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Aussie Barb Research Team 
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 Aussie Barb's Progress Report Benicar Aussie Barb Phase 1, Aug 04 From Previous Progress Report Aussie Barb Phase 1, Nov 04, cont'd Page: 1 2 3 4 5 6 ... 14 15 16 17 18 ... 27 < last page (I began this new Report because the last report was becoming too large) Barb ..  Aussie Barb Ds: July04: cut light & D Aug04:1,25D=55.83 then start Benicar Sept04:1,25D=36.66 & 25D=35.2 Dec04:25D=32 May05:25D=28 Sept05 25D=21 Mar06 25D=14 too pufft up to have further blood tests at this time. too difficult to find a vein. Hospital Oct-Dec07 presumably low 25D. Nov08 25D=10 Aug09 25D=30.4 avoiding D. not avoiding light since Oct08. ADD Dec 8th 2005: Aussie Barb Post ADD Jan 20th 2005: Aussie Barb Parade of Memories change of combo begins same page What is my gut herx?  List of progress so far February 11th 2007 August 27th 2007 process Management of meds more Dream August 08: How am I really? Coming out in October 08 to the indoor pool POOL Journey summary POOL 1 Year The Marshall Protocol Blessing To us Each & All: May your immune response be big enough for you to be making good progress and not too big that you may still be able to rise to the challenge!!! Barb  Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx CFS| Cut D/exp July04| NoIR Aug04 Comm Beni|Q| Sept05 25D=21 off Thyroxine| Mar06 25D=14| CLICK on the ABC of MP Link to Alphabetised list of Essential Information. Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| Cut D/exp July04| NoIR Aug04 Comm Beni| Sept05 off Thyroxine| CLICK ABCofMP |
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Aussie Barb Research Team
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Friday August 12th 10pm. PHASE 2 / level .5 / cycle 2 / Day 3 / mino is 50mg QOD > today / Benicar 20mg Q3H / Quercetin TID The change to Phase 2 brought me misery of memory herxing in the first week.. and then has lightened off this week. harder gut herxing this afternoon. uncomfortable but bearable with meds doses bringing relief each time .. the rest of me is having a good break from heavy full body involvement. |
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Aussie Barb Research Team
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Sunday August 14th 7.45am. PHASE 2 / level .5 / cycle 2 / Day 5 / mino is 50mg QOD > today / Benicar 20mg Q3H & 40mg 9pm / Quercetin TID The chest pressure when I first lie down is a continuing symptom that I dont mention every time.. The gut herx is there all the time, kept down quiet by the meds, and begins rising when the meds are due.. tired, and eyes sludgey this morning.. runny nose. nothing much.. one day at a time. |
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Aussie Barb Research Team
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Sunday August 14th 6pm. PHASE 2 / level .5 / cycle 2 / Day 5 / mino is 50mg QOD > today / Benicar 20mg Q2H / Quercetin TID depression. extra Benicar. NPS. rest. |
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BARNEY Moderator 
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HANG IN THERE, AUSSIE BARB, WE WILL MAKE IT!!!! DON'T LET THE DEPRESSION GET YOU DOWN TO FAR, REMEMBER YOU HAVE ALL OF US MPers BEHIND YOU. YOU ARE ALWAYS THERE FOR US AND WE WILL BE THERE FOR YOU. BARNEY |
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Aussie Barb Research Team
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Thank you Barney.. and to All who have sent private messages.. Monday August 15th 4.30pm. PHASE 2 / level .5 / cycle 2 / Day 6 / mino is 50mg QOD > not today / Benicar 20mg Q2H prn / Quercetin TID As the 2H comes around a headache and sore glands start to rise. I know that I have a lot of healing to do.. I am ok thank you.. I am finding it too much of a push to talk to anyone today, so have had the day off. That is about as well as I can describe it.. and I will be back on deck as soon as I can be.. |
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Aussie Barb Research Team
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I realised that this felt like a panic attack.. so I took mino 25mg at 40H, with relief. headache continues, taking meds to relieve. |
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Aussie Barb Research Team
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Tuesday August 16th 6.45am. PHASE 2 / level .5 / cycle 2 / Day 7 / mino 25mg again @ 12H this am / Benicar 20mg Q2H prn 40mg Q4H thru night.. / Quercetin TID wakeful till 2am. had cuppa and headache med.. took Benicar 40mg Q4H thru night. slept well 3H. feeling panicky again this morning so mino 25mg @ 12H. |
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Aussie Barb Research Team
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9pm: Benicar 20mg Q3H most of day. 40mg to go to bed. gut herx some. am still some fragile. |
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Aussie Barb Research Team
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Wednesday August 17th 11 am. PHASE 2 / level .5 / cycle 2 / Day 8 of 10/ mino QOD > not today / Benicar 20mg Q3H & 40mg 9pm night / Quercetin TID slept well, woke for Benicar. NPS settles reflux too. gut herx continues. otherwise quietly oker.. able to be on the Board again. |
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kathleen Member in Phase 2/3
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Dear Barb, I'm so glad to read that you're feeling a bit better. Still not good I'm sure - it takes alot to keep you down, so you must have been feeling pretty awful. The Z is pretty scary, but then so is the mino. I'll keep looking forward to good days ahead for you - soon I hope. And all of us. No giving up, Kathleen |
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DNStog Moderator 
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Barb, @@@@@@@ing over your having a better day.  Donna ~~~~ |
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shegeek Member in Phase 3 
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Barb, You are mega tough. Your herxes seem really tough compared to mine, yet you keep posting. I am scared away by much less. Take care, shegeek  |
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Aussie Barb Research Team
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Thank you Kathleen, Donna, and Shegeek and All for supportive messages... very much appreciated. Thursday August 18th 6 am. PHASE 2 / level .5 / cycle 2 / Day 9 of 10/ mino QOD > last night 25mg @ 40H / Benicar 20mg Q3H & 40mg 9pm night and 2am / Quercetin TID gut herxing and some backache yesterday. last night chest pressure, down left arm, and coming up neck, in glands, palate, nose, eyes.. keeping me awake so took mino 25mg @ 40H with relief and slept well then.. nose running this morning and some 'R' side back ache.. and nose ache.. |
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Aussie Barb Research Team
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Friday August 19th 6.30 am. PHASE 2 / level .5 / cycle 2 / Day 10 of 10/ mino QOD > due tonight / Benicar 20mg Q3H & 40mg 9pm night / Quercetin TID very little herx during the day yesterday.. gut herx, mildly sore throat and glands, became very tired.. slept well.. woke with a plugged ear... I hope this means that the constantly wet ear is healing.. tasting ability has increased again. swallowing ability has decreased. have to take tablets more carefully than at any time in my life. more tendency to be coughy chokey anytime pulse in left upper lip continues frequently all is well.. |
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jolbell69 Health Professional 
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Dear Barb, Keep going my friend - we are all with you!! Jo.xxxx |
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Aussie Barb Research Team
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Saturday August 20th 7.40 am. PHASE 2 / level .5 / cycle 3 / Day 1 / mino QOD > 25mg / Benicar 20mg Q3H & 40mg Q4 to 6H night / Quercetin TID Beginning next cycle with mino 25mg: not wanting to redo the intolerable mental herx. and I had to take the 25mg sooner than 48H last cycle to keep all tolerable. Phase 2 is different for me, in that I am generally better day to day than previously.. I can feel the gut herx rising to uncomfortable as the Mino, the Beni and or the Q are due. less feeling of IBS now. tired some mild back ache eyes quite sludgey this morning. ear has been inflamed. used ear drops. I have a transient little pinch feeling around my Heart. transient pulse in lips. still cant stand and do anything for more than a couple of minutes. still cant read a book or magazine. all is well.. |
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CJ Member in Phase 3
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With you in Phase II. Mental Herxes are the worst MHO UGH.Glad to see you moving foreward  |
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Aussie Barb Research Team
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Thank you Jo and CJ.... Day 1. Today has been flu like.. actively herxing. head and neck pressure, heavy eyes, sore glands, tired. gut herx. when I said " I am generally better day to day than previously.. " I must have had memory loss.. from 1 or 2 better days after more freq mino.. at the end of the cycle.. make me smile.. |
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Aussie Barb Research Team
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Sunday August 21st 6pm PHASE 2 / level .5 / cycle 3 / Day 2 / mino QOD > 25mg / Benicar 20mg Q3H & 40mg Q4 to 6H night / Quercetin TID I always forget to say that my hips ache very much at night. almost near to cramp and I have to move.. gut and full body herxing day. sore glands in neck, and face ache. all tolerable. |
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Aussie Barb Research Team
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Monday August 22nd 6.40pm PHASE 2 / level .5 / cycle 3 / Day 3 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Gut/ sore glands/ face ache/ mild Heart pinch/ Herxing continues tolerably as long as I keep all meds continuing... pulsing of lip continues. tired. I think I am fine ok if I stay sitting.. |
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Aussie Barb Research Team
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Tuesday August 23rd 7am PHASE 2 / level .5 / cycle 3 / Day 4 / mino QOD > 25mg / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID sludgey eyes.. left ear is clogged and some sore. I can be chilly at some times and hot at others.. some bone pain in arms, transient. all is well.. I prefer phase 2 to Mod Ph1. It is more controlled although I am herxing strongly and I can feel it more now and yet it is a better general experience than phase 1. .... and I'm not sure yet if that is how to explain the difference.. It may be that I am actually sicker when I am sick (herxing), and 'weller than Mod Phase 1' (all is relative/ not well ) inbetween.. maybe more cyclical, although not actually regular. |
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Aussie Barb Research Team
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Wednesday August 24th 7am PHASE 2 / level .5 / cycle 3 / Day 5 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID this is seeming to be a pattern each cycle. Day 4 (was yesterday) starts off ok.. and builds mentally as the day goes on.. around 30H begin to need Q4H Benicar 36H wondering what is happening, check that I have taken all meds.. 40H recognise that I don't have to feel this bad and that the relief meds are not enough... got out of bed to take mino 25mg . relief phew! Mino 25mg again this morning for the QOD dose and also because I needed it. am settling.. cough settling again. ear is swollen inside. a little sore. chilly.. |
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Aussie Barb Research Team
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Thursday August 25th 10 am PHASE 2 / level .5 / cycle 3 / Day 6 / mino QOD > 25mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Day 5 (was yesterday) started off feeling yuck.. and picked up as the day went on.. Chest pressure more pronounced today gut herxing hard today cough / settles ear is swollen inside. a little sore. transient chilly.. ache/ pain in any finger or toe at any time.. transient bone pain transient frequent pulsing lip I am astonished at how little abx I am herxing on.. If I get a period of no herx, I find myself thinking I am a slacker and that I should have taken a higher dose of abx... and then the herx is back, and I am like... oh oh oh.... that sure is enough abx.. no doubts it is enough.. I depend on the Benicar and Q and all to get me thru.. The mental herx can creep up..I use the meds as required to manage all to tolerable..it works to a certain thing... there seems to be a time of not recognising till it is *in your face*.. and debilitating... and when I do recognise that I should or could, it takes an effort to 'make' myself make the move to take the mino. It seems funny to say that I am taking mino 25mg because I am so depressed. and to then get relief.. that usually happens day 4 to 5.. is good to know that it can all be managed. all is well.. |
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Aussie Barb Research Team
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I spoke to a friend (whom I really trust) per phone today.. who knew me 30 years ago and hadnt spoken to me from then till 5 years ago, and then is 12 months since we last spoke.. says I sound like the *old Barb* again now.. (stronger voice) interesting and encouraging.. .............. & ..... I think I have defined it.. Somehow the going is a bit easier for me in Phase 2..... perhaps because the herx although strong, is more cyclical than Mod Ph 2 or mino.. I'm not in the 'washing machine' fulltime..... |
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Aussie Barb Research Team
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Friday August 26th 12md PHASE 2 / level .5 / cycle 3 / Day 7 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID all herxing is similar although periods of some less today. Further days into phase 2.. and I think it does feel some clearer than before. some observations about physical effort.. standing requires effort.. without doing anything.. showering is exhausting.. without adding the drying and dressing. mental effort.. reading a magazine or book is still out of reach. all is well. |
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shegeek Member in Phase 3
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Aussie Barb wrote:The mental herx can creep up.. there seems to be a time of not recognising till it is *in your face*.. Good for you that you do eventually recognize it, and that once you do you feel motivated to deal with it. I am still working on that one--once I'm in the midst of it, I am too caught up in the psychobabble to admit what's going on, even when I do start to realize it. I'm hoping that once I assimilate a little more experience (I'm only in my 2nd cycle), both of my own and that of sage folks such as you, will strengthen my awareness. Congrats on the compliment from your old friend! |
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Aussie Barb Research Team
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Thank you Shegeek & Tux... and All.. Saturday August 27th 6.50am PHASE 2 / level .5 / cycle 3 / Day 8 / mino QOD > 25mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID heavy gut herxing, cyclical pulsing lip ache / pain big toe mild coughing, shortness of breath / managable with meds chest pressure when I lie down.. I have to sit up a bit to ease it and then lie down again.. antbite cramps back- often a sign for me needing to take 2nd abx . will see.. muscles catching some. have to jump around to straighten them.. managing all well. I am enjoying Phase 2.. (note: it is day 8 when I make this statement) |
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Aussie Barb Research Team
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mild gut herx in morning. sore left breast, continuous. 24H.. antbite cramps have been mild last couple of days.. getting nasty.. - often a sign for me needing to take 2nd abx. decide to experiment. Take mino 25mg - cramp relieved. that was a good find. therefore this will be an 8 day cycle.. plan to take meds tomorrow. |
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Dogster Member in Phase 3
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Hi Aussie Barb, always enjoy your posts and they are helful. Like your phrase "emotional herx" and now the "washing machine" thing. Glad you are progressing . . . I've been sick about as long as you, so watching your posts; MP-wise you are about a year ahead of me. You don't take any meds, pain pills or anything, other than MP meds? Dont see it in sig line. Have you ever been tested for lyme or mycoplasma or any of the other critters?? Interesting thing about the 25 mino best, dogster |
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Aussie Barb Research Team
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Sunday August 28th 5.40am PHASE 2 / level .5 / cycle 4 / Day 1 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID last night, laughing at the television and as usual began coughing terribly and then abdominal and back muscles go into painful spasm.. agony. cough drops and a warm shower helped. went to bed, couldnt go to sleep. chest pressure when I lie down, have to sit up a bit to relieve. Legs aching. got up and took Phase 2 abx - sleep. hands numb thru the night. gut herx humming this morning. a good reminder that this is still an active level of abx. and the big job I am doing.. note to self.. remember this effect when deciding whether increase is nec or not.. by the end of the cycle it is very easy to forget the hit of the herx. breast continues sore. . all is well.. |
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Aussie Barb Research Team
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Thanks Dogster I have been lucky to not have any real pain.. I have been tested for lots of things.. the one thing I know for sure is that I am full of inflammation and that nothing else was going to resolve it till MP.. My meds are in my sig line.. the benicar and quercetin, and 1/2 milk thistle tablet taken twice per day, and probiotics twice per day, and my natural progesterone spray all get me from moment to moment each day.. Barb ... |
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Aussie Barb Research Team
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Monday August 29th 7am PHASE 2 / level .5 / cycle 4 already! / Day 2 / mino QOD > 25mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Cyclical hard herxing yesterday.. reminds me of the power of this med. I can definitely feel very unwell as I go thru this herxing, but it is all tolerable when it is cyclical and for a good cause. Gut, full body aura feeling is heavy. emotional.. I can feel the crankiness, or the depression and know it is herx so not to act on it.. just to take meds for some relief.. needed Benicar Q4H some to get me thru.... . all is well.. |
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Aussie Barb Research Team
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Tuesday August 30th 7am PHASE 2 / level .5 / cycle 4 already! / Day 3 / mino QOD > 25mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Full body herx is sneaky. it can feel like nothing when sitting, and then to get up and walk I can really feel it.. like a heavy aura. When I have respite from the herx I begin to think I should have taken more abx, and then the herx is back and I know that is enough. When I notice my thinking starting to become negative against myself, it is time to take one of the meds for relief of the herx. Beni, Q or if it gets too bad, the mino.. Managing all well. . |
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Dogster Member in Phase 3
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Hi there Aussie Barb, from reading this last post of yours I think I see that I am not moderating the herxes quite as well as I should ( or have been, to this point). Am still on a steep learning curve. All in the middle of brain fog, LOL! I get the agonizing coughing fits and spasms too. Has been some better; is at its worst in winter, so will see when that gets here. . . . . Like your "full body heavy aura" concept. Dog |
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Aussie Barb Research Team
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I will reply to a PM here.. Q: "Do you have the brain fog and memory problems and all that. Mainly in the posts you mention physical symptoms, and mood--I dont see about brain ...." My Reply: My brain symptoms show in this way. I cannot read a book or magazine or cope with too much input at once, as in too many people in one room.. or to talk for too long on the phone, and I am only able to talk to some people I won't open the door to everyone that knocks.. moved to new area so is very rare to have a knock on the door.. I wont always answer the phone. There are some Family matters, or dealings with Businesses that I cannot handle dealing with at this point, so I stay away from that... I can't write/send Personal letters or cards or emails like I used to.. These are all things I used to be very good at.. I have had to set some boundaries about how much of MySelf I can expend.. Thank you for asking.. Barb ... edit to add further Q: has it improved? Reply: It is difficult to tell under the herx.. I am told that I sound stronger on the phone. All of the above is written in the present tense.. I am stronger in that I am thoroughly content and at peace.. 4 years ago I moved away from where I was born and lived all my life to take care of me in these ways.. to set these Boundaries because I could not keep it up.. I will definitely let you know about my improvements in ability.. Barb ... |
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Aussie Barb Research Team
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Wednesday August 31st 7am PHASE 2 / level .5 / cycle 4 / Day 4 / mino QOD > to 50mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Yesterday I was very tired. and wondering: there have been a few nagging signs re should I be increasing the mino yet.. the antbite cramps, tiredness, and the lessening herx.... but thinking that I would wait to see what days 4 and 5 would bring as they can be my worst.. This morning, bang, the antbite cramp hit hard on my left side ribs and arm, so painful... so I went and took mino 50mg.... relief.. so I have increased my mino.. if it is too much, mino 25mg will fix me up. I really do enjoy the everchanging of this phase. |
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Arlene inactive member
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Dear Barb, It is good to read that people who know you can see that you are better. I hope you will feel "well" soon, even though the MP is a long road to recovery. You are so good at knowing what to change and just how much. I have printed out suggestions you have made and keep them in my MP notebook. Your last post is another I will print and keep, hoping that I can use them as effectively. Sincere thanks for all you posts , ArleneLast edited on Wed Aug 31st, 2005 02:04 by Arlene |
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Aussie Barb Research Team
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Thank you Arlene... Thursday September 1st 5.20pm PHASE 2 / level .5 / cycle 4 / Day 5 / mino QOD > to 50mg yesterday / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Today I dont have any gut herx the big symptom is Fatigue. |
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Aussie Barb Research Team
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Friday September 2nd 4.30pm PHASE 2 / level .5 / cycle 4 / Day 6 / mino QOD > 50mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Our daughter is ill. coming to stay with us.. as has happened to me before, I have virtually stopped herxing.. no coughing. very little gut herx. just very tired. heavy gravity. I am consciously mentally emotionally fine Ok. My body reacts to the stress more than I realise.. |
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Aussie Barb Research Team
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Thank you to All for private messages.. Saturday September 3rd 4pm PHASE 2 / level .5 / cycle 4 / Day 7 / mino QOD > 50mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Feeling discouraged today.. tired. heavy going. Daughter is with us and ill.. herxing may be hotting up again?.. I havent been having the same active state of physical herxing to which I am accustomed.. that may be why I feel discouraged as well.. and being down is probably herx as well.. round and round.. I am still dependant on taking Beni and Q etc for relief but not as acutely. I just keep myself to my usual one moment, one day at a time.. |
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Dogster Member in Phase 3
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Hi there Barb, several things in your postings have been very helpful to me. Your concept and articulation of emotional herx. Mental herx creeping up and not recognizing until in your face. Your description of fine tuning use of mino or beni for herx relief (I'm not into stage of quercetin yet). Now, the other day when you stated cognitive things you used to do but no longer can (emails, certain people, certain aspects of household functions etc); I have gone into this stage (stage 3) in the last several years and realize fighting it doesnt help. You made a conscious choice to physically move (I think); I have didnt make a conscious choice but just creeped up into my life; glad I "see" it was a semi-conscious choice, now that is. Was worse when I was fighting it. Also, just the fact you have severe CFS and are a year ahead of me--and keeping track of you!!!! BTW, on Aug 24 post you said "relief" pills werent enough and went to the mino, 25 mg. What relief pills are you talking about. (I sure am not into suffering any more). Best, Dog |
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Aussie Barb Research Team
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Thank you Dogster ... Sunday September 4th 8am PHASE 2 / level .5 / cycle 4 / Day 8 / mino QOD > 50mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID when I speak about the relief pills not being enough that means I have taken Benicar at a 4H dose Quercetin capsule x 3 daily half a milk thistle twice daily probiotic twice daily natural progesterone spray prn for emotional state and that I am still looking around for something and I remember that something is mino 25mg.... In this last couple of days with the added stress of our daughter being so ill, I have realised also more about the perception of herx.. I thought that I had stopped herxing because I couldnt feel it the same way.. and I also became discouraged at how awful I felt physically... while holding it all together mentally and emotionally.. I am able to stay calm in the face of this dreadful situation. but.... when I go to move around I can tell that I am herxing still because of how physically debilitated I am.. The extra stress has taken away my perception of the finer feeling / listening to my body / herx as I concentrate on how to help our Daughter.. so I can see how it would be so easy to lose the perception of herx in a busier or different Life.. |
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BARNEY Moderator
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Barb, I understand how you feel. My parents seem to go in a vicious cycle and I know they need MP but at their age, am not even suggesting it. When you say you finally remember 25mg Mino.....how many times a day do we take 25mg? Can we take 25mg early in the day and then when I take my C qod can I take another 25mg mino? I want to clarify this as I don't want to get into a herx I cannot get out of. In a way, it would be nice to do MP with someone in the same house, but in the meantime, I am so sorry your daughter is so ill. Barney |
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Aussie Barb Research Team
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Thank You Barney... Our Daughter and seriously ill Son normally live together (3 Hrs away from us) 25 miles from town, and they support one another.. so her doing the MP there and unsupported....... or here... away from him, doesnt look to be a possible consideration at this point.. re 25mg Mino: After I have taken the other steps to keep herx controlled as above post, and I still have a need to slow the herx.. I take the mino 25mg.. and most times that is enough, I dont usually need to take it another time till my QOD dose is due.. since Phase 2 that has been within 8 - 12 H of taking the 25mg.. those 2 doses usually pull it up. as per the Intolerable herxing FAQ, frequent mino can be taken Daily, Q12H, or Q6H to a total of 100mg per day with the Benicar to slow the herx. (A more frequent dosing schedule although seeming counter-intuitive may dampen the Herxheimer reaction because the dose of mino is maintained at the less effective (ie. higher) level. Minocycline elicits the maximum Herxheimer response as its tissue concentration decays away to zero.) Barb ... |
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kathleen Member in Phase 2/3
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Dear Barb, I hope that your daughter will be doing better asap. XXOOO Kathleen |
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Aussie Barb Research Team
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Thank you All.... Monday September 5th 10.45am PHASE 2 / level .5 / cycle 4 / Day 9 / mino QOD > 50mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID When the herx is in a lull I say to my husband that I will increase next cycle. and he says that I told him to remind me not to increase next time.. Next thing, the herx is back and I know what I meant.. . . |
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Aussie Barb Research Team
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Me again ... Monday September 5th 1pm PHASE 2 / level .5 / cycle 5 / Day 1 / mino QOD > 50mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID ant bite cramps hit.. left neck earlier, then all down Right arm and ribs... need to take abx combo / begin next cycle... taken.. and hot pack.. relief.. |
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DNStog Moderator
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Barb, Glad hubby was there to remind you! Hugs, Donna still cruising ~~~~~ on Phase II |
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Aussie Barb Research Team
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Thank You Donna, Kathleen, All ... Tuesday September 6th 6.25am PHASE 2 / level .5 / cycle 5 / Day 2 / mino QOD > 50mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Symptoms that I have identified that let me know that it is time to begin the new cycle with the abx combo. Hip and leg pain / unable to sleep. hard antbite cramps in neck or ribs and down arm.. other symptoms may increase.. emotional, sludgey, coughing etc.. The new herx hit me good.. ugh! another reminder.. still don't increase it next time.. this is my 5th cycle at this level and I am at 50mg mino so far.. The Phase 2 doc says that it may be necessary to stay at a dose level for weeks or even months until you feel that you can comfortably tolerate more herx.. I'm impressed. . all is tolerable.. |
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Aussie Barb Research Team
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Wednesday September 7th 1.25am PHASE 2 / level .5 / cycle 5 / Day 3 / mino QOD > 50mg @ 44H today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Daughter still ill. stress. when I see my daughter ill, I know that even with the herx, I have improved from that level of sickness.. we have had to be in touch with the 'world' thru this.. and it is so frustrating that people do not understand the degree of illness. antbite cramp. woke chokey and mucus in throat. took mino 50mg 4H early. took Benicar, will go to bed again. I think my taste ability has improved.I am beginning to feel some stirrings / only thoughts so far, that I may be able to do some very little time of very tiny type of exercise or weights soon. I am still very limited in do-ability but it may be a start. my other symptoms that maybe of interest to others are: numb hands when sleeping. feet and toes changing degrees of swelling according to herx. I was surprised to see spaces between my toes, and went around comparing my feet and toes to check which was 'normal'. body odor rises and falls.. numbness in palate. pain in thigh bones when sitting. |
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kathleen Member in Phase 2/3
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Dear Barb, The image of you comparing your toes made me giggle. It really does get hard to remember what was normal pre-CFS. I hope that your daughter will get medical help as needed and start to improve soon. All of the rest of us also. XXOOO Kathleen |
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Aussie Barb Research Team
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Thank You Kathleen, All .... Thursday September 8th 1pm PHASE 2 / level .5 / cycle 5 / Day 4 / mino QOD > 50mg not today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID info FAQ: what an ant bite cramp feels like: Where I live, we have garden ants called green ants.. their sting really hurts. an ant bite cramp feels like the green ant sting does, in the neck or muscles. I also have an itchy toe with area of inflammation on top of foot. has felt bruised and itching. I notice that the MP meds even help this.. worn down clearing throat continuous full body herx is like heavy gravity but tolerable gut herx. . |
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Aussie Barb Research Team
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Friday September 9th 6.20am PHASE 2 / level .5 / cycle 5 / Day 5 / mino QOD > 50mg taken @ 44H / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Strong chest herxing. all tolerable when taking care.. Was almost tempted to take mino 25mg at some times thru night, but settled each time with Benicar dose. Chest pressure also flares when I lie down too quickly. so I have to sit up to let it settle before I lie down again.. Foot started off like a bite? now has itchy rash between 2 toes and on top of foot.. would be almost impossible to believe it is herx except that the MP meds settle it every time.. Toes are all fat again. must have been skinnier at the end of the cycle, causing the gaps between my toes. I had had thoughts re some tiny exercise.. in practice that is impossible yet. maybe a good idea to wait till I can at least do the washing up etc.. I am mildly short of breath all the time. . |
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Aussie Barb Research Team
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Day 5 Stress. downish. have been taking Benicar Q4H mino 25mg @ 17H. took everything and began to pick up.. |
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Aussie Barb Research Team
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Saturday September 10th 7.50am PHASE 2 / level .5 / cycle 5 / Day 6 / mino QOD > 25mg taken 17H ago / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Chest pressure has been more.. waking thru the night.. Benicar helps.. I am wondering if my Thyroxine levels may now be changing, my thyroid function may be improving... so will have to get a test.. gut herx, rash on foot same. I think I am experiencing the words of Belinda's FAQ What degree of healing is possible using the Marshall Protocol? which says in part: "Recovery of health will be as insidious as the original decline into disease and disability. Initially there will be instances of temporarily lessening pain and/or improved functioning, which may seem somewhat insignificant, given past experiences of waxing and waning disease. Over time, these pain-free episodes and improved functioning become more enduring. The eventual, cumulative effect of treatment is that the patient regains ability and health." << very insidious.. just an inkling... |
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Aussie Barb Research Team
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Sunday September 11th 6am PHASE 2 / level .5 / cycle 5 / Day 7 / mino QOD > try 50mg again today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID Less emotional herx. a couple of sore spots on abdomen at times. gut herx. rash on foot. all tolerable.. |
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Aussie Barb Research Team
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Monday September 12th 8.30am PHASE 2 / level .5 / cycle 5 / Day 8 / mino QOD > 50mg yesterday / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. the herx hit up soon after the mino for a few hours. then settled.. some mild face aching / glands in neck gut herx. rash on foot less itch. |
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Aussie Barb Research Team
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News: Daughter is back on her feet.. will go home again soon. Thank You for all thoughts and messages... your support has been very much appreciated.. Wednesday September 14th 2.35am PHASE 2 / level .5 / cycle 5 / Day 10 / mino QOD > 50mg yesterday day 9 / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. When I take QOD mino as 25mg I feel like a fraud.. for lack of herx.. yesterday, I took QOD mino as 50mg.. felt down in the mouth in the morning... dressing simply etc is a huge effort. We went out to Dinner.. very strong gut herx.. extra Benicar just scraped me thru for day 9 that was big herxing.. . |
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Aussie Barb Research Team
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Thursday September 15th 7am PHASE 2 / level .5 / cycle 5 / Day 11 / mino > 25mg Q12H x 2 / Benicar 20mg Q2H & 40mg Q4H night (need wakes me) / Quercetin TID. I recently became aware of a buildup of some symptoms (pounding heart / chest pressure type + etc symptoms) that seemed to be telling me that my need for thyroid med is diminishing as I am healing from MP. I was aware that decreasing this med may also cause some hormonal adjustment symptoms and that Benicar may be my best ally. As I am decreasing my thyroxine, the Heart symptoms have gone.. a relief. The herx on the other hand became more continuous and debilitating, and I have used the Benicar Q4H and the frequent mino 25mg to keep the symptoms tolerable.. Because of the almost continuous herxing on day 10 yesterday I will for the first time, extend this cycle as required. this morning so far, only my face and palate are aching .. gut may be just beginning.. |
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Aussie Barb Research Team
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Daughter is better than she was and has gone home. Grandson here for a few days and computer sharing.. Friday September 16th 6am PHASE 2 / level .5 / cycle 6 / Day 1 / mino QOD > 50mg today / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Yesterday I managed the day with the more frequent dosing of Benicar and mino 25mg Q12H.. generally physically yuk. slept better last night. |
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Aussie Barb Research Team
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Saturday September 17th 9.40am PHASE 2 / level .5 / cycle 6 / Day 2 / mino QOD > 50mg / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. I have been very tired and feeling puffy. Slept really well. very nice. I think the stabilising symptoms from reducing the thyroxine may be less today. clearing throat continuous. otherwise stable. feet and ankles and generally very puffy again lately. . |
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Aussie Barb Research Team
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Sunday September 18th 4am PHASE 2 / level .5 / cycle 6 / Day 3 / mino QOD > increase today to 75mg / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. tired and feeling puffy. Awake & mild gut herx 3am so got up for a while till settled. clearing throat continuous. otherwise stable. I find out about the herx more when I walk (only in the house) scalp herx some. |
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Aussie Barb Research Team
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Monday September 19th 9am PHASE 2 / level .5 / cycle 6 / Day 4 / mino QOD > increase to 75mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. I had been enjoying my Phase 2 experience: This last month has been more difficult due to Family stress and the buildup of symptoms which I see as showing healing, and therefore the need to reduce Thyroxine and then the ensuing hormonal adjustment symptoms... This aspect was only really difficult for a few days, and is settling now. I am at half the Thyroxine and will have a blood test this week.. I am coming thru this now and am experiencing a feeling of change to a more flat/even place at this point. Generally, moment to moment, I seem to be holding well emotionally. ie until I talk to someone on the phone. sleeping is generally better. clearing throat. scalp herx some. I think / feel that I may be able to increase the abx more now. |
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Aussie Barb Research Team
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Tuesday September 20th 6.25am PHASE 2 / level .5 / cycle 6 / Day 5 / mino QOD > increase to 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Still having less herxing. increased mino to 100mg. ability no obvious change. emotionally stable with less medicinal support. slept well for 4H. clearing throat. scalp & skin herxing. some itching under armpits. |
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Aussie Barb Research Team
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Wednesday September 21st 10.35am PHASE 2 / level .5 / cycle 6 / Day 6 / mino QOD > increase to 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Still having less herxing. mino to 100mg. I have been doing some slow movements of limbs, but it can cause extra chest pressure so only a minute or so at a time. emotionally flat. could be tired. slept well for 5H. all much the same. Dr this afternoon for Thyroxine level. |
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Aussie Barb Research Team
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Thursday September 22nd 5.35am PHASE 2 / level .5 / cycle 6 / Day 7 / mino QOD > 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Took mino 25mg and extra Benicar to be bright and bushy tailed to present to Dr.. was out and home within the hour. I felt a bit sick from the effort and the heat, but I was right again after being home & settled. The meds brightened me up no end, and I was able to see how much I had been herxing when I thought I wasnt herxing much this last few days. Continuing slow movements of limbs for 1 minute only at a time is what I can comfortably manage. I can do it while sitting. I am happy that I am able to do this now. slept well for 5H. |
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Aussie Barb Research Team
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Purpose: A Friend said to me " What you are doing (ie MP) takes guts." I hadnt thought of that.. While doing MP I do know that the symptoms are much easier to bear because of having a Purpose in mind.. Rather than putting up with discomfort for no purpose ie going further into disease..... For me it is very easy to put up with some managed discomfort in this moment when there is the determined choice and Purpose in this moment, of taking me forward to Healing and Health with MP. |
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Aussie Barb Research Team
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Friday September 23rd 11.35am PHASE 2 / level .5 / cycle 6 / Day 8 / mino QOD > 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. I feel to be making some progress.. I cant do any slow moving this morning... I had been managing 1 minute at a time.. is as much as I could manage without pushing myself.. and it is not worth pushing at this point yet.. I am happy to see that my body will do something as I can... when I have been so unwell that I have been unable, I started to think that I may not have any incentive / drive, but once again it has been proven to me that when I can I will.. and to keep trusting the process.. I have been healing in other areas of My Self as well.. I can feel some Inner Strength return.. a sort of expansion in my brain.. and or psyche.. I have a realisation of naturally observing more boundaries.. there is more of a limit to how much of myself that I can give away... ie a lessening of the manic ... able to observe this and say that is good / positive. so there is / has been a lot going on.. a lot of good by the look of it.. As I get better I realise how sick I still am and how sick / unable I have been.. To look at me and to hear me, no-one could know what it has been like.. I am just beginning to have an appreciation of how strong I have been, of the depth of .... I have been in.. |
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TickTock inactive member
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I have a realisation of naturally observing more boundaries.. there is more of a limit to how much of myself that I can give away... ie a lessening of the manic ... able to observe this and say that is good / positive. i'm so happy for you. it seems you're really healing! I'd love to know more about this quote, because i feel like it applies to me somehow, but i don't quite understand it. Please take your time getting back to me! |
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jrfoutin Research Team 
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And this while giving so much strength to others! I see a heroine. |
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Aussie Barb Research Team
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Thank you TT and JRF... I think we are All Heroes.. This healing for me has been in being able to feel the boundaries more, and to be able to heed that, and to see the change in priorities as positive.. I think that coming down on the Thyroxine now may be letting me feel the improvements.. Barb ... |
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Aussie Barb Research Team
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Friday September 23rd 9pm PHASE 2 / level .5 / cycle 6 / Day 8 / mino QOD > 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. This has felt to be the longest cycle yet.. dragging all the way thru to today/ day 8. The herxing has changed. with not as much gut herxing and now a full body sluggish herx. which I had thought was not really herx, till I medicated up with my Benicar, Quercetin, and mino 25mg + lipstick) to go to the Doc, and felt so much brighter in comparison. skin still oily. I was too tired today to do any slow movements .when I am able I will do some more. doing the slow movements caused me detox effects..(extra fatigue, mucus, headache (usually no headaches any more), slowed body function, burn, itch) |
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Aussie Barb Research Team
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Saturday September 24th 5pm PHASE 2 / level .5 / cycle 6 / Day 9 / mino QOD > 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. So Very tired. unable to do movements. resting. @ 39H / 8pm intolerably tired miserable. had taken Beni & Q. took mino 25mg. |
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Aussie Barb Research Team
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Sunday September 25th 7am / cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 1 / mino QOD > 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Slept soundly between Beni Woke some better this am, although not at level of being able to do my movements again yet. Antbite cramps start under arm / confirms for me it is time for abx. Began new cycle with an increase. ... |
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Aussie Barb Research Team
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Posting a Note here for anyone wondering what is happening re tired etc.. I have decreased my Thyroxine to half and my experience has changed. The herx has gone from the more particular herx to an all over general body herx. With the decrease, I expected to experience hormonal changes, and the Dr has told me it could be approx 6 weeks to adjust.. it is just part of the healing process.. all is well.. Thank you.. Barb ... |
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Aussie Barb Research Team
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Monday September 26th 6pm /cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 2 / mino QOD > 25mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. slow physically but managable. unable to do slow movements of limbs/ have to put that idea away till later I think. Gut Herx is tolerable.. waxes and wanes. can feel the body herx effect more when I get up from chair to walk. emotionally staying fairly stable with far less NPS than previously... |
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Aussie Barb Research Team
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Tuesday September 27th 7am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 3 / mino QOD > 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. I am tempted to increase the mino as there are times (when I am sitting down), when I feel like I am not herxing enough.. and then when the gut herx comes, I think, " no increase needed, that is quite enough"..... I think I am coming out of the fatigue again. is not as bad. I have a Dentist appointment tomorrow afternoon, and I have rung ahead and asked if, due to Light sensitivity, I may be taken to a room away from the Natural Light coming in the from windows and doors.. cordial reply ... "certainly, I will make a note. just remind us when you arrive.." |
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Aussie Barb Research Team
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around the 12 month mark: Noting improvement in emotional stability. Have just decreased Thyroxine by half and Natural Progesterone by half, and no IM methyl cobalamin B12 anymore. (all of which had enabled me to come off max dose antidepressants PRE MP) |
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patrickburke Moderator 
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Well done Barb, You are a real "battler". You are starting to win now. Pat. |
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Aussie Barb Research Team
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Thank You Patrick.... Tuesday September 27th 6.45pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 3 / mino QOD > 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. This is enough mino for this level. gut herx and fatigue tougher today. taking Q & Beni ... |
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Frans Member in Phase 2 
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Aussie Barb wrote: Have just decreased Thyroxine by half and Natural Progesterone by half, and no IM methyl cobalamin B12 anymore. (all of which had enabled me to come off max dose antidepressants PRE MP) Wow Barb ! This really looks like a great step toward health !! Your body is starting to funtion again !! Way to go !! xoxoxox sincerely, Frans |
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shegeek Member in Phase 3
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Hi Barb, What you said a few days ago about increasing boundaries... I have noticed this happening with me too, and it's amazing to me that it is so natural, as you said. I tried so many mental tricks and emotional exercises, and nothing helped, but now after some progress on the protocol it seems to happen all by itself. |
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shegeek Member in Phase 3
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BTW, congrats on getting to lower your meds! That must be a victorious feeling. Way to go! |
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Aussie Barb Research Team
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Thank you to Frans, Shegeek, and All for messages .... Thursday September 29th 6.45am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 5 / mino QOD > 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. I went to the Dentist yesterday. Took meds (Benicar, Q, mino 25mg) prior to protect and brighten me.. not far enough ahead though in hindsight I think.. I did well as far as avoiding the light went.. and no after symptoms. but I was very weak and the outing was disastrous in that way. I was out and back in around the hour. Thank you All for Congratulations on the thyroxine decrease and the emotional stability. However, physically it is very difficult, which of course affects me mentally, so I am having difficulty in acknowledging or celebrating anything while feeling so unwell. I have no problem with keeping on going.. I live in the now. and all is bearable with meds. I am doing what I need to do. and I am happy to do so. |
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Aussie Barb Research Team
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PRE MP, Denial has been a great survival tool to keep me striving and to keep me going.. The further I progress into the MP the more I can really see how ill I have been.. and am.. I can see that it is incomprehensible how much I do have to deal with. I have worked closely with people.. - and with cattle and goats and other animals and birds in farm management situations. and cleaning barns etc.. and all that entails. a lot of exposure to illness and toxic situations. I have had trauma and operations, and blood transfusions in emergency situations, the one time with 4 local townspeople called in to give the blood for my immediate use.. I need to acknowledge that I have truly been in harm's way in my Life in many many ways.. |
