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Leesa's Progress Report

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Leesa
Member in Phase 3

Joined:	Mon Oct 31st, 2005
Location:	Kingwood (Houston), Texas USA
Posts:	147
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Posted: Mon Jan 9th, 2006 20:35

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January 9, 2006
previous posts for continuity.
Benicar 40mg Q6H and Minocycline 25MG Q6H/ 2, 8, 2, 8,/day 1

I am taking the minocylcline now because I was taking 150MG a day for the past 2-3 weeks, due to the fact that I felt kind of cruddy as I weaned off the methotrexate. I had a huge family vacation and the minocycline helped the symptoms of the sarcoidosis feel better.

I took my first benicar and mino at 2 am and then 8am and then now at 2pm. I maybe felt a bit flu like in the early am, hard to tell as my twins vomited yesterday and I also could have been a bit nervous. Other than that, I feel a bit light headed with hot flashes and that is it! So far so good.

Emotionally today I am a bit nervous, this is going to be a long haul for me and my family. I am ready, but today a bit more anxious than I wish to be.

Should I stay at 25mg Q6H tomorrow or go to 25mgQ8hrs?

I have a ton of questions: I did not cover the windows in my kids' rooms cuz I wanted them to be "as normal as possible" and it is less than 30 lux in the room with the 2" wood blinds shut. But today as I was putting laundry away, I decided that I should put ready shades in there too, just to be safe....??? Advice?

If a food has sunflower oil on the package, does that mean I can not eat it? Can I not eat all baked goods with egg yolk in it, even if it is a small amount? What if the label of a package says folate....does that mean you can not eat it or only if it is NOT naturally occurring folic acid?

Can I exercise at all? THIS IS REALLY IMPORTANT for me. Remember, I was a marathon runner prior.....can I walk. Our family has been taking a walk every evening after it gets dark, is this OK? Are street lights a problem (they are less than 30 lux)? How about a Yoga video or low weights with a video? (Would I have to wear my NoIRs while doing this?-even if really far from TV)?

Do you have to wear NoIRs when watching all tv or looking at the computer? What if the TV or computer is on in the room and you are not viewing it?

Leesa

____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)

Aussie Barb
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Posted: Mon Jan 9th, 2006 21:31

Quote

Hi Leesa

Welcome to MP.. Thank you for posting your details. all helpful.

You should find that as you gain experience, and understand more what you are doing, that you will feel more settled. similar to beginning anything new.

and just as you worked out the optimum mino dosing before the Benicar, it is time to assess your optimum dosing now to achieve tolerable herxing with the Benicar..

To assess your requirement to hold the herx at tolerable.. you can take the mino 25mg.. wait and see how long that will hold you at tolerable. no pushing to go beyond tolerable..

Maybe it will last 6H or maybe it will last a little longer... or even last for 12H. however suits you is what you follow.. you follow the lead of the herx..

kids' rooms: For those who are very ill, Dr Marshall says it is better to shut out all Natural light and use incandescent lights. see AVOIDING SUNLIGHT and BRIGHT LIGHTS for full information..

To increase your chances of success with the MP, you should avoid unnecessary exposure to daylight. Only those who are very symptomatic need to 'live in a cave' in order to reduce intolerable symptoms. Those who are able to work or attend school have managed to progress on the MP even though that progress might be slowed down a bit by the increase in 1,25-D generated by limited exposure to daylight or bright lights.

Natural light > protect skin and eyes..

Artificial light > protect eyes / not skin..

TV computer: re distance, use your discretion. as above. you will know what you can bear and what you cant..

Do you have to wear NoIRs when watching all tv or looking at the computer? yes

What if the TV or computer is on in the room and you are not viewing it? no.

Foods: see Why should I avoid folic acid supplementation?

FOODS TO AVOID

Exercise: Are there any Guidelines on Exercise & the Marshall Protocol?

GUIDELINES FOR EXERCISE

All this Essential Information is in ABOUT THE MARSHALL PROTOCOL and all links alphabetised in the ABC of MP

all best, Barb ....

Leesa
Member in Phase 3

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Location:	Kingwood (Houston), Texas USA
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Posted: Wed Jan 11th, 2006 02:02

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Benicar 40mg Q6H and Minocycline 25MG at 2am/day 2 (CST)

(I am taking the minocylcline now because I was taking 150MG a day for the past 2-3 weeks, due to the fact that I felt kind of cruddy as I weaned off the methotrexate. I had a huge family vacation and the minocycline helped the symptoms of the sarcoidosis feel better.)

