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DianeC Member in Phase 3 
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from Benicar DianeC Today was my first day on Mino 28Jan @25mg Benicar 40mg q6h since 10Jan I took my dose at 12 noon. My biggest problem was trying to divide the powder equally. When I opened the capsule I poured some of it into the larger empty vegetarian capsule and saved that for my next dose to be taken 48 hours from that dose. Is it imperative that it be exact?  as I will be taking the remainder of the capsule's contents in 48 hours. I wasn't sure how to copy and paste the URL from the previous "Benicar only" thread to link it to this new thread There is really nothing more to report at this time but then again it is early yet! Happy to have started the mino!  Best to all of you!! DianeC |
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Aussie Barb Research Team 
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Diane Welcome to Mino forum. Your lead in link has been added.. and also, when you have finished typing your text, pressing and holding the delete button for a while will take up the excess white space. thank you. re dividing the mino: whether or not you are taking the remainder in 48H, the contents would be better to be as close to halved as possible each time, as MP operates in this moment, this day. there are some methods discussed in this FAQ and the links within. or you may be able to get tablets for more convenience. How do I take a low dose of minocycline when the capsules only come in 50mg? let us know if you have any questions. all best, Barb ... |
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DianeC Member in Phase 3
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Today is Day 2 Mino @25mg Benicar 40mg q6h This morning I did not want to get out of bed and was awakened at 11 AM by the phone But amazingly, once I got going, I was like the energizer bunny and I am still going strong almost 16 hours later I feel pretty good today! Possibly the calm before the storm?Tomorrow at 12 noon I will be taking my second dose of 25 mg mino Barb, thank you for welcoming me to the mino forum; I am glad to have progressed to this step Thank you for the links regarding dividing the mino. There were alot of tips and helpful suggestions which I will try. Once my capsules are gone I will request the tablets as I see that they will be so much easierBest wishes to all DianeC |
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DianeC Member in Phase 3
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Today 30Jan I took my 2nd dose of 25mg mino at noon. I am thinking that I should change the time that I take it (I sleep from approx 3 AM or 4 AM until 12 noon) Upon awaking at noon I have my decaf, a pear and some almonds...that is breakfast but that may too much food to be taking with the mino??? I know a few years ago when I was on doxy, I had to take it with food as I would get an awful stomach ache, but then again, now looking back in retrospect, that was probably herxing and I should have endured and not suppressed it Last night I slept so soundly!! It was wonderful! Fireworks could have been going off and I would not have heard them The only problem is that I do not want to get up at 12 now and would rather just stay in bed I think my herxing will be starting in the feet and lower leg area. My feet have been icy cold these for the last couple of evenings and I have found to avoid those terrible toe and foot cramps, I put the heating pad on them for a few minutes My question....should I NOT use the heating pad and let the cramps occur as part of the herx instead of dampening it My fingers are also cold and raynauds has returned. Tom asked the pharmacist today if they had a little gadget (plastic holder or ??) to assist with dividing the capsules and she said that because the capsules have filler in them, how do you know you are getting equal parts? When I run out of capsules I think I will ask for tabletsWell I am getting sleepy so will say goodnight and best wishes to all DianeC |
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DianeC Member in Phase 3
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Today 31 Jan Benicar 40mg q6h I will be taking 25mg mino tomorrow. Today I felt the best I have felt in a very long time and I can't understand why? Bounds of energy! No herxing today only the start of the icy feet but did not lead to cramps. I take my Benicar every six hours and can't remember if I took my 12 Am dose. I use a pill divider but must have gotten distracted and so I am not sure. Instead of waiting the 6 hours, should I take one in 4 hours so there is no chance of losing the inflammatory blockade? Or because I do take it every 6 hours would I be covered? Is it more effective taking the mino without food? Looking forward to what tomorrow will bring! Best to all! DianeC |
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Aussie Barb Research Team
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Diane see FAQs Why do we take minocycline only every other day? Why do I feel worse on the second day? What time of day should I take it? What times should I take my Benicar? What if I forget a dose? taking another in 4H is safe. see safety of ARB here. all best, Barb ... |
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jillian Member in Phase 2 
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DianeC, Welcome to the MP! Like you, I too have had 'energizer' Herxes, also had the 'just wanna stay in bed' Herxes. and LOTS of the 'can't get warm' Herxes. Between Herxes, I've also felt better than pre-MP. And, don't get too concerned about dividing the Mino just do your best! For me, a 'pill minder' that has four compartments per day, for 7 days (Walmart for around $7 I think) has been invaluable. I load up the Benicar, and put the mino in as expected. As the brain fog heightens, which it inevitably does, I found I don't remember much of anything about which meds I did or didn't take. You may want to review HELPFUL HINTS FOR THOSE ON THE MARSHALL PROTOCOL Even though I had been reading sarcinfo and MP.com for years, when I started the MP it helped me a lot to re-read other peoples Progress Reports (even the older ones). Actually, it continutes to be a big help for me! I was amazed at how differently I read them once I too was on the MP .Happy Herxing and 'til later, Jillian from North Dakota Last edited on Wed Feb 1st, 2006 17:40 by jillian |
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DianeC Member in Phase 3
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Hello Jillian! Congratulations to you! I see that you are already in phase 2 so it sounds like you are doing well When did you actually start MP and do you have different herxes now than what you had at the begining?If I had known that my herxes initially were going to be ones filled with intense energy I would have started MP sooner! Thank you for sharing that these energizer herxes also happened to you It is interesting how people can herx in so many different ways. I have to laugh now looking back as I prepared to start MP by getting everything in order including the walker by my bed! I really expected more dramatic changes but I am very pleased with the transition I realize that the bad herxes have to come too and I am ready to accept them in order to get well and will welcome them! Yes, I just about mutilated the mino capsule today! Trying to open it was the first challenge Thank you for the tips and links!Thanks again, Jillian and Happy Herxing to you too!! DianeC |
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DianeC Member in Phase 3
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Today 1 Feb Benicar 40mg q6h Mino 25 mg Again today I was filled with energy like nothing before and was able to get so much done! I realize that this will probably not last and I am ready for whatever comes I am sleeping so soundly now and believe that because my body is so rested that that could be contributing to the extra energy I have all day and night long, but at the same time I do not want to get out of bed when it it time I am adhering well to the diet with absolutely no Vit D or folic acid and I rarely go outdoors. I noticed that I am not limping at all now like I was weeks ago My NOIRS are on constantly except for sleeping and taking a shower and it seems now that my perception of light is brighter than before looking through the NOIRS. Color perception is a little off as well. Today I took the mino a short while after breakfast instead of with it with no stomach upset so that was nice Wishing all of you good health DianeC |
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jillian Member in Phase 2
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Diane, I started the MP 10/10/05. Another similarity we've shared is that, except for while Herxing heavily, I've slept much, much, much better. Isn't sleep WONDERFUL? My sleeping patterns have been skewed at times, up all night/sleep all day (or some version thereof), but when I sleep, I SLEEP. My sleeping fluctuates from 3-4 hours to 20 hours, with the usual about 8 hours. I make sure I do my Mino capsules before I trim my fingernails. Amazing how thin, yet tough, those capsules are! I squeeze the capsule gently around the middle a couple of times before opening, seems to me it loosens the joint a bit... Re Herxing--especially now on 100mg of Mino (been here a few weeks), I've had a 'usual' group of symptoms, with a one or more of them intensifying. Sometimes a symptom will drop off, or another will come on! Although you haven't yet experienced a heavy/strong or so-called intolerable Herx, keep in mind Aussie Barb's words of wisdom 'do not hesitate' to use your Beni and/or Mino to see what they do. Many of us have found we've stretched the definition of intolerable because we've lived so long with intolerable disease symptoms, so we hesitate. Just do it! 'til later, Jillian |
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Bill Member in Phase 3 
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Hi DianeC I have also started mino about a two weeks ago and before i did i found that MYRAC is a sub for mino it comes in a 100mg. tab it is scored and with a cheap pill cutter no more powder to mess with. Good luck Bill |
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DianeC Member in Phase 3
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Hi Bill, It is so nice to hear from you Thank you for the information regarding splitting the mino. I never heard of MYRAC but will look into it as soon as I am ready to renew my prescription. I wish you all the best of luck in your quest for optimal health with just enough herxing to make it tolerable Best to you! DianeC |
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DianeC Member in Phase 3
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Hello again Jillian! Wow, it really looks like you are progressing well! Did I read your signature line correctly whereas by Nov 17th you were already taking 100mg of mino every 72 hours?? I guess that means that you are in phase 2?How were you able to get through Phase 1 so quickly? Did I read somewhere that sometimes phase 1 can take 3 months? I guess it is different for everyone and we have to listen to our bodies to know when we are ready to advance to the next phase. I am so happy for you that you are doing so well with just enough herxing to be tolerable but not unbearable Well today my "energizer herx" ended! Today was alot different than the last 2 days! My left side particularly the hip is my weak area and today I started getting sudden jolts of pain mostly when walking and my balance was off a little. Last summer the orthopedic surgeon stated that in 2 years I will need a hip replacement but since I am now on MP I have hope that maybe my health will improve so that I will not need that Again, Happy Herxing to you Jillian!! DianeC |
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DianeC Member in Phase 3
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Today 2 Feb Benicar 40mg q6h Tomorrow 25 mg mino Well today was alot different that the last 2 days! Started herxing! My left side (particularly the hip) is my weak side where I have most of my problems including pain, difficulty walking and slight loss of balance. You wouldn't think I had any of those problems the last few days; in fact I can't remember when I limped last. But today while walking I would get sudden jolts of pain in the left hip and groin area consequently I started walking very gingerly. Last summer I was told I have bone spurring there and loss of cartilege & will need a hip replacement within 2 years My energy level was diminished which is quite different from my usual rising at 12 noon and going until 3 or 4 Am sometimes without much of a break. I just seemed to be moving at a slower pace today. I still have that metallic taste every morning which does not seem to want to go away A few other minor things going on but nothing serious No icey feet today and no cramps! Wishing all of you Happy, Tolerable Herxing! DianeC |
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jillian Member in Phase 2
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Diane, I am still in Phase I--100mg Mino is the highest dose on Phase I. Actually, today is day 116 on Phase I for me so I'm just over three months. I suspect I'll be here a little yet, I'm NOT ready to add to the Herxing, and I haven't gone into a general downward spiral that would indicate I should move on either. FYI, in Phase I I had 5 doses of 25mg Mino; 3 doses of 50mg Mino (barely had any Herxing); and so far 16 doses of 100mg Mino (have made up for what didn't happen at 50mg ).Phase II begins when we introduce a third medication to the Beni + Mino combination. I do have my Phase II meds so will just watch and see what my body/mind want to do. I'm pretty conservative about when I'm ready to increase my abx dosage--after reading sarcinfo and MP.com for three years I've seen what can happen to people that do rush (go by a plan instead of what their body wants). I wanna get as many of the buggies here in Phase I as possible so I don't have to get them AND the ones targeted by the added abx. I must admit that on some emotional levels it's been interesting to watch others proceed to Phase II more quickly than I have. I knew I had a competitive nature, but didn't realize how much . That's been part of the Phase I surprise for me, the attitudes I've needed to work on (such as doing things 'right' in general instead of what's right for me, feeling I needed to 'tough it out,' etc.). I'd be intrested to know if you find you hit any such issues...I too hope that the MP resolves some of your hip issues. Don't be surprised at having continuous pain in those areas, lots of other MPers have had a tough 'hip time' too. One of my body's weakest spots has been my mouth. I've had over 24 hours of periodontal surgery and have had facial bone pain for nearly 2 decades (no one could figure out why). Now I can tell 'em--CWD bacteria! My Herxing patterns since beginning the MP seem to always include theses areas to some degree, sometimes pretty uncomfortably. Remember that it's okay to use pain meds on the MP. You don't have to tough it out. 'til later, Jillian |
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DianeC Member in Phase 3
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Day 25 Benicar 40mg q6h Day 7 mino q48h Today was my 4th mino even though it is my 7th day since I started the mino so have I stated my first line correctly in blue? The herx chart is very helpful and I have been using the blank version as it seems my herxes are different than those on the filled in version. Today was similar to yesterday regarding the diminished energy level. I slept until 1:30 PM instead of 12 noon but felt I needed the rest There was hardly any hip pain todayMy shoulders felt very heavy especially the right one to include the right shoulder blade. It felt like activity under the skin much like inflammation More so heaviness and not so much that burning feeling that I had experienced during a workout a few months ago. I sat doing paperwork for hours earlier this evening and I am right handed and that heavy feeling traveled down my arm to just about the elbow. I do believe that any exercise triggers the mycoplasma activity to include intense heat in the chest area. I also believe that I have a lot of mycoplasma in the muscle tissue. My cpk has been elevated since 1997 (that was when they first started testing it) In the year 2000 they had done a muscle biopsy on my upper left arm which came back without any noticeable problem. But then again I don't think that they would be looking for CWD bacteria in a muscle biopsy?? I love to exercise so I look forward to the day that I will be able to do it again and not suffer the consequences Happy Herxing to all! DianeC |
