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Aussie Barb
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Posted: Sun Dec 31st, 2006 17:49 |
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captkirk
Member in Phase 2
One very important thing that I need to note:
I am standing and sitting much straighter and taller;
my breathing is much easier and deeper;
and my shoulders are MOVING with NO pain, actually able to move my shoulder blades together!!
This is something that I haven't done in 20 years!
As of this morning - 5.30am Sunday, Dec. 31st, my Blood Glucose reading is 97mg/dL! and never once in the past week did it ever again get to 158mg/dL. I know that this is thanks to the Dr. Richard Bernstein's diabetic solution book and diet. It has been very successful for me and I hope that by the time I see the nurse again on Feb. 6 that my readings will all be within the normal range.
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Bree: Disabled since 1991; Primary Dx: FMS, muscle spasms, hypothyroidism, hypertension, back injury, MPD/DID. (Feb06-1,25D 34,25D 5) Meds: Vicoprofen, start P1 04/06; modP2 11/01/06
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Aussie Barb
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Posted: Mon Jan 1st, 2007 04:44 |
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robyno: Mum of Matt 14 yrs: A Happy New Year.. Matt continues to improve with each cycle.
 Phase 3 commenced 20 Nov 06
Matt's immunopathology has been tolerable. There have been no unwelcome surprises so far (touch wood!). Nothing has stopped him joining in everything over the Christmas period. In fact, he has had a ball! He has shopped and made bon bons and stayed up late (for him) and slept in late (for him) and watched lots of TV and wrestled with his brother and he was even the one who played "elf" this year and handed out all the presents from under the tree! The last couple of years he has just sat there while everyone else rushed around, but not anymore............
We have had a wonderful Christmas. Matt got a new LCD TV with built-in DVD player for his room, which is a step up from the audio books that he used to get because listening to those was about all he could manage to do for so long. He was in the thick of everything and really enjoyed having family visit from Melbourne.
The really big news as far as Matt's symptoms go is that he can actually feel that his headache is barely there at all as he is falling asleep of a night. That is big news - his headache is nowhere near as bad anymore, but to have it almost disappear for even a short period is very encouraging. We are sure that the headache will be the next to go.
Matt can also be outside for short periods with his 10% glasses now, so he feels that his light sensitivity is improving markedly. The invisible zinc is drying his skin out a bit so we nag him to rub sorbelene cream on to his skin as much as possible.
On Saturday night the four of us went to the movies together for the first time in over two years.
Regards, Robyn
January 7th 2007:
We all went to a friend's place for dinner last night and didn't get home untill after 10.00 pm, but it wasn't a problem for Matt. We are finding that he is staying up later of a night and sleeping longer of a morning, just like a well teenager (and like he used to do before he got sick). He is returning to normal more and more with each cycle.
January 15th 2007:
Matt had a real treat last night - after dark (~8.30 pm) he went over to a friend's place for a swim in their backyard pool. He didn't have to worry about glasses so he was able to dive under the water freely. Matt loves swimming and that is the first real swim he has had in over 2 years.
Last year he would have been in bed long before dark and he wouldn't have had the energy to stay in the pool for an hour like he did last night. He was all smiles when I picked him up.
Matt said that it made a difference being able to lie down now - it wasn't that long ago that he couldn't lay down at all. He seems to be ticking off symptoms
at a great rate.....
We are off to the Coast for a couple of weeks..
February 3rd 2007:
We had a great couple of weeks holiday at the Coast. Matt has been able to swim, dived under the water, eyes shut tight. He had a ball. The only time he had a sleep during the day was after his swim or other outings, and that was only for an hour or so. There were even quite a few days when he did not feel nauseated at all, which makes a real change. We had some long walks along the beach as well. He can also run a bit now and only needs his 10% glasses when he is outside in the sun. He just keeps getting better and better.
February 18th 2007:
Matt has had another good week and is settling in to the new school year very well. So far he hasn't missed a day.
One change to report is that Matt has dropped his paracetamol down to only one 500 mg tablet per day, and often he even forgets to take that. That must mean that his headache is nowhere near as bad as it used to be.