I did fine today....in the middle of the night until I got up and showered, I felt very flu like, cold but sweaty and my body ached. My knees which I never have trouble with really ached. I got up and felt better, still achey, but very tolerable and my knees still hurt. Since Barb said To assess your requirement to hold the herx at tolerable.. you can take the mino 25mg.. wait and see how long that will hold you at tolerable. no pushing to go beyond tolerable.. Maybe it will last 6H or maybe it will last a little longer... or even last for 12H. however suits you is what you follow.. you follow the lead of the herx.. I did that and I am still tolerating the herx.....so now what? I have gone 18 hours without taking a mino....should I still wait or take one? Maybe it is too late to get an answer tonight, I was a bit busy today and this was the first chance I got to sit at the computer :cool:

Please advise when you can AND THANKS!

Leesa

Last edited on Wed Jan 11th, 2006 02:03 by Leesa

Aussie Barb
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Posted: Wed Jan 11th, 2006 02:24

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Thanks Leesa

If you are comfortable enough to sleep, you may wish to go on without taking the mino dose.. whatever you can manage without pushing the boundaries of bearable..

You can have the dose and the water beside your bed, in case you need it, or you can take your Benicar to 40mg Q4H if it becomes necessary, may settle any symptoms..

let us know if you have any questions at any time.. cheers, Barb ...

Leesa
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Posted: Wed Jan 11th, 2006 03:10

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If I can make it- then do I start the mino again in 48 hours?

Thanks for being so quick, you are wonderful!

Leesa

Aussie Barb
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Posted: Wed Jan 11th, 2006 03:44

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Thanks Leesa

you can do. some try the 3 day dosing.. see I'm eager to get well. How can I speed up my progress on the MP? but dont at any time push to try to tolerate a herx.. is best to keep it at tolerable.. and it may take some practice to know what tolerable really is.. taking another dose of 25mg in 48H may be enough time for a start.. one moment at a time.

Barb ...

Leesa
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Posted: Wed Jan 11th, 2006 22:05

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Benicar 40mg Q6H and Minocycline 25MG almost 48 hrs ago-day 3

Thanks Barb!

I have a quick question that will help me immensely: I have a family of 5 and lots of people who will be coming to visit and play (outside) with the kids and/or take them to school etc. My biggest difficulty so far is what do I do to open the front door to let others in and out and what do I do when my kids are gong in and out and the door is open (it is almost always very sunny here in Houston). I do not want to be a freak-but I panic every time the door opens and I am in the room. It takes a long time for a lot of little kids to go in or out....

Is the the place to post this question or on the on **General Discussion of the Marshall Protocol**

This is a silly question, but I am not sure what to do............What have others done.

Leesa-Mom of 3 little busy kiddos

Aussie Barb
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Posted: Wed Jan 11th, 2006 22:27

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Thanks Leesa

Any questions relating to yourself and your MP can now be asked here at your progress report or on the General Board if you choose. thanks.

Having experience of family and doors I understand what you are saying re your need to be limiting your light exposure and your anxiety over an open door.. .. others may have suggestions also..

re when others are opening the door.. what comes to mind is there a door that can be closed between where you are and the front door. or to explore the possibility of a room divider / folding screen, or a pretty but dark curtain that can be placed in position.

when you are opening the door yourself, glasses and standing behind the door. and..

The other thing is that I have learnt re those who knock on the door etc.. when someone knocks on the door, it does not necessarily mean that the door must be opened immediately.. I peek to see who it is, and some may have an intercom,
and I decide if I choose to open the door and interact or not. same as the phone.

also with Family and friends.. is there another door that they can be directed to.. / can learn to come in and out of that will not expose you to as much light..

as per my post above: "Only those who are very symptomatic need to 'live in a cave' in order to reduce intolerable symptoms. Those who are able to work or attend school have managed to progress on the MP even though that progress might be slowed down a bit by the increase in 1,25-D generated by limited exposure to daylight or bright lights" <

cheers, Barb ...

Aunt Diana
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Posted: Thu Jan 12th, 2006 01:05

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Hi Leesa,

I can certainly understand your problem...the light from an open door can be excrutiating once your light sensitivity has really set in.

