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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sun Oct 1st, 2006 01:15 |
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Thanks Judithann
The 25D is the important #. Do you mind adding your 25D into your signature line when you can please.. Thank you..
These Th1 diseases are fundamentally Lymphopenic (low lymphocytes or white cells) diseases. That is what your bloodwork shows.
Good to see you are happy that all is tolerable..
You email for the Q, and can send for it in time to have access to the Phase Two forum and Information so that you can discuss with MP Staff and Dr re next Rx meds..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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judithann
Member in Phase 2/3
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Posted: Wed Oct 4th, 2006 07:38 |
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Mino 75mgx48hours Beni 40mgx6hours
Hello Barb
boy am I ever weak. You know when you have had a flu or gone through major surgery and you are left very weak in the body...that is how I have been these past few days. When I walk from the bedroom to the kitchen,,,I need to hold on to the walls and I have to stop and sit down when Iam preparing myself a small meal...i am that weak!
I have been breaking out in cold sweats followed by some kind of feeling of overheating, then I get chills...this goes on and on hand in hand with this weakness. I will assume this is a new phase in my herxing...I sure feel very very sick.
I am having lots of the other stuff which I now call the regular herxing...stuffed up nose, wheezing, joint aches which move all around my body, My bottom seems to stay chaffed no matter what I use on it...have had lots of sitz baths to try to heal it...just wont heal...yukkie and burns...hurts to pee, As I always say...I am simply resting and repair...sleeping 12 to 14 hours a day...I wake up lots but am so tired I fall back to sleep.
This i my update for now.
As Ever Judithann
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Oct 4th, 2006 08:46 |
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Judithann
How many doses of 75mg have you taken? or
how long have you been at this dose level?
Have you adjusted the dosing of Benicar to Q4H? and does it help?
Have you tried extending the mino schedule to 3 days or more?
Some find that the 3 day dosing gives a more tolerable Herx level.
Some find the 3 day dosing gives more herx.. dont let it go to intolerable, take your dose at a shorter time if necessary to hold your herx at tolerable.
Have you tried decreasing the mino dose back to 50mg?
and taking Daily?
Let us know and we will go from there.. Thanks, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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judithann
Member in Phase 2/3
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Posted: Wed Oct 4th, 2006 17:26 |
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Mino 75 Beni 40x6
Hello My "Sage" Barb
I will try the Mino at a three day space. I have been on 75 for only a week and a half.
I took it today (Oct 4 )so I will wait until the seventh. Then I will take my next dose.
I will let you know how this works and I will post tomorrow to see how I am. I am tired again today, could sleep another day away!!!
As Ever, Judithann
ps Sage.....one who has great wisdom and knowledge to share with others
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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judithann
Member in Phase 2/3
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Posted: Mon Oct 9th, 2006 06:37 |
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Hello Barb& All
I have spaced out the treatment of the Mino to three days. i have found that I am not as tired, but that i do have more pain in my joints especially my shoulders and elbows. I also found my breathing more heavy and wheezy.
I am not sure it is a trade-off, I am thinking that the weakness and tiredness may have been the body simply adjusting to the new 75mg dose.
Tomorrow will be my next three day dose...so I will wait and see how I reacted on that one. Then i will step it up again to the two day and see if the weakness and tiredness returns.
I still have not reviewed this all with my Doctor yet as I am awaiting the information on the second stage protocol. At that time I will ask him for a pain medication to ease off some of the inflammation. I am going to have him do a pap test because my bottom remains sore and irritable. As I said before my doctor is only tolerating me on the MP because I threw such a fit and he had no other solution for my sarcoidosis. This makes it so hard to to go to him with complication as I fear he will simply say...stop doing the MP if it is so hard. So I am going to present him with my new needs from the second stage and have him do a full check up and ask for any other medication I might need.
I really have to handle this balance very thoughtfully. That makes you all so much more valuable to a poor old sick gal like me!! thanks so much..all of you. All the the little cheer-ups that come by either private mail or here on line can make such a difference!!(Trish, Kas, Meg. Bill. Barb ect...) I so appreciate all the help!!!
