The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Aussie Barb's Benicar Report
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The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Aussie Barb's Benicar Report |
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Aussie Barb Research Team 
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Beginning Posts: Why I choose to do MP .. The Beginning: My Update.. Sun / light protection in hot weather. a Cape? .. Happening already.. Aug 12 Thurs is Quercetin Day. and is luckily for me, my Day 1: Beginning on Benicar only: 8am took first benicar tablet ever. within 20minutes a drawing to the sinuses. the persistent cough and choking mucus stopped. my face felt slightly hottish. otherwise symptom free. not sure whether to go 6 or 8 hours, so I decide to go over the 6 towards the 8 and see what happens. not long and the mucus and the choking cough are starting to come back. 2.30pm took benicar with relief to mucus and coughing. I could feel *something big* a big pressure reaction coming in my chest..... I was anxious re cardiac herx as I know how strong my own immune system is with *any sort of help.. I tried the lemon drink.. no difference. so I had some quercetin here (amazingly!) and took 1 (250mg). bingo it has subsided.. I still had gas and bloating, toxicity in the gut signs for me, and plenty of leeway between benicars so took the charcoal, and the gut is settling/passing the gas. This is the way to go. all is well. I notice the joint stiffness returning when it is benicar due time. 9pm cough coming back. took Benicar and quercetin and set the timer for 8 hours. went to bed. ahhhh... had a good night, even though I woke a couple of times. 5am took Benicar and NO quercetin. I will reserve it for when or if I feel any scary reactions only. Barb |
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Aussie Barb Research Team
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Day 2 5am took Benicar and NO quercetin. I will reserve it for when or if I feel any scary reactions only. Yesterday and today my face is a different color. ruddy. a working hard color. 7am can feel pressure beginning to build in my chest now. and head pressure & stuffy nose.. just a wave of dizziness at 7am. 8 am wheezy cough, head pressure, stuffy nose. chest ok. resting I find that if I am resting I have less symptoms, coughing etc. face color, heat have settled. 1pm Benicar only I'm very very tired from the med this afternoon. Today I am surprised that I can differentiate between tired and fatigue. uncomfortable belly this afternoon, but for a change it is bearable and managable, in that the gas is passing. the pressure in my bottom is bearable. usually I would need to take Charcoal to alleviate this. mucus / coughing a little. some pressure & burning in throat. times of head aching but not a *headache*. 9pm Benicar + Q before bed. I slept well. a couple of wake ups and dreaming. Day 3 5am. Benicar only the cough is back just a little, and settling.. dizziness for a few seconds only at 6.30am. thick head. tired. all fine.  so far so good. there's something happening, all managable, nothing bad. and that is the aim.  |
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Aussie Barb Research Team
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Day 3 Saturday 5am. Benicar only the cough is back just a little, and settling.. dizziness for a few seconds only at 6.30am. thick head. tired. all fine. so far so good. there's something happening, all managable, nothing bad. and that is the aim. 7am deciding to try half a tablet every 3 hours and a full one + Q to go to bed at night. 9.30am beginning to cough (Natural Progest Spray fixed it) 11.30am half Benicar only (am planning to split it thru the day more evenly and to try taking a full one at night with the Quercetin to sleep?) I am tired but resting and fine. it is just so good to know that this is all doing *something* *for* me. I'm feeling the need to rest. My chest has an *inflamed* feel about it. and my head could be dizzy if I tried to do anything much. I'm not thinking terribly well so will quit now ) drunk without the drinking.NB Big News:  Except for the initial *feeling worse* since staying in the dark; Now I'm Not Suffering Depressive misery or fragility that I had continually suffered Pre MP in the sun / light days.. 3pm Benicar half only 6pm Benicar half only 9pm Benicar full tab + Q for bed Plan >> to take Benicar 20mg 3 hourly during the day and 40mg + Q before bed to be able to sleep. slept well.  woke feeling *well*. till >>I am still thick in the head. drunk without drinking. need to rest to keep me out of trouble. I have a slight hayfevery tendency this a.m. not a real problem, but is not usual either. chest / cough not worrying at the moment. |
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Aussie Barb Research Team
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Day 4 Sunday I am taking Benicar 20mg approx 3 and a half hourly during the day and 40mg + Quercetin at night to go to bed. = 3 and a half Benicar per day. slept well. woke feeling *well*. till>>I am still thick in the head. drunk without drinking. need to rest to keep me out of trouble. I have a slight hayfevery tendency this a.m. not a real problem, but is not usual either. chest / cough not worrying at the moment. 9.10 am chest / heart pressure, passed quickly tired. brain tired I've been outside a bit today. my head has settled now to what it was. a period of depression from the light probably?  All is as it has always been, 1 day at a time. and I am managing well. nothing big is happening yet.. well, that I know of ) I wonder if it is happening? will it hit me harder later. have I too much stored VIT D yet? I've been suffering some Depression / fragility again tonight. first I thought it may have been my being a little more careless today re the light...... (the Vit D from the light is a pro hormone which in susceptible & unwell ppl affects / unbalances the (my) hormones) and now I've realised it could / may also be caused by the Benicar... herx effect? hmmmm ? and then I worked out how I will know which it is. I will take the quercetin which is to quell the herx. so that if it IS herx the depression will diminish... and if it is from the light the depression should not diminish from Q. but I won't do that just yet cos the fragility is not acute at this point; & I've just had my Natural Progesterone Spray which could / should also have a settling effect on the hormones; an upholding effect on me. I woke at 12.30am. wide awake, depressed, hungry. realised it was hormonal, used NPS and straight back to sleep. Day 5 I was a little fragile but oker this morning, and have taken meds.... now will wait and see what turns up. the thought occurs to me now that I could try going without the NPS.... but could I bear the depression? - I could try using the Q with the B and if no good then have the NPS, and it will still rally me. at this point now 7am. I am ok. |
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Aussie Barb Research Team
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Day 5 Monday Benicar 20mg 3 hrly during the day and B 40mg bedtime. No real herxing so no Q tonight. So far life with Benicar seems to be for me, fairly uneventful. (((((dare I say it?)))) I am wondering why? and if the storm shall hit? and when? I am going quietly. I am not sure what to attribute to the Benicar? I am definitely tired all over. I had 1 bout of depression / fragility this afternoon. and thankfully it passed without being bad enough to do anything about it. I have some stiffness of joints (this is usual), and some odd hurting and weakness in muscles, first in the Right arm and leg, and then later in the Left elbow. these passed. Head and chest Ok today. B 40mg bedtime. No real herx so no Q tonight. Day 6 Tuesday morning I had a more restless night (?no Quercetin) but am fine. tailbone stiff sore to get up. (this is *normal* so I will watch for it to improve with time and meds) throat / glands sl soreness. head thick. I am mindless & weak this morning.. thinking / doing is too big of an effort. back to bed. |
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Aussie Barb Research Team
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Day 6 Tuesday Benicar 20mg Q3h Day; 40mg Q8h Night. No Quercetin today: saving Q for big herx only.  I had a more restless night (no Quercetin) but am fine.  tailbone stiff sore to get up. (this is *normal* so I will watch for it to improve with time and meds) throat / glands sl soreness. head thick. I am mindless & weak this morning.. thinking / doing is too big of an effort. back to bed. I'm not *safe* (to myself to be *let loose* in the World like this  I wonder if the Benicar is *doing anything* ..................... and then next I am wondering if I can tolerate the mental & emotional *challenge* I'm experiencing. >> It then comes to me that I was this ill mentally emotionally 4 years ago, so it must be *herxish* to be going back to that..... ? some middle backache. stiffness in tailbone. maybe I am so accustomed to surviving what's thrown at me ( ) that I can't recognise it as herx??? Day 7 Wednesday morning I slept better last night, and I feel better equipped to face the World today. my pharmacist is doing a search for a possible local Australian source for pure Quercetin. |
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Aussie Barb Research Team
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I have just seen recent photos of MySelf, (as in 1 month ago ie pre MP) omgggg and yet again and still, as I have for years now, I look positively swollen and inflamed!! I do look like I've had a run in with a B hive  My eyes are always swollen almost shut. (automatic defense against light exposure) so it looks like I fit the description of inflammatory disease to a MP.. Last edited on Wed Aug 18th, 2004 01:45 by Aussie Barb |
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Aussie Barb Research Team
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Day 7 Wednesday Benicar 20mg Q3h Day; 40mg Q8h Night. No Quercetin today: saving Q for big herx only. I slept better last night, and I feel better equipped to face the World today. Sx> muscles sore / some middle (?muscular) backache.. tailbone stiff. a new inflammation / ? pimple arising in a spot on my nose where I have had a numbness re a skin cancer op. other previous inflammatory spots appear to be decreasing. ? from reducing the light exposure. . very tired today. the tiredness >> I feel more dis-abled in / and anxious re, participating in the World. anxiety reduced by NPS med Dx> very tired but otherwise a better day than yesterday. Qx> will I begin Mino? or should I see if there is anything the Benicar wants to dig up first? my D levels could be / most likely would be / high yet, and so possibly preventing any *big* herx happenings? past experience of huge reactions to even vitamins tells me to proceed very cautiously. Day 8 Thursday morning slept well. ahhh a *fullness* in my throat / glands. head heavy. but otherwise ok. Info/x? >my pharmacist is doing a search for a possible local Australian source for Pure Quercetin. please let me know if anyone knows of same. thanks. Last edited on Thu Aug 19th, 2004 01:48 by Aussie Barb |
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Aussie Barb Research Team
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Day 8 Thursday Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day No Quercetin today: saving Q for big herx only. a better day. tired but functioning better. stiffness, soreness, throat, head, anxiety, *pimple/inflam Sx still present but not bad. Day 9 Friday I have slept really well. woke feeling quite good. weighing pro's and con'sam considering going to mino, but would rather be sure than sorry. and there is no need for me to hurry. My impatience has brought me much herx in the past, so I will proceed cautiously. I still have the fullness in the throat and head yet; prob a good reason to sit tight on the B for a little while yet. |
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Aussie Barb Research Team
