The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Bonnie's Progress
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The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Bonnie's Progress |
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Bonnie2 Member in Phase 2
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blessings,had echo done today,technician knew someone newly diagnosed w/sarc.so naturally gave her mp sight.When I got home I started having racing heart while resting on couch watching t.v. chest not tight like last time but left armache w/sweat only in left palm/weird.Lasted 7min.s,heart rate has resumed to one of state of rest but arm still little achy.Dr. is unavailable to see for results untill mon.29th aug.,but was told could call in mornings to see if any cancellations after tues.,when echo reading should be done,we shall see.The clothes I wear out were recommended by p.bear made by company/solumbra,very lightweight feels like japanese silk but protects skin,have gotten whole outfit incuding mask hat shirt pants,but had no socks,use theketo.2% cream on ankles w/black converse shoes.Has any one else had exp./w/this brand of medical sunblocking clothes,gloves to forgot,as I still feel bad after going to appt.s w/ using them.also wanted staff to know that I have decided not nto let fear get in way of mp,and took my 1st mino.25mg dose at noon today,so hear I go.....my older sister got on my case and couldnt refuse her never could.thanx4yr wrk 2bonnie |
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Aussie Barb Research Team 
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Bonnie welcome to Full Protocol Forum and thank you for posting.. The First and Constant Guide to the Marshall Protocol is the Phase One Doc.. Please check all precautions / instructions.. some have it printed to check with regularly. and it is important to follow it exactly as written for Safety and Efficacy of the treatment. The aim is to achieve tolerable herxing by adjustment of meds dosing and schedule while diligently avoiding Light and vitamin D.. as previously suggested, "If your Dr is agreeable, beginning the mino 25mg frequently, - ie Q12H (every 12 hours) as suggested is to manage the rate of herxing to slower.. This dosing schedule although seeming counter-intuitive may dampen the Herxheimer reaction because the dose of mino is maintained at the less effective (ie. higher) level. Minocycline elicits the maximum Herxheimer response as its tissue concentration decays away to zero. this FAQ explains Why do we take minocycline only every other day? Why do I feel worse on the second day? " as you assess your herxing, you may find that you can extend the mino dosing out to Daily and then to QOD (every other day) let us know if you have any questions.. Barb ... |
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Bonnie2 Member in Phase 2
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I am having 3rd cardiac herx today,never this many before,dr. suggested go to emergency but unsure how to treat didnt know if I should post this on urgent,which anti-inflammatory drugs should I tell dr. safe to give me?I read on one of sights that dr.trevor recommended only certain ones please respond asap.2bonnie |
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Aussie Barb Research Team
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Bonnie Have you increased you Benicar to 40mg every 4 hours... and how long is it since you took your mino 25mg.. as per FAQ What is a cardiac Herx? When should I be concerned? says in part >> If you think you are having a cardiac Herx reaction, please advise your doctor to call Trevor Marshall if he is unfamiliar with treating cardiac arrhythmias or CHF due to Th1 inflammation and in particular the Herxheimer reaction. These arrhythmias do not respond well to the usual anti-arrhythmic medications. The inflammation needs to be reduced with a strong anti-inflammatory blockade. Increasing Benicar to 40mg every four hours usually provides some relief of cardiac Herxheimer reactions. If you have any of the severe symptoms listed above and they do not improve by increasing your Benicar and stopping your antibiotic, seek medical assistance asap. If stopping antibiotics does not reduce the Herxheimer reaction you can also alter your antibiotic dose and schedule to dampen the Herxhiemer reaction. Specific instructions can be found in My Herxheimer reaction is too strong. What should I do?<<<< Do you have anti anxiety meds which may also help.. Follow your instincts and seek help if you think you need it. And if you are worried, ask someone to stay with you and/or drive you to the doctor. Barb .. |
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Bonnie2 Member in Phase 2
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2nd day on mino,feel bad,real bad,have upted on benicar to every 4hrs,will take mino everyday.cardiac herx unapparent today which is great relief to me/family,got scary last couple days.but today am kicking hell out of bugs,I know because they are kicking back even more,little s.o.b.s,feel soooo bad,headpounding,muscles,hard as rocks,joint swelling,little water retention,nausia/vomiting,so drinking plenty fluids,kidney discomfort,eyes really sensitive to light right now even having to wear outside noirs to look at laptop screen,sinuses running,lots of phlegm but breathing unusually clear today,thank heavens,dont think I could handle many more symptoms oh forgot...major depression..been crying all day,but ok p.bear says will releave stress so that I dont mind.I not better bodywise tommorrow will try upping mino. also so that I will be at beni/4hrs...mino25/12hrs,see if feel better,blessings to all 2bonnie |
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Bonnie2 Member in Phase 2
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sorry for those who are unclear about my current dosing.began mino25/beni40,,,no mino on sat,today on mno,beni/every 4hrs....,but no real relief so will tka mino. again torrow,,,,if still not better will mino/12hrs....am just happy no cardiac activity....hope thie clears it up 2bonnie signing off till tommorrow blessings of health to all......night all |
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Bonnie2 Member in Phase 2
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boy,upping mino to every 24hrs/beni to every 4hrs has made night/day difference,but very fatigued stii,seems can't get enough sleep.vomited only once today so feel better that way to.I seem to have more phlegm today,didnt think I could,it's amazing how much,keep wondering why ZI'm not drowning,but really is blessing in diguise,as many yrs had dry cough from sarco.muscle pain not as bad,but Ifear I am becoming constipated so am using a mixture my sister used when on chemo,works well...1/2 cup applesauce 2tbls. bran,1/4 cup prune juice.also used suppositories to get it going,its helping little by little,also ralize dont have much bowel movement as have had more liquida than food.am having problem also keepingwarm,even though its 100 outside.I am wondering how long should I stay at this regime,not quite sure advice would be appreciated,I understand the no pain no gain thing,so want to get back to herxing when it's safe to kill more of those boogers....2bonnie |
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Aussie Barb Research Team
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Bonnie Thank you for posting.. The aim is to achieve tolerable herxing by adjustment of meds dosing and schedule while diligently avoiding Light and vitamin D.. Whilever you are herxing you are killing bacteria. and there is a need to keep your herxing tolerable by the frequent mino 25mg dosing.. At this point you are saying that daily mino 25mg is causing tolerable herxing for you. Is that correct.. until there is enough decrease in the herx to be able to extend it.. Daily mino 25mg is the schedule to stay at. Thanks, Barb ... |
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Bonnie2 Member in Phase 2
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I understand,is it the same for the beni/going back to every 6hrs?,I know or I understand beni has to do with controlling the herx symptoms so I assume that I should go back to every 6hrs when I go back to every 24hrs on themino,yes I am herxing ,not as mild w/beni only like I started but not as w/mino-beni together,kind of in the middle,dont feel like crying today I'll give it a day or four does that sound about right,,is there a way I will know when to resume more aggressive regime,would that be the day when I stop herxing symptoms?..2bonnie...sorry in third line I meant "when I go back to every 48hrs on mino" |
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Aussie Barb Research Team
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Bonnie When you are controlling herx.. we do not have a set schedule ahead of time. It is a day by day thing.. you will know when you are able to extend the benicar to Q6H and still be ok.. and then you will know when you feel that you are comfortable enough to tolerate a little more herxing, and be able to extend the mino 25mg dosing out a little further time.. doing any of this too fast can slow you down, so there is no hurry.. tolerable herxing is all that is required, and achieving it is the key to the management of the MP. Barb ... |
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Bonnie2 Member in Phase 2
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feel way,way better today.just irritable,short tempered.got nauseated but kept it down.aches much better,will take advice and stay with the regime I am on now of25mgmino/24hrs...40mgbeni/every 4hrs.herxing mildly,nice for a change,my body needs a break,am getting cave depression so am going out to get some needed shopping done after 830pmthats about it,actually been watching food network to get new ideas on low carb/organic recipe ideas.later 2bonnie,feel better everyone |
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Bonnie2 Member in Phase 2
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decided I was feeling to good,so started back to beni/6hrs,still mino,25/24hrs.Cardiac herx still unapparant,am stiffening up in muscles,but I expect that,I am feeling brain herx,for first time am feeling the teeth/gum ache I have been reading about,but mostly in back area twards jaw joint,makes ears pop/feel like infected but of course I know thwere not,sinus pressure under eyes/puffy.No vomiting today so far,well thats it,will stick to thie regime for while till feel better.....blessings all...2bonnie |
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Bonnie2 Member in Phase 2
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cardiac herx still unapparent,feel ravenous today,am trying not to eat everthing in frig.have moderate renal discomfort,swelling in hands ankles,runny nose,frequent urination.dr. appt. on mon.,29th to find out echocardiagrm results.think if dr. says ok will go back to mino25 every 48hrs,see if cardiac resumes or not,even tho feel optimistic just cant seem to shake this feeling of dark cloud,sleeping lots...2bonnie...out |
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Foundation Staff. . 
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2bonnie, It's a good idea to make sure you have the Herxing at tolerable levels when you know you wil have to unavoidably be outdoors in daytime, as with your doctor's appointment on Monday. Plan to take all precautions when you go outdoors because the Herx can be more intense after exposure to light. Good luck, Belinda |
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Bonnie2 Member in Phase 2
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thanx I have kinda got the hang of how I usually feel after dr.s appt/how long out so I will be discussing going back to the mino25/48hrs but will wait at least 3-4 days before I do,barney sent me great idea on how to space out the beni during times of bad herxing but still getting same amount that is a more efficient way to get good nights sleep w/o interuptions when feeling really bad,still same today as yesterday,no cardiac herxing,as matter of fact air quality here was real bad today/didnt bother me ..2bonnie |
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Bonnie2 Member in Phase 2
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well went to dr.,the cardialogy dept hadnt faxed results so dr. will call me tommorrow w/results....but have bad news besides,seems the lymph nodes on the aorta between heart/kidneys are enlarged to 1mm each,and I have pnuemonia,one thing after another so he wants me to stop mp untill he can confirm on x-ray,I don't know how much more I can take thanx 4 all your help,I will stay logged in,but wont be as active on my progress reports,dont really feel I'm progressing at this point...blessings to all 2bonnie |
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Foundation Staff . 
