting to go to sleep. Got back up and played on the internet until 2am. Took an acidophilus (refrig) because stomach started to get quiesey (sp?). Went to bed at 2am and went right to sleep, slept well all night, did not get up until 8:30am, took a nap from 1pm to 3pm. After sundown, my dog and I walked (slowly) for about 3/4 mile down the road. Felt good, it has been too cold to walk after dark this winter and I used to walk 1-2 miles a day. Really have missed it. I never walk fast because I have pulmonary fibrosis and pulmonary hypertension. If I walk to fast, I run out of air. Walking slow is just fine. I definitely do not enjoy pain, but was disappointed with basically no herx from 50 mg minocin. This is my second 50. Do I need to up to 75 or stay a little longer at 50? I don't want to be uncomfortable but I thought we should have some herx. I had been drinking a Christmastime tea from Celest Seasonings and did feel that it was affecting my blood glucose levels (something was). I was drinking too much, I guess. I stopped it all together along with the green tea/cinnamon and my levels are back in control. Amazing what can affect them. ADA said cinnamon would help lower readings, of course my body always does the opposite. Guess that's all for now. Hang in there, we will make it. Barney |
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Aussie Barb Research Team
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Hi Barney re tea>> here is a post > Benefits of Green Tea re should I ramp..? Dr M likes us to stay on a dose level for a week herxing or not before ramping, just in case.. the other thing is that light and or D exposure can make a difference..raising the 1,25D: you have had some light symptoms, so if you'd like to give it a couple of doses yet after your going outs, to see if it will key in again? this is a FAQ re no herx: Why isn't the Marshall Protocol working? what am I doing wrong? all best Barney, Barb ... |
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BARNEY Moderator
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Barb, My stomach gets really upset from green tea (and regular tea). I used green tea to make my cinnamon tea. Green tea plus a cinnamon stick. That is part of the rise in blood glucose and the Christmastime Celes Seas tea. I'll try straight green tea one more time and see if my stomach hates me. I was not having problems from the light experience by early evening so I thought I would be okay to take the 50mg Minocin. I will stay on 50 mg Minocin for the next few days and I will not be going out except after dark. I will take 50 mg Minocin tomorrow night. Will rethink my food but have been watching that closely. We will see what happens! Barney (best to you, Barb) |
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Aussie Barb Research Team
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oohh Barney I am not recommending green tea .. just pointing to the topic as you mentioned it.. dont go against what suits you personally.. you have done all well re the light issue, sometimes all else that is needed is time for the 1,25D to go down again.. all best, Barb ... |
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Reenie inactive member
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Hi BARNEY, Interesting you mentioned cinnamon. Cinnamon is known to help stabillize glucose levels. I add cinnamon to oatmeal and don't use any sweeteners w/it. |
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BARNEY Moderator
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Barb, I have not tried green tea by itsself since I have been on MP and things have changed so greatly for me. Able to endure smells, no headaches, no neckaches etc. maybe just maybe I can now drink green tea. We will experiment and see what happens. What is the max amount of time for most when the I,25D does finally go down from light exposure? Thanks Barney |
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BARNEY Moderator
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Reenie, I wish that were true for me. I was putting cinnamon in my green tea and my glucose levels were in the 200 and 300. I knew there was something bothering me, because I try to be real good about my food. I stopped all tea drinking and my levels went right back down and stayed. My body always seems to do the opposite that the medical people say should happen. I always figured it was the sarc and adjusted accordingly. Do you consider oatmeal to be low gylcemic? I went online and pulled up probably 7 different low glycemic tables and there were not two with the same numbers. Very discouraging when facts do not match. It even said Pizza Hut Supreme pizza was low glycemic and yet when I used to eat it, it would run my reading thru the roof. It seems with this body, I just will have to experiment with everything to see what it will do. glucose levels are down and staying there.I am basically low carb. Thanks Barney |
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Aussie Barb Research Team
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Dear Barney The green tea topic says that it may have *some* effect, and I thought you may relate.. as you say your body is sensitive.. and that is because you are sick. so yes you do have to experiment for yourself.. look at what is said anywhere (re carbs too) and then see how it works for you.. and let that be your guide. same with the light re the time and the 1,25D.. that would be individual.. it can take a *couple of days* to re establish the inflammatory blockade .. Meg says: "The inflammatory blockade will be reestablished in a day or two." The good thing about your being sensitive is, that you have responded positively to MP very quickly. and of course as the healing increases the sensitivities do diminish; as you have experienced already.. all best on your Journey of Discovery Barney, Barb .... |
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BARNEY Moderator
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DAY 50 FEB 19, 2005 BP 120/80 P 76 20MG BENICAR Q3HRS 40MG BENICAR AT BEDTIME, 50 MG MINOCIN BEGINNING TO WONDER IF MY 'BUGS' ARE DYING OFF OF OLD AGE IS WHY THEY ARE NOT GIVING ME AS MANY PROBLEMS AS I HAD ANTICIPATED. HAVING SOME PROBLEM WITH MY MENTAL STATE OF HAVING TO NOT GO OUT DURING THE DAY. I'VE NEVER DONE THIS BEFORE AND SOME DAYS I FIND IT VERY DIFFICULT NOT TO GIVE THIS ALL UP. THE ONLY REASON I KEEP GOING IS : NO NEBULIZER, NO SENSITIVITY TO SMELLS, VERY FEW HEAD AND NECK ACHES. I JUST HAVE TO KEEP TELLING MYSELF TO HANG IN. I'LL BE OKAY, I JUST HAVE TO GET BUSY ON THINGS IN THE HOUSE. GOD KNOWS I HAVE PLENTY TO DO. I'VE HAD NO LIGHT EXPOSURE FOR 2 DAYS NOW AND TONIGHT I WILL TAKE 50 MG MINOCIN AND WE'LL SEE IF ANY OF THESE LITTLE BUGGERS PUT UP A FIGHT. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Reenie inactive member
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Hi BARNEY, Here's a really good site, called Home of the Glycemic Index. This is actually the main testing institution for the Glycemic Index Food Values. Just click on the GI database tab. http://www.glycemicindex.com/ The GI of oatmeal is 75, but if you add some cream or half-n-half, and a few nuts, you'll lower the total GI index for the total meal. Portion control is also essential for controlling insulin and glucose. As for the emotional feelings from staying in your cave, IMO, most of that feeling is herx. |
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BARNEY Moderator
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DAY 51 FEB 20, 2005 BP 116/79 P78 20MG BENICAR Q3HRS, 40MG BENICAR AT BEDTIME THANKS, REENIE, FOR THE LINK. I KNEW TO ADD THE NUTS, CREAM ETC. TO CHANGE THE INDEX. IT'S GREAT THE WAY THAT WORKS!! THIS IS THE WORSE I HAVE HAD THE 'DOWN IN THE DUMPS'. I AM BETTER NOW. I GOT OUT AT THE BRINK OF DARKNESS AND WENT TO A FRIENDS HOUSE FOR DINNER (CHICKEN, GREEN BEANS), DID NOT EVEN ATTEMPT TO EAT THE MACARONI SALAD (LOTS OF VIT D IN THERE AND FOLIC ACID). I DID NOT REALIZE THE DEPRESSION WAS PART OF THE HERX, BUT NOW THAT YOU MENTIONED IT I REMEMBER READING THAT IN THE INSTRUCTIONS FOR MP. I HAVE ALSO HAD WHAT I CALL 'NUISANCE' PAIN IN NECK, SHOULDERS, BACK, MUSCLES IN ARMS AND SOME SORENESS IN BOTH BREASTS (THEY HAVE A LOT OF FIBROSIS). ALSO, MY EARS FELT PLUGGED. TOOK A PAIN PILL AND ALL WAS WELL THE REST OF THE DAY. DID NOT HAVE TO TAKE THE NAP I USUALLY DO THE DAY AFTER MINOCIN. IT HAS BEEN A ROUGH WEEK HERE, FRIEND'S MOTHER PASSING AWAY AND THE ARGUING AMONG THE FAMILY. MY OTHER FRIEND HAVE FAMILY PROBLEMS ALSO, JUST DIFFICULT FOR EVERYONE. WONDERING IF IT HAS SOMETHING TO DO WITH THE FULL MOON ON IT'S WAY HERE THIS WEEK. SEEMS PEOPLE ACT WEIRD WHEN IT COMES UP. I THINK EVERYTHING IS COMING TOGETHER AND I GOT TO GO TO WALMART AFTER DINNER AND THEN OVER TO MY GIRLFRIEND'S HOUSE FOR AN HOUR OR SO, THE CHANGE OF SCENERY HELPED QUITE A BIT AND I AM SURE THE MINOCIN IS WEARING OFF. GUESS THAT'S ALL FOLKS!!! HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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Feb 21, 2005 I think I may have been too quick to say that the Minocin was wearing off. After Reenie reminded me that depression could be herx, I went back and read PHASE I instructions. Guess what...the stuffy nose the last two Minocin had kicked in. Since I have had most of the herx symptoms without even being on MP, I did not think to put 2 and 2 together. Since starting MP and only on Benicar, most of these had eventually gone away, until I added the minocin. The photosensitivity, occassional ringing in ears, a little bit of a cough, irritibility and sleep disturbances such as dreaming of Reenie and Aussie Barb and I don't even know what they said in those dreams. I guess that would bring in brain fog. Actually brain fog has been very irritating to me, my friends are all saying 'don't you remember that?' and it might have just been less than an hour ago. Had a hard time going to sleep last night. It was 2 am and I was back up at 7am. Think I will take a nap. May not take 50 mg (or the 75 I had mentioned earlier) Minocin tonight as planned. Shoulders are being very irritatating today and my head has felt like somebody put a heeeaaavy metal plate on top of my head and it weighs a ton. ttyl Barney |
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BARNEY Moderator
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DAY 52 FEBRUARY 21, 2005 BP 125/79 P82 20MG BENICAR Q3HRS 40MG BENICAR BEDTIME QUERCETIN (1) THIS AM AND 1 PAIN PILL, NO MINOCIN STILL HAVE MOST OF THE PROBLEMS I POSTED EARLIER TODAY PLUS THAT DARN NASTY METAL TASTE WILL NOT GO AWAY. GLAD TO BE HERXING BUT NOT REAL FOND OF SOME OF THE THINGS GOING ON BUT AT LEAST 'BUGS' ARE DYING. I CAN'T BELIEVE IT IS ALMOST 2 MONTHS DOWN THE ROAD WITH MP. TIME IS SURE FLYING. GETTING VERY TIRED AND SLEEPY. GOODNIGHT ALL. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Reenie inactive member
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Hi BARNEY, I hope the dreams were GOOD ones.  As for the pain in your neck, I used to get made fun of, for the way I described my constant neck and shoulder pain that I've had for years. I used to say that it felt like my head was way too heavy for my small neck to support it. This has improved drastically, since the MP. Rather than my neck getting stronger or my head getting lighter, my neck muscles function better; they're not so spasmed anymore. |
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BARNEY Moderator
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Hey Reenie, I can't remember what the dreams were about just that you and Aussie Barb were in them. We will just assume they were GOOD, what else could they be? You hit the nail on the hear for the description of the neck pain. That's why I never wore a helmet when we rode our Harley. Made my head feel even heavier. It won't help to lecture me about wearing a helmet, I've ridden for almost 40 years and always refused one. Nothing like a ride on a Harley with the wind blowing in your hair to make you feel better no matter how bad you feel. It always made me feel better. MP has been a life saver, I would go thru almost any herx just for the improvements so far. I have some neck pain but only when herxing and not anything like I suffered for years. MP IS FANTASTIC. Barney |
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BARNEY Moderator
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DAY 53 FEB 22, 2005 BP 99/73 P 81 117/84 P 81 20MG BENICAR Q3HRS, 40MG BENICAR BEDTIME, NO MINICON, NO PAIN PILLS, NO QUERCETIN SLEPT FROM 1PM TO 5PM JUST REALLY FATIGUED. AS SOON AS I FINISH THIS, I AM GOING BACK TO BED, STILL REALLY FATIGUED. THE METAL TASTE IN MY MOUTH HAS BEEN STRONGER THIS AFTERNOON AND BECOMING VERY ANNOYING. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 54 FEB 23, 2005 BP 110/71 P 81 20 MG BENICAR Q3HRS, 40 MG BENICAR AT BEDTIME, NO MINOCIN, 1 PAIN PILL GOT UP THIS MORNING WITH SHOULDERS HURTING BAD. TOOK PAIN PILL AND IT WAS BETTER IN ABOUT AN HOUR. STILL HAVE METAL TASTE IN MY MOUTH. MADE CHICKEN STIR FRY AND IN ABOUT AN HOUR I HAD BAD STOMACH CRAMPS AND DIARREHA. DRANK SOME SPRITE AND IT HELPED A LOT. HOW LONG WILL THIS METAL TASTE PRESIST? IS IT NORMAL TO LAST THIS LONG? BARNEY |
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Aussie Barb Research Team
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Hi Barney, Unfortunately or fortunately? ... I dont think there is any way of knowing how long any particular herx will last.. .. all best, Barb ... |
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BARNEY Moderator
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Barb, Should I go ahead and take minocin now? Barney |
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Aussie Barb Research Team
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Barney, Is the herx tolerable? are you needing to take or have you tried taking the Benicar 20mg Q2H while awake to see if that settles the symptoms? if you are wanting to try this Beni schedule first, to see if you get any relief? do that.. sometimes if you take the next dose of mino, it will settle symptoms too.. if it is intolerable there is the frequent mino schedule.. My Herxheimer reaction is too strong. What should I do? ask more if you need to, Barb ... |
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BARNEY Moderator
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Barb, Thank you for all the info. After taking it all into consideration (and I printed it all for a reference, since brain does not work good), I decided that the metal taste was more of a nuisance than anything and I was not having painful herx that by no means was intolerable. I have suffered so much pain in 40 years, it just seems like a normal thing to have, except for the very first herx where the ear, tooth and jaw (r) hurt so horribly. That was pretty intense. I have taken the next 50 mg dose of Mino and acidod and am doing well. I will put my ususal post on at 9PM. Just wanted you to know I am doing well so far. Just sleeping a little more. Had a couple of restless nights and am making up for lost sleep. Love Barney |
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BARNEY Moderator
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DAY 55 FEB 24, 2005 BP 106/80 P 77 20 MG BENICAR Q3HRS, 40MG BENICAR AT BEDTIME, 50 MG MINO, 1 ACIDOLPHIS, 1 PAIN PILL LAST COUPLE OF NIGHTS WERE PRETTY RESTLESS NIGHTS AND FULL OF DREAMING, SO BEEN CATCHING UP ON SOME SLEEP. HEAD WAS HURTING EARLY MORNING, SO TOOK PAIN PILL AND IT WENT AWAY. STILL HAVE METAL TASTE IN MOUTH, A REAL NUISANCE. OTHER THAN THESE THINGS, NOT MUCH GOING ON TODAY. VERY COLD HERE, SO AM GOING TO BED EARLY. WHEN THE WIND BLOWS HERE (WITH COLD IN IT), IT IS JUST ABOUT LIKE NOT HAVING ANY WALLS (EVEN IN A WELL BUILT HOUSE), SO THE BEST PLACE TO GET WARM IS UNDER THE ELECTRIC BLANKET, SO THAT IS WHERE I AM HEADED. GOOD NIGHT TO ALL, WE'LL SEE WHAT TOMORROW BRINGS. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 56, FEB 25, 2005, BP 102/73 P 98 BENICAR 20MG Q3HRS, BENICAR 40MG AT BEDTIME, NO MINO, 1 ACIDOP, 1 PAIN PILL GOT UP FEELING SORT OF 'FUNNY'. WHATEVER HOUSEWORK NEEDED DONE I FIGURED I BETTER GET DONE BUT THE MORE I DID THE BETTER I FELT. ALL THAT IS LEFT IS NAUSEA AND GAS. SHOULDERS HAD HURT REAL BAD SO I TOOK A PAIN PILL AND THAT WENT AWAY. TIRED FEELING. OTHERWISE DOING WELL. I THINK. GOING OUT AS SOON AS IT GETS DARK, SO I THOUGHT I WOULD POST EARLY. GOOD NIGHT ALL. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 57 FEB 26, 2005 BP 112/78 P 73, BENICAR 20MG Q3HRS, BENICAR 40MG AT BEDTIME, 75 MG MINO, 1 ACIDOP SLEPT MOST OF DAY, SINCE I WAS UP HALF THE NIGHT TALKING WITH A FRIEND. WAS NICE TO GET AWAY FOR A WHILE. WENT IN THIS EVENING AFTER DARK AND HELP MY FRIEND LEARN MORE ABOUT OPERATING HER COMPUTER (SHE'S 82 AND JUST LEARNING) AND HELPED HER HOOK UP A TV IN HER BEDROOM. NOTHING MUCH GOING ON, STILL HAVE SOME METAL TASTE IN MOUTH, GETTING PRETTY USED TO IT. WILL UP THE MINO TONIGHT SINCE ALL HERXING SEEMS TO HAVE CALMED DOWN. GOOD NIGHT ALL. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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Lee Member in Phase 3 
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Hi Barney! I have been reading your posts and wanted you to know that have been a great source of inspiration for me. I am just a few weeks behind you on the MP.....having just started my "mino" last week. It is nice to be able to compare notes with ya.....as our "herxing" is quite similiar. I am due to have another go'round tonight with 25mgs....and it is most helpful knowing I am NOT alone.... Aren't we lucky that Trevor is such a genius and the gals persevered so we can ALL get WELL together..... Remember you are NOT alone....and IF you ever need a shoulder.....or just a good laugh....mail me.....hahahaha We Will Get Thru It....together!!! Take Care.....and Thanks for Posting.....Keep up the GREAT work!!! Lee & Poppi |
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BARNEY Moderator
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Lee, Thank you for your nice email. I am glad you are enjoying my posts. I read as many posts as I can each day so I can learn more also. The more we know the better. Hang in there, we will make it!!! Barney & Amanda |
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BARNEY Moderator
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DAY 58 FEB 27, 05 BENICAR 20MG Q3HRS MORNING, BENICAR 20MG Q2HRS, BENICAR 40MG BEDTIME, NO MINO, PAIN PILLS (2), 1 ASPRIN, 2 8HR TYLENOL UP AT 6:45AM WITH SHOULDERS/NECK HURTING BAD, PAIN IN SPINE (HALF WAY DOWN BACK) HURTING REALLY BAD. TOOK PAIN PILL, DIDN'T TOUCH PAIN. SUFFERED FOR A FEW HOURS UNTIL I REMEMBERED BENICAR 20MG Q2HRS, THAT HELPED IN ADDITION TO 2 8HR TYLENOL. I HAVE A VERY HIGH TOLERANCE FOR PAIN, SO IT HAS TO GET PRETTY INTENSE BEFORE MY BRAIN FOG LIFTS AND I FIGURE OUT I BETTER DO SOMETHING SOON. PAIN WAS BACK IN MY BACK ONLY BY 9PM, SO I TOOK ANOTHER PAIN PILL PLUS AND ASPRIN. PAIN LEVEL LOWERED TO A TOLERERABLE LEVEL. LOTS OF HERXING FOR TODAY. MADE IT THRU. IF ALL GOES WELL AND THE HERX CALMS DOWN TOMORROW, THEN I WILL TAKE 75MG AGAIN TOMORROW NIGHT. WE'LL SEE WHAT TONITE AND TOMORROW BRING. GOOD NIGHT TO ALL. HANG IN THERE, WE WILL MAKE IT!!!! REALLY THANKFUL TO TREVOR AND THE RESEARCH TEAM/STAFF FOR ALL THEIR HARD WORK. IT IS A PLEASURE TO BE ON MP, TO KNOW I AM GETTING WELL. ALL THE IMPROVEMENTS ARE UNBELIEVABLE. BARNEY |
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Reenie inactive member
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Lee & Poppi? Barney & Amanda? Does this mean I have to sign my posts, Reenie, Sweetpea & Sly (short for Slither) now? PS I love your mantra, "Hang in there; we will make it" |
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BARNEY Moderator
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REENIE, SURE, WHY NOT. IF YOU ARE LIKE ME, THAT'S THE ONLY OTHER NAME IN MY HOUSE AND SHE IS LIKE A MEMBER OF MY FAMILY. SHE WILL BE 10 NEXT MONTH. WITH ALL THE IMPROVEMENTS I HAVE HAD, I REALLY BELIEVE THAT IF I HANG IN THERE, I WILL MAKE IT (EVEN AFTER 40 YEARS). XOXOXOX BARNEY |
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Aussie Barb Research Team
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Hi Barney If the herx is intolerable.. and the Benicar 20mg Q2H is still not enough relief, see My Herxheimer reaction is too strong. What should I do? you can take even just the one dose of mino 25mg or 50mg as per FAQ to see if it will pull it up.. and then you may need to decrease the QOD dose to 50mg ..? as the herx may be too much at 75mg just yet? Dr Marshalls words: "No, it doesn't matter how long it takes. You have started on a lengthy jourrney, and the extra pain of speeding beyond a comfortable pace will not yield a comparable reduction in the length of the journey." ..Trevor.. ask if any questions... all best, Barb .... |
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BARNEY Moderator
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Barb, Actually my brain was not working or I would have remembered the 20mg Benicar Q2hrs early on and it would not have gotten so carried away, but I did not remember it until afternoon and by then it had a grip on me. I am okay now, it is tolerable and I will see what tomorrow brings, I just might go back to 50mg mino, but I did it for about a week or more and felt I needed to move on to 75mg mino. But we will pay it by ear, as the saying goes, and see how my day goes. Somebody, I think on your site, had discussed taking the mino in the morning. That's what I did with one dose, maybe I'll try that again. I have had so much progress: no nebulizer, none of the neck pain I used to have, no migranes, I have endured every perfume I have come in contact with (that's sweet), and I can't even remember all the things that used to hurt. Sort of out of sight, out of mind (you know what I mean, I'm sure). Thanks for the info, Barb. XOXOXOXOXO BARNEY |
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Aussie Barb Research Team
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Barney A good way to remember may be: as soon as you have to reach for the pain relief tablets, think "do I need more frequent Benicar?..." .. Barb ... |
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BARNEY Moderator
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DAY 59, FEB 28, 2005, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, NO PAIN PILLS, 75 MINO TONIGHT, 1 ACIDOP NO HERXING AT ALL TODAY. STAYED IN ALL DAY. MY COMPUTER GUY CAME AND PUT A NEW VIRUS CONTROL ON. CLEANED HOUSE ALL DAY WITH LOTS OF ENERGY TO GET THINGS DONE I HAVE NOT GOTTEN DONE IN A WHILE. NOW IF IT WILL JUST STAY CLEAN. BARB, I WAS EXPERIMENTING WITH DIFFERENT PAIN RELIEVERS YESTERDAY, HOWEVER, I DID INCREASE MY BENICAR 20MG Q2HRS IN THE AFTERNOON, BUT STILL NEEDED THE PAIN PILLS AS THEY WORE OFF. ALL IS WELL NOW. WILL TAKE 75MG MINO TONIGHT AND AN ACIDOP. IF IT TURNS OUT TO BE INTOLERABLE, I WILL BACK OFF NEXT DOSE. GUESS THAT'S ALL FOLKS!!! HANG IN THERE, WE WILL MAKE IT!!!BARNEY |
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Aussie Barb Research Team
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Hi Barney.. thank you for posting.. re: "WILL TAKE 75MG MINO TONIGHT AND AN ACIDOP." It may be better to take your acidoph about 3 hours or so away from the mino.. so the mino doesnt kill the live organisms.. eg. I take my pbx every morning with breakfast.. all best, Barb .... |
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BARNEY Moderator
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BARB, YOU KNOW I WANDERED ABOUT THAT. BUT DID NOT REMEMBER READING ANYTHING ABOUT WHEN. DO YOU TAKE ONE EVERYDAY EVEN ON THE DAY YOU DON'T TAKE ANTIBIOTICS? I WILL DEFINITELY TAKE ANOTHER IN THE MORNING. THANKS FOR THE TIP. BOY, I CAN'T BELIEVE I ONLY HAD 4 HRS SLEEP LAST NIGHT AND ALL THE ENERGY I HAD TODAY. SLOW PACE, BUT GOT A LOT DONE AND A SHOWER TOO. EVEN PUT CLOTHES ON BESIDES MY NIGHTGOWN.(HAHA) THAAAAAANKS BARB XOXOXOX LOVE BARNEY |
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Aussie Barb Research Team
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Hi Barney Take whatever you need to make it work for you.. I take 1 per every day.. getting dressed in real clothes ! now that is a big one.. Barb .... |
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spacee inactive member
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I think the energy was a herx and I bet your postman was disappointed to see the real clothes xoxo Spacee |
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BARNEY Moderator
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SPACEE, ACTUALLY, I CANNOT TELL ANYTHING BUT THE TRUTH ON THIS SITE, SO HERE GOES; THE ENERGY WAS NOT A HERX (I DO NOT BELIEVE), BECAUSE ABOUT MIDNIGHT OR 1AM, I REALIZED I HAD DRANK ABOUT A HALF QUART OF REAL BREWED ICED TEA THROUGHOUT THE AFTERNOON. WHEN I TOOK THE LAST DRINK, IT HIT ME, THIS IS WHY I CANNOT RUN DOWN AND GO TO BED. MY POSTMAN IS A LADY. DARN!!! THANKS FOR THE THOUGHTS OF HERX AND WOULD BE INTERESTED IN OTHER OPINIONS SINCE ALL THE FACTS ARE NOW IN. LOVE, BARNEY |
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BARNEY Moderator
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DAY 60, MARCH 1, 2005, BP 119/87 P 75, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, NO MINO, 1 ACIDO (MORN) ON THE DAYS I TAKE MINO, I FIND I AM COLDER THAN USUAL, MY HANDS SEEM TO BE EVEN COLDER, BUT ALL OF ME IS COLD. I HAVE ALSO NOTICED ON OCCASION, MY HIP HAS HURT A LITTLE, NOTHING LIKE IT USED TO (BEFORE MP) SLEEPY MORE THAN USUAL WHEN ON MINO ALSO. NOTHING DRASTIC THIS TIME AFTER 75 MG MINO. WOULD IT BE OKAY TO PROCEED TO 100MG TOMORROW NIGHT? HANG IN THERE, WE WILL MAKE IT!!!!!! BARNEY |
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Aussie Barb Research Team
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Hi Barney from the phase 1 doc to help you to decide: "Increase the (every other day) minocycline, slowly, in small increments. The usual dosage increment is 25mg per week. Allow a week or more between increased doses to make sure your Herxheimer reaction is not more than you wish to tolerate. Different bacteria and tissues can be targeted by different levels of antibiotics, so there is a good reason to stay at each dose until the Herxheimer is minimal. You may take a 'break' from the antibiotics for a few days, or even a few weeks, if you need to feel better for a while. Continue to take the Benicar, however. Do not try to 'speed up' therapy by using a higher dose of minocycline than the minimum needed to give you Herxheimer. These are very slow growing bacteria and there is no need to hurry. The dose of antibiotic that you can tolerate may change (both up and down) during the course of therapy. " all best, Barb ... |
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BARNEY Moderator
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Barb, I understand what you are telling me, but I am not having any herxing that I can tell. If that being the case, why not proceed? Would I be 'jumping over' bugs and leaving them behind to cause problems? I have made so much progress that I feel like I 'am wasting time' when I have had no herx and do not proceed. I appreciate your time. Thanks Barney |
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Aussie Barb Research Team
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Hi Barney, You will know your own situation and can gauge it best, and, No you wont be jumping over bugs... and if having checked the phase 1 doc, are not herxing, you feel ready to proceed that is what to do.. all good.. all the best, Barb .... |
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BARNEY Moderator
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DAY 61 MAR 2, 05 BP 90/60 P 86, BENICAR 20MG Q2HRS, BENICAR 40MG BEDTIME, NO MINO, 1 ACIDOP I HAVE DECIDED TO TAKE MINO TOMORROW MORNING INSTEAD OF TONIGHT. NOTHING EXCITING REALLY GOING ON. SLEPT FROM 1PM TO 4PM THIS AFTERNOON. HAD BEEN STAYING UP PRETTY LATE (2AM) THE LAST 2 NIGHTS AND THEN GETTING BACK UP AT 6AM OR 7AM AT THE LATEST. HAD NOTHING I HAD TO DO AND NO COMPANY, SO I TOOK A NICE NAP. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 62 MAR 3, 05 BP 105/81 P 90 BENICAR 20MG Q3HRS, BENICAR 40MG BED TIME, 100 MG MINO, 1 ACIPOP HIP WAS A LITTLE SORE, I'M SURE MY SHOULDERS WILL BE TOO, SOON, SINCE I WENT OUT AFTER DARK AND RAKED THE FRONT YARD WITH THE PORCH LIGHT ON. OTHER THAN THAT THE ONLY OTHER THING GOING ON IS THAT I AM SLEEPY AND WILL GO TO BED HERE SHORTLY. HANG IN THERE, WE WILL MAKE IT!!!!!!! BARNEY |
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BARNEY Moderator
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REENIE, I HAVE A QUESTIONS FOR YOU........WHEN READING YOUR POSTS, I NOTICED THAT YOU HAD WENT OUTSIDE BEFORE THE SUN WENT DOWN AND DIDN'T WEAR YOUR GLOVES OR A HAT. ARE YOU THAT FAR HEALED THAT YOU COULD DO THAT AND GET AWAY WITH IT (MOSTLY) OR DID YOU PAY DEARLY FOR IT? HOW DO YOU KNOW WHEN YOU CAN GO OUT (COVERED) AND NOT HAVE SUCH BAD SUN FLARES, BY EXPERIENCE OR A CERTAIN AMT OF MEDS AND TIME OR WHAT? I AM NOT TRYING TO PUT YOU ON THE SPOT, JUST NEED MORE UNDERSTANDING THAN I ALREADY HAVE. THANK YOU!!!!!!! BARNEY |
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Reenie inactive member
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Hi Barney, No, unfortunately, I'm not that far along, but I CAN go out, before dark, when it's still light outside, for a very short amount of time, w/o a reaction. This is definitely very different than if I go out during the day with the sun high in the sky. THEN, I PAY DEARLY for it. I think it's mainly trial and error. There's no other way to really know what you can "get away with" and what you can't. BTW, when I'm herxing, I DO NOT experiment with the light. I stay inside, in my cave and wear eye protection for the PC and TV. |
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Aussie Barb Research Team
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BARNEY has been selected for a scholarship to go to our Spring Conference 'Recovering from Chronic Disease', in Chicago, our Congratulations go to BARNEY (I hope that she is still in one piece after flying from 6:45am to 4:10pm on Friday, just to get to Chicago). ..Trevor.. Barney, see FAQ: Can I stop the Marshall Protocol for awhile? while I go to the Conference? Congratulations and all Best Wishes, take care, Barb .... |
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BARNEY Moderator
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TREVOR AND BARB, I WILL HANG IN THERE AND I WILL MAKE IT!!! I WILL REST ALL WEEK. THANK YOU FOR THIS PRIVILIGE. TREVOR, YOU ARE A GODSENT. SEE YOU THERE!! LOVE TO EVERYONE INVOLVED!! BARNEY |
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jillian Member in Phase 2 
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Congratulations BARNEY on the scholarship to the Conference. I'm not well enough to go, so represent all of us well!!! 'til later, Jillian from North Dakota |
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BARNEY Moderator
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JILLIAN, I WILL DO MY VERY BEST TO MAKE EVERYONE PROUD FOR MY SCHOLARSHIP. I WILL HAVE TO LEAVE HOME ABOUT 2AM TO GET TO THE AIRPORT IN TIME (IT IS 109 MILES TO THE AIRPORT). BUT THE GOOD PART IS THAT I WILL BE DARK. (NO SUN). I WILL MAKE IT, I KNOW HOW TO MAKE MY NERVOUS ENERGY KICK IN, THEN WHEN I GET HOME I WILL COLLAPSE IN BED FOR AS LONG AS I NEED. WILL BE PRAYING THAT YOU FIND A DOCTOR WHO WILL GET YOU ON MP PROPERLY AND GET YOU ON 'THE ROAD TO RECOVERY'. HANG IN THERE JILLIAN, YOU WILL MAKE IT!!!! LOVE TO ALL BARNEY |
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BARNEY Moderator
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DAY 63, MAR 4, '05 BP 119/80 P 88, BENICAR 20MG Q3HRS, 40MG BENICAR AT BEDTIME, 1 ACIDOP, NO PAIN PILLS HANDS WERE EXTREMELY COLD MOST OF DAY, I'VE NOTICED THIS ON OTHER TIMES WHEN IT WAS THE DAY AFTER THE MINO. FEET WERE ALSO COLD THIS TIME, SHOULDERS HAVE FELT LIKE SOMEONE IS SQUEZZING THEM REAL TIGHT (THE MUSCLES). I ALSO NOTICED SOME STRONG FEELINGS IN MY LEG MUSCLES TODAY. EYES HAVE BEEN ITCHING TODAY BUT HAVE NOT HAD ANY EYE PRESSURE LIKE I USED TO HAVE BEFORE MP. I LOVE MP, IT IS THE BEST THING THAT HAS EVER COME ALONG IN MY LIFE. EVEN WHEN THE HERXING IS HERE, IT IS BETTER THAN ALL THE THINGS SARC HAS DONE TO ME. HANG IN THERE, WE WILL MAKE!!!!!!!!!!! GOOD NIGHT ALL. BARNEY |
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BARNEY Moderator
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DAY 64, MAR 5, '05 BP 116/74 P 84 BENICAR 20MG Q3HRS, BENICAR 40MG AT BEDTIME, 1 ACIDOP, 50 MG MINO DAILY FOR MAINTENANCE TO BE ABLE TO GO TO CONFERENCE AND NOT LOSE ALL PROGRESS I HAVE GAINED. NOT AN EVENTFUL DAY AS FAR AS HERX. HAVE BEEN GETTING THINGS READY TO GO TO THE CONFERENCE IN CHICAGO. GOOD NIGHT TO ALL!! HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 65, MAR 6, '05, BP 103/67 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG AT BEDTIME, 50 MG MINO TO MAINTAIN FOR TRAVEL TO CHICAGO, 1 ACIDOP. DESPITE MY AGE, I DO NOT BELIEVE I WILL EVER LEARN A LESSON. DECIDED I NEEDED TO WALK TO GEAR UP FOR THE TRIP SO AMANDA (MY DOG) AND I WALKED A MILE (AFTER DUSK) AND THEN (THAT WASN'T ENOUGH) STUPID ME, DECIDED TO GO OUT BACK AND RAKE THE YARD IN THE DARK. WE HAVE THESE NASTY WEEDS HERE THAT HAVE STICKERS ON THEM AND WHEN THEY DRY THEY REALLY STICK IN YOUR FEET/LEGS. NEEDLESS TO SAY, EVERY BONE IN MY BODY WAS KILLING ME INCLUDING MY WRISTS, SHOULDERS, NECK, AND BACK. TO TOP MATTERS OFF, I DIDN'T EVEN THINK TO TAKE A PAIN PILL, I GUESS I HURT TO BAD TO THINK. SO I WENT TO BED AND COULD NOT STAY ASLEEP FOR THE PAIN, SO I GOT UP AND REMEMBERED A PAIN PILL WHICH FELT LIKE IT STUCK IN MY THROAT, NO SLEEP TO SPEAK OF. THEN A REALLY BAD THUNDERSTORM HIT, THOUGHT MY MOBILE WAS TAKING OFF INTO ORBIT. MY DOG GOT IN BED WITH ME AND KEPT ME AWAKE EVEN LONGER, BECAUSE SHE IS DEATHLY AFRAID OF THUNDER. THEN MY NEIGHBOR BROUGHT THE PAPER INTO ME SO I DON'T HAVE TO GO OUT TO GET IT, THEN MY DAD CALLED WHO JUST HAD A STROKE A COUPLE OF NIGHTS AGO. EVER HEARD THAT SAYING "WHEN IT RAINS, IT POURS". SO..... I SPENT THE DAY RESTING, JUST STAYING IN MY BEDCLOTHES AND GOING TO SLEEP EVERY CHANCE I GOT. GOING TO BED EARLY TONITE TOO. NO HERX. JUST NEED SLEEP. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aussie Barb Research Team
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Barney you said you were going to rest up for the trip.. please take care.. Barb .... |
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BARNEY Moderator
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Barb, I only spent about 20 minutes raking, my muscles just don't like any work. I felt I needed to get used to walking again cause there is always a long way between flights in those airports. Otherwise,I am collapsed in the bed or recliner trying to get all kinds of rest for the trip. Had some bad news this morning, the gentleman who usually feed my dog when I go away, had a stroke. He is not back from the ER visit so I don't know how he is doing yet. He said he had some stiffness in his right side but doesn't seem to be paralyzed. Made other arrangements for my dog but am waiting to hear about my dear friend. I will behave myself. Thanks for reminding me. Love ya, xoxoxoxo Barney |
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BARNEY Moderator
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DAY 66, MAR 7, 05, BP 114/76 P 84 BENICAR 20MG Q3HRS, BENICAR 40MG AT BEDTIME, 50MG MINO, 1 ACIDOP. ON MAINTENANCE MINO TO BE ABLE TO TRAVEL AND NO LOSE ANY PROGRESS I'VE MADE TO DATE. JUST A FEW MORE DAYS UNTIL I LEAVE FOR THE CONVENTION. I CAN HARDLY WAIT. I AM SO PROUD OF MY PROGRESS ON MP. NO MORE NEBULIZER, NO MORE MIGRAINES, NO NECK ACHES, NO MORE CHEST PAINS, AND NO PROBLEMS WITH SMELLS. MY FRIENDS AND FAMILY ARE JUST BLOWN AWAY AT MY IMPROVEMENTS. TO BE MY FRIEND, YOU HAD TO WEAR FRAGRANCE FREE EVERYTHING, OTHERWISE I WAS ON THE NEBULIZER. I HAVE SOME GREAT FRIENDS WHO ACTUALLY WENT TO ALL THE PROBLEMS OF SEEKING OUT FRAGANCE FREE LAUNDRY SOAPS, DEODORANTS, SHAMPOOS, ETC. NOW THEY DO NOT HAVE TO DO THAT. I AM VERY GRATEFUL FOR THEIR FRIENDSHIP. I GUESS I SHOULD STOP BRAGGING ABOUT ALL MY IMPROVEMENTS, BUT I AM SO THANKFUL FOR MP, I COULD JUST EXPLODE. THANKS TREVOR!!!!!!!!!!! TO ALL OF YOU WHO ARE FAITHFUL TO MODERATE OVER US, THANK YOU, I KNOW IT MUST BE REALLY HARD TO LOOK AFTER ALL OF US, WHEN IN REALITY YOU DO NOT FEEL WELL EITHER....SO.....THHHHAAAAANNNNNKKKKKSSSSS!!!!! HANG IN THERE, WE WILL MAKE IT!!!!!!!!! BARNEY |
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jillian Member in Phase 2
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Barney, When you travel to the Conference, you may want to consider calling the airlines in advance and arrange wheelchair assistance. If you need it they'll meet you when you get to the airport and push you all around, to the ticket counter, to the plane, on the plane, off the plane, to connecting flight(s), etc. It's a wonderful service that has always been GLADLY performed for me or my room-mate. 'til later, Jillian Last edited on Wed Mar 9th, 2005 03:05 by jillian |
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BARNEY Moderator
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DAY 67 MAR 8,05 BP 112/92 P 87 BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 50MG MINO, 1 ACIDOP HAD A REACTION (AGAIN) TO CINNAMON, SUGAR WENT UP TO 316. ALSO CHEWED CINNAMON GUM AND MY TONGUE FEELS LIKE SOMEONE SCRAPPED IT WITH A SHARP KNIFE. AM TIRED, HAD TO GO OUT IN SUN TODAY (COVERED) AND HELP MY FRIEND WITH HIS TWO DOGS, SINCE HE IS IN THE HOSPITAL WITH A STROKE. OTHERWISE, FEELING FINE. LOOKING FORWARD TO THE CONFERENCE. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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JILLIAN, THANK YOU FOR THE INFO ON THE WHEELCHAIR, BUT I PREFER TO WALK, IF POSSIBLE, BECAUSE SITTING ON THE PLANE SO MUCH MAKES MY LEGS NEED THE EXERCISE. IF I DO FIND I NEED ASSISTANCE, I WILL APPROACH SOMEONE FOR HELP. I WILL WRITE YOU WHEN I GET BACK AND LET YOU KNOW HOW THE CONFERENCE WENT AND WHAT THE TRIP WAS LIKE. TAKE GOOD CARE OF YOURSELF AND I WILL TTYL LOVE BARNEY |
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BARNEY Moderator
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DAY 68 MAR 9, 05 BP 107/74 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 50MG MINO, 1 ACIDOP REACTION TO CINNAMON IS BETTER TODAY. ALMOST GONE BEEN A GOOD DAY, HAD TO GO DROP OFF SOME PAPERS AT DOCTOR'S OFFICE BUT WAS WELL COVERED AND WORE NOIRS. MY FRIEND IS HOME FROM HOSPITAL STAY DUE TO STROKE. HE IS UP AND AROUND AGAIN AND WILL FEED AMANDA (MY DOG) WHILE I AM AT THE CONFERENCE. I THOUGHT HE SHOULD REST MORE, BUT, HE SAYS HE FEELS GREAT. NO PARALAZIS (SP?) FROM IT. ALMOST PACKED. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 69, MAR 10, '05, BP 126/76 P92, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 50MG MINO, 1 ACIDOP GREAT DAY...RESTED ALL DAY FOR TRIP TO CHICAGO. SEE YOU ALL IN A FEW DAYS. TAKE CARE OF YOURSELVES. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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HELLO ALL, I MADE IT HOME WITHOUT COLLAPSING. BUT, LOOK OUT, YOU MAY NOT HEAR FROM ME FOR A DAY OR TWO. WE WILL SEE WHAT ALL THAT SUN AND LIGHT EXPOSURE DID TO TAKE A TOLL AND I'M SURE IT DID SOME DAMAGE. MY EYES FEEL SWOLLEN, ESPECIALLY MY RIGHT. MY ARM MUSCLES FEEL LIKE THEY ARE THE SIZE OF 'THE INCREIBLE HULK' FROM DRAGGING SUITCASES, BACKPACKS ETC THRU AIRPORT AFTER AIRPORT. BIG TOE HURTS A LITTLE. NECK HURTS A LOT, HEAD FEELS LIKE IT IS TO HEAVY FOR BODY AND I COULD GO ON AND ON BUT I'M SURE YOU WOULD RATHER HEAR ABOUT THE CONFERENCE. I DID NOT TAKE MY BLOOD PRESSURE THE WHOLE TIME I WAS GONE AND I DEFINITELY WAS NOT GOOD ABOUT BEING ON TIME AND EVEN REMEMBERING MY PILLS, BUT I DID DO THE BEST I COULD. YOU TALK ABOUT A GREAT CONFERENCE, MANY DOCTORS ATTENDED, THE FDA AND NIH SHOWED TOO. LOTS OF PEOPLE WHO ARE TEETERING ON THE FENCE AS TO WHETHER THEY WANT TO START MP. WE ENCOURAGED EVERYONE WE COULD. WE EVEN HAD A LADY FROM IRELAND ATTEND. DR M ...HE IS WONDERFUL. SO SWEET, SO KIND AND SO UNDERSTANDING OF HOW WE ALL FEEL. HE TALKED WITH ANYONE AND EVERYONE WHO NEEDED TO TALK WITH HIM AND HE REASSURED THE LADY FROM IRELAND SO THAT SHE DID NOT GO HOME WITHOUT HOPE. AND YOU KNOW ME AND MY BIG MOUTH....NO ONE ON THE PLANES, THE AIRPORTS OR THE CONFERENCE WAS SAFE FROM HEARING ABOUT MARSHALL PROTOCOL. I WAS ALL COVERED UP WITH CLOTHING AND THE NOIRS AND EVERYONE WAS ASKED WHY I WAS DRESSED LIKE THAT AND BELIEVE ME I TOLD EVERYONE WHO WOULD LISTEN. SOME PEOPLE EVEN HAD FRIENDS WHO HAD SARCOIDOSIS. I MADE THEM PROMISE THEY WOULD AT LEAST READ SOME OF OUR POSTS ON MP. AND JASON, DID YOU TURN YOUR COMPUTER OFF LAST NIGHT LIKE YOU PROMISED YOU WOULD? (HAHA) HOPE YOUR ARE DOING WELL AND GOT YOUR SCRIPS OR WILL GET THEM VERY SOON. ENJOYED YOU AND YOUR WIFE VERY MUCH. HOPE WE ALL MADE THE DIFFERENCE FOR YOU. BARB, YOU DOLL, THANKS FOR TOTALLY BEING THERE FOR EVERYONE WHILE WE ALL ATTENDED THE CONFERENCE, WISH YOU COULD HAVE BEEN THERE. WELL, I AM REALLY TIRED, JUST GOT HOME ABOUT 2 HOURS AGO AND MY EYE IS TRYING TO HAVE 'A RING AROUND IT' LIKE THE SOLAR ECLIPSE. HEY, MIKIE, HOPE YOU FEELING OKAY AND HEADING TOWARD YOUR SCRIPS TOO. KEEP US INFORMED SWEETIE. (HE IS OUR NEWFOUND FRIEND, 15 YEARS OLD AND WITH A HORRIBLE CASE OF SARCOIDOSIS. HANG IN THERE BABE, WE WILL MAKE IT!!!!!! GOOD NIGHT TO ALL. Barney ps SURE AM GLAD TO BE HOME. THANKS MUCHO GRACIAS DR M. YOU ARE THE GREATEST (YOUR WIFE AND DAUGHTER ALSO). |
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Aussie Barb Research Team
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Welcome *Home* Barney xox take care... thank you for your huge effort, Barb... |
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jsandman001 Member in Phase 2 
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Jason huh ..........hmmmm you must not have enjoyed us that much . Just playing with you. Its great that you got home ok. I hope you dont herx to bad from the light exposure and all the excitement. I want to thank you very much for the time you spent with me and my wife it really meant a lot to us. Yes i turned the computer off but it was late. My mind has been buzzing with things i heard at the conference and it has given me a bit of hope that i can get my life back. I just hope i have as much determination as you have when i start because i know YOU WILL MAKE IT !!! Thanks for everything, James Sanders |
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Reenie inactive member
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Barney, (James and all) Thanks so much for being at the conference for me too. I've had such an emotional day today, eyes welling up, trying to catch up on the board and reading all of your posts. Barney, get serious on that diet. We ALL want you to make it, as much as we all want to make it too. Hugs to you. |
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BARNEY Moderator
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REENIE, TODAY IS THE FIRST DAY OF MY NEW DIET, GETTING REAL SERIOUS AFTER TALKING WITH DR M AND DR N (I AM NOT GOOD WITH EVERYONE'S NAME AND I AM REALLY PAYING THE PRICE FOR THE TRIP), THEY ALSO TAUGHT ME A LOT TOO. THANK YOU REENIE FOR EVERYTHING YOU TAUGHT ME. ALL WILL HELP ME. YOU HAVE GOT TO KNOW THAT HEARING 'WATCH WHAT YOU EAT' FROM A BEAUTIFUL THIN WOMAN LIKE YOU IS HARD FOR SHORT, OVERWEIGHT ME TO EVEN BEGIN TO WANT TO LISTEN, AS I HAVE NOT BEEN THIN FOR MANY YEARS, BUT I SURE WANT TO TAKE OFF AT LEAST 50 LBS. AFTER THE TWO DOCTORS SAID THAT GLUCOSE WAS NOT GOOD FOR US TO HAVE, I BELIEVE THEY WERE SAYING IT IMPAIRED OUR HEALING PROCESS. I DO NOT WANT TO MISLEAD ANYONE, SO PLEASE CORRECT ME IF I AM WRONG. SOOOO .... AS MUCH AS I LOVE CERTAIN THINGS, I WILL TRY TO MAKE A BIGGGGGG SWING INTO BEING AND DOING AS MUCH AS I CAN TOWARD MY HEALING. I AM VERY GOOD ABOUT THE SUNLIGHT (WHEN I AM NOT TRAVELING, WON'T DO THAT FOR A WHILE). NOW, NEXT IS WORKING ON THE DIET. MY MIND (RIGHT NOW) IS GOING ARE YOU 'NUTS'. (HAHA) LOVE YA FOR ALL YOUR HELP, GOING TO REST AND WILL LEAVE YOU ALONE SO YOU CAN REST. MY DARN COUGH HAS RETURNED AND THAT MAKES IT REAL HARD TO REST. XOXOX BARNEY |
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BARNEY Moderator