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Day 9 Friday Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day No Quercetin today: saving Q for big herx only. I have slept really well. woke feeling quite good. I can say that I am *Ok*, as I am accustomed to a certain level of dys-function as it turns out ie. all is always *relative*.. and it is quite often also *relative* as well But with doing MP seriously I have to stop and *listen* to and take heed of the subtleties present which are signs of what my body is actually doing. ~I've had a *good* day. yes I'm tired, brainfogged, and I cannot *do* *any *thing that takes any effort. ~The subtleties are >> I've been feeling some pressure behind my eyes, in my head and throat; and muscle soreness ...my face flushed at some times, ~and others>> chest pressure for a few minutes. a couple of crampy spots in my left thigh for a few seconds each time.and feeling cooler (unusual). I am on the edge of emotional fragility ie. I am ok as long as I keep away from anything meaningful ~bowel function restoring? so all in all I'd say I have some settling to do just on the Benicar yet before I take on the big guns I say I'm fine and all is well obviously the Benicar is doing it's work quite subtley; something I am not quite used to. Day 10 Saturday I slept soundly. - woke feeling depressed took meds> ok now to face another day ....Last edited on Sat Aug 21st, 2004 04:13 by Aussie Barb |
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Aussie Barb Research Team
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Day 10 Saturday Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day No Quercetin today: saving Q for big herx only. I slept soundly. - woke feeling depressed took meds> ok now to face another day ....Today I slept rested or was quiet. ~ the new inflammation / ? pimple arising in a spot on my nose where I have had a numbness re a skin cancer op. has settled into an itchy spot now......??? ~ heart pressure again this afternoon for a few minutes. relieved by sitting up for a while. ~ some muscle soreness and stiffness all over ~ fragile at least & or depressed for a few hours but bearable. & since I am on the Benicar I have anxiety ~ still the subtle pressure/fullness eyes, sinus, throat/glands, head. ~ urine color has gone from the usual almost clear to darker. (I take this as an indication that my body is *working*, has trash) I slept well again. no depression anxiety on waking. but my muscles are noticably weak when I try to even chew!! and or do anything. is all happening! is all good!! I am impressed with the action & yet subtlety of the Benicar so far. |
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Reenie inactive member
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Barb, Do you think you would feel better upon awakening if you took the Benicar every 6hrs thru the night, rather than allowing yourself to sleep thru for 8hrs? I was wondering whether it would be better to sleep thru, like you're doing or to awaken for the 6hr dosing, since I often feel better sleeping a solid 8hrs. I've noticed you went from 8hr dosing during the day to splitting your dose, but increasing to a 3hr dose. Have you considered just going to a 6hr dosing to see if you could handle that? IMO, it would be easier to do, don't you think? |
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Aussie Barb Research Team
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Thank you Reenie for your thoughts, and your questions. I welcome them so far at this point I am happy doing what I am. and I am open to change with circumstances too right Reenie says>>Do you think you would feel better upon awakening if you took the Benicar every 6hrs thru the night, rather than allowing yourself to sleep thru for 8hrs?I was wondering whether it would be better to sleep thru, like you're doing or to awaken for the 6hr dosing, Barb says> I am liking the sleeping at the moment. anything else has not usurped that priority yet and I realise that it may do at any point. any Sx I wake with are managable by one means or another. or are entirely bearable.Reenie says> I've noticed you went from 8hr dosing during the day to splitting your dose, but increasing to a 3hr dose. Have you considered just going to a 6hr dosing to see if you could handle that? IMO, it would be easier to do, don't you think? Barb says> easier? hmmm. I'm not sure how it is easier? I chose 3 hourly x half doses (B 20mg) to have a more even coverage, cos of my pre MP sensitivities. and I am not leading a *busy* life so 3 hourly is fine. and I have a timer to keep me on the knocker. Reenie, I am editing here. I have been puzzling over what you may have meant by it being *easier*? I am thinking now, that you may mean *easier* in terms of if I take B less often I may have less Sx? to *bear*??? I have noticed that in the documenting of Sx (My own and in reading Others) it may *sound* that I am suffering. but no, my body is *working* but it is not working *hard*. the Sx are subtle and I am happy and not finding this difficult at all.. in fact I wonder if there is something I am missing? compared to some, so far, this is a walk in the park. and compared to pre MP; I now have no IBS and no misery and torment days as I did have. I hope this is helpful. technically; after I have 8 hours sleep there are 16 hours left to divide into increments ... for me it divided better into 3 or 4 hour increments. rather than 6. and 3 suits me ask me or tell me more if you want Reenie xxx Barb Last edited on Sun Aug 22nd, 2004 06:02 by Aussie Barb |
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Reenie inactive member
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"Barb says> I am confused by this bit. I too am enjoying my 8 hours sleep." Barb, I'm confused by your confusion! Would you please explain? "I have been puzzling over what you may have meant by it being *easier*?" I was just saying that if your sx were the same on the 6hr dosing, wouldn't you rather just dose every 6hrs? I know I would. The only way you would be able to tell, would be to try it. Since you're doing so well, if I were you, I would want to try it. I was on a different protocol where some ppl were dosing more frequently, but for me, I didn't notice a difference, so I just stuck with the less frequent dosing. Benicar may be a whole different animal, though! I will start with the 6hr dosing, but am concerned about having to interrupt my sleep. I know I feel better, have less body pain, when I sleep a solid 8hrs, at least. I wonder if waking up with an alarm at 6hrs, is worth the "trade off." I'm sure I'll find out, soon enough. Maybe I'll be able to dose like you do at night, for an 8hr interval. I think that would be ideal. Last edited on Sun Aug 22nd, 2004 05:10 by Reenie |
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Aussie Barb Research Team
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Day 11 Sunday tired quiet day sleeping resting. muscle soreness stiffness. some small depression afternoon. slightly sore throat for a while. Day 12 Monday slept well despite some periods of restlessness & being hot. not ready to get out of bed at the usual 5am time. so didn't. weakness today but managing the small things I want to do. still some subtle muscle soreness stiffness. Lately (MP) I am having periods of time when my feet are 'hurting' cold. the weather is not cold and my feet have never usually been cold. slippers help. Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day No Quercetin today: saving Q for big herx only. |
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Aussie Barb Research Team
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My wonderful Pharmacist / Naturopath is still trying to find a source of Pure Quercetin, in Australia; she told me lemon oil as in the whole of lemon drink keeps the detox pathways open. The last 2 days I had noticed a little gas/pain; for me a sign of toxic buildup. I had the whole lemon drink> relief; so I plan to have the lemon drink twice a week . Day 13 Tuesday slept well. ~My hands both go to sleep at night but are ok once I change position. ~I have a place under my elbow, where I have had itchy *stress lumps* in the past. there is a slight flare of the itch. no lumps yet. ~My middle back aching and muscles sore and stiffness. weak and tired. and head still thick. can feel glands fullness subtly. face flushed. no depression! all managable ~ the new inflammation / ? pimple arising in a spot on my nose where I have had a numbness re a skin cancer op. has almost gone; and the numbness has gone !!!!!!!!!!!! ......??? I have felt it over and over and it definitely seems to be gone!!!!! Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day No Quercetin today: saving Q for big herx only. Last edited on Tue Aug 24th, 2004 10:06 by Aussie Barb |
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Aussie Barb Research Team
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Day 13 Tuesday evening Evening> some gas/pain; for me a sign of toxic buildup. I tried charcoal in the afternoon .... well between the Benicars ....no relief.. and feeling lung chest pressure / herx building. so I took the Benicar + Q to go to bed. Day 14 Wednesday slept well. all relieved. have been waking around the 2am mark momentarily and straight back to sleep. ~My hands both go to sleep at night but are ok once I change position. ~my elbow *stress lumps* gone. ~muscles sore and stiffness. not as / but still weak and tired. and head better today. can feel throat glands fullness subtly. no depression! all managable ~ the new inflammation / ? pimple arising in a spot on my nose where I have had a numbness re a skin cancer op. has gone; and the numbness has gone !!!!!!!!!!!! ......??? I have felt it over and over and it definitely seems to be gone!!!!! I am still astonished. to me this is an indication of the first healing happening.A friend called today to fix my dead computer!! and told me I look *better* perhaps some of the inflammation is going??Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. being very careful re sun / light.Last edited on Wed Aug 25th, 2004 06:34 by Aussie Barb |
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Aussie Barb Research Team
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thanks Laurin good to have your Company Day 14 Wednesday evening Evening> some gas/discomfort; for me a sign of toxic buildup. so I took the Benicar + Q to go to bed. Day 15 Thursday Woke 2am. no more sleep despite NPS. gas belly> took probiotics> relief still some muscles sore and stiffness. can feel throat glands fullness subtly. no depression! all managable I am chilly cold ((( )))) 9am, and my feet are *hurting* cold again: & it isn't cold my legs aching when I lie down. ? from hips & knees. ~ the new inflammation / ? pimple arising in a spot on my nose where I have had a numbness re a skin cancer op. has gone; and the numbness has gone !!!!!!!!!!!! ......??? I have felt it over and over and it definitely seems to be gone!!!!! I am still astonished. to me this is an indication of the first healing happening. It is on the Left side of my nose:I've had a top left *toothache* for years. and have had the Dentist at it again recently; and even after getting the fractures out of the 2 teeth; 2 weeks later discomfort is back again; so I decide it is inflammation of the nerve. and along came MP since Benicar, there's no discomfort. hmm waiting wondering? this morning I've woken with a nicer *feeling better ache* along all top left teeth.. so something is happening there too. Yesterday I remembered the terrible *reactions* I've had in years past from homeopathics. it was all a mystery at the time as to what *went wrong*. but I can see it all now. I was going into the big herxing, with no Benicar to *save* me. it was unbearable, totally beyond bearing. Now Stepping forward with MP / Benicar!!! Bundy Dale & I live close & have made contact, so we are liaising now & my Dr is very supportive; & local to us both.Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. Personal Reminders: being very careful re sun / light. I am being mindful that the full protocol is more than the medications. diet / sun / light / NoIR / probiotics / meds / management / watch for thyroid sx / and the Board community support is fantastic & a great learning environment. I am going to do this as cautiously as I can. to manage as best I can. I am usually in a hurry. BUT I have experienced too much suffering in the past; so I need to keep reminding myself not to be too eager, that there is no rush. My daughter is 23, and is very ill with CFS for 8 years. She is very distressed / flare at the moment; and I am hopeful & mindful of My finding the way of My tracking this MP thru in the best possible way, so that she can follow with least distress. |
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Aussie Barb Research Team