I will post again to see if the spacing maintains or help further.
As Ever, Judithann
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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carol
Moderator
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Posted: Mon Oct 9th, 2006 07:21 |
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Dear Judithann:
Regarding how to manage your doctor....when I was in your shoes I would always start by telling my doctor that I was "responding dramatically" to the MP. Then I would bring up my issues/needs.
Good luck!
Carol
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rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
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Aussie Barb
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Posted: Mon Oct 9th, 2006 07:30 |
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Thanks Judithann
re "I am awaiting the information on the second stage protocol."
Have you sent an email for your Phase 2 questionnaire so that you are prepared for your Drs visit..
When that is done, and you have received your reply, we then encourage you to begin a new progress report in the Phase 2 forum to discuss recommendations re the new meds and dosing in preparation for discussing with your Dr. Thank you.
re your sore bottom seeking pap smear: scroll thru this FAQ to see if there is anything helpful for you.. I have a yeast infection. What should I do?
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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judithann
Member in Phase 2/3
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Posted: Mon Oct 16th, 2006 07:03 |
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Benicar 40mgX6hours
Mino 75mgx3days
Losec20mg daily
Hello Barb
Here I am my dear Barb, with the results of my new spaced out ,three days Mino, tryouts.
I am feeling much more alert and I am still herxing but I am not totally wiped out! So that was an answer for this round! Another bright thing Barb was that my white Cell Count was below the acceptable level, and this week for the first time in a while it when up. in fact it was up to the highest it has been since the start. It was 4.2 and 3.5 to 10,2 is considered in the Norm...here in Canada. I have been below 3.
Another good results is the the pulse has also balanced out. Before when ever I did small chores like doing dishes or taking a bath my pulse would race as though I was jogging. When it would speed up past 115, I would began to labor in my breathing and become very weak. I thought maybe the weakness was my blood pressure dropping but I bought a auto BP gage and it showed that even though I have low BP usually around 79/56 to 85/65 that was not causing my weak spells, it was my pulse racing.
This week when the nurse arrive to take my blood and vitals. She was surprised to find that my BP went up when I went from laying to sitting to standing...as in all other visits It would drop in all cases. My body is adapting to the Lower BP!It is finding a better balance,,,,yaaaa
I did return the questioniar and recieven the needed info about stage 2. I do not think I should go there yet Barb. I felt very concerned about the fact that I am still only on75 and now had to space it three days. I am have my share of heart and breathing herxing . So I think I will continue on, right here ,for a bit longer. It has only been four months anyhow!
Now about the sore bottom, I do not believe it is a yeast infection (have had enough of them to know what they are!) This is more like a rash type soreness that can even crack and bleed and open, it is terrible and sore and I do not even want to pee!!! They is no discharge at all and it extends to the outer regions of my bottom as well. I am to have it examined on the 25th, I have no doubt this is a skin herxing. Salt baths will help and it starts to heal when wham...its right back! Looks more like a diaper rash from a poor baby girl who nappys are never changed and she is chaffed, raw with sores breaking out!!It is nothing like a yeast. Tell poor Kas that yeast is not the only female trouble that can happen!
On Wed Oct 18th I will increase my Meds to 100 Mino...do you think that I should still stick with the 3 day doses? OR should I leave it at 75 and bring it back to 2 day doses?
Thank you Barb, as ever for every thing. I await to hear your reply and assessment on my report! Thank you
as ever Judithann
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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Aussie Barb
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Posted: Mon Oct 16th, 2006 09:04 |
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Thank you Judith
Your description of your sore bottom: the Sarc lesions come to mind. Some may be able to give you some tips.. and there may be some Information in this FAQ re skin problems: I've developed a rash. What should I do? would it help to use some sort of diaper rash preventive to keep the area dry? just floating suggestions.
and in the meantime, it sounds as if you are managing the meds which should also help.