He is keeping up with his classes and homework in the three subjects he is doing (English, Maths and History) - his work load will increase as his fatigue and headache lift over the coming months.
March 4th 2007:
Matt has had a good couple of weeks at school. He seems to go to school regardless of his herx and is taking things in his stride. He joined in a lunch-time cricket game one day this week- he had a few bats and one of his friends ran between the wickets for him and he said it was lots of fun. He has started to run himself a bit now so it won't be too long before he is doing his own running between wickets! His teachers say that he is looking better and better each day.
On Friday night we had another family over for dinner and Matt stayed up until well after his normal bedtime. He joined in all the fun and his illness was hardly discussed or noticed. I saw it as a real turning point for Matt and the rest of the family, to be just about normal again (at least when the sun went down!).
March 20th, 2007:
Highlights over the past couple of weeks have been some great games of cricket at school and having a friend over on the weekend. He kept up with his friend very well, playing table tennis and kicking the footy and watching movies. Just like a normal kid! Another big highlight was that a good friend set up the TV in his room to receive pay TV - boy, was Matt pleased about that! Now when we can't find the remote we know to look in his bed!
Follow Matt's progress in Matt (15 yr) in phase 3 in the Phase One Alumni forum: improvements continue here.
Matt (13 yr) starts his MP 13th Sept 2005 - Progress Report
Matts improvements << January06 to Oct 06
Matt 14 yrs: 1 year on MP Oct 06
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Mum of Matt 14 yrs 40 kg, Rickettsia+Lyme sympt, paracetamol, Lactobac, Noirs Aug05, avoid light&D, Beni 13Sep05 20mg Q6H; 16Jun05:1,25D=22, 25D=27,12Sep05:1,25D=30,25D=21, 7Oct05:1,25D=27, 25D=24; 7Dec05:25D=12.4; 5Apr06:25D=10; 18Aug06:25D=8.8 Ph1:8Oct05;
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Aussie Barb
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Posted: Tue Jan 2nd, 2007 20:15 |
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Sandy M: Sarcoidosis: exciting improvements...
Member in Phase 3
Something strange is starting!! We celebrated the end of the year by going to the coast on 12/30/06. I was able to walk out to each beach we visited, did not stay up on top of the beach! I did not WALK as far as my husband and son, did not want to exhaust my body, but I was able to get to the water and toodle around. Here is the strange (and wonderful) thing: I DID NOT SLEEP ALL THE WAY HOME AS USUAL! I actually stayed awake and was not fatigued! I did not even go to bed until my usual time of 8:30pm that night!! What is this????? Is it my turn?
It might be time to ramp.....or enjoy. Let's see, which one.....hmmmm, ENJOY!! I will keep on slow and steady,
So, Happy New Year to all and I am wishing me an especially Happy NEW year. Keep on keeping on. Slow and steady wins the battle AND we are all in this together!! GO TEAM GO!!
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Sandy: Sarc lung, lymph, skin, suspect heart & kidney. 10/02 Mino only 6 months, off 6 months, 10/03 (D ratio 2.5) MP1, 2/04 MP2, 9/04 MP3 too early!! 9/04 revisited MP1, 11/19/04 MP2 , 2/8/05 mod ph2, 5/23/05 Ph 2 again, Ph3 12/9/05
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Aussie Barb
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Posted: Wed Jan 3rd, 2007 10:14 |
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shadowzone: CFS, LGS/Malabsorption/IBS, Rickettsia: about improvement in my lower back.
Member in Phase 2
I have always slept on my sides because sleeping - or lying - on my back was uncomfortable, so I would need to either put something under my lower back, or put my knees up so that my legs were bent. I have had this mild problem with my lower back for years, but as it wasn't bad or debilitating I learnt to live with it and didn't really give it a thought.
That is, until a while ago, when suddenly I could sleep on my back without discomfort! The MP has helped my lower back when I didn't even realise that it was much of a problem! Now that it's better I can see the difference.
