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Aussie Barb
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Posted: Tue Mar 6th, 2007 17:01 |
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joannem: Lyme / FM noticable changes for the good
Member in Phase 2
I am starting to see noticable changes for the good in my sleep patterns (going from typically 6 hours to 71/2),
libido (increasing after a long vacation),
skin (both rosacia and little cystic infected sores seem completely gone),
and general body pain (still have occasional joint stiffness and foot pain, but back and neck is about 90% better).
I am a singer and have also had a noticable improvement in voice quality which I attribute partly to that fact that my sinuses seem to have opened up to a point that I haven't experienced for a long time.
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Joanne: Lyme/fibromyalgia, 11/16:25D=56.2 1,25D=58.3 Leptin=67.6 CRP=6.7 Beni 40mgQ8H, mino 11/21:50mg 12/29:75mg 1/8/07:100mg Phase 2: 2/8/07 25D=16.1, 1,25D=24.8 CRP=4.1 2/28/07
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Aussie Barb
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Posted: Sun Mar 11th, 2007 17:31 |
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IngeD: I have now been on the Marshall Protocol for 46 days and already there are some great results:
Here is an update of where I am at …
Blood pressure is normal .. Before MP I was walking many miles every day and taking 2 lots of BP pills and having trouble to control the blood pressure!
Weight is still going down despite lack of exercise.
My coughing fits have all but gone. Still coughing occasionally just to clear my chest of phlegm. But even the phlegm is reducing.
Bowels feeling MUCH better. Had a couple of bouts of inflammation that seemed like obstructions but taking extra meds immediately got rid of them.
Pre-diabetes: recent tests I have done show a remarkable improvement in fasting blood sugar levels.
Sensitive teeth that my dentist told me in 2001 were due to too vigorous brushing and required constant use of Sensodyne to keep under control are almost normal again. I can chew without toothache even tough stuff. Something I haven’t been able to do for YEARS. Still some hot/cold sensitivity but I believe that will also go.
Have not had any hypo attacks probably due to the high protein diet. Wake up without “hangover” feelings these days which is also absolutely marvellous.Constant Leg cramps have almost disappeared. I still have cramping due to the treatment but that is totally different and quite endurable.
Foot / ankle swelling almost gone. However that could be due to the fact that I now usually sit with my feet raised.
Improvement in balance. Phyio suspected that the Neuropathy was to blame for the lack of balance. So far tests I am doing (standing on one foot) show that there is a remarkable improvement in my balance! And that’s without doing the Rx exercises.
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Inge: Rickettsiosis; Peripheral Neuropathy; Chronic Bronchitis; cough; recurring bowel obstructions (adhesions/ inflammation)| 25D of 26.4 ng/ml; 1,25-D of 50.83 pg/m| Benicar 40mg q6h 24thJan07 Mino 8th Feb07 75 mg QOD
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Aussie Barb
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Posted: Sun Mar 18th, 2007 02:58 |
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son: Psoriasis 2 yrs: MP 8mths: amazing progress. MP just keeps getting more and more interesting.
Member in Phase 3
Son has been able to move through the antibiotic combinations.
He has no dizziness at all.
Has no sun sensitivity, wears Noir only outside sometimes and wears T-shirt. He gets just a slight headache only now again. His herxing would be barely noticeable, very rarely he has a panadol, and no indigestion at all now.
When he was here at home with us he finds it very amusing to see what big herxs we get with so very little antibiotics  . The ray charles joke were less. He just loved asking "so how much antibiotic are you on?????"
The psoriasis scarring is fading more and more and has only a dot on each elbow-but we are not content until that goes. He still has more to do yet.
When we saw his Doc I was explaining to her that something I have not really observed or could prove, more of intuition with son. He had experienced a traumatic event but this could not fully explain it. I have sensed that he has 'grown up more' {ignoring the above }, and more focus.
He has been dyslexic, right side brain dominate/left handed, very creative and just maybe as a child little bit ADD. He was laughing as I was telling the Doc. Then he said "hang on, I am on my 3rd book for the year and I have NEVER read a book before in my life- BINGO. To confirm this fact.
The next day D2 come to me and said she was concerned about son. Why I ask " because he is just lying on his bed READING A BOOK!!!!!!" Something we have never seen him do.