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Day 15 Thursday evening no gas belly tonight (keeping up the probiotics: I had been thinking there was no need for them till I would begin the mino!) my left side nose to upper jaw area are *waking up*. obviously there has been nerve involvement there. more evidence of healing happening ever so subtley!!!! (this reminds me of Trevor saying that high levels of 1,25D can cause Bell's Palsy. ie affects the nerve) so I am thinking that cutting D exposure/ + having Benicar are responsible for this improvement ~ just very tired and had to go to bed soon after 7pm. . Day 16 Friday slept soundly. but silly dream still muscles sore and stiffness. and thick head. face a little flushed. can feel throat glands fullness subtly. no depression! waiting, wanting my NoIR to arrive. wearing others in the meantime, and staying indoors mostly anyway. am happy to feel things Happening, and so far being managable Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. Last edited on Fri Aug 27th, 2004 01:18 by Aussie Barb |
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Aussie Barb Research Team
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Day 18 Sunday 29th August 2004 Later Edit: Please Note small doses of antibiotics were not helpful and are no longer used. ~ sleeping well with a couple of wakes each night. * last night a dream of 2 elephants in my house getting into things, and lying up sleeping on a bed together. (re my needing to learn respect & comprehension of the *size* of the punch from 3mg ABx?) see below.. ~ have some blind pimple type inflammations come up. ~ stress bumps under elbow - slight flare there ( have Family stress, very sick daughter & son) ~ right hip - has some soreness last 2 days. * muscle soreness, and stiffness, tiredness and weakness, throat / glands / head fullness persists. Good News: probiotics - only need a small amount daily now, (compared to handful). bowel function is restored !!!! after years of problems. I have less urgent need for the NPS now. (my signs being choky cough, depression, gut pressure ie. body dysfunction) since I've cut D exposure, misery, depression are no longer lurking.. I'll continue the Benicar only yet because: I've seen some ppl have reactions at the 3 to 4 week mark. I don't have my NoIR glasses in the mail yet , and they may make a difference too.I'm still having the *body loaded* symptoms * listed above, which with me are a sign that my body is working yet. Re Mino: Because I'm getting close to beginning the minomycin. and I have 50mg tablets, so tiny...... and I plan to start by taking 3mg!! I had a practice preparation run today. I cut the tablet in 4 x 12.5mg crushed 1 quarter divide by 4 = 3mg each it is mere dust .. !!!! I have had such huge herx reactions in the past from vitamins and homeopathics so I am not wanting any reruns. ...... I am understandably cautious and I need to be I find personally that with my brainfogginess and my usual going where angels fear to tread, I have to learn to be respectful of the *punch* that little tiny bit of dust can throw. * so I've told MDH that each time before I have another dose, I will have to present my case to him as to why I should have it; before I do... to make sure I'm over the last dose; to make sure I don't do anything foolish in my brainfogginess. because that is what can happen. and of course 50mg antibiotic is normally absolutely nothing!! but with this it is very potent.. in that it kicks my own immune system into action.... to kill the bacteria.... and if I kick it too hard it will go on a killing spree and the toxins coming off the dead bacteria is what can make me so sick..till they are eliminated from my body.... so I have to *manage* the dosing according to what my body is doing. watching that the killing and disposing are done before setting the dogs in again. and the reaction can take from minutes to hours to days to begin. and to end...... << personal reminder I thank those who are doing MP ahead of me. I am gaining> learning: courage: and hope: from you. Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. |
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Reenie inactive member
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Barb, Thanks for posting all of the mino reminders! It's a good idea to have a "request for clearance" in place, from DH before advancing to the next dose, especially since your reaction will affect him too! |
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Aussie Barb Research Team
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thanks Reenie x Thoughts Today: As I am going thru this; it takes me back in stages to how I was 5 years ago etcc; and I am managing it ok. I just have to remember to remind myself that any anguish is herx; that it is not in fact *real*..... that it never was in fact.I realise from all this that what I've been going thru all this time past has definitely been a very *sick* me. I am beginning to see how it goes worse and not so; and it's good for me to have this contact with like minded people who are warm and kind x thank you it is however, scary to think what I have to go thru yet.. .... but the Important Bit IS: I know I can do it cos look at all the s... I've come thru so far without this knowledge and without this much hope on the horizon. with thanks, Barb x |
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kemsoup Banned 
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Later Edit: Please Note small doses of antibiotics were not helpful and are no longer used. Aussie Barb says, "Because I'm getting close to beginning the minomycin. and I have 50mg tablets, so tiny...... and I plan to start by taking 3mg!!" Barb, This is a suggestion and I don't know if it will work or not as it depends on whether your Minocyline is water soluble or not. If it dissolves in water Ok, then a good way to get a 3 mg dose would be to dissolve a 50 mg tablet in 50 ml of water and then ingest 3 ml of that solution. One can increase or adjust dose easily by just swallowing the correct number of milliliters of solution. I've done this in past and it works well--as long as material dissolves in water. The only difficult part may be obtaining a milliliter graduated cylinder or container. They can be ordered I'm sure, but will have to check source. I'm glad you are keepin' on. We will be tracking how you are doing. Best Wishes, Steve |
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Aussie Barb Research Team
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Thanks Steve I automatically imagined the tablet would not be fully soluble. but I can look into that thank you. I was thinking more of the apple sauce for that reason. and I also contacted a Compounding Chemist, - but labor costs are prohibitive. so I will be the chemist Day 20 Tuesday I'm having small bits of feeling so good !! (NB all is relative.. good for me is not good for anyone wanting a life.. it is just 'feeling' 'good'... ie mental clarity.. for a nice change)and then>>> I'm suffering bits of payback I'm quite surprised about it.... but there it is. it will be from my giving more of myself than I should, than I actually can.. ... & with my daughter being so ill and distressed. I handle it well and calmly, but it obviously takes it's toll. other symptoms are less noticable. muscle soreness stiffness. and I'm mindful of looking out for any thyroid symptoms. so far they seem a long way off.. but ? I am learning a lot all round, so I'm doing well. My body is working at max capacity, - just me & the Benicar without doing one other thing. One other thing is enough to throw the balance. It is highly interesting for me to be observing this well oiled balancing act. I'm being taken back in understandings > lights going on! and so forward to the brighter future at the same time. I do have bowel function restored (big headline here!!) The MP mix> Probiotics + cutting D + Benicar are the key.so in between the bits of herx or payback > mental anguish I'm a very happy girl & MP's bringing these Good ppl into my life is another wonderful bonus. Last edited on Mon Aug 30th, 2004 21:38 by Aussie Barb |
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Aussie Barb Research Team
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The MP Blessing To us Each & All: May your herxes be big enough; for you to be making good progress; and not too big; that you may still be able to rise to the challenge!!! Barb |
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Reenie inactive member
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Awww, thanks Barb, and right back atcha! Hey, I've just asked Dr M about the Q and herxing on the Quercetin string. Dr M and Scott are "thinking" that we can still progress and kill bugs with Q, so... I'm thinking, THAT would be the way to go, don't you agree? http://www.marshallprotocol.com/forum27/407-3.html |
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Aussie Barb Research Team
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Thanks Reenie ============ News Flash: My NoIR glasses have arrived in the mail! I ordered them on the 11th and they were invoiced 18th and arrived to me Australia 31st.... sigh..... I put the indoors #901 on and I felt immediately a quick physical stab of *sick* in my stomach... ugh... and gone.. and the Bat Cave is DARK!!! so no doubt they are going to make a difference... and also, now, I will feel I have permission to leave the Cave; suitably attired of course wearing my Cape I will now see what, if anything, changes in the next couple of days...... and then I may take the Minocycline charge. da ta daaa.....I experienced a change when I cut the light. ie when I turned the unit into the Bat Cave (yes BatMan is here first I was worse ; and then improved. They certainly cut the light differently altogether to any sunglasses. I want to see if there are any more changes with the change to NoIR now. and I don't want to be mixing that up with a change to taking the Minomycin at the same time in case it exacerbates the herx. I want to do everything that I can, that I know to, to optomise my experience of this. Last edited on Tue Aug 31st, 2004 09:20 by Aussie Barb |
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Bundy Dale Member
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Barb Your reports are an example to others,the way you have tried to strictly follow all aspects of the MP really helps people like me learn about the process. |
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Aussie Barb Research Team
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Day 21 Wednesday Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. + NB. ProbioticsThanks Bundy Dale I'm wanting to do MP to the best of my ability; for Self Preservation..... yes! and to be able to present a viable alternative to my 23 year old daughter with CFS. All of her Life, she has seen me suffer; and she has seen me try and be hopeful too often. NoIR glasses: >> day 1. At times, I'm a bit woozy dizzy with moving around. no doubt I'll adjust. ( # 901 + # 907 Fit-Over w/Side Shields http://www.noir-medical.com/noir_amber.htm > cost delivered Australia $ A 116. I went out to the shop this afternoon with MDH. The effort makes me slightly nauseous, as it did the other day too. but I'm managing fine living quietly at home doing nothing. muscle soreness, stiffness, & head, gland, throat involvement are still present but minimal. mental anguish nil today. Usual Brainfogginess means I still cannot apply myself to finer things, such as reading, sewing. but I can now clean my teeth with less effort Last edited on Tue Aug 31st, 2004 22:45 by Aussie Barb |
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Aussie Barb Research Team
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Day 22 Thursday 6pm Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. + Probiotics absolutely essential for me. 3 days wearing the NoIRs symptoms that are different>>> some dizziness. very slight. tiny spots of anxiety / fragility too. my symptoms have increased subtly. I feel cardiacal / chest pressure (is entirely bearable) if I was to do anything active, even walking around the Unit. I have to take care. no missed beats. not worth taking the Q. I just go quietly ~ makes me wonder if my D tests were frozen??? and could have been a lot higher in reality. I wasn't convinced by the Lab's response to me I will ask the Dr to write it on the request form this time.my Dr appoint Friday(24 hrs) re next blood tests Monday. then begin Mino. I rather be cautious than suffering too much herx unnecessarily. I want to be safe. and for my daughter too. she is very very ill. ~ muscle soreness, stiffness, & head, gland, throat involvement are still present but minimal. otherwise I'm doing fine and I'm a very happy Member of My New Community Last edited on Thu Sep 2nd, 2004 10:48 by Aussie Barb |