I have an idea....there's a kind of screening that you can buy at garden centers that is green and fairly easy to work with....we use it for creating shade in a very sunny part of our garden where I want more shade...it cuts out about 90% of the sunlight. I think you could staple it to the outside of your door or have it attached with battens and use it as a curtain....maybe overlap two pieces so people could sort of walk through it as if it were a tent opening or drape. It isn't too noticeable and would only be temporary. the kids might even think it was neat. Maybe you could use it inside the front door if you didn't like the way it looked on the outside.

Just a thought. I live in Massachusetts so I don't have quite the same problem when my door opens...but it can still be bad.

____________________
Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25

Leesa
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Posted: Sat Jan 14th, 2006 16:38

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Thanks Aunt Diana, I am going to sew a blackout curtain for the back door today! Got the material and the tension rod. HOPE IT WORKS!

Another question for you all........I read and read and read about the foods you can eat and not eat. I have been drinking Soy Dream Original Classic (in my smoothies and on my cereal and adding it to my cooking), it has no vitamin D....however this morning I noticed that it has Folic Acid in it 15%, so that means that I should NOT drink it right? http://www.tastethedream.com/media/SDnutri_O.jpg How about Rice Dream-no D and NO folic Acid?http://www.tastethedream.com/media/RDnutri_O.jpg

I can not eat anything that lists folic acid on the ingredients, is that right? I am sorry, I am not positive....if it says folate it is naturally occuring and folic acid it is supplemented?

Leesa

Leesa
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Posted: Sat Jan 14th, 2006 16:49

Quote

Benicar 40mg Q6H and Minocycline 25MG QOD

Day 6

Benicar Q6H is going well

Mino QOD now for the second time

Herxing? You tell me (please): I am more tired than usual, I am sore all over-kinda flu like, my knees hurt a ton (can't kneel on them) and I DO NOT have bad knees. I am VERY dizzy every time I stand up fast I get dizzy and see fuzzy lights before my eyes (NO LADDER climbing for me). I am a bit more fatigued than usual, proud of myself, I took 2 naps!!! (I never nap)

Am I doing OK? Should I try to stetch to 3 days at some point?

Please advise?

Leesa-keeping a positive attitude!!!

Leesa
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Posted: Sat Jan 14th, 2006 16:52

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I just want to share this will you all. I sent this email to my family and friends this week. It seems to have been well received! I was trying to give them ENOUGH info without giving them TOO much to overwhelm them or turn them off!)

What do you think??????? Here goes the letter:

Friends and Family,

I wanted to let you all know that I started my treatment and all is going well. My house is all prepared by having all the windows covered and all of the lights are dim. I have started my meds and I am feeling the effects of the treatment-which is great! It is very hard to stay home all of the time, but, for the first 6 months I am only going out when it is necessary. I am in very good spirits most of the time, but know that this is going to be a long and difficult time for all of us in our family. One day at a time......

What do you do when a friend or family member is suffering from a chronic disease and/or undergoing treatment?
It is hard to know....many of you have asked me this question; "what can I do? " These are some of my suggestions:
I wished that I had know some of this while my Mom was suffering from her chronic back pain and Fibromyalgia, Mom-this is dedicated to you! I hope that this helps some of you know what to do with others now or in the future too!

For starters, GET INVOLVED, If only in a small way, know a bit about MY disease SARCOIDOSIS and MY treatment. I will give you more info today, please read the attached info, you do not have to be an expert, just give it a quick once over!
If you ask how I feel and I say not too good etc....just know that IF I FEEL BAD, it really means that I am getting better (for more explanation go to http://www.marshallprotocol.com/forum2/1826.html
Do not ask what you can do to help, unless you really mean to help! It is okay to not offer help, we are all busy!

Come to visit-invite yourself over, but please remember that I have an auto immune disease and my immune system does not work like yours, so I am fighting each and every day an uphill battle to get better. I WILL get better, but it will take time and the one thing that I need to do is rest more frequently than the norm. This is very difficult for a marathon runner and mom of three preschools that are home full time! So.....what I am trying to say, is MAKE YOURSELF at home, pitch in and help clean up after the kids playtime mess ( or if if you bring over a playmate for the kids) or if you have dinner over, please help clean up. REMEMBER- I MAY NOT LOOK SICK OR TIRED, but I am, please help out.