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DAY 74 MARCH 15, '05, BP 109/69 P 79 BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, NO MINO, 1 ACIDOP, NO PAIN PILLS OTHER THAN BEING VERY TIRED, I AM DOING QUITE WELL. STRESS LEVEL IS A LITTLE ELEVATED. THEY HAVE MOVED MY DAD TO THE NURSING HOME FROM THE HOSPITAL SO HE IS NOW MORE CONTENTED WITH THE FACT HE AND WIFE ARE IN SAME NURSING FACILITY. THEY ARE RECEIVING VERY GOOD CARE AND ARE BEING REHABILITATED IN ORDER TO RETURN TO THEIR OWN HOME, HOPEFULLY SOON. THE NEXT NEW STRESS IS MY SON'S BP IS OUT OF THIS WORLD HIGH AND WILL BE GOING TO THE DOCTOR IN THE MORNING, UNLESS THEY DECIDE THEY SHOULD HAVE GONE TO THE ER TONITE. WHEN IT RAINS, IT POURS. TRYING TO STAY CALM, COOL AND COLLECTED THRU ALL THIS. DID BETTER WITH MY DIET TODAY. ALL SUGAR READINGS BELOW 180 UNTIL I GOT THE CALL ABOUT MY SON. TONITE IT WAS 218. I GOT A DOCTORS APPT TOMORROW MORNING AT 930AM, WILL SEE WHAT SHE THINKS. URNINATION IS FINE, WATER INPUT IS GOOD BUT NOT DYING OF THIRST, LEGS ARE NOT SWOLLEN, SO DO NOT BELIEVE I AM RETAINING FLUIDS. OTHERWISE EVERYTHING IS PEACHY DORY. COUGH I GOT UP WITH IS GONE AND HAS BEEN SINCE ABOUT 10AM. REMINDED ME OF THE 'GOOD OLD DAYS' WHEN I COUGHED CONTINUALLY. THE TRIP GAVE ME A MASSIVE OVERDOSE OF PERFUME, WHICH I BELIEVE TO BE TOO SOON AFTER THE RELIEF OF THE SMELL SENSITIVITIES. JUST WASN'T A LONG ENOUGH PERIOD OF TIME BETWEEN RELIEF AND MASSIVE OVERDOSE. AM DOING FINE IN THAT DEPARTMENT SINCE I AM BACK IN MY CAVE, NO ODORS, AND NO LIIIIGGGHHHTTT!! WE SURE HAD MORE THAN OUR FAIR SHARE OF LIGHT THIS WEEKEND, BUT IT WAS ALL WORTH EVERY MINUTE OF IT. GOOD NIGHT. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 76 MAR 17, '05 BP 103/67, P 81, BENICAR 20MG Q3H, BENICAR 40MG BEDTIME, MINO 50MG AT 9PM, 1 ACIDOP, 1 PAIN PILL Sorry I did not post last night, but about 545pm I fell asleep in the recliner, thinking it was only a catnap and I would go outside about 630pm and get my mail. Well, somewhere around 9pm, I awoke in a 'stupor' turned off almost everything and fell into bed not even remembering when my head hit the pillow. I was out like a light. Thru all this, I somehow took all my meds I needed to take. Had a lot of trouble with my eyes today. Have had my NOIRs on almost all day. Been on the computer several times today answering emails. I think I am now caught up with those. There are a few people I intend to write again. My shoulders hurt, which is par for the course. Still tired, but have not done anything but rest. The trip out yesterday to the doctor was hard, to much light exposure after the trip to Chicago. A lot of people are emailing me wanting to know my improvements so here goes: All eye pressure is gone. Have not had to use nebulizer or inhalers since I started MP 1/1/05. No longer 'tripping' over my tongue to talk. No steriod nose sprays or Zyrtec. Hearing is better in right ear, can hear on phone now. No more pain in large toe. No vertigo problems, no more 'bouncing off walls' or 'falling into walls'. No more night sweats. No more chest pain or irregular heart beats. No more obnoxious urine odor. No more Migraines. No more restless leg syndrome. and BEST of all no more smell sensitivities, able to be around perfume without having a breathing (asthma) problem. Had I not have achieved the last improvement, I would not have been able to attend the conference, it would have been impossible. I handed out a list of these improvements to anyone who would take one at the conference. I even gave one to the lady from the FDA, not knowing who she was. Everyday on Marshall Protocol is such a blessing to me. Yes, it is hard to stay in the house out of the sun and not eat some of my favorite foods, but, it is worth every minute of it. Nothing in the herxheimer reactions in Marshall Protocol is as bad to deal with as a lifetime of sarcoidosis is. Thank you to everyone who made it possible for me to attend the Conference. Loved meeting other MPers. They are all sweethearts. Good night to all. HANG IN THERE, WE WILL MAKE IT!!!!! Barney |
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BARNEY Moderator
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DAY 77 MAR 18 '05 BP 110/70 P 84 BENICAR 20MG Q3HRS BENICAR 40MG BEDTIME, NO MINO, 1 ACIDOP, NO PAIN PILLS WAS AWAKENED AT 1230AM BY NEIGHBOR'S PHONE CALL THINKING HE WAS HAVING ANOTHER STROKE, HE CAME DOWN AND WE TOOK HIS BP FOR THE NEXT 2 HRS. HE WENT HOME BELIEVING HIS LOW BP WOULD CONTINUE. HE IS FINE TODAY, WE HAVE TAKEN HIS BP ALL DAY. WENT BACK TO BED AT 2AM AND WAS BACK UP AGAIN AT 6AM. DID DISHES, PUT NEWSPAPERS AWAY AND JUST GENERALLY RESTED ALL DAY. BY 3PM I WAS VERY FATIGUED AND WENT BACK TO BED UNTIL 530PM. TOOK A SHORT WALK WITH MY DOG AND AM STILL SO FATIGUED DECIDED I WILL GO BACK TO BED NOW (8PM). CAN HARDLY HOLD MY EYES OPEN. CALVES OF LEGS ARE REALLY TIGHT FEELING. GOOD NIGHT!!! HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 78, MAR 19, '05, BP 106/67 P74, BENICAR 20MG Q3H, BENICAR 40MG BEDTIME, 75MG MINO, 1 ACIDOP, NO PAIN PILLS DID A FEW THINGS AROUND THE HOUSE, HAD MY NEIGHBOR DOWN FOR DINNER, HE IS DOING WELL, HIS BP MONITOR IS OUT OF SINC AND HE IS NOT GETTING ACCURATE READINGS, SO I HAVE BEEN TAKING HIS BP. ALL UNDER CONTROL NOW. THANK GOD, IT IS DIFFICULT TO STAY UP HALF THE NIGHT. NOT MUCH ELSE GOING ON. FEELING FINE. GOOD NIGHT! HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 79, MAR 20, '05, BP 129/82, P73, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, NO MINO, 1 ACIDOP, NO PAIN PILLS I keep forgetting to mention that my hips are bothering me from time to time. They used to be a lot worse. I have an upset stomach. Food is getting less and less appealing to me. Nothing even sounds good. I drink a lot of water (as we are told helps with MP). No herxing except hips hurting and nausea. Really light tho. I have been reading a lot of posts and have noticed that lots of people are having tremendous herx problems, but at the same time I also noticed they are not following the protocol to start mino at 25mg and increase in 25mg increments weekly after herx stops. Could this be the problem for their severe herxs? Sorta bored here. The wind must be blowing about 40-50 MPH, makes it difficult to get to go out after dark. Burrrr too cold with that wind. Of course, it is now the windy season here and the allergy season, but .... I seem to be doing well without any problems. Good night all!! HANG IN THERE, WE WILL MAKE IT!!! Barney |
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BARNEY Moderator
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I forgot to mention a suggestion that my doctor made: Since I will soon be starting Zithromax (I hope), rather than trying to cut the pill, she suggested giving me liquid, (pediatric) Zithromax so I could be more exact in my measurement. Comments please? Barney |
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Aussie Barb Research Team
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Barney, Meg says: "Barney can ask her pharmacist how long the solution would last considering that she will only be taking very small amounts every 10 days. It may expire before she can use it all. The Z tablets split pretty easily even down to small amounts." Barb ... |
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BARNEY Moderator
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Barb, Will get my doc to write a new scrip. Thanks for info. Love ya, Barney DAY 80, MARCH 21, 05 BP 121/72 P 86, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 100MG MINO, 1 ACIDOP, 1 PAIN PILL (HAD STRESS HEAD PAIN) Rough day today, mentally, too much going on with my dad and son and just had a hard time coping. Got out after dark and went to Las Cruces, got speakers for my computer and ink for my printer. Two people have sent ecards with sound and I couldn't hear them. I felt it would do me good to get out, but I sure had to talk myself into it. Getting to be a real cave dweller even after dark. I'm really sleepy, so I'm going to bed. Good night!! HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Reenie inactive member
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BARNEY says, "I felt it would do me good to get out, but I sure had to talk myself into it. Getting to be a real cave dweller even after dark." I feel the same way... I barely go out or get dressed for that matter. Barb NEVER goes out. I KNOW this is all part of the process of dealing w/herx and being cautious not to get too much light. I'm sure when we're better, the world outside, will be there for us and we'll be more eager to get out into it. |
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BARNEY Moderator
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Reenie, Thanks for the encouragement. It has been a rough two weeks. Dad in a nursing home, which I had promised would not happen. My son with heart problems (bradycardia, just diagnosed). And other things I will not worry you about. I felt I needed to get out just for my own sanity. I got speakers for my computer while I was out and what a pleasure. My computer actually talks now (haha). THANKS, REENIE!!! Loveya Barney HANG IN THERE, WE WILL MAKE IT!!! |
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BARNEY Moderator
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DAY 81, PHASE I, MAR 22, 05, BP 112/78 P 84, BENICAR 20MG Q3HRS, BENICAR 40 MG BEDTIME, NO MINO, 1 ACIDOP, 1 PAIN PILL FOR STRESS HEADACHE Been a sit in the recliner and do nothing day for most of the day. I took a nap due to such fatigue and felt I needed the rest after the trip last nite. Slept so soundly, when my neighbor brought my mail and knocked on the door, I jumped up and could not get my mind to understand it was afternoon and this was a nap, not morning and I was just arising. Wow!, what an intense sleep. Had to go out after dark and fill the water buckets for my dog and make sure her feeder still had food and biscuits in it. Checked my oil in my car and trans fluid, took filled water jugs out to car for my friend and discovered I bought the wrong size pads for my cooler. I am a firm believer that I better get them exchanged and put in the cooler and the water hooked up, it is going to get real warm in here real soon and I will not be able to open doors and windows. Also, filled the dishwasher. That about wore me out, so I watched tv but am still very fatigued but I think a good night's sleep will help that. Have to go have my 'D' tests at 8am. That means being out in the 'suuuun', (yuch!!!). Otherwise doing okay, and everyone else is getting better (I hope). HANG IN THERE, WE WILL MAKE IT!!!! Barney |
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BARNEY Moderator
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DAY 82, MAR 23, 05, BP 114/44 P 67, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 1 ACIDOP, NO MINO(DUE TO LIGHT EXPOSURE RESULTS) AFTER READING PART OF MY POST FROM LAST NIGHT, I THINK WE CAN ADD BRAIN FOG TO THE LIST. FIRST SENTENCE DID NOT MAKE A WHOLE LOT OF SENSE. HAD A VERY WIERD NIGHT. WENT TO BED AT 1230AM, AWOKE AT 230AM FEELING LIKE I HAD SLEPT UNTIL 8AM, BACK TO BED AND SLEPT UNTIL 6AM FOR MEDS, THEN FELT AS THO I HAD SLEPT 12 HOURS. NIGHT SEEMED EXTREMELY LONG EVEN THO IT WAS SHORT. REALLY STRANGE FEELING. HAD AN 8AM BLOOD DRAW THIS MORNING FOR 1,25D AND 25D TESTS. GOT UP AT 6AM TO TAKE MEDS AND LEFT TOO EARLY FOR APPT THUS HAVING TO SIT IN CAR OUTSIDE DOC'S OFFICE WAITING FOR THEM TO OPEN. PARKED IN SHADE OF BUILDING AND KEPT MY EYES CLOSED MOST OFTHE TIME. I WAS WELL COVERED AND HAD MY NOIRS ON. EXCHANGED MY COOLER PADS, BOUGHT SOME GAS THAT THEY MUST HAVE MADE OUT OF GOLD FOR WHAT THEY CHARGED FOR IT, GOT SOME GROCERIES AND STOPPED TO HELP MY FRIEND LEARN TO SEND AN EMAIL TO HER DAUGHTER. SHE IS 82 AND JUST LEARNING TO USE THE COMPUTER. LIKE I AM THE ONE TO BE TEACHING HER, I JUST LEARNED HOW MYSELF. GOT HOME ABOUT 1130AM, EXHAUSTED. ATE SOME LUNCH, FELL INTO A DEEP SLEEP IN THE RECLINER FOR ABOUT 3 HOURS, WAS NAUSEATED WHILE OUT AND AFTER I GOT HOME. EXTREMELY FATIGUED. MUSCLES ARE ACHING, BACK IS HURTING ABOUT HALF WAY DOWN MY SPINE, JUST A PHYSICAL WRECK. I DECIDED IT WAS NOT A GOOD IDEA TO TAKE MINO SINCE I WAS ALREADY A BASKET CASE. DARN, I HATE GOING OUT DURING THE DAY. I WISH THE DOC'S HAD NIGHT TIME HOURS. THE BUGS ARE HAVE A REVOLUTION IN MY BODY AND I THINK I AM THE ONE LOSING. GOING TO BED NOW!! GOOD NIGHT, HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 83, MAR 24, 05, BP110/80 P86, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 100 MG MINO, 1 ACIDOP, NO PAIN PILLS SORTA HURT ALL OVER MILDLY, JUST NUSIANCE ACHES, I BELIEVE TO BE LEFT OVERS FROM GOING OUT YESTERDAY. SLEEPY A LOT TODAY BUT DID NOT TAKE A NAP. CAN HARDLY HOLD MY EYES OPEN NOW. GONNA STAY UP A FEW MORE MINUTES AND TAKE MY 40MG BENICAR AND 100MG MINO BEFORE I GO TO BED. SUGAR READINGS ARE GETTING BETTER. MY SON HAS AN ENLARGED HEART AND BRADYCARDIA (SLOW HEART BEAT) BUT STILL REFUSES THE IDEA OF 'D' TESTS. YOU CAN LEAD A HORSE TO WATER, BUT YOU CAN'T MAKE HIM DRINK. WE'LL SEE WHAT HE THINKS LATER. GOOD NIGHT ALL !!! HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Reenie inactive member
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Barney, Whenever you get too much sun/light, the effects from it will decrease quicker if you increase Benicar dosing frequency. (just a reminder) Take care and good night! |
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BARNEY Moderator
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DAY 84, 3/25/05, BP 137/88 P 82, PHASE 1, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, NO MINO, 1ACIDOP, 1 PAIN PILLS MINOR ACHES AND PAINS, MORE IRRITATING THAN ANYTHING BUT TOOK A PAIN PILL TO EASE IT TO NOT IRRITATE. HELPED. FATIGUED AS USUAL. OTHERWISE NOTHING GOING ON. HAPPY EASTER EVERYONE!! GOOD NIGHT!! HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 85, 3/26/05, BP 119/76 P72, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME 1 ACIDOP, 100MG MINO, NO PAIN PILLS. Got up this morning with such good intentions of getting a lot of work done, .....surprise not much got done. Pretty much an uneventful day. |
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BARNEY Moderator
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DAY 86, 3/27/05, PHASE 1, BP 133/85 P 87, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 1 ACIDOP, NO PAIN PILLS GOT UP WITH SOMEWHAT OF A COUGH, SUBSIDED WITHIN 2 HRS. RESTED A LOT TODAY. DID 2 LOADS OF LAUNDRY. DECIDED TO CUT SOME BOARDS I NEEDED BUT WAS SO FATIGUED I COULD HARDLY FINISH. BODY FEELS AS THO EVERY MUSCLE WANTS TO TAKE A BREAK. I AM STARTING TO REALLY FEEL MY AGE PLUS A FEW YEARS ADDED ON TONIGHT. GOING TO GO REST. GOOD NIGHT!! HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 87, 3/28/05, BP 127/75 P 84, PHASE 1 BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 100MG MINO, FORGOT ACIDOP TODAY, NO PAIN PILLS. RESTED ALL DAY, WAS REALLY FATIGUED AND THEN I TOOK MY MINO AT 9PM AND WOW.....THE FATIGUE IS REALLY INCREASING AND I HAVE PAINS IN PLACES I DIDN'T REMEMBER COULD HURT. ARMS ARE SO TIRED I CAN HARDLY LIFT THEM, BREASTS ARE HURTING, NECK IS STIFF, SHOULDERS HURT, EYES ARE TRYING TO NOT SEE TONITE AND HIPS WERE TENDER TODAY. OTHER THAN THAT....I AM OKAY. (HAHA) GOOD NIGHT!! HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 88, 3/29/05, BP 105/74 P 84, PHASE 1, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 1 ACIDOP, 1 PAIN PILL Got up with shoulders/neck are hurting. Used tens unit for about 1/2 hour, put rice (cold) sox on and then changed to a rice (heated) sox and took a pain pill. Got good relief before noon. (Rice sox is a man's tube sock filled with 4 cups uncooked long grain rice and heated in microwave (never over 2 minutes). (cold rice sox is same thing only kept in freezer in plastic bag, never intermix). They are cheap and work really good. Doing a lot better tonight than last night but I am sleepy and going to bed. Good night!! HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 89, 3/30/05, PHASE 1, BP 102/76 P 84, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 100MG MINO, GOOD DAY AND GOT A LOT DONE AROUND HOUSE (INSIDE). EVENING WAS DIFFERENT, GOT EXTREMELY TIRED AND SLEEPY. AM GOING TO BED BEFORE 10 PM. HAD A TOUCH OF ARYTHMIA THIS EVENING. NOTHING DRASTIC. GOOD NIGHT!! HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 90, IT SEEMS IN THE PERIOD OF 12-24 HRS AFTER MINO, THAT MY BODY JUST MOVES SLOWER. MY THOUGHT PROCESS IS SLOWED CONSIDERABLY. I FEEL AS THO I DON'T CARE IF I TALK WITH ANYONE. HAVE NO DOUBTS ABOUT LYING DOWN FOR A NAP OR TWO OR THREE. IT IS ALMOST LIKE LIFE IS IN SLOW MOTION. ACHES AND PAIN HERE AND THERE BUT NOTHING REAL BAD. EYES ITCHY. SHOULDERS HURTING SOMEWHAT (USED HEATED RICE SOX). LOOKING FORWARD TO MY COMPANY COMING THIS WEEKEND BY I MAY SKIP MY MINO DOSE SO I CAN ENJOY THE BABIES AND NOT BE SO SLOW-MINDED. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 91, APRIL 1, 2005, PHASE 1, BP 100/68 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 3 PAIN PILLS, NO MINO Got up with lower back pain which intensified and stayed with me all day. Took pain meds every 4 hrs. Didn't even touch the pain. Just suffered thru. Pain continued and started making the entire spine area hurt. Will be glad to be going to sleep soon. Other than this and some real fatigue, I am doing fine. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Aussie Barb Research Team
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Dear Barney Have you tried increasing the Benicar frequency to see if that helps the pain? ... Barb ... |
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BARNEY Moderator
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Barb, I already do 20mg Benicar Q3hrs. I am having a hard time getting anymore free Benicar and I really cannot afford $133.00 for 90 tabs. It takes 120 tabs just for 1 month on the Q3hrs. I don't know what else to do. Would I increase to 20mg Benicar Q2hrs? Love you girl. xooxoxoxox Barney |
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Aussie Barb Research Team
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Barney hmmm... I understand about cost.. I take my Benicar Q2H most of the time to keep symptoms managable.. not sure how long it is since you took mino dose> so ... more info: skipping your mino dose may give you more herx than changing to 50mg daily while you have company etcc.. another way of relieving symptoms if they get *too hot* is to drop back the mino from the 100mg dose QOD to 75 mg QOD.. and see if you still herx but with less pain... whilever you are herxing you are not stalling.. all best, Barb ... |
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BARNEY Moderator
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Barb, I have been on 100mg Q48hrs for a week or so now. I think I will do as you mentioned and take 50mg every day until my company leaves (only 2 days). Thanks Barb for the reminder. Love to you xoxoxoxox Barney |
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BARNEY Moderator
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ADDITIONAL DAY 91 POST: Took 50 mg mino as maintenance while I have company. Barney |
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BARNEY Moderator
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DAY 92, APRIL 2, 2005, PHASE 1, BP 112/73 P 93, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 50MG MINO, NO PAIN PILLS A LITTLE TOOTH ACHE IN ONE TOOTH ON LEFT SIDE. SHOULDERS HURT A LITTLE AND THAT'S ABOUT IT OTHER THAN BEING TIRED. STILL HAVE COMPANY. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 93, APR 3, 05, PHASE 1, BP 110/66 P82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO COMPANY HAS GONE HOME!! HAD REALLY MIXED EMOTIONS ABOUT THAT. WAS GLAD THEY WENT HOME CAUSE THE HOUSE WAS QUIET AGAIN, BUT CRIED CAUSE THE HOUSE WAS LONELY. FELT LIKE THE RAGING HORMONES OF PREGNACY (HAHA). LEFT EYE AND LEFT SIDE OF NOSTRIL BURNING (OR DRY), NOT SURE WHICH. VERY TIRED AS I DID NOT SLEEP MUCH LAST NIGHT. TOOK 2 NAPS AFTER THE GRANDBABIES LEFT. WENT TO STORE TO PICK UP COOLER PARTS (AFTER DARK). ALSO, FOUND A PAIR OF CLIPON SUNGLASSES (AMBER) THAT IN COMBINATION WITH THE TENT OF MY PERSCRIPTION GLASSES, THE HEADLIGHTS LOOK AMBER AND DO NOT GLARE, BUT YET I CAN SEE PEOPLE WALKING ON THE SIDE OF THE ROADWAY. BEST $10.99 I'VE SPENT IN A WHILE. ALSO PICKED UP A VERY BROADBRIM HAT FOR SUMMER. VERY TIRED, GOING TO BED SO I CAN GET UP BEFORE SUN TO FINISH PUTTING THE COOLER TOGETHER. GOT PRETTY HOT INSIDE WITHOUT BEING ABLE TO OPEN WINDOWS OR DOORS. GOOD NIGHT!! HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 94, 4/4/05, PHASE 1, BP 132/56, P 80, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, 1 PAIN PILL GOT UP AT 425AM, HAD INTENDED TO GET UP AT 5AM TO PUT THE PADS IN MY 'SWAMP COOLER'. IT IS GETTING PRETTY WARM IN HERE JUST ABOUT 4PM AND SINCE I CAN'T OPEN DOORS OR WINDOWS, I FELT IT WAS TIME. COULD NOT SLEEP DUE TO WORRYING ABOUT GETTING THIS DONE BEFORE THE SUN CAME UP SO I JUST WENT AHEAD AND GOT UP EARLY. HAD TO CLEAN THE WINTER DIRT OUT OF IT, REPLACE THE PUMP AND CONNECT AND INSTALL THE PADS, REPLACE THE WATER LINE, TURN THE WATER VALVE ON, WAIT FOR IT TO FILL AND THEN ....WOULDN'T YOU KNOW IT, THE WATER WOULD NOT FLOW THRU AND I COULD NOT FIND MY REAMER. TURNED IT OFF AND ON SEVERAL TIMES TRYING TO GET THE WATER TO FLOW BEFORE THAT 'BLASTED SUN' CAME UP. SUCCESS AT LAST. THE NEXT THING WAS NOT PLEASANT. I HAD BENT OVER SO LONG PUTTING THE PADS IN, THAT I COULD BARELY WALK. AT ONE TIME, I THOUGHT I NEEDED A CANE OR I WAS GOING TO HAVE TO CRAWL FROM ROOM TO ROOM. I DON'T EVER REMEMBER HURTING SO BAD AND FEELING 100 YEARS OLD. I HURT REALLY BAD FROM MY WAIST DOWN. THERE WAS NOT A MUSCLE THAT WAS NOT COMPLAINING. TOOK A PAIN PILL AND RESTED FOR HOURS. FINALLY, RELIEF. REST OF DAY WAS GOOD EXCEPT FOR BEING TIRED FROM GETTING UP SO EARLY. TOOK A SHORT NAP IN THE RECLINER. WILL PICK UP MY SECOND ANTIBIOTIC TOMORROW AND GO TO PHASE 2. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 95, 4/5/05, PHASE 1, BP 104/72, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 1 ACIDOP, NO MINO, 1 PAIN PILL LEFT SIDE OF FACE INCLUDING EYE AND NOSE WERE HURTING/BURNING MOST OF MORNING. USED MOSTLY MASSAGE TO HELP ELEVEATE. SUBSIDED BY NOON. TOOK A NAP IN THE RECLINER, THEN WENT TO TOWN (IN THE SUN, COVERED COMPLETELY PLUS NOIRs). HAD TO PICK UP MY Z. IF LIGHT EXPOSURE CALMS DOWN I WILL TAKE Z IN MORNING. AM EXTREMELY TIRED FROM TRIP TO TOWN. HAVE DECIDED TO ALLOW MY FRIEND TO DO ALMOST EVERYTHING FOR ME IN TOWN DURING DAYLIGHT HOURS THAT DOES NOT REQUIRE MY PRESENCE. I DO NOT LIKE THE FEELING OF FATIGUE THE SUN GIVES ME. I GET SO TIRED, I DO NOT ACCOMPLISH EVERYTHING I SET OUT TO DO IN TOWN. AM GOING TO BED!!!!!!!!! HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 96, 4/6/05, PHASE 2, DAY 1, CYCLE 1, BP 108/65 P73, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 1 ACIDOP, NO MINO, 2ND ANTIBIOTIC, NO PAIN PILLS NOTHING EVENTFUL TODAY. WAS REALLY SURPRISED THAT THE LIGHT EXPOSURE WAS A LOT MILDER THAN IN PREVIOUS TIMES. VERY TIRED AT THE TIME BUT A LOT BETTER NOW. HAD A SLIGHT HEADACHE FOR ABOUT AN HOUR THIS EVENING, TOOK A NAP AND IT WAS GONE. HANG IN THERE, WE WILL MAKE IT!!! BARNEY TONIGHT IS THE FIRST DAY OF CYCLE 1. SO PROUD TO HAVE GOTTEN HERE. |
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Aussie Barb Research Team
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Thank You Barney for posting and Congratulations on getting to phase 2. all the best, Barb ... |
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BARNEY Moderator
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DAY 97, 4/7/05, PHASE 2, DAY 2, CYCLE 1, BP 98/59 P 92, BENICAR 40MG MIDNIGHT, BENICAR 20MG Q3HRS, NO MINO, NO 2ND ANTIB, 1 ACIDOP, 1 PAIN PILL Just a little achy this morning, took pain pill to knock off the edge, extremely tired. Rested all day and slept a little in the recliner. Had a hard time going to sleep and staying asleep. I actually took a shower and got dressed, all in one day. Went out after dark to get some groceries and just walk around in the store. Visited my friend for about 15 minutes. Talked with my dad, he is doing better and that made me feel better. My grandkids asked me to come up to Albq and stay for a week but I did not feel capable of driving that far (250miles) even tho I would go at night. Just to tired right now. Going to try to get up off my duff and at least get the dishes in the dishwasher. I need to get a lot more done, but all I get done is thinking about it. Just too tired to move that much. Otherwise, I am fine. HANG IN THERE, WE WILL MAKE IT!!!! Barney |
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DNStog Moderator 
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Hi Barney, Happy to see so many of your symptoms are easing up or hopefully going away forever. Know it's hard to predict as we go through the MP phases which ones want to revisit us. I'm at day 100 on MP, 2nd go round of Mino. 75mg after taking a vacation break. Like you, most of my symptoms have packed up and left, except the loss of energy and strength. I have days when I think I must have a bad case of the lazies since I can't seem to get anything done; and let's face it, the thought of any kind of housework does not bring joy to my heart. Anyway, it helps me to realize I'm not going through the MP phases without the validity of others with similar symptoms. Hang in there and, yes, we will make it, Barney!!!! Now I need to go lay down, again. Donna |
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spacee inactive member
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Hey Barney...I'm in the "take a bath and get dressed all in one day group too". Just checking on you.... Spacee |
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BARNEY Moderator
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DAY 98, 4/8/05, PHASE 2, DAY 3, CYCLE 1, BP 108/74, P90, 1 ACIDOP, BENICAR 40MG MIDNIGHT, BENICAR 20MG Q3HRS, 100MG MINO DONNA, YOU HAVE IT RIGHT, I AM GOING TO GO LAY DOWN HERE IN A FEW MINUTES. SEEMS LIKE I AM JUST SO FATIGUED I CAN HARDLY PUT ONE FOOT IN FRONT OF THE OTHER BUT ON THE OTHER HAND I FEEL LIKE I AM JUST BEING LAZY. I HAVE HAD ONE OTHER THING THAT I KEEP FORGETTING TO MENTION. I AM SURE IT IS A HERX AND I HAVE HAD IT SEVERAL TIMES. IT FEELS LIKE MY WHOLE BODY IS 'QUIVERING' INSIDE. IT IS LIKE WHEN YOU PUT YOUR HAND ON THE REFRIGERATOR AND FEEL THE VIBRATION OF IT RUNNING. WEIRD BUT NOT PAINFUL. I DID GET MY BEDDING CHANGED, THE DIRTY DISHES ARE SITTING IN THE SINK AND THE CLEAN DISHES ARE STILL IN THE DISHWASHER, BUT MOSTLY I SAT IN THE RECLINER AND DOZED OFF EVERY CHANCE I GOT. I DID MAKE IT TO WALMART AND AUTOZONE AFTER DARK. MY DOG LOVES TACOS FROM TACO BELL SO WE WENT THERE TOO. JUST CONSTANTLY SLEEPY BUT SOMEWHAT HAVING DIFFICULTY GOING TO SLEEP AND STAYING THAT WAY A LOT BECAUSE I AM JUST TOO TIRED. WE WILL SEE IF I HAVE ANY ENERGY IN THE MORNING, MAYBE I CAN PUT THE DISHES UP OR SOMETHING. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Aussie Barb Research Team
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Barney re the quivering and fatigue etc... if the herx is too much you can decrease the mino to 50mg to help.. that is ok.. all best, Barb ... |
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BARNEY Moderator
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Barb, The quivering comes and goes and is not difficult to handle, it is okay, just weird. The fatigue is okay too, I just rest a lot. I am a hyper-type person and the fatigue keeps me from being hyper. I look around the house and just say "Oh well, I will get it done .... one day soon". Since I am the only one who has to look at it, that's okay with me. Would have liked to gone to Albq this week(had an invite from the grandkids) but I did not feel up to a 300 mile drive with all those headlights coming at me, despite the new driviing lens clipons I found (they make the headlights look amber and I can still see the edge of the road for someone walking). Then have to cover windows when I got there. I'll just stay in my cave and rest. As long as the PAIN is not bad, the fatigue and quivering are okay. When I can't make it to the fridge or the bathroom from fatigue, then that will be unbearable. Thanks for the suggestion, I definitely will keep it in mind. HANG IN THERE, WE WILL MAKE IT!!! Love, Barney xoxox |
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BARNEY Moderator
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DAY 99, 4/9/05, PHASE 2, DAY 4, CYCLE 1, BP 117/78 P 78, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, 1 ACIDOP, TOOK 2ND ANTIB ON 4/6/05, 1 PAIN PILL, 2 TYLENOL 650MG STARTED THE DAY WITH LOWER BACK PAIN AND SORE (R) HIP, HEAD/NECK ACHE, AND NAUSEA MOST OF DAY (NOT TOO BAD). TOOK PAIN PILL, PAIN SUBSIDED BUT RETURNED LATER. DECIDED TO TRY 2 TYLENOL 650MG. THEY WORKED GOOD. LAID DOWN FOR A NAP ABOUT 430PM AND JUST WOKE A FEW MINUTES AGO AND REMEMBERED I NEEDED TO POST. THRU ALL THE SLEEPING (WHICH WAS GOOD), I RAISED UP LONG ENOUGH TO SWALLOW MY MEDS. I LAY MY NEXT PILL OUT AND SIT IT BESIDE OF A GLASS OF WATER, THAT MAKES IT REAL EASY TO TAKE IT AND GO RIGHT BACK TO SLEEP. I AM AMAZED AT FEELING SO WELL TODAY. HAD LOTS OF GOOD PHONE CALLS, BUT MISSED ONE I HAD REALLY ANTICIPATED WHILE SLEEPING. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY THAT IS THE EVENTS OF MY DAY, WE WILL SEE WHAT TOMORROW BRINGS. |
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BARNEY Moderator
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DAY 100, 4/10/05, PHASE 2, DAY 5, CYCLE 1, BP 115/80 P 89, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO HAD A LITTLE LOWER BACK PAIN NOT ENOUGH FOR PAIN PILL. TIRED-NOT BAD. HAD SOME REALLY THICK PHYLEM. WIND IS HOWLING AT ABOUT 50 MILES PER HOUR. ABOUT 430PM, STARTED FEELING REALLY FATIGUED AND COULD NOT KEEP FROM CATNAPPING THRU ALL THE TV PROGRAMS I HAD PLANNED TO WATCH. FEELING SAD. GOING TO BED AT 10PM. OVERALL NOT A BAD DAY. REALLY EXPECTED PHASE 2 TO BE A WHOLE LOT ROUGHER THAN PHASE 1, NOT BAD SO FAR. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 101, 4/11/05, PHASE 2, DAY 6, CYCLE 1, BP 101/65 P 96, BENICAR 20 MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 1 PAIN PILL (LATE PM), NO ABX LEFT RIB (I CRACKED YRS AGO) TWINGED ALL DAY OFF AND ON. DID WELL MOST OF DAY OTHER THAN THAT DARN CATNAPPING EVERYTIME I SIT DOWN. WENT TO TOWN AFTER DARK (FINALLY STAYED AWAKE LONG ENOUGH), WENT TO MY 82YR FRIEND'S HOUSE AND HELPED HER REPROGRAM HER VCR AND RETRIEVE HER EMAILS. ALMOST COULDN'T THINK WELL ENOUGH TO GET THE VCR REPROGRAMMING. STILL SCRATCHING MY HEAD OVER ONE PART OF IT AND CAN'T REMEMBER WHAT I AM DOING WRONG. WENT TO GET SOMETHING TO EAT AT A RESTAURANT (THIS IS VERY UNUSUAL FOR ME). WENT TO WALMART AND FOUND REDISHADES FOR $3.88. GOT HOME AROUND MIDNIGHT. fILLED THE DOG'S BUCKET OUTSIDE, EMPTIED THE TRASH, YOU KNOW, ALL THOSE THINGS WE CAN NOT DO IN THE DAYLIGHT HOURS. AM SO TIRED I CAN HARDLY TYPE THIS. MOST OF THE DAY WAS UNEVENTFUL AND REALLY THOUGHT I HAD GOTTEN AWAY WITH LITTLE PAIN UNTIL THE SHOULDES STARTED AFTER 7PM. STILL TOLLERABLE, BUT HURTS BAD ENOUGH. THOUGHT I WOULD HERX WORSE TODAY, WAS REALLY EXPECTING IT TO HIT LIKE A TON OF ROCKS.WE'LL SEE WHAT TOMORROW BRINGS. HERX IS LIKE A BOX OF CHOCOLATES, YOU NEVER KNOW WHAT YOU ARE GOING TO GET. (HAHA) HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 102, 4/12/05, PHASE 2, DAY 7, CYCLE 1, BP108/70 P 87, BENICAR 40MG MIDNIGHT, BENICAR 20MG Q3HRS, 1 ACIDOP, 100 MINO, NO PAIN PILLS HIPS AND KNEES CONTINUE TO FEEL AS THO THEY ARE 150 YEARS OLD, BUT ARE STILL WORKING IF I GO SLOWER GETTING UP. GOT A LITTLE HOUSEWORK AND COOKING DONE TODAY. BRAIN FEELS A LITTLE LESS FOGGY THE LAST COUPLE DAYS, A LITTLE MORE HUMAN FEELING. GOT A SHOWER, SHAVED MY LEGS, CUT AND WASHED MY HAIR AND GOT DRESSED ALL IN ONE DAY. HOOOORAY!! HAD TO LEAVE THE HOUSE ONE HOUR BEFORE SUN WENT DONE BECAUSE THE PHARMACY HAD MY PILLS ALL MESSED UP. I EVEN HAD SOMEONE GO PICK THEM UP ORIGINALLY SO I DID NOT GET ANY LIGHT EXPOSURE. NEVER AS YOU PLAN NO MATTER HOW HARD YOU TRY. WILL SEE HOW MUCH DAMAGE THE SUN EXPOSURE DID TOMORROW. TONITE EYES ARE EXTREMELY DRY AND ITCHY, SAME AS ALWAYS WHEN I HAVE SUN EXPOSURE. I USED AN UMBRELLA IN ADDITION TO MY COVERUP HOPING THAT WOULD ADD PROTECTION. WE WILL SEE. LAID DOWN TO REST FROM 3-6PM. I AM GETTING TO BE QUITE A CLOCK WATCHER, SO THAT I CAN GO OUT AFTER THE SUN GOES DOWN. I HAVE THIS CHART I PULLED UP OFF THE INTERNET TELLING ME WHEN THE SUN GOES DOWN IN MY AREA. HELPS A LOT, SO I DON'T LOOK OUT THE DOOR TOO SOON. HANG IN THERE, WE WILL MAKE IT!!!!!! BARNEY |
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BARNEY Moderator
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4/13/05 JUST TALKED WITH DOC'S OFFICE. ONE WEEK AFTER LIGHT EXPOSURE GOING TO CONFERENCE MY: 1,25D 52 25D 22 PREVIOUS READINGS 1,25D 53 25D 25 NOT TOO MUCH OF A DECREASE, BUT AT LEAST IT IS A DECREASE. I AM VERY GOOD WHEN I AM HOME TO AVOID GOING OUT BEFORE DARK UNLESS IT IS ABSOLUTELY NECESSARY. I AVOID VIT D IN FOODS LIKE THE PLAGUE. I COOK FROM SCRATCH TO AVOID VIT D. I HAD TO GO OUT LAST NIGHT BEFORE THE SUN WENT DOWN (FULLY COVERED WITH NOIRS AND CLIPONS TOGETHER) AND TODAY MY FACE IS PUFFY AND MY EYES HURT SO BAD IT IS HARD TO EVEN KEEP THEM OPEN. I WISH I COULD SLEEP BUT I CAN'T. GOING TO TAKE PAIN PILL AND SEE IF THAT HELPS. WILL ALSO INCREASE MY BENICAR TO Q2HRS FOR THE NEXT 12 HRS. I AM OKAY, IT IS NOT THE WORST I HAVE EVER FELT. BEFORE STARTING MP MY EYES HURT THIS BAD EVERY DAY AND MY EYE DOC TOLD ME IT WAS BECAUSE OF DRY EYES. I AM FINDING I DO NOT AGREE WITH THAT ASSESSMENT. I HAVE PUT DROPS IN, WHICH MOST TIMES, DO NOT HELP. ABOUT 2 YRS AGO, MY EYES WERE BLEEDING AND MY EYE DOC SAID HE DID NOT KNOW WHAT WAS CAUSING IT, BUT THAT HE WAS SURE IT WAS NOT DIABETES. IT IS MORE LIKE PRESSURE THAN DRY EYES. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Aussie Barb Research Team
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Hi Barney Thank you for posting regularly.. it is a help to other Members... Not being able to sleep can also be from the light exposure / the raised 1,25D.. dont forget the Q4H Benicar for before and during as well as after Light.. Take care of Barney, all best, Barb .... |
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DNStog Moderator
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Barney, Sorry to hear you are feeling so poorly. Two years ago I was diagnosed with uveitis. My eyes would burn, hurt and alternate between tearing up and drying up. In addition I could feel pressure behind each eye which varied from day to day. There was a special test that had to be done by my eye doctor to diagnose uveitis which is quite common in Sarc patients. Right now my eyes feel better, but light exposure sets off the symtoms again. Most days, liquid gel drops used frequently give relief and I keep my Noirs on at all times indoors, except for showing and sleeping. The occular pressure in my eyes has remained on the low side of abnormal so no further action is being taken by my eye doctor. I believe the MP will cure my uveitis as it cures the rest of my body. Hang in there! Donna |
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BARNEY Moderator
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DAY 103, 4/13/05, PHASE 2, DAY 8, CYCLE 1, BP 115/70 P 88, BENICAR 20MG Q2HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, 1 PAIN PILL Extremely dizzy most of day, used my cane to make sure I did not lose balance and fall. I felt as tho my whole body was swollen from the sun exposure yesterday. This seems to happen everytime I go out during the daylight hours. Eyes were very puffy with big bags under them and bad pressure like I used to get before MP. Puffy face, hands swollen, feet swollen (hard to put shoes on), Took Benicar 20mg Q2hrs and a pain pill and that seemed to help by evening. Swelling from all parts is now gone and I am feeling a lot better. No more eye pressure. DNStog thanks for info. I also was advised to use the gel drops and an ointment, which irritated my eyes so bad that I had to lay down and close them. I finally discovered the best thing for me was to go to the sink and just rub my eyes with cold water. That was the only relief I got. I will, however, keep your thoughts in mind. I see my eye doc at least 1 or 2 times a year and he did not detect anything other than the bleeding about 2 years ago. Got a few things done outside tonite after the sun went down, like hauling off the trash and putting a new pump in my cooler as it is starting to hit the 80's and I need to be prepared to cool the house. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 104, 4/14/05, PHASE 2, DAY 9, CYCLE 1, BP 108/69 P 90, BENICAR 20MG Q2HRS & Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, 1 PAIN PILL FINISHED BENICAR Q2HRS (FOR 12HRS) ABOUT 3PM TODAY. DAY STARTED OUT GOOD, FEELING OKAY UNTIL I ATE BREAKFAST AND SINCE IT HAS BEEN A REALLY BAD DAY, I HAVE SPENT MOST OF IT IN BED. MY LOWER BACK WAS HURTING ENOUGH TO JUST KEEP ME ON EDGE AND HAD NAUSEA ALL DAY. JUST TRIED SLEEPING ALL OF IT OFF. FINALLY BROKE DOWN AND TOOK A PAIN PILL THIS EVENING. CAN STILL FEEL PAIN BUT IS PRETTY MUCH TOLLERABLE. DON'T THINK I SHOULD HAVE TAKEN MY 100MG MINO THE SAME DAY AS THE LIGHT EXPOSURE. WILL NOT MAKE THAT MISTAKE AGAIN. BELIEVE IT JUST INCREASED THE ROUGH FEELING FROM LIGHT EXPOSURE. I DID A LOT OF THINKING THIS AM. ALL THE SWELLING YESTERDAY MADE ME THINK OF WHEN I USED TO FLEA MARKET OUT IN THE SUN FOR MORE THAN 8 HRS A DAY. MY FACE, HANDS AND FEET SWEELED THEN TOO. BEEN THINKING BACK A LOT TO SUN EXPOSURE BEFORE MP. THE LAST DAY I FLEA MARKETED I ENDED UP AT THE DERMOTOLOGIST WITH MY FACE VERY SWOLLEN AND WHAT HE CALLED SUN POISIONING. AM FEELING A BIT BETTER DESPITE STILL HAVE BACK PAIN THIS PM. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 105, 4/15/05, PHASE 2, DAY 10, CYCLE 1, BP 109/64 P85, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, 1 PAIN PILL GOT UP WITH SEVERE LOWER BACK PAIN. DESPITE THAT (WHICH I TRIED TO IGNORE) HAD TO RUN VACUUM CLEANER BECAUSE OF EXPECTED COMPANY. FINALLY BROKE DOWN AND TOOK A PAIN PILL. DID NOT EFFECT THE PAIN MUCH AT ALL. I HEATED UP THE RICE SOX AND PUT THAT ON MY BACK AND ABOUT AN HOUR LATER, THE BACK PAIN WAS GONE AND STAYED GONE ALL EVENING. WITHIN AN HOUR OF TAKING 100MG MINO, MY EYES WERE FEELING REAL ITCHY. THEY ALSO SEEM TO WANT TO BLUR. THAT HAPPENED BEFORE MP WHEN I WAS TIRED, SO I THOUGHT I WOULD GO TO BED AS SOON AS I SIGN OFF HERE. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 106, 4/16/05, PHASE 2, DAY 11, CYCLE 1, BP 108/74, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, 1 ACIDOP, 1 PAIN PILL HURT ALL OVER, MAYBE FROM THE STORMS THAT STRUCK US THIS AFTERNOON. TOOK PAIN PILL AND IT EASED AWAY. NAPPED A LOT. NOT A GOOD DAY. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 109, 4/17/05, PHASE 2, DAY 1, CYCLE 2, BP 114/69 P 87, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, 2ND TIME 2ND ANTIBIOTIC, 2 PAIN PILLS POSTING A LITTLE EARLY TONIGHT, BUT I HAVE 2 PHONE CALLS I NEED TO MAKE BACK EAST BEFORE IT GETS ANY LATER. GOT UP AT 4AM. HAD WENT TO BED EARLIER THAN USUAL. WENT OUT FOR A SHORT WALK TO GET THE PAPER BEFORE THE SUN CAME UP. ALSO FILLED MY HUMMINGBIRD FEEDER AND HUNG IT OUT EVEN THO I PROBABLY WILL NOT GET TO SEE THEM THIS YEAR, MAY A CHANCE AT TWILIGHT HOUR. WE'LL SEE. FELT REALLY PROUD AND GOOD TO GET THESE TWO THINGS DONE SINCE I GOT TO BE OUTSIDE. IT IS HARDER NOW THAT THE DAYS ARE LONGER. WENT BACK TO BED AFTER BREAKFAST AND SLEPT TILL NOON WITH REALLY BAD SHOULDER PAIN. TOOK PAIN PILL AND PUT HOT SOX ON. PAIN FINALLY LEFT, BUT HAS RETURNED THIS EVE. WILL DO THE SAME AGAIN TO GET RID OF IT. NEVER EVEN MADE IT DRESSED TODAY. TOO MUCH GOING ON PLUS GOING BACK TO BED. I HAVE DONE A LOT OF THINKING. I DON'T REMEMBER EVER BREATHING SO DEEPLY THAN ON MP. YES, I HAVE A LOT OF PAIN BUT NOT NEAR AS MUCH AS I USED TO HAVE BEFORE MP. I USED TO HAVE A LOT OF MIGRANES, NOT ANY MORE. MY NECK USED TO ACHE CONSTANTLY, NOT ANY MORE. I USED TO SUPPORT MY CHIROPRACTOR, NOT ANY MORE. TODAY ON MP IS BETTER THAN ANY DAY WITH SARC. I AM SO THANKFUL I FOUND SARC INFO AND THEN MP. I THINK THE REASON I DO SO WELL ON MP IS THAT I DARKENED MY HOUSE BEFORE I STARTED MP, ORDERED MY NOIRS AND STARTED WEARING THEM BEFORE I STARTED BENICAR AND I STAY INDOORS UNLESS IT IS ESSENTIAL THAT I GO OUT. I ALSO AVOID ALL VIT D IN MY FOOD. I BELIEVE, BY FOLLOWING THE RULES OF MP, I AM DOING THIS WELL. I SINCERELY BELIEVE DR TREVOR MARSHALL KNOWS WHAT HE IS DOING WITH THE MP. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 108, 4/18/05, PHASE 2, DAY 2, CYCLE 2, BP 99/70 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, 1 PAIN PILL SHOULDER AND NECK ARE HURTING, ARE SOMEWHAT TOLLERABLE BUT SINCE THEY HAVE HURT ALL DAY I AM GOING TO TAKE A PAIN PILL TO EASE THE PAIN TO SLEEP. ARM MUSCLES ARE TIRED ALSO. VERY TIRED TODAY, TOOK 3 HR NAP. DID A TAD OF GARDENING AFTER DARK. NEIGHBORS ARE JUST TOTALLY AMAZED AT ME FOR TRYING TO GARDEN AFTER DARK. WE WILL SEE IF THIS WORKS. GOT TO HAVE SOMETHING TO OCCUPY MY TIME AND MIND (WHAT MIND I HAVE LEFT). HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Reenie inactive member
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BARNEY says, "I BELIEVE, BY FOLLOWING THE RULES OF MP, I AM DOING THIS WELL." I wholeheartedly agree with you on that, Barney. As for the nighttime gardening, I do the same. I'll be going out, within the next few nights, to trim my yard and do some light landscaping. I start at dusk and work, slowly, as I can, into the early evening. I'm amazed that I never thought of doing this pre-MP, since it's much cooler out and easier to do, w/o the sun beating down on me anyway. As for your light tolerance, you will begin to experience an "easier" time of it, soon, I'm sure. I know it's easier for me now, in the sense that I have less sun flare, although I'm still very careful not to be out much and I take all of the MP precautions, as you do. |
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BARNEY Moderator
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DAY109, 4/19/05, PHASE 2, DAY 3 CYCLE 2, BP 119/80 P 77, BENICAR 20MG ALL MESSED UP TODAY, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, WELL, THE GARDENING WORE ME OUT AND I HAVE HAD TO REST ALL DAY. ALSO MADE THE MISTAKE OF GOING TO TOWN, SHOULD NOT HAVE DONE THAT (AFTER DARK). READY TO JUST FALL INTO BED. GOT THE TIMING ON MY PILL SO MESSED UP TODAY, I COULD NOT BELIEVE IT. FINALLY GOT STRAIGHTENED OUT BY 6 PM. EVEN WITH MY CELLPHONE TIMER I MESSED UP. WOW!! NOT JUST BRAIN FOG, JUST NO BRAIN PERIOD. OKAY OTHERWISE, BUT GOING TO BED. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 110, 4/20/05, PHASE 2, DAY 4, CYCLE 2, BP 100/74 P 80, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINIO, NO 2ND ANTIB, 1 ACIDOP, 1 PAIN PILL EXTREMELY FATIGUED. DID NOT DO MUCH IN AM. TOOK NAP FROM 3PM-630PM, TALKED WITH FRIEND. SHOULDER PAIN INTENSE AND NECK IS HURTING TONITE NOT LIKE IT USED TO. PM SET OUT CANTALOUPE SEEDS AND MOVED 2 BUCKETS OF DIRT WITH 2 WHEEL CART, WATERED AND QUIT. TOO FATIGUED TO GO ON. DID GO PICK UP MAIL OUT FRONT AND TAKE TRASH TO DUMPSTER. OTHER THAN THAT, I DID NOT EVEN GET THE DISHWASHER LOADED. SURE WISH THEY MADE ALL DISHES, POTS, PANS, AND SKILLETS IN PAPER.(HAHA) READY FOR BED, EVEN THO I SLEPT FOR 3 1/2 HRS. I REALLY BELIEVE THE MP MAKES YOU GET THE REST YOU ALWAYS TRIED TO AVOID. WELL, I GUESS THAT'S ALL. HANG IN THERE, WE WILL MAKE IT!! BARNEY PS REENIE, I AM STILL AFRAID OF THAT DARN SUN, SO I THINK I WILL WAIT A LITTLE WHILE LONGER BEFORE I TRY TO GO OUT. HOW I WOULD LOVE TO BE AT THE END OF PHASE 3. LOOKING SO FORWARD TO IT. |
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BARNEY Moderator
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DAY 111, 4/21/05, PHASE 2, DAY 5, CYCLE 2, BP 101/70 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS SORT OF BORING DAY. JUST TIRED AND RESTED MOST OF DAY. DID LOAD DISHWASHER, HAD TO, WAS OUT OF CLEAN DISHES.(HAHA) TOOK 2 HR NAP. WALKED OUT AND GOT NEWSPAPER AND MAIL. THAT'S ABOUT ALL DAY CONSISTED OF. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 112, 4/22/05, PHASE 2, DAY 6, CYCLE 2, BP 99/59, P 83, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, NO 2ND ANTIB, 1 ACIDOP, 1 PAIN PILL GOT UP AT 5AM (AGAIN), PAIN WAS ACHY TYPE, TOOK PAIN PILL, FELT BETTER. EXTREMELY SLEEPY AROUND 3PM AGAIN. (MUST BE THE DR PHIL SHOW), PUTS ME TO SLEEP FOR AT LEAST 2 HRS. GOT UP WITH LEGS TIRED AND MUSCLES 'WORN OUT'. WENT TO SLEEP IN THE RECLINER, THAT'S WHY I AM LATE POSTING. HAD TO HAVE COMPUTER MODEM CHANGED, IT KEPT DYING ON ME, IS BETTER NOW. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 113, 4/23/05, PHASE 2, DAY 7, CYCLE 2, BP 104/66 P 93, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS. I HAVE DETERMINED THAT ONE OF THE HERXS THAT IS FINE WITH ME, IS LOTS OF SLEEP AND REST. I WAS WIDE AWAKE LAST NIGHT UNTIL 3AM AND GOT BACK UP AT 830AM, WENT BACK TO BED AT 11AM AND SLEPT UNTIL 730PM TONIGHT WHEN MY GRANDSON CALLED. GOT UP, WENT TO STORE AND GOT SOME VEGIES I NEEDED AND BACK HOM WITHIN 2 HOURS (OF COURSE ALL AFTER DARK). FEEL AS THO I COULD GO BACK TO SLEEP RIGHT NOW BUT AM GOING TO WATCH A LITTLE TV FIRST. NO REAL SEVERE PAIN, JUST LITTLE STUFF, NO PAIN PILLS REQUIRED. GOOD DAY FOR SLEEPING, WIND IS WARM FEELING TONIGHT. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 114, 4/25/05, PHASE 2, DAY 8, CYCLE 2, BP 95/70, P 83, BENICAR 20MG Q3HRS, BENICAR 40MG MICNIGHT, NO MINO, NO 2ND ANTIB, 1 ACIDOP, NO PAIN PILLS I WAS UP UNTIL 4AM. HAD SLEPT TOO MUCH DURING DAYTIME. SO WENT OUTSIDE AND PLANTED SOME TURNIPS. I HAVE 1 ZUCCHINI AND LOTS OF RADISHES. SOON I WILL BE EATING GREAT VEGIES. LOADED DISHES AND TURNED ON DISHWASHER. I LOVE DOING DISHES THIS WAY. SLEPT 4 HRS DURING DAY TODAY. SPACEE, I HAVE SORE SPOTS ON MY HEAD TOO. WONDER WHAT THAT MEANS. I DON'T REMEMBER EVER BREATHING AS DEEPLY AS I BREATHE SINCE MP. IT IS GREAT. NOTHING GOING ON TONITE. SORTA TIRED FROM LAST NIGHT. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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Foundation Staff . 
