The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Jeannine progress
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The Marshall Protocol Study Site > PROGRESS REPORTS [members in study cohort] > Phase One Alumni Forum > Jeannine progress |
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Jeannine Board Staff 
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Benicar 40mg q 6hrs. Mino 25mg q OD since Aug 1st 2006. In my cave, noirs on, no D diet I have some herxing...fatigue, muscle spasms, symptoms mild and waiting until Sunday two week to ramp to 50mg of mino. Sleep cycle is now sleeping during the day and up at night. This flipped on its own. I have always felt better at night...I have often wonder why. I think the sun has to do with it but felt this way and have been in a cave for over three months. I did feel in Super Wal-Mart tonight and sitting outside last night with light on porch no glasses and a late taken benicar that I got woozy and weak. All tolerable. One question.....Do I have to be concerned ever about my 25D getting to low. I havent seen anything on the site but I am sure that it is there...Please advise where to read about this. Thanks, Jeannine Last edited on Sat Aug 12th, 2006 12:13 by Jeannine |
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Aussie Barb Research Team 
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Jeannine Welcome to Benicar and Mino Forum.. Thank you for posting.. see the FAQs What times should I take my Benicar? What if I forget a dose? this has some helpful hints.. and you may find it best to keep glasses on at this early stage.. many have reported increased wooziness from lifting the glasses to check a label eg.. The other thing to watch in malls and shopping centres is that some have skylights with Natural Light coming in.. Natural light > protect skin and eyes.. Artificial light > protect eyes / not skin.. Can my Vitamin 25-D go too low? How often should I test D levels? What are the target numbers? see the Information in these Links and the links within: Vitamin D Tutorial Calciferol and Calcitriol anytime you are looking for Information, you can click on the ABC in my signature and you will be linked to all the Information under alphabetised headings. all best, Barb ... |
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Jeannine Board Staff
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Hi AB and Staff, I took my first dose of 75mg of mino last night. I noticed my skin is itchy this AM and dry...so the skin thing is a herx..which is good. All is tolerable so far. I do have a concern and just want to make sure I am on the right track. 1. I am not as sun sensitive. I can go out for hours without gloves and K creme.I am not trying to make a habit of this...is this normal for some?? 2. Also, I am wearing my glasses but I tend to forget to put them on lately because they seem dark and I forget to put them on....but remember and make myself wear them...also not making a habit of this....but find all this strange... Are any of these mean I am not doing something right? Does this happen to others??? Thanks so much for your help! Hugs, Jeannine We may endure for a night but joy comes in the morning..... |
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TrishOBrien Member in Phase 3
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Hi, Jeannine, I have the same luck that I don't seem to have sensitivity with my skin. I have noticed neurological symptoms from light in my eyes though. I think everyone is individual and it depends on where the bacteria has set up shop. Also seems to depend on who long or how sick a person is. Good luck to you! Trish |
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Jeannine Board Staff
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Thanks Trish for your reply! I was hoping I am not the only that experiences this. I will probably also get my 25D test again soon just to make sure. Thanks again, Jeannine |
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jrfoutin Research Team 
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Jeannine, Your D tests show 2/21/06 125D(49)25D(11). You started with a low 25-D in February of this year and I see you are noting Herx events. It is likely a good time to get the 25-D tested again to make sure you are keeping within therapeutic ranges. You report goin out for hours without gloves and Kcream, but I didn't see if you were wearing layers and long sleeves. Recent documentation from ARF suggests some will be more sun tolerant than others. However, your Morgellans and reporting skin Herxing today might suggest a cautious approach to light and/or heat. If you are forgetting your sunglasses when you go out, you might want to keep an extra pair of backup in a purse or your car. Even if you have no eye sensitivity now, you can always skip the wrinkles under your eyes when you get to be old (smile). Keeping your Amygdala protected in the brightest outdoor lighting makes sense right now too, even if your eyes don't give you a problem, you have reported Depression. You are in Phase 1, which is early days when you get a handle on your own Herxing patterns with regard to incremental increases of medications. Moderators and your Health Care Provider are also best assisted with good feedback from this period of time, too. If it is possible, this is a good time to rule out any sun flare as you learn about your Herxing and response to Herxing. You might want to post more often than once every couple of weeks too. Posting here will be a great resource for you when you look back on your progress over time, and it will help moderators get a sense of the flux and flow of your Herxing to better respond to your questions as they come up. Glad you are here! I look forward to seeing more of your posts--Janet |
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Jeannine Board Staff
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Hi Janet, Thanks for the advice. I am wearing long sleaves when going out. However, I stopped wearing my gloves and K creme because I have no obvious sunflare. After taking my 75 mg of mino last night I did have itching and burning of the skin today so I am going to count that in as a herx. I also was more tired today...though nothing really bad...still able to get out...I have met a friend whom I am hanging out with a lot to pass the MP time....so I will try to post more....though having a great time staying away from the computer as now I dont have to look for my cure anymore!!! I still wonder why I am not sensitive like I was to light/sun.....do we know the science behind it yet? As far as my depression it last only briefly (wow am I glad to say that  siince coming from being suicidal only months ago with major anxiety) and I believe is herx related because it feels chemical. I am aware that light to the eyes can cause this. Oh, I have experienced some hypomania which it has been comtempated in the recent past if I might be bipolar....but it also could be to that I restarted prozac recently....I have noted that on the benicar and mino that I can tolerate prozac now...in the past I would get narcoleptic symptoms from it...and had to take provigil which I am no longer taking. I can also now take ambien without getting rebound depression the next day....I found this to be interesting...I only take the ambien seldom occasion.I have noted more pleasant moods too and more motivation and I have run a temp of 100 on some days and below normal in between. I have also noted that the night after I take my mino that I have nightsweats. I will have my 25D tested this coming week at quest. Thanks again for your help. I will let you all know my lab as soon as I get it. Take care, Jeannine We may endure for the night but joy comes in the morning..... |