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Aussie Barb Research Team
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Day 23 Friday 7.50 pm Cont:> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. gas belly + Probiotics = 4 days wearing the NoIR glasses: they have taken the herx back up some. is still managable.*Body loaded* feeling. body is working hard yet. It feels inflammatory. I cannot be active. walking around I experience body pressure. so going slowly emotional fragility if *pushed* to do anything Postponed the Dr appointment till next week (couldn't manage it) My legs are itching tonight !! will it last? aching upper back all day. gut pressure tonight Had lemon *drink* tonight. no dizziness or anxiety today. I need to be stable on the Benicar first before moving on to Mino. I sleep soundly at night with 1 or 2 momentary wakes. 1 nap during the day. can do computer. Best Wishes to All, & Thank You All Barb |
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Aussie Barb Research Team
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Day 24 Saturday 2 am. I took Benicar 40mg 9pm. +quercetin going to bed 10pm for chest pressure getting over the top. slept. I'm up at this hour...I'm up with  herx . 1.30am took 20mg Benicar. it is 4+ hours after 40mg dose. I want to explore the B action rather than take Q. my abdomen feels ready to explode. not pain. but pressure. and still managable, but quite feeling like I've had the wind punched out of me. the NoIR glasses have made a big difference: upping the anti. lucky they weren't here earlier. I have needed to do this increments. I can feel there's a lot of potential trouble in there. this is obviously why I was having a la la ride on the Benicar up till now. even though I have been seriously living in the dark!!!!!!!! omggg I'm surer than ever that my 1,25D is higher than said. I'm happy to be doing this, and so happy that I can trust myself to go steady so far. Phew!!! after half an hour, I think I can say there is relief, and I can go back to bed and should settle. The extra Benicar has helped. How exciting is this!!!!! PS 5am usual wakeup time. chest pressure, going to abdo pressure, is back again. took 20mg Benicar (3 ½ hrs since last dose) aahhhhh relief ...... this is good. Thanks Reenie I'm no scientist and so all I think I know is that by lowering the D levels it allows my Immune System to do some work. I do know that my body is feeling *loaded*. ie working. more again since wearing the NoIR glasses 4 days. I confess that I do not know or care if it is technically herx or lowering D............. I know that whatever is happening means something is happening and that I don't plan to proceed further till this sorts out. Best wishes, Barb happy cos more Benicar is better.Last edited on Fri Sep 3rd, 2004 21:41 by Aussie Barb |
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Reenie inactive member
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"I'm up at this hour...I'm up with herx." Barb, Would you please describe what you're thinking is herx sx? I'm wondering if you're just having a reaction to lowering your D levels more, like I did when I took Q... just a thought here and a chance to compare notes. TIA! Thanks for answering via, edit above. "I confess that I do not know or care if it is technically herx or lowering D............. "Barb, IMO, we NEED to "know and/or care" since how to handle it will vary a little, anyway. I know that Dr M says that Phase 1 of the MP is mainly "training" for US. We need to learn how the meds cause our bodies to react and what to do about it. I don't mean to sound like I'm nitpicking here, but... I think it's important. If you're reacting poorly to the Q, then you would not be ready to take it, like me, but as Dr M says, it's good to know it does something. And... if you are feeling badly from lowering D, as opposed to herx, I would want to know that, so when I do start herxing, I know how I want to handle it. So, with that said, I'll apologize for picking nits... Last edited on Fri Sep 3rd, 2004 22:15 by Reenie |
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Aussie Barb Research Team
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Dear Reenie, Thank you so much for taking an interest, and yes it is the way we all learn. However it is NOT my nature to be into these technicalities in the same way that you are proposing. it is not me. My PM answer to you about how I Know it was not the Q that caused the pressure. is that that is the One Dose of Q I have taken in over a week, and I took it because the pressure had already come to being unbearable.... and I had taken 40mg B....... and I experienced relief. and slept. I woke with the pressure back 1.30am and I needed relief so I took the Benicar not the Q because it was time that I could take the Benicar 4+ hrs and I experienced relief and was able to go to sleep. I now have my timer set for 20mg x 3hr Benicar as usual But I will be monitoring how I feel and will adjust accordingly to more if I need to. Reenie, I confess to doing things from an intuit perspective so I may not be able to explain it logically. keep asking if I'm not yet making myself clear. xx Barb |
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Aussie Barb Research Team
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Day 25 Sunday September 5th 7am 7 weeks cutting D exposure Day 6 NoIR INCR: Benicar 20mg Q3h Day; 40mg Q6h Night. = 4 tabs per day: using Q for herx only. gas belly + Probiotics = Yesterday: we went out for fuel. I felt able to drive my car in the quiet Saturday afternoon for fuel. so while we were out I decided we could go and meet Bundy Dale. very nice to meet BD in Person. very small outing, whew.... felt sick. I actually cannot do anything much, even at home, and to go out to 1 shop is more than enough to make me sick. cos *body loaded* since the benicar is working on me.upper back ache most of the time. then the buildup abdo wise.. liver area mostly down *R* side (always been where Sx are) >>> relieved by Benicar dose. sore muscles stiffness legs, drawing sensation to hips / knees when lying down. hands go to sleep when I do . lower leg itch ok unless touched back to less energy but all is managable. I am quite Ok as long as I go steadily, and take my meds, & etcccc hair is softer and scalp not itchy dry & flaky sleep soundly. wakeful 1.30 am ish now so having another 20mg Benicar 5 am Bad *R* leg cramp  now leg very sore to walk on. do Not want Any more of these (((kemsoup))) (note: I may have forgotten to take my Thyroid med yest (later note: muscle knot >good relief after Benicar) lemon drink taken Friday night doesn't seem to have any immediate effect on me at all that I know of. it hasn't helped any herx or pressure symptoms so far. since wearing the NoIR glasses (5 days now) the Sx have stepped up more so I'm not moving on , cos I can feel the pressure in my chest and abdo and I do not need it any higher velocity I can tell you. Having done the practice run preparation re Abx 1 week ago I'm so pleased I did... to see that tiny amount that can have such punch & to read the experiences of others has given me time to learn respect for / comprehension of, it's power; esp while I feel this high level of inflammation within me. I am being cautious. not starting the minocycline yet till all settles down, till I'm well stabilised.( will comm @ less than 3 mg) Re Dress: thanks Trevor ! a tracksuit is too hot for sunny Australia & me, but yes I am well covered, & mostly am not well enough to drive yet, or to go out much; and I prefer to stay home at this point, for all these reasons.. for those interested, I always wear long dresses (I always have liked them) and I have my lovely Black Cape that I made, and I have a *scarf* of the same material, and NoIRs & gloves. and I am really happy with that...... & I'm not worried what anyone *else thinks. & to add to that My Dr is very encouraging too. I'm a Happy MP girl.Thanks Last edited on Sun Sep 5th, 2004 04:39 by Aussie Barb |
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Dr Trevor Marshall Research Team 
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Barb, When driving during daylight wear gloves, and a dark track suit. A balaklava is also useful, but tends to create panic in passing motorists -LOL ..Trevor.. ps: an alternative strategy is to shield the side of your face by raising the hood of your tracksuit |
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Bundy Dale Member
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Barb thanks for dropping by,it was nice to meet you and your hubby. * Barb was very well covered,the black cape,Noir glasses and long dress left very little skin exposed,add to that it was an overcast day. Very interesting that with all the protection Barb had she still had a reaction to the outing ,it just goes to show how it may only take a little exposure to have an affect while on the protocol,i hope everyone is aware of this. |
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Reenie inactive member
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"...i hope everyone is aware of this." Ah, yes, Dale, We are ALL learning about this rather quickly! |
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Aussie Barb Research Team
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Day 25 Sunday September 5th 7 weeks cutting D exposure tooth *L* upper, sl on edge again liver area pressure> probiotics gave relief sore muscles stiffness all the same, only really noticable on movement. some backache low energy, tired brainfog since Benicar. leg ok after cramp. couple of bouts of being chilly; hot to touch. evening.... things may be settling again now? Day 26 Monday September 6th 6.30am Day 7 NoIR < after initial working up to exacerbation, symptoms settling again Decreased again> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. gas belly + Probiotics = slept soundly. one period of tossing. I woke feeling a sense of relief / improvement. & more mental clarity. I'm thru the worst of the exacerbation of wearing the NoIR glasses. YAY!! now to move to the settling on the benicar and then it'll be *fasten the seatbelts* to mino.... Dr appointment due this afternoon. planning to request check the thyroid & the D levels redone before moving to mino. and asking Dr to write 1,25D freezing request on the Blood Test request Form. |
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Aussie Barb Research Team
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Day 26 Monday September 6th 7.30 pm ish Day 7 NoIR < symptoms settled again. back to chilly feet today. back to being able / interested to *do* a bit*. Benicar 20mg Q3h Day; 40mg Q8h Night. = 4 tabs today: using Q for herx only. gas belly + Probiotics = IM Methyl Cobalamin B12 I had planned to not have any more of my monthly IM B12 because of doing the MP. it was 2 months since I'd had it last. and I'm early into the MP yet. Due to some of my old symptoms that I ID as my B12 sx presenting subtly: fragility, sluggishness, wanting needing to lie down waiting at the Drs eg., and then feeling sick from any very small outing (all covered), & more particularly pressure in bottom and unable to go (despite probiotics) + more personal symptoms., I decided that I would have the B12 while I was at the Dr anyway..... and observe my symptoms to see re effect / improvement. Dr agreed. I'm aware that the sx could be seen as herxing or light effects ..... but that was my need / choice / decision / experiment... today. BP Monitor: I took the unused BP Monitor back and received a full refund this afternoon. My BP at Dr was 129/62 !!Dr visit: got me covered: I wore my long dress, Black Cape, and NoIR glasses, and we had to wait for 50 minutes to see the Dr. I'm always so amazed how much light there is everywhere we go!!! inside or outside: so I thought, well, it matters less what ppl think of me than what is going to happen to me....... so while we waited the 50 mins, I placed my black *scarf* completely over my head while we sat there !!! looking like a piece of covered disused furniture!! yes in a waiting room full. Benicar: extra: I took my usual 3 hourly 20mg dose just before I went out to the Dr. and I took another 20mg when I came home 1+ hour later. and I set my timer for the usual 3 hours for the next dose. thanks TM for the hint Last edited on Mon Sep 6th, 2004 11:02 by Aussie Barb |
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Foundation Staff . 