Dont think of *having to space the abx to 3 days* as an impediment. It is all part and parcel of adjusting the meds to achieve tolerable Herxing as individual to yourself. It all helps to gain experience in managing the meds as well..
this Increasing Tip may be helpful..
When you feel ready to increase the abx, there isnt a requirement to be at 48H dosing unless that does suit you best. Some find that the 3 day dosing gives a more tolerable Herx level.
Some find the 3 day dosing gives more herx.. dont let it go to intolerable, take your dose at a shorter time if necessary to hold your herx at tolerable.
We recommend looking at the Phase 2 Information when you can, and starting a progress report there to discuss the possible meds combinations in preparation before going to see the Dr..
Let us know if you have any questions. Thanks, all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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judithann
Member in Phase 2/3
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Posted: Sat Oct 21st, 2006 07:13 |
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BENI 40MGX6HOURS
MINO75X3DAYS
LOSEC 20MG DAILY
Hello Barb
Wow yesterday was sure a day full of doctors ,IVs, monitors, and being bawled out!! (That was for waiting six hours)
I wanted so bad to e mail you right after I came too, but I was so tired and worn out that I did not have the strength to focus or type! I did not want to fall again by trying to get to the computer. I think that when you pass out and come awake again you are not thinking clear...at all! I seemed to be convinced then that I needed to get onto my bed and sleep! You know Barb I was almost made it to my bed before I fainted, that I think I made a leap toward my bed,as I was blacking out...I just missed cause when I woke I was against the side of the bed! I had landed on my knees when I fell and I did not feel any pain but rather heard that crash as I hit the floor. If you can picture a person with their arms outstretched as they dive into a pool....that was me making a dive toward my bed and missing the bed! I was hoping that my upper body would make contact with the bed. My hands may have made it but offered me no support, thus why I landed on my knees,as they are bruised...better the knees the the head!
Once I was down I was not completely blacked out yet. I rolled over and looked at how far I was from the phone...way to far!!I was very laboured in my breathing and had a great pain in my solar plexus area. The cool floor felt welcoming as I was sweating so hard that I could feel it running down my body and face. I tried to lift my arms and then I sunk away into the deep dark nowhere!
When I came to I was still panting hard and began to control my breathing right away. I took deeper breath and blew them out slower, (Good old reflexology training) I could feel life slowly returning to my limbs and then trunk. I was right beside the bed so I reach up and pull with my arms, pushed with my legs and like a two year old crawled up the bed! I was as wore out as if I ran a mile. The phone was on the other side of the room and I knew I could not go get it. Right on my bed was the blood pressure gage. I slid it on my arm and pressed the button. It read 62/40 pulse 66. I will now gather that this number is too low for me (hahahahaha). I rested for thirty minutes and then gingerly retrieved the phone. I called a friend (nurse) and told her all that happened. I refused to have her come, but had her call me in two hours. I went sound to sleep! Each time I woke up I was panting hard and felt overcome with weakness. I was in bed and had nowhere to fall. At 1"30 I called my nurse who comes to my house bi-weekly, she insisted I go to the ER...and I did!
Since it was not my heart attacking me and there were no enzymes in my blood showing heart problems , the ECG reading looked good, it was safe to say that it was the BP. When in the ER imy BP was going up and down....they found ita bit perplexing but I told the doctor it was because I was anxious and thus the raise and when it fell low it was because that low was my norm. I know it went up every time I became afraid they might keep me!! When they took a chest x ray I told them..."aint gonna look good Doc, cause I got Sarcs" you know the ER doctors do not know you or your case! After three hours I was released!
Tomorrow I take my day three 75mg mino...I plan to stay low.
Now Barb, how do I start astage two forum thread for myself? I know you want to talk to me about my Medication before I see my Doctor on the 25th of Oct.
You are my shoulder to cry on, and tonight I am using every once and inch of your shoulder too! THANKS BARB
aS eVER jUDITHANN
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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Lottie
Board Staff
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Posted: Sat Oct 21st, 2006 13:55 |
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Judithann,
First and foremost, if you ever feel as though you are might faint or black out, SIT DOWN! Wherever you are, SIT DOWN, even if it's on the floor. Do not try to "get anywhere"! After you are "safely on the floor", if you're able to -- crawl to wherever you want to go. You don't need to walk to get places.
