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kittymin1
Member
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Posted: Tue Jun 7th, 2005 20:07 |
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Moderator's Note: The first 5 posts in this thread are on the topic of Hair Loss and hair pain & Th1. Then begins the Discussion of Stress and Anxiety & Th1 by Members. thank you .. also see Dr Greg Blaney: Psychological Symptoms
..............
Okay, I hadn't thought of this until a neighbor of mine starting losing clumps of hair in the shower and went to the doctor. She now takes Zoloft for too much stress which is 'supposedly' causing the hair loss. This person, too, has a lot of sinus trouble and has some back pain. Probably a th1 inflammation sufferer just like the rest of us.
Behold!! I also have been losing hair in the shower for years. I have plenty of hair to go around, but it doesn't mean I want to lose it all to this disease. I'm thinking
th1 inflammation is the cause. I do not lose clumps, but a small circle of hair, about half the size of my palm. Every day this happens when I wash my hair.
Has any one else seen this as a symptom?
Has any one had improvement with hair loss while on MP?
Thanks and My Best,
Mindy
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Th1 inflammation: lungs, head, skin, spine. Difficulty waking. Effexor, Allegra, BenicarHCT qd, allergy shots discontinued, minimizing Vit. D, NoIRs, Pre-MP.
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Frans
Member in Phase 2
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Posted: Tue Jun 7th, 2005 20:18 |
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Mindy,
There are several persons on MP who are having this problem. Come to think of it, I myself have a little bald spot, the size of a thumbprint that has been bald for ages. The person who does my hair also said that that was probably due to stress, but I like a TH1-explanation better.
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Dr Trevor Marshall
Research Team
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Posted: Tue Jun 7th, 2005 20:30 |
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Mindy, Frans,
Dr Alan Cantwell told me that the CWD bacteria love sweat glands and hair follicles. Hair loss is very common in Th1 disease, it is made even worse by medications such as prednisone.
Take a look at Alan's paper at http://tinyurl.com/9yxxq
..Trevor..
July 3rd 2005 Dr Marshall wrote:
"One of the "moments of healing" for me was one morning in 2002 when I woke up and couldn't feel my hair anymore. Prior to this Liz had to cut my hair, as I was too jumpy at the barber's shop, and couldn't handle the transient pain. But one morning I woke up and realized that I couldn't feel my hair anymore. Well, I could feel it, but it didn't hurt in any way to run my fingers through it, or bend, shape, and mangle it. After being assured that was 'normal,' I settled back to enjoy another of the pleasures I had been missing all my life  "
..Trevor..
see also FeatherRiver Post re "hair pain"
Aussie Barb Hair Pain
Mar 06 hair
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rainbowcatcher
Member in Phase 2/3
| Joined: | Wed Oct 27th, 2004 |
| Location: | United Kingdom |
| Posts: | 432 |
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Posted: Tue Jun 7th, 2005 21:37 |
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I can offer a little knowledge about the 'healthy' amount of hair a 'HEALTHY' individual should lose as a comparison to your experience.
I am a hairdresser of 14 years and have seen A LOT of people who complain about diffuse alopecia and alopecia areata.
It is 'normal' to lose an average of 100 hairs a day. If you wash your hair daily these hairs are removed. If you go a day to several before the next shampoo you should expect there to be more than 100 hairs visible as these could have been shed the day or so before.
Normal hair growth is a continuing cycle which can afford to take a loss of 100 hairs a day.
RainbowcatcherLast edited on Tue Jun 7th, 2005 21:40 by rainbowcatcher
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74yr old(mom) HX:Sarc/lung'85 HTN Tinn skin eruptions.eye pressure systemic burning.Diverticulitis.02/05 25D=7 1,25D=28; 02/06 25D=7 125D=13/ Paracetamol/(Acicdof & cranberry 4/07)diazepam.NoIR & light 6/05|4-6hr Olmetec Aug05| Mino Sept05| 03/06
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Foundation Staff
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Posted: Tue Jun 7th, 2005 21:50 |
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Mindy,
My hairdresser and I have noted that since I've been on the MP, my hair is thicker. I used to lose it in little clumps due to papulonodular scalp lesions.
