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RevDennis Member in Phase 3 
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from Benicar Revdennis Good Evening, Day 11 Benicar 40mg q6h Day 1 Mino 25mg q48h Previous reports at http://www.marshallprotocol.com/forum19/5216.html I added mino and midnight this morning. It has been a day.  I have had a lot of body pain but the biggest problem today has been that I feel washed out. I can hardly keep my eyes open and then there is the brain fog. This is my last post to this forum and I will repost this to the beni and mino forum. Eveything has been bearable, it just seems to have been a very long day. One day closer to being well.  RevDennis Last edited on Thu Jan 12th, 2006 04:38 by RevDennis |
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Aussie Barb Research Team 
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RevDennis welcome to Mino Forum.. if you need any extra help see the FAQ When and why should I vary my Benicar schedule? see also PAIN CONTROL and we are happy to assist at any time.. all best, Barb ... |
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RevDennis Member in Phase 3
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Good Evening, Day 12 Benicar 40mg q6h, Day 2 Mino 25mg q48h Got up this morning with a stuffy nose. Also I had major night sweating last night. I havn't really had that problem since I was on Prednisone. I have been pretty achey today but not too bad. The fog cleared from my brain and while I was tired, I was no where near as washed out like yesterday. I will go forward with my mino at midnight ... I mean right now. Nothing else really to report. We will see what tomorrow holds. One day at a time until I'm free of the disease. RevDennis |
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RevDennis Member in Phase 3
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Good Evening, Day 13 Benicar 40q6h Day 3 Mino 25q48h I took my second dose of mino last night at midnight and then forgot to set my alarm clock.  I woke up at 7:05 instead of 6:30 so I had to rush so I wasn't late to work. Fortunately, I only work til noon on Fridays. I was achey all over, especially in my back. My nose is back and forth between dry & stuffy and draining. This is a pain when your connected to oxygen. Also, I had a bit of coughing today and shortness of breath more often. I did not have the brain fog today like Monday. So far I am not having anything I can't handle.Well, have a great weakend everyone. RevDennis |
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RevDennis Member in Phase 3
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Good Evening, Day 14 Benicar 40q6h Day 4 Mino 25q48h Woke up this morning with a lot of body pain. The pain is more in my muscles than joints in my legs, back shoulders and neck. My gums were hurting also. The pain let up after about 2 hours and left me with a headache that was just in the background. Then this evening the pain came back. It is mainly in my shoulders and back tonight. Also, starting about 7 PM I can barely keep my eyes open. This is odd for me because I am more of a night person and don't go to bed till after midnight. It will be time for me to take another mino tonight at midnight so that will probably cause the pain to drop. Tomorrow is Sunday so I need to be in good shape but I may let this coming dose go 72 hours to see what happens. Especially since I am herxing tonight 48 hrs after my last dose. The more of these bugs I can kill the better right? Oh yes, I took my Blood preasure for the first time since being on MP. Since my first dose of prednisone back in 2000 my blood preasure went up and stayed. Last time at the dr's it was 143/102. Today ir was 118/78 with a pulse of 91. Just thought I would share that good news.Well, onward and upward! RevDennis Last edited on Sun Jan 15th, 2006 06:04 by RevDennis |
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RevDennis Member in Phase 3
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Good Evening, Day 15 - Benicar 40q6h Day 5 - mino 25q48h Dose 3 Last night my herxes started getting intense. It was time for me to take my 3rd dose of mino so I did and they lightened up within about 30 minutes. I slept all night and was achey when I got up this morning with a slight headache on the right side. About 11 am the pain in my back started coming back and it felt like a clamp was put around my chest and started sqeezing. It hurt and made me short of breath. I took my binicar at noon and it eased up I layed down around 1:30 and took a nap. I got up at 4pm and was achey with a headache. I took my benicar again at 6 pm and again the pain eased up.It is building again in my back right now but my head is better. I have to leave at 3 am to take my oldest daughter to the airport so she can go back to college. I hope I will feel ok by then. Still, with the pains today, I still have not come close to what I went through on prednisone. I am glad those bugs are dieing. Have a good eveing. RevDennis Last edited on Mon Jan 16th, 2006 05:44 by RevDennis |
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Aussie Barb Research Team
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RevDennis Thanks for posting.. you are experiencing the effects of your meds and you will learn to use them by adjusting them as required to achieve tolerable herxing. esp for the times you need it most eg Sundays.. also Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal.. What precautions do I need to take when I am going out or when traveling away? all best, Barb .... |
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RevDennis Member in Phase 3
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Good Evening, Day 16 - Benicar 40q6h Day 6 - Mino 25q48h I went to bed at 12:15 am last night and got up at 2:15 am in order to take my daughter to the airport to go back to college. There was little traffic on the freeway ( Houston word for Interstate highway) so I didn't have to deal with headlights. It was dark with my NOIRs on.  I got back by 4:45 am so it was befor sunrise. Went back to bed for a couple of hours, then I went to work. I amd still having all of the body aches and my gums and teeth are hurting. They are tolorable and seem to reach their height jst before I have a dose of Benicar to take so I just take them in 6 hr increments right now. Thats not too bad. I thought about waiting 72 hrs before taking my next mino but I think it is too early. I will wait until the herxes aren't as strong on the 48 hrs before I let it run out longer.Well, Have a great eveing or day depending on where you are at in this world. RevDennis Last edited on Tue Jan 17th, 2006 05:45 by RevDennis |
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Aussie Barb Research Team
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Thanks RevDennis By going to the 3 day dosing, some can have a rest from herx, but for some, the herxing can go into intolerable.. notes on tolerable: Don't ever hesitate to make meds adjustments to keep all Herxing at a tolerable level for you. Dont 'push' the Herxing. Dr Marshall wrote: There is no point in pushing your body too hard, and you might do damage to it. You will not be slowing your healing by keeping Herxing tolerable. Tolerable Herxing is essential for Safety and Efficacy of the MP. << do take care, all best, Barb ... |
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RevDennis Member in Phase 3
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Good Evening, Day 17 - Benicar 40q6h Day 7 - Mino 25q48h Dose 4 of Mino I took my mino at midnight this morning and went to bed. I woke up about 1:30 with my sinuses, face, gum and teeth all hurting. I slowly went back to sleep with it feeling a little better when I got up at 6:30. My leg muscles were a little tight and I was short winded even on my O2. I have not had much of an appitite today but I have eaten. This afternoon my feet and legs started feeling heavy, they did that when I was on prednisone. I am still having some problems being short winded. My stomach muscles are hurting tonight and so are the muscles in the middle of my back. I will be taking my normal benicar dose in an hour so I know that will help with these problems. On the bright side I am having herxes. So I am killing those bugs and the more bugs die the better I will feel down the road. Have a good evening, RevDennis |
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Aussie Barb Research Team
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RevDennis The aim or the key is to achieve and maintain tolerable Herxing (physically, mentally, and emotionally) by adjustment of meds dosing and schedule as suited individually to you within the guidelines and combined with the Essential aspects of diligently avoiding Light and vitamin D... << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you. As per my post above, please be careful not to push the Herxing. see My breathing is worse. What should I do? and Breathing Tips My Herxheimer reaction is too strong. What should I do? .. Do not hesitate to use any of the meds adjustments. Check these options one at a time to assess and adjust your own situation. If these above measures do not work and you feel that you are in an emergency situation, do not hesitate to seek emergency assistance. all best, Barb ... |
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RevDennis Member in Phase 3
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Thanks Aussie Barb, I am on O2 24/7 and at night I use a CPAP with O2 hooked up to it. With my O2 and at total rest my saturation is around 94% when I was at the drs a few weeks ago. If I move around, ie. walk, it drops to the low 80's or even 70's. I just take it slow and don't force it. My shortness of breath I mentioned was just a little more than normal with small amounts of movement. Fortunately I just sit behind a desk and work at a computer in an office by myself with no windows. For the most part now They bring all of the paperwork to me and I don't have to leave my desk. I do all of the bookkeeping and accounting. My problem probably will be knowing when a herx is too strong. I have a pretty high threshold for pain and my stubborness may be a drwaback for me. There, I admitted I might be stubborn sometimes.Thanks for giving me the added info. RevDennis |
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Aussie Barb Research Team
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Thanks RevDennis For those who have been ill for a long time and / or have had to bear hard disease symptoms, it can be difficult to define the line between tolerable / intolerable when it comes to herxing... and sitting at a desk can be a great masker of symptoms..... till you stand up.. this means that you dont have much leeway for safety with your breathing. Phase One is the training ground for learning to manage herx, and learning to adjust the meds is all good experience. see I'm eager to get well. How can I speed up my progress on the MP? unfortunately there have been Members who have ended up sitting on the sidelines because of toughing it out, so do please take care.. It can be a good idea to ask Family Members or friends to keep an eye out for you in this situation. all best, Barb ... |
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Morris W. Milnes Member 
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I want to encourage you to take care. I'm one of those Aussie Barb was referring to. I set goals for myself, where I would be with what dosage and I pushed hard to get there. I have a high pain tolerance too and since my lungs are the main things I am worried about I could easily ignore pain. In October of 05 I was exactly where I wanted to be. In the middle of October my Herx switched to my breathing and I was so far on antibiotics my herx was runaway and I refused to back off at first. I am now on Oxygen myself as of yesterday. I almost had gotton better to start modified phase 2 and got an infection that has taken me down hard. I am now taking disability and it gives me the oportunity to relax, stay home and try to recover and strictly follow the protocol. I just want to suggest that when you feel a lot of pain in a herx reaction and think "I can handle more of this" think how well you can handle it if it transfers to breathing difficulty instead of pain. I am currently very frightened but keeping the faith. Keep on Keeping on. Morris |