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Bonnie Before you make any decisions, please read the following FAQ and the links within it: My doctor thinks I have an upper respiratory infection. What should I do? (Sinus infection, cold, flu, pneumonia, bronchitis) Best, Meg |
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Bonnie2 Member in Phase 2
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I appreciate the faqs to look at but my ankles are swollen,fingers my pulse oxy is 88,on room air,usually it is 93-94,and my dr. said he heard whaqt seemed to be diminished lung capacities so I think sinu cold and flue can be ruled out.the xrays will confirm tommorrow also I meant to sa the nodes are cm,not mm I dont think you all understand the hopes I had as far as themp went,it seems that I am just getting worse and I could handle it if the things going wrong werent so,dare I say Life Threatening.I have always considered myself a mental strong woman,NO FEAR,but right now my plate is full,abundantthe stress is breaking me.I want to live damn it I have things I want to do,and I'm sorry for getting emotional sand I understand that dr.s read these progress so if you need to erase this entry go right ahead but I think that dr.s especially need to feel the humanity side of this dignity raping disease to...I shall remain forever bonnie |
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Dr Trevor Marshall Research Team 
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Bonnie, I am sorry that so much pressure is being thrown on your shoulders, and I am writing to apologize for us not being able to help very much. Truth is, your physician(s) are licensed to be the final arbiters of your health care. They are presumed to be in the best position to evaluate your overall health, and we cannot (by law) second-guess them. Unfortunately, especially when you are dealing with specialists, they may be focusing only on a very small part of the whole picture, and ignoring issues which they don't fully comprehend. At the recent Cleveland Conference a leading pulmonologist called us a "pain in the rear" and there are others who would prefer to see the Cure disappear, and allow them to resume 'business as usual.' Consequently a lot of responsibility is thrown back onto the shoulders of patients, onto those least able to handle the pressure. We will do the best we can to help you understand the issues, but please understand that none of us can 'second-guess' the decision of your Doctor(s). Only the patient has the right to do that. Sincerely Trevor |
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patrickburke Moderator 
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Bonnie, I have sarcoidosis. I can remember looking out of my office window one day whilst I was preparing mentally for chemotherapy (for what my docs thought was lymphoma). Thinking how bright and wonderful the pealing old green paint on the factory next door looked. And how all I wanted from life was to stand under the beautiful blue sky, in the sun and the breeze, with the birds singing and watch my daughter grow up into a young woman. My office windows (and my home) are now covered in thick wallpaper. No daylight enters. My chest x-rays are normal and my lung function has increased by 30%. I am sure that I am getting better. I am on phase 2 of the MP. Keep going Bonnie. |
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Bonnie2 Member in Phase 2
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Dr. Marshall it tears at my heart to know that you think I feel anything neg. about the mp..,or YOU,YOU Dr.Marshall are my hope YOU are the prayers of many friends and family answered from ALL of US.I am so sorry you got that from my post.my frustations are from the 5 dr., that told me NO,the mp is unproven,not conventional,I knew as soon as I was told about it that thia was my salvation.Dr.Marshall my Dr. now told me in the begining that he would help because he saw the high rate of success that you've had w/patient recovery,but I can't get him to even call you or get on line to find out the proper way to do this thats why I almost died when he gave me zithromax w/started mp.I didnt have a laptop then to do my own research,IT WAS YOU that asked if someone would volunteer to help me by phone till I could get my laptop,I have nothong but love for you treveor as we all do.You know my dr. still asks me sometimes why I wear my whole body covered.Now thats REALLY frustrating.SO PLEASE accept my apoligy for any disress my post caused you it was totally UNINTENTIONAL.and FOR the Dr.s out there that read this post blessings to you as well...most deeply sincere 2bonnie |
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Dr Trevor Marshall Research Team
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We are all rooting for you Bonnie. You didn't offend me, I just wanted to make the constraints we are operating under quite clear, so that you understand why we (generally) do not publicly criticize Doctors, or their opinions. |
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Bonnie2 Member in Phase 2
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hello all u beautiful people,yep I feel way better,found out the fluid on my lungs are not pnuemonia but more than likely from my water cooler!wierd I know but that has happened to me before,sleeping under it at night all night,thanx to all of u 4 ur concerns.this problem is way easier to get rid of than pnemonia,and I won't have to b off mp for as long yeah:-)had to redue the echo cuz somehow it got misplaced.The story is that I should have had it done on thurs.,but my paperwork clearly stated fri.,so they can't seem to know where it went,Dr. got on them,guess it's happened b-4,so will finally find out results on 6th of sept,tues.I have feeling of a kind of peace now and am not as fearful,so I am ok with whatever it will show.Thanxto p.bear 4 telling me to cry and relieve the srtess,really helps....ALOT,and with all of you rooting 4 me has me on a cloud.just herxing mainly in my jaws,neck sinusesrunningand ankles,but I can totally deal w/that,many blessings to all of you thanx 4 getting me out of the hole I was falling into...luv ya all 2bonnie |
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Bonnie2 Member in Phase 2
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doing better everyday,thanx all 4 ur support pain mostly now,but that aint nothin,I can dealw/that sshhhooootttt,blessings,oh still no cardiac herx,will finally get readings on thi coming tues.am still following aussie barbs advice of mino25/24hrs....beni40/6hrs,will try mino every other day after talk to dr.am on diuretics to help w/water on chest/ankles hands and knees,blessings 2bonnie |
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Aussie Barb Research Team
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Thank you for posting Bonnie, Is good that you are doing well.. Have you checked that the diuretic is compatible with the MP.. no thiazide.. as per MEDICATIONS TO AVOID ON THE MARSHALL PROTOCOL and take all care re light exposure when going out.. a reminder that protecting yourself well from light exposure and taking the Benicar Q4H for up to 12H after should help to keep symptoms minimal. take care, all best, Barb ... |
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Bonnie2 Member in Phase 2
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thanx 4 the heads up barb...after the zithromax experience I tell my dr.what I can have,I learned a bvaluable lesson and only need to be burned once,,but was so dang tired I missed my 6am beni so am herxing bad ,but I know that will pass again thanx 4 heads up |
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Bonnie2 Member in Phase 2
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feel bad,didnt want to get out of bed,but if I dont I wont get phlegm up,need to get that up as much as can,barney gave me wonderful breathing exercise to use thru the day to keep lung fluids from settling,really works,I use it in morn now b 4 I get out of bed.sometimes get quite lot,other get just enough to clear lungs to be amulatory enough to walk my hall to living room.so I stress getting as much info about lung exercises from respitory persons as possible.Barney told me simple one,sit up straight,breath in thru nose,as much as can,then breath out thru mouth,thru tightlips like when you do the lung capacity tests and keep blowing till can't no more.She wasn,t clear on how many times,I do 3,and then do 3 times during day,everytime something comes up and I am not using inhailor as much,and am also walking farther in my home which helps lung move also.herxing was bad today,jaw joints,fingers swollen ankles on fire and this unrelenting neck,lower back pain,but have new tool to breath better,strenghten lungs,walking more so my steps backward are less and less,thanx to all of your wonderful support...oh STILL NO CARDIAC HERXING,so the prayers are working blesses to u all luv ya all 2bonnie |
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Bonnie2 Member in Phase 2
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AM STARTING THE MINO 25MG/48HRS,ROUGH BUT i'LL GET USED TO IT,HAVE BEEN CARDIAC HERX FREE NOW CLOSE TO 3WKS,DR.SAYS SHOULD B OK.SO I AM NOW AT BENI 40/6HRS....MINO25/48.THIS IS MY 1ST DAY W/O MINO YEAH ROUGH,FEEL HOT FLASHES STILL JAW,GUM PAIN.JUST WANT TO SLEEP ALL TIME,DONT WANT TO GET UP,BUT AM NOT SLEEPING EITHER,I CANT SLEEP AT NIGHT EVEN W/SLEEP MED/AMBIEN10MG+5MGVALIUM,READING ,NOTHING HELPS,SO I END UP DOSING ABOUT 4:30-5:00 THEN SLEEP TILL 2-4:00PM,BREATHING BACK TO WHERE I WAS WHEN STARTED MP ALMOST THANX TO BARNEYS LUNG EXERCISES,GO BARNEY!,VERY IRRITABLE,STILL LOTS NECK PAIN AND VREY LOWER BACK.FELL ABOUT 2 YRS AGO AND SNAPPED MY TAILBONE BAD,SINCE THEN SITTING HAS BEEN REAL PAIN IN THE A--,HAHA,BUT THE MP IS EXASTERBATING THE NERVE PAIN,WILL ASK DR. TO CHANGE PAIN MEDS.IN CALIF,NEW LAWON PAIN PATIENTS STATES THAT MEDS SHOULD BE CHANGED EVERY 6-8MONTHS,A BILL SENATOR VASCONCELLOS OUT OF S.BAY AREA HELPED PASS.SO IF YOU ARE HAVING PAIN /DR. WONT LISTEN,INSIST HE REFER YOU TO CLOSEST PAIN CLINIC AS THEY ARE MORE AWARE OF NEW LAWS THAN GP'S,OR TELL YOUR GP THAT HE NEEDS TO EDUCATE HIMSELF AS HE CAN BE LIABLE FOR MALPRACTISE/FINES FOR NOT FOLLOWING NEW LAWS,ALSO WAS BIG SUIT AGAINST DR.INCA.WHERE A WOMAN W/CANCER SUFFERED AND HUSBAND GOT $AND DR.PRACTICE CLOSED FOR ABUSE,ANYWAY THATS IT TILL NEXT BAT TIME AND NEXT BAT CHANNEL...2BONNIE |
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Bonnie2 Member in Phase 2
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still havin hot flashes,eyes really sensitive today having to use outside glasses inside,bad b.o. againheadaches,feel crappy,hands swollen,neck pain,I am going thru my breakthru pain meds quick.I get 30 percocets 5/325/4aday,and when I first got them I took maybe 1-4 week,now 2/day,water is off my feet,I see my ankles againfeel blah,thru up all day,fluids are to keep down too,but I am healing,shall persivier,just the pain,my eyes,I wear my glasses faithfully so dont understand.maybe because am doing mino/48hrs now,think will do beni/4hrs to see if It will helpwould that b ok,very weakness,brain foggy.....she's breakin up captain kirk,what should I do? I know watch XENA,WARRIOR PRINCESS 2bonnie |
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Aussie Barb Research Team
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Bonnie You may find that taking your mino 25mg Daily gives you more tolerable herxing than the QOD dosing.. The aim is to achieve tolerable herxing by adjustment of meds dosing and schedule while diligently avoiding Light and vitamin D.. there is no way to hurry the process.. it is best and safest to keep the herx at a tolerable level.. and you may need to do daily mino 25mg for a while yet till the herx settles.. all best, Barb .... |
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Bonnie2 Member in Phase 2
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Thanx barb,was afraid you would say this,I just thought since I hadn't had any cardiac herxing in at least 2-3 wks and really wasn't feeling herxing like I had been that it would be ok to start the mino/48hrs,but will do as advised,I do realize that when I go to mino/48hrs that I feel worse,It does even out,I just wanted to see if cardiac herxing was safe at that dosage since it had been unapparent.I only post how I feel every day or so because I thought that is how it is done for dr.s to see a clearer pic. of patients day to day struggles/changes of herxing,if I am reporting my symptoms to close together just let me know,I will only post at an interval that you suggestthanx for your work,blessings 2bonnie p.s. yesterday was 1st day w/o mino in like I said 2-3 wks,so I expected to feel bad,I did take today,but if you think I should stick to mino everyday with minimal herxing,then I will,I just started feeling myself again with no real herxing like before so I thought it was time to move on Last edited on Sun Sep 11th, 2005 07:24 by Bonnie2 |
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Aussie Barb Research Team
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Bonnie Thank you for posting.. you may post your progress and or questions here anytime you like.. You may take the mino 25mg in whatever schedule gives you tolerable herxing.. The aim is to achieve tolerable herxing by adjustment of meds dosing and schedule while diligently avoiding Light and vitamin D.. If and when the QOD dosing is tolerable to you, is fine.. thanks Bonnie, Barb ... |
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Bonnie2 Member in Phase 2
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I CANNOT GO TO SLEEP HELP!!!!!!!!!!!!!!!!!!!!!!!!!!!!tried everything,I feel as tho I am on constant adrenaline,sunday,monday,tues,no sleep,tried taking extra ambien w/dr ok,trieddoing what little exercise I can,had my brother over here last night so I could take long hot bath and my husband would have help w/me in/out of tubtried meditation,tried a help go to sleep tape from friend,tried xtra valium w/dr. ok,tried xtra pain med tried EVERYTHING,has this happened to others? am very frustrated and back is killing me from looking at posts to find out and researching web.med for sleep,insomnia disorders,is this a herx?????????????please if you can help please do as soon as possible, also got echocardiogram back dr.woulnt tell me anything other than he has referred me to the new cardialogy dept.and I am seeing thehead doc there,my appt is 9:00 on this coming monday,found out today so sleeplessness isnt over that,its so frustrating,because of all the biofeedback techniques I know from my painmanagement clinicI gotta know if this is a herx symptom so I can deal w/it if when it happens again,I am exhausted,but my eyes wont shut |
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Aussie Barb Research Team
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Dear Bonnie Do you want to try a change in your mino dosing.. if the herx is quite tolerable now on Daily dosing you could try to extend it out to the 48H schedule... that may be a help.. Quercetin is a possibility to help.. although it is early in the MP for you yet ... and can sometimes make things worse if too early... see the info in this FAQ How often should I take Quercetin? all best, Barb ... |
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Bonnie2 Member in Phase 2
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thanx barb will try the mino change 1st,as w/that i get tired/weak,maybe will help me sleep.passed out yesterday finally,watchin the telly,but then phone rang............ect.so was up again.didnt take mino today,sister from out of town here visitng,also had friend here that does hypnosis(20yrsexp.)she brought me some tapes that are just music,so when I got alone I went to bed,tape in and slept from 3pm till 7pm,when hubby woke me up,didnt want to get up but couldnt go back to sleep so,knew house rule no wkin me up he was concerned that i hadn't eaten being diabetic,so that was ok.Knew problem besides the usual,I am sooooooo constipated,been using suppositories as dr.says because of my history of having a colostomy,it is best to try to get things movin from the bottom,but 2 days not worked yet I see himDR,tommorrow,fri.,then cardialogist on mon.will b gettin new blood work on renal function/hormones/calcium ect.thanx for your work luv ya for it,many blessings to you hon,talk at ya later |
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Aussie Barb Research Team
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Bonnie Thank you for posting.. re constipation: Dr Marshall also recommends Milk of Magnesia.. and it may also be helped by keeping the herx tolerable.. and as a diabetic you would be aware of your diet, and drinking enough water.. and adequate rest.. and this may help What kind of probiotics should I use? all best, Barb ... |
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Bonnie2 Member in Phase 2
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thanx again the suppositories finallt helped,because I had a colostomy before my dr.wanted to try to get the feces moving from bottom w/o to much bearing down from the top of the colon,where the problem was.I use milk of mag.,whenever I feel the feces backup more around the belly buttun,I dont have a belly button,but around there.I have also used the clear drink that comes in the 12oz green bottles,likeunto,7up,cant remember what is called,but I have problems time to time because of major scar tissue from colostomy,anyway,have slept about 6hrssince posted yesterday,tell trevor thanx 4 advice,blessings to you for your work 2bonnie |
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P.Bear R.N. Inactive Staff
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BonBon, I think the green bottle med is most likely Mag Citrate. glad to see you progress. P.B. |
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Bonnie2 Member in Phase 2
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slept again 6/hrs yeah! still groggy,but can sleep little,used chait today as my ankles didnt want to stop burning,cramping(*chair)have been reading a book I got yrs ago,The power of Now,by ekardt Tolle,It teaches you to understand what the "pain body" is and to realize that our selves only live in The Now,interesting concept when pain is bad and makes you think of past bad experiences,or worry about future which hasn't happened yet,pain clinic gave it to me and it helps get rid of pain thru thinking.I f you keep your thoughts in NOW,you learn to have quite in the mind thus allowing you to not think of anything,including pain,just thought I'd pass that on NOW,haha,weird I feel crappy but have a peace over me thats keepin me from.....I don't know,go see the bigwig cardialogist on monday,real nice,explained that I am on mp,that ant sit in office all day so I am the 1st patient in the morning,totally understandable,think I like this Dr.already,many blessings all will report on monday let ya know how the cardialogist went.bye 2bonnie |
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Bonnie2 Member in Phase 2
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so I went to the cardialogist today to find out about the echogram,told him that I had sarc,the p-e-r-s-o-n-laughed me out of his office after humiliating me,so nevertheless will talkabout it in a day or ten,cant stop crying,he sent me back to my dr.because my pulse ox was 84,asked if he would set up a mri for me as the echo showed enlargement,again he laughed and in his very irritating,almost unrecognizable accent he laughed again,told me you must be kiddin why would med i cal pay 3000$ for you mri,hahahahaha,laughed at me being covered from head to toe,cant have vitamin d,hahahahahahah me no see that since me in school,hahahahaha,I gotta goany way my blood gases that MY DR. had done arent good................like I saidmy .....o2 saturation/84.1.........po2/50............pco2/51.3 anyway now they want to screw w/me and give me one of those big ass tanks to manage w/my wheelchairand telling me that the little ones arent covered by med i cal so I still am homebound,I cant handle chair/tank same time,thanx reagon,bushes,lots,really appreciate the hand tieing of my Dr. and all those who are trying to help me have some type of life,but I also wanna say no thanx to the Dr.s out there that think they have crowns on their heads,sorry for rambling,I'm gonna go have a stroke,heart attack or maybe a nice blood clot,have a good one all 2bonnie |
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Foundation Staff .