Call first so that you can see if I feel too sick for visitors or if we need anything-I Remember I can not run to the store for things anymore.
Come in and out quickly-DO NOT LEAVE THE DOOR OPEN LONG, remember I am trying to avoid the sun.
Take my kids outside! In the summer, please drop over to swim...Audrey and Edie are great swimmers and would love to join you for a swim.
Invite Patrick and the kids out to play or over to your house! They do not have to stay out of the sun/bright lights!
Help Patrick out, he is doing alot of what I used to do!
Help in a ton of other ways: Thanks to my neighbor Maria for taking our dry cleaning over and to Lisa and Carrie for taking my kids to preschool twice a week. Thanks to Kristin and family for making plans to come over for play and dinner weekly, Thanks to Dianne for being willing to help me grow spiritually by holding a Bible Study in my home! YOU ARE ALL WONDERFUL!!!
Do not feel sad for me, a year ago I thought that I would have this terrible disease forever and now I KNOW THAT I WILL BE CURED!!!!!!!!!!! What a miracle! God is good! It will be a long road but in 1 to 3 years I will be fully cured! I hope to use this illness to become a better person, wife, mother, friend and servant to God. This treatment is sure to teach me to slow down (something I am not good at right now! Maybe in the future I will help someone else with this type of a disease find the strength to go through this treatment and become cured!!
Following and attached is more information on my disease and treatment program, for more details you can visit http://www. marshall protocol.com or to follow my progress report go to http://www.marshallprotocol.com/forum20/5278.html

All info below is taken from http://www.marshallprotocol.com:
What is the Marshall Protocol?

The Marshall Protocol is a curative treatment for diseases having a TH1 type immune response. Patients having been diagnosed with one or more of a wide range of diseases have been successfully treated using this protocol. It works by enabling the immune system to destroy the intracellular bacteria that are thought to be the root cause of the illness.

How does the treatment work?

An ARB (angiotensin II receptor blocker) medication, Benicar ®, is taken, and sunlight, bright lights and foods and supplements with vitamin D are diligently avoided. This enables the body’s immune system, with the help of small doses of antibiotics, to destroy the intracellular bacteria. It can take approximately one to three years to destroy all the bacteria.

How long does the MP take?

Typical Timelines

Based on our observation of the progress of our initial cohort of sarcoidosis patients, at about 3 months into therapy, most subjects have achieved sufficient symptomatic relief to guarantee their compliance with the remainder of the antibiotic regimens. At about 6 months, most subjects report relief from fatigue, somnolence and insomnia, and report that their memory is returning.

Useful bloodwork markers are 1,25-D, Alkaline Phosphatase, Triglycerides, and C-Reactive Protein. All should have started to improve by month 6. By the end of the first year, imaging should show reduced adenopathy, and most bloodwork will have returned to within normal range.

Even though most subjects have achieved 'remission' at around 18 months, we currently anticipate that antibiotic therapy will need to be continued well beyond that, until all species have succumbed to the antimicrobials. "In any case, the bad news is that you are likely to have herxing for 18-36 months as you work through the phase 3 antibiotics. The good news is that you have been through the worst of the herx by the end of the first 12 months."

Why do I feel bad: This phenomenon is known as the Jarisch-Herxheimer Reaction (JHR) and is often referred to informally as Herx. JHR is believed to be caused when injured or dead bacteria release their endotoxins into blood and tissues faster than the body can comfortably handle it.[3,4,5,6,7} This provokes a sudden and exaggerated inflammatory response and is associated with the systemic appearance of cytokines. “The JHR is an elegant model of the human cytokine cascade in events resembling sepsis…” patients have also experienced this effect when treated with the appropriate antibiotics. JHR, however, is not reported in normal, healthy individuals who are treated with antibiotics for sepsis. In Sarcoidosis patients, the Herxheimer reaction seems to be a valuable indication that an antibiotic is reaching its target.

Sarcoidosis patients report that a Herxheimer reaction makes them feel as though their disease symptoms have suddenly gotten worse. They report reactivation of previous symptoms and/or the exacerbation of presenting symptoms. Depending on the extent of the Sarcoidosis inflammation and the effectiveness of the antibiotic [16,17], the onset of JHR is from 1-2 hrs to10 days after the antibiotic/s are administered. The intensity of the reaction is dependent on many factors; location of the inflammation, appropriateness of the antibiotic/s, the antibiotic dosage, the presence of immunosuppressants, the level of dihydroxyvitamin-D [18] and the prophylactic dosing schedule of the Angiotensin Receptor Blocker (ARB) used to interrupt the inflammatory cascade [19].