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tom Member in Phase 3 
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Jeannine, Congratulations. Glad to know that you started earlier than anticipated. I look forward to your future posts. To your health, Tom  |
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Jeannine Board Staff
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75mg mino and Benicar 40mg q six hours Thanks Tom for the encouragement. It is great to know that you are reading my post! I am now getting concerned. My light sensitivity is almost nil...light or skin..though I am covering up as directed and wearing glasses when I remember...I will almost forget to wear my glasses as they seem to dark to see. However it did seem that I did get some herx..fatigue increased with the 75mg of mino... I will get my 25D tested within the next week... Anyone have any input??? I will start posting more but not much to report. The only symptoms I am having are fatigue but am still able to carry out sanding and prep for painting a room...My mood could be better but I think correlates to my fatigue. I do know that this could be that I am not wearing my glasses when I forget them. I thank you all for your time! Has this happen to other MPers only to change latter on as they progress on the MP? Jeannine |
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jrfoutin Research Team
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Jeannine, Ummm... D is palliative. Watch out for that one. Hope you are not finding a lot of reasons to head out and about. "Eye" light sensitivity or not, your Amygdala can be getting a straight shot of trouble when you forget to wear your eye protection. Fatigue, mood, and depression are indicators. They can be Herxes independent of light but related more to time and level of dosing... or a little of both. But it is hard to tell from posts that only occur once a week with a very general discussion that masks dose in relationship to day of light exposure, and timing and duration of Herx. Your own insight: I do know that this could be that I am not wearing my glasses when I forget them. Herxing, especially neuro symptoms like you are noting, can keep you from seeing yourself clearly. These are difficult to quantify and associate, further adding to the challenge. Charting daily, and posting daily or every other day, may help you more and could lead to an entirely different set of conclusions about just what is Herxing and what may be attributed to other factors. Phase 1 is the best time to learn about your Herxes, helps for communicating better with your doctor, dosing strategies that work for you, and how to help your immune system do the job it must do. The medications must work with your immune system and require effort within lifestyle conditions you must control. Successful outcomes are always expected, but some have had to revise their strategies in order to succeed. Keep on working it (and I hope your room and painting looks great!)--Janet |
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tom Member in Phase 3
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Jeannine, I would theorize that it all depends on ones susceptibility or sensitivity to different areas of the protocol. Suffice it to say that ones compliance, especially as it relates to eye protection is critical. The only time I am not wearing glasses is when I am home under lighting that I know meets lux requirements for the MP. Also, check your diet. Although some have expressed flexibility in the moderate consumption of certain food products I found that I was not one of them, at least not now. For example; I started to introduce some dairy products only to find that I stopped herxing altogether. This resumed shortly after its elimination. Lastly you are right about your D levels. This should give you a good indication of where you are. I noticed a sharp and definitive increase in herx when my D,25 dropped below 15, Just as Trevor and the Moderators had warned. I certainly would not be too concerned. Press in, be as compliant as possible and I think you should see more definitive indications in short order The best to your health, Tom |
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Jeannine Board Staff
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75mg mino every other day, beni 40mg every six hours Hi Tom and Janet, Thanks for the replies. I am going to post more often! I also am going to get my lab done this week. Thanks for your help! I am noticing fatigue, skin burning, bruising easily and mood swings...like wired but tired. Hugs, Jeannine Also have notice some low grade fevers of 99 to 100. They come and go. |
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Reenie inactive member
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Hi Jeannine, Glad to see you finally got started!  You might try being a little more diligent about your glasses and gloves to see if you feel any better. Remember, light exposure AND herx can feel the same. Both together make one feel worse. Why is my 'herx' more intense after exposure to Light &/or Vitamin D? |
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Jeannine Board Staff
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75mg mino every other day, 40mg of Benicar every six hours Thanks Reenie...best to do things right...I am covering up and wearing glasses. I do notice that my skin burns more the day after my mino and that I am more tired and brain fatigue. Still brusing easily. I remember Jsandman001 saying he saw lots of lysised RBCs under his scope while on mino only ...Interesting! I got my 25D retested....so will update when I get the results back. We may endure for a night but joy comes in the morning, Jeannine Last edited on Thu Sep 14th, 2006 03:50 by Jeannine |
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Jeannine Board Staff
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75mg mino every other day, 40mg benicar every 6hrs Noting bruising...Mom even noticed it...on arms and legs in places where I don't usually bruise...so this it not only my observation...