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2bonnie, I'm sorry you had such an upsetting experience with this insensitive doctor. He showed his ignorance of sarcoidosis. It would be helpful if you were to get a written copy of the echocardiogram report and the doctor's analysis. Since you know that you have cardiorespiratory inflammation, there is no point in getting an MRI unless you think it would change your mind about how your sarcoidosis is treated. Please see: What diagnostic tests do I need? I'm sorry that Medi-Cal won't pay for portable oxygen. That makes it even more difficult for you to get to the doctor. Perhaps your social worker can help you out with this. Hang in there. We're all rooting for you. Best, Meg |
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Bonnie2 Member in Phase 2
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thanx for that megan,youd think the HEADof CARDIOLOGY would know just a wee bit about all types of cardiac diseases,anyway,med i cal will pay for a portable tank but they are the big ones that are for people that can drag them behind them as they walk,the tanks are like 21/2-3ft long,my dr. put on the presiption that I needed one that could mount on a chair/or onr that is the little ones most people you see use.So I have it just cant use it.so my neighborhood night walks are out,the one thing that helped release most of my stress,I live in a smi rural are so stars are bright,anyway,I need to talk about a personal problem that I only mentioned to staff before but I have decided not to hold in anything inside anymore that has to do w/symptoms tho may seem very personal to me,there may be other women who are experiencing what I am and need to know others are too.So,I am having vaginal herxing,it started out when the body odor was happenining,It 1st appeared as a vaginal discharge,my gyn assured me it was no infections ect.,I am celebate 5yrs now,another member had the same problem,well the discharge is gone,now there is a pressure kind of painso called my gyn asked if maybe she might have noticed some lowering of the upper wall when she examined meas I have had hysterectomy in 95,and then lost few feet of intestine/part of colon in 96,had colostomyfor a year as intestines were swollen and ripped,this is 4 monthe before they diagnosed me with sarc.telling me that I had irritable bowel blah blah,but it is becoming very painful sitting,feels like bad menstra when everything is swollen....also have been having clitorial swelling,is or has anyone else incuding that other member I talked to had this experience to?It feels as tho I am on my menstra all the time,going on now about a month pressure getting worse,any suggestions on relieving the swelling as lowering mino/beniar doesnt seem to effect this area as w/lungs,jointsect. thanx2bonnie |
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Foundation Staff. .
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Bonnie, If you are strong enough, you may be able to walk with the tanks you have. Didn't they provide you with a cart (with wheels) for the cylinder? I used to walk the length of my block pulling my oxygen tank. I am hoping you will get a smaller tank, but that may mean a change in oxygen providers. Not all medical oxygen providers carry liquid oxygen, which is carried in smaller personal units. You may find that using a probiotic will help with lower abdominal or vaginal problems you might encounter. Have you read What kind of probiotics should I use? The feeling of swelling would be consistent with a Herx if there is no other explanation. Belinda Last edited on Thu Sep 22nd, 2005 00:34 by Foundation Staff. |
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Aussie Barb Research Team
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Bonnie Some find they are better to take the probiotics twice a day or as required... they can feel the pressure coming back when more is required. and if that isnt enough ..... see > and although it is early in the MP for you, you may wish to try the Quercetin to see if it helps.. see info in the FAQ and the link within How often should I take Quercetin? Another thing is to reassess the dosing and schedule you are at with your mino.... is it time to make some changes forward from there. let us know how you go with it... Thanks, Barb ... |
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Foundation Staff .
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Bonnie, My fragile patients on oxygen are not able to carry the small oxygen tanks without an increase in their dyspnea. Although awkward, they manage better with the portable tanks on wheels. If you've noticed urogynecological tissue changes that may be structural in nature, you should have a thorough exam. A knowledgeable doctor will be able to tell you your treatment options. Th1 inflammation can cause benign drainage and swelling. This will resolve with the MP. Ask your doctor about palliative measures for the intolerable symptoms. Best, Meg |
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Bonnie2 Member in Phase 2
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thanx for all the responses,my gyn says my vaginal walls are strong and that no weakness enough for surgury to fix it is apparent,rectalexam did shw swollen colon entrance,so my colon is probable like it was when it ripped and I ended up w/colostomy,diet is getting strictor,more fluids,so am using blender drinks more as meal foods,Dr. is working hard to get medical to pay for a mount for my wheelchair,it is obviousI cant be independent w/o it.Also the guy that works at the oxy place is oooooold school bud,told him to refer medical to the updated sight for sarc.....,sarcinfo.com that explains that the other sites are obsolite,only can k\hpoe that helps w/ NIH in the way,am also looking at url that belinda gave me that may help in finding other company to get oxy from who will put attachment to hold onto my chair.Also have decided to go back to mino 25mg/everyday untill all these problems settle down/o2 sat.comes up,stabilizes,just guess will have to take this real slow like you all have been telling me no rush,anyway at least I know that with the swelling /herxing I am giving them a good fightam doing beni 40mg/4aday thanx all love ya many blessings |
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Aussie Barb Research Team
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Dear Bonnie, I see that you had gone off the daily mino to QOD... Daily should be better and you can stay at that for as long as it takes.. it is best to be cautious re your symptoms and dosing ... you may check if you are needing any help in deciding.. we are very happy to assist you in any way we can.. all best, Barb .... |
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Bonnie2 Member in Phase 2
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today unfortunately I feel as tho I should be writing my epitath. yesterday my husband went out of town and on way home found a nbar-b-que place,so he brought me all my favorites(vegitarian)greens,salad,greenbeanswith potatoes,sweet potatoe pie...........and my favorite.,fried okra,well I ate the okra,not really tasting anything bad,cornmeal,spices....but 3am I woke up sssooooooooo sick,I asked my husband I feel like I need to go hosp.,vomiting weak ect....well It dawned on me he said it was a louisiana bbq,oh hell,I said honey did they have catfish or red snapper there?yes on both,then it hit me,the 2 orders of okra was cooked in the same oil as the fish,well today I am dead,officially,guts hurt,backside,frontside,everyside,whatever youall do if you like okra &bbq make sure that its not cooked in grease w/fish.so I have never felt like this in my life,poisoned,baaaaaaaaaad,I am going back to sleep,and consipation baaaaaad,lord help me,I must have a vitamin d overdose bigtime,I will be offline a few days,so P.bear call me if u need to,my cell phone got wet but the landline is working |
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Aussie Barb Research Team
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Bonnie You may wish to try taking your Benicar 40mg at Q4H or the equal of 20mg (half tablet) @ Q2H to see if it will help you to get thru this better.. Barb .... |
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Bonnie2 Member in Phase 2
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hello all,drinkin lots water today,stayed in bed too.we have medical marijuana here in calif.nothing like it when injested for any stomach,intestinal thing,plus your medicated enough to skip that day if need be when in pain.Just found out that I can have milk thistle,tea to help with de-tox cleansing,I will encorporate the M.T.into my other herbal tea,has helped tremendousely,another +is being in bed so long,my lungs feel like they close,get phlegm and drinking the cannabis tea helps to bring it up naturally when injested also,inhailing isnt an option so I larned it's expectorant properties also work by injesting.Boy I dont think I'm ever going to eat another piece of fish again,okra,I will eat all day long,but the fish oil killed me so those who get cooked food outside the home beware!,I didnt taste fish on the okra so ....,I'm doin 25mgmino/24.......40benimg/4day |
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Bonnie2 Member in Phase 2
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did the beni20mg/2hrs,feel lots better,thanxs lots barb.have major weakness in all body,dont want to be on this computer,but must keep up.not eating,afraid,just want liquids,water,diet 7uplittle,sweet makes me sick as h---,well there anyway.whole body is fevered,all joints swollen today,havent had that in months so not used to the pain of the swelling I used to have everyday,I thank trevor that now the swelling is only last time was before started mp!!!!anyway Im out of here,been reading the new political comedians book.....NEW RULES,by Bill Mayer,very funny.so I really want to be alone so bye,blessings,just gotts ta ride it out,back in few days.....2bonniep.s P.bear if someone needs me give them my phone as I dont think ill be back for awhile k,thanx 2bonnie,hope you all wellness |
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Bonnie2 Member in Phase 2
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hello,feel baaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaad.dont know what to do just want to diiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiie,losing lots weight this last week,4lbs,really think that other things may be going on,but dont know.I dont know what to do.my stupid roomate almost killed me yesterday,didnt check on me till 7:30 pm,my oxygen was wrapped around my neck,not in my nose,he said it took him 15min. to wake me up,I still have bad headache from that,please can you see if I am still alive at least before the sun goes down on the next day,duh.doin badfeel dead,later,dont want anymore advise or anything cuz nothin works,i will write again ,i dont when |
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Aussie Barb Research Team
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Bonnie, P Bear, anyone who has Bonnies contact number, Do you mind/ can you please contact me by private message as we would like to make contact with you or your room mate to see how we may assist you.... Thanks, Barb ... |
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Aussie Barb Research Team
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Bonnie, P Bear, anyone who has Bonnies contact number, Do you mind/ can you please contact me by private message as we would like to make contact with you or your room mate to see how we may assist you.... Thanks, Barb ... ADD: contact has been made thank you all.. |
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P.Bear R.N. Inactive Staff
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Bonnie asked me to post that she is controlling herx well now with Mino q12 hrs and benicar q6. She has had success with taping her oxygen on at night. With herx in control she is less short of breath and does not always need o2 in the daytime. She mentioned that she ran into the pulmonologist in the hallway at hospital who used to "treat" her with 80 mg of prednisone. She showed him her ankles and he was amazed that he could see her tendons now. She was pleased to inform him that she could now walk short distances since beginning the Marshall Protocol. best, P.B. |
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Bonnie2 Member in Phase 2
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hello all ,as p.b reported my herxing is soooooooooo much better.in fact barely herxing at allI amm getting a rash on my buttocks,havent found a cream yet that will alleviate it,have been trying anti fungal,thought maybe it could be from all the mino,guess not,really weird cuz it does remind me of the bad rash I used to get when I was younger,like 1st grade till I was teenager,I got it behind my knees,elbows,dr.says its exima,but is not responding to th e creams,anyone got idea,seems all I do is scratch my behind all the time now,is also on top of my left footand around my right ankle.am gaining weight cuz can ear w/o emesis,colon pain.thats it haveing great depression so if dont write in a while I am ok just need space sometimes,I talk to p.bear when I dont write "eat w/o emesis",colon pain gone 2bonnie |
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Aussie Barb Research Team
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Bonnie Thank you for posting. The aim is to achieve tolerable herxing (physical, mental, and emotional) by adjustment of meds dosing and schedule while diligently avoiding Light and vitamin D.. when you feel completely stable in all ways at each schedule level, you may wish to try to extend the schedule out and stay at that level till stable again.. etc.. When you are stable at mino 25mg Q12H, you may like to go to mino 25mg Daily if / when it suits you.. If you have any trouble at all, just go back to the previous schedule of Q12H.. for the rash see also I've developed a rash. What should I do? let us know if you have any questions. take care, Barb .... |
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Bonnie2 Member in Phase 2
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doing fine still losing weight,all is fine,thanx for the site on the rash thing,but dealing w/intestinal stuff again,but mildy,thank goodness.will get back soo nblessings,forgot.....am running low grade fever...100.3...bye talk soon 2bonnie |
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Bonnie2 Member in Phase 2
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I have one thing to say,thank the goddess for the mp and trevor marshall,yeah the last months have been hell,and for a minute there I thought it wouldnt work for me but 2wks ago my o2 on room air was 84,today it was back in the 90's,91 as a matter,P.bear must have thought me crazy when I called him crying I was so happy.I made him guess what he thought my # was,HE SAID 88,WHEN i SAID 91,91 ON ROOM AIR HE WAS HAPPY TO.THATS ALL i GOTTA SAY 2BONNIE |
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Aussie Barb Research Team
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Bonnie Thank you for posting.. you are doing some hard work here.. I am pleased you can see results.. good to know from your PM that you are staying at the frequent mino schedule to keep all tolerable and working best for you.. Thank you to PB for assistance and all good support.. Barb ... |
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Foundation Staff .