Herxheimer symptoms wax and wane with antibiotic administration and MP patients report that they continue to experience this phenomenon as long as effective antibiotic therapy continues. Trial and error with carefully selected antibiotic combinations has reportedly provoked a resumption of the JHR when symptoms have subsided. Since Sarcoidosis patients are believed to have acquired many different species of mycobacteria over a long period of time, the effectiveness of an antibiotic probe with a positive JHR seems to demonstrate the presence of another species or of bacteria previously hidden within poorly perfused tissues.

Herxheimer symptoms may be subjective or objective, or both. The most common symptoms reported by Sarcoidosis patients include increased fatigue, joint or muscle pain, headaches, skin rashes, photosensitivity, irritability, paresthesia, dizziness, sleep disturbances, asthenia, muscle cramps, night sweats, hypertension, hypotension, headaches (especially migraines) and swollen glands. Also reported are heavy perspiration, metallic taste in mouth, chills, nausea, bloating, constipation or diarrhea, low grade fever, chills, heart palpitations, tachycardia, facial palsy, tinnitus, mental confusion, uncoordinated movement, pruritus, bone pain, flu-like syndrome, conjunctivitis and throat swelling. Physicians have managed these JHR symptoms in MP Sarcoidosis patients with the use of an ARB and by decreasing the dosage or frequency of the antibiotics.

The Marshalls report that as the number of dying bacteria is reduced with subsequent antibiotic doses, effective treatment requires increasing doses and changing antibiotic combinations to continue eliciting a Herxheimer response. The presence of a JHR is seen as evidence of continuing elimination of these very persistant bacteria. Although the JHR is often unpredictable, they report that it can be managed with the judicious choice of antibiotic combinations, careful dosing schedule, tapering of dosing and use of an ARB to establish an anti-inflammatory blockade. The Marshall Protocol does not advocate eliciting a more severe JRH than a patient can tolerate in order to eliminate the bacteria and the antibiotic dosing is individualized to each Sarcoidosis patient.

CONCLUSION
In my work with Sarcoidosis patients, it is my experience that recovering MP patients understand and welcome the Herxheimer reactions even when they must endure temporary increased suffering. They accept it as the price that they must pay in order to get well and they even seem to find it gratifying to experience tangible evidence of bacterial elimination. The gradual resolution of their Sarcoidosis symptoms as the treatment progresses seems to be ample reward to persist with this sometimes uncomfortable treatment. Many MP Sarcoidosis patients say that their doctors were initially unaware of the JHR phenomenon. An increased awareness of the Herxheimer reaction by those who treat Sarcoidosis would seem to be of benefit to patients. Antibiotics then might be seen as the ally they are proving to be in fighting this often fatal disease.

Last edited on Sat Jan 14th, 2006 19:19 by Leesa

katydid
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Posted: Sat Jan 14th, 2006 17:59

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Leesa,

Just wanted to say thank you for posting that email that you wrote. If you don't mind, I'm going to cut and paste part of it to use for my family.

Great letter! Thanks again.

Kathy (katydid)

____________________
CFS.D's 12/05 25D-7, 1,25D-19,not Quest.Vicodin 10-325 1 PRN.Flexeril 10 mg qday.Westhroid 60 mg.12/27/05 Avoid sun,D Noir's.

Aussie Barb
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Posted: Sat Jan 14th, 2006 19:28

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Thank you Leesa

Your Letter will be a helpful resource for others. You are herxing. see HERXHEIMER REACTION
and you may wish to try extending your dosing to 3 days. should the herx be going toward intolerable at any time, you can try extra Benicar or take your mino dose sooner than planned.

no D and no added folic acid is correct.

good to see you have been resting.. all best, Barb ...

sunflower
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Posted: Sat Jan 14th, 2006 22:35

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hi leesa,

i just wanted to commend you on your very thorough letter to your friends and relatives. that took quite a bit of thought and straightforwardness, which i'm sure was much appreciated. with all that you have on your plate (3 little ones at home), i would also reiterate, with barb, that you really take it nice and slow and squeeze in as much rest as you possibly can. you have a wonderful attitude and support system and i have confidence you will just do spendidly

. God bless...sun

____________________
lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7

carol
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Posted: Mon Jan 16th, 2006 03:52

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Leesa wrote: I have been drinking Soy Dream Original Classic (in my smoothies and on my cereal and adding it to my cooking), it has no vitamin D....however this morning I noticed that it has Folic Acid in it 15%, so that means that I should NOT drink it right?
Leesa:

I seem to recall that soy CREAMER is not fortified like most soy MILK is, and the calories are not that different. It's been awhile since I used this, so don't take my word on it

, but it might be worth comparing the labels the next time you are at the market.