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patrickburke Moderator
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Barb, I am sure that the strength of character that carried you through life when you were ill (but denied it) will be more than enough to carry you through the healing process. Pat. |
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Aussie Barb Research Team
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Thanks Pat and All ... Friday September 30th 12.30pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 6 / mino QOD > 50mg @ 30H today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. decided to increase NPS again to lift fatigue. seems some better. dropped the other half of the Thyroxine. back to nil now.. clearing throat, not much herx, slight antbite cramps, skin herxing oily continues. much fatigue so took increased mino dose at 30H... |
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Aussie Barb Research Team
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Saturday October 1st 5.10pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 7 / mino QOD > 50mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. No particular herx, general full body fatigue and sludge. pulsing felt throughout body at times. Resting a lot today, but rest or sleep doesnt relieve. Having dropped the Thyroxine now, I will just have to get thru this till I get thru it.. I have a Sense of Purpose for doing MP, for putting one foot after the other, although I have no comprehension of what a better Life may be like. have not been feeling so great but I am strong in my resolve and where it matters. I know that there was / is no purpose in doing nothing, or in doing anything else, as I have tried it all... I don't like feeling physically awful, but I am content to do what I have to do for MySelf and for my Family's future, given their apparent Th1. I have been able to give my Parents and Family some hope with these postings Energy level of MP Graduates Thank you to Meg, Belinda, Guss, Dr Marshall, Sherry. |
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Aussie Barb Research Team
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Sunday October 2nd 6.45am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 8 / mino QOD > 50mg / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. I have been taking Benicar 20mg Q2H and 40mg Q4H night and that has helped some. I expect there will still be some adjustment time from coming off the Thyroxine completely.. or I may be better altogether for not having it... 10am Add: doing well today. nice upchange. antbite cramps at 46H took mino 50mg. |
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Aussie Barb Research Team
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Monday October 3rd 8 am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 9 / mino QOD > 50mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. I am hoping to be on the up now that I am off the Thyroxine. Yesterday was my best day for a while. I could put the washing in the machine etc. I was slow but at least I could do it. I could feel it by night time too.. and this morning.. Have kept the Benicar going Q4H as I am wheezy coughing if I dont. and I slept well last night between doses. although dreaming. Mostly cant feel any particular herx. Herx is General full body slow me down stuff.. and skin. gut sometimes. . |
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CLefelt Member in Phase 3
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Dear Barb, I'm glad to hear some good news and hope you notice that relief return. Carol |
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Aussie Barb Research Team
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A Letter from Aussie Barb : This letter is for my own future reference so that I may be able to really recall how very sick I do feel at this time.. and this letter is for those who are also struggling around the 12 month mark... I have been on MP for 12 months. I was sick enough Pre MP, but I could sometimes drive my car, go to the Beach, go to a shopping mall, visit Family some. It is no wonder other people have no comprehension of how sick we are... it is difficult to believe myself, and I am the one living this.. I am worse now physically, symptomatically, because of herx, than when I began MP. Yes it is difficult, and yes, it is difficult to see and or believe that there is a brighter day in sight.. I think of it as a Mid MP Crisis.... to have come so far and yet seemingly, with no end in sight, have so far to go.. I have not been feeling so great but I am strong in my resolve and where it matters. and I can do what I need to to survive (breathe and do the Board is about it ) and I am well taken care of by my husband. He works, manually outdoors ... and shops and cooks and cares for me.. he has to help me dress sometimes. My body is swollen and heavy and sick. I read eagerly all about Meg's and Belinda's recoveries.. I see that it was 18 months before Belinda could sustain any energy.. I have no actual comprehension of what the words Health and Future may even mean for me.. As the MP has gone on, I have been gradually coming out of the Denial that I have used as my survival tool... seeing more and more the Truth of how ill I truly am and have been.. and I despair for how long this is going to take for me.. and then I pull myself back to the now, and tell myself that it is doing what I was told it would do... that I would feel worse while the bacteria were being killed.. that this herxing is progress happening. I tell myself that I will do what it takes.. I will do this until... For me, there is nothing else to do.. I am worth every effort it takes for me to get to a Life that I havent had yet.. a Life I do not want to be cheated of completely.. I have to fight for that unknown Life. |
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DaveW Member
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Good Post (((Barb)))! I can so relate to your words, feelings and experience (and ongoing commitment in spite of little or no apparent or obvious progress to date). Thank-you for your honesty, and thank-you so much for the daily unselfish help and support that you provide to me, and so many others. I hope and pray that you will be rewarded with the experience of "health" that you have never fully understood, as you deserve it! With Warm Regards, - DaveW Last edited on Tue Oct 4th, 2005 03:11 by DaveW |
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Aussie Barb Research Team
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Thank you Carol and Dave and All... Tuesday October 4th 4pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 10 / mino QOD > 25mg @ 34H yesterday 9pm / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Became emotionally fragile and herx intolerable last night so took mino 25mg. Have been continuing Benicar 20 mg at Q2H, went to Q3H and became nauseous and coughing and fragile etcc.. I am ok as long as on the mino 25mg and the Benicar Q2H at the moment. I slept well last night between doses. although dreaming. Same herx story: mostly cant feel any particular herx. Herx is General full body slow me down stuff.. and skin. gut gets heavy herx sometimes. . |
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Aussie Barb Research Team
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Wednesday October 5th 3am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 11 / mino QOD > 25mg @ 30H 3am / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. woke with hard gut herx. took Beni. had to get up. feels like I'd been punched. Had to take 25mg mino.. going thru to back.. Right sided. lasted longest time. things I forget to say: herxy body odor rising again last few days. feet ankles etc are always swollen. hands legs go numb. I am ok.. my determination never wavers. 10am ADD: had a rest. have taken Benicar, Q, MT, Pbx gut herx continues hard. mino 25mg again @ 7H going with the flow for now.. |
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Aussie Barb Research Team
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Wednesday October 5th 3.35pm cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 11 / mino QOD > 25mg @ 30H 3am & 10am & 50mg 3pm / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Continued strong gut herx all day. Beni Q2H and Q etc and mino 25mg not having much effect. took mino 50mg 3pm. ADD: Strong gut herx beginning to come to tolerable 8pm. |
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Aussie Barb Research Team
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Thursday October 6th 5 am cycle 7 of PHASE 2 / level 1 / cycle 1 / Day 12 / mino QOD > 50mg Q12H 3pm & 4am just now / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Took extra MT and PBX before bed. Slept reasonably. silly dreams. Woke for Benicar. gut herx beginning again (@ 13H) 4am so slammed it with a mino 50mg straight up to be sure to settle it. almost instant relief. Factors influencing this increase in herx may have been the change in Thyroxine dosing.. I had expected there may be fluctuations requiring extra Benicar. At the first half decrease, and then again after the 2nd half decrease / complete cease, the herx seemingly stopped, and then I went thru a bout of continuous herxing.. needing extra Benicar and more frequent mino 25mg, - this time taking mino 50mg to stop it.. looks to be stabilising with the mino 50mg. . |
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Aussie Barb Research Team
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Thursday October 6th 2.10pm cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 1 / mino QOD > 50mg 3pm yest.. & 4am & 10am / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. Herx building too much again 10am (6H).. frequent mino 50mg is not enough to slow it. Time to begin a new cycle to see if it will slow this down. Dropped back a level again and took 50mg mino.. settling. tired but a little better. . |
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Aussie Barb Research Team
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Friday October 7th 6.50am cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 2 / mino QOD > 50mg 10am yest / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. some dry discomfort / coughing in throat. Gut herx has settled. Benicar back to 20mg Q3H now.. slept well after MN. tired debilitated all the time. some back discomfort when sitting.. thighs buttocks feel like they are drawing. |
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Aussie Barb Research Team
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this post from Dr Marshall says in part quote verbatim: "I do think it is important that CFS and Lyme patients do face up to the extent of their illness, however. Think about this - it takes 2 years or more for the bacteria to be killed, at the fastest rate your body can kill them. It is absolutely amazing what that quantity of bacteria must have been doing while they were living in your tissues  "Reply from GeorgeinRollaMO: Don't think of the two years ahead. Think of how bad the last twenty years were, and the next two years will seem like a pittance to pay for an additional twenty years, or more, of good health to come. Dark Vader (aka, George) |
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Aussie Barb Research Team
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Saturday October 8th 5.40am cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 3 / mino QOD > increase to 75mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. A better day yesterday. still slow. some occasional dry discomfort / coughing in throat. herx has settled. one day at a time. Have been having some slight pinching Heart / chest pressure herx. very mild headache early in night. panadol. slept well after MN. legs and seat and back discomfort continues. feet ankles etc very swollen. scalp and ears itching after mino this morning. antbite cramps on waking.. quick took mino (42H) relief. I seem to use the mino up quicker than 48H. |
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Aussie Barb Research Team
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Some recent thought processes took me back to thinking and feeling what it had been like for me in the last few years.. a decade. and more... I had been in such emotional pain.. deep desolate.. inconsolable dreadful pain... and all the psychological causes are trotted out as to why this may be happening... and I worked so hard to contain it, and to process it all.. Now after 12 months on MP, I suddenly realise that all this pain and desolation has gone.. I am no longer depressed.. I am not relying on those meds and processes etc to uphold me.. I was SICK!!! |
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Dogster Member in Phase 3
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!!!!!!!!!!!!!!YOU WERE SICK!!!!!!!!!! Yeah. Isnt it almost bizarre, freaky, --what is the correct word--that the infection/inflammation, ie the physiology can so much CREATE or at least influence greatly the person, the brain, the nervous system, the emotions,the psyche, the self . . . . Dog |
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Aussie Barb Research Team
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Thanks Dogster... Sunday October 9th 7am cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 4 / mino QOD > increase to 75mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. tired day yesterday. slow. some occasional dry discomfort / coughing in throat. more herx. one day at a time. Q2H Beni prn. just a couple of times. Have been having some slight pinching Heart / chest pressure herx. sleep is deep between wakes. doesnt seem helpful. legs and seat and back and neck discomfort continues. feet ankles etc very swollen. scalp itch. face palate throat ache. It seems long and hard. I want to be able to move and walk, and without payback. I am impatient but I can be / am patient. |
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Aussie Barb Research Team
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Monday October 10th 7.30am cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 5 / mino QOD > increase to 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. tired day yesterday. slow. some coughing wheezing. more when laughing. I take Beni and cough drops. Q2H Beni prn. just a couple of times. Have been having some slight pinching Heart and under left arm / chest pressure herx. sleep is deep between wakes.. legs and seat and back and neck discomfort continues. . scalp itch. face palate throat teeth ache. feet ankles etc very swollen. Sticky eyes this morning.. |
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CLefelt Member in Phase 3
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Even with the wheezing, glad to hear you're laughing! Carol |
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Aussie Barb Research Team
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Thanks Carol, I am a bit of a laugher.. too much so.. I start laughing and next thing I am choking.. Pre MP it was awful.. Now, I get my Benicar and my cough drops into me quick smart.. I am happy.. both despite and because I am dealing with the healing. Barb .... |
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Aussie Barb Research Team
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Tuesday October 11th 3.30pm cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 6 / mino QOD > increase to 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. tired. slow. quiet. finding it physically tough going at the moment. the tiredness. one day at a time. am ok mentally, emotionally. sleep is deep between wakes.. toes rash again. legs and seat and back and neck discomfort continues. . scalp itch. face palate throat teeth ache. feet ankles etc very swollen. Sticky eyes this morning.. antbite cramps under arm.. especially if I reach. |
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DNStog Moderator
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Barb, on Monday, you wrote: I am happy.. both despite and because I am dealing with the healing. You, too understand how important a positive attitude and a never give up stance are in our healing. Whenever I start to feel sorry for myself, I remember the hellish drug induced symptoms my husband went through as he fought gastric cancer with an experimental cocktail of chemo drugs that might give him a 35% chance of extending his life to two years - 5% chance if he did nothing. Nausea, chills and body spasms would resonate through his body and I would hold his head just to let him know I was there. The worst case of mouth and facial sores that his onocologist had ever seen greatly added to his misery. Add to this the lack of appetite, the nasty taste of all food, medications that sometimes eased his discomfort but were hard to swallow because of the mouth sores, the inability to stand or sit up for any length of time. He would sit and stare because his mind worked fine, but his body would not. Never did he ever think of giving up, even with the depression he frequently suffered and seldom did he complain. As you know and I know and so should those MPers who feel the most hopeless, he is currently in his eighth year of remission, feels good and is looking forward to walking his daughter down the aisle in two years and retiring in three. Recently our doctor's new nurse looked at my husband's medical chart which includes triple by-pass surgery two years before his cancer AND an abdominal aortic anuerysm repair three years after cancer and remarked "Your husband is literally a walking miracle." She is so right and if you ask him, he will tell you he would do it all over again. Giving up is not an option to anyone in our family. Because of Dr. Marshall, Meg, Belinda and the pioneering MPer's, thankfully not one of us has to suffer as badly as my husband did to get over our chronic, deadly diseases. Their dedication to helping so many of us who are virtually strangers leaves me speechless. Wishing you and all others well, Donna, Phase II still cruising~~~~ |
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Aussie Barb Research Team
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Thank you Donna .. To me, it is all relative.. depending on so many circumstances.. how sick we are and / or perceive ourselves to be, and what we are prepared to put up with or can put up with, and much more. It is something that we can only choose for ourselves for our own reasons.. it is not something we can do for others. I have been wanting to write about this but I find it very difficult to articulate how I am feeling at the moment as there are many facets and levels to the whole situation. much like the layers of the onion. My physical function has been limited to greater and lesser degrees for at least the last 25 years. Even so, inbetween times I have raised a Family, and I have been a very active highly functional person. I have suffered inconsolable desolation and yet been able to laugh.. At the moment, I have the information that I have been able to go off the Thyroxine... that I am no longer inconsolable desolate... and how do I feel? do I feel elated because of these things.. perhaps I should do... I cant rise up in elation. I am flat. I am here. I am managing. I am not at all unhappy or discouraged and I am fully into doing MP because I want a chance to find out what real Life can be. At the moment I am so physically debilitated that I feel that I may never find out. I want to be able to be functional. I want to be able to do more than just sit on the chair and not to be faced with easing myself up off the chair like an old lady. I can do this so easily in one way.. because it is what I have chosen to do.. and yet, it is not at all easy to do when I am faced with what I cannot do, with wanting to be able to walk and move my body. and when I am worse that way than what I had been. I can understand why some would wonder "is this the disease getting me or the herx.." why they would wonder "am I getting worse and not better.. How can this be better?" Underneath it all I know for sure it is the herx because the antibiotics can make it worse. For Myself, I have no concept of the words Health or Future.. as yet they are only words.. but something must be happening as I am wanting more now, it matters a little more now and I do get upset sometimes that it is taking a long time and I feel so awful and can do so little physically.. Knowing that Dr Marshall and Meg and Belinda and Others are so well is wonderful. It can give me a hope in a way, but I have to be able to put it with Me. Right in the moments when I am faced with my own reality, it is a long time. it is tough. I feel to be in the middle of a dark night, not at all knowing how far away is the dawn, or, if the dawn will in fact come.. I can do the time, one foot in front of the other. The many levels can be confusing and so difficult to articulate. The main thing I know is that I am committed to doing this. I am so prepared to do what I need to do. That is all there is to it. This is all I seem to be able to articulate at the moment. I thank All for great support.. it does help. I am fully into doing MP because I want a chance to find out what real Life can be. |
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Mary Member
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Barb, I only wish I could give you some of my better moments and better health...just to keep your hope alive. You have suffered more than most and yet are always willing to help us. I do think angel wings must be growing on you right now!! Thank you for all you give to us. Mary |
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scooker48 Member in Phase 3 
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Barb, I am thinking of you right now, and forgive me if I repeat myself here, but I know our: intelligence networked computers recorded knowledge MP community and persistance are STRONGER than the pathogens. Sherry |
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Aussie Barb Research Team
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Thank You Mary and Sherry .... Wednesday October 12th 1.50pm cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 7 / mino QOD > 2nd dose of 100mg / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. sleep is deep between wakes.. feeling a little better this morning. not soo tired. proves it has been herx. took the mino and the gut herx came more as usual later.. some bone pain in upper arms. antbite cramps under arm.. especially if I reach. toes rash again. legs and seat and back and neck discomfort continues. . scalp & face itch. mild palate throat ache. feet ankles etc very swollen. Sticky eyes this morning.. |
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Aussie Barb Research Team
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Thursday October 13th 6pm cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 8 / mino QOD > 2nd dose of 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / Quercetin TID. sleep is deep between wakes.. feeling a little better this morning. not so tired. gut herx hard at times requiring Q2H Beni. no increase of abx by the look of it. some bone pain in upper arms. very slight headachey at times. medicate. legs and seat and back and neck discomfort continues. . scalp & in particular face itch. face hands oily continues. feet ankles etc very swollen. mild sticky eyes.. Foot: One day when I was a child the arch of my left foot suddenly with no known reason, felt as if something had torn in there. It was sore to walk. Recently this soreness has been coming back. interesting. Lump: Right inner above wrist, subcutaneous. seems to be enlarging. not sore, no symptoms. |
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Aussie Barb Research Team
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Friday October 14th 10.30am cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 9 / mino QOD > 3rd dose of 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID sleep is deep between wakes.. better. feeling a little better this morning. I think I am coming out of the woods of thyroxine cease etc.. knock on wood.. & the particular Heart symptoms that I attributed to the T have ceased now. ie chest pressure when lying down.. gut herx hard at times requiring Q2H Beni. no increase of abx by the look of it. some bone pain in upper arms. very slight headachey at times. medicate. legs and seat and back and neck discomfort continues. . scalp & in particular face itch. face hands oily continues. sometimes just the tip of one finger will feel sore (not the typing finger) hehe feet ankles etc very swollen. sticky eyes better today.. |
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Aussie Barb Research Team
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Saturday October 15th 12.30pm cycle 8 of PHASE 2 / level .5 / cycle 7 / Day 10 / mino QOD > 3rd dose of 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID sleep is deep between wakes.. tired. subcutaneous (under the skin) ouch factor has risen again recently. transient gut herx and all over. I feel like I walk like a penguin due to herx. some transient bone pain in upper arms. very slight headachey at night usually. tylenol settles. legs and seat and back and neck discomfort continues. . scalp & in particular face itch. face hands oily continues. feet ankles etc very swollen. sticky eyes again today.. TODAY for the First time: I have eaten fruit straight from the refrigerator without having to warm it or wait till it is room temperature. this never happens forever. I can never usually bear to. |
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Aussie Barb Research Team
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My Reply @ Why do some patients suffer more than others on MP? I am another like Brad who has never had any antibiotics prior to MP. Pre MP I have had similar reactions to many many Homeopathics and some other treatments, as what I am having on MP, but the good thing about MP is being able to adjust the meds etc to achieve tolerable herxing.. I have been 'ill' for a very long time... most of my Life.. Managing what I have been thru in my Life, and what is in my Life, and with the use of all the meds, - within the Lifestyle that I have now, - being supported, and because I have necessarily separated Myself from the world of expectation, have made it possible for me to manage and do MP.. as Meg says, many Human Nature Factors coming together.. I document even my small easy to bear symptoms to help others to know what herx can be. For me, the Board serves as a good distraction from my symptoms, and I am happy to be a part of this great Community. all best to All, Barb .. |
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Aussie Barb Research Team
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Sunday October 16th 8am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 1 / mino QOD > 100mg / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID still need to take probiotics twice per day to keep IBS away but it may be improving a little. Quercetin TID also a necessity. MT also. emotional stability is a good experience. am almost off the NPS. I am astonished and wondering if it can last. one day at a time. sleep is deep between wakes.. all symptoms same. Left foot arch as previously mentioned is still niggling constantly. I feel that coming off the thyroxine mucked up my herx a bit but feel to be getting back on track now.. I hope. feels a little better than the last couple of weeks, although needing to rest a lot. legs and seat and back and neck discomfort continues. feel pulsing. . |
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DaveW Member
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Hi Barb, I sympathize and empathize with your struggles. Your strength and commitment is inspiring. For you (and others), I have a couple of simple stretches to help with the penguin gait, and the sore back. I have these problems as well, and have learned these stretches recently from chiropractors and physiotherapists. I am not sure they will help everyone, but they are quite benign (in that even if they don't help you, it is very doubtful that they will hurt you). To stretch and loosen the lower back and hip stiffness, cross your legs by placing one ankle on the knee of your other leg. The knee of your crossed leg should be held at approx the same height as your ankle, or close to the same height, if you can. Then, bend your upper body forwards to stretch (trying to make the lower back bend and stretch more than the upper back). Push to the pain threshold. Pushing slightly past the point where pain begins may be necessary to achieve results, as our lower pain threshold may cause us to feel pain before any real stretching begins. However, this should be done slowly and with care. The same process is then done with the other leg. This should be done with several repetitions with each leg - about three times a day. After a couple days the degree to which you can bend forward should increase, and the penguin gait should decrease. If you find that you can bend further forward with one leg up than you can with the other, it means that one hip (or side of your back)is tighter than the other. They should become equal if you do the stretch a couple times daily. Keeping the lower back and hips stretched by doing this exercise regularly should also help to reduce lower back pain, and increase your back's flexibility. To directly reduce lower back pain: The exercise of core abdominal muscles can (amazingly) reduce lower back pain. The following exercise is gentle and easy - to accomodate those with a stiff, sore back and little energy. Sit backwards in a high back chair that has no arms. This will have you facing the back of the chair. Sit as close as you can to the back of the chair. Then, wrap your arms around the back of the chair (or, hug it). Then, (keeping your back straight), push your stomach muscles (from pelvis to rib cage) forward - towards the back of the chair. Push as far as you can and hold until the muscles tire. Do several repititions, with short rests between each push. That is all there is to it. Try it just once. I think you may be surprised. The above exercise can be done alone. However, the following is an extension of this exercise, that gently exercises both the stomach and lower back muscles. After completing several repetitions of the above "abdominal push" exercise, sit up straight in the chair. You may wish to reposition your feet to ensure stability. Then, place your hands behind your head, and lean back (only slightly - perhaps 10 to 15 degrees), and then move back to sitting straight up. This is similar to a situp, except your position only ranges from sitting straight up, to leaning back slightly. If you keep your back straight as you lean back and straighten, only a few repititions can be amazingly effective. As your back stengthens with this exercise (over a week or so), you would have the option of leaning back a little further (or to whatever extent you feel comfortable). But try the exercise first with very little leaning. A great degree of leaning is not necessary for this exercise to be effective, and going back too far (before your back and stomach muscles are strengthened), could be asking too much of weak and unused muscles. I think these exercises are especially designed and effective for those whose disease has made them quite sedentary, and whose sedentary lifestyle may be contributing to their back stiffness and soreness. They are especially suitable for such folks because you can do them while sitting in a chair, and they take very little energy. My kind of exercise! Hope this helps. All the best! Regards, - DaveW |
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Aussie Barb Research Team
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Monday October 17th 12.40pm cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 2 / mino QOD > 100mg / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID sleeping more deeply.. cough, clearing throat, calling for Q2H Beni today. Left foot arch as previously mentioned is still niggling constantly. Gut herx has changed some.. there are jabs and flutterings in muscles. body odor, very chlorine-ish. legs and seat and back and neck discomfort continues. feel pulsing. ouch factor. strong herxing in bones in upper arms... Benicar Q2H relieves teeth, face, throat ache. oily face and hands. eyes blurry gritty. I cant see the turned down computer and tv if I wear even the 40% NoIRs at the moment. Noting Improvements: Off Thyroxine med completely. No Depression or desolation. Can eat fruit straight from the refrigerator! Voice sounds stronger. Skin healing happened earlier.. |
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Aussie Barb Research Team
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Tuesday October 18th 5.40am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 3 / mino QOD > 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID slept deeply.. woke a few times. cough, clearing throat, settled so far today. Left foot arch as previously mentioned is still niggling constantly. Legs really aching 3 am so got out of bed to computer to distract / relieve. legs and seat and back and neck discomfort continues. feel pulsing. ouch factor. face, throat ache. oily face and hands. eyes sticky blurry gritty. difficulty seeing anything really clearly. Others talking about cramping / muscle spasms.. I stretched and yawned last night and a muscle under my chin all balled up in a lump.. had to pat it out.. ouch! and same happens with abdo and rib and back and leg muscles.. Julia says it has passed for her. I look forward to the day! |
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Aussie Barb Research Team
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Wednesday October 19th 7am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 4 / mino QOD > 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID slept deeply.. woke only for Beni. woke with cough more intense this morning. can feel it in my chest. Left foot arch still niggling constantly. Very hard antbite cramp in left breast and arm last night. took Benicar and applied heatbags.. Beni still sometimes Q2H. legs and seat and back and neck discomfort continues. feel pulsing. ouch factor. face, throat ache. oily face and hands. eyes sticky. gut herx. |
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Aussie Barb Research Team
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Thursday October 20th 6.15am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 5 / mino QOD > 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID slept deeply.. woke only for Beni. woke less symptomatic, not racing for the mino and meds.. a nice change. Left foot arch. some transient antbite cramps. Beni still sometimes Q2H. legs and seat and back and neck discomfort continues. feel pulsing throb. subcutaneous ouch factor. face itch, throat ache. oily face and hands. eyes very sticky at times. gut herx. feels like something pressing against me. pressure. cant stand for long. |
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Aussie Barb Research Team
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Friday October 21st 6.15am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 6 / mino 100mg QOD > took 50mg last night @ 12H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID Blood Test results from a month ago: finally arranged to get them. would explain why I have been feeling under the weather. 25D coming down slowly. see sig line. Kidney function tests: says renal impairment with associated hyperuricaemia is present. see FAQ My kidney function tests are worse since I started the MP. What should I do? says in part It is not uncommon for subclinical kidney inflammation to be exacerbated due to the Herxheimer reaction. This is reflected in a temporary increase in creatinine and BUN. Many Th1 patients are surprised when they find out how much their kidneys have been affected by the disease.<< This shows lots of herxing, therefore healing happening. I have to be aware not to be pushing myself thru too hard.. As a reaction or a response to the news I took mino 50mg going to bed last night to slow the herxing some to take some of the pressure off, to go a bit slower for a while. slept deeply between wakes.. woke many times. woke coughing as usual etc this morning. Left foot arch. legs and seat and back and neck discomfort continues. feel pulsing throb. subcutaneous ouch factor face itch, throat ache. oily face and hands. eyes very sticky at times. feet and ankles swollen gut herx. feels like something pressing against me. pressure. cant stand for long. I always forget the black rings around eyes. |
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Aussie Barb Research Team
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Saturday October 22nd 1.15pm cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 7 / mino > 50mg Q12H / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID Decided to take the mino 50mg Q12H to slow down for awhile, and till I feel better than I have. Pinching in Heart area. sleepy and fragile. cough when meds due. pulsing thru body still. other herxing symptoms slowed.. gut, foot, eyes.. legs and seat and back and neck discomfort continues. subcutaneous ouch factor is less. face and throat ache. helped by frequent mino. oily face and hands. face itch cant stand for long. I have a sore to touch spot right side of my head. causes a headache at night. |
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Aussie Barb Research Team
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Sunday October 23rd 5.45am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 8 / mino > decrease to 25mg Q6H now / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID Felt awful all day yesterday so decided to decrease the mino 25mg Q12H to see if better for the slow down for awhile, and till I feel better than I have. Woke feeling relieved in comparison to yesterday. took first mino 25mg. Pinching in Heart area has gone today. Cough, none noticable this morning. Pulsing thru body still. Other herxing symptoms slowed.. gut, foot. Legs and seat and back and neck discomfort continues. Subcutaneous ouch factor is ouch. Face and throat ache. helped by frequent mino. Oily face and hands. Face itch Eyes sticky blurry again. Cant stand for long. I have a sore to touch any spot right side of my head. causes a headache at night. Took Panadol. settled. when I touch even the hair there is a shock like pain jab which spreads like an aura down to base of skull. lessens with massage. could be from the site of an old scar on top of head. (40yrs ago) headachey again now. will continue Q6H mino 25mg for this. |
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Aussie Barb Research Team
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Monday October 24th 4.15am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 9 / mino > 25mg Q6H / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID I am going to describe how I am feeling, for others who may have similar experience. There is me experiencing the herx and doing it rough. and me knowing it is a herx and that all is ok. My head, on the Right side, feels like it is bruised. At the slightest touch, beginning with the hair, there is physical > psychological shock and a spreading out hurt. I have had many hits on the head in my Life, and my head has been very sensitive to being bumped. physically and psychologically. So I guess that is why this experience is physical and psychological in nature. There have been a couple of hot flashes and panic type anxiety. and thankfully I can be outside of it at the same time. reassuring myself that it is herx and it will pass.. Making sure I am fed and rested and medicated. All MP meds as listed above + Tylenol prn are helping. |
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Aussie Barb Research Team
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Tuesday October 25th 4.15am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 10 / mino > 25mg Q6H / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ tylenol prn to settle I have been trying to define what this hair pain and head pain actually feel like. Just barely touching the hair gives the same sensation as a blow to the head.. so it is shocking and disconcerting.. scalp has some itch as well, so the touching is more careful now.. Physically and Psychologically hanging in by my meds.. taking all regularly as per above.. Last night going to bed, I noticed that walking around the bed to get to my side was some easier than it has been.. ie the overall herx effects have lessened. woke at 5H for Beni and mino 25mg. Feet ankles remain swollen. gut herx at times eyes blurry seat and legs face itch oily face and hands no cough chlorine BO |
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BARNEY Moderator
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Barb, I don't know if this is true or has anything to do with your hair feelings...but..I talked with a lady who is a cosmotologist (beautician) about my stepmom getting a perm since she has been on antibiotics so much. She explained that a lot of things like antibiotics go out thru the hair foliciles....don't know if this is fact but this was her explanation to me...could that be what the hair feelings are or could it be bugs are actually in our hair strands. Who knows (probably Trevor) or maybe Barb? Glad to hear your legs are doing somewhat better as you walk around your bed. Thank you Barb for all of the tireless jobs you do to keep all of us going. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aussie Barb Research Team
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Thanks Barney, Dr Marshall has said this.. >> Dr Alan Cantwell told me that the CWD bacteria love sweat glands and hair follicles. Take a look at Alan's paper at http://tinyurl.com/9yxxq One of the "moments of healing" for me was one morning in 2002 when I woke up and couldn't feel my hair anymore. Prior to this Liz had to cut my hair, as I was too jumpy at the barber's shop, and couldn't handle the transient pain. But one morning I woke up and realized that I couldn't feel my hair anymore. Well, I could feel it, but it didn't hurt in any way to run my fingers through it, or bend, shape, and mangle it. After being assured that was 'normal,' I settled back to enjoy another of the pleasures I had been missing all my life ..Trevor.. <<< Barb .... |
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Aussie Barb Research Team
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Tuesday October 25th 6.25pm cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 10 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ tylenol prn to settle Today has been a better day physically and psychologically.. I have kept the frequent mino dosing going despite, unusually for me, not feeling any obvious relief or effect for quite some time.. am looking forward to increased relief. The hair / head pain and sensitivity is decreasing and although still weak, physically I am in a bit better shape than I was. my eyes are blurry. cannot see with NoIRs on.. gut herxing. |
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Aussie Barb Research Team
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Wednesday October 26th 5am cycle 10 of PHASE 2 / cycle 9 at level .5 / Day 1 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ tylenol or aspirin prn to settle The head pain seems to be coming from the area around a scar I have on the Right top of my head. it seems to be in the nerves in particular. The sensation on touching, is felt down into the base of my skull, and into my ear, mouth and throat. The sensation is worst on first touch, and lessens with massage. left foot arch hurts again gut herx and discomfort rising again feet ankles (all of me) swollen. hard antbite cramp in upper left arm today. relieved with heat bag. sore glands right side of throat. chlorine BO. pulsing in head and body. |
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Aussie Barb Research Team
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Thursday October 27th 4.35am cycle 10 of PHASE 2 / cycle 9 at level .5 / Day 2 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Head symptoms are settling slowly. slept well, dreaming. not sure what. woke coughing.. took meds and cough drops.. I think this occurs when the Benicar goes just past the 6H thru the night. face and scalp itchy full body subcutaneous ouch. Taking all meds as above and making sure I am fed and rest keeps all managable. |
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Aussie Barb Research Team
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Friday October 28th 6.30am cycle 10 of PHASE 2 / cycle 9 at level .5 / Day 3 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Head symptoms are settling slowly. still a sore spot. continuing frequent mino. slept well. woke 5H for Benicar face and hands oily face and scalp more itchy left foot arch ache, eyes blur. coughing when meds are due. tired. R throat gland /ear mildly ache. chlorine BO. full body subcutaneous ouch. full body debility continues. Taking all meds as above and making sure I am fed and rest keeps all managable. |
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Aussie Barb Research Team
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1pm It is worth a special report to say that the sore spot on the R side head has resolved.. Headache, neck, glands all feel quite a fullness and ache. continuing mino 25mg Q6H and Q2-3H Beni and Q and MT and PBX to keep symptoms tolerable. will take some aspirin now to help. |
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CJ Member in Phase 3
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Hi Barb, You sure help me hang on. I find it so hard to articulate my experiences most of the time all I can seem to do is manage my protocol and keep on keepin on.....Oh thinking about kilts helps some Loves ya! CJ |
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Aussie Barb Research Team
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Saturday October 29th 12.40pm cycle 10 of PHASE 2 / level .5 / Day 4 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Head symptoms: I still have one sore to touch spot (so dont touch it) continuing frequent mino. glands / R ear/ head thick, mildly ache. slept well. woke 4H for Benicar. woke nauseous, chokey, coughing for some time. had to get up to manage. face and hands oily face and scalp itchy left foot arch ache, eyes blur. coughing when meds are due. tired. drawing sensation where seated. pulsing. subcutaneous ouch. chlorine BO. Taking all meds as above and making sure I am fed and rest keeps all managable. |
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Aussie Barb Research Team
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Sunday October 30th 5.30am cycle 10 of PHASE 2 / level .5 / Day 5 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ A lot of hip and leg pain last night in bed then eventually slept well. Head symptoms: I woke @ Beni and mino 25mg 7H. head soreness coming back some. had some head jabs same area yesterday. glands / R ear/ head thick, less ache. face and hands oily face and scalp itchy left foot arch ache, eyes blur. coughing when meds are due. tired. drawing sensation where seated is much worse today. pulsing in body. subcutaneous ouch. there is an ouch when legs touch eg. transient pain in upper arms. hands numb when sleeping. chlorine BO. Taking all meds frequently as above and making sure I am fed and rest keeps all managable. anyone healthy would not think it managed.. |
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Aussie Barb Research Team
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Monday October 31st 5.30am cycle 10 of PHASE 2 / level .5 / Day 6 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Eventually slept well. Head symptoms: I woke @ Beni and mino 25mg 7H. head soreness still present. head jabs, and transient pain down the back of the neck. I find this most disconcerting. I have had lots of trauma, and havent been able to bear my head being bumped in the slightest for years so I shouldnt be surprised knowing it is now healing. Any delay in meds schedule increases symptoms. again I am surprised and then think I shouldnt be. glands / R ear/ head thick, some ache. face and hands oily face and scalp itchy left foot arch ache, eyes blur. coughing when meds are due. tired. Drawing sensation where seated, continues. pulsing in body. subcutaneous ouch all over. transient pain in upper arms. hands numb when sleeping. chlorine BO. Taking all meds frequently as above and making sure I am fed and rest keeps all bearable to trudging along. |
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Aussie Barb Research Team
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Tuesday November 1st 5.50am cycle 10 of PHASE 2 / level .5 / Day 7 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Slept well. Head symptoms: head soreness still present. transient pain at the back of skull. The symptoms seem a little less so far today, I guess as it is day 7. It feels today like I have a cap on my head. This has been / is very difficult. very wearing and tiring physically and emotionally. I am astonished at the whole thing. and probably because of where denial has had me. Any delay in any of the frequent meds schedule increases head symptoms. face and hands oily face and scalp itchy left foot arch ache, eyes blur. coughing when meds are due. tired. Drawing sensation where seated, continues. pulsing in body. subcutaneous ouch all over. transient deep pain in upper arms. hands numb when sleeping. chlorine BO. Taking all meds frequently as above and making sure I am fed and rest keeps all bearable to trudging along. |
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Aussie Barb Research Team
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Tuesday November 1st Australian Culture: The first Tuesday in November they run the Melbourne Cup. Melbourne Cup Day is Australia's most famous Tuesday. It's a day when the nation stops whatever it's doing to listen to the race call, or watch the race on TV, and even those who don't usually bet, try their luck. At 3.00pm AEST, on the first Tuesday in November, Australians everywhere stop for one of the world's most famous horse races - the Melbourne Cup see The Melbourne Cup online World Clock |
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Robertrr Member in Phase 3 
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Barb, I hope the horse you were backing won! Take care! Robert |
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Aussie Barb Research Team
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Thanks, Robert.. This is how Google looks today >> The horse loved by almost the whole Nation, - WON!! for the third year in a row.. a Legend !! MAKYBE DIVA is her name.  |
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Aussie Barb Research Team
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Wednesday November 2nd 6am cycle 10 of PHASE 2 / level .5 / Day 8 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Slept well. Head symptoms: some head soreness still present. transient pain at the back of skull is less as the herx lessens with the days of the cycle. Any delay in any of the frequent meds schedule still causes increased head symptoms. face and hands oily face and scalp itchy left foot arch ache lifting a little with the end of the cycle, eyes very blurry. coughing when meds are due. tired. weak. Drawing sensation where seated, continues. pulsing in body. subcutaneous ouch all over. transient deep pain in upper arms. hands numb when sleeping. chlorine BO. still needing all meds frequently as above and making sure I am fed and rest. trudging along. |
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Aussie Barb Research Team
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Thursday November 3rd 7.40am cycle 11 of PHASE 2 / cycle 1 level 1 / Day 1 / mino > 25mg Q12H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Went to Dr yesterday. Covered etc. Stocked up on all scripts. Slept about 4H and got up. Head symptoms settled at time of writing. coughing clearing throat. face and hands oily face and scalp itchy eyes very blurry. tired. Drawing sensation where seated, continues. pulsing in body. subcutaneous ouch all over. transient deep pain in upper arms. hands numb when sleeping. chlorine BO. taking care, resting. |
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Aussie Barb Research Team
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Friday November 4th 6.10am cycle 11 of PHASE 2 / cycle 1 level 1 / Day 2 / mino > 50mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Last night uncomfortable in gut even after all meds, so took extra mino 25mg before bed. Slept well. Head symptoms settled, but some soreness still present. coughing clearing throat less. face and hands oily face and scalp itchy eyes very blurry, sticky again, itchy. tired. Drawing sensation where seated, continues. pulsing in body. subcutaneous ouch all over. transient deep pain in upper arms. hands numb when sleeping. chlorine BO may be less? taking care, resting. |
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flis Member
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Hello Barb, I was just wondering why you take mino everyday? I thought we are meant to skip a day between doses? Best wishes, Flis. |
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Aussie Barb Research Team
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Flis The aim or the key is to achieve and maintain tolerable Herxing (physically, mentally, and emotionally) by adjustment of meds dosing and schedule combined with the Essential aspects of diligently avoiding Light and vitamin D.. I adjust my medications as necessary to achieve tolerable herxing symptom resolution.. Barb ... |
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Foundation Staff . 