MP just keeps getting more and more interesting.
Grace
May 2007:
Not herxing at all on Phase 3 antibiotics combinations. He will be having blood tests next month to check Ds.
Good news, the last of the psoriasis is gone .The last few months he has had a pimple size red dot on both elbows, now its gone. He has NO sign of any psoriasis except pigmentation scarring on legs.
He is also getting through the books.........very interesting
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son: Psoriasis 2 yrs. 09/06 D1,25=35,D25=10,10/07D1,25=17,D25=6
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Aussie Barb
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Posted: Sun Mar 18th, 2007 03:11 |
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captkirk: noting improvements
Modified Phase 2
Some good news - I have lost about 20 lbs. since starting Dr. Bernstein's diet suggestions - yeah - and although that is a very nice bonus there has been another very important change -
For years I have been unable to go without eating something about every 2-3 hours, otherwise I would have horrendous pain and twisting in my stomach. Just before I started the MP my GP had sent me for an upper GI series because she thought maybe I had an ulcer or something. As usual my tests came back with "everything is fine." However, now I have my meals at 6am; 1pm and 8pm - very comfortably and with no pains and no hunger - I have no doubt that the MP and now the low-carb diet have made all the difference in the world.
So this is another "plus" to add to my being able to stand taller (when I can stand ) - so onward and upward - one day at a time.
Bree
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Bree: Disabled since 1991| Primary Dx: FMS, diabetes, muscle spasms, hypothyroidism, HTN, back injury, MPD/DID. (Feb06-1,25D 34,25D 5) Meds: Vicoprofen or Ultracet PRN| P1 04/06| Mod Ph2 11/06.
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Aussie Barb
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Posted: Mon Mar 19th, 2007 09:11 |
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Bookdad: Sarcoidosis: I am doing so much work now. working outside. update..
Matt Happy New Year 2007
Claudia: Hashimotos Autoimmune Thyroiditis; arthritis; history of CFS: update.
DrVikki Lyme co-infec: getting better each trip. Phase 3 update:
Sue Lyons: Sarcoidosis: walked on the beach without oxygen. doing so much.
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Aussie Barb
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Posted: Fri Mar 23rd, 2007 04:47 |
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grace: CFS: HEAR THIS everyone
Member in Phase 3
More than two year now on MP, boy what a ride. I couldn't never have imagine ever being able to do what I am now doing  . Although I still have a way to go, I just keep moving the goal posts. I still have to rest and sit more than I like
I have had a small break out with 'shingles' for the third time, was on my left arm, all ok
Pre MP- the muscles in my back had become so weak that I had rotated my pelvis and it had locked out of place when getting out of a swivel chair. An osteopath had to unlock it.
With MP the muscles involved with this injury have been herx . Late last year I was doing a bit of light gardening and it did it again. Not near as bad. Again the osteopath fixed it. But this time what was really happening was that the herx was re aligning the spine and pelvis as the muscles healed.
Pre MP-I could on a 'good' day sit up in a straight back chair with effort, dizziness. feeling faint. pots etc. On a bad I was unable to sit up all.
Now - I never lay on the couch or recline.
Pre MP-I had become so weak that I was looking at getting a wheel chair, but knew that I was too weak to be out at all. The few metres from the carpark to my doctors was getting harder, with even using the wall as support. At times I would lie down while waiting to see him.
I could not walk against a bit of wind. I had no leg muscle strength or shape. I could only lift my feet just enough to clear the flat smooth ground and place my foot weakly and flatly on the ground. At the mall I moved from seat to seat. Going through the check out was a nightmare. I would be willing my self "Don't faint, don't faint, hang on to some thing".
Now- I can walk swiftly,stop, turn around etc. Do it with out thinking. I go on short walks now and again when my BODY tells me that it wants to move more between herxing.
Pre CFS -I would wear out 1 or 2 pairs of shoes each year.
The last 7 years I have not bought any shoes, except for slippers and light canvas ones to block summer sun, and I threw out my heels. HEAR THIS everyone, I have just bought a pair of proper cross trainers . I needed the extra support because the AMOUNT OF TIME I am now spending on my feet.