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DianeC Member in Phase 3
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Hi Jillian, You were very wise to read and gain as much information as possible from others who were on the MP before you started. I had been aware of it and seriously started reading about it since last August For 3 years I was prescribed doxy 200 mg per day and although it saved my eyesight I had the most awful pain (I believe now that I was herxing) but did not have the protection of an inflammatory blockage like Benicar It was the worst chronic pain I had ever suffered in my life and at the time thought that it would never end and I did not know how I could go on. After 3 years I had to get off the doxy as it was causing its own problems. In the back of my mind I worried that some resistant mycoplasma would come back. When I had heard and read about MP I knew that that was the solution for me and it put hope back in my life From reading your post it really looks like you have a good handle on juggling the meds to get the desired result Almost like a balancing act. You are wise to stay at phase 1 long enough to thoroughly get the job done before progressing to the next phase. I feel alot like you do in that I am in no hurry to progress to the next phase until I am ready As far as herxing I do believe that I will be able to handle whatever comes as I feel it could not be as bad as what I have experienced in the past. It is wonderful to "want to herx" because at least now we know that it is only temporary and that is the big difference. I am still trying the grasp more of the technical information from your post pertaining the the dosing schedule but I guess that will come with time. Am I understanding it correctly that by making the herxes more tolerable we are actually doing our bodies a favor in that the healing process will be easier? But at the same time the bug killing will be just as effective??You seem to be progressing along very nicely Here's to more Happy Herxing! DianeC |
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Aussie Barb Research Team
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Diane It is a good isea to be familiar with the Information before you need to use it, although it does become more understandable in practice.. Learning to adjust your medications to achieve tolerable herx is a must to stand you in good stead thru all circumstances.. Have a look at some of the terms used in this FAQ My Herxheimer reaction is too strong. What should I do? .. Do not hesitate to use any of the meds adjustments. Check these options one at a time to assess and adjust your own situation. Tools to check: << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you. in part: By adjusting the medications you are gaining the flexibility required to balance all tolerably, learning by your own experience how the MP works, learning how to control your symptoms / Herxing before proceeding to the antibiotic combinations in Phases II and III. The Board Staff is available to help you. Don't ever hesitate to make these adjustments to keep all Herxing at a tolerable level for you. Do not 'push' the intolerable Herxing. Dr Marshall wrote: There is no point in pushing your body too hard, and you might do damage to it. You will not be slowing your healing by keeping Herxing tolerable. Tolerable Herxing is essential for Safety and Efficacy of the MP. << you may find any of this information by clicking on the ABC in my sig line and scrolling down thru the alphabetised links.. or by reading others progress reports and the replies. I hope this is helpful. all best, Barb .. |
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DianeC Member in Phase 3
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Day 26 Benicar 40mg q6h Day 8 Mino q48h Thank you, Barb, for responding to my post and for the links! I am feeling more and more comfortable each day with navigating the site Today was much like yesterday. I am ususally very active and moving around all day but today I was forced to sit for hours doing paperwork Other than the heavy right shoulder and arm and the need to sleep longer before waking, I can't think of any other really bothersome symptoms I am ready to feel a little worse but we'll see what happens as tomorrow I will be taking the mino againI did check the food link and could not find the answer to the following question? I love organic peanut butter and I have it each night around 3AM on a slice of whole wheat/oat bread. I thought I saw somewhere that peanuts contain folate? It also helps me sleep although at the same time does not help the waistline but then again this is just temporary. I also love dried apricots and because they are yellow in color wondered if they contain yellow dye or is it natural. Sulphur Dioxide is added as a preservative. Sorry about the food Questions Appreciate your concern and guidance!! DianeC |
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Aussie Barb Research Team
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Diane re folate Q: see FAQ Why should I avoid folic acid supplementation? It isn't necessary to drastically reduce foods naturally high in folates. Especially if one is avoiding processed foods that are supplemented with folic acid. Please see: FOODS TO AVOID and FOODS SAFE TO EAT You can buy naturally dried fruits, at Trader Joe's and health food stores that don't contain sulphur dioxide, or dry your own. Just look on the label. When they don't contain it, you will most likely have to refrigerate them after opening. others may have experience. all best, Barb ... |
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DianeC Member in Phase 3
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Day 27 Benicar 40mg q6h Day 9 Mino 25mg q48h Thanks again, Barb for the food links I will discontinue eating the dried apricots and will continue to eat the peanut butter. Today was a mino day and about the same as yesterday with no additional herxing. I just feel that very deep muscle involvement in my shoulder and arm area. I am not experiencing the herxing that I thought I would be but then again I am wondering if the mycos are deep within the tissues and it is too early for the mino to have any tissue penetration? Could the fact that I was on doxy for 3 years with herxing (it took me 4 months before I started to herx) affect the way the mino is working now in that I have alot of resistant bugs to kill? and they are hiding wellWishing all Happy Herxing DianeC Last edited on Mon Feb 6th, 2006 07:43 by DianeC |
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Aussie Barb Research Team
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Diane The herxing in MP is often not as difficult as some imagine or have gone thru before in other treatments, and of course will vary between individuals. re some of the factors that may influence.. see CELL WALL DEFICIENT BACTERIA AND THE MARSHALL PROTOCOL says in part There is definitely a variation in the effectiveness of various antibiotics in patients. The factors seem to be: 1. Patient's prior exposure to the antibiotics 2. Strength (or weakness) of the patient's own immune system 3. Species of bacteria present 4. Concomitant health problems - eg kidney failure 5. Concomitant infections - eg fungal, viral 6. Medications being taken by the patient Phase one is the training ground for gaining experience.. reading other progress reports is helpful also. all best, Barb ... |
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DianeC Member in Phase 3
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Day 28 Benicar 40mg q6h Mino 25mg q48h Hi Barb, Thanks again for the info and links The factors you have listed do make alot of sense in that there can be so many variables and I imagine no 2 people are exactly alike in what they experience.Today I started to feel a little worse Could have stayed in bed all day long but had to get a few things accomplished. Woke at 12:30 PM and took a 3 hour nap at 5 PM Also more lightheaded mostly when having to bend down to pick something up or from a seated position if the phone rings. For many years I have not had any underarm odor and now I do so I think my sweat glands are starting to work Your post about the burnt rubber was interesting.Minor symptoms from the start that are still with me are: metallic taste in mouth upon rising in AM scalp and hair had initially thinned some and scalp and hair is sore to the touch still have the sniffles every day as if trying to get a cold but never happens raynauds circulation issues are present fingers and sometimes feet requiring alot of sleep now (no cramps, icy feet, muscle or hip symptoms today) I wear the Noirs continually and now the computer screen, tv etc. seem as bright to me as they did before I began the MP Once in a while I will tip the glasses to get an idea of the brightness without them and it is a blinding light I feel that I am progressing along slowly but that is fine......slow and steady does it Take care and stay the course! DianeC |
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DianeC Member in Phase 3
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Day 30 Benicar 40mg q6h Mino 25mg q48h Had computer problem last night so I was not able to post message. Stayed up doing paperwork bright eyed until 5AM and slept until 9:30AM, read for 2 hours and back to bed until 4PM Sleeping so soundly that I never heard the phone right next to the bed. Symptoms today are basically the same as my last message. Herxing is very mild at this point. Tomorrow I will be going outside so will be sure to apply the K-cream. Tomorrow is a mino day and I will increase the Beni to every 4 hours. As far as the mino, I have been splitting the capsule and thowing the other half away as it is much easier to do. Wishing all of you happy and effective herxing! DianeC |
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DianeC Member in Phase 3
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Hello Barb, I had lost some of the links to this website as a friend suggested that I delete all internet files and cookies so had a little trouble getting back on. The reason I am writing is that I am feeling very lightheaded. Every time I stand from the chair I feel very faint and don't want to be far from the chair. I slept all last night and was up briefly today and then slept all day. I was outdoors this weekend but protected myself fully even in the evening with K-cream as I was exposed to flourescent lighting. I am due to take a Benicar but not sure if I should? Should I only take the Benicar every 8 hours? Will this lightheadedness go away on its own? The light does have a very profound effect on me; even just a little bit. I am on schedule with both meds. Thank you! DianeC |
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Aussie Barb Research Team
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Diane To get to your own post each time you log in... go to the my account button up the top. and the link will be there.. see the FAQs Why am I dizzy and/or fainting? is it a Herx symptom? Do take care when changing positions... getting up more slowly, holding firmly, etc, so that you do not fall and hurt yourself. make sure you are adequately hydrated. and do check with your Dr if necessary.. How does Benicar work? Why is it superior to other ARBs? Should I take it every six or eight hours? When and why should I vary my Benicar schedule? Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal.. For those like yourself who are very sensitive to bright indoor light the same Benicar suggestion may be helpful. Let us know if you have further questions. all best, Barb ... |
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DianeC Member in Phase 3
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Thanks Barb! This information was all very helpful and I have just taken 1/2 dose of Benicar. I will read and re-read it again later as my brain right now is not at its best comprehension I think I will go rest now and come back to the site later I realize that this is all a good sign that my body is responding to the protocol! I am happy that it is working and that means that the pathogens are being killed! I am up for the fight! Best to all! DianeC |
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DianeC Member in Phase 3
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Day 34 Benicar 20mg q6h Mino 25mg q48h Reducing the dose of Benicar did lesson the lightheadedness. I will continue to stay on this schedule as long as there is no chance of losing the inflammatory blockade Last night after sitting for awhile reading with my feet elevated, suddenly got the worst foot cramp I have ever experienced! If this had happened before MP I would be thinking I was going to die! That's how bad it was I grabbed the heating pad and put it on high and wrapped my foot in it and just waited for it to subside. Just knowing that it would be over soon and that it was evidence of herx made it so much easier to tolerate I believe I read somewhere on the site that the herx is the worst near the end of the 48 hours cycle as that is when the ABX decays and makes the bacteria more suseptible. I wasn't sure if that was only initially when starting the protocol or nearing the end of every 48 hour cycle? I can't believe that now I am actually looking forward to the next one!! I did feel so much better today! Fortunately so far it has only happened at home and not out.Still sleeping very soundly, that is, once I finally get to bed Still no more limping which I am very happy about Happy and Tolerable Herxing wishes to all DianeC |
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Aussie Barb Research Team
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Thanks Diane you may have seen Why do we take minocycline only every other day? Why do I feel worse on the second day? If you read the progress reports you will find that the herx is very individual to each person.. Phase one is the training ground... a time for gaining experience in the essential aspects and in adjusting your meds to herx tolerably etc.. see also I'm eager to get well. How can I speed up my progress on the MP? all best, Barb ... |
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DianeC Member in Phase 3
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Thanks Barb! I am having alot of trouble sleeping tonight I went to bed a couple of hours ago and rested but just could not get to sleep so decided to get up again. Could it be because I lowered the Benicar to 20m q6h?? My head felt like I could be going through some mild herxing (dull feeling but not quite a headache) neurological herx? So I just had a decaf with a little plain cocoa and half and half and some pita bread and I feel better but not sleepy enough to go back to bed. I just clicked on the links you provided and read through them. How long does one stay on the 48 hr dosing of mino before considering switching to the 3 day dosing for more herxing? Well I am going to try to go back to sleep; my head feel like it could be herxing or just lack of sleep Thanks! DianeC Last edited on Tue Feb 14th, 2006 12:02 by DianeC |
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Aussie Barb Research Team