Are you getting enough fluids in? Be sure that you are drinking 6 to 8 glasses of fluid a day.
Please read:
Why am I dizzy and/or fainting? What should I do?
It is very likely that your low BP is due to your disease. The "incident" that had my doctor start me on the tests that led to my Sarcoidosis was the day that my doctors nurse couldn't get a BP on either arm. And, now, my BP seems to be low when I am experiencing herx, or more accurately, the immonopathology that occurs when the CWD bacteria die.
It may be a good idea for you to return your Minocycline back to 50mg for a few doses, and see if your BP is better behaved at that level. And as backwards as it may seem, taking extra Benicar may also help with your BP. When my BP is low it actually goes up after I take extra Benicar.
Over the last two weeks, my BP has been 60/40, pulse ~70 at my doctors office, and I was surprised both times, because I felt fine. Perhaps, a little tired, but I also hadn't slept much the nights before each visit. I've taken Benicar 40mg right after the visit was over, and by the time I get home, my BP has gone up to about 90/60, and I have compared my BP machine to my doctor's, and if anything it will sometimes measure a bit low.
There have also been a few times that I have almost blacked out, and my BP was in the 90/60 range. So, BP is not necessarily the reason for "black outs".
It is good to know that you hadn't had a heart attack, and that apparently other observable things are all right. As you have found out, there isn't much that they can do at the ER, except give you fluids and observe you. So, be sure that you do have sufficient fluids during the day, and be sure that you do get enough salt. Especially when you start to feel a bit lightheaded. Don't just eat something. You may need extra fluid as well as food.
When you post the antibiotic, it would be helpful if you would post the date that you started at that level. If you drop the dosage back to 50mg, please put the start and stop date for the 75mg, and the day that you restarted the 50mg. And, just because it's easier for everyone (at least for me), it should be written, Mino 75mg every 3 days, or Mino 75mg q 3 days .(q is the symbol for every in medical terms, the x does mean "times")
You should only need to click on the >> Phases 2 and 3 Forum - Progress thread, and start a thread there to post questions about Phase Two. Let us know if you have a problem getting a thread started there.
I hope that everything settles down for you, and that you don't have any more scary times.
Lottie
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Dx- Sarc 1999 Cardiac, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25 D 48, 25D 17) (May 05-1,25D 35, 25D < 5) Pred x5yrs-now off! 5/19/04 beg Benicar 10/11 beg Mino, 1/24/05 mod P2, 2/2/06 P2, 1/6/07 P3 - Worked as RN until back injury
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Aussie Barb
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Posted: Sat Oct 21st, 2006 19:55 |
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Judithann
Thank you for your detailed post..
Lottie has given you all good advice and Information..
Let us know if you have any questions.. we are happy to assist you in any way we can.. all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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judithann
Member in Phase 2/3
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Posted: Sat Oct 21st, 2006 21:04 |
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Dear Lottie and Barb
Thank you kindly for the advice
It is strange to try to get to your bed when you are about pass out, and I really really do know better, yet in that moment of time it was all my poor muddled brain could think "Get to Your bed!"
I had a young child that would faint easy and we would practice sitting down on the floor and lowering her head between her knees. We did it just like we taught her to stop, drop and roll in the event she were ever on fire! I can not tell you Lottie where in the world the desperations to get to my bed came from. It just happen from the stupid part of me...that part seems to take over at the oddest times too!!!
I am a great drinker, I drink water all day and even wake up through the night and drink. Now the salt tip was interesting because my blood work often shows boarder line to low sodium, so I will indeed increase my intake.