Best,
Meg
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DaveW
Member
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Posted: Wed Jun 8th, 2005 00:39 |
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I have also seemed to lose hair in fluctuating cycles. Well...actually I haven't lost it. Its in my brush.
I have noticed that there have been periods when my brush takes a lot, and other times much less. I just assumed this was due to fluctuating metabolism and hormones due to the Th1, and changes brought about by the MP. The thinning could never be due to the fact that the men in my family tend to bald some as they get older <sheepish look of denial>.
I think my hair may have initially thinned on the MP, but like Meg, it now seems to be thickening up again.
Does this mean we could say that the MP can make you hairy??? 
Whether the cause is stress or inflammation seems like a moot point. I can't imagine much that could chronically stress the body, organs, brain and glands more than chronic inflammation.
The medical community has blamed a lot of problems on "stress". Been there?
They commonly say that stress causes a host of physical and mental symptoms (or diseases). It seems to be the handy default explanation! They just fail to acknowledge that it is chronic physical disease that often causes the stress in the first place! Is this "convenient retardation"?
They also fail to recognize that the stress causes these problems by dysregulating brain chemicals and hormones.
I have come to agree with blaming "stress" for so many things, with the new understanding that when Th1 disease is involved, it is the inflammation (caused by the CWD) that causes the stress.
Emotional stress alone has been known to cause depression, anxiety, gastrointestinal problems, headaches etc. Remember your first date or first kiss??? Don't lose me now - I'm not finished yet. You can go back to that later! It is probably fair to say that all of these symptoms can result from emotional stress (as well as other types).
I imagine that chronic stress (such as from chronic disease) would probably take a much greater long term toll than the short term acute stress that a healthy person might experience from an emotional encounter, public speaking, a fight with a relative, or going too many hours without sleep (or the many other stressors of life).
I suspect that stress from any cause can act to dysregulate hormones and brain chemicals and cause symptoms. The significant stress from chronic inflammation is just one source (but I suspect it is a major one for those of us with Th1 disease).
Can anybody else relate to describing your disease symptoms as like being under unending heavy stress (even when there are no major external stressors in your life)? This seems to be pretty descriptive for me.
Over the years, I had many Docs dismiss my health problems as just being due to "stress" (causing me no end of frustration). 
If one suggested that all my problems were stress related now, instead of arguing I would say; "YES! I KNOW THEY ARE! .... Now, will you help me get rid of the root cause, via the MP?".
It makes me smile just to envision it. I hope that does not make me too evil? 
Take care (and keep smiling),
- DaveW
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MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
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Tobi
Member
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Posted: Wed Jun 8th, 2005 03:45 |
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Hi Dave,
The way it feels for me is that the body goes in to a stress response quite disproportionate to the stress stimulus. As though the body perceives that a lion has entered the house, when it is only the mailman or a neighbour. The heart beats faster and harder, dizziness ensues, flushing, tingling - all autonomic responses go haywire. I can jump out of my skin if the phone rings. This is how it happens for me. It feels as though there is an excess of adrenaline, which fits Trevor's observations that Th1 patients have an abnormal response to epinephrine. So if the body is always "overresponding" to minor stimuli, and perceiving them as threat, of course the body is constantly under stress. and responses such as hair shedding would be expected. No wonder we're exhausted. No wonder we want to be alone and quiet.Since a lot of these symptoms are also anxiety symptoms doctors can almost be forgiven for diagnosing anxiety- "almost" I said.
I know that a tiny crumb of Ativan reduces the intensity of stress symptoms for me. I'm sure my explanation is an oversimplification, but this feels how my body has functioned fom the start of my CFS.
Tobi
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CFS,Rickettsia Conoori-,HHV6,Ureaplasma(all 3 culture,PCR) 25D 16.4ng/ml,1.25D 26pg/ml.Ratio 1,3 Blood probably NOT frozen Benicar 9/18/04 Mino 100mg 10/18/04 Phase 2 01/26/05
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DaveW
Member
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Posted: Wed Jun 8th, 2005 05:47 |
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Hi Tobi,
I can sure relate! It sounded like you were describing me!
I definitely have high anxiety - I just think it is secondary to the primary problem of CWD inflammation (since it didn't start until years after I had physical symptoms).
Tobi, can you tell me if your anxiety levels have changed any since starting the MP?