Congratulations on starting the MP.

Carol

Last edited on Mon Jan 16th, 2006 03:54 by carol

____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)

Leesa
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Posted: Mon Jan 16th, 2006 14:00

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Benicar 40mg Q6H and Mino 25mg QOD

Today is one week!

Had a huge Herx on Saturday early pm until Sunday (I slept until noon Sun-unheard of wi the the young kids). I felt terrible, all the things I mentioned before-flu like symtoms and my head ached terribly unless I had it laying dowm.

Felt better on Sundy afternoon; I did take 25mg of mino Sunday am. I was pretty crabby for a while during the day.I yelled at everyone and we very hard to deal with. My husband mentioned that maybe this was not for me that really hurt my feelings. The first hard day and he says that, not good. So, we discussed that he can not talk negative like that, he needs to support me and that I need to not yell at everyone and carry on. This is hard and I need all the support I can from my family and I too need to support them. I feel like I need a bit more support right now. I am a "talk" person, I really would like to have a support person via phone or support group......

I am having a HUGE problem with night sweats, I am seating so much my sheets are getting we and I am freezing all night long. Any tips???

Tomorrow I take my son to the doctor, my first time out in the sun-will cover up! I will let you know how it goes.

Last edited on Mon Jan 16th, 2006 14:18 by Leesa

Aussie Barb
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Posted: Mon Jan 16th, 2006 20:13

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Leesa

Phase One is the training ground.. and it will be the training ground re friends and family and relationships etc as well.. When you find that either you or the herx is intolerable, you can take measures to return to tolerable.. and if it is possible and is workable, it can be a good idea to involve partner/ family in reminding us that maybe we need to take something now? ... what is it we are wanting to take? our Beni? or mino? etc?

see also My Herxheimer reaction is too strong. What should I do? ..
Do not hesitate to use any of the meds adjustments at any time.
Check these options one at a time to assess and adjust your own situation.

and What precautions do I need to take when I am going out or when traveling away?
Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal..

contact: You may be able to pal up with another or other Members for company.. let us know if you want some help there.. You may wish to make contact with others in your area by private message.

re sweat and wet sheets. have you tried using lambswool next to you.. lambswool absorbs moisture without feeling wet. others may have other suggestions.

all best, Barb ...

Leesa
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Posted: Tue Jan 17th, 2006 05:15

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Thanks for leading me to yet more GREAT information! The info seems to sink in much more when it is pertinent at the time! The thing that is hard for me is when does tolerable become intolerable? (Remember you are talking to someone who can run 26.2 miles and has had a twin pregnancy, I can really push it if I need to!!!

)

This info brought me much comfort: Don't ever hesitate to make these adjustments to keep all Herxing at a tolerable level for you. Do not 'push' the intolerable Herxing. Dr Marshall wrote: There is no point in pushing your body too hard, and you might do damage to it.

You will not be slowing your healing by keeping Herxing tolerable. Tolerable Herxing is essential for Safety and Efficacy of the MP.

I guess on Saturday, instead of feeling really bad and sleeping from 8pm to noon the next day...I should have tweaked my meds. That was intolerable? Correct?

Looking forward to learning more!

As always grateful,

Leesa

Aussie Barb
Research Team

Joined:	Thu Jul 22nd, 2004
Location:	Australia
Posts:	19547
Status:	Offline

Posted: Tue Jan 17th, 2006 05:37

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Thanks Leesa

Sometimes we can sort of sink into a herx and we dont remember that we dont need to do this. You may find that your partner or Family may pick up first that your condition or behavior or the herx is intolerable before you do.. and if it is possible and is workable, it can be a good idea to involve partner/ family in reminding us that maybe we need to take something now? ... what is it we are wanting / needing to take? our Beni? or mino? etc? always learning and gaining experience..

^re "should have tweaked my meds?..." <<

perhaps "could have.." is better.

all best, Barb ...

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