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2bonnie, Way to go!! Your upbeat post made my day.  Best, Meg |
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Bonnie2 Member in Phase 2
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HAPPY HHHAAALLLOOOWWWEEENNNYYYY EVERYONEhavent been posting cuz totally did something I am paying for now,long story short,halloween pumpkin bread...gift...everyyear tradition...forgot eggs.so Ive been gettin over that but the main thing that I am looking forward to now is another tradition this time of year and that is dressing up w/my twin brother and scarin the b-jesus out of all the kids who dare come to my house of horrors on HALLOWEEN OOOOOOOOOOOOOOOOOOOHHHHHHH.anyway,I feel like crap but the thought of scarin the little buggers that live in my neighborhood is SUCH A RUSH WEW remember the house we all loved to hate to even step in the yard cuz you knew in your heart that you were gonna almost pee on yourself cuz you knew that every year that was the COOL house,thats mine,so if your not feelin well think how great it was to get old enough where you were the one doing the scaringmany blessings to you all,much love,and I know these posts are for our health,but if remembering what it was like when we where healthy,ALIVE THEN i'M SORRY FOR THIS POST...........2BONNIE |
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JudyBeauty Member in Phase 3 
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Hi Bonnie, Happy Halloween to you.! I love Halloween it has always been my favorite hoilday. I remember trick or treating for hours and hours. My brown paper bag would end up breaking. I have lots of brothers and sisters and we would bring home tons of candy. Then as an adult I'd get dressed up in costume and hit the clubs with my friends. We had so much fun. Now I enjoy handing out candy to the kids and I'm always ready with some plastic bags for the kids who get a hole in theirs. The good old days. They will return. Happy Haunting Judy |
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Bonnie2 Member in Phase 2
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blessings,went to dr. yesterday oxygen is holding steady at 91,hey heybut did have an infection going on,am clearing the med givin w/staff,temperature was 99,never have temp.I am always 97.whatever,feel crappy but one of my favorite holidays is coming up,see last post,then dr.is training a student so she is learning of the mpspreadin the WORD,I actually heard him tell her that it is a protocol becoming popular!!!!!!!!!!!!!!!!!!!!!SO TREVOR IF YOUR WATCHING,DR.S ARE TALKING AND STUDENTS ARE LEARNINGmy dr. is always going to these dr. things and he talks to them about the protocol,then he comes back and tells me that oh this dr.didnt know,well he does now!ah the ego of my dr. gotta love him.anyway am GETTING OFF OXYGEN DURING THE DAYI'M BACK JUST HAD TO DO A LITTLE HAPPY DANCESO many blessings til next progress 2bonnie |
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P.Bear R.N. Inactive Staff
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2Bonnie asked me to post for her. Her fever has gotten higher with left ear tympanic up to 100.8 and right ear to max 102.2. She reports no ear or facial pain. Her lungs are clear and she has no shortness of breath. She c/o feeling of "swelling" and tenderness in intestines and constipation. She said urinalysis was clear yesterday. She has just very recently changed her pain med from 120mg of avinza qd to oxycontin 20mg q 12. She said she would take a percocet 5/325 to get tylenol on board. She is now switching to 25mg Mino q6 hr from q12 hr to see if it may help. She reports she will call Sat afternoon and will contact her doc if she gets worse in the meantime. She said she would try smaller amount mag citrate than full bottle tomorrow. Bonnie reported she was worried about ever having another bowel surgery because she almost died last time. She would like more advice from staff if possible. Best, P.B. Last edited on Sat Oct 29th, 2005 06:30 by P.Bear R.N. |
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Foundation Staff .
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Hi Bonnie, Increasing your mino 25mg from every 12 hours to every six hours in the right thing to do to decrease Herxheimer symptoms. It doesn't sound like you have an acute infection but do stay alert for signs of that, such as colored sputum. Changing your narcotic may have decreased your bowel motility and caused your gastrointestinal symptoms. You are taking immediate release oxycodone in the Percocet in addition to the slow-release oxycodone in the Oxycontin. I'm not sure why you think you need the Tylenol (acetaminophen) but you could take it separately unless you need the Percocet for breakthrough pain. Prevention of constipation when taking narcotics is very important. This list of laxatives may help you suggest an alternative to your doctor if the mag citrate doesn't work. I see a lot of doctors ordering Lactulose routinely now. There is no limit to how much laxative you can take. The key is to find what works and then continue its use to manage the narcotic-induced constipation. Be sure to drink adequate fluids too. Do call your doctor if your bowels haven't moved by tomorrow. I hope you get these symptoms under control soon. Best, Meg |
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Bonnie2 Member in Phase 2
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1st thanx p.b for the accurate postused lactulose and am having small firm bowel movements,once daily,enough to keep pressure off the scaring from the colostomy in1996.p.b. suggested getting a different thermometer after the ear kind told me it was 105,so am using oral and temp. is normal.am herxing,and having extreme pain from pain med change,and a very close friend died needlessly over the weekend,think I will ask Dr. for a anti-depressent for a while as am also having negative life-situations that cant be changed yet.Am really feeling badly physically,emotionally.........can maybe a staff member help me in which site I should look at to tell my dr.which anti-depressants I can have and please pray for me......will check post tommorrow,and then I think I am going to be off line for about a week,I need space and am going to a place were I can get some peace.P.bear has my # if staff needs to contact me,many blessings to you all bye 2bonnie......p.b just ask steve for my cell phone |
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Aussie Barb Research Team
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Bonnie sending Which sleep med, anti-anxiety med, pain med or muscle relaxant can I take? all best, Barb ... |
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Bonnie2 Member in Phase 2
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THANX BARB,LIFE SITUATION IS UNBEARABLE MAY HAVE TO GO OFF PROTOCOL FOR AS LONG AS 2 YRS IN ORDER TO FIND A HOME THAT i CAN AFFORD.WAITING LISTS ARE TWO YRS EVEN FOR THE HOMELESS AM VERY DISTRESSED AND HAVENT EATEN,SLEPT IN DAYS.DR HAS GIVEN MEA NEW MEDS SEROQUEL 100MG,FEEL VERY BAD EMOTIONALLY,AND AM UNSURE OF WHERE ,WHAT IS GOING TO HAPPEN TO ME, CAN PLEASE GET SUPPORT WITH ADVISE FROM MEMBERS? AM AFRAID TO SLEEP THAT I WONT WAKE UP,STAFF PLEASE LET ME KNOW IF THIS PSYCH MED IS OK MUST SLEEP,PLEASE HELP W/THAT ASAP, ALSO BOWEL MOVEMENTS HAVE STOPPED,HAVE BULG AT AREA WHERE COLOSTOMY USED TO BE,AM USING EVERYTHING TO GET IT GOING DR. IS UNAVALABLE FOR WEEKEND,SUPPOSITORIES NOT WORKING IN MOVING BOWEL FROM THE COLON,ADVISE PLEASE DONT WANT TO LOSE PROTOCOL,AM TRYING TO STAY OUT OF HOSPITAL/MENTAL HEALTH ALSO 2BONNIE PLEASE SEND BLESSINGS ...STAFF HAVE SENT MAIL TO P.BEAR IF NEED MORE INFO ON THE LIFE SITUATION ISSUE,SEEMS IN RURAL AREAS OPTIONS ARE EXTREMELY LIMITED IF i MUST STOP PROTOCOL ,WILL SEND LAST POST SOONPLEASE PRAY FOR ME,I WANT TO LIVE |
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Aussie Barb Research Team
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Bonnie I have contacted PB immediately.. that med appears to be the problem.. side effects of constipation and etccc. PB is contacting you with advice.. drink water.. Barb .... |
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P.Bear R.N. Inactive Staff
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Bon, have sent you two private posts. Can call me on the morrow if you can. P.B. |
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P.Bear R.N. Inactive Staff
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2Bonnie asked me to post for her. She has been stressed by life situation, but continues on MP with Mino q 12 and Beni Q6 with tolerable herx level. best , P.B. |
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Bonnie2 Member in Phase 2
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blessings everyone,as you are aware from the last few posts I have been on a bumpy ridehave my OLDEST sister here for a while so that life-situationis mellowing out,have had great piece and quiet for almost 2 wks,am herxing bad again/nose drainage,aches those things again.am over the mourning of my grlfriend..,so ok their(now just p.o.ed cuz was a senseless loss )but am channeling my energies to doing the things I did before I realized that when you live on this protocol so am trying to re-invent myself once again,my first model 2bonnie was prior to the wheelchair,so i learned about how to help myself and others w/same rivers to cross that I hadnt swamso now living in a bat cave has brought me to my new re-invention.......hence 2bonnie.just food for thought out to those who cant talk about their problems as freely as meself. Went to Dr. today,discussed the pro's-con's of the pain meds that we had switched that caused an uncontrollable episode/depression/anxiety.W e concluded that will be doing 20mg oxycontin 3xday(no longer 120mg avinza)and for the depression/anxiety,I am trying to due asthma exercizes 3xday/reading/listening to sublimimal music at night,drinking jasmine,fennel,ceylon.....ect .teas to keep calm and doing what I was before had life situation problems.Many blessings to the older sisters of the world p.s my o2 on room air was a woppin 96!,but understand am not herxing alot will always keep in mind getting close to the 2nd phase can cause depletion,am upping my mino soon,will advise 1st I remain,as I can no other2bonnie staff thanx for heads up on that one med,flushed it once I looked it up on net,blessings Last edited on Thu Nov 17th, 2005 04:47 by Bonnie2 |
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Bonnie2 Member in Phase 2
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went to sleep ,blessings,for about6hrs,deep heavy -good sleep,used no meds to induse sleep,other than cannabis that is recommended in ca.,by physiscian,discovrd lovely organic peanut butter,small amount was all that was needed,so am trying to reduce my chemically unsound medications that I am finding alternatives for that make me feel better and bring more beauty in this world ,so am reducing the ambien to one every other day/substituting the cannabis/tension tamer tea(celestrial brand)untill ambien is no longer needed.also found did not need 6mg of valium w/ambien to get a less restfull sleep,I have found w/peanut butterincorporated w/cannabis.I would also like to note that I also have cut my opiates in a nearly 1/2 to 1/2 ratio w/going from AVINZA-120mg 1day.....to 20mg oxycontin-3times day.AS PATIENTS IN PAIN it is we who have controll,there are alternatves to pills,and I dont Always have peanut butter medicine,but I can find that place away from my pain body,so that I may become a couch potatoe but,I got things I gotta DO,so thats whats goin on today,the herxing is totally in the brain area,although I think I am getting my point across,to dr.'s,and patients.lots anxiety,whats driven me nuts is why cant I face the realization that there is absolutely nothing to fear,yet there the feeling is persisting to dictate also am having the intestinal inflammation once again,must remember to sit back.eating vegetable breads,no milk or eggs,sugar.no sugar yogurts and am having hemmoroids,treating w/witch hazel,finding great relief,so we're in for another bumpy ride,but as good as I felt coming throughto now,able to get things done was a true blessing,so amm looking forward to my covert operation bio-feedback visualization tackticks....seeing all the bugs inside dying and each and every cell in me starting to shine w/life again,so living in the bat cave that less helps too.oh forgot,have digit pain,hips kneesand of course the lovely nose drainage blessings everyone 2bonnie till I post again |
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Aussie Barb Research Team
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Thanks Bonnie for your report.. any time that your symptoms begin to increase towards intolerable you can bring the mino and or Benicar back to more frequently as previously used, to gain relief.. and then, when stable extend them out to where you were again.. also info in What kind of probiotics should I use? let us know if you have any questions.. all best, Barb ... |
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Bonnie2 Member in Phase 2