I understand that the MP has been effective at reducing at least some degree of depression. I wonder if anyone has had any experience with it also reducing anxiety?
The two are highly related, so I suspect that if it addresses one, it will also address the other. (Here's hoping anyway!)
Regards,
- DaveW
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MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
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Frans
Member in Phase 2
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Posted: Wed Jun 8th, 2005 07:16 |
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Tobi wrote: The way it feels for me is that the body goes in to a stress response quite disproportionate to the stress stimulus. As though the body perceives that a lion has entered the house, when it is only the mailman or a neighbour. The heart beats faster and harder, dizziness ensues, flushing, tingling - all autonomic responses go haywire. I can jump out of my skin if the phone rings. This is how it happens for me. It feels as though there is an excess of adrenaline, which fits Trevor's observations that Th1 patients have an abnormal response to epinephrine.
Tobi,
This is also a very good description of another problem Trevor has pointed out. That the amygdala has gone haywire. The amygdala react first when you encounter a 'stressful' situation. If you would be in immediate danger, like when you are about to crash with your car, the amygdala take over and control your responses, creating a lot of adrenaline in an instant. The same goes for other 'threatening' emotional responses.
I know Trevor has said on this site that a couple of years ago he would react like stung by a bee to some things and that now he doesn't anymore, which is an example of the ammygdala working like they should to me.
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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JudyBeauty
Member in Phase 3
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Posted: Wed Jun 8th, 2005 07:35 |
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I feel just like Tobi and Frans. This anxiety thing is horrible. When I watched the DVD's from the Chicago Conference I thought there is no way I could get up in front of an audience and talk like Reenie and Meg and the rest of those brave souls. I could have attended the conference because I live close by but my anxiety keeps me from doing lots of things. Before the CFS I would have had no problem with getting up in front of people to talk.
I just got a summons for jury duty. Luckily I got out of it. But the idea of talking in front of a judge or a bunch of people sends my heart pounding.
Hopefully I will be able to start the MP again soon.
Judy
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CFS viral onset 1986 1-25D-53,25D-12 1/5 Noir's/D avoid July04/ Beni 3/22/05 40mg q6h Stop Benicar 4/23/05 Restart Beni 8/13/05,Valium
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Tobi
Member
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Posted: Wed Jun 8th, 2005 08:32 |
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I don't have a subjective "feeling of anxiety". However, the slightest challenge - and I mean miniscule -like going to the front door when the bell rings -even when I know it is the gardener whom I've knows for twelve years, throws my body into a state of dysfunction such that my legs become jelly-like, my head buzzes and I have a hard time staying upright - my vision blurs and I virtually collapse. This all sounds very dramatic, but it is exactly what happens. Thus I can do exactly nothing which involves interaction with others, bright lights, noise, arousal of any nature. I haven't been in to a shop in 3 years. Only leave my house for doctor's appointments etc. Can't drive, can't walk unaided, particularly when challenged by stress which used to be "nothing" But, I want to emphasize, I'm NOT anxious. At home where stimulation is minimal, I'm fairly comfortable. Speaking in public - quite impossible. Not that I fear this - I've done it on numerous occasions in my professional llife. It is that my "set point" for a panic response is now way down.My voice becomes choked, I tremble, flush, get dizzy - but this is NOT anxiety of a psychologicla nature. It is normal, healthy, to have a slightly raised autonomic response when speaking in public etc. but our response overshoots and becomes dysfunctional. This is purely physiological. Of course when one is unable to do the simplest thing it is easy to become phobic - realistically so - I KNOW I can't function in a high stimulus environment like a supermarket - so I am certainly realistically phobic about even trying.
Tobi
____________________
CFS,Rickettsia Conoori-,HHV6,Ureaplasma(all 3 culture,PCR) 25D 16.4ng/ml,1.25D 26pg/ml.Ratio 1,3 Blood probably NOT frozen Benicar 9/18/04 Mino 100mg 10/18/04 Phase 2 01/26/05
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Tobi
Member
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Posted: Wed Jun 8th, 2005 09:00 |
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Barb,
Please help us take this topic away from "hair loss". There is probably lots more to say about perceived anxiety and Th1 illnesses.
