The Marshall Protocol Study Site Home

Search
   
Members

Calendar

Help

Home
Search by username
   Not logged in - Login | Register 


Marshall Protocol Success Stories
 Moderated by: Aussie Barb Topic closed

New Topic

Print
AuthorPost
Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Sun Feb 11th, 2007 01:21
PatrickBurke Sarcoidosis: list of improvements to my health since the MP - Phase Three Update!

Betsy G update recent improvements - physically and mentally

Prugg21 Pam: MCS/CFS/FM 22+yrs: making encouraging progress on the MP.

Last edited on Sun Feb 18th, 2007 02:51 by Aussie Barb

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Sun Feb 11th, 2007 23:46
Andy Sarcoidosis: I think back to how sick I was a year ago, and didn't know what was wrong, or what I was going to do.

Member in Phase 3

Dec 06: We had a record snow yesterday, consequently a lot of shoveling and physical exertion the last couple of days.

Jan 07: I have been working a lot of hours the last few weeks. Fortunately I was able to get a 3 day weekend this week, so I am catching up on rest.

Been getting quite a bit of exercise on the treadmill and stationary bike.

Feb 07: Everything really seems to be going fairly well right now. Particularly as I think back to how sick I was a year ago, and didn't know what was wrong, or what I was going to do.

I was able to go running yesterday first time this year, the weather simply has not permitted it for a while, I ran about 2 miles.

July 08:
I am running and lifting weights 5-6 days a week.

Feeling quite well, have been travelling quite a bit this summer, both personally and on business.

Thanks MP.
___________________
Andy: Pulomonary Sarc, March 2006, Nasal Allergies, TMJ Myofascial pain/Clarinex Astelin Probiotic/ June 13 D-125 29 pg/ml / August 23 D-25 13 ng/ml/ October 18 D-25 < 7 ng/ml/ Phase 1 comm 13May2006 / Phase 2 comm 5July2006 / Phase 3 comm 12November2006

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Thu Feb 15th, 2007 02:06
eClaire: I have brief periods where my ability to reason, which took a major dive in the last five years, improves and my memory for language improves (something that has always been a bane to my existence). 

Tonight, at Valentine's dinner, I was able to remember my favorite Irish toast, a toast I have never been able to remember to actually say when toasting.  And so I'll share it with you: 

Grant me a sense of humor, the saving grace to see a joke.  To win some happiness from life, and pass it on to other folk. 

There, you see, I remembered it again.  THIS is truly amazing!

Claire
____________________
Claire: CFS 40+yrs FMS MCS COPD IBS osteopenia tinnitus neuropathy TMJ GERD| Beg: 1,25D-48 25D-26.1 SED 1 Alk Phos 157 chol 299| diet mid-Oct| NoIRs| PRN Hydromorphone Valium Flurbiprophen Milk Thistle | 12/3/06 Beni; Phase 1, 12/26/06 Mino

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Sun Feb 18th, 2007 03:04
D2 CFS: 1 year on MP. enjoys improved health and Life.

Member in Phase 3

Grace here. re D2 daughter:

Before xmas D2's friends at different times, including those who don't see her much and don't know what she has and MP, have all said how much better / healthier she looks:D. She has been able to leave the house more. Her strength has improve-challenge with an arm wrestle. You can see the improvement in her muscles  tone . I notice a while ago when she hugged me that it was too hard. I thought she was just being more sincere, but lately 2 of her close friends have also said she is hurting them when she hugs.;). Her close friends always ask her now if she has her benicar before going out

D2 was just 15yrs when she got cfs. Her self identity had not yet been fully cemented. Many times she doubted who she was. I always reassured her she was still who she always was, but it was just hidden behind layers of illness. She is now so excited rediscovering this fact as her beautiful identity is revealed as layers of illness are being peeled away.

Before MP she had struggled with going away with  friends, and of course with sun exposure, her anxiety would greatly increase. She had lost all confidence that she would EVER been able to leave town, which she has been unable to do for 2 1/2 yrs. So I took her a trip to Sydney for holiday.