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Barney, There are lots of lymph nodes on your head and, if they are inflamed, they could be causing your soreness. There are days that my sunglasses seem too tight behind my ears but most days they are just fine. I believe the soreness is caused by temporary lymph node inflammataion that isn't palpable. Best, Meg |
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BARNEY Moderator
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Meg, My computer is acting up again so hope I can answer you. My head has been sore like this for sometime but did not place it with sarc until just recently. I was pretty sure there were lots of critters in my head because: neck pain, migraines, eye pressure, leisons on brain, etc. I'm sure I have a long way to go with just the critters in my head, let alone the rest of my body. I am really dreading when the lungs start healing. I imagine it will be like Trevor told of his bout with his lungs. Maybe if I could see the top of my head, there might be leisons in my hair. Who knows? Thanks for the insite!! Barney |
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Aussie Barb Research Team
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Dear Barney re lungs: The MP is a work in progress. we have the quercetin now to help the Benicar... which Dr M didnt have.. and I think they were taking higher doses of abx than we are... ? I have lung herxing and while it is still herx, it is "managable" with the meds dosing including the Q4H Benicar and Quercetin to help.. without the Q it would be a lot lot worse for me.. and I am still on low doses of abx. Barb ... |
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BARNEY Moderator
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Barb, Thanks, I will read up more on FAQ about quercetin and how it works. I have only taken it once. Barney |
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Reenie inactive member
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Hi Barney, I have psoriatic lesions on my scalp. They seem to get worse when I herx. In addition, I've had trigeminal nerve pain, which makes my head feel very sore, in certain areas. This is something I've had prior to the MP and it flares during herx. There is nothing visible on my scalp, face or ear. Sometimes, depending on which part of the nerve hurts, it feels like an earache or scalp pain. ...I will read up more on FAQ about quercetin and how it works. QUERCETIN |
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BARNEY Moderator
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DAY 115, 4/25/05, PHASE 2, DAY 9, CYCLE 2, BP 117/80, P75, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS, 1 ACIDOP I WAS UP UNTIL 4AM WITH FRIEND WHO HAD STROKE,WHO WAS THINKING HE WAS HAVING ANOTHER HARD TIME WITH POSSIBLE STROKE, SO AM VERY TIRED AND I CATNAPPED DURING AFTERNOON AND EVENING. i WILL BE GOING TO BED VERY SHORTLY. NO PAIN TODAY. I AM FINE OTHER THAN EXTREMELY TIRED. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 116, 4/26/05, PHASE 2, DAY 10, CYCLE 2, BP 103/68 P 90, BENICAR 20 Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, NO 2ND ANTIBO, 1 ACIDOP, NO PAIN PILLS, 1 QUERCETIN TO BED AT MIDNIGHT AND UP AGAIN AT 6AM, HAD NAUSEA MOST OF MORNING AND MOST OF AFTERNOON AND EVENING (STILL). TOOK 1 QUERCETIN IN AM BUT NAUSEA ONLY INTENSIFIED. STARTED SWEATING AND FEELING 'ROUGH' REST OF AM. LEFT EYE AND LEFT SIDE OF HEAD HURT IN AM (WAS TOLLERABLE W/O PAIN MEDS). QUERCETIN SEEMED TO EASE EYE AND HEAD PAIN AS IT SUBSIDED WITHIN 2 HRS OF QUERCETIN. DON'T KNOW IF Q HAD ANYTHING TO DO WITH IT OR NOT, BUT DID NOT LIKE THE SWEATING AND 'ROUGH' FEELING I HAD WITH Q. TOOK A 3 1/2 HR NAP. GOT UP FEELING JUST AS FATIGUED AS WHEN I LAID DOWN. SEEMS FATIGUE IS A MAJOR SXS IN HEALING. NO NIGHT GARDENING FOR A COUPLE DAYS EXCEPT WATERED TONIGHT. GOT SOME GOOD VEGIES COMING UP. WENT TO STORE TO GET SOME LEMONS AND GROUND BEEF AND STOPPED BY AND HELPED MY FRIEND WITH HER EMAILS. HOME BY 11PM (LEFT AT 830PM). HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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spacee inactive member
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Hi Barney...I love your bold print...maybe we should all use it. I can see it better with my NoIRs. I agree that fatigue seems to be one of the major herxes. Hugs, Spacee PS So know we know why our heads hurt...lymph nodes. Last edited on Wed Apr 27th, 2005 19:49 by spacee |
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BARNEY Moderator
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DAY 117, 4/27/05, PHASE 2, DAY 1, CYCLE 3, BP 106/65, P80, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 100MINO, 3/8 2ND ANTIBO, 1 ACIDOP, NO PAIN PILLS, GOT UP WITH GREAT INTENTIONS OF GETTING A LOT ACCOMPLISHED SO I COULD MOVE INTO CYCLE 3. THOUGHT MAYBE THIS ONE WOULD PUT ME IN BED FOR A WHILE. STARTED HAVING NAUSEA AGAIN AND FEELING REALLY ROTTEN, SO I WENT BACK TO BED AT 12NOON AND SLEPT UNTIL 630PM. WONDER IF THE MALTITOL IN THE CHOC BARS IS BACK TO MAKING ME ILL AGAIN. WILL STOP THEM FOR A WHILE TO SEE IF THAT HELPS. REALLY FATIGUED, BUT STILL ABLE TO COOK, EAT AND LOOK AFTER MY DOG. MOSTLY JUST SITTING AROUND OR SLEEPING OR COOKING SOMETHING THAT DOESN'T TAKE MUCH EFFORT. MY EYE AND LEFT (TOP) OF HEAD BOTHERED ME AGAIN TODAY. MY EYE FEELS SOMETIMES BUT NOT ALL THE TIME LIKE SOMEONE DROVE AN ICEPICK IN IT AND THAT THE PAIN COMES OUT OF IT UP OVER THE TOP LEFT PART OF MY HEAD. IT HAS A HABIT OF COMING AND GOING. THE EYELID FEELS LIKE THERE IS SOMETHING UNDER IT RUBBING/SCRATCHING IT, EXPECIALLY IN THE CORNER NEXT TO THE NOSE. ALSO FEELS SWOLLEN THERE. BEARABLE W/O PAIN PILLS. SHOULDERS DO NOT HURT RIGHT NOW, BUT IF I HAVE TO KEEP THEM IN THE AIR FOR WHATEVER REASON, THEY GET SO TIRED, THEY ALMOST FEEL USELESS. MISSED MY 6PM BENICAR SO TOOK IT WITH MY 9PM BENICAR. WILL WAIT UNTIL 1AM FOR MY MIDNIGHT DOSE. ALL ELSE SEEMS WELL, EXCEPT I SURE COULD USE SOME ENERGY. SPACEE, I LOVE THIS PRINT TOO. IT IS SO MUCH EASIER FOR ME TO READ WITH THE NOIRS AND MY HEAD IS STILL TENDER TOO, DARN THOSE LYMPH NODES. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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Reenie inactive member
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Hi Barney, You say you're starting Cycle 3 and you've already ramped your 2nd Abx up to 3/8??? Have you possibly misunderstood the Phase 2 instructions? Dr M has said it can take up to 12 mos to ramp up to 1/2 second abx. When I was on that second abx, I stayed on the starting dose for 2 mos, w/o ever ramping up, due to herxing. Please consider lowering your mino to 50mg, qod, for the remainder of the cycle, unless your herx becomes intolerable. (which it may already be for you, from the sound of it) If intolerable, take mino 50mg, daily, for the remainder of this cycle and lower your next Z dose down. I would consider going back to the first cycle dose, since it can take a few cycles for you to realize the full herx at each ramping. |
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BARNEY Moderator
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DAY 118, 4/28/05, PHASE 2, DAY 2, CYCLE 3, BP 129/85, P79, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, NO 2ND ANTIBO, 1 ACIDOP, NO PAIN PILLS REENIE, I DO NOT UNDERSTAND WHERE YOU GET THE IDEA THAT MY HERX IS INTOLLERABLE. IT IS NOT. I HAVE READ OTHER POSTS (LOTS OF THEM) AND I HAVE NOT HAD ANYTHING LIKE THAT GOING ON. I HAVE NOT HAD TO TAKE LOTS OF PAIN PILLS LATELY. MAYBE I JUST DON'T FEEL AS INTENSELY AS OTHERS, I DO NOT KNOW. I HAVE LEARNED FOR 40 YEARS TO ENDURE. I HAVE REREAD THE INSTRUCTIONS EARLIER TODAY AND IT SAID IF THE HERXS ARE NOT INTOLLERABLE TO MOVE ON. I TALKED WITH AUSSIE BARB AND MEG ABOUT THIS AND THEY TOLD ME TO PROCEED AS I WAS. NOW WHICH WAY DO I GO? I FEEL STRAIGHT AHEAD. TODAY, THE ONLY HERX I HAVE HAD, IS SLEEPY (BUT STAYED UP LATE A LOT LATELY) BUT HAVE BEEN TAKING 3 TO 3 1/2 HR NAPS. I CAN FEEL IT WORKING ON MY EYES AND TOTAL TOP OF HEAD, ALL OF WHICH IS TOLLERABLE, NOT BAD AT ALL. IF I AM DOING OKAY AND HAVE BEEN TOLD TO PROCEED, I SEE NO REASON NOT TOO. IF, FOR ANY REASON, HERX GET INTOLLERABLE, I WILL TAKE DR. M'S ADVICE TO BACK UP. SO FAR, IMO, SO GOOD. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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Reenie inactive member
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Barney, Your description sounded "intolerable" to me and you are ramping extremely quickly. Remember, the abx will reveal inflammation in ALL of your tissues and organs, such as your kidney, heart and lungs. It would be wise to have your kidney function checked often to be sure you're doing alright in that department, Barney. Please do take care, as you may only be starting to get the full effects of the M+Z combo on day 5-6. |
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BARNEY Moderator
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REENIE, I WILL IN THE FUTURE EMPHASIZE WHETHER MY HERX IS TOLLERABLE (I THOUGHT I HAD BEEN) IN MY POSTS. YES, IT SOUNDS HORRIBLE BUT AS I SAID I ENDURE A LOT WITHOUT IT BOTHERING ME THAT BAD. I HAD 6 SURGERIES IN 14 MONTHS INCLUDING RIGHT KIDNEY REMOVAL AND COMPLETE HYSTERECTOMY. THAT WAS BBBBAAAADDDDD. THE WORST HERX FOR ME IS THE FATIGUE. I AM A VERY HYPEACTIVE PERSON AND NOT HAVING THE ENERGY TO DO SOME OF THE MILLIONS OF THINGS THAT GO THRU MY MIND DRIVES ME TO THE BRINK OF INSANITY. I LIKE BEING ON THE GO BUT MP MAKES YOU REST, WHICH I AM SURE, IS WHAT WE NEED. IT IS STILL MY WORST HERX SXS. I HAD A KIDNEY FUNCTION TEST JUST LAST MONTH AND EVERYTHING IS IN GREAT SHAPE. MY DOC GAVE ME FLYING COLORS. I WILL TAKE HEED TO ALL YOU HAVE MENTIONED. SHOULD I FIND MYSELF IN TROUBLE, I WILL SEEK ADVICE FROM ALL (MY DOC AND MODERATORS). THANK YOU FOR YOUR CONCERN. TONIGHT HAS BEEN GOOD, I HAVE ACTUALLY HAD A LITTLE EXTRA ENERGY WHICH MADE ME A 'HAPPY CAMPER'. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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Reenie inactive member
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Barney, I've discussed this with Dr Marshall. He's out of town this week and asked me to share this with you, I agree 100% with Reenie. It takes 12 mos to work up to 1/2 tablet, usually. Here's another comment I'd like to share with you, that Dr M previously made to me, taken from my progress report, Posted: Thu Jan 27th, 2005 21:30, "NOTE to myself: There are NO AWARDS for toughing it out and being more miserable than one has to on the MP. Dr M made a comment to me, which I will try to ‘live by’ while on the MP…. (paraphrased) ‘ramping too quickly may make you feel about 200% worse while only killing about 20% more bugs.’ THAT is NOT an adequate trade off IMHO. "Barney, please note: I am NOT trying to debate with you over what you are doing. I'm just giving you information concerning the MP so that you can decide for yourself (along with your Dr) and be safe. |
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BARNEY Moderator
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REENIE, I HAVE TRIED TO EXPLAIN TO YOU THAT I HAVE NOT HAD THE SEVERE HERXS THAT A LOT OF OTHERS HAVE HAD. I HAVE WONDERED IF THERE IS SOMETHING WRONG WITH ME THAT I AM NOT HERXING LIKE OTHERS ON THIS SITE. I HAVE FOLLOWED DR. MARSHALL'S INSTRUCTIONS TO A TEE. I DID NOT GO FORWARD IF I WAS NOT FEELING UP TO PAR. I ONLY MOVED FORWARD ACCORDING TO INSTRUCTIONS TO MOVE FORWARD WHEN THE HERX SEEM TO BE THRU FOR THAT PHASE OR CYCLE. THE ONLY HERX THAT I HAD THAT WAS INTOLLERABLE WAS THE FIRST ONE IN PHASE ONE WHEN MY JAW AND EAR AND TOOTH WERE REALLY PAINFUL. HAVE NOT HAD ONE LIKE THAT SINCE, NOT ONE THAT BAD. THE REST HAVE BEEN MILD TO MY ESTIMATION. I AM NOT TRYING TO KILL MYSELF OR SEE HOW MUCH PAIN I CAN TOLLERATE. I DON'T LIKE PAIN ANYMORE THAN YOU DO. I DO NOT SEE THAT I AM DOING ANYTHING WRONG. I WILL LET YOU ALL KNOW IF I HAVE ANY HERX THAT IS INTOLLERABLE. JUST FOR GENERAL INFORMATION. I STAY IN MY CAVE, HAVE NOT BEEN OUT IN DAYLIGHT FOR QUITE SOME TIME, WEAR MY NOIRS AND GET LOTS OF REST, DRINK PLENTY OF FLUIDS AND AM NOT HAVING TO TAKE ANY PAIN PILLS. THANK YOU FOR YOUR CONCERN. BARNEY |
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BARNEY Moderator
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DAY 119, 4/29/05, DAY 3, CYCLE 3, DID NOT TAKE BP OR P, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS I HAVE NOT FELT THIS GOOD IN I COULD NOT TELL YOU HOW LONG. MY EYESIGHT IS CLEAR, MY HEAD DOES NOT FEEL FOGGY, HAD BETTER ENREGY TODAY (ACTUALLY REAL ENERGY). DID NOT FEEL 'BOGGED' DOWN. HAD SOME MILD NECK AND LOWER BACK PAIN. NO PAIN PILLS. NO INTOLLERABLE PAIN. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 120, 4/30/05, PHASE 2, DAY 4, CYCLE 3, BP 122/78,P82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO/2ND ANTIB, NO PAIN PILLS MUCH MORE AND BETTER ENERGY THAN IN MANY 'MOONS'. I HAD NO IDEA I WOULD GET ANY ENERGY OR CLEAR HEADEDNESS THIS SOON. FROM WHAT I HAVE BEEN READING OF PHASE 2 AND PHASE 3 FOLKS, THIS DOES NOT COME ABOUT TILL NEAR THE END OF PHASE 3. MAYBE I SHOULD 'KNOCK ON WOOD' AFTER SAYING THAT, THE NEXT CYCLE MIGHT KNOCK ME ON MY BEHIND. FEELING GREAT FOR 2 DAYS NOW. HEAD IS VERY CLEAR. DROVE TO TOWN (AFTER DARK) WITH VERY CLEAR THOUGHTS OF DRIVING AND ALL THAT WAS GOING ON IN THE TOWN. WENT TO 82 YR OLD FRIENDS HOUSE TO HELP HER WITH HER COMPUTER AND TAKE DONUTS TO HER (SHE SAID SHE WOULD LOVE TO HAVE). HAD TO WAKE HER UP, BUT DIDN'T FEEL BAD, THE DONUTS COMPENSATED FOR NO SLEEP. (HAHA) I WALKED THRU PLANTS AT WALMART. THEY ACTUALLY HAD A SMELL THEY SHOULD HAVE HAD (THEY SMELLED GREAT) AND NO ASTHMA PROBLEMS. NO PROBLEM IN THE FERTILIZER AISLE EITHER. FANTASTIC. THAT AISLE USUALLY DOES ME IN COMPLETELY. REMEMBER, FROM MY POSTS AWHILE BACK, NOTHING SMELLED GOOD TO ME AND EVERYTHING GAVE ME BREATHING PROBLEMS INCLUDING ASTHMA ATTACKS. I JUST LITERALLY AVOIDED EVERYTHING. THE OTHER NIGHT AT KMART I WENT DOWN THE AISLE WITH AIR FRESHNER AND THEY DID NOT EVEN HAVE A STRONG ODOR. ALL THIS MAKES MP SO GREAT. I STILL MISS THE OUTDOORS DURING SUNLIT HOURS, BUT JUST WHAT I HAVE HAD IN THE LAST 2 DAYS MAKES IT ALL WORTHWHILE. NO PAIN PILLS, NO INTOLLERABLE HERXS. A FANTASTIC DAY!! I LOVE IT. HANG IN THERE, WE WILL MAKE IT!! BARNEY Last edited on Mon May 2nd, 2005 06:43 by BARNEY |
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BARNEY Moderator
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DAY 121, 5/1/05, PHASE 2, DAY 5, CYCLE 3, BP112/76, P91, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO ACIDOP(FORGOT), 100MG MINO, NO PAIN PILLS, NO INTOLLERABLE HERX. FANTASTIC DAY!! (EXCEPT, MY DOG, GOT IN MY LETTUCE TO LAY IN THE COOL DIRT AND TORE IT TO PIECES. WE HAD A L OOO NNNN G TALK. DARN, I WAS LOOKING FORWARD TO THAT LETTUCE, SPINACH AND ARUGULA. MAYBE IT WILL GROW AGAIN. NIGHT TIME GARDENING IS GREAT AND DOES WORK. JUST KEEP THE PACE SLOW. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 122, 5/2/05, PHASE 2, DAY 6,CYCLE 3, BP 130/83/ p91, BENICAR 20MG Q3HRS, BENICAR 40MG, 1ACIDOP, NO MINO, NO 2ND ANTIB, 1 PAIN PILL, EVERYTHING TOLLERABLE BUT USED PAIN PILL TO TAKE EDGE OFF. NECK WAS A LITTLE ACHY THIS AFTERNOON. WAS A LITTLE TENSE BECAUSE I HAD TO GO OUT IN DAYLIGHT TO DOCS OFFICE. GOOD DAY EXCEPT FOR: ONLY GOT 4 HOURS SLEEP (NOT BECAUSE OF INSOMNIA). WENT TO BED TOOOOO LATE AND GOT UP WAY TOOO EARLY AND MISSED MY NAP. MY EYES FELT LIKE ALLERGY EYES WITHIN AN HOUR OF GOING OUT IN THE SUN (VERY DRY). I WAS COMPLETELY COVERED WITH NOIRS ALSO. LEFT AT 330PM WENT TO DOCS, DROPPED LETTERS OFF AT POST OFFICE, WENT TO "GRANNY'S" (MY FRIEND) AND STAYED AT HER HOUSE, WHICH IS TOO LIGHT FOR A CAVE DWELLER. SHE CLOSED ALL BLINDS. LEFT HER HOUSE AFTER DARK AND WENT SHOPPING FOR A FEW IMPORTANT THINGS (IE TP) ETC. ENJOYED THE OUTING, BUT TOMORROW WILL TELL HOW MUCH DAMAGE TO THE BODY FROM THE SUN EXPOSURE. WE'LL SEE IF I SELL LIKE A BALOON. ACTUALLY THIS WAS AN EXPERIMENT, MY LAST GRANDCHILD GRADUATES MAY 20TH AND SHE IS SORTA 'MY BABY' AND SHE IS JUST INSISTENT ON ME COMING TO ALBQ FOR IT (300 MILES). SHE'S PROMISED DARK WINDOWS AND I DEFINITELY WILL DRIVE AT NIGHT. THEN MY 'ADOPTED' GRANDDAUGHTER CALLED AND SHE IS GRADUATING THE SAME DAY, SAME SCHOOL BUT HER PARTY IS THE SUNDAY BEFORE. THEY SAID THEY WILL UNDERSTAND IF I DO NOT GET TO COME. I TOLD THEM THAT THIS EXPERIMENT WITH THE SUN WILL TELL ME WHAT I MIGHT OR MIGHT NOT DO. WE WILL SEE. I MIGHT JUST TAKE A HOLIDAY AND STOP MEDS TO GO. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 123, 4/3/05, PHASE 2, DAY 7, CYCLE 3, BP 112/84,P81, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 100MG MINO, NO 2ND ANTIB., 1 ACIDOP, NO PAIN PILLS, ALL TOLLERABLE THIS IS DAY AFTER BEING OUT IN THE SUN. WENT TO DOCS, PICKED UP MEDS, WENT TO POST OFFICE AND OVER TO FRIENDS WHERE WE PULLED ALL HER BLINDS SHUT AS MUCH AS POSSIBLE. I REALLY EXPECTED TO BE SWOLLEN IN FACE, EYES, HANDS AND FEET. I WAS NOT SWOLLEN AT ALL. WHAT A SWEET TREAT. THE ONLY THING I NOTICED THIS MORNING WAS MY LEFT KNEE (WHICH THEY WANTED TO REPLACE AND I SAID NO). IT WAS AAAHHH SORE, OR TIGHT OR MUSCLES WERE NOT LIKING ME OR WHATEVER. TOOK A 2 HOUR NAP TODAY ON PURPOSE. IT HAS BEEN A WILD STRESSFUL DAY. THE POLICE CAUGHT A YOUNG MAN WITH A GUN ON HIS WAY TO MY GRANDDAUGHTER'S SCHOOL. AFTER A HIGH SPEED CHASE, THEY PUT HIM IN JAIL. PRAYING THE REST OF THE YEAR IS COMPLETED ALL OVER THE US WITH NO PROBLEMS. STRESS IS HARD ON US EVEN WHILE WE ARE ON MP AND I REALLY BELIEVE IT TAKES A BIG TOLL ON OUR BODIES EVEN THO WE THINK IT DOESN'T. ALL ELSE SEEMS WELL ...SO.. HANG IN THERE, WE WILL MAKE IT!!! BARNEY PS GARDEN DOING WELL, MORE COMING UP, NIGHT TIME GARDENING ONLY. |
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BARNEY Moderator
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DAY 124, 5/4/05/ PHASE 2/DAY8/CYCLE3, BP 111/80 P94/ BENICAR 20MG Q3HRS/BENICAR 40MG MIDNIGHT/1 ACIDOP/NO MINO OR 2ND ANTIBIO/NO PAIN PILLS.ALL TOLLERABLE TODAY KNEES TIGHT/SORE/ACHY(?), I DON'T KNOW WHAT TO CALL IT. NOT A VERY EVENTFUL DAY. VERY FATIGUED (DARN, THE ENERGY LEFT). TOOK 3 HR NAP AND I AM HAVING TO MAKE MYSELF KEEP MOVING TO GET ANYTHING DONE. NOT DOING MUCH. FEEDING MYSELF, ETC HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 125, 5/5/05, PHASE 2, DAY 9, CYCLE 3, BP 105/75/P97, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINOCYCLINE, NO 2ND ANTIBIOTIC, 1 PAIN PILL, TOLLERANCE OKAY. WOKE AFTER ONLY 5 HRS SLEEP TO TAKE 6AM BENICAR. GOT UP TO WATER GARDEN BEFORE SUN CAME UP. DID SOME LAUNDRY (2 LOADS), COOKED DINNER, WENT TO STORE (AFTER DARK). CAME HOME AND CHOPPED 4 BIG AFRICAN RUE PLANTS FROM MY DRIVEWAY. I HATE THOSE WEEDS. THEY HAVE NOT FOUND A SPRAY THAT WILL KILL THEM AND THEIR ROOTS GO AS DEEP AS 12 FEET (I HATE POISION SPRAYS ANYWAY). ALL YOU CAN DO IS KEEP CHOPPING THEM AND THEY STINK SO BAD I WILL HAVE TO TAKE A ZYRTEC TONIGHT. THEY REALLY GET TO ME. THAT IS THE ONLY SMELL THAT SEEMS TO BE AFFECTING ME. (YOU ARE PROBABLY WONDERING HOW I CAN SEE WEEDS AFTER DARK.....CAR HEADLIGHTS. TOOK AFTERNOON NAP FROM 12 NOON UNTIL 4PM. I REALLY GOOFED, WHEN I HAD THOSE 3 DAYS OF ENERGY, I WENT CRAZY STAYING UP TOO MUCH AND TRYING TO GET TOO MUCH WORK DONE THAT I HAD BEEN LETTING GO. AM TRYING TO REALLY GET MY REST. MY BACK (MIDDLE), AND GENERAL BODY ACHE CONVINCED ME TO TAKE 1 PAIN PILL TO TAKE THE EDGE OFF. ALL HERX IS TOLLERABLE TODAY. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 126, 5/6/05, PHASE 2, DAY 10, CYCLE 3, BP 99/80/P103, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, NO 2ND ANTIB, NO PAIN PILLS, VERY TOLLERABLE. SORRY, DID NOT POST EARLIER, MY INTERNET SERVER WAS DOWN. DID NOT SLEEP AT ALL NIGHT OF 5/5/05(TOO MUCH ON MY MIND). HOWEVER, WENT TO BED THE NEXT MORNING (TODAY) AND SLEPT UNTIL 6PM. I GUESS I AM LIKE A LITTLE BABY, GOT MY DAYS AND NIGHTS MIXED UP. THAT IS OKAY THO, I MISS THE SUN THAT WAY MOST OF THE DAY. NO PAIN, JUST LOTS OF SLEEP IN THE DAYLIGHT HOURS. HAPPY MOTHER'S DAY (TO ALL MOTHERS ON MP), HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 127, 5/7/05, PHASE 2, DAY 11, CYCLE 3, BP 106/76/P82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, NO 2ND ANTIB, NO PAIN PILLS, TOLLERANCE GOOD Uneventful day other than lots of rest and sleep because I am going out tomorrow to 82yr old friends house for dinner to celebrate Mother's Day since neither of us have family close by. Did not take my mino tonight or 2nd antib, holding off until tomorrow night if light exposure is okay. Will continue on Benicar today and tomorrow. Only off 1 day on doses. HAPPY MOTHER'S DAY TO ALL, HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 128, 5/8/05, PHASE 2, DAY 12, CYCLE 3, BP 92/83, P81, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 100MG MINO, NO 2ND ANTIB, 1 ACIDOP, NO PAIN PILLS, ALL TOLLERABLE SLEPT IN BITS AND PIECES ALL NIGHT. GUESS I RESTED AND SLEPT TOO MUCH ANTICIPATING GOING TO GRANNY'S TODAY FOR MOTHER'S DAY. FORCED MYSELF TO STAY IN BED AND KEEP EYES CLOSED TO AT LEAST REST. LEFT AT 3PM IN SUNLIT HOURS (FULLY COVERED). CLOSED BLINDS AT GRANNY'S AND STAYED THERE UNTIL DARK. HOME BY 9PM. FELT FINE TODAY. GOT TO GO TO STORE FOR MORE 2ND ANTIB. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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Day 129, 5/9/05, Phase 2, Day 13, Cycle 3, BP 123/82 P77, Benicar 20mg Q3hrs, Benicar 40mg midnight, No mino, No 2nd antib, 1 acidop, 1 pain pill NO SWELLING FROM SUN EXPOSURE (THAT IS 2 TIMES THIS MONTH), HOWEVER, I ALWAYS GO OUT COVERED AND NOIRS AND AM IN THE DIRECT SUN ONLY LONG ENOUGH TO GO TO TOWN AND BACK. DOING QUITE WELL TODAY, CAT NAPPED BETWEEN PHONE CALLS. HAD A SORT OF STRANGE 'HEADACHE(?)' TODAY. LIKE IT WAS OFF IN THE DISTANT (IN THE TOP OF MY HEAD). WAS LIGHT MOST OF DAY, BUT GAVE ME THE IMPRESSION IN THE AFTERNOON THAT IT WAS GOING TO INTENSIFY, SO I TOOK A PAIN PILL. MORE ANNOYING THAN ANYTHING. WILL PICK UP 2ND ANTIB TOMORROW MORNING. ALL TOLLERABLE HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 130, 5/10/05, PHASE 2, DAY 1, CYCLE 4, bp 128/80 P92, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO ACIDOP, 100 MG MINO, 2ND ANTIB, NO PAIN PILLS. ALL TOLLERABLE HAD TO GO OUT TO PICK UP MORE MEDS. COVERED UP WITH NOIRS. NO SWELLING. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 131, 5/11/05, PHASE 2, DAY 2, CYCLE 4, BP 132/80, P82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINOR OR 2ND ANTIB, 1 ACIDOP, 1 PAIN PILL, ALL TOLLERABLE EVERYTHING WAS TOLLERABLE EXCEPT THE STRESS FROM FINDING OUT MY DAD IS HAVING PROBLEMS AGAIN AND WHEN I CALLED MY BROTHER (CAREGIVER), HE BECAME ANGRY WITH ME FOR EVEN ASKING. I THINK HE NEEDS A BREAK. CALLED MY DAUGHTER AND HAD HER PRAY WITH ME FOR PEACE. HAVE DECIDED I WILL VISIT MY DAD IN THE NEAR FUTURE FOR ABOUT A MONTH AND TAKE SOME OF THE LOAD OFF MY BROTHER (THAT WILL TAKE A LOAD OFF ME). WILL BE POSTING FROM DAD'S HOME, SO I WILL TRY AND GET HIM INTERESTED IN READING MY POSTS AND LEARNING HOW TO OPERATE A COMPUTER. MY OTHER BROTHER IS GOING TO BUY HIM A COMPUTER. THIS WILL BE ENJOYABLE. MY DAD AND I GET ALONG WELL (SINCE I AM NO LONGER A TEENAGER). I WILL DECIDE HOW TO CONTINUE MP AS I AM SURE THE LIGHT EXPOSURE WILL BE A LOT MORE THAN I HAVE HERE. IT IS COMPLETELY DARK HERE. I WILL MAKE MY BEDROOM DARK AT DAD'S SO THAT I WILL HAVE A HAVEN TO RETREAT TO. I HATE STRESS, I HAVE CRIED FOR 2 DAYS, BUT FEEL I HAVE COME UP WITH A GOOD SOLUTION TO SOLVE IT INCLUDING A LETTER OF PRAISE TO MY BROTHER FOR HIS PREVIOUS CARE OF DAD. HAD A BAD HEADACHE ALL DAY (NOT MIGRAINE) BUT DUE TO ALL THE STRESS SO I DID TAKE ONE PAIN PILL BUT ALL IS WELL TONIGHT. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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Aussie Barb Research Team
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Hi Barney I was thinking about your Dad's house.. see AVOIDING SUNLIGHT and BRIGHT LIGHTS this is 3rd post down : Redi Shade. Delray says "We found a great product at Lowes (or Home Depot) to put under shades or curtains. It is inexpensive (about $5.00), easy to install and does the trick. It comes in 2 sizes 36" wide or 48" wide, both are 72" long. It can be cut down to a smaller width easily. We taped it to the bedroom window top and bottom and it blocks quite a bit of light. Since I rarely go thru the rest of my house we just keep the rest at a minimum amount of light." Paulalbert says: I bought some Redi Shade vinyl room darkening blinds. They certainly do the trick. Six dollars a window! and so easy to put up. http://www.lnt.com/product/index.jsp?productId=1865381 all best, Barb ... |
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BARNEY Moderator
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Barb, I bought one of the RediShades at Walmart for $3.88. The instructions said that it is possible to use them for wider windows strictly by overlapping them. I have not put it up yet, but since you mentioned it I will do it tonite and see how dark it makes it. My house is so dark that when my friend opens the door to bring the mail, it is like someone turned on the brightest spotlight in the world. Also. Spacee uses black trash bags and wide scotch tape, I thought I would experiment with that before I leave. I am going to try to stay here for a little while longer but in the meantime call my dad everynight at 9pm (therefore I will be posting earlier) and ask how his day went, how he feels, let him talk and tell him I love him and goodnight. He is in such depression, I think this will help. I know how much it helps when other MPers PM me. It feels great just to 'talk'. Thank you Barb for thinking of me when I know you are so ill yourself. Barney |
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BARNEY Moderator
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DAY 132, 5/12/05, PHASE 2, DAY 3, CYCLE 4, BP 83/67 P85, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100 MINO, NO 2ND ANTIB., NO PAIN PILLS, ALL TOLLERABLE I REMEMBER WHEN I FIRST DECIDED/STARTED MP, HOW SCARED I WAS TO START. AFRAID THAT I COULD NOT TOLLERATE THE ANTIBIOTICS NEEDED. I WAS SO ALLERGIC/INTOLLERANT TO ALMOST ALL MEDS. WORRIED ABOUT HOW LOW THE BENICAR WOULD TAKE MY BP. SCARED IT WOULD 'BOTTOM' OUT. BUT NO MATTER HOW LOW I SEE IT NOW, IT DOES NOT ALARM ME AT ALL. I FEEL SO SAFE DOING MP. I HAVE HAD NO PROBLEMS OF CONCERN EVEN WITH JUST ONE KIDNEY. PHASE ONE WAS THE HARDEST FOR ME. LEARNING TO STAY INSIDE OUT OF THE SUN, FINDING THINGS TO DO INSIDE, LEARNING TO REST, SLEEP ETC. WHEN I WAS FATIGUED. I REALLY BELIEVE WE NEED THIS REST. YES, I AM ANXIOUS WHEN I WILL REACH THE POINT TREVOR IS AT BUT I WILL MAKE IT. WHEN I DECIDED I WAS GOING TO DO MP, I JUMPED IN WITH BOTH FEET, PRINTED OUT PHASE 1, READ AND REREAD IT AND BELIEVED TOTALLY IN DR. MARSHALL THAT HE WAS WISE AND KNEW WHAT HE WAS DOING AND SAYING. I HAVE FOLLOWED HIS INSTRUCTIONS (ALMOST) TO A TEE. ALL HAS BEEN WELL AND I AM SO GRATEFUL FOR NO MIGRAINES AND NECK ACHES, LET ALONE ALL THE OTHER NUMEROUS GIFTS MP HAS GIVEN ME. I AM ON MY 2ND ANTIB AND I HAVE HAD NO PROBLEMS WITH TAKING AN ANTIBIOTIC OR WITH THE BENICAR. THE HERX HAS BEEN OKAY, BETTER THAN THE PAIN BEFORE MP. I MUST ADMIT, I PRAYED BEFORE I STARTED MP AND I HAVE BEEN TRULY BLESSED. i HAVE HAD NO HERX TODAY EXCEPT FOR BEING SLEEPY NOT FATIGUED, JUST LAZY. DOZED A LOT IN THE RECLINER. IF YOU ARE READING MY POSTS, THINKING OF STARTING MP, PLEASE DO AND DON'T WORRY, IT WORKS FANTASTIC. THANK YOU TREVOR MARSHALL. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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I MEANT TO MENTION IN MY POST: http://WWW.SUNRISESUNSET.COM IS A CALENDAR YOU CAN PRINT OUT FOR EACH MONTH. IT HAS SUNRISE, SUNSET, MOONRISE, MOONSET, TWILIGHT HOURS AND YOU JUST PUT IN THE CITY AND STATE YOU NEED AND THAT WAY YOU CAN TELL WHEN YOU CAN BE OUTSIDE WITHOUT SUNLIGHT EXPOSURE. HOPE THIS HELPS. BARNEY |
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BARNEY Moderator
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DAY 133, 5/13/05, PHASE 2, DAY 4, CYCLE 4, BP 123/81 p80, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, NO 2ND ANTIB. 1 PAIN PILLS, ALL TOLERABLE WAS UP ALL NIGHT. MY FRIEND BELIEVED HE WAS HAVING ANOTHER STROKE AND REFUSED TO GO TO THE HOSPITAL. GOT HIS BP DOWN. HE WAS HERE UNTIL 2 AM AT WHICH TIME I TRIED TO GO TO BED BUT WAS TOO WOUND UP. WENT TO BED AT 9 AM AND SLEPT UNTIL 230PM. I HAVE NOT FIGURED OUT WHETHER NOT SLEEPING AT NIGHT AND GETTING A FEW THINGS DONE AND SLEEPING IN THE DAYTIME IS CALLED INSOMNIA OR NOT. I USED TO WORK GRAVEYARD, SO IT DOES NOT COME HARD FOR ME TO SLEEP DURING THE DAY. DON'T FEEL I AM LOSING ANY SLEEP. I AM USUALLY UP UNTIL 1 OR 2 AM ANYWAY. I WAS READING ON THE MP AND READ SOMEONE'S SITE WHERE THEY TALKED OF A GRANULOMA THAT WAS ROCK HARD. WELL, ONE OF THE HERX TODAY WAS THE SLIGHT PAIN ON THE INSIDE OF EACH BIG TOE WHERE THEY CONNECT TO THE FOOT. I HAD ALWAYS BELIEVED SINCE THESE PLACES CAME, THAT THEY WERE CALCIUM DEPOSITS. ALL I KNOW, IS THEY HURT AND THIS IS THE FIRST TIME IN A WHILE THAT THEY HAVE HURT. ACTUALLY THE LEFT FOOT THIS IS THE FIRST TIME IT HAS HURT. IT'S BEARABLE, MUST BE KILLING BUGS THERE. WHEN I COULDN'T SLEEP,FOR LOTS OF REASONS, ONE OF WHICH I WENT OUT TO MY SHED AND STARTED CLEANING IT UP AND LIFTED A FEW THINGS THAT WERE HEAVY AND MADE MY BACK START HURTING, SO I TOOK A SHOWER AND A PAIN PILL. I HAVE NOTICED THAT I AM COLD MORE. I JUST FELT THAT MY THERMOSTAT HAD FINALLY KICKED IN AND I WAS NOT GOING TO BE SO EXTREMELY HOT ANYMORE. I HATED SUMMER CAUSE I WAS ALWAYS HOT. IT IS SO NICE NOW TO SEEM LIKE I HAVE A NORMAL TEMP. IT EVEN FEELS GOOD TO BE COLD. FEELS NORMAL. I ALSO HAD KNEE PAIN IN BOTH KNEES. I NEVER THOUGHT OF THIS AS A HERX BEFORE BECAUSE I WAS ADVISED BY AN ORTHOPEDIC DOC THAT I NEEDED KNEE REPLACEMENT. I JUST THOUGHT THIS WAS NORMAL PAIN. I WILL NOW CONSIDER THIS AS HERX AND THAT BUGS ARE BEING KILLED. I GOT MY DVD'S TODAY AN AFTER WATCHING ONE OF THEM REALIZED A FEW THINGS ABOUT HERX I NEVER CONSIDERED BECAUSE THE THE PAIN I HAVE BEEN IN, IT SEEMS LIKE, MOST OF MY LIFE. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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hrts4me Member in Phase 2/3 
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Barney, I noticed in reading your progress reports and signature line that you had a nephrectomy due to a cyst (rt) kidney. Could you give me some background on this. In other words, did your doctors automatically presume this was sarc before they removed it (since you had previous dx of sarc) or were they telling you there a possibility that it was renal cell carninoma? (I've been told they never biopsy kidneys due to the high incidence of growths beeing cancerous and the chance of spreading, as RCC is not treatable with radiation or chemotherapy). Was it affecting kidney function? Other symptoms? Off labs? If there were no symptoms that might not resolve on the MP, would you in hindsight make the decision, now to have it removed, knowing what you now know? I have a 4+ cm. cysts covering the top pole of my left kidney. I am being given the RCC (Renal Cell Carcinoma) scar, and I am not sure that the growth isn't the result of occult bacteria. Does your remaining kidney function well, has it been affected by TH1 disease? Any info you could give me would be greatly appreciated. Best wishes, Hrts Last edited on Sat May 14th, 2005 21:08 by hrts4me |
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BARNEY Moderator
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hrts4me, I had absolutely no pain or indication of anything wrong with my (r) kidney. I had a urine test in May 95 and everything was fine. In July 95 (2 months later) I had blood cells in my urine TNTC (too numerous to count). I had a cat scan in early August and they found what they were sure was cancer. My urine was maroon colored. You are correct about no biopsy on kidneys in case it is cancer. If only 2 cells get loose you will not make it. It will spread like wildfire. That is exactly what my doc told me. On August 24, 95, they removed my right kidney to find that it was a cyst and that there was barely any kidney left. They also said it was encased with a 'plastic' type substance which they were very careful not to perferate. There was nothing else to do but remove it, it was 'gone'. No pain till after surgery and then it hurt for 8 months. Could not lay on my right side. It felt like there was a big hole in there. Everything has since shifted and it does not feel that way. Once in a great while there is a little pain on the right, but not much anymore. Hope this helps!! Barney |
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BARNEY Moderator
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DAY 134, 5/14/05, PHASE 2, DAY 5, CYCLE 4, BP 113/82, P94, BENICAR 20 Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, NO 2ND ANTIB, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE I made a mistake in my post last night. I took 100mg Mino. I had a strange thing happen with my (R) eye this morning. It looked like to the far right of the tv screen that I saw black and while stripes (best way I can describe it) and in the middle of the eye part of the picture was blurry or missing. I have had this before, but this time I was also very nauseated and dzzy if I moved to fast. I went to bed and slept and when I got up, everything is okay. Knee (R) is still hurting. Hoping MP is going to help that too. Do not want a knee replacement. Went to town this PM after dark. Stayed about an hour and came home. Nice to get out in fresh air. (As fresh as it gets nowadays) HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 135, 5/15/05, PHASE 2, DAY 6, CYCLE 4, BP 111/79/P81, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, 2 650MG TYLENOL, ALL TOLERABLE HAVE NOT BEEN GOING TO BED UNTIL AFTER 2AM OR LATER AND NOT GETTING UP BEFORE 11AM TO 3PM. SINCE I DO GET QUITE A BIT OF SLEEP WHETHER IT BE DAY OR NIGHT, I DO NOT FEEL LIKE IT IS INSOMINIA. IT IS SO PEACEFUL AFTER MIDNIGHT, I CAN CATCH UP ON TV, DISHES, WATER PLANTS, PLAY WITH DOG OR WHATEVER THAT I CANNOT SEEM TO GET TO BECAUSE THE PHONE IS RINGING OR I AM DOING SOMETHING FOR OTHERS. PLUS, IF YOU SLEEP PART OF THE DAY AWAY, YOU DO NOT HAVE TO PUT UP WITH IT TAKING SO MANY HOURS UNTIL SUN GOES DOWN. WHEN I WAS GETTING UP ONLY DURING DAYLIGHT HOURS, I WOULD ANTICIPATE FOR 14 HOURS WAITING FOR THE SUN TO GO DOWN TO GO OUT AND BY THEN I WAS SO TIRED THAT I HAD NO ENERGY LEFT TO GO OUTSIDE. THIS WAY IT WORKS OUT BETTER FOR ME. I JUST REALIZED THAT IN THE LAST FEW DAYS MY 'OSTEO' SHOULDERS DO NOT HURT. I HAVE CRIED FOR YEARS WITH THE PAIN IN THEM. OH, WHAT A RELIEF. I AM TRYING TO GET READY FOR MY 300 MILE TRIP TO ALBUQUERQUE FOR MY GRANDDAUGHTER'S GRADUATION (LAST GRANDCHILD) ON FRIDAY MORN. I WILL TRAVEL AT NIGHT TO AVOID SUN AND CONTINUE ON 100MG MINO UNLESS THE SUNLIGHT EXPOSURE GETS TO BE TOO MUCH, THEN I WILL BACK OFF TO 50MG QD AND THEN NOT TAKE MY SECOND ANTIB UNTIL I GET BACK (PROBABLY ON MONDAY). PROBABLY WILL NOT POST WHILE I AM GONE, BUT WILL CONTINUE TO KEEP MY PAPER JOURNAL GOING. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Dr Trevor Marshall Research Team
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Have a happy 'graduation', Barney ..Trevor.. |
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hrts4me Member in Phase 2/3
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Thank you Barney, so much for sharing your experiences with me. I appreciate you taking the time to do so, when you were busy preparing for your trip. I hope you have a wonderful time at your grandchild's graduation! One last question if I may (since I am seeing quite a few at the sarc site who have undergone nephrectomies) when biopsied did this cyst show any signs of carcinoma? I am presuming it (the kidney) needed to be removed since you said "there was barely any kidney left", but was this due to a benign or malignant cyst? (after it underwent scrutiny in the lab). Best wishes, Hrts Last edited on Mon May 16th, 2005 20:03 by hrts4me |
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BARNEY Moderator
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hrts, the pathology report stated there was no cancer, just that the cyst left nothing of the kidney, so it was removed. they wanted to be sure there was no cancer also. hope this helps!! Barney |
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BARNEY Moderator
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DAY 136, 5/16/05, PHASE 2, DAY 7, CYCLE 4, BP 108/66/P93, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, NO 2ND ANTIB, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE KNEE IS STILL HURTING BUT EASING OFF TO SOME DEGREE. DID NOT SLEEP WELL, DREAMED ALL NIGHT AND TOSSED A TURNED, SHOULD NOT HAVE GONE TO BED AT MIDNIGHT. SLEPT MOST OF MORNING IN RECLINER, A GOOD RESTFUL SLEEP. THAT IS ABOUT IT FOR TODAY. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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hrts4me Member in Phase 2/3
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Thanks again Barney! You have answered my questions so well, and have been such a wonderful help. Best wishes to you on your quest for wellness! hrts |
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BARNEY Moderator
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Dear hrts, I noticed in your signature line you noted that you also have kidney stones. I did not have any stones at any time and from what I hear of the pain from others, I am very thankful I did not. However, when my gallbladder was removed they found 1 stone and a very abnormal wall with leakage. Guess that was why I looked ashen gray before they removed it 2 months after the kidney removal. Then there were 4 more surgeries after that (all within 14 months). I must be 'a tough old bird' to have survived all that and sarc too. I am doing better (much better) on MP. So grateful to Trevor Marshall. Thought maybe you might find this also helpful. Barney |