Tobi
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CFS,Rickettsia Conoori-,HHV6,Ureaplasma(all 3 culture,PCR) 25D 16.4ng/ml,1.25D 26pg/ml.Ratio 1,3 Blood probably NOT frozen Benicar 9/18/04 Mino 100mg 10/18/04 Phase 2 01/26/05
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Frans
Member in Phase 2
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Posted: Wed Jun 8th, 2005 11:43 |
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Tobi,
I am sorry. I was not claiming that something was psychologically wrong.
To say it in Dave's words. The amygala are hardware, psysical. You are right, they create the overreaction.
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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flyer
Member
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| Location: | Dallas, Texas USA |
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Posted: Wed Jun 8th, 2005 15:06 |
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| This would be a great thread for understanding anxiety in th1 illnesses. I just happend upon this thread and I am extatic to find that I am not the only one that feels this anxiety. Just to throw my own experiences out there.... I used to be a fighter pilot for the Marines. So stress was what I thrived on. I loved the adrenaline rush. All of a sudden after I got a ton of imunizations at once I started to freak out.(I guess the shots overtaxed my immune system which was holding down the lyme disease.) I couldn't remember things... I locked my keys in the car... I started to have panic attacks... I would feel like pulling the ejection handle for no reason... This happened over night. It was quite frightening to loose everything over night. I flew like this for 6 months. It was miserable but somehow I still maintained my position as the top pilot. Which made it even more frustrating because I couldn't reconcile the two. I felt like I couldn't do anything but yet I was still preforming at the top of the class. I was a mess. I couldn't sleep and I was nervous all of the time. Nothing made sense because this used to be my favorite thing and now I was having anxiety attacks while flying or flying on commercial flights. I still have to take valium to get on a commercial flight. How does that make sense when I can fly the thing in my sleep. I also started to have anxiety about being around people which is completely opposite of my normal social butterfly nature. Does anyone have examples of this particular part of this illness resolving. If this resolved I could be back in the game. I know the normal me is under there because when I am feeling better these feelings are less intense. However while on the MP these symptoms have gotten more intense (especially in phase two).
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Chronic Neuro Lyme
Full Phase2/full dose all meds/Ben start Aug04 6-8hrs/Phase2 start Jan05/NOIR's outdoors and infront of computer/Labs:Aug04 25Hyd=59 1,25D=49 Dec04 25Hyd=34 1,25D=51 March05 25Hyd=31 1,25D=49
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Frans
Member in Phase 2
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Posted: Wed Jun 8th, 2005 15:30 |
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flyer wrote: However while on the MP these symptoms have gotten more intense (especially in phase two).
Flyer,
You gave yourself the answer.
The fact that these symptoms have gotten worse during MP almost certainly means that they are herxsymptoms. They (the herxes) exacerbate the disease symptoms.
see Observations of Jarisch-Herxheimer Reaction in Sarcoidosis Patients
Applies to all Th1 illnesses
I will be following your progress with great interest.
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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ShrnHml
Member in Phase 2/3
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Posted: Wed Jun 8th, 2005 18:02 |
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| Dave.................I just wanted you to know how much I enjoy reading your posts. Thanks for sharing your insight. .................Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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kittymin1
Member
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Posted: Wed Jun 8th, 2005 19:29 |
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From hair loss to anxiety?? Well I have both, so I can keep this thread going I guess!! lol
Regarding anxiety, I am on an anti-depressant (for both depression and anxiety). It has helped me, although in the last year or so it seems I have gotten even more brain fogged. I kept thinking it must be the medication and maybe I needed it to be reduced. Before that I thought it was my age (38). But since I've found MP.com, I realize more than likely the brainiac fog is from the th1 illness.
Two of my worst symptoms are severe headaches and sinusitis. I started getting allergy shots in March 2005 for chronic sinusitis, which is due to my constantly stuffed up nose. My goal is to keep from getting sinusitis which can eventually turn into bronchitis for me.
Th1 is causing the stuffy nose, this I know. The fact is that this one symptom alone causes me much suffering, anxiety, and depression. I have stopped the allergy shots because I have chylothorax right now (lymphatic fluid in the pleural space of my left lung). I stopped the allergy shots because I didn't know what was causing the chylothorax, and now my nose is stuffy again. Thus, my headaches have started again, as well. <<heavy sigh>> Thinking of going back to Allergist again until a doctor will start me on MP.