Jeannine |
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Jeannine Board Staff
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75mg of mino every other day; Benicar 40 mg every six hours. I have noted something really interesting. My left knee that has given me stiffness and pain for a long while has resolved. I will continue to monitor this but it is gone. AMAZING....
Jeannine Last edited on Sun Sep 17th, 2006 23:30 by Jeannine |
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Jeannine Board Staff
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75mg every other day (will take dose tonight); Benicar 40 mg every six hours GREAT NEWS!!!!!!!! My 25D-D3 is still 11 ng/ml So I guess that means I am ok in that department? I can tell that I was herxing but am ready to move to the next dose as I am not as tired for a couple of days now. No crawlies today and more energy. Weird dreams last night and restless sleep. Mood good except for the feeling of being really lazy (relaxed). Did wake up dragging but improved through out the day. Right leg still a little stiff but much improved. So tonight on to 100 mg of mino q other day... So does that mean it is time to move to phase ll boy I have a lot of reading to do!? How do I know if I should do phase ll or modified phase ll? Please send all info that I need to read. Jeannine |
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Aussie Barb Research Team
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Jeannine Thank you for posting.. You have done well with your 25D.. near or below the therapeutic level of 12ng/ml is the target. There is no need to retest the more expensive 1,25-D.. see this FAQ Where can I find phase two and three? for information. Please send for the Questionnaire to fill and return, and you will be given feedback on your situation. You can read the detailed Information Posts at the top of the Phase 2/3/ forum. We then encourage you to begin a new progress report in the Phase 2 forum to discuss recommendations re the new meds and dosing in preparation for your Dr visit for scripts etc. Thank you. all best, Barb ... |
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tom Member in Phase 3
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Jeannine, Congratulations on the move. You will discover a lot of strange symptoms especially in the first few months. P.S. Great D level! Tom |
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Jeannine Board Staff
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100mg of mino every other day (second week) ; Benicar 40 mg every six hours. Well back in herx land....A little more sensitive to light...This past weekend had a reaction of irritability and almost panic at starbucks after going to indoor flea market.....From not wearing glasses like I should have...to many pretties to look at and seemed to dim with 10% NOIRs. I need to look into maybe a lighter pair of NOIRs ANY RECOMMENDATIONS?