I had not jumped up fast but I had only been up for a few minutes, and it started with a general feeling of weakness followed by a wave of nausea, and cramping of the bowels, I had gone to the bathroom and was seated on the toilet when the sever dizziness(mor like a shaking instead of a spinning) started. All my brain could think was to get to my bed! Such poor judgment,,,,I know!It is embarrassing
Yesterday things were fine and today I have already taken my Medication before I checked my mail so I have 100mg of Mino instead of the advised 50mg. I set My medication up a week ago, in the pill holders and had increased the Mino today. So.....I now am AMA(against medical advice) but it was unintentional.
I PROMISE TO BE CAREFUL. I will let you know how my next two days unfold. I will take an extra Beni too.
Thanks guys
As Ever Judithann
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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Aussie Barb
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Posted: Sat Oct 21st, 2006 21:09 |
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Thanks Judithann
as a caution: I suggest not setting pill containers up with increased doses ever..
far better to err on the side of caution. Can decide the increase in dosing as you get there..
keep a check on the advice in this post as well: Judithann ER maybe print yourself a poster to pin up with the important points as a reminder.
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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judithann
Member in Phase 2/3
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Posted: Sat Oct 21st, 2006 21:19 |
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Dearest Barb
THIS IS INDEED MY WEEK FOR STUPIDITY........
On the bright side.....................well Okay maybe there is not really any bright side to crashing and O.D.ing
Love Judithann
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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Aussie Barb
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Posted: Sat Oct 21st, 2006 21:21 |
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Judithann
The bright side is that it is all experience gained without even any skin off your nose..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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judithann
Member in Phase 2/3
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Posted: Sat Oct 21st, 2006 21:24 |
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Barb
My Sage has spoken! Many blessing to you from me
Lovingly, As Ever, Judithann
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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judithann
Member in Phase 2/3
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Posted: Thu Oct 26th, 2006 06:59 |
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(JudithannDrfilelink)
Hello Barb and ALL
Well jumping jeeper, I am some kind of ripping mad!!!
As you know today was my day to go see my Doctor...WHAT A FIGHT!!!!! He wanted me off the MP as he stated "Before it kills you"
"What are you talking about" I challenged him, This was the opening line he walked into the treatment room with, holding a piece of 8X10 paper as though it were a warrant for my arrest.
"You ended up in the ER last week because you passed out while HOME ALONE" he used tones that indicated I had trespassed or broken some law!
"You are telling me that because I fainted that you are throwing away my treatment" then my voice went up a pitch as I pointed out. "Sound like I am being punished because I was sick. that makes no since to me, since when do you Doctor throw away some treatment just because a patience hits a bump in the road, Goodness sake Dr M...it was not even serious, they ruled out it being a heart attack, and I was the one to conclude it was from my low BP add with pain and weakness. It was not the end of the world and it is not going to be the end of my treatment!" I was just shaking!!
"It is not working anyway" he said more softly, now wanting to calm me down and regain some kind of order.
It did not work! I did not want to converse in soft understanding tones.
"How in the hECK do you know it is not working" I questioned quickly.
"The ER doctor did a chest x-ray and the lymph-nodes are larger then ever, and more of them" he said looking at me and then my husband. "If it were working then they would be receding, not growing"
Now here is some comic relief coming up...as the Doctor fires this informations to make his point, my husband clears his throat stands to his feet and says,
"I believe I will go to the waiting room and continue reading my magazine" He speaks in the voice of one who has more important matters at hand and thinks he should leave and let us battle it out. TOO BAD FOR HIM THAT WE HAVE BEEN MARRIED FOR THIRTY YEARS...I AM WAY TO COMFORTABLE WITH HIM NOW!
'WHAT!!" I screamed, "No you are not going anywhere!!!" He looked at the Doctor, sat back down and said, "pardon me, I do believe I am staying" as his eyes met mind I was glaring at him, and I mean GLARING>
I looked right at the Doctor and said, "Now as for you, I am telling you that I do not care what the x-ray showed, this is my body and I am telling you that there has been improvements, for one thing I an no longer wearing the elbow braces, wrist braces and knee braces. I am not crying off and on all night because of terrible joint pain in just about every joint I have, Yesterday I saw the eye specialist and the growth of the cataracts have halted and my eyes appeared better. It has only been three months"
The doctor was studying the computer as if held all the answers..slowly he said "I am just saying that i think that most important sickness in the body is the chest and I want to do a CT scan again and if the condition looks worst then we will have to call in the big guys."