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BARNEY Moderator
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DAY 137, 5/17/05, PHASE 2, DAY 8, CYCLE 4, BP 125/75/P84, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIBO, NO PAIN PILLS, ALL TOLERABLE Nothing exciting today, lots of rest and sleep and a little bit of packing to go the graduation. Knee has been better today, not hurting near as bad. My eyes feel as tho I cried for hours (you know, that 'tired' feeling). I got something in them last night and flooded them with regular visine and may be that's why they feel like that. They are okay tho. HANG IN THERE, WE WILL MAKE IT!!! BARNEY PS. hrts, I got my papers from my bladder biopsy and it may have been sarc. One doc says probably and one says no. Who knows? Barney |
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BARNEY Moderator
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DAY 138, 5/18/05, PHASE 2, DAY 9, CYCLE 4, BP NOT TAKEN, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, NO 2ND ANTIBO, NO PAIN PILLS, ALL TOLERABLE Trying to get every last detail done and deal with being tired and sleepy. Took a 3hr nap to be sure to stay awake to drive tonight. Will have to sing with the radio a lot tonight to stay awake, glad no one will be in the car with me. Everything is packed (almost). Just need to put it in the car. See everyone one I get back very late Sunday night. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 139, 5/19/05, PHASE 2, DAY 10, CYCLE 4, BP 101/68/P105, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, MINO 50MG Q12HRS,NO 2ND ANTIBIO, NO PAIN PILLS, ALL TOLERABLE Decided to go ahead and post before all the excitement starts with the graduation this morning. I am using my son-in-laws computer. What an exciting trip! I wanted to share my experiences while they are still on my mind. I started out after dark with a lot of anxiety. Would the car break down? What would I do? How would I get help? and yes, I almost turned around 30 miles down the road and went home. But...I didn't. I kept telling myself it would be okay. The grandkids kept calling me on my cellphone to make sure I was staying awake and I was okay. I was very glad to see Albq. I stopped in Las Lunas for gas at an all nighter and talked with the ladies there about why I was traveling at night. Marshall Protocol and I told them all about it. I got in about 215 am and carried everything in, as I knew after the sun came up, I was not going out. I realized 2 hrs later that my suitcase (which I forgot about) was still sitting in the street behind my car. Thank God, no one stole it. Not too many people up at that hour. Also hard to find...was a gas station open. I thought everything kept turning 24/7 but...I guess not. Very scarey for night travel. The road signs usually say whether they are open 24 hrs but they also lie. Finally went to sleep about 5am and slept until 9am, did not even hear my kids go to work. Must have really been out of it. I rested all day on their couch, dozing off and on and watching tv when I was awake. After all, they have a big screen and satillite. I made a startling decision which I had not even really considered. It was like a light bulb came on. I get really tired when I take the 100mg mino (the next day) and I wanted it to be nice. So I am taking 50mg Mino Q12hrs. So far seem great, is evening out for me so far. No 2nd antibiotic until I get home and rested, even tho today should have been the day. Well, all I better go get dressed. Just wanted to share this experience with you. Oh, by the way, the kids covered all their windows with newspaper. I did not think that would work, but..it is great. It is like twilight in all their house. See ya. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 140, 5/20/05, PHASE 2, DAY 10, CYCLE 4, NO BP/P, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT & 3AM, MINO 50MG Q12 HRS, NO 2ND ANTIB., 1 ACIDOP, 2 PAIN PILLS, ALL TOLERABLE GOT UP WITH A ACHING HEAD, WHEN I PUT MY VISOR ON, IT HURT. WENT TO GRADUATION ALL COVERED WITH NOIRS. SON-IN-LAW DROVE, MAKING IT EASIER ON ME. COULD CLOSE MY EYES A LOT. BY THE TIME GRADUATION PROCEEDED, I WAS FEELING VERY NAUSEATED BUT WAS ABLE TO SIT THRU THE GRADUATION AND GO TO LUNCH. IT HAS BEEN GREAT, FRIENDS AND FAMILY PUT IN A LOT OF EFFORT TO SEE THAT I AM AVOIDING THE SUN AS MUCH AS IS POSSIBLE. THE RESTAURANT, THEY GOT A TABLE COMPLETELY IN THE DARK EXCEPT FOR DIM LIGHTS AND AT THE GRADUATION I KEPT MY VISOR ON AND MY LIGHT NOIRS. NO FLORESCENTS BUT HALEOGENS (JUST AS BAD). FRIENDS FROM WHEN MY GRANDDAUGHTER WAS A BABY ATTENDED AND COULD NOT GET OVER THE FACT THAT "I LOOKED SO GOOD SINCE THE LAST TIME THEY SAW ME" ABOUT 2 YEARS AGO. THEY SAID I LOOKED GREAT. THE LAST TIME THEY SAW ME, THEY SAID I LOOKED LIKE I COULD NOT PUT ONE FOOT IN FRONT OF THE OTHER. THEY JUST WERE BLOWN AWAY AT HOW WELL I AM DOING. THAT REALLY ENCOURAGED ME. THEN MY 'ADOPTED FAMILY' TOLD ME THE SAME THING. JUST WANTED TO LET YOU KNOW THAT MP IS ALSO SHOWING ON THE OUTSIDE TOO. I THOUGHT GRANNY WAS JUST 'PREJUDICED' WHEN SHE SAID IT. HAD TO LAY DOWN AND REST FOR ABOUT 3 HRS TO GET RID OF THE NAUSEA. I AM WONDERING IF IT IS THE FACT I AM TAKING THE MINO 50MG Q12HRS. WHO KNOWS? INTERESTING TO EXPERIMENT. YEAH! FORGOT TO TELL YOU THE REAL EXCITEMENT..I WAS ON A VERY DESOLATE ROAD AND NO RESTROOM AVAILABLE, ALSO NO TRAFFIC, STOPPED IN MIDDLE OF ROAD, AFTER I GOT BACK IN THE CAR AND WENT ABOUT 20 FT THERE WAS A 3 FOOT SNAKE. DON'T KNOW WHAT KIND, DON'T CARE, HATE SNAKES. I WAS WONDERING WHAT WOULD BE MY REACTION WHILE ON MP IF I WERE BIT. DON'T REALLY WANT TO FIND OUT. HANG IN THERE, WE WILL MAKE IT! BARNEY |
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Dr Trevor Marshall Research Team
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Barney, the MP should not alter your reaction to snakebite. Although your increased medical knowledge might make things a bit harder for the ER staff  Great to hear you are making visible progress. ..Trevor.. |
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BARNEY Moderator
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DAY 143, 5/23/05,PHASE 2, DAY 14, CYCLE 4, BP 115/74/P92, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 100MG MINO, 1 ACIDOP, NO 2ND ANTIB., 1 PAIN PILL(AFTER WORKING ON COOLER), ALL TOLERABLE DID NOT GO TO BED UNTIL 7AM DUE TO HAVING TO UNLOADING THE CAR FROM TRIP AND TIGHTENING THE BOLTS ON THE FAN AND PULLEY OF THE COOLER, SINCE I CAME HOME TO A VERY HOT HOUSE. IT HAD GOTTEN 104 DEGREES, TODAY WAS 105 DEGREES BUT SINCE I GOT THE COOLER WORKING GOOD IT WAS ONLY 70 INSIDE. HOORAY, I AM VERY GRUMPY WHEN I GET TOO HOT AND 105 IS ABOUT 20 MORE THAN I WANT TO BEAR. I WANTED TO SHARE SOME OF MY MP EXPERIENCES, BEFORE I GET BRAIN FOG AND FORGET THEM. I HOPE MY COMPUTER WILL NOT DIE BEFORE I DO THIS: 1. People are totally blown away at the woman traveling alone at night until they learn you cannot tollerate any sun. However, they make it very plain that they cannot do what I am doing. (I tell them they would if they knew they were dying,) 2. No matter how young they can understand the sun will make you sick if you go outside. My greatgrandson kept saying ' you get sick when you go out in the sun?' He knew we could go out after dark, but in the meantime we could play in the house and he was okay with that. 3. Big screen tv's really put the light out. Absolutely necessary to remember to put the NOIRs on so your eyes did not get a BLAST of light. 4. When away at someone else's house, you must discuss meals with them. My granddaughter is going to continue her education as a chef and her male friend from chef class decided to cook a fancy meal for us. Everything they made they had to really think what I could and could not eat. They forgot and put milk in the pudding in the parfait. They were discouraged that I could not even taste it. I was getting too much light exposure on this trip, I did not want to add Vit D in my food. My grandson-in-law ate it for me. 5. When I reduced the mino to 50Mg Q12hrs my knee backed off hurting but I got very nausated. So I backed off to 50mg QD and all was well. I thought my knee was going to have to be replaced after all, it had really gotten bad with pain. I now believe it is the antibiotics killing bugs. It feels great tonite, but I am starting back up on my meds, so I figure it will start hurting again. 6. You can overcome the anxiety you get on MP if you just sit and talk with yourself that you are going to be okay. 7. the drive back was a breeze, no anxiety at all, HOWEVER, the muscle pain in the top of my leg between knee and hip got to be almost unbearable pushing the accelerator. (no cruise). 8. My feet did swell from the light exposure at my (other) granddaughter's house, but my hands, face and eyes did not swell this time. 9. I had the strangest time with a runny nose the whole time I was at the graduation, never had that since on MP. It quit as soon as we left that building. Don't know that I would throw that onto MP? Well, I guess I have run off the mouth enough, better go to bed. Was good to get out, but am very glad I am back in my cave, I missed it. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 144, 5/24/05, PHASE 2, DAY 1, CYCLE 5, BP 135/79/P86, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, 2ND ANTIBO, NO PAIN PILLS, ALL TOLERABLE Rested and napped all day after sleeping from 12am until 6am. Was not fatigued, just felt like normal day I would have if I were a well person. Just needed to rest after trip, but not near as tired as I thought I would be. Very pleasant feeling. Not aching, not hurting anywhere. Tomorrow the bugs will be on the run again, so we will probably sing a different tune . One day at a time, we will see what happens. How sweet this trip was, just by sticking with the plans of least amount of light exposure as had to be. I'm loving it. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 145, 5/25/05, PHASE 2, DAY 2, CYCLE 5, BP 120/79/P81, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO OR 2ND ANTIB., NO PAIN PILL, ALL TOLERABLE Other than loading the dishwasher and running it and putting the dishes away, I just sat around and watched TV. Turned down an 'invite' from the WASOG for Patient Conference Day from Dolores OLeary. I have known her and her husband for many many years. They are sweet people. I invited her to join us here at MP, since our treatment works and all that she has gone thru has not worked. As of this post, I have heard nothing back. I also invited her to read all my posts. I told her I would not attend because I felt they had nothing to offer me, especially since I found MP and there didn't seem to be any answers from their 'camp' all these years. If I sound irritated because the medical society never gave me any correct answers for 40 years, you are right, I AM VERY IRRITATED WITH THE MEDICAL SOCIETY. I am so very thankful to have found MP. I have had a great trip, a great time when I got back and am still feeling GREAT tonight. No pain, no sickness, just a clear head that feels like I got a new lease on life. Better quit bragging before a herx gets me (haha). HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 146, 5/26/05, PHASE 2, DAY 3, CYCLE 5, BP 96/63/P80. BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, 1 PAIN PILL, ALL TOLERABLE Neck was hurting when I got up, nipped it in the bud with a pain pill, rest of day all tolerable. Not the same neck pain as I used to have before MP. I am sure this was a herx. Another herx, sleepy today. Not tired, not fatigued. Feel very clear headed. Got an email from Dolores declining my offer to start MP. Wish she would, she is going blind from sarc. My mother always said you can lead a horse to water but you can not make them drink. Went to Walmart after dark last night, and had to get home asap because the tiredness kicked in and I knew I would need to go to bed soon. When going to town, I noticed (by sight) that they had paved our highway, Used to be that I would smell it first and have breathing problems the whole way. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 147, 5/27/05, PHASE 2, DAY 4, CYCLE 5, BP 123/79/P82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, (THIS IS WHAT I SHOULD HAVE DONE), 1 ACIDOP., NO ANTIBIOTICS TODAY, 1 PAIN PILL, ALL TOLERABLE EXCEPT MY STUPIDITY. I really blew it today. The worst mistake since on MP. I took all my meds until my 3pm. I forgot it, the 6pm and didn't remember until 9pm. To make matters even worse, I was out during daylight hours (covered completely of course). It was cloudy and I thought I needed to go away for a change to shop during daylight. I don't need to tell you I lost my blockade and am having to really go on some Benicar q2hrs to get it back. Darn it. Just plain stupidity. I know I have to take meds q3hrs but I guess I was having to much fun cheating and I will have to pay the price. We'll see what the penalty is. HANG IN THERE, YOU WILL MAKE IT TODAY, WE'LL SEE HOW I DO. BARNEY |
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BARNEY Moderator
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DAY 148, 5/28/05, PHASE 2, DAY 5, CYCLE 5, BP 103/68/P76, BENICAR 20MG Q2HRS, BENICAR 20MG Q2HRS, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB., 2 PAIN PILLS, ALL TOLERABLE Penalty time hit about noon, pretty rough shoulder and neck pain, lasting up thru my posting time (now). 2 pain pills gave some relief. Irrability and muscle pain and pain in side where kidney(r) was removed. All tolerable but miserable. You do the crime, you pay the fine and I guess I had it coming after yesterday. WILL NOT forget my meds again no matter how excited I am. Have a great HOLIDAY everyone. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 149, 5/29/05, PHASE 2, DAY 6, CYCLE 5, BP 101/60/p85, BENICAR 20MGS Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO/2ND ANTIB., NO PAIN PILLS, ALL TOLERABLE Some neck/shoulder pain left over from yesterday. Right hip hurt some when I drove into town tonight. A little brain fog and a little irritability when things I was working on did not suit me. Otherwise, I am back on track with my meds and starting to feel better like I had before I forgot them. Discovered I could also put my pills under schedule on my cell phone and an alarm would go off Q3hrs so I would not forget my meds. HOOORAY!! Did 3 loads of laundry, loaded dishwasher and turned it on (it did the rest) and sat around and watched the lady almost win the Indy 500 and then watched the Nextel 600 race. Good day, all tolerable, will get better as my meds get back up to the level they should be. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 150, 5/30/05, PHASE 2, DAY 7, CYCLE 5, BP 115/72/P75, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS, ALL TOLERABLE A funny kind of day. I feel as tho everyone else is at a party, bbq or a picnic but me (and a few MPers). Seems sad almost to the point of tears. I guess you would call that depression. I know several people who did not have any parties, etc. so I am not alone here. Tomorrow should be better. Watered the garden (if you can call it that). Main thing that is growing are tomatoes and squash if the birds will leave it alone. Brushed Amanda (my dog). She had enough hair for 10 dogs. Then my arm muscle and hand sorta ached like they were sore and over used. Ate way to much, but I lay that on to the depression. I should have more control than that, but I don't. I like food. Otherwise, nothing much else. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aussie Barb Research Team
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Hey Barney, Here is a Party..... with a Banner... feel gooood.... |
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BARNEY Moderator
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THANKS BARB!! I NEEDED THAT. MY DAUGHTER CALLED AFTER I POSTED AND MY SON-IN-LAW WAS SAYING THE SAME THING TO HER ABOUT THE PARTY ETC. HE HAS BEEN PRAYING FOR ME NIGHTLY, COULD IT BE SYMPATHY PAINS, (YOU KNOW - LIKE DURING A PREGNACY THAT THE HUSBAND HAS SYMPATHY PAINS?) HAHA. THANK YOU AGAIN, IT IS HARD TO DO ANYTHING WHEN YOU FEEL THAT WAY. I MOSTLY SAT IN A CHAIR ALL DAY. LOOKED AT THE TV BUT DID NOT SEE THE SHOWS. |
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Frans Member in Phase 2 
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Last edited on Tue May 31st, 2005 13:41 by Frans |
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BARNEY Moderator
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DAY 151, 5/31/05, PHASE 2, DAY 8, CYCLE 5, BP 123/76/P75, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO/2ND ANTIB., 1 PAIN PILL, ALL TOLERABLE Up at 530am, walked out before sunup and got newspaper. Was still very sleepy, but ate breakfast, and went back to bed at 830am and slept until 12 noon. Got up and cooked lunch for Jeanette and I (my friend from across town). She spent the day and we watched 'Medicine Man' (movie) and some movies I made while in Germany. Had an achey head, like a vice around the top part. Too pain pill around 1pm and it was gone by 2pm. Just feel tired not fatigued. Not depressed today!! HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 152, 6/1/05, PHASE 2, DAY 9, CYCLE 5, BP 118/75/P86, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS, ALL TOLERABLE Today marks 6 months on MP. What an achievement to stay indoors for that long during daylight hours. Went to store tonight after dark, when I got home I didn't have any energy left, so I will be going to bed soon. My eyes have puffy bags under them all day today. No other sxs. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 153, 5/2/05, PHASE 2, DAY 10, CYCLE 5, BP 107/74/P97, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO/2ND ANTIB., NO PAIN PILLS, ALL TOLERABLE Got up this am with EXTREME DIZZINESS which lasted about 2 hours. Decided since I live alone, it would be advisable to stay seated or in bed for a time till the dizziness went away. It did. Eyes-puffy bags under eyes still. Very sleepy all day and should have taken a nice long nap, but did not. Went grocery shopping and spent about 2 hours altogether looking in Walmart. Was enjoyable to just look at what is actually in the store. Sherry, I found 15 watt bulbs (GE) at Walmart tonite (2/$2.63). Got very tired at store and knew I needed to get home, so checked out keeping all cold items together in case I did not have the energy to carry everything in. I believe that the last 3 days of 2nd antibiotic are harder for me than the 3/6th days. I also believe I am still not all the way 'back' from losing my Benicar blockade on 5/27/05, when I forgot 3 pills and went 9 hours with no Benicar. I now have my cellphone alarm set so that can't happen any more. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 154, 6/3/05, PHASE 2, DAY 11, CYCLE 5, BP 105/71/87, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS, ALL TOLERABLE Yesterday, I forgot to mention that I had gone out before dark to get my meds (fully covered plus noirs), then over to granny's to stay out of the sun until after dark, then had to go out today (in the sun) (full covered plus Noirs)(about 1 hr total time) to work on the cooler again. I bought a new gadget for it, and it was acting up. I have noticed underarm odor has been harder to control while on 2nd antib. I will be starting the 3rd antibiotic maybe Sat/Sun. We'll see. Also, dreams have been making more sense, at least I wake up feeling that way, although I can not remember them. Have had some nausea the last few days, but I believe it was because I bought some diet rite soda and have had 1 every day. My stomach feels like it wants to start into diareaha but doesn't. I believe it is the Splenda, I don't really do well with it. Thought maybe that had changed since on MP but maybe Splenda is just no good period. HANG IN THERE, WE WILL MAKE IT !!! BARNEY Last edited on Sat Jun 4th, 2005 01:30 by BARNEY |
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BARNEY Moderator
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DAY 155, 6/4/05, PHASE 2, DAY 12, CYCLE 5, BP 96/57/P81, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO/2ND ANTIB/3RDANTIB.,1 PAIN PILL, ALL TOLERABLE It has been a 'mellow' day for me, seems most of herx is gone from 2nd antib and I am ready to start 3rd antib tomorrow night with the mino. Don't feel any rage today, even tho my computer has died at least 3 times today and I have not hit it (haha). Rested am so that light exposure effects could calm, although I did not seem to have any ill effects from it this time. Actually the last 4 times. Of course, I still go out fully covered w/Noirs. Getting some housework done and cooked up a few things ahead of time in case the 3rd antib will not allow me to do anything for a while. Eyes are itchy, but everyone here is complaining of the allergies, so I am chalking that up to allergies. I found some amber light bulbs (25w) and they are so calming. I love them. I put them in my bedroom where my computer is. Maybe I will buy a lot more of them and just use them. Maybe this is the calming effect. I JUST PUT LIGHT BULBS, AMBER, 25 WATT INTO THE GOOGLE SEARCH ENGINE AND CAME UP WITH A REALLY NEAT WEB SITE FOR LIGHT BULBS (EVERYONE KEEPS ASKING WHERE TO GET DIFFERENT ONES AT). IT IS http://WWW.LIGHTBULBSDIRECT.COM. Took pain pill am because I had an annoying achey head. Was bearable but a nuisance, so I took it as a precaution to it getting any worse. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 156, 6/5/05, PHASE 2/3, DAY 1, CYCLE 1C, BP116/72/P85, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, 3RD ANTIBO, NO PAIN PILLS, ALL TOLERABLE WELL, HERE WE GO WITH THE 3RD ANTIBIOTIC. I HAVE STUCK WITH 100MG MINO ALL THE WAY THRU THE 2ND ANTIBO, SO DECIDED TO STICK WITH THE PLAN FOR THE 3RD ANTIBO. IF IT IS TOO MUCH THIS TIME, I WILL BACK MINO DOWN TO 50MG. WE ARE ON THE ADVENTURE OF A LIFETIME AND WILL SEE WHAT HAPPENS. I SENT OUT PRAYER ALERTS TO FAMILY. GOD HAS REALLY BLESSED ME THRU ALL OF THE PHASES OF MP. HAVE PLENTY OF FOOD MADE UP, AND A LOT OF THINGS ACCOMPLISHED THE LAST 2 DAYS IN CASE I AM NOT ABLE TO DO ANYTHING. I WILL TAKE MY LAST BENICAR IN A FEW MINUTES AND GO TO BED. HANG IN THERE, WE WILL MAKE IT!! BARNEY PS HAD AN HOUR NAP TODAY. |
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BARNEY Moderator
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DAY 157, 6/6/05, PHASE 2/3, DAY 2, CYCLE 1c, BP128/75/P82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, NO 2ND OR 3RD ANTIB., NO PAIN PILLS, ALL TOLERABLE Took 3rd antibo (w/100mg mino) at about 11pm last night, slept well all night, dreamed but don't remember it, no problems or herxs. This am head felt 'big/swollen', vice around top of head, cleared by afternoon. Left eye had a 'spot' (like mucus over it) for a while and eyes feel like 'sore' along with nose, but not bad, just noticable. Hands feel a little swollen. Have not been out in sun for several days, so must be part of the herx. Was not expecting it to go this well. Am pleasantly surprised. Computer man here today, and the computer finally died for him so now he knows what I was trying to tell him. He thinks it is a power supply and will order same. Be about a week before it is fixed. However, he put it in a mode that it can only go to sleep not shut down, we hope. This has been stressful for me, because half way thru a letter or post, the dumb thing would shut down and I would lose everything I had written. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 158, 6/7/05, PHASE 2/3, DAY 3, CYCLE 1C, BP 132/76/P81, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, 3RD ANTIBO, NO PAIN PILLS, ALL TOLERABLE Right eye real puffy bag under eye clear outside of scrip glasses (can be seen there). Left eye puffy bag (not as bad) under eye. Not painful, just doesn't look nice. I'm sure my eyes are full of bacteria because I was into such strong eye pressure before MP that I had to go to bed, it hurt toooo bad to keep them open and look at anything. Took 4 hr nap, all okay otherwise. Tonight will next dose of 3rd antibiotic. COMPUTER STILL DYING ON REGULAR BASIS, PART IS ON IT'S WAY. HANG IN THERE, WE WILL MAKE IT !!!! BARNEY Last edited on Wed Jun 8th, 2005 01:38 by BARNEY |
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BARNEY Moderator
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June 7, 2005 I must have complete confusion today. I thought I was doing real well until I found out (thru a phone call) that this was not Wednesday but Tuesday. I had my pills for tonight in the wrong slot. I am taking the mino and 3rd antibo tonight like stated. It must be working on my brain. I felt like everything was okay and the 3rd antibo was not affecting me, but with this confusion I guess I should change my statement. My computer dying and waiting on the part has me rattled, I guess. Barney Last edited on Wed Jun 8th, 2005 06:38 by BARNEY |
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Dr Trevor Marshall Research Team
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hey Barney, hang on in there - just swear at the computer - that often works wonders on your morale... ..Trevor.. |
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BARNEY Moderator
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Trevor, Thank you for words of encouragement. Believe me, I have called this computer some names I cannot repeat online. The stress is tremendous trying to get messages on before it dies, especially if they are long. Doing well on C. 2nd dose last night. Thankyou for all your hard work. Barney |
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Frans Member in Phase 2
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Barney, Maybe you can write your messages in notepad, wordpad, or word first. That way you can save your changes regularly (they have smartkeys, so ctrl-s in notepads lets you save eg), so you don't have to type the whole posts again, but just the lines you haven't saved yet. Try to save after every dot. Sincerely, Frans |
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Reenie inactive member
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Hi Barney, I've been trying to follow along, reading back several days posts to try to see if I can sort out how/what you're doing w/your meds. I would think I'm not the only one that may be having a bit of a problem trying to decipher due to "brain fog." Are you now taking a 3rd abx along with your M+Z or have you switched to a different 2nd abx (C) from the Z? TIA PS As Frans suggests, I keep my own journal on my pc, then copy and paste my info to my progress reports. (just one idea for us brain fogged ppl so we don't get stressed out when posting) Last edited on Thu Jun 9th, 2005 02:01 by Reenie |
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BARNEY Moderator
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DAY 159, 6/5/05, PHASE 2/3, DAY 4, CYCLE 1/C, BP 134/89/p82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO Z, NO MINO, NO C, 1 PAIN PILL, ALL TOLERABLE Great day!!!!! Slight head pain, took 1 pain pill early am. Pain gone. No other herx. Took 2nd dose of C, no Z (since 5/24/05), this was at Trevor's advise to me. I have a part on the way, does not matter where I am typing when it dies it dies, am enduring till the part gets here. I keep a paper journal so do not have a problem posting, mostly when I am emailing is when it is frustrating because I am writing long emails. Spending as little time on the computer as possible until the part comes. Mopped behind kitchen stove, shampooed bath carpet, washed all throw rugs, took shower, cut hair and shaved legs, all in one day. W O W what a wonderful day and a wonderful feeling to get some much needed things done. HANG IN THERE, WE WILL MAKE IT !!!! BARNEY Last edited on Thu Jun 9th, 2005 02:14 by BARNEY |
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BARNEY Moderator
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DAY 160, 6/9/05, PHASE 2/3, DAY 5, CYCLE 1C, BP 119/69/P95, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP. 100MG MINO, C, NO Z, 1 PAIN PILL, ALL TOLERABLE Went to bed at 1 am after a full day. Back up at 2am with muscle pain on the outside left thigh, took pain pill and sat up until 330am when it subsided. Up again at 8am (phone call). Took 2 hr nap in afternoon. I have noticed since I have been on MP my tolerance to heat and cold (weather) has been so much better. I had left the cooler on when I went to town last night (not meaning too). It was so cold in the house, I had to put my flannel night gown on. Before MP, I would have thought the cold house was wonderful. Had tender spots on top of head again. All else fine. HANG IN THERE, WE WILL MAKE IT !!! BARNEY |
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BARNEY Moderator
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DAY 161, 6/10/05, PHASE 2/3, DAY 6, CYCLE 1C, BP 136/77/P82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO Z, NO C, NO MINO, NO PAIN PILLS, 1ACIDOP, ALL TOLERABLE To bed at 3 am up at 9am. No naps. Feel really good. No herx that I can think of to report. Doing well. Can't believe how well this is going, I actually feel almost normal. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 162, 6/11/05, PHASE 2/3,DAY 7, CYCLE 1C, BP 139/83/P98, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP., 100MG MINO, C, NO Z, NO PAIN PILL, ALL TOLERABLE Only noticeable herx is a painful right wrist and painful sore hips. All tolerable but a nuisance. No pain pills so far. All else is well and feeling real good and a good clear head. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 163, 6/12/05, PHASE 2/3, DAY 8, CYCLE 1C, BO 130/86/P81, BENICAR 20MG, Q3HRS/BENICAR 40MG MIDNIGHT, NO MINO, NO Z, NO C, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Still have hip and leg pain/sore. All tolerable with no pain meds. I have a clear head, easy to think. My sugar readings are higher than they should be even on low carb diet, feel it is a herx from the C working on the pancreas. Talked with Trevor about this and feel comfortable waiting it out a while to see what happens next. No urinary problems, input and output good. No kidney pain. No apparent problems from higher sugar readings. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 164, 6/13/05, PHASE 2/3, DAY 9, CYCLE 1C, BP 119/79/82, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 100MG MINO, C, NO Z, 1 ACIDOP, NO PAIN PILLS, 2 TYLENOL AT BEDTIME, ALL TOLERABLE Muscle pain in arms and legs, tolerable but a nuisance. Am tired tonight, have been shampooing carpet in living room and rearranging and dusting, plus cooking and doing dishes. Decided to stop for the day. Worked for a while and sat for a while. Everything else okay. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 165, 6/14/05, PHASE 2/3, DAY 10, CYCLE 1C, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, NO Z, NO C, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE, 2 TYLENOL ARM AND LEGG MUSCLES HATE ME TODAY. THEY ARE VERY ACHEY. TOLERABLE BUT A REAL NUISANCE. EACH TIME I INCREASE C (ANTIBO), IT SEEMS TO INTENSIFY FROM THE LAST TIME, STILL ALL BEARABLE. RESTED A LOT TODAY, LEGS EASED UP BUT HANDS STARTED FEELING STIFF AND ARMS STILL ACHEY. ALL OKAY. COMPUTER GIVING ME A NERVOUS BREAKDOWN. WISH PART WOULD COME IN. HANG INTHERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 166, 6/15/05, PHASE 2/3, DAY 11, CYCLE 1C, BP 127/72/P96, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP., 50MG MINO, C, NO Z, 1 PAIN PILL, ALL TOLERABLE My eyes, sinus, shoulders, arms, legs, hips and everything else I have aches. Seems to get a little more intense with each dose of C. It must really be cleaning bacteria out. I am reducing mino to 50mg to see if that makes the herx less. It is tolerable, but hurts. Was difficult to stand to load dishwasher cause hips were achey. Took 1 pain pill and it helped with the achey feeling. Saw my doctor today and she was not one bit happy with my elevated blood sugar. She asked me to try metformin 500mg BID for at least 2 weeks to see if that helped. No meds in the past helped, if I could get past the allergy/intolerance part. My last kidney and liver function tests were perfect. Took new tests, the results will be in a few days from now. Ps Those on C .. on my paperwork from the pharmacy, it said "sit up for at least 30 minutes after taking". Don't know why, just thought I would share this. We will see what the light exposure did to me today. It turned out not to be the power supply and we don't know what it is except maybe the mother board. We will order one of those. In the meantime he made some adjustments hoping this will help. So far so good. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Dr Trevor Marshall Research Team
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Barney said "sit up for at least 30 minutes after taking" Both minocycline and Clindamycin can irritate the lining of the GI tract. I always suggest eating something with fibre and bulk (no calories) to help digest the antibiotics. Sitting upright is a minimal help, but better than nothing |
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BARNEY Moderator
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DAY 167, 6/16/05, PHASE 2/3, DAY 12, CYCLE 1C, BP 114/82/P86, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, NO Z, NO C, NO METFORMIN, NO PAIN PILLS, ALL TOLERABLE EXCEPT EMOTIONS. Started Meformin 500mg BID for high blood sugar yesterday at 11am, took next one at 11pm. Within 1 hour, I had 'heartburn' (or something similar) so intense, I could not handle it. It did not stop all night. My throat felt like someone had ground up glass and made me swallow it without water. Had a hard time sleeping for it. About 9am my throat started constricting and breathing started to really slow down, by afternoon I had diareha & nausea. Called Doc, she called back saying to stop Metformin and relax a few days and Monday we will discuss something new. By Monday, I will be an ANGEL and eat nothing but low carb and I will give her some really good readings to convince her that I need to stay off those nasty drugs. Diabetes is an emotional rollercoaster for me, I feel so cheated, not able to eat all the foods I enjoy and see everyone else eating. Ever go to a meeting with refreshments? What do they serve? Cookies and coffee, no less. What a rip off life can be especially with sarc. Not near as achey wtih 50mg less mino. Will increase back to 100mg in a few more days and see what happens. Going to have a new roommate in a couple of weeks. Am looking forward to some company. Enjoyable person to talk with and quite nice. I sure hope the darkness does not do this new roommate in. As long their bedroom door is shut roommate can have window with no darkness. We will see how it goes. ONE DAY AT A TIME (I am learning). Also have my (praying) son-in-law praying for my herx. Think I will call him and tell him to add diabetes/food and emotional state to his prayers. Need all the help I can get. What a week this has been WOW. HANG IN THERE, WE WILL MAKE IT!!! BARNEY PS I am keeping in mind, that after MP, I can eat anything I want. |
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Aussie Barb Research Team
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Hi Barney it is a good idea to suggest to anyone who will listen that cheese and fresh fruit / salad veg platters are *must serves* at meetings etc... all best, Barb .... |
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BARNEY Moderator
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DAY 168, 6/17/05, PHASE 2/3, DAY 13, CYCLE 1C, NO BP READING TONIGHT, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, C, 50 MG MINO, NO Z, NO PAIN PILLS, ALL TOLERABLE (EXCEPT THE BOUT WITH METFORMIN) STILL FEELING A LITTLE ROUGH AROUND THE EDGES FROM THE 5 SIDE EFFECTS. Have been eating totally low carb for 2 days now, sugar readings would come down (as low as 168) and then back up over 200, could not figure why. The culprit was the chicken I was eating. I love Walmart's rotteserie chicken, but I believe now that they add sugar to their spices they use. No more chicken from Walmart. Readings are starting back down again. We will see what tomorrow brings. Will stick to low carb. The bout with side effects and stress thereof might have a lot to do with high sugar too. I am sure MP is going to knock out the diabetes and what I am experiencing now just may be herx. We will see. No pain to speak of today but had a lot of 'anger'. Have felt that way since the Metformin started reacting. Hope this subsides soon or I may have to find someone to smack (only kidding). HANG IN THERE, WE WILL MAKE IT!!! BARNEY Last edited on Sat Jun 18th, 2005 02:43 by BARNEY |
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BARNEY Moderator
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DAY 169, 6/18/05, PHASE 2/3, DAY 14, CYCLE 1C, BP 105/81/P86, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO Z, NO C, NO MINO, 1 PAIN PILL, ALL TOLERABLE Much better day today despite the fact I goofed last night and took 100 mg Mino instead of 50mg. Some lower and middle back pain (relieved by 1 pain pill). Had a hefty 3 hr nap, which I could have continued for several more hours, had it not been for the phone call. So I guess my herxs are.....sleepiness, lower/middle back pain. Mind has calmed down and I feel real mellow today, do not want to punch anybody. Been on very strict low carb diet since doc's appt (6/15) and my sugar readings are already averaging below 200 and staying there. Am excited about that. I am eating well and enjoying it and have gotten the anger out of my mind about not being able to eat whatever I want (cookies, pies, etc.) I actually feel like that doesn't even sound good anymore. Gee, wonder who popped into my head and made an adjustment.(haha) Actually, Trevor helped a whole lot. Thank you, Trevor. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Foundation Staff .