Will stay at 100mg mino until herx is minimal.... Will fill out questionnaire soon. Jeannine |
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Aussie Barb Research Team
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Jeannine Thank you for your report.. 40% NoIRs are the next after 10%, and when you go out, you might like to take all 3 levels of NoIR in case of changing conditions. all best, Barb ... |
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hrts4me Member in Phase 2/3 
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Hi Jeannine, I remember speaking with you via pm, quite sometime ago when you had questions about Bipolar Disorder. I have read through the last month of your reports, and your sig. line on your meds. I see you are on a very low dose (10 mgs) of Prozac. You have mentioned the following: Jeaninne, "Oh, I have experienced some hypomania which it has been comtempated in the recent past if I might be bipolar....but it also could be to that I restarted prozac recently...." and, "Mood Irritable ....blah.... not depressed but not at ease....friend says I have frequent mood swings..." and, "This past weekend had a reaction of irritability" and, "As far as my depression it last only briefly (wow am I glad to say that siince coming from being suicidal only months ago with major anxiety"and, "Weird dreams last night and restless sleep. " and, "SORRY NO TALKIE TALK>>>been SLEEPY SLEEPING" I would like to point you to a website that has a lot of good information on all of the various types of BP disorder. You will also find a "mood chart" there. Janet made a very good suggestion in one of her posts above about making more frequent posts, and this would be a good idea. I think the daily mood chart you can download from the following website would be a good tool for you and your physicians, too. There are samples on how to complete such. http://www.healthyplace.com/communities/bipolar/mood_chart.asp There is very good info on this site about hypomania, mood swings, clanging, rhythmic phrases, or rhyming words (see last quote above), depression in the form of lack of motivation and excessive sleep, and hypo-mania and mania in regards to irritability, and restless sleep. Since depression has gotten so bad in the past, as to include suicidal ideation, I think, just from a layperson's perspective, and a BP-I patient, that a mood chart would be a great idea. You can see if there are early warning signs that are so very important in diagnosing and tracking mood disorders. These are also found on that website. You may want to keep an eye on the Prozac, as it can greatly affect BP disorders, in that many will find that what treats unipolar depression well, is not the best agent in singular tx for bipolar patients. It <SSRI's like Prozac> can lead to cycling between mania and depression, or hypomania, and mania, due to the inhibition of the reuptake of seratonin. Some patients with a dx of Lyme and/or Morgellon's do have an onset of mood disorder. Psychiatric manifestations in TH 1 disease have been noted. Most BP patients experiencing swings (from hypomania or mania to depression) do better on a mood stabilizer, some additionally take an antidepressant with a mood stabilizer if their disorder is more depressive in nature. However, very few use unipolar therapy as it is a trigger. It can cause mania, hypermania, and rapid cycling. Although your dose is very low, it may affect you. I thought I should mention this, too, in case the dosage may in the future be raised, and you would have some tools to help you daily to chart your reaction. It is difficult sometimes to rely on one's own perception, so do depend on your friend's input as a guage. Often BP patients cannot rely on their own perceptions. I hope you don't think I am being a butt-inski....but just felt the need to point you toward that site. Best wishes, Hrts Last edited on Fri Sep 29th, 2006 01:29 by hrts4me |
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Jeannine Board Staff
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benicar 40mg every 6 hours, 50mg of mino I am having IBS...I am having diarrhea after each meal and then some. Gut feels irritated. How long have others reported this herx lasting? I normally dont have IBS but have had episodes in the past. Any advice on what to do or take other than the normal control herx protocol? Thanks, Jeannine |
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Aussie Barb Research Team
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Jeannine I have moved your post to your progress report for continuity.. I am wondering if you have sent for your Phase two questionnaire.. or have discussed Phase Two with your Dr. Needing to move on to adding a 2nd antibiotic can cause an increase in symptoms.. re symptoms: The first steps are as you said, - to adjust your MP meds.. and see probiotics? and then also: If you need temporary relief of your symptoms contact your doctor or pharmacist for advice about palliative medications. Any medications that are not on the list of MEDICATIONS TO AVOID WHILE ON THE MARSHALL PROTOCOL are okay to take to relieve intolerable symptoms. some find that codeine meds are helpful. Please ask your Dr. We encourage you to post in your report as regularly as you can to have the best advantage in doing your MP successfully.. We encourage you to send an email for the Phase 2 Questionnaire to fill and return. Where can I find phase two and three? and you will be given feedback and in preparation for your Dr visit: We then encourage you to begin a new progress report in the Phase 2 forum to discuss recommendations re the new meds and dosing. Thank you. all best, Barb ... |
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Reenie inactive member