"BIG GUYS, IF YOU WANT TO TALK TO THE BIG GUY... CALL THEM!" I said as I set my copy of the MP stage two papers on his desk." I have told you Dr M they will talk to you, what big guys are you talking about, I already saw the heart...the lung...the internist specialist, what will they say..."take the mass doses of steroids, my dear lady, it is all we have to offer." I AM NOT GOING THAT ROUTE. I know and you know that people do not get better that way they only get sustained."
The Doctor looked tired and uncertain so I took this as my clue to press on.
"I know I am very sick, I am not in denial, but the MP is a 18month to 2 year program, and I think it is far to soon to claim it has not worked, please let me continue. You said when I began I had nothing to lose. The lungs are fibrous and that is terminal. So it is my life and I want to continue and I really Need You On Board. You are my doctor, please let me began stage two. I need a new medication, they suggested a modified protocol. I post with them often and they are aware of my good days and bad days. I need more time before you can judge the program. I WANT TO GO ON DOC!
He then asked me what I need for medication....thank the Good Lord, Barb, that you and I had drawn up EXACTLY what I needed. He quietly wrote out the medication. Told me he still wanted a CT scan. I said sure and when you book it order a Vit-D test for me too. My husband stood up to help me put my coat on, looking a tad concerned, but I had already forgiven him...after all I did get what I NEEDED for now! Besides holding on to anger really can hinder your health!!
God knows I sure do not need any more hindrance!
That was my day!
As Ever Judithann
ps Just wanted to add that my husband is very loving and supportive and always takes good care of me especially on my in bed days. He really hates confratation..thats all! I would not trade him for anything
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MP Dx2002 Bi-op, Lungs(stg3),lymp,joints, skin, cataracts. Noirs Adv Vit-D foods Mar06.Adv light May06(Stage 2 meds)(25D=14.8nl June06) 25d=7.5nl/March 2007
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Lottie
Board Staff
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Posted: Thu Oct 26th, 2006 10:48 |
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Judithann,
You have erased any "foolish moments" points that you may have had last week!
I wish we had an "applause icon", I would fill the page with them!
Congratulations to you, and your husband. (I don't blame him for wanting out of the line of "fire" initially, but admire his recognizing that he was actually safer there )
I think that you actually may have done your doctor a service, in helping him to "think outside the box." I hope that the doctor has actually learned something from the encounter. I think that I'll share your post with my doctor, and let him know what he may have avoided by going along with, and standing by me along the way with the MP.
By the way, yesterday, when he said that my blood pressure was still down at 70/50, I pointed out that it was up!! (from the previous two weeks of 60/40)
He laughed and said, "Who would have thought that I would be glad that a patient's blood pressure had come up, and that it was only to 70/50!!!"
Again,
Lottie
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Dx- Sarc 1999 Cardiac, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25 D 48, 25D 17) (May 05-1,25D 35, 25D < 5) Pred x5yrs-now off! 5/19/04 beg Benicar 10/11 beg Mino, 1/24/05 mod P2, 2/2/06 P2, 1/6/07 P3 - Worked as RN until back injury
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Toni D
Moderator
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Posted: Thu Oct 26th, 2006 11:12 |
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Yea ...Judithann. You go, girl!!!
Feel good and be blessed ...
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DX sarcoid-1970 glaucoma high BP asthma allergies| Meds-Lasix Xopenex Nevanac Cardizem Nizoral Cream| NoIRs No D/sun | 08/05 25D=26, 1,25D=38| 07/07 25D=<4| BeniQ6H 09/27/05| ModPh2 07/06; Ph2 09/07|Ph3 04/08| 12/08 25D=<4| 05/09 25D=<4, 1,25D=27
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