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jrfoutin
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Posted: Wed Apr 12th, 2006 13:07 |
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It just dawned on me it has been a long time now since I can remember having a "shiver shake shock" kind of event... probably since I started the MP. But I used to frequently sort of just "jump" in response to a shiver that would run up my spine. Sometimes it would be a while between these events. Sometimes I'd get several in a day. It resulted in sort of a kind of a little spasmic whole-body shake, kind of like you might do when you shiver from the cold, but there is no cold that triggers the event.
It has been a very long time now that I haven't had one of these mini shiver shake shock episodes (smile). I have no other name for them, I never asked a doctor about it because they just were minor little inconveniences lived with all my life. I just thought it was me but then I've noticed I don't have them any more.
Anyone else had these? Anyone know what they are?
Given my personal experience and current lack of these events, it sure appears to be a neurological effect connected to my favorite Th1 disease.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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prugg21
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Posted: Wed Apr 12th, 2006 20:58 |
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Oh, yes. I'm so glad you wrote about this. it's encouraging to know this can be healed.
I just had one last night. For me, they are related to even the slightest chemical exposure. My daughter inadvertantly walked past some potent cleaning chemicals yesterday and forgot to shower when she got home. It always disturb my sleep, I jolt awake with the feeling I have put my finger in an electrical outlet. I am buzzing and actually visibly shaking in the neck and head.
I am very limited with where I can go, because if I get a direct exposure to certain pesticides, cleaning chemicals, or formaldehyde myself I will buzz and shake all night with severe insomnia.
I'm sure it's a neurological effect though no one really has ever been able to tell me what it is, aside from it being a symptom of MCS.
I do know that homeopathics I take for calming the nervous system prevent or reduce it.
Boy, will I be glad to say goodbye to these!
Pam
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MCS/CFS/FM,22+yrs,Gerd,migraines,insomnia,avoiding light & D,NoIRS,benicar 3/30/06 40mg Q4-6H,mino,4/18/06,mod/ph2-
10/17/06,probx,estriol, 3/06-25D=27,9/06-25D=26,11/06-25D=21,4/07-25D=22,7/07-25D=19
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Chris
Moderator
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Posted: Thu Apr 13th, 2006 05:09 |
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"shiver shake shock"
I think I get this same symptom. I'll be lying in bed starting to go to sleep, and then my whole body will jump a couple of inches. It's sort of like a whole body sneeze. I can get them when up and around, but I notice it a lot less often.
Since my sarcoid started with severe chills and shakes that lead to fevers followed by cold sweats, I'd always dismissed these episodes as hangovers from the earlier chills, but no that you mention it, they do seem like a separate symptom.
The tremors when I'm up and around are less dramatic. What I notice more when I'm up and around is that I'll be holding something and my hand simply looses any tension and I drop whatever I'm holding. Sometimes I notice a slight tremor when this happens, sometimes not.
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sarcoid diagnosed 1991, probably started 1983
D25/1,25: Mar04 17/80, Sep04 12/50, Nov04 8/23, Jan05 9/39 May05 6/27; in phase3; fevers, muscle pain, tinnitus, depression, mental-fog, IBS, carpal-tunnel, fatigue, osteopenia
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lionel forbes
Member in Phase 3
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Posted: Thu Apr 13th, 2006 05:29 |
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      i used to think that mine were caused by spiritual entities, but since i implemented a natural control method for epilepsy,they stopped. i believe it is caused by the chemicals of foods and air(pollution), and if I eat a more organic (chemical free food) diet it will stop. also I do not use fly or insect sprays or any other sprays, incl. hair spray.
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sarcoidosis phase 1 jan 2006,phase 2 march 2006, phase 3 september 2006
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barbski
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Posted: Thu Apr 13th, 2006 11:41 |
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Yep, me too .
I used to get them occasionally, got them MUCH more frequently during the first 8 weeks or so of phase 1, then they eased, and I don't think I've had one in about six weeks now.
Janet, until you mentioned them, I'd actually forgotten that I ever got them! Is it just me that forgets symptoms if I'm not currently experiencing them, or is that a general thing?
I don't know what causes the shiver shake shock thing, I just assumed it was related to everything being screwed up.
Barb
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CFS Lyme 125D50 Ph1Aug05 Ph2Apr06 brk Nov06-Jan07 ModPh2May07 Ph2May08 Nexium TR sodium zolpidem salbutamol magnesium citrate 25D (May05)
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Alison
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Posted: Thu Apr 13th, 2006 13:37 |
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I get the sleep-start shocks every once in a while. It sounds like this shiver shake shock symptom you're describing could be termed "myoclonus".