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Diane If you have an exacerbation of your symptoms while reducing the Benicar you may increase to 40mg Q8H or the recommended dosage of 40mg Q6H and see if you are better or worse. Some who use the reduced Benicar dosing do use the 40mg at night for better sleep. see FAQ When and why should I vary my Benicar schedule? To avoid too many variables at one time, when you have established your Benicar symptoms and dosage, you may like to experiment with extending the mino. If the symptoms look like going past tolerable, that too is rectified by taking your mino dose. all best, Barb .... |
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DianeC Member in Phase 3
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Thanks Barb! That all makes so much sense now! Yes, I will try that and most definitely take the Benicar 40mg at bedtime and will vary the mino to adjust the herx symptoms I did finally get to sleep and slept very soundly until 2PM My head still has that dull headache feel. Does this mean that I am killing bugs or is it more due to the change in dosing or a combination of both? Just good to know if it means that bugs are being killed! Best! DianeC |
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Aussie Barb Research Team
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Diane Many who have been symptomatic can find it difficult to define herxing from previous symptomatic condition. As long as you follow the essential aspects of the MP diligently and adjust your meds to tolerable herxing, you should be gaining experience. see HERXHEIMER REACTION. all best, Barb .... |
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DianeC Member in Phase 3
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Thanks Barb! Day 35 Benicar 20mg & 40mg q6h and Mino 25 q48h Thanks Barb! Still taking the 20mg Benicar during the day and a 40mg before bed Felt more fatigued today and will be ready to go to bed soon which is an improvement from the 3 and 4AM time Started out today with that same dull not quite headache feeling. No other symptoms at present and herxing is tolerable Best wishes to you and all! DianeC |
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DianeC Member in Phase 3
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Day 36 Benicar 20mg daytime & 40mg nighttime q6h Mino q48h Last night did get to sleep by 2AM...yeah! slept til 10:30AM then went back to bed at 12:30 and slept til 3:30PM It takes me til mid afternoon to start to get energy and the desire to get things done. Herxing is still mild. Still have the metallic taste every morning but not quite as bad. I am wide awake now; wish I was sleepy but I will not force it Looking forward to more herxing Best wishes to all!DianeC |
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DianeC Member in Phase 3
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Day 37 Benicar 20 mg daytime & 40mg nighttime q6h Mino 25mg q48h Everything today is about the same. A little more lightheadedness when raising up from a seated position or from just bending down to pick something up. Is it possible that most of the bacteria that I have have already gone through many alterations and are therefore not suseptible to mino or is the herxing that I am experiencing right on cue? Could that explain why I am having a relatively easy time now but will pay later via horrible herxes with the additional ABX are added? I am still sleeping very soundly and do require more sleep once I get to sleep that is. I am also wondering if the lighting in my house is too much? No outside light gets in but we do have regular incandescent lighting with low watt bulbs. Occasionally, when preparing food in the kitchen we put the overhead flourescent light on but it is only briefly and I ususally leave the room and let Tom finish. Should my skin be covered up in the house as well as when venturing out? Just want to be sure that I am not missing something important Thanks for all of your concern and support!!  DianeC |
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Aussie Barb Research Team
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Diane The self assesser Herx Checker: Why isn't the Marshall Protocol working? what am I doing wrong? If you are looking for more herx, you can try extending the schedule to 3 days, I'm eager to get well. How can I speed up my progress on the MP? or increase your mino dose to 50mg. you may choose to try the Q6H 40mg Benicar dosing again either now or sometime later.. to see if it works better.. If it is better you may choose to stay at that dosing, and if you become more symptomatic, it is easy to revert to the reduced dose again.. A lux meter is a sure way to know about your lighting. Natural light > protect skin and eyes.. Artificial light > protect eyes / not skin.. dimmer switches and / or lower wattage bulbs may be helpful. to achieve less than 30 lux. all best, Barb ... |
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DianeC Member in Phase 3
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Day 38 Benicar 40mg q6h Mino q72h Was not able to post last night; we had a horrendous wind storm which took power over an extended area until this morning Yesterday we ventured out for a birthday luncheon. I applied K-cream to my face, wore outdoor NOIRS and even had a scarf wrapped around my head (Tom drove) Came home to find no power so we slept for many hours. Woke at intervals and then back to sleep. Consequently I was thrown for a loop. Today I woke to take care of the mail and then slept until 5PM Even then I did not want to get upTom has been watching me and he thinks I am herxing. I guess I was expecting more bip bam boom; more like what I had gone through in the past with so much chronic, debilitating pain that I did not know how I could go on type of pain This is a walk in the park in comparison although I do have to say that I am experiencing herx symptoms only they are not dramatic and are more even keeled.Started the 3 day dosing of mino and starting back on the Beni 40mg q6h Still lightheaded but would rather deal with that and be more sure of herxing An interesting observation: when we returned to the totally dark house, we lit a candle and had 2 flashlights on while walking around. I was afraid to wear the NOIRS for fear that I would trip on something. Consequently, later as I lay down to sleep, when I closed my eyes I could see very bright light almost as if my brain remembered the candle and flashlight, even though it was not for a long period of time and I did not directly look into it Barb, I checked the links you provided and am still concerned regarding the artificial indoor lighting I am going to look for a lux meterIn reference to Mike's post on Cautionary Tale regarding Noirs: From reading Mike's post and Trevor's reply I was not quite sure if I understood if it is advisable to wear the outdoor NOIRS indoors I wear the indoor NOIRS at all times indoors to the point that I even forget they are on as the brightness of light now is like it was before I started MP without the glasses. My computer screen is turned down but it still too bright Would it be okay to wear the outdoor NOIRS when on the computer for starters and see how that works out as far as more herxing?? I think with these few minor changes I will experience more herxing Happy Herxing to all!! DianeC |
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Aussie Barb Research Team
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Diane Re Outdoor NoIRs indoors: Safety First always. ie. to make sure you can see what you are doing. There is usually no necessity to go to any great lengths to find herx. moderation and tolerable are the keys. all best, Barb ... |
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DianeC Member in Phase 3
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Hi Barb, Thanks for your prompt reply! When you say "Safety First Always" I just wanted to be sure that you were referring to the possibility of tripping because of the dark NOIRS and not the fact that the dark NOIRS indoors could be harmful in any other way?? to the eyes themselves, etc.Of course, if I am using the dark NOIRS while on the computer, there will be no chance of tripping on things If using both indoor and outdoor NOIRS indoors at different intervals, would that change the perception of light? Are there any others on the MP that do use the dark NOIRS indoors? Thanks again! DianeC |
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Aussie Barb Research Team
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Diane Safety is about tripping, and whatever else. ie to make sure you can see what you are doing. The sensitivity/ requirement usually fluctuates. Some do wear the outdoor NoIRs on the computer as required.. all best, Barb ... |
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DianeC Member in Phase 3
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Thanks again Barb! I understand completely now Best! DianeC |
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DianeC Member in Phase 3
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Day 39 Benicar 40mg q6h Mino 25mg q72h I think this dosing amount and schedule is working Went to bed at 5AM and slept for 11 hours straight waking once to take Benicar Woke at 4PM had dinner and when I could no longer keep my head in an upright position, decided to go back to bed at 8PM and woke at 11PM for Benicar I do believe that all of this sleeping is part of the herx. Also had that feeling in my head that is not quite what I would call a headache but more of the feeling that my brain is being compressed. It is now just after 2AM and I do believe that I may be able to go to sleep again soon I understand now how the Benicar works in 2 ways: to help the immune system detect the bacteria so that it can kill it and also to interrupt the cytokine cascade which causes all of the nasty inflammatory symptoms In spite of some of the herx symptoms I have to say that overall I am feeling much better The limping and the pain I had been in for so long on my left side is non-existant now It will be a dream come true if I do not have to go for the hip replacement I was told I will need in a year or soBest wishes and Happy Herxing to all DianeC |
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DianeC Member in Phase 3
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Hello all, Wow, I am so excited! Since my last post, yes I did get right to bed. Rested well although not as soundly as the day before (I think I was all sleeped out!) Woke this morning around 9AM! I HAVE A COLD!!! I have not had a cold in years!!! Started with stuffiness in my nose although the nose still has the runny feeling that I have been having for weeks now Sneezing alot and I have the most awful taste in my mouth yuk! I am wondering if toxins are being excreted through the gums?? I may also be excreting toxins through my skin?? Not sure yet?? I am confident that the Benicar 40mg q6h dosing and the 72 hour mino schedule has kicked in and I am now reaping the rewards!!! Other than the symptoms I have just mentioned, I feel great othewise! I guess I will just be sure I have plenty of kleenex, green tea and get the vaporizer out Thank you and best wishes to all! It is working! DianeC Last edited on Mon Feb 20th, 2006 15:29 by DianeC |
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DianeC Member in Phase 3
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Well I am not feeling so good now I slept most of the day and woke to the most awful stomach ache with cramps in the whole abdominal region It's bordering on intolerable but just wondering if I should just take 20mg Benicar instead of the 40mg Wednesday I have to venture out and will not be able to cover my face although I will be wearing the K-cream. I have something important going on where I would rather feel good and not displaying intolerable symptoms. What steps should I take now to insure that? Should I take the mino today which would be 2 day dosing instead of waiting until tomorrow to take it and stay on the 20mg Beni until the symptoms are a little more tolerable for Wednesday? Thanks a bunch!! I am just happy that things are moving in the right direction!DianeC Last edited on Mon Feb 20th, 2006 22:22 by DianeC |
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Aussie Barb Research Team
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Diane If you are wanting to dampen the herx or to feel better for any occasion, you use the meds adjustments that suit you best to achieve that. ie. if the reduced Benicar dosing works best for you. that is what you use. If taking the mino daily or at any more frequent schedule achieves tolerable / comfort for you, that is what you use. It is all good experience with the meds. The NoIR glasses go some way to covering some of your face as well as your eyes. If you are unable to cover your face when you go out, there may not be a dosing that will be enough to save you from increased symptoms. see the info: Why is my 'herx' more intense after exposure to Light & / or Vitamin D? Natural light > protect skin and eyes.. Artificial light > protect eyes / not skin.. What precautions do I need to take when I am going out or when traveling away? How does ketoconazole cream work? TESTIMONIALS to the Need for Avoiding Light Member's personal experiences The effect of light on the brain (Amygdala) all best, Barb .... |
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DianeC Member in Phase 3
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Hi Barb. Thanks once again for your quick reply I think I will go back on the 20mg Beni until after Wednesday and start the 25mg mino once a day until after Wed. So I will take both meds now in preparation for that It is great knowing that this is working and that adjusting the meds gives us the best of both worlds! You are amazing and I appreciate you to no end! Sincerely, DianeC |
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DianeC Member in Phase 3
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Hi Barb, I do believe it was a herx as I took the meds (20mg Beni and 25mg mino) with a glass of water and a cup of hot green tea It seemed to work almost immediately as the stomach cramps stopped as quick as they had started. I will surely stay on this schedule for a whileThe Very Best Wishes to you! DianeC |
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DianeC Member in Phase 3
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Day 41 Benicar 40mg at night & 20mg during day q6h and Mino 25mg daily for the last couple of days. Tuesday I had gastrointestinal symptoms (irritable bowel?) all day long It is a good thing that I was home all day.Today I did not have a problem with it until earlier this evening. But now I feel very bloated and have more of the intestinal upset This is something new for me. I read something on this site about reducing Benicar......is that correct? I am confused because it is recommended to increase Benicar to q4h when planning to go out but then I read about reducing the Benicar when gastrointestinal upset occurs? My concern is that I am wondering if this is just temporary or could it be a permanent condition which will stay with me after I complete the protocol? Does completing the MP and becoming cured equate with resolution of inflammatory symtoms or could a colitis or irritable bowel persist? Today I was suppose to do the driving as Tom had an appt with the opthalmologist and had his eyes dilated. We had to travel a distance and I was not able to drive and worried about Tom driving I was covered completely and had the K-cream on my face, a scarf wrapped around my head and on the way home also put a towel on my head. I am extremely sensitive to the outdoor light and do not think I will be able to drive at all I started to develop a headache so I can just imagine what it would have been like without having my head completely coveredWhat I have noticed with the outdoor NOIRS is that in the beginning when I wore them the outside environment looked very dark and now when I wear the dark NOIRS outdoors the environment looks like it did before I wore the glasses. What exactly does that mean? Will that change again as the disease issues are resolved?Any advice as to how to eleviate the gastrointestinal upset or is it part of the herx that is suppose to be endured and then will end at some point? At this point I am not sure how to proceed with the meds? Thanks so much! DianeC |