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Flis, It sounds like you've been on the MP awhile but are new to MP.com. You might find the following FAQ helpful: My Herxheimer reaction is too strong. What should I do? Best, Meg P.S. When you have a minute, please add the required signature line. Thank you. |
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flis Member
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Aussie Barb wrote:Flis Oh I see. I read that post by Meg as well and now I understand. I'll also update my signature when I get a chance. Does that mean if the herx is too strong for me to adopt a qod dosing mino, it is okay to proceed with a different dosing schedule? Thanks Barb and Meg. |
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Foundation Staff .
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flis, In order to make any suggestions about your situation, we would need to have the information required in your signature line. As always, your doctor is your best guide as to how to take your minocycline. Best, Meg |
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Aussie Barb Research Team
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Flis The FAQ My Herxheimer reaction is too strong. What should I do? has good explanations re the precautions and the options.. You may wish to begin your own Progress Report, so that any specific concerns you have may be addressed there.. thanks, Barb .... |
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Aussie Barb Research Team
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Friday November 4th 9.05pm cycle 11 of PHASE 2 / cycle 1 level 1 / Day 2 / mino > 50mg BID today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ If there is a sad herx there must also be a happy herx.. > this morning.. with no company. haha.. Tired by evening as is usual. Head symptoms: top right quadrant of skull and some at base of skull remains sore particularly when meds are due. coughing clearing throat at times. face and hands oily face and scalp itchy eyes very blurry, sticky all day, blink blink to see, itchy. Drawing sensation where seated, continues. pulsing in body. subcutaneous ouch all over. swollen feet ankles. hands numb when sleeping. chlorine BO may be less? I can feel the full body herx effect when I get up on my feet. taking care, resting. I find it difficult to draw the line on how much herx is enough.. but not wanting to push the sore head and etc .. I decide on the dosing moment by moment as I take all my meds and assess if I need something more yet to achieve tolerable. I write the symptoms so that perhaps others may also be able to recognise them in themselves.. I note here that I have experienced mental and emotional herxing and healing from MP. |
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Aussie Barb Research Team
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Saturday November 5th 2pm cycle 11 of PHASE 2 / cycle 1 level 1 / Day 3 / mino > 50mg then 25mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ all seemed quiet this morning then chest and Heart pressure building so took mino 50mg herx is harder today, day 3. was sad, fragile physically, cold in 80+ degrees then later, gut herx building... took mino 25mg middayish. relief. will need some more in 6H by the feel of it. tired. recently have been having bad antbite cramps which hurt deeply. relief by heat or hot shower.face and hands oily face and scalp itchy eyes very blurry. Drawing sensation where seated, continues. pulsing in body. subcutaneous ouch all over. swollen feet ankles. hands numb when sleeping. chlorine BO I can feel the full body herx effect when I get up on my feet. taking care, resting. |
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Aussie Barb Research Team
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Sunday November 6th 11am cycle 11 of PHASE 2 / cycle 1 level 1 / Day 4 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Herx continues, waking me thru the night, so Mino 25mg Q6H still required along with other meds as above to keep all tolerable. Gut herx and full body herxing all other symptoms continue as above.. |
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Aussie Barb Research Team
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8pm I feel as if I am finally out from under the Veil of the Thyroxine. a clear vision of full on herx at the moment. body, gut, eyes. all needing to keep the meds going as per above. sore spots: skull, abdo, left arm bone, under right forearm. subcutaneous ouch.. |
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Aussie Barb Research Team
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Tuesday November 8th 6am cycle 11 of PHASE 2 / cycle 1 level 1 / Day 6 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Herx continues, waking me thru the night, so Mino 25mg Q6H still required along with other meds as above to keep all tolerable. Gut herx and full body herxing. eyes very sticky, blinking to see. I wake aching all over like I have been beaten up. all other symptoms continue as above.. |
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Aussie Barb Research Team
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Wednesday November 9th 6am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 7 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ The herx has lightened off in some ways but not enough to extend the Q6H mino dosing and the Benicar can be Q2-3H for the most comfort. Herx continues, waking me thru the night. some urinary burning. Frequent Mino with other meds as above keeps all tolerable. Gut herx and full body herxing. eyes sticky, blinking to see. I wake aching all over. am all swollen bloated inflexible. subcutaneous ouch.. tired, resting when I need to. all other symptoms continue as above.. |
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Aussie Barb Research Team
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Thursday November 10th 7.40am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 8 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ The herx continues, has lightened off in some ways but not enough to extend the Q6H mino dosing and the Benicar can be Q2-3H for the most comfort. Frequent Mino with other meds as above keeps all tolerable. some urinary burning. some bone pain, some diaphragm flutters again. full body herxing. eyes sticky, blinking to see. face itches, and face and hands oily. tired, resting when I need to. all other symptoms continue as above.. |
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Aussie Barb Research Team
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Friday November 11th 8pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 9 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ sleep deeply between some wakes. full body herx continues. all tolerable while not pushing. while taking all meds frequently as above. burning continues. transient bone pain eyes not as sticky, still blurry. face itches, no rash. face and hands oily. mild numbness in nose, teeth, jaw. subcutaneous ouch head: areas sore to touch transient times of emotional sensitivity Drawing sensation where seated continues. pulsing in body. symptoms rising as the day wore on. time to begin next cycle. chlorine BO. taking care, more rest. swollen ankles feet etcc.. Noting Level of ability: yet unable to do anything that requires physical effort or sustained standing. |
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Aussie Barb Research Team
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Sunday November 13th 4am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 2 / mino > 25mg Q6H / Benicar 40mg -Q4H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ sleep deeply between some wakes. herx continues. deep painful antbite cramps if I try to extend the meds dosing. |
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Aussie Barb Research Team
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Monday November 14th 1pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 3 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Have had to keep all meds on a tight schedule. some relief this morning and I let the meds out a bit and up it came again.. tightened meds up again. I sleep deeply between wakes.. take meds. full body herx continues. gut herx up again. right upper quadrant. burning continues. eyes some sticky, still blurry. transient times of emotional sensitivity Drawing sensation where seated continues. pulsing in body. symptoms as above. chlorine BO may be more sweet with tighter meds schedule.. taking care, tired. resting. |
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dga5000 Member in Phase 2/3 
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Blimey Barb - all those symptoms and yet you answer all those posts with so much grace and enthusiasm. You're a star! Thanks for everything, Dan |
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Aussie Barb Research Team
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Thank you Dan.. Tuesday November 15th 12MD / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 4 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ mild coughy wheezy. is more than was. Keeping all meds on a tight schedule to hold all. I sleep deeply between wakes.. take meds. up from 2 am.. full body herx continues. full gut herx up today. gut is out, tight. eyes. hands numb while sleep. transient times of emotional sensitivity Drawing sensation where seated continues. sometimes quite quite. pulsing in body. symptoms as above. taking care, tired. resting. |
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Aussie Barb Research Team
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Wednesday November 16th 12.15pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 5 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ cough wheeze settleder today Keeping all meds on a tight schedule to hold all. I sleep deeply between wakes.. take meds. up for a while middle of night. full body herx continues high enough to keep me quiet. lighter than yesterday. eyes. transient times of emotional sensitivity Drawing sensation where seated continues. sometimes quite quite. pulsing in body. symptoms as above. taking care, very tired. resting. |
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Aussie Barb Research Team
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Thursday November 17th 12.05pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 6 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ cough wheeze rises when meds due Keeping all meds on a tight schedule to hold all. I sleep deeply between wakes.. take meds. up for a while middle of night. full body herx continues high enough to keep me quiet. eyes. transient times of emotional sensitivity Drawing sensation where seated continues. sometimes quite quite. pulsing in body. symptoms as above. taking care, very tired. resting. I always forget to report on the transient mostly thoracic muscle catches / spasms that often occur when I move.. (and under the chin... the muscle will ball up with a yawn.. painful.. has to be patted out..) |
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Aunt Diana Moderator 
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I don't know how you do it, Aussie Barb. But thank you, for the wonderul work you're doing. There are a lot of people depending on you. And rooting for you, too, to start feeling better. |
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Aussie Barb Research Team
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Thank you Diana ... and All .. Friday November 18th 6.20am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 7 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ cough wheeze more persistent esp when meds due. Keeping all meds on a tight schedule to hold all. I sleep deeply between wakes.. take meds. didnt need to get up. full body herx continues high enough to keep me quiet. eyes. transient times of emotional sensitivity continue. Drawing sensation where seated continues. sometimes quite quite. pulsing in body. symptoms as above. taking care, very tired. resting. transient muscle spasms. face, scalp itchy. |
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jrfoutin Research Team
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Same here, Diana. Don't know how she does it. The human interaction thing is a nobby problem set with the MP often enough, yet Aussie Barb holds the ship steady -- Always. Amazing. |
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Aussie Barb Research Team
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Thank you JRF and All ... Saturday November 19th 7am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 8 / mino > 25mg last 11H ago / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ suddenly this morning I can go longer between meds! I wont push too hard just the same. will prob do Q12H as I am clearing throat again now.. I slept deeply between wakes.. take meds. didnt need to get up. full body herx continues high enough to keep me quiet. eyes. transient times of emotional sensitivity continue. Drawing sensation where seated continues. sometimes quite quite. pulsing in body. symptoms as above. taking care, very tired. resting. transient muscle spasms. face, scalp itchy. Observations: through all these years of sickness my body has adjusted to help me to survive.. My blood tests for what I called my survival hormones.. ie those that helped me to carry on, were all high.. All those changes and more have to be reversed now as part of my healing process.. We were always told that if a wound etc was itchy that it was getting better.. so I feel that my itchy face and scalp are signs of my hormones getting better. In the past I was always One to overdo whenever it was at all possible. I seem to be over that.. and also it isnt possible for me to do much at all.. |
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Aussie Barb Research Team
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Sunday November 20th 5am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 9 / mino > 25mg lasts up to 11H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Yesterday I managed about 11H between Mino 25mg. Gut herx hard. full body herx lightened off some for some of the time. a change altogether. I slept deeply between wakes.. take Beni only. didnt need to get up. BO chlorine. eyes. blink blink Drawing sensation where seated continues. sometimes quite quite. pulsing in body. symptoms as above. taking care, very tired. resting. transient muscle spasms. face, scalp itchy. News: This morning my feet and ankles are slightly less swollen (right foot is always more swollen than left foot) The Gut Herx: for those who want to know: For me, the gut herx is mostly like a hive of bees in my gut.. not biting me.. buzzing.. I have had this herx since I first began MP. it can feel like a hard wooden plank pressing against me.. pressure... also upper right quadrant pain can be there.. also there is the bloating and pressure that requires probiotics twice daily otherwise I die.. |
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Aussie Barb Research Team
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Monday November 21st 5.45am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 10 / mino > 25mg Q12H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Yesterday I managed Mino 25mg Q12H by taking the Benicar Q4-6H at times. full body herx lightens off a little for some of the time. feels different. Gut herx. feet ankles still very puffy. I slept.. woke for Beni. got up 2 am. BO chlorine. eyes. blink blink rub blink Drawing sensation where seated continues. sometimes quite quite. pulsing in body. symptoms as above. taking care, very tired. resting. transient muscle spasms in back and ribs. face, scalp itchy. |
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Aussie Barb Research Team
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Monday November 21st 5.45pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 10 / mino > 25mg back to Q6H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ The gut herxing has risen again and I had to go back to mino 25mg Q6H today and all meds to get back to tolerable.. I am more tired recently. There are some small windows now that are different. I find it difficult to articulate exactly what.. In those times it is like I am separate from the herx.. perhaps it is that the herx is not as all-encompassing in those moments.. even though my gut may be herxing at that time. other symptoms same.. |
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Aussie Barb Research Team
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Tuesday November 22nd 5.10pm / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 1 / mino > 25mg Q6H yesterday afternoon and to 24H today / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Yesterday I had to use Mino 25mg Q6H and taking the Benicar Q4-6H at times. Today all herx lightened off .. then began to rise @ 18H. Gut herx. feet slightly less puffy. I just follow whatever I need to do at the time to achieve tolerable herxing.. I slept.. woke for Beni. got up 1am for a couple of hours and then back to bed till 6am. Drawing sensation where seated continues. sometimes quite quite. symptoms as above. transient muscle spasms in back and ribs. face, scalp itchy. |
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Aussie Barb Research Team
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Wednesday November 23rd 8am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 2 / mino > 25mg Q12H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ Chest is on the verge of wheeze / cough most of the time. transient collar bone herx. Gut herx. I slept.. woke for Beni and herx > mino 2am. got up. Drawing sensation where seated continues. sometimes quite quite. symptoms as above. face, scalp itchy. |
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Aussie Barb Research Team
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Thursday November 24th 8pm / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 3 / mino > 25mg Q6-12H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ I slept.. woke for Beni and herx > got up in the middle of the night and stayed up. unexplained pain in the tummy today so took all meds earlier and had a rest. was ok. Chest is on the verge of wheeze / cough most of the time. meds hold it down. transient collar bone herx, muscle spasms and antbite cramps. Gut herx milder day. Drawing sensation where seated continues. sometimes quite quite. symptoms as above. face and hands oily, and itchy face and scalp. eyes. |
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Aussie Barb Research Team
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Thank You All and Happy Thanksgiving.... Friday November 25th 4.45am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 4 / mino > 25mg Q6-12H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ I slept better.. woke for Beni only. Chest is on the verge of wheeze / cough most of the time. meds hold it down. all other symptoms continue as above. I was thinking about the stomach pain. how I didnt 'expect' stomach pain. and then a thought shot back to when I was less than 20 and so called healthy - when I was dropped to the floor in the shops with it. hmmm... it was on it's way back this morn when I woke up so took milk thistle and probiotics and Q. |
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Aussie Barb Research Team
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8pm I was told per phone today that I sound better than last time we spoke a few months ago. I had some sleep thru the day. herx was able to do mino @ Q12H today. some time of emotional sensitivity. mostly relieved by meds and make sure to eat helps. other symptoms continue as above. no more stomach pain. |
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Aussie Barb Research Team
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Saturday November 26th 7pm / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 5 / mino > 25mg still Q12H / Benicar 40mg Q6H & 40mg Q6H night (need wakes me) / MT / Quercetin TID / PBX BID/ wakeful thru the night. wheeze / cough / miserable/ moronic state. meds some help. eventually picked up. all other symptoms continue as above. |
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Aussie Barb Research Team
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Sunday November 27th 5am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 6 / mino > 25mg still Q12H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ slept weller. am ok. feel to be flat line. all else the same. subcutaneous ouch is high recently. |
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Aussie Barb Research Team
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24H 6pm No frequent mino or Q required to hold herx. some dizziness at 18H. relieved by having a rest and some food. gut and body herx same. no other changes noticed. |
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Aussie Barb Research Team
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Monday November 28th 5pm / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 7 / mino > 25mg Q24H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ slept till 2.30am and got up. napped this morning. Gut herx and wheeze / cough had risen this afternoon.. Q and Pbx taken with some relief, took the edge off it.. will probably require the daily mino 25mg any time now. |
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Tobi Member 
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Barb, What are you noticing on your reduced dose of Benicar.( 20mg rather than 40mg 6 hourly)? Are you more/less comfortable? Tobo |
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Aussie Barb Research Team
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Thanks Tobi I'd like to give it more time to be able to comment.. in other words there has been no dramatic difference as yet. I will report any findings as I know them. Barb ... |
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Aussie Barb Research Team
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Tuesday November 29th 5am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 8 / mino > 25mg none for 36H so far / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ the gut herx even though rising quite high yesterday afternoon was managed by the quercetin. no mino required. have gone 36H since mino now. gut herx is there, and waxing and waning, but tolerable. full body herx may have slowed. slept till 3am (6H) and got up. Yesterday, my lips became dryish, peeling a little, sore. some chest heaviness at times. eyes blurry sticky. eyes have been bloodshot sick for a long time. dark circles around eyes. some transient bone pain, collar bones and upper arms. hands go numb when sleeping face itch, no rash. face and hands oily. subcutaneous ouch left shoulder blade small patch of burning Chlorine BO Drawing sensation where seated continues. I think I can move a little easier, maybe feel a little lighter, but debilitated enough not to be sure. I will be pleased if this lifts some. I dont think I can say I am any more comfortable. I am practically non functional except for on a computer.. no wheeze / cough at the moment. my feet swelling is going down.. my feet look misshapen as it goes down unevenly. no antbite cramps. I have kept a list of symptoms so that I can evaluate any changes.. |
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Aussie Barb Research Team
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3pm update I am heading toward the 48H mark with no frequent mino. I have had to continue Quercetin and probiotics as previously to relieve symptoms. When I went over the 6H for the Benicar, there was a pressure in the gut that I wasnt sure which med was due to relieve this, and then realised it was Benicar.. fixed it.. Herx has continued to wax and wane. Normally have little to no social contact. Just had a visitor and I was surprised to see that it is still somewhat challenging. |
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Aussie Barb Research Team
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Wednesday November 30th 3am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 9 / mino > 25mg / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ was coughy chokey sensitive yesterday. I wont be pushing for the 48H mino schedule any more.. it was too much in the end.. I often find it difficult to define how much is too much till I can hardly move. I think I should stick with Daily mino whilever I am herxing enough in the day to rely on the other meds to settle symptoms.. My muscles may be less prone to spasm at any move. 11am edit: chest mildly sore. pulsing in body. wheezy wet difficult cough, mucus in throat. I have had the beni, and now the 2nd Q for the day, and will see if that brings relief enough.. will have the mino if it is not enough. 2pm: mino 25mg at 20H with relief. 5pm: went to Dr this afternoon. BP 110/75. Dr very supportive. |
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Aussie Barb Research Team
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Thursday December 1st 4.30am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 10 / mino > 25mg Q12H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ Well, since I changed to the new Benicar dose. I did all the experimenting on extending the mino... I sat thru hard enough gut herxing but I thought I can stand this, to see if I could extend the mino out to 48H.... and I could.. BUT... I found out that I paid for it afterwards. was more miserable and sick. so.... no more pushing it for me.. Maintaining the new Benicar dose, and taking frequent mino 25mg prn for as long as it takes. I feel happier. Feet still swollen, but maybe less. other symptoms same as posted above. |
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Frans Member in Phase 2
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Aussie Barb wrote: I feel happier That's good to hear for a change Barb ! xoxox love Frans |
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BARNEY Moderator
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Barb, I also started the Benicar 20mg q6hrs and feel great. Pain has lifted. I did not change the Mino at all. Why were you extending it out? For experiment only? Hope you feel a lot better since you have stopped having the mino experiment. It is sounding a little more hopeful for you today. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Aussie Barb Research Team
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8pm update: Taking mino 25mg Q12H today. all herx though still enough - was more tolerable than the last few days... Herx does truly so very easily sneak up when you are symptomatic.. My feet are more swollen tonight. hurting on the tops.. must go get my feet up.. Tomorrow is day 1 of the new cycle. should help. |
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Aussie Barb Research Team
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Friday December 2nd 7.45am cycle 3 level 1 / Day 1 / mino > 25mg Q6H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ Coughy clearing throat so mino 25mg Q6H today. Feet swollen.. tops of feet still burning feel, hurting. Maintaining the new Benicar dose other symptoms including full body herx and gut herx as above are maintaining but more tolerable than before. 5pm update: strong herxing day. mino 25mg Q6H continued. |
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Aussie Barb Research Team
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Saturday December 3rd 6.40am cycle 3 level 1 / Day 2 / mino > 25mg Q12H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ stomach uncomfortable last night. more IBS yesterday when herx was harder. slept weller last night. tolerable full gut / body herx so far, cough settled at the moment so mino 25mg Q12H. I take it as needed. other MP meds not so tight schedule required to hold. Feet have settled a little. Eyes are quite sticky blurry, blinking rubbing to see. hands go to sleep when sleeping. Drawing in seat and legs when sitting. subcutaneous ouch As herxing is the good news in MP, I always have plenty of good news.. and I am able to manage by adjusting my meds as needed. |
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Aussie Barb Research Team
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Sunday December 4th 8.40am cycle 3 level 1 / Day 3 / mino > 25mg Q12H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ Day 2 yesterday herxing was a bit quieter but plenty enough for anyone who would be trying to really function or work.. needed Q12H mino 25mg. definite, no extension. slept ok last night. some wakes, abstract dreams. Eyes. Drawing in seat and legs when sitting. Feet swollen but not as sore on tops. Day 3 today a bit slower herxing again. still enough but nice surprise. mino 25mg can go over Q12H but not to full day. other MP meds not so tight schedule required to hold. |
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Aussie Barb Research Team
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Monday December 5th 4.25am cycle 3 level 1 / Day 4 / mino > 25mg Q6H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ Day 3 yesterday herxing was a bit quieter in the morning and then rising higher in the afternoon. needed mino 25mg before Q12H. wakeful night. 1am gut herx, took mino. chest pressure, took Benicar. Eyes. Drawing in seat and legs when sitting. Feet swollen. |
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Aussie Barb Research Team
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Tuesday December 6th 6.45am cycle 3 level 1 / Day 5 / mino > 25mg Q6H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ I am still fine tuning the mino dosing re herxing. will take mino 25mg Q6H to hold it better than I have been. I have been tending to let it run and end up too worse for wear later. too debilitated sometimes. half dreaming wakeful night. Eyes. Drawing in seat and legs when sitting. Feet swollen. |
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Aussie Barb Research Team
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Wednesday December 7th 4.30am cycle 3 level 1 / Day 6 / mino > 25mg Q6H / Benicar 20mg Q6H / MT / Quercetin TID / PBX BID/ Continued mino 25mg Q6H. giving a better coverage. full body herx, with gut herx waxing and waning to some degree. wheezy cough is troublesome. can get chokey. Slept better. prob from tighter mino schedule. got up 2.30am. 5H. Eyes continue. Drawing in seat and legs when sitting. Feet swollen. subcutaneous ouch oily face and hands itchy face and scalp some fingers and toes have transient ache or needle stick feel. back ache and feel *something on it*.. have had this since a child. some transient bone pain, upper arms collar bones, neck, skull. |
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shegeek Member in Phase 3
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Hi Barb, You are always so in tune with your body and your healing state, and I am wondering if you have some formal way of making contact with your body and keeping track of what is happening for you. Do you have any exercises or meditations that you do on a regular basis? Do you have certain times of the day that you take stock? If you do, how do you stick with it, and did it take work to form the habit? I have a little exercise that I do; it consists of focusing on each part of my body in turn, breathing two or three times and sending it a message on the exhale ("I love my neck...I love my shoulders"...etc). It helps me relax and notice where I am tight. I have trouble sticking with it, tho, and I am more likely to notice when I can't work a calculus problem than when my muscles hurt. Please forgive me if you've answered this elsewhere in your posts. |
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Aussie Barb Research Team
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Thank you Shegeek I am sorry to say that I dont know of any one way other than a lifetime of learning by experience and of seeking to make that experience a better one. The last 2 posts at the bottom of this thread explain some of the changes I decided to make due to the pain and misery of trying to be 'normal' when my sickness decreed limitations became more than obvious to me ... I finally became conscious of the limitations and that I needed to stop. and be honest with myself and those around me. Due to the health of other Family Members also, I decided that living just one moment at a time was what we could manage best, that any more than that was too much at the time. It took some practice to get to living in the moment.. and as long as I can manage in this moment, I can remain content and peaceful. This began Pre MP. I was so very miserable and had to find a way to help myself.. as of course there was no other help available.. I needed to go from just being miserable with symptoms, to being able to know what would relieve.. and then next time, to recognise what was happening earlier than previously, becoming conscious of the first signs and to then remember what I had to do about it. When I made a recognition, I would write it down or ask a friend or my husband to remind me next time so I didnt spend so long in not knowing land suffering. and I would leave a reminder object in sight. Now. Similar to any physical herxing, - when I have misery or emotional herx, I find that it helps to be able to be outside of the experience as well, and to be able to say.. this is herx.. what do I need to do to relieve the symptoms.. this too will pass.. (not always said as serenely as this sounds) I am accepting of the herxing symptoms because I know that my body has been activated into taking care of me now, and that I am lucky enough to have a way to manage that response to a tolerable level for as long as it takes.. I would say that learning to live in the moment.. to deal with the what truly is - now. not the what might be. but what is. It has taken a lot of scary realisations, and grief, and courage. and great support and friendship and Love. it has all turned out to be blessings in the end.. This link and the links within may contain helpful information PAIN CONTROL all best, Barb ... |
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Aussie Barb Research Team
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Thursday December 8th 4pm cycle 3 level 1 / Day 7 / mino > 25mg Q6H / Lowered Benicar dosing / MT / Quercetin TID / PBX BID/ Slept better. woke 1.30am for meds and back to sleep for a change. Continued mino 25mg Q6H keeps the herx managed, tolerable. antbite cramps strike hard a few minutes to half an hour pre meds due time. relief by meds. Relatively speaking I think today is my best day so far. it feels like a lifting of something. not doing more but the feeling is different. Thyroxine side effects of being hyperthyroxed and stopped med must be past and the Benicar change seems to be working for me. Day 7 and the herx has lightened off compared to previous days herxing. lighter full body herx, with gut herx waxing and waning. all symptoms in above posts are less today. Feet same swollen. subcutaneous very ouch. some mild soreness around head, neck. occasional knee and elbow pain. always worse by evening. dead stopped by bedtime. |
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DNStog Moderator
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Your post today has me @@@@@@@@ xoxox donna |
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Jill T inactive member 
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What good news! It looks like the new Beni dose is really helping you! Yahoooooooooooooooo! Jill |
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Aussie Barb Research Team
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Thank you for All good friends able to celebrate for me. Friday December 9th 11.40am cycle 3 level 1 / Day 8 / mino > 25mg Q6H / Lowered Benicar dosing / MT / Quercetin TID / PBX BID/ Slept till 12mn for meds and back to sleep till up at 3 am. 6H. Continued mino 25mg Q6H keeps the herx managed, tolerable. can go a little over time so far today. also need all other meds as above. Day 8: no antbite cramps today. more like a holiday from herx. relatively speaking. looks like I am settling into stability again after all the thyroxine thing. 3 months, and symptoms were building up before that. with light full body herx, and gut herx waxing and waning. all symptoms in above posts are less today. Feet same swollen. subcutaneous very ouch. some mild soreness around head, back of skull. no obvious increase in ability or energy yet. always worse by evening. very hot days.. have a fan and an air con.. 34C/ 95 degrees inside. time to put the air con on.. |
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jrfoutin Research Team
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"Thyroxine side effects of being hyperthyroxed and stopped med must be past" Woohoo!!!! You know it has to be great to overcome a "lifetime" medication like that. But you did it!!!! It hasn't been easy, either. You really are a champion. I do hope you get a mini vacation from moving the big boulders now and again. (Just don't do it in the sun .)Last edited on Fri Dec 9th, 2005 02:11 by jrfoutin |
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Aussie Barb Research Team
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Saturday December 10th 9.25am cycle 4 level 1 / Day 9 / 1 / mino > 25mg Q6H / Lowered Benicar dosing / MT / Quercetin TID / PBX BID/ Slept till 12mn. auto wake for meds and back to sleep. 7H. dreams. Has been some mental (the cant do's) and emotional (teary fragile) symptoms last couple of days. antbite cramps back again yest afternoon when meds due. wheezy coughy wont settle yest afternoon and today. The continued mino 25mg Q6H not holding the inflammatory symptoms yesterday afternoon and this morning even with other meds as above. time to do day 1 again. full body herx is moderate, and gut herx waxing and waning. eyes Feet swollen. subcutaneous ouch. some transient pin pricks and stings. mild transient pain in bones. these just make me jump in the moment. area of paresthesia on my left shoulder blade. chlorine BO. |
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Morris W. Milnes Member 
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You are amazing. You are feeling doubtful and fragile, and yet you remain a solid rock for the rest of us. thank you, Morris |
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Aussie Barb Research Team
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Monday December 12th 5am / cycle 4 @ level 1 / Day 3 / Phase 2 Aug05 mino > 25mg Q6H / Benicar 40mg Q6H / MT / Quercetin TID / PBX BID/ Slept. auto wake for meds and back to sleep. Miserable with emotional (teary fragile) symptoms last couple of days. wheezy coughy. The mino 25mg Q6H not holding the symptoms even with other meds as above. Desperation: increased Benicar to 40mg Q6H last night. will monitor today. gone to 20mg Q2H.. full body herx is moderate, and gut herx waxing and waning. eyes Feet swollen. subcutaneous ouch. some transient pin pricks and stings. mild transient pain in bones. these just make me jump in the moment. area of paresthesia on my left shoulder blade. chlorine BO. |
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Aussie Barb Research Team
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Tuesday December 13th 5am / cycle 4 @ level 1 / Day 4 / Phase 2 Aug05 mino > 25mg Q6H / Benicar Q6H / MT / Quercetin TID / PBX BID/ took Benicar 20mg Q2H all yesterday, and 40mg to go to bed. monitoring need for Benicar today. Slept well. 7H Woke normal for MP today. full body herx is moderate, and gut herx waxing and waning. Drawing in seat and legs when sitting. ouch. Feet a little less swollen. subcutaneous ouch oily face and hands itchy face and scalp some transient pin pricks and stings. mild transient pain in bones. these just make me jump in the moment. burning area of paresthesia on my left shoulder. chlorine BO. |
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Aussie Barb Research Team
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Wednesday December 14th 6.25am / cycle 4 @ level 1 / Day 5 / Phase 2 Aug05 mino > 25mg Q6H / Benicar 20mg Q6H, 40mg night / MT / Quercetin TID / PBX BID/ took Benicar 20mg Q6H again all yesterday and all was MP normal. Had a little window of lift / clearer than usual in the afternoon.. resting as needed. Benicar 40mg to go to bed. Slept well with some wakes. 7H Woke normal for MP today. full body herx is moderate, and gut herx waxing and waning. Drawing in seat and legs when sitting. ouch. Feet a little less swollen. subcutaneous ouch oily face and hands itchy face and scalp eyes sticky blurry. I always forget to say eyes are bloodshot, glassy and deep in the sockets, with black rings around. mild transient pain in bones. burning area of paresthesia on my left shoulder. sweeter BO today. is there a tiny glimmer of hope today.. but not more able yet. |
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Aussie Barb Research Team
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re Lowered dose of Benicar: I have trialed the 20mg Q6H and seemed to be going along ok till suddenly mentally emotionally unable.. Took Benicar 20mg Q2H to get me out of that and had to have one more go to make sure.. yesterday, one day of 20mg Q6H, doing ok.. some maybe transient wonderings.. hmm... today could feel the inflammatory symptoms starting to build.. Began Beni 20mg Q4H chokey mucus cough overtaking me... fragility coming.. nausea.. so back to Benicar 20mg Q2H for now till I get on top of it.. (it is day 5 of the present Phase 2 cycle). |
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Aussie Barb Research Team
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Thursday December 15th 6.35am / cycle 4 @ level 1 / Day 6 / Phase 2 Aug05 mino > 25mg Q6H / Benicar 20mg Q2H, 40mg night / MT / Quercetin TID / PBX BID/ Benicar 40mg to go to bed. Slept well with some wakes. 6H main problem is nausea, stomach. and full mucus in throat and post nasal drip. drinking water, eating fruit. more probiotics. coughing when meds are due. taking Benicar 20mg Q2H. mino 25mg Q6H. still feeling the little glimmer. must be a move in the right direction. not more able yet. later add: today, walking from A to B (chair to chair) is a little easier than before because full body/gut herx is a little less, still some aura. resting as needed. full body herx is milder, moderate, and gut herx waxing and waning. Drawing in seat and legs when sitting. Feet a little less swollen. subcutaneous ouch oily face and hands itchy face and scalp eyes. mild transient pain in bones. burning area of paresthesia on my left shoulder. sweeter BO. |
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Aussie Barb Research Team
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Friday December 16th 6.45am / cycle 4 @ level 1 / Day 7 / Phase 2 Aug05 mino > 25mg Q6H / Benicar 20mg Q2H, 40mg night / MT / Quercetin TID / PBX BID/ Benicar 40mg to go to bed. woke and up thru the night then slept well. stomach settled some. post nasal drip. wheezy. chest. coughing chokey when meds are due. taking Benicar 20mg Q2H. mino 25mg Q6H. full body herx is milder, moderate, and gut herx waxing and waning. Drawing in seat and legs when sitting. Feet a little less swollen. subcutaneous ouch oily face and hands itchy face and scalp eyes. mild transient pain in bones. burning area of paresthesia on my left shoulder. sweeter BO. News: Can walk more normally today so that I can actually feel / recognise for the first time that I have almost siezed up from not being able to move. very quickly is too much / exhausted.. I remind myself that all it is now, is practice.. resting as needed. |
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anne p inactive member 
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Dear Barb I have been following your progress each day and mentally sending good thoughts your way. Take care, glad your body loosening up a bit now. love and hugs from a silent but still very watchful Anne xxxxxxxxxxxxx |
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Aussie Barb Research Team
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Thank You to All.. Saturday December 17th 5am / cycle 4 @ level 1 / Day 8 / Phase 2 Aug05 mino > 25mg Q6H / Benicar 20mg Q2H, 40mg night / MT / Quercetin TID / PBX BID/ afternoon and night. step up of wheezy feel chest. post nasal. choky cough. these are the main problem now. Pre MP, I would have said that my lungs were fine. I remember that pre MP I did have the big bringing up of thick mucus every so often.. and it was becoming more frequent. again last night. then stomach settled. taking Benicar 20mg Q2H. mino 25mg Q6H. Benicar 40mg to go to bed. slept well. full body herx is milder, moderate, and gut herx waxing and waning milder. Drawing in seat and legs when sitting. Feet swollen. subcutaneous ouch oily face and hands itchy face and scalp eyes. burning area of paresthesia on my left shoulder. BO chemical again. recently I have noticed another change.. Doing MP I had had a 'runway' down middle of my back of sloughy skin cells each day. I did some walking around the furniture to get a feel of it and to use what I have. began to feel sick. a good reminder for eager beaver to go slow, so stopped. it did loosen me up some and I can feel the muscle soreness. I remind myself that all it is now is practice.. my back muscles need to be strengthened too for standing.. resting as needed. |
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Aunt Diana Moderator
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Way to go!!! Awsome Barb |
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Aussie Barb Research Team
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Thank You to All.. Sunday December 18th 8am / cycle 4 @ level 1 / Day 9 / Phase 2 Aug05 mino > 25mg Q12H / Benicar 20mg Q3H, 40mg night / MT / Quercetin TID / PBX BID/ Symptoms have lightened off yesterday afternoon and night. Went out for a drive (husband driving) - to buy a takeaway salad dinner..(delicious by the way) I am beginning to be able to think in terms of small outings. that is big.. I dont find the headlights to be dazzling any more. but cant see thru the NoIRs with the blurred eyes thing going on anyway. I get a shock though as to my limitations. In my head I think I can do anything.. but uh oh.. I say to my husband, we should go for a little walk at nightime.. and then I notice that to walk inside is far enough yet. at least the longed for thought process has finally arrived.. Couldnt get to sleep.. a bit of time on the Board and back to bed. Slept so well and even Slept IN.. and less symptomatic. mino to Q12H and Beni to 20mg Q3H.. what a difference a day in MP makes.. one day at a time. aahhh feet are down some more today too.. heyy this is looking good.. Drawing in seat and legs when sitting. subcutaneous ouch eyes sticky gritty sore blurry. burning area of paresthesia on my left shoulder. BO chemical again. eager beaver is shown the necessity to go slow, simply by limitations. I remind myself that all it is now is practice.. my back muscles need to be strengthened too for standing.. resting as needed. |
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BARNEY Moderator
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Barb, My heart leaps for joy for you. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Jill T inactive member
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"What a difference a day makes!" That statement is perfect for a mantra while on the protocol. It may very well keep us going, knowing from experience that this is so true. Great to see that you are having some lifting of symptoms!!!! So happy to hear that!!!! Jill |
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Aussie Barb Research Team
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Thank You to All.. Monday December 19th 6.20am / cycle 4 @ level 1 / Day 10 / Phase 2 Aug05 mino > 25mg Q6-12H / Benicar 20mg Q3H, 40mg night / MT / Quercetin TID / PBX BID/ More tired than anything else. very tired. I was able to converse(only) with visitors. my husband was at work. Herx tolerable with beni 20mg Q3H and mino 25mg went to about 8H. feet swelled again during the day. down a little this morning again. Drawing in seat and legs when sitting. subcutaneous ouch. eyes . burning area of paresthesia on my left shoulder. BO resting as needed. As I can, try to do a little walking around inside, and standing, to increase muscle strength.. 11am ADD: it is worth noting that today with less herx my muscles are stronger anyway.. all by themselves.. that is even better.. |
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Aussie Barb Research Team
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A different sort of report today: I think in my head that I am so physically clever but of course I am NOT..when I go to do anything I am very unable .. But ...some sort of window has opened in my mind... it says that I can go out a little.... where I couldnt even try before, wasnt interested and of course couldnt manage any aspect of it comfortably... this is good progress. Having a shower is a big effort and takes a sit down and lie down rest to recover.. getting dressed in minimum possible is a huge effort, with help.. I did manage to sit and converse with visitors the other day (was here by myself).. while they kept our glasses filled with water.. and I had the air con and the fan on high.. I have been more knocked out emotionally ever since.. but I was able to do it. we have driven out 2 nights now to buy some salad dinner as DH is working long days.. I walk with support very slowly the short distance into the shop and back. all progress.. I am herxing more heavily than I realised. I have now realised that I have a lot of all body herx that I may not necessarily *feel* as herx, which is present as weakness and debility.. I had a window yesterday where some of it actually lifted enough that I could tell the difference.. that was a lightbulb moment in itself. aaahhh... >> The weakness and debility is heavy herx.. I sure am a work in progress. |
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BARNEY Moderator
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Barb, Such wonderful news, we are all rejoicing with you and count on your continued improvement. When we are well, we will meet, I have to see this wonderful person and give her a hug. HANG IN THERE, WE WILL MAKE IT!!!!!!!!!! BARNEY |
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jrfoutin Research Team
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To even feel like going out for a salad is great news. Even moving slowly from ride to shop and back to ride and home again is progress. So glad your windows are finally opening to view the future. You can do it. I know you can! |
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Julia Member in Phase 3 
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Great stuff, Barb! Take care - we need you!!!   Julia |