I did an unplanned experiment this past weekend. You, say "unplanned, Mindy?" Yes I say, "U-N-P-L-A-N-N-E-D."
I am Pre-MP. On Saturday, I wore my sunglasses in the house all day long and kept the house as dark as I could and avoided the D's--I was quite proud of myself that I did that all day -- well at least until the rest of the family came back home and sunlight once again filtered the house. I had even worn my sunglasses while on the computer and while watching TV. (I had better get use to this, I know, since I will be starting the MP, but that was a great start for me!) I did my absolute best that day!
Most days I do not even feel like getting up in the morning. If I could sleep 15 hours a day and get away with it, I probably would. Anyway, on Sunday, it was different. I actually woke up after 8-1/2 hours of sleep! I thought, there has to be some thing to that since I did what I did the day before.
Well, that day (Sunday), the family was home most of the day. My husband is not tolerant of darkness in the house. He has stated he would be happy to make our bedroom "my cave", which I guess I will have to take him up on, maybe. Sunday didn't go as well for me, I had some D's and didn't wear my sun glasses all the time. Guess what? I was sick for the next two days. I felt TERRIBLE. I didn't even go outside the entire weekend - except on two quick occasions. I felt like my body was buzzing all over, and I did it to myself. Well, I take that back, if it wasn't for th1 illness it wouldn't be an issue.
Something worth mentioning - since I wore the sunglasses most of the day on Saturday, I've noticed my eyes are more sensitive than ever to any kind of light. I said before that my husband loves the light (although I think he's a th1 sufferer and doesn't quite understand it all yet). I printed him articles about why I need to avoid sunlight/bright light, but he still doesn't get it. Even now, Wednesday, my eyes hurt a lot from the light. Or the condition is worsening for me. Not sure which at this point. I never thought that my eyes could actually BE swollen or inflamed, now I know they are because they hurt.
I've also been "trying" to wear my sunglasses at work. We have fluorescent lights in our office - everywhere. I'm on the computer all day. I guess I could shut the lights off and have people ask me lots of questions - not that I really care. I don't have NoIRs yet, but mine are polarized so helps a little. I'm really not embarrassed if someone asks me why I'm wearing them. I'll just say it helps ward off headaches - which is the absolute truth.
I'm printing a bunch of material for my pulmonologist to see if he'll start me on MP.
Let's keep our fingers crossed!
MindyLast edited on Wed Jun 8th, 2005 20:03 by kittymin1
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Th1 inflammation: lungs, head, skin, spine. Difficulty waking. Effexor, Allegra, BenicarHCT qd, allergy shots discontinued, minimizing Vit. D, NoIRs, Pre-MP.
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DaveW
Member
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Posted: Wed Jun 8th, 2005 19:52 |
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Boy, can I ever relate to all of your responses and experiences! Most of what I have to say simply reiterates what you people have already said!
Any social encounter with people for me is overwhelming, as I fear that the anxiety will make me respond inappropriately (and it often does). This is not an empty fear.
Just as two of you explained - I never used to be this way. I was a dirt biker, a drummer in a dance band, and could chat with anyone! I also used to be spontaneous, quick witted, and had a great sense of humour (all of which somehow died along the way).
The anxiety and feeling of being so easily overwhelmed also (for me anyway) seems to displace any other feelings (especially the good ones!) - which has made me out of touch with my feelings, and made it difficult to "stay on the same page" when chatting with others. It takes intense concentration and is very diffult to relate to them and "stay with them" (emotionally). I think this is the major reason I have increasingly isolated myself.
Even when I watch TV, if there is any conflict in the show I become impelled to change the station, as it is more than I can handle. I know it's just a show, but I still can't handle it! When it is bad, even figuring out what is going on in a show is overwhelming - so I just flick stations every minute or two.
Like Tobi, I seem to be OK if I am alone with very little stimulus. As was already described, it is like the "stress bar" (or level at which stress becomes intolerable) has been drastically lowered - so that even regular everyday experiences have become overwhelming.
Many years ago, I recall reading some early CFS research that talked about the stress response being lowered in CFS patients. Frans has informed us of amygdala involvement, and I believe the adrenals are also involved.