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Aussie Barb Research Team
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Diane The Herxheimer reaction is proof of the effectiveness of the antibiotics against the bacteria that are driving your Th1 inflammation. This is to be expected and should not be interpreted as a side effect, adverse reaction or intolerance. You dont have to endure intolerable herx. The aim or the key is to achieve and maintain tolerable Herxing (physically, mentally, and emotionally) by adjustment of meds dosing and schedule as suited individually to you within the guidelines and combined with the Essential aspects of diligently avoiding Light and vitamin D... some suggestions: What kind of probiotics should I use? and Do not hesitate to use any of the meds adjustments. My Herxheimer reaction is too strong. What should I do? .. Check these options one at a time to assess and adjust your own situation. << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you. If you need temporary relief of your symptoms such as gastric upset or pain, contact your doctor or pharmacist for advice about palliative medications. Any medications that are not on the list of MEDICATIONS TO AVOID WHILE ON THE MARSHALL PROTOCOL are okay to take to relieve intolerable symptoms. What degree of healing is possible using the Marshall Protocol? Dr Marshall says that we cannot imagine what 'cured' feels like. The photosensitivity will fluctuate thru the treatment. Dr Marshall wrote in March 26th 2005: I gave my NoIR glasses away over a year ago. Don't need or use NoIRs. I was wearing my clear glasses everywhere in Chicago, including out-of-doors. I do not wear gloves or any other especial protection when driving. In short, all my solar sensitivity, and light sensitivity, has disappeared.<< all best, Barb ... |
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sunflower Member in Phase 2/3 
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diane says: "What I have noticed with the outdoor NOIRS is that in the beginning when I wore them the outside environment looked very dark and now when I wear the dark NOIRS outdoors the environment looks like it did before I wore the glasses." hey diane, i received my new style (#35) noirs awhile back, and when wearing them outside i thought they had sent me the 10%'s instead of the 2%'s cause it seemed so light! i had to put my old ones on and compare, one after the other, to convince myself they were the 2%'s. i remember when i first started MP and put on the 2% noirs to go outdoors, i thought i would never get used to them cause they were sooo dark  . funny how things change....sun |
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DianeC Member in Phase 3
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Hello sun! Thank you so much for sharing the experience that you had with the change in intensity of the dark NOIRS as you progressed on the MPIt is great to know that what is happening is expected as evidence of what you have already experienced! How are you coming along? I see that you are in Phase 2 I must say that you have a beautiful smile!It will be wonderful when the day comes when the photosensitivity fully disappears as further evidence of resolution of disease I am interested in purchasing the new style of NOIRS but the only problem is that I need to wear reading glasses and from what I understand, they will not fit under the new style It would be an added benefit if the resolution of disease would reverse the need for reading glasses altogether I believe that I read somewhere on this site where that was the case I believe it may have been Meg? Do you need to wear reading glasses? My husband is fortunate in that he only needs glasses for distance and not reading. The support of you and all on this site is just tremendous and really gives much reassurance to others especially those like myself who are relatively new that everything is going as is expected In the beginning I was not sure if the MP was working but all of a sudden it just kicked in and the herxing has started and I couldn't be happier about that! The very best wishes to you! DianeC |
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DianeC Member in Phase 3
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Day 42 Benicar 40mg at nighttime to help with sleep & 20mg daytime Mino 25mg will be starting back with pulsed dose Hi Barb! I was very happy to check out all the links on your last message and realize that yes, this was a herx symptom!Very happy and reassured that this was in fact a herx symptom! There were no intense irritable bowel symptoms today! Still recovering from my outdoor experience yesterday to include the desire for more sleep Yes, the light does have a very profound effect on my brainReady for more herx so will start again soon with the 40mg Benicar and 25mg mino pulsed! Sincerely, DianeC |
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sunflower Member in Phase 2/3
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thanks diane, i'm not actually in phase 2 yet, but am all set up (filled out questionnaire, access to phase 2 forum, etc.). i'm not quite ready to pull the trigger, as i'm still herxing enough for now on 100 mg mino. as to your question about reading glasses: yes, i need them ( i'm 55 yrs old ). it was so cumbersome trying to wear them under my 200 series noirs, that i opted for these stick-on reading lenses called optx 20/20. they just adhere to the noirs using water. they aren't perfect (they are a bit small) but they are a far cry better than trying to wear 2 pair of glasses at the same time. i just bought them at walgreen's for about $10, i think.i'm glad you're getting in the swing of things, diane, and am confident you are gonna do great. we couldn't have better moderators, and the support of everyone is wonderful. God bless you...sun |
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DianeC Member in Phase 3
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Hi sun, I am so happy for you that you are so close to entering phase 2 You are just that much closer to wellness! I am also 55 years old born in Oct of 1950Thank you for the information regarding the stick on reading lenses! I do wear my NOIRS over my reading glasses. They do fit well but I get a lot of staresI go to auctions and I went to one recently. They had very bright flourescent lighting there so I never removed my NOIRS that were over my reading glasses It was okay as long as I was viewing but when I was in the audience a few rows back would not dare to bid on anything I did not view first as everything was a blur and wouldn't know what I might end up taking home Yes, I agree totally with you that the care and support of the moderators are like nothing I have ever experienced before!! I feel so confident for the first time in my life that I am truly going to get my health backI would love to hear more about your journey throughout the MP! The very best of wishes to you sun!!! DianeC |
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DianeC Member in Phase 3
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Late last evening after I posted my progress I started to get pain in the right pelvic region. It was tolerable at that point until I went to bed and by that time my hip had stiffened up so much that I felt immobile and found it hard to even get into bed Upon waking it is still present. The pain is not as great as the immobile part of it. Then when I try to walk, that is when it hurts most I thought about taking a hot shower but don't even know if I can step into the showerThe pain has now even radiated to the middle back It also is not excruitiating but don't know if it will get worse before it gets betterFor 3 days in a row I had taken the mino 25mg and then did not take any mino yesterday as I want to get back on the regular scheduling again. I am wondering if the 3 days worth of mino are all decaying now to zero and that is why I am herxing more now? In other words, is it the cumulative dosing of mino that is now decaying and contributing to more of a herx? I read that taking Benicar 40 mg every 4 hours helps. Is that correct? Until this herx resolves I think I will sleep in the back saver chair which was my salvation for 2 years back in 2002-03 when I was also in so much foot and leg pain due to severe herxing Best to all! DianeC |
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Aussie Barb Research Team
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Diane The beauty of the MP is that we can work on the present moment. If the Q4H Benicar isnt enough to hold the herx to tolerable, it seems that taking the mino 25mg daily has been holding the herxing to tolerable for you, and you may continue with that shedule while it is doing so.. When you are symptomatic, you can begin to adjust the meds dosing and schedule as suited individually to you within the guidelines and combined with the Essential aspects of diligently avoiding Light and vitamin D to achieve and maintain tolerable Herxing (physically, mentally, and emotionally)... Precautions and options are listed in this FAQ: Do not hesitate to use any of the meds adjustments. My Herxheimer reaction is too strong. What should I do? .. Check these options one at a time to assess and adjust your own situation. << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you. other list Tools to check: If you are concerned do not hesitate to contact your Dr. Let us know how you are going. all best, Barb ... |
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DianeC Member in Phase 3
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Thanks again Barb! I am currently taking the Benicar at 40mg q4h and if that does not make a difference then I will include the 25mg mino again on a daily basis until the herx subsides Best to you! DianeC |
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DianeC Member in Phase 3
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Day 43 Benicar 40mg q4h and will start back on mino 25mg q72h I have been taking the Beni 40mg every 4 hours and the herxing is tolerable without having to add the mino I seem to have had some energy today The pain and stiffness for the most part has left the right pelvic area and middle back and earlier this evening had migrated to the left side below the shoulder blade and around the left sideJust moving slightly and not even turning abrubtly would cause my left side to be in sudden wrenching or gripping pain But it only lasted a moment or soAll of this is tolerable probably because I know that it is a herx and will only be temporary I find it amazing how the herx seems to start in one area and then move to another I can't imagine what it would feel like if it decided to herx in all of the places at once! My plan is that I will be starting back on the 25mg mino tomorrow and continue the Beni 40mg q4h until most of the herx symptoms have subsided to a point where I will be ready for more herxing and then will go back to the Beni 40mg q6h I am really starting to get a feel of how adjusting the meds affect the the herx symptoms Although I am also ready for anything unexpected as well Thank you Barb and everyone for your support and dedication! I appreciate it!!! Best Wishes DianeC |
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DianeC Member in Phase 3
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Day 44 Benicar 40mg q6h & mino 25mg q72h Today I started back on the Beni 40mg every 6 hours as I am ready for more herxing and started back on mino 25 mg It is so strange how my body has been herxing. To recap: It started in the right pelvic area, radiating to the middle back, then upward to just under the left shoulder blade and around the side with sudden wrenching pain. Then today it moved further to the front (basically it has come full circle) But I also had pain and stiffness in the lower back trunk area. I could not get up from taking a nap on the couch so I had to roll off Earlier this afternoon after I took the mino, I took a hot shower and it really seemed to loosen things up a bit but I think that after relaxing for a while on the couch just made my back stiffen up again. My stomach is very bloated and I had a little pain in the left side but other than that I am ready and looking forward to more herxing The best wishes for all! DianeC |
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Aussie Barb Research Team
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Diane re "My stomach is very bloated" I'm not sure if you are using probiotics.. FAQ What kind of probiotics should I use? Barb ... |
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DianeC Member in Phase 3
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Thank you Barb! I will check into the probiotics! Best! DianeC |
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DianeC Member in Phase 3
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Day 44 Benicar 40mg q6h & Mino 25mg q72h Slept from 5AM until 4PM and could have slept more!! Woke very stiff in back lower trunk region with trouble walking with pain all still tolerable Considered going back to Beni 40mg q4h but pain let up so did not have to do thatDifferent kind of underarm odor today (quite unusual being that I just took a shower yesterday) not sure if it is an acetone type odor but definitely different than I have ever had After dinner developed a blood blister on the outer tongue area on the right side. Very happy that the herxing is happening and I am able to contol the intensity with the meds Best wishes to all and very grateful for your continued care and support! DianeC |
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DianeC Member in Phase 3
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Day 45 Benicar 40mg q6h and mino 25mg q72h Last night I did not get to bed until 7AM which is a new record for me. I had a lot of energy and there were alot of things that needed to be done and it was so quiet I seem to get more ambitious in the wee hours of the morningWoke at 12:30 PM and felt pretty good today with minimal herxing still of the lower back. I have a question regarding Benicar? Whenever I take it more frequently q4h I seem to get a lot of energy as well as diminished herx symptoms. Can Benicar be taken on occasion to help stay awake if you need to be as that is the effect it seems to have on me? So, in other words can it safely be taken more frequently at the q4h if you have not had additional sunlight exposure but to have more energy to tend to something that needs to be done and can safely put off sleep until later?? Best to all and Happy Herxing! DianeC |
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Aussie Barb Research Team
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Diane yes, you may increase the Benicar dosing to Q4H as required for symptomatic relief. Barb ... |
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DianeC Member in Phase 3
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Hi Barb, Thanks for your quick reply The reason I had asked is that I have a deadline on some work I need to get completed and thought I would do the Benicar q4h until tomorrow night and then after that I will Sleep Sleep Sleep zzzzzzzzzzzz!It is so peaceful now and I am enjoying the night and have some soft music in the background........so relaxing and compliments the energy I am feeling I am just so amazed that one pill Benicar is capable of doing so much! Best wishes to you and Thanks again!!DianeC |
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DianeC Member in Phase 3