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RevDennis Member in Phase 3
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Good Evening All, Day 18 - Benicar 40q6h Day 8 - Mino 25q48h Thanks Aussi Barb and Morris for the help. I had a very broken up night last night. I kept having strange dreams and mouth pain. My alarm went off at 6:30am as usual but I was so tired. I had my wife call and tell my work I would be late. I was going to sleep a couple of more hours. I woke up three hours later, turned over and woke up another hour later. My nose was all stopped up so I got up and sat by my bed in my bedroom, my cave, for at least another hour so I could wake up. My wife came in and so we just talked for a while. No tv or anything else. I decided not to go to work today and just rest. I did wake up finally and I have had very little body pain today. I have coughed a bit. I laid down and took a nap this afternoon. It has been kind of a lazy day. I did get my personal taxes done and submitted so I did achieve something today. Well I will be taking another mino dose before bed tonight so lets see what happens this time. Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Good Evening, Day 19 - Benicar 40q6h Day 5- Mino 25q48h Dose 5 I took my mino dose this morning at midnight. I woke up quite a bit because of a stuffy nose. With a CPAP mask on that problem wakes me up. I got up at my usual time this morning. Awake unlike yesterday and I went in to work. I have felt fairly well today with a little bit of a chesty cough. Tonight my back is hurting a little bit. It just started. We will see what tomorrow holds. Good night. RevDennis |
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RevDennis Member in Phase 3
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Good Evening, Day 20 - Benicar 40q6h Day 10 - Mino 25q48h Opps - I made a mistake last night and put "day 5 on Mino and it was really day 9. Sorry. My back started hurting more just before bed last night so I took my next Benicar dose, it was time for it, and that went away in just a short time. This morning when I got up, 6:30 am, my calves were tight and my feet were tingling. This is a similar thing I had with prednisone. The doctor blamed it on vitamine B deficiency but it may just have been the sarcoid running amuck in a body with no immune system. So now the bugs are getting killed. Good. It hasn't really hurt, just something I notice in the background when I walk. My stomach muscles hurt some too. I have had the chesty cough off and on today also. Nothing too bad but I will continue on the 48hr dosing for now to make sure I don't have any problems before I let it go to 72 hours. My inclination is to want to move to the next step, but I keep telling myself, patience. It took me a number of years to get where I am, I can wait a little before I am better. At least I now know I will be better. Thanks to all that work and help at MP.cpm and the research center. RevDennis |
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Aussie Barb Research Team
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Thanks RevDennis, Not all are able to manage 72H dosing. and it is not necessary to do so.. if it suits, fine, if not, fine too.. Some find the 3 day dosing gives more herx.. dont let it go to intolerable, take your dose at a shorter time if necessary to hold your herx at tolerable. and some find that the 3 day dosing gives them a free day to have a breather. all best, Barb ... |
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RevDennis Member in Phase 3
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Day 21 - Benicar 40q6h Day 11 - Mino 25q48h Dose 6 Good Evening All, I slept in this morning with only getting up to take my Benicare dose. I was achey all day in the legs and body. Letting up after I took my Benicar for a little while then coming back. Not real strong but enough to slow me down when I move around. I had just a spot of memory problem today. I couldn't remember the day that it was and wether it was morning or evening. Some of that is because I can't see outside to know day or night, but it is a strange feeling of confussion. Well, I'm off to bed in a little while. We will see what tomorrow holds. RevDennis |
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Foundation Staff. . 
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Rev Dennis, It's not at all unusual to be disoriented as to time when you are Herxing if change your sleeping schedule. It helps to have something like your computer or caller ID nearby so you can quickly get oriented as to time and date. Of course if you live with someone and they don't mind helping you when you are disoriented, that is nice, too. You may want to read about aids like timers and pill reminder alarms in Helpful Hints. Belinda |
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RevDennis Member in Phase 3
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Day 22 - Benicar 40q6h Day 12 - 25q72h Good Evening, Please note a change on my dosing. I am going to try to go out to 72 hrs on my mino. Today has gone well with very mild herx in the form of a few pains here and there, nothing much. Tonight, in fact, about 30 minutes ago my shoulders and neck started hurting some as I was sitting with my wife watching a movie in the living room. Lights were low and we have a big screen tv and we were back from it and I wore my noirs as always. It has already let up so I am going to go ahead and run out to 72 hrs and see if my herxes get worse or I get a free day. Time will tell. Mondays are always tough for me. I preach twice on Sundays and I am also involved in our church praise band playing the bass guitar. The preaching and teaching alone wear me out and Monday I am really tired. With the protocol, I have missed work a couple of times on Mondays so we will see what happens tomorrow. The people I do the accounting for understand my problem and have worked with me on this. We are all just happy I found the MP and I will now be able to live to see grandchildren some day. Thanks all for your help and encouragement. RevDennis Last edited on Mon Jan 23rd, 2006 05:13 by RevDennis |
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RevDennis Member in Phase 3
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Good evening, Day 23 - Benicar 40q6h Day 13 - mino 25q72h This is my third day after my mino dose. I have been tired all day. I have had some muscle pain in my back this afternoon but nothing very strong. Today has been very uneventful. I think I will go back to 48 hr doseing to get the most benifit. Have a good night. RevDennis |
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RevDennis Member in Phase 3
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Day 24 - Benica 40q6h Day 14 - Mino 25q48h Dose 7 Good evening, Today alerted me to how easy yesterday was. I took my mino dose at midnight and went to bed. I woke up alot with a stuffy nose, I wear a nasal mask with CPAP, or leg pain. When I got up at 6:30am, I got ready for work but I was hurting all over. I took my Benicar dose that was due and got my mino ready incase I needed to take it to calm down the herx. After about 10 minutes the pain started to ease up quite a bit and by mid morning was just sitting in the background whenever I got up from my desk. I also got up with a headache. I took a couple of tylynol and it went away pretty quickly. Tonight my back muscles are starting to hurt. It is amazing how wide spread these bugs really are in our bodies. It will be good to get rid of them all. Good night, RevDennis |
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RevDennis Member in Phase 3
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Day 25 - Benicar 40q6h Day 15 - mino 25q48h Good evening, I slept better last night. I was a little stiff when I got up this morning but that soon went away. Have had a little pain in neck and shoulders but not very strong. I have found that after sitting at my desk at work for a while, when I get up it, feels like I have been driving in a car for a long time. Very stiff and painful until I walk it off a little. Other than that, not too eventful today. Tomorrow is a mino day, if the next 2 days go well I will probably up my mino to 50mgs. Moving forward to healing. Have a great evening! RevDennis |
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RevDennis Member in Phase 3
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Day 26 - Benicar 40q6h Day 16 - Mino 25q48h Dose 8 Good evening. I took my dose at midnight this morning and went to bed. I woke up every hour through the night. I'd wake up, look at the clock and go back to sleep. I have been achey all day with all over body pain. This after noon I was having a burning in my chest. It was like when I had pluricy(sp) back in October. It did not effect my heart rate or breathing, just a burning in the chest wall. I figure it is just another herx. It went away after about an hour. I still feel achey but it is tolerable, just a nucience. If the pattern holds, tomorrow should be pretty easy. We will see if it holds. Have a great night. RevDennis Last edited on Fri Jan 27th, 2006 04:45 by RevDennis |
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RevDennis Member in Phase 3
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Day 27 - Benicar 40q6h Day 17 - mino 25q48h Good evening all, Well today has certanly been a day. I slept ok last night, waking up several times. I have had a low grade pain it seems like every where in my body today. Nothing strong just strong enough that when I get up to walk from one room to another I say ouch. I was reading through a number of the sections on the MP site yesterday and today, reminding myself of stuff and seeing how people are doing. I was reminded that my goal right now is'nt really to feel great but to keep herxing tolorable and when in control move to the next level. I think I am there now, so tonight when I go to bed I will be taking my next dose of mino and I will take 50mg and see how this old body will respond. I have plenty of mno and benicar on hand in case I need it. So, onward and forward to killing those blasted bugs.RevDennis |
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RevDennis Member in Phase 3
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Day 28 - Benicar 40q6h Day 18 - Mino 50q48h Dose 9 Good Evening All, Well I upped my mino to 50mg on this dose. Sleep was very broken. Nothing in particular just could not stay asleep. My body has hurt all over today. A couple of years ago I had a lot of pain in my wrist and had to wear a brace on it for a couple of months. I had some of that pain today off and on. mostly tenderness. I expected it to come back at some time because it is sarcoid related. I had this problem in one shoulder and one hip. So I suppose at some time those will come back too. That's ok though because this time I know that this is getting rid of it. None of the herxing was too strong though just tiring if you know what I mean. It would be nice to sleep though the night again but naps will do until I get there. Have a good evening. RevDennis |
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jrfoutin Research Team 