She was so excited and concern if she would be well enough. When traveling on the bus she said loudly excitedly{had her Ipod on} that she could see the sea.{she is now 19yrs}. Now I am not the teary sort, but this was one of those moments. We had a ball in Sydney. Standing at lunch time in Pitt St Mall laughing our heads off, lost of course, we didn't care. Yes people still do look at the MP fashion statement, but maybe they though we were on something- we are MP there is no getter High,:D when not herxing :X 

We got over to Manly and she dip her toe in the water. D2 looked longly at the surfers-she used to surf. Commented that you would have to know that you were strong enough to paddle, but maybe a skin would be OK to wear if she had to. She just shopped and shopped-clothes of course;). For days after when we got back home she keep on thanking me saying "you don't know how much it meant to her". I think I have some idea. ;) She is now planning a snow trip for winter-she used to snow board, and maybe squeeze in another trip to the coast before winter.

She is also enrolled in one class a week in the evening.The course is a uni prep. She is so excited.

Herxs come and go here. She has made the connection that her 'anxiety feeling' is worse if she has not been watching tv/ resting during the earlier part of her day.

Thanks MP team:D

July 2007:
D2 has grown 1 to 2 centimeters. Looks stronger and has put on a bit of weight.

She had her birthday last month and was able to reflect that on her 18th, before MP, she was so sick and anxious. On her 19th, 3mths into MP, she was too ill to go out at all. Her 20th, she has had so much fun had many friends here, and then they all went out and played golf at the driving range.

She also is out most nights of the week!!!!:D

She is planning to go to Uni and  study more next year and is looking forward to the experience as she has missed out on so much.

September 2007:
D2 is progressing well in Phase 3.

She has just completed her Uni Prep and got a UAI of 85. She was so thrilled with her self and keep telling us, herself and any one else "see I am not so dumb after all". I become ill when she just started high school and didn't keep on top of her work. She just was winging it, then she started to get serious when she got ill in year 10. She is so looking forward to going to uni next year and have more of a normal life. She will have to start part time, and the disability office there is really great. Only 5 mins down the road from us.

The other huge news from her is that she got to the snow and was able to do some snow boarding. She has not been there for 4 years since she got sick. This has been a big dream for her to get back up there. She had this biggest grin on her face for days. When she heard me telling some one she just keep looking with this silly happy grin. She was sore and tired,but she did it!!!!!!!!!

Her sister D1 commented to me how D2 has got much more confident and not so 'paranoid', and more social. I said it was because of  her TH1 and asked if she can't remember what D2 was like before she got ill. She said she couldn't. Just as well, as I could as I had to keep telling D2 it was her disease and not her. It is so nice to see the layers of this TH1 peeled away for ever.

Thanks everyone

Grace

April 2008:
increase in height: D2 was 15yrs when she got CFS, and we thought had finished growing. She started MP when she was nearly 18yrs, and has grown at least 3 cm / more than an inch since.

_______________________
D2: CFS 3yrs.MP3/06, Benicar 6hrs, 2/05  D1,25=62, D25=33, 3/06 D25=13,
7/06D 1,25=34, D25=.6,  Noirs

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Sun Feb 18th, 2007 06:20

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Sun Feb 18th, 2007 20:52
MarkN: My improvements so far, big and small:


  • Blood sugar much better, not crashing in between meals
  • Thyroid better, without a thyroid supplement
  • Knees & joints are improved ..... sometimes .... so I know they are getting better
  • Sleeping like a rock, and I actually have energy sometimes
__________________
Mark: ADD, general insanity (or ????), unofficial CFS, minor joint paint ...
11/06 D Test:1,25D=37 25D=43 ... 12/06 Avoiding D ... 1/07 Benicar q8h, 1/16/07 mino q2d, daily probiotics/minerals

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Sun Feb 18th, 2007 22:04
smccavanagh I am making great progress.
Member in Phase 3

No migraines. Not many body pains

July 2008:
I am one of the success stories of the MP and although I am not symptom free yet I live an amazingly full life and can hardly contemplate how sick I once was ( when I was at the point where I thought I would have to give up work! ).

In summary, I have been on the MP since Aug 05 and have made slow but steady progress. At this point I have very little sleep disturbance. I have some aches in my right hip that come and go .

Thank you so much for the MP which ( despite my lack of posts) has been a breakthrough in my life whan nothing else worked. 

regards, Suzanne

__________________
Suzanne: CFS, D tests June 05 25D=32.8 1,2D= . avoiding light and D, NOIRS Aug 05, Benicar 40mg q8h 26 Aug 05| mino q48h 25 mg 10 sep 05| mino 100mg 22 nov 05| Phase 2 - Feb 06| Phase 3 - 17 feb 07.

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Tue Feb 20th, 2007 02:59
DrVikki Lyme co-infec: Phase 3 update: 19 months on MP. more improvements

Ival: RA: update: gone back to work. MP 21 months.