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blessings all,barb,thanx for the advice,if not feeling better by this coming weekend,will think seriousely about trying the miiddle road/using the mino at 8hrs,instead of the 12hrs.So to re-innerate....am at mino25mg/12hrs and beni40mg/6hrs. had 2 severe anxiety attacks,bad enough to where I needed to call p.b,seems the more I rationalize,speak to myself that I am over-riding whatever is causing the fear in the 1st place.getting dark early now so took opportunity to shop for envirnmental/meditational tapes for relaxing/anxiety control,and is wonderful tools to wake up to in morning when feeling bad.I also recommend novajo/flute/drum cd's.I have found that in my indevors to get away from the pain pill game to,though am most responsible w/pain meds,always have left overs,that stillness/quiet can be a very good friend,breathing right has alot to do w/it also.one of the things I do when my pain is unbearable,but it is 4-5hrs before I can take that time released pain med,and I dont want to take the "breakthrough"pain meds either,I look at my hands,really look at them...the lines,their "charactor"and I think how blessed I am that they dont hurtbecause I am making the deciscion to see the life in my body and not the pain,at 1st it was hard,very hard.Now Isee my whole body alive,the lights of each cell,once darkened by bug bacteria,shining brightly,so on those nights when you feel beat,just listen close cuz the mp is turning your bug zapper lights back on,one day.....soon...you'll hear...pop..zap.pop,pop,...zap just the mpworkinscarring in intestines where colostomy was re-establishedis slowly getting better,am actually noticing weight gain,tho most unwanted.lactulose 10gm/15ml syrup qu473ml....,has been given at 60mlx2 daily when started is now down to 1/2 that.have doubled probiotics,yogurts w/fresh fruits working very well.Noticing stool is moving more comfortably through this very scarred problem area.will try working acidophillos in budget. What I am finding extremely strange is the fact that I am not using my albuteral/combnivent/nebulizer in these particular episodes of herxing,am wondering is this one of the benefits to getting closer to phase 2? I am also finding that if I dont tell/talk to others about my dis-ease thatI am not reinforcing it,I only give my symptoms in here,what I do reinforce to others is the fact that I am in a curitive state.I read my 1st fewposts and cant evenimagine feeling that bad,I shall never let that happen again now that i have the mp also have noticed have been using illness to get other people to do things for me that I can do myself,example;getting water for me when I can get up,get it myself,also see that they are actually asking me several times "you sure I can't do that for you?"SO,I started seeing just what I could do w/o help and not putting myself in harms way.It's incredible how much you can do if you change your prespectives.Becoming ILL for me in the 1st place was a blow,even tho I wasn't in the best,I got by.It really is incredible the things people will do when they see a wheelchair AND oxygen combo.Whats more is the things we allow people to do for us,that doing for ourselves is the true win-win situation,AND w/thatI say thank you brain-herx for helping to clear the cobwebs so that I can see clearly my priorities...more,more. 2bonnie many blessings to us all,that we all may be healed no matter the situation or the malady thanx to staff for work /trevor for his creativity |
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Bonnie2 Member in Phase 2
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blessings all,barb,thanx for the advice,if not feeling better by this coming weekend,will think seriousely about trying the miiddle road/using the mino at 8hrs,instead of the 12hrs.So to re-innerate....am at mino25mg/12hrs and beni40mg/6hrs. had 2 severe anxiety attacks,bad enough to where I needed to call p.b,seems the more I rationalize,speak to myself that I am over-riding whatever is causing the fear in the 1st place.getting dark early now so took opportunity to shop for envirnmental/meditational tapes for relaxing/anxiety control,and is wonderful tools to wake up to in morning when feeling bad.I also recommend novajo/flute/drum cd's.I have found that in my indevors to get away from the pain pill game to,though am most responsible w/pain meds,always have left overs,that stillness/quiet can be a very good friend,breathing right has alot to do w/it also.one of the things I do when my pain is unbearable,but it is 4-5hrs before I can take that time released pain med,and I dont want to take the "breakthrough"pain meds either,I look at my hands,really look at them...the lines,their "charactor"and I think how blessed I am that they dont hurtbecause I am making the deciscion to see the life in my body and not the pain,at 1st it was hard,very hard.Now Isee my whole body alive,the lights of each cell,once darkened by bug bacteria,shining brightly,so on those nights when you feel beat,just listen close cuz the mp is turning your bug zapper lights back on,one day.....soon...you'll hear...pop..zap.pop,pop,...zap just the mpworkinscarring in intestines where colostomy was re-establishedis slowly getting better,am actually noticing weight gain,tho most unwanted.lactulose 10gm/15ml syrup qu473ml....,has been given at 60mlx2 daily when started is now down to 1/2 that.have doubled probiotics,yogurts w/fresh fruits working very well.Noticing stool is moving more comfortably through this very scarred problem area.will try working acidophillos in budget. What I am finding extremely strange is the fact that I am not using my albuteral/combnivent/nebulizer in these particular episodes of herxing,am wondering is this one of the benefits to getting closer to phase 2? I am also finding that if I dont tell/talk to others about my dis-ease thatI am not reinforcing it,I only give my symptoms in here,what I do reinforce to others is the fact that I am in a curitive state.I read my 1st fewposts and cant evenimagine feeling that bad,I shall never let that happen again now that i have the mp also have noticed have been using illness to get other people to do things for me that I can do myself,example;getting water for me when I can get up,get it myself,also see that they are actually asking me several times "you sure I can't do that for you?"SO,I started seeing just what I could do w/o help and not putting myself in harms way.It's incredible how much you can do if you change your prespectives.Becoming ILL for me in the 1st place was a blow,even tho I wasn't in the best,I got by.It really is incredible the things people will do when they see a wheelchair AND oxygen combo.Whats more is the things we allow people to do for us,that doing for ourselves is the true win-win situation,AND w/thatI say thank you brain-herx for helping to clear the cobwebs so that I can see clearly my priorities...more,more. 2bonnie many blessings to us all,that we all may be healed no matter the situation or the malady thanx to staff for work /trevor for his creativity |
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Aussie Barb Research Team
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Thank you Bonnie, it is good to know that you are making progress.. we are happy to hear from you and are happy to assist you in any way we can.. all best, Barb ... |
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Bonnie2 Member in Phase 2
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well happy belated thanksgivings everyone,guess who cooked,yep I did.I am herxing but am dealing with it well,service to others has always been my turn on so no matter how bad/good I feel,feeding the hungry always brightens my spiritsam still herxing pretty good,change in weather isn't helping,but in order for a tree to grow it needs a little manuream finding it most interesting that in the begining of the first phase for me that the breathing was what had gotten worse,although I do understand that the herxing can hit any part or all parts at different times.I am still perplexed that my mind is getting clearer still.It's almost as if the fog of the past 12yrs of pain/despair of knowing -then that I wouldn't see my granddaughter grow up.I say this because the sarciodosis had come upon me with a vengence in a short time.I lost my middle sister to breast cancer 2yrs after my diagnosis,but was told it would burn itself out and I would be ok,so I forgot about it...........the hypocracy of the whole issue of all diseases.....DIS-EASE has got to stop.I find myself facing the lies of the web m.d facing me again as I am challenging the state of calif.,In Home Supportive Services,because thats the site that they usd to look up my illness.Because of the lies/deceit I was only alloted 1hr daily for help in my home,where others that are on oxygen/in electric chairs/unable to bath are given many more hrs.I am finding myself more /more mad than ill anymore.As I find myself slowly healing I see more clearly than I ever have in my life.Cancer took my sisters dignity,I.....IRefuse to go out like that,If it is my time I shall not go gently into that night,thats why I am here.To those Dr.s out there that use this protocol blessings upon your hands.My herxing is stable,still no joint swelling to report,tho the weather change,but am finding sleep harder to come by,not insomnia per say but the ideals,the LIFE returning,yes even through the herxing,I feel the life,my life returning and to think I am Only just getting close to phase 2....soon... I remain 2bonnie xoxoxoxoxoxoxox |
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Bonnie2 Member in Phase 2
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2bonnie here,the time draws near when my oldest sister is leaving,got me feeling a little down,she,ll be 2 hrs away,thats a thousand miles seems right now,I will only have her till the 9th.herxing is steady,to recap.....mino25/12hrs....beni40/6hrs.cold is begining to cause great pain in joints,but still no swellingI am afaid will be using the lactulose on constant bases as can't seem to get bowels to move through the scare tissue area from colostomy,surgury out of question period.nose drainage steady all day long,still no use for oxygen during day now,or use of inhalers,even fell asleep today without oxy,not intentional for about 5 hrs,but still understand that that could changeI'm just not letting my body know thatI have found the less my body knows of my dis-ease the more I am returning to old selfmy thighs are starting to rub together again so I suppose I am gaining weight againfood taste like it did before,yet still have a nose like a hound dog smelling anything foul at 5 miles away,wondering if this is also part of healing?my nose runs enough for iyt to be clean to smell I know that.Can't keep to stay warm tho keeping the thermo on 70f,so am bundled up constantly,joints aching,but more from weather I think,or inability to get warm,anyway GO SEE NEW HARRY POTTER...IT'S AWESOME,BEST ONE YET!!!!!!!!!!!!!!!!!!!!!!!!!!!GOING TO BED....2BONNIE |
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Aussie Barb Research Team
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Thank you for your posts Bonnie, As reported, your meds are mino25/12hrs....beni40/6hrs and still having some problems, the new info re Benicar is - a reduced dose of Benicar (but no less than 20mg every 6 hours) may be trialed. this may give you more relief. Let us know if you have any questions.. If you are concerned do not hesitate to contact your Dr.. all best, Barb ... |
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Bonnie2 Member in Phase 2
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2bonnie here,had to be in sun yesterday several hrs,even tho heavily protected,pain bad,then my oxygen alarm went off at 1am,waited till 5am to recieve oxy from provider,long story short,was exhaustedand missed noon,midevevning doses of both beni/mino/feel like dying,called p.bso for at least 24 hrs min will be doing beni//40/4hrs----mino/25/6hrs till swelling everywhere is settling,if not better by fri.will post for advice,till then blessings,also the mountains here got snow dumped yesterday,the news showed just beautiful,I used to live up there but my health caused me to become a flatlanderto be closer to the hospital.when it snowed would make rootbeer slushies with the snow,so to feel better today had son get me snowcone from local place with just a squirt of rootbeerI absolutely know that I will feel better,as I recall the "okra"incident2bonnie |
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Bonnie2 Member in Phase 2
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doin waaaaaaaay better thanx p.b...will resume mino/beni as before Happy Holidays 2bonnie out |
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Bonnie2 Member in Phase 2
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blessings all,am doing better,have resumed mino/25/12hrs-beni/40/6hrs*note tried beni at 20mg and herxing became really apparent feel more comfortable where I am at now although was close to time of sun exposure,so will try beni at lower dose again in wk or so,cold weather is really causing joint pain,but warm water works wonders,for my hands just soaking them with warm as can stand helps lots,learned that trick from physical theraphist,works well for feet also.My godmother made me a woolen scarf,I wear all the time,amazing how it keeps stiffness out of the cervical area,also am making different size "pillows"that lay flat stuffed w/corn feed(corn fed to cows)you can pop them in the microwave or oven to warm,1min.totest heat then place in stiff area,will need to have the pillow made in thick cotton material,then can make case just like regular pillow so can wash the "pillow case" when needed,if keep mirowave at low temps. when heating up this pillow will last loooooooong time,I found that using rice,beans as fillers dont and will burn before 1st winter is over+makes a wonderful gift of healing |
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Bonnie2 Member in Phase 2
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am feeling extremely well,think I will try the mino at 25mg/1day,beni/at usual 40mg-6hrs,feel as tho am not herxing at all except joint discomfort from cold.still no swelling of joints,and have dr.appt prior to xmas so think will get d's testing and a.c.e also,xray as am tolerating cigarette smoke of others where before was EXTREMELY intolerable,also accidently forgot to put on oxygen and fell asleep on couch,but woke up on my own several hours later,it's absolutely incredible how I am feeling,could Ibe getting very close to stage 2 early,p.s,Feel that mindset and not dwelling or telling anyone new in my life about my dis-ease is major factor in my seemingly miraculous healing,reaffirming this by having pictures of myself in happy times on frigerator,cabinets,only waqtching positve shows on t.v helps lotsas apposed to watching the law&order shows,I now only watch the animal planet,discovery,and the wisdom channel which onlys shows positive healing techniques,book reviews ect.I hear&see people in my dr.s office,everyone kinda looks at you with this sickness in their eyes,then theirs me,smiling talking to those who look the saddest,(excuse me,you really look down today,but the coloryour wearing really just is beautiful on you,oryou know you don't look well today but I can see that you gave the ladies a run for their money when you felt better,your still quite a looker for a man your age)It broke my heart when dr.told me that I was so close to death,that seems so long ago.............loving yourself so that you can pass that seed onto others is really a win-win situation,one I am finding can and is saving my life,so don't worry........just be happyplease advise if staff feels mino can go to 1 a dayand blessings for your work 2bonnie out |
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Foundation Staff .