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Aussie Barb Research Team
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Thank You to All.. Wednesday December 21st 4.20am / level 1 / day 12 / Phase 2 Aug05 mino > 25mg -Q6-12H / Benicar 20mg Q3H, 40mg night / MT / Quercetin TID / PBX BID/ I have been feeling emotionally exhausted after the visitors. I am becoming more aware of emotional energy.. of what it is, of using it, and the feeling of the lack of it. Pre MP I knew I couldnt bear to see someone heading towards me to *talk* .. it was like pulling the electric cord from the point.. so I isolated myself to survive by moving to a new locality and by cutting contact with almost all.. Following the visitors this week, although I managed at the time, I have been in definite deficit after the event. I have found that it takes emotional energy to have an exchange of niceties in any form. not just face to face or on the phone.. it is why I havent been able to write letters or cards for years now.. Rest is good but doesnt pick up the emotional energy very fast.. it seemed to be lagging.. this is all part of the healing that is happening.. and good to recognise how we need to take care of ourselves, by setting boundaries to how much we can do.. by delegating what we cannot manage.. and I let go of the obligations and expectations years ago, in favor of doing what I can manage and what I enjoy.. Have been tired. could feel the picking up some in the emotional energy last night. no anxiety or depression. I am content and managing all well in the moment. Herx tolerable with beni 20mg Q3H and mino 25mg went to about 8H. feet are down a little more this morning again. Drawing in seat and legs when sitting. subcutaneous ouch. eyes . burning area of paresthesia on my left shoulder. BO resting as needed. what has happened so far: the difference is that the full body / gut herx occasionally now has little times of being lifted enough, and in those occasional times, I can now stand or walk a little time or distance, when before - walking standing have been hard work with the herx like a heavy aura. I always had to quickly sit down on the next chair available. The mental and emotional healing has been here quicker than the physical. what I have learnt since healing with MP re so called psychological issues: the issue isnt the issue... it is all in the tissue.. |
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Betsy G Member in Phase 3
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Hi Barb, I just read your post about going out for a salad dinner. Great news!! Your "windows" are fascinating and promise a brighter future for you. Congratulations on your progress! Wishing you all good things, Betsy G |
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Aussie Barb Research Team
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Thank you to All... Wednesday December 21st 12MD / level .5 / day 12 / 1 / Phase 2 Aug05 mino > 25mg - assessing / Benicar 20mg Q3H, 40mg night / MT / Quercetin TID / PBX BID/ I had let the cycle run for longer to experiment and see how long I could go on just the frequent mino, no 2nd abx on due day.. thinking that if it held me now, as it hasnt done by itself in the past, that it may be easier for a while.. Lips have been dry, splitting, peeling, sore. and as mentioned I have been lacking in emotional energy, very tired, going down down, to intolerable.. not relieved by taking the mino or other meds without the 2nd abx.. so have begun a new cycle with the 2nd abx at the next lower dose to see if that is enough to hold things ok.. relief is happening.. will have to see how often I need the mino now.. |
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Aunt Diana Moderator
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How happy I am to hear of these changes for you. You're on your way, for sure. As they say in the CD the recovery is as insidious as the onset of the illness. Great news - maybe this will be a good Christimas for you. I hope so. |
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CLefelt Member in Phase 3
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Cheers and more cheers! Carol |
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Aussie Barb Research Team
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Thursday December 22nd 4.30am / level .5 / day 2 / Phase 2 Aug05 mino > 25mg - assessing / Benicar 20mg Q3H, 40mg night / MT / Quercetin TID / PBX BID/ slept well till 2 am. 5H. got up. lower dose 2nd abx is holding ok. mino 25mg is 16H now. am coughing, mucus throat. have had Beni Q etc.. will see if it settles or if I require the mino again. I am pleased to have the thyroxine out of the way. being symptomatic with it and it's going seems to have complicated matters for some time. body and gut herx is less. feet some swollen. lips still dry. subcutaneous ouch. eyes. BO resting as needed. |
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Aussie Barb Research Team
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Friday December 23rd 8.35am / level .5 / day 3 / Phase 2 Aug05 mino > 50mg / Benicar 20mg Q3H, 40mg night / MT / Quercetin TID / PBX BID/ I had an appointment yesterday so although I felt very too tired at the mino 25mg dose, I didnt want to increase on the day of going out. I continued at mino 25mg. I took Benicar 40 mg Q4H for appointment and as required thru the night. I was shocked at how exhausted I was getting dressed etc and to walk in etc.. I was a little better coming out and home after an hour. I had pre-arranged per phone when making the appointment that I could go straight to an inside room instead of being anywhere near the Natural light.. and immediately I walked in the door, I was escorted to the room. wow!!! it was 12 months since my last appointment here too.. slept well. woke Q4H for Beni. ahh.. Increased mino to 50mg this morning. shoulder parasthesia still present. body and gut herx is tolerable enough. I sit down quickly when I have to. feet some swollen. lips improving. subcutaneous ouch. eyes improved some. BO resting as needed. |
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shegeek Member in Phase 3
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the issue isnt the issue... Cute! Catchy! |
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Aussie Barb Research Team
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Thank You All ... and Merry Christmas!!! Saturday December 24th 1pm/ level .5 / day 4 / Phase 2 Aug05 mino > 50mg QOD / Benicar 40mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Last night I went out briefly to Target with husband. I was shocked and scared re my walking. In another part of me I do know that it is only a matter of doing it and getting better and that there will be no holding me down.. but last night it was scary. (of course, putting it in perspective... at least I was out!!! that is a start The colors of new clothes in the shop looked yucky, dirty.. is it my eyes or has the world changed all the colors while I havent been looking... When I went to bed, my chest was aching whichever way I lay layed lied, even after all meds, so some aspirin settled it and off I went to sleep and slept well. The lower dose of 2nd abx with the mino 50mg QOD is almost a non herxer, very stable as long as I take my Beni and Q etc.. so I will stay here while it suits.. this must be what is called tolerable. this is the quietest herx time for me on MP yet that I recall. shoulder parasthesia still present. body and gut herx is tolerable enough. I sit down quickly when I have to. feet going down. lips improving. subcutaneous ouch. eyes improved some. BO resting as needed. It is Christmas Eve here... the Family are all at the Farm. I am thinking of springing it on everyone that I will go home as well with my DH for the day or the next couple of days. so I will be seeing you from a different computer if this happens.. apparently the room is darkened and we would be able to travel the 3H each way at night. all best wishes to All, Barb ...   |
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patrickburke Moderator
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Xmas love to you Barb. XXX |
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BARNEY Moderator
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Barb, This news is the only Christmas present I need. To know you have such a breakthru and able to go shopping and possibly going to the farm with your family for Christmas. God has truly answered my prayers. It is about time for you to have this breakthru cause you are always there for us. Have a very MERRY CHRISTMAS AND A HAPPY NEW YEAR!!!!! Luv, Barney |
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Julia Member in Phase 3
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Dearest Barb, if the love and good wishes of all the members of MP.com could hold you up, you'd be floating instead of walking. Have a great Christmas. xx Julia |
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jillian Member in Phase 2 
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We're cheering you on from across the big pond Barb, enjoy your family! 'til later, Jillian from North Dakota |
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Aussie Barb Research Team
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Christmas Day.. Happy Christmas to All Thank you All my Dear Friends Sunday December 25th 7am / level .5 / day 5 / Phase 2 Aug05 mino > 50mg 36H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Last night I took Benicar and mino a little early before the trip as I was going off a bit herxwise. We left in the dark and drove to here. the Farm, the Family. as expected, they were out when we arrived. After we settled in, I lit the tealight candles Christmas Tree and left it burning for them to see when they came home.. It wasnt long and there was "Look Look at this.. " and they came into the room to see Dad and were so happily surprised to find Mum also. chest ache in bed again, aspirin, relief. slept well.. the room with computer is very nicely dark.. the computer is dial up and a bit slower but we will get there.. shoulder parasthesia still present. coughing wheezy is the most pressure when the meds are due.. also antbite cramps strike. feet swollen. subcutaneous ouch. eyes improved some. |
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Carole Board Staff 
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Barb--Wishing you a "Merry Christmas and a Happy New Year" like none other! Thank you for all that you have done for us! It is now your turn to enjoy the blessings of better health! God Bless . . . Carole |
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Aunt Diana Moderator
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Merry Christmas Aussie Barb |
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TickTock inactive member
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Hi Barb, Just wanted to wish you and your family a very Merry Christmas! May this year bring you lots of Good Health and Happiness! I'm sure Santa knows you've been especially good and generous this year helping so many people XXXOOO Tick Tock |
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EllenD Member in Phase 2 
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Happy Christmas Barb, It's nice to be read that the candles Christmas Tree is used Just a litte bit light in the darkness Thanks again for all your support this year and take care DIKKE KNUFFEL !!! Frans en Ellen |
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Aussie Barb Research Team
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Your Christmas Day.. Happy Christmas to All Thank you All my Dear Friends for your messages Monday December 26th 5am / level .5 / day 6 / Phase 2 Aug05 mino > 50mg 24H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Well, we had a Happy Family Christmas. The best they'd had in years to have Mum home they said. It was so nice to see my grown Children together and the happy lovely people they are, and to be with them. It was a very hot day as is usual for Christmas day in Australia, but I was in the darkened air con room. The computer conditions were too tough to work with so I gave up and had the day off. we had a simple salad lunch.. lovely. The trip and getting thru a whole day was a big effort, and it is so comfortable to be back at my own home again now. I am too sick to be away from home for any amount of time. Getting thru one day was all I could manage and I was pleased that my husband could see that we needed to come back to our home last night after 24H away and not try to get thru another day till the next night. He always takes good care of me. we travelled home thru a very heavy rain storm with some hail, and had to stop the car at some stages as we couldnt see. I learnt of another new improvement by going. Pre MP I couldnt sit in the car for a trip, because of pain and sickness. I used to have to lie the seat down flat to bear it.. my bones must have been ready to crumble. This time I was able to sit up for the trip and it felt lighter to be able to sit comfortably. I am feeling sick and exhausted but will take my meds as needed and recover and it was worth it. That will do for now. all best wishes, Barb ... |
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BARNEY Moderator
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Barb, Words are not enough to explain the joy I feel for you. Congratulations and may you continue to improve in leaps and bounds. Am so glad you could spend Christmas with your children. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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ShrnHml Member in Phase 2/3 
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Barb......I hope you find your reward here on earth and soon.....well, another year or so. Having access to all posts has enabled me to read up on your progress. I started with your having company, then to Target, then to the farm with the family. In spite of your difficulties, it seems you are upwardly bound.......like sitting in the car for three hours. I am amazed how you can be "coach" to so many of us with all you need to do to take care of yourself.......AND you seem to keep your meds straight. That takes cognitive power. When you are well, maybe you can be Head Coach for a network of Assistant Coaches around the world. Maybe there will be a whole new field here for Physician Assistants who are able to to MP coaching. May the coming year be the best ever for you and yours. Sharon |
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Aussie Barb Research Team
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Thank you All .... Tuesday December 27th 5am / level .5 / day 7 / Phase 2 Aug05 mino > 75mg / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Stiff and sore muscles and still recovering. |
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CLefelt Member in Phase 3
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I've been away and it's SO NICE to return and read your latest posts! I loved the description of your return to the farm, and I rejoice with your family. May this new year bring you and your family continued strength and good health!! I send a big hug, Carol |
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Aussie Barb Research Team
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Thank you All .... Wednesday December 28th 10am / level .5 / day 8 / Phase 2 Aug05 mino > 25mg Q12H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Last night, I had taken the 25mg 3H before when I woke MN all hot and high gut herx. had to get up till it settled. 2H. Feeling quiet and unwell but taking care and recovering some.. Meds needs jumping all over the place to maintain tolerable. aspirin relieves achey chest and down left arm. |
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kathleen Member in Phase 2/3
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Dear Barb, I'm so happy to read your Christmas post!!! How great to notice such a specific and big gain - being able to sit up in the car for so long. I know that you need some time to recover now, but it's still wonderful. I'm hoping for a better year ahead for all of us. No giving up, Love XXOO Kathleen |
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Aussie Barb Research Team
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Thank you All .... Thursday December 29th 8am / level .5 / day 9 / Phase 2 Aug05 mino > 25mg Q12H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Still fragile and unwell. taking care, taking meds, resting. |
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Aussie Barb Research Team
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Thank you All .... Happy New Year!!! Friday December 30th 12md / level .5 / day 10 / Phase 2 Aug05 mino > 25mg Q6H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Full body and gut herxing / aura. quiet. one moment at a time .. |
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Aussie Barb Research Team
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Thank you All .... Happy New Year!!! Saturday December 31st 9am / level .5 / day 1 / Phase 2 Aug05 mino > 50mg / Benicar 40mg Q6H as required, day and night / MT / Quercetin TID / PBX BID/ Some improvement with beginning of new abx cycle. I have spent this year of my Life on MP. That is a year working towards a Future that I had been warned I would not see. and as the year has unfolded I have been able to see what I could not see, tiny step by tiny step to come out of the denial I had been surviving behind. I now understand why I felt so sick for so long, and why there were no answers to my problems - till MP. my body function is being restored gradually. These are some of the more obvious improvements: minor skin lesions have disappeared. I am off thyroxine. No migraines (they used to last 7 to 8 days) anxiety/ depression/ stress meds and social and psychological issues all a thing of the past. peace reigns. gaining confidence. can see the re-building in many ways. I can eat cold fruit from the fridge. couldnt bear to before. Used to have it room temp. problem teeth for years. fractures, uncomfortable. not a problem now. I can sit in the car to travel. (had to lie down before) Overall I dont need as much rest and bed time. I may think of more yet Dr Marshalls words ring true for me: ... "the biggest issue, IMO, is trying to micromanage the healing process. If you are typical of the folks who come looking to the MP for relief, then you have a body which is very ill. It is systemically ill, there will be no part of it that has totally escaped damage. That's the problem with micromanaging - when you get too much data it becomes not easy to analyse what is happening. Healing takes place on a yearly scale..... " <<<< Here's to a Happy Healthy 2006 to All !!!... |
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jrfoutin Research Team
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Your post today is so wonderful. What a fantastic way to wrap up a great year! |
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BARNEY Moderator
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I second that, Barb!!!!! What a fabulous year!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! My 1 year anniversary is 1/1/06. Thank God for MP for all of us. HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Alayne Member in Phase 3 
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The best words to hear just before the New Year!!! Barb, your post brought tears to my eyes (and yes, my mood is fine!). Your fight has been such a royal one and to hear you talk of improvements now, well, it's more than marvelous! Here's to a Happy and Wondrous 2006!!! Alayne |
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Jill T inactive member
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Barb, I just read your post and I have to tell you that that's the best news I've seen in a very long time! Just an improvement in the social sxs is huge!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You are such a wonderful model of patience, fortitude, and faith!!!!!!! Just think of all of the improvements you'll be able to report at the next New Year! Happy Happy New Year!!!!!!!! xoxoxoxo Jill |
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DNStog Moderator
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Barb... @@@@@@@@@@@@@ 2006 will hold more great healing for you and the rest of us MPers, no doubt! December 27 was my one year anniversary of MPing it...time flies whether you're having fun or NOT. Here's to the continued waning of your illness symtoms!!! Hugs! Donna |
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Grace Member in Phase 3
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Barb, Good on ya Grace |
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ShrnHml Member in Phase 2/3
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From Barb's post:anxiety/ depression/ stress meds and social and psychological issues all a thing of the past. peace reigns. gaining confidence .............PEACE REIGNS.............. Beautiful and inspiring.........thanks.........Sharon |
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Aunt Diana Moderator
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I have only known you for two months and yet you have been such a great role model for me...and so many others. May 2006 be one of the best years in your life with many more positive changes. Happy New Year |
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Aussie Barb Research Team
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Thank you All .... Happy New Year!!! Monday January 2nd 4.40am / level .5 / day 3 / mino > 50mg Daily / Benicar 40mg Q6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 The herxing and overall aura and heaviness seem to be lifting a little for at least some of the time. going more toward tolerable. it is easier to know what tolerable is when you get there. most of the time now, due to less heavy herx, walking around the house is a little easier than it was. that helps. I was able to read a couple of pages of a book the other day. I havent read any more but that was an improvement. Feet swollen shoulder: patch of parasthesia hot spot on top of each foot. eyes rib muscles still grab and cramp seat drawing is ouch subcutaneous ouch BO again cough, and antbite cramps on ribs start sneaking up when meds are due. |
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Aussie Barb Research Team
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Mino 50mg changed to Q12H today. There is an interesting change happening. I have less overall body heaviness/herx.. and so I am feeling the gut herx harder.. making me feel sick. I increased the mino to Q12H today. I am still overall sick and slow and can feel it when I try to do anything yet, BUT I can feel a little spring, a sort of tiny wellness in me today.. this is very amazing.. |
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Aussie Barb Research Team
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Thank you All .... Tuesday January 3rd 8.40am / level .5 / day 4 / mino > 75mg 4am / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 some pressure building, more cramps, bone pain, tells me it is time to increase the abx. 11am yest: took Q12H dose of 50 mino to assess effect . building again last night. slept on it.. 3am cough will not be settled by Benicar alone mino increased to 75mg took 4am even after Q etc coughing requires Benicar @ Q4H. settled. other symptoms unchanged. doughy again today. |
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Aussie Barb Research Team
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Wednesday January 4th 5.40am / level .5 / day 5 / mino > 75mg 4am yest / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 gut and full body herxing yest, so I was doughy. wheezy and cough niggly. voice is often hoarse. Benicar 4 to 6H as required Feet swollen shoulder: patch of parasthesia eyes rib muscles grab and cramp seat drawing is ouch subcutaneous ouch oily face and hands itchy face and scalp. very small bits of 'sand' come off me anywhere BO chemical I have been asked are my Family excited yet.. not a bit. my herxing symptoms are still scary enough for them. They will be able to see when I am able to be physically active and etc. The improvements I have noted so far are more obvious to me personally as I take stock.. |
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Aussie Barb Research Team
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Thursday January 5th 5.55am / level .5 / day 6 / mino > 75mg 9pm yest @ 40H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Yest herx was high but managable with meds and rest. doughy. went to Dr 5pm. had to wait only half hour. I was so uncomfortable it seemed forever. Dr is wonderful. good to be home again. wheezy and cough. body herx. Benicar 4 to 6H as required took mino dose @ 40H after all other meds tried. slept well till woken at 2am (5H post Beni) with bad leg cramps. ARB relief. so it was from the light exp. other symptoms continue same. |
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Aussie Barb Research Team
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Friday January 6th 9.55am / level .5 / day 7 / mino > 75mg Q24H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Yest herx was high but managable with meds. doughy. legs sore from the cramps, and ready to cramp again when needing Benicar. wheezy and cough clearer today. is noticable when meds are due. body herx. Benicar 4 to 6H as required took mino dose @ 24H as required. slept well woke only for Benicar some dizziness when walking gut herx was more pelvic some of the time some diaphragmic pain at times other symptoms continue same. 5.30pm add: taking the mino 75mg Q24H helps herx is gut / pelvic pain under left and right ribs when meds are due. some butterfly kicks in diaphragm body herx > dizziness on standing legs improving other symptoms same as previous posts. |
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Aussie Barb Research Team
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Saturday January 7th 6.25pm / level .5 / day 8 / mino > 75mg Q24H decrease to 50mg / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Benicar 4 to 6H as required took mino dose @ 24H as required. slept well woke only for Benicar dry cough body herx, transient dizziness on standing. Sometimes I am sad, discouraged. I know it is herx.. if I lose focus on the now. so I decreased the daily mino. refocus and taking the meds turns it around. eyes remain bloodshot, glazed and deep set. have black circles. sticky blurry. gut / pelvic herx milder. pain under left and right ribs when meds are due. muscles grab and spasm other symptoms same as previous posts. |
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Aussie Barb Research Team
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Sunday January 8th 12MD / level .5 / day 1 / mino > 75mg / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 slept well woke only for Benicar needed a boost. began new cycle. cough body herx, transient dizziness on standing. pain under left and right ribs when meds are due. muscles grab and spasm recently the gut herx feels more *in* the GI than previously. other symptoms same as previous posts. |
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Val R.N. Health Professional 
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hi Barb, sounds like you're having a rough go round, but also sounds like those nasty symtoms are getting a wee bit more manageable.We will be thinking of you and hope things keep gtting better. thanks for the support xxooxx Val & Bill |
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Aussie Barb Research Team
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Thank you ... Monday January 9th 1.30pm / level .5 / day 2 / mino > 75mg 24H ago / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 slept well woke only for Benicar x 2 wanted to lie-in, but thinking, fragile. get up to distract self. catchy cough is transient body herx tolerable quiet. am ok if distracted. other symptoms same as previous posts. |
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Aussie Barb Research Team
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Thank you ... Tuesday January 10th 11am / level .5 / day 3 / mino > 75mg Q24H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 mood lifted last night. slept well woke only for Benicar catchy cough wheeze is transient body herx tolerable. best to sit. gut herx. other symptoms same as previous posts. |
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Aussie Barb Research Team
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Wednesday January 11th 6.15am / level .5 / day 4 / mino > 75mg 4am / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 wheeze in throat. if I had a puffer I'd have a puff. may be exacerbated by the housecleaning - not me of course. took Beni and mino 25mg last night and mino 75mg this am. slept well woke only for Benicar catchy cough and wheeze body herx tolerable. best to sit. gut herx. gut herx. other symptoms same as previous posts. ADD: 4.30pm mino 50mg for wheeziness. some relief. |
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Aussie Barb Research Team
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Thursday January 12th 7am / level .5 / day 5 / mino > 75mg 7am/ Benicar 20mg Q4H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 wheeze sob continued so I have decreased Benicar to 20mg Q4H and there may be some relief. exploring assessing effects. slept well woke once. catchy cough and wheeze in throat body herx tolerable. best to sit. gut herx. other symptoms same as previous posts. |
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Aussie Barb Research Team
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Friday January 13th 7am / level .5 / day 5 / mino > 50mg 10pm/ Benicar 20mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 wheeze sob chest tight. feels mild enough. cannot speak without coughing. Benicar decreased to 20mg Q6H with no worse effect. Mino 75mg is too much each time I try it. took mino 50mg before bed. slept well. woke once briefly feet a little less swollen body herx tolerable. best to sit. gut herx. other symptoms same as previous posts. |
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Aussie Barb Research Team
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Saturday January 14th 6am / level .5 / day 6 / mino > 50mg Daily/ Benicar 20mg Q5 to 6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 wheeze sob chest milder. decreased Benicar seemingly having no less good effect than full dose. slept well. woke once briefly feet swollen body herx tolerable. best to sit. gut herx. eyes same BO chemical other symptoms same as previous posts. add 3pm: took mino 50mg .. Benicar 20mg is holding 6H... |
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Aussie Barb Research Team
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Sunday January 15th 2pm / level .5 / day 7 / mino > 50mg Q12H + extra 25mg 9pm / Benicar 40mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 the decreased Benicar dosing failed > inflammatory symptoms rising. uncomfortable. intolerable. less functional. returned to full dose Benicar 9pm. with an extra mino 25mg and an aspirin to get me thru it. slept well. woke once briefly one day has made the difference again. wheeze sob chest milder. more tolerable day with all meds still required to hold herx tolerable.. body herx tolerable. best to sit. feet swollen gut herx. eyes same BO chemical other symptoms same as previous posts. |
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Aussie Barb Research Team
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Monday January 16th 9.55am / level .5 / day 8 / mino > 50mg Q12H / Benicar 40mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 I am planning to change my abx. Although I am experiencing healing, I feel it is time for a change as I have been in phase 2 for 6 months and have been unable to make any increase in the lowest dose. The healing that is happening is more obvious mentally emotionally than is obvious physically at this point. With the way my body responds, it would be intolerable for me to wait on mino only, and with the level of herxing I have with all meds adjusted, it is risky for me to add another antibiotic too soon, so it is a delicate balancing act to make the change. My plan is that when my body calls for the next dose of 2nd abx on day 8 or 9 or 10 as it usually does, to instead take a very very small dose of the next antibiotic I am planning to add...and depending on the response, continue with the Mino as required (usually frequently) + it QOD and then decide where to from there. Having a new plan is helpful. watching and waiting.. am at day 8 now. slept well. woke once briefly I can go from "aaaahh this a relief that the herx is milder" to needing to take the next med in no time at all.. wheeze cough sob chest still present. fluctuate with herx. body herx tolerable. best to sit. feet swollen gut herx can rise high enough at times. showed itself this time with some otherwise unexplained pressure and unusual frequency. eyes burning and blurry and same otherwise. BO chemical legs and seat more drawing again today. other symptoms same as previous posts. |
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ShrnHml Member in Phase 2/3
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Barb.......good news about the change in abx. I hope it does great things for you. Did you ever consider ModPh2? From what little I know, it seems like a good plan for you. But at least you have a NEW plan to try, and I will be awaiting the results. Sharon |
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Aussie Barb Research Team
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Thanks Sharon, I have done Mod Phase1 from month 3 of MP till I began Ph 2. Barb ... |
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sue from Indy Member in Phase 3 
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Good Luck Barb - I'll be watching your posts. Hope this works for you. Your friend, Keeping on Sue |
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Aussie Barb Research Team
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Tuesday January 17th 7.55am / level .5 / day 9 / mino > 50mg Q12H / Benicar 40mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 hairdresser came to house. hair trimmed. so far same. mino is holding me. watching and waiting to make abx change.. am at day 9 now. nauseous after shower. went to bed early. very tired. slept very well. woke once for Benicar. wheeze cough sob chest mild enough today. increases when meds are due. speaking causes coughing. body herx tolerable. best to sit. feet swollen. hot spot top of left foot. gut herx eyes blurry, cant see clearly. bloodshot, glazed. deepset. black circles. BO chemical legs and seat drawing. rib and neck muscles grab and cramp subcutaneous ouch itchy face and scalp oily face and hands 5pm note: can feel myself slipping into depression despite the mino and Beni etc so it is coming close to the time of needing the 2nd abx. 7pm: Lips are starting to dry out. tingly. 8pm: gut herx and wheeze starting to rise. watching the process. I dont want to go in with the added abx too soon. Note: Since being on MP, I have some small spots on the tops of my hands. sometimes visible as small whitish flaky spots, mostly not visible, they can be barely felt. I think they are sun spots that are being or at least I expect will be healed by the MP. |
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Aussie Barb Research Team
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Wednesday January 18th 4.45am / level .5 / day 10 / mino > 50mg Q10H / Benicar 40mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Mino lasting less than 12H. last night it settled the depression some time later. see notes in above post. watching and waiting to make abx change.. am at day 10 now. very tired. slept very well. hands numb thru the night. woke early for Benicar and thought I had better take it to avoid cramps. woke 1 hour later in the closest precramp cramp I have had and managed to get out of bed quickly and stamp it out. good to avoid the excruciating cramp. Bone pain in arms and other muscle spasms. Took mino 9H and staying up till I settle again. other symptoms same as above. note: mino 50mg 1pm (10H) to stop the slide to depression. gut herx high enough. pressure in glands in neck rising. |
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Aussie Barb Research Team
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Thursday January 19th 9.15am / level .5 / day 11 / mino > 50mg Q10 to 12H / Benicar 40mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Mino @ 10H yest and 12H overnight. watching and waiting to make abx change.. am at day 11 now. managing as long as I can on mino only. the herx symptoms are jumping all over the place. I would normally have taken the 2nd abx but can put up with this for now to make the change. Had to get dressed in day clothes yesterday, and I need help. this is when reality hits me as to how sick I am and I can be very depressed for a while then. slept very well. Had a near cramp experience again thru the night. took mino. other symptoms same as above. Note: mino 50mg @ 18H 7.30pm |
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Aussie Barb Research Team
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Friday January 20th 9.05am / level .5 / day 12 / mino > 50mg prn / Benicar 40mg Q5 - 6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Mino @ 18H yest. watching and waiting to make abx change.. am at day 12 now. managing as long as I can on mino only. the herx symptoms continue to jump all over the place, and sometimes rise higher, and I take the Beni or Q whatever is due(ish). I would normally have taken the 2nd abx but can put up with this for now to make the change. I take the Benicar sooner when I need to. slept very well. 6H. symptoms include body herx, wheeze, gut, bone pain, precramps, oily face and hands etc other symptoms same as above. |
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Aussie Barb Research Team
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Friday January 20th 11pm / level .5 / day 12 / mino / Benicar 40mg Q5 - 6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Mino 50mg @ 18H and then another 6H > mino 25mg watching and waiting to make abx change.. am at day 12 now. Today: body starting to hurt. IBS R knee R sciatic nerve wheezish feel to chest. chokey cough did it. had beni and etc. had to have the extra mino dose. |
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Aussie Barb Research Team
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A number of things today have set off a parade of past symptomatic situation memories. Where it came from included: thinking about denial. thinking about expectation and reality. of the need to survive. a friend with Lupus went to a Cardiologist who asked her why doesnt she work. I saw a movie. a news item about 20 years imprisonment. I have been feeling the darkness of my debility. and My husband had visited some Family and Friends today, away from here. and people are wanting to know how I am and what is really wrong with me. It is really something to try to explain what is wrong and how it affects me. How do you. There does not seem to be any way that adequately explains what has been called a Life, what has appeared to the outside to be a Life. I am not sure how to explain it myself. who can possibly know unless they have this or unless they live with us. The Parade of Memories has been a type of inventory and acknowledgement of the truth of how sick I have been for a very long time. These memories went back and back and back. I was able to view them all very calmly. and acknowledge the truth as I saw it. acknowledge how long this has actually been evident. before I finally fell down. Previously when I have had memories it was with some agony and a gasp. not this time. I am more able to acknowledge that I do have a Lifetime of healing to do. perhaps not even fully comprehend even yet. pre MP I would go to an indoor swimming pool and take care to only walk slowly for 10 minutes in the pool, and then I could hardly get out of the pool so I had to give that up. There was probably light exposure in that as well. I was trying so hard to be normal and to get well.. It wasnt working. but people wanted to know I was trying, and doing something, anything. nobody knew how hard it was. I havent wanted to remember either. Now I am no longer trying in that sense. No longer needing to fulfill unreal expectations. of mine or others. I am working on MP in a darkened house I am sick. reality is, I was already sick. I can count up improvements. that are not obvious to my Family. I am watching and waiting till I have that incentive and the get to it that I know and trust is coming when the time is right. and then I will not be held down. I have shared this because I know how it can make a difference to hear it from another. Thanks to All of you who have shared with me. |
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Aunt Diana Moderator
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I so feel for you, Aussie Barb, because I know exactly what you mean and how you are feeling right now. You are a very strong person, however, and if anyone can overcome this illness that you have, I am convinced it will be you The hardest part of this illness is the loneliness and lack of understanding one gets from people you would expect more from. That is what bothers me the most when I start to feel discouraged. It's difficult enough, having to be sick, but having to explain and defend oneself is even more intolerable. Remember, you're probably herxing, one day soon some wonderfully encouraging thing will happen to you and you will become optimistic again. Many people are rooting for you and need you to get through this. |
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katydid Member in Phase 2/3
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Thank you so much for sharing that! People make you feel so guilty, don't they? I don't believe that they always mean to, but the result is that you deny your feelings of illness so that you can keep on going in a "normal life". It gets less and less normal as you go on, though. When you finally do stop pretending to be well , it is really, really hard, and painful, to admit that you are really ill. Thanks again, Kathy |
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Aussie Barb Research Team
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Thank you to All... Saturday January 21st 3.30pm / level .5 / day 13 / mino / Benicar 40mg Q5 - 6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Mino 50mg @ 20H after 25mg 3.30pm watching and waiting to make abx change.. am at day 13 now. ho hum. eyes shoulder paresthesia R knee R sciatic nerve very tired day. resting. body herx / aura increasing mucus in throat burning in esophagus. etc. had beni and etc. time to have the mino dose. |
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ShrnHml Member in Phase 2/3
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To all: That is the hard part.....the fact that no one understands. It increases the isolation and the feeling of having to stand alone in the hurricaine with no support....nothing to hang on to to remain strong and upright. Add that to the grief we feel for our lost lives and the guilt we feel for not being "able". We are all heroes! We are also SURVIVORS. Sharon |
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Aussie Barb Research Team
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Thank you All ... Sunday January 22nd 1.30pm / level .5 / day 14 / mino / Benicar 40mg Q5 - 6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Mino 50mg @ 22H 1.30pm watching and waiting to make abx change.. am at day 14 now. eyes both shoulders and back today tired day. a bit restless. body herx / gut herx / diaphragm increasing mucus in throat burning in esophagus. etc. had beni and etc. time to have the mino dose to keep all tolerable level.. |
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Carole Board Staff
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Hello, Barb! Please know that you are on our minds and in our hearts! There may be those around you who may not understand, but please feel the long-distant vibes from those of us who do! You have given us hope and encouragement, so now it's time for you to take care and remain positive as you focus on healing. I feel that revisiting our past problems, while coping with new, unexpected issues, can be both scary and frustrating; but we realize this is the rugged road we must follow. Best wishes for soon-to-be better days! We're with you! . . . Carole |
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scooker48 Member in Phase 3
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Barb, I can merely add my voice to what's already been said. You are not alone. We are all holding hands in a rocking boat. However, the shoreline is in sight and we will soon return to our safe port. "I have inherited the body of a God." Buddha Sherry |
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Aussie Barb Research Team
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Thank you All ... Monday January 23rd 9.20am / level .5 / day 15 / mino / Benicar 40mg Q5 - 6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 Mino 50mg @ 22H 1.30pm yest and extra 25mg @ 10pm last night for chokey watching and waiting to make abx change.. am at day 15 now. symptoms beginning to rise last couple of days. pressure in bottom is a tell tale sign of time to move on. antbite cramping even after I have taken all meds. gut uneasy. is all getting toward intolerable. so I will add first of the new abx. mino 25mg + new abx. 9.20am eyes look exactly like 2 black eyes of the best kind. are blurry. both shoulders and back. tired day. a bit restless. body herx / gut herx / diaphragm increasing mucus in throat burning in esophagus. etc. swollen feet havent gone down in the changeover time. I thought they may do. Face and hands oily. face itchy. BO. |
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Morris W. Milnes Member
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Barb, I'm with you and hope you feel better soon. I was talking to my friend Michelle in QLD today and commented on how small the world seems now. Two strong sources of support and comfort both come from the other side of the world. Isn't this amazing. Thank you for being there for me whenever I am distressed and down.  Morris |
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Aussie Barb Research Team
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Tuesday January 24th 4.30am / level .5 / day 16 / mino 50mg Q12H / Day 2 new abx/ Benicar 40mg Q5 - 6H, day and night / MT / Quercetin checking need / PBX BID/ Phase 2 Aug05 Day 15: added very small dose of 1st new abx + 25mg mino to begin. I was sure I was being a wimp when I looked at the small dose we had prepared last week ready for this day. symptoms changed. ache at base of skull felt it moving around body. interesting ups and downs. times of 'I wonder if this is actually having any effect yet.' and times of 'is this herx'. and then knowing for sure that I was pleased I hadnt taken more than I had. some bone pain in arms. gut changed and then increased. I watched it and took Benicar and other meds. quite woozy for anything other than sitting. body herx. required extra Mino 25mg later, wasnt enough to hold the herx, then took mino 50mg 9pm yest decided that I was still going to require 50 mino to hold the herx. still some mild antbite cramping ribs and arms. slept 4H. gut high herx. time for Benicar. relief. out of bed. productive cough !!! (nothing wrong with my lungs - I have CFS. but cough wheeze) diaphragm. Managing all well with the meds. other symptoms still the same. |
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Aussie Barb Research Team
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Thank you All for your responses to my Parade of Memories post. I want to say that I am not sad, and that I am not suffering. But when I go to say that, I know that is not the Truth.. The truth is that inside me I am.. and it has come out in the open there. I hadnt realised. For me the Parade of Memories was a calm realisation of the truth of - I have been very sick for a very long time. that I was sick then, and then, and then... and that I am sick now. oh I see. (however belated that may sound now) To be able to manage and to be content and to not live in that sadness and grief, I live my Life in the Moment, applying myself to this moment, keeping away from any expectations and obligations, - to enable me to focus on what is important now. and, I am very fortunate to have the love and support of my Husband and Family and All here. and I am mostly able to remain content and happy. (except when a herx carries me off) then it is quick get the benicar, the mino, the lot.. and back to tolerable again. 8am: adding a later reflection: in the end, all of the above means that denial is still safer and more comfortable at the moment. haha... |
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CJ Member in Phase 3
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Aussie Barb wrote:
That ever-present most-important word. |
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drvikki Health Professional
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Dear Barb, I just read your recent emails including your Parade of Memories, and I wanted you to know that your strength does show through all the while acknowleding how sick you have been for a very long time. Your comment about the gasping when realizing the depth of your illness is very familiar. The fact that you could acknowledge these truths calmly speaks volumes. I still am experiencing the gasps and found your sharing very helpful. I realize it's ok to be in denial and that the time will come when I too can look at these things more truthfully to myself. Your post was helpful on many levels. Thank you for sharing your truths, Vikki |
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Aunt Diana Moderator
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Dear Aussie Barb, Something that you and Dr Vikki have said makes me think about "grieving" and that usually we grieve for the loss of another. But in our cases, we grieve the loss of the person we used to be, and the pain and suffering we must endure....And the fear for the future because we cannot be sure what each day will bring.. It is a difficult and arduous life but since I have found the MP and people like you it has been much easier for me. Aren't we fortunate to have each other to help in going through this ordeal.? As Tiny Tim says, God Bless us everyone. |
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Foundation Staff. . 
