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Aussie Barb
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Posted: Tue Aug 28th, 2007 15:00 |
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Thank you All.. 
Tuesday August 28th 9pm
Benicar 40mg Q3 to 6H as required. some halves prn.
Quercetin - no more since using extra dexa.
Tylenol (panadol) 1 Q4 -6H
July 28th dexa started
Mino 50mg + 1/4 2nd abx now at 9pm # 6 dose
Today: Tuesday: 5am (5H) 8.30am weak back/ gut build (3+H) 12.30pm gut build (4+H) 4.30pm gut build GI pressure (4+H) 10pm (5+H).
edit in: Wednesday: woke with rising immunopathology 2am (4H) 6.45am gut (5H) 11.45am gut (5H) 4.45pm (5H) 9pm (4+H)
GI pressure/para: Mino 50mg + 1/2 2nd abx now at 9pm # 1 dose
using meds as above to manage symptoms to tolerable.
back symptoms have been transient as it takes a while for the abx to catch up. so took next abx dose before bed at 42H mark rather than let it go longer.
Gut and diaphragm immunopathology - high level.
abdomen firm, uncomfortable
back and ribs ache - panadol
transient myoclonic jerks (legs)
no more signs of the cheek biting when chewing or the tremor in the R thumb.
can see my eyelids now. eyes still glazed, bloodshot.
I was able to read a page of a magazine. first time.
other notes:
I have been hungry esp for protein/ meat.
change of taste again, havent been able to bear the thought of eating fruit for a long time. can now eat some. cooked apple eg.
didnt previously enjoy a choc TT biscuit that DH likes. now I can enjoy the small taste.
yeast symptoms little R toe gone after starting the abx again.
R big toe op is still red but is ok.
hair feels noticably thinner, even though I havent seen any go anywhere.
usual symptoms as previously noted.
eyes gummy
neuro feet
GI bloat, pressure this afternoon - need abx
feet ache mild
butt to sit on chair- transient
I have the timers set for 6h, but take the meds as required. I note that if I become distracted and dont take the benicar, dexa or panadol as soon as I should, the immunopathology continues to build, and I will realise I am having difficulty.
Thank you All  one moment at a time
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Aug 29th, 2007 18:51 |
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Thank you All..
Thursday August 30th 1am
Benicar 40mg Q3 to 6H as required. some halves prn.
Quercetin - no more since using extra dexa.
Tylenol (panadol) 1 Q4 -6H regular is best.
July 28th dexa started
Wednesday: GI paralytic pressure, toe op stinging: Mino 50mg + 1/2 2nd abx at 9pm # 1 dose
Today: Thursday: woken with increasing immunopathology Dexa 12am (3H) settling 2am. ..Q4 to 5H.. 1.30pm gut high level, weak back, (3H) timer Q4H
mino 50mg 8pm for severely weak back and GI paral
using meds as above to manage symptoms to tolerable.
Gut and diaphragm immunopathology - high level.
abdomen firm, uncomfortable
can see my eyelids more. eyes glazed, bloodshot.
hungry
eyes gummy
neuro feet
back ache
GI bloat, pressure
sore butt on chair
usual symptoms as previously noted.
I have the timers set for 6h, but take the meds as required. I have sent a request to Dr for Rx more dexa as the Rx is a limited supply and will set the timers for 4H.
Thank you All one moment at a time
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Aug 30th, 2007 19:31 |
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Thank you All..
Friday August 31st 1.30am
Benicar 40mg Q3 to 6H as required. some halves prn.
Quercetin - stopped Saturday 25th: began using extra dexa.
Tylenol (panadol) 1 Q4 -6H regular is best.
July 28th dexa started
Wednesday: GI paralytic pressure, toe op stinging: Mino 50mg + 1/2 2nd abx at 9pm # 1 dose
Thursday: increasing immunopathology: dexa 0.5mg Q4H
Thursday: mino 50mg 8pm for increasing immunopathology, keeps coming. needed bolus dexa, took 2.5mg 8.30am - slept 4H.
stopping all abx and continue Benicar + more dexa only.