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Wed Feb 21st, 2007 23:20
Leesa: Sarcoidosis: Uveitus: I would never be daring enough to travel out of the country by self as sick as I was before.


Member in Phase 3

I have to share with you....I am writing this post from my favorite place in the world...Antigua, Guatemala.:D:D  I have dreamed of returning here to visit since I became left two years ago...but was too sick. This place and this trip got me through the months of total darkness my first 6 months....During the start of the MP, I put money away to reward myself with a trip to Antigua to celebrate my recovery....I AM NOW HERE!!! I am not fully recovered, however I know I will be and sooner rather than later. This is where I first noticed my sarc symptoms 2 1/2 years ago, as I lived here in Guatemala while adopting my son.

 Now him and I are returning for a 9 day visit. I am probably getting more sun than normal due to fact that we walk alot....but I promise to be a bit more careful when I get home (not now...I am having too much fun:):):)). I owe this trip to the MP....I would never be daring enough to travel out of the country by self as sick as I was before. THANKS to the MP staff ...I will have a margarita for you all!


see also
Leesa Living Life again
Leesa wants to share progress  
___________________
Leesa: Sarcoidosis (12-04 biopsy): Uveitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06; Started Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-now 17

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Wed Feb 21st, 2007 23:35
migsies: I am in disbelief at how symptoms that plagued me for fifteen years or more are disappearing. As they say, the proof is in the pudding!

Member in Phase 3


By a year and a half on the MP, the symptoms of constricted throat, voice become hoarse, sometimes unable to speak, along with swelling of many of the surrounding lymph nodes, and with a lot of soreness around my trachea, have disappeared, including all the tender points around my throat and trachea that had been with me for more than fifteen years. I still have some swelling in one of my salivary glands but it has been going down pretty quickly since switching antibiotics.

Similarly, my stomach also went through some intense immunopathology. At first I was very concerned about the exacerbation of these symptoms by the MP, partly because this experience did not fit into the traditional ways we think about healing and because I was looking at things through the lens of neuro-herxing. I did panic on a few occasions as it seemed I could not stop the swallowing reflex but constant review of the MP literature and reports from other folk on the MP helped relieve my worries.

Now, a year and a half since starting the MP, my throat feels better than it ever has, with a lot of the previous tenderness finally gone, and my stomach is working symptom free. I still have tenderness in some other parts of my body, primarily the pelvic region and my jaw, but after some days of intense abdominal herx I notice that the inflamation in these areas is also subsiding.

To be honest with you, I came to the MP a skeptic, partly because I had already tried so many things in the past and nothing seemed to work. Upon starting phase III, my fear that that the MP was making me sicker rather than healthier crossed my mind many times, as I said, because we are not trained to think of immunopathology as an integral part of healing and because of the neuro-immunopathology. A year and a half later (now almost eight months into phase III) I am in disbelief at how symptoms that plagued me for fifteen years or more are disappearing. As they say, the proof is in the pudding!

I hope I have been able to reasure you that there is definitely light at the end of the tunnel and that what you are experiencing is part of the healing process. Hang in there, you will make it, and the rewards are well worth the trip!:)

see also DMiller throat
_____________________
Migsies: fibro, lyme, babesia, insomnia, chronic infections; klonopin, neurontin, trazodone; 7/06 1,25D=28 25D=12; avoid D & sun; NoIRs; Beni q8h; Phase I 8/05, II 10/05, III 6/06

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Sun Feb 25th, 2007 20:29
Le: Members of my family have commented on the noticeable positive effects of the MP, in just the first three months.



GOING TO PHASE 2

SUMMARY PHASE 1:  I am very happy to have gone this long without Prednisone.  The emotional and physical effects of Prednisone have been a real concern for me and I dreaded every dose I took. 

I know that strict avoidance of sunlight and fluorescent lights has had a positive effect on me physically and emotionally.  Before the MP, even limited exposure caused a flare-up of skin, joint, neurological, and other symptoms. 


I look forward to this new Phase and more positive results. 

Thank you to Dr. Marshall and Staff for your fantastic support.

Le

____________________
Le: SLE 1989, fatigue, joints, skin, sun/heat, lymph | Asthma, Hypothyroid| Zinc poisoning-2005| MS-2006 | Meds: Westhroid 3g D| D Tests 10/12/06=1,25-D=36, 25-D=12| NoIRs, avoid light & D | Phase 1:11-28-06 | Phase 2: 2-23-07

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Sun Feb 25th, 2007 23:53
Sue Lyons: Sarcoidosis: using less Oxygen, able to do more.