Pre CFS-I had a botched wisdom tooth extraction. My jaw was never the same. Didn't bother me.
Now this has been herxing all month, involving deep ear canal, jaw, to top of right eye brow.
Thanks Dr Marshall and MP team
Grace {I have been sitting long enough, time to move some more}
see also:
Grace All the things I can do, no POTS now.
GRACE being able to do things..
Grace - Muscle improvements regained and healing
Grace improvements
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Grace: CFS, oct04 D25=26 D1,25=48/ feb05 D25=22 D1,25=52 /Jun05D25=9,aug06 D25=9 D1,25=48,feb06 D25=10 D1,25=41 NoIR endep/ MP PHI Feb05/ Beni Q6H/ Phase II JULY05 /Phase III June06
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Aussie Barb
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Posted: Sat Mar 24th, 2007 09:29 |
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vda51 Peter: growing hair on my head...
Member in Phase 3
Perth, Australia
I seem to be growing hair on my head WHERE NONE HAS EXISTED FOR QUITE SOME TIME. I HEARD the protocol made you feel young again but did not expect this. Guess my disco days may be back HA HA !! ANYWAY A POSITIVE SIGN OF IMPROVEMENT.
THE OTHER THING I HAVE NOTICED is that cold water does not take my breath away as it used to. Sure I gasp a little but not half as much as pre mp.
THANKS PETER
January 2009: Spine:
Went to the chiropractor today, he had my old spinal x rays from 6 yrs ago, full spine, from what he explained and showed me on the x rays the top of my spine had straightened up markedly in the past 6 years, have done nothing out of the ordinary to attribute this to other than the protocol, i do feel i have gained a small amount in height, or my friends have shrunk. Maybe this is attributed to the straightening of the top of my spine, i still have a problem in my lower spine but hopefully this will resolve with time also, amazing !!!!
thanks Peter
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Peter: Reiters Syndrome 10yrs 25D=27 1,25D=43/ Crp56.33/ WCC8.7/ lymphocytes 1.2/ BP 146/96| NoIRs/ LIGHT & D AVOID| Beni Mar05 Mino Apr05| MINO 100MG Q48HR BENI 40mg Q6H| Apr06-3 abx|June06 25D=12
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Carole
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Posted: Fri Mar 30th, 2007 04:21 |
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Today's DXA scan definitely reveals that the MP is working toward suppressing my bone resorption!
I'm celebrating another obvious milestone with the MP!
The T scores are as follows:
Hip Spine
9/2003 -0.3 -1.7
3/2005 -0.9 -2.6
3/2007 -1.2 -2.5
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The blood pressure readings are from clinic visits (not counting higher hospital or lower home readings) :
Pre-MP--2000 120/84, 126/70, 130/80; Pre-MP--2001 150/90, 126/74, 114/70, 140/84; Pre-MP--2002 150/90, 144/92; Pre-MP--2003 124/80, 120/80, 126/80, 132/90, 132/90; Pre-MP--2003 150/96, 130/100
Benicar only--2004 128/82, 132/90, 142/90; Phase 1--2004 112/74, 112/74, 130/70, 122/72, 122/78, 108/78; Phase 2--2004 120/70, 117/72, 124/82
Benicar only--2004 112/80; Phase 1 again--2004 124/88, 124/80, 112/78
Phase 2--2005 140/90, 116/70, 120/68, 108/72, 122/80, 124/86, 102/80, 100/70, 100/70, 144/92, 110/84, 118/80; Phase 3--2005 128/86
Phase 3--2006 126/88, 128/86, 132/82, 112/78, 138/90, 112/76, 110/70; Next Phase 3 combo--2006 110/70, 118/76, 102/68, 130/82, 110/72, 128/88
Next Phase 3 combo--2007 124/84, 118/82, 102/70, 112/78
Words alone cannot describe my elation! Thank you so very much, MP and the research team! . . . Carole
August 07:
I can celebrate, as my chronic back problems before and after surgery in 1980 have never been better! Plus, I have not needed to return to the chiropractor for my neck or my back since starting the MP.
see also:
Carole: MY MP Story
Carole Living Proof of MP
Carole: Edema resolved and Muscle strength and tone return.