Today: 1am dexa 1mg: 4.30am 1mg:
9am this feels more like it should. less immunopathology. took 1mg.
10am weak back symptom gone. gut level building. 10.30am dexa 0.75mg (not enough to hold as it turned out)
1.40pm gut building 1.25mg dose 5pm gut building 1.5mg dose. 7.30pm gut building. 8.30pm 2mg.
using meds as above to manage symptoms to tolerable.
Gut and diaphragm immunopathology - high level.
abdomen firm, uncomfortable
hungry
eyes gummy
neuro feet
back ache
GI bloat, pressure
sore butt on chair
usual symptoms as previously noted.
I have the timers set for 4h, but take the meds as required. will need to get more dexa 4mg tablets from Dr to divide.
summary of dexa dosing today: the dose and schedule has been varied as I have gone thru the day. I have actually felt a place of tolerable, however, briefly. enough to show me that I need a higher dose to achieve and maintain tolerable as the immunopathology continues to build and keep coming. I will get thru the weekend with what is available to me by present Dr Rx and make another higher dose request.
Thank you All one moment at a timeLast edited on Fri Aug 31st, 2007 14:47 by Aussie Barb
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Fri Aug 31st, 2007 23:22 |
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Thank you All..
Saturday September 1st 5.30am
Benicar 40mg Q4 to 6H as required. some halves prn.
Quercetin - stopped Saturday 25th: began using extra dexa.
Tylenol (panadol) 1 Q4 -6H regular is best.
July 28th dexa started
29th Aug: Wednesday: was last Mino 50mg + 1/2 2nd abx at 9pm # 1 dose
Thursday: increasing immunopathology: dexa 0.5mg Q4H
30th Aug: Thursday: last abx dose: mino 50mg 8pm: stopping all abx and continue Benicar + more dexa only.
Today: plan is dexa 1.5mg Q4 or 6H as assessed necessary. I want to stay on top of it rather than letting it build inbetween doses as has been happening. I have put the tablets out ready in separate clear containers so that I am clear with the dosing etc.
so far 1.5mg dose: @ 1am 5am 10am 3pm 8.45pm took 2mg for bedtime
using meds as above to manage symptoms to tolerable.
Gut and diaphragm immunopathology
abdomen firm, uncomfortable
transient hungry
eyes gummy
neuro feet
back ache, head full and slight ache - panadol regularly keeps ok
GI bloat, pressure
sore butt on chair
I cannot watch much TV without going off to sleep.
woozy head when I stand up. takes some time to adjust.
new is chest pressure
and pulsing thru body - used to feel this. way back.
usual symptoms as previously noted.
summary of dexa dosing: the more the symptoms decrease the more I can see they need to decrease further, to achieve tolerable really.
fatigue: perhaps my body can let the guard down now. I can see that the symptoms settle more when I rest.
some transient risings of symptoms but basically keeping the lower level than previously. can see I need to take more dexa when I get a new script.
ears less inflamed inside.
eyes a tiny bit less glazed
arms look to have some slight creasing, hopefully indicative of lessening inflammation.
feet, ankles, still some pufft.
Thank you All one moment at a time
wake hot flush 11.30pm: extra Benicar and panadol and up.
1.45am aching boots - dexa due. up againLast edited on Sat Sep 1st, 2007 20:40 by Aussie Barb
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sun Sep 2nd, 2007 04:46 |
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Thank you All..
Sunday September 2nd 10.30am
Benicar 40mg Q4 to 6H as required. some halves prn.
Quercetin - stopped Saturday 25th: began using extra dexa.
Tylenol (panadol) 1 Q4 -6H regular is best. is helping manage levels.