Here's some info: http://www.ninds.nih.gov/disorders/myoclonus/detail_myoclonus.htm
Notice the references to MS and Parkinsons, which are Th1 diseases.
Alison
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PRE-MP; SX: fatigue, mem loss, arrhyth, anxiety, irritability; No DX; D-Tests: Feb06 [25D=14, 125D=29], Aug06 [25D=26, 125D=72], Feb07 [25D=9, 125D=38], Sep07 [25D=20, 125D=41], Jul07 [25D=20, 125D=54], Apr10 [25D=11, 125D=45];
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jrfoutin
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Posted: Thu Apr 13th, 2006 14:06 |
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Wow. Good information, nice to know it isn't just me, it was the disease. I never questioned why I was different that way.
Agreed, forgetting symptoms if not currently experiencing them is pretty common for me, too. I tried to write everything I could think of at the beginning of the MP but my memory thinker was a tad challenged at the time (smile).
It is interesting to strip away layers of what I thought were just "me" to find the real me. Guess I can be happy the MP does take a while so I can get used to it. Letting go of sick self and moving to wellness self is quite a shift.
Last edited on Thu Apr 13th, 2006 14:33 by jrfoutin
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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Vicki SA
Member in Phase 3
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Posted: Mon Apr 17th, 2006 02:05 |
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G'day,
Have to say - me too! I would often get these jerks/muscle spasms as I settled for sleep, sometimes about 20 times in a row! And this was not like falling off the cliff when you are dozing, this was just laying there and awake.
I quite often get a 'ping' say, in a muscle in my leg and then my whole body jumps. I am having them a lot less now, 3 months into the MP.
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 15mg, 2010 - cover with light r/t Work 3/7, NoIRs, hat, cover well, June 2010 25D - 8.8
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BARNEY
Moderator
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Posted: Mon Apr 17th, 2006 04:43 |
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Janet and Pam,
I have had that all my life, from the time I was a child the adults used to say that "someone had just walked over your grave". Lord, I hated that statement.
Pam, Hang in there, your mcs should disappear. Most of mine has...altho I have had some herx that has allowed me to be sensitive to a minor degree, nothing like before MP.
I haven't had that feeling in a long time.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5, http://MPKB.org
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Posted: Mon Apr 17th, 2006 06:00 |
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Janet,
The MP got rid of those tics and jerks for me, and I am so happy. I think Alison is correct that myoclonus is the name for this symptom.
I would add that in Phase III, I had recurrent, tormenting, deep hiccups that would last 15-20 minutes as I relaxed. It was good to get rid of those - which I counted as Herxes.
Belinda
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jrfoutin
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Posted: Mon Apr 17th, 2006 21:52 |
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Funny! I never thought of my hiccups that way. But it makes sense, given when I get them the most.
I never had shivers before sleeping, but usually while sitting or at rest and then "wham!" I would involuntarily jump/shake and startle myself and anyone close by.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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Reenie
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Posted: Mon Apr 17th, 2006 22:29 |
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Janet,
I don't usually get the shiver part, nor has this happened to me in quite sometime, but just last night as I was drifting off to sleep, WHAM!!!
I had some sort of a startled feeling along with a really intense jump.
I've had this happen before, but not for some time now. I remembered reading this on the site and thought to myself I would add to this thread today.
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CFSgirl
Member in Phase 2
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Posted: Tue Apr 18th, 2006 01:00 |
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Janet,
I used to get every night what sounds like a similiar thing, but it felt like it was starting right in the solar plexus area and then go through my whole body into a big shake whole body spasm. I used to be afraid that it was my Aorta(?), the artery coming up the middle on its way to the heart that was spasming. It was scary. No doctor could understand what I was talking about, so I quit mentioning it. Anyway, knock on wood, its been a long time now since I've had one of those.
But, I now have a "mini" version, where I am almost asleep and then in a second, fully wake up in a state of anxiety. I HAVE to get up and get out of bed to get over this. This had increased since the MP and am hoping it is a Herx of some type. I'll be glad when I can add this to my list of dissappeared symptoms!
CFSgirl
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CFS FMS MCS 125D49 25D19 MP 10/05 Ph2 4/06 NoIRs lowlux home limited outings covered, Soma or Aleve as needed, neurontin, Clonazipam,Thyroid, HRT ModPh2 04/07
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barbski
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Posted: Tue Apr 18th, 2006 13:29 |
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Hey, I've had the hiccups as well.