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Day 46 Benicar 40mg q6h & Mino 25mg q72h Just came out of 2 stressful days to meet a deadline Last night again I did not get to bed until 6AM and was exhausted once I hit the pillow I just fell into bed and forgot to set the alarm and did not wake until 2:45 PM almost 9 hours since my last Benicar so hope I did not lose the blockade??My lower back trunk region right now is in extreme pain I just took a Benicar 40mg No postion is comfortable right now. I have a pillow at the back of the computer chair which helps somewhat. I do not know if I will be able to lay in the bed? Earlier this evening I took a very hot shower. It seemed to help but now it feels very stiff, painful and immobile The blood blister I had on my tongue had broken and gave me a sore throat which makes if difficult to eat without pain. Tongue is very sore on that side My breakfast is usually a pear and shelled almonds and decaf but now I can't have either because of the sore tongue so I started eating yogurt (thanks Barb and Janet for your helpful suggestions! The pear always helped with cutting that awful taste in my mouth each morning Well I am going to see if I will be able to get into bed? and into a comfortable position. Of all the herx symptoms I have had, this one seems to be staying with me longer. Occasionally I feel a sudden jolt or gripping pain; the same pain that was on my left side under the arm. As bad as the pain is, it is still tolerable so I am hanging in there Best wishes to all of you! DianeC |
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Aussie Barb Research Team
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Diane You can use your mino dose (?)25mg as well as your Benicar (an extra half tablet may help) to help you to get more comfortable.. What times should I take my Benicar? What if I forget a dose? your tongue: see DENTAL PROBLEMS and Th1 inflammation re mouthwash. salt water wash may be helpful in the meantime. PAIN CONTROL all best, Barb ... |
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DianeC Member in Phase 3
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Hi Barb!!! Thank you! You are a life saver!!! I will do that right away! I will take the mino and a half more tablet of BenicarI keep forgetting about the salt water for the mouth; thanks for the reminder and the links to mouthwash!! Best to you as always! You're a Gem!! DianeC |
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DianeC Member in Phase 3
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Day 48 Benicar 40mg q6h Mino 25mg q72h Thank you Barb for your quick response to my last post I took your instructions and the extreme pain in the trunk area did subside I was not pain free but it was more tolerable and I was able to get into bed. Yesterday was my worst day so far I felt terrible all over from my head down with a sense of overall malaise. Head had that compressed feeling and my lower back was still in so much pain. It was a struggle just to get things accomplished that needed to be. I really felt some major herxing going on and everytime I talked or ate something my tongue felt like a razor was running over itBarb.......the salt water gargle worked beautifully! Sore tongue and throat is history!By the time I went to bed I was feeling so much better and slept without pain! I woke today at 2:30PM and felt wonderful all day! After dinner I took a mini nap on the couch and it felt so good. There was not an ache or pain in my body!!I am now looking forward to the next herx as I know that will lead to more of this really good feeling and can't wait to see how I will feel after more time has passed Best wishes to all and may all your herxes be as gentle as possible and still effective!! DianeC |
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DianeC Member in Phase 3
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Day 50 Benicar 40mg q6h Mino 25mg q72h The last time I took Mino 25mg was on the morning of 3/3 at 3:45AM for pain relief from herxing thanks Barb! I have been doing pretty well since then with not much more herxing and could stand some more herxing.How does one know when it is time to progress to the mino 50mg? And when that time does come is it advisable to start of taking it q48h to start to see how the herxing is the same way we start with the 25mg? I have been taking 25mg mino since 1/28 Best wishes to all! DianeC |
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Aussie Barb Research Team
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Thanks Diane If you can stand some more herxing, it sounds you are ready to increase mino to 50mg QOD.. for details please check all precautions / instructions in the Phase One Doc.. some have it printed to check with regularly. and I'm eager to get well. How can I speed up my progress on the MP? all best, Barb ... |
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DianeC Member in Phase 3
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Day 52 Benicar 40mg q6h Mino 25mg q72h Since my last post started herxing again so thought I had better stay at mino 25mg a while longer The 72 hour is really working for me as I start herxing on the second day I had another one of those long sleep herxes where I sleep for hours and hours Unfortunately I never heard my 10AM alarm one morning so missed taking that dose in time I checked the clock is working okay so it was meHerxing under the breastbone on the left side; pain is tolerable I feel very bloated and feel like I have gained a few pounds but don't dare get on the scale as it is more important now to get well and worry about food intake and weight later onAfter herxing I have been having some very strong urine evident that I am getting rid of the toxins Happy Herxing to all! DianeC |
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DianeC Member in Phase 3
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Day 55 Benicar q6h and I have just started 50mg Minocycline q72h I am not sure if I was suppose to start a new topic due to the fact that I have progressed to 50mg Minocycline Is it possible to link my previous posts to this link??I had been on the 25mg mino for approx. 6 weeks already and felt it was time to advance. During the last couple of days I have had minimal herxing. When I said I had herxing under the left breastbone what I really meant was that it was located under the breast area on the left side where the pancreas, etc organs are located. That has subsided and is very tolerable now My sleep pattern is now bed by 5AM-6AM and up at 2:30PM As early evening progresses I start to feel very energetic and start getting lots of things done until 5AM when I wind down So I am definitely ready for more herxing I just ordered the new Wraparound NOIRS and am very excited about that Best wishes and Happy Herxing to all! DianeC Last edited on Mon Mar 13th, 2006 04:14 by DianeC |
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Aussie Barb Research Team
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Thanks Diane I have joined your previous reports to this post for continuity, as no, you dont need a new topic. thanks. Happy Herxing to you, Barb ... |
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DianeC Member in Phase 3
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Thanks Barb! I appreciate it! Best to you! DianeC |
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DianeC Member in Phase 3
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Hi Barb, I just re-read Phase 1 The first 3 months again and just had one question? Now that I have started on the 50mg of minocycline should I ease into it by taking it q48h in the beginning...the same way I did with the 25mg to see how my body re-acts? I did not start herxing on the 25mg, however, until I started taking it q72h My understanding from reading phase 1 is that it is preferable to take the mino q48h instead of q72h Is that correct, even if you have more effective herxing with q72h?? Thanks and best wishes! DianeC |
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Aussie Barb Research Team
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Diane If the 72H dosing suits you best, that is what you follow.. tolerable symptoms/ herxing is the aim. see the FAQ I'm eager to get well. How can I speed up my progress on the MP? all best, Barb ... |
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DianeC Member in Phase 3
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Thank you Barb, I am going along slow and steady as I am in no hurry but still very excited about the future I don't mind being indoors at all and lately have had so much energy. Even more so than when I first started Benicar I am really just thrilled that my left hip no longer bothers me (bone spurs) and that the limping is gone. I believe that everything I was doing prior to MP was actually making my bones weaker. Thanks again Barb! DianeC |
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DianeC Member in Phase 3
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Day 58 Benicar q6h Mino 50mg q72h This schedule still seems to be working well The other night after my last post on the 14th I had a stomach herx with wrenching pain but it did not last long and this was just before my next dose of mino on the 15thIt is almost like clockwork but after an intense herx (and it could only be one that lasts a very short time) I have very strong urine evident of the toxins being released I am really getting to know my body wellThere seems to be alot going on in my stomach right now and eating sometimes contributes to the herx. I wish I could find a substitute to eating bread and peanut butter late at night I just can't seem to go to sleep on an empty stomach I was never one to take sleeping pills and recently in the news there was talk of people who had taken ambien who got behind the wheel of their car and did not remember anything and crashed and other tragic instances as well pertaining to taking Ambien My stomach is still bloated but think that will resolve when more bugs are killed I love exercise but am afraid it will stimulate the mycoplasma activity so I stay away from it for nowSince starting the 50mg mino I have noticed for the last 2 to 3 days I seem to be herxing through the pores of my skin (skin being our largest organ) One thing that has bothered me for the past few years is the fact that I always feel intense heat especially in the chest area and would wear the lightest of summer clothing even in the winter With summer around the corner if I can't find suitable clothing, I think I will just stay in my cave in air conditioning I can't even remember the last time I was outdoors during the daytimeI just can't say enough about how grateful I am to Trevor, Barb and all who make this site the success that it is! Best always! DianeC Last edited on Fri Mar 17th, 2006 06:55 by DianeC |
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DianeC Member in Phase 3
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Day 59 Benicar q6h Mino 50mg q72h Today was not a particularly good day........I lost alot of that great energy but not to the point where I feel lethargic Stomach herx is still going on....no pain but just uncomfortable whether I eat or not. And still bloated. Could be partly because of lack of exercise which I am afraid to do at this time I just feel like I want to go to bed but think that I may not sleep as it is so early as my bed time is usually anywhere from 3AM to 5AM . The 72h mino really works great for me as it allows me to herx on the 2nd day. Is adding an additional day an option to even get more herxing or is that not advisable?? The reason I ask is that I could tolerate another day of this and then take the 50mg mino on the following day. Just curious??? Or is that counter-productive?? Chest area is still overheated and still herxing somewhat through the pores of my skin no pain.....just uncomfortable.Best wishes and Happy Herxing to all! DianeC |
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Aussie Barb Research Team
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Diane You may wish to check out the FAQ I'm eager to get well. How can I speed up my progress on the MP? and decide what suits you best.. all best, Barb ... |
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DianeC Member in Phase 3
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Thanks Barb as always I will check it out! Best! DianeC |
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Alayne Member in Phase 3 
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Diane, in case this helps, I've been on a 72 hr mino schedule pretty much since the beginning. I actually tend to herx on all 3 days. It makes sense to keep to the 3 day dosing, as I'm killing bacteria the entire time. Plus, I feel I might miss some bacteria if I go back to 2 day dosing, because different bacteria are targeted at different mino levels in the blood. Granted, I've not gotten to Phase II in 3 months, but I've been solidly herxing the entire way. Also, I am only too happy to eradicate as many bugs as possible before adding another abx! Happy herxing! AlayneP.S. Plus, every once in a while I get a bit of a reprieve on the 3rd day, which is always very welcome! |
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DianeC Member in Phase 3
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Hello Alayne, Thanks for your reply! Just so that I have it straight... say if you took 50mg of mino on March 12 as I did, are you saying that you would herx on the 12th, 13th and 14th and then take your next 50 mg mino on the 15th? If you do miss some bacteria by going back to the 25mg, I am assuming that that means that bacteria will escape being killed because now the 25 mg will not be strong enough? I think that I will probably be in phase 1 for at least 3 months as well. Do you include when you start taking Benicar as starting Phase 1? What happens to the bugs that do not get killed if you advance to quickly to the next phase? Happy Herxing to you too!! DianeC |
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Alayne Member in Phase 3
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Diane, I may have misread your post. Were you asking about adding a 4th day to your schedule? In other words QO4? If so, IMO, QO4 is fine if you’re still herxing well on the 4th day. The whole point is to herx as much as possible on a single dose. If the herxing on the 4th day is very minimal or hardly noticeable, then QO3 would probably be best. You’ll have to try it to see. I’ve gone 4-5 days when I’ve needed to herx less because I had something to do. if you took 50mg of mino on March 12 as I did, are you saying that you would herx on the 12th, 13th and 14th and then take your next 50 mg mino on the 15th? Exactly right! I’m not sure what you mean by “miss some bacteria by going back to the 25mg.” When some folks herx too strongly, they drop back a dose or two to ease the situation, then ramp back up. Or they take 25mg Q6-24H to alleviate intolerable herxing. Plenty of people have had to reduce their doses at one time or other and have herxed again at those lower doses. Either way, I don’t think you have to worry about missing bacteria. You’ll be killing them for some time to come, in all sorts of combinations. “Do you include when you start taking Benicar as starting Phase 1?" Yes, although I separate the Benicar and Mino start dates on my progress report. I feel I started the Full MP with Mino, but that's just a personal preference. Others do it differently. “What happens to the bugs that do not get killed if you advance to quickly to the next phase? ” From what I understand, they die off either way, but the herxing could quite possibly turn intolerable with too much die-off. That's why "Slow and Steady" gets repeated ALL the time here! No need to worry though. The wonderful moderators will keep you in line, as long as you keep present here by posting and asking questions, AND following their advice! Hope this makes some sense! -Alayne |
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Aussie Barb Research Team
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Diane and Alayne this FAQ has further information If antibiotics are effective at very low doses, why do we ramp up the dose? Barb ... |
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Alayne Member in Phase 3
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As always, Barb has the perfect link to information! No matter that I've read this particular link, plus so many others, many times over, I can never read them too often. My sieve-like brain requires a great deal of repetition just to hold onto some of the basics! Many thanks! |
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DianeC Member in Phase 3