July 28th dexa started
29th Aug: Wednesday: was last Mino 50mg + 1/2 2nd abx at 9pm # 1 dose
Thursday: increasing immunopathology: dexa 0.5mg Q4H
30th Aug: Thursday: last abx dose: mino 50mg 8pm: stopping all abx and continue Benicar + more dexa only.
Today: plan is dexa 1.5mg Q5H as able to get away with while waiting to get more dexa Rx from Dr.
I want to stay on top of it rather than letting it build inbetween doses as has been happening. I have put the tablets out ready in separate clear containers so that I am clear with the dosing etc.
so far 1.5mg dose Q5H and 2mg for bedtime. didnt last any longer.
using meds as above to manage symptoms to tolerable.
Gut and diaphragm immunopathology
abdomen firm, uncomfortable
transient hungry
eyes gummy
neuro pares feet
back ache, head full and slight ache - panadol regularly keeps ok
GI bloat, pressure
transient sore butt on chair
I cannot watch much TV without going off to sleep.
aching boots + - dexa or meds due.
woozy head when I stand up. takes some time to adjust.
chest pressure when lying on side.
some transient pulsing thru body - less.
usual symptoms as previously noted.
summary of dexa dosing: the more the symptoms decrease the more I can see the level needs to decrease further, to achieve tolerable really. some transient risings of symptoms but basically keeping the lower level than previously, which is still a high level of symptoms. can see I need to take more dexa when I get a new script.
fatigue: I can see that the symptoms settle more when I rest.
ears less inflamed inside. more room in there.
eyes a tiny bit less glazed to look at. black rings very evident.
arms seem to have some slight creasing and collapsing, hopefully indicative of lessening inflammation.
feet, ankles, aching boots - more pufft + some wrinkles.
Thank you All one moment at a time
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sun Sep 2nd, 2007 12:30 |
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Thank you All..
Sunday September 2nd continued 6.30pm
Today: dexa 1.5mg Q5H while waiting to get more dexa from chemist and another Rx from Dr tomorrow. will take more if able to get more.
The symptom level, while high enough, has settled to more even this afternoon. resting. taking Benicar, 40s and 20s + panadol.
using meds as above to manage symptoms to tolerable.
Gut and diaphragm immunopathology -high level, but more even.
abdomen firm, uncomfortable
transient hungry
eyes gummy
neuro pares feet
back ache, head full and slight ache - panadol regularly keeps ok
GI bloat, pressure - a little less
I cannot watch much TV without going off to sleep.
woozy head when I stand up. takes some time to adjust.
Thank you All one moment at a time
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Mon Sep 3rd, 2007 03:45 |
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Thank you All..
Monday September 3rd 9.50am
Benicar 40mg Q4 to 6H as required. more halves prn.
Quercetin - stopped Saturday 25th: began using extra dexa.
Tylenol (panadol) 1 Q4 -6H regular is best. is helping manage levels.
July 28th dexa started
29th Aug: Wednesday: was last Mino 50mg + 1/2 2nd abx at 9pm # 1 dose
Thursday: increasing immunopathology: dexa 0.5mg Q4H
30th Aug: Thursday: last abx dose: mino 50mg 8pm: stopping all abx and continue Benicar + more dexa only.
Today: continuing dexa 1.5mg Q5H. with Benicar and panadol and rest as needed all helping to cut the inflammatory symptoms while waiting to get more dexa on hand.
using meds as above to manage symptoms to tolerable.
slept till meds wake 1am. slept again till 4am.
Gut and diaphragm immunopathology
abdomen firm, uncomfortable
transient hungry
esophageal burning requiring extra Benicar. relieves.
eyes gummy
neuro pares feet
back ache, head full and slight ache - panadol regularly keeps ok
GI bloat, pressure
feet pufft and wrinkles
heaviness and awkward gait continues. how I walk is one good indicator of the level of immunopathology. high level.
new: some fingertips inflamed today
usual symptoms as previously noted.
The symptoms levels are evening out, and are more tolerable, but in present assessment, given now experience of this present level, not actually what one would wish to call tolerable in fact. can do better than this yet.