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"A couple of years ago I had a lot of pain in my wrist and had to wear a brace on it for a couple of months." Your post made me remember a time, Pre-MP, when my wrist hurt for no good reason and I had to wear a wrist brace for relief for a while. I'd nearly forgotten about it until I read your note. I find herxing makes me wonder sometimes about a lot of old injuries or what seemed to be unrelated inflammation/infections. The bacteria like injury sites on me, and many pre-Sarc Dx ailments now are connecting the dots into a bigger Th1 picture. Last edited on Mon Jan 30th, 2006 01:05 by jrfoutin |
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RevDennis Member in Phase 3
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Day 29 - Benicar 40q6h Day 19 - Mino 50q48h Good Evening, Well, it is the second day on 50 mg of mino. Yesterday I hurt. Today, not so bad. I am starting to hurt a little bit this evening but today I was just mainly washed out. No energy at all and my arms felt like lead weights. I took my usual Sunday afternoon nap and that helped some but ran down again. I think this happened after my first 25mg mino dose. I have also been coughing a bit today but that may just be something in the air. My wife has been coughing also. My wrist was better today so we will see where that goes. Sometimes I feel bad about just posting all the bad things going on. Not much has changed yet but I have not been on the MP very long yet and I don't expect any real improvement yet. For me, seeing new things hurt and new pains is exciting because I see it as new bugs getting killed. To me that is the positive. I know that I have a lot of bugs in me so there is a lot of killing to take place. Let it happen. Have a good evening. RevDennis Last edited on Mon Jan 30th, 2006 05:10 by RevDennis |
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tom Member in Phase 3 
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Dear Reverend You needn’t feel bad about posting “bad things”. Personally I learn from other members based on their personal experiences. Today was my first day on Mino 50mg. Like you, I too have not experienced any definitive changes with the exception of some mild aches, pains and increased depression. Having previously acknowledged this, posts like yours help me abrogate my fears that I should be feeling otherwise. Keep posting Tom Last edited on Mon Jan 30th, 2006 06:45 by tom |
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kenc Member in Phase 3 
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Jrfoutin, The MP seems to have awakened old injury sites in my body as well. Some time ago I injured my right shoulder in a skiing accident. The pain and the discomfort gradually disappeared. Now on the MP, the pain and discomfort from that injury have come back in full force. Perhaps it was the predinsone that was hiding the injury or perhaps as you suggest bacteria like injury sites. Curiously the MP had this effect on me before I completed the steriod weaning. |
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RevDennis Member in Phase 3
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Day 30 - Benicar 40q6h Day 20 - Mino 50q48h Dose 10 (dose 2@50) Thanks to all that have posted for the encouragement. I took my second 50mg of mino at midnight this morning and went to bed. It definately effects my sleep. I sleep for about an hour then wake up and doze off and on the rest of the night. Today started out like a lamb. I was still very tired. My arms still feel heavy and I have been short winded today. Pain wise this morning I thought I was going to have an easy day. At about 7 pm tonight that changed. I am hurting all over and especially on my right side rib cage and back. I really feel old when I get up from my chair and walk accross the room. My benicar is due in an hour so I will probably take it early. The herxes usually relax when I take it. I was beginning to wonder if I was going to have it easy at 50mg. I guess not.  Well, I know its working, I am definatly happy about that. Have a great evening everyone. RevDennis |
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RevDennis Member in Phase 3
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Day 31 - Benicar 40q6h Day 21 - Mino 50q48h Good Evening, Well, I ended up taking my Benicar about 45 minutes early last night because the rib pain was growing worse. Within about 30 minutes the pain started easing and within an hour it was gone. It has not come back today. I have been tired but thats about it all today. I have had one other herx which I forgot to mention yesterday but it has been ongoing for a couple of days. Who would believe we could forget something. Well the herx is with my eyes. They have been iching alot. Also, it has become harder to see. It sometimes is like my eyes have been dialated. Dark things seem to flow together making it hard to read and bright things seem to leave dark spots floating in front of me. This is all with my noirs on in dim light looking at darkened screens or books. It is worse in the mornings than evenings. Have a good night. RevDennis Last edited on Wed Feb 1st, 2006 05:11 by RevDennis |
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RevDennis Member in Phase 3
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Day 32- Benicar 40q6h Day 22 - Mino 50q48h Dose 11 (dose 3@50) Good Evening, Today has been fairly mild. I took my mino at midnight and went to bed. Slept for an hour then woke up and slept off an on the rest of the night. I was very tied today. I had all over pain mainly in the background until tonight. The back pain is getting a little stronger. I have been coughing all day with just a little plegm produced. I have had a bit of sinus drainage today. After reading some of the reports some of the mp'ers have, I feel lucky. I don't feel great but I definately have felt much worse. Watch, tomorrow I will really start hurting . I also consider myself lucky so far that I have not had any real depression yet, I have in the past, but my wife tells me I am grumpy alot. I just tell her it is because of the constant ringing in my ears. She needs to answer the phone or something.O well, good night. RevDennis |
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RevDennis Member in Phase 3
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Day 33- Benicar 40q6h Day 23 - Mino 50q48h Good evening, Sleep last night was boken. That is becoming the norm. I have been having all over muscle pain all day today. Sometimes worse than others but pretty steady. I have been coughing a lot again today and my lungs feel a little congested. Hopefully that will clear up soon. My sinuses have been drainng a lot also. I laid down around 2 pm to take a nap and had a strange experience. I had a prickling feeling run up my back. It was like someone with hot needels attached to a rolling pin rolling it up my back. Not painful really, just very strange. It started in the lower back and went up to the middle, started back at the bottom and would go a little higher until it reached between my shoulders. It lasted about 5 minutes maybe. I was laying on my back when it happened. Anyone else have this happen? Just wondering. Well, I'm about to get ready for bed and take the benicar and my next mino. Have a great evening. RevDennis |
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jillian Member in Phase 2 
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Dennis, I too have had this pricky spine sensation, especially in the earlier parts of Phase I (I'm nearing the end of Phase I). To me it felt like my spinal fluid was slightly 'charged.' It was very weird to feel (and to describe accurately). One day it lasted a couple of hours. Now my 'pricklies' are more in my leg muscles (another one of those symptoms that I continue to forget to note in my Progress report)!!! Although at times it drives me nuts, it's not as bizarre to me as the spinal pricklies were. 'til later, Jillian from North Dakota |
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RevDennis Member in Phase 3
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Day 34- Benicar 40q6h Day 24 - Mino 50q48h Dose 12 (dose 4@50) Thanks Jillian, It is hard to describe the feeling that the prickeling has. I look back at my description and someone might get the idea that it was torture, but it really wasn't, it just felt really strange. Well, I took my mino and benicar at midnight and went to bed. I slept about an hour, woke up and had a difficult time going back to sleep. Partly uncomfortable, partly not sleepy. I finally got back to sleep about 3 am or so and got up at 6:30 am. I have been achey all over today. Moving around takes effort. I have also been short winded most of the day. My sinuses have been stuffy today also. My right ear started hurting for about an hour this afternoon and I now have a headache. Thank goodness it is benicar and bed time. I am ready. I am hoping tomorrow will be easier. RevDennis |
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RevDennis Member in Phase 3
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Day 35- Benicar 40q6h Day 25 - Mino 50q48h Good Evening, Last night I got to bed at about 12:30am and woke up at 1:45am. I could not get back to sleep until almost 5am. I then woke up at 9am. I stayed in bed the entire time, just could not go to sleep. The herxing was very mild today. I laid down about 2pm and took a nap for a couple of hours. Then 2 strange things happened. Back in September, prior to being on O2, I started having blackout spells when I coughed. I did that sometimes 2 or 3 times a day. Since starting MP, it has not happened. Shortly after getting up from my nap I started coughing. I sort of remember going down and woke up with my wife next to me trying to get me to talk. I'm not sure that maybe my O2 went too low during my nap so when I coughed it dropped and so did I. I have been short of breath for the past couple of days. Then a couple of hours later my blood sugar started dropping. I have had that problem for years but usually when I am heavier than I am now. I took a spoonful of honey and that took care of it. I just wanted to mention these things. I am not sure that they are directly related to MP or not. I am feeling better now but I think I will let my mino run to 72hrs this time and see if it gives me a day off. If not, I will probably go ahead and take a mino dose to make them easier. We'll see.Well, onward and forward. RevDennis |
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RevDennis Member in Phase 3
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Day 36- Benicar 40q6h Day 26 - Mino 50q48h Well, after yesterday I let my mino go to 72hrs. Today has been eventless for the most part. I still had trouble sleeping and my chest has felt congested and I have coughed a lot. Because of the congestion I have been short winded. This evening I have a headache and my neck and upper back hurts and is stiff. I will take my next mino later at midnight and I will report on it tomorrow. Good night all. RevDennis |
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DMiller Member in Phase 3
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Dennis, Pre-MP I too would have several coughing spells per day (mostly in the evening) and often they would cause me to almost blackout. I wouldn't lose consciousness, but everything would go black and my whole body felt both numb and tingly. It would take about a minute to get back to normal. Since starting the MP I probably have these spells about 2 or 3 times a week. I agree with your assessment that it is probably our O2 levels going too low. Don |
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RevDennis Member in Phase 3
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Day 37- Benicar 40q6h Day 27 - Mino 50q48h Dose 13 (dose 5@50) Good Evening, Well I took my mino at midnight and went to bed. I slept until about 1:30 am then off and on until the alarm went off at 6:30am. I decided to stay home from work today so I stayed in my cave in bed sleeping off and on until 2 pm. I got up and the just sat around the rest of the day. I have been very short winded with with a number of coughing spells like Don mentioned in his post to me. I had some pain mainly in my hands and feet. A lot of brain fog this morning but it cleared up by the time I got up. All in all, very uneventful today. RevDennis |