Carole: celebrating my most recent test and CT scan results
Carole: History and Improvements...
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| AC
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Aussie Barb
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Posted: Sat Mar 31st, 2007 01:46 |
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Sue Lyons: I have great news! I passed my "flying test" (15% test) I just returned from a Pulmonary Function Test and have significant improvement!
Member in Phase 2
The technician was very surprised to see me because he thought the last time I was tested (May 2006) was my last....... He said that last time he saw me I had one foot in the grave and spiraling down fast.
However, I am now able to fly without oxygen and there has been a 30 percent improvement in my oxygen diffusion from my lungs to my blood.
He said this is unprecedented. Never in his 30 years of conducting pulmonary test has he seen an improvement in anyone as far gone as I was! The technician is a very somber, straight laced guy and he was doing flips around the room (well...mentally, not physically!) I am so happy...I am going to get well!!!!
My DLCO is now at 45% (up from 30% in May 2006 on 6L of O2.) The technician predicted that my DLCO would be at 60% by the results of my flying test and my skin color. I remember Dr. Marshall stating that one's DLCO may not accurately predict how well one can breathe while going through the MP...and not to be dissappointed if it is not as high as one would expect...(I remembered that so was not disappointed!)
I am thrilled to share this news! My sincere gratitude to Dr. Marshall and his team of health professionals and all MP members who keep in touch with their encouragment. May we all continue to improve our quality of life!
Cheers! Sue Lyons
July 07:
a little window of wellness opened for me....it was enough to inspire me....I have been able to walk at 750 ft. above sea level on a hill at a 7% grade without supplemental O2....That is very exciting for me! I have not been able to do that for several years now. I still use supplemental O2 for more intense exercise for longer periods and I do sleep with it.
I feel great and am enjoying a cool and cloudy summer. Sue
August 07:
I returned from my trip to Seattle with excitment. My flight with oxygen was great. My O2 sats were between 94%-98% on 2 Liters of O2. I was able to walk those very steep hills in Seattle without supplemental O2...keeping my O2 sats above 90% and heartrate below 140 bpm. We walked between 2-3 miles a day. I felt normal again! (Well...almost...anyway!)
end August 07:
2 fifteen year granddaughters were visiting and I wanted to enjoy their visit. I was able to go shopping (first time in 4 years) and to fish with them (without supplemental O2.) I felt OK and was able to enjoy their visit!
Many thanks to Dr. Marshall and the MP Health Board!
June 2008:
I have been able to enjoy aerobic exercise this past month with supplemental O2 at 6L, but gaining strength and impoved endurance. I am on supplemental O2 for exercise and sleep.
see also
Sue Lyons: using less Oxygen, able to do more. Modified Phase 2
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Sue: Sarcoidosis May 04 diabetes II| 1-28-06: 1,25D=37&25D=16| 1-28-06: Benicar 40mg q6h| Modified Ph2: 8-18-06| 12-5-06:25D=13. Ph2: 3-23-07. Ph3 9/07, probiotic, Metformin, oxygen, low lux home, limited outings covered up, 25D17
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Aussie Barb
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Posted: Wed Apr 4th, 2007 07:18 |
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Alaskan Dave: Sarcoidosis, Uveitis: 3 years ago I was considered terminal, and my doc didn't think I'd recover. I am enjoying activities I'd never thought possible. With my new lungs and eyes its hard to find time for everything.
Member in Phase 3
I've been able to go back to work doing really hard work that I thought was impossible. I've been working logging being the main treefaller for a little operation, working 5 hour days on steep hillsides in the snow and cold. Its been the coldest last 5 weeks in recorded history up here and I'm just so glad to be able to do this work again. There's some tightness in my chest, and I wear good eye protection, and we're on the north side of a hill that gets very little sunlight. Except for a little soreness in my chest and sometimes in the eyes at night, I don't notice the disease.
I never had tests done as couldn't afford them, but 3 years ago I was considered terminal, and my doc didn't think I'd recover, with less than half my lungs and constant pressures in eyes, bones that had turned to rubber, and very high dosages of prednisone. Since the protocol I've only seen the doc once a year for scripts.