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Barney, I'm happy to hear that you are getting those blood sugars down. You know my Mom was a type II diabetic and when my blood sugar began inching up, I was sure that I would follow in her footsteps. I had no idea how not to. When I learned about low carb eating and that it could keep my blood sugars and insulin normal, I wasn't angry that I could no longer eat some of the foods I LOVED. I was immensedly grateful to have found an answer to a deadly problem. I've been following a very lowcarb eating lifestyle for four years and find that it is easy to do. There is a neat trade off for the foods you can't have with the truly yummy foods that are allowed. How about a small steak with fresh buttered asparagus and fresh strawberries with whole cream for dessert? You can't have that on a lowfat diet yet it will hardly raise your blood sugar, withour carbs your lipids will normalize and a meal like that will keep you satisfied for hours. Best, Meg |
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Dr Trevor Marshall Research Team
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Hey, when I really want to splurge I pop an Atkins low-carb Pizza into the oven (8 carbs per pizza) Yummmy... ..Trevor.. (now you all know why my weight is only dropping very slowly...) |
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BARNEY Moderator
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Meg, My limited income makes a lot of foods real hard for me to buy. What you suggest sounds real good. Sometimes I can swing it (money wise) other times I settle for hamburger steak (no bread of course). I could not get my anger under control. First it was Atkins for the sugar, then it was no Vit D for MP. It was just more than my mind could handle. I had always been okay with eating anything. I also found that some things you can have if you eat just a bite or two. My book from 2003 (blood sugar levels) feel at my feet tonight in the closet off the self (I have them all, except this years, got too angry to record them). The ones in the old book were fantastic, don't know why, ate anything I wanted, but I was on the run constantly, not cave dwelling and not able to execise (was walking 2 miles per day). You were able to discipline yourself, I have not been able to. Sarc has taken a toll on my mental attitude, I am tired of it. I had a hard time with the asthma and the foods that would set it off. Here in our little hick town, most of the time, you can find nothing low carb. I did find your Ross candy bars and bought 2. (88 cents each). Tonight I feel at peace and do not feel stressed to do the low carb, I really enjoy it too. AND....I have some new ideas. Tomorrow, I will pound a chicken breast flat put a slice of ham and cheese in it and bread it in ground almonds and fry it in a little butter, green beans w/onions and a small dinner salad with 3 kinds of lettuce. Does that sound good? It does to me. Maybe a sf choc candy bar for a snack. I am doing better, thanks. Barney |
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BARNEY Moderator
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Trevor, In order to get any Atkins pizza here, you have to ship it in by Fed Ex/UPS/USPS. So hard to live in a small town and not be able to drive 60 miles in the sun to go get what you need. I am learning how to make low carb stuff in my own kitchen and thanks to you for some ideas, I have spent time getting my head together. Hope the weight at least 25# goes with the sugar readings. Thanks again Trevor. I did pull up Dr. Biernstien's website up last night and read some of it. I will try to get his book. Barney |
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shamutooth Member in Phase 3
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Barney, I'm not sure if this would work for you, but I absolutely do not cheat on my low carb diet Mon-Sat but eat ANYTHING I want on Sunday. I have been doing this for probably 7-8 years and it works great for me. Sam |
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BARNEY Moderator
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Shamutooth, Thanks for the tips and it may work for me. But....I am beginning to think this is a herx. I have been low carb for 4 days and everything was starting to come down (absolutely NO cheating). Since I took my next dose of C, it is going back up again. Maybe I need to just stop eating period (just joking). This is getting disgusting. I have always figured a way with my diet to bring it down. I may have to take a break to see what's happening. Barney |
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BARNEY Moderator
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DAY 170, 6/19/05, PHASE 2/3, DAY 15, CYCLE 1C, BP 85/57/P84, BENICAR 20MG Q3HRS, BENICAR 40 MG MIDNIGHT, 1 ACIDOP, 50 MINO, C, NO PAIN PILLS, NO Z, ALL TOLERABLE IT HAS BEEN AN UP AND DOWN WEEKEND, STAYED ON LOW CARB DIET TOTALLY WITHOUT CHEATING ONCE. MY GREAT ACCOMPLISHMENT IS THAT I AM DOWN TO 157 IN SUGAR READINGS FROM THE OVER 200'S. MEALS ARE GREAT AND I AM OKAY WITH ALL OF IT AFTER MUCH ENCOURAGMENT FROM MEG, TREVOR AND BARB. WILL ASK THE DOC TO GIVE ME 3 WEEKS WITHOUT ANY NEW PILLS AND TAKE ANOTHER A1C TEST AND LET HER SEE THE RESULTS. AM STICKING WITH THE PLAN OF 50MINO AND THE 'C' AND WE WILL SEE IF THE HIGH SUGAR IS MAYBE A HERX OR THE DIET. BACK HURTS AND HIPS A LITTLE SORE STILL. THIS DOES NOT SURPRISE ME AS A HERX BECAUSE BACK AND HIPS HAVE BEEN TERRIBLE FOR A WHILE. EVERYTHING ELSE SEEMS TO BE OKAY. I HAVE HAD SOME RADISHES FROM MY GARDEN, BUT MOSTLY THE CRITTERS ARE EATING THE GARDEN. MAY HAVE SOME 'JELLY BEAN' TOMATOES BEFORE MUCH LONGER, THEY ARE BLOOMING. NOTHING LIKE NITETIME GARDENING. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Dr Trevor Marshall Research Team
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Barney, At least the nightime gardening will help scare off the critters |
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BARNEY Moderator
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DAY 171, 6/20/05, PHASE 2/3, DAY 16, CYCLE 1C, BP 114/72/P83, BENICAR 20MG Q3HRS/40MG MIDNIGHT, 1 ACIDOP, NO Z/C/MINO, 1 PAIN PILL, ALL TOLERABLE Pain in shoulders and lower back. Put tens unit on shoulders for a while and took a pain pill. All pain gone by early afternoon. All comfortable and tolerable since pm. My average sugar reading 'average' for today so far is down from over 220's to 190. Coming down real good. I am low carb completely and not cheating at all. Recording everything I am eating so I can find any problems. Not eating anything made of grain. Going to eat taco salad for dinner (no chips), meat, cheese, veggies only w/sour cream for the dressing. Will consider ramping on next dose tomorrow night but will keep mino at 50mg. Cleaning front bedroom, bath for new roommate. Got some laundry done and packed up newspapers to get rid of tonight. I woke up last night and looked at the clock wrong, I thought it was 5am and it was 2 am so I thought I would take my Benicar a little early and then just shut the alarm off in my sleep. Actually, I ended up taking an extra 20mg. That's okay. Like Spacee says, when in doubt, take it anyhow. HANG IN THERE, WE WILL MAKE IT!!! BARNEY Last edited on Tue Jun 21st, 2005 01:04 by BARNEY |
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BARNEY Moderator
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DAY 172, 6/21/05/PHASE 2/3, DAY 17, CYCLE 1C, BP 112/73/P84, BENICAR 20MG Q3HR/BENICAR 40MG MIDNIGHT, NO Z, 50 MG MINO, C, 2 PAIN PILLS, ALL TOLERABLE HAD TO USE ARM MUSCLES A LOT LAST NIGHT TO INSTALL A DEVICE THAT WILL CHANGE THE WATER IN THE COOLER EVERY TIME I SHUT IT OFF. WHY IS IT THAT EVERYTIME YOU GO TO DO A 5 MINUTE JOB, IT TAKES 5 HOURS? I INSTALLED THE DEVICE, HOOKED UP THE HOSES, AND IT WOULD NOT DRAIN. GOT THAT FIXED AND THEN IT WOULD NOT FILL BACK UP WITH WATER, GOT THAT FIXED AND SINCE I DON'T HAVE ANYONE TO TURN THE COOLER ON AND OFF, GUESS WHO GOT TO RUN IN AND OUT. I WORKED ON IT AND CHECKED IT OUT UNTIL 3 AM. WE HAVE HAD AN INFESTION OF SOME KIND OF TINY BUGS, THAT LOOK LIKE A MINATURE FLY, DOESN'T BITE, JUST CRAWLS ON YOU AND ANNOYS YOU AND FRAZZLES YOUR NERVES. IT WAS SO PRETTY OUTSIDE LAST NIGHT WITH A REAL BRIGHT MOON, THAT IT ENTICED ME TO STAY OUT THERE AND WORK. SINCE I CAN ONLY GO OUT AT NIGHT, I SAT ON THE FRONT PORCH FOR A WHILE AND THEN THE BACK PORCH AND JUST PURELY ENJOYED BEING OUTSIDE, COULD NOT FORCE MYSELF TO GO TO BED EVEN THO I ACHED FROM WORKING ON THE COOLER. TOOK PAIN PILLS 2 DIFFERENT TIMES, WHILE WORKING ON IT. MY MUSCLES SEEM LIKE ALL THEY WANT TO DO IS ACHE, IF I HAVE TO USE THEM FOR ANY LENGTH OF TIME. WENT TO BED AT 3AM AND GOT UP AT 9AM. DID NOT GET A NAP EVEN THO I WANTED ONE. NO PAIN PILLS DURING THE DAY. SUGAR IS STILL STAYING DOWN IN THE 190'S, TRYING TO GET IT EVEN LOWER. DOC HAS NOT CALLED. (GLAD, DID NOT WANT TO HAVE TO TRY TO TALK HER INTO NO NEW MEDS). I WILL MAKE IT COME DOWN ON MY OWN. iT TOOK ME 3 DAYS TO RECOP FROM THE LAST MED'S SIDE EFFECTS. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 173, 6/22/05, PHASE 2/3, DAY 18, CYCLE 1C, BP 105/69/P94, BENICAR 20MG Q3HRS/BENICAR 40MG MIDNIGHT, NO Z, NO C, NO MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Did not get much done around the house today, guess I will do that this evening. I used to work evenings and graveyard, so I imagine those working hours hung with me. I am excited, my sugar average is down to 179 so far today with no meds for it. (doc still has not called with a new med to try (and I am glad). I am staying low carb and really enjoying the meals. Tonite is lasanga (with zucchini strips instead of noodles) and a dinner salad. Since I have been on MP, it seems harder for me to get things done, I don't have the energy. I think it is taking all my strength to heal (and I know I am healing, tooooo many improvements not to). My muscles ache if I have to do anything 'heavy' work wise. I used to work the same as a man would (lift and carry things), but have not been able to do as much. I am sure when I have completed MP, I will be able to do it all again. Of course, I have to remember I am no spring chicken. Thank you Dr. M for all you have done for us to make these improvements posssible. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 174, 6/23/05, PHASE 2/3, DAY 1, CYCLE 2C, BP 121/80/P83, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 50MG MINO, C, NO Z, NO PAIN PILLS, ALL TOLERABLE Sugar readings are doing nicely, still eating low carb. Trying the cinnamon that the ADA recommended, we will see how that goes. (not real trusting of the idea) No herx to speak of the last couple days, so I am ramping up to next dose. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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PS Forgot to put this in my post tonight. (My dad's not feeling so good and his wife is to have knee surgery Tuesday, so I may be on a plane soon to spend time with him, I will however go on with MP). My kidney and liver function are GREAT, no problems. Wish I could say as much for my Lipids. Well, I am low carb now and that will all come down within 3 weeks. If I am still in Deming, I will request my doc to give me another blood test at that time. Barney Last edited on Fri Jun 24th, 2005 05:36 by BARNEY |
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Dr Trevor Marshall Research Team
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Analysis of the Borrelia/Treponema genomes shows that Triglycerides are the waste products from the bacterial anaerobic glucose energy metabolism. Work on getting those carbs and sugars down and you should see the triglycerides drop, too. |
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BARNEY Moderator
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Trevor, When I did low carb before, in just 3 weeks, trigyl dropped to 115, so I am very sure they will drop. I am being very good this time, no cheating. Barney |
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BARNEY Moderator
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DAY 175, 6/24/05, PHASE 2/3, DAY 2, CYCLE 2C, BP 80/58/P89, BENICAR 20MG Q3HRS/BENICAR 40MG MIDNIGHT, NO C, NO Z, NO MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Ramped on the C last night, had no problems all day, no herx that was noticable until tonight. I filled the dog's water bowls, ran up and down the steps to take care of that and water the plants. Now I feel like someone drained all the energy out of me. Not enough sleep last night also (2am to 7am). Had to go pick up meds this morning. Found an old medical diary I had made when I was the worst (about the time of the 6 surgeries) and I have been sitting around all day reading that. I really forgot all the problems I had been having. Also had a dx of sarc in the head (94/95). VERY INTERESTING TO READ OLD MEDICAL DIARIES. WE ALL NEED TO KEEP THEM. HANG IN THERE, WE WILL MAKE IT!!! BARNEY PS LOW CARB DIET GOING WELL, NO CHEATING. |
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BARNEY Moderator
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DAY 176, 6/25/05, PHASE 2/3, DAY 3, CYCLE 2C, BP 112/86/P73, 1 ACIDOP, 20MG BENICAR Q3HRS/ 40MG BENICAR MIDNIGHT, NO MINO,NO C, 2 PAIN PILL, ALL TOLERABLE I have definitely learned not to turn around to quickly, brain does not seem to go with the turn as quickly and the dizziness makes you wonder if you are going to stay on your feet. Definitely a herx, along with neck, leg, and arm muscles hate me today. (The feeling is mutual). This is an additional paragraph, as I am editing my post. This is due to the fact that I did not feel I should take the antibiotics, due to herx that is not stopping in shoulders, arms and neck (legs are okay). This is the first time in a while that I have had the herx go on. I even took an additional 20mg Benicar and will take more if needed. The herx feels like it is intensifing instead of slowing down. Am trying to get room finished for roommate's arrival on Tuesday. Looking forward to this as I will enjoy some human conversation (think it will help the emotional state). I have to keep resting in between 'jobs' so makes the going slow. Have been able to go out to pick up meds, etc., the last few times with no side effects. (of course, Noirs, covered up completely.) Also, I do not stay out any longer than I have to and when I do go I try to do everything I cannot do at night in one day, thus not more than 1 day exposure. We have a storm rolling in and it is thundering, so I think I will conclude for the night and shut the computer down. HANG IN THERE, WE WILL MAKE IT!!! BARNEY Last edited on Sun Jun 26th, 2005 08:22 by BARNEY |
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BARNEY Moderator
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DAY 177, 6/26/05, PHASE 2/3, DAY 4, CYCLE 2c, BP 105/64/P79, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, 50 MG MINO, C, NO Z, NO PAIN PILLS, ALL TOLERABLE Will take last night's meds tonite, as herx has slowed to next to nothing. Wrist is still very sore, hard to pick anything up, hurts. Slept well last night only awake for bathroom calls. When I laid down on my right side all the pain in shoulders, etc., stopped immediately. Guess that was my body's way of saying, go to bed. The house being dark not only keeps you from the Vit d from natural lite but helps give you a soothing effect which allows you to rest. Blood sugar is doing well. Low carb diet is great, no cheating. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 178, 6/27/05, PHASE 2/3, DAY 5, CYCLE 2C, BP 108/76/P75, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, NO Z, NO C, NO MINO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Still low carb, no cheating, glucose readings comin down nicely, but still believe part of readings are herx. I just realized today, I have had no 'floaters' in my eyes since MP and they used to be there all the time. Carried a lot of things out to the shed before sunup and made my arm muscles, neck and shoulders hurt pretty bad. Heated rice sox up and put around my shoulders and neck and took a pain pill and rested. All ok within a couple of hours. Have worked on roommates's room and then rested, then worked, then rested (it was my storage room, any idea how full). Been working a little each day on it. Almost done. Boy, do I have a lot of trash (boxes, magazines, etc.) to haul away. I am just hoping my strength and endurance hold out. Move in day is tomorrow. No other herx today. Been well over 100 today, so have been taking it slow and having the cooler on full blast, it is about 74 in the house. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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jolbell69 Health Professional 
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Hi Barney, I too find the dark soothing and restful. I am not one who finds it depressing at all, as I concentrate on the fact that it is good for me. I love to lay in my bed on a hot and sunny morning, as my bedroom is very dark and cool. I seem to be able to channel my thinking into relaxing much better than I have before, and the darkness helps with this. Jo. |
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BARNEY Moderator
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DAY 179, 6/28/05, PHASE 2/3, DAY 6, CYCLE 2C, BP 106/70/P83, 20MG BENICAR Q3HRS, 40 MG BENICAR MIDNIGHT, 1 ACIDOP, 1 PAIN PILL, 50 MG MINO, C, NO Z, ALL TOLERABLE My hips have really been bothering me on C. Muscles in legs and arms also. If I carry anything and have to up and down the outside steps, I have to stop and rest, they hurt so bad I can hardly walk. After resting, they are fine. My head still has tender spots, ocassionally they aren't sore. Glucose readings are steadily coming down even farther (170's) and going down. (part is herx, I am sure of it). All of this is with absolutely no meds for diabetes. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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Jolbell69, There are 2 ways to look at having to be in the dark MP: 1. You can be miserable and dwell on the fact you are in 'prison' having to not see the sun. OR.... 2. I will be well in a shorter time than I have been ill and deal with it. If you are like me there is plenty to do in the house and you can always water plants, do yard work, go to store, do whatever with your porch light on or use a flash light or do things by the 'light of the moon'. I am also notorious for being on the phone a lot, it is my link to the outside. You and I have taken a good attitude and I really think that helps us to get better. The more light exposure you get, the longer MP is going to take. My theory to deal with my dark house is: I pretend that it is nighttime. You can't tell the difference if your windows are really covered over to make it totally dark. Barney Last edited on Wed Jun 29th, 2005 14:18 by BARNEY |
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BARNEY Moderator
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DAY 180, 6/29/05, PHASE 2/3, DAY 7, CYCLE 2C, BP 106/68/P75, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, NO Z, NO C, NO MINO, 1 PAIN PILLS, ALL TOLERABLE EYES ARE ITCHING, CUT DOWN 3 WEEDS TONIGHT, THAT AFRICAN RUE HATES HUMANS TOUCHING IT. FELT REALLY ROUGH THIS MORNING, VERY TIRED FROM ALL THE MOVING OUT OF FRONT ROOM (IT WAS STORAGE). ALL MUSCLES EVERYWHERE HURT SO AFTER HAVING TO GO PICK UP MEDS, I JUST RESTED ALL DAY UNTIL THIS EVENING WHEN I PUT SOME MORE THINGS AWAY. OTHER THAN THAT, I FEEL OKAY. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 181, 6/30/05, PHASE 2/3, DAY 8, CYCLE 2C, BP 113/77/P80, 20 MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, 1 ACIDOP, 50 MG MINO, NO Z, NO C, NO PAIN PILLS, I GUESS ALL TOLERABLE I feel totally wiped out. To tired to even think. Glucose readings up again today despite strict low carb. Feel like Mack truck ran over me a couple dozen times. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aussie Barb Research Team
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Dear Barney Thank you as always for posting your report, especially as you are so tired. re "I GUESS ALL TOLERABLE I feel totally wiped out. To tired to even think. Glucose readings up again today despite strict low carb. Feel like Mack truck ran over me a couple dozen times." You have been working very hard getting ready for your room mate and it looks like your abx are due also. Taking the abx may be a help. and resting if you can. Healing on the MP is our number one job. By managing our meds dosing to get max tolerable herxing, we are pushing our body to it's tolerable comfortable limit. take care and all best Barney, Barb ... |
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BARNEY Moderator
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DAY 182, 7/1/05, PHASE 2/3, DAY 9, CYCLE 2C, BP 101/75/p88, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, NO C, NO Z, NO MINO, 2 PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Last night after much discussion with moderator, decided it would be best if I did take my C, I did, and it was a help. Calmed herx. Had to go out for pain meds this morning, got groceries, dropped some paperwork off, and got some of the 'golden' gas. Went home as quickly as possible because I could feel the energy draining. Brought groceries in (didn't want to but it was 107 today and did not think they would do well in the trunk). Ate some lunch, rested all the rest of the day in the recliner and took a 3 hr nap in my bed from 530pm to 830pm. Got up feeling much better. Still tired, but ok. My sugar reading tonite was 157, which made me smile. Thank God for the moderators who indure with you for a time to figure everything out and what to do to help. C has been a real hard abx for me, it really works on all of my body real hard. Guess it is really killing critters. HANG IN THERE, WE WILL MAKE IT !!! BARNEY |
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BARNEY Moderator
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DAY 183, 7/2/05, PHASE 2/3, DAY 10, CYCLE 2C, BP 98/78/P74, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, 1 ACIDOP, 50 MG MINO, C, NO Z, NO PAIN PILLS, ALL TOLERABLE Went to bed at 330am (had tooo long nap in evening) and got up at 830am. Did a few minor chores. Rested the rest of the day. No heavy lifting. Decided Mp is not the time to do strenuous chores. Seems it was not just the C that caused the bad feeling the other night, it was all the moving of items for roommate's arrival. Will not be lifting things anymore. Well, the sun is down now and I AM GOING OUTSIDE HOORAY!!! HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 184, 7/3/05, PHASE 2/3, DAY 11, CYCLE 2C, BP 94/74/P89, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, 1 ACIDOP, 50 MG QD (MAINTENANCE), NO Z, NO C, NO PAIN PILLS, ALL TOLERABLE Was very tried and sleepy in am and slept in until 1030am. Finally got some energy in late afternoon. I am in the process of packing to leave tomorrow night for my dad's house in Ohio. Flying up, 9pm to 545am. I think they call it the red eye flight, I will sleep (hopefully). My stepmom had knee surgery and they are not able to leave my dad alone. Everyone needs to return to work. This will be interesting to see how they like a dark house. Will not be able to post or correspond for a few days, so until my brother sends me a computer at dad's, I will not be posting but will remember to do all I have been taught to do on MP. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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spacee inactive member
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Barney, your roommate got there just in the nick of time so you can be off to help in Ohio. Take care of yourself! We will miss you!! Lots of Hugs. Spacee |
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Aussie Barb Research Team
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A Big Hi to EveryOne from Barney...she is missing us all too.. I have spoken to Barney. She sounds strong and happy. She is taking care of her Dad and StepMom, bringing them back to better health with her knowledge and assistance with diet and etc... She hasnt been able to access a computer yet, and she is getting too much light, with skylights in some of the rooms, and she has to do the driving and etc, but she is covering up as best she can, and having to take extra Benicar prn with her mino maintenence dosing schedule.. Barb ... |
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Aussie Barb Research Team
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Barney has added 1/4 C to her mino maintenence dosing with good effect. |
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BARNEY Moderator
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hello everyone, just a few words to let you know my brother came thru with a laptop and we got the internet up and running tonight. i will post a little later, i have to put an antivirus on the laptop. i am doing great, am up on c and will increase tonight. feels good to be online again. wow, didn't know how crazy you can get without everyone from marshallprotocol.com. will be back later. love to all HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 209, 7/29/05, PHASE 2/3, NO BP/P TONIGHT, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, 1 ACIDOP, 50MG MINO, 1/2 C, NO Z, 1 PAIN PILL, ALL TOLERABLE THIS HAS BEEN AN ADVENTURE AND A HALF. THERE IS A SKYLIGHT IN THE KITCHEN AND ONE IN THE MASTER BATH. THE LATER I CAN AVOID MOST DAYS BUT THE KITCHEN IS A REAL KILLER. WE ARE KEEPING THE BLINDS CLOSED BUT IT IS REALLY NOT ENOUGH DARK. I HAVE MY BEDROOM WINDOW COVERED COMPLETED FOR MY CAVE. IT IS NOT MUCH OF THE DAY THAT I GET TO SPEND IN THERE. BOTH MY DAD AND STEPMOM ARE ILL. MY DAD IS THE WORST. HE HAS HEART, LUNG PROBLEMS. PLUS, HE HAS PROSTATE CANCER AND TAKES A HORRIBLE SHOT 4 TIMES A YEAR WHICH HAS BAD SIDE EFFECTS. IF HE WAS NOT OVER 80 YEARS OLD, I WOULD TALK HIM INTO MP. MY STEPMOM HAD KNEE SURGERY (84). SHE IS RECOVERING NICELY BUT HAS DEVELOPED HIGH BLOOD PRESSURE. IT IS A RAT RACE FOR DOCTOR APPTS AND MEDS AND THERAPISTS AND NURSES. IT HAS TO GET DOWN TO NOT SO MUCH CAOS SOON OR ALL 3 OF US WILL BE CRAZY. I THINK I AM DOING WELL. WAY TO MANY TRIPS IN THE CAR BUT I COVER EVERY INCH OF MY SKIN. PEOPLE LOOK AT ME LIKE I AM A BANDIT, BUT WHO CARES. AM TELLING EVERYONE HERE ABOUT MP. NURSES WITH LUPUS AND VARIOUS OTHER PEOPLE AND PROBLEMS. IT IS AFTER 1 AM, I JUST GOT HOME FROM THE GROCERY AND WALMART (FOR MY PARENTS), AND I AM JUST ABOUT FRAZZELED, SO I WILL CLOSE FOR TONIGHT. IT SURE IS GOOD TO BE BACK. HANG IN THERE, WE WILL MAKE IT!!!!!!! BARNEY HELLO, TREVOR, MEG, BARB, BELINDA, LOTTIE AND ALL MPers. |
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spacee inactive member
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You are back online!!!! You are in a very difficult situation there. Glad to read you are handling it. The bandit remark was funny. Twice when I have gone out at dusk a police car has pulled up and watched me while I did my errand and left. Police in a small town don't have much to do evidently. Welcome back!!! Hugs, Spacee |
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DNStog Moderator
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It's good to have you back, Barney. You have been greatly missed! We have skylights in our kitchen and garden room that also reflect into the main living area of our house. I had shades professionally installed but still got too much light.  Daughter then slipped redi-shades between shades and skylight which has helped substantially. Have you thought about covering them with the black plastic sheeting/trash bags?While it may be difficult, try to take good care of yourself. My dad has had health issues since December and I think my mother is starting to follow suit. My sister and I juggle our schedules trying to help out...my MP schedule and her work schedule. Like you, I wish my dad were younger (he's 89) so he could do the MP. Still cruising~~~~ Donna |
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BARNEY Moderator
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DAY 210, 7/30/05, PHASE 2/3, CYCLE 2C, DAY 35, BP 123/74/P86, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDP, NO MINO, NO Z, NO C, PAIN PILLS AND TYLENOL (3), MISERABLE BUT ALL TOLERABLE THIS IS THE 3RD TIME I HAVE TYPED THIS POST AND IF I LOSE THIS ONE, I WILL GIVE UP FOR THE NIGHT AS IT IS 1AM. DARN LAPTOP, I KEEP TOUCHING THE WRONG BUTTON. HARD PAIN IN MIDDLE OF SHOULDERS =2 PAIN PILLS WITH TYLENOL, STILL SORE SOMEWHAT. DIZZY SOME TODAY. BEEN A ROUGH DAY BUT INCREASED MY C LAST NIGHT AND CARRIED IN ALL THE GROCERIES. SHOULD REST MORE AND WILL TRY BUT STILL ON THE RUN FOR PARENTS. THEY ARE DOING BETTER AND TRYING TO DO SOME FOR THEMSELVES. THANK YOU SPACEE AND DONNA FOR THE WELCOME BACK. I MISSED EVERYONE MORE THAN WORDS COULD SAY. LOOK FORWARD TO LOTS OF COMMUNICATION. I NEED TO GET TO READING, AS I HAVE A LOT TO CATCH UP ON. PARENTS IN BED AND QUIET NOW. WHAT A GREAT FEEL. IT HAS BEEN A 3 RING CIRCUS HERE. TRYING TO HELP THEM GET EVERYTHING IN ORDER. WILL NOT BE GOING HOME FOR A WHILE. WILL CONSIDER REDISHADE FOR SKY LIGHT. I NEED TO GET TO BED AND REST. MICHAEL, CAMP OUT IN YOUR LIVING ROOM, IT IS SAFER. YOU HAVE THE REST OF YOUR LIFE AFTER MP. HANG IN THERE, WE WILL MAKE IT !!! BARNEY |
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BARNEY Moderator
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DAY 211, 7/31/05, PHASE 2/3, DAY 35, CYCLE 2C, NO BP TONIGHT, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, 50MG MINO, C, NO Z, NO PAIN PILLS, ALL TOLERABLE LOTS OF STRESS HERE NOW. SOMEONE IS NOT HAPPY WITH THE RULES MEDICARE HAS HANDED DOWN AND IS GIVING ME FITS. NOTHING I CAN DO ABOUT IT. IF IT WERE NOT FOR THE FACT MY DAD IS SO SICK, I WOULD GO HOME TOMORROW. ENOUGH OF THAT. I HAD A BAD NIGHT BECAUSE THIS MORNING, I REALIZED THAT I HAD MISSED MY LAST PILL. I AM OKAY THO BECAUSE I TOOK A PILL AT 1030PM THAT KEPT ME GOING WITHOUT LOSING MY BLOCKADE. THE PASTOR (HERE) HAS A SISTER WHO HAS SARCOIDOSIS AND IT HAS NOW LED INTO LEUKEMIA AND SHE IS NOW LYING AROUND ALL THE TIME NOT EXPECTED TO LIVE MUCH LONGER. I HAVE TRIED TO TALK TO THEM ABOUT MP BEFORE SHE GOT THIS BAD BUT THEY WILL NOT HEAR OF IT. TIME TO GO TO BED. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 212, 8/1/05, PHASE 2/3, DAY 36, NO BP TODAY, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT, 1 ACIDOP, NO MINO, NO C, NO Z, 1 PAIN PILL AT BEDTIME FOR LEG ACHES, ALL TOLERABLE HAD TO GO TO BED LAST NIGHT, LEGS ACHING AND TOO TIRED TO DO ANYTHING ELSE, SO DECIDED I WOULD POST AFTER I GOT UP TODAY. WE ARE WAITING FOR THE OCCUPATIONAL THERAPIST TO GET HERE FOR BOTH DAD AND STEPMOM. MY AUNT TO COMING TO COOK LUNCH TODAY. WHAT AT TREAT THAT WILL BE. I AM GETTING PRETTY TIRED. I AM BACK ON C THE SAME AMOUNT I WAS ON WHEN I LEFT HOME AND AM DOING QUITE WELL DESPITE THE LIGHT EXPOSURE. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 213, 8/2/05, PHASE 2/3, DAY 38, CYCLE 2/C, NO BP TONIGHT, 20MG BENICAR Q3HRS, 40MG BENICAR MIDNIGHT,1 ACIDOP, 50MG MINO, C, NO Z, 1 PAIN PILL, ALL TOLERABLE BEEN OKAY DAY. MY AUNTS' CAME OVER AND COOKED FOR US. THEY ALSO TOOK DAD TO BANK SO I WOULD NOT HAVE TO GO OUT IN THE SUN. LEGS HURTING IN AM.WENT TO STORE IN PM AND LEGS NUMB ON THE OUTSIDE ABOUT KNEES WHEN WALKING AROUND STORE (ON CONCRETE). HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 214, 8/3/05, PHASE 2/3, DAY 39, CYCLE 2/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 1 ACIDOP, NO MINO, NO Z, NO C, NO PAIN PILLS, ALL TOLERABLE TOOK NIECE SHOPPING LAST NIGHT AFTER DARK. WE GOT HOME AROUND 12 PLUS AND I WAS TOO TIRED TO POST. DOCTOR GAVE ME PAPER WORK FOR ASSISTED LIVING AND DAY CARE FOR SENIORS IN CASE I HAVE TO LEAVE PARENT'S HOME. WILL STAY AS LONG AS I CAN . I AM GOING TO MY SON'S HOUSE AFTER I LEAVE HERE TO SPEND TIME WITH MY FAMILY. THEY PROMISE TO DARKEN THEIR HOUSE FOR ME. HARD TO EAT RIGHT WHEN YOU ARE AWAY FROM 'CAVE'. HAVE TO COOK OR WATCH OTHERS COOKING TO MAKE SURE NOTHING IS IN MY FOOD THAT WILL HURT ME (VIT D AND FOLIC ACID). LEG PAIN HAS GOTTEN DOWN TO NEXT TO NO PAIN NOW. NOT HAVING ANY REAL PROBLEMS. HANG IN THERE,WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 215, 8/4/05, PHASE 2/3, DAY 40, CYCLE 2/C, BP 137/81/P84, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO, C, NO Z, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE AM REALLY GLAD I HAD THE (TRAVEL) BREAK FROM C, IT SEEMS WHEN RESTARTING IT, IT HAS NOT HIT ME AS HARD. MUCH MORE TOLERABLE THIS TIME AROUND. THINKING OF GOING UP TO NEXT DOSAGE SOON. LEGS OF CALMED DOWN ALL THE WAY NOW. ALL IS GOING WELL FOR ME WITH MP. MY BROTHER CAME OVER AND TOOK MY STEPMOM IN FOR HER KNEE DOCTOR'S APPT. SHE IS DOING WELL. DAD WAS A LITTLE BETTER TODAY AND ACTUALLY STARTED SOME NEW MED FOR SHORT TERM MEMORY. WILL SEE HOW IT GOES. SEEMS LIKE MORE AND MORE PEOPLE I MEET ARE COMING DOWN WITH AUTOIMMUNE DISEASES, JUST GOES TO SHOW HOW IT IS SPREADING. SURE WISH PEOPLE WOULD LEARN OF MP. I HAVE BEEN EXPLAINING IT TO EVERYONE WHO WILL LISTEN. KEEP TELLING THEM, KEEP HOPING THEY WILL TRY IT. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 216, 8/5/05, PHASE 2/3, DAY 40, CYCLE 2/C, BP 110/72/P88, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, 1 PAIN PILL, 1 ACIDOP., ALL TOLERABLE BEEN NAUSEATED MOST OF DAY. SEEMS I HAVE SOME NAUSEA THE DAY AFTER I TAKE MY ANTIBIOTICS BUT GOES AWAY AFTER 1 DAY. BEEN TAKING (REFRIG)ACIDOP REGULARLY. NO LEG PAIN TODAY, STILL HAVE TENDER SCALP, (DOES NOT SEEM TO STOP PERMANENTLY YET). OTHERWISE OKAY DAY. RAINED SO HAD RELIEF FROM CONSTANT SUN. HANG IN THERE, WE WILL MAKE IT !!!! BARNEY |
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BARNEY Moderator
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DAY 217, 8/6/05, PHASE 2/3, DAY 41, CYCLE 2/C, BP 108/69/P73, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO, C, 1 ACIDOP, 1 PAINPILL, ALL TOLERABLE LEGS ARE FEELING BETTER, HIPS BETTER, KNEES BETTER. AVOID HAVING TO GO OUT IN SUNLIGHT 2 TIMES THIS WEEK. OTHER PEOPLE TOOK DAD TO THE BANK AND DOC'S OFFICE. GOT A HEADACHE FROM STEPMOM'S PREFUME THIS AM, IS GONE NOW. SHE AGREED NOT TO WEAR IT AGAIN. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 218, 8/7/05, PHASE 2/3, DAY 43, CYCLE 2/C, BP 128/83/P73, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE SPENT A LOT OF MY DAY IN MY ROOM SO I COULD BE IN THE DARK DARK TODAY. NO BAD HERX TODAY. BEEN ON THE PHONE AND INTERNET A LOT TODAY. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 219, 8/8/05, PHASE 2/3, DAY 1, CYCLE 3C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO, C, NO Z, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE HAD NAUSEA AND A GIANT HEADACHE TODAY FROM NOT BEING ABLE TO EAT BEFORE 1PM AFTER GETTING UP AT 8AM. HAD TO TAKE MY DAD TO HOSPITAL FOR A TEST. THOUGHT IT WOULD ONLY LAST AN HOUR AND IT LASTED 5 HRS. FINALLY GOT DOWN TO THE CAFETERIA FOR LUNCH AND NO BREAKFAST. TOOK A PAIN PILL AND GOT RID OF THE HEADACHE BUT THE NAUSEA REMAINED FOR THE REST OF THE DAY. WAS MISERABLE BUT BEARABLE. NO MORE DAYS LIKE THAT. (DAD WAS NPO FROM 10PM LAST NIGHT AND WE HATED TO EAT IN FRONT OF HIM). RAMPED UP TONIGHT ON MY C, WILL SEE HOW THAT GOES, MAY HAVE TO DROP BACK DOWN.WE WILL SEE WHAT HAPPENS. HANG IN THERE, WE WILL MAKE IT!!! BARNEY PS NOT A WORD FROM MICHAEL, WORRIED ABOUT HIM. Last edited on Tue Aug 9th, 2005 06:08 by BARNEY |
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BARNEY Moderator
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DAY 220, 8/9/05, PHASE 2/3, DAY 2, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, 1 ACIDOP, NO PAIN PILLS, NO TOLERABLE RAMPED UP LAST NIGHT AND DID WELL, NO PROBLEMS TODAY. EYES HURT A LITTLE, BUT NOT BAD. VERY BUSY WITH PARENTS, PROBLEMS GOING ON WILL POST BETTER WHEN I CAN. HOPEFULLY TOMORROW NIGHT WILL CALM DOWN. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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BARNEY Moderator
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DAY 221, 8/10/05, PHASE 2/3, DAY 3, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG/MINO, C, NO Z, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE THAT DULL-GONE HOSPITAL GIVES ME A HEADACHE EVERYTIME I GO THERE. HAD TO TAKE PARENTS MONDAY 5HRS AND TODAY 4HRS FOR TESTS. HOPE THERE IS A BREAK IN OUR FUTURE. ALL TESTS GOOD. GOOD DAY, EXCEPT VERY TIRED FROM BEING ON THE RUN. RAMPED UP 3 DAYS AGO, AM DOING QUITE WELL, I BELIEVE I AM FINALLY BEING ABLE TO GET THRU 'C'. FEELING DIFFERENT, BETTER. JUST NEED A BREAK IN MEDICAL PROBLEMS FOR PARENTS SO THAT I CAN GET SOME REST. LOOKS LIKE WE MAY BE THERE. ONLY PROBLEM OTHERWISE, IS SOME NAUSEA, MAY BE BECAUSE OF THE HEADACHE OR MAY BE FROM THE 'C', NOT SURE. WILL SEE HOW THIS DOSE DOES. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 222, 8/11/05, PHASE 2/3, DAY 4, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, 1 ACIDOP, 1 PAIN PILL, NO TOLERABLE NO NAUSEA TODAY, HAD A HEADACHE (I BELIEVE FROM THE WEATHER), TOOK A PAIN PILL AND IT WENT AWAY. ALL ELSE WELL EXCEPT THE USUAL HIP PAIN FROM BEING ON MY FEET TOO MUCH. THINGS WERE CALM HERE FOR A CHANGE AND MY BROTHER TOOK OVER THE DRIVING THINGS TODAY SO I COULD STAY OUT OF THE SUN. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 223, 8/12/05, PHASE 2/3, DAY 5, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG/MINO, C, NO Z, NO PAIN PILL, ALL TOLERABLE DOES ANYONE ELSE FEEL SOMETIMES LIKE BUGS ARE CRAWLING ON YOUR SKIN AND WHEN YOU LOOK, NOTHING IS THERE. MAKES ME THINK THE 'CRITTERS' ARE TRYING TO LET ME KNOW THEY ARE STILL THERE OR ARE TRYING TO MAKE ME THINK I LOST MY MIND (WHAT LITTLE I HAVE LEFT). TOOK A WELL DESERVED 3 HOUR NAP THIS AFTERNOON. SEEM TO BE DOING WELL ON THE NEW DOSAGE OF C THAT I STARTED A COUPLE OF NIGHTS AGO. GOT A NICE COMPLIMENT FROM MY BROTHER AND WIFE, THAT I WAS DOING AN AWESOME JOB HERE. THAT WAS NICE. SENT MICHAEL'S AUNT SOME FOOD INFO ON THE PARENT'S FORUM SO MICHAEL COULD EAT THE PROPER THINGS. SURE HOPE IT HELPS OUT. MICHAEL WE NEED YOUR TO POST LIKE THE REST OF US DO. YOU CAN AVOID COMPLICATIONS IF YOU POST. MODERATORS NEED TO KEEP CHECK ON YOU AND THAT IS THERE ONLY LIFELINE TO YOU. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Aussie Barb Research Team
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Barney Thank you.. re crawling feelings.. Have a look here see Amygdala Link... Barb ... |
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BARNEY Moderator
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THANK YOU BARB. THAT WAS VERY INTERESTING. IT IS ALSO MAKING ME WONDER IF I COULD HAVE A LYME DISEASE GOING ON TOO. I REMEMBER A TICK BITE ONCE. I'M JUST GLAD THAT WHEN I LOOK, THERE IS NO BUG CRAWLING ON ME. (HAHA) GOOD INFO TO HAVE. GUESS I AM NOT GOING TOTALLY CRAZY AFTER ALL. BARNEY |
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BARNEY Moderator
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DAY 224, 8/13/05, PHASE 2/3, DAY 6, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, 2 PAIN PILLS, ALL TOLERABLE HIP HAS REALLY BEEN BOTHERING ME AND I TOOK A PAIN PILL THIS MORNING AND ONE THIS EVENING FOR IT. IT SEEMS TO HAVE CALMED DOWN SINCE I WENT TO THE STORE AND WALKED AROUND TONIGHT. BEEN OKAY OTHERWISE, HAD A SHORT NAP ON THE SOFA. RESTED QUITE A BIT ALL DAY LONG OTHER THAN WHAT WE HAD TO DO TO EAT (MEALS). GOING TO BED SOON. DO NOT THINK PARENTS WILL BE UP TO GOING TO CHURCH TOMORROW. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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FOR ALL WHO DO NOT BELIEVE THAT SARCOIDOSIS KILLS: MY DAD'S PASTOR'S SISTER PASSED AWAY FROM SARCOIDOSIS AT 530PM TONIGHT. SHE SENT WORD TO ME THAT SHE WOULD RATHER DIE THAN GIVE UP SUNSHINE AND ANY OF HER FOODS. HOW SAD. BARNEY |
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BARNEY Moderator
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DAY 225, 8/14/05, PHASE 2/3, DAY 7, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO, C, NO Z, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE HIP HAS HURT FOR 3 DAYS NOW AND IS BECOMING VERY MUCH A NUISANCE. EXTREMELY TIRED TONIGHT AND I AM PLANNING TO GO TO BED EARLIER TONIGHT THAN I USUALLY DO. AM SO THANKFUL I AM ON MP VERSUS DEALING WITH SARC ON MY OWN. HAD AN OLD FRIEND OVER TODAY TO VISIT WITH DAD AND I, IT WAS GREAT TO SEE HIM AGAIN. HE LOST HIS WIFE 6 YEARS AGO TO DIABETES. I SURE WISH ALL THE WORLD KNEW ABOUT MP SO THAT COULD GET WELL. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 226, 8/15/05, PHASE 2/3, DAY 8, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE ROUGH MORNING FOR MY DAD WHICH INCLUDED ME DISCUSSING HIS MEDS. DOES NOT WANT ANYTHING TO PROLONG LIFE JUST TO MAKE COMFORTABLE. WE CRIED TOGETHER. I AM OKAY, NOT DEPRESSED, BUT UNDERSTAND HOW HE FEELS. I HAVE HAD AN OKAY DAY BUT WE HAVE HAD LOTS OF COMPANY TODAY AND I AM VERY TIRED. AM GOING TO BED. GOT A NEW LITTLE GREAT NIECE, MY BROTHER'S FIRST GRANDCHILD. EXCITEMENT IS IN THE AIR AND WE ALREADY HAVE PICTURES VIA THE INTERNET. DAD IS PROUD AS PUNCH ALONG WITH ALL OTHER FAMILY MEMBER, SHE WEIGHED 10 LBS 1 OZ. A VERY BIG GIRL. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 227, 8/16/05, PHASE 2/3, DAY 9, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO, C, NO Z, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE SAT HERE TRYING TO THINK OF ANY HERX'S. STILL HAVING SOME HIP PAIN BUT IT IS LETTING UP, NOT NEAR AS SEVERE. OTHERWISE NOT A BAD DAY. HAD TO GO OUT TO GET (OF ALL THINGS) A NEW TOILET SET (THE BOLT BROKE). WAS TOTALLY COVERED AND WITH NOIRS. ALSO, IT WAS VERY CLOUDY. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 228, 8/17/05, PHASE 2/3, DAY 10, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, 2 PAIN PILLS PLUS 2 TYLENOL, 1 ACIDOP, MISERABLE BUT TOLERABLE BY MISERABLE, I AM REFERRING TO THE NAUSEA (ALL DAY). I AM SURE IT IS A HERX AND WILL JUST TRY TO IGNORE IT, NOT SEVERE ENOUGH TO DO ANYTHING ABOUT. HIP PAIN HAS SUBSIDED AND IS A WELCOME RELIEF TO HAVE IT GONE, IT HURT BUT WAS TOLERABLE. I GUESS I AM JUST AN OLD 'WAR HORSE' (haha). THE NECK/SHOULDER PAIN LET ME KNOW IT WAS A HERX TODAY AND ENDED UP TAKING 2 PAIN PILLS AND THAT MIGHT BE PART OF THE NAUSEA. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aussie Barb Research Team
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Barney if you want to, you can try decreasing the M &/or C to see if the nausea will lessen.. There is also an alternative dosing option for M+C.. see MODIFIED PHASE TWO "Alternate ramping schedule for those who are symptomatic: Instead of the usual zig zag M+C increasing suggestion, you may like to try keeping your mino at 25mg and increasing only the Clindy by 1/4 capsule increases right thru as you are able till you reach the full dose of Clindy, - and then after that, bring the mino up by 25mg increases as you are able, - till you reach the full dose of mino 100mg .. " << Barb ... |
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BARNEY Moderator
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Aussie Barb, Will consider your suggestion and possibly lower mino to 25mg if necessary. Actually the nausea is tolerable, mostly a nuisance. I am sure it is killing critters in my intestines and stomach. Thanks for your caring suggestions. Barney |
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BARNEY Moderator
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DAY 229, 8/18/05, PHASE 2/3, DAY 11, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50 MINO, C, NO Z, NO PAIN PILLS, NO ACIDOP, ALL TOLERABLE DAY WAS OKAY. LOT OF SUN EXPOSURE, STEPMOM TO BEAUTY PARLOUR (FRIEND COULD NOT TAKE HER), BACK TO PICK HER UP AND TAKE HER AND DAD TO LUNCH AND THEN DAD TO DOC TO GET HIS CANCER IMPLANT. FULLY COVERED AND WITH NOIRS. I DO BETTER WITH SUN EXPOSURE IN PHASE 2 THAN PHASE 1. IT IS PROBABLY NOT DOING MY VIT D LEVEL ANY GOOD, BUT I AM STILL PROCEEDING FULL AHEAD ON MP. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY Last edited on Fri Aug 19th, 2005 05:03 by BARNEY |
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Dr Trevor Marshall Research Team
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Barney, You will gradually lose the sun sensitivity in your skin/eyes as the bugs there get killed off. So the sensitivity will decrease as you go through each phase of the MP You will be able to feel (bad) if there has been any serious disruption to your D levels. That, too, disappears soon enough... |
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BARNEY Moderator
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Thanks Trevor, I have really been concerned with the light exposure I have been getting here, but trying hard to keep covered well and doing the whole MP. Hope to get things going better here so I can go back to my cave. I do have a 'cave' bedroom to escape to, when the ill parents problems calm down long enough. I hope things are going to even out soon. We will have to wait and see. Barney |
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BARNEY Moderator
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DAY 230, 8/19/05, PHASE 2/3, DAY 12, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO Z, NO C, NO MINO, 1 ACIDOP, 2 PAIN PILLS, ALL TOLERABLE, A NUISANCE BUT TOLERABLE HAD NECK PAIN, EYE PAIN AND ALMOST EVERY MUSCLE PAIN IN AM, BUT HAS SUBSIDED BY EVENING. WAS CONTROLABLE BY PAIN PILL. WAS TIRED BUT AFTER RESTING GOT A SECOND WIND SO THAT I COULD GO TO THE STORE AFTER DARK. WAS GOOD TO GET OUT. TALKED WITH FELLOW MPerS TODAY. WAS ENJOYABLE TO COMPARE NOTES. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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I keep forgetting to report 2 things: I have had cold chills 3 mornings (none this morning) since ramping up. Must be over (I hope). It was only in the am. I also have had itching on my fingers and the tops of my hands. Not every day just sporatic. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 231, 8/20/05, PHASE 2/3, DAY 13, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG/MINO, C, 1 ACIDOP, 2 PAIN PILLS, ALMOST NOT TOLERABLE USED HOT SOX AND PAIN PILLS TO GET THRU A VERY ROUGH HERX. IT WAS ALMOST TO POINT OF NOT BEING TOLERABLE. I HAVE REDUCED MINO TO 25MG FROM 50MG. C - STILL AT 3RD LEVEL, BUT MAY HAVE TO REDUCE....WE WILL SEE. PARENTS MAY NOT ENJOY ME BEING A BIT ON THE GRUMPY SIDE, BESIDES I DON'T LIKE TO HERX ANYMORE THAN I HAVE TOOOO. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 232, 8/22/05, PHASE 2/3, DAY 14, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, NO Z, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE A LOT LESS HERX TODAY. MUCH MORE BEARABLE. THANK YOU AUSSIE BARB FOR ALL YOUR HELP TO GET ME TO THIS STAGE. I EVEN BLEW IT TODAY. DIDN'T GET 2 PILLS IN ON TIME. HOPE I DID NOT LOSE MY BLOCKADE. I WILL MAKE UP BY TAKING THE PILLS THRU THE NIGHT. I WISH I WOULD STOP BEING A DING-A-LING. I HAVE AN ALARM THAT GOES OFF EVERYTIME I NEED TO TAKE A PILL. SO...FROM NOW ON I AM NOT ALLOWING MYSELF TO TURN MY ALARM OFF UNTIL I TAKE MY PILL. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 233, 8/22/05, PHASE 2/3, DAY 15, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG MINO, C, NO Z, 2 PAIN PILLS, ALL TOLERABLE STUCK WITH 25MG MINO AND C AND SEEM TO BE DOING BETTER. MY EYES ARE BOTHERING ME SOME SINCE I HAVE BEEN ON THE INTERNET A LITTLE TOOOOO MUCH SO I WILL CUT THIS POST SHORT AND GO TO BED. IT IS ALSO LATE (I GOOFED AND TOOK A 3 HR NAP EARLIER THIS EVENING) AND HERE I SIT UP BY MYSELF AT 1 AM. GETTING SLEEPY AND TIRED AND HUNGRY SO OFF I GO. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 234, 8/23/05, PHASE 2/3, DAY 16, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, 1 PAIN PILL, 1 ACIDOP., ALL TOLERABLE HAS BEEN A CRAZY DAY, STEPMOM SLEPT 16 HRS (THINKS THAT IS NORMAL). IT IS NOT. SHE GOT UP IN A 'MOOD' FEELING TRAPPED BY HAVING TO BE IN BECAUSE OF HOME CARE. SO I TOOK THEM OUT TO EAT. DID NOT SET WELL WITH MY STOMACH AND I FORGOT TO PULL MY MASK UP PART OF THE TRIP AND GOT SOME SUN EXPOSURE I DID NOT NEED. CAME HOME WITH VERY UPSET STOMACH AND LOST ALL ENERGY JUST OUT OF THE CLEAR BLUE SKY (NOT THE FIRST TIME) AND HAD TO GO TO BED IMMEDIATELY. NOW HERE I AM WIDE AWAKE AT 1243AM TYPING IN MY POST. I AM BEGINNING TO THINK I AM MY OWN WORST ENEMY. (I AM) DAD DID NOT FEEL WELL EITHER SO WE CAME STRAIGHT HOME FROM THE RESTAURANT. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY STILL GOT THOSE ITCHES ON HANDS AND THE CREEPY CRAWLERS ON MY SKIN. |
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BARNEY Moderator
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DAY 235, 8/24/05, PHASE 2/3, DAY 17, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG MINO, C, NO Z, 1 ACIDOP., NO PAIN PILLS, ALL TOLERABLE THIS IS THE TYPE OF DAY THAT I DISLIKE. THE DAY AFTER YOU WERE A STUPID FOOL AND DID NOT PUT YOUR GEAR ON TO GO OUT IN THE SUN CORRECTLY. THE DAY THAT YOU REALLY FINISH PAYING FOR THAT STUPIDITY. HIPS HURT A LITTLE TONIGHT FROM SITTING AROUND RESTING TODAY. OTHERWISE, AN OKAY DAY. TOOK A NAP. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 236, 8/25/05, PHASE 2/3, DAY18, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, NO Z, 1 PAIN PILL, ALL TOLERABLE STRESSFUL DAY HERE TODAY. HAD A DISAGREEMENT WITH STEPMOM OVER A STUPID PIECE OF PIE.(WHICH I DID NOT EAT), BUT WAS ACCUSSED OF. JUST ABOUT HAD IT. CAREGIVING CAN BE A VERY STRESSFUL AND THANKLESS JOB. DAD IS EASY TO LOOK AFTER, VERY GIVING AND KIND MOST OF THE TIME. WE WILL SEE WHAT IS UP NEXT. HAD HEADACHE WHEN I GOT UP THIS AM AND TOOK A PAIN PILL. LEFT QUICKLY AFTER THAT. EVERYONE WAS RELEASED FROM HOMECARE TODAY. I HAD TO READVISE THAT I WAS NOT WILLING TO GET OUT IN THE SUN AND RUN AROUND UNLESS IT WAS FOR A DOCTOR'S APPT OR SOME SUCH. IT IS NOT WORTH THE PROBLEM OF WHAT I GO THRU FROM LIGHT EXPOSURE. I FIGURED THE HEADACHE WAS THE END OF THE LIGHT EXPOSURE, AT LEAST I HOPE IT WAS. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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DNStog Moderator
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Barney, My heart goes out to you as you try to help aging family members as you are getting well. I was in your same situation a few years back when my Sarcoidosis was really making itself known, only I thought it was menopause, aging, etc. So, say it with me..."Hang in there, we will make it." Wishing you well, Donna, Phase II still cruising ~~~~~ |
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BARNEY Moderator
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Donna, Thank you so much. I needed to be reminded to HANG IN THERE, WE WILL MAKE IT!!! Barney |
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CJ Member in Phase 3
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Barney, You deserve the best of care too. Doing what's best for everyone can be very taxing.(to put it mildly). I hope you have a nice stress-free day! CJ |
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BARNEY Moderator
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DAY 237, 8/26/05, PHASE 2/3, DAY 19, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG/MINO, C, NO Z, 1 ACIDOP, 2 PAIN PILLS, ALL TOLERABLE I USED TO LOOK AT OTHER PEOPLE'S POST AND ENVY THEM THAT THEY COULD SAY DAY 200 +. IT IS HARD FOR ME TO BELIEVE THAT I HAVE BEEN ON DAY 237. DOESN'T SEEM LIKE IT HAS BEEN THAT LONG. IT HAS BEEN AN INCREDIBLE JOURNEY, A WONDERFUL JOURNEY. I HAVE LEARNED SO MUCH AND I AM SO GLAD TO HAVE HELPED OTHERS TO GET STARTED ON MP. TODAY WAS STRESSFUL THIS MORNING TOO, BUT I PUT THE WORD OUT THAT THIS WAS GOING TO CEASE OR I WOULD LEAVE. ALL IS CALMED DOWN AND I SUSPECT IT WILL STAY THAT WAY NOW. SINCE THE LIGHT EXPOSURE THE OTHER DAY, EACH DAY HAS BEEN HARD IN VARIOUS WAYS, STRESS AFFECTS ME AS BAD AS LIGHT EXPOSURE AND I MADE THAT WELL KNOWN. THIS AFTERNOON HAS BEEN A LOT BETTER, BUT MY STOMACH HAS BEEN NOTHING BUT UPSET TODAY. NECK HAS ALSO HURT TODAY, ALONG WITH THE MIDDLE OF MY BACK, ALMOST TO THE POINT OF NOT BEING TOLERABLE. THIS STARTED WHEN I GOT UP. HAD TO TAKE DAD TO BANK AND STEPMOM TO HAIRDRESSER (HER RIDE DID NOT SHOW). FIGURED SINCE I WAS OUT, MIGHT AS WELL DO BOTH. COVERED OF COURSE, WITH NOIRS. ATE AT RESTAURANT. CAME HOME, PUT ON HOT SOX ON NECK AND BACK AND TOOK PAIN PILL. RESTED FOR ABOUT 4 HRS AND THEN WENT BACK OUT JUST BEFORE DARK SO STEPMOM COULD DO SOME SHOPPING FOR THE FIRST TIME IN OVER 8 WEEKS. ONLY WENT TO 2 STORES AND BY THE TIME WE CAME OUT OF THE FIRST ONE, IT WAS DARK (THANK GOD). IT WAS EXTREMELY CLOUDY MOST OF THE DAY BUT STILL COVERED UP AS WE ARE SUPPOSED TO. LEFT DAD AT HOME IN HIS RECLINER WITH PHONE IN HAND AND MY CELL NUMBER IN CASE OF EMERGENCY. CALLED AND CHECKED ON HIM AND HE WAS DOING GOOD, SAID IS BUTT WAS TIRED FROM STAYING IN THE CHAIR AS INSTRUCTED. HE ALMOST FELL THIS MORNING. I SURE WISH HE WAS YOUNGER AND I WOULD GET HIS DOC TO DO MP WITH HIM. HAVE TO GO OUT TO DOC FOR STEPMOM TOMORROW, SURE HOPE I AM FEELING BETTER. AFTER WE GET HOME, I WILL GO TO BED FOR THE AFTERNOON AND GET SOME MUCH NEEDED REST. THINK THE STRESS IS SETTLED FOR A WHILE AT LEAST AND THAT WILL HELP ME TO FEEL MUCH BETTER. ENOUGH!! HANG IN THERE, WE WILL MAKE IT!!! (ALTHOUGH SOME DAYS WE DOUBT THAT STATEMENT) BARNEY |
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BARNEY Moderator
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CJ, THANKYOU SO MUCH FOR YOUR WORD OF ENCOURAGMENT. WE ALL NEED THAT. I WAS HAVING A REALLY HARD TIME AND THE CRITTERS WERE MAKING IT EVEN HARDER. HANG IN THERE, WE WILL MAKE IT !!! BARNEY |
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Arlene inactive member
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Barney, Being assertive is good. Hope tomorrow is a better day Rock on , Arlene |
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BARNEY Moderator
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DAY 238, 8/27/05, PHASE 2/3, DAY 20, CYCLE 3/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, NO Z, NO PAIN PILLS, 2 TYLENOL, ALL TOLERABLE. IT RAINED HERE TODAY AND I WAS GLAD. NOT ONLY DO WE NEED THE RAIN (GOT A BIT OF DROUGHT GOING HERE) BUT IT IS NOT AS HARD TO GO OUT FOR CHORES. TOOK STEPMOM TO HER SURGEON TO CHECK HER KNEE. WENT OUT TO LUNCH, CAME HOME, TOOK 2 HR NAP AND THE REST OF THE EVENING WE HAD COMPANY (WHICH WAS A PLEASANT SURPRISE). HAD SOME LIGHT EXPOSURE, BUT MINIMAL SINCE IT RAINED. STILL WORE OUTSIDE NOIRS AND ALL THE 'GEAR' TO GO OUT. PRETTY MUCH AN UNSTRESSED DAY. PLANNING A PARTY FOR A WEEK FROM SUNDAY, MY NIECE IS COMING TO TOWN AND THEY ARE GOING TO FRY UP ALL THE FISH IN THE FREEZER THAT MY DAD CAUGHT ON HIS LAST FISHING TRIP HE WAS ABLE TO GO ON. OF COURSE, YOU KNOW THAT I CANNOT EAT IT, SO WE ARE GOING TO BAKE A CHICKEN FOR THOSE WHO DO NOT LIKE OR CANNOT EAT FISH. WELL, I AM GOING TO BED SINCE IT IS SO LATE AND HOPEFULLY SLEEP IN. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 239, 8/28/05, PHASE 2/3, DAY 21, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG MINO, FULL C, NO Z, 1 ACIDOP, 2 PAIN PILLS, ALL TOLERABLE HAS BEEN A VERY ROUGH DAY, STRESS ACHEY HEAD, WE ALL HAVE BEEN EXCESSIVELY TIRED, SO ALL WE DID WAS SLEEP AND EAT AND TAKE PAIN PILLS. HOPE, SINCE STRESS MAY BE CALMED DOWN NOW, THAT MY HEAD WILL BE IN GOOD SHAPE TOMORROW. STILL REALLY TIRED. WORK UP TO A TITHER AND WILL TRY NOT TO LET THIS GET THIS BAD IN THE FUTURE. OTHERWISE, DAY HAS BEEN OKAY, LOTS OF REST.I DO NOT THINK THIS IS A HERX (IT MAY BE) BUT I LET MYSELF GET ALL WORKED UP AND I SHOULD NOT HAVE. HAVE RAMPED UP WITH C AND STILL AT 25MG WITH MINO. SEEMED TO HELP ACHEY HEAD A LITTLE. ALL WELL, SO FAR. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY Last edited on Mon Aug 29th, 2005 04:20 by BARNEY |
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BARNEY Moderator