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Jeannine, I'm sure this is not what you'd like to hear but... I've had IBS sxs for well over a year on the MP as herx. It took a long time for this symptom to go away, but I am happy to report it's been gone now for some time. I rarely get a slight twinge of IBS now and only when I have heavy herx. I continue to take a good probiotic every morning, well away from my abx, which I take in the evenings on dosing days. BTW, on many occasion I've had to use the severity of my IBS sxs to dictate how quickly or slowly I could ramp the MP meds, even if I had no other herx sxs. I hope that helps.  |
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Jeannine Board Staff
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Beni 40 q 6, 50 mino qod Hi All, I have been on a MP break already...I had depression, pain and flu like symptoms that were getting out of hand. I did NOT try to control them with beni and mino or other measures as a choice. I did go off the mino for two weeks. It was incredible what I learned. The lesson was IT WAS ALL A HERX!!!!!!!!! Even the depression...that one is YUCKY..but like I thought...it is a herx... Hurray! This will be in valuable to me as I herx on the MP...Not that I didnt believe you..  ...I had to find out for myself...Now I know!I have started back on the mino and am at 50mg of mino...My new herx is IBS...FUN FUN...NOT!...my bowel are usually one thing I can count on...though I have had a little trouble from them in the past. Hrts...Thanks for the info on Bipolar...I am keeping tabs on it! Thanks for your reply. Reenie....It is good to hear or not hear  that you had IBS as a herx. I will have to learn how to manage it...Thanks for letting me know that this was a herx for you as well...Aussie Barb...thanks for the info No other herx to report now expect...some fatigue and sleepy 48 hours after mino. So now is the time to learn how to control the herx. I will work up to 75mg mino then fill out the questionnaire. Oh To ALL THE NEWBIES...THE HERX CAN SNEAK UP ON YOU!!!! I am also keeping a chart that I printed here to keep up with herxing..I really like the chart...Whoever made it did a wonderful job! I also like the tip I read that Aussie Barb gave about the ABCs of the MP in her sig line...easy to find things! I had forgotten about this....I used the tip and gave it to another new MPer... Just to get this out there...I wish we could get Dr. Blaney to comment more on the website...about Signs and symptoms etc.,... what he observes with his MP patients ...It would be nice if he could have his own blog. (I dont know if he would do this)...I know that he has lots of patients on the MP. His knowledge would be an asset to all the MPers out there who have doctors who are learning the MP....Just a thought ..I have been thinking.... We may endure for a night but joy come in the morning....GOD BLESS all the MPers! Jeannine Last edited on Sat Oct 21st, 2006 22:45 by Jeannine |
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zip22045 Member
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Jeannine, Aussie Barb sent met the reply shown below indicating that I may be able to contact you about your MP progress. From your log it sounds like you are making good steps forward abet, sometimes difficult. I have started MP and have been taking benicar for 3 days . i'm about ready to start minocyclien. I'm having herxing from just the benicar but I guess, it's pretty mild compared to what will happen with the benicar. Based on that it probably is a good idea to start with a 25 or 50MG dose and see what happens... Also, I am a Morgellons sufferer but haven’t seen any posts by people with Morgellons particularly, on their experience with MP. If you know of any or if you have Morgellons please let me know. Eternally grateful for any info you can give me. Fondly ZIP see my report here Zip FromAussie Barb Dr Marshall wrote above: "From everything I have observed or read, Morgellons is yet another of the idiopathic Th1 diseases; which means it will almost certainly respond to the MP. Many, many, of the symptoms overlap with what we have seen in other syndromes - for example, you will find many posts here reporting the crawling feeling under their skin (from folks whose skin is not producing the Morgellons fibres)." This Member is responding to MP. You may wish to read the progress report and or make contact by private message. all best, Barb ... |
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Jeannine Board Staff
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Benicar 40 mg q six hours,75 mg of mino First Dose last night Keeping Journal each day using the MP Herx chart...LOVE it! I had to back down due to IBS with 10 BM a day at it's peak. The herx lasted two weeks...NO fun couldnt leave the house it was that bad...never had IBS before...only time was when I took Zoloft and it stopped when I discontinued it.. I started taking enzymatic therapy pearls one to three a day and Culturelle which REALLY REALLY helped!!! Thanks to that special person for recommending it...I LOVE Culturelle! So I backed down a little and thanks to the encouragement of a wonderful MP she told me time to get into gear...So here I am at the 75 mg of mino....I can totally tell a that I took my first dose of 75mg
Hugs, Jeannine Last edited on Wed Nov 22nd, 2006 04:25 by Jeannine |
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Jeannine Board Staff