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Hi Alayne, Yes, I was asking about adding a 4th day but I wanted to verify that you were doing it the same way that I currently am doing it by giving the dates as an example. Today I am feeling better than yesterday although this morning I had 2 killer cramps in my feet again though not as bad as before as those lasted several minutes. My herxing had let up this afternoon so decided to take the 50mg mino. So the schedule that you are on works great for me too You are lucky to be herxing all three days and doing a much better bug killingI seem to be herxing alot through the pores of my skin and that includes extreme temperature changes. Either hot or cold When I went through peri and menopause I attributed it all to hot flashes but now I am thinking it was the mycoplasma activity producing the intense heatThat is a great suggestion you made of extending the time a day or so if there is something you need to do That is the beauty of the MP.....all at our own pace by adjustment of meds And that slow and steady wins the race!Thank you so much for all of your kind thoughts and suggestions! Everyone here on this site is so generous and giving of their time and I appreciate it! Best wishes and Happy Herxing to you! DianeC |
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DianeC Member in Phase 3
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Hi Barb, Thanks for sending this link! I have a question regarding the following statement in that link; I am trying to understand it better And to complicate things, only some antibiotics are capable of killing pathogens without converting some of the survivors to CWD form. That's why antibiotic therapies have failed in the past. They have been taken at high doses for long periods of time, and in so doing, they've just suppressed immune function for long periods of time, and/or created CWD forms to develop. Pertaining to the paragraph above: Does taking Doxycycline at 100mg or 200 mg per day fall into that category? And if taken for 3 consecutive years daily as an anti-inflammatory rather than anti-bacterial, is it likely that that particular abx is capable of converting the survivors to CWD form or not because it falls in the category of being in the tetracycline class of abx?The other part of the question is: If there was significant herxing going on via extreme chronic pain during that whole 3 year period, what exactly is happening? It appears that something is being killed or is it the inflammation that is causing the extreme pain?? Thanks again for always being there! You are a treasure DianeC |
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Aussie Barb Research Team
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Diane see further Information here CELL WALL DEFICIENT BACTERIA AND THE MARSHALL PROTOCOL Can I use Doxycycline instead of Minocycline? Why isn't Ceftin or amoxicillin included in the Marshall Protocol? Barb .... |
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DianeC Member in Phase 3
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Thanks Barb! There is quite a bit to read! I read as much as I could now but I am getting very tired and when I get this tired I do not comprehend well so will finish it tomorrow It is all so interesting! Like a good book you do not want to put down!! Good night for now.......best to you always! DianeC |
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sunflower Member in Phase 2/3
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DianeC wrote:
hi diane, i have such a problem, also, with temperature regulation.female hormones may have something to do with it (i went through menopause couple yrs ago), but it's mainly the disease we have. i have never been able to tolerate heat, as long as i can remember; it just wipes me out. even with winter temps, one minute i'll be cold and cover up for awhile, and then i'll feel like i'm suffocating and way too hot! that's why i'm dreading summer so much on the MP, cause wearing dark heavy clothing or layers will do me in . like you, i'll just have to stay inside unless absolutely neccessary to go out--just wish it didn't stay light out til 10 pm! take care...sun |
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DianeC Member in Phase 3
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Hi Sun, I went through the menopause early (mid 1990's) so I know that this is due to the mycoplasma activity boo hoo I always thought that I was weird because everyone around me would be wearing knits and heavier summer clothing and I would be searching high and low for the lightest of fabrics and couldn't always find them I will be dreading going out this summer and doubt that I will go out at all during the day as the effect of the winter sun just about did me in fortunately my husband was with me so he could drive. Fortunately I don't mind being indoors as I always have so much to do that it will make the time fly Why is it though that we have such temperature changes from hot to cold? What causes the cold sensations?? What is most frustrating is when you are cold and hot at the same time if that makes any sense?? The only good that came out of this when I first started to feel the intense heat was that my raynauds seemed to have gone into remission. I have had raynauds (circulatory problem) most of my life From trying to piece everything together I now believe that I have had this TH1 illness all of my life and am so happy that one day it will all be resolved I just can't even imagine at this point what that will feel like!Take care Sun and stay COOL!!!!! DianeC Last edited on Sun Mar 19th, 2006 18:31 by DianeC |
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DianeC Member in Phase 3
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Day 64 Benicar q6h Minocycline 50mg q72h These last few days the bloating stomach seems to be the only herxing symptom other than a couple of foot cramps that started but ended just as soon as they started I was really concerned about my stomach but today it has gone back down and I think it was the toxins that had accumulated and just held there for a couple days and swish.........it seemed to all just disappear I am re-evaluating some of the foods in my diet and realize that the plain baking cocoa which I was putting in my decaf has a tendency to be acidic so I am discontinuing using that. The insomnia and sleep patterns are still out of whack. So I just make the most of getting everything done from early evening and into the early morning hours when it is nice and quiet with no distractions Looking forward to what tomorrow will bring Best wishes and happy herxing to all!! DianeC |
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DianeC Member in Phase 3
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Day 65 Benicar q6h Mino 50mg q72h Took the 50mg mino last night around 7PM Went to bed around 6AM at which time the lower part of the leg near the ankle and foot had a restless feeling so took a little longer to get to sleep and slept most of the day. Upon waking my hands were still asleep and I had to shake them to get feeling back into them. Very tired most of the day but as evening approached started feeling much more energetic (I am now trying to catch up on laundry, dishes, etc) Had some herxing a little earlier after eating something in the area between the pancreas and stomach on the left side and some minor herxing in my back but now much better. I am trying to see if this is a pattern whereby after a few days of herxing the toxins from the bacteria collect in the stomach area causing the bloating until such time as it has worked its way from my system as then my stomach goes back down to a more normal size Best to all and happy tolerable herxing! DianeC |
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DianeC Member in Phase 3
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Day 68 Benicar q6h Minocycline 50mg q72h Today I had to venture outdoors so covered up completely and use K-cream on face. I did NOT have to cover my face with the scarf and did not suffer neurologically & no headache or feeling of malaise as I did a couple of months ago Early afternoon felt very energetic and decided to give the kitchen a good cleaning. A short time later I developed a strong cramp in the right foot. Also pain on the left side which traveled to the back on the left side just above the waist. I have had this before but always after haveing eaten something so I truly believe that this was different and that there was some bug killing going on. It lasted a half hour or so. Still sleeping alot but mostly never when I should be which is during normal sleeping hours. I am just going with the flow and not fighting it. But at the same time I am enjoying the peacefulness of the early morning hours as far as accomplishing different things My new wraparound 10% Noirs are on their way! Can't Wait! Best wishes with gentle herxing to all!! DianeC Last edited on Wed Mar 29th, 2006 06:55 by DianeC |
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Aussie Barb Research Team
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Diane Just a note that the energy burst and then later cramp etc may also be a light flare.. either way, take care, all best, Barb .. |
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DianeC Member in Phase 3
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Thanks Barb! Today I had to go out again and followed same procedure with covering up, k-cream, etc. and earlier this evening at 8PM I took my 50mg Minocycline. About half an hour ago I started with that same pain on the left side in the area of the pancreas and it traveled once again to the back. Also stomach involvement. It was kind of a wrenching pain but not as bad or as long in duration as ones in the past. Does that sound like herxing? I get it very frequently or could it be my pancreas releasing a hormone or something like that? It has not happened at all on the right side of my body. I am really tolerating the outdoors much better when I do have to go out but as long as I am totally covered up. Did not even have to cover my face with the scarf. I will not be spending much time at all this spring and summer outdoors and that is okay for I have plenty inside to keep me very busy Best wishes to you as always! DianeC |
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Aussie Barb Research Team
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Thanks Diane You are really the only one who will know for sure whether the herx has been exacerbated by the light exposure, and with time you will have gained the experience to know. The main thing is to avoid light as well as you possibly can. some info for all reading: Why is my 'herx' more intense after exposure to Light & / or Vitamin D? Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal.. What precautions do I need to take when I am going out or when traveling away? all best, Barb .... |
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DianeC Member in Phase 3
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Thanks Barb! I appreciate it! I guess time will tell. If there is bug killing going on in that area it should end at some point and start in another area, I would think. Thanks again! DianeC |
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DianeC Member in Phase 3
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Day 86 Benicar 40mg q6h Minocycline 50mg q72h Somewhere along the way I must have really miscalculated the days on Benicar as I checked the calendar and from Jan 10th until now is actually 86 days The insomnia is still with me or should I say that my days and nights have switched around pretty much completely now. I am sleeping very soundly though and wake around 3PM or 4PM just in time to do the mail and try to do anything important before businesses close for the day I am still herxing mostly on the same side and on that same side toward the back. I usually take the mino in the early evening between 7PM-8PM and start herxing for the first time about 32 hours later in the middle of the night but it only lasts for 20 minutes to half an hour. The herxing seems to be happening more so in the middle of the night now. Occasionally I will get one of those awful foot cramps but they are not as bad. Therefore I feel that I am ready to progress to 75mg minocycline q72h and will start that tomorrow night I am very happy to say that the I have received both pair of NOIRS wraparound #35 glasses!! Thank you Alayne and Sun for your posts and information! They are very comfortable and so stylish! They fit beautifully and I think that the rubberized material they use allow them to stretch a little if need be The darker 2% seem just a tad lighter than the fit overs which is actually pretty cool as I can wear them walking around the house whereas I was much more afraid of stumbling with the fit overs I am very thankful for this site and wishing all of you gentle and happy herxing DianeC |
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DianeC Member in Phase 3
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Well, now I am not able to sleep at all I went to bed around 5:30 AM and just laid there until 8AM and decided to get up and have some breakfast for a change The weird thing is that I don't feel tired at all. It would be great if I could get back on a regular sleep schedule but I don't see that happening for a while yet I forgot to mention that my lower back has been itchy for quite a few days now (almost like a dry skin itch but still itches after I put cream on it It is hard to see back there but will have to determine if anything is going on.I had been bloated so much of the time for the past few weeks and now that is gone so I know that my body has rid itself of alot of toxins I had been afraid to get on the scale for I was sure I had gained weight but if I did it is all back to my normal weight nowAs I had stated in my previous message I will be starting the 75mg mino this evening and looking forward to more herxing Best wishes to all of you as always DianeC |
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DianeC Member in Phase 3
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Day 88 Benicar 40mg q6h Minocycline 50mg q72h Well I think I spoke too soon as the herxing that I was experiencing on my left side has now traveled more to the back on the left side above the waist. And again it started 32 hours after the mino dose. It felt like sharp poking jabs. I am happy that it appears to be traveling around my body in a circular fashion and not just staying in the one area as it had been. So consequently I not sure but it may be too soon to progess to the 75mg mino. I think that the itching may be due to the hot showers I have been taking lately. The hot showers feel great and I thought it would enable more mino penetration but I think I have been drying my skin out too much. I will see how it goes in the next few days and then decide if I am ready for the 75mg mino Best to all! DianeC |
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DianeC Member in Phase 3
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Day 89 Benicar 40mg q6h Minocycline 50mg q72h I did not have the same herxing (pain on side and back) that I have been having around this time of morning (usually a little earlier than this) so I am convinced that there was bug killing going on Have been sleeping an awful lot from around 6AM until 3PM or 4PM the next day. Also noticed little popping sounds coming from my right ear. I am going to wait until next weekend to start on the 75mg mino q72h as I feel that I am close to killing as many bugs as I can at this dose and will be ready to advanceBest wishes to all for gentle herxing DianeC |
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DianeC Member in Phase 3