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Hi Bonnie, It's great to know that you are feeling better after struggling so long. Your attitude is marvelous. I hope it's contagious. Focusing on the positive should help cope with Herx symptoms. If you think you can handle a little Herx, then it is fine to space your mino out to every 24 hours. Best, Meg |
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P.Bear R.N. Inactive Staff
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Bonnie , good to see you are doing well, and that you survived sleeping sans o2. |
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Bonnie2 Member in Phase 2
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firstly p.b.,I love you,and sorry I scared you,I meant that the smokers of the outside world,NOT IN MY HOME<STEVE HAS NEVER SMOKED,when I quit 8yrs ago nowit became rule in stone that no smoking allowed was in house OF ANY KIND,cannabis smoking is done w/vaporizer,so is no smoke and even that is done in room with window open as I don't want to blow up,but the cigarette smoking is I meant when I go out,like we just had christmas parade and before walking by a smoker 'bout killed me,but when out I noticed that it has gotten better tho ........I don't like it,so p.b it's ok......ok?I would never allow cigarettes in my home.so anyway am on first day where mino is 24 hrs,so not looking forward to tommorrow,but I am looking forward to killing those boogers,so wish me luck that I herx,but not to muchxoxoxoxoxoxoxxooxooxoxoxooxooxxooxoxooox2bonnie out....p.s. Dr. visit is the 12th,so will get updates for the new year as for some reason if I start off with positive new year the next is better |
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Bonnie2 Member in Phase 2
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am noticing the herxing,rally bad nasal drip,not cold but like before,bowel problems way better,are moving on own everyday w/o lactulose so will discontinue unless needed again,breathing is unbelievable,was able to go and harvest low growing mistletoe w/spectacularly white berries all over.I use sprigs on gifts,make broaches,put ribbons/sparkles of gold,silver or red/green.Was lucky to find the bunch on old oak,it was as if they were waiting for meI was able to walk a 4-5 step incline to a low branch/back to van w/no shortness of breatham finding that herxing is prevelent in my brain again,with being "drunk"kinda walk or just leaning sensation,feet on fire& severe shoulder pain also apparent daily,so here we go,but am wanting to herx as I have felt good for 3-4 wks,o2 is way better,so have been at 25mino/24hrs.......20beni/6hrs, now the fourth day,have noticed stutter back,but biggest concern is balance issue,don't want to fall,but don,t want to go backwards.finally got my oxygen holder for my chair,now that I don't use it really,tho always keep a full tank in my van beside my chair if neededam not getting flu shot,never got one tho,Dr.,always trying to give to me every year.don't put whats not needed in my bodyvery diligent about this philosophy.did have a tbls,well ok 2 of some spiked nog,its xmas,also was wondering,by the way if can have wine which is traditional in family unit at xmas,even just small amount.HAVE A HOLLY JOLLY XMAS THIS YEAR ALL ,p.s am taking beni at 20mg as am trying what barb suggested prior post,if I mis understood let me know ...thanx for all the work blessings |
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Bonnie2 Member in Phase 2
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am noticing the herxing,rally bad nasal drip,not cold but like before,bowel problems way better,are moving on own everyday w/o lactulose so will discontinue unless needed again,breathing is unbelievable,was able to go and harvest low growing mistletoe w/spectacularly white berries all over.I use sprigs on gifts,make broaches,put ribbons/sparkles of gold,silver or red/green.Was lucky to find the bunch on old oak,it was as if they were waiting for meI was able to walk a 4-5 step incline to a low branch/back to van w/no shortness of breatham finding that herxing is prevelent in my brain again,with being "drunk"kinda walk or just leaning sensation,feet on fire& severe shoulder pain also apparent daily,so here we go,but am wanting to herx as I have felt good for 3-4 wks,o2 is way better,so have been at 25mino/24hrs.......20beni/6hrs, now the fourth day,have noticed stutter back,but biggest concern is balance issue,don't want to fall,but don,t want to go backwards.finally got my oxygen holder for my chair,now that I don't use it really,tho always keep a full tank in my van beside my chair if neededam not getting flu shot,never got one tho,Dr.,always trying to give to me every year.don't put whats not needed in my bodyvery diligent about this philosophy.did have a tbls,well ok 2 of some spiked nog,its xmas,also was wondering,by the way if can have wine which is traditional in family unit at xmas,even just small amount.HAVE A HOLLY JOLLY XMAS THIS YEAR ALL ,p.s am taking beni at 20mg as am trying what barb suggested prior post,if I mis understood let me know ...thanx for all the work blessings |
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Foundation Staff .
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Bonnie, It's so nice to read about all your improvements. This thread, Wine & the MP, will answer your questions about alcohol. Best, Meg |
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Bonnie2 Member in Phase 2
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1st thanx meg for the thread,and herxing has moved from shoulders to knees,nose dripping,but very little,thank goodness for spell check,cuz am having problem with hitting right buttons to post,is taking longer than it should,but thinking maybe should let staff review the loss of control having in eye to hand co-ordination,has anyone thought of studying this factor of the herxng,this and the drunk walk I call it,or the feeling when going downsairs when herxing,seems like the steps don't feel as deeply as they actually are,so get kind of stumbling going on,now need someone on each side,so not to fall.legs just feel uncontrollable at times,like a weeble wobbleshave started the stuttering once againnnnoot ccccomppplllaaaininnng,just lettin ya know,allover pain coming back,but mainly muscular more than joint,but insomnia workin itself out,just want to sleep again just like when started.so am sleeping beter,see dr. tommorrow so will ask for tests discussed before,think will get new !,25-d as that was the troublsome one,think last time was 130ishand 25-d was 16,will up beni/20 to 40 for day/so as am going in sun tommorrow,It's sat. right?no waitafter midnight so ya I am right,yeah monday 1:45 is time dr.,wow see what I mean handth...han...eye to hand stuff is off-co-ordimation,shoot see so untill I get better from brain herxing will use spellcheck unless you want to see me real poet?damn,post.......,its like I know I type in the right words then I look and their totally different then ,than I know I typed in,hope thats making sense,it certainly does to mehappy holidays,have to take public transithere when am like this cuz don't have full attentuon when driving,so bundle up good2b0nnie out |
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BARNEY Moderator 
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Yes, Bonnie, I had that same problem here while back. It has actually gotten a little better now. I typed for a living for years and when this started happening it actually got funny but also annoying as it took a while to type my posts, having to keep typing the same thing over and over until I got it right. Hang in there, this too will pass. HANG IN THERE, WE WILL MAKE IT!!! BARNEY |
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Bonnie2 Member in Phase 2
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thanx barneyfor the reassurrance that this will pass.Ijust find it fascinating that the occuranse of herxing for me was the lungs&heart.As you recall it got pretty scarry for me in the begining.In any case so much is happening in my life that is possible and it involves journalismso you can see my dilema in trying to (dilemna)get what I need to do.I have just been asked to do a piece that is a minimum 600 words on why I go to my board of supervisors every tues.,besides writing the shameless agitator column in the medical journal monthly.So my post reports;tried skipping the mino25/every other day,but it "jacked me up"I am just wondering why the herxing is so prevelent in my brain&seemingly nervous system,I am referring to the sock neuropathy w/burning am having now todaycramping in toes&calves,so took mino25instead of skipping today,so will stay at mino/25/24hrs beni/20/6hrs.found today after mino leveled out on neuropathy socks&improvement on concentration,posting.thought bowel was working out but have been unable to have movement 3 days now so decided to start again on the lactulose till everything mellows out.used cannabis tinture for my toes cramping and hip pain,so good sleep is assured,w/o ambien and valium.have made committment to get off pain meds. to myself with the most harm reduction to self.pain for me now is more a nuisance,whereas before it put me in a place of a very deep dispair,but being the survivor That We ALL ARE,or we wouldn't be hereI trust that all will work out for us all & and am looking forward to the next year,just very curious who will be running for president on both sides,to bad my party doesn,t have a say or stance,but is european option,the green party2bonnie out,p.s and whats up with certain people being offended by saying happy holidays,duh just a reminder we are people not "sheeple"So please don't become a victum of the war on christmasLast edited on Wed Dec 14th, 2005 08:42 by Bonnie2 |
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Aussie Barb Research Team
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Bonnie Thanks for posting.. this FAQ may be helpful What is a neuro Herx? and Amygdala take care, all best, Barb ... |
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Bonnie2 Member in Phase 2
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2bonnie here,long time no post!!!!!am doing ok,fell 3 days ago,I guess I partied just a little to much on new yearsI'm old enough.so am at beni/40----mino/25daily....beni is at 6hrs,am herxing pretty bad,before i fell.actually I have been a bad girl,cheated on diet,but am learning lesson,trust me,who would think one ok 2 pieces of the best chocolate cheesecake would be like eating cyanide,stupid me,I'm all,I can have cream cheese,but no sugar,and found out other thing,cheesecake has mucho eggs in it,never knew that.anyway live and sufferbut am hurting mostly from fall,I don't think that herxing is the problem of me being a weeble wobble,I think it is because my hips are just really stiff from this weird weather,if you watch the u.s. news,you might have seen where we nare starting to float away..........so the weather has always bothered meafter the first frost,but its the knees,hips toes,fingers,BUT.......BUT NO ABSOLUTELY NO SWELLING!!!!!!!!!!!!!!!This time of yeareverything would be soooswollen that just getting out of bed would have been a miracle.The fall did hurt me badly,bruised hip/shoulder/wrist on right side.Am experiencing numbness very prevalent in right hand,had xrays at emergency,nothing broken,but definately could see many differences in the shoulder muscles.P.B has advised to see Dr. if numbness hasn't left in 5-7days,am on 5th,will see him on fri.Have had to add higher pain dosage,now 80mgoxycontin/daily and 4 percacetinstead of 2 daily if needed for breakthrough pain.anyway here's my moment of ZEN,then I'm outIt is said We All have one thing in common,We are born to Die.....then let us spend our prescious moments here to create from that within us(the formless)into the world(the form)A most wonderous Beautiful new self & world,all you have to do is say the magic words.....I AM. 2bonnie out |
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Bonnie2 Member in Phase 2
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Dedicated to those who have learned how to moondance As I lay in my slumber......listening,I hear the wind call my name.The chimes in the trees are dancing,then the dance stops....as the wind does also the same The Songs of the Winds,the chimes again...start to dance & play,Harmonious Voices calling...softly,carry me far,up & away A place in a dream,wonderous still,tho' I've dreamntbefore many times...........showing me the way,when awake,on how to follow the signs Slumber turns to honey dripping,sweet nector in my mind,Windchimes take me to that place..,The one only we together can find I find myself dancing like the windchimes in the trees...,I'm there in my sweet place,No money do I need,and.......I can go whenever I please,I need only a little breeze And I please oh so very much,then do I dance and do I sing...like the breeze softly blowing me as if I were a feather of a wing Oh Slumber forever hold me close and never do decieve......For the whispers I hear in your arms,I shall forever believe Let me dance forever like the chimes blown in the trees....Foreverto sway magically 'neath the silvery bright moonbeams For eyes open in the sun,now the sweetness leaves no taste..open eyes in the sun,see prescious lives in waste Eyes looking out my window quicklyat dawns light,see the world rushing hastely without even giving a fight So when the suns in the sky,I'll watch tv,let my brain fry,or like the young committ suicide,watch the news on the latest genocide,think of my piece of pie Either way,during the day,I'm just along for the ride,sister chaos doesn't hide nor her brother all our foolish pride......................I almost scream,pull my hair,wrench at all my clothes,then I see 5 on the clock,yes the shadow knows,that every minute from now on the darkness quickly grows Then again my ears do hear that loving beautiful sound the wind like the merry-go-round,soon to be there in the dark my new world I have found Once again,I'll begin all of my dreams,of dancing chimes,soft blowing winds and magical bright moonbeams,how more real this world to me,than the sunlit one seems Surrendering to this slumber every night,is where my soul wishes to go,where all is well,no pain no war,in that secret place,the wind,the chimes,the trees and we who know darkness best only know I Remain 2bonnie,in darkness is peace,hope,healing,togetherness,love but most wonderous of all...life,yeah tho' I live in darkness do I clearly see...the joy,the joy of again finding ME |
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Dr Trevor Marshall Research Team
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Bonnie, Sorry about the fall. You can buy chocolate with sugar alcohol, rather than sugar, as a sweetener. IMO they still put far too much sweetener into it, however. And it still carries calories, even if they don't affect your insulin as much. The chocolate which has least sugar in it seems to be Cadbury's Dairy Milk, which has 22 calories per square piece. It is sugar, and fat, of course, but maybe you can suck one or two small pieces to give your morale a boost every now and then I suggest you let those 22 or 44 calories melt in your mouth - they seem to last longer that wayps: Albertsons sells it |