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Barb said, "so while we waited the 50 mins, I placed my black *scarf* completely over my head while we sat there !!! looking like a piece of covered disused furniture!! yes in a waiting room full." Barb, You're amazing and you've got me beat. I attended a state fair 2 days ago in 90 degree heat. Out of the thousands of people there, I was the only one covered from heat to toe and darting into each patch of shade I saw. I did have my face uncovered (had applied ketoconazole cream) but I got a few odd looks which didn't bother me a bit. These are costfree, independent measures I can take to ensure that the bacteria killing proceeds. As a result, I suffered only a bit of increased fatigue the next day. Thanks for being such a good example, Meg |
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GeorgeinRollaMO Member in Phase 3 
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Barb, As synergism to what Steve (Kemsoup) said a few days ago about putting a 50 mg capsule of mino into 50 ml of water... A 3 ml syringe, without needle, would be handy to draw up an exact amount of the mixture, then squirt it into the mouth. Only one container would be needed, to which exactly 50 ml of water would be added. Perhaps, a larger syringe of 50 ml, or some multiple of the 50, could be used to put the exact amount of water into the container. I am aware that syringes are made in 1 ml, 3 ml and 10 ml sizes. Using the 3 ml syringe, you could make 16.667 doses. I would settle for 0.667 mg for spillage loss, etc. Closer specifications than sticking my finger into the powder!If mino is water soluble! Anyone know? I believe reading in a post that mino is rather acid and can cause irritation. However, I would think in that small of quantity, following with more water or something like applesauce might wash it down quickly and safely. I intend to start with the 3 mg dose also, to be on the safe side, then jack it up slowly. This might solve the problem of how to do it. Thanks to you and Steve for tossing out your ideas that pushed me to thinking of how I could handle the situation. I was wondering!! I gave up finger-sucking some years back. I really wasn't looking forward to taking it up again. I am happy for you that things are going smoothly enough. George |
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Aussie Barb Research Team
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Later Edit: Please Note small doses of antibiotics were not helpful and are no longer used. awww Thank You for the messages Meg and George a lovely surprise xx mwa mwa about dressing appropriately or inappropriately depending from which side it is being looked on I am a believer in Educating people. educating about who and how and what and everything!! whilever we hide our real selves, whether it be the CFS or our dysfunction in any way>>................................................. we are depriving Others; we are depriving the World from learning to accept and understand other Hiding the truth is holding back Evolution I figured that they would have it worked out...... that I needed to be shielded from the light.. and they would be learning something about Life, making them more open to new ideas about Sun etc when they heard about it. (they say a picture is worth a thousand words Thanks xxx Barb |
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Reenie inactive member
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Barb, You have such a GREAT attitude and mindset. I'm really glad you're here, and share your thoughts and ideas so openly and honestly. You're a wonderful fellow, "itd (in the dark) MP dette"! GeorgeinRollaMO says, "If mino is water soluble! Anyone know?" I heard someone else suggest this, and was wondering if mixing mino with water and storing it would weaken its affects, so I called Walgreen's and spoke to a pharmacist. He said, you can mix mino in water; be sure to stir well, divide dose immediately, to get the best accuracy. Store the remainder in the fridge and be sure to stir well before each subsequent dose. Discard after 2 weeks. The pharmacist suggested either a compounding pharmacy or if dividing up powder, it would be helpful to weigh it for accuracy. I think I'm going to do a practice run of dividing mino, before I actually need it. Last edited on Mon Sep 6th, 2004 23:50 by Reenie |
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Aussie Barb Research Team
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Thanks Reenie I am so happy to have found such a wonderful Community xxxxx re the mino; I contacted my compounding chemist... and it is too expensive to pay for the labour. I am happy that I did the practice divide.. I've thought about the water thing, and I'm not happy enough with it for me. and I'm not happy with keeping stuff.. ... I know. I'm fussy.. Taking off the NoIR & being able to see, the exact amount of "atom bomb" powder / dust, and being able to divide it feels safer to me. I'm not taking my eyes off it ! I won't be taking any chances with amounts. not one bit haphazard. I am considering taking 1.5mg the first time. ........ and yes I know that is even more than licking the tablet ............. and I hate to confess to being such a scaredy cat.. but that's the truth. & how can we all know unless I am a pioneer!!!whatever I finally decide you will all be the first to know how it goes!!! and it won't be long now........ I have the feeling Last edited on Tue Sep 7th, 2004 06:17 by Aussie Barb |
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Lilly Member in Phase 2/3 
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Barb, I complete agree with you. Being 'out of the closet' is good education for the ignorant as well as for the 'educator'. I think I'm going to try adding about 6mg minocycline next Monday if all goes well between now & then. You and I have both have CFIDS and are at about the same point in the MP, so I'll be watching you Lilly ------------------------------------ Barb said: 'about dressing appropriately or inappropriately depending from which side it is being looked on I am a believer in Educating people. educating about who and how and what and everything!! whilever we hide our real selves, whether it be the CFS or our dysfunction in any way>>................................................. we are depriving Others; we are depriving the World from learning to accept and understand others Hiding the truth is holding back Evolution.' |
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Aussie Barb Research Team
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Thanks Lily Out of interest? how did you decide on 6mg mino? =============================== Day 26 Monday September 6th Day 7 NoIR < symptoms settled again. using Q for herx only. gas belly + Probiotics = Dizzy 8pm went to bed on 20mg dose B. (usually have 40mg at 9pm) wakeful thru the night, should have taken another 20mg Benicar dose but too lazy till 3.30am then slept.Day 27 Tuesday September 7th the Benicar plan is >> Benicar 20mg Q3h Day; 40mg Q8h Night. = 3 ½ tabs per day: using Q for herx only. gas belly + Probiotics = woke with the feeling... YAY I have a brain!! mental clarity. a lightness. (like the pun?) have to go the lab to get Ds done again. missed today due to circs if all stays stable, I feel ready to comm Mino after I've done with that outing. I'm unwell enough to be going anywhere without dealing with a herx at the same time unnecessarily. then.... this afternoon my Insulin did a number on me.. ..weeeeak ( I have Hyperinsulinemia, Insulin Resistance) my nose runs a bit the last few days. in me, .......a sign of *needing something* . hmmm? ponder.. slight itchy pinky blotchy rash on inner forearms for half an hour this afternoon am tired end of day. no gas belly for days now. taking regular BD probiotics. Day 28 Wednessday September 8th the Benicar plan is changing >> Benicar 20mg Q3h Day; 40mg @ 9pm then 20mg prn ie Q3 - 4 h Night. = 4 tabs per day: using Q for herx only. gas belly + Probiotics = sleeping nicely. woke 1.40am. took 20mg Benicar. slept. (methinks wonders if it is the more Benicar my nose is weeping for? I'll watch to see. I'm doing Ok. all is well. I'm weaker than before MP as the Benicar does it's work. Every time I think that I'm stabilised, that it is coming to time to add the mino, the Benicar finds another corner, digs up some more symptoms for me to stabilise.. That is Ok I'm patient rather than rushing in beyond my body's ability. this has given me plenty of preparation time. plenty of time to listen and learn as well. I'm happy |
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Lilly Member in Phase 2/3
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Re: 6mg mino: I could say I plucked it out of the air, but, really, it is 1/4 of the recommended max. of 25mg, more or less. It seemed conservative but not too cautious. And previous herxing on antibiotics has been mild for me and I haven't had a strong reaction on Benicar...yet. If it goes badly the first time, I'll wait a week and try again with 3mg. I've arranged things so that I can almost totally crash out for a week, if necessary. That's the plan for now.... Barb said: 'Thanks Lilly Out of interest? how did you decide on 6mg mino?' |
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Aussie Barb Research Team
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Lily I'm all for anyone following what they feel. absolutely.on the other hand I want to make sure that you are making an informed decision... and not taking any unnecessary risks...... especially in view of the fact that you do not have your D levels which can make for a very different story if they are high. here is a link to check.... if you have not already seen it.. http://www.marshallprotocol.com/forum11/523.html All Best Wishes Lily, Barb |
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Lilly Member in Phase 2/3
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Hi Barb, Thank you for your support and concern. That link was very informative. FWIW, I have been staying out of the sun for about 5 weeks, eliminated D-containing foods for about 5 weeks, never took any D-supplements, now have quercetin at hand, I'm taking it easy and have 2 people checking up on me daily re: the MP/my reaction to it and I'm having a very mild response to the Benicar. I'll be the first to admit it if I've been foolhardy, but the only way I know to find out how I'll do on the MP is to do it. I have no known heart, lung, kidney, liver, eye or skin problems. I think my CFIDS affects my brain and endocrine system most severely. I have been reading, sometimes for 4-5 hours at a time, this site and the other one, for over 5 weeks. At this point, I am ready to act. I believe in Divine Timing and feel it's time. This is not to challenge anyone else's timeline or choices. I'm aware of the risks and willing to take them. I can't say I didn't know - I've read of Jelly's experience and the fellow who captioned his post "BenicaD" (sorry forgot name). I've read every progress report on the site, some more than once. So, I'm proceeding with 'cautious optimism'. Again, thanks for your concern and information, and best wishes to you, too. Lilly |
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Aussie Barb Research Team
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I think I just worked something out!!! I asked MySelf, "why am I so Weak now?" I had been thinking that this has happened since I'm on the Benicar.. ??? ponder?? I can't do *anything extra at home..... and to go out anywhere I am getting to the point of either I can barely manage going to 1 place. or I'm going to have to start going in my wheelchair again. (as I write that another lightbulb goes off !) I realised that what is happening to me is: I am so weak..... and I had the Insulin *bash yest........... because of the readjustment of the hormones as the 1,25D drops (from all ny good work ..................... so is that the good news? or the good news?? loland the 2nd lightbulb that then went off was to remind me that it is since I've been on thyroid and progesterone supplementation that I had been able to go without my wheelchair... till now of course as the readjustments are made... sigh....another instance of more patience required it just helps to understand why.. |
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Aussie Barb Research Team
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Dear Lilly, I apologise for misspelling your name so many times!!!! Thanks for your reply and I am happy that you are happy. I'm all for Divine Right Timing !! so Go Girl!!! with very best wishes, Barb |
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Aussie Barb Research Team
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Day 29 Sep 9th I am so very tired. and bored. watching to see what / if anything happening. Day 30 Friday September 10th Benicar 20mg Q3 - 4h Day; 40mg @ 9pm then 20mg prn ie Q3 - 4 h Night. = 4 tabs per day: Q for herx only. sleeping nicely. woke 2.40am. took 20mg Benicar. slept. very tired. so extending Benicar out to q4h to see how it feels. I check Journal. stable except for time adjusting to NoIR glasses. am on the edge of Depression all the time. tried the NPS. so sticking to my bed, being quiet to keep it suppressed. MINO Comm: 50mg tablet > divide in 4 = 12.5mg > crush & divide in 4 = 3+mg > divide in 2 = 1.5mg Friday 10am. (squashed onto the end of a banana) next mino due to look at Sunday morning.... depending on how going?? maybe 3mg? feel *good heavy aura* in sinus & upper teeth, slight itching face, scalp. moving to Benicar + ABx Board |