August 07:
Cuts: Around February this year, I sliced my finger while cutting food. It was quite a deep cut, nice fresh blood, and cuts like that usually take forever to heal for me. But, on this occasion, it only took a couple of days. I've never had anything heal so quickly, I was amazed! It closed up so quickly, with barely a scab, and it healed entirely in only 3 days - no faint line or scar or anything. Usually even a scratch will leave a reddish mark on my skin for months, and I have several spots where it looks like I have scratches that haven't quite healed yet, but they have been around for so long, months and years, that I think they're actually scars now. I have a scar on my wrist that is from a cut that wasn't quite as deep, though it was from the edge of a plastic box so it might not have been as 'clean' a cut as this one from a knife. But still, to heal completely from a deep cut in next to no time was a very new experience for me, and it's exciting to get that glimpse into a healthy body's capacity to heal itself.
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Shadowzone: CFS, LGS/Malabsorption/IBS, Rickettsia | NoIRs Feb06, Phase1 Apr06, Phase2 Oct06 | D tests: Mar06 25D=17.6 1,25D=31 Aug06 25D=14 1,25D=29.3| Other meds: T3/T4=12.5/50, Endep 100mg.
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Aussie Barb
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Posted: Sat Jan 6th, 2007 00:15 |
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| Ames: CFS: the Holidays - my progress and activities..
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Aussie Barb
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Posted: Sat Jan 6th, 2007 02:20 |
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Teri K.: Sarc / Lyme: this time last year I actually thought I was going to die from these symptoms... I thank God for you guys every day!!!!
Member in Phase 2
I can't believe how quickly time has passed. When I recall this time last year, how bad I felt and that I actually thought I was going to die from these symptoms......I am so much better (just after the first year!) I am so looking forward to seeing what the next year brings. I am still hoping to get my husband and son on MP.
I don't get the chance to post too often, but I can't thank you all enough for what you are doing for all of us here on this forum. I honestly don't think I would be here today if I had not started MP.
Thanks again, Teri
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Teri: Sarc/Lyme; Cardio, neuro, gastro, endometriosis, Toprol XL 25mg/day; 12/28/05 NOIR's/NO D; 11/18/05; 1,25=59,25D=26;Beni 2/6/06 @Q6H, Mino 2/17/06 QOD @25mg; Phase II 7/5/06; 6/26/06 1,25D 34,25D 13
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Aussie Barb
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Posted: Sun Jan 7th, 2007 02:03 |
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CelticLadee: an edit to add noted skin improvements.. one of side benefits of the MP ... being somewhat like a beauty treatment..
AmyEliz: RA: my 'positives'.... an edit to add more good news.
Matt Happy New Year 2007 better each cycle
coolbeans tinnitus and other progress
Guss Wilkinson: on Clinical trial
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Aussie Barb
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Posted: Tue Jan 9th, 2007 00:05 |
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Aunt Diana: today my gums are so tight and solid and healthy ... It only took about 3-4 months on the MP for me to notice this change.
Member in Phase 2
All my life I have had gum and teeth problems. ...periodental work galore, itching, bleeding and pockets..
I had periodental work done in my early 20's and have had to struggle with it ever since. I am the only person I know who considers a toothbrush the only thing I must have.....I flossed and brushed and used every kind of help I could to make my gums healthier. No avail.
Along comes the MP....today my gums are so tight and solid and healthy that I can't even believe it. I have been able to give up my obsessive flossing and brushing and I have the healthiest gums of my lifetime. Right before gong on the MP, I had reconciled to the fact that one area of my mouth would always be bleeding, no matter what I did. No more.
I am very grateful to see this undeniable change. It only took about 3-4 months on the MP for me to notice this change.
see also
Aunt Diana progress report
Aunt Diana: I am definitely going in the right direction.
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Diana: Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker 2005, 10/1 started light & D avoid 10/12 d-25, D.1,25 32; 11/27 Beni40mg q6h 6/06 D <10; 1,25D 27; 6/11/06 Phase 2
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Aussie Barb
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Posted: Tue Jan 9th, 2007 12:12 |
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D1: CFS: has been overseas and has graduated with high distinctions.