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Our Dear Aussie Barb, My sense is that your latest revelations indicate your growing inner strength. When we are so ill that we cannot bear any more, we simply do not/cannot contemplate how long we have been ill and all that implies for ourselves and everyone around us. Thank you for sharing your experience because it will help many people. I think that we can't fully grieve the loss of ourselves (as we once were) until we have the strength to manage it. It's another stage of recovery. Take time for the journey because things get better from here. Belinda |
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Aussie Barb Research Team
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Thank You All ... You are All Wonderful... Wednesday January 25th 5.30am / level .5 / day 17 / mino 50mg Q10H /2nd Dose of new abx QOD Day 1 / Benicar 40mg Q5 - 6H, day and night / MT / Quercetin checking need / PBX BID/ Phase 2 Aug05 The very small dose of the new abx would not have wanted to be any bigger. As Goldilocks said, "it is just right" another nth and it would have been toooo much. The gut herx has a changed feel and gets to high before the 12H is up for the mino 50mg and I have used everything else, so I have the mino early. slept almost 7H. woke for Benicar. out of bed. gut herx was more settled this morning so far.. this felt like 'a break' in the gut herxing. till the abx dose was due. recent pin prick sensations in breasts. my eyes are something to look at. same. I had some very small quick pulsing left forehead nose area. last night and again now. this morning it had a very mild soreness about it. interesting. as I write about it I realise that it is close to the minor op I had on a BCC skin cancer. other symptoms still the same. |
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anne p inactive member
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Dear Barb Your post on the parade of memories struck a cord with me too. Lately when unable to sleep and past negative memories arise I have examined them (ignoring the fear they bring) and seen how my illness has influenced most of my seemingly negative actions and reactions. There is no part of my psyche or physical body that has not been affected by this illness. Maybe as denial of the extent of my illness recedes I will see even more clearly and come to terms with the memories that still burn and hurt. It is an interesting journey and one where denial has and is playing a protective role as well. We can only handle a certain amount of truth without crashing. My mother is very ill and the worse she gets with Th1 the more she berates herself for being lazy/stupid/hopeless. That plus her physical deterioration is painful and emotional to watch but at the same time I am glad for the progress I myself have made in self awareness of the severity of my illness. Thanks for your honesty in sharing with us Barb your friend Anne |
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Aussie Barb Research Team
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AUSTRALIA DAY !!! Thursday January 26th 6pm / level .5 / day 18 / mino 25mg 12MD / 2nd dose of 2nd abx QOD Day 2 / Benicar 40mg Q4 - 6H, day and night / no MT / Quercetin prn / PBX BID/ Phase 2 Aug05 / add new 2nd abx Jan 23rd / add new 3rd abx 26th today 1st dose 12MD. requiring less Q. took 1 Q last night before bed. restless sleep Yest was 2nd dose of 2nd abx Less noticable herx. controlled ok without extra mino. was told x 3 phone I sounded breathless very tired. some depress tendency yest, quiet reflective today. 12MD today: Took mino 25mg + new 3rd abx to go with the tail of yesterdays 2nd dose of 2nd abx 30H before. quiet day, tired. transient symptoms Body herx remains. diaphragm reflecting on Australia Day and what it would mean to be able to go out and about etc.. time. etc.. this may be the first ricketty sign of looking forward. |
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Aussie Barb Research Team
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Friday January 27th 9am / mino 50mg Q12H / 3rd dose of 2nd abx QOD Day 1 2pm today / 1st dose of 3rd abx QOD day 2/ Benicar 40mg Q4 - 6H, day and night / no MT / Quercetin prn / PBX BID/ Phase 2 Aug05 / the new meds were introduced separately to be cautious re herx, and will then be taken together as per guidelines. requiring less Q. took 1 Q last night before bed. restless sleep Herx is different. is more sneaky. I just slowly sink, and have to shake myself to go get the mino. very tired. chest builds to wheeze and chokey cough. |
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Vicki SA Member in Phase 3 
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An Australia Day outing would be great! Let's hope for next year. Maybe go to the fireworks. Do you have daylight savings where you are? The long days at this time of the year sure make it hard. I'm definitely looking forward to cooler weather and shorter days! cheerio Vicki who enjoyed the Cricket on TV at least! Luckily it was sold out or it wouldn't have been shown on 'free to air' here in SA |
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Aussie Barb Research Team
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Thank you All ... Saturday January 28th 7am / mino 50mg lasting thru past 12H so far today / 3rd dose of 2nd abx QOD Day 2 / 1st dose of 3rd abx QOD day 3/ Benicar 40mg Q4 - 6H, day and night / no MT / Quercetin prn / PBX BID/ Phase 2 Aug05 / the new meds were introduced separately to be cautious re herx, and will then be taken together as per guidelines. requiring less Q. took 1 Q last night before bed. and some now. better sleep last night. Herx is different again. the 2nd abx is giving me some transient head pains aches. very tired. chest builds to wheeze and chokey cough. last night was more intense. is controlled ok with meds this morning so far. other symptoms same. eyes BO subcutaneous ouch swollen feet numb hands while sleeping. quite often. shoulder paresthesia |
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Aussie Barb Research Team
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Day 20 I feel to have made the transition to the next abx combo well so far. Tomorrow will be the first day of taking the new combo wholly. I still have gut herx. but my gut has a different feel to it some of the time now.. at times. a peace, cleansed. having some quieter herx times. some pressure, aches and pains in head. wheeze and cough and chokey can build.. have to keep onto it with the meds. mino 50mg 24H 7pm |
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Aussie Barb Research Team
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Thank you All ... Sunday January 29th 5.30am / mino 50mg / 1st dose of 3 abx together 5.30am / Benicar 40mg Q4 - 6H, day and night / no MT / Quercetin prn / PBX BID/ Phase 2 Aug05 / required Q yesterday. slept 4H. mild pre cramps in legs got up. ok. began to get chokey, mucus, coughy. had taken all meds. time to take abx. 1st time of taking a 3 abx combo. felt like a junkie. and an exciting new start. have some bone pain in arms when meds are due. other symptoms same as described above. Some have contacted and commented that my reports seem to say that the herx load seems lighter for me now. Thank you. I just do the managing moment by moment and the telling how it is, and your messages and observations are interesting to me, and supportive. thanks. The cautious transition has been good this far. One moment at a time. it is all progress. Having to be patient about my Physical condition and not being able to do a thing about it except wait for healing can get to me. and that is some of that moment by moment management. mentally and emotionally I have had good improvement. |
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Aussie Barb Research Team
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Thank you All ... Monday January 30th 9.30am / mino 50mg @ 15H 10pm last night. and 12H 10am today / 1st dose of 3 abx together yest / Benicar 40mg Q4 - 6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05 / Required mino before bed last night. slept ok. dreaming. woke some. Herx is mostly full body herx / aura. always best to sit. some diaphragmic and liver herx. chokey, mucus, coughy, sob, tight chest. have to keep on top of this and the body herx with all meds moment by moment. have been staying emotionally stable. hot spot top of left foot. other symptoms same as described above. just had mino 50mg now. Carole's post here is encouraging for me. re Edema resolved and Muscle strength and tone return. |
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Aussie Barb Research Team
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Tuesday January 31st 9.45am / mino 50mg Q12H. / 1st dose of 3 abx together. is day 3 / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ Hard herx day yest. required Benicar Q4H and Q and mino and. Gut herx, full body, chest. slept well between automatic Q4H meds wakes. am still herxing today so not taking the next abx combo dose yet. will wait and assess. In view of the herx am thinking of doing only the 2 abx combo and then adding the 3rd on completion. BO is like burnt rubber. very apt I thought. other symptoms same as described above. |
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Aussie Barb Research Team
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My husband has been away for a few days. I dont have to cook anything. all is easy do. shopped and prepared ahead. Of note is the fact that I have managed mentally and emotionally. I dropped and broke a cup (it shattered). previously the frustration that I could not do anything about picking it up would have brought helpless tears etc.. This time I was able to calmly sweep it under the carpet. (almost literally) As I am unable to pick it up, I swept it into the corner of the kitchen to wait the couple of days till he came home. that is peace. |
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ShrnHml Member in Phase 2/3
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Barb......interesting posts. I hope you do 2 abx instead of 3. Any explanation for the burnt rubber BO. Does anyone else on MP have it? Go easy....Sharon |
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Tobi Member
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Yes, yes, yes! Burnt rubber body odor. If you look back on my posts you'll see that is exactly the phrase I use. Or train wreck - as I imagine that would smell. It always corresponds with increase in symptoms and is strongest while I'm actually under the shower. I feell if I could find out more about this I'd have the "key" as it were. Trevor has mentioned nitric oxide . The quality of the smell shifts from time to time to a more "clean" but intense chemical smell, like acetone or paint thinners. Truly. At times when I feel a bit better the smell is almost, but never quite gone. It does not correspond with herx, as it was present and strong during the three months post-surgery when I was completely off the MP. The smell seems to emanate from all over the skin and is not associated with heavy perspiration. I know there has been a topic called something like "chemical body odor". Very strong chemical body odor.. and see this thread re burnt rubber (highlighted) Sep 27th, 2005. Tobi |
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Aussie Barb Research Team
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Thank you All... Wednesday February 1st 7.20am / mino 50mg Q12H. / 1st dose of 3 abx together. is day 4 / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ herx was more my normal yest after the harder day the day before. still required consistent meds to manage. woozy headed mid afternoon. Gut herx, full body, chest. slept well 5H. I was able to make a social phonecall for a friends Birthday last night. I thought I was doing ok in the usually demanding situation. the hit came after it was over. but I recovered more quickly also. There has been a change yesterday. a change in the herxing: there has been some lifting of some of the overall body aura. not so weighed down with gravity. this gives a little feeling of weller being than previous. is definitely not well being, but is going in that direction. still best to sit. sitting can be deceiving. I cant feel the degree of body herx till I stand. Using the mino 50mg Q12H and Benicar and Q holding the herx down., I have been able to delay the abx combo dosing. this is new. I am exploring this new feeling. will take the combo again when I feel to.. whether it be later today or whether it be tomorrow. BO chemical today. other symptoms same as described above. |
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Aussie Barb Research Team
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EYES. Just to reassure others. If I wasnt Aussie Barb, I am sure anyone could be really really worried about the look of eyes like mine, but I am not concerned. They are very bloodshot, glazed, deepset, black rings around them. They are some blurry, difficult / impossible to see detail close up and sometimes sticky - all fluctuating with herx For years my eyes have been puffyish (as is all of me) and barely open. I could easily have them checked out but I am ok with it as part of the healing. |
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ElizaH Member 
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Dear Barb Pity about the cup. I’d say that was a herx too and that you handled it well. You did what you could to make the area safe and left the rest in the ‘too hard basket’ to be dealt with at some later date. Congratulations. In the last 10 weeks I have broken 5 items - previous yearly average 0-1 pa. and it’s amazing how the floor suddenly becomes so far, far away when you’re not fully functional. My strategy for dealing with things at ground/floor level is to sit on one of those plastic storage cubes (upside down with a cushion tied on) and to do what needs to be done from the seated position. I first developed it for the garden (when I still went out in daylight). My knees won’t allow me to kneel or squat and, as my lungs got in on the act, bending over made me painfully breathless. Seated like this I can work comfortably within arm’s reach. The box is stable, low enough to reach the ground/floor easily and high enough to get up from with a bit of leverage from a downward push with the knuckles of a closed fist. If you have enough puff to continue what you were doing you can shift the box and sit down again, or else leave the rest for later if you haven’t. I now feed the cat, without pain, seated on a chair. Bending over became too much after I started on the full protocol. Interesting comments about the smells. I've had the 'paint thinners' in the past but not lately. My ususal unusual smell now is what I call my 'roast meat' smell, more like the rich drippings in the tray after you've cooked a roast. I wonder what it is. Be assured you are doing very well in very trying circumstances. Love from ElizaH |
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Aussie Barb Research Team
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Thank you All... Wednesday February 1st 8pm / mino 50mg to 16H. / 1st dose of 2 abx only is day 1 - 1.30pm / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ I was soaking in a lower herxing day. and went past the 12H for the mino and all seemed to be ok. At 16H I realised I had already slipped into depression. took mino. no help. needing abx. Took the 2 abx combo and the depression began to lift and the body, pelvic herx began to hit fairly solidly. required mino 25mg in 6H. I had to dress again today. I can convince myself that I am ok till these occasions. minimal dressing is very exhausting even with help. I will continue the mino 50mg Q12H ( req 8.30pm) and all meds to manage herx to tolerable. |
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scooker48 Member in Phase 3
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Barb, One of the adjustments I made from my childhood home to my adult life was over breaking dishes. In the household in which I was raised, my Mother would be VERY UNHAPPY if something (anything) was broken in the kitchen. In my twenties, I decided breaking glasses etc in the kitchen was merely a fact of existance. And not to get upset about it; however, it took some re-programming. Over this last weekend, I broke both a glass and a cup. So...you're not alone. Hang in there, we'll make it. Sherry |
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Aussie Barb Research Team
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Thank you All... Thursday February 2nd 10am / mino 50mg Q12H. / 1st dose of 2 abx only is day 1 - 1.30pm yest / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ Took the 2 abx combo and the depression began to lift and the body, pelvic herx began to hit fairly solidly. required mino 25mg in 6H. 25mg doesnt hold me well now. and took mino 50mg and tylenol x 1 @ 8.30pm with Beni. slept 3H and out of bed with solid gut herx. took Beni and Q. eventually settled and back to bed. no BO today very tired. mucus coughy chokey when meds are due. feet remain swollen. |
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Aussie Barb Research Team
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Thank you All... Friday February 3rd 9am / mino 50mg Q12H. / 1st dose of 2 abx only is day 2 - 1.30pm / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ The 2 abx combo hit the gut hard early since then very tired. like a coma pill. have required mino 50mg Q12H or symptoms rise too much. slept 7H with one wake for Benicar. feet remain swollen. legs drawing hard where seated. ADD: 3pm. have passed the 48H mark and the comatose feeling has lifted, and so far no signs/symptoms of requirement of the combo. I will just go with the flow for now to have some time off herxing. Tobi has mentioned progesterone elsewhere. Women have more autoimmune disease Is progesterone a steroid? Pre MP, an ACNEM Dr that I went to, did all the tests he could possibly do and Dx "Inflammation and hormonal imbalances that will surely lead to every disease in the book if you dont do something quickly. " change diet, and exercise, and take supps was all he knew for me to do, and he knew that it was probably already too late. Told me to read Dr John Lee. "What Your Doctor May Not Tell You About Breast Cancer.. How Hormone Balance Can Help Save Your Life" and etcc.. my other steroid type hormones were all measured high at the time. I always say that was how I kept surviving. The Rx Natural Progesterone was to counteract the estrogen dominance which at that time was believed to be 'causing' the problems. I was able to come off max dose antidepressants very quickly and easily by using NP frequently. and NP was more effective. Natural Progesterone has been a lifesaver for me. Life was unbearable without it. Then I found MP. My experience has been that I continued to require the NP fairly constantly to hold me mentally and emotionally, even with all MP meds management, until the requirement has noticably reduced in the last couple of months, and very recently has reduced to almost nil. That may or may not be subject to change, but has been fairly constant. I have had occasion recently where I have felt the depression: used the NP. not effective, and the MP meds have been effective.. obviously herx. |
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Tobi Member
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Barb, Just a thought - IF progesterone acts as a steroid in the body, perhaps as you are becoming more well you "require" it less in order to "feel better". Also possibly (my theory), as you reduce the steroid effect of the progesterone your immune system may be less suppressed and respond more efficiently to the MP meds - which contributes to your healing. Possibly also natural progesterone works differently. I really have no idea but want to know more. Tobi |
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Aussie Barb Research Team
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Thanks Tobi my other steroid type hormones were all measured high at the time. I always say that was how I kept surviving. Barb ... |
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ShrnHml Member in Phase 2/3
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Barb....two subjects: 1) Energy taken to dress - often I will go to bed in whatever I have on. I will lay on top of the bed and put a couple of blankets over me. Then when I get up, I don't have to dress either. It's a "two-fer". 2) Progesterone - see my post under Tobi's thread on this. Your ability to "read" your symptoms is phenomenal! Sharon |
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Aussie Barb Research Team
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Thanks Sharon I dress very simply here, and dont change for the night time as night and day is all the same to me that way. (perhaps I should say I dont normally change for the day time) having to dress for others is just that bit extra. as much as I dress as simply as possible always. lifting arms once is enough. more is just too much.. and I take all the Benicar and Q and Mino beforehand to be my best. Natural Progesterone has been a lifesaver for me. Life was unbearable without it. reading symptoms: your observation intrigues me. it seems so natural to me. it is a way of managing the symptoms to tolerable as possible. I may or may not at first consciously register the symptoms, when it does become conscious, I can run thru the mental listing of what have I taken, what am I due to take, if nothing else left to take / do - what does that mean is next step. see Tools to check: and the sooner I take the correct measure... > relief.... or it very quickly rises out of control. and it does do that plenty of times before I make myself take some action. Barb ... |
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Aussie Barb Research Team
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Thank you All... Saturday February 4th 5am / mino 50mg Q12H. / 1st dose of 2 abx 64H ago / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ 2nd dose of 2 abx combo @ 8.30am This is the first time I have felt tempted to Not take the combo. to stay in one place. It is not a wonderful place, I couldnt go to sleep very well. interesting. ears are wet inside again lately. BO chemical I thought I should note some minor symptoms that may help others. a catch in the throat when swallowing. or yawning. have to be careful. can be chokey. also, yawning 'wrongly' can lead to a terribly painful muscle knot under the chin.. have to be careful how to yawn. can gently ease the knot out. spasms in back muscles when I lie on my back. and rib muscles or pelvic muscles. all else same. Requiring abx @ 67H 8.30am: Took combo |
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BARNEY Moderator
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Barb, Do you find that 6am is to an advantage for your abx? I take mine at midnight so, hopefully, the problems will occur while I am asleep and I will not notice it. Am I living in a dream world? Or is it just whatever works for us? HANG IN THERE, WE WILL MAKE IT!!!! BARNEY |
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Aussie Barb Research Team
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Barney, Whatever suits each of us. MP's flexibility for the individual. I take mine, and others do too, to suit killing the herx, when most people take it to suit getting a herx at some pre expected time. Best, Barb ... |
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Aussie Barb Research Team
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Sunday February 5th 5am / mino 50mg Q12H. / day 2 of 2nd dose of 2 abx yest 8.30am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ The herx began to rise thru the night with start of a headache as well.. took Tylenol x 1 and went straight back to sleep. PreMP Tyenolx2 (panadol) wouldnt help me out of a headache. eyes are sticky etc. herx R upper quadrant subcutaneous ouch is ouch lately. some transient small Heart area pinching different fingers and toes, transient mild pain. itchy oily face. body herx. transient bone pain upper arms all managed. |
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Aussie Barb Research Team
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Monday February 6th 7am / mino 50mg Q12H. / 3rd dose of 2 abx today 7am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ Taking mino 50mg Q12H + the Benicar and Q as required keeps all managed. chest: sob and mucus chokey cough when meds are due continues. herx is quiet but effective. just watching and waiting assessing this for the first few doses. other symptoms covered in previous posts. |
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Aussie Barb Research Team
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Tuesday February 7th 7am / mino 50mg Q12H. / 3rd dose of 2 abx yesterday 7am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX BID/ Taking mino 50mg Q12H + the Benicar and Q as required keeps all managed. chest: sob and mucus chokey cough. body herx. herx is quiet, sneaky. - built to strong by nighttime. took all meds, + extra probiotic, then + needed something else, so took 1 aspirin to settle it. slept. very itchy nose thru the night. past symptom. settled w Benicar. gut herx this morning. BO chemical swollen feet, swollen me continues. I can really see why some increase meds and live to regret it. As the herx wanes it can be easy to forget how intense it can be. till it is back again, and looking for anything everything to quiet it. The first couple of doses I herxed more on the first day. now it is both days. some mental and emotional herxing creeping in. some head skull ache. |
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DianeC Member in Phase 3 
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Hello Barb, Congratulations on how far you have come along I am in awe of how you are dealing with all of your herx symptoms and your knowledge of how to vary the meds to get the most benefit It really gives others like myself much encouragementYou are an amazing person with all that you are going through but yet your continued care and dedication to others really speaks volumes of you Thanks for always being there DianeC |
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Aussie Barb Research Team
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Thank you All... Wednesday February 8th 9am / mino 50mg Q12H. / 4th dose of 2 abx today 8.30am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q as required keeps all managed. body herx. gut herx. herx intense enough yesterday. managed with meds. Have increased the probiotics to 3 per day. is helpful to settling gut herx and therefore overall condition. slept well. tired. took next abx. mental and emotional herx continues. is noticable to me. as well as meds, talking myself thru it. other symptoms same. |
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Aussie Barb Research Team
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Thursday February 9th 5am / mino 50mg Q12H. / 4th dose of 2 abx yesterday 8.30am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q and PBX as required keeps all managed. body herx is the more continuous herx. and as the mino comes to due time it can be difficult to stand, dizziness, faint feeling. I hang on, sit down quick and take mino. gut herx. as well as the other meds, is being helped recently by taking TID probiotics. therefore helpful to overall condition. mental and emotional herx. as well as meds, talking myself thru it. NP also helps. only using average once per day. nausea at times of interaction or meds due. chest herx rise this morning.. today is day 2. mucus cough tight chest. all meds to manage. tired. BO. may be fruity? other symptoms same. |
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Aussie Barb Research Team
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Friday February 10th 10am / mino 50mg Q12H. / 5th dose of 2 abx today 10am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q and PBX as required keeps all managed. Went to the shops after dark. had to use the wheelchair. I can be distressed about my physical condition. I talk myself thru it. and, I know what the alternative is. JRFoutin assures me that out of the box thinking is a good idea. The Herxheimer reaction is proof of the effectiveness of the antibiotics against the bacteria that are driving the Th1 inflammation, proof that it is happening. I am totally committed to my MP Journey. herx has settled this morning so next dose of combination. one moment at a time. |
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anne p inactive member
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Hi Barb How nice that you could do a little shopping although I am sure even that still told on you physically. I agree it is a huge adjustment to have to first use a wheelchair, but as usual you used your fabulous strength of mind to come to terms with it. I use my ancient 2nd hand electric wheelchair when shopping further than 50 metres from the car and I LOVE it. I love being able to make decisions about what to buy istead of standing there overwhelmed by pain and fatigue and so unable to make a decision. I even find myself humming little tunes, I am so happy to be out among other humans. I actually forget I am in a wheelchair and get surprised when people are extra solicitous, and smile sympathetically at me. I was not quite so enamoured of being pushed in a manual chair and so not as independant. But even so, once I got over the initial grief at having to use one I now embrace it as another tool to help me live as normally as I can. One day though we will emerge from our coccoon and fly around shopping centres. hugs Anne |
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Aunt Diana Moderator
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Wow....Aussie Barb, I think I am finally understanding the meaning and value of the herx. It is not to endure it, but to make sure your body is responding to the therapy. You have said this over and over but I just had the "Eureka" moment. We are all in this together....it is so much better than enduring these illnesses alone....you are a huge part of the success of this program. I hope things start to get easier for you soon. I am no longer saying "happy herxing" but "short herxing" and feeling better is the aim. Loving thoughts to you.... |
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Aussie Barb Research Team
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Thank you All... Thanks Anne, this wasnt the first time in my wheelchair, but certainly, the first time in a very long time since I have ventured out enough to need it. I wanted to buy some clothes. and the tyres were found to be flat of course. Saturday February 11th 6am / mino 50mg Q12H. / 5th dose of 2 abx yesterday 10am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q and Pbx as required keeps all managed. body herx. gut herx. chest herx. mental and emotional herx. hands go to sleep. mild transient bone pains, mostly arms and shoulders. mild headache by the time Benicar is due, sometimes 4H. other symptoms same. slept well. dream not nice. ADD 6pm: today has been one of my toughest days. mentally emotionally. rests, talking myself thru and using the meds. |
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Aussie Barb Research Team
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Thank you All... Sunday February 12th 10am / mino 50mg Q12H. / 6th dose of 2 abx today 10am 48H / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q and Pbx as required keeps all mostly managed. body herx. gut herx. chest herx /mucus cough choke clearing throat sob etc. mental and emotional herx. Slept well between long wakes for meds.. I was leaving the abx dose this morning to see if I could / should extend the time for the abx combo. Started going downhill to fragility, had taken all but the 2nd abx so nowhere else to go but there. taken 10am. |
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Aussie Barb Research Team
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Thank you All... Monday February 13th 9am / mino 50mg Q12H. / 6th dose of 2 abx yesterday 10am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q and Pbx as required. herx managable with meds. Slept better.. expecting visitors today. |
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RobertTownsend Health Professional
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Hi Ann I've just sold my wheelchair this last weekend. The rest of the family think I have done this too soon and that I should keep it. But I just got so much satisfaction out of seeing it go. Also I've not needed to use crutches for several months so I think I am on safe ground. So do hang in there - your turn will come Best regards Robert T |
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Aussie Barb Research Team
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 Thank you All... Happy Valentines Day!  Tuesday February 14th 10am / mino 50mg Q12H. / 7th dose of 2 abx today 9am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q and Pbx as required. Visitors yesterday. Mother and Sister and Bro-iL meds all taken before hand. herx stayed quiet while they were here. except for the body aura, the need to sit. Mother doesnt understand. Sister and BiL supportive and interested. I am strong enough in myself now that it has just 'happened' that it doesnt matter what anyone thinks or says, and it seems when some folks sense that strength they are less likely to speak against. I managed well with husbands support of course. gut and diaphragm herx rose again after they left. antbite cramps. may indicate getting close to increase of 2nd abx, therefore needing it before 48H, but I increased the Benicar to Q4H to get thru. and took same dose level of abx today to assess. today there is a little pulsing ache in the L front tooth. some catching up for me after the visit. fragility. I am keeping meds tight to take care of me. Slept ok. ADD 3pm: the herx is in full flight today. R upper abdo quadrant in particular. using all meds to manage. |
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ShrnHml Member in Phase 2/3
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Barb........first I read that you are out and about in a wheelchair. Then I read you have had company. Sounds good to me. ..................Sharon |
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Aussie Barb Research Team
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Thank you All... Happy Valentines Day! Wednesday February 15th 8.45am / mino 50mg Q12H. / 7th dose of 2 abx yesterday 9am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q and Pbx as required. Diapragm and liver area herx high yest. meds tight to hold. Body herx/aura. the little pulsing ache in the L front tooth continued. not here today so far. couldnt sleep till 2am then slept till Beni alarm 6am. usual 2nd day fatigue lay flat. ADD: from 3pm on. fighting off mucus cough and fragility with meds. |
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Aussie Barb Research Team
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Thursday February 16th 9am / mino 50mg Q12H. / 8th dose of 2 abx today 9am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / PBX TID/ Taking mino 50mg Q12H + the Benicar and Q and Pbx as required. Tired Body herx, mental emotional herx, chest herx, mucus cough, chokey, wheeze,sob. meds tight to hold. Slept well. woke feeling weak. body aura, best to sit. took abx combo. hope to pick up. other symptoms same: swollen feet ankles etc subcutaneous ouch eyes blurry sticky. transient mild bone pain arms shoulders. |
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Aussie Barb Research Team
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Friday February 17th 7am / mino 50mg Q12H. / 8th dose of 2 abx yesterday 9am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ Taking mino 50mg Q12H + the Benicar and Q and Pbx as required. Tired continuous. this combo. Body herx, mental emotional herx, chest herx. meds tight to hold. Slept 4H. body aura, best to sit. other symptoms same: face itching oily continues |
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Aussie Barb Research Team
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Saturday February 18th 9am / mino 50mg Q12H. / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ 35H after 8th dose of 2 abx combo Took 9th dose of 2 abx combo + 1st dose of 3rd abx Last couple of days had been awful. mental emotional herxing, fatigue. I watched and wanted the knowledge of time to increase to be clear cut, to make sure I wasnt jumping the gun. but it was like going downhill slowly and getting lost. Although I was able to get some temp relief using the Beni and Q, body function was declining, till I finally knew I had to increase or add something. so I have added the very small dose of 3rd abx. good. almost straight away, it was penetrating the muscles at the base of my skull. could feel it deep in muscle tissue all night. transient cramping muscle pull feelings in back of neck. woke aching all over. took meds this morning and am ok. some nausea. Add 2pm: the increased abx has helped. no mental and emotional now.. for me, mental & emotional is the toughest. 5pm: body herx. |
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Aunt Diana Moderator
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I empathise with you Aussie Barb. It must mean your getting at some "bugs" that have been evading this for a long time. As hard as it is to go through and as miserable as one gets....at least you can tell yourself you're killing bugs. And they've survived this long, they don't want to go. Just go slowly....maybe you should spread it out a bit, or tamp it down....who am I? to be recommending things to you. Maybe you just have to lie there and allow the herx to take you over until it subsides. and take a break from these duties ....to give yourself the time and room to recuperate. I don't know of course. you know far more than I do...but we need you to keep on "keepin on" so make it as painless as you can....what about pain killers? Do you think they might help, I find 4 Advil can really take the edge off the pain and there must be more potent paint relievers you could take. They may make it a bit easier. I've come off of my bad herx, thanks to your advice, and am actually feeling good and productive today...not great but good. I think I'll stick with the 3 dosing for awhile. |
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Aussie Barb Research Team
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Thanks Diana, Increasing the antibiotics did the trick very well. all best, Barb ... |
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Aussie Barb Research Team
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Sunday February 19th 7am / mino 50mg Q12H. / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ Took 9th dose of 2 abx combo + 1st dose of 3rd abx 8pm Friday when the Q12H mino is due, bad antbite cramps under arm and in rib muscles, which then settle after mino. tired, went to bed early. wakeful with sore throat herx. took Benicar early. na. took Panadol (tylenol) x 1 slept a little, woke. realised it was the gut herx keeping me awake. took probiotics, and slept well. woke with bad bone pain in my upper arms for Benicar time. slept. 42H. 2pm: 2nd dose 3 abx combo. |
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Aussie Barb Research Team
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Monday February 20th 7am / mino 50mg Q12H. / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ Took 2nd dose of 3 abx combo at 42H yesterday 2pm. I realised I was in a downturn again, had taken all MP support meds so the combo was next. the combo lifted me in 2 to 3 hours. Body and gut herx. feet less swollen recently. |
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Aussie Barb Research Team
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Tuesday February 21st 7am / mino 50mg Q12H. / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ Took 3rd dose of 3 abx combo today 7am. mentally and emotionally: Have picked up to what I was. gut and body herx continue. using MP meds as listed above to hold herx to tolerable. when close to the Benicar or antibiotics due time, the antbite cramps in R arm and rib muscles begin and are hard and intolerable. dose relieves. |
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supersarcboy Member in Phase 2/3 
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HANG IN THERE BARB....We all love you! It's hard to think about you hurting. Sorry to hear you are having such a hard time. Don't forget to take good care of yourself like you do for so many others. You are #1. May you feel relief ASAP. Best, Dawn |
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DianeC Member in Phase 3
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Hi Barb, Having just a taste of what a herx is like makes me realize all the more what an amazing person you are You are always there for others in spite of what you may be going through yourself with some pretty bad herxing  Hoping that your meds will kick in soon to allow your intolerable herxes to ease up You are so important to all of us and we feel bad when you are going through such a bad timeMay you start to feel much better soon! Best wishes! DianeC |
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Aussie Barb Research Team
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Thank you All ... you are very kind.. _____________________ I have been asked what is a gut herx: gut herx will vary from person to person. for me. I have had gut herx since the beginning of MP. It is like having a hive of bees buzzing in (not biting), or pressure pushing on, the diaphragm / guts / abdominal cavity. It is there most of the time with some discomfort, even while sitting, and can rise to quite near intolerable sometimes, which of course affects me all over. >> feeling like a punch in the guts. winded. I manage it with the meds. I take herx manage meds within the guidelines all day. Body herx/aura: as defined by me, may be an extension of the effect of the gut herx. is felt while standing, specifically. An all over inability to stay standing. best to sit. Is a type of heavy gravity feeling. floaty in the head sometimes. difficult to define. hence the name/ feeling of > aura. Is almost always present to some degree. Sometimes worse than others depending on herx, and I am unaware of it till I do stand. |
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Aussie Barb Research Team
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Wednesday February 22nd 11am / mino 50mg Q12H. / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ 3rd dose of 3 abx combo 28H. mentally and emotionally mostly ok. gut and body herx. waxes and wanes. and using MP meds as listed above to hold herx to tolerable. feet swollen. |
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Aussie Barb Research Team
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Wednesday February 22nd 10.30pm / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H 5pm / 4th dose of 3 abx combo req at 10.30pm 39H . When it is time to take the Q12H mino, intolerable antbite cramps. and as much as I try to go 48H between doses of this combo, bone pain, head ache, and decreasing body function make it impossible to continue without taking the next dose -which relieves the symptoms. sleep has been interrupted recently by me feeling too hot. (not the weather) esophageal herxing (like reflux) overproduction of saliva. (other members also have had this) just plain herx. usually have to get up for a while till it settles, and then can go back to bed and get some sleep. |
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Aussie Barb Research Team
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Thursday February 23rd 11.30am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 4th dose of 3 abx combo req at 10.30pm last night. all meds used as above to hold herx to tolerable. slept well after the new combo. eyes continue blurred sticky etc. feet continue swollen. Dr Marshall wrote re saliva production: The overproduction of saliva might well be 'normal' production of saliva, something you have probably not experienced for many years, maybe your whole life. Th1 disease very quickly messes up the salivary glands, and shuts down the saliva being secreted. << |
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Aussie Barb Research Team
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Friday February 24th 6.30am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 5th dose of 3 abx combo 7.30am today. some high herxes, all managed with meds as above. I/we went out to the shops briefly again last night to get a couple of things ....me in the wheelchair. it is nice to see the world some, but it will be nicer when I feel better mentally physically emotionally and can be independent. I have had a little better spot between herxes this morning.. - than I have done for a while. mucus coughy chokey. swallowing can be sensitive at times (I always forget to report). |