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DAY 240, 8/29/05, PHASE 2/3, DAY 2, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, NO C, NO PAIN PILL, ALL TOLERABLE HAD A TOUCH OF COLD CHILLS ONCE TODAY, NOTHING HARD, VERY LIGHT. WAS A MUCH BETTER DAY WITH NO STRESS. CAN'T THINK OF ANY OTHER THINGS TODAY THAT COULD BE OF VALUE TO SAY IS A HERX. I AM TIRED AND IT IS LATE AND I AM GOING TO BED. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 241, 8/30/05, PHASE 2/3, DAY 3, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG MINO, C, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Had a back ache today, so I took my 25mg mino plus a pain pill. The back ache got better. Was a good day. No stress day but sort of funny day. My dad was off the wall funny today. He was this and he was that today. I shouldn't laugh but at least I am able to keep my sanity. We got a lot of rain from Katrina (we also needed it real bad). It made it a little difficult to breathe when I first got up but after a while it got easier. Felt like a lot of pressure from the storm. Doing well and glad I am on MP and looking forward to being well. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 242, 8/31/05, PHASE 2/3, DAY 4, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE PARENTS DID NOT FEEL WELL SO THEY SPENT A LOT OF TODAY IN BED, WHICH REALLY GAVE ME A CHANCE TO REST. NO SLEEPING FOR ME EXCEPT FOR A 10 MINUTE NAP, JUST LOTS OF RESTING. FIXED CHICKEN, BROCCOLI, AND ONION STIR FRY WITH RICE. I PUT RICE ON MY PLATE (I DO NOT KNOW WHAT I WAS THINKING), HOWEVER I DID NOT EAT THE RICE BECAUSE IT WAS MINUTE RICE AND FULL OF EVERYTHING I SHOULD NOT EAT ON MP. I ALSO HAD A PIECE OF CELERY WITH NATURAL CRUNCHY PEANUT BUTTER ON IT. LATER A SCOOP OF LOW CARB STRAWBERRY ICE CREAM. AND THE WORST THING I ATE WAS SOME CRUNCHY CHEETOS. SHAME ON ME. I HAD AN ALTIMATE TEST WITH MY CHEMICAL SENSITIVIES TONIGHT. MY STEP-NIECE CAME OVER TO CLEAN. I DO NOT HAVE TIME FOR A LOT OF CLEANING, SO SHE CAME OVER TO HELP OUT. SHE GRABBED THE CHEMICALS FROM UNDER THE SINK AND I THOUGHT ' OH NO' DO I GO TO MY BEDROOM AND SHUT THE DOOR, OR WHAT DO I DO. SO ... I DECIDED TO PUT MY MP TREATMENT TO THE TEST AND I STAYED IN THE ROOM WITH HER WHILE SHE USED SOME KIND OF ORANGE SCENTED FURNITURE CLEANER AND SOME WINDEX (WHICH HAD ALMOST PUT ME IN THE HOSPITAL THE LAST TIME I WAS NEAR IT). I AM HAPPY TO REPORT THAT I HAD ABSOLUTELY NO BREATHING PROBLEMS WITH IT AS I FOLLOWED HER FROM ROOM TO ROOM SO WE COULD CATCH UP ON THINGS. SHE EVEN MOPPED THE FLOOR WITH VINEGAR WATER AT MY REQUEST. I AM STILL NOT AFFECTED BY ANY OF THE CHEMICALS SHE USED. TOMORROW SEPT 1ST WILL BE THE BEGINNING OF MY 9TH MONTH ON MP AND I AM VERY PROUD TO SAY THAT MP HAS BROUGHT ME A LONG WAY FROM WHERE I USED TO BE. I COULD NOT HAVE GONE TO THE CONFERENCE WITHOUT IT AND I CERTAINLY COULD NOT BE HERE CARING FOR MY PARENTS WITHOUT LOSING THE CHEMICAL SENSITIVITIES I HAD BEFORE MP. I WILL ALWAYS BE GRATEFUL TO TREVOR FOR THE MP. ANYONE WHO SAYS MP WILL NOT WORK, I AM HERE TO TELL YOU THAT I AM A LIVING EXAMPLE THAT IT DOES. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 243, 9/1/05, PHASE 2/3, DAY 5, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG MINO, 'C', 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE. My ears just changed pitch and then went back where they were. I had some sweating today and some chills. I had a wild day today. My dad woke me by how hard he was coughing, so I got up to have him neb. Called his doc's office and they had me bring him right in. Turned out they both have BRONCHITIS again. We had to go next door to the hospital to get lung Xrays and had to get something to eat since we left home with no breakfast. Took their pills with me. Had my hooded sweatshirt on, my mask, my noirs, my visor, my levis, my socks, my gloves and who knows what else. I was pushing them all over the hospital in a wheel chair and that was when I was sweating and then we got in the room with the wonderful cold AC and then I had chills. Thank God, we got home before 4pm and finally are getting some rest. Hoping like crazy I do not get this. I am going to keep a positive attitude that I will be fine. Really tired tonight and I hope everyone sleeps good tonight and I am headed that direction real soon. HANG IN THERE, WE WILL MAKE IT!!!!!! BARNEY |
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BARNEY Moderator
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DAY 244, 9/2/05, PHASE 2/3, DAY 6, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Have had an achey hip all day and lower back catch/pain. Tries to grab me when I get up and start to walk. Kept thinking a headache was coming on but it never did set in. Tried to rest most of day after the wild day yesterday, but the phone kept ringing. I did get a nap in between but am going to bed as soon as I finish this post. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 245, 9/03/05, PHASE 2/3, DAY 7, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG MINO/AM, 'C', 25MINO/PM, 1 ACIDOP, ALL TOLERABLE Been a rough day..... hip hurting a little more today than yesterday....pain pill +tylenol.....stopped hurting....also took 25mg mino.... pm....very tired .... back started hurting about in the middle....took another pain pill + tylenol....slightly herxing neck pain...annoying more than anything.... will take another 25mg mino tonight. took a 4 hour nap and that helped some. parents are having a rough recovery.... so far I am bronchitis free. Sure do not need that problem. well, I need to go divide some mino caps....I hate doing the pelleted kind ... those little balls roll all over the place. If anyone has a neat way of doing this project....I sure would like to know it. I forgot to mention that since I ramped up on my C....I have noticed a lot of sweating this week....something I had not been having. Hope it sweats all those critters out. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY Last edited on Sun Sep 4th, 2005 05:12 by BARNEY |
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BARNEY Moderator
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DAY 246, 9/4/05, PHASE 2/3, DAY 8, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Did not get to post....was really busy dealing with, of course, illness...not mine particularly. I did notice that after following Aussie Barb's instructions on how to slow a herx down.....I had a quite comfortable day....however... My dad has had a pretty hard time with his breathing with this bronchitis. Even had to get up in the middle of the night and put him on the nebulizer and get him a cough drop....staying up to let it disssolve before he was to lie back down. Reminded me so much of the days when I spent most of my nights trying to breathe and being up all night on the nebulizer and anything else I could find to help me breathe. I had almost let those thoughts of those nights go off into the archives. Something I realized a couple days ago and mean to put on my post is the fact....my skin on my body was so very thin that everytime something just barely bumped me....it would break open and bleed....not since Marshall Protocol. So very glad I found MP and am able to keep it going no matter what. C... has been a real challange for me and it has been difficult for me to get thru but I am able to multi task...to some degree...and it has been a long time since I could do that. Good thing I have that ability staying here with 2 ill parents. Just thinking and fixing a meal at the same time is a pleasure now. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 247, 9/5/05, PHASE 2/3, DAY 9, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG MINO EARLY, 'C', 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Not too bad a day, rested a whole lot since dad is having a hard time and so I am resting whenever the opportunity arises. Back ache still and neck achey, so I took 25mg mino early and took a pain pill. Ate something I should not have but will not tell you what it is. I am extremely sleepy and am going to go to bed soon. All is well. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 248, 9/6/05, PHASE 2/3, DAY 10, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO/ NO 'C'/ 1 ACIDOP/1 PAIN PILL, ALL TOLERABLE. Has been a busy day with lots of MP posts to my great MP family members. I enjoy everyone so much. I had a slight bit of head pain today and a little achey back so I took a pain pill and that helped. My brother smoked us a beef roast and it really helped with my diet. It was very good. Seems some people have benefited from the deep breathing exercise I posted, so very glad I can help without it involving medication. I am going to ramp my mino back up to 50mg tomorrow and we will see how that works out. Doesn't scare me tho since we know some extra mino later could calm the herx down. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 249, 9/7/05, PHASE 2/3, DAY 11, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO, 'C' , 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE UPPER BODY ACHEY....TOOK PAIN PILL...REST OF DAY WAS OKAY. I SURE AM GLAD AUSSIE BARB FINALLY GOT IT THRU MY HEAD TO TAKE SOME EXTRA MINO TO CALM THE HERXES. AND BARB, I FOUND THE NEATEST WAY TO DIVIDE THE MINO INTO 25MG/25MG. I OPEN THE EMPTY CAPSULE (FROM THE HEALTH FOOD STORE), ..... PUT A TINY FUNNEL IN IT..... (I MADE OUT OF A PIECE OF PLASTIC OFF MY TENS UNIT PATCH) ....OPEN THE MINO CAPSULE WITH THE BIGGEST END AT THE BOTTOM..... POUR HALF OF THE PELLETS INTO THE FUNNEL AND ZAP...YOU HAVE TWO 25MG CAPSULES (REPLACE THE LIDS ON EACH CAPSULE). HOPE THAT MAKES SENSE TO EVERYONE. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 250, 9/8/05, PHASE 2/3, DAY 12, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT,50MG/MINO, 'C', 1 ACIDOP. 1 PAIN PILL, ANOTHER 25MG/MINO TO SLOW HERX, ALL TOLERABLE This week I ramped my mino up to 50mg since I reached full 'c'. Got up with head pain...took pain pill, it worked. In afternoon, had that middle of the back pain again and it got sorta intense, so I took a 25mg mino to calm the herx....it worked. All tolerable, just a nuisance. Went out to celebrate birthday for my parents' friend and mine. I sure wish their friend could do MP. She is very ill. I would take her home with me so she could, but she has not won her disability yet. My aunt is going to stay with my parents while I am in Bethesda. Wish I was a millionaire so I could help lots of people. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY Last edited on Fri Sep 9th, 2005 07:17 by BARNEY |
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BARNEY Moderator
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DAY 251, 9/9/05, PHASE 2/3, DAY 13, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO, 'C', 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Started having back, shoulder, arm pain so I took a pain pill... it worked. Rest of day was great and I spent quit a bit of time in my 'cave', which I throughly enjoy. Wish the whole house was my cave. Need to get my bedroom straightened up for my aunt and reorganize my luggage for the trip to Bethesda. HANG IN THERE,WE WILL MAKE IT!!! BARNEY PS Since I have gone thru C, I cannot believe how clear my brain feels and how well I can see. I did not get any depression during this time. Last edited on Sat Sep 10th, 2005 07:45 by BARNEY |
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BARNEY Moderator
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DAY 252, 9/10/05, PHASE 2/3, DAY 14, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/ MIDNIGHT, NO MINO, NO C, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Had to take a pain pill due to stress making my head and neck ache, other than that it was good day. Herxes are at bay today. Going to have to have a talk with stepmom because every room I go into she has opened a blind or door and the sun is streaming in. The skylight is bad enough. If this keeps up, they will have to go to assisted living and I will have to go back home to my cave. Consideration for my health has to come first. After all I have no one to help look after me. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 252, 9/11/05, PHASE 2/3, DAY 14, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 75 MINO, 'C', FORGOT ACIDOP/WILL TAKE FIRST THING IN MORNING, 1 PAIN PILL, 25MG EXTRA MINO, ALL TOLERABLE More stress today and I blew my stack and did a whole bunch of screaming at on particular person. I guess Trevor would call it sarc rage. It is 26+years coming. And I am sure it is not over yet. My heart was pounding so hard I could hear it. My brother and sister-in-law are taking my dad & stepmom for 3 days. I can just bask in the dark. Hallalueha!!!!!!!!!! Dad is a jewel to take care of and I told him if this keeps up, I will take him home with me and 83 or not, I will put him on MP. Maybe then he will live to be 100 and finally in good health. My feet iched all night and started again this morning. The 'bugs' feel like they are crawling again. I have a little 'kernel' under my little toe next to where the toe joins the foot. Believe it may be a sarc. MP will get it. Please forgive me for spouting off on this tread. I know ya'll donot need to hear it. HANG IN THERE, WE WILL MAKE IT!!! BARNEY I have been reading posts on MP that talk about calcium levels being high in blood tests. I have had them most of my sarcie life. Interesting to know what has caused them. They always tried to give me Vit D but I refused. Very glad I did. |
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BARNEY Moderator
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DAY 253. 9/12/05, PHASE 2/3, DAY 15, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, 2 PAIN PILLS, 1 ACIDOP, ALL TOLERABLE, 25MG MINO TO EASE HERX Been itchy a lot on various parts. Since increasing mino back up from 50mg itchy has become an almost daily part. Not a bothersome or painful thing and don't scratch till I'm sore or bleeding, just itchy. Had a pretty achey head today, had to take pain pills and extra mino, 25mg. Have a very upset stomach tonite and cannot sleep. Dozed off but woke up thinking I was going to vomit, down to a dull roar. Am going to take 2 tums to calm it down completely. Went to grocery after dark. I'll say one thing, we eat good around here and I have been introducing my parents to no vit d eating. I just wish for my totally dark cave. I wish for 24hrs of uninterrupeted sleep. Not that I am tired or worn out, just would like to sleep around the clock for 1 day. Not possible, my hyperactive body will not let me do that. When the sarc was raging, I would sleep for 3 days, never getting up to go to the bathroom, eat or anything else. Would wake feeling like a new person, was very strange. Am looking so forward to going to Bethesda next week. I find it totally unbelieveable that my fingers a lot of times do not type what my mind is thinking, actually totally different and sometimes putting words ahead of the other words in the sentence. Do I sound like I've lost my mind tonight? Maybe I have, but I am on the Road to Recovery. HANG IN THERE, WE WILL MAKE IT!!! BARNEY Last edited on Tue Sep 13th, 2005 08:58 by BARNEY |
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jrfoutin Research Team 
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Glad to read your post. While reviewing recent journal notes, that I hand-write, I noticed strange effects the day of my worst Herx so far. "WEB" in all caps was intended, but was spelled "EWB." Other words had letters omitted, too. For me, this is not typical but can only guess my motor processes at the time suffered a different type of brain fog -- more like a prism spitting a thought from action. Best wishes, take care. |
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BARNEY Moderator
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DAY 254, 9/13/05, PHASE 2/3, DAY 16, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 75 MG MINO, 'C', EXTRA 25MG MINO FOR HERX, 2 PAIN PILLS, ALL TOLERABLE, Made a big mistake and ate sausage gravy and biscuits with my parents (homemade of course). My diabetes hates anything breadlike made of flour. Of course I knew better but did it anyway. Every muscle in my body hurt within 1/2 hour of eating. Had to take pain pill and also took 25mg mino and ate 2 small pieces of chicken breast (for the protein) to bring the sugar level down (you do not have to eat sugar to stir up your diabetes). All calmed down after a while. Was a very busy day. Put ham in oven before taking stepmom to therapy for her knee. She did not want to go but I insisted since she is not doing well in my eyes (she thought she was fine but realized she was not). Aunt took care of dad. Dad is not doing well today. The ragweed is to the stage of unhealthy and he is having a hard time breathing. Had to be on the phone with his doc and they said there was nothing they could do for him more than they are doing. Not my opinion. Then really messed up...fixed brats (that was okay) but then I grilled some really beautiful sub buns (which I was in brain fog to have eaten), beans and potato chips. Except for the brats, I should have eaten nothing else, but knowing how bad I wanted to cheat and eat this, I DID. I am not telling this for anyone to tell me I need to stop this, I know that already but I am wanting to let people understand thru my mistakes that bread is a difficult thing to eat with diabetes (my sugar went to 316) plus I should not have eaten that bread being on MP. This adds to my herx I am sure including the drastic increase in sugar level. I ate some meat (protien) to bring it back down (it worked). I am really looking forward to Fri Sat and Sun, I get the whole house all to myself. My brother/sister-in-law are taking my parents home with them (I hope) unless my dad is toooo bad to go. Please, Lord, let him be well enough. I think it will help him to go. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Memoking inactive member
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Barney. .. From reading your posts I have a couple of questions for you When you say you "took a pain pill"...what kind of pain pill do you take? You said you "took a pain pill and some Tylenol"... You say you used to have trouble breathing, and "used a Nebulizer...is it possible to get those? How does a person get that? And I would like to say that I still haven't started back on the Benicar yet...I am still having too much pain in my chest and trouble breathing, so I just took a Lodine today, and even with that, I am still having some pain in my chest, and trouble breathing.. It has helped some though....but I have a headache from it.. There was one other thing I read from what someone wrote..it was about getting a "tablet divider".....how does someone get that? Anyway, that's all for now...I have to go on a short trip tomorrow..I am not sure when I will feel comfortable starting the Benicar again, but it will be soon.. Mary |
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BARNEY Moderator
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Mary, Ordinarily I would ask you to pm me those questions or have me post on your site, but this 1 time I am going to answer it on my post because it might help someone else. I had planned on sleeping in until 10am this morning but my dad started coughing really bad (he is a lung patient). I put him on the nebulizer and sat and held his hand until he finished and was able to go back to sleep without severe coughing. Your doctor is the one who should be determining if you need a nebulizer. You can even ask him if he thinks you need one. They are prescribed to you just like your Lodine was a prescription. I have been on a nebulizer for over 20 years. It was a part of the way I kept breathing and stayed alive. Mary, I was so bad with my breathing in the early 80's that I could not climb one step without stopping to catch my breath. That is when they put me on a nebulizer. I had sarc in both lungs and asthma on top of that. We managed apartments and my husband was able to cover for me most of the time when I needed to take care of me. Talk with your doc. Also, Mary, for crying out loud everyone needs to really educate themselves about breathing and their own illness. Are you doing the deep breathing exercises I told you about? If not, you are not helping yourself and you are the main one who can help you. As for the pain pills, I have been on Fioricet for over 20 years. I had migraines so bad that I started off on giving myself Immitrex shots. After a few years of that, I learned that if the minute a headache just acted like it was starting, I would take a Fioricet, I no longer needed the Immitrex shots. Since I had (as Trevor says it) such an intolerance (you might call it an allergy) to most medications they tried to give me, but did not to the Fioricet, my sweet primary care doc allowed me to stay on it as a pain pill for all pain not just headaches. I still use it for pain. I only take it when I need it and I have a strong threshold for pain. As long as I do not try to hurry and get tooooo excited, I do not have a breathing problem despite the fact that I have pulmonary fibrisis and pulmonary hypertention. MP has done miracles for my breathing and I think it is a shame that you do not get on the Benicar and stay on it. The rest of the questions I will go to your post and answer since they do not pertain to me. HANG IN THERE, TAKE YOUR BENICAR AND WE WILL MAKE IT!!!!BARNEY Last edited on Wed Sep 14th, 2005 15:57 by BARNEY |
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BARNEY Moderator
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DAY 255, 9/14/05, PHASE 2/3, DAY 17, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO Z, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Tonite I am not going correct any spelling or typos after this sentence cause I want all to see how my fingers do not always type what my mind is thinking. Remember I was a legal secretary for about 10 yrs and made a living typing, so here goes. Started th day out with dad having a 99.5 temp and then up to 100 and then down to normal. Started him back on antibiolics. Did not get hom from doc;s office until 4pm Amazingly enough this has been a dooc (good) day for me with no herx that I can think of. but look at this typing. brain is not thinking like the finers (fingers) are typing. Wow, what an experiment. Does that mean brain fog or does it mean that the e rest of the body is not listening to the brain too? HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aussie Barb Research Team
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Barney you may be interested in what Dr Marshall has to say here.. re typos Barb ... |
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BARNEY Moderator
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DAY 256, 9/15/05, PHASE 2/3, DAY 18, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 75MG MINO, 'C', NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Thanks Barb, for the link, I have never been dyslexic in my life. I have only had this typo thing going on since on late MP. It isn't bothering me, since sorta blows my mind. Since I made a living as a legal secretary with typing being a major part of my job, it just totally is wierd to be typing like this. Some days are better than others. My eyes have been bothering me this last few days. Feeling that they do not need glasses in the house, but yet not able to go without my Noirs even at night. Feeling like they are annoyed by the darkness of the Noirs. I feel like the light sensitivity is easing. I have had to have 3 pairs of glasses to go outside on MP (my scrips, tinted, my clipons and the Noirs). That has also lessened. I think I have finally leveled out on 'C' . Have started to not herx. This has been the toughest cycle since Phase 1, but I still believe Phase 1 is the hardest, because the brain fog and fatigue and pain are so intense then. My opinion of this far into Phase 2 ready to go to 3, is that I have a clearer mind, not as much eye problem, starting to feel somewhat toward 'normal', if there is such a thing. I feel like I am a race horse stuck in the gates just waiting for the gates to open and so very excited to be well. It is still 1 year away or more but seems like a short time too. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 257, 9/16/05, PHASE 2/3, DAY 19, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE All alone for 3 days, don't know if I can stand the quiet. Going thru MP here has been a little difficult with 3 people's dr's appts, meds to pick up, that darn sky light. But it has passed the time so quickly and I have not had time to feel sorry for myself or let me get depressed. I would cook for my self, do laundry and all those household things at home so it is no more to do it here. I just throw their laundry in with mine, cook a little extra and thank God there is a dishwasher. Dad has a nice car with good AC and the house is a constant 75 degrees thanks to a programable thermostat. It has not been a miserable summer despite all the MP coverup. Having enjoyed trying to boost other people's morale and help them thru MP knowing that we will get well. Takes my mind off of all my responsibilities here. I have really enjoyed helping my dad and stepmom most of the time. Just a few times of stress that we have had to all come to an agreement on. I still feel I have reached a plateau with the C and will move on after I get back from Bethesda. Never change antibiotics when I have to travel, don't want surprises. I think C has really worked on my eyes cause I am having a hard time with the dark glasses in the house, they seem to want more light (unnatural light), and I do not (most days) use 3 layers of glasses anymore. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY[/b |
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BARNEY Moderator
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DAY 258, 9/17/05, PHASE 2/3, DAY 20, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 75MG MINO, 'C', 1 ACIDOP., 1 PAIN PILL, ALL TOLERABLE I have a clicking sound (when I walk) near the ball of my foot I have had most of my life. Today it stopped clicking and started hurting real bad. I think this is a herx because it has gone to my big toe and hurts clear up my foot and radiates into my knee. Hurts more on the top of my foot and in my ankle. I will consider it a herx .... but it sure hurts. Still alone and it feels weird, really quiet. For several days now, I have been having a hard time eating. About 2 bites into my meal, it makes me almost vomit. I make myself eat a decent amount to keep my strength up. Otherwise, I am fine. Nothing to worry about. Put an ace bandage on my foot for support. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 259, 9/18/05, PHASE 2/3, DAY 20, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO 'C', 1 ACIDOP., NO PAIN PILLS, ALL TOLERABLE My cousin I have not seen for 20 plus years came over to clean my dad's furnace. It sure cheered me up as we reminised thru our childhood together. I was not down in the dumps, it was just good to talk of the good childhood years. His dad grew peanuts when I was a child and I learned that they grew in the ground like a potato not on a tree like a pecan. My foot is still hurting and is involving my leg muscle above my knee. I am going to do the exercise my therapy instructor taught me to see if I can ease it. I had been drinking some of the new 7upPlus and had also had a achey head on the days I was drinking it. I looked up one particular ingredient and it said that it was used to descale metal. I think I will have nothing else to do with 7upPlus. I dumped the rest down the drain (ha...I bet the drain is clean now). ..and I have not had an achey head since. You just can't trust anything without reading the labels. Someone told me that if it has more than 3 syllables, do not eat or drink it. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY Last edited on Mon Sep 19th, 2005 04:08 by BARNEY |
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BARNEY Moderator
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DAY 260/261, 9/19 & 20/05, DAY 21/22, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 19TH....75MG, 'C', PAIN PILLS (2), 2 TYLENOL....FOOT REALLY PAINFUL, HAD HAD SUCH A BAD NIGHT THAT I WAS NOT ABLE TO POST LAST NIGHT. I WAS JUST TOO TIRED. I THOUGHT I WAS GOING TO HAVE TO GO TO A DOCTOR. 20TH....GOOD DAY, GOT SOME SLEEP LAST NIGHT OTHER THAN HAVING TO NEB DAD AT ABOUT 4AM ... WAS ABLE TO GO BACK TO SLEEP RIGHT AFTER. FOOT IS SO MUCH BETTER TODAY...FOUND OUT WHAT WAS WRONG WITH IT. I HAVE AN EXTRA BONE IN MY FOOT AND IT LOOKS LIKE A KNOT ON TOP ABOUT 2 INCHES FROM ANKLE. IF I WEAR ANY SHOE THAT COMES OVER TOP OF IT, IT REALLY HURTS. DID NOT REALIZE IT WAS MY NEW TENNIS SHOES DOING IT. SO HAVE TO GO GET A NEW PAIR OF SHOES TO WEAR TO BETHESDA. I HAVE HAD NO PAIN TODAY SINCE I WORE MY OTHER SHOES. THANK GOD I DID NOT HAVE TO GO TO THE DOCTOR HERE. HAD TO TAKE DAD TO LUNG DOC AND STEPMOM TO THERAPY AND IT CERTAINLY IS NICE TO NOT SWELL FROM BEING OUT IN THE SUN LIKE I DID IN PHASE 1. OF COURSE, I STILL COVER UP. MY BROTHER GOT ME A REALLY NEAT BIRTHDAY PRESENT .... A COOLIBAR HAT ... A BIG BRIM AND A NECK PIECE THAT HANGS DOWN AND COMES AROUND AND WRAPS AROUND MY FACE. BLOCKS UV AND ALLOWS ME TO COVER MY FACE WITHOUT LOOKING LIKE A BANDIT. NO HERX TODAY. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 262, 9/21/05, PHASE 2/3, DAY 23, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 75 MG MINO, 'C', 1 ACIDOP, 1 PAIN PILL, 3 TYLENOL, ALL TOLERABLE Well, tonite I am officially a senior citizen. It is my 62nd birthday. We were going out for dinner but dad was to unsteady on his feet. Will go another night. I am so glad I am on MP and getting better. My eyes have improved so much that I can actually look at the tv without my noirs on for a short time. When I get back from Bethesda, I will be starting the cleanup phase ...............Phase 3. Pain in lower back has been pretty intense today...has not stopped...still have it.... but tolerable.....pain pill/tylenol and an additional 25mg mino. Am totally exhausted, because Dad has had a very bad day today. He has almost fallen, caught him in time and the rest of the day he has been so dizzy, have had to walk him to bathroom etc. all day. He got his new breathing medicine and he has really coughed up the mucus tonight and when he went to bed he feels like he has new lungs. Hope to get sleep tonite. Them darn bugs feel like they are crawling on the outside of my skin again. I forget the official name. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 263, 9/22/05, PHASE 2/3, DAY 24, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO 'C', NO PAIN PILLS, 1 ACIDOP., ALL TOLERABLE Dad had his big breathing test today at the hospital, so I went out all bundled up like I was in the Sahara Desert. Thank God for air conditioning. In the car, it is impossible to be that covered and keep breathing and not sweat to pieces. With air blowing on you, it is fine. Of course, you know that I just had to tell the girl doing the test all about MP.com and how it works. Came back and laid down on the couch for the entire afternoon as a friend took my stepmom to her therapy. I went so sound asleep that when the phone rang, I almost jumped off the couch. Guess, I really needed the sleep. My lower back is still bothering me but not quite as bad. Feel it is a herx and is killing bugs. Leg/foot still hurting, possible bug killing. Not as bad it was. Went to grocery this evening for parents and got into a conversation with a lady and of course, had to tell her all about Marshall Protocol.com and Sarcinfo.com so that she could check into it for 2 friends that have fibromyalgia. HANG IN THERE, WE WILL MAKE IT!!! BARNEY Last edited on Fri Sep 23rd, 2005 07:30 by BARNEY |
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BARNEY Moderator
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DAY 264, 9/23/05, PHASE 2/3, DAY 25, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 75MG MINO, 'C', NO PAIN PILLS, 1 ACIDOP., ALL TOLERABLE Lower back is still hurting. Did not take any pain pills for it. It keeps getting a catch in it when I arise from sitting, but that is not bad unless I sit tooo long. Went out to OCharley's for my birthday dinner. Had ice tea and my stomach decided it would give me fits (really upset). I hate it when my stomach gets this sick feeling. Nothing stops it except time. Other than that, no other herx. HANG IN THERE, WE WILL MAKE IT!! BARNEY PS Eyes improving greatly for light sensitivity. |
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BARNEY Moderator
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DAY 265, 9/24/05/ PHASE 2/3, DAY 26, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO 'C', 1 ACIDOP, 1 PAIN PILLS, 1 (25mg) mino, ALL TOLERABLE Some lower back pain, took 25 mg mino and a pain pill. Took care of it. Foot has improved vastly from last week. Have talked with other MPers this week end and we have bounced ideas around of how we are improving off each other. We were able to relate improvements we have seen (or heard) in each other. Also, how we so easily forget things that have happened to us and how quickly we have forgotten the pain and aches we have suffered. You know, the old saying OUT OF SIGHT, OUT OF MIND. We were relating how we should be writing all of this down because it is forgotten so easily. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 266, 9/25/05, DAY 27, PHASE 2/3, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 75MG MINO, 'C', 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Occassional dizziness today....no idea why....other than a herx...from killing bugs in brain...maybe. Stiffness in lower part of body...don't know if it is the weather...maybe a herx..? Trying to get packed (in advance) for Bethesda...trips are tiring and if you can pack early it is all better. Even when you are in Phase 2 ready to go to Phase 3, you still have a hard time (wears you out) traveling. Phase 1 was a bit worse, cause I used to swell from the sun exposure. Could not get my shoes on, make a fist with my hand and my face swelled. See how much I have improved thru Phase 2, I do not do that anymore. Basically just get well worn out. Vast improvement. Eyes no longer have pressure in them.....but...I still have my limits of how long I can stay on the internet...but...is much longer than before MP. No more osteo pain in shoulders...which is very sweet...as I used to cry myself to sleep from the pain. No neck pain like before MP....no more Migranes...that is even sweeter. I used to be on Imitrex shots that I had to put together when my eyes were so blurry I could barely see to do it....then I went to Fiorinal at the very first thought of a headache....then (Thank God) I went to Marshall Protocol and I no longer have Migranes..............HOOOOOOOOOOORAY!!! HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 267, 9/26/05, PHASE 2/3, DAY 28, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, 1 ACIDOP, 1 PAIN PILL, ALL TOLBERABLE Had to go out to take stepmom to therapy and pick up dad's new inhaler. Then we went out to eat and I have been sick to my stomach ever since. Finally got it calmed down and am going to bed. Foot is still a little sore but has really calmed down. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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DNStog Moderator
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Barney, Know you will represent your fellow Phase II MPers well at the Bethesda conference. Sunday I returned from a weekend car trip (two hours each way)traveling during the day. Dosing 50mg Mino daily, Benicar Q4H and Q 500mg 2x daily, middle of last cycle of 1/2 Z, brought very mild light headedness without any other discernable herx sxs. Hopefully this info can help you in your journey. Wishing you well especially as you tell our story! Donna, still cruising and ramping to 3/4 Z soon Last edited on Tue Sep 27th, 2005 18:59 by DNStog |
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BARNEY Moderator
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DAY 268, 9/27/05, PHASE 2/3, DAY 29, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 75MG MINO, 'C', NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Well, I will be off to Bethesda in the morning...went to library and printed off hand outs as to my recovery on MP to date. Keep us all in your prayers that their ears and brain will respond to MP favorably. I am doing okay, no real herx today, so I will sign off for tonight and will post as soon as I can to let you know what is happening. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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I am needing to rest before I post but I have a lot of exciting things to tell all, please be patient, I need to rest first. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 274, 10/3/05, PHASE 2/3, DAY 35, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, NO PAIN PILLS, ALL TOLERABLE IT WILL STILL BE SEVERAL DAYS BEFORE I AM TOTALLY RESTED FROM THE TRIP, 4 AIRPORTS LATER. OF COURSE, EACH GATE WAS CLEAR AT THE OTHER END OF THE AIRPORT FROM THE ONE I LANDED AT. WE WORKED VERY HARD WHILE WE WERE IN BETHESDA, WE GOT UP VERY EARLY AND WENT TO BED LATE AND WORKED ON MEETINGS AND TRAVEL TO AND FROM THE NIH, WHICH REQUIRED MY FIRST TRAVEL ON A SUBWAY. THE ESCALATOR DOWN TO THE SUBWAY, REQUIRED YOU TO NOT LOOK DOWN (IT WENT ALMOST STRAIGHT DOWN) BECAUSE IT GAVE YOU THE FEELING OF FALLING DOWN, DON'T KNOW IF IT DOES THAT TO PEOPLE WHO ARE NOT ILL. THE FIBROSIS IN MY LUNGS KEPT ME FROM GOING AT ANYTHING OTHER THAN A SLOW WALK, SO EVERYONE WAS ALWAYS HAVING TO WAIT ON ME TO CATCH UP, INCLUDING THE GENTLEMAN FROM THE NIH LEADING US TO THE MEETING PLACE. I AM SO TIRED AND MY HIP IS HERXING SO BAD THAT I CANNOT REALLY SAY HOW I AM REALLY FEELING. MY EYES FEEL PUFFY, AND I PUT THAT TO SUNFLARE FROM BEING OUT IN THE SUN SO MANY DAYS IN A ROW. I WAS COVERED COMPLETELY EXCEPT THIS TIME I TRIED THE K CREME. MY OPINION IS STILL OUT ON THAT. I GUESS IT WORKS. I LAID DOWN AND TOOK A 3 HR NAP YESTERDAY AND WHEN I GOT UP MY CHEEKS WERE BRIGHT RED LIKE A SUNBURN DESPITE THE FACT I WAS NOT OUT YESTERDAY. I WILL TRY TO POST DAILY NOW, EVEN THO I AM STILL 'VERY TIRED' HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 275, 10/3/05, PHASE 2/3, DAY 36, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG/MINO, FULL 'C', 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Went to bed at 930pm last night and slept until 12noon except for the half hour when I got up to go to the restroom and typed on the Dr. Zerhouni site under General Discussions. Herx...nausea for several days (comes/goes)....hip has been killing me and does not seem to change no matter what I do....tonight it is fine. Had headaches both nights after our trips to the NIH, I suspect from the sun. Told Carol I didn't want to go eat one night, my head hurt so bad, but I took some extra Benicar and extra Mino and at Carol's insistence, I got up and went to dinner. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 276, 10/4/05, PHASE 2/3, DAY 37, CYCLE 4C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Has been a routine day with appts out for therapy for stepmom and stopped for lunch and then home. Got dad home and he got what I call rubber legs so had to sit him in the wheelchair which we got last week. Hip still hurting otherwise doing quite well only not as rested as I would like to be. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 277, 10/5/05, PHASE 2/3, DAY 38, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, FULL 'C', 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Hooray I have been at full mino and C for all week now. Trying to decide which to do next. Z or B. No real herx other than right hip, leg and foot still bothering me. Does not seem to really go all the way away. Took Dad for a catscan today at the hospital. Could not believe my ears. Two ladies were talking about RA, and the one lady was there because she had started Remicade for her RA and had her second shot ($2,700.00 ea) and it was already destroying her intestional tract and she was having a cat scan for that. I talked with her quite a bit about their being a cure, I'm not sure she believed me. I gave her my name address and wrote lots of info on the back of the card. Her husband looked at me like I had lost my mind. I hope, for her sake, she listened to what I told her. I find it so very difficult to believe people will allow themselves to be treated with some meds like Remicade. HANG IN THERE YOU WISE MPers, WE WILL MAKE IT, THEY WILL NOT!!! BARNEY |
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BARNEY Moderator
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DAY 278, 10/6/05, PHASE 2/3, DAY 39, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Got a really intense headache and had to take a pain pill...went away. Ate dinner/lunch out....got really upset stomach which has happened other times when we have eaten at the same place. Hip, leg and foot still bothering me a little less today. Felt really like I was recalling 10 years ago today...the lung doc called and said dad had copd but he also said the CT scan revealed a cyst (8cm) in size on his right kidney. When I lost my right kidney, they found a cyst on mine that was a little smaller than dad's. Don't know what is next. Seems like it never ends for him. Gee I really remember those days....never ending for me too...they just kept finding things wrong and then I found MP. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 280, 10/08/05, PHASE 2/3, DAY 40, CYCLE 4/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO MINO, NO C, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Today is my last day on Phase 2, I will be starting Phase 3. This is an adventure and I don't know if I am looking forward to it or if it is scaring the begiggers out of me. Starting into the unknown where I have never trod. I know I can do this, because others have done it before me. Actually I am very excited. I have spent quite a while on C and have seen vast improvments including being able to multi-task again, much better eye sight, less light senstivity, etc. ...... so here we go. No real herx going on except for the same ole hip pain but some therapy tricks has helped it a lot. I will remain on the same post so all can see the Phase 3 improvements, altho I will not name my abx's or the amts of each. Just know that I will be on Mino as always QOD and add 2 more abx's to it. Wish me luck with little or no herx (that hurts bad). HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 281, 10/09/05, PHASE 3, DAY 1, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO, Z, C, NO PAIN PILLS (SO FAR), 1 ACIDOP, ALL TOLERABLE Well.....I did it....I am officially in Phase 3 (the clean up phase)....wow....I am just blown away. It seems like I just started MP....and here I am in Phase 3....wow. I held the pills in my hand for a minute....and then just said .... what the heck...I downed them with plenty of water....now the fun begins....I wonder what kind of herx I will get....treading on unknown waters. I feel like I am in the middle of a celebration...like moving into a big room where there is clearness and like the world is opening up to let me in....does that make sense? That is the best I can describe it. Hope I don't get grumpy....already warned dad and stepmom...they know they may have to pack their bags to move out for a few days (haha). So excited...I could jump up and down for joy....(slap)....get ahold of yourself Barney. Good night all. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 282, 10/10/05, PHASE 3, DAY 2, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 2 ACIDOP, ALL TOLERABLE Had a very upset stomach today so this evening I too 2 acidop, and it really helped. Hip pain left, but the pain went to the middle of the back again. Must be lots of bugs there. These 2 areas have been a 'bone of contention' for many years and I expect them to give me problems for a while. Am doing better than I expected on Phase 3 so far, tomorrow may show me something harder in the herx line. Otherwise, seems okay. Dull day here. Went to drug store after dark for stepmom. She has a dentist appt and has a knee implant so has to have her antibiotic to take 1 hr prior.....and guess what it was....one of the phase 3 meds. Hang in there, we will make it!!! Barney |
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BARNEY Moderator
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DAY 283, 10/11/05, PHASE 3, DAY 3, CYCLE 1/(3) ABX COMBO, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG/MINO, C AND Z, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Only herx today.....middle of the back pain. Sugar levels are starting to come down to a level I am comfortable with....hip has calmed down to level I can handle. Been emailing with a gentleman and woman who are (it appears) being success toward having New Mexico be the first state to ban Aspartame in all food and drink in our state. woohoo. There is hope there. Got to get to bed, have to be up at 8am to take Dad to his have his implant out and find out what they are going to do about his kidney cyst. HANG IN THERE, WE WILL MAKE IT !!! BARNEY |
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BARNEY Moderator
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DAY 284, 10/12/05, PHASE 3, DAY 4, CYCLE 1/'3'ABX, BENICAR 20MG/Q3HRS, BENICAR 40MG, NO ABX, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Had a violent headache come on in mid afternoon....took pain pill....heated up rice sox.... and it was gone.....had some breast pain...left breast, left side.....eyes hurt for short period cause I forgot to put my glasses on and went outside...how stupid. Update...Dad...took out his implant for prostate cancer...feel medicine and the lack of testosterone may be making him feel really old and bad.... going to psa bood test and physical exam to keep check on it...also doing ultra sounds every 6 mos to keep tabs on cyst and make sure it not causing any problems. Dad is happy camper with no meds like these. Hope I will get to head home soon, if all goes well and dad gets a whole lot better....waiting to see. Doing quite well on 3 ABX comb and sugar levels are coming down, I just knew C was giving me a constant high sugar reading and that this was a herx, am absolutely sure of it now. HANG IN THERE, WE WILL MAKE IT!!!!BARNEY |
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BARNEY Moderator
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DAY 285, 10/13/05, PHASE 3, DAY 5, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX, NO PAIN PILLS, ALL TOLERABLE Right leg and hip still letting me know it hates me...bearable and hoping that this herx will come to an end soon....been going on awhile. Been a slow day as far as parents...dad is feeling a little better each day ...stepmom has come down with a little bug...maybe. Went out after dark and did a little shopping. (for parents/self). HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 286, 10/14/05, PHASE 3, DAY 6, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX TONIGHT, NO PAIN PILLS, ALL TOLERABLE I am putting my post on today (10/15/05) .....because...we went out to eat after dark last night....when I got home...body said...lay down...or...I will put you down...(that means on the floor or wherever I am)...so I obilged and went to bed....parents thought I was sick....cause when this happens I have to find the bed really fast...no time for explanations. Maybe...it was because I cheated and had a baked potato with butter and sour cream...which I rarely do. The steak and salad were devine also. What was even better...they did not charge us for the dinner because the waiter forgot the salad and dad's soup until after our meal arrived. He is usually a really good waiter...felt sorry for him...he got into trouble. Hip still biting me...I really believe this is a herx...my leg muscles ache. Darn sarc....I hate it. I have also had a slight sore throat...which I am sure is sinus and tightening of bronchiles. (reminder of old times) Well, I am going to take a nap...will put on today's post later. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Memoking inactive member
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Barney.... I sympathize with you, not being able to eat what you want. Last night we went out to eat also, and I had steak and a few shrimp, knowing that I am not supposed to eat shrimp, but I just nibbled on a few..... Shrimp used to be my favorite food until I found out I wasn't supposed to eat it due to the Vitamin D....so now I can't eat shrimp anymore, but I "cheated", like you did with your baked potato and sour cream....I eat my baked potatoe with just margarine or butter though, not sour cream.. I nibbled on a few fried shrimp, not very much, but usually when we go out to eat, I don't eat shrimp at all anymore. Thanks for the updates, I hope you feel better.. I enjoy reading your posts... Mary |
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BARNEY Moderator
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Memoking, I think you misunderstood my cheating.....I am diabetic....for that reason I am not supposed to eat potatoes (not MP)....sour cream and butter are fine with diabetes and with MP.....but SHRIMP IS NOT OKAY AND DEFINITELY OUT OF THE QUESTION TO EAT WHILE ON MARSHALL PROTOCOL... if you cheat with foods to avoid on MP you are only cheating yourself...cause, it will take you that much longer to heal, if at all....if you continue to ingest Vit D foods. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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Memoking inactive member
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Thanks, Barney, I like your picture.. I do know that shrimp is out of the question, so I hardly ever eat that anymore...I try to stay away from all Vitamin D foods...Mary |
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Morris W. Milnes Member 
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Hi Barney, It's funny how few foods are really denied to us, and yet the entire list could just as easily be entitled a list of "Morris's favorite foods" I love fried eggs over easy more than almost anything and seafood is a big favorite. I haven't had either since I have been on the MP . |
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BARNEY Moderator
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Miles, Me either. I am waiting for the day I am completely healed and I will have shrimp, salmon, crab and fried eggs. HANG IN THERE, WE WILL MAKE IT!! BARNEY |
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DNStog Moderator
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Know what you guys mean. Told my daughter and husband tonight that I'm having myself a seafood party when I'm through with the MP. Miss the shrimp, tuna, salmon, fish all of it...haven't had a bite of any since I started the MP. Hope the evening rest will render you feeling better tomorrow, Barney! Hugs, Donna |
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BARNEY Moderator
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DAY 287, 10/15/05, PHASE 3, DAY 7, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMB, NO PAIN PILLS, ALL TOLERABLE Had my crash day in bed and even took a nap and feel okay but think the fall weather is giving me that sleepy day effect. I want to go to bed for a couple of days and just sleep and sleep and sleep without any interruptions. Otherwise okay day. No herxes other than hip still paining me. Breathing okay. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 288, 10/16/05, PHASE 3, DAY 8, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, ABX COMBO, 1 PAIN PILL, EXTRA 25MG MINO, 1 ACID0P., ALL TOLERABLE What a day (and weekend) this has been. All I have wanted to do is sleep and believe me I have done quite a bit. I have also spent a lot of time on the phone with fellow PMers this weekend. Today has been one sorta hard day. I have almost ruined every thing I have touched. Have you ever had a day like that? I spilt all my empty capsules on the floor not once, but 3 times. I have found myself standing in front of where I have gone, just staring before it dawns on me what I went there for and it's like someone finally tapped me on the shoulder and says wake up, get what you came for. All the muscles in my arms and legs ached much like when I eat too much sugar and my spine in the middle of my back felt like someone had stretched it out like a rubber band read to pop. So I took an extra 25mg Mino, that didn't quite do it so I took a pain pill and all is tolerable now. I felt a couple seconds of dizzy but it went away. My brain has just acted like it is not catching up with me day. Have been having restricted broncholes and some mucus problems in morning the last 3 days, didn't think much about it, but it has presisted and increased a little each day to the point this morning I had to lay on my left side to breath properly. Took Zyrtec 2 days now. I am sure it is a herx. This abx combo is really working on me. Wow! Is all tolerable. Also, had a sharp stabbing, fast, pain 2 different times today in left breast. Sure it is not heart. Maybe abx is working on the bugs in the breast as I have a lot of fibrosis. Anyway, I am glad the day is over, I feel like such a clutz today. Hopefully tomorrow will be better. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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jillian Member in Phase 2
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Hi Barney, I can relate to the 'droppsies.' In high school my nickname was Grace, not because I was graceful, but because I dropped and/or tripped over everything and nothing. I'm sure it had nothing (ha, ha) to do with the fact that in exchange for boarding my horse, I worked after school and weekends and all summer at the farm. Spent LOTS of time outdoors or in a brightly lit horse barn! The joys of Th1 inflammatory disease... 'til later, Jillian |
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BARNEY Moderator
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DAY 289, 10/17/05, PHASE 3, DAY 9, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX, 1 PAIN PILL, NO ACIDOP (I FORGOT), ALL TOLERABLE Hip still hurting.... lighter tho....had headache from chemicals used to clean house by cleaning lady...pain pill and time in my cave...then okay. Brain problems...forgetting and almost like the old brain fog...since about 2or 3 days ago...must the the 3 ABX working on it. Legs are really tired for about 9 days now...or maybe more... who knows since I am negligent in keeping my paper journal going. Been resting quite a bit since starting Phase 3...don't even care if I go shopping at night. Just don't care...would like to go out and have a pina colada...but no one to drive but me...and I don't believe in drinking and driving...so here I sit....sounds like I am feeling sorry for myself...maybe I am...I don't feel that way...this is just what is coming from my fingers typing and it must be coming from the 'brain'...do I still have one? Enough of this...time to get a grip and sign off here. Okay. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 290, 10/18/05, PHASE 3, DAY 10, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE BUT ALMOST WASN'T. I HAD TO TAKE MY PARENTS TO THE DOC TODAY...THEY HAVE A VIRAL BUG...HOPING I DO NOT COME DOWN WITH IT...BUT I AM THINKING POSITIVE... I PUT K CREAM ON MY FACE, WORE A BIG BRIM HAT, NOIRS, HOODED SWEATSHIRT, GLOVES, LEVIS AND A LONG SLEEVE SHIRT........... I AM LOSING FAITH IN THE K CREAM. I USED IT IN BETHESDA TOO...........AND EVERYTIME I USED IT THERE AND HERE, I HAVE WHAT I CONSIDER SUN FLARES.........REALLY HAVING TO JUST PASS OUT FOR A WHILE WITH A PAIN PILL....HEAD REALLY BOTHERS ME WHEN I USE THE K CREAM.......... DON'T KNOW IF IT IS NOT WORKING AND THE SUN IS GETTING ME.....OR ....THE K CREAM IS EFFECTING ME IN THE WRONG WAY. I DO KNOW THAT IT MAKES MY FACE BURN AND ITCH AND I CAN HARDLY WAIT TO WASH IT OFF. I HAVE NEVER EVER USED SOAP ON MY FACE IN MY LIFE, UNTIL NOW. MY OWN SWEAT MAKES MY FACE BURN REAL BAD. I ALSO HAD TO GO BACK OUT TO THE BANK FOR DAD AND MAKE COPIES FOR HIM AND SEND IT IN FOR HIM....SO 2 LIGHT EXPOSURES IN ONE DAY. ALSO THE 3 ABX IS REALLY TAKING ME INTO BRAIN FOG NOT AS BAD AS PHASE 1. SORTA DIFFERENT TO, INCLUDING KINDA DUH TYPE THINGS...LIKE WHAT DID I COME HERE FOR? ALSO...SOMETHING I DID NOT THINK ABOUT BUT HAS BEEN HAPPENING...IS THAT I AM HOT (AND IT IS GETTING COOL HER) AND I AM SWEATING...I REALLY FEEL THIS COMBO IS REALLY DOING A THING ON ME...KILLING BUGS LIKE CRAZY. SITTING HERE SWEATING RIGHT NOW AND THIS HAS BEEN GOING ON SINCE I STARTED 3 ABX COMBO. WISH IT WOULD QUIT...MY FACE IS BURNING AND I DO NOT LIKE PUTTING ANYTHING ON MY FACE....GUESS I WILL GO BACK TO WEARING MY MASK.....THE SUN...EVEN ON PHASE 3 IS STILL DOING A NUMBER ON ME...BUT COME TO THINK OF IT...I HAVE NEVER IN MY LIFE DONE WELL IN THE SUN. MAY SWITCH TO ANOTHER ABX FOR A WHILE TO SEE IF I CAN GET SUGAR LEVELS EVEN LOWER. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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anne p inactive member 
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Hi Barney Sorry to hear your parents are still having health problems making life complicated for you. The Ketonconazole cream has always affected me too with unpleasant symptoms such as you describe, plus an awful taste and smell, and headache/fog. I am thinking about seeing how I manage without it and just continuing to cover up. I am having to use ketoconazole shampoo for seborrhea of the scalp lately and this affects me too. Anne P |
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Foundation Staff .