Member in Phase 2
Grace here,
D1 has just come back from overseas in Laos and Bangkok. She stayed on benicar and mino 50mg x 2 daily. Started few days before she went over.
Now the fun bit.......We were concerned with MP and light heat etc......She did really well {no herx with extra mino  }. She said she was able to cover up -plenty of air con, avoided D foods - wasn't easy, no upset bowels etc - no ice. She said she had much more energy than 2 yrs ago  . That at times she was more well than some of the well people, and they had to ask if she was sure she didn't need a rest, as they did.
She got a head cold just before coming home-they all did 6 people per room staying in at a back packers. The 3 day traditional Lao wedding of her friends was an experience she will always treasure.
She also graduated from uni with lots of HD - degree in PR. When she started 4 yrs ago I wasn't sure if she would ever be well enough to finish. Although she did drop law. She will be doing a bit of study on line this year so she can really kill lots of bugs before she is well enough to work.
She has more energy and can see the improvement in her muscles.
Thanks
Grace
March 2007:
D1 is going OK. She says you know when you're getting a bit better as you get bored. She is doing more, but this level of combo has slowed her down again. Depending on herxing she does find her study easier because she can do it at longer length of time, and able to think better.
For many years she has not been able to drink fluoride water as it would make her sick with GI symptoms. For the last 2 months she has been able to drink the tap fluoride water with no ill effects.
July 2007:
D1 has finished her big project and event. She did really well, and has had a lot of praise from many mental health organizations. She plans to start working part time early next year.
She is out socializing a least once every day/night.
__________________
D1: CFS, MP 03/06, 10/04 D25=25 D1,25=63,3/06 D25=28 D1,25=50,05/06 D25=18 D1,25=51. Benicar 6hrly, Ph2 6/08/06, Noirs
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Aussie Barb
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Posted: Tue Jan 9th, 2007 20:49 |
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TRANSPLANT talk (pre MP): Jillbc and the Fisherman
Periodontal Disease (pre MP): Robertrr
Lori - Lyme Edit to add new improvements..
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Aussie Barb
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Posted: Mon Jan 15th, 2007 02:13 |
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mike9a: Chronic Lyme, CFS, Stroke: monumental change forward in level of activity.
I have finally made it to Phase Two.
I had no problems getting back onto the MP treatment after my cyst was surgically drained and healed and I was done taking the Cephalexin. My overall health did not regress while I was off the MP meds. It seems like I have maintained the progress that I have achieved on the MP. I was able to re-establish the Benicar blockade with no problems. Once that was in place, I went through Phase One with no problems. I have started Phase 2.
I have made some more progress in my overall health. The biggest problem that I have is crushing fatigue. It has kept me basically bedridden for many years. My daily activity has been very limited for all these years. A normal day for me has always been 35 minutes of activity, then 30 minutes of bed rest, 35 minutes of activity, then 30 minutes of bed rest, etc, for the entire day. The bed rest is complete bed rest, eyes closed, in bed resting. Not talking, reading, or watching TV; just complete bed rest.
I have tried for many years to increase my activity times to 40 minutes, but I relapsed every time. A few months ago, during Phase One of the MP, I was able to increase my activity times to 40 minutes! A normal day for me became 40 minutes of activity, then 30 minutes of bed rest, 40 minutes of activity, then 30 minutes of bed rest, etc, for the entire day. This may not sound like much of a change to healthy people, but for me, it was a monumental change forward.
And now I've done it again! I have been able to increase my daily activity times to 45 minutes!! Now, a normal day for me is 45 minutes of activity, then 30 minutes of bed rest, 45 minutes of activity, then 30 minutes of bed rest, etc, for the entire day. This is a major change for me. The only thing that could have made this possible is the MP treatment. I was treated for years for Lyme Disease by two different Lyme docs. The treatments resolved many symptoms and helped me a lot, but they didn't get me all the way back.