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Aussie Barb Research Team
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Saturday February 25th 7.30pm / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 5th dose of 3 abx combo yesterday. some high herxes, all managed with meds as above. gut diaphragm herx cough some. eyes same, black rings feet swollen R foot on the edge of crampy. R hand painful in some positions. nausea at times. |
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Aussie Barb Research Team
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Sunday February 26th 9.30am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H (yesterday had to take a couple of doses @ 8H)/ 6th dose of 3 abx combo today 2pm 52H. ie I went extra time. some Members posting about books movies etc: for me: no improvement yet in being able to watch serious television, read, or listen to music. 5pm: today can be summed up by. nausea. |
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sunflower Member in Phase 2/3 
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hey aussie girl, after reading yesterday's progress report, i was just curious how in the world you are able to read all the posts on this site that you do everyday, and answer with such thought and detail  . what is it about regular reading that is different from the work you do here? also, what is it about listening to music or watching tv that bothers you? is it too much sensory input that is irritating and/or tiring? wishing you everything wonderful...sun |
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Aussie Barb Research Team
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Thanks Sun, Any time I have tried to think about it I havent been sure what is different. BUT Long posts or not enough white space are difficult and that would be more book like. and what I do on the Board is copy and paste a post into the reply and divide it into parts that require answering, and reply to it a portion at a time..... so that would be attention span I guess. cant do that with a book. television. concentration attention problem again. as fast a thinker as I am, television seems to *go too fast*. and, during the day when I am not doing the Board, I am usually resting, on the bed in the dark. I enjoy the quiet. They say there is a time for everything. it must be about my time for quiet after raising a Family and a big Life. music: I have/had a great love of music. it has been many years now since the first signs of not 'enjoying' music any more. I had to have music off while travelling in the car. The problem isnt in the ears. it too is in the brain. I am more comfortable with silence, - although some music 'in the distance' doesnt bother me, and may even be pleasant for me. radio: no can do. telephone: has limitations also. so I limit. physical, mental, emotional fatigue and nausea result from over'exposure' to phone, social situations. Thanks for asking Barb ... |
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Aussie Barb Research Team
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Monday February 27th 9pm / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 6th dose of 3 abx combo yesterday 2pm some high gut herxing at times. esophageal herx. heels are dry and cracked again tongue is sore. feels like a small ulcer (mild) L side. feet swollen I have a couple of *hot* spots. diaphragm & chest area. eyes. hair seems to be thinner lately? I have noticed that I can no longer drink hot tea. I used to be able to drink it very hot. all I can think is that I must be feeling now and that I wasnt before. or ?part of GI herx. interesting. mobile hairdresser came. |
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CJ Member in Phase 3
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Aussie Barb wrote:
Sounds like what I need!! I cut my own hair ...in the darkened bathroom...good thing I wear it very short and very messy on purpose I am in serious need of a cut & color, what a pain. Guess I should get it done before my next herx. |
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Dr Trevor Marshall Research Team 
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Barb, Tongue ulcers respond very quickly to mouthwashes with Cetylpridinium Chloride in them. In the US one brand is "Viadent Advanced Care" in the UK Tesco's have a "Smokers Plus" clear mouthwash with it. Not sure about Australia. For some reason this antiseptic works real well against the bugs causing the tongue ulcers. Barb ADDs: is Cepachol in Australia |
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Aussie Barb Research Team
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Tuesday February 28th 6am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 6th dose of 3 abx combo day 2 - next due 48H will be 2pm. will watch and assess. esophageal herxing was high last night. reflux gush woke me coughing thru the night. then slept well. gut herx this am. throat, glands. subcutaneous ouch. Thanks Trevor. the tongue is fine again now. was a mild transient. |
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Aussie Barb Research Team
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Tuesday February 28th 8pm / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 7th dose of 3 abx combo today 2pm. I realised today that the uncomfortable esophageal herxing and feeling bad was previously a sign to me of needing to increase. so I increased the combo mino to 50mg. I would like there to be a noticable change of symptoms to be able to better tell when to increase. I just sort of sink slowly into a bad place until I realise what it is. feels better now. |
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Dogster Member in Phase 3
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Hi Barb, coincydinki. When I was first so very ill, I also couldnt read hardly anything, but took to poetry for the short lines and spaced lines . . . coincydinki. Also used to drink beverages so hot and later that same temp burned my tongue. coincydinki. Couldnt "enjoy" music for about a decade. Didnt even notice I had "lost" it until it came back one day out of the blue. I agree, its neuro. (And don't believe it is "full" enjoyment yet.) Also, needed lots of silence. coincydinki. Used to read and teach all kinds of complex things but post-sick, couldnt follow the plot of a soap opera on tv (again, I hadn't "known" this until a friend was staying at my house for awhile once, and she didn't want to miss her soap, and so watching it together and commenting and kidding back and forth she was a bit horrified and pointed out that I really wasnt comprehending the story line . . .) Took years until I could "tolerate" wearing a watch on my arm--whatever that is about!!!! Hmmmm or hrumpffff is about all I can say! thanks for your posts, Dogster |
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Aunt Diana Moderator
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Hi Dogster and Barb, I just had to respond to Dogster because he reminded me of my inability to read.....all of my life I used to be a bibliophile...would read and listen to opera at the same time. For the last fifteen years I prefer silence and can only read once in a while. (I miss them both but can't tolerate them.) I haven't been to a movie for years....hate watching that big screen..it seems to jump around on me. I remember in my early days of Lyme having the experience of reading a book, thinking it vaguely familiar, and eventually realizing I had just read it. /before Lyme I used to know if I had read a book by any string of words in the book....now I could read a book three times and still not remember what I read. I am counting on that to all go away.....I'm pretty sure it will because every now and them I do come out of the fog and my head is very clear. What a strange experience this whole thing has been. In a way, I think it has made me a better person, much more understanding of others. Before I had these limitations, I tended to get annoyed with other people who were "slow"...I simply had no comprehension of their state....just as most people today have no comprehension of mine. I know I look perfectly normal and seem bright enough. I'm having a good day today and it feels great. G'day to you both. |
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Aussie Barb Research Team
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Thank you both... Other points to add. wearing Jewellery is too 'tiring'. some types of music can make me cry. so beautiful I become emotional. the music thing is a very deep level that is very difficult to define. It is difficult to admit to some of this stuff without sounding seriously weird, but I know it is all part of it. thanks, Barb ... |
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Morris W. Milnes Member
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Barb Since the start of the MP I have become much more emotional. Now I don't always consider this a bad thing. If a movie can make me laugh or cry I consider it a good movie. Well, now my list of good movies has greatly expanded because even a stupid cartoon can make me cry .Morris |
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Aussie Barb Research Team
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Thank you all... Wednesday March 1st 4pm / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 7th dose of 3 abx combo day 2. slept well between Benicar. hot on waking (not hot weather) the lungs continue herxing. doesnt take much to provoke coughy. chokey to laugh. gut herx continues. waxes high enough, and wanes. all meds continue to keep managed. |
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ShrnHml Member in Phase 2/3
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Isn't it comforting to find that others have the same unsettling behaviors we have endured. I felt there was no one on earth who could understand the bizarre happenings of my life. Now, everyone here does. Silence - I used to come home from work on Fridays and close my doors and turn the telephone off so I could have undisturbed silence over the weekend. Music - I used to love playing my CDs. Now I have no wish to listen. Movies - I used to see all the really good films that came out. Now.....none. Jewelry - I used to have fun picking out which earrings to wear. Now I wear plain, small gold loops and never change them day or night. There is a previous thread that goes into our avoidance of any kind of stimuli. It may be "Hair loss and anxiety". Sharon |
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Aussie Barb Research Team
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Thursday March 2nd 3.40pm / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 8th dose of 3 abx combo today 2pm @ 48H. sometimes feeling chilled slept well between wakes. up at 2am and 5am. gut herx continues. waxes high enough, and wanes. transient mild nausea. continue all meds to manage symptoms. all symptoms still the same. |
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Aussie Barb Research Team
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Friday March 3rd 6.40am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 8th dose of 3 abx combo yesterday 2pm @ 48H. slept well. woken 4am with gut herx, took Benicar (6H) settled. then antbite cramps R arm and ribs, took quercetin. settled. I go thru stages of what I can eat for breakfast and what I can eat during the day. at the moment I am wanting to eat meat for breakfast, and lighter foods thru the day. |
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Aussie Barb Research Team
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Sunday March 5th 8.40am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 9th dose of 3 abx combo 12MN @ 56H. Esophageal reflux herxing is back. needs frequent MP meds to hold down, so I will have to take an increased dose of combo to overide the last. I will do so at closer to 24H. Otherwise all remains the same when requiring next meds >>> intolerable bone pains in left arm and intolerable antbite cramps to R arm and ribs or a mild headache arrives<<< eyes still black rings, glazed, bloodshot, and deepset. and blurred and some crusty. feet and me swollen. gut/diaphragm herx. sitting at computer is the height of my activity. mentally emotionally stable managing with meds as per index. Add: 9pm: feeling intolerably worse this afternoon tonight. have used all available meds. time for increase. not herxing as such. weak, sludge, sick, tired. 8.30pm took 1st dose of increased 3 abx combo. |
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Aussie Barb Research Team
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Monday March 6th 8am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1st dose of 3 abx combo 8.30pm last night. When my meds Benicar Quercetin Mino are due may be heralded by intolerable symptoms. eg. when requiring next meds >>> intolerable bone pains in left arm and intolerable antbite cramps to R arm and all ribs or a mild headache arrives<<< or herx symptoms below>> rise.. the herx symptoms inbetween are different and are managed to tolerable as long as I continue as per index. eg. The gut diaphragm herx etc. When I need to increase the abx, the symptoms change and increase and the Benicar Quercetin Mino isnt enough to hold me at a tolerable level of existence. While I am trying the other meds to make sure that I will have to increase the abx combo, with this particular combo the 'increase' symptoms get really awful. eg. not herxing as such. weak, sludge, sick, tired. a quick decline into less function occurs. |
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Aussie Barb Research Team
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Some of you may have been aware that I have been requiring / using Natural Progesterone (NP) since pre MP. Pre MP I was Rx NP + thyroxine - which enabled me to come off antidepressants. I have used NP as an extra to MP meds on an as required basis mostly for intolerable mental and emotional symptoms, fragility. In Sept 05 I was able to stop the thyroxine. I have been requiring less NP in the last 6 months and the requirement has dropped to nil recently.. For your own Information see our new FAQ Why should I avoid hormone replacement medication? all best, Barb ... |
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Aussie Barb Research Team
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Tuesday March 7th 6am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1st dose of next level 3 abx combo (see phase 2 report for details) /day 2 . slept weller last night. Ears wet inside again recently. face scalp itch more pronounced today. transient mild feelings of ?is it parasthesia ... is a mild version of similar to what the always intolerable antbite cramps feel like. R side. gut / diaphragm. and cough. all waxing and waning to some degree as usual. Increase abx level is better. not as physically miserable. mentally emotionally stable. no fragility evident. all social boundaries still required. |
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Aussie Barb Research Team
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Wednesday March 8th 6.30am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 2nd dose of next level, 3 abx combo (see phase 2 report for details) / taken 5am some transient stomach cramping. and hot stabs. woken by herx thru the night. was hot (not the weather) used MP meds. slept well. 4H took next combo this am. I feel like I have been winded, gut herx. weak. heels cracking badly again. (a pre MP symptom) otherwise all same. add 11.30pm: woke, skin itching burning, reflux burning. had taken extra probiotics and all meds prior for reflux. took extra mino 50mg (approx 8H). will have to try a different abx tack. |
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Aussie Barb Research Team
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Thursday March 9th 6.45am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 2nd dose of next level, 3 abx combo (see phase 2 report for details) / taken 5am yesterday. last night, some burning reflux and stomach cramping. woken by skin itching burning, and esophageal burn herx thru the night. was hot (not the weather) had used all MP meds. took an extra mino 50mg 11.30pm (8H) will have to change tack by the look of this. slept well. 5H woke with body ache and uncomfortable right calf muscle. otherwise all same. add 11.30am: 1st dose of change back to 2 abx. |
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Aussie Barb Research Team
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Friday March 10th 7am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (mostly to settle/sleep). 1st dose of back to 2 abx combo (see phase 2 report for details) / taken 11.30am yesterday. The symptoms got out of sync when I got out of sync with the Q12H mino and the time of taking the 3 abx combo. yesterday was still a day of trying to catch up, and today started off feeling better than it had been. slept well. gut/diaphragm and cough herx symptoms. eyes. feet. continue to use meds as per index to hold symptoms tolerable. otherwise all same. |
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carol Moderator 
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Dear Barb: I just read your post from a few days back about your reduced use of the natural progesterone. I was wondering what you had done about this. I think it is wonderful that the MP continues to evolve and become more complete and we are able to refine our treatment in response to new learnings. This just adds to my confidence. Carol |
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Aussie Barb Research Team
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Thanks Carol see this post Aussie Barb.. re NP: says I have been requiring less NP in the last 6 months and the requirement has dropped to nil recently.. I have always *had to* use the NP on as required basis as an extra to MP meds mostly for intolerable mental and emotional symptoms, fragility, and recently have not required the extra. Barb .... |
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Aussie Barb Research Team
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Update: It appears that my body is not coping physically with no Natural Progesterone. Gut/body Herx symptoms are constant and have escalated to too uncomfortable despite all MP meds management. Barb ... Later add: 7pm: after NP, took some time, but settled to tolerable. |
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Aussie Barb Research Team
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Saturday March 11th 7.40am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). 1st dose of back to 2 abx combo (see phase 2 report for details) day 2. yesterday herx intolerable despite all meds. used NP and tylenol. eventual relief. slept well. 5H woke 2am with high chest herx. settled with NP and meds. resting. sleep. I have picked up some. Add: unwell but managing. 1pm: 2nd dose of 2 abx combo. |
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Aussie Barb Research Team
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Sunday March 12th 5.40am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). 2nd dose of 2 abx combo (see phase 2 report for details) yesterday 1pm. yesterday herx right to the edge of intolerable at times. using all meds. some nausea. resting. slept well. 4H. woke 2am with gut herx. hot. herx settled with meds after mino 50mg. then cold. 28C / 80F degrees dressed in winter clothes, slippers. 11 am add: normal temp now. also recently. when hungry cant think what I can stand to eat.. From when I was a teen, I would complain "I am hungry but I dont feel like eating" |
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Aussie Barb Research Team
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3pm I have picked up some. still requiring meds to manage but the herx has settled to tolerable. |
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Aussie Barb Research Team
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Monday March 13th 3am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). 3rd dose of 2 abx combo (see phase 2 report for details) now 3am. is 38H. yesterday herx managed to tolerable a couple of times. improved compared to what I have been in recent weeks. using all meds. woke 1am. esophageal thru the night. some nausea. got up to settle. 3 am took combo to settle. Add 10am: blehh erk. Add: too intolerable to continue. 11.30am took 1st dose of next level of 2 abx combo. |
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Aussie Barb Research Team
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2.30pm things are improved at the minute, so I am hoping that the increased dosing level is going to keep it that way. Thanks to All ... Barb ... |
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Aussie Barb Research Team
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Tuesday March 14th 7am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). yest 11.30am took 1st dose of next level of 2 abx combo. day 2. yest after increased dose: unwell but picking up. had hotspot in R breast. bad antbite cramps R arm and ribs when meds are due. slept really well. 7H am ok so far today. usual gut herx. very hard drawing in seat, sitting. |
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Aussie Barb Research Team
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Wednesday March 15th 6am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). 1st dose of next level of 2 abx combo. day 2. 11.30am is 48H yesterday was more normal MP day. still not quite right. had hotspot in L breast. bad antbite cramps R arm and ribs when meds are due. transient muscle spasms transient aches in bones, or in hands. Tylenol to settle last night slept well. 4H am ok so far today. usual gut herx. very hard drawing in seat, sitting. note to self: I will have to be on the lookout for the unrelievable esophageal reflux symptom as my sign to increase. It may be the one thing in particular that I can identify each time before I go too far downhill. (unless of course I am already gone downhill by then, or, it changes) |
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Aussie Barb Research Team
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Thursday March 16th 9.30am / Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H may not be requiring this with new combo? still assessing / 1 x tylenol infrequently prn (to settle herx / to sleep). 11.30am yest took 2nd dose of next level of 2 abx combo. no good. I am waiting for new abx to come in the mail. I have done this 2 abx combo just before the last. I am symptomatic when I need to either ramp or add. Adding making 3 abx was either too much or not right. The 2 combo by itself is not working well either. my body is letting me know it needs a change after only 2nd dose at this level. still no new abx arrived here.. transaction occurred 24th Feb. shouldnt be long. may have to experiment with new 2 combo instead. signs of combo inadequacy for me: esophageal reflux keeping me awake all night, and heels beginning to crack / hurt.. when I change combo/dose these immediately stop. awake symptomatic. up and down. up and down. 2am took first new dose of mino 50mg + next 2nd abx. I have slept really well. 5H. 3am to 8am is unusual for me. esophagus and heels are good again. normal herxing. aaahh.. sore R base of skull 3.30pm Add: not requiring Q12H mino. so far is 22H since last mino. Gut/body herx is managed by meds as per index.. less probiotics required so far today. shoulders backache and fatigue. BO. chemical. |
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Aussie Barb Research Team
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HAPPY ST PATRICK's DAY !!!! Friday March 17th 10pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q24H is as required at the moment. last 4pmish / 1 x tylenol infrequently prn (to settle herx / to sleep). Yesterday herxing and managing ok with meds all day. Toward evening started getting too woozy, took mino 50mg @ 24H. settled. went to bed. couldnt sleep. up down. strong gut herx. no good, used all meds including tylenol. decided to try a changed dose of same combo. I had been too lazy (sorry, I know) to divide mino (tablet!) previously. took first dose of lowered mino 25mg + a little increased 2nd abx @ 12mn. may need less again next time yet. then slept well. woke - herxing tolerable. managing ok till 12md and have been medding to manage to tolerable all afternoon. will see how tonight goes.. I am getting prepared. I dont have painful herxing. intolerable = very woozy (better to sit or lie down), and strong gut herx, and some choking coughing sometimes. and the antbite cramps are painful if I dont get some or other med into me as soon as I feel it coming. |
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Aussie Barb Research Team
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Saturday March 18th 11am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). A reduced dose of this combo has still hit me hard with gut herx. Managing with all guns blazing. |
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Aussie Barb Research Team
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Sunday March 19th 1pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). Managing the gut/body/cough herx with meds. emotional misery is back again. makes me think it is the aftermath of the big herxing I have experienced. 2pm add: taken 2nd low dose 2 abx combo. |
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Aussie Barb Research Team
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Monday March 20th 7.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). 2pm yesterday: took 2nd low dose 2 abx combo. emotional misery settling. restless night again. low level (toxic type) headache today. gut/body/cough herx tolerable with meds. cough gets really chokey at times. these symptoms same.. feet remain swollen eyes remain same subcutaneous ouch |
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DianeC Member in Phase 3
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Hi Barb, We just heard on the news of a cyclone in Australia I Hope it is not anywhere near you or any other of our MP familyWishing that you were feeling better Best wishes DianeC |
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Aussie Barb Research Team
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Thank You Diane as far as I know I am the closest of the MP Members to this cyclone and we are not close. so far, we are not at all affected by any bad weather here. all best to All, Barb ... |
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Aussie Barb Research Team
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Tuesday March 21st 2.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H / 1 x tylenol infrequently prn (to settle herx / to sleep). Monday 9pm: took 3rd low dose 2 abx combo. emotional misery settled. I am in quiet mode now. Slept 4H and here I am, up with a face ache. only. |
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Aunt Diana Moderator
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I'm glad you're over that one...whewee!!! Sounds like you're having a decent day for a change. Here's hoping it lasts. No one deserves a respite more than you do Aussie Barb. |
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Aussie Barb Research Team
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Thank you to All... My Blood Tests 6th March 06 25D=14 is down from 21 Urea 13.9 (ref: 2.5-8.5) Urate 0.55 (0.15-0.45) Creatinine 160 (50-95) Phosphate 1.62 (0.75 - 1.45) Cholesterol 6.0 (<5.6) Triglycerides 3.9 (<2.6) All results as expected. |
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Aussie Barb Research Team
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Wednesday March 22nd 3.50am/ Benicar 40mg Q6 - 8H, day and night / Quercetin TID / Probiotics TID/ mino 50mg Q12H will see if I can change this to 25mg Q6H today / Monday 9pm: took 3rd low dose 2 abx combo. Things seem to be quieter herx-wise. so while it is like this, I am going to see if I can take advantage and extend/decrease some of my herx management meds, find a new baseline. 5pm add: woozy, and then intolerable antbite cramps, so took 4th dose of low dose 2 abx combo. 44H. today mino changed to 25mg Q6H going ok. Quercetin reduced to BID herxing staying mild and managed by meds ok. |
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Aussie Barb Research Team
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recent symptoms I forget to report: waking up with both hands being very numb. a change in my taste to not being able to *bear* to eat what should be ripe and nice fruit because of a perceived *tang*. subcutaneous ouch is ouch. an innocent touch or scratch can hurt. face and scalp itch palms of the hands have the appearance and almost feel of being wet and are in fact dry. mild transient bone pain in ankles today. I have thin dark streaks vertically on my thumb nails. |
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Aussie Barb Research Team
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Thursday March 23rd 7am/ Benicar 40mg Q6 - 8H, day and night / Quercetin prn / Probiotics prn eating yogurt / mino changed to 25mg Q6H successfully yesterday / Yesterday 5pm: 4th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). @ 44H. Slept well between wakes. didnt need to get up in the wakes.. Herx is mostly (unusually) quieter this morning. While this combo will hold me ok, ie the herx and body function tolerable, as it is doing so far, I will stay at this low dose abx combo level till I get the herx management meds all reduced to the new baseline. Herx rises and is being held down/managed successfully by reduced schedule of the meds, being taken as required. Quercetin and probiotics reduced to one per day yesterday. 6pm add: more constant herx this afternoon. but still managing with reduced meds. hoping. Quercetin BID today. I am amazed at how much herx comes from so little abx. |
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Aussie Barb Research Team
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Friday March 24th 3am/ Benicar 40mg Q4 - 6H, day and night / Quercetin prn / Probiotics prn eating yogurt / mino changed to 25mg Q6H successfully yesterday / 5pm will be 48H: 4th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). Woken 2am with intolerable leg cramps both legs and R ribs and arm.. this is what happens when I reduce the meds.. Quickly took mino 25mg + Benicar 40mg (5H) and waited for relief. Will have to be aware of this. 41H 10am: herx wont slow despite meds. nausea. took 5th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). 3pm: Gut Herx is high today, all day. 6pm: relentless. worst physical 'pain' day ever.. taking all meds. If I ever had any doubts how much herx I am managing I have none now. 10pm: after I have thrown all meds at it+, has settled to normal level. |
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Aussie Barb Research Team
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Saturday March 25th 11am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino changed back to 50mg Q12H / yesterday 10am: 5th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). Woke 2am tried Benicar, and stayed up for a while to see if it would settle. needed mino 50mg (was 12H) slept well then. after worst gut herx day ever yesterday, woke to a new day today. back to normal herxing again.. 2pm: gut herx starts rising again to intolerable. taking all meds. 5pm: continues. with stomach cramps. |
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Aussie Barb Research Team
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Sunday March 26th 5am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H / 10am today is 48H from: 5th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). All finally settled around 9pm and slept fairly well. I had taken Tylenol and Aspirin along with the mino and ARB and pbx and Q and hot packs.. all along the way. Woke usual 'normal' today. today I will do my usual: treat it as it comes routine. and see where the combo is required. as always, leaving it as long as I can. hoping for no more 'intolerable'. some muscle spasms gut herx rising and falling.. wooziness when meds due. also unreported. small bumps all over chest area recently. 1pm: took 6th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). 51H |
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Aussie Barb Research Team
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Monday March 27th 7am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H / 1pm yesterday: took 6th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). The herx was 'normal' till 3pm started to rise, with stomach cramps. some intolerable and some close to intolerable. better than 2 previous days. as well as taking all meds I take Benicar 20mg extra if the herx is getting too hot. slept till 11pm. woke esophageal. got up. mino 25mg. helps. slept well 5H. one moment at a time. 7pm: am ok. herxing has risen but is ok now. some bottom pressure today. |
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Aussie Barb Research Team
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Tuesday March 28th 1.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H / these above meds used to manage herx to tolerable. 1am 36H: took 7th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). Gut herx normal, no stomach cramps. herx rose a bit high but settled with meds. some emotional. some bottom pressure.. usually a sign of needing more abx or meds.. ? watching assessing. taking care. In the past, I can be herxing one minute and needing an increase the next. as well as taking all meds, if required I will sometimes take Benicar 20mg extra if the herx is getting too hot and I am not due to take anything else.. Tonight. Not sleeping well. esophageal. mino 25mg. no good. up (now). took combo. settling. slept 4H one moment at a time. 6pm: have had 1 bout of gut herx rising to intolerable this afternoon. took 1 extra Benicar. ok. sore L underarm. no excoriation obvious. a lot of eye itching and blurry eyes and crusting. my 2 year eye test is due, but there is no sense my going till I get past the eye herxes. 11.30pm: up. mino 25mg. |
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Aussie Barb Research Team
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Wednesday March 29th 6pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H / these above meds being used to manage herx to tolerable. 1am Tues: took 7th dose of low dose 2 abx combo (mino 25mg + very very low dose 2nd abx). 11.30pm- 2am ish: up with herx. mino 25mg. then slept 4+H. no intolerable today. gut herx rose to limit x 1 but meds, mino 25mg held it. no stomach cramps. L underarm. ok eyes me still swollen palms of hands still feel wet but not. dysfunction, ..... muscle spasms, cough, when meds are due. some scary tickling in R calf muscle like a precramp thing. one moment at a time. |
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Aussie Barb Research Team
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Thursday March 30th 6am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H / these above meds being used to manage herx to tolerable. 2am: took 1st dose of low dose 2 abx combo (mino 25mg + increased to next level low dose 2nd abx). 11.30pm- 2am ish: up with symptoms. took increased combo. one moment at a time. |
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Aussie Barb Research Team
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Friday March 31st 3.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H / these above meds being used to manage herx to tolerable. 2am yesterday: took 1st dose of low dose 2 abx combo (mino 25mg + increased to next level low dose 2nd abx). yesterday symptoms: GI tract felt raw. 4pm when Benicar was 20 mins off due: chest shoulders arms rose quickly to intolerable. Benicar relieved. esophageal reflux thru the night/s: the only thing to relieve this has been mino 25mg. (or the abx combo) sleep ensues. slept better. up at 2am. feel ok at the moment. 7am add: symptoms. some stiffness in neck GI raw hands eyes scalp itch 6pm: some emotional one moment at a time. |
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Aussie Barb Research Team
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Saturday April 1st 1.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H / these above meds being used to manage herx to tolerable. Fri 12MN: took 2nd dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). GI tract raw. gut herx. always woozy when mino due. emotional ok now. heels begin cracking when combo due. one moment at a time. 6pm ADD: high gut herx day. going right to the limit. using all meds. - particularly woozy in the head if on my feet. - galloping butterflies - L diaphragm muscles actually move. |
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Aussie Barb Research Team
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Sunday April 2nd 6.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H / these above meds being used to manage herx to tolerable. Fri 12MN: took 2nd dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). gut herx has been HIGH. going right to the limit. using all meds. very woozy when mino due. eyes.. blink blink trying to see.. still black rings, deep set, bloodshot. esophageal thru the night wakes me. mino 25 settles, sleep. sometimes chilly, sometimes hot (dry heat), sometimes just right. usual stiff and swollen. I wouldnt want to be this sick if I was healthy. no wonder 'normal' people cant understand. one moment at a time. |
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Aussie Barb Research Team
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Sunday April 2nd 8pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Fri 12MN: took 2nd dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). now 44H. surprise. gut herx has been HIGH. going right to the limit. using all meds. mino 50mg this morning, gut herx too high this afternoon mino req, took 25mg. settled eventually. took mino 25mg now as it started to rise again. am presently holding a window of tolerable gut herx. one moment at a time. |
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Aussie Barb Research Team
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Monday April 3rd 4am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Monday woke 2am: took 3nd dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). 50H. esophageal not settled for long by mino 25mg. Took combo. relief. one moment at a time. |
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Aussie Barb Research Team
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Tuesday April 4th 5.40am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Monday 2am: took 3nd dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). was able to do mino as 25mg Q6H yesterday. slept better. 5H. no esophageal wakenings. gut herx goes to the high side of tolerable when meds near due but meds holding it. abdo right upper quadrant this morning. ugh. skin is herxy. oily. creepy. hands as usual subcutaneous ouch. scalp itchy. eyes as usual. puffy continues. hot. one moment at a time. Add: 7pm: took 4th dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). eyes more mattery. some transient bone pain in limbs. |
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Toni D Moderator 
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Hang in there! Be blessed. Toni |
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Aussie Barb Research Team
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Wednesday April 5th 3.40am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Tuesday 7pm: took 4th dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). 41H slept well between wakes. 11pm esophageal -mino 25mg. up for an hour. 2.40am back of neck cramps - Benicar dose. up. gut herx even when not high needs calming one way or the other. eyes are bad. I hate eye drops and ointment is worse. I wash them with water. other symptoms same. one moment at a time. 4pm ADD: gut herx has surprised me today with how high it has gone again. right to the limit. requiring extra meds. nausea. esophageal burning. |
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Aussie Barb Research Team
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Thursday April 6th 12.20pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Tuesday 7pm: took 4th dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). slept well 4H Nausea and esophageal when the mino is due. 5 to 6H cough, mucus etc when meds are due. very sensitive throat re cough choke with food or drink ( I forget to report this) some backache at times. face scalp hair skin, itchy, oily, herxy. a window of lower herx today. surprise. this means less gut / body herx >> means I am not so woozy eyes not as bad today. gut still needs calming. other symptoms same. one moment at a time. 3pm Add: took 5th dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). 45H 4pm Add: some sharpish 'deep' shadows of pain R side of head, shoulder blade, back, diaphragm, inguinal. all tolerable. comment re lungs: I was surprised to be lung herxing on MP, and it has continued for months, but when I thought about it, I have been air hungry for as long as I can remember, and have nearly choked if I laughed or cried. I had never even thought of these things as symptoms of illness until MP. re ear draining: my L ear feels like it is draining, I can hear the drop drop on my pillow, and unbelievably it is draining.. feels wet. I use methylated spirits on a cotton swab (always testing the swabs strength first so it wont stay in my ear) |
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jrfoutin Research Team
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a window of lower herx today. surprise. That looks interesting. Also, I sometimes choke on water or food and never thought of it as a herx, but certainly do it more than other folks in the house. So, I guess I am learning still. Thanks! Last edited on Thu Apr 6th, 2006 15:53 by jrfoutin |
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Aussie Barb Research Team
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Friday April 7th 10.10am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Thursday 3pm: took 5th dose of low dose 2 abx combo (mino 25mg + low dose 2nd abx). 45H slept well 5H Surprising things happening. a change. the window of lower herx again today. 5th dose at this level. yesterday a window and today a window. this is making me think that I may this time know to increase the abx by having the experience of a herx decrease.? This will be the first time in memory that the base of the herx has lessened like this. amazing. The base herx is at this moment tolerable inbetween rises. ie. Symptoms are still rising pre meds to alert me to the need to take my palliative meds as above to hold all tolerable. still puffy. some stomach cramping one moment at a time. Add: 1.30pm: the herx is back up high again now with no meds due. took extra Benicar 20mg. |
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Aussie Barb Research Team
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Friday April 7th 6pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Friday 6pm: took 1st dose of increased 2 abx combo (mino 25mg + 2nd abx. 27H The brief windows might have been the sign to increase.. so I guess that is progress. 1.30pm: the herx came back up high again with no meds due. took extra Benicar 20mg. and then other meds as above.. 6pm: Herx continued high and symptoms havent been relieved by meds, so for me it is a sign of time for increase. It is scary for me to increase when the herx can be high, but this is intolerable just 24H after taking the combo and having used all meds with no effect. this is the way it works for some of us.. I made it a small increase in the 2nd abx so it is not too much for me.. all settled. one moment at a time. |
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Aussie Barb Research Team
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Saturday April 8th 7am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Friday 6pm: took 1st dose of increased 2 abx combo (mino 25mg + 2nd abx. 27H couldnt settle, took tylenol and mino and extra Benicar 20mg. slept 5H. I made it a small increase in the 2nd abx so it is not too much for me.. and... it feels like it has not been enough.. esophageal etc not settling with other meds.. I have tried Rx meds for the esophageal and nothing settles it like the abx/mino 25mg. R side: R foot threatening to curl up in a type of cramp. R base of skull ache. one moment at a time. 3pm Add: doing ok, meds holding all to tolerable. |