Modified Phase 2

I am using less O2 and less often!  I am able to perform daily chores and functions now at 750 ft. above sea level without supplemental O2!  My O2 stats remain above 87% and heart rate is from 60-80 bpm at rest and 80-120 bpm with exertion.  I am thrilled at my improvement!  My life is much easier now without an oxygen hose following me around the house!

My other good news is that my Pulmonary Specialist has prescribed my MP meds!  He is very impressed with my progress also!  This is good news for Sarcoid patients in Alaska!

My heartfelt thanks to all of you working with the treatment of the Marshal Protocol!  Sue

March 07:
I just returned from a driving trip out of town.  My first trip for 3 years!  It felt wonderful!  I was able to travel over the mountain pass and walk on the beach without oxygen!  My saturations stayed above 93%.....I was thrilled!

I saw the most amazing sight...about 300 Bald Eagles gathered together in a small area on a beach eating fish!  Really worth the 4 hour drive!

I am feeling well...planting bulbs and planning replacement plants where the deep freeze killed off the more tender ones....I am able to work in my garden more now than I have for several years!  YIPPEE!

see also
Sue Lyons: Amazing news: significant improvement in Pulmonary Function Test. (PFT)

____________________
Sue: Sarcoidosis May 04/1-28-06: 1,25D=37 & 25D=16/ 1-28-06: Benicar 40mg q6h/ 5-8-06:Minocin 25mg QOD. 8-15-06:25D=11.8/ Modified Ph2/ 8-18-06. 12-5-06:25D=13.

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Tue Feb 27th, 2007 00:52
PatrickBurke keeps the good news coming.

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Wed Feb 28th, 2007 03:01
sandiegojoy: Sarcoidosis: I am getting better.

Member in Phase 3 

The 10% NOIRs are now too dark in the house so I am getting the 40%.  My Vit D level is 7!  Pretty good.  

I have a little more energy, and the biggest improvement is that for the first time in more than 10 years I have perfect gums, no pockets - this cleared up in the last 6 months.  My dentist and hygienist were shocked.  They've rarely seen such dramatic improvement in such a short time. 

Thanks Dr. Marshall and your support team for everything!

____________________
Sandie: Sarcoidosis, bones and joints, osteopenia, Sjogen's Syndrome..initial d 1,25 29 & D 15 now 7| NOIRs 6/05, avoiding sun & lights, Benicar 11/14/05, Phase I 12/16/05, Phase II 4/4/06, Phase III 12/1/06. Norco, Klonopin, Levoxyl, Prempro, Wellbutrin.

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Wed Feb 28th, 2007 14:02
Scarab: Sarcoidosis: Noting improvements 

Member in Phase 3


I have not done any gardening for over a year but up at 3 am and gardened for 2 hours then did some pretty heavy work around the house.

This is looking pretty good to me. 
No insomnia, high energy levels (for me), clear mind, ability to walk further and a feeling that I have my body back. oh how wonderful to get a taste of the future.
 
-feeling well.  -I am sleeping very well. -I went out to a meeting for 1.5 hrs in light. -Did all the shopping etc. – cleaned the whole house.


May 2007:
I was terrified before embarking on the MP.  I had lots of issues about antibiotics. Starting the protocol was the best thing I ever did for myself and other members of my family who are also very sick and getting on the MP.

I am returning to my office to work next week so that’s a big milestone. I only work 3 days a week and hopefully will have all the windows covered by then.  We will see how we go.  I feel very ready for this as I find I need my NoIRs less and less in order to see in my home or even when using the computer now.

I feel so indebted to Trevor, Barb and all other MPers whose skills and experiences have guided me here to where I am today. This time last year I was unable to see, breathe properly or perform minor tasks.  My memory was just that  - a memory and I was sick and fatigued. I really thought my life was over.  Well I have it back in 9 mths of the MP.

see also
Scarab: Alex: my return to work- MP success story.
__________________
Alex: Diag sarcoidosis Aug 2006, breathing difficulties, vision problems,sinus, IBS, etc. Avoiding light & D foods 09/08/06 Wearing NoIRs 25/08/06, 25D:20ng/ml - 1,25-D:57.5 pg/ml taken 21/08/06. 25D:8.4ng/ml taken 1/11/06. Started benicar 05/09/06 40mg q6h. Phase 3 1st Mar 07

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Fri Mar 2nd, 2007 06:26
alayne: I have been reminded that I was also getting a lot of white areas on my skin in the years pre-MP. I see that many of the spots have disappeared!