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Bonnie2 Member in Phase 2
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thanx on the heads up trevor about cadburys,actually cadburys w/almonds and I have been aquainted for quite a times,ok years.I just can't lie to people,these posts must be riggedanyway bed was my thing today actually am heading back in a few minutes.After research on the exposure of light through the eyes I have concluded that I might not wear my noirs as much as I should,yes the fall was bad but am experiencing numdness in other places.I must take control again of this distructive nature,I find that after being good foer 2months means I can get away with being bad for 2wks.I'll learn,I hate being sick yet instead of being patient I backslide,I'm 43yrs old and I feel as tho' I need adult supervision,what the h-ll.I tell myself it was the holidays,fine,I have put myself on notice,either I do this all the way,no steps back,or I just die,It is my deciscion,I want to live,but dealing with feeling alive is overwhelming,now I have numbness,and the funky b.o. again,that alone will make ya lonelywew,when soap and the stuff thats supposed to cut thru skunk don't help......ok.will spend tommorrow in bed to,trying to stay in total darkness,well I hear my chimes calling and I have a date with a hot drow elf named drizzt(R.A.Salvatore-wizards of the coast publications)2bonnie out |
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Bonnie2 Member in Phase 2
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I'm not dead really,just stuff goin on,lost another friend and like aussie barb says deeeeep pression set in,but am coming out of it,slowly but surely,wow never felt it so hard before,I just feel like time is my greatest commodity,and I don't even wear a watch,cuz my belief system rationally tells me that the only time is NOW anyway am on same schedule,only am doin the every other day on the mino more and more,slow.........steady,think I might be goin thru menopause,I don't mind that,just dont want to get all better to old and get menostopyeah,I'm here,chillin,It feels good knowing so many pm's read me and was feelin a little guilty 'bout shuttin down,had to actually dust this laptop off before I could use it.............................................2bonnie |
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Aussie Barb Research Team
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Dear Bonnie Thank you for posting. I'm sorry for your grief. take care. I notice that you are entering your 6th month on MP, so it is getting close to the time to add a 2nd antibiotic. and you may wish to be making preparations, seeing your Dr for scripts and reading the details. see Where can I find phase two and three? all best, Barb ... |
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Bonnie2 Member in Phase 2
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I have to be honest,got to feelin so good am payin for it now,Hell half the time I ain't even usin that chair anymore,had to put some copper bracelets on to get grounded,get back on the perspective path,I'm out there acting a dang fool,lost wt.,bought new clothes,been shoppin to feel betterall the places I used to go are double takin,I'm 43,feel 21,actin 16,nowI just feel life is for livin,I was born a Ramblin Woman(allman bro's)and next fri.am doin a private political party,boy can't wait to see everyones faCES WHEN I come in the door and get up outa that diggity-dang chair,hanging out filled with love on a street called Haight on a warm san francisco night,death has followed me long enough,hasta la juego I say,June I was pikin out my buryin clothes,w/84 po2,now the po2 is 96,trevor,you are the God figure on my altar,you my love are the epitimy of higher conciousness,cuz I'm in heaven,and if anyone trys to pinch me to wake me up,woe be unto them,cuz I won't be fooled again(the who)I'm just everyday people(sly&the family stone)trying to stand(sly)Yeah I sent my voteto the green party today,they,we(I'm a green)are filing a complaint against big brother/and Bush's decision to allow now IRAN to have nuclear power,my grandson will be in that vietnam 10 years from now,People wake UP,HELLO Iran is a desert,what about SOLAR ENERGY or MAYBE the WIND,it constantly blows there,all of us that are being healed,are being healed to WAKE UP,LOOK UP,or we will be meeting the new boss,same as the old Boss.VOTE,get the commies outa office.thanx for lettin me vent many blessings upon this mp&pm,2bonnie outta here and almost onto phase 2honey child,crimson and clover over&over time woooooohooooooo,I've been told 6times now that I glow,must be the bright moonbeamsfor I surely am back,but not in Black,but rainbows..........later |
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Dr Trevor Marshall Research Team
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2Bonnie, As me ol' mate Bon would say - now is the time to "Let there be Rock" (scroll to the bottom of the page for the video...) "I think his antics 'preaching the sermon' in "Let there be Rock" from the AC/DC video best describe the Bon Scott I knew: an impish humor combined with a willingness to fearlessly challenge what he saw as even the most stuffy of society's institutions." |
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Bonnie2 Member in Phase 2
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trevor u r so................aaaahhhhhhhhhhhh,dirty deeds done dirt cheap was a favorite of mine,ours,we 7 girls in jr. high all wore blue jean jackets w/p.con the back for pantser chicks.whenever a new boy hit school one of us,well me,would knock on the door then I'd ask him to come 'round the house wit'me,yeah then the other six would do the dirty deed of takin his pants(and knickers)then run off laughing like heavenhahahahahhhahahaah,listenin to led zepplin -It's been a long time been a long timebeen along lonely lonely lonelylonely lonely time,yeah I personally am a stoner from way back(rolling stones)and right now I can't get no satisfaction,want it all, can you here me knockin(stones)in my younger years I got backstage in oakland cuz thats where mick&keith are every Halloween,got a special guest seal poster and e'rythang2bonnie out life is for livin,and I'm in a love the one your with kinda mood,trev.,u b the MAN!!!!!!!!!!!!!!!!!!!!! tell the truth it will set u freeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee bon bon out,got stevie ray vaughn on and I'm gettin up,hey look at little sister,dancin in the back yard,what the neighbors gonna think,who cares!!! |
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Bonnie2 Member in Phase 2
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well got a knew poem for jimbbb Now that I know your secret Ihave no more fear,tho'death was near your pockets of darkness have no hold over me,I'm now free,I have no shame thats why I'm the Shameless agitator,my guilt has allllllllll been released' yeah when livin you will all be finally deceaced then It's my generationand in my new found dualitywithin me,yeah I'll surely be free,and dead is what your kind will be so Bush if your in touch with god,and it's your friendyou claim to hear his voice,honey you better beg now a'fore you ain't got no choice and a n*** for a pope,but mother theresa said there's with love hope so i'm goin for what I know and honey thats for broke this is dedicated to you,who CHOOSE to step forward couragesely into the unknown,making visible,the invisablenow sow the seeds needed sown for I am one of the early onesweary of body,deep aching of soul,easy to recognize,I'm the one with a goal What a secret sadness do we all carry,the profound well of sorry,wondering will I be here tommorrow? Now the very fabric of our souls have been immersedin a treasureto deep to possibly measure life is not our penance,this endless earthly span,now seeming short cuz hey we can now we walk our final miles,upon this planet earth,better wake up,cuz its time for..............................................................REBIRTH YOU ROCK MY WORLD EVRYONE<BUT IT'S TREVOR THAT ROCKS MY HEAVENS......2bonnie out beyond the beyond slip kid,slip kid I was a soldier at 13,yeah I'm off to the civil war,no easy way to be free Last edited on Fri Jan 27th, 2006 09:23 by Bonnie2 |
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Bonnie2 Member in Phase 2
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well its me herxing,acting a fool again woke up good then danced all day,boy are the hips a'achin,knees,knees a'knockin,almost fell again,Ineed HELP,S.O.S,I don't wanna give up my music now that I can dance! I feel like I have these dance tickets all saved up,now I can shake that thang cuz I'm feelin better,someone tell me how to slow down!!!!!!!!!!!!!!!!!!!!! I don't have hypo-thyroid now but it sure feels like HYPER!!!!!!!!So PLEASE if anyone can tell me how to slow down please doam doin 20/beni/4hrs 25/mino/every other day Barb mentioned movin to phase 2,but I am still only tolerating mino every other day AND NOT 100mgs,so should I try going uP to 50 EVERY OTHER DAY????? 2bonnie out and sleepin Last edited on Sat Jan 28th, 2006 07:29 by Bonnie2 |
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Aussie Barb Research Team
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Bonnie to slow down the herx you can take the mino 25mg as frequently as every 6 hours if necessary..and you can take the Benicar 20mg as frequently as every 2 hours if necessary.. Phase 2 : you dont have to have the mino at 100mg to go to phase 2. where you are at is where you are at.. One thing at a time.. get this herx damped down and then we talk about phase 2 later.. have you had light exposure? let us know if you have any questions. Barb ... |
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Bonnie2 Member in Phase 2
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yes had major light exposure,I am an american indian shaman and did a yubas burial ceremony about 4-5 days ago and must finish wednes-thurs,so am sittin in the dark,but still can move with music,it makes the pain go away cuz I get in a zoneespecially the classic rock 60's-70's,can't help it,I am 1/2 latin 1/4 indianand well the U.K rocks my soul. |
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Aussie Barb Research Team
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Bonnie see What precautions do I need to take when I am going out or when traveling away? and Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar (using 40mg) whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal.. and some good information in PAIN CONTROL all best, Barb ... |
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Bonnie2 Member in Phase 2
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high there got asked to run for board of supervisors against the rep. that would make our co.demo,but at heart I'm a mean green machine talked to dr.on mon,says he will look up 2O.K,so I'VE been checkin it outI am so excited,was asked to the country golf course to run against this guy and STEVE WESTLEY was there he is the guy who is givin ARNIE(gov.ca)run for his money,he is ourcontroller,so he has been askin Arnie where,why the money isn't goin to the kids,took a headstart teacher w/me,then was asked to run here,guess I was born to get the nails outta the hands,down off the cross,put the nails in the wood from the cross...............................build a bridgeAND GET OVER IT HAHAHAHAHAHAHAHAH LIFE,what is life if you ain't here to make it better,like ole GEORGE CARLIN SAYS,might as well shoot'em in the head and stop the cycle,will look nthrough tapes to get the particular concert,think it's ON CAMPUS TOUR,feelin...............mgical,powerful,NO FEAR.............TREVOR U B THE MN...ohoh ppppppppppppppppppppppppppppppp.ssssssssssssssss<look downoh PPPPPP........SSSSSSSS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!oxygen was 1000000000000000000000000hhahahahahahahahahahahahahahahahahahahahhahah 2bonnie outoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxxoxoxoxohahahahahahhaah P.SS am doin d tests will go back to dr. 2/22,now ya all 2bonnie turns 8 yrs old on th 25 this month(44-actually,had a 20 ytear old ask me out,almost went.......but the braces threw me off.........,he calls me ALL THE TIME,if u have had similiar circumstances HHHHHEEEELLLLPPPPPP!!!!!!!!,he is 6'9",and it's been along time since I've been uh......MOUNTAIN CLIMBING )life is the absolute......................................................m.p,p.m |
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Bonnie2 Member in Phase 2
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hello high how ya doin,well I'm movin,the demo's picked me to run over another person(a man)yeah men know we get stuff done,thats their best qualityam tryin to do the 50mg/mino w/20-beni every 6 hrsevery other day,breathing got congested,but thanx to BARNEY'S lung exercises,am gettin lots phlegm upso hangin in the dark,wearin a moon stoneaaaaaaoooooooooooaaaaaaaaawwooooooohooooooooooooobut am gettin out at nighthey I heard that bein in your 40's in the U.S,was like bein in your 30's with the young men,I'm definetly finding out that going out at nightwhen you've been on a death bed,had to tell a family member "if every time u come to my house,u r gonna weep,then stay homeand I haven't decided what color I want to be partied over,so "don't bring me down----on a warm san francisco night,cuz.....I'll be feelin love on a streeet caalllleeeddd hhhaaaiiigggghhhttt,It's My Life And I'll Do what IIIIIIIIIIIIII wwwwaaaaannntttt,and that ain't dyin just yet(The Animals)....let me know if tryin the up on the mino sounds good or........thanx 2bonnie |
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Aussie Barb Research Team
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Bonnie You may send the Questionnaire in when you are ready.. doing the Mod Phase 2 would still allow you your lifestyle. take care. all best, Barb ... |
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Bonnie2 Member in Phase 2
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2bonnie here,well everyone I know I have been missing in action,but am doin actions so thats a definite gooooood thang.anyhoooooolivin the lifela roca,but am feelin so much better am stickin to the diet,meds ect.but have and are attracting men (boys actually-wantin to b men)ladies what do I do?6years is a very looooooonnnnng lonely lonely.................time yes it HAS.I feel invincible,found my wonder woman pez dispencer,been tryin not to dispencebut........doin mino25-12/beni40-6,slow steady,got tests done on 28th-feb. for d's,will know in wk or so,but my oxygen is holding steady at 100000000 Trevor u b the greenman,god the man,the light,the mysteries,the universe all in one AND a bag of chips my friend,yes you are alllllllllllll thaaaaaaaaaaat gggooooood buddddddddyyyyy.Will discuss more w/phase 2 w/ Dr. after HE looks into it,got him kinda astounded I think,actually hardly ever use the chair anymore,no oxy @ night(that my dears is it is a steady 100 ahhahaha)so I am doin whatever,whereever,whenever however.....get the point!!!??????It life is worth livin to you then just DO IT diggity dang dog it,put it in your head,MAKE IT HAPPEN,life grows regardless,it the resistence within that sheds no light,so light it up!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!2bonnie out(but never to b down again,believe that allllll the way to the bank.p.s how do u get rid of younger men?Not ALL of them just ahhhh some??????????????? |