Thank you All one moment at a time
12MD: have more med. new dexa dose is 2mg Q5H.
immunopathology feels to be increasing further. will need more meds tomorrow to take bolus dose.
the meds Rx is 30 x 0.5mg tablets only at this point enough for 7 doses only. wanting a new script for 4mg tablets. (which of course were too high when I was taking 0.25mg and 0.5mg)
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Sep 4th, 2007 03:55 |
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Thank you All..
Tuesday September 4th 9.40am
Benicar 40mg Q4 to 6H as required. more halves prn. changed to Q3H today.
Quercetin - stopped Saturday 25th: began using extra dexa.
Tylenol (panadol) 1 Q4 -6H regular is best. is helping manage levels. I take 2 at night to get a better sleep.
July 28th dexa started
29th Aug: Wednesday: was last Mino 50mg + 1/2 2nd abx at 9pm # 1 dose
Thursday: increasing immunopathology: dexa 0.5mg Q4H
30th Aug: Thursday: last abx dose: mino 50mg 8pm: stopping all abx and continue Benicar + more dexa only.
Today: continuing dexa 2mg Q5H. with Benicar and panadol and rest as needed.
Rest and sleep helps to cut the inflammatory symptoms. was in a higher level state by bedtime last night.
using meds as above to manage symptoms to tolerable.
slept till meds wake 1.40am 5H. hungry. got up.
Gut and diaphragm immunopathology
abdomen firm, uncomfortable
transient hungry
esophageal burning requiring extra Benicar. relieves.
eyes gummy
neuro paresthes feet
back ache, head full and slight ache - panadol regularly keeps ok
GI bloat, pressure
feet pufft and wrinkles
fingertips inflamed a little less today
abdominal heaviness and awkward gait continues. high level.
usual symptoms as previously noted.
The symptoms levels are evening out again today with rest and sleep and meds, and are more tolerable, but in present assessment, given now experience of this present level, not actually what one would wish to call tolerable in fact. can do better than this yet. Will take bolus dose if when I can get the bigger script, and if I had more meds I would be doing 2mg Q4H.
Thank you All one moment at a time
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Sunbeam
Member in Phase 2
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Posted: Tue Sep 4th, 2007 05:22 |
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Hi Barb,
Managing to keep the immunopathology tolerable can be very trying and you are a inspiration to us all in the way you keep trying. I hope those symptoms become more tolerable soon. Keep on annoying and beating down those bugs,
God bless, Lynn
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
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Aussie Barb
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Posted: Wed Sep 5th, 2007 00:11 |
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Thank you All..
Wednesday September 5th 6am
Benicar 40mg Q4 to 6H as required. changed to Q3H yesterday.
Quercetin - stopped Saturday 25th: began using extra dexa.
Tylenol (panadol) 1 Q4 -6H regular is best. is helping manage levels. I take 2 at night and thru the night to get a better sleep.
July 28th dexa started
29th Aug: Wednesday: was last Mino 50mg + 1/2 2nd abx at 9pm # 1 dose
30th Aug: Thursday: last abx dose: mino 50mg 8pm: stopping all abx and continue Benicar + more dexa only.
extra Benicar helps the hot flushes thru night, and the esophageal burn.
Today: continuing dexa 2mg Q4H since yesterday with Benicar and panadol and rest as needed. seems to be helping to catch up a little more.
Rest and sleep helps to cut the inflammatory symptoms. was in a high level state by bedtime last night.
using meds as above to manage symptoms to tolerable.
wakeful till meds wake 1.40am 5H. woke with aching boots including knees. dexa dose helped. got up. symptoms level even.
Gut and diaphragm immunopathology
abdomen firm, uncomfortable
transient hungry
esophageal burning requiring extra Benicar. relieves.
eyes gummy
neuro paresthes feet
back ache, head full and slight ache - panadol regularly keeps ok
GI bloat, pressure
feet pufft and wrinkles
fingertips inflamed
abdominal heaviness and awkward gait continues. high level.
usual symptoms as previously noted.