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100mg of mino (day 1), Benicar 40mg every 6hrs, Prozac 20mg daily The last week or two I have been feeling a real difference...It kind of sneaks up on you...I feel less tired and am not irritable...I feel comfortable with myself and even have motivation to do things... which even on antidepressants this level of mental stability was never achieved...(I wish I had know about the MP ten years ago when my symptoms started as depression and panic attacks and sleeping a lot..but I am thankful it is here now...as I learned a lot about life being ill)... I can read and not have to re-read to comprehend. I feel my old self coming back and it has only been six months on phase 1. I finally had a reaction out in the sun...which I slept for three days afterward. I was covered up but forgot my K creme and I was out in the car all day...The day before I had exposure but was covered up with K creme...the combination of both days took its toll. I couldn 't wait to get in my cave but I enjoyed my trip to see old college friends! I will start phase ll after Christmas as I will be traveling to the Gulf Coast for Christmas...and I am sure phase ll will back a puch.. A recap of the first six months....Flu like feeling.....Sleeping a lot...able to fall asleep in front of the TV with activity around too..never able to do that before..I still sleep 12 hours a day with occasional naps...but not sleeping like I was before and more alert....My fatigue is reduced which on some days taking a shower was a big feat...My shower chair was a great help! I had a IBS herx that lasted two weeks...It was hard just to make it to church without worrying about having to RUSH to the bathroom...Itching was all over but was tolerable..I just thought about the toxins coming OUT! The crawling on the skin would come and go as well as the acne...I find that I have acne that is painful behind my ears...Oh my ears wow they seems to be clearing of L forms..I have had tinnitus and fullness in the ears with some stabbing pains but it comes and goes and doesn't last long. Pain has been there in the L knee and L foot (lateral) as well as stiffness in lower back and between shoulder blades...it comes and goes...stiffness is always there but it varies...There was only a day or two that I took Tylenol for pain....PMS is there but tolerable with tylenol for the first day...My cramping did get worse when starting the MP sooo I know some IR is going on there...but it is tolerable...Muscle spasms come and go but did increase when I started the MP but again never intolerable...I eye floaters are still there but the have changed almost to the point where they are gone.... I have had a headache for a day or two which has been more frequent since starting the MP...but again tolerable... OH yeah my moodiness and brain fog has even lessened do I dare say it is going! WOW I can taste a "NORMAL" life returning....I know it is early and I still have a way to go but I am ready!!! I am still at home mostly but am able to get out whenever...I still sleep til noon but feel more refreshed when waking up...I had no idea I would be seeing results this soon! I am now thinking about all the things I have always wanted to do and am planning for the future! I am even finding myself wanting children when I have never wanted them due to not being able to even fathom taking care of them because I was so tired and sick I couldnt take care of myself ...well I could but it was a struggle and I needed lots of support...This disease has even affected romantic relationships to the point of not being able to do anything and enjoy it without focusing on the disease. However, I see this as a thing of the past...as I am recovering. I also saw the LAX panel discussion and Dr. Blaneys presentation WOW WOW...THAT WAS amazing! Freddie, Alyane,Carol, Ival and the microbiologist with lyme THANK you for sharing! That alone was a great Christmas present! I plan on sharing your story with a lot of friends,family and MDs. Dr. Blaney you rock and I appreciate your enthusiasm...You are a great speaker!!! You all really put the information in a personal, easy to understand, and attention grabbing format! I recommed the DVDs to everyone! Thank you staff and Dr. Marshall!! Merry Christmas and a Happy New Year! I am getting my life back!!! We may endure for a night but JOY comes in the morning... Jeannine PS...My mom will be doing the MP....not sure when but we are getting her ready by avoiding D...and sunlight....and my dad is seeing the light too. They are both TH1 but still highly functional...My dad just thinks it is old age ..but he has pain fatigue and low testosterone as well as high cholesterol etc..He has an old injury of his rotator cuff which the same day I saw alyane on the LAX DVDs talked about resolving on the MP..right before I saw this I had just finished telling my dad that is just another one of his TH1 illness..He has had it xrayed and it showed inflammation..I told him that before the Xray..so I think he is getting the picture...He even watched Dr. Blaney on the LAX DVDs...which I think opened his mind up a lot...He keeps saying it is all heredity...yes it is ...he inherited the bacteria! Look at this http://www.anapsid.org/lyme/bach.html If the sphirochete is in sperm then hello so are CWD bacteria..I really liked the family aggregation lecture on the Chicago DVDs! Makes the world of sense! February 2007: Went down to 50 mg of mino for a fews days to get two doctors appointments out of the way...Didnt sleep as much, brain was clearer..more energy...so that was nice way to get ready for mod phase ll...I was also thinking the other night...I can sit on the bed and my back doesnt not ache like it did pre MP.... |
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Dr Trevor Marshall Research Team 
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Jeannine said "I learned a lot about life being ill" It was a hard lesson, but it will make the rest of your life so much more enjoyable Folk commonly confuse spirochetes with Borrelia. All that they found in the PCR study you linked to was DNA. In fact, it would have been RNA, since it was dicovered by PCR techniques. And that RNA would more likely have come from L-forms than spirochetes. FYI, intracellular Mycobacterium tuberculosis bacteria have also been found in semen. The basic concept the story at your link is trying to convey is correct, but their understanding of pathogenic science is minimal, to say the least A merry Christmas and a happy New Year! |
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Jeannine Board Staff