Bye, Dave
December 2007
I lost a lot of work when I was sick and am getting it back now, so I eat real good, follow MP protocol as well as possible, and am so busy with work. Mostly playing grand pianos in mansions and concerts and teaching children music and giving dog sled tours when its not too cold or too light out.
April 2008:
my muscles seem to be healing. I am now getting into pants I haven't worn in years and hope this continues.
June 2008:
Well, things are going real well, the sarcoid is a non issue anymore, and I've been canoeing down beautiful wilderness rivers on very strenuous trips and doing some real strenuous work and everybody is wondering why I am so happy. I guess the road back to recovery was worth it, though I had my doubts a few times.
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Dave: Sarcoidosis, Uveitis, lungs, MP 8/03, Ph3, weaning prednisone for eye inflammation, NoIRs, low lux home
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Aussie Barb
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Posted: Sun Apr 15th, 2007 02:24 |
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Vicki SA: ME/CFS Update - positive trends.
Bookdad in Phase 3 Listing improvements
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Aussie Barb
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Posted: Thu Apr 26th, 2007 02:54 |
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hellohope: Rickettsia, CFS: Two years ago, I couldn't do many things. Now I can walk, in fact nearly run around the house !!!! and more...
Member Phase One
Wow, don't believe it, I am up to 75mg mino !!! Yeah !!!! Symptoms are fairly mild too, so instead of going on about them, let's recap on improvements.... much more interesting.....
Two years ago, I couldn't wash my hair, blow dry it, hardly type, or get out of bed.... Last year my right arm started to get weaker and weaker...no matter what I did, it just wouldn't work.....I am right handed too, so this was a real worry.... I tried strengthening exercises but they just made it worse.....my jaw also was getting sore from chewing anything hard or for a long period of time....Then last July my legs started to give out, they would go all wobbly when I tried to walk to the toilet...I was in a wheelchair for three months before I started the mp....potty next to the bed etc. It was awful.....Couldn't even watch tv for more than ten minutes....or sit in a chair.
Now I can walk, in fact nearly run around the house !!!! My right arm has regained full strength, oh yes, I can do anything with it and for long periods of time and since christmas it hasn't got sore once....this week I blow dryed my hair for the first time in two years and have been washing it for the past three months myself...my legs don't go all wobbly anymore, I don't feel toxic anymore, my jaw doesn't ache, and as for my brain, it is so together now I show my hubby up !!!!!!   
Every month I write to all the doctors who wouldn't support me in this, and regularly update them.....as I know many of them are too busy to read the website.
I am so glad I kept a diary, because you tend to forget how bad things really were, although my hubby doesn't......I am currently writing a children's book for my son but after that I hope to write a book about my illness and my journey on the mp.
Take care all
Hope 
May 2007:
Went out again last night - in Mod Phase 2 now can't believe it....We visited friends who said I look completely different ! ? Been washing dishes too, at home, so hubby is very pleased. SELLING MY WHEELCHAIR THIS WEEK !!!!!!!! (haven't been in the wheelchair since nearly two years ago, due to be being bedridden)
Went out Thursday night for late night shopping !!!!!! I haven't been to a big department store and walked around since it must be 2003 really can't remember...usually have to use a wheelchair. I changed my glasses to 2% and walked into Big W Store, and was able to walk around with no symptoms for about an hour !!!!!!!!!!!!! carried own shopping basket too. he he
Then I thought, should I risk it and go to another shop???? Well I did, but a smaller one and arrived home just after 8pm.....felt tired. But awoke this morning feeling fine....only just sore arm from carrying shopping basket !!!ha ha
will rest today..... I am still in shock at what I have just done...
............take care all,
Hope
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Hope: Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007
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Aussie Barb
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Posted: Sun May 6th, 2007 03:12 |
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shamutooth
Member in Phase 3
Amazing how good health gives absolute peace to the soul This spring has been the best one of my life, and I just want to thank Trevor and the entire staff for the miracle that you've given to me. May God bless you all.
Sam
June 2007:
We just had our 4th child about 10 days ago; our 1st child since we all went D free a couple of years ago.I am overjoyed to share that this is the first time my wife has not had severe post-partum depression.Fact of the matter is, my wife is extremely happy and has adjusted very well. Our newborn never cries unless he's hungry,and is completely relaxed and laid back.This is so unlike our other kids who had terrible fussiness from the day they were born.Coincidence? Maybe,but I am thinking otherwise...