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Reenie inactive member
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Hi Barb, What is your plan for mino? Are you going to move your dose up if no herx at 1.5mg? Are you going to start posting in the Full MP? I was shocked when I read you started since I thought this was still Benicar only string. Glad you started!!! I'll be hoping "we" do fine! |
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Lilly Member in Phase 2/3
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Barb, congratulations! on moving on.....to Mino and the other board. I hope you are feeling OK right now, just a little herxing . I hope to be the same next Monday. Best of luck! Lilly |
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Aussie Barb Research Team
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Aussie Barb @ new site Benicar + ABx >> http://www.marshallprotocol.com/forum20/682.html |
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Aussie Barb Research Team
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I'm Back!!!! from here !! I've been away at the Benicar & Antibiotics Board for 32 days!! Monday October 11th 2.55pm ish Benicar: see below .... Probiotics BD It is 8 days since I last took my 3rd dose of 12.5mg mino. and since I had NoIRs to wear..they broke... am waiting for them in the mail This is a most Interesting & Intriguing Journey I am continuing to herx on Benicar Only.... and I'm waiting for my replacement NoIRs to come... and as I have no idea how long this will continue... well, as always..... everything is 1 day at a time.......... I am returning here to the Benicar Only Reports I am taking my Benicar 20mg q2h to q3h prn / day & 40mg @ bedtime and woke last night for another 40mg in 5 hrs. Symptoms are a twitch in leg muscle; antbite feeling on neck; and on ribs up to underarm. wet ears. throat fullness heat. + diaphragmic inflammation... less today .. less (but still) fatigued today. NPOS relieves IBS paralysis.. AUSSIE BARB EDIT: These Mino doses are no longer used as starting mino doses.. as they were found to be detrimental to MP progress.. which you will plainly see if you continue to read this thread.. Please see PHASE ONE MARSHALL PROTOCOL How to start the Marshall Protocol for up to date mino dosing.. beginning on Mino 25mg.. thank you... Last edited on Tue Apr 19th, 2005 21:25 by Aussie Barb |
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Aussie Barb Research Team
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Tuesday October 12th 5.45am ish Benicar: Q2 to 3h day & q5h night is prn. .... Probiotics BD Slept well. the need for B wakes me. I take it & back to sleep. I woke & feel like my Benicar blockade is in place. I have been putting it in brick by brick for a long time.Symptoms: itchy face nose palate scalp. still some inflammatory @ right side abdo. some mild burning in upper back shoulder area. and ribs. |
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Aussie Barb Research Team
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Tuesday October 12th Have been cutting D exposure: 3 months Taking Benicar: 2 months Days mino: begin 1.5mg ^ 12.5mg : 24 days (12 doses) see @ Aussie Barb Page: 1 2 3 Days since last mino dose: 9 days and days since broken NoIRs: 9 days AUSSIE BARB EDIT: These Mino doses are no longer used as starting mino doses.. as they were found to be detrimental to MP progress.. which you will plainly see if you continue to read this thread.. Please see PHASE ONE MARSHALL PROTOCOL How to start the Marshall Protocol for up to date mino dosing.. beginning on Mino 25mg.. thank you... Last edited on Tue Apr 19th, 2005 21:24 by Aussie Barb |
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Reenie inactive member
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Aussie Barb says, "I am taking my Benicar 20mg q2h to q3h prn / day & 40mg @ bedtime and woke last night for another 40mg in 5 hrs." I'm not exactly sure why you've upped your Benicar so much, but you appear to possibly be "taking more than you need," as Dr M says, at this point, if you're herxing now on Benicar alone. I'm sure you read the posts where I increased daytime B to q4h, kept nightime dose at q6h and herxed on B. Meg has raised her dosing to this formula, to increase bug killing, but this is after her long time on the MP, with limited sx. Why not try going back to the equivalent of q6h or q8h and see if the herxing wanes, so you can add mino again? You can always go back to this dosing later on, like Meg. |
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Aussie Barb Research Team
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Thanks Reenie... I follow my body's needs.. I could not bear the Symptoms if going over that timing. that is the reason I am *needing* to take it as such.. thanks for asking Barb |
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Aussie Barb Research Team
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Tuesday October 12th 7pm Benicar 20mg Q2 to 3h Day; 40mg @ 9pm then prn Today has been a better day. there've been less & milder symptoms. I needed the Benicar 20mg .. easily out to q3h this morning, and coming in closer again to q2h this afternoon. the diaphragmic inflammation is there but not as acute. the hotspot on the left side was there again, but not as acutely. The paralytic IBS was not a problem till this afternoon so then had to step up the NPOS again.. had let it slip feeling better.I've been tired... but not as tired.. Thanks to all |
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Aussie Barb Research Team
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Wednesday October 13th 6am Benicar 20mg Q3 to 2h Day; 40mg @ 9pm then prn.. has been 5hrs. slept well... woke after 5 hrs for Benicar 40mg. this is helping me to wake feeling improved again aaahhh.... and then I can do the 20mg x q3h again this morning anyway.that keeps the inflammation managable. and may have a little bearing on the IBS but not enough yet. also have mild congestion burning in upper back muscles.. I'm needing to keep the NPOS up to keep paralytic IBS & emotional stress managed. (read hormones) so yes, I do feel a little brighter this morning... is a relief |
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Aussie Barb Research Team
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Thursday October 14th 4.30am Benicar 20mg Q3 to 2h Day; 40mg @ 9pm then prn.. has been 5hrs. I went to the Dr just for a script yesterday. BP 121/72 I was only gone from the house half an hour! (quickest Dr visit ever/shortest wait )........ To protect from the light, I lifted my cape up from my shoulders to cover my head / face and did the velcro so I had a peephole... ..... & either because of the NoIRs or Ds, I was slightly dizzy unbalanced, & nauseated. I was over this after half an hour of being home. & I noticed I could get in & out of the car more easily than in the past I slept well... woke after 5 hrs for Benicar 40mg. this is helping me to wake feeling improved again aaahhh.... and then I can do the 20mg x q3h again this morning anyway. & q2h when / if nec usually afternoons..Benicar keeps the inflammation managable. and may have a little bearing on the IBS but not enough yet. also have mild congestion burning in upper back muscles.. I'm needing to keep the NPOS up to keep paralytic IBS & emotional stress managed. (read hormones) a good feeling!! : >> in upper respiratory... feels warm dry vibrant aura healing feeling... unable to articulate any better than that. (sound like an evangelist? so yes, I do feel a little brighter again this morning... is a relief to be notching up even just a little each day |
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Aussie Barb Research Team
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Hormones I am taking: thyroxine + Natural Progesterone oral spray. my thoughts: my experience: my own right now present experience of MP is that my body has not had the capacity hormonally by itself, to handle the detox from minimum herx... I have had to stop the mino @ 12.5mg after a month on mino... & go back to & drastically increase my (Benicar only & ) natural progesterone ....for the last 11 days, so far... to relieve my paralytic IBS... to be comfortable within herx. & note am still herxing on the Benicar only... I'm told that Natural Progesterone is different to the other hormones in that I cannot overdose on it, as it dissipates. & I have had no trouble with selfmanaging it whatsoever.. Barb... |
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Aussie Barb Research Team
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Thursday October 14th 5.15pm Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. has been 5hrs. Today has been a very different day! The Benicar 20mg q3h has been easily adequate today, with no time of needing it more often.. The diaphragmic inflammation nor the IBS are a problem today!!! there have been a couple of times of hotspots on right & left diaphragmic areas. Chest & URT area feels pressure, flattening me... but feeling somehow warm, dry, good. I've had overwhelming fatigue. sleeping a lot today. |
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Aussie Barb Research Team
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Friday October 15th 6.30am Benicar 9 weeks: Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop: now continuing to herx on Benicar Only. wore NoIR glasses Aug 31st to Oct 3rd till broken. replacements not yet received in mail Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. 6hrs. last night had small *antbite sensation on ribs.. & diaphragmic inflammation flared with exertion of shifting sprinkler. back & shoulders still *prickly.slept well. ready for another day |
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Aussie Barb Research Team
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Monday October 18th 9am ish Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7hrs. The Benicar 20mg q3h has been adequate. The diaphragmic inflammation & the IBS are much settled. still a couple of times of hotspots on right & left diaphragmic areas, fatigue, milder diaphragmic inflammation & the IBS . some slight chest herx aura feel, some herxish aura feel in sinuses, dizziness if I am walking further than A to B in the house. (am reminding MySelf & Others that is a disease sx I had a long time ago.... & is not a side effect of the Benicar..) Had visitors over weekend, so very draining.. I am feeling much less herxish times / sx, and still do not have my NoIRs |
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Aussie Barb Research Team
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Tuesday October 19th 12.40pm ish Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7hrs. Slept totally soundly. Symptoms: slightly sticky eye; hotspots on right & left diaphragmic areas, fatigue, some diaphragmic inflammation. some slight chest herx aura feel, some herxish aura feel in sinuses, some times of anxiety. US NoIRs arrived in mail so Day 1 after 16 days of no NoIRs I'm quiet |
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Big John Member in Phase 2/3 
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Barb is back to the "undercover" look! |
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Aussie Barb Research Team
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Hi John nice to see you Wednesday October 20th 12.20pm ish Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7hrs. Day 2 NoIRs after 16 days of no NoIRs Slept soundly. Symptoms: slightly sticky eye; heat & congestion in rib muscles. fatigue. *sick* in gut not nauseous (is inflammation). Maybe Plan: to wait a few days to assess symptoms in readjusting to the NoIRs.. then consider recommence small mino dose. |
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Aussie Barb Research Team
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Later Edit: Please Note small doses of antibiotics were not helpful and are no longer used. Wednesday October 20th 10.30pm ish Benicar 20mg Q2to3h Day; 40mg @ 9pm then prn.. last night 7hrs. Day 2 NoIRs after 16 days of no NoIRs Benicar 10 weeks. Mino 10th Sept-3rd October to 12.5mg. was 17days ago. herxing on Benicar since. wearing NoIRs has caused gassy belly back.. killing more bacteria. What it is beginning to look like to me is that for Me, the Benicar & the cutting D are doing the job for now.. when I was taking the mino I was needing extra NPOS to keep me comfortable.. I may not need ABx to kick my Immune System yet. The MP is working well. |
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Aussie Barb Research Team
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Thursday October 21st 9.15am ish Benicar 20mg Q2to3h Day; 40mg @ 9pm then prn.. last night 7hrs. Day 3 NoIRs after 16 days of no NoIRs slept well. Symptoms all bearable, coming in now! chills, drawing in my hips, knees, sore all over. hotspot @ left mid diaphragm. fatigue. |
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Aussie Barb Research Team