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Bonnie2 Member in Phase 2
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The Man whispered,"Goddess speak to me." and a meadowlarksang,but the man did not hear. SO,the Man YELLED,"Goddess Speak to Me!" And Thunder Rolled across the sky. But the Man did not listen,the Man LOOKED around and said,"GODDESS let me see you!" And a star shone brightly,but the Man did not notice.and the Man said,"Goddess show me a MIRACLE" ANEW life was Born,but the Man did not know,so the Man Cried out in despair,TOUCH ME GODDESS and let me know that you are here- Whereupon the GODDESS reached down and Touched the Man,BUT the Man........Brushed the Dragonfly away..........and moved on *MORAL* DON'T MISS OUT ON A BLESSING BECAUSE IT ISN'T PACKEDGED THE WAY YOU WANT OR EXPECT. 2BONNIEDx:Sarcoid97/diabetic anxiety wtloss bad pain/ O2 2L sleep beni40mgQ6H June05 /NoIR/avoid light&D/ avinza percoset quinine magnes ambien/ 1,25d-133.3/25-16.9/tested aug16/05 orig.#25-33.7/1,25-49.5/taken3/05/fibromayalgiacardiac herx Nov07 2bonnie resuming MP below Nov08 back, better replay |
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P.Bear R.N. Inactive Staff
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Just to let everyone know. Bonnie has moved to Redding, further north in California and is currently trying to persuade a local doc into restarting the MP with her. She is attempting to get a free web based e-mail so she will be to log on to the site with her 2bonnie at the local library. ( She can't remember her verify code, and the old E-mail is defunct). In the time she was on the MP she was able to get off the oxygen and out of the wheelchair, but the past year has been hard on her health (off the MP due to her circumstances) and she is looking forward to getting back on track. best, P.B. |
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2bonnie2 Member
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2bonnie's posts hello 2bonnie here ,although it may seem that I am new as a member,i am not.my original handle is 2bonnie,now 2bonnie2.It feels good to b back.I had lost the dr. I had and was franticly looking for another.I am now living in redding,ca. and am most happy to report their is a very awesome pulminary dr.here who will b monitoring me.It has been very scary 4 me but I am now getting ready to make that committment to recovery.I was truly a wonder as how well I progressed before.the dr. treating me now was amazed to see results from my test before to now.before starting in 2005.I had done only 8 months of the protocol and it brought me from being on oxygen and 3rd stage sarcoid,wheelchair ridden to now walking about w/out assistance from wheelchair or oxygen,and in a remission.my xrays were fabo It is all so surreal to b able to breath,and xmas shop.my funtions are low,my d level is 66 but my hopes r high,its good to b back,keep your heads up,its allllllll good from here.I am asking also for any donations of old glasses ect. from any who no longer needs thereshappy holidays all,theirs so much to b thankfull for |
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Dr Trevor Marshall Research Team
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Good to have you back, 2bonnie. |
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P.Bear R.N. Inactive Staff
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Strong work finding your new doc! Good luck, P.B. |
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Foundation Staff .
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Hi Bonnie, Welcome back. We're glad you posted. Before your next post, please add the required signature line. In your next message, please add the pertinent details required so we can better assist you. Thank you. You will need to begin at the beginning so I'm posting you our basic info for new members. Before you begin the MP, you must read and thoroughly understand the Phase One Guideline (print it out so you can refer to it often) and review the items on this checklist. The second and third phase guidelines are available to study participants upon request at completion of phase one.Your physician has access to all guidelines in the Private Section for Health Professionals. Our study site is the only source that is certain to have reliable information about the MP. Do not assume that your doctor knows all about the MP because s/he has other patients on it or is willing to study it. You must educate yourself, using the study site, to ensure the MP is followed correctly. Please note: -It is the patient's responsibility to see that the prescribing doctor is following the MP correctly. -It is the patient's responsibility to see that the prescribing doctor understands the effectiveness of the MP and the dangers inherent in deviation from the guidelines. -Combining other protocols with the MP will not work and can lead to dangerous immunopathology. Components of other protocols or alternative treatments such as (but not limited to) supplements, vitamins, glyconutrients, rife machine, infrared sauna, SAD light, chelation, etc are all contraindicated. Many medications must be avoided on the MP. Be sure to inform study site Staff of all medications and supplements (both Rx and OTC) you are taking. You said your "d level is 66" so I'm assuming that is the 1,25-D. Because vitamin D is immunosuppressive, it's important that you assess your 25-D also. You will need to avoid vitamin D supplements (multivitamins, any kind of fish oil, Omega-3 capsules) and all foods naturally high in vitamin D to bring 25-D down to a therapeutic level of 12ng/ml or less. You may post a request for sunglasses in Used Sunglasses From Other Members. Ordering information is in Protecting Your Eyes. Avoiding sunlight exposure is usually necessary to some degree. Before you begin to do that, please read Should I avoid sun exposure and vitamin D while I'm waiting to start the MP? Your health care provider can communicate with other medical professionals using the MP by posting in the Private Section for Health Professionals. S/he will be interested in the Papers for Physicians, the Letter of introduction for your MP supportive doctor and the science DVDs. You may encourage him/her to call or email Dr. Marshall if needed (contact information is on all his professional papers). Presentations by experts, tutorials about the MP and testimonials by recovering members were videotaped at our 2005 and 2006 International Conferences. Click here to obtain these informative DVDs. Everything you need to know about the Marshall Protocol is in these two forums: Essential Info About the MP and Marshall Protocol FAQs. Please refer to them often. Folks who chose not to become an active participant on the study site are not officially on the Marshall Protocol because it is still in the clinical study stage and there are no physicians yet certified in the practice of the MP. MarshallProtocol.com is a huge study site, containing over 130,000 items. New visitors can only view a small fraction of the site because over 2/3 of our membership report in the Phases Two and Three Forum which is hidden from public view. Anyone in phase 2 or 3 who has not requested access to this forum by completing the MP questionnaire, is missing a wealth of information and support. The Marshall Protocol is a serious and lengthy commitment which should not attempted without fully understanding it. Should you decide to pursue treatment with the MP and wish our assistance, let us know if you agree with the Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol which are required for participation in our study and counseling on this study site. Your supervising doctor is responsible for your welfare. This study site acts in an advisory capacity only. All guidance given on this study site is based on the understanding your doctor supports participation in our clinical study and has given permission to follow our recommendations. Please keep your doctor informed of your progress with regular reports and do not hesitate to contact him/her with any concerns. The MP has an excellent safety record but it is still an experimental treatment plan. Many folks who are very symptomatic or who have been ill for a long time are doing well on the MP. But you should know that if symptoms are extremely debilitating or vital organs are severely compromised, it may be very difficult or even impossible to tolerate the immunopathology involved in the healing process. Patients should be aware there is a rare possibility that immunopathology will provoke a serious adverse event, especially if the disease process is well advanced. To ensure your safety and provide study data, we expect members (even those who think they are doing well independantly), to post a brief progress report weekly (more often only if not doing well) so Staff can catch any problems early and have details of past responses to provide effective assistance. It is important that you report all pertinent details, even those that might seem embarrassing. Be sure to notify staff before you take any action that is unfamiliar to you. Staff usually respond within a few hours but we ask members to give us more than a day to answer time sensitive questions. In phase one, you will be expected to learn to recognize immunopathology and how to manage your immune system response with medication management techniques. Knowing how to manage the MP independently on a day-to-day basis will serve you well should an urgent situation occur. As long as you are on the protocol, it is essential that you continue reading the study site regularly because important new information is frequently posted. Because the increasing volume of requests for assistance is threatening to overwhelm our small staff of volunteers, before you post a question, we ask that you type key words into the search feature of this site or an Internet search engine. This is an important skill to learn so that you can continue to help yourself as you progress on the protocol. Be sure to click on all the links in our responses to you. We look forward to following your progress on the MP. Best, Meg |
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Foundation Staff. .
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I hope everyone will respond to the following message from our survey team and participate in the survey/study. Thanks, …Belinda “You have been selected to participate in a very important study on the response of "Autoimmune" conditions to treatment with the Marshall Protocol that we hope to have published in a peer reviewed journal this year. The data will also be extremely important to have for the ARF sponsored Vitamin D session at the International Conference on Autoimmunity in Portugal in September. Joyce Waterhouse, PhD, is leading a team of volunteers who are analyzing the data. The team also includes myself, Paul Albert and Tom Perez. It is important that we have as high a response rate as possible, so everyone who has one of the selected Autoimmune conditions is needed. Your identity will be kept anonymous when the results are published or presented and will not be shared beyond those people on the research team who need to see it. You can read more about it here: IMPORTANT - Survey Deadline Approaching - Dr. Marshall's Perspective. But if you don't have time to read all that, you don't need to. If you have a previous version of the survey, don't answer that one, since we would rather have you obtain a newer version of the survey, in which a few refinements/corrections of wording and instructions have been made. Instead, email me and I will send you the new version. If you already returned the survey, let me know, since it might have been lost in transit or misfiled. We have decided that for those people, who don't have the time/energy etc.., to read and fill out the survey right now, we will give them the opportunity to do it by phone. And if you only have very little time, we can keep it as short as a 10 minute conversation and cover just the most essential questions. Email me and we can arrange for me to call you (or if you'd rather call me, that is O.K. too). We need your responses by March 9th. Thanks very much for your cooperation. Dr. Marshall says: "This survey/study is extremely important and I hope you will do your best to help with this." So, please email me and we can arrange your written or phone survey. Even if you are not planning to participate, we would still much appreciate a brief email from you so we know if you are still on the MP and that you read this message. Amy Proal amy.proal@gmail.com” |
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Aussie Barb Research Team
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2Bonnie is xenaspower at the CureMy site greetings, I am not new to the mp,in fact I first got involved in 2005.I was on oxygen,stuck to a fifty-foot hose and in a wheelchair. My persona then was 2bonnie.The mp had only about 4,000 members. After only doing the mp for about 1 year,I had to quit due to personal reasons,moving about for the last 2 years I have settled down in the redding,ca area,finally finding a Dr. that would help me,I am healing from sarcoid. I say healing because I have been on beni now for a few months,living w/o sun,and watching my diet,but the most amazing thing is that my pulmonary Dr. got my med records from where I lived before and doing all of the function tests to see where I am,it was discovered that my lungs both looked better, actually improved.After so many Dr.'s turning me down,this Dr. agreed that this was the reason for my improvement and that the mp appeared to have very interesting concepts on the healing of the effects from the disease.So glad to be back and the better for it xenaspower hi there I too have sarcoid.I am 46 now and was diagnosed in nov. of 1997.I found the mp in 2005. I was on oxygen and in a wheelchair because my breath was so low,my oxy level was 84,looow.Anyway I did the mp for just a year and got off the oxygen and sold that wheelchair Due to personal reasons I had to put the mp on hold but have found a Dr. in the area where I live and am looking forward to regaining my healing.Because you are new to the mp let me assure you this will change your life! In fact your life will be on reset! Yes you will get uncomfortable the first year or so but my dear that is the mp killing all of the nasty little buggers that want to hurt you I just cannot recommend this mp enough,believe me,I don't know to what extent sarcoid has come into your life,I have shared my experience,don't wait,being unable to do the simplist of things is such a blessing and it is a blessing that you came across this site,web md would have you believe this goes away,it doesn't. I can't advocate the mp enough this IS your LIFE,good luck,we are all here for youxenaspower |
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