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Aussie Barb Research Team
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Saturday April 8th 6.30pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. After the couple of days with the first windows of a few hours lower baseline herx, yesterday afternoon the herx went up with a vengeance. Then the symptoms would not be quelled by any / all of the meds so I knew I had to take the combo. and as it was required sooner than it should have been (only 24H) also indicated to me that the previous dose level had run its course. (5 doses at that level) Because of the high herxing I had been having, I was also afraid to increase too much .. I was in unfamiliar territory (having had the low herx and then the high) I wanted to be sure if I was reading the signs well enough before making a proper increase. to act on the cautious side. Today I feel that I have read it well, and that my symptoms today show me I could have increased more so I will take more in the next dose.. This level doesnt relieve some of the intolerable symptoms well.. and there isnt much other herx. a balance is required.. Some of the symptoms not relieved that I can think of at the moment which tell me I require meds are: the less herx, and more intolerable esophageal, muscle spasms and crampiness which are barely relieved today. makes it a hanging in type of day.. a bit higher dose level will be better with being able to manage to tolerable herxing. All experience gained.. one moment at a time. how do I know how to adjust the meds? I know because I know how or if the symptoms respond to the meds. So far, my meds are used more to control herx than to cause it. |
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CLefelt Member in Phase 3
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Dear Barb, I'm wondering if something you're eating could provoke the esophagus. Before starting the MP when I was taking oral Doxycycline for Lyme, I damaged my esophagus and it took forever to heal. The gastroenterologist I was seeing told me to avoid mint, both peppermint and spearmint of any kind, including herbal teas. I found that other foods would cause the problem to increase also. Anything too hot or too cold as well. Just a thought. Otherwise, I'm glad you at least had that window of decreased herxing. xxx Carol |
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Aussie Barb Research Team
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Thanks for your thoughts Carol I have thought of the food angle.. and will continue to assess. The interesting thing is that it presents when the meds are due, and the abx/mino is the thing that fixes it every time. and because the gut has been herxing since I started MP, I wasnt surprised at this add on. all best, Barb ... |
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Aussie Barb Research Team
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Sunday April 9th 5pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / these above meds being used to manage herx to tolerable. Saturday 10pm: took 1st dose of increased 2 abx combo (mino 25mg + 2nd abx. 27H esophageal herx comes with non burning gushes when on the bed. extra salivation. gut herx rising when meds are due and is more R upper quadrant today. very woozy/drunk without drinking when on my feet. jumps in calf muscles and the R big toe wants to cramp/curl in feeling when on bed. (feeling like it needs a splint to hold it straight) mild backache. Nausea. when I cough, mucus blocks the airway and I have to clear it. one moment at a time. |
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Aussie Barb Research Team
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Monday April 10th 1.15pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / 2.30am: took 2nd dose of low dose 2 abx combo (mino 25mg + 2nd abx). more persistent esophageal herx. transient extra salivation. gut herx. and R upper quadrant very woozy/drunk without drinking. jumps in calf muscles became electric shocks !! in L calf muscle.. jiggling it till the meds relieved. L shoulder cramp when I cough, mucus blocks the airway and I have to clear it. hands go numb in bed. chest tightness. above symptoms are managed to tolerable by the above meds. one moment at a time. |
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Aussie Barb Research Team
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Tuesday April 11th 9pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / Monday.. pm: took 3rd dose of low dose 2 abx combo (mino 25mg + 2nd abx). eventually slept. dreaming in the night and then today felt like I am living in the dream.. shrug.. less esophageal herx. gushes when meds due. gut herx generally less. 1 high buzz for a while. less woozy tonight calf muscles ok again. less cough. hands go numb in bed. transient chest tightness. more so when Beni due. today the actual symptoms have been more easily managed but quite sick and tired and dysfunctional. I am holding with the above meds. ie my body isnt requiring the taking of the abx combo to get out of intolerable. so far. heels feeling cracky itch L underarm.. one moment at a time. 2am Add: up with high gut herx. |
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Aussie Barb Research Team
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Wednesday April 12th 8am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / Wednesday 8.15am: took 4th dose of low dose 2 abx combo (mino 25mg + 2nd abx). 36H approx. Taking the combo has been an almost daily affair. The symptoms are managed to tolerable with the other meds till a certain point and then no more. the only thing to knock them down again is the combo. this time the time has gone a little longer.. I am using the meds and assessing as I go.. Last night bedtime: such a whole of face ache. tylenol x 1. chest pressure continued and thru to back and down both arms. aspirin x 1 w relief. slept well between wakes. a couple of hours at a time. My body has naturally over time on the MP decreased the requirement for the Natural Progesterone. It was helpful to my whole of body function, including gut. and there was a time that unless I had a puff from my NP oral spray, I was too fragile to speak to anyone on a phone without crying. Generally I dont have the mental and emotional misery like I used to. However I am thinking that the present esophageal and the intolerable gut symptoms are rebounds from the end of NP. (4 weeksish since I needed a puff) I just keep doing whatever I have to do meds wise to keep all tolerable. it will settle one day. one moment at a time. |
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Aussie Barb Research Team
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Thursday April 13th 8.30pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / 8pm: took 6th dose of low dose 2 abx combo (mino 25mg + 2nd abx). last night pressure in GI. couldnt settle. settled a couple of hours after meds taken. slept most of the night!!! I do sleep better when I have all managed to tolerable. a couple of high gut herxing sessions. esophageal is not as bad but I am taking the mino 25mg a little sooner, as soon as the first signs. I dont know that I am woozy till I stand. other symptoms all much the same. R back of neck pulling at times since on this combo. emotionally a bit off today. more fatigue one moment at a time. |
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Aussie Barb Research Team
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Good Friday April 14th 6.30pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / Add Sat 9am: took 1st dose of (mino 25mg + next level 2nd abx). last night wakeful again. esophageal gush caused violent choking coughing. high gut herx today Thick head. headachey. aspirin. chest pressure x 1. aspirin. Add 9pm: it has taken till now to settle the intolerable gut herx. still high enough. hoping to settle for some sleep. one moment at a time. ~~~ Happy Easter to All ~~~ |
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Aussie Barb Research Team
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Easter Saturday April 15th 7.15pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / Sat 9am: took 1st dose (mino 25mg + next level 2nd abx). Didnt sleep well nausea waxed and waned. dont know what to eat. drunkenness on standing continues. the meds keep the symptoms tolerable. antbite cramps still come when the meds are due and go again after I take the med. gut herx rising when meds due. visitors this afternoon. one moment at a time. ~~~ Happy Easter to All ~~~ |
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Aussie Barb Research Team
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Easter Sunday April 16th 7pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H /
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Aussie Barb Research Team
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Easter Monday April 17th 11am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / Sun 8pm: 3rd dose (mino 25mg + 2nd abx). woken by herx 1am. meds. eventually settled after 3am. slept 5H. have lovely Family visiting. had a small fall and other trauma yesterday. feeling the effects today. using meds. am ok. herx continues. one moment at a time. |
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DNStog Moderator
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Barb, Hope the end of this day finds you feeling much better. You continue to be our awesome Aussie. Wishing you more gentle herxing in the days to come. Donna Last edited on Mon Apr 17th, 2006 09:11 by DNStog |
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Aussie Barb Research Team
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Thank You Donna... Tuesday April 18th 2.45pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H / Mon 8pm: 1st dose (mino 50mg + 2nd abx). lovely Family visiting. R shoulder pain up into R neck pull continues/ aftermath of fall. still some fragile. herx continues. out to dinner last night. big effort to dress with help. slept better between wakes. one moment at a time. |
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ShrnHml Member in Phase 2/3
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Barb......I'm so glad you had your family with you, and I hope there are no after effects of your fall. Thinking of you..............Sharon |
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DianeC Member in Phase 3
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Hello Barb, I am so sorry to hear that you had a fall I Hope that you are now feeling much betterIt sounds like you had a nice time with family at Easter Best wishes for more gentle herxing Thinking of you.....DianeC |
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Aunt Diana Moderator
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Hello and a belated Happy Easter to one of my favorite people on earth. I am sorry to hear you had a fall, that's all you need, on top of everything else. But it sounds like it was not that serious and that you are rebounding nicely. I cannot express to you in words, how much you mean to me and how much I depend on your words and advice. You're sort of like a "fairy godmother" to me and I wanted to thank you for all you are doing to help us. I am getting very teary just thinking about you and what you have gone through, but you always manage to remain stalwart and positive and helpful. You set such a wonderful example to all of us...and I know I am speaking for many, when I say that The world would be a much better place if there were more people like you in it. Of course, all of this is only possible because of Trevor Marshall and his genius. Whoever came up with the idea for this website should win the Nobel Prize. I just felt the need to thank you all once again for the service you are offering to your followers. |
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Aussie Barb Research Team
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Thank You All so much for your kindness and wonderful support... Wednesday April 19th 12.35am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H - went for 15H without mino! / wed 12.15am: 2nd dose (mino 50mg + 2nd abx). lovely Family visiting. will go home today. unhappy if I think about this. R shoulder pain up into R neck pull continues/ aftermath of fall. still some fragile. herx continues. I went along for 15H without mino 25mg!!! I went to bed, thinking wow! and then I felt a precramp niggle in my calf. I took the mino as a preventive as I have had this happen before, no mino, huge cramp thru the night. I woke at 11pm... esophageal ooouch, water. tried to sleep.. it has become intolerable... grrr. so up I get and take the combo, and waiting up till it settles. one moment at a time. |
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Aussie Barb Research Team
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Thank You All... Thursday April 20th 7am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H/ Wed 9pm: before bed: 3rd dose (mino 50mg + 2nd abx). Slept ok between/after wakes R collarbone pain up into back R neck pull continues. still some fragile. all usual symptoms continue>> esophageal and gut herx puffy skin oily itch etc wet inside L ear chest pressure woozy/debility Add: 2pm: symptoms intolerable. emotionally fragile esophageal IBS woozy neck pull pain took 1st dose increased combo: mino 50mg + increase 2nd abx. one moment at a time. |
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Aussie Barb Research Team
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Friday April 21st 5am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 25mg Q6H/ Thurs 2pm: took 1st dose increased combo: mino 50mg + increase 2nd abx. wakeful with herx R collarbone pain. R back of neck 'pull' spot. hips when lying. eyes crusty etc nausea, a feeling of heavy saliva, esophageal strong between meds. my gut must be getting a complete makeover. I have been gut herxing since beginning Benicar. all usual symptoms subcutaneous ouch one moment at a time. |
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Aussie Barb Research Team
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Friday April 21st 9.20pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ Fri 9pm: took decreased dose combo: mino 50mg + decrease 2nd abx. decreased 2nd abx combo dose back a notch as intolerable nausea etc this am. the mino 25mg hasnt been relieving the esophageal etc so up to 50mg Q12H. using all meds.. my own computer came back tonight after 6 months on a loaned computer -so some stress setting up and finding files etc as it is a lot extra.. interacting with the nice computer man is still wearing. extra Benicar helped. one moment at a time. |
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Aussie Barb Research Team
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Saturday April 22nd 7.40pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ Sat 4am: took 1st dose 3 abx combo: mino 25mg + 2nd and 3rd abx. awake most of the night with esophageal raging this am. using meds. short term relief. Sat 4am: started 3 abx combo as above. difficult day. herxing around both shoulders esophageal herxing has been intolerable at times. gut herxing builds congestion in the diaphragm/muscles that I have to lie flat to relieve. when I need a med I need a med.. antbite cramps are unforgiving until the mino 50mg is taken. one moment at a time. Add: 9pm mino and Benicar, went to bed. esophageal tolerable. 11pm: woke esophageal intolerable took 2nd dose 3 abx combo: mino 25mg + 2nd and 3rd abx. took combo as above and stayed up for an hour till starting to settle some. |
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Aussie Barb Research Team
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Sunday April 23rd 5.10pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ Sat 11.30pm: took 2nd dose 3 abx combo: mino 25mg + 2nd and 3rd abx I actually slept 5ish H. Bone pain in arms woke me. took Benicar only -to see if that will suffice. 6am: have to take mino 50mg as bone pain continues. 9.30am: Face ache and some gut herx, not woozy, is heaven to where I have been. all is relative. subcutaneous ooouch.. the run over feeling. The gut herx has been full-on but tolerable today. shoulders and esophageal and woozy build and antbite cramps hit when meds are due/required. gut herxing building congestion in the diaphragm/muscles that I have to lie flat to relieve. One moment at a time |
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Aussie Barb Research Team
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Monday April 24th 5.10pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ Mon 5pm: taking 4th dose 3 abx combo: mino 25mg+ 2 abx. I actually slept 5ish H. again. subcutaneous ooouch.. shoulders herxing gut herxing still building congestion but not so big today. gut herx has been tolerable till 1.30pm Monday afternoon: tried all meds to settle intolerable herx, finally had to take combo. One moment at a time Note: the puffiness is going down a little in my feet! ankles etc still puffed up. |
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Aussie Barb Research Team
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Tuesday April 25th 7pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ Tues 7pm: taking 3 abx combo: mino 50mg + 2 abx. subcutaneous ouch.. R base of back of head, neck, shoulders herxing gut herxing still building congestion. some going to the limit of tolerable today. esophageal burn and gushes when meds are due. GI pressure feet still some puff but less than last few months.. One moment at a time |
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Aussie Barb Research Team
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Wednesday April 26th 11am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. subcutaneous ouch.. herxing more head, neck, glands, shoulders. face ache. muscle spasms and catches in any part of my body, even head, - from any move including taking a breath sometimes. managable but noticable. gut herxing still building congestion. esophageal, GI. skin herx oily depression when meds near due. < almost immediate relief of this symptom. ADD 2pm: more herx symptoms: head becoming more sore, esp at the back. neck too. ache around eyes. a rawness inside the chest. feels sore inside to touch outside. transient times of a feeling of tremor without any visible tremor. One moment at a time ADD Thursday 3.30am: I have woken and up, and for the first time I am feeling less *under the weather*. I may have made some breakthru in the herx with my full-on meds. this was shortlived... but was nice. head/neck is still sore. esophageal 4.30am: sudden move precipitated terrible L chest breast and arm cramping pain. Heat applied and an aspirin. relief. |
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Aussie Barb Research Team
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Friday April 28th 1am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. herxing more head, neck. quite uncomfortable. gut herxing is less. esophageal, is raging when combo required. GI pressure skin herx oily weak, not a good day. One moment at a time |
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Aussie Barb Research Team
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Saturday April 29th 12.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. herxing head and neck predominant.. esophageal, is raging when combo required. GI pressure skin herx oily some of yesterday improved to what it had been. This has been the most pernickety of combinations to manage the dosing time and level, with too little abx combination leaving me with totally intolerable symptoms as well each time.. so it is a real juggle. One moment at a time |
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DianeC Member in Phase 3
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Hi Barb, I am so sorry to hear that you are going through some intolerable herxing but hopefully that will mean that you will be feeling all the more better as a result of it Just know that we all here are thinking of you just as you are always there thinking of others Wishing you much relief very soon!!!DianeC |
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Aussie Barb Research Team
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Thank you Diane, All .... Sunday April 30th 7am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. I have been going thru a really tough time.. herxing head and neck.. esophageal, is raging when combo required. has been often. GI pressure and nausea skin herx oily sensitive coughing easily set off.. My whole face really aches sometimes. need tylenol. sometimes it could come from the palate, and sometimes from the glands under the chin/jaw. Last night I actually slept without waking with raging herx. thankfully. I hope it is a turning point. am steady at the moment. I have been using meds more frequently to hold it all down. One moment at a time Add 2pm: Today seems to have stabilised some. I am still requiring the meds more frequently as the symptoms rise but am more stable inbetween. |
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Aussie Barb Research Team
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Monday May 1st 9.45am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. All meds used more frequently to hold the herx down. herxing head and neck.. esophageal continues. GI pressure/herx skin herx oily sensitive coughing easily set off.. Face aches. tylenol. feet / me very puffed One moment at a time |
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Aussie Barb Research Team
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Tuesday May 2nd 2.35pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. All meds used more frequently to hold the herx down. yesterday: a bit calmer day between gigs. and then thru the night started raging again despite meds. esophageal burning and gushes. up most of the night. so increased combo. herxing head and back of neck.. neck glands GI pressure/herx nausea R upper quadrant/liver area jerk shocks when nodding off. skin herx oily sensitive coughing easily set off.. Face aches. tylenol. muscles spasm and catch. feet / me very puffed (more than before) One moment at a time |
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Aussie Barb Research Team
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A good news morning Wednesday May 3rd 7am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. All meds required to hold the herx down. The physical herxing has been very constant and difficult, but not as difficult as past mental and emotional herxing/suffering. This Morning NEWS: I have gone thru the night without having to take meds or get up to cool intolerable herxing.. I woke spontaneously at 3am after 5H straight sleep, for Benicar without intolerable herxing. what a miracle.. such a wonderful feeling. mucus in throat herxing head and back of neck.. neck glands GI pressure is less this morning/herx R upper quadrant/liver area: hot spot. skin herx oily jerk shock when nodding off. sensitive coughing easily set off.. Face aches. tylenol. just taking Q12H mino 50mg now for the esophageal burning is back. One moment at a time Add: 11am: and all is well. Add: 2pm: all symptoms remain tolerable (with meds of course) thoracic and back pain when sitting (always forget to say) interesting: an ache starting in a Lipoma on my R lower arm. |
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jrfoutin Research Team
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"what a miracle.. such a wonderful feeling."You know I'm going to notice this!--JRFoutin |
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TickTock inactive member
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Congratulations Barb!!! That's fantastic news...you've got amazing tenacity!!! |
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scooker48 Member in Phase 3
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Barb, We're all pulling for you. Hang in there, You're making it. Sherry |
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Dogster Member in Phase 3
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Barb, uh-huh!!!!!!!!!! Great, Dogster |
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CJ Member in Phase 3
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Good things 'neeking up on you! Happy News for our Barb. |
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Claudia Member in Phase 3 
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Hi Barb, I notice that you have a serious gut problem and you use probiotics. Are you using the latest Blackmore's product, FORBIOTIC ? It's a great idea, because they've bred an antibiotic resistant strain of "Good Bugs" for the gut! Makes a lot of sense. I just found out about it from our Naturopath. Good luck and I hope you are feeling better today. Claudia |
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Aussie Barb Research Team
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Thank you All..very much... Wednesday May 3rd 9pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. All meds required to hold the herx down. mucus in throat herxing head and back of neck.. neck glands GI pressure/herx esophageal and chest just mild burn shadows. R upper quadrant/liver area: hot spot. skin herx oily jerk shock when nodding off. sensitive coughing easily set off.. puffiness 9pm: wooziness Herx in diaphragm, thoracic, back, neck, head, glands. took abx combo @ 42H.. One moment at a time |
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Aussie Barb Research Team
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Thursday May 4th 6am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx. All meds required to hold the herx down. relief from the combo last night told me it would have helped me sooner. slept 4H. woke for mino 50mg and then for Benicar and had to get up for gut herx. mucus in throat herxing head and back of neck.. stiff in neck. neck glands GI pressure eased after combo. esophageal settled this am chest just mild burn shadow. puffiness One moment at a time |
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Aussie Barb Research Team
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Friday May 5th 3pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx All meds required to hold the herx down. woke for combo 12MN: hot, hungry. Herxing has been: mucus in throat transient herxing head and back of neck.. stiff in neck. neck glands congested diaphragmic congestion gut herx has been high today.. 2 very HOTspots diaphragm on skin and in R upper quadrant. take milk thistle. chest shadow feeling. jerk jump when nodding off. puffiness esophageal mostly settled except when meds due... I am very sick but I am managing ok, thankfully with good support. I am thinking of those who have died having endured non understanding of this disease thru their whole Life. I am thankful to have support and strength and knowledge to do MP. One moment at a time |
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Aussie Barb Research Team
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Saturday May 6th 9am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combo: mino 50mg + 2 abx All meds required to hold the herx down. awake thru the night again. I had let the combo go further, thinking to myself, I can bear this, because it was less than previously... but it has caught me up today. the esophageal burning gushing is back, so it isnt worth letting it go. I have a hotspot just to the right of centre on my diaphragmic area. it is so very hot and feels like a bruise to touch. Other Herxing has been: mucus in throat transient herxing head and back of neck.. stiff in neck. neck glands congested GI pressure congestion/herx/hemorroidish is ouch.. chest shadow feeling. back ache jerk jump when nodding off. puffiness My Mother has been on the phone. concerned. she has seen on the television that everyone needs some sunshine and exercise to keep muscles strong etc etc.. I read her Carol's Words of Encouragement Thank you Carol and Phil. If I was related to me and didnt understand the science I'd be worried too.. but we do know.. I wont start exercising or sunseeking quite yet One moment at a time |
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Aussie Barb Research Team
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Sunday May 7th 9am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ All meds taken to hold down herx. 9pm: took 3 abx combo: mino 50mg + 2 abx.. << increase Yesterday: extra symptoms, and symptoms not relieved by meds so increase of combo required. heels were cracky esophageal was back. so tired. 2 very hot spots diaphragm. IBS GI inflammation increase. hungry. rib and back muscle spasms grabs. wooziness even after meds. puffiness increased in R foot in particular .. Today: The extra symptoms settled, and the normal herx symptoms are here head and neck and shoulder gut and diaphragm herx I am really looking for that corner that needs turning.. one moment at a time Add 6pm: new symptoms Hands, jabbing pain transient feet aching brain herx, tired, woozy, teary when meds due. body stiff |
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Aussie Barb Research Team
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Monday May 8th 5.30pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ All meds taken to hold down herx. 9pm: took 3 abx combo: mino 50mg + 2 abx.. esophageal burn/ tolerable. tired. hot spot across diaphragm. IBS GI inflammation decrease. rib and back muscle spasms grabs. wooziness. puffiness .. sore head and neck into R ear and gland, and shoulder/ milder gut and diaphragm herx feet buzzy aching mild physically debilitated continues one moment at a time |
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Aussie Barb Research Team
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Wednesday May 10th 6am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ All meds taken to manage herx. 3 abx combo: mino 50mg + 2 abx.. esophageal burn gush tired and then ok hot spots across diaphragm milder gut and diaphragm herx diaphragmic congestion transient. IBS less. puffiness .. sore head one moment at a time |
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Aussie Barb Research Team
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Thursday May 11th 6am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ 6am: taking 3 abx combination: 1st dose mino 50mg + 2 abx.. << increase using all meds to manage herx to tolerable. awake thru the night unsettled. gut herx rose worse after Benicar, took mino, no relief, need increase in combo. waited to give it a chance.. new combo now 6am. esophageal was back. the meds hold to tolerable. unable to sleep or rest. very hot spots diaphragm. chest congestion. required sit up. GI inflammation increase. hungry. rib and back muscle spasms grabs. wooziness even after meds. >>> required increased combo.. taken. head, neck, shoulder has some soreness. ADD: herx revved up to close to tolerable limit this afternoon. some strong R side abdo herx GI inflammation feet some hot buzzy some bone pain in arms diaphragmic congestion inside and red hot soreness of skin spots outside eyes crusty blurry chest pressure, cough. one moment at a time |
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Aussie Barb Research Team
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Friday May 12th 9pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combination: mino 50mg + 2 abx.. using all meds to manage herx to tolerable. up till 2am then slept. quiet day herx wise.. quietest . slept some. subcutaneous very ouch. very woozy then R abdo herx hotted up to almost intolerable tonight looking for salty, drinking soup. head, neck, shoulder has some soreness. diaphragmic congestion inside soreness of skin spots outside eyes crusty blurry one moment at a time |
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Aussie Barb Research Team
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Saturday May 13th 8am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combination: mino 50mg + 2 abx.. using all meds to manage herx to tolerable. up till 12mn then slept till 4am. woke 2am for meds the esophageal herx is revved right up high after being quiet yesterday. nausea. erk. L shoulder this time. feet gut because the herx was quieter yest, I didnt take the Quercetin and probiotics as often and I waited longer to take the combo.(I had a holiday from medding so much). I have to keep on top of it by the look of it or it gets away. one moment at a time |
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Aussie Barb Research Team
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Saturday May 13th 8pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combination: mino 50mg + 2 abx.. using all meds to manage herx to tolerable. the esophageal herx is hot again today. meds. wake from a nap worse. and depressy. need meds. take combo. starts me coughing hard. mino does this sometimes as well *(see add below). cough drops to settle. and mood picks up. shoulders and mid back and up into neck. feet ice hot if there is such a thing. mild aching into the bones. gut herx diaphragm congested with burning outside on skin. R knee. has only ever been sore when riding a horse.. starting to herx when getting up or down. eyes wet, blur, black rings. one moment at a time *ADD: re cough: further thinking. I realise that the cough can come after a sleep or rest. I wake with a sticky cough.. a build up. other symptoms have usually caught up with me too and need meds to relieve.  I received these Beautiful flowers for Mother's Day, so I share them with All of You, with Thanks to All.. Happy Mother's Day |
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Aussie Barb Research Team
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Monday May 15th 7.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H/ taking 3 abx combination: mino 50mg + 2 abx.. using all meds to manage herx to tolerable. slept better last 2 nights subcutaneous ouch esophageal herx some depress in afternoon with higher herx. shoulders and mid back and up into neck and glands. feet gut herx R knee. being cautious with it. eyes puffy continues one moment at a time Add: sleeping today. |
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Aussie Barb Research Team
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Tuesday May 16th 6am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q12H maybe a change here / taking 3 abx combination: mino 50mg + 2 abx.. using all meds to manage herx to tolerable. slept better last 3 nights the lid came off the grief last night. crying makes me cough, makes me chokey, makes me sick, froth >> relief. physical herx has been milder yesterday and continues at time of writing. I get a surprise with this. burning skin across diaphragm subcutaneous ouch esophageal herx flaring when meds are due. shoulders and mid back and up into neck and glands and head. feet gut herx R knee. being cautious with it. eyes ears wet, sore inside puffy continues one moment at a time Add: This morning the quieter herx continues and I am able to leave out the morning Q12H mino.. burning skin continues. |
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Aussie Barb Research Team
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To All those wondering when I am receiving my Benicar and Phase 3 med from Germany, post marked 22nd Feb.. almost 3 months. Finally today it has arrived it has a customs sticker on it.. the second post office search sent from inter-apotheke must have unearthed it.Thanks, Barb ... |
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Aussie Barb Research Team
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Wednesday May 17th 8.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics TID / mino 50mg Q24H yest. a change here / taking 3 abx combination: mino 50mg + 2 abx.. using less meds to manage herx to tolerable. still resting better thru the night. some wakes. physical herx has been milder. most would increase the meds now, but I am happy to sit on this a while. esophageal and diaphragmic herx and skin burning continues. subcutaneous ouch, ache all over. esophageal herx flaring when meds are due. shoulders and mid back. throat glands. feet puffy both knees now. R knee in particular. being cautious. I felt a ridge in R thumbnail beside the splinter hemorrhage. having a complete makeover by MP. one moment at a time |
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Morris W. Milnes Member
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Congratulations on lessening of physical Herx. Good luck one day at a time. Morris |
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Aussie Barb Research Team
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Thank you Morris, All ... Thursday May 18th 7am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics was TID, now using less / mino 50mg Q24H yest / extended time to 56H for 3 abx combination: mino 50mg + 2 abx.. stayed at same level. using less meds to manage herx to tolerable. slept some. dreaming, restless some.. physical herx remains quieter. esophageal burning GI pressure is less. using less probiotics to maintain. diaphragmic congested herx and skin burning continues. the skin burning feels bruised to touch. is a hot band across me. knees herx rises when meds due shoulders, back. eyes one moment at a time |
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CLefelt Member in Phase 3
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Barb, Glad that things are quieter! Shhhh. RIP, bugs. Carol |
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Aussie Barb Research Team
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Thank you Carol, All ... Friday May 19th 8.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics was TID, now using less / mino 50mg Q24H yest / 3 abx combination: mino 50mg + 2 abx... using less meds to manage herx to tolerable. slept some. restless some.. woke 2am for Benicar and high gut herx kept me from resting. I notice that now, I prefer to stay in bed, whereas before I was preferring to get up. this may have to do with the level of herx being a little less now. physical herx remains quieter. esophageal burning gives alert to take meds GI pressure is less. using less probiotics to maintain. diaphragmic congested herx and skin burning continues. the skin burning feels bruised to touch. is a hot band across me. knees herx rises when meds due shoulders, back. up into neck sometimes. eyes feet: puff may be diminishing? mild ice hot herxy crickle crackle in neck and ears on movement in those areas. I cannot stand for more than a minute in any sort of comfort to do anything.. I am hoping that my physical condition can improve now that the herx has slowed some. one moment at a time |
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Aunt Diana Moderator
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that's great news....you are bound to be arriving at better health in the not too distant future....you must have had a lot of bugs for a long time. All the best to you. |
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ShrnHml Member in Phase 2/3
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Barb...........what a big step to go from mino every day to every other day. Progress! We are all rooting for you...........Sharon |
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Aussie Barb Research Team
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Thank you Sharon, All ... Saturday May 20th 7.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, now daily / mino 50mg Q24H continues yest / 3 abx combination: mino 50mg + 2 abx... no increase required yet. is out to past 48H using less meds to manage herx to tolerable. slept some. restless some.. 2am. hungry. I was feeling the need to be up but Benicar and combo settled me. physical herx is constant but lighter than before. esophageal burning is less. GI pressure is less. using probiotics daily only now to maintain. diaphragmic congested herx and skin burning continues. the skin burning feels bruised to touch. is a hot band across me. knees herx rises when meds due shoulders, back. up into neck sometimes. eyes feet: puff may be diminishing? mild ice hot herxy crickle crackle in neck and ears on movement in those areas. one moment at a time |
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DianeC Member in Phase 3
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Hi Barb, Well it looks like all of your hard work is starting to really pay off I am so happy for you that you have turned a corner and that you are now getting much relief with much less herxingThat too is great that the Benicar and combo allowed you to get your needed rest for more healing The mino every other day is a great achievement Best always and continued gentle herxing DianeC |
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Aussie Barb Research Team
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Thank you All ... Sunday May 21st 1am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, now BID / mino 50mg Q12H yest / 1am 3 abx combination: mino 50mg + 2 abx... using meds to manage herx to tolerable. had a visitor for hours yesterday (killing time in town). all went well except I pay for it afterwards. body aching all over. needed more meds this afternoon/ night. symptoms have risen and meds arent helping. not sure if this is from the visit or because I may be needing the combo early anyway, or need for increase. took the larger fractions of the abx to reach the happy medium. face ache going to bed. tylenol. unable to sleep rest. esophageal burn herx. up out of bed to cope. physical herx remained constant. esophageal burning had been less to almost none. GI pressure was less but rose again. diaphragmic congested herx and skin burning not as high. the skin burning feels bruised to touch. is a hot band across me. no knees herx shoulders, back. up into neck sometimes. eyes black rings feet: puff decreased. crickle crackle in neck and ears on movement in those areas. one moment at a time Add: 2pm: full body aching despite all meds.. having a rest and extra Benicar. |
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DianeC Member in Phase 3
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Hi Barb, Sorry to hear that you had a momentary setback. Wishing you a very restful day with only gentle herxing........thinking of YOU! DianeC |
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Aussie Barb Research Team
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Thank you Diane, All ... Monday May 22nd 7.45am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, now daily / mino 50mg Q24H yest Q12H again today/ 6.30pm Sunday: 3 abx combination: mino 50mg + 2 abx... with increase using meds to manage herx to tolerable. yesterday: body stiff achey, high esophageal herx, GI pressure, to high edge of tolerable. meds not helpful 6.30pm took increased combo with relief. unable to sleep early, then settled and slept. physical herx has settled again. is constant but tolerable. esophageal burning none at time of writing. rose again later in the day. diaphragmic congested herx and skin burning . the skin burning feels bruised to touch. is a hot band across me. shoulders, back. up into neck sometimes. eyes black rings feet: puff decreased. crickle crackle in neck and L ear on movement in those areas. one moment at a time |
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Aussie Barb Research Team
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Thank you All ... Tuesday May 23rd 6.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, now daily / mino 50mg Q12H again yesterday/ 6.30pm Sunday: 3 abx combination: mino 50mg + 2 abx... with increase. into 2nd day so am doing well. using meds to manage herx to tolerable. yesterday: some high level burning esophageal. it is knocked down by the meds. GI pressure was harder to shift. settled when I went to bed. slept ok. dreaming. some wakes. woke with lower backache. very stiff to move. physical herx is constant but tolerable. diaphragmic congested herx and skin burning continues . the skin burning feels bruised to touch. is a hot band across me. shoulders, back. up into neck and glands sometimes. eyes black rings feet: puff decreased. crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. skin oily all the time. continuous crampy on R ribs under R arm last couple of days. like a continuation of the diaphragm thing. John McDonald wrote: "When I am in the midst of herxing my emotions tell me that I have always been herxing, always will, with no end in sight. I know many of us have that psychological response." one moment at a time PS I have noticed that my little Heart is so glad to hear short bursts of music. an improvement. ADD: 2.30pm: body hurting. took combo 44H.. |
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Aussie Barb Research Team