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Beni 40q 6, mino 50 qod (restarted yesterday Jan 28) stayed on beni while on break Thanks Trevor for the comment...Loved the DVDs!!! I am back in the saddle again after a month break. My worst symptoms so far is the depression herx and sleeping like rip van winkle.......I got scared and didnt manage the herx ...it snuck up on me....so now is the time I better learn...so here goes...I was taking alternating 75mg of mino with 100mg of mino at the time...so I will take things slower, lay off the coffee, and listen to my body..so I guess I am learning LOL....I would love any suggestions or words of wisdom from anybody with depression herxs... I have decided what my phase ll abx will be...so that is good. I will post that on phase ll when I get there. I have seen a improvement so have my friends, family and doctor. I did herx some on benicar with moodies and sleeping irregular and 12 hours plus. Some 99.8 temps, sweats, flu like yuckiness.....and did have depression during menses with fatigue. I did note increase itching today. Keeping Journal of symptoms..Wrote down a list of things to do from Website to do when herxing...I think another thing is that I need to post post post...which of course the RN in me says I CAN DO THIS BY MYSELF...HA HA H AHAHA funny....we just love to treat ourselves dont we...what am I thinking with lyme brain doing that.... Jeannine |
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Aussie Barb Research Team
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Thank You Jeannine as well as this FAQ How can I control my anxiety and depression? and Finding social support When it is time to progress to adding another antibiotic the symptoms can also increase. Please begin a new progress report and post in the Phase Two forum and discuss the Modified Phase Two because of your cardiac and brainfog symptoms - and the meds, doses etc to discuss with your Dr.. There is no necessity to go to 100mg mino before progressing. Dr Marshall recommends adding a 2nd antibiotic before 6 months.. thanks.. When you can, please fill the further required details into your signature line to help Staff and others reading and replying < see this link for details to include. Your details enable us to assist you. Thank You .. all best, Barb ... |
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Jeannine Board Staff
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No mino day |
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Aunt Diana Moderator 
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Hi Jeannine, I too have suffered from depression...I've had it off and on most of my life. Now, when I have a depressive episode I try to "blame it" on the protocol and realize that it will pass...and it always does. They are not easy to go through but this website is a wonderful place to vent your feelings, and people will definitely come to your rescue here when you most need it. I think that is the most helpful advice anyone can give....when you need support come to this site. Try to stay focussed on improving and realizing that your brain is playing "tricks" on you, and that it will pass. Also, talking to other Mpers helps. |
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Jeannine Board Staff
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Aunt Diana, Thank so much for the replying. It means a lot. Depression is not fun neither is this illness. It makes me feel better that someone else experiences this even though I wouldnt wish it on anyone. 2/1/06 no mino today Yesterday...sleepy sleepy sleepy......no motivation....Shins itching are a sure sign of herx......all tolerable...irritable Today (no mino last night) feeling better...still sleepy but more with it than yesterday....Slept from 1am til 11am....no pain unusal pain noted..temp running 99.4....still irritable but less so.... Jeannine |
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Jeannine Board Staff
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1/2/07 mino last night Went to bed at 4am slept til 12am..that is a record...felt better was able to get up and do things...had some energy..no pain noted...some itchy skin...I will be moving up to 75mg probably the next dose. JJ |
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Jeannine Board Staff
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Mino 25mg tonight.. |
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Aussie Barb Research Team
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Jeannine You have listed in your signature line P1(8/06) << now going into the 7th month.. Don't wait until you feel well to go to move on because that may not happen on just Benicar and minocycline. It is important not to stay in Phase One too long. We recommend adding a second antibiotic after 3 months or so on the MP. We recommend that you please begin a new progress report and post in the Phase Two forum and discuss the Modified Phase Two because of your cardiac and brainfog symptoms - and the meds, doses etc to discuss with your Dr.. There is no necessity to go to 100mg mino before progressing. Dr Marshall recommends adding a 2nd antibiotic before 6 months.. thanks.. all best, Barb ... |
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Jeannine Board Staff
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Hi All, Some have been asking how I am doing because they havent seen me post. Sorry for that! I will try to keep everyone update on a regular basis here Year three of the MP...I am on break due to a strong gut IP/herx (microscopic colitis) due to probably to much sun, possible nystatin use, so right now no MP meds. I had to get off the Benicar to stop the 20 watery bowel movements. Which I pray that I will be able to get back on...Please pray for me too! However, this break has shown me just what has really changed in three years as I hardly ever took a break from Benicar only antibiotics in the past...My fatigue to the point that I can do daily things around the house and fatigue doesnt really come to mind. Getting out I can do things...and not really think about fatigue. I still want to sleep 12 hours but after I get awake after about an hour I feel rested. I no longer dream all night long