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Aunt Diana Moderator 
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Hello Rev Dennis I always read your posts and empathise with your positions....since I am pretty much at the same spot as you are. My only question is...do you take anything to help you sleep? I have been relying on sleep meds for a long time and still need them, but something very dramatic has changed in my sleeping patterns since I've been on the protocol. I have been taking ambien 10-15mg to allow me to sleep for years. Then when I woke up a few hours later I would have to take another 5 mg. tablet in order to fall back to sleep. Before Ambien I simply didn't sleep....and was in a constant state of fatigue and discomfort. With the Ambien I was able to sleep but I never felt as rested as if I had had normal sleep. I think sleep--good sleep--in which one wakes up refreshed...is the most curative part of this program. That started to happen for me a few weeks after I started the MP....I found myself actually falling asleep in a chair....or falling back to sleep if I woke up. My dreaming has taken on a different nature and I believe that means something, curatively. Now I may need to take the Ambien to "fall asleep" but once there I stay there....and it is more normal and I feel more refreshed when I wake up...I'm also able to fall back asleep easily and resume my dreams where they left off. I am retired so I don't have to get up at any particular time, but it was always in my nature to wake up early and get going, to work the "kinks" out. Recently I've been sleeping til 2pm....I'll wake up at 7 or so (benicar alarm) and pull the covers back up and sleep again till the alarm goes off again , Today I got out of bed at 2pm....totally unlike my past regimen...but I think it is good for my immune system to have that time to work on its own. I guess I'm sharing this with you because I would encourage you to ask your doctor for a mild sleep medication....like ambien...or whatever they recommend. You may be surprised...at the depth of sleep you can attain. It is hard for a hard minded "yankee" such as myself, to give in to this slothful habit of "sleeping in" but I believe it is helping my progress immensely. Best wishes |
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Aussie Barb Research Team
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RevDennis for some information see INSOMNIA post and I have insomnia and fatigue. What should I do? all best, Barb ... |
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RevDennis Member in Phase 3
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Day 38- Benicar 40q6h Day 28 - Mino 50q48h Thanks Aussi Barb, Aunt Diana and others that PM'd me, My sleep has fallen into a pattern and basically is not much at night. That is ok for now, I can nap when I need to so that works. I am sure this will change as mp deals with my bugs more. The day started with being sleepy and brain fog. By noon it moved into achey all over. My hands and feet hurt a little stronger than anywhere else until this evening when my left hip started hurting. I am still very short winded which is limiting my movement and I keep having coughing spells which are usually productive. I try to drink a lot of water to keep the congestion loose so it can move out. I am really sleepy tonight. Lets see how long I can stay asleep. BTW, I am putting up a new picture tonight. I had it taken Sunday by our church photographer. I have lost about 55 pounds since May when I came off predisone so I am at 220 now. I am working to loose about 30 or so more. Good night all. RevDennis |
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coolbeans Health Professional
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Looking good, Rev. jb |
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RevDennis Member in Phase 3
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Day 39- Benicar 40q6h Day 29 - Mino 50q48h Dose 14 (dose 6@50) Thanks jb. Good evening all. While my sleep was still broken, I slept better last night and when the alarm went off this morning I did not want to get up. I have been sleepy all day. I have also been herxing all day all over. My right wrist has joined in again and is tender. My sinuses have let loose today and are constantly draining. I have been sneezing all day and coughing. This has been a usual first day of mino for me. Tomorrow should be a little easier. We will see how my prediction goes. Good night all and may your good dreams come true. RevDennis |
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RevDennis Member in Phase 3
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Day 40- Benicar 40q6h Day 30 - Mino 50q48h Good evening, Well, I was half right on my prediction. The day has been a steady arthritic pain all over all day. Not real bad, but there none the less. Last night was my problem. I got to bed at midnight and after coughing my head off for a while I went to sleep. Slept good until 2 am. I woke up needing needing to go to the rest room. I try not to do that because it can become a habit but I went to get up. That is when I realized how much pain I was in. Laying down, I just felt my hands and feet a little painful. When I got up there was not a muscle or joint that did not scream at me. I could barely walk to the bathroom. I then got back in bed and as I laid in bed still I did not hurt. It was only when I moved. I'm no dummy, I didn't move any more . I also did not sleep anymore. When I got up at 6:30am I had a headache with the body pain, I was ready to take my benicare and to take an added mino. I took the benicar and sat next to my bed in my cave to see if the herx was going to let up. It did after about 20 minutes and has just been mild. This may be why I have not been sleeping. I didn't realize I was in pain because I have not been getting up. I have to take my cpap mask off and go without o2 so I am afraid of falling or passing out. I may just need to have a 25mg of mino ready to ease the herx so that I can sleep.I had noticed that the ringing in my ears has been louder at night. I woke up the other night and thought my o2 concentrator was making a noise, then I realized it was just inside my head.I had thought about raising my dose to 75 but I think I will wait. Have a good evening. RevDennis |
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Aussie Barb Research Team
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RevDennis You may wish to try using the Benicar and / or the lowered dose of mino more frequently to keep all tolerable.. you are in this for the long haul, and gaining experience in adjusting the meds for the better comfort will stand you in good stead. Let us know if you have any questions. all best, Barb .... |
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RevDennis Member in Phase 3
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Day 41- Benicar 40q6h Day 31 - Mino 50q48h Dose 15 (dose 7@50) Good Evening All, Well Last night and today has not been bad. Woke up a number of times last night. I tested my muscles and joints to see if the herxing was like the night before and it was not. My wrist was tender and so were my feet. I got up this morning as usual and went to work for half a day, usual for Fridays, and then came home. Herxing has been mild today and in the background. Sinuses are draining again. But, overall an easy day, O, did I mention I took a 3 hr nap this afternoon? That was nice. We will see what tonight holds.If you are reading these and you have not started the MP yet, don't let the reports scare you. We are purposefully reporting our herxes and placing the information into a record. Most of these herx pains many of us experienced as part of the progress of the disease to get to where we are at. I know that I personally am willing to go through them again knowing that I am getting rid of this cursed disease this time. You can take this as slow as you need to. It took you years to get into the condition you are now in and it will take a while to get well. Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Day 42- Benicar 40q6h Day 32 - Mino 50q48h Good Evening, Today has been mild. I did sleep alot, that just makes up for the sleep I loose at night, I think. My herxing has been muscular pain all over at a low level. Not much else to report. I have had a bit of a cough and wheeze in my chest. It occurs whenever I walk from room to room or get ready for bed. it is a bit annoying. but such is life. Have a good evening. RevDennis |
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Foundation Staff. .
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RevDennis, You might want to try some of our Breathing Tips. At least if you are familiar with them, you will have then on hand as tools in case you want to use them. Best to you, Belinda |
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RevDennis Member in Phase 3
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Day 43- Benicar 40q6h Day 33 - Mino 50q48h Dose 16 (dose 8@50) Good evening. Sleep was broken as usual but I did sleep a little better. I tried my muscles when I woke during the night and they were painful. I went through my different muscle groups flexing them to try and get the pain and stiffness down some and it seemed to work some. I fell back to sleep each time. I got up this morning and was fine. No real pain, just short winded and coughing. I took a nap this afternoon and woke up very tired. It is hard to explain but since then I have just felt "off". My back and ribs are hurting right now but that has just started, I just have not felt well this afternoon. Probably a brain herx. I had to fix my indoor NOIR for the 3rd time today. I will call tomorrow to get them replaced. The right arm on them just keeps breaking. Thank goodness for super glue. Have a good evening. RevDennis |
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Aussie Barb Research Team
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Thanks RevDennis There are some methods of glasses repair in this topic: to hold you over till you have the glasses replaced. PROTECTING YOUR EYES If you need to, some extra Benicar or mino 25mg may be helpful to you at any time.. all best, Barb ... |
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RevDennis Member in Phase 3
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Day 44- Benicar 40q6h Day 34 - Mino 50q48h Thanks Belinda and Barb for the info. Like I said, my noirs broke yesterday so I glued them again. I had to wait for them to completely dry so I could not use them. Outside was not a problem because I had my 2% glasses. But inside at church, I could not see well enough to read my notes for my sermon so I had to go without. I didn't notice anything yesterday except my eyes felt a little tired. When I went to get up this morning I could not wake up. I took my benicar and fell back to sleep. I woke up at noon and took my benicar and fell asleep again. I woke up about 4 hrs later and forced myself to get up. I read Barbs post and followed the link and read that this was from the light so I went ahead and took extra benicar to try and break it. It helped and I have been up since. I am still tired but I feel much better, back to my regular muscular pain. I am happy again. I plan on upping my mino tonight and my benicar will be normal again. I was going to do it last Saturday but didn't want to have a problem on Sunday so I am glad I waited. Well, talk to you all tomorrow. RevDennis Last edited on Tue Feb 14th, 2006 05:36 by RevDennis |
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Foundation Staff. .