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Thank you All ... Wednesday May 24th 5am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, to BID yest / mino 50mg Q12H again yesterday/ 2.30pm Tuesday 44H: 2nd dose of 3 abx combination: mino 50mg + 2 abx... with increase. using meds to manage herx to tolerable. yesterday: some high level burning esophageal. R side ribs crampy hard to describe. skin and deeper feel 'creepy' L side ribs have a shadow of this this morning. diaphragmic congested herx and skin burning continues . the skin burning feels bruised to touch. is a hot band across me. R side lower abdo pain continuous. physical herx has changed. is overall and constant aspirin for chest... then Quercetin and probiotics.... then Tylenol.... to settle slept ok. dreaming. some wakes. woke with lower backache. very stiff to move. shoulders, back. up into neck and R head eyes black rings feet: puff decreased. crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. fragile under pressure continues. For as long as I can remember, I have had one hip higher than the other. (only noticable to myself or a Dr) With the latest R side and backache, I feel that my back may be getting a realignment? Yesterday I was able to sit at the kitchen table and divide the 1kg (2lb) of small pieces of meat into meal size packages. To do that is an improvement in head and arms and overall. one moment at a time trusting the process |
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Toni D Moderator
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Good morning, Barb, I like that--trusting the process! That's exactly what we have to do. I know that feeling of being out of alignment. I used to lay in the bed and just move my hips/legs up and down in a walking movement w/o moving the rest of my body in hopes of correcting what I felt was an out-of-alignment. Our bodies have a way of healing themselves once given the opportunity. It's good to hear about all of your achievements today. Just being able to prepare your food is important too. Congrats! Feel good and be blessed ...Toni |
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Aussie Barb Research Team
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Thank you Toni, All ... Thursday May 25th 6.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, less now. 1 yest. / mino 50mg Q12H / Tylenol 6.30pm Wednesday 30H: 2nd dose of 3 abx combination: mino 50mg + 2 abx. using meds to manage herx to tolerable. The Major thing happening is R hip/side/muscles pain, increases on any movement or deep breath. Lower back stiffness. The discomfort is more to the left of the spine. I feel that this is a realignment of my spine/pelvis/hip. The pain doesnt change much with the meds. It is bearable except for being difficult to move in the bed, get up and down from a chair etc. The R side skin is 'sore'. diaphragmic congested herx and skin burning continues but less noticable against the other pain . the skin burning feels bruised to touch. is a hot band across me. esophageal burning physical herx has changed. is overall and constant slept some between wakes when moving. woke with lower backache. very stiff to move. shoulders, back. up into neck and R head eyes black rings feet: puff decreased. crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. fragile under pressure continues. one moment at a time trusting the process - this is big |
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Aussie Barb Research Team
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Cont'd Thursday May 25th 9pm Tylenol (Panadol) takes the edge off the pain. more fragile than usual. gut starts to bloat up and other symptoms increase this afternoon even after taking all MP meds.. combo taken 30H. 8.30pm. recent: goose pimples occurring regularly as an emotional response. |
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Aussie Barb Research Team
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Thank you All ... Friday May 26th 9.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, less now. 1 yest. / mino 50mg Q18H / Tylenol 8.30pm Thursday : 3rd dose of 3 abx combination: mino 50mg + 2 abx. using meds to manage herx to tolerable. Major happening: is R hip/side/muscles pain, increases on any movement or deep breath. Lower back stiffness. I feel that this is a realignment of my spine/pelvis/hip. The pain doesnt change much with the meds. Very uncomfortable. difficult to move in the bed, or to get up and down from a chair etc. Tylenol (panadol) takes the edge off it. The R side skin is 'sore'. diaphragmic congested herx and skin burning continues but less noticable against the other pain . the skin burning feels bruised to touch. is a hot band across me. esophageal burning sporadic. physical herx is overall and constant 1am woke with high and intolerable herx just R of the midline diaphragm. took mino and milk thistle, and then when due, Benicar and panadol and went back to bed 2.30am...slept some between wakes when moving. woke with lower backache. very stiff to move. shoulders, back. up into neck and R head eyes black rings crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. feet: puff decreased. feet are now wrinkly with leftover skin from the puff gone. ankles still swollen. EVEN a few wrinkles in the tops of my hands. some fragile and yet interestingly calm in the face of other.. one moment at a time trusting the process - this is big |
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Aussie Barb Research Team
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Saturday May 27th 3am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, less now. 2 yest. / mino 50mg Q10H / Tylenol/ 2am Saturday : 4th dose of 3 abx combination: mino 50mg + 2 abx. using meds to manage herx to tolerable. Major happening: is R hip/side/muscles pain, increases on any movement or deep breath. Lower back stiffness, discomfort. The pain doesnt change much with the meds. Very uncomfortable. difficult to move in the bed, or to get up and down from a chair etc. Tylenol (panadol) takes the edge off it. The R side skin is 'sore'. diaphragmic congested herx and skin burning continues but less noticable against the other pain . the skin burning feels bruised to touch. is a hot band across me. esophageal burning sporadic. physical herx is overall and constant bone pain in R upper arm for the last 10H continues 1.30am woke, hungry. hmm.. with pelvic/hip pain. took Benicar and tylenol early 5H, and then not settling, took combo 2am and got up to settle. back to bed 3.30am shoulders, back. up into R neck and R head eyes black rings crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. feet: puff decreased. feet are now wrinkly with leftover skin from the puff gone. ankles decreasing. a few wrinkles in the tops of my hands. fingers still pufft. rings still buried on R hand. some fragile and yet interestingly calm in the face of other.. one moment at a time trusting the process - a lot happeningADD: 6am: * woke backache has moved to middle back!!! and lower pelvis * and not as sore to move at this moment. (is that from the meds?) * coughing, stuffy nose.. havent had a stuffy nose since when? * bone pain relieved at last. Add: 8am. esophageal acting up hip pain has settled |
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Aussie Barb Research Team
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Notes on the Herxing / healing of my R side: in order of appearance. Starting with R shoulder pain going up into neck and up into R back of head. R knee Diaphragm: esp R side skin is burning. R ribs sore crampy (started having pain when getting into bed) backache and pain in R hip and all down the R side. R side: skin sore to touch. painful to move or take a deep breath. the hip pain has lessened at the moment. still in shoulder, neck and up into back of head. I am amazed. One moment at a time |
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Aussie Barb Research Team
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Sunday May 28th 7am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, less now. 2 yest. / mino 50mg Q12H / Tylenol/ 2am Sunday : 5th dose of 3 abx combination: mino 50mg + 2 abx. using meds to manage herx to tolerable. Yesterday: Heavy day of herx management: esophageal. Both hips now/muscles into both groins: changed to more aching and uncomfortable than pain. At bedtime it was pain, increasing on any movement or deep breath. woke 1.30am: hungry and esophageal bad herx. took Benicar to see if that would be enough 2am: took abx combo with relief without having to get up. I had been wondering if it was time for an increase but the same dose has held me ok. Lower half of me: back ache, stiffness, discomfort. difficult to move in the bed, or to get up and down from a chair etc. Using meds and Tylenol (panadol) . The R side skin is 'sore'. diaphragmic congested herx and skin burning continues but less noticable against the other pain . the skin burning feels bruised to touch. esophageal burning. aching feet physical herx is overall and constant L shoulder/back has a patch of burn on it. is a chronic symptom since a child. shoulders, back, up into R neck and R head stuffy nose and sinus, cough. eyes black rings crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. feet: puff decreased. feet are more wrinkly with leftover skin from the puff gone. ankles no shrinkage today. a few wrinkles in the tops of my hands. fingers still pufft. rings still buried on R hand. one moment at a time trusting the process - a lot happening |
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Carole Board Staff
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Hello, Barb! Hope this finds you feeling a little better! Isn't it ironic how most people would not consider seeing wrinkles "a good thing!" I am thankful to share your wrinkly, less puffy success. Remember--it is a slow process, but it just keeps getting better! Take care . . . Carole |
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Aussie Barb Research Team
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Thanks Carole, If I had these symptoms and was not on MP I would be extremely concerned.. I am amazed at what is happening to my hips and back. all best, Barb .... |
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Aussie Barb Research Team
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Monday May 29th 1.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, less now. 2 yest. / mino 50mg Q12H / Tylenol/ 12.30am Monday : 6th dose of 3 abx combination: mino 50mg + 2 abx. using meds to manage herx to tolerable. Yesterday: Lower back and Both hips now/muscles into both groins: high aching and uncomfortable. R collarbone ouch again. woke 11.30pm: thirst (I always forget to report thirst when combo is required)tried to go back to sleep as too early for any meds. 12.30am hungry and gut bad herx. took Benicar and combo. and get up to settle. Lower half of me: back ache, stiffness, discomfort. difficult to move in the bed, or to get up and down from a chair etc. Using meds and Tylenol (panadol) . The R side skin is 'sore'. diaphragmic congested herx and skin burning continues high again. the skin burning feels bruised to touch. esophageal burning. aching feet physical herx is overall and constant L shoulder/back has a patch of burn on it. is a chronic symptom since a child. shoulders, back, up into R neck and R head stuffy nose and sinus, cough. eyes black rings crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. feet: puff decreased. feet are more wrinkly with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. fingers still pufft. rings still buried on R hand. wooziness has stopped since all this other is happening.. still cant read though. one moment at a time trusting the process - a lot happeningAdd 2pm: today the hip and back and head herx has settled right down. |
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jillian Member in Phase 2
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Aussie Barb, Love to see those words "herx settled down"! All the best, Jillian |
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Aussie Barb Research Team
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Thank you Jillian, All.... Tuesday May 30th 6.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID, less now. 2 yest. / mino 50mg Q12H / Tylenol/ 3.30pm yest : 1st dose of increase 3 abx combination: mino 50mg + 2 abx. using meds to manage herx to tolerable. Yesterday: the hip and back and head herx settled right down. diaphragmic skin burning and R side skin burning .. feels bruised to touch. then symptoms of bone pain in upper arms, heavy tiredness, wooziness and urgency signal time for abx. >> increased dose. wakeful thru night with bloating and coughing: took probiotics and Milk Thistle and Benicar, and then Quercetin and Tylenol, settled and back to bed to sleep. woke with Lower back ache. The R side skin is 'sore'. diaphragmic congested herx and skin burning continues. the skin burning feels bruised to touch. esophageal burning is less at the moment. physical herx is overall and constant L shoulder/back has a patch of burn on it. is a chronic symptom since a child. stuffy nose and sinus, cough. eyes black rings crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. feet: puff decreased. feet are more wrinkly with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. fingers still pufft. rings still buried on R hand. one moment at a time trusting the process |
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Aussie Barb Research Team
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Wednesday May 31st 8am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics / mino 50mg Q12H / 3.30pm Monday: 1st dose of increase 3 abx combination: mino 50mg + 2 abx. is now 40H using meds to manage herx to tolerable. Yesterday: the herx settled right down. diaphragmic skin burning and R side skin burning was less has risen again today. new problem has been bloating and GI pressure: taking regular probiotics and Milk Thistle, Benicar, and Quercetin. and mino BID helps. esophageal burning but not as constant. feet ache L shoulder/back has a patch of burn on it. is a chronic symptom since a child. stuffy nose and sinus, cough. eyes black rings, blurred crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. feet: puff decreased. feet are more wrinkly with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. fingers still pufft. rings still buried on R hand. Dentist for me today.. broken tooth in the back tooth.. I HATE having to go out. I just want to stay here till I am well enough to look ok and manage ok. one moment at a time trusting the process 6pm: Dentist filled tooth. says filling wont last, should have a crown. diaphragmic amd R upper quadrant herx- milk thistle. 6.30pm: herx too hot> took combo |
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Aussie Barb Research Team
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Thursday June 1st 8.45am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID prn / mino 50mg Q8H yest to cover outing etc. 6.30pm Wednesday 52H : 3 abx combination: 2nd dose mino 50mg + 2abx. using meds to manage herx to tolerable. Everything is relative. Herx is relative. Last week I had such pain in my hip and back and then that herx stops and I think there is no herx 'except for the gut bloating and pressure" The gut bloating and pressure is very uncomfortable and has a higher sticking point as far as being able to get rid of it.. after trying all meds, requires the mino or the combo to shift it. R diaphragmic herx very hotspot. skin sore and R side skin burning. esophageal burning rises with the gut pressure etc. feet ache L shoulder/back has a patch of burn on it. is a chronic symptom since a child. collar bones pain. esp R stuffy nose and sinus, cough. eyes black rings, blurred crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. I have a wound on R my toe not healing.. 4 weeks.. inflamed down to first knuckle. am now using Lamisil cream on the inflamed area (not the wound) to reduce the inflammation so it will hopefully heal. feet: puff decreased. feet are more wrinkly each day with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. There are small wrinkles showing in the palms of, and tops of my hands which must denote the reduction of swelling in my hands. fingers still pufft. rings still buried on R hand. Dentist outing was quick. a filling with no needle and no hurt. out and back within the hour with Dinner bought. one moment at a time trusting the process |
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Aussie Barb Research Team
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Friday June 2nd 9am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID prn / mino 50mg Q12H yest last combo was 6.30pm Wednesday. have lasted 39H so far!! : 3 abx combination: 2nd dose mino 50mg + 2abx. using meds to manage herx to tolerable. gut bloating and pressure is high when it is high and ok when it isnt. R diaphragmic herx congestion and very hotspot continuous like a burn. no mark there. skin sore and R side skin burning. esophageal burning rises with the gut pressure etc. feet ache L shoulder/back has a patch of burn on it. is a chronic symptom since a child. collar bones pain. esp R stuffy nose and sinus, cough. eyes black rings, blurred crickle crackle in neck and L ear on movement in those areas. subcutaneous ouch. feel beat up. both hands go to sleep when I am sleeping resting. Toe and Inflammation improved from Lamisil application. podiatrist home visiting next week. feet: puff decreased. feet are more wrinkly each day with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. hands: There are small wrinkles showing in the palms of, and tops of my hands which must denote the reduction of swelling in my hands. fingers still pufft. rings still buried on R hand. legs: have a dent in the side where puff must be decreasing now. above the fat ankles.. the trouble with going out in the car is getting my legs and feet in and out of the car.. very weak to walk yet. need support, and just toddle. one moment at a time trusting the process Add 4pm: took 3 abx combo |
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Aussie Barb Research Team
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Saturday June 3rd 6am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID prn / mino 50mg Q12H. last combo was taken 4pm Friday @ 46H : 3 abx combination: 3rd dose mino 50mg + 2abx. Even though I am still requiring the meds above to manage herx to tolerable, the herx is more settled than it was (today anyway) gut bloating and pressure has been ok thru the night last night. R diaphragmic herx congestion and hotspot continuous like a burn. no mark there. skin sore and R side skin burning. esophageal burning rises with the gut pressure etc. feet ache L shoulder/back has a patch of burn on it. is a chronic symptom since a child. collar bones pain. esp R stuffy nose and sinus, cough. eyes black rings, blurred crickle crackle in neck and L ear on movement in those areas. jaw goes clunk sometimes. subcutaneous ouch. feel beat up. feet: puff decreased. feet are more wrinkly each day with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. legs: have a dent in the side where puff must be decreasing now. above the fat ankles.. hands: There are small wrinkles showing in the palms of, and tops of my hands which must denote the reduction of swelling in my hands. fingers: still pufft. rings still buried on R hand. The Big News is: I have felt like going outside in the dark to have a little walk. last night and again this morning. I can walk a total of about 1 cricket pitch. I shall have to count (little) steps like Morris does. I feel ok in myself doing it, but my legs/hips hurt and I have to stop frequently on the way back to let them recover. I must have hopefully reached the turning point.. one moment at a time trusting the process Add: 3pm noting esophageal burn all day. taking increased combination now. Curly Hair has gone straight recently getting dressed is still too much effort so I'm still not wanting to *go out* anywhere. walking in jammies in the dark suited fine. 8pm: not up to going tonight. |
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Alayne Member in Phase 3
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Barb!!!!! What fantastic news! Just the fact that you want to go out, let alone are able to do so is such a huge change! Yes please, let this be your turning point. And may we all get to watch you on your long awaited and long deserved upward swing! Yippee!! -Alayne |
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BARNEY Moderator
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DITTO THAT!!! No one deserves improvements more than Aussie Barb!!! Our prayers are with you. HANG IN THERE, WE WILL MAKE IT!!!BARNEY |
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Dogster Member in Phase 3
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DITTO THE DITTO!!!! Regards, Dogster |
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Toni D Moderator
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This is great news, Barb! I'm so happy for you. Keep up the faith and be blessed ...Toni |
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Morris W. Milnes Member
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Hot Dog! I'm not sure how far a cricket pitch is but I'm very happy you can walk some. My first round trip of 210 steps was about 120 meters I figure. When I get the actual distance measured I'm going to buy a pedometer and use the figure to program it. That way I can enjoy my walk instead of concentrating on not making a mistake counting. Ever try focusing for a count of 1570 steps? Morris |
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sue from Indy Member in Phase 3
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Barb - how wonderful for you! Nothing feels so good as our small accomplishments, but this was a BIG one! I must say, watch out for the crickets - they may get your hurt toe .Keeping on, Sue |
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Aunt Diana Moderator
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Dittos and kudos. |
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ShrnHml Member in Phase 2/3
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Add me to the list of MPers who follow your progress and are THRILLED with the latest news from Down Under. ..........Sharon |
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CLefelt Member in Phase 3
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Barb, Those steps are a cause for celebration! I think I'll trot (well, stagger) outside in my jammies tonight, and imagine I'm accompanying you, even if it'll be the wrong time and you'll probably be having breakfast.Thanks for sharing the big news. Today a cricket pitch. Tomorrow the world. xxx Carol |
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Marion Member in Phase 2
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OH Barb, that's wonderful wonderful news. Best Wishes Marion |
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scooker48 Member in Phase 3
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Atta Girl! I am happy for you and ALL of us. Sherry |
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Aussie Barb Research Team
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Thank You All  Sunday June 4th 8am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID prn / mino 50mg Q12H. Sat 3pm: 3 abx combination: 1st dose mino 75mg + 2abx. the meds above used to manage herx to tolerable esophageal burning has been the main culprit. up thru the night till Benicar dose settled it. gut bloating and pressure rises and falls. less R diaphragmic herx congestion and hotspot continuous like a burn. no mark there. . feet mild ache milder L shoulder/back has a patch of burn on it. is a chronic symptom since a child. collar bones pain. esp R, esp when moving or pressure. stuffy nose and sinus, post nasal, transient cough. eyes black rings, blurred. (more blurred with mino increase) crickle crackle in neck and L ear on movement in those areas. jaw goes clunk sometimes. subcutaneous ouch. feel beat up. Curly Hair has gone straight recently getting dressed is still too much effort so I'm still not wanting to *go out* anywhere. walking in jammies in the dark suited fine. walk: none last night or this morning.. feet: puff decreased. feet are more wrinkly each day with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. legs: have a dent in the side where puff must be decreasing now. above the fat ankles.. hands: There are small wrinkles showing in the palms of, and tops of my hands which must denote the reduction of swelling in my hands. fingers: still pufft. rings still buried on R hand. one moment at a time trusting the process |
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Aussie Barb Research Team
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I am up thru the night with, of all things, a sore toe.. As I cannot see properly thru my herxy eyes, I have no idea exactly what is wrong with my 2 toes except that they are inflamed on one side near the nail. They are the 2nd toe next to the big toe on both feet. may have been caused after toenail trim or maybe a herx. I have been able to keep the inflammation reduced by using lamisil cream... but of course I am negligent at applying the cream because it is an effort. and while I have been paying attention to the R toe, it is the left toe screeching tonight.. I am just venting. The podiatrist is coming Friday.. I was too herxy to walk today or last night. |
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Aussie Barb Research Team
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Monday June 5th 7.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID prn / mino 50mg Q12H. Sat 3pm: 3 abx combination: 1st dose mino 75mg + 2abx. now @ 39H. the meds above used to manage herx to tolerable toes are improved this morning (after paying them some attention and applying cream etc last night) esophageal burning comes and goes. less R diaphragmic herx congestion and hotspot continuous like a burn. no mark there. . stuffy nose and sinus, post nasal, transient cough. eyes black rings, blurred. overall herx with the mino increase.. walk: none last night or this morning.. feet: puff decreased. feet are more wrinkly each day with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. legs: have a couple of dents where puff must be decreasing now. above the fat ankles.. hands: There are small wrinkles showing in the palms of, and tops of my hands which must denote the reduction of swelling in my hands. fingers: still pufft. rings still buried on R hand. one moment at a time trusting the process Monday 2pm: 2nd dose 3 abx combination as above. PS Most of my adult Life I have used Sensodyne toothpaste for sensitive teeth.. I havent needed to use it for months. |
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Aussie Barb Research Team
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Tuesday June 6th 8am/ Benicar 40mg Q4 - 6H, day and night / Quercetin still TID / Probiotics was TID prn / mino 50mg Q12H. Monday 2pm: 3 abx combination: 2nd dose mino 75mg + 2abx. the meds above used to manage herx to tolerable High level increased Herx from increased mino esophageal burning has been hot. medding thru the night. heavy R diaphragmic herx congestion and hotspot continuous like a burn. no mark there. . R side and back and skin soreness. all over beat up soreness. stuffy nose and sinus, post nasal, transient cough. eyes black rings, blurred. overall herx with the mino increase.. tendency toward depressed thoughts when Benicar etc due.  >> take Benicarwalk: none feet: puff decreased. feet are more wrinkly each day with leftover skin from the puff gone. ankles no shrinkage in the pitting edema. legs: have a couple of dents where puff must be decreasing now. above the fat ankles.. hands: There are small wrinkles showing in the palms of, and tops of my hands which must denote the reduction of swelling in my hands. fingers: still pufft. rings still buried on R hand. one moment at a time trusting the process |
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Aussie Barb Research Team
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Thank you all Wednesday June 7th 5.30pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics was TID prn / mino 50mg Q12H on hold for now- none today/ Monday 2pm: 3 abx combination: 2nd dose mino 75mg + 2abx using all meds to try to manage herx to tolerable. esophageal herx almost continuous and intolerable since mino increase. Diaphragmic congestion herx and R hotspot high level. subcutaneous ouch, stiff, herxy. pain up back of head R. Thinking I need a change of combination. 2.30am: The wheel has fallen off this last combination since the last 2 abx dose increases. Could not tolerate esophageal any longer, taking everything in sight to no avail while waiting for 48H+ to change combinations so took 1/4 new abx alone to try to get some relief. it held for around 10H. took 2 abx later, will wait to assess next move. gut herx is starting to rise at time of writing. one moment at a time |
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Aussie Barb Research Team
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Thank you all Thursday June 8th 11am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics was TID prn / mino 50mg Q12H << Wednesday 8pm: new 3 abx combination: 1st dose using all meds to try to manage herx to tolerable. Changing the combination has stopped the esophageal herx for now and returned the herx to more normal. was up thru the night 1.30am took Benicar to settle, and up till 3am. slept fairly well, woke with high gut herx, settled with Quercetin. one moment at a time |
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Aussie Barb Research Team
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Thank you all Friday June 9th 2pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics was TID prn / mino 50mg Q12H << Thursday 8.30pm: 3 abx combination using all meds to try to manage herx to tolerable. Herx is on the high side of tolerable.. going from med to med. (lying out flat helps this some >>>>> diaphragmic congestion (becoming liver herx) and burning is the dominant herx except when esophageal rises bachache and full body soreness and herx some woozy legs puff may be going down slowly. have bits of dents like slow deflation occurring one moment at a time 6pm: high herxing. meds. |
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Aussie Barb Research Team
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Saturday June 10th 9am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics was TID prn / mino 25mg Q6H is better at the moment<< Friday 7.30pm: 3 abx combination using all meds to try to manage herx to tolerable. Liver herx was hot all afternoon yest. lying out flat helps this some. used all meds.. took combo and panadol to gain relief. still some skin burning esophageal quieter *did my back* for the first time ever last night, it was very fragile all night and for a while this morning but seems to be settling now.. full body soreness and herx some woozy stiffness soreness up the back of the neck/head hair still straight. jaw clunking mainly L side but both sides at times. I have never had this before.. I have been appalled when other family members have had it.. one moment at a time 9pm: liver herx is high. I am holding it all the time. not as bad as last night. skin feels like a burn in the area, but no marks, not hot to touch. I am always really thirsty when I wake thru the night. some abdominal cramping. podiatrist attended sore toes today. all still pufft but maybe slowly deflating. esophageal relieved by meds. esophageal herx involves swallowing air bubble when swallowing again sometimes. (ouch) |
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Aussie Barb Research Team
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Sunday June 11th 6am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics was TID prn / mino 25mg Q6H is better at the moment<< tylenol/ is panadol Saturday 9.30pm: 3 abx combination using all meds to try to manage herx to tolerable. I added some info to previous post last night. Liver herx was high requiring everything I could throw at it.. I am calling it a Liver herx but it could be any of those organs herxing. the whole upper R from centre out. used all meds.. toes were flaring, gut bloating began before bed, took combo and panadol to gain relief. skin burning esophageal quieter back settling now not fragile like it was.. full body soreness and herx is milder some woozy so I changed the mino to 25mg Q6H. is better. stiffness soreness up the back of the neck/head hair straight. felt ?damp or oily when I woke this morning. seemed strange. (winter here) jaw clunking, neck crickling noise. R collar bone pain positional. Yesterday the herx was less than the day before slept better last night woke feeling some better this morning so far. not back to walking again yet. one moment at a time add 2.30pm: maintaining- using all meds and tylenol.. |
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Aussie Barb Research Team
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Monday June 12th 9am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics was TID prn / mino 25mg Q4-6H << tylenol/ is panadol Sunday 7.30pm: 3 abx combination using all meds to try to manage herx to tolerable. Liver herx more settled with the regular meds including tylenol. toes inflammation is settled with herx settle gut bloating before bed. combo and panadol to gain relief. sharp skin burning on diaphragm continues esophageal mostly quieter. rises when meds are due. back: the occasional catch. full body soreness some woozy when I stand. hanging on, taking care. hair straight, flat. (this also happened after my 4th pregnancy 25years ago from whence time I have never recovered ) jaw clunking, neck crickling noise. R collar bone pain positional. throat clearing clearing clearing slept between wakes for meds. one moment at a time 12MN: Add. had gone to bed without combo. woke, esophageal roaring hot. GI pressure. took combo. stayed up to settle. had to take extra Quercetin to settle and sleep. L foot. big toe joint. Lots of ache and pain all over. |
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Big John Member in Phase 2/3 
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Hiya Barb! Who says when you are in pain There is not humor. I was thinkin since you are in Aussie land and are upside down from us here in the states does your computer read upside down? Just a thought then I remembered you are upside down too so it looks rightside up. Anyway keep on one day at a time we'll get there!!! |
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sunflower Member in Phase 2/3
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hey barb, i didn't know where to post this, but CONGRATULATIONS AUSSIES on your 1st world cup win ..........WAY TO GO!!!...............sun |
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Aussie Barb Research Team
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Thank you All  Tuesday June 13th 9.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics Daily and prn / mino 25mg Q4-6H << tylenol/ is panadol 9am today: increase to 3 abx combination: using all meds to try to manage herx to tolerable. increase of combo: after herx decrease and then symptoms ^ thru the night and this morning with no relief from other meds: esophageal herx roaring GI pressure chills Pains, aching. muscles spasming esp R ribs skin burning R side one moment at a time |
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Aussie Barb Research Team
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Wednesday June 14th 6am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics Daily and prn / mino 25mg Q4-6H << tylenol/ is panadol yest 9am: 3 abx combination: using all meds to try to manage herx to tolerable. Yesterday was a day from hell. esophageal herx roaring was predominant symptom. -same problem I ran into last time. I am thinking I may have to keep the mino dose in the combination lower, and take the 3rd abx only up to the top first. GI pressure chills Pains, aching. debilitated. muscles spasming esp R ribs skin burning R side pain in L big toe joint. bedtime: eventually took an aspirin to help settle me and actually slept for 6H! always forget to say. skin above eyebrows and/or under eyes: continuous renewal and sort of spitting out of granules for want of better word/s. Seeing normal people on television, what they can do with no effort ! good news: my 2 sore toes are healed following the podiatrist visit. one moment at a time |
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Big John Member in Phase 2/3
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Hi sweetie! I was reading your post and thought I would tell you about Prilosec. If your esophageal herx is acidic this stuff really works wonders. I had real bad reflux and once I started taking this stuff it went away. Mine was so bad I would wake up in the middle of the night and have inhaled the reflux and could not breathe, a terrible way to awake. Anyway might consider it if yours is bad, really works. It is a bit pricey in the states, but worth the price. I have been on it for about a year. My doc says no long term problems using it. Hope you are feeling better John Last edited on Tue Jun 13th, 2006 22:14 by Big John |
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patrickburke Moderator
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Hi Barb, I hope that you have a day from heaven to make up for it !! You deserve it . Bugs are dieing though .Pat. |
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Aussie Barb Research Team
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Thank You All The esophageal burning is a direct herx brought on and relieved only by taking the MP meds (have tried other things) and yesterday I had increased and it happened when I increased the mino previously as well.. it has settled again today.. so far... tippy toe It is ok at the moment Thanks as always for your loving support Barb |
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Toni D Moderator
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Good morning, Barb. I'm glad to hear your symptoms are settling down a bit for you. I can only imagine how the esophageal pain must feel as often as you report it. When I had a little reflux in the past I thought it was my heart and I ran right to the MD's office. It is a scary symptom when accompanied by pain. One just does not know. But you're getting over that hump, one day at a time . I wish you physical and emotional prosperity, Barb. Thanks for being you ...be blessed, Toni. |
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Aussie Barb Research Team
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Thank You All ... Thursday June 15th 5.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics Daily and prn / mino 50mg Q12H << tylenol/ is panadol yest 9pm: 3 abx combination: using all meds to try to manage herx to tolerable. yesterday esophageal herx was quieter and managed during the day with Q, Beni, mino 25mg Q6H. Last night I made some adjustments to the 3 abx combination, and then when the herx woke me for meds at 12MN, the Q6H 25mg mino wasnt enough to kill the high esophageal burning, and I took an extra 25mg mino with relief, so I am back to mino 50mg as the better dose to dampen. gut herx on waking. took Q. skin burning spot on diaphragm with diaphragm herx. collar bone pain positional pain in L big toe joint. one moment at a time 4pm add: esophageal herx managed with meds high level gut herx today. Friday 1.30am: have been up with esophageal herx, taking meds.. finally took combo. |
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Aussie Barb Research Team
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Friday June 16th 10.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics Daily and prn / mino 50mg Q12H << tylenol/ is panadol 1.30am: 3 abx combination: using all meds as above to manage herx. esophageal herx high when meds are required. excess salivation at the worst. gut herx and diaphragm herx. skin burning spot on diaphragm. collar bone pain positional pain in L big toe joint is less. other minor symptoms as listed in above posts. woozy when standing. debilitated continues one moment at a time 8pm Add: R side ribs skin is creepy crampy sore. |
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Aussie Barb Research Team
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Saturday June 17th 6.30am/ Benicar 40mg Q4 - 6H, day and night / Quercetin TID / Probiotics Daily and prn / mino 50mg Q10 -12H << tylenol/ is panadol 9pm yest: 3 abx combination: using all meds as above to manage herx. esophageal herx high when meds are required. esophageal gush. air bubble swallowing painful at times gut herx and diaphragm herx. skin burning area on diaphragm. and around ribs and R side. creepy crampy burn. back ache collar bone pain positional woozy when standing. noting: always present: small, hardly obvious except by feel, raised, dry dots on tops of hands and forearms. I am presuming these to be healing sun spots/cancers similar to what my Father has had to have burned off by the trillions.. Knowing that the herxing is healing. one moment at a time |
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Aussie Barb Research Team
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Sunday June 18th 4pm/ Benicar 40mg Q4 - 6H, day and night / Quercetin 400mg TID / Probiotics Daily and prn / mino 50mg Q8- 10H << tylenol/ is panadol 9pm Fri: 43H since 3 abx combination: using all meds as above to manage herx. The herx has been more managable. I have been able to extend the schedule for the 3 abx combination this time by using more frequent mino dosing. (mino isnt always enough) esophageal herx when meds are required. pelvic and gut herx and diaphragm herx. skin burning area on diaphragm. and around ribs and R side. creepy crampy burn. back ache collar bone pain positional woozy when standing. I go steady & hang on. SOB if more than sitting anyway. feet wrinkled again. still puff. napping resting a lot. small things I noticed: maybe as the herx wears down?: L ear wet inside again R hand in a fist with the thumb tucked in hands asleep numb. one moment at a time Add 5pm: required/ took 3 abx combination. NOTE: : today was the 2nd day of my new 500mg Quercetin Caps. That may be enough to knock the herx down a bit better for me. (the others were 400mg) : I also decided I couldnt wait till 12H for the mino, trying to use everything else, - so took it sooner today with better effect. 4am Add: I am up with pelvic herx and hunger. (took Benicar @ 3H and had a cuppa) when reporting I always lump the pelvic in together naming all gut herx. |
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Aussie Barb Research Team
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Tuesday June 20th 7am/ Benicar 40mg Q4 - 6H, day and night / Quercetin 500mg BID / Probiotics BID / mino 50mg Q10-12H << tylenol/ is panadol 5pm Sunday: took 3 abx combination: using all meds as above to manage herx. As noted above, since beginning the 500mg Quercetin capsules the herx has been more managable, with my other meds becoming more effective, and lasting longer also. I have been able to extend the schedule for the 3 abx combination toward the 48H. I woke MNish and took a panadol and went back to sleep and slept well till 3.30am. very good for me. esophageal herx pelvic and gut herx and diaphragm herx. skin burning area on diaphragm. back ache collar bone pain positional : all herx above are settling I am getting the feel of the change. feet wrinkled again. still puff. jaw still clicking and other minor symptoms. stuffy nose. one moment at a time Add 3pm: have not had to take any frequent mino 50mg since the 9pm dose. ie 30H since. -this is a different day. not having to be constantly on the lookout for which med I can take next to quell the herx. -resting. taking in the new experience to see where to now. -3pm esophageal and teary herx and R ribs burn herx started to rise so took the combo a little early as the next med of choice re timing. |
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Aussie Barb Research Team
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Wednesday June 21st 5.30am/ Benicar 40mg Q6H / Quercetin 500mg BID / Probiotics BID / mino 50mg Daily only yest << tylenol/ is panadol and or aspirin to settle at night 3pm Tuesday: took 3 abx combination: As noted above, since beginning the 500mg Quercetin capsules the herx has been more managable, with my other meds becoming more effective, and lasting longer also. I have been able to extend the schedule for the 3 abx combination toward the 48H. and the mino 50mg to 24H. I woke MNish and took a panadol and went back to sleep and slept well till 2.30am. very g | |||||||||