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I'm doing a lot of thinking about my hormone meds..... I am on thyroxine & Natural Progesterone Spray (NPOS). I had believed felt that there was *no way* I could come off these meds *yet*... but that yes, I would be able to further into MP. My own experience has been that while I was on mino for 20 days up to 12.5 mg. the herx symptoms themselves seemed quite mild / non dramatic. but... I suffer/ed paralytic IBS from endotoxins, & I found that increasing the NPOS would eliminate that discomfort. (now I think / wonder, perhaps suppressing the herx?) at 12.5mg... October 3rd..... my NoIRs broke irretrievably & I was forced to wait for replacements. I discontinued the mino immediately. The surprise was that I have continued to herx on Benicar alone ever since. My body has *called for* *needed* the Benicar 20mg q2h by day most of that time. ie. the symptoms were relieved by the Benicar dose. I've noticed the many *experiences* of ppl taking hormones. being on hormones or going off, increasing or decreasing hormones..... the hormones do seem to be affecting herxing. Getting my NoIRs back on ... & being on Benicar only, I notice I'm more emotionally settled again. (not relying on the NPOS) I continue to be very fatigued, very sludgey... I am now experimenting to see if I can come off my hormone meds while I am on the healing Benicar only, so as to not mix experiences with the mino.. because I am seeing, feeling, that the hormone meds do change the MP experience. This will unfold for me bit by bit, but this is where my experience / thinking is up to at this time. Barb.... |
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Aussie Barb Research Team
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Friday October 22nd 7.45 am ish Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7+hrs. Day 4 NoIRs after 16 days of no NoIRs I've been feeling fatigued, sludgey... wanting better.. waiting for the glasses, then for the readjustment to them.. Last night I realised that I am more settled emotionally now that I have the NoIRs x days, that I had been able to cut the NPOS yesterday .... & even possibly may cut the thyroxine eventually.. all very slowly & checking of course... I am finding that by cutting back on the Natural Progesterone... so far.... usually my body desperately needs it.. that the requirement for Benicar has then decreased also. is all interlinked.. simply it went like this: No NoIRs > fragility > NPOS is lifeline > increased need Benicar.. NoIRs back> emotional health > NPOS not req > normal requirement Benicar. ....... & I believe I will begin to feel a bit better with MP & less & less NPOS. This is all very interesting intriguing.. |
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Aussie Barb Research Team
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Friday October 22nd 5.45 pm ish Benicar 20mg Q3-4h Day; 40mg @ 9pm then prn.. last night 7+hrs. Day 4 NoIRs after 16 days of no NoIRs . the readjustment to wearing them is now more than good. see below.Today I have not had any NPOS. nor needed any.. unheard of till now. will see what happens. if I was feeling close to fragile, it was because it was close to Benicar due time. I have been able to extend the Benicar 20mg over the Q3h I still have right side diaphragmic inflammation when Benicar due, and some time after taking.. sticky eye. I've been a bit more awake today |
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Aussie Barb Research Team
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Sunday October 24th 6.55 am ish Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7+hrs. Day 6 NoIRs after 16 days of no NoIRs . I am picking up a little since having my NoIRs back. I've been a bit more alive... able to actually lift a finger to do a little bit. but still feeling blehhh I want to see how I am for a couple more days. to see if there is a direction I am heading.. my body does not feel very *well* to be hitting me up with mino yet.. still some inflammation & hotspot & sticky eye coming & going is all.I am so frustrated.. & of course we are all sick of being sick. I keep in my mind that Trevor & Others have come thru & are coming thru & that I will be too.. & that we seem to go thru these stages.. I am so lucky to have wonderful home support & care, & the Board... thank you all |
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Aussie Barb Research Team
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Sunday October 24th 8.25 pm ish Thank you to All who sent me encouraging messages xoxox you are wonderful People...I am better than that this afternoon, although physically my body feels erk.... Pre MP I have felt *sick* (as opposed to nausea) in gut.. ie inflammation... is same now but more so.. Diaphragmic & rib muscle Inflammation is the main contender again still.. massaged the congestion from the area... & expecting a toxic spinoff from that.... & the antbite thing on right breast and down right arm (milder this time) for very short time this afternoon. very mild chest pressure was transient too. If feeling bad means I am doing good.... gee I'm doing good I am Ok & managing. all is well.. the head is screwed on a bit better tonight.. always a good thing. << I have gone back to using the NPOS sparingly to *hold me*.. |
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Aussie Barb Research Team
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Monday October 25th 8.05 am ish Benicar 20mg Q3h Day; 40mg @ 9pm Day 7 NoIRs after 16 days of no NoIRs . went to bed & legs drawing keep me awake. took Quercetin & slept well! woke sore all over but no usual toxic symptoms! tired but fine. Barb.... |
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Aussie Barb Research Team
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Tuesday October 26th 6.45 am ish Benicar 20mg Q3h Day; 40mg @ 9pm Day 8 NoIRs after 16 days of no NoIRs .I have been expecting thinking that the readjustment to the NoIRs would be thru... & wondering why I am still so physically yukk.. Last night I had a cranky moment..... ooops... made me realise I must be still readjusting!! still sore all over (didn't get into a fight! ) inflammation up & down, Benicar must be also helping in the no usual toxicity headache symptoms after massaging congested rib muscles.. so the yuk will pass in time.. lot of big good work happening obviously...when I told Dave about going with the flow & that we'll know what when to do next, it reaffirmed that for MySelf..... ahhh sighhh... taps foot impatiently waiting |
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Aussie Barb Research Team
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Thursday October 28th 5.30 pm ish Benicar: now 11 weeks 20mg now Q4h Day; 40mg @ 9pm wore NoIR glasses Aug 31st to Oct 3rd till broken. Day 10 NoIRs after 16 days of no NoIRs .Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only. I have been so frustrated about feeling so physically yukk.. for so long.. feeling like it would never end.. I have just had to hold on & wait & trust that things would change. Looking back & having observed the role of hormones in others on MP, I think this *may be what happened.. I was taking the mino, & having terrible paralytic IBS. (as herx) I found that the NPOS stopped the IBS nicely; so of course I increased the NPOS to be comfortable. I think now that the NPOS may have suppressed the herx & I cont'd to take the mino & the NPOS. till the NoIRs broke & stopped the cycle. & I have continued to herx on Benicar only and to feel terrible ever since. till today. * further thoughts on this next post...... I will quote Skyler here with his "Law of Unintended Consequences." My body had a *need* for Benicar during quite some of this time, as 20mg q2h; & q3h as the least it would tolerate. I went off the NPOS entirely for 2 days & now am taking it sparingly to uphold me emotionally.. and some with the *dead* fatigue. Today I am feeling a little better than I have done... I never thought the day was coming!!! & I've been able to stretch the Benicar 20mg to q4h easily today for the first time. I am thinking now that perhaps I needed to take even less than the small dose of mino & less often? so that I would not have the high need for the NPOS. also I will have the Pure Quercetin from USA next time to experiment with. It is not available in Australia. (as far as I have been able to find out yet) The inflammation in the gut & the congested rib muscles are still with me but not as bad. I put hotpacks on one night. The toxicity now on MP seems to reveal itself as sickness and tiredness instead of the week long headaches I used to have.. I am still not ready yet to resume the mino, but can definitely see it sometime, whereas I have not been able to see thru the fog for a long time.. Improvements since being on MP are.... no headaches ever.. not even when toxic!!! Insulin Resistance may be improved, & I am less hungry less often. |
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Aussie Barb Research Team
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Friday October 29th 6 am ish Benicar: 20mg now Q4h Day; 40mg @ 9pm Day 11 NoIRs after 16 days of no NoIRs .I am doing some more thinking... When I was herxing on the mino it was not *dramatic, as I had expected. The paralytic IBS was certainly dramatically uncomfortable. Because it had been a previous toxicity symptom for me I took it at the time to be that. Last night I posted this> "Looking back & having observed the role of hormones in others on MP, I think this *may be what happened.. I was taking the mino, & having terrible paralytic IBS. (as herx) I found that the NPOS stopped the IBS nicely; so of course I increased the NPOS to be comfortable. I think now that the NPOS may have suppressed the herx & I cont'd to take the mino & the NPOS. till the NoIRs broke & stopped the cycle. & I have continued to herx on Benicar only and to feel terrible ever since. till today. " < & this morning I have remembered also, that pre MP when I had hormone testing done, that my progesterone had been almost nil, & estrogen, testosterone, cortisol were all high. my thoughts are that at least some of these hormones have been suppressive to my herx. so I am thinking that from what I am seeing that there is an enormous amount of hormonal shifting that has to go on in me as a person with inflammatory disease. acknowledging that each person is unique. I try to trust & do what my body is telling me. & sometimes it is so subtle I may still have barged ahead when I didn't think I was. Personally, I know I am highly inflammatory.. My 1,25D is high but not as high as some... but I have been able to feel this inflammation in me for a long time.. It IS IN me yet. I have known that I would have to go slowly... but I don't think I had realised how long I was going to need to be just on the *runway* alone, before I'd be ready for *takeoff. I have needed to go very slowly while I do the hormone reshuffle (the MP dance) just to get started!! what I feel to have observed in me then.... is that the mino (with Benicar) was very potent in me. that my body was *hiding* that somehow....it was suppressed, not *out there*.. that because I couldn't feel any herx dramatically I continued to take mino and to ramp, even though it was seemingly slowly, I think it was like I was building a bomb inside me...... because when I did stop the mino....... I still reacted on on Benicar alone for 2 weeks +. I have always had so called out of the ordinary reactions to medications. similarly. These are my thoughts only.. and may have no basis in reality. yes that is what I said. My thoughts are all process. they are not destination; they are journey for me personally to find *my way.... to be seen as different to finding *the way. .... exploration. |
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Aussie Barb Research Team
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Friday October 29th 9.30 am ish Re the IBS. The paralytic IBS which I experienced pre MP & when taking mino has only subsided in this last 2 days!! I am comfortable again, as I was on Benicar only at the start of MP. It is 26 days since I took my last mino dose, and I've had the NoIRs back on for 10 days. so my new measures when taking mino again will be: * trying quercetin. * watching doses and ramping as related to IBS. * have Milk of Magnesia on hand. |
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Big John Member in Phase 2/3
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Aussie says "I have known that I would have to go slowly... but I don't think I had realised how long I was going to need to be just on the *runway* alone, before I'd be ready for *takeoff." I didn't like your choice of words here... You are not alone, we all "love ya" ! John |
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Aussie Barb Research Team
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awww John thank you so much xox You know what I mean? not alone by MySelf.... but on the runway..... not moving for so long ..... maybe I talkin' Aussie here?? sure looks like I got good company too... Thanks... Barb... |
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Aussie Barb Research Team
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Friday October 29th 6 am ish Benicar: 20mg now Q4h Day; 40mg @ 9pm Day 11 NoIRs after 16 days of no NoIRs .more change today: more relaxed today. sleeping resting. sticky eye . not as much inflammatory discomfort, altho it is still present.getting *some where* Barb.... |
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Aussie Barb Research Team
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Saturday October 30th (already!!!) 1.10 pm ish Benicar: 20mg now Q3h Day; 40mg @ 9pm Day 12 NoIRs after 16 days of no NoIRs .Today I am chilly sometimes. or feel like I am full of pepper (not pep ) especially my throat & the congested rib muscles are burning a little. an experience I have never had before.not as *sick* during today... was not at all *well* last night. still using hotpacks on ribs at nightime so feels like probably some toxicity from that yet. ribs are improving daily. |
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angela Member 