with frightening dreams or sad dreams. Though I miss some of the vivid fun dreams I had in phase 1 I am no longer sleepy to the point of thinking I am narcoleptic in fact once I am up I can be awake and up and going for about eight hours though not all standing.....My doc tested me pre MP and had all the symptoms but sleep study showed no stage 3 or 4 sleep and frequent arousals. My skin hardly crawls and my morgellons symptoms are rarely thought of...once in awhile I will get a little crawl or bite but that is mostly while on the MP meds and is herx. TWO chronic sores gone and one warty look small bump on foot gone. I dont feel like I have been run over by a truck and can enjoy things like making a meal or cleaning house....that is when I am on a break My eye floaters are gone! My vision has improved to the point of not need glasses to see ...though my RX was never strong...and my worsing eye sight was in direct correlation to my getting worse over the years.OH yeah how easily we forget...My brain fog on break has been SO GOOD I find that I can think easily ...PRE MP I remember being scared to drive I was so fogged and cried because I couldnt hardly fill out paperwork...However when I am herxing I find this also ramps up to the point I get very space and fogged and have to be careful not to do stuff like leave the stove on...but my baseline off the meds is remarkable and inspiring and such a huge difference from the past. So the areas that I feel like I still have much work left to do with MP..Is spine, brain (depression and anxiety are a major herx for me), irritablity when herxing really good, lymph, muscles and tendons, Spleen, intestines, fatigue ramps up when not on a break...well every thing ramps up when not on a break and so I know I still have much work to do (I KNOW THAT THE MP IS NOT PALLIATIVE AND WORKS..SO ALL THOSE OUT THERE THAT SAY BENICAR IS ONLY WORKING FOR THE MP BECAUSE OF ITS ANTI INFLAMMATORY PROPERTIES IS FULL OF BULL...AS I SEE HUGE IMPROVEMENTS AND AM NOT ON BENICAR).... I ALSO SEE A CLEAR PATTERN OF HERXING WHEN TAKING ANTIBIOTICS... HERXING SUCKS and most of my improvements are not noted unless I take a break! when herxing the improvements are there but are more suttle. This is how much the MP has helped me...That I almost get scared when my IP gets out of control that I will not be able to continue with the MP...as it has given me a level of recovery that NOTHING ELSE HAS!!!!! THE MP FOR ME HAS NOT BEEN EASY BUT I CAN EITHER HERX WITH THE MP and keep getting these wonderful results or KEEP BEING SICK. Check this out! http://www.globaltv.com/globaltv/bc/video/index.html?releasePID=83m4OnVv_9l91ngZvTAsedFFzYEYcCHg God Bless, Jeannine |
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Aunt Diana Moderator
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Hi Jeannine, It's great to hear you are doing so well. I hope you can get back to the MP in time, but for now you should enjoy your break and heal your tummy. Thanks for letting us know how you're doing. |
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tom Member in Phase 3
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Hey Jeannine, What an excellent report. Yes you are right it has been a long time. Nonetheless, seeing as you have put together such an excellent report… all is forgiven and forgotten. Your time off the protocol is a real enlightener. Perhaps you can elaborate on those “vivid fun dreams” you had in phase one. Hmmm. All the best Tom |
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Sunbeam Member in Phase 2
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Thanks Jeannine, Your post is so encouraging and I am so happy for you. I hope the gastric problems soon resolve and you can restart your journey, Thanks for the link. It is a promising start, progress comes slowly. Take care, Lynn |
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expate Member in Phase 3 
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Jeannine wrote: AWESOME LINK!!!! And to you fellow atheists out there... believe in science! dette |
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jcwat101 Research Professional 
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That's interesting that the news reports mentions the alternative hypothesis of the lower D being part of the body's response to disease and that more vitamin D may be bad in autoimmune disease, but why doesn't he mention Dr. Marshall? I assume that is the work he refers to -- but I guess it is good he at least mentions the alternative hypothesis. Joyce Waterhouse |
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paulalbert Board Staff 
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My impression was that it was for a local news audience and the speaker didn't want to overwhelm the viewers with the very thing that is anathema to all local news: details. Paul |
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Dr Trevor Marshall Research Team
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I thought it was great, and downloaded a copy of the video for my personal archives Thanks to all who helped to make it it happen Yesterday was all work in Prague, today is sight-seeing and relaxation. Travel home tomorrow (18 hours  )Lots of MP'ers at the conference, including some who have never posted |
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KFaucher Member in Phase 3
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>>why doesn't he mention Dr. Marshall? I assume that is the work he refers to The work he is referring to is a paper authored by Paul Albert, et.al. |
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Carricol Member in Phase 3
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Jeannine, I agree that herxing sucks. If anyone disagrees I would like to know what you enjoy about it. Unfortunately, there is no pathway to a cure except to go through it. We cannot avoid it or try to do an end run around it. |
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