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Barney and Anne, You could be dermatologically sensitive to topical Ketoconazole or the symptoms could be due to the sun. We may be placing too much faith in the ability of K-cream to prevent production of 1,25-D in the skin. This false sense of security might lead some people to be in sunlight longer than they can tolerate. The amount of time that is too long will vary from person to person. A little experiment you could do would be to wear K-cream when you are not exposed to the sun and see if you react to it. Best, Meg |
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anne p inactive member
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Hi Meg Yes I have experimented a couple of times, planning to go outside and then cancelling for one reason or another, and yes the K cream does give me reactions unfortunately. Anne |
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anne p inactive member
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Hi Meg Yes I have experimented a couple of times, planning to go outside and then cancelling for one reason or another, and yes the K cream does give me reactions unfortunately. Anne |
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BARNEY Moderator
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Meg and Anne P, I have worn the K cream at Bethesda and had symptoms that I would contribute to sun flare. Also, the days that it seemed to be okay have been the cloudy (very cloudy) ....BUT....everytime I apply it to my face....it burns and itches more and more. I will bet since Flyer is having the troubles he is with it on his face and hands, maybe this is his trouble, it is not blocking the sun for him IMO. As we all do our own little experiments, we wll learn from them (I hope). I don't think everyone who is now on MP realizes that they are a part of history setting the president for how we will do MP totally in the future. What an honor. LAST NIGHT, after I posted, I noticed my feet and legs were swollen really bad just like they would when I would have to go to the doc during Phase 1. As for K cream, I think I will pass. (each to his/her own). I can make it 2 yrs on MP and cover up, knowing that I am getting well. HANG IN THERE, WE WILL MAKE IT!!! BARNEY Last edited on Wed Oct 19th, 2005 15:08 by BARNEY |
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BARNEY Moderator
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DAY 291, 10/19/05, PHASE 3, DAY 11, CYCLE 1/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMBO, 1 ACIDOP, 2 TYLENOL, ALL TOLERABLE Was having a lot of muscle ache and just down right miserable with herx/sun flare.....took abx combo early to stop herx....it worked. Have to take dad to ENT doc tomorrow and I will definitely wear the hat my brother got for my bday. It covers my head, neck & face. Went to 3 grocery stores tonight, hunting bargains and double couponing. Will decide tomorrow if it was worth it, (my feet are killing me). I got some really good bargains tho. Parents have both contracted the 'bug' that is going around town. Hope they get back on their feet soon. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 292, 10/20/05, PHASE 3, DAY 2, CYCLE 2/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX TONIGHT, 2 8HR TYLENOL, 1 ACIDOP, ALL TOLERABLE Still have the effects from the sun exposure....very tired...very easy. Am going to bed as soon as I get done writing the post. Am just totally exhausted and have been since the day with the K cream. Legs are very tired. Have been pm'ing with other MPers and we have been discussing whether our hair color will maybe return. I swear mine is getting darker than it was before I started MP. Took 2 8hr tylenol for the extreme tired/hurting feeling. Hoping it will help me sleep...last night shopping did not help this old body either. Then I could not rest my legs enough to go to sleep until about 5am. Going to back down and rest before our family is all here the second week of Nov. Hoping for rain the whole time they are here, so I get no light exposure. That sounds cruel doesn't it? We will be having company and party all day tomorrow...dad's 83rd birthday. They seem to be getting past the bug. Raining today, until Tues of next week. Glad the sun will not be shining bright. Getting to the point I dread it. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 293, 10/21/05, PHASE 3, DAY 3, CYCLE 2/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMB, 1 PAIN PILL, 1 ACIDOP., ALL TOLERABLE Couldn't go to sleep last night...I wanted a steak so bad....I was hungry and being a diabetic...when you are hungry....it is hard to go to sleep...I settled for 2 hard boiled eggs minus the yolks and a sugar free candy bar and some cheese nips...which I probably should not have eaten (did not read ingredients. Now do not follow my example. I have been going crazy here...at home I do not buy things I should not eat...but here they have all this stuff I am not supposed to eat...and ....I do not do well with temptation...I am lousy at it. I am trying really hard and everyday I turn over a new leaf...starting tomorrow I am going to do my best to be good. Herxing has calmed today after only one pain pill...celebrated Dad's 83rd birthday today with company in and out all day. My brother brought ribs for lunch...and my step sister brought chicken for dinner and of course... a cake. I did have about a 2inch piece but I did eat low carb ice cream and only 1 scoop. I do have a little restraint but that has got to get better. Hip is starting to hurt a little tonite and the side where my kidney was removed...which has not hurt in years...has started to feel sore like it did when the kidney was taken out....wow....that is wierd...must be lots of bugs getting killed there. My lungs were really bad....I sure am dreading when the abx's start working on them...altho I have had some wheezy times in morning before arising and stuff nose...which I have taken Zyrtec for a couple of times...have a sore throat that is 'allergy' associated. Well....I guess I have run my mouth enough for tonight...will sign off for now. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 294, 10/22/05, PHASE 3, DAY 4, CYCLE 2/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Seem to keep getting a headace that is sorta wierd.... maybe even associated with my sinuses...the bones in my nose feel like someone clamped them in a vice....actually all the bones in my head ache....reminds me of old times when I ached all the time....there is not a bone in my body that does not hurt all the time...sometimes lighter than other times. This headache seems to come in the last couple days about the same time daily. It is bearable but a real nuisance. Got irritable today....won't go into details. I am really getting tired of sports....sorry guys...but enough is enough...not everyday unless it is car races. Well...it is midnight and I need to go take my Benicar. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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I CRASHED AND BURNED TODAY. FEELING ROUGH, DID TOO MUCH AND DID NOT REST ENOUGH. WILL POST TOMORROW. GOOD NIGHT. BARNEY |
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BARNEY Moderator
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DAY 295, 10/23/05, PHASE 3, DAY 5, CYCLE 2/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMBO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Really bad day....but really my fault....I ran till I crashed.....and burned...as they say. had some diareha...not a virus...I am sure. I must have a lot of bugs in my head and sinuses ...this combo is really making them fight to live....the sinuses are really aching....every bone in my face aches....but they are going to die....I will see to it. I am stronger minded than them. I slept all night Saturday and all day Sunday....woho...I got up Monday morning feeling like a new person.....till the sinuses started to hurt and my headache came back...but then there is also the weather....that is trying to snow....what is up with that...snow already? OUCH!!! Also, hurts in my eyes....I think sinsuses are really getting a workout... but they also gave me a workout in the 80's bigtime. Well...enough of talking about all this pain and aches...we are killing bugs and that is what is the most important. Just remember....Barney crashes toooo.... HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 296, 10/24/05, PHASE 3, DAY 6, CYCLE 2/Z/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 PAIN PILL, 1 ACIDOP. ALL TOLERABLE Got up this morning.....feeling a lot better....just needed to rest....when I don't do it...my body puts me down. I got a headache....believe another sinus headache...sinuses hurt....left side nose hurting....bones in face aching near sinus area...took pain pill.... all well. A lot less painful this round. Lots of memories flood in as you start back thru this disease killing bugs...some of which you don't remember till they happpen again. Boy....I was one sick woman and amazed that I went thru what I did and did not die. Rained here all day....plus some areas around got a little snow....it melted quickly. Supposed to rain again and I have to take them to docs appt. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 297, 10/25/05, PHASE 3, DAY 7, CYCLE 2/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMBO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Sinus pain has eased up and pretty much gone today...but back pain in middle of spine kicked in to take it's place....and the funniest thing...I am actually sleepy at 9pm...and am going to bed by 11pm. Had to go out to take parents to doc....better appt today...it was also very cloudy...with snow predicted...which we did not get...but it is really chilly here...this is as cold as it feels in the hardest part of my NM winter...hate to see what the rest of the winter is going to be like....burrrrrrrr. Herxing has eased up tremendously....took pain pill for back pain...some relief. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 298, 10/26/05, PHASE 3, DAY 8, CYCLE 2/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILL, ALL TOLERABLE All went well today...no real herxing that I can put my finger on. I will be ramping up to next dose in 2 more days....we will see what new excitement that brings. Took folks to therapy today and got to see what dad's vocal chords look like and that they are being affected really bad by acid reflux....when taking them in for medical reasons...it always makes me glad that I am on Marshall Protocol. Going to bed. Tired HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 299, 10/27/05, PHASE 3, DAY 9, CYCLE 2/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMBO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Had slight headache....took pain pill......all gone....slight back ache...middle...all gone with pain pill....eyes also sorta hurt...also gone with pain pill. Had to go to grocery for oil to cook fish for company....I was good....ate no fish....fixed me chicken breast....fried parnsips...very good...take place of potatoes. Otherwise okay day. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 300, 10/28/05, PHASE 3, DAY 10, CYCLE 2/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Slight headache....backache....hip ache....eyeache.....and 2 twinging ear pains....1 pain pill and 25mg additional mino....all well. This abx combo has really been killing bugs and letting me know that it is working....all tolerable. Think I am getting a little anxious to go home, miss my my puppy and my home. Hopefully this will come before the end of the year. Will ramp up abx combo tomorrow after two 'same doses' in a row. Sugar readings are a lot better. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 301, 10/29/05, PHASE 3, DAY 1, CYCLE 3/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMBO, 1 ACIDOP, 50MG MINO EXTRA, 2 PAIN PILLS, ALL TOLERABLE BACK ACHE ALL DAY....NOTHING SEEMED TO TOUCH IT....PAIN PILLS...OR THE EXTRA MINO....OF COURSE...I WAS NOT RESTING...WAS CLEANING MY ROOM....PAIN WAS BEARABLE SO I AM OKAY WITH IT...HOT SOX HELPED A LOT. WENT OUT AFTER DARK TO GO TO THE MALL....MY PURSE WAS FALLING APART SO FOUND ONE FOR $9.00 MARKED DOWN FROM $36.00...HOW IS THAT FOR A BARGAIN...I HAVE BEEN WAITING SINCE I CAME HERE FOR THEM TO MARK IT DOWN....ALSO GOT A NEW PAIR OF HOUSE SLIPPERS SINCE I HAVE NOT BEEN IN THIS MUCH COLD IN 25 YEARS AND DON'T KNOW HOW MUCH LONGER I WILL BE HERE. I COULD NOT BELIEVE HOW VERY TIRED I GOT...I WAS SO ANXIOUS TO GET OUT AND GO SHOPPING...AND THOUGHT I COULD WHIP THE WORLD...BUT ONLY LASTED MAYBE 2 OR 2 1/2 HRS....HAD TO COME HOME I WAS SO VERY VERY VERY TIRED. RAMPED UP TO NEXT DOSE SINCE IT WAS TIME FOR NEXT DOSE....AND I HAD ALREADY DONE THE FIRST DOSE 2 TIMES....WE WILL SEE WHAT HAPPENS. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 302, 10/30/05, PHASE 3, DAY 2, CYCLE 3/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, 6 TYLENOL, NO PAIN PILLS, HOT SOX, EXTRA 25MG MINO, TENS UNIT ALMOST ALL DAY, BARELY TOLERABLE This has been nothing but total PAIN...hip started hurting after I went to bed...it woke me up after I had just dozed off....up almost all night in pain ....heated sox up and got to thinking what I did for pain...so I took 3 tylenol...put the hot sox on and finally fell asleep about 4 or 5am. Awake again for next pill...up by 9am and no nap today...in tooooooo much pain...kept tens unit on almost all day just to keep it bearable...also took 25mg extra benicar. I must have trillions of bugs in that hip and leg. Is tolerable right now but still letting me know that it is here....so I took 3 more tylenol so I can hopefully get some sleep....neck a little achey tonite. I don't think these bugs are just fighting....they have waged WW3...but I am determined that I will win this war. To be well for the first time in my life. Well, here comes the bed.....good night. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 303, 10/31/05, PHASE 3, DAY 3, CYCLE 3/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMBO, 1 ACIDOP, 0 PAIN PILLS, ALL TOLERABLE This has been a totally good day.....no pain pills needed....I made a horrible mistake this week when I filled my pill box....(I fill 3 people's pill boxes each week)...I didn't feel like I was having brain fog.....but....I put a whole capsule of one med instead of dividing it like I should have.....and ZAP.... it got me but good yesterday as per my post. Today has totally made up for it.....a very good day...need to take next abx dose but willl divide like I need to do before taking. Happy Halloween!!!! HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 304, 11/01/05, PHASE 3, DAY 4, CYCLE 3/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE This has been an uneventful day except for my eyes trying to give me fits over the tear duct 'swelling' late last night and giving me a minute amt of trouble today. Itchy also. Tomorrow my youngest daughter will be 41 and the 3rd, my youngest grandchild will be 18.............boy, do I feeeel old. Well, it is cold here and I fully intend to get those flannel sheets on the bed tonight, so I will sign off and get it done. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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ElizaH Member 
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Dear Barney It's a waste of energy feeling guilty about hoarding dirty dishes until you run out oc clean spoons or plates. It is much more comfortale to call it a 'deliberate water conservation measure'. I do. All the Best ElizaH |
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BARNEY Moderator
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ElizaH, I'm with you, do the dishes when they run out and then try to stick with paper as long as possible. Rest is what we need while on MP! HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 305, 11/02/05, PHASE 3, DAY 5, CYCLE 3/Z/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMBO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Having off/on hip pain... muscles in leg between knee and hip feel like some one beat on them for a week....knee also hurts. Eyes seem to be dryer than usual lately....have not had a frost here and I believe it is the pollens that have not yet been killed. Very tired tonight...had to be on the run all day taking parents to therapy etc. Ready to go to bed...provided hip and leg muscles will not keep me up. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 306, 11/3/05, PHASE 3, DAY 6, CYCLE 3/C/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, 6 TYLENOL, 1 PAIN PILL, 40MG BENICAR EXTRA, 50MG MINO EXTRA, TENS UNIT, HOT SOX, NOT TOLERABLE CAN'T TAKE IT ANYMORE, AM CONSIDERING AN MP HOLIDAY. HERX TOOOOO BAD. BARNEY |
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Aussie Barb Research Team
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Barney Check you are not eating anything D.. Suggest mino 25mg Q6H, Benicar 20mg Q2H, pain pills, warmth to the area.. hold off other abx till stable.. write all down to help keep track, set alarms to remind.. let us know if we can help you further.. Barb ... |
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BARNEY Moderator
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DAY 307, 11/04/05, PHASE 3, DAY 7, CYCLE 3/C/Z, BENICAR 20MG/Q2HRS(OVER NIGHT TO STOP HERX), BENICAR 40MG/MIDNIGHT (TONITE NOT LAST NIGHT), 100MG MINO/Z/NO C, 3 TYLENOL, 1 PAIN PILL, (MINO, 25MG/Q6HS OVERNIGHT TO STOP HERX), 1 ACIDOP, FINALLY TOLERABLE Has been a rough cycle this time, took mino 25mg/q6hrs and 20mg benicar q2hrs from last evening to this evening. Am changing what I am doing. Going back to Z+Mino since I had little herx from it the first time. Feel like I need to see if I missed something the first go around. Leg is better. Had forgotten that I had been thru physical therapy and massage therapy 2 times before for this leg (that hates me). This last 3 abx combo brought back all the painful memories and I want them to go away so thus my change. That's the beauty of MP, change it around to suit the individual. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 308, 11/05/05, PHASE 3, DAY 8, CYCLE 3/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Still know hip/leg are there....but they are very tolerable now. A little nasuea today. Going to stay at this level this week as all family is coming in for a week's visit and I do not want to be herxing bad when they get here. No appts this week so I do not have to go out in the direct sunlight other than picking up my daughter at the airport. Hoping it is cloudy that day. The bad herx this week sure reminded me of how bad my right leg has been and has showed it's ugly head several times....so easy to forget all the problems we have during our illness when they are not troublesome for a while. Out of sight, out of mind. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 309, 11/06/05, DAY 9, PHASE 3, CYCLE 3/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, MINO 100MG, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Didn't feel well most of day....not bad....just didn't feel good....don't know how to explain it. Been feeling some bronchial tightning the last few days....don't give it too much thought cause it comes and goes...so forgot to post that. Still know hip is there....but it is okay at tolerable level....still need to kill bugs there but feel it is going to be a real hard time when I go back to my previous abx mix. I did not post last night because....I fell asleep on the couch watching an old/but very enjoyable Jimmy Stewart movie....got up and went straight to bed. Will try to post this week....but family will be here for 1 week starting tomorrow....this should be interesting....probably more light exposure as they probably will want blinds open....hope not....may have to spend more time in my cave (bedroom). HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 310, 11/7/05, PHASE 3, DAY 10, CYCLE 3/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Today was okay day..... no real herx that I can think of.... Have a new idea of healing....My wedding ring used to turn my finger and it is not cheap...but since I have been on MP....that has not happened. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 311, 11/7/05, PHASE 3, DAY 1, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO + Z, 1 ACIDOP., 3 TYLENOL, 1 PAIN PILL, 1 ASPIRIN, 25MG EXTRA MINO, 20MG EXTRA BENICAR, ALL TOLERABLE Leg/hip pain woke me in the night...had to get up and take Tylenol...was up for about 2 hrs....back to sleep till 9am....up and on the go all day as family is arriving...had to pick my daughter at airport...still had the pain and had by now taken 1 pain pill/aspirin....leg still hurting...feels like muscle was overexercised and wants to go into a muscle cramp...finally about 10pm tonite...leg calmed down... I took 25mg extra mino and 20mg extra Benicar....also had the idea that may I needed to take next abx dose to calm all down...seems to have worked. Have had more of the bronchial restriction and am starting to feel it is associated with the tylenol intake. I will refrain from tylenol to see if that is causing it. Had some 'gut' herx where it feels like someone is tying knots in intestines on right side. This is the second time this week. Left eye felt dry, itchy and possibly swollen just a little....it was rainy today but wore my outside Noir despite the fact they were too dark...it seems like my eyes are forced to strain to see when this happens...thus eye feels itchy/dry/? Otherwise, not a bad day. Two of my cousins (I had not seen for 100 yrs) came by and of course we are now all in our 60's but they were telling me that my other cousin has sarcoidosis. The one cousin is a retired RN and she knew that sarc kills...I was amazed that she realized it. She even asked me how I lived so long with it. Shoulders are getting tired of typing...so will sign off HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 312, 11/8/05, PHASE 3, DAY 2, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1/25MG MINO EXTRA, 20MG/BENICAR/EXTRA, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE I put all tolerable but it was a close race this evening...other than leg/hip still bothering (not as bad) but enuf (woke me this morning at 8am)....still hurts this evening...it is starting the other leg to hurt cause I am favoring it. Forgot.....skin is still itching...that is tolerable....has been for a while...it is not all the time...but is almost everyday. I really blew it today....the clock in the car has not been set back (don't know how) and I thought when we came out of the hearing aid place that it was later than it was and I walked right out without my glasses and it was an hour before sun down.....boy, am I paying for that mistake....pulled on hat and got on gloves and glasses immediately but got some exposure....ONLY repreve is that it was very/extremely cloudy and no bright sun...but....sun anyway....darn.....stupid move.Paying the price now.....eyes feel like I have been crying all day....had neck feel like restricted blood flow to brain (like when you get a migraine), but did not get migrane....had achey head. Even in Phase 3....you can not go out in the sun....by mistake or on purpose. Took 25mg extra Mino, pain pill, 20mg extra Benicar and things are feeling somewhat better. Hope I sleep tonight. I also took no Tylenol today and had no bronhical restriction today at all. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 313, 11/10/05, PHASE 3, DAY 3, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100mg mino, 25MG EXTRA MINO,1 ACIDOP, 2 PAIN PILLS, ALL TOLERABLE Was up and down last night from leg pain and Z insomnia.....getting really sleepy...need to go to bed after shopping for some 'stuff' and groceries...and tea that I can possibly drink without getting an upset stomach...after I got home throat feels a little sore...not sure why. Took the pain pills to help alleviate leg pain plus 25mg mino. Seemed to really help. Daughter suggested a pillow between legs to help hold hip in place, seemed to help pain when I finally was able to go to sleep at 4am until 9am....put hot sox on leg. Finally managing the herx I believe...but was painful walking on the cement in the store(s) tonight. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 314, 11/11/05, PHASE 3, DAY 4, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX EXCEPT 25MG MINO, PAIN PILL (1), 1 ACIDOP, ALL TOLERABLE My leg is still hurting....not as bad...but still lets me know it is there and bugging me. Been a wild day today....my daughter got to meet her biological grandmother for the first time....what a day....I went with her and we went after sundown...she was very nice and gave her a picture of her dad (he's deceased). I have to admit that was a little stress for me...she had never met me and did not know my daughter was her granddaughter. Well...I'm very tired cause it is very late and I'm going to bed. Good night and HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 315, 11/12/05, PHASE 3, DAY 5, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE 1 pain pill for headache that was slight.....leg still herxing but is tolerable....I think it will be around until the very end of MP. Everything seems to be going okay otherwise.... Getting tired and need to go to bed...hate to cause alarm will go off at midnight (next pill) and afraid I will not be able to go back to sleep. Biggggg family dinner is tomorrow. Looking forward to it...but also will be glad when it is overwith....if you all know what I mean. First time in years....all 5 of us 'kids' (and families) will be home at once. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 316, 11/13/05, PHASE 3, DAY 6, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 25MG EXTRA MINO X 2, 1 pain pill, 1 ACIDOP, LOTS OF PAIN/ALMOST NOT TOLERABLE Really bad back pain....about middle....took pain pill and tylenol....pain never quit until the brain kicked in to remember to take 25mg mino....relief at last....then here it came again in the afternoon...this time brain worked....took 25mg mino again...relief again. Big party over....was really nice....37 people came and ate lunch...had Thanksgiving Dinner early....no body argued...that was good....glad it's over.....everyone goes home tomorrow by plane...all the rest driving are already home. DAY 317, 11/14/05, PHASE 3, DAY 7, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 ACIDOP, 25MG MINO EXTRA, ALL TOLERABLE Good day....started into herx so took 25mg mino.....bingo....it ended. Went and took care of some errands....it rained and clouded up good so that was a real help but still covered and wore Noirs. Played dominoes with dad, stepmom, and daughter....was unstressing. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 318, 11/15/05, PHASE 3, DAY 8, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 25MG EXTRA MINO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Could not go to sleep last night....finally went to bed at 2 am....and still layed there for quite a while....I just love Z....it gives good insomnia (haha)....it really does. Got enuf sleep to drive my daughter to the airport and the weather mostly cooperated...rained a lot...but you might know that darn sun came out and did it's thing. Parents went with me and we stopped for dinner on the way back. We are now waiting out tornadoes that are trying to come our way...other MPers have been praying for our safety and wish to thank you all....they think the storms are breaking up...but no promise...some really loud thunder and lots of strong wind...have half of the front porch furniture in the living room right now so it won't blow away. I have decided that part of my leg problem is that darn Chevy Malibu that I am driving here at dad's. Chevy just does not make good seats. Pain pill for leg ache...which had calmed somewhat since my daughter did most of the driving while she was here. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 319, 11/16/05, PHASE 3, DAY 9, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Leg still lets me know that it is here...but the shoes I have been wearing are aggrevating my leg I believe. They have an arch and I have none so the two are not getting along. Will change shoes to see if that helps at all. Otherwise, herx is little right now. HANG IN THERE, WE WILL MAKE IT!!! BARNEY DAY 320, 11/17/05, PHASE 3, DAY 10, CYCLE 4/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Different shoes with no arch did make a tremendous difference and leg was a lot better today. Herx very little today. HANG IN THERE, WE WILL MAKE IT!!!!BARNEY |
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BARNEY Moderator
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DAY 321, 11/18/05, PHASE 3, DAY 1, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, ABX COMBO, NO ACIDOP, 3 TYLENOL (BEDTIME), NO PAIN PILLS, ALL TOLERABLE The muscles in my leg(s) must be full of bacteria....it has been at least 3 weeks now that they have not really quit except for 1/2 days that were pretty good. Description....if you have ever had a charliehorse....it is the pain just before it goes into a charliehorse. It has now moved down to my calf muscle also. I stayed at the same level of Z for the 3rd time as is evident it is still killing bugs at this dosage. Barely tolerable but is tolerable. Also will take extra mino which helps for a period of time. Went out last night and bought an electric blanket....first night of sleep like a baby in ages...wish I would have bought it sooner. Put it on a low heat...took 3 tylenol....got under the covers and could not even stay awake long enough to post....so here it is today. Still hurting and am going to take 25mg mino this afternoon and take some tylenol.....maybe another nap. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!!BARNEY |
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BARNEY Moderator
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DAY 322, 11/19/05, PHASE 3, DAY 2, CYCLE 5/Z, BENICAR 20MG/3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 100mg mino, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE I have always tried to post nightly.....but lately I have been lazy and have been posting every other day with 2 posts at a time....had I done what I should have I would not have made this error in meds. Took my ABX combo on the 18th and then messed up and took 100mg mino on the 19th when I should have posted...now my meds are messed up and I have to fix it...so I will learn to post...that way I catch my mistakes...cause I always read the last post at the top. SO........ HERE IS............ DAY 323, 11/20/05, PHASE 3, DAY 3, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, (EXTRA) 25MG MINO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Stepmom put on Estelader perfume on and I found out there is still some chemical sensitivity left in my body. I now have a headache and an upset stomach. Stress is a little more this week than I had expected.... Leg is still giving me problems....wish it would go away for a while or end completely....really tired of this pain from it. Guess that is it for tonight....need to fix dinner. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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jrfoutin Research Team
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Barney, Your chemical sensitivity reminded me of my "Pitiful Pearl" doll that I wanted so much but the plastic just gave me a headache as a child and then one spring after first son was born that lilacs drove me nuts. I didn't think I had any sensitivities until others mentioned it. They were just isolated incidents before. Hope leg bug killing finishes up soon for you.--JRFoutin |
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BARNEY Moderator
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Thanks Janet, Before MP, I used to watch for the lilacs, on the corner of the street where my friend lived, to die off so I knew I could breathe again. There is a lot of scented candles (never lit), popporui, and other things around this house, that in the past, would not have allowed me to be in this house 5 minutes....but thanks to Trevor (MP) I can be here....but I already told my stepmom she needed to refrain from that perfume in the future....I have had a headache all evening and upset stomach. Since MP very little bothers me now. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 324, 11/21/05, PHASE 3, DAY 4, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, 3 TYLENOL/BEDTIME, 1 ACIDOP, ALL TOLERABLE Leg has been better today...a little pain at hip joint...went to 3 stores tonight...will probably pay for all that walking....hope I can go to sleep with the help of the tylenol. Took a little nap today...sitting straight up....I can go to sleep anywhere in any position. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY Last edited on Tue Nov 22nd, 2005 07:36 by BARNEY |
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BARNEY Moderator
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DAY 325, 11/22/05, PHASE 3, DAY 5, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, ALL TOLERABLE Been the best day in a long time... the leg actually is almost well.... unless I step up first with right leg. Maybe that old bacteria is killing off...I certainly hope so. Otherwise good day....need more of these. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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BARNEY Moderator
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Aunt Diana Moderator 
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And a Happy Thanksgiving to you.....I'm glad to hear you had a good day....I'm sure these will become more frequent. |
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BARNEY Moderator
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DAY 326, 11/23/05, PHASE 3, DAY 6, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100 MG MINO, NO PAIN PILLS, ALL TOLERABLE Other than when I get up from a sitting position (for any extended time), I don't have any leg pain. When I arise it takes a second to start walking. Not as bad as it was in the past 4 cycles. Actually I can forget about the leg problem for a little bit. Pain goes away as soon as I start walking. Snowed here today and I do not drive on snow, so here I sit. We're going to stepsister's for another Thanksgiving Dinner so we made up a few goodies. None of which I can eat except the ham which I refuse to put brown sugar on. However, I will put crushed pineapple in it's own juice. Have a great day tomorrow and.... HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 327, 11/24/05, PHASE 3, DAY 7, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Went to stepsister's for Thanksgiving dinner....spent entire day there until after dark....of all the food on the table....there were 4 items I could safely eat...turkey, ham (I baked with only pineapple in it's own juice, no brown sugar)....toss salad (which I took for myself) and green beans. It was delicious and I enjoyed it...but watched what I ate. Came home exhausted and stayed up until 130am (stupid) cause I knew I was going shopping at 5am (also stupid...but in the dark). Got some gifts that my parents wanted to give and got myself a digital camera on sale at Radio Shack....(cheap)...tired of paying 8/10 dollars a roll for film development. Legs still catching me when I get up from a sitting position but goes away after I start walking. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 328, 11/25/05, PHASE 3, DAY 8, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Got up at 5am to go shopping (what an idiot)....got home by 715am before sun came up....went back to bed until noon....got up and took stepmom to hair appt at mall....stayed and shopped with her...got home at 5pm....starved...ate dinner....rested....got ready and went to funeral home....my uncle passed away....went to represent the entire family...would not have gone if it had not been for my cousins who I dearly love and they have been here to visit me and talked with me on the phone often....and about 20 of us went to Wendy's afterwards for a little food and drink. Made one major error today....when I got stupid and walked out of the mall without covering up, eyes included....got to the car before I realized what I did....where was my brain....got it all on quickly but the damage was done....thank God it was the day for the mino....head/eyes felt really rough...so I took my 100mg mino and within an hour or so...things were calming down. If it had not been the day for mino...I would have taken 25mg mino just to calm the head/eye thing down. My legs calmed down so much starting the day after I had purchased an electric blanket...it is amazing how well that helped....there is something to keeping warm. It was 1 degree this am when I was shopping and my lungs hurt so bad when I walked into Walmart and I thought I was going to have to go home...but parked closer to the buildings making it possible for me to finish....going to sleep in until at least 10am tomorrow...I decided I deserve it and need it. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 329, 11/26/05, PHASE 3, DAY 9, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40/MIDNIGHT, 25MG (EXTRA) MINO, NO ABX COMBO, NO PAIN PILLS, ALL TOLERABLE Had to take parents to wedding of stepmom's brother. It was beautiful and the day was cloudy (which helped a lot). Her brother is a very sweet man and married a sweet lady. I came home and laid down at 7pm...took a nap and decided it felt pretty good...so just stayed there and am only up because a phone call woke me and I need to go to the bathroom...then decided I need to eat a little and put my post on. Took the 25mg extra mino because of the stupid trick I did yesterday...sinuses and eyes bothering me...will teach me to forget to cover up. Tooooo much activity over this holiday weekend and it takes a toll...so therefore I am taking my own advice as to rest, rest, rest. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 330, 11/27/05, PHASE 3, DAY 10, CYCLE 5/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, ABX COMBO, 2 ACIDOP, 3 TYLENOL, ALL TOLERABLE Ramped up combo, since 2 doses/1st cycle, and 3 doses/2nd cycle and herx had calmed down to next to nothing. Hope I do not regret it. Maybe it is smart to stay with cycle even when there is no herx and get all those bugs at that level killed for sure...I don't know....we will see if I live to regret. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 331, 11/28/05, PHASE 3, DAY 1, CYCLE 6/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 3 TYLENOL, 1 PAIN PILL, 25MG EXTRA MINO, ALL TOLERABLE Okay...here we go...about 2 weeks ago I noticed but did not think too much about it until I finally realized that these 3 spots (2 on face, 1 on back of hand) are lesions. I guess I am going to have to go back thru the skin sarc to kill the bugs. The one in my left eyebrow itches, the one on the right side above my lip does not, and the one on my hand does not itch. The only flaky looking one is in the eyebrow. All is well, I expect them to go away just as they came. No sweat. My rib (that I cracked in the 80's) gives me occassion to know that it was injured when I am herxing sometimes...which it has this week. Also, where my (r) kidney and (r) ovary were removed feel like they are hurting. That too will heal (I am sure). Just need to kill off the bugs. Sinuses have been a little excessive with mucus...not bad...but enough to let you know they used to be a real problem. Even had a sinus headache one day this past week. Didn't give it too much thought...used to be a regular thing. Did take a Zyrtec/3 tylenol and it went away. Don't hardly take Zyrtec at all anymore. Some days my eyes feel some pain when having to go to take parents places when the sun is really bright...may have to add my clipons plus the Noirs back in if they do it one more time. Don't like that pain. My daughter called yesterday saying that Sam's Club had albuterol inhalers for $6.00 each. If I would send her a scrip, she would get some for me. I told her I have not used the nebulizer/or inhaler since I have been on MP. I used to live on them. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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DNStog Moderator
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Way to go Barney, no inhaler since MP! I've had the same experience. By the way, I treat my skin Sarc spots with a bit of 2% K cream which, so far, quiets them. Wishing you well! Donna, still cruising ~~~~ |
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BARNEY Moderator
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Donna, I was really blown away to see skin leisons coming back, they were a part of the beginning of sarc. That's okay, I am sure there won't be any more by the end of MP. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 332, 11/29/05, PHASE 3, DAY 2, CYCLE 6/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, ALL TOLERABLE I have changed my Benicar to 20mg q6hrs and am feeling great. Herx has calmed down tremendously with the legs/hip...still a little stiff....have energy (not a lot, but some)....clearer head (I believe). Pretty good day. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aunt Diana Moderator
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Great news. Sounds like you truly are on your way. It's interesting how symptoms that one totally has forgotten about show their ugly little heads during treatment.....it's almost like unpacking a suitcase....first things in, last things out. |
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BARNEY Moderator
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DAY 333, 11/30/05, PHASE 3, DAY 3, CYCLE 6/Z, BENICAR 20MG Q6HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Had a very busy day today, 2 doc appts for parents, 1 appt at hearing aid place due to sore ears (L on both)....this is hysterically funny....they look alike and they had gotten them switched with each others hearing aids...that's why their ears were sore. Trying to keep ahead of 2 elderly parents is more involved than I ever had any idea. Some days funnier than all get out and some day just as stressful. Legs/hips still a little pain/stiffness on arising and I notice on the days I have to drive their Chevy Malibu (seats uncomfortable), my leg bothers me more. I believe it is the position I have to keep my leg and foot in and the way the seat is made...plus the herx involved. Other than being very tired from all that and the grocery store just in case that bad snow storm hits tomorrow, I am doing okay, but believe I will be in bed by 11pm tonight. Will take 3 tylenol and turn my electric blanket on 4 and hopefully sleep all night. While we were in Bethesda, Meg and Belinda mentioned that they were having problems with new shoes becoming toooo loose on their feet shortly after purchasing them. I am realizing the same problem this month...no matter how good they fit when I buy them...they seem to get to big for me. I wonder if I am losing weight (or swelling) in my feet....sure not losing it anywhere else. Also....got letter from Bethesda NIH people and they still have their heads in the sand...so will answer it even if they did not ask for my reply. They really upset me with their attitudes. HANG IN THERE, WE WILL MAKE IT!!! (EVEN WITHOUT THE NIH) BARNEY |
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BARNEY Moderator
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DAY 334, 12/1/05, PHASE 3, DAY 4, CYCLE 6/Z, BENICAR 20MG Q6HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Did not go anywhere except...stepmom's brother (a very sweet man) came and picked us up this evening and took us out for dinner...steak, salad and green beans...no bread. Was delicious and (he bought, which was great also). I was so worn out from yesterday and still am...as soon as I finish this post, I am going to bed. No new herx to discuss this cycle. Don't know if this is due to the reduction in Benicar or what. Just thankful that herx has calmed as previously was to the point of want to take matters into your own hands (if you get my drift). It was that bad. 300% better now. Just tired not fatigued. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 335, 12/02/05, PHASE 3, DAY 5, CYCLE 6/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, NO PAIN PILLS, 1 ACIDOP, 3 TYLENOL, ALL TOLERABLE Well so much for no herx this cycle.....got up feeling like someone turned on a facuet and let all the energy in my body run out. Not fatigue type just the most extreme tired I have had in a while. Also, have been dizzy today, not turning around toooo fast. Have not had that problem for a long time. Also, Charlie slept with me last night...you know charliehorse. Darn it hurts so bad and it seems like you can not get on your feet fast enough to make it go away. So...I am taking 3 tylenol before I go to bed tonight.Other than this, the day was okay....slept in till almost noon and went back to bed about 1pm and slept until almost 5pm when I got up...cooked and served dinner to parents and sat around the rest of the day and evening. Rest is best when on MP. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY Last edited on Sat Dec 3rd, 2005 05:21 by BARNEY |
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BARNEY Moderator
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DAY 336, 12/03/05, PHASE 3, DAY 6, CYCLE 6/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Leg is on a roll again...darn when are all those bugs going to die off and leave me alone. ..clear up to the hip. Going to go 10 rounds on the stationary bike to release the muscles a little. Those bugs must have went to our hips/legs really bad...seems like a lot of us reporting this problem. Otherwise no herx to speak of.....but will take 3 tylenol for pain for the night so I can get some needed sleep. Last night leg kept waking me when I turned the wrong way. We have ice on the roads and it is supposed to be worse by morning. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Alayne Member in Phase 3 
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Wow Barney, I'm sorry the leg's such a bummer...but I guess you're kicking the heck out of the bugs, eh?! So glad you were able to get a little relief this week, if only for a day, and hope the pain eases up at least a bit! I laughed when you wrote about your parents and their mixed up hearing aids. Reminded me of my thrifty grandmother who was finally convinced (after years of begging her) to get hearing aids. She got only one because she thought two were an extravagance. Then she'd only use it every now and again to save on batteries. Drove everyone nuts! Your parents are so lucky to have you...as are we here on the MP. You're absolutely right...We Will Make It! Cheers@ Alayne |
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BARNEY Moderator
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DAY 337, 12/04/05, PHASE 3, DAY 7, CYCLE 6/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, ALL TOLERABLE Leg was a lot better today. Sat around most of day. Tried to get my room cleaned and the suitcases I am living out of ... rearranged....looks like I will have a lot to send home since they only allow 1 carry on and 1 checked bag. I have 4 + now. I am ready to go home, I miss my own life. Should be soon now. Alayne, my stepmom tells me at least once a week that she only needs 1 hearing aid too...but I have to repeat everything I say to her when she only wears one of them. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 338, 12/05/05, PHASE 3, DAY 8, CYCLE 6/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 PAIN PILL, ALL TOLERABLE Leg/hip pain again...not as bad...but enough for a pain pill for relief. Took Dad to doc for black moles (3) to be removed Friday. With all the problems we Th1 people have I am sure glad I do not have this problem. Well, nothing else I can think of tonight. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 339, 12/06/05, PHASE 3, DAY 9, CYCLE 6/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, 3 TYLENOL (BEDTIME), ALL TOLERABLE Leg still having its muscle and hip problems....you can actually feel that the foot wants to hurt but only feels 'swollen'. If I could just get the bugs out of that right leg...I think I would feel a lot better...but I am sure this constant pain in the hip/leg...tends to make you feel irritable. No other herx than those....and am feeling quite human as to the Benicar q6hr dosing. I think I like it better. Well, the tylenol has made me really sleepy and it is like 10 degrees here and I have this real desire to get under that electric blanket. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 340, 12/07/05, PHASE 3, DAY 10, CYCLE 6/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 3 TYLENOL (BEDTIME), NO PAIN PILLS, ALL TOLERABLE Well finally...a new and different herx....jaw pain (tmj) and regular jaw bone pain...haven't had that in a while...still there but not bad. Still hip pain...enough to let me know it is there and a little more when arising from seated position. Been okay day...took dad for his mri and should know results tomorrow. My aunt and 2 cousins I have not seen in years came over for Chicken dinner....was enjoyable evening. Tired and sleepy a little earlier, so will sign off and get some rest that I really need to have and will sleep in tomorrow morning. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 341, 12/08/05, PHASE 3, DAY 11, CYCLE 6/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Took pain pill for pain in middle of back....guess I should have taken my next Z but I thought I would take next dose tomorrow. Legs/hip still feeling like they hate me...but not tooo bad today...just letting me know they are there. We got about 5 inches or more in 5 hours....I will sit in the house and watch it melt before I drive on the streets again. ...yes, I am a coward...I got enough to deal with in getting well on MP...don't need an accident. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 342, 12/09/05, PHASE 3, DAY 1, CYCLE 7/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, ABX COMBO, 3 TYLENOL, NO PAIN PILLS, ALL TOLERABLE Did not ramp up, took same dose of Z as last time, trying to be patient and kill bugs before moving on. Got very very sleepy after dinner and fell asleep sitting straight up on the sofa...got up after about an hour and went to bed. Parents got a little worried and came in just before midnight to see if I was okay. I was just very sleepy and very tired. My roommate told me last night that all the plumbing from my well froze up and busted....I told him to drip the water which he did not do so what a mess. He is supposed to be repairing it tomorrow, but the stress of wondering if I will have a home with plumbing is getting to me real bad. Going home soon and will stay there for the next year. Doing okay otherwise. HANG IN THERE, WE WILL GET THERE!!! BARNEY |
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BARNEY Moderator
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DAY 343, 12/10/05, PHASE 3, DAY 2, CYCLE 7/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Since I have been on Benicar 20mg/q6hrs...head has been clearer thinking...but I now have sore spots all over my head...do not know if this is related...or it is coming from stress....we will find out to some degree as roommate got plumbing fixed (I hope)....I have 3 skin leisons...2 on face and one on hand...haven't had those for a while...but they started before I started the Benicar q6hrs. I really don't know what to think...so will just keep track of what's happening and see if we can come to some conclusion. Leg/hip pain is mild and different...so that's a pleasure for a change...actually has not been hurting in bed either...except for tiny nag...which is really bearable. Have had runny nose today....no cold or allergies...just a runny nose. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 344, 12/11/05, PHASE 3, DAY 3, CYCLE 7/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, 100mg mino, 1 PAIN PILL, ALL TOLERABLE Have pain in bridge of nose and almost burning sensation in nasal area....also halfway blurry (r) eye...also something similar to pushing finger into eye but not pain...maybe it feels swollen...not quite sure how to describe it. Was startled awake at 825am to stepmom saying she needed to get dad's thermal underwear from a drawer in the dresser in my 'cave'. Went to help him get ready for church (they decided at last minute) when I was informed that their ride would be here in 15 mins and there was no time for dad to eat, take his meds or neb. I put my foot down to that and had him and her do their meds (his neb) and eat. Didn't care who was late. That started my day with a lot of stress...will be ending soon...am getting them settled in to other care and I am going home. Enough is enough. Since I have been doing Benicar 20mg q6hrs, my sore spots on my head have returned and I have another leison on my check...this now makes 4...not sure if this is herx or if I should increase Benicar. I usually count on everything being a herx and proceed accordingly. I sure am looking forward to going home. HANG IN THERE, WE WILL MAKE IT !!!! BARNEY |
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Foundation Staff .