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Dennis, At some point, you may be interested in obtaining a pair of Bolle frames with Bolle 100 lenses. They are comparable to the NoIR 10% you are using as far as protection, but the frames are ruggedly built for use in outdoor sports. I like the fact that Bolle frames come in styles that hug the face, with grips on the nose piece and behind the ears that make them stay put. Sometimes you can find them online on sale. Just be sure you get the Bolle 100 dark amber lenses. Belinda |
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jillian Member in Phase 2
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For Noir repairs, if worst comes to worst, good old duck tape on the inside and outside of the joint works. Of course, then you can't close the joint so that's a bit of a pain, but it works in an emergency... Duck tape even comes in colors now so we could be quite creative 'til later, Jillian from North Dakota |
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RevDennis Member in Phase 3
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Day 45- Benicar 40q6h Day 35 - Mino 50q48h Dose 17 (dose 1@75) Good Evening All. I should be getting my new glasses by the end of the week. I have become an expert with super glue keeping them together. I upped my dose to 75mg now. For some reason that sounds like a major marker to me. I am excited about it. I have come this far and I have not died from a herx or any other bad things. Have I felt bad . . . Yes, is it worth it? Yes!I did not sleep well last night but what's new. I got up this morning feeling ok. No major pain and awake compaired to yesterday. I did fine until about 1 pm when all my energy just drained out of me and my brain went cloudy. I was at work and I hope I don't have a mark on my forhead from hitting the computer monitor as I kept falling asleep.  Then when I came home at about 5:30pm I had a coughing spell. It lasted about 20 minutes and quite a bit of phlegm came out of my lungs. That is not usual. It stopped as suddenly as it started and just left my chest burning for a little bit. I just feel the usual acheyness tonight in my back and shoulders. Well, now it is time almost for bed again. Maybe I will sleep better tonight. Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Day 46- Benicar 40q6h Day 36 - Mino 50q48h Good Evening All. Well, day 2 of my first 75mg cycle went ok. Went to bed and slept for about 3 hours well. Woke up with muscle pain and was awake for 2 hours before I went back to sleep. Went to work as normal and got tired very quickly. I coughed a bit again today and had some chest pain in the upper left muscles toward the collar bone. My arm muscles are very sore this evening and my back is hurting. All is tolerable and just a reminder that the mp is working. I have not notice an increase in pain, just some of it is different locations. Well thats it for tonight. Good Night. RevDennis |
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RevDennis Member in Phase 3
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Day 47- Benicar 40q6h Day 37 - Mino 50q48h Dose 18 (dose 2@75) Good Evening All. I will try this again. I had it all finished and it just disappeared. O well, I'll see if I can remember what I said. I slept at the beginning of the night then woke up, was awake for a little over 2 hours and went back to sleep. I got up for work at the usual time. I was fine then with the usual muscle pain except for one thing which I will mention in a little bit. I did have a cough still when I got up and have had this all day. This has made me very short winded today. About 10 am I lost all energy and went foggy mentally. I went home at noon and laid down at 2 pm and slept until about 4:30. Since that time I have had a lot of muscle pain all over. There is one pain I have had all last night and all day today. It is not intolerable but just there. I have a burning sensation in my chest on the left side a little above my right pectorial muscle. It is worse right after I cough. It is like what I had in October and my specialist dr called it pluracy. I am wondering if there is a lymph node in that area. I know that all of the lymph nodes in my chest had sarcoid involvement. My x-rays show me as advanced stage 4. Anyway, things are all tolerable, just the usual not feeling great. But I know that there is coming a time in the future when that will change. Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Just a correction. The burning is above my left pectorial muscle. I did look ap a lymph node diagram after I finished last night and there are some in that area. It is still burning this morning. I told you I was in a fog last night. RevDennis |
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RevDennis Member in Phase 3
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Day 48- Benicar 40q6h Day 38 - Mino 50q48h Good Evening All. Slept a little better last night. I still wake up but am able to go back to sleep a little better. I got up this morning as usual and went to work. I am hurting all over. The burning in my chest has let up and been replaced with very sore abdominal muscles. I feel like I have been doing a lot of sit ups or crunches. well suprise, I have not been doing any exercise. It mainly hurts when I cough so I have been trying not to. My arms have been weak today also. I took a nap around 2:30 pm for a couple of hours. Taking the 75 mg has raised the overall pain level for me. It is still tolorable but it does hurt more. My teeth and gums have been more tender of late more in the evening it seems like.Well that is it for now. RevDennis |
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RevDennis Member in Phase 3
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Day 49- Benicar 40q6h Day 39 - Mino 50q72h Good Evening, Well I goofed. I got confussed and about 30 minutes after going to bed I remembered I was supposed to take my mino last night. Since I had not split a capsule yet and I had my mask & oxygen all on and running and had stopped coughing, I decided to run this dose out to 72 hrs. So, here is my report. My sleep was broken up alot with waking every hour or two and taking a little bit to get back to sleep. I woke up at six and took my benicar and went back to bed and got up at 10am. No real herxes today. I have coughed less overall. Today has been remarkabley quiet. I will take my mino tonight before I go to bed. Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Day 50- Benicar 40q6h Day 40 - Mino 50q48h Dose 19 (dose 3@75) Good Evening All, Took my mino just before bed. I slept the usual broken sleep and got up at 6:30 am. I have had a cough today and after my shower this morning I started coughing and passed out. Fortunatly, I could tell what was happening and I was at the sink in the bathroom so I got on my knees before I blacked out. My wife heard me fall and came in and helped me up. It is a strange feeling. I don't know when I go out but as I wake up I can hear her talking and then see her but can't talk. My mind is trying to respond and then finally I can talk but sometimes what comes out does not make sence. O well. It seems like I start coughing and then can't catch my breath and I go down. Not a good feeling. After noon the all over body herxing started again. It is like a friend that is always there. The absence of it yesterday lets me know it is related to mp so that is good. Sometimes you wonder if it is just the disease itself. Overall it has not been too bad of a day. My sinuses have been going wild again today.Have a good evening. RevDennis |
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sunflower Member in Phase 2/3 
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hi rev, my sister has asthma and very bad allergies, and once had an infection that caused her to cough so much that she couldn't breathe and passed out, also. please be careful when starting to cough like that, and sit or lie down if you can to avoid falling and hurting yourself . i've had a few episodes since starting the MP where i've come close to passing out, but made sure i sat down til the feeling passed. nothing but fun and games killing these critters, huh . bless you...sun |
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Foundation Staff. .
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Rev Dennis, People with lung disease can pass out with a coughing spell. This is called - in medical terms - cough syncope. It was good that you felt it coming and went down because lowering your elevation helps in two ways: 1) it may allow the normal flow of blood to the brain to resume, avoiding fainting and 2) if you fall, you won't have far to go. If you happen to be driving when a coughing spell hits, it's a good idea to pull off the road, according to this report from Mayo Clinic. Belinda Last edited on Mon Feb 20th, 2006 20:24 by Foundation Staff. |
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RevDennis Member in Phase 3
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Day 51- Benicar 40q6h Day 41 - Mino 50q48h Good Evening All. Slept better last night. I didn't wake up until after 4 am. Then I got up at at my usual time and went to work. I ran out of energy and brain fog set in about noon. My stomach muscles hurt today along with my shoulders and arms. I have also had an unproductive cough that leaves me light headed. My sinuses are also stuffy. I took a nap after I got home from work at 5:30. The herxes continue but they are not too strong. Good night all. RevDennis |
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RevDennis Member in Phase 3
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Day 52- Benicar 40q6h Day 42 - Mino 50q48h Dose 20 (dose 4@75) Good Evening All. Slept off and on last night. I got up and went to work as normal. By early afternoon I had fizzeled again. My stomach muscles have been hurting all day and especially when I cough. I have been very short winded today. My arms feel like I have weights attached to them. I am achy all over and moving around is a real effort. Fortunatly I am able to sit around and not move much all day. There must be some bug killing going on and that is a good thing. Well, Have a great evening. RevDennis |
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RevDennis Member in Phase 3
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Day 53- Benicar 40q6h Day 43 - Mino 75q48h Good Evening. I am happy tonight because I am off tomorrow and can sleep in.` I slept better last nigh waking up only once that I can remember and when the alarm went off this morning I was sleeping so well. I got up and went to work. I am still having coughing problems, may just be the sarcoid, and shortness of breath. I have the usual all over pain and heavyness in my arms. And again I ran out of energy after noon. I ended up coming home early today because my brain just refused to operate. I came home at three and went to bed and took a glorious nap. That recharged my batteries and cleared up the fog. I will be taking my 5th dose at 75 mg tonight. I will probably do that one more time then ramp it to 100 if everything stays the same. I just noticed that there was a mistake on my header. I didn't change it to 75mg of mino although on my dose number it was right. O well.Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Day 54- Benicar 40q6h Day 44 - Mino 75q48h Dose 21(dose 5@75) Good Evening All. Well I fixed my intro header to reflect my 75 of mino. I have had 5 doses at that level. 4 at 48h and 1 at 72. Today is day one of the 5th cycle of 75mg. It is pretty consistent now on the first day I herx alot. All over aches and pains over my muscles. I slept off and on last night with some night sweating. I had a lot of that when I was on prednisone and I have noticed it coming back during this dose level. It is not that it is warm in the house. We turn down the central air at night, I have a ceiling fan on above the bed and then I have a seperate fan blowing on me at the side of the bed. I don't know what I will do when I get well. With the fans, CPAP, O2 concentrator , and ringing in my ears gone it may be too quiet for me to sleep. The herxes were fairly strong today and consistent. I was off so I was pretty lazy. I got out of bed about 10 am did some work for the church I needed to do then laid down after lunch and didn't get up til 5pm. I have been up since then watching the olympics.Back to bed in a little bit. Have a great evening, RevDennis |
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RevDennis Member in Phase 3