Member in Phase 2

They were smallish dots (mixed with some bigger ones) that were slowly spreading over my arms, hands, back, and legs. I guess I just got used to them and forgot about it.

However, I just checked my skin out under a bright lamp and see that many of the spots have disappeared! The biggest ones are still there, but aren't as pure white. The smaller ones are definitely diminished or gone, especially on my arms and back.

In fact, I had a huge months long rash/acne on my back after starting the MP and the white skin areas disappeared totally, being replaced with some darker pigment from the rash. That rash has finally settled, and the darker areas are slowly lightening up.

Alayne posture, healing.
Alayne Summary of Improvements
Alayne mix of improvements
The Panel on Recovery 
_____________________
Alayne: ME/CFS/FM 6/05:25D-34 1,25D-69 Dec:25D-22 1,25D-44 9/06:25D-7, Sick 6-11 mos/yr x 20+yrs. Sleep dysf, Neuro probs, Pos for EBV, CMV, C Pneu, Myco Pneu. Body quit in 05. NoIRs, 9/28/05-Avoid Sun/D, 11/17/05-Beni, 12/02-Ph1, 5/8/06-Mod Ph2, 12/2-#2 Mod Ph2

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Fri Mar 2nd, 2007 07:08
Carol: RA new update Phase three

Wytnez Sarcoidosis: new update - Phase 3

VEZ Progress

Knochen cruising along skin resolutions

Pam's Progress MCS, CFS/ ME

Jeannine: CFS FM Lyme Morgellons: update - brain clearing.

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Mon Mar 5th, 2007 19:11
DMiller: experience of throat involvement.

Member in Phase 3

For several years, pre MP, I felt like I had something stuck in my throat and when I swallowed it was an effort to get passed that spot. Shortly after I started the MP my voice became chronically hoarse for a month or longer. That went away and now I'm hoarse very infrequently.

Also, one morning in late phase I or early phase II I woke up with an extremely sore throat, probably the worst I have ever had. I thought for sure it was strep and I was going to make an appt with my doctor to get it checked out, but about 6 hours later it went away as quickly as it had come. And sometime during phase II the feeling of "something stuck in my throat" went away and has not returned.

see also Migsies: throat
DThomas Debra: Voice

========================

May 2007: DMiller:
I was diagnosed with sarc in July 2005 and have been on the MP since Nov 2005. I had several health issues which I didn't associate with sarc. But, lo and behold, they have cleared up while on the MP.

For example, for years I had the feeling of something stuck in my throat, especially when swallowing. That's gone. I often felt like my ears where "clogged up" even though my doctor would say they look clear to her. That feeling is gone. My sinuses used to bother me quite often. Now they rarely act up. I always sufferred from springtime pollen allergies, but not this year. I also had what I thought was chronic athletes' feet that would not clear up with the standard treatments. That has gone away too.

I have lost 15 pounds in the past 6 months even though I eat as much as, if not more than, I used to and I haven't exercised at all in the past 2 years. My metabolism has probably adjusted in the right direction.

So the MP is the place to be.

__________________
Don: Sarc-Lungs dx Jul 05; DVTs, Factor 5 Leiden deficiency dx Aug 2000; coumadin 6mg/day; Sep05: 1,25D=56; 25D=19; NoIRs and trying to avoid D. Started MP 11/4/05; Benicar 40mg q6h; Started mino 11/11/05; Phase 2: 1/9/06; Apr06: 25D=6; Phase 3: 6/22/06

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Mon Mar 5th, 2007 21:25
Elijuh: I have wonderful news!
Get this!  My severe Raynaud's is retreating already!

I have been on Benicar for two weeks now and started the Minocycline two days ago 2/26/07. 

I am so excited about this!  I normally have to wear gloves 24/7 but I have been able to pull them off for a few minutes and even up to an hour and not have my hands turn blue.  Some of my lesions look as if they are trying to heal a little.  I am typing now with no gloves.  I have been in the gloves....even in 90 degree heat... for over two years.  I noticed this 12 hours after my first dose of Minocin. YAY!!!!!

So these are my first little baby steps following the yellow brick road....there's no place like home.

5 days later:
My Raynaud's is still retreating.  I've had my 4th dose of Mino and at the moment I'm typing sans gloves....again.  It is a very pleasant sensation. I know this is working.