December 2007:
I've been taking Benicar only for a while now and am still making great progress. It's amazing how I've been able to take control of my life again, for lack of better words. I've been greatly blessed by God
April 2008:
My family has been off of all D for over 2 years now,and the incidence of colds and flu has been virtually nonexistant this winter,as I've stated elsewhere on this site. The couple of times they did catch the sniffles this year it was over within 1-2 days.Our pediatrician has commented that our children(4 of them) have become "lean and mean". This despite the fact that we have not limited their carbohydrate intake whatsoever.
see also Sam previous updates.
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Sam: MCS, CFS, IBS, insomnia, anxiety, depression, started Doxy July'04, MP Sept. 04; Benicar 40mg 3/day; Phase 2 started 2/2/05; 6/28/05 D results 25D=29,125D=47;11/13/05 25D=10
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Aussie Barb
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Posted: Wed May 16th, 2007 21:19 |
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patrickburke: Sarcoidosis: return to Life.
Member in Phase 3
The urge to exercise is getting quite strong again but I am resisting as I have been expending my spare energy on my house and garden . I have hired a landscape gardener to do all the heavy, two years worth, of catching up in the jungle though. I would not be able to cope with enough sun or the strain at the moment , but I will one day . I can wait, I can feel it's on its way.
I am still getting herx in my abdomen, legs, head (including some of that damn emotional ), upper thorax (front and rear) and lower front ribs. There is quite a lot of cracking going on in my upper spine still but boy do I feel mobile up there on a good day. Also my knees are getting less and less painful I can now comfortably climb steps three at a time and put my whole body weight on them, just like when I was young.
Last weekend I went a little crazy and drove from my home in the "midlands" out into the sticks of woolly W Wales to fetch a little sheep dog pup for my long suffering daughter  . He is beautiful and very clever, she deserved a special treat after 2 years of putting up with me on the MP LOLOL.
It was a ten hour round trip and I did it EASY I think it was the first time since Lord knows when that I could get out of a car after a long journey and not have stiff legs. It was very sunny day but I covered up, wore K cream and took extra Benicar just in case. The biggest help though was due to the fact that I changed my car to one with a/c. Any long standing members will know that I have a problem with heat/IR and I learned last summer when I had a/c fitted in my office that it helps me a lot. Bizarrely, I can remember as a very young boy wondering why everyone else like being warm when I liked being cool .
I have been having some very welcome periods of "brain clarity".
Take care all.
April 2008:
I measured my height the other day and I am now over 1/2 an inch taller than I used to be . I am pretty sure that my height increase is due to straightening and possibly other "repairing" of my spine.
PatrickBurke list of improvements to my health since the MP
PatrickBurke: counting my blessings
patrickburke: What recovery feels like.
PatrickBurke. no more glasses
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Pat. Pulmonary Sarcoidosis dx 5/04; No D tests; Avoiding D/light+noirs since 6/04; Benicar 40mg q8h.
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Aussie Barb
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Posted: Wed May 16th, 2007 23:30 |
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alayne: ME/CFS/FM: I find myself standing up much straighter as of late - with no effort. This healing is something else...
Member in Mod Phase 2
Hey Patrick,
It's always so good to read of your improvements! I've always taken notice of your crackly ribs and such, because they've been a big part of my own healing. I find myself standing up much straighter as of late - with no effort. Before, it used to really take a counscious effort and it'd be sore. Now, it just feels better when my back's straightened out.
Same with my knees lately. They not really been bothering me either and stairs don't hurt going up and down. I walked about two miles the other evening (my longest foot journey since pre-MP) and was absolutely fine.
This healing is something else and I'm finding myself looking forward to the day, instead of wondering I'll be limping or whinging about something. Now, if I could only get a puppy too.