Still waiting to see if I can get the bigger script.
Thank you All one moment at a time
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Wed Sep 5th, 2007 04:59 |
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Wednesday September 5th 11am YAY! a glimpse has been seen.
Benicar changed to Q3H yesterday.
Tylenol (panadol) 1 Q4 -6H regularly
Today: continuing dexa 2mg Q4H since yesterday with Benicar and panadol
using meds as above to manage symptoms to tolerable.
symptoms still present and can be better yet. and Admittedly I am taking full on regular meds as above, but I can actually feel a bodily difference happening as of this time, that I making some headway on this at last.
Still waiting to see if I can get the bigger script.
Thank you All one moment at a time
Julia provided this:
(definition) A glimpse is a shy little creature, only occasionally spotted by the patient observer, generally as a fleeting view between trees as it startles at some imagined sound and takes off into the forest. Known to make good pets and faithful companions, but the process of winning their trust is one that requires great patience and the support of a loving family and friends.
Thank you Julia
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Toni D
Moderator
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Posted: Wed Sep 5th, 2007 09:03 |
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This is terrific news, Barb! You deserve a break or two or three or four . Totally awesome ...thank God.
Feel good and be blessed.
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DX sarcoid-1970 glaucoma high BP asthma allergies| Meds-Lasix Xopenex Nevanac Cardizem Nizoral Cream| NoIRs No D/sun | 08/05 25D=26, 1,25D=38| 07/07 25D=<4| BeniQ6H 09/27/05| ModPh2 07/06; Ph2 09/07|Ph3 04/08| 12/08 25D=<4| 05/09 25D=<4, 1,25D=27
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Sydney Chris
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Posted: Wed Sep 5th, 2007 12:21 |
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hey Barb..
Thats great news.. am so pleased, really...
Well done..
Big hugs
Chris
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Post viral syndrome IgG deficiency 125D74 IgG shots Ph1Mar05 Ph2Nov05 ModPh2Jan06 r/t KFTs Ph3Aug07 NoIRs lite exp r/t commute 25D<7.2(Jan07) 25D14.4(Mar08)
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Aussie Barb
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Posted: Wed Sep 5th, 2007 13:40 |
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Thank you Lynn, Toni, Chris, All
7.45pm: took extra 2mg dose: I now have the 4mg and a 1mg dexa script. what a relief. meds to use.
I still have a way to go to reach fulltime tolerable, but it is good to feel the lightening off.
When the Q4H 2mg dexa dose is due, the aching boots start.. must be the swelling starting.
and of course the gut and diaphragm immunopathology is still heavy.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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LH1953
Member in Phase 3
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Posted: Thu Sep 6th, 2007 02:37 |
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| Am I allowed to give Aussie Barb some advice? LOL When I get to a place where things become "easier", I stay there for a week, just to give myself a "break". We all know YOU can use a break. Lots of love with OX's Lori
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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Aussie Barb
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Posted: Thu Sep 6th, 2007 02:46 |
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Thank you Lori
I am still experiencing a high level of immunopathology, and trying to find tolerable yet. All of my MP efforts have been since the very beginning, and are now, centered on modulating my immunopathology, on slowing it down at all times.
Throughout the MP I have needed to adjust, increase and change the antibiotic/s to use them as modulatory, in an attempt to achieve tolerable immunopathology. This is counterintuitive to the usual guidelines - that is, that increasing antibiotics will increase immunopathology.. - and is therefore difficult for some to understand.
Decreasing antibiotics or using less has not helped me or some others to slow immunopathology, although it does work for many and can be a valuable tool.
The use of dexa for me now is a wonderful reprieve from all the pressure, mentally and physically.. with expectations of better to come yet.
Thanks, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Sep 6th, 2007 03:07 |
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Thank you All..
Thursday September 6th 9am
Benicar changed to Q3H yesterday. will see today. using extra halves so far thru the night.