I'm also noticing a positive change in my right leg. I had mentioned in my Phase One post that "my legs feel better, there is less fatigue in my legs. They seem to have a bit more life in them. I have been able to slowly increase my daily activity."
My right side was damaged by the stroke. Now, I'm able to exert more with my right leg, and I can put more weight on my right leg. The only treatment I'm on is the MP!
Mike
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Mike: Chronic Lyme/CFS/Stroke; initial D tests Jan 2006 25D=16ng/ml 1,25D=55pg/ml, Sept 2006 25D=less than 4ng/ml 1,25D=40pg/ml; avoiding light & D, wearing NoIR's; Benicar 6/21/06 40mg q8h; Mino 10/5/06 100mg;
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Aussie Barb
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Posted: Mon Jan 15th, 2007 07:27 |
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Edit to add more to
ShrnHml / Sharon CFS MCS EBV MVP TMJ PCOS 28 yrs.
Vast Improvements noticable on break..
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Aussie Barb
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Posted: Tue Jan 16th, 2007 23:45 |
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Rainbowcatcher: 72yr old: Sarcoidosis: MP has halted further disease progression and given the gift of expanding her life.
LINKS to Member progress and improving Health
Resource of individual links to Members recovery experiences
Mkap2nd chronic neuro tick illnesses: Physical and Emotional improvements: addition today.
JudyBeauty: CFS Phase 2 Life is good. I love the Marshall Protocol.
PatrickBurke Sarcoidosis: list of improvements to my health since the MP
Wytnez Sarcoidosis: 2 year Anniversary - Phase 3 update
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Aussie Barb
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Posted: Thu Jan 18th, 2007 04:37 |
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jillian: I wanted to celebrate a major improvement. I'm not cold all the time!
Member in Phase 2
Being frigidly cold (not just in winter) has been at least a 20 year issue. In fact, even when I was out of bed, I'd use an electric blanket around me because I just didn't seem to be able to generate heat on my own (even with hooded sweatshirt, couple of shirts, and at least two pairs of pants, one of which was sweatpants). I had to use an electric mattress pad which never got turned off with 12" of down comforters on top of me in order to keep warm enough to sleep.
I still gently warm my bed with the mattress pad before getting in, and sometimes it gets left on for awhile if my immune response is high, but that's not even one quarter of the time. I'm using only the lightest down comforter, and even have to shed that some nights.
'til later,
Jillian
see also
Jillian My posture is different
Jillian Sarcoidosis I cannot believe how different I feel, how wonderfully different.
Jillian: Sarcoidosis: Miracles have happened
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Jillian: PrimryDX: PulmoSarc'79, FMS, CFIDS, etc; disabled '93; Oct02: 1,25D=42 25D=27 NOTfrozen; Apr05:25D=10; Jul05:1,25D=26 FROZEN. avoidD/ Noirs etc. since Aug02; P1 Oct05-Feb06; ModP2C Feb-Nov/06; P2 Nov14-Dec/06; ModP2 Jan7/07.
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Aussie Barb
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Posted: Thu Jan 18th, 2007 20:48 |
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BradW_inGA: ALS: my R index finger will now open almost fully and I can extend it.. This is Great!
I held off posting this for several days.... just in case it didn't last. I started having involuntary twitchs in my right thumb and index finger.
MY RIGHT INDEX FINGER WILL NOW OPEN ALMOST FULLY AND I CAN EXTEND IT WITHOUT EXTENDING THE FINGER NEXT TO IT! IT IS RIGID ENOUGH THAT I CAN PRESS BUTTONS AND FLUSH THE TOILET USING ONLY THE RT. INDEX FINGER!
I have very limited use of my hands... THIS IS GREAT!
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Brad in GA: ALS, On Benicar only, D tests 11/27/06:1,25D="normal?" & 25D=56, avoiding light & D, NoIRs in use / Beni comm 12/08/06 Q6H,
Mino comm 12/27/06 25mg/48 hr intervals
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Aussie Barb
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Posted: Mon Jan 22nd, 2007 03:18 |
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jacque wrote: I AM RECOVERING
Member in Phase 2
I was bedridden for four years and have also only been outside in a wheelchair.