It never occurred to me that they were associated with the shiver/shake/shock stuff, but I was getting really painful 30 minute hiccups episodes at a similar time to the increased myoclonus (I mentioned the hiccups in the first page of my Phase 1 prog reports: http://www.marshallprotocol.com/forum20/4468.html ). It never ceases to amaze me how many weird symptoms and herxes we have in common.
BarbLast edited on Tue Apr 18th, 2006 13:29 by barbski
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CFS Lyme 125D50 Ph1Aug05 Ph2Apr06 brk Nov06-Jan07 ModPh2May07 Ph2May08 Nexium TR sodium zolpidem salbutamol magnesium citrate 25D (May05)
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metalevel
Guests visiting Phase 1/2/3
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Posted: Wed Apr 19th, 2006 16:07 |
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I started to experience myoclonic shaking about 3 years ago. I was first introduced to it while a patient at a residential pain clinic. In that specific context it was used in conjunction with other therapies to release body tension and was thought of a form of energetic release. For me it usually comes on while I am laying down, sometimes though, I can be standing or sitting. It kicks in when I exhale and my torso starts to shudder. It can be as short as 2 or 3 shakes or it can go on for a few minutes. Sometimes my legs, arms and head will also get involved. Occasionally there is a very obvious trigger such as a negative thought associated with stress/anxiety. I think it is incredible how direct this connection is between mind and body. Other times it seems to come out of the blue. There have been other occasions where it was triggered by a therapist. The first time this happened it was quite scary for both of us. Once it started, I lay on the treatment table for approx. 30 minutes flopping violently like a fish out of water. There was an incredibly intense vibrational force with this very rapid movement. I remember thinking it was like a freight train racing through my spine, not at all a pleasant experience. Now I am not so concerned by it because it also surfaces when I am doing release work at home and seems to complement and complete the release. I actually feel quite good after this shaking.
metalevelLast edited on Thu Apr 20th, 2006 00:55 by
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Dx. pelvic/spinal-malalignment, head injury, visual dys, cranial nerve dys, seizures? myofascial pain syn, fatigue, brain fog. Jan/05 1,25D=53.9, 25D=28.8. Oct/05 1,25D=26.9, 25D=15.6 No D/light, Noirs.10 mg elavil, Full MP Oct 19/05, 3x40mg Olm, Mod Ph
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Suzanne
Member in Phase 3
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Posted: Fri Apr 21st, 2006 03:28 |
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| Every visit to this site, I find an answer to a question that I would never ask. Thanks for the info.
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Sarc 1990| D1,25=38; D25=19 MP 2/06| Detrol LA Allegra Prevacid| 6/06 D25=14| Ph3 12/06| 5/08 D25=5 Aug08 25D18 Nov08 25D11 Apr09 25D8 Jan10 25D <4
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visitspirochete
Member.
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Posted: Fri Apr 21st, 2006 16:55 |
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| You know, I used to have those also, mine accompanied chills, and by the sound of the title yours did also. I have not had one since starting on the Marshall, but that does not mean that it won't happen, it's been less than two weeks, I am very fatigued though. Troy
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Diag 9 months ago Lyme, Rifed 8 monts, start MP on April 7, Start Mino April 14, Vit D test taken on the 10th of April, but started benicar on the 7th of April, D125=34, D25=27, Mag ox, Pro Bio.
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Vicki SA
Member in Phase 3
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Posted: Sat Jun 3rd, 2006 03:53 |
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G’day all,
Yesterday I had muscle spasm in my back. I get this sometimes and it is different to muscle spasm when you have an injury as it has no consequences after. It doesn’t get better or worse, it is just what is happening at the moment. It occurred to me that this may be connected to the shiver, shake, shock thing (myoclonus) as well. I get that at night in bed at times, sometimes 20 times in a row.
I can also relate to Metalevel’s post above (20th April) where he states that it “was thought of (as) a form of energetic release”. That wouldn’t surprise me at all, with the way my muscles feel like “too tight rubber bands” at times. And the release is not usually a pleasant sensation.
Metalevel’s description (below) sounds awful! Cheerio Vicki
“There have been other occasions where it was triggered by a therapist. The first time this happened it was quite scary for both of us. Once it started, I lay on the treatment table for approx. 30 minutes flopping violently like a fish out of water. There was an incredibly intense vibrational force with this very rapid movement. I remember thinking it was like a freight train racing through my spine, not at all a pleasant experience.”Last edited on Sat Jun 3rd, 2006 04:02 by Vicki SA
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 15mg, 2010 - cover with light r/t Work 3/7, NoIRs, hat, cover well, June 2010 25D - 8.8
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