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Day 55- Benicar 40q6h Day 45 - Mino 75q48h Good Evening, Well, another semi lazy day. I did not sleep well last night. I got up at my 6:30 time and went to work for half a day. I did well with the usual achey muscles. My stomach muscles are still sore and I had some pain in my right chest today. That is a first. It was like a stabbing pain and lasted about 30 minutes. Tonight I am just trired and looking forward to bed. I will take another dose tonight. I am not having much of a herx right now, but I am sure that will change in the morning. Have a good night. RevDennis |
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RevDennis Member in Phase 3
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Day 56- Benicar 40q6h Day 46 - Mino 75q48h Dose 22(dose 6@75) Good Evening All. Today was a usual first day of the cycle. I slept poorly and kept my wife awake alot last night coughing. I have been having muscle pain all over today especially in my upper back and neck and shoulders. I have been coughing all day and my stomach muscles have hurt like knife stabs when I cought. I have had a dull preasure in my head all day. Not quite a headache but just there under the surface. My sinuses have been clogged all day. Not a plesant day at all. I got up this morning about 10 am and sat next to my bed in total darkness for 2 hrs before I got dressed and went into the rest of the house. Any light at all was bothering me. It is amazing how well I can now see in the dark. I am looking forward to going to bed tonight. My day 2s are usually a little better. We will see.Have a great evening. RevDennis |
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Morris W. Milnes Member
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The seeing in the dark is incredible. I went outside at 3 AM to clean out a drier vent and to me it was like daylight just from the streetlight down the street. That's the only Herx I miss. Morris |
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jrfoutin Research Team
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... my day 2s are usually a little better. Rev: Phase I and Mod PhII have a nice break every other day most the time. I could make it through most anything knowing the next day usually eased up some. Morris: Agreed. I'm still seeing quite well the dark. Eyes not as sensitive now, but still prefer it. |
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RevDennis Member in Phase 3
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Day 57- Benicar 40q6h Day 47 - Mino 75q48h Thanks Morris and Jrfoutin, I always enjoy hearing from fellow MPers. I went to bed last night a little after midnight and woke up around 3 am. I could not go back to sleep. I just laid there quietly because I didn't want to wake my wife up. I got up at 6:30 to get ready for church. I have had a steady cough today and part of the day it has felt like someone hit me in the stomach. Pretty uncomfortable. I took an afternoon nap for a couple of hours. Woke up on my own. I have been having moderate herxing this evening in the usual body aches all over. I'm pretty use to that. My mind has been a lot more clear today. My biggest struggle this afternoon has been that as I cough I get light headed and I don't want to pass out. I preached tonight trying to keep my train of thought with my coughing spells and trying to keep clear headed. Not that easy. My wife said I pulled it off ok. It was a struggle. Well, That's it for tonight. Have a great evening everyone. RevDennis |
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DNStog Moderator 
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Rev Dennis, Reaching 75mg Mino on Phase I gave me my strongest of herx...fever, flu like symptoms, etc. I slept for almost three days solid, thankfully, which got me through the roughest herxing. Wishing you well, gently! Donna, still cruising ~~~~ |
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RevDennis Member in Phase 3
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Day 58- Benicar 40q6h Day 48 - Mino 100q48h Dose 23(dose 1@100) Good Evening. I took my dose at midnight and went to bed. I slept the usual off and on last night. I got up this morning and did not feel too bad. Went to work as usual, then about 1 pm my brain decided to check out and leave. The fog hit hard. I ended up going home at 3pm. I tried to lay down and take a nap but something strange happened. I hooked my O2 up to my CPAP mask like always put it on and laid down. I could not remain laying down. I kept feeling like I was suffocating. I ended up propping up some pillows and laying on them. This is difficult because I have a water bed. I was able to rest some but could not sleep. I hope this changes because I really do want to sleep tonight. I got up around 5 pm and since then I feel like I have the flu. I hurt all over and I am coughing and bringing up phlegm. I have not done anything to stop or slow the herxes because I want to see what happens but they have probably been on the boarder of tolerable for me. I will have my mino ready tomorrow incase they get carried away. I am hoping that tomorrow will be easier but since this is my first dose at this level there is no way of knowing. I appreciate all the encouraging words from everyone both here and privately. It helps to know that we are not alone and that there is light at the end of this long tunnel. It is hard for me to believe that back in 2000 I didn't know anything about sarcoid and felt fine and when I started this 58 days ago I was functionally disabled struggling to breath with my only hope from my specialist being a lung transplant. It is nice to be back in control. Thank you Trever, Meg, Barbara, Belinda and all of you that have put MP together and worked to get it out and share it with us. May you someday get the recognition and acalades you truely deserve. RevDennis |
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Aussie Barb Research Team
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Thanks RevDennis Dont hesitate to adjust your meds to achieve tolerable enough herx to get some sleep. it is all necessary to your healing. Take care, Barb ... |
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RevDennis Member in Phase 3
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Day 59- Benicar 40q6h Day 49 - Mino 100q48h Good Evening and thanks Barb. Well, I slept ok last night. I woke up several times and got up once to go to bathroom. That was a mistake. My bathroom is only about 15 to 20 steps away but I didn't have my O2 on to go. I could not breath well and all I could think was to try not to fall. I made it but when I got back to bed it took me about 30 minutes to stop coughing, get my breathing back under control and my heart rate back down. When the alarm went off this morning I did not get up. I had started herxing again and I did not know what to expect. The herxing has been fairly steady today, not over powering but definately working. I have felt like I am suffering from the flue all day. Again, when I tried to lay down during the day, I could not because I felt like I was sufficating. Just like yesterday. It did not effect me last night though. I hope this changes because I like my daytime naps. They help me catch up because of my broken sleep pattern at night. On top of the over all herx I have had some specific pain shooting through my neck and head. It just comes and goes. My ears are clogged today also with the ringing louder than normal. Well, I will take my second dose of 100 mino tonight. Have a good evening, RevDennis |
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Aussie Barb Research Team
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Thanks RevDennis If you will adjust your meds some, it will give yourself some relief, and also will give you some experience in adjusting your meds to take forth to Phase 2. If possible, it is preferable to have some experience with adjusting the meds before going to Phase 2. all best, Barb ... |
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RevDennis Member in Phase 3
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Day 60- Benicar 40q6h Day 50 - Mino 100q48h Dose 24(dose 2@100) Thanks Barb. I woke up at 2:40 am and could not get back to sleep. I stayed in bed until time to get up for work. My knees hurt some during the night but not too bad. I did not feel too bad when I went to work. I was tired and had the usual achey feeling. I was coughing quite a bit. I stayed at work all day today, until 5 pm. I had about 45 minute that I could lay down before going to preach at church. It felt good and I really didn't want to get up, but I did. When I got home the coughing picked up again along with the strong body aches. I also started getting sick at my stomach. I seperated a mino cap and took 25mg. The stomach problem went away in about 15 minutes and after about 30 minutes the body herxing let up some. I am still coughing a bit. This is day one of the cycle so I have more of the 25 mg mino ready in case I need it. The first and second day of the first dose of 100 was too strong. I should have done something to ease it but the brain fog was so strong I just couldn't think straight. If you have seen the movie 50 first dates, there is a charecter my wife started compairing me to. I think he was called 7 second Tom or something. Every 7 seconds his memory wiped and he started over. That is about what was happening. I could not carry on a conversation that made any sence and I kept asking the same questions. I didn't even realize the sarcoid had effected my brain. Boy, it is some nasty stuff. Have a great evening all. RevDennis |
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Aussie Barb Research Team
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Thanks RevDennis That is exactly what does happen. the herx can take you down to where you cannot think to take care of yourself by adjusting the meds.. so, just like Life... . it pays to be thinking and prepared ahead of time before this situation arises. Be prepared to adjust meds if symptoms are holding you back from breathing, sleeping etc.. and ask your Wife or support person to please remind you that it may be time to take the meds??? see Tools to check: This is the sort of practice that can be happening and experience gained before getting to Phase 2.. all best, Barb ... |
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RevDennis Member in Phase 3
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Thanks Barb, It has been a rough night. I went to bed at midnight and woke up as usual at about 2:30am hurting pretty bad. I took another dose of 25mg of mino. The herxing slowed and I went back to sleep. Then at 4:30 I woke up with my entire body just screaming. Every joint and muscle was hurting and my head was throbbing. I got up and sat beside the bed with just my O2 for a few minutes to catch my breath. I then went and took 40mg of benicar to see if that would help. In about 15 minutes it started to ease. The pain did not completely go away but it at least went down to tolorable. I went back to bed but didn't go to sleep. At my normal beni time at 6:30 I was starting to hurt again so I went ahead and took another benicar. I also took tylenol for my headache. Right now everything is ok but my head still hurts some. Tight in the neck really. I plan on not taking my scheduled 100 mino dose tonight and let it run out a third day to let it go down to zero. Does that sound thike a good idea? RevDennis |
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Aussie Barb Research Team
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RevDennis The Benicar Q4H if it is necessary may bring you enough relief when you are symptomatic without requiring mino 25mg. Trying it will help you to know this. My Herxheimer reaction is too strong. What should I do? Trying 3 day mino dosing is fine. The time to be saying whether the third day is a good idea is when you are actually doing it and the herx is tolerable. dont push past tolerable to get to a set time though.. see I'm eager to get well. How can I speed up my progress on the MP? all best, Barb .... |
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RevDennis Member in Phase 3