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Barb, You are funny! I'm sorry but you're sticky eye made me laugh. (I think I can relate though, so you are not alone on that one either..) Just wanted to let you know I've got rib stuff going on too. The area between my ribs is sore. It's the ribs right in front of my heart and they became sore \after\ my latest heart episode that I already told you about. Hope you have a good day (and night).. ~angela |
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Big John Member in Phase 2/3
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Hi Barb! Thought I would add my information about rib pain, I have pain in the collar bone, the sturnum (over the heart) and ends of the ribs. my MP doc says that the cartilage is inflamed. he suggested that if I have problems with muscles and tendons where they connect to the bones or in the knees when they move, that too is cartilage connections. I think I mentioned that in my case I think maybe the little buggers are living in the cartilage. Just a theory of mine. anyway I find when I ramp up that those areas give me some pain, the ribs are especially painful when I move. I can tell when they stop hurting it is time to ramp up again. Thats one of the ways that I tell when it is time to move up! John |
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Aussie Barb Research Team
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Thank You John, mine are in 2 *lumps* for want of a better word. and the *lump* on the left side is the sorest hottest. It is getting close to time to move up. I will wait till I have a couple more days of feeling physically better than I have been. ie. not so *sick*... Barb... |
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Aussie Barb Research Team
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Benicar dosing I have been experimenting with the Benicar dosing, seeing how easily I could extend it to Benicar 20mg Q4H. I had 2 days of Q4H easily, no extra inflammatory tendencies, but moved to a more overall depressive feeling, so am back to Q3H now & can feel the difference. |
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Aussie Barb Research Team
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Sunday October 31st 7.30 pm ish & today has been our 24th wedding anniversary Benicar: 20mg now Q3h Day; 40mg @ 9pm q8h Day 13 NoIRs after 16 days of no NoIRs .I am a little better each day. good to have relief from paralytic IBS last 3 days. chilly feet and heat in nostrils throat and rib muscles today. very tired this afternoon. itchy face throat. |
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Aussie Barb Research Team
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Monday November 1st 7.30 am ish Benicar: 20mg now Q3h Day; 40mg @ 9pm q7h Day 14 NoIRs after 16 days of no NoIRs .Dr Marshall says>> "I accept that there is an interdependence of the immune system upon 1,25-D and I accept empirical observations that the antibiotics don't work properly with folks' whose 25-D and/or 1,25-D are high. Most real science is like that - incomplete - plenty of opportunity for new discovery... " ..trevor.. HERE <<< when I read this I thought it may explain what I have been trying to understand.... that my body seemed to be *hiding* the abx as I was taking them.. they seemed to be building up in me .... it may be the reason I am needing to stay on the benicar only.... as both my 25D & 1,25D were high enough... I feel there is *work* going on, on B only. |
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Aussie Barb Research Team
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Wednesday November 3rd 7.30 am ish Benicar: 20mg now Q3h Day; 40mg @ 9pm q6h I am better to have the Benicar 20mg strictly Q3H or the inflammation increases, & I am depressed / my insulin resistance symptoms resurface. even if I take it a little over 3. interesting. I am a serious cave dweller. My body is actively detoxing. I don't fully understand why actual detox, but it is all *work* that needs doing.. so I am not feeling well.The Benicar is a wonderful protector. am resting more to let it all *happen*. I am feeling so yukk..(worse than pre MP) in a way it is like mild morning sickness (ie no vomiting) ..<< the hormones will still be adjusting.. will I be better to wait till I'm thru feeling yukk to start mino, & go into herxing...? or will I feel better by doing so? that is the question. I think I need to activate that Immune System! w the mino. I haven't restarted the mino yet probably mostly because after waiting to adjust to NoIRs again, I am waiting to have the Q & MoM on hand when I do this time.. I thought the MoM may help get the detox out of my system too.. |
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Aussie Barb Research Team
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Thursday November 4th 5.45 am ish Benicar: now 12 weeks 20mg now Q3h Day; 40mg @ 9pm 7H Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only. Yesterday I did some small things that I haven't been able to do for awhile. I've been having difficulty going to sleep the last 3 nights but have then slept well. I am weak. physically, mentally. IMO this is not from the Benicar. I do believe the Benicar is so good to me. I am ready to restart mino when my pure Q arrives from US. take care & rest rest is what I must do.. I have asked to be removed from Board Staff category, because I am not capable at the moment. thanks for all support I have received. |
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Aussie Barb Research Team
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Thursday November 4th continued.. 5.25 pm ish Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only. Well, I'm feeling a lot brighter this afternoon I've been feeling yukk for a month.. I have felt the herx or at least the toxins have been with me most of that time. I have needed to take the Benicar 20mg q2h a lot of the last month and now no longer than q3h to keep everything running ok... Today hasn't been unbearable nor unmanagable... but I did feel to be in body shock & like my brain had left the building... I've been miserable. I wasn't sure what or why... I had the IBS symptoms (gas & pressure) again yesterday & today, after a few days off from almost the month of toxic symptoms..... and the thought "what on earth is this doing back again (with no mino since Oct 3rd)" & what did I need to do? I know that if I just wait, write how I am feeling, have some feedback, follow my intuition, I will get there in the end.. & I did all that.. I've been waiting for the pure Quercetin from US, but I took my quercetin supplement that I have kept up my sleeve for emergency only & had almost instant relief!! whew!! I assess MP as being about management.. to me this has been another exercise in, and an experience of, that management, for MySelf & perhaps others to learn from.... I'm looking forward to the pure Q coming & restarting the mino!!! Thank You to All for Your Wonderful Support... Barb.... |
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Aussie Barb Research Team
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other thoughts: I have been looking at my lemons and my intuition has been to not have the lemon drink.. & when the IBS had lifted I had been able to revert to having the Probiotics once daily in the last few days also.. (on Benicar only) as opposed to having them BD up till then. hmmm.... |
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Aussie Barb Research Team
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MP Preparation: My advice to anyone is to have the Quercetin & Probiotics & maybe Milk of Magnesia on hand as part of the first preparations for bunkering down. I had left the Quercetin & MoM, thinking I may not need it.... and then ironically, I have been too unwell to be bothered to do all the chasing up to import Q... ahh well, it is on it's way now. |
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Aussie Barb Research Team
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Friday November 5th 5.50 am ish Benicar: now 12 weeks 20mg now Q3h Day; 40mg @ 9pm 7H Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only. Good News: After that 1 dose of Q 250mg (supp ) yesterday, I have woken feeling more refreshed than I have for the whole Month since last taking the mino 12.5mg!! * I have known I have very much inflammation.. I could feel far more than my D showed. * I have always had a problem with the toxicity of attempted treatments. It has been what has stopped me / almost killed me every time!! The Benicar has been my Protector this time.... but....>>>>>> Quercetin has been My Lifesaver.... a month after the last dose of mino it has saved me... Aussie Barb on the comeback trail .. |
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Big John Member in Phase 2/3
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All Right Barb!!! Now that you are feeling better, take a break and enjoy the Comfort, don't rush right in and start Mino! Take some time to smell the roses. (It is spring there right?) John Last edited on Thu Nov 4th, 2004 20:15 by Big John |
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Aussie Barb Research Team
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Thanks John whew!! this is Good! yes it is Spring in Australia ... Barb ... |
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Aussie Barb Research Team
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Later Edit: Please Note small doses of antibiotics were not helpful and are no longer used. Saturday November 6th 12 MD ish Benicar: now 12 weeks 20mg now Q3h Day; 40mg @ 9pm 7H Mino: Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only. Yesterday was a pleasant change after where I have been. To my great surprise my Brain was back! yesterday afternoon I had some chest pressure.. reminiscent of when I took mino... only I hadn't taken any for a month .. it went away.. I had some IBS... and I took the Q to see what would happen... between it & later the probiotic & finally the NPOS it resolved. I have had mild itching arms & legs for the last week. Last night I had the worst *antbite* cramp like pain to right side ribs & all down my arm to my wrist, that I have ever had. I put a hotpack on it, which even hurt; & waited for it to go away. which it did in about 20 mins. I woke this morning feeling human again.. not jumping about *good*, but a better feeling than I remember for a long time. I am tired now but not miserable.>> With having less herx symptoms now since the Q x 1/day I have far less need for the NPOS to uphold me. I am taking NPOS x 3/day with ease today. the transient chest pain could have been because I hadn't had any NP up till then yest ( I was experimenting to find *need*). Symptoms that usually present when I *need* NP are persistent cough, depressive misery / fragility, dead tiredness, paralytic IBS w pressure. |
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Aussie Barb Research Team
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Sunday November 7th 4am ish Benicar: now 12 weeks 20mg now Q3h Day; 40mg @ 9pm 7H Mino: Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only. Despite a lot of enquiring I was never able to find a source of Pure Quercetin in Australia yet. (so if anyone does find a source? please let us all know. thank you so I have had this quercetin combination supplement (no bromelain) that I had kept up my sleeve, not sure if I would even or ever *really* use Q. & not wanting to use this one particularly, except emergency, because it is not Pure.Eventually, in this last couple of weeks I have ordered Pure Q from US, Reenie sent thank you and have been awaiting it's arrival to take more mino.I didn't take any Q yesterday (afternoon would have been 24 hours). I am an experimenter / observer. I watch & wait to see what happens. I was tired yesterday, and by last night really seemed to be heading back to yukksville. & here I was hoping to smell the roses as Big John had suggested. I had slight feeling of facial tic but not visible. At bedtime I was *sick*& downhill, > took the Q. have slept soundly between wakefulness. I'm up here @ 3 am typing this. bright as a button.Meg said to me 2 days ago "I suspect that you are going through a period of severe Herxing. You can try to add a small amout of mino. I, and others, have reported feeling better with mino on board than when we took a break from it." << thank you Meg x Despite relief from taking Qx1 x 3 days - My body signs are telling me that yukksville ? herxville is still with me. the toxicity signs including itching, tiredness, brain sx. The gut inflammation is a constant, but not acute at the moment like it had been. I feel it as a *sick, full* inflamed feeling in the gut. I can bear this, & the Q gave relief, but the underlying situation is not changed. why should I bear it, (& everyone else bear me)? today I plan to take the small dose mino. ........ besides this Report is 6 pages long already. time to move on |
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Aussie Barb Research Team
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moved to click @ Aussie Barb # 2 thank you |
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DaveW Member
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Barb, I don't get online as often as I'd like, but I am so glad to hear you finally had a breakthrough! I also salute your conviction to hang in there through such a long difficult time - all the while providing the rest of us with support! IMO - you have what success is made of! - DaveW |
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