All best to you Pat, Alayne
Alayne Summary of Improvements
Alayne mix of improvements
Alayne: vitiligo disappeared
The Panel on Recovery
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Alayne: ME/CFS/FM 6/05:25D-34 1,25D-69 Dec:25D-22 1,25D-44 9/06:25D-7,3/07:25D<4, 1,25D-27 Sick 6-11 mos/yr x 20+yrs. Pos for EBV, CMV, CPneu, Myco Pneu. Body quit 05. NoIRs, 9/28/05-Avoid Sun/D, 11/17/05-Beni, 12/02-Ph1, 5/8/06-Mod Ph2, 12/2-#2 Mod Ph2
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Aussie Barb
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Posted: Thu May 17th, 2007 05:39 |
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Janicew: FM/ME: I am getting better!! After decades of declining health...
Member in Phase3
I am getting better!! After decades of declining health and a growing list of medications to palliate and control my disease, since being on the MP I am improving and have gotten rid of a number of medications and have reduced the doses of those remaining.
I went from hardly being able to stand for longer than a few minutes or walk more than once around the block (very slowly) to just recently enjoying a trip with my husband that surprised him when he didn't need to go get the car all the time while we shopped in the little island tourist towns. A freedom we haven't enjoyed together for a long time.
I still have to be careful of sun exposure and to not overdo. I have to manage the Immune response and remember I'm not completely well yet but I'm on the road to wellness, and my list of health concerns isn't growing like it had been doing at a rapid rate for the years prior to the MP.
I no longer have 2-3 migraines per month. My arthritic fingers no longer hurt. I no longer have debilitating pelvic pain (which was diagnosed as possible interstitial cystitis) and my Hashimoto's thyroiditis is resolving as evidenced by the need to lower my thyroid medication.
I'm pleased with my progress, and very thankful for the MP and Dr. Marshall, the researchers, and the moderators. I had completely given up hope for ever having better health before finding the MP.
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Janice: FM/ME, Ph 1, 10/04; PH 2, 5/05; GB surg 10/05; restarted PH 2, 1/06; Phase 3, 6/27/06 |1/07:25D=17 Tramadol, Topomax, Ambien, Levoxyl, Vagifem
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Aussie Barb
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Posted: Tue May 22nd, 2007 20:59 |
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Updates to
JohnMcDonald: RA: My RA "remission" is more secure now
DMiller: Sarcoidosis: throat: and other improvements
Scarab: Sarcoidosis: Noting improvements. I really thought my life was over. Well, I have it back in 9 mths of the MP.Last edited on Fri May 25th, 2007 00:20 by Aussie Barb
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Aussie Barb
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Posted: Mon May 28th, 2007 01:44 |
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Guss Wilkinson: Sarcoidosis: I continue to feel very good. My energy levels are great. None of this seemed at all possible in 2003 when I started the MP.
Member in Phase 3
Hi All
I continue to feel very good: only low level herxing (the occasional dark mood, the occasional cough, the occasional transient ache, the occasional tired moment, a little light sensitive still and the occasional running sinuses).
My energy levels are great; my ability to concentrate is fantastic; my sleep remains consistently blissful and there are no signs of the whole host of symptoms that I used to experience.
My psoriasis remains constant at around 1% - 2% coverage, but those spots are very slowly fading.
It has been a full-on time for us this last half a year:
- We put ourselves through our karate grading – it was over two hours of extremely gruelling exercise. I am extremely grateful for the real victory that I was fit enough to do it.
- I am still working two jobs (around 50-hours a week).
- We still run our karate club two evenings a week.
- I was voted on as Chairman of the Board at our local high school.
- My PhD proposal was finally accepted and my enrolment to do a PhD at the University of Waikato School of Management takes effect from 1st June. I have until 2015 to hand in my thesis, but as I am able to devote a significant amount of work time to my studies, I hope to have it done and dusted within 4-5 years.
- And there is still time left over for quality family time.
None of this seemed at all possible in 2003 when I started the MP.
Cheers
Guss
see also
Guss Wilkinson: re Clinical Trial
Guss psoriasis
Guss Wilkinson (sarcoidosis, psoriasis, insomnia)
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Guss: Dx Sarc May 2002 Stage 2. Estimate Sarc since 1987. Lungs, Joints, Kidneys & GI. Two failed Prednisone courses. (Started MP: Oct 2003 - D25...31ng/ml, 1-25D...76 pg/ml), Phase III since July 2004; Benicar Q8H, BP 100/60. Feeling pretty good!