I am now able to care for myself and my three children. Well we care for each other. I don't fall down anymore. My symptoms are much less in severity and even waxing and waning to the point where I know I'm recovering Doc is so impressed.
I do not need strong painkillers and I don't take sleeping tablets anymore. My test results are also improving with less thyroid drugs needed. I use valium sometimes when I feel neurological problems coming on this only happens if I push myself to far.
If I rest enough and eat well I even have days where I feel like I did when I started getting sick off colour is how I describe it, I am so happy to feel off colour. I am so grateful to the MP and everyone involved in helping. You are giving me my life back. 7 months ago I was in a wheelchair most days, no amount of rest helped me I just kept on getting worse my family and friends tell me that they missed me, because I did not exist for the last seven years, I could not talk,walk,or think.
Last week I had a day when I felt so well I was able to take my children to the beach and I even walked along the shoreline. I have been on the Marshall for nearly two years and the recovery is slow but I AM RECOVERING. Moments, Hours,now even DAYS. I sometimes lose heart and wonder if I am ever going to feel well and I beat myself up because I used to be totally self reliant, then I remember how far I have come. When you are in the worst of it you focus on moments then you can't imagine a life without sufffering it becomes normal to you.
I just wanted you to know recovery is very real thanks to The MP sneaks up on you but its real. I really know that now, and I can say that without theory, I say that with experience.
February 2007:
I have completely been able to stop my sleeping tablets. I still have some nights when sleep does not come easily but it is wonderful to not rely on tablets.
___________________
Jacque: Rickettsia, CFS, et al: May05 Benicar 8 hrly, Phase 2 started 8-Nov-05. restarting Jan07.
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Aussie Barb
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Posted: Thu Jan 25th, 2007 22:27 |
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doveindian wrote: Being able to see yourself come alive a little at a time, step by step with others holding your hand as you walk this road.
Member in Phase One
I went to the Dr's today. I am so surprised that he is behind this. If you knew my Dr. you would understand why I say that.Maybe he always acted the way he did because he could not gave me any hope. Now he can and he is acting so much kinder.I have been going to him for 10 years now and he has never been this nice or gun whole about anything like he is about this. It is so nice to see his human side. Most of us has been through so much when it comes to DR. At less I have.
Sometimes it was hard to keep my head up and fight because they would make you feel it was in your head, even though the test would say it was not. I hated being a woman at times because they would blame it on that , even thought the test would say it was not. Even though I feel really bad at times, it lifts me up to see the change in my DR. I will be so glad when The MP becomes a standard treatment. I guess we who are on it right now are showing are Drs that it works. When others come into their office with the same thing we have, They will think about putting them on MP. That makes me excited. To think that someone may not have to go through what I have.
Eyes: I went to read something this morning and I put on my glasses and I could not see, So I took off my glasses and I could see what I was reading.I hope my eyes stay like this or even gets better.
and : I know it is a long road but,the little things that you can see change makes it some how a little shorter. Like being able to fix something to eat and eating it at the table instand of eating it in bed.Seeing the smile on your children because you are out of bed even if it is only for a little while.Being able to see yourself come alive a little at a time, step by step with others holding your hand as you walk this road.
Dove
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Dove: cfs, fms, RA, neuropathy, Dr thinks MS| neurontin 800q3day percocet5/325q4aday| ph1 avoiding d,sunlight/light started Nov31 Ben40mgq8h, Dec4 min25mq, Dec16 min50mg Jan9 mino75q48h
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Aussie Barb
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Posted: Sun Jan 28th, 2007 18:52 |
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Ken Faucher CFS 20 years: Phase 3 update - 2 year progress
Grace All the things I can do. updated.
A Journey Towards Complete Recovery From CFS: An UPDATE of My Progress on the Marshall Protocol by Amy Proal (Ames)
JRFoutin Update to Phase Three - recovery
CJ new add: I can breathe in the cold air now..
Freddie Ash: new good things.. I am moving on up with the cure from the Marshall Protocol as the crime fighter.