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Day 61- Benicar 40q6h Day 51 - Mino 100q48h Thanks Barb. Good Evening All. Well I already reported about my night. One word . . . OUCH! I stayed home today not knowing what to expect. Fortunatly, the herxing stayed under control. I felt like I got hit by a truck. I took my benicar back on schedule at noon. I laid down about 2 pm and took a nap. I woke up at 4:30 and was still tired. I drank some water and tried to lay back down. I was still real tired. I had a repeat of the problem the other day. I felt like I was suffocating and could not stay laying down. It was about 5:15 so I went ahead ant took another Benicar dose a little early to see if this helped. I was asleep by 6 and woke up at 8pm. I got up then and feel ok, just the basic achey all over feeling and tight neck muscles. Everything is back under control. I will probably waite and see what happens tonight and not take another mino 100 dose. So far, my day three on every dose level has been easy. will see if it is true here also. I could use a day off. Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Day 62- Benicar 40q6h Day 52 - Mino 100q48h Good Evening. Well, I am still herxing today and it is day three of the cycle. The herx is in my feet, they are tingling, and tender, in my left arm and hand, it is tingly and weak, and in my neck and head. It is tight and hurts. I have had a dull headache all day. I also have been coughing all day and coughing up phlem. Because of this my chest has been tight and very short winded. I have come close to passing out several times. My sleep is very fractured. I sleep mybe two hours and then wake up. That happened last night. I couldn't go back to sleep so I took 20mg of benicar at about 3:30am. About 4 am I went back to sleep and woke up again at 6am. I got up at 6:30, too my regular dose of 40 mg benicar and got up and went to work. I have just felt washed out with everything else today. I tried to take a nap and only slept for an hour and was so tired and couldn't breath and get comfortable so I took 20 mg of benicar and slept for about an hour and a half. I then sat in the dark for an hour before I gave up and went into the rest of the family. I am supposed to take my next dose of mino tonight. We will see what happens this time. Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Day 63- Benicar 40q6h Day 53 - Mino 100q48h Dose 25(dose 3@100) Good Evening. Well, Today has been a surpise. I went to bed at about 12:30 this morning. woke up at 2:30 am as usual then went back to sleep and woke up at 4 am. I couldn't get back to sleep so I got up at about 5 and did a little computer stuff and watched tv. Through out the day my herxing has been very low. The only problem I have had is a constant cough. It produces some dark phlegm. I have coughed so much that my chest is sore and so is my stomach. It makes me very short of breath. It calmed a little about 30 minutes ago, but now I am starting to have the all over achey flu symptoms. It will probably ease with my midnight benicar dose. Today has been pretty good and I am thankful for it. Have a good night. RevDennis |
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Aussie Barb Research Team
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RevDennis If you'd like to be making your Phase 2 preparations, see FAQs How do I know if I'm ready for phase two? Where can I find phase two and three? all best, Barb ... |
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RevDennis Member in Phase 3
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Day 64- Benicar 40q6h Day 54 - Mino 100q48h Good Evening. I went to bed last night at a little after midnight and slept til 3 am. Wow, it has been a while since I slept 3 hours in a row. I then went back to sleep and slept till 4:30 and then off and on until I got up at 6:30 am.The only noticable herx today has been my cough. It is still there and I am still bringing up phlegm. This evening my chest and back hurt and feel tight but I think that is from coughing so much. I will take another mino dose tonight and see what happens. Thanks Barb for your note. I sent for the questionaire and Have it already. I will see what this next cycle is like before I send it in. Have a good evening, RevDennis |
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mhbabb Member 
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Rebdennis- I just wanted you to know how helpful it has been for me to share your experiences as you go through this process. I myself started on Benicar 40q6h a little over two weeks ago and added mino 25q48h yesterday. Like you, I was really unsure at first whether it was the mino causing me to herx, or just the old sarc itself when the headache, pressure behind my eyes, light sensitivity, ringing in the ears, irritability, pain in knees, ants crawling all over my skin, roaming pains in my toes and hands, swlleing and soreness in my palms ... when all the old symptoms came out to play. Especially since I am just two weeks off of qvar, an inhaled steriod. However, reading your day to day struggle has convinced me that mino IS working and since I haven't experienced many of these symptoms in months, it simply must be the mino, and I am herxing! Who ever thought I'd be applauding experiencing symptoms that almost drove me insane for two years? (And my doctors were telling me all that time that I was crazy.. that these symptoms simply do NOT add up to anything other than psychiatric problems.) So thank you so much for sharing this with us all. Know that you are... please excuse the analogy, but it fits... carrying the cross for more folks than you will ever know. You are, and will remain, in my thoughts and prayers. Martin Babb Seattle, WA |
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RevDennis Member in Phase 3
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Day 65- Benicar 40q6h Day 55 - Mino 100q48h Dose 26(dose 4@100) Thanks for your comments Martin and Good Evening Everyone. I took my mino at midnight and went to bed. I slept until 3:30, looked at the clock and went back to sleep and slept until 6am. That is the best I have done in a long time. I got up this morning feeling pretty good but a little bit of that lingering cough. I did well until about 1 pm. Then brain fog set in. That is bad because I am working on putting together the annual financials for some companies so I can get their Federal taxes ready. I ended up leaving work and coming home and brnging the printouts with me. I went to bed at 2pm and did not wake up until 5:30pm. That is amazing because I have not been able to sleep longer than 2 hours at a time. I am a little achey but nothing major at all. I worked on paper work again tonight and got mentally tired after about 2 hours so I stopped. All in all it has been a pretty good day. Have a good evening. RevDennis |
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RevDennis Member in Phase 3
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Day 66- Benicar 40q6h Day 56 - Mino 100q48h Good Evening All. Well, I didn't sleep as well last night as I did the night before but better than I had been sleeping. My herx was very low level today with the usual cough which gets worse at night. I am also starting to hurt in my shoulders and neck with a slight head ache. Other than these my herxing seems to have let up alot. I will take another mino dose tonight before bed and see what happens on this cycle. I sent back my questionaire a few minutes ago. I guess I need to check my calandar and make an appointment with my doc. Onward and forward. Have a great evening. RevDennis |
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RevDennis Member in Phase 3
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Day 67- Benicar 40q6h Day 57 - Mino 100q48h Dose 27(dose 5@100) Good Evening. I will continue to post here until I see my doctor and get my prescription and start phase 2. I am excited about it. It is kinda like when I had my tonsils out in third grade. They promised me ice cream and pop cicles. They came through with the goodies, I just didn't want them, my throat hurt. I have a lot of reading to do over the next week. My sleep was not very good last night. I kept waking up every hour or so. I got up this morning and felt ok, no major herx. The cough I have become used to and a small head ache. Tonight my feet are burning, my left chest is hurting and my shoulders are aching and feeling heavy. I am looking forward to going to bed tonight plus I am off work tomorrow. Have a great evening, RevDennis |
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RevDennis Member in Phase 3
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Day 68- Benicar 40q6h Day 58 - Mino 100q48h Good Evening All. Was awake a lot last night. Aches and pains all over. Very low level of herxe all over today. I laid down at 2 pm because I was a little tired and didn't wake up until 6pm. It really supprised me. I have been lathargic all evening. I still have a bit of a cough. Nothing new happening. Have a good night. RevDennis |
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RevDennis Member in Phase 3
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Day 69- Benicar 40q6h Day 59 - Mino 100q48h Dose 28(dose 6@100) Good Evening All, Well I made my appointment with my Dr today for Friday. It is a 6 hr round trip drive so I will be changing my benicar schedule for it because of the sun exposure. I will get my prescriptions for my phase 2 then. I took my mino dose last night. Slept so so. I woke up several times and my sleep was restless and not good and deep. Part of that is because of coughing fits I keep having. I sat next to the bed before laying down and coughed solid for 15 minutes. It is bringing phlem up. It makes my whole body sore and makes my chest feel tight and burn. I got up at normal time and went to work. The only real herx was the continued cough and some sinus congestion. Got off at noon and after lunch I laid down for a couple of hours. Again, it was restless sleep. I was very tired when I woke up and very light sensitive. I sat in the dark about an hour after I got up just listenng to an audio book. I am still light sensitive and I am very tired tonight. I am having some herxing in my ribs and upper back and neck. My head sort of feels like it is in a vise. I took some tylenol a little while ago for it. Nothing major happening. Still have the cough trying to clear my lungs. Have a great night. RevDennis |
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RevDennis Member in Phase 3
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Day 70- Benicar 40q6h Day 60 - Mino 100q48h Good Evening All. I slept ok last night but woke up at about 6:15am short winded. I had to go ahead and get up because I started coughing. Outside of a cough, the herxing is low level right now. Just some tingling in my feet, loud ringing in ears and pain in upper back and neck. I will be glad when I see my doctor so I can move on and start herxing again. Can't believe I said that, but no pain, no gain, right? Well that's all for tonight. Have a great night. RevDennis |
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RevDennis Member in Phase 3
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Day 71- Benicar 40q6h Day 61 - Mino 100q48h Dose 29(dose 7@100) Good Evening. Well, I think can say that I am sleeping a little better now. I am waking up during the night still but I am falling back asleep fairly quickly. When I get up I am short winded and cough alot. Very light headed at first. I felt ok today but have a low energy level. I had some mouth and teeth pain for about 30 minutes earlier today and then just odd ball pains here and there. Just quick ones that last a minute or two and then go away. Until tomorrow, Have a great evening. RevDennis |
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RevDennis Member in Phase 3
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Day 72- Benicar 40q6h Day 62 - Mino 100q48h Good Evening, I slept pretty good last night untill about 5 am. Then I started sneezing. Try sneezing with a cpap nasal mask and O2 on. My sinuses completely closed and I could not breath any more. I ended up getting up early. My sinuses have been giving me problems all day with runny nose and sneezing. That and heartburn were the only real problems I had in the morning. By after noon the sinus problem was still bad and I sarted coughing. I had to go to a pastors meeting on the other side of Houston tonight. I covered up and left with my family at about 4 pm. It took 2 hours to get there and I just got home a few minutes ago. (12:30 am) I am extreemly tired and I hurt all over and I keep coughing. I probably got too much sun exposure. I can't waite to go to bed. I just have to stop coughing and stop sneezing. Have a good night. RevDennis |
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Aussie Barb Research Team
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RevDennis a reminder: Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal.. all best, Barb ... |
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RevDennis Member in Phase 3