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Hi Barney, I'll be happy for you to get to your own home. It's obvious that you've been under a lot of stress. Being the only caregiver for two elderly people full-time is too much for a healthy person to handle. You are arranging for their continued care and that will be best for all. You should feel proud of the time and energy that you have devoted to them. Hang in there! You will make it! Meg |
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BARNEY Moderator
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DAY 345, 12/11/05, PHASE 3, DAY 4, CYCLE 7/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE If it isn't one thing, it is another. I'm not really sure what happened but today I took benicar q3hrs cause my head/skull/sinuses/nose bridge hurt really bad. Figured I was herxing...but at my 6pm benicar, I discovered that I had not taken my midnight pill (last night). My phone alarm is programmed for every day....so it had to be that I shut it off and went back to sleep without taking a pill. Since I was hurting so bad, I thought the benicar q6hrs was not working and I went back on benicar q3hrs...now I know that I missed a pill and not sure if I will continue q3hrs. Other than that....I have been so cold today that I have worn a long sleeve shirt and a hooded sweatshirt all day. Even with levis on, the air in the house feels really cold. It was very sunny today...spent as much time in my cave as I could. Called around to the airlines all day to get prepared to go home...looks like since I have toooooo many extras here...it will have to be SW airlines cause they allow 3 carryons that can weigh 50lbs each. Still might have to ship some home another way. Can hardly wait. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 346, 12/13/05, PHASE 3, DAY 5, CYCLE 7/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Well today has been the worst so far, but yet better too. The stress was unreal as I had to tell dad and stepmom we were going to tour the Home they will be moving into and having dinner in the dining room. It is a beautiful place. The dining room had waitresses who served the food. The food was define and included very beautiful and tasty desert. If I need to have this kind of care when I am older, I will go to the Masonic Home here in my home town. The next few days, hopefully will get easier as we get them accepted and moved into the home. I plan to be on a plane no later than Jan 21. My caregiving days are over, I will look out for myself only in the future, something I have never done. Very tired from all the crying today. No herx today that I can think of.Going home, oh that sounds so good. Back to my cave, no more light. I have proceeded with my treatment here and hope to be well in 1 more year. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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DNStog Moderator
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Barney, In the words of an old country music song "Praise the Lord and pass the biscuits, please!" Barney is going home! I know it was not an easy decision for you to put your dad and step mom in an assisted living home, but they will adjust and will probably enjoy it. Now, take it easy getting home. You're gotten so far and you're too valuable to all of us to do otherwise. Hugs, Donna |
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scooker48 Member in Phase 3 
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Barney, You are a number one daughter, having given so much care and help to your Dad and Step Mom. And yes, its probably emotional now but remind yourself that you've done a good job. And your Dad and Step Mom will adjust, although it will take some time. Just now the idea of someone else preparing the food, doing the shopping, cleaning, etc. sounds great. Long ago, in my student days, Greyhound would ship stuff long distance. That might of changed in these "times of terror" but who knows. Please take good care of yourself. Sherry |
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BARNEY Moderator
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DAY 347, 12/14/05, PHASE 3, DAY 6, CYCLE 7/Z, BENICAR 20MG/Q6HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 2 PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Sorry about not posting last night but with all the stress that went on the day before....I was not in any shape to do much of anything. Feeling much better this morning....except I woke to a snow storm...this too will melt.  Just when I thought all was going well...parents awoke with problems. I did not however....I am feeling pretty good today and rested...went to bed at midnight and arose at 910am. Yesterday...was a funny (burny type) neck ache...middle of back ache...horrible achey head and felt as tho I was going to pass out for about 4 hrs (2pm till 6 or 7). Had fixed dinner...ate...and sat down the rest of the evening. PLEASE.....MPers....learn from my mistakes.....stress, no rest and MP do not mix. You need a stress free envioronment, lots of rest, no light exposure and take good care of you. Going home soon....................hooooooooooooooooooooooray!!! HANG IN THERE, WE WILL MAKE IT!!! BARNEY Last edited on Thu Dec 15th, 2005 15:58 by BARNEY |
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BARNEY Moderator
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DAY 348, 12/15/05, PHASE 3, DAY 7, CYCLE 7/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Neck pain tried to return...but knocked it out with 1 pain pill...been working on papers for assisted living for parents and eyes are worn out but not hurting. Still have 4 skin leisons...head is slowing down again on being sore (lymph nodes) since returning to Benicar 20mg/q3hrs. Seem to be getting very sleepy earlier than usual...so will be going to bed now. Dad had a rough day and that made me work a little more than usual...so guess I need the sleep and the rest. Hope I do not live to regret this remark................leg/hip pain is going great....down to next to non existent. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 349, 12/16/05, PHASE 3, DAY 8, CYCLE 7/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILL, 1 ACIDOP, ALL TOLERABLE Well mental hospital here I come............got all the 10 pages of paperwork done for dad and stepmom to go into assisted living and they come out and tell us they do not have enough income..................just find me a lake to go jump in..........then they come back and said it will be possible after all if just one person passes away or leaves the facilities....then they can help with financial assistance. Other places are just as high or higher...........so here I am with my eyeballs ready to come out of my head... filling out another 10 pages of paperwork for the last 5 years. So we are on HOLD until who knows when but I am determined to still be out of here in January. Believe me............don't get old. Finish MP so that you are well and can care for yourself until you pass away. Besides being tired, having an upset stomach and wanting to sleep all day tomorrow I am fine. At least no bad herx today. It is unbelievable that Christmas is in 1 week. I have not bought one thing and don't plan tooo. My money goes for MP meds/food. Got to get well....that is the goal of my life. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 350, 12/17/05, PHASE 3, DAY 9, CYCLE 7/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 2 PAIN PILLS, 3 TYLENOL, 1 ACIDOP, (BARELY) TOLERABLE Not a bit well today....every bone in my face hurts....my head hurts....my eyes hurt(feel like I cried all day)....and then just a few minutes ago...the nausea set in. Hope I am not coming down with a bug....got the beginnings of a sore throat. Took mino about 9pm and seemed to intensify the herx. During day 2 pain pills, 3 Tylenol at bedtime. Well, I am going to bed and see if I can sleep. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 351, 12/18/05, PHASE 3, DAY 10, CYCLE 7/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 25MG EXTRA MINO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Got up feeling nauseous and neck bothering me (like it was inflamed). Took acidop....settled that.....took pain pill.....didn't touch neck pain....so took 25mg mino....and the rest of the day was great. Getting really sleepy and am ready to get some zzzzzzzzzz's. Finally a calm day....what a treat. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 352, 12/19/05, PHASE 3, DAY 1, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, ABX COMBO, 2 PAIN PILLS, 1 ACIDOP, ALL TOLERABLE So much for the calm day...I was in bed sound asleep when I head a crash in the living room (130am) and my stepmom had fallen....made sure she had not hit her head and was not bleeding...got her into bed....went back to myself...could feel myself shaking inside...actually went back to sleep. Slept 7 hrs...enough for me....spent morning discovering that they could not go into the assisted living I had been working so hard on...so started calling other places....determined to go home by the end of January. Then Dad fell tonite..claims he did not get hurt...but I sure had a stress headache. Finally took my meds and pain pills and got it stopped. Ramped up the last dose of 2nd abx tonight. One or two cycles at this dose and I will be ready to start next abx. Muscles/legs/hips doing a whole lot better, finally. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 353, 12/20/05, PHASE 3, DAY 2, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Success at last.....I am going home pretty soon....I found the most awesome assisted living for my parents and in their price range...it sure pays to pray. Been a real break in stress. Actually not much in the way of herx today. It was 3 degrees when I went looking at assisted living. Wow will I be glad to see NM. Good night and HANG IN THERE, WE WILL MAKE IT!!!! |
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BARNEY Moderator
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DAY 354, 12/21/05, PHASE 3, DAY 3, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Jaws hurting...can't seem to get them to snap into place (haha)...but that is the way they feel....have some tmj I think. Need to have paperwork done by tomorrow and maybe I will be on my way home by the first of the year...........hooooooray! Mind is going in circles, with excitement of going home, with all I need to get done to go home. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 355, 12/22/05, PHASE 3, DAY 4, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 25MG EXTRA MINO, NO PAIN PILLS, ALL TOLERABLE Been a strange day....muscles in legs acted like they were going into that really bad herx pain again like I was having in November....so I took 25mg mino....it worked. My stepmom said she could tell I was not feeling well because I kept running my fingers thru my hair....she's right....I do that when I do not feel well....I am so tired and need to sleep for days and I just hate that this weekend is going to be so hectic...but I can go home in January...dive into my cave and stay there until I want to come out. Cheek bones hurting....only enough to be irritating but not bad enough to take more mino. Eyes sorta hurting like I am too tired to read. Been doing a lot of paper work. Well....I will survive. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 356, 12/23/05, PHASE 3, DAY 5, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 25MG EXTRA MINO, EXTRA BENICAR, 1 ACIDOP, 1 PAIN PILL, WAS ALMOST INTOLERABLE. I think I have lost my mind completely.....last night at midnight I forgot to take my 40mg Benicar....I want to explain how that feels....I knew something was wrong...I felt rage and was hurting and feeling really bad...I took extra Benicar and extra Mino trying to get my blockade back. It took most of day until about 8pm tonight. Then I almost forgot my 6pm pill. My brain and that cell phone alarm have got to get together. I could not believe the extent of the rage I felt inside....it would not have mattered who was in my path...I would have bit their head off at the drop of a hat. I had to fight hard to keep my anger from raging on the outside all day long. Did not feel in the am and early pm that I could endur the day and do what I had to do (as little as possible). Trying very hard to keep on schedule from now on. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!!!! BARNEY MERRY CHRISTMAS TO EACH AND EVERYONE ON MP!!! |
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Dr Trevor Marshall Research Team
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Barney, In a few weeks I will have a solution to the "forgot my Benicar" problem. Ot its variant - "I slept too long." Sorry you had to suffer this time, but keep an eye out for our new paper. There will be several new options resulting from the breakthroughs in it. |
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BARNEY Moderator
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DAY 359, 12/26/05, PHASE 3, DAY 8, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE If I have any sanity left by the time my parents are safely in Assisted Living...it will be a miracle. I am so tired from all the dinners and spending days in places that I have light exposure....thank God, however, it did not sunshine....it was foggy and cloudy....the main problem was an 80 yr old woman who smoked (inside the house) like a stanley steamer. I did what I used to do when I went to anyone's house before MP....straight home...get rid of the smoky clothes and take a shower before going to bed. I am going to do one more cycle of Z and will continue on full MP while I travel to my home. Herx's seem to be calming down as I finish Z, muscles are better, hip is better, and legs, in general, are much better. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 360, 12/27/05, PHASE 3, DAY 9, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Was a horrible night with being awoken at 330am and being kicked in the butt by stepmom. She was on a terror kick. Finally got back to bed and slept a little...had to get up for blood tests for both parents and running errands. This too will end soon. Am staying on schedule with Benicar...bones in cheeks and across sinus/nose were sore today. Had head ache and in a lot of need for various cat naps I got in. The herx is better than a month or 6 weeks ago. I have worked my way back thru Z again...hoping to kill all those bacteria before next abx. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 361, 12/28/05, PHASE 3. DAY 10, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE I am going in 6 different directions trying to get everyone settled and me packed and everything going that needs to be done. Departure date is set....Jan 9th...flying first to Nashville spending a few days with family and then on to my cave at the very latest Jan 25. I actually feel like some pressure is off by setting dates. Going to try and get real strict on my eating. Body is puffy and I believe it is because of all the Holiday meals that I have eaten and don't know what is in a lot of the foods. I definitely did not eat anything I knew was bad...like a plate of shrimp (did not touch it), deviled eggs (did not touch) and other things I was sure had Vit d in them, but I am sure there were some things that were wrong but no way to prove it. Hard to eat away from my own home..don't like this feeling...so will get hard about eats. Been staying on Benicar schedule better this week...will take on next cycle but will not ramp up dose...will be same dose as last time...going to make sure I have not gone toooo fast this time. Don't know what abx I will start when I go home, but something different. Things are calmer here today but hectic, going to bed and get some much needed rest. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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BARNEY Moderator
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DAY 362, 12/29/05, PHASE 3, DAY 11, CYCLE 8/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Did not post last night............I was toooooooooo sick to even turn the computer on and type. I ate a sugar free candy bar (Baby Ruth) the night before and had diareah.....did not relate the two until last night...when I knew it would be a while before dinner (dr appt) .... so I ate another one....went to dinner and boy oh boy....did not think I would make it home....not only the diareah but sick to my stomach and all I wanted to do was go to bed and sleep it off. (always my solution to feeling really sick) Did not take my next abx combo....cause I was afraid that I would not be able to keep them down....so I skipped until tonight. Feeling better this morning....so will take my next abx before bed tonight. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 363, 12/30/05, PHASE 3, DAY 1, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, ABX COMBO, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Do not under any circumstances....remove a pill from your pill box and assume it is the right one when there are no lights on. Usually I lay my 6am benicar on the dresser next to my water....no lights required (unless I knock it off)....but last night I was so sick to my stomach from that sf candy bar...that I did not lay one out forgetting that this was my next cycle....I took half of my abx instead of my benicar. Realizing this.....a little later....I took my benicar and all is well but it could have been a catastrophy. SO DO NOT TAKE PILLS IN THE DARK FROM YOUR PILL BOX. Could not figure out why my legs were bothering me a lot until I realized what I had done....immediately took the other half of the abx and the benicar and all was well. With the help of a pain pill all pain left. Had to take stepmom to doc for a virus (which I hope I do not get), but otherwise an okay day. Glad I did not want to sleep in this morning....phone would not quit ringing....so got up. Going to bed now for a good nights sleep. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 364, 12/31/05, PHASE 3, DAY 2, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Having a hard time trying to get a pair of shoes that continue to fit right...seems like my feet are shrinking in size (wish the rest of the body would). Meg and Belinda mentioned the same problem when we were in Bethesda. Is this possible? and is it due to MP? Herx has been pretty tolerable today, moved a few things to parents new apartment. Only 9 more days and I am headed on my way home. Do you see what day this is for me? Tomorrow is my 1 year anniversary on MP. I am so honored to do this and so very happy I am getting well. I read a post that Dr M said we have 'a terminal disease' and that really struck home with me....so MP is going to take that term away from my life. HAPPY NEW YEAR TO ALL FELLOW MPERS AND A BIG THANK YOU TO ALL THE VOLUNTEERS OF MP. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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wytnez Moderator 
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Congratulations on you 1 year anniversary Barney. You are and have been an inspiration to us all. Your *Hang in there we will make it!* has helped me on many days when there was a question about if we would make it. But we have made it thus far. We've come to far to turn back now. Keep up the good work. Happy New Year and Happy MPing.  Saj |
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sunflower Member in Phase 2/3 
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yea barney! just wanted to congratulate you, also, on your 1 yr on MP. what an accomplishment, especially considering all of the added responsibility you have had. you are an inspiration to me in my situation and i'm sure to all of us. your mantra is so great, and i know if we do "hang in there, we will make it" . happy new year, sweetie...sun |
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BARNEY Moderator
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DAY 365*, 1/1/06, PHASE 3, DAY 3, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40 MG/MIDNIGHT, 100MG MINO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE HAPPY ANNIVERSARY TO ME!!!!!!!!!! I finally made it to the 1 year mark and am very proud of that. I have come a long way. I love MP and will complete it no matter what. No herx to really report despite ramping recently. Thanks Sunflower and Wyntez. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!!!! BARNEY Last edited on Mon Jan 2nd, 2006 06:40 by BARNEY |
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BARNEY Moderator
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DAY 366, 1/2/06, PHASE 3, DAY 4, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE This is going to be short and sweet.....I am very tired.....stressful trying to get parents moved and all packed up that they will need immediately until other kids can get them completely moved in. My face is flushed and my eyes look like two ... holes in a snow bank (what we used to say explaining that someones eyes looked really tired). Tired...going to bed. Good night. One week from today and I am on a plane. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 367, 1/3/06, PHASE 3, DAY 5, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Well....nothing is going as planned.....everytime I think I have my day planned to get done....someone shows up and it is blown away. However, today's disruption was very enjoyable.....it was an old friend (fellow Christian friend who has prayed repeatedly with me during the 6 months I have been here). We spent the entire evening together. He even drove me back to parents apt to get their mail I need to mail that I forgot to take to the mail box. The evening was a total stress reliever. I have known this man for many many years. His wife died 1 year after my husband. Had a lot to discuss and to comfort one another from our losses and from our stresses since then. Only widows/widowers will understand these statements. It feels so good not be so stressed. It really is a blessing to feel some peace finally. 6 more days and I am on that plane. Hoooooray!! My leg/hip is a strange situation. One minute hip gives me pain to some degree .....then.........here I go walking and feeling like my legs feel as tho I am only 16 and they feel great. Thinking about doing another cycle of Z. We will see what happens next. Not in any hurry...just want to get well completely. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!!! BARNEY |
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BARNEY Moderator
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DAY 368, 1/4/06, PHASE 3, DAY 6, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG, NO ABX, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Was getting a stiff neck and slight achey head from all the paperwork, stress of getting parents moved and moving boxes for them so....took 1 pain pill....helped and all calmed. No herx other than named above and stress...down to 5 days and then I am on the plane. Got the car loaded and movers come in morning and I am going to bed...am very tired. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY ALL THIS IS COMING TO AN END FOR ME. |
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BARNEY Moderator
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DAY 369, 1/5/06, PHASE 3, DAY 7, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Today was freedom day. Parents are now officially in assisted living and I am home all by myself. It is so quiet and peaceful. It is wonderful. Herx today..........legs were killing me from being on my feet so much helping them get packed up to go. They have calmed down a lot and I am in bed under the electric blanket and I am going to bed. Need to pack, but will probably do it last minute to make sure it is all in the suitcase. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 370, 1/6/06, PHASE 3, DAY 8, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 PAIN PILL, 1 ACIDOP, ALL TOLERABLE Monday is getting so close and I am getting so excited. Parents are loving their new enviroment and I am very happy. Will have 12 restful days at my son's. Legs very tired and hurting.... missed my 9pm pill so trying to deal with the effect of making that mistake. Will take 3 tylenol and go to bed shortly. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!!!!!!!!!!! BARNEY |
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BARNEY Moderator
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DAY 371, 01/07/06, PHASE 3, DAY 9, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG, 100MG MINO, 3 TYLENOL, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE The leg herx is back again. Legs hurt so bad I can hardly walk without them hurting all the time.... actually feels like muscle pain.....in every muscle between my hip and knee. Just took 3 tylenol and going to bed to see if that will help....been on my feet way tooooo much this week. Think I will call the airlines and get a wheel chair when I go home to NM cause I have to change planes in Houston. The gate you get off the plane at is always all the way thru the airport to your next gate. Never fails. Brother is in to help get folks settled in so they will not be unhappy when I leave. All is going very well and they are very happy to be in the assisted living. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!!!!!!!! BARNEY |
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BARNEY Moderator
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DAY 372, 01/08/06, PHASE 3, DAY 10, CYCLE 9/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 ACIDOP., 1 PAIN PILL, 25MG MINO, ALL TOLERABLE Got up and started having leg pain again so took pain pill and 25mg mino....didn't stop right away but finally did. Seems like when I reach day 8/9...I feel that I need to take the next dose instead of waiting....but I never seem to come to the conclusion until it is not the day for mino....you would think I would get it together eventually....who knows maybe my brain will kick in soon....if I still have one. Need to pack and just can't seem to get started....would rather go to sleep....but have to get it done. Dad is taking my leaving sorta hard but hope he will be okay since my brother from Florida is here for a week after I leave....maybe this will make the transition easier. Tomorrow night at this time I will be in Tennessee (if the good Lord's willing and the creek don't rise). Rest is on it's way at last....except for the airport trip. Will leave here about 330pm. Will do my post on my daughter-in-law's computer tomorrow night. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!! BARNEY |
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BARNEY Moderator
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DAY 375, 1/11/06, PHASE 3, DAY 3, CYCLE 10/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Am at my son's house in Tennessee, getting lots of rest and enjoying the time with my daughter-in-law. She has made sure I have the house dark. Some families do not get it but this one does. Have enjoyed the tar out of my grandson (he sat on my lap almost all evening (last night) and he is 24 yrs old). He really missed me. My other grandson and son just came in tonight and we are all going to bed soon, so will enjoy them tomorrow. I am getting much needed rest. Really had to search the area for acidophililus. You will not believe this, but I went to NOW brand products and searched their site store finder and there was a dentist in the area that had it. Got 60 tabs for $9. Never would have thought of a dentist. Took next dose of Z the night I got here (did not increase, same amt as last time). Doing well, no problems. Sleeping well. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!!!!! BARNEY |
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BARNEY Moderator
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DAY 379, 1/15/06, PHASE 3, DAY 7, CYCLE 10/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Doing okay, kids and grandkids real considerate of diet and keeping me out of the light. Went to casino last night after dark, of course, you know the odds are against the customer. (only lost $25.00). Could not afford that, kids gave me a little cash to gamble with. This will be my last time. I feel very uncomfortable giving money away when it so hard to come by. Really do not care for the enviroment there either. Feeling good, except tired. No as bad as I thought it would be after 6 months of hard hard work. Guess the nervous energy is still with me until I am totally home. One more week and 2 planes later and I will be in my own recliner and house. This cycle is not near as painful and the muscles are actually calming down. Not sure what I will do next. Maybe one more cycle of same dose to make sure. This will only be 100 days and according to MP, I should be on this abx a lot longer. We will see. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!BARNEY |
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Aussie Barb Research Team
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Hi Barney Good to see you.. take care.. have fun re abx.. there is no time limit to any of the abx.. follow what your herx tells you.. all best, be safe, Barb ..... |
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BARNEY Moderator
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DAY 380, 1/16/06, PHASE 3, DAY 8, CYCLE 10/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE All well tonight, no herx to speak of at present dosage. Will do next dose tomorrow at same amount as last 2 doses, just to be sure bugs are killed...dead. Am anxious to see my dog. I have really missed her. I also miss my home, as much as it is nice to visit, home is where the heart is and where you feel most comfortable. HANG IN THERE, WE WILL MAKE IT!!!!!!!!! BARNEY |
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BARNEY Moderator
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DAY 385, 1/21/06, PHASE 3, DAY 4, CYCLE 11/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE This will be my last post from Tennessee, I leave and arrive home tomorrow. Going to be a long day...starting at 7am riding for 3 hrs to airport and then 2 planes, 1 transfer at Houston...after arriving in El Paso, it will be a 2 hr ride home (after dark). Supposed to be cloudy until somewhere between Houston and El Paso. Trying to avoid the sunlight from those plane windows is hard...but will manage. Doing up laundry to go home so that I can just collapse and rest when I get there...not even going to unpack right away. Am really pleased with this cycle...no herx other than tired and sleepy but think that is more from the previous 6 months with next to no rest. Don't know what I will do next...but will leave that decision to after I rest and can think more clearly. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!!!!!!BARNEY |
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BARNEY Moderator
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DAY 390, 1/26/06, PHASE 3, DAY 8, CYCLE 11/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE HOME AT LAST!!!!! But oh the mess I have to clean up and take care of. Very disappointed in the care my house received. Could not find a water container outside for my dog, despite the fact she looked good....wish I could say the same for my house. Oh....well.....1 day at a time. Soap and water works wonders. Got a lot of plumbing to do as soon as I am rested. Legs bothered me from the trip and of course I did not have brains enough to take my tylenol before I went to bed. You would think at my age...you could get your act together. Hello everyone and thanks for all of the kind pm's I received to keep me hanging in there as I went thru my own version of the "Vietnam War". To all of you who served during that time.....THANKS.......I meant no disregard to you by my remark. Have had a little nose bleed since arriving home....to be expected....from the humidity to the desert and high altitude always does that. All well now...but can't seem to get caught up on my sleep. Everytime I sit down I go to sleep. Will meet a dear friend from out of town after dark......for dinner. She is moving here.....that will be great. Take good care of yourself and........ HANG IN THERE, WE WILL MAKE IT!!!!!!!!BARNEY |
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BARNEY Moderator
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DAY 391, 1/27/06, PHASE 3, DAY 9, CYCLE 11/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, NO ACIDOP (I FORGOT IT), 1 PAIN PILL, ALL TOLERABLE Was tooooo tired to post last night. Got all the dishes rewashed and cupboards cleaned up after vistors (mice). Did all of this slowly (in the dishwasher....3 loads). Would go back and try to catnap in the recliner but body did not like me yesterday at all....told me how tired it was but would not let me go to sleep.....dreamed all night and feel like I really lived all those dreams, including the running I was doing in them. I cannot run...if I want to breathe. Will rest today....movies....tv....internet, etc. I hate that tired feeling when you wish all you could do is sleep and you cannot go to sleep for love nor money. I need to make a decision on what abx I am going to go to next. It is almost time to start another. Having a battle with sugar levels again or still (up and down) all the time, hoping that means MP is trying to win the battle. Am very strict with diet right now....really had to talk to my self to do that. Have a beef roast in the slow cooker with onions, garlic and salt and pepper. It will be so tender and good and I can snack on that. Had a very lousy diet while gone...really hard to take care of yourself when you are at someone else's house. BUT....I am home and now we are back in the bat cave and eating properly. Will see how this goes with the sugar. Very much cave dwelling. HANG IN THERE, WE WILL MAKE IT!!!!!!! BARNEY |
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Aussie Barb Research Team
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Hi Barney Welcome Home.. let us know if you have any questions. take care. all best, Barb .... |
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Foundation Staff .
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Barney, It's good to know that you are home where you can take care of yourself properly. You won't regret the time you spend taking care of your stepdad and his wife but now it's time to put yourself first. I look forward to reading of your progress. Best, Meg |
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BARNEY Moderator
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DAY 394, 01/30/06, PHASE 3, DAY 2, CYCLE 12/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Extremely fatigued (have been since I returned home)....figure that will last for a while. Sleepy all the time....can hardly hold my eyes open all day....even naps/nighttime sleep are not sufficient nor are they good...dreaming horrible dreams all night.....waking a lot.....no matter what time I go to bed....naps extremely short....very tired of trying to sleep...so disappointing. Otherwise...ok. Been feeling like calf muscles could get into a charliehorse if I stretched them any at all. Not exercising at all...never have really since being on MP. Have taken about 10 lbs off since I left dad's....sugar is all over the place in readings....one time its good and the next time it is not....having extremely small meals...not hungry much....nothing sounds good....don't have energy to get real fancy with meals...don't even want to cook or eat especially...but don't worry...am eating properly to ensure health is doing ok. Have to go to voting school tomorrow at 130pm and then in evening have a dinner date with friend. Too tired to go but feel it will help to get out of the house...all the work that needs done around here is depressing and not getting done very quickly. HANG IN THERE, WE WILL MAKE IT!!!!!!BARNEY |
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BARNEY Moderator
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DAY 395, 01/31/06, PHASE 3, DAY 3, CYCLE 12/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Am posting early....going out to dinner with friend I have not seen for a while. Went to voting school today....wore clipons and noirs and I do not feel as affected from being in the sun. Of course, was completely covered and had my 'sand hat' on that also covers my face (like Chris has). Had levis, sweatshirt also on (the usual). Still having a touch of insomnia while on this cycle which is irritating when you really feel you need to sleep. Eyes are very itchy but it is tooooo warm here for this time of year and am sure it has to do with pollen...will try a Zyrtec (which I rarely take anymore). Can't seem to keep my legs stretched out straight at night...seem to keep them pulled up almost like a fetal position. Sure it has something to do with muscles. Hope that ends soon. Feels good to be cave dwelling again. Helps you to feel better. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Sandy M Member in Phase 3 
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OK Barney, I bite, what is voting school? I can think up answers, but? I watch your journey with great interest. We have a lot in common on the path. I lived in Belen, NM for one year in 1988, loved it! The state is so beautiful. The people are friendly. Loved finding fossilized sea shells on the top of high mesa's. Really brought home the fact that it used to be under the sea. Beautiful. Glad you are back home, be well. Keep on keeping on, Sandy |
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BARNEY Moderator
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DAY 396, 02/01/06, PHASE 3, DAY 4, CYCLE 12/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 25MG MINO (EXTRA), 1 ACIDOP, 1 PAIN PILL, 3 TYLENOL (BEDTIME), BARELY TOLERABLE If you know what it is like to have insomnia and need to sleep so desperately, then you know how I feel today. Have been having lots of insomnia since I have been back home and lots of crazy dreams. Sandy....voting school (I work at the voting polls at election time and we have to attend class (about an hour) to be sure we do not keep anyone from their right to vote). Thanks for the vote of confidence. Never even got out of my nightgown, took extra mino, hoping to stop this herx, did not work. My throat feels like it has a dry spot deep down that I can not get anything to ease, including hot tea. Maybe it is swelled. Who knows. Hoping that will stop soon cause when I do get to sleep, it makes me cough and wakes me up. Took the tylenol with the hopes it will help me sleep straight thru with no bad dreams. We will see. Even tho I was fully covered, maybe it was too much light exposure...had to go to school and to apply for heating allowance. (even had 2 pair of glasses on also. HANG IN THERE, WE WILL MAKE IT (even tho sometimes I feel like giving up, when I get no sleep, but would never do that)!!!!!!!! BARNEY |
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scooker48 Member in Phase 3
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Barney, I read your post every time you update, and you are often feeling exactly what I am feeling. Insomnia is very tough, and I too have experienced it. But remind yourself its part of killing the bugs, and once they are gone, THEY ARE GONE. And restfull sleep will come, night after night. Its just around the corner. I sleep poorly every other night. I am glad you're back in NM and in your own place. Eventually, someone must pick up on the validity of the MP. Its just a matter of time. Until then, we are proving it by documenting what happens. Hang in there, we'll make it TOGETHER. Sherry |
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Aussie Barb Research Team
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Dear Barney posting the info for you and all reading here. INSOMNIA post I have insomnia and fatigue. What should I do? maybe you want to change to a new combo now..? take care, all best, Barb ... |
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BARNEY Moderator
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DAY 397, 02/02/06, PHASE 3, DAY 5, CYCLE Z/12, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 100MG MINO, 1 ACIDOP, NO PAIN PILLS, PRETTY TOLERABLE Funny throat has turned into an almost constant cough, similar to the type of bug that was plaguing everyone in eastern US while I was back there. Rumors have it that it is had be many here now also. I will attribute my 'insomnia' to not feeling very well and 'insomnia' not helping any one bit. Had to use a sugar free Hall's cough drop (it was for children). I had bought some cough syrup Rob. DM sugar free. The least they could have done was to add some flavor, it almost made me vomit. Looks like since I only have 1 more cough drop (and the cough will not stop) that I am headed back to the store after dark for more. It is just a hack little cough, funny feeling, sometimes, sore type throat. Just a plain nuisance, more than anything. My neck has an occassional flu like ache (not all the time). This is not like any of the preMP feelings. Am now drinking hot peppermint tea and resting. Got some sleep last night, not feeling like any insomnia. I only have the insomnia feeling when I am on my current abx. None of the others seem to do this. Have been pretty dizzy when turning around too fast. I realize I have just come off of 6 months really strenuous duty (taking care of parents in light exposure) and I figured that when I got home the nervous energy I had congered up would go away and I would................C R A S H !!!!!!!!!!!!!!! and I DID....big time!!! So...I knew it was coming and I hate it....but here it is and I have to live with it. Haven't had anything like this (bug) in a long time cause I am careful and do not go around other people much (if I can help it), but my strength was down from caring for parents and I made myself susseptible. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 398, 02/03/06, PHASE 3, DAY 6, CYCLE Z/12, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, NO PAIN PILLS, 1 ACIDOP, LOTS OF HOT LEMONADE, SALT WATER GARGLE, ALL TOLERABLE Did not feel like going to store for more cough drops, so drank hot lemonade to soothe throat to keep from coughing. Only had mucus one time, with entire day of coughing. As long as I did not talk, my cough calmed down....so I tried to stay off the phone and no one is home to talk to. I hope I can sleep tonight without coughing my head off. We will see what happens. I did not sleep today, cough did not allow that....but did not feel the dead tired desire to sleep today and no more feeling of insomnia. Got the dishes done and the silverware and gaget drawer items washed up in the dishwasher since the intrusion of the mice. Have one more cupboard to clean, will wash everything down with vinegar and all food in that cupboard is in small rubbermaid totes or glass jars. Thank God I did that a couple of years ago. Seems peppermint sends them away from cupboards so will be putting peppermint tea bags in each cupboard. Do not have the strength to clean anymore. I sit and then do a little something and then repeat so that I do not wear myself down any more than I am. I made myself a crustless quiche from 6 egg whites, 1/4 cup canola oil (to substitute for the yolks), 1 cup half and half, 1/2 lb. motzarella and pepper jack cheese and Jimmy Dean sausage fried first with onions and then joined with the other items and baked for 45mins. You talk about good and with the relm of my low carb for diabetes (Jimmy Dean has very little 'grease' to it) The old routine of the same stuff makes you think of something else we can eat with some character but not eat anything to intake Vit D. My diet is very limited with MP and diabetes. Gets sort of boring, if you know what I mean. Guess I better go to bed. HANG IN THERE, WE WILL MAKE IT!!!BARNEY |
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Memoking inactive member
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Barney,.. Sounds like a good recipe.. Is it OK to use 1/4 of Canola oil in place of eggs...for other recipes too, such as when making Lasagna or meatloaf>>>or would it have to be egg whites plus canola oil? I'm not sure how to substitute for eggs in certain recipes. Glad you are home safe and sound, and I know you are happy to be back in your own house.>I hope you have continued recovery as soon as you get over this cold or sore throat bug. Good luck with your new environment, I'm sure you are going to be able to relax and take things easy soon...>Mary |
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Aunt Diana Moderator
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Hi Memoking Just read your question about eggs and lasagna. I am a pretty good cook....learned my lasagna recipe over in Italy and I don't use eggs at all. It's not the standard american lasagna recipe but it is delicious. I simply use ground beef, (or even better, sliced grilled italian sausage), mozzarella and a bechamel sauce with the tomato sauce and parmesan cheese. (1/2 tomato sauce-1/2bechamel....you can make the bechamel with cream and whole wheat unfortified flour). I look for organic lasagna pasta made without fortified flour. |
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BARNEY Moderator
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DAY 400, 02/05/06, PHASE 3, DAY 8, CYCLE Z/12, BENICAR 20MG/Q3HRS, BENICAR 40MG/Q3HRS, NO ABX, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE I am absolutely miserable. Trying to sleep off whatever this is, but the coughing wakes me. Mucus has been intense these last 2 days. No matter how much sleep I am getting...still want to sleep even more...hopefully that means the body is healing. Using cough drops, maybe a hot toddy tonight to help the cough so I can sleep the night away. This brings back the memories of how little sleep I used to get from coughing due to asthma. That part has calmed with MP. Due to increase abx on Wednesday, but will wait and see as I have to spend at least 13 hrs working at voting polls on Tuesday. Won't be that hard, just have to be there. I hate to say this but it is a school bond issue and hardly anyone shows....you would think people would be interested in what is happening to their children's schools....but they don't show it in their voting interests. Have been tooooo tired to post and am truly sorry to those who faithfully read my posts. Hang in there, I will get my strength back (I hope). Doing okay with my MP and feel that I will continue to heal. Worries about a grandchild, but trying to put them in God's hands...don't do real good at letting go of those worries and I am sure that it affects my healing also. Mary, you may use an egg white and 1 tsp canola oil in any recipe to replace any whole egg (remember no egg yolks....vit d). The canola oil replaces the egg yolk with no vit d involved. I also do not eat lasanga, anything with flour in it raises my sugar and anything with tomato sauce in it gives me heartburn and also raises my sugar....so I stay clear of that (and those kind of dishes). I must be losing weight cause my rings will not stop turning on my fingers. According to the scales I have taken at least 10 lbs. off since returning. That I am very thankful for. Well, better go back to my chair for a nap... HANG IN THERE, WE WILL MAKE IT!!!!!!! BARNEY ps my dizziness is gone....must have been a herx at the beginning of this cycle. |
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Aussie Barb Research Team
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Barney See FAQ My doctor thinks I have an upper respiratory infection. What should I do? re (Sinus infection, cold, flu, pneumonia, bronchitis) Symptoms of pneumonia, sinus infection, cold, flu, ear infection or bronchitis are often due to Th1 inflammation and the Herxheimer reaction, but if adjusting the MP meds hasnt helped, My Herxheimer reaction is too strong. What should I do? and you need temporary relief of your symptoms such as shortness of breath, nasal congestion, etc, contact your doctor or pharmacist for advice about palliative medications. Any medications that are not on the list of MEDICATIONS TO AVOID WHILE ON THE MARSHALL PROTOCOL are okay to take to relieve intolerable symptoms. or see I need to take a different antibiotic for awhile.What should I do? you can take another abx while continuing MP meds. take care Barney, Barb .... |
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BARNEY Moderator
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Barb, Thanks for the links....looked them over....think I will continue on with what I am doing....I have no fever, no sore throat....just a cough and mucus just started the last 2 days....feel it is a cold.......will continue... Lots of fluids, cough drops/syrup if needed, or maybe a hot toddy to help me not cough and sleep. Could be a herx...also...so will take 25mg mino and see if that makes a difference. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Memoking inactive member
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Barney.. Thanks for the info about substituting for egg yolks, now I will be able to make some of my favorite recipes.. I do read every single one of your posts, as I always find them very informative..I am one of your faithful readers.. I always read every post you write..So thanks for the info.. Mary |
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BARNEY Moderator
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Barb, I will now take mino q12hrs for the next 2 weeks as you suggest. Thank you for your time, I really appreciate all you do for us. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aussie Barb Research Team
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Thanks Barney, Take care and let us know at any time if you have any questions. all best, Barb ... |
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BARNEY Moderator
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Barb, Do I still take my 100mg mino that I usually take qod? in addition to the 25mg q12hrs. Barney |
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Aussie Barb Research Team
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Barney, No you dont. You change your schedule from the herxing schedule ie 100mg QOD to the herx dampening schedule of low dose more frequent mino. ie the dose and schedule that suits you best for holding the herx at a tolerable level for you. using either the 25 mg or 50mg dose, and using the schedule that suits you best up to total maximum recommended dose per day of 100mg when taking Benicar. Barb ... |
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BARNEY Moderator
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Thank you Barb, I am doing 25mg Mino q12hrs, will go up to 50mg mino q12hrs if I feel the 25 is not right for me. Thanks for being there. Feeling better this morning, have had 2 nights without coughing. At this point, I am about to the end of the cycle and feeling pretty much like it is a cold. No lung pain or congestion....just mucus, cough and sinus congestion (to a degree). I have not had a cold in over 10 years....do you suppose my immune system is working again? HANG IN THERE, WE WILL MAKE IT!!!!!!!BARNEY |
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Aussie Barb Research Team
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Barney It is impossible to definitively say exactly what is happening.. the main thing is you are improving and responding to the MP meds.. all best, Barb .... |
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BARNEY Moderator
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Barb, My neck is really aching like it used to....does that mean I need to increase to 50mg mino q12hrs? Barney |
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Aussie Barb Research Team
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Barney If the herx is intolerable it means that you can adjust the medications to however makes it tolerable, within the guidelines. that means to 25mg Q6H or you may wish to try 50mg Q12H. whichever is the more tolerable for you. all best, Barb ... |
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BARNEY Moderator
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DAY 401, 02/06/06, PHASE 3, DAY 9, CYCLE Z/12, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO/Q12HRS, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Am feeling much better, had switched mino to 25mg q12hrs, started having some other herxes so I switched to 50mg q12hrs and will proceed that way for a while. Still have a little coughing (not much) and some mucus. Neck had ached a little today making me feel as tho I needed more than 25mg mino. Got to get to bed, am working at the polls tomorrow and that starts at 6am. Barb, thanks again for the assistance. HANG IN THERE, WE WILL MAKE IT!!!BARNEY |
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BARNEY Moderator
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DAY 403, 02/08/06, PHASE 3, DAY 11, CYCLE Z/12, BENICAR 20MG/3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO Q12HRS (FOR 2 WKS), NO PAIN PILLS, ALL TOLERABLE Made it thru 13 hrs of voting. Seems when you are touching people's money, they tend to show up better to vote. Funny how money affects people that way. Was extremely tired today, (did well yesterday on nervous energy). Could have used a nap yesterday and really napped off and on on all day today. Enjoyed day out, arrived in the dark and left in the dark. We ate all day and I questioned everyone as to what they had put in their home cooked foods (crock pots plugged in gave a wonderful aroma to the polling site). I was able to eat almost everything that was brought in. This is the second election that I had worked with 2 of the other ladies and they remembered what I had to do. Explained it to our new presiding judge. There are no windows in this building. It is wonderful. Next election is in June. Will probably have to go in the light and leave in the light but they all know I can not go outside to check around. I do other things to make up for that. Going to bed and hoping that tomorrow I have more energy....I need to clean my l room and b room. Kitchen is done, clean dishes are done in the dishwashing drying. I wish I could keep that nervous energy I had in Ohio. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Dogster Member in Phase 3
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Hi Barney! Wish you had more energy too but I strongly suspect that "nervous energy" you had up north isnt all that good for your body! Cheers, Dog |
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BARNEY Moderator
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DAY 404, 02/09/06, PHASE 3, DAY 12, CYCLE Z/12, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO/Q12HRS, 2 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Have come to the conclusion that is really not a herx since everyone in this town (almost) has a constant cough, dry spot in throat and is coughing up mucus. Does this mean that my immune system might have started working? Boy, I sure do not look forward to catching everything in town. I felt good today except for my itchy dry eyes. Still a lingering little bit of cough with a lingering little bit of mucus. Had some upset stomach since I switched my mino to 50mg q12hrs and I forgot to take my acidophillus. Otherwise, a pretty good herxless day. Still resting to a big degree. Did go out today to get a couple of necessary items. (fully covered). It was cloudy early morning, sun came out late afternoon. I think the sun likes to chase me. HANG IN THERE, WE WILL MAKE IT!!!!!!!!! BARNEY |
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BARNEY Moderator
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DAY 405, 2/10/06, PHASE 3, DAY 13, CYCLE Z/12, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 50MG MINO/Q12HRS, 2 ACIDOP, NO PAIN PILLS, 3 TYLENOL (BEDTIME), ALL TOLERABLE Did not have the opportunity to post last night so will do that this am....did not sleep well Thursday night (toooo many things on my mind) so last night I took 3 tylenol about 2 hrs before going to bed....slept well. Do not have a lot of strength, but able to get a few (light) things done around the house and outside after dark. That made my mental state a little better....since there is a lot of 'stuff' that needs to be done and I have to work at it slowly so I do not pay the ultimate price (pain). Found a good way to get things done without wearing self out....do a little....rest a little...then repeat...take a nap as often as needed and stop when your body says stop. Before I got these few things done....I had visions of slinging the doors open wide and running out into the sunshine without all my MP coverups and saying no more...I can't do this anymore....but after accomplishing these few things....I got a grip on myself and am not daydreaming like that anymore. When you live alone and no one is taking care of yard work and other necessary items, it makes you crazy. Am okay now. Is unseasonably warm for winter here so am able to spend some quality time outside in the evening after dark....that also helps the mental state...but I do definitely dread this summer...will probably be extremely hot. Need a nap so will go for now. Herx is mild, other than a bit of neck 'tiredness' and needing lots of rest and occassional naps, not bad....need to start a new abx soon. HANG IN THERE, WE WILL MAKE IT!!!!BARNEY |
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BARNEY Moderator
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DAY 407, 2/12/06, PHASE 3, DAY 1, CYCLE Z/B/M/1, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ACIDOP, NO PAIN PILLS, ALL TOLERABLE My next MP adventure begins tonight. I will start the next cycle of Phase 3, am worried but yet excited to embark on this journey. We will see what happens next....I hope it is lots of 'bug killing' without much herx problem. By the time evening comes....I have no desire to go anywhere. A lot of 'old folks' here go to bed when it gets dark...there's not much to do here except rent a movie or go walk around Walmart...legs wear out to quick for the walking and it is toooo easy to spend money on things I do not really need....need to save money for meds since this Prescription Plan is not looking very promising. I plan to get well with/without Medicare. Did little piddly things today and listened to music, got some recipes off internet and cooked some things (for MP diet) and made up some mayonaise (whites only) for MP that I can eat. Made a potato salad with califlower instead of potatoes (delicious). Not been posting regularly cause I wait tooooo late to post and then I am tooo tired and just go to bed...so I thought I should start earlier. Mental attitude good, physical condition..tired but ooookay. HANG IN THERE, WE WILL MAKE IT!!!!!BARNEY |
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BARNEY Moderator
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DAY 408, 2/13/06, PHASE 3, DAY 2, CYCLE Z/B/M/1, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 25MG MINO X 2 TO SLOW HERX, 3 PAIN PILLS TO HELP CONTROL HERX, 2 ACIDOP TO KEEP STOMACH CALMED, TOLERABLE BUT CLOSE TO EDGE This has been an experience and a half....lot of reminder of the years I cried myself to sleep from neck and (some) shoulder pain. Just barely in tolerable range with the extra mino (will take extra benicar if all does not calm to my satisfaction)...tried hot sox...tooo much heat....so tried ice sox ....not sure if that is doing the job. Disappointed was not able to do much around the house from the intensity of the herx....feel almost like I am on speed (like when you take diet pils)...feel like slapping something around....feel like I am moving in fast forward....this is going to be a wild ride. Thanks Belinda for the vote of confidence in our conversation today. You were an inspiration to me (being so far along in MP). Wish more of you who are that far along...would post in the Alumni site to help encourage those of us who follow behind you. Hope I sleep tonight after feeling so wired and in so much pain...mind you not as bad as it used to be before MP (but bad enough). Need a maid, a gardner and a repairman....that would help my mind to slow down (going 100MPH), need to shut it off so I can go to sleep....but they are out of reach (money)...so will have to wait for my health to get even better. Need to go to bed. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!BARNEY |
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BARNEY Moderator
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DAY 409, 2/14/06, PHASE 3, DAY 3, CYCLE Z/B/M/1, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, B/M TODAY, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Much better today until 845pm when I realized (because of muscle pain in calf) that I had forgotten my 6pm Benicar so I just took 40mg then. Will feel fine in a few more minutes. No neck or shoulder pain at all today. Did an experiment today....I think these are the results.....put on a turtle neck, long sleeve top and a flannel short (bulky one) over that....put K cream on face neck and ears....put on hat with 4" brim.....gloves....levis....socks...shoes, etc....went shopping for some much needed items for an MP friend and shipped them off....stopped at friends and then came home and was so tired....I crashed for 3 hrs in chair. So I feel the crash came from the sun exposure. Hat did a good job...K cream must have worked to some degree (no swelling)....but it still sorta burns my face and itches. I have never put anything including soap on my face my entire life and my own sweat burns my face like it is acid so I am sure K cream is hard on it. The lady at the health food store was shocked that I had no mask on and wanted to know what was wrong....I explained my experiment to her and she wished me luck with it. I am still extremely tired but I did go out after dark and rake 6' by 70' of weeds away (not hard) just wore me out but the wind is blowing and I wanted them darned old stickery weeds to blow away. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY |
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BARNEY Moderator
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DAY 410, 02/15/06, PHASE 3, DAY 4, CYCLE Z/B/M/1, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Put on K cream....covered up....hat...gloves and went to doctor. She took blood tests (the normal ones) and we decided to wait for D tests for a later time. She asked if they would make any difference in how I approach MP and I told her not now. I told her I am convinced that it is the best thing that could happen to me. Got part of my MP meds thru Medicare Pres. Plan D....actually got the 120 prescribed for me....what a shock...of course, Walmart was short by 108 and said they would be in by Friday. Don't know the price yet. K cream has my face just burning and itching...will have to do that once in a while...not 2 days in a row. Herx is almost non existent...not even a nap today...altho I am tired and ready for bed. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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BARNEY Moderator
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DAY 411, 2/16/06, PHASE 3, DAY 5, CYCLE Z/B/M/1, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, ABX COMBO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE Been a no herx day, but last night was a miserable, just did not sleep well, off and on type sleep. So I am sleepy tonight (no nap today). Got my blood test results back, a1c is not any better (knew it would not be), most are down somewhat except cholestrol which is up a little but the good chol is up by 5 points. Kidney and liver tests are excellent. HANG IN THERE, WE WILL MAKE IT!!!!!BARNEY |
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BARNEY Moderator
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DAY 412, 2/17/06, PHASE 3, DAY 6, CYCLE Z/B/M/1, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 2 ACIDOP, 1 PAIN PILL, ALL TOLERABLE Had semi-bad headache and mild neck pain, took pain pill and it went away. Other than that...no herx. It has been a sandy-overcast day here with a few sprinkles tonight. It is so dry here, you can't put enough lotion on to help. Need a few good rains or some snow. Not much happening here. HANG IN THERE, WE WILL MAKE IT!!!!!!BARNEY |
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BARNEY Moderator
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DAY 413, 2/18/06, PHASE 3, DAY 7, CYCLE Z/B/M/1, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE Has been an interesting day. Have not had restful sleep for last 3 nights, what I consider restful, so I sate down in the recliner and fell asleep. Other than phone calls, alarms to take pill and eating breakfast, I slept until 330pm. It seemed restful despite the awakenings. I consider this a herx because when I tried to get up to do something much needed around the house, I had no energy to do anything but sit the rest of the day and do next to nothing except talk on the phone and be on the internet a little. Guess my body needed the rest. Today was day 7 and I was so very tired and lacked so much energy that I took my abx combo before the usual midnight. It really helped. Still tired but do not have that feeling that my body will not have enough energy to walk to the bathroom or kitchen. Other than that feeling, all is going well. Very windy here, not cold tho, temps still 57 at this hour (almost midnight), but east clear back the the coast, I understand it is very cold, icy and snowy. Glad I am here. HANG IN THERE, WE WILL MAKE IT!!!BARNEY |
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BARNEY Moderator
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