The Raynaud's aspect is particularly interesting to me because some of my friends who are on 200 mg of Mino bid (as I used to be!)say that the raynaud's is the last symptom to go.  I find it odd that it is the first truly noticeable one that is resolving  for me.  I am thrilled. Thanks for all your hard work. Truly.

another 4 days:
I went to see the local "MP" doc yesterday and he was very excited to see my weight gain and my hands.  He noted the flexion issues in my hands are almost completely gone.  I had slight sclerodactyl in both hands.  I can now bend my fingers backward. It feels a little tight but that's all.

___________________
Elijuh: CFIDS dx 1984, Diffuse Scleroderma dx 6/21/05, SLE dx 01/10/06, RA, Late Stage Chronic Lyme dx 7/06, FM, severe Raynaud's,meds Cleocin iv 15 days 7/05, Mino 100 mg BID 7/30/05, stopped Mino to do Lyme treatment 11/22/06, stopped Lyme IV to do MP 1

Aussie Barb
Research Team


Joined: Sun Sep 10th, 2006
Location:  
Posts: 387
Status:  Offline
 Posted: Tue Mar 6th, 2007 05:35
Christina: RA: I feel I have come a long way from the first several months.  I have definitely learned how to control the immunopathology, disease symptoms, and I have learned how to progress through the process.



Member in Phase 2

TODAY IS A GOOD DAY!

Not only do I feel relatively good today arthritically and otherwise but today marks my FIRST ANNIVERSARY of starting the MP. 

There were a few days last week that I only needed to take one darvocet all day.  And most other days only required two.  That is a good thing. 

I've been seeing a chiropractor for my back/neck/jaw pain and it has helped a great deal.  I am now able to turn my head much better and my thoracic back pain is lessened.  I am able to open my mouth wider now.  Overall I feel I am 55% to 60% better than when I started.  I still have some work to do.

I want to take a moment to thank everyone who has given me encouraging posts, words of wisdom and helped me figure this thing out.  I wouldn't be here if it weren't for my RA buds - Carol, Ival, John and Amy.  I also appreciate all the others who have chimed in from time to time as each and every response has helped me tremendously.  I have always had gentle reminders that this the only hope for a real cure.  Others are "treatments" that only make things worse when they wear off.

It is amazing to me that all of this support and invaluable knowledge is free of charge with no sales pitch, no ulterior motives and nothing to gain by my participation.  I am proud of being part of something so monumental, so revolutionary, so genuinely altruistic. 

Here's to the next year of the MP!  Cheers!  :D

June 07:
I have been very busy living life which has been wonderful.  I still have to take it slow and I still have to sleep A LOT but the joint pain isn't so overwhelming these days.

I had a REALLY nice visit from my MP RA pal, Carol who came through St. Louie last week.  We had such a nice time and it was so wonderful to see her feeling better.  We both believe we are doing so much better and are definitely on the road to recovery.  It was nice to have great conversation and not feel like we had to talk about the disease the whole time.  At least for me it was kinda like it's a lesser part of our lives now so we had much more important and interesting things to talk about like our ACTIVITIES!   How great is that?!

Christina

July 2007: A note from an independent observer…..

On our trip west last month Phil and I stopped in St Louis and had dinner with Christina and her husband Matt. This was my second visit with Christina.  We first met in the summer of 2006, on another trip through St Louis.

I was just thrilled to see her last month.  It was unmistakable that she was much improved. I could look at her face and see that she was in less pain.  She was clearly more able to get in and out of the car, up and down from a seated position and use her hands. She was all dressed up and looked beautiful. There is no question Christina is recovering :cool:. Carol.

see also
Christina re JRA: personal experience.
Christina personal experience
Christina: food sensitivities lessening. very active. recovering more quickly.
__________________
Christina: Age 35; Sero-neg RA 21 years; started MP 3-5-06; On 12-20-05: 25D=28, 125D=28; On 4-12-06: 25D=12, 125D=28; On 12-23-06: 25D=9; osteopenia from pred overuse; took all DMARDs w/no success; started Mod Ph2 8-5-06


 Current time is 00:03
Page:  First Page Previous Page  ...  7  8  9  10  11  12  13  14  15  16  17  ...  Next Page Last Page  



* We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you

Powered by WowBB 1.7 - Entire site Copyright © 2004-2007 Autoimmunity Research Foundation, All Rights Reserved
Click here to view our PRIVACY POLICY
Page processed in 0.1764 seconds (20% database + 80% PHP). 35 queries executed.