Tylenol (panadol) 1 Q4 -6H regularly
Today: continuing dexa 2mg Q4H with Benicar and panadol and rest as needed. Rest and sleep helps to cut the inflammatory symptoms.
Notes: Is all a matter of balance and management.
extra dexa dosing last night added to extra fluid output. which can seem good. - but added to weak back inflammatory symptom- as the body is invoked/ organs enabled to work a little harder by using the dexa.
Took more Benicar- the Benicar helps to decrease the inflammatory symptoms, making all more efficient.
At this point will continue to use this dose and schedule and assess.
I am happy to now have my new script for enough meds so I can feel safe.. that takes some stress off.
I mostly (when not distracted) eat when hungry to feed my body for this huge task. I am lucky that I do like to eat sensible food and that I do have it provided to me.
using meds as above to manage symptoms to tolerable.
Gut and diaphragm immunopathology
abdomen firm, uncomfortable
transient hungry -
esophageal burning requiring extra Benicar. relieves.
eyes gummy
neuro paresthes feet
back ache, head full and slight ache - panadol regularly keeps ok
GI bloat, pressure
feet pufft and wrinkles
some fingertips inflamed
abdominal heaviness and awkward gait continues. high level.
usual symptoms as previously noted.
Thank you All one moment at a time
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Sep 6th, 2007 21:26 |
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Thank you All..
Friday September 7th 3am
Benicar 40mg Q2 to 3H.
Tylenol (panadol) 1 Q4 -6H regularly
Today: continuing dexa 2mg Q4H with Benicar and panadol and rest as needed. Rest and sleep helps to cut the inflammatory symptoms.
At this point will continue to use this dose and schedule and assess.
I have never needed to set alarms thru the night. the need for meds always wakes me. awake 1am and up.
Notes:
extra fluid output continues.
some less swelling. can notice eg that ears are flatter to touch, have room inside.
big R toe redness decreased.
harsher skin texture on legs/feet is overall fining down some.
had another 'glimpse' of nice. I decided to do some very small long neglected self care (lower leg skin exfoliation) which has really knocked me around.
While there is no pressure applied, day to day, true self awareness of fragility can be hidden. It is always so shocking to face in the light of reality. but I have my hope now.
had to rest and use benicar etc. using meds as above to manage symptoms to tolerable.
Gut and diaphragm immunopathology
abdomen firm, uncomfortable
transient hungry -
esophageal burning requiring extra Benicar. relieves.
eyes gummy
neuro paresthes feet
back ache, head full and slight ache - panadol regularly keeps ok
GI bloat, pressure - transient
feet pufft and wrinkles
some fingertips less inflamed now
abdominal heaviness and awkward gait continues. high level.
usual symptoms as previously noted.
Thank you All one moment at a time
today: still feeling after effects of effort all day.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Sunbeam
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Posted: Fri Sep 7th, 2007 12:02 |
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Hi Barb
It's nice to be able to do some self care and it would lift your spirits too. I hope it has made you feel a bit better inspite of recognising your frailalty.
Enjoy having some visitors, Blessings, Lynn
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19547 |
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Posted: Fri Sep 7th, 2007 23:05 |
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Thank you Lynn, All..
Saturday September 8th 5am
Benicar 40mg Q2 to 3H as needed.
Tylenol (panadol) 1 Q4 -6H regularly
Today: continuing dexa 2mg Q4H with Benicar and panadol and rest as needed. Rest and sleep helps to cut the inflammatory symptoms. although the payback from the self care has been very heavy all day yesterday and last night. very sluggish and heavy. greatly decreased already low physical functionality. feeling very ill.
At this point will continue to use this dose and schedule and assess.
resting, using meds as above to manage symptoms to tolerable.
wakeful sleep 3.5H till wake for meds. 1.30am. up 2am.
Notes:
extra fluid output continues.
usual symptoms as previously noted.
Thank you All one moment at a time
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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