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Day 91 Benicar q6h Minocycline 50mg q72h Today is pretty much the same as the last couple of days with less herxing now on the left side and back area above the waist so I am convinced that there was bug killing going on Sleep patterns are still the same; up all night and sleep most of the day And a few times I have gone to bed at 6AM only to lay there and get back up at 8AM for a couple of hours; then return to bed and then my whole day is goneOnce I do get to sleep, it is a very sound sleep so I think that is the way my body is dealing with this at this time. What still really amazes me is the fact that the last 2 summers I spent in Physical Therapy; limping and in such pain when walking from hip bone spurs and then being told I would need a hip replacement in 2 years and then I compare that to my condition now! I really had feared that we would have to move from our home as we have 2 flights of stairs but now the future is looking very bright Still planning on advancing to the mino 75mg this weekend Best wishes to everyone! DianeC |
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DianeC Member in Phase 3
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Day 96 Benicar 40mg q6h Minocycline 75mg q72h Well I believe that I have done all the herxing I am going to at 50mg so I am happy to say that I have just ramped up to 75mg Minocycline! Last night was the first that I had been out; we had a family birthday dinner at a restaurant. It was still light out as we left around 5:30 and I started to feel the start of some neurological effects from the light but I was only exposed for a short time so all was well and I started to feel better as the night progressed! I even had my K-Cream on and of course my wraparound Noirs I just updated my signature line I do have one question?? I may be getting too much artificial light and that may be why I am not herxing as much as I should?? I am on the computer alot and had turned the brightness down some time ago but it seems bright again. I tried wearing the 2% Noirs at the computer but then I can't see the keyboard when I type and I make too many typos. Any suggestions of how I can have light down near the keyboard?? Thanks bunches! Happy wishes to all! DianeC Last edited on Sun Apr 16th, 2006 09:09 by DianeC |
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Aussie Barb Research Team
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Diane Q: I tried wearing the 2% Noirs at the computer but then I can't see the keyboard when I type and I make too many typos. Any suggestions of how I can have light down near the keyboard?? - see If you can't see your keyboard and also: -turn your computer brightness and contrast down -wear the NoIR glasses that allow you to see enough without your eyes hurting.? 10%.. 40%.. -have a low wattage bulb lamp behind your line of vision. -dimmer switch the light in the room. Others may have more suggestions. all best, Barb .... |
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DianeC Member in Phase 3
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Day 98 Benicar 40mg q6h Minocycline 75mg q72h Thanks Barb for the link on the computer lighting! Started the 75mg mino on 4/15 Yesterday I had an incredibly painful left ankle/foot cramp which propelled me from the bed. When I get these cramps I usually grab the heating pad and put it on high and wrap it around my foot (as my foot is usually ice cold) The pain goes away so much quicker that way My question is: Is it more effective if I endure the pain and am I hindering the progress by using the heating pad as I am lessoning the pain caused by the herx Yesterday I also had some left hip pain which is gone today and earlier today I had some stomach herxing with a light amount of bloating which included the left side but it did not last longSo tomorrow I will be taking my second dose of 75mg mino Best wishes and hope all of you had a nice Easter DianeC |
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Aussie Barb Research Team
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Thanks Diane please do always relieve your pain and any intolerable symptoms, making the MP sustainable for you. tolerable is the aim. all best, Barb ... |
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DianeC Member in Phase 3
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Thanks again Barb! Well I can hardly believe it but I am ready to go to bed 2 hours earlier than usual!! Thanks again for everything DianeC |
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Julia Member in Phase 3 
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Diane, In addition to what Barb said about making the MP sustainable by controlling the pain: as I understand it, the herx is caused by the toxins released on bacterial die-off, so when the pain comes, that batch of bugs is already dead . So by alleviating the pain, you're not preventing bug-killing - hope this is a comfort!Julia  |
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DianeC Member in Phase 3
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Hello Julia, Thank you for that extra piece of information and yes it is reassuring to know that I am not hindering the bug killing process I see in your signature line that you were also affected by uveitis and that you are now in phase 3.......wonderful for you!!! I can't wait to get there as well but am taking things nice and slow for now. Does the uveitis bother you at all anymore? Take care, Julia, and best wishes to you! DianeC |
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DianeC Member in Phase 3
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Day 99 Benicar 40mg q6h Minocycline 75mg q72h Well I did get to bed 2 hours earlier last night and woke 2 hour earlier today Not very hungry so ate a light dinner and took a nap on the couch.I was icey cold and had a ton of covers on me but just could not get warm A very strange thing happened and it has to do with a dreamIn the dream I just remember walking into this large house and the the steps on the stairs were very steep and I was very cautious walking down the steps. Toward the end of the dream (at least this was right before I woke up) I was walking down the hallway toward the door and almost ran someone over as I had a terrible cramp in my right foot (the 2 outer toes to be more specific) At that point I woke up to a very severe cramp in the 2 outer toes of my right foot! What I am wondering is: 1) Was my brain trying to tell me during the dream that a cramp was about to start thus interrupting the dream or did my dream trigger the cramp? or 2) Was the cramp there first before I dreamed it but because I was in such a deep sleep did not feel the pain until the pain signal went to my brain during the dream thus waking me up? Ultimately what I am wondering is if we are in a deep sleep can pain go undetected even though the brain has acknowledged it or does the pain center of the brain shut down during deep sleep? It is almost like which came first.....the chicken or the egg?? Does anyone have any thoughts on this? I just find it interestingBest wishes to everyone! DianeC |
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Julia Member in Phase 3
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Diane Yes, I had bad uveitis, through which my sarc diagnosis came. My eye guy, after months of puzzled investigations and courses of steroid drops, suddenly had a brainwave and sent me for blood tests and X-rays for sarc. "Good news," he said smiling when the results came back positive, "you've got sarcoidosis." (I think what he meant was "good news, I've solved the puzzle, now I can get rid of you as that's not my department.") Phase 1 cleared the uveitis dramatically. I don't have a problem with it now, though I have a couple of floaters left to remind me to be thankful. Are you seeing any improvement yet? Julia "There IS light at the end of the tunnel - quick, get your NoIRs!" |
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jrfoutin Research Team 
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"Ultimately what I am wondering is if we are in a deep sleep can pain go undetected even though the brain has acknowledged it or does the pain center of the brain shut down during deep sleep?" Once in a while I wake up with similar events as you listed in your post, even when careful about sleep. Have a hard time saying much about the other pain events while sleeping because I slept through them (smile). Early in the MP I decided to use "sleep" to help & to mediate peak herxing. Actually, someone had posted something about wanting just have an induced coma to get through herxing and that made me think about sleep. I also thought anyone familiar with surgery knows anesthesia is used to induce sleep so pain is only an issue --after-- surgery. Daily pulsed sleep events are so much a part of our existence we often don't think about how our bodies recover and heal during that time (MP or not), but if the MP trick is to kick start and assist the immune system, why not use sleep to help too? Now, one of my favorite and most dependable toolkit options is just take a nap if the herxing seems a bit much... and it usually does the trick. Also, I purposely do an uninterrupted 8h block of sleep at night and MP dosing fits that. I don't do sleep medications intentionally (that also leaves me with no experience with them so I can't say if they would help anyone else or not). Human error occasional deviation -- staying up late for occasional good or bad reasons -- produces more pronounced pain and less tolerance for herx, so that confirms my 8h choice. I sense my immune system responds well to a regular 8h sleep choice. That's the anecdotal answer from my end of the universe. |
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DianeC Member in Phase 3
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Hi Julia, That is great news that your uveitis had cleared up in phase 1 That is interesting regarding the doctor ordering the test for sarcoidosis but it is good that he did despite his arrogance as at least you knew what you were dealing with. I don't believe I was ever tested for sarcoidosisI was diagnosed with uveitis is 1998 and for 3 years thought I was seeing the best doctor in the world but my condition worsened dramatically and my health continued to spiral downward as a result of all the numerous immunosuppressant drugs. My uveitis did clear after I was treated with doxy (my previous Doctor Wirostko had actually photographed the mycoplasma...mollicutes) so at that point I knew it was of a bacterial nature but it wasn't enough to deal with all of the other health issues that I was dealing with ......there was something missing and that was when I realized that MP was the answer to achieve total wellness Because of my extreme photosensitivity I had cancelled my routine ophthalmologist visit as I don't know how I will react to the light during the examination One weird thing has been happening in the last few weeks.....I don't know if it is anything or not but frequently when I close my eyes to go to sleep I will see light and what appears to be the a large black wing of a bird fly by the outer corner of my eye.....on a diagonal from the outer corner toward the top of my head (I think it has happened to both eyes but I will have to pay closer attention next time....it just happens so quickly. Is this weird or what???? Well, Julia, you are really at a good place......Phase 3.....I am really happy for you I can't wait til I get there!! Yes! I can relate to light at the end of the tunnel!! I never take my NOIRS off!! Best wishes to you DianeC |
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DianeC Member in Phase 3
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Hi Janet, Thank you for your thoughtful reply to this interesting topic.......sleep Yes, I agree with you that there is certainly alot to be said for sleep and the healing that it provides Before MP I was not sleeping well at all and certainly not soundlyMy problem is that I cannot sleep at will whether herxing or not. My herxing timetable has changed as my dosing has changed so I cannot predict when I will be herxing or in what form as yet. Currently I am sleeping many hours....probably between 10 and 12 hours a day including the after dinner nap I do think that the more we sleep, the more we benefit.... especially considering the neurological herxing (headaches, etc) I do not like this type of herxing (I experienced it when I first started the Benicar and was riding in a car with the intense winter sun glaring in the windows. I felt the effects in spite of being totally covered It also made me feel very nauseous Well speaking of sleep...my body is now telling me that I had better get some Thanks again for your insight......... DianeC |
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Julia Member in Phase 3
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Diane, The ripples of light round the edges of the field of vision were common when I had uveitis, and now come back a bit as harmless herx. It probably doesn't mean there are still bugs in the eyes, just in the brain! Things are being wrongly perceived by the 'sight' bit of the brain as stimulation from the eye. Nevertheless, I think you should keep up to date with eye tests, because you just don't want to take any risks with eyes, they're too precious. I've just had mine and was told the short-sightedness in both eyes had improved slightly, in the poorer eye quite a bit, which I didn't really expect at my age! How interesting that doxy cleared your uveitis and mino cleared mine. Yet antibiotics aren't thought of as standard treatment for it - just steroid drops, which only give very temporary relief. When I expressed concern that yet another course of drops might give me cataracts, my consultant's reaction was a shrug, "Well, we can easily take them out then."  What a mercy that I found the MP just as my opthalmologist warned me that cataracts were starting to form! I've had no bother with them since. Julia |
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katydid Member in Phase 2/3
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I also get the "birds" flying by when I close my eyes. I just started noticing it. I'm so glad you two posted on this. I wasn't sure what it was! Glad you're making progress so quickly! Kathy |
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DianeC Member in Phase 3
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Hi Kathy, Yes, I really started thinking more about this after reading Julia's post Thank you Julia! Anyway, I have just made an appt with my opthalmologist and will follow up here with any informationKathy.....can you be a little more specific in exactly what you see when you close your eyes? Do you see birds or just the wing of the bird and in what direction are they flying? Anything else would really be helpful Best wishes as always DianeC |
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Aussie Barb Research Team
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Diane see further Information Will Herxing cause increased eye inflammation? says in part: Anyone with a history of eye inflammation, especially uveitis or iritis, should have their eyes examined regularly while on the Marshall Protocol. The Herxheimer reaction could increase eye inflammation and eye tissues are easily damaged by inflammation. EYE INFLAMMATION and Th1 diseases all best, Barb ... |
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DianeC Member in Phase 3
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Thank you Barb! for the links! My doctor has agreed to see me right away The only other thing that I just noticed today that is happening is that as I type this, the letters are sloping downhill from left to right That is also kind of unusual.I will update as soon as I know anything Thanks! DianeC |
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DianeC Member in Phase 3