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Day 73- Benicar 40q6h Day 63 - Mino 100q48h Dose 30(dose 8@100) Thanks Barb, Good Evening All. Well, I am feeling better now. Last night when I wrote my report I was totaly wiped out. I had a meeting and had 2 hrs of sun light exposure. I was covered as much as I could as I drove. But good grief, I almost pulled over coming home to let my wife drive and I probably should have. I had a brain herx and I could not even think as I was driving home. I took my benicar when I got home and my mino. I am happy to say that I slept great. I think I woke up once with a stuffy nose but I am not sure. I slept in and opted not to go to the meeting this morning. I stayed in and worked on a clients financials for his corporate taxes. Today I did well. My sinuses were not bad like yesterday. I watched a rented movie with my youngest daughter around noon, she's on spring break. Worked some more after that. I laid down at 5pm. and slept until 8 pm. I was supposed to take my benicar at 6 but slept through so I took it as soon as I woke up. I slept very well but I felt terrible when I got up. I had a headache and hurt all over. I took a couple of tylenol and then started feeling better. Tonight I feel ok with no real herxing. I have my doctor appointment Friday and it is a 3 hr drive each way. This will be my first visit since starting MP. I will definately do what Dr Marshall recomends for light exposure. There is no way I want to go through this again. I am looking forward to getting my phase 2 prescription so I can start. Have a great night. RevDennis |
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RevDennis Member in Phase 3
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Day 74- Benicar 40q6h Day 64 - Mino 100q48h Good Evening All. I have not had much herxing today. I Slept ok last night, even though I woke up several times, I went back to sleep quickly. I have had some preasure in my neck and head. Also The persistant cough and stuffy nose. Good night all. RevDennis |
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RevDennis Member in Phase 3
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Day 75- Benicar 40q6h Day 65 - Mino 100q48h Good Evening All. This is day three of my mino. I did not take my dose to see what would happen. Well, I slept well last night. I got up and went to work. I coughed a bit but no pain this morning. I got off at noon and took a nap around 2 until 4:30. This afternoon it seems I have had some herxing. Very low grade. I have coughed a lot and have had a lot of sinus drainage. Also my feet have been burning and shoulders and neck have been achey. I will be upping my benicar tomorrow because of going to my doctor. Unfortunately it is about a 3 hour drive each way. I hope it is cloudy but I'm not holding out much hope. I should be getting my phase 2 perscription so I look forward to new experiences. I will take my mino tonight and go back to my 48hr schedule. Have a great evening. RevDennis |
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RevDennis Member in Phase 3
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Day 76- Benicar 40q6h Day 66 - Mino 100q48h Dose 31(dose 9@100) Good Evening. Slept ok last night. I woke up around 3 soaking wet in sweat. So I had night sweats. I went back to sleep and slept until my normal time. I have been on benicar every 3 hours today because of my trip to the doctor. I left at 10 am and got home at 7 pm. I am very tired but better than the other day when I had exposure. The doctor appointment went well. My lungs have no tolorance for any exercise or walking. My saturation drops instantly when I walk and takes about 20 minutes to recover. Just walking 20 feet to the exam room my sat was about 84 with me on O2 at a level of 2lpm. It takes about 20 minutes of me being still and quiet for it to get to its highest of 93%. So this has not changed. My blood preasure is better because it had been high. My lungs have made a change in their sound. The have always sounded congested with crackels but dry. Now they have crackles still but they sound very wet. Has anyone else experienced this? Overall I am no worse and maybe some better since I started MP. My doctor and I are happy about this and are looking forward to seeing the progress on Phase 2. I did not expect progress during phase 1 since I am in such bad shape. The doctor warned me today to protect my lungs, brain and other organs and not move around much because of the O2 blood drop is dangerous for me. I guess I will need to make some more changes but I still have to work. I don't have a choice. My doctor is excited about the MP. It looks like she has agreed to take some patients from another doctor that is moving that are on MP. She is willing to do things exactly as the protocol calls for. I am glad I found her. I am very tired tonight and this cough is driving me crazy. It is productive with a foamy phlegm. I cough so much I loose my breath and get light headed and my chest starts burning. Well, thats it for tonight. Have a great evening. RevDennis |
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Foundation Staff. .
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Rev Dennis, I'm sorry you had to endure the drive, but maybe you can rest up some over the weekend. LOL! I know you will be working on Sunday. I always seemed to cough more as I tired, and sunlight exposure definitely made me cough more. "Foamy phlegm" is a good description of what I coughed up. I tried to spit as much of that out as I could, thinking there's no point in recirculating any bacteria. "Wet lungs" was term I often used to describe my lungs. Breathing with sarc made my lungs feel the way my feet feel walking in rain-soaked tennis shoes. It felt "squishy" with each breath - not a good feeling! Have you tried any of the postural drainage positions yet? It might help. Remember that you are still in early days. There are no prizes for going too fast. Use any of these tools to keep the Herxing tolerable. Belinda |
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RevDennis Member in Phase 3
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March 18th Day 77- Benicar 40q6h Day 67 - Mino 100q48h Good Evening. Last night I did not get to post. We had company in so here it is. Slept ok but got up tired and achey. I stayed inside all day. I had a lot of coughing fits. I went back to my normal benicar dosing. I felt basically well and went out after dark with some friends that came into town to go on a cruise. We ate at a resteraunt and came home and talked until about 1 am. March 19 Day 78- Benicar 40q6h Day 68 - Mino 100q48h Dose 32(dose 10@100) I went to bed about 1:30 am. I woke up at 3 am hurting all over and soaked in sweat. I was going to take a benicar but fell back to sleep. I woke up a couple of more times and was still hurting each time. My alarm went off at 6:30 and I got up. I was hurting so bad and coughing so much I was too afraid to take my morning shower. I was afraid I would black out and hurt myself. I had alread planned for my friend that came in to preach for me today, he pastors a church up in Missouri. I almost stayed home because I was feeling so bad. The benicar worked to calm the herxing down so I went on to church. I was very short winded. After church we went out and ate and we dropped my friend and his wife off at the cruise terminal for the trip. We came home and I went to bed. BTW, the terminal is only about 5 minutes from my house so it was not a big trip. I woke up a little later than I had planned and felt terrible again. I got up and took a benicar. After about 20 minutes my blood sugar started dropping so I took a teaspoon of honey and that solved that problem. I stayed home from church tonight and I am still hurting all over. My lungs are sore and I still have a cough with foamy phlegm. I guess some of this is still from the day trip last Friday. I had basically stopped herxing prior to that trip. I am ready to start phase 2 but I want to get this settled first. I am hoping tomorrow will be better. Have a great evening. RevDennis |
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Morris W. Milnes Member
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The foamy phlegm is exactly what I get. When it is in the bronchial tubes it makes it harder to breathe but has been coming up fairly easily lately and when I do Barneys breathing exercises I start coughing and get a good bit of it out of the way. Morris |
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RevDennis Member in Phase 3
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March 19 Day 79- Benicar 40q6h Day 69 - Mino 100q48h Thanks for your comments Belinda and Morris. Good Evening All. This will be my last post to this forum. I will start my Phase 2 meds tonight and will post on the phase 2 forum from now on. I will do my best to regularly report to the phase 1 alumni forum also for those on phase 1 and those just considering MP. This was day 2 of my mino and herx was very low. I have had a bit of coughing still and nasal congestion. I am very short winded but the dr attributes that to the condition my lungs are in. I woke up a number of times last night with night sweats and some of what I can only call breathing anxiety. I sleep with a cpap nasal mask with additional O2 connected. I kept waking up with the feeling that I was struggling to breath and would have to mentally force myself to calm down and slow my breathing and get it under control. This is a new experience for me. My nose was a little stuffy but it seemed to be more mental than physical. I have not read that this is a problem with anyone else but I don't know how many sleep with a cpap like I have to. Anyways, I am looking forward to new experiences. Have a great night everyone. RevDennis |
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Aussie Barb Research Team
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Thanks RevDennis Your report has been moved to Phase One Alumni Forum if you wish to post further.. also if you have any questions re your Phase 2 dosing before you start, do let us know.. and please see the detailed Information Posts at the top of the Phase 2 and 3 Forum, and the reports of others are also helpful.. thanks, all best, Barb .... |
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RevDennis Member in Phase 3
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Day 99 MP, Level 1, Cycle 3, Day 10, Good Evening All. Hey all, it has been a while since I posted on the open forums. I am still alive and kicking and moving forward on the MP. The last couple of days were tough but I probably overdid it at Easter since I am a preacher and had the extra services for this spacial day. Here is my report for tonight. Last night I did not sleep very much. I just lay there not able to sleep thinking about breathing since I was having a little bit of difficulty. It just seemed like my lungs would not expand right and I kept getting phlegm that I would have to clear. I was very tired today. I got up and went to work, forcing myself. No work, No pay. I have coughed a bunch and still am short winded. I am having some pain in my neck and shoulders tonight. That is about it. I will start a new cycle tonight but I will stay at the same levels that I am on now. I was hoping for an easy one because this cycle started easy but changed. I am hoping for a better one coming up. The one thing that I am seeing watching others is to not rush through the levels because I might miss some bacteria and then have to come back to it. I would rather get it now. It just isn't easy. Have a great night all. RevDennis |
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RevDennis Member in Phase 3
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Day 190 MP, Level 1, Cycle 12, Day 5, B 40q6h, M 75q48h, abx, 500mg Quercetin as needed, 600mg guaifenesin as needed Good Evening All. I didn't realize how long it had been since I reported here. am doing better. My last Dr appointment surprised my Dr. My lungs had improved and my heart mummer disappeared. Not bad for six months. Here is my report for tonight. I just went up on my meds and I am having some strong herxes but they are tolerable. I am still coughing a lot. It makes it rough at night trying to settle down to sleep. I got to sleep around 1 am and woke up a couple of times. I was very sluggish when I got up and it went downhill from there. I went to work. The cough was almost constant and nonproductive. By 3 pm I was hurting all over. I felt like I had the flue. I came home and went to bed. I slept for almost 5 hours. I still feel bad and the cough is persistent. My nose is very stopped up tonight also. I am guessing this all is a herx. I just wish the cough was productive. I get very light headed while coughing and almost blacked out a couple of times today while coughing. I really hate that. On a different note. When I woke from my nap, as I laid in bed I was able to flex my lungs breathing deeply. I would stretch different sections. It of course was helped by the CPAP being on giving me extra air pressure, but even a month or two ago I could not do that. My lungs were too stiff and tight. Little by little there is healing going on. Have a great night. RevDennis |
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