I suspect the most we can conclude is that the functions of these two glands have somehow been dysregulated. Since the functions of all glands affect all others, there is probably involvement of the other glands as well. The precise mechanisms are probably very complex and still beyond the understanding of medical science.
Even exercise, eating a large meal, or getting cold (in addition to emotional stimulus) causes stress, but our ability to handle stress seems to have been lost, such that any stress effectively "destroys" us (or more accurately - debilitates us). I suspect that those who have this problem will understand why I used the word "destroy".
For me, this ever declining ability to handle stress has made me keep making my life smaller and smaller in order to cope. But as you remove yourself from the stressors, you also isolate yourself and remove yourself from the good things life has to offer (but you don't seem to have any choice!).
I am similar to Flyer in that this is one symptom that the MP has not improved. If anything it seems to have gotten worse for me as well. I am still hoping (as Frans pointed out) that this is undoubtedly a symptom of Th1 disease, and therefore we experience herx when the infestations responsible are being addressed. I am still clutching on to this hope.
The fear I have, is the possibility that perhaps neural cell damage (perhaps to the glands mentioned) has been done by Th1 disease, that the MP cannot repair (by eradicating bacteria).
I add my voice to the questions already posed;
1. How many others have these same symptoms?
2. Are there any (or many) folks in phase three (or beyond) who have had the same degree of severity of these symptoms, and overcome them?
Personally, I would appreciate the sharing of any experiences by others (good or bad), on these topics.
I must say, this thread has touched me more deeply and personally than any I have seen in a long time. I thank-you all for this sharing!
Regards,
- DaveW
____________________
MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
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kittymin1
Member
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Posted: Wed Jun 8th, 2005 20:15 |
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Dave,
Are you currently on meds for depression? I know Effexor has helped me a great deal. It has helped with the "adrenaline rush" in the simplest of situations. I still don't look forward to speaking as a member at staff meetings, but that overwhelming feeling isn't quite so overwhelming anymore.
Even in the 9th grade, I was too overwhelmed to speak on the topic of "kittens." I would rather take an F. When I think of myself, today, speaking in front of people, I think I just really don't want to even if it benefits someone, but unfortunately this is my reality. I have to work full-time.
I empathize with all of you regarding speaking in public (even to those in authority). I absolutely do not like it. Needless to say, I HAVE to speak to my boss, but I always get nervous that I will say the wrong thing and then I do anyway sometimes. Then I feel stupid....you know the cycle I'm sure.
Let us all lean on each other for support! My heart goes out to all of you.
Mindy
Last edited on Wed Jun 8th, 2005 20:19 by kittymin1
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Th1 inflammation: lungs, head, skin, spine. Difficulty waking. Effexor, Allegra, BenicarHCT qd, allergy shots discontinued, minimizing Vit. D, NoIRs, Pre-MP.
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DaveW
Member
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Posted: Wed Jun 8th, 2005 20:22 |
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Hi Mindy,
I recall having the same increasing sensitivity to light as you have described.
I don't think we realize how much the light affects us, until we are out of it for awhile.
I think this is similar to a smoker who does not realize how the cigarettes are actually affecting him/her. Each particular cigarrette does not make them feel poorly. In fact, it may even make them feel better. This reflects their bodies chronic response to the cigs.
But if they stop smoking for awhile, and then have a cigarette, they may become very sick (with headache and nausea, sweating etc). This is the body's acute response to the cigs.
This "withdraw and challenge" tactic is also a commonly used way to find out what foods you may be allergic or sensitive to.
I think we need to stay out of the sun (and away from D sources) for awhile, to appreciate what it is really doing to us. Avoiding these things does make life more difficult (and perhaps less enjoyable), but like the smoker our health will not improve unless we quit!
I also had constant or near constant headaches before the MP. The NoIRs seemed to end them. I started with 40% NoIRs
indoors, but in stage 2 (when you really get down to business), my headaches returned, and I had to increase to 10% NoIRs to get rid of the headaches - but I can read and function fine with them indoors.
In my office at work, I took out about half of the flourescent lights, and turned down the brightness on my computer screen. It seemed to help alot. The lights directly over my head seem to sneak through the Noirs and cause the most problem for me. Light that comes from behind me seems to cause fewer symptoms.
Like you, I just tell people that I wear them because they stop me from having headaches!
All the best on the MP!
- DaveW
____________________
MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
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