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Day 105 Benicar q40h Minocycyline 75mg q72h I am just coming out of a sun flare having slept most of the weekend The trip to the eye doctor on Friday was a long oneWe took a wrong turn coming home so had to assist with the directions, of course my eyes needed to be opened and even with the 2% wraparounds with the 2% fitovers over them I still developed neurological symptoms and felt unsteady during the weekend but I am doing fine now While still in transit coming home I realized that both pair of glasses on at the same time were contributing to the headache so I took one pair off and covered my head with a pillow case. That relieved some of the symptoms The eye exam was difficult for once they dilated my eyes I had an awful time keeping them open for the exam. The doctor stated that it is a floater so I was relieved and there was still no sign of return inflammation I have a couple of questions regarding my dosing and the length of time between the doses? 1) I took my 4th dose of 75mg minocycline last night spacing every 72 hours. I am definitely NOT herxing badly at this point. I just sleep alot Early on I had changed the dosing pattern from q48h to q72h but now it does not take me until close to the 72 hour mark to herx so is it preferable to be on the q48h dosing schedule? 2) Is it too early to advance to the 100mg of minocycline? I have just read the link regarding when it is time to advance to Phase 2 and it stated that it is best if done within 3 months so that the resistant bacteria does not start to multiply while still on the minocycline. I feel like I am ready to advance Thank you! DianeC Last edited on Tue Apr 25th, 2006 11:43 by DianeC |
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Aussie Barb Research Team
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Diane re Q 1) I took my 4th dose of 75mg minocycline last night spacing every 72 hours. I am definitely NOT herxing badly at this point. I just sleep alot Early on I had changed the dosing pattern from q48h to q72h but now it does not take me until close to the 72 hour mark to herx so is it preferable to be on the q48h dosing schedule? - You can choose the schedule most suitable to yourself that helps you get the optimum amount of tolerable herxing for your time. Q 2) Is it too early to advance to the 100mg of minocycline? I have just read the link regarding when it is time to advance to Phase 2 and it stated that it is best if done within 3 months so that the resistant bacteria does not start to multiply while still on the minocycline. I feel like I am ready to advance -If you feel ready to advance to 100mg mino, that is what you do.. and you can send for your Phase 2 Questionnaire as well to begin making your preparations if you like. all best, Barb .... |
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DianeC Member in Phase 3
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Thank you Barb! Yes, I am ready to advance to 100mg and will try q48h unless intolerable herxing becomes the issue at which point I will go back to q72h I will also now send for the questionnaire to prepare for Phase 2 Best wishes! DianeC |
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DianeC Member in Phase 3
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Hi Barb, I completed the Phase 2 questionnaire and sent it back I will be starting the 100mg minocycline tonight 4/26 as I am feeling pretty good and not herxing at all now Thanks again and best wishes to you!! DianeC Last edited on Wed Apr 26th, 2006 09:47 by DianeC |
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DianeC Member in Phase 3
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The following was my reply to Meg when she sent me Phase 2 but she informed me that I must post all questions in my report. Thank you Meg! I will take it very slow and when I feel I am ready to advance to Phase 2 I will make an appt with my doctor for the blood work and will follow the instuctions here very carefully!! The only question I have is: Why have I not be herxing as severely as most of the others in Phase 1? Is that unusual? I do have the feeling that most of my bacteria is deeper within the muscle tissue and that my herxing will be much more in Phase 2 (I just briefly read through Phase 2 and will read it many times over before and while in Phase 2) I have been very diligent in following the instructions in Phase 1 very carefully. Although I believe the house is dark enough I do not have a lux meter and feel that maybe I should purchase one to be absolutely sure it is not above 30 lux. We have black opaque shower curtains covering every window in the house but sometimes a thin amount of light appears along the sides. I am trying to wear my 2% Noirs more in the house but I am afraid of accident as it does curtail your every move. Do you know where I can purchase a lux meter as I know nothing about them or what to look for when purchasing one? I will be absolutely sure that the time is right before I enter Phase 2 PS I will add that I did not go to 100mg mino as yet but plan to this weekend. The reason being is that since I have been taking the mino around 11PM or so I think that I am herxing while I am sleeping I was able to get to sleep around 4:30AM this morning which is 2 or more hours earlier than usual so I am going in the right direction. This morning earlier I had the icy feet again and the start of the foot cramps. I also noticed some soreness in the right upper arm in the bicep or tricep area of the muscle so I think the mino is finally getting a foothold in some of the muscle. So I guess if I am sleeping through the herxing that must mean that it is tolerable and so therefore should advance but carefully. I just want to be sure that I am killing all the bugs necessary before advancing but also aware that I should not stay too long in this phase before advancing to Phase2. Also would taking the Benicar 20mg every 4 hours give me more herx than the 40mg every 6 hours. And only take the 40mg before bedtime?? Thanks again!! DianeC Last edited on Thu Apr 27th, 2006 15:24 by DianeC |
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DNStog Moderator 
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Diana, My herx symptoms have not been as severe as most MP patients either. That being said, some of my herx symptoms were probably ignored because I had gotten so used to their being present. All signs of pain have been very short lived or taken care of by an occasional Ibuprofen and disregarded. My most enduring herx symptoms (24 yrs+) are the ones that have been with me the longest...insomnia, sleepiness, weight gain, and lack of energy. I complained to my former doctor for years about these issues, and was told...allergies make you sleepy...allergy medicine makes you sleepy... you're doing too much...you're not getting enough sleep (suggested 10-14 hrs)...you need more exercise...you're too stressed and on and on. Pain in various areas of my body had started to present itself about five or six years before starting the MP. IMHO, the longer the symptom has been with me, the longer it takes to "cure it away". I've noticed that some of us experience our most intense herx symptoms in later phases. Phase III has hit me harder than I thought it would. That is probably because I thought "cleaning up" meant getting rid of the few bits and pieces of disease symptoms. In reality, it has been the final annihilation of issues with energy, strength, sleep and brain fog...and, dare I say it, the beginning of weight loss. Donna |
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DianeC Member in Phase 3
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Donna, Thank you for replying to my post as I was beginning to think that I was doing something wrong but could not figure out what it was It would be nice to think that I am killing bugs with as little herx as I have been experiencing although I had expected a much more dramatic herxI do believe that my time will come for the severe herxing as I do believe that my problems are embedded deeply within my tissues; especially the muscle tissue where I am just starting to feel a little activity. My most troublesome issues (other than going outside and becoming exposed to the light) is like what you experience as to the insomnia/sleepiness. It almost makes me wonder if the mycoplasma are noctournal (spelling??) whereby when they are awake and active they force us to become active as well? When you think about it......don't they have to sleep too? Or do I have that all wrong? That is wonderful that you are so far along on MP and now reaping the rewards inspite of the difficult herxing you had to go thorough to get there. Congratulations to you You are an inspiration to so many of us who are so early on in the protocol Best wishes with your continued success and great health! DianeC |
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DianeC Member in Phase 3
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Day 113 Benicar 40mg q6h Minocycline 100mg q48h As it turns out my flat screen monitor was the culprit in keeping me from herxing the way I should have been I placed a sheet of green transparent acetate over the screen and I am now herxing I am going to check and see if they have amber but the green does seem to be doing the trickI started taking mino 100 mg on 5/1 The same day I had an awful attack of Raynauds. My fingertips and part way up the finger were blue but it was different from what I had in the past........ I wrapped the heating pad over them and actually started to burn myself because I did not feel the heat and it had no affect on warming them anyway which was kind of odd I actually felt nerve impulses further up the finger and hand and that was when I realized that it was not helping I didn't think to do windmills as that is what I had always done in the past to get the blood flowing again to the fingertips. Well, instead of just going to bed, I just woke up as I went to bed last night at 11:30 PM with an awful headache and I never get headaches as a rule so that was great I slept petty soundly until 5AM The headache started early last evening and I still had a touch of it when I woke. While sleeping I also saw a couple more of those bird wing floaters and as I type this it is still going in a slight downhill direction. I plan on entering Phase II probably in about 2 or so weeks as I have a dentist appt mid month and I will be making an appt with my doctor for blood work before beginning Phase II IS IT ADVISABLE TO HAVE THE D-METABOLITES (both 25-D and 1,25 D) tested again?? I originally had the tests done in Sept 2005 I have not had any real debilitating herxing as yet so maybe my D's are still way up there, so therefore it would NOT be advisable at this point??? Best to all with gentle herxing DianeC Last edited on Wed May 3rd, 2006 17:26 by DianeC |
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Aussie Barb Research Team
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Diane see this FAQ and the links within for all the information: What tests do I need to monitor my progress on the MP? says in part: At the beginning of Phase Two, Healthcare Providers should assess the level of 25-D. It is vital for effective immune system function that this prehormone be at a low therapeutic level of 12ng/ml or less. Where levels are still elevated you are encouraged to increase efforts to avoid ingested forms of Vitamin D. It is not necessary to assess the level of 1,25-D at this point because it is altered by MP medications and is expected to fluctuate rapidly. all best, Barb ... |
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DianeC Member in Phase 3
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Hi Barb, Thank you for the links and the information on D test. I will have the 25D test done again Well after my earlier post I went back to bed and just woke because the headache started to get so much worse I slept soundly but now I have to deal with this headache and my head feels fuzzy kind of like the brain fog again. Since I have just started the mino 100mg q48 hour for the first dose on May 1, I am wondering if I should go back to the previous dose of 75 mg and maybe stay at q48h since I think that based on what I am feeling now that some significant herxing may be starting due to the computer screen now be covered properly? So it appears that I am killing some bugs in the brain thus the neurological symtoms I just don't want to miss any bugs that is why the question regarding the dose and schedule?? Will either the 75mg or the 100mg get any missed bugs????Best to all DianeC |
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Aussie Barb Research Team
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Diane The headache may also be from the changed light.. increasing the Benicar may help.. try that first, and then you can decrease the mino if you need to.. all best, Barb ... |
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DianeC Member in Phase 3
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Thanks Barb! I will try your suggestions! Thanks! DianeC |
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DianeC Member in Phase 3
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Day 115 Benicar 40mg q6h Minocycline 100mg q48h This is my 3rd dose of 100mg mino q48h I am doing some herxing but all is tolerable at this point. Yesterday the backs of my upper legs felt achy and I had that same squeezing pain in my left side and toward the upper back that I had when on the 25mg and 50mg mino (It was worse when I was on the lower doses) Last night I took a long hot shower and thought it would reduce me to mush and that I would sleep the whole night through Well it didn't and I was back up 2 hours later I am really concerned about outside light coming inside? When I come down to the kitchen to start dinner, the door is open and light is coming in. If I put the dark Noirs on I am afraid I may cut my finger with the knife when preparing the salad and I am not able to see what is in the refrig as there is no light in there at all. Does the indirect light that comes into the room the problem even if it is not falling directly on me? I think that I know the answer but I am trying to find a solution so that my husband does not have to suffer when he enjoys the fresh air coming in I have to figure something out??? I find myself changing glassess everytime I enter the kitchen but then what about my skin being covered especially with the warmer months ahead. Does anyone have any suggestions as to how to stay fully clothed especially in the warmer months and not be so very uncomfortable?? I checked the Coolibar Catalog and wondering if there are any other catalogs similar to that one?? We will be putting the air conditioners in soon so I guess I will have to prepare as if going outdoors...completely covered...K-Cream and all. Right now as I write this I am getting some upper arm soreness.....I took the mino about 3 hours ago so the herxing does not wait so long as it did in the beginning. Best wishes to all DianeC Last edited on Sat May 6th, 2006 08:26 by DianeC |
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DianeC Member in Phase 3
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Day 122 Benicar 40mg q6h Minocycline 100mg q48h Please link my Phase I progress reports to the PHASE II Forum as I am just about ready to start and have some questions My doctor appt for blood work to be performed before starting Phase II is next week My progress so far is that I have taken 6 doses of 100mg minocycline q48h with very little intolerable herxing with the exception of the occasional acute killer foot cramps on either foot Also feel overall more tired and once alseep could sleep indefinitely. My stomach also feels bloated but alot of that could be from the dish of oatmeal and banana I have right before I go to sleep very early every morning as that is my sleeping pill. Without a full stomach I cannot go to sleep so I hope at some point that will change Looking forward to PHASE II Best to all DianeC Last edited on Sat May 13th, 2006 06:48 by DianeC |
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Aussie Barb Research Team
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Thanks Diane Please start a new topic in the Phase two and three forum for your progress report.. Before starting Phase Two, we do encourage members to begin a progress report in the Phase Two forum to discuss recommendations re their new meds and dosing. all best, Barb ... |
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DianeC Member in Phase 3
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Thanks Barb, I have just started a new topic in Phase two and three I am looking forward to starting Phase IIBest wishes and happy herxing to all DianeC |
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