Katydid: CFS Update
Vicki SA: CFS update
Melinda Lyme Phase 3 recovery update
Last edited on Thu Feb 8th, 2007 00:07 by Aussie Barb
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Aussie Barb
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Posted: Sat Feb 10th, 2007 03:31 |
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bookdad: Sarcoidosis: I have done so much the last 2 months that I would never have been able to before. I thought that I would slow down as I got older, but it seems with this protocol, my capacity has increased dramatically.
Member in Phase 3
I am currently continuing the 3 abx and joyfully plugging along! as I told a friend at work, its only because of the MP that I am able to work at all.
I am renovating that room and it has taken from 4:30 every day until 12 or later at night, and all day every saturday. Before, this would have put me in the hospital.
In case you didn't know, I hate hospitals!!! They have people that look like normal nice folks running around with trays full of sharp things  to stick in you when you aren't looking, and they expect you to let them! Then they give you a bill that puts you back in the hospital!!! Whats wrong with this picture??
No whistling in the ears (usually right) this morning (YAY!!!) that issue is resolved, at least for today.
Lastly I am considering going back to school. I want to earn My pHD in physics. I think now that I have a half a brain, I might be able to do it. It's amazing that I graduated (2003) with a 3.8 gpa with this stuff in my head. I can't wait for my memory to return, I have had a little of it come back already. Well back to work...
March 2007:
Hi all! I spent the week end outside pretty much Friday, and Saturday gardening, cleaning up my yard after these many months of neglect. I used my covering and did okay. Actually it was great! Saturday I had to quit and go in in the afternoon and take a nap, after which I went back out for more work.
I am trying an experiment to see where my levels of tolerance are now. So far so good. I have had little or no effect even today except tiredness. I was able to attend church and teach class just fine. Contrast this with a year ago when I would have great problems breathing, lots of pain, no brain function, and heart palpitations. What a difference!
Brain function seems to be on track and the confusion that I took for beginning senility has all but dissapeared rearing its ugly head only breifly from time to time.
The energy level is way up. I have all but lost the chest pains and my leg cramps are gone. I am so looking forward to getting my life back and although I am not pushing it I am seeing wonderful improvements. slow and steady wins this race. It is wonderful that I can even venture outside and dip my toe in the pool of outsideness now without paying a heavy price. Thanks again Dr. Marshall!
April 2008:
Dr Marshall. I want to say how appreciative I am that your science is real and it works. My gradually elevated level of quality of life, and that I am living, is proof of that.
Bookdad: Sarcoidosis: I am doing so much work now.
Bookdad in Phase 3 Listing improvements
Interview with Bookdad - sarcoidosis, rheumatoid arthritis
Doing MP and taking care of a Family.
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Bookdad: DX Dec 2000 Pul Sarc & RA: prednisone. Mar 01: off pred| lymph sarc04: mod eyes memory sx| Sep 05: NoIR| 11/05 d-rat 3.2|Ph1 Nov05 Ph2 Ph3 AUG 06
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Aussie Barb
Research Team
| Joined: | Sun Sep 10th, 2006 |
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| Posts: | 387 |
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Posted: Sat Feb 10th, 2007 06:54 |
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migsies: Clearly, the field of psychiatry has much to learn from the MP! ...
Member in Phase 3
I had a lot of neurological immunopathology one year into the MP, but then it started to lift. I still have a lot of cognitive immunopathology but the emotional rollercoaster is practically gone.
I presume a lot of the bugs that over the years gave rise to insurmountable headaches and a myriad of symptoms are falling victim to the MP.
Until this year, I never would have imagined that what the docs considered to be unrelated "depression" could be cleared with a combination of ARB and antibiotics!
Clearly, the field of psychiatry has much to learn from the MP! I hope my experience helps you put your journey on the MP into context!
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Migsies: fibro, lyme, babesia, insomnia, chronic infections; klonopin, neurontin, trazodone; 7/06 1,25D=28 25D=12; avoid D & sun; NoIRs; Beni q8h; Phase I 8/05, II 10/05, III 6/06
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