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Aussie Barb
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Posted: Tue May 29th, 2007 04:40 |
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Scarab: Alex: On the eve of my return to work I thought it perfect timing to complete a success story.
Member in Phase 3
Hi, I am writing this after 9 months on the Marshall Protocol - the day before I return to work again.
I had no doubt for some years that I had an autoimmune disorder. I grew up in a family riddled with these diseases and I saw clearly and frighteningly that I shared a host of symptoms with my relatives. I also knew that it was hopeless to expect any real help from the allopathic medical system.
I joined the Marshall Protocol website on August 10th 2006 and started on benicar 26 days later when I received my NoIRS . I had an instant gut feeling that Trevor Marshall’s theories were right when I happened across the MP website a few days after learning from my neurologist that I had sarcoidosis.
I knew that I had been very sick for a long time but by March 2006 I was in a serious health crisis. I could not see as I suffered from blurred double vision, I had bouts of horrible breathing difficulty; I was always fatigued and felt very sick and I noticed I was losing my memory and cognition. I had suffered with a very nasty sinus infection for years. I had IBS, eczema and hair loss. By July I had been on sick leave for over 3 months and had been forced to give up my beloved yoga practice and stained glass work. I spent all night in bed and all day on the couch and my life consisted of nothing but fruitless medical appointments and more and more dependence on others for my basic needs. Intuitively I knew that all these symptoms were related and that they were doubtless an autoimmune disorder.
I had a strong gut reaction to the MP when I first read the theory behind the protocol. I just knew! I lost no time in having my D metabolites tested, ordering the benicar and NoIRs and avoiding light and vitamin D in food. I made a list of the symptoms I had but I can see now that it was a very deficient list. I had symptoms that I did not even recognize as symptoms until they began disappearing as I progressed on MP.
I began feeling immunopathology on day 2 of benicar and within a month noticed amazing improvements in my vision. I threw away the special prism glasses I needed to correct the double vision and warts that I had on my body (one on my pinky finger that had been unsuccessfully frozen off 3 times) just ‘went away’ after 6 weeks. I knew this protocol was working because warts are viruses. It was clear to me my own immune system was now starting to work. At the same time my energy levels were increasing, all eczema cleared up from my face and ears and I stopped getting dandruff.
Over the next 6 months symptoms just left one after the other and I am now left with nothing but immunopathology that although at times can still be difficult is much more easy to manage than the disease.
- I have not had any difficulty breathing at rest for over 6 months and can now walk a fair distance (on most days) without any difficulty.
- Although I sometimes have a runny nose the long term sinus infection has completely resolved
- All eye problems including inflammation have resolved except occasionally with IP
- My periodontist was thrilled to inform me that 3 deep pockets of gum disease that had remained after gum surgery years ago had now resolved. He was very interested in the MP when I told him why the improvement had occurred
- My skin texture has changed
- I experience fatigue only as a herx
- Psychologically I feel a different person. Frustration, rages and depression now happen only as herx and only when I change the meds
- Hoarseness has all but gone and my singing voice has returned. I can now whistle again. (This I do not understand)
- Bladder weakness and burning on urination has resolved and I only experience short urethra spasms as herx
- My bowels movements continue to fluctuate but are greatly improved. I no longer experience pain after evacuation.
All this after only 9 months of the Marshall Protocol! I feel better than I have felt for years and more importantly I feel safer and in control of my life again. I would be happy with the results I have had to date but I know I have a way to go. I feel I owe Dr Marshall a debt that I can never repay and will be eternally grateful to him and all the moderators and members who have helped me get here today.
If any one is reading this who is sick with TH1 inflammation and is hesitant about taking on the MP. DON’T HESITATE ANY LONGER. If you want to get well you have found the answer. Just order your glasses and see your doctor.
see also
Scarab: Noting improvements to energy, sleep.
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Alex: Sarc Aug06| breath diff, vision, sinus, IBS| dx CFS June90| Avoid light & D NoIRs Aug06| Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Nov06 25D-8.4| Apr07 25D-5| Ph2.. Ph3..
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Aussie Barb
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Posted: Fri Jun 1st, 2007 01:15 |
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| Update to Knochen cruising along - 1 year now
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