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Posted: Fri Sep 15th, 2006 19:56 |
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What are the latest recommendations regarding sun exposure?
Our membership has consisted mainly of folks who have been desperately ill for years and searching the Internet for an answer. These folks usually also have a history of photosensitivity or have sensed the palliative effects of the sun.
Increasingly, we are approached by folks who are not very symptomatic or photosensitive. Perhaps a family member or friend has told them about the MP and they wonder if it could enhance their health too. Doctors wonder if diligently avoiding sun exposure applies to all their Th1 patients.
We are also contacted by folks who cannot avoid sun exposure because they must work. And some people, despite apparent Th1 inflammation, will not give up activities that involve sun exposure.
There have been members on the MP who've had considerable sun exposure and still made progress. Some have tolerated significant sun exposure symptoms yet persisted.
Now that the MP is becoming better known, we need to encourage anyone who thinks it might help them, to try it regardless of their intentions relative to sun exposure.
Some will do just fine because their disease is not well advanced. Others will tolerate increased symptoms periodically in order to maintain a more normal lifestyle.
Some will be delightfully surprised that they are not photosensitive and others will be disapppointed to find that they are more photosensitive than they'd like. It's a very individual thing. But we know now that it's important for folks to have that trial with the MP and find out for themselves. The effects of the sun will be self-limiting and may even force some difficult choices due to a new awareness.
Our desire to promote the Marshall Protocol to a more mainstream membership of less severely ill will also enhance its appeal among general practitioners. It is difficult for them to dictate this major change in lifestyle to each of their patients who shows symptoms of Th1 iflammation. The reality is that many of these patients may do just fine on the MP while getting sun exposure and those who don't will find that out too.
Dr Marshall wrote:
"The photosensitivity is not due to the medications, it is part of the healing process.
If you see photos of me from the period 1987-1999, a decade before the MP, when I was taking no medication whatsoever, you will see me with those 98% Zeiss glasses which I had to wear everywhere.
Once you start cutting the Vit D so that your immune system can start functioning properly again, the photosensitivity sets in, and it will stay for 6-24 months, gradually decreasing as you progress on the MP.
As you recover you will get to the point where you can't see anything through those dark glasses any more  " <<
The following bullet points provide a simple explanation of our latest thinking regarding photosensitivity:
-Abnormal sensitivity to sunlight and bright lights is known as photosensitivity.
-Photosensitivity is the amount to which a person reacts upon receiving photons of light.
-Photosensitivity is caused by sun exposure to skin and sunlight or bright lights exposure to the eyes.
-Sunlight falling on skin may cause an excess production of 1,25-D in persons with Th1 disease.
-Sunlight or bright light falling on the eyes primarily causes stimulation of the brain (amygdala) resulting in neurological symptoms.
-Exposure to sunlight and/or bright lights in photosensitive person can lead to flares of internal disease activity, including exacerbation of any inflammatory disease symptoms.
-Photosensitivity is due to Th1 inflammatory disease.
-Photosensitivity may be exacerbated by the healing process.
-Persons who are photosensitive prior to the MP will likely become more photosensitive on the MP.
-Persons who have no signs of photosensitivity may or may not become photosensitive on the MP.
-Persons with limited inflammatory symptoms (suggesting early disease) are the most likely to be able to tolerate sun exposure while on the MP.
-Sun exposure will not stop bacterial killing while on the MP, but progress may be slowed if either 25-D or 1,25-D are elevated by sun exposure enough to inhibit immune function.
-The amount of acceptable sun exposure will be based on individual tolerance of photosensitivity symptoms.
-The combination of immune system reaction symptoms and symptoms due to sun exposure may be too difficult to tolerate.
-Folks need to learn to differentiate between symptoms due to sun exposure and immune system reaction symptoms. When in doubt, they should assume the symptoms are due to sun exposure and reduce sun exposure if symptoms are serious, i.e. cardiac in nature.
-Folks with pre-MP levels of 1,25-D higher than 45pg/ml, those who have osteoporosis or may be at risk for osteoporosis, and those who didn't assess their 1,25-D should consider that sun exposure may increase 1,25-D to levels that promote bone resorption. They should weigh the risk/benefit ratio of sun exposure vs their need or desire to expose themselves to the sun.
-The best protection from sun exposure is provided by dark, tightly-woven clothing and sunglasses that prevent all types of radiation from reaching the eyes.
-Ketoconazole 2% cream and zinc oxide sunscreen may provide some protection to reduce symptoms from sun exposure.
-Use of K cream and zinc oxide sunscreen is best limited to skin that is unavoidably exposed.
-Extremely photosensitive persons may find it helpful to apply K cream and/or zinc oxide sunscreen under their clothes for their infrequent, unavoidable sun exposure excursions.
-Those who use K-cream or zinc oxide sunscreen on a regular basis should be aware there is no clear safety data regarding long-term, extensive use of these products.
-Experimentation with sun exposure and K-cream and/or zinc oxide is encouraged during all phases of the MP but should be done cautiously, and extra caution should be used if your illness is severe. The symptoms and timing of your photosensitivity reaction may change over time on the MP and this should be taken into account (eg, you might have more of a delayed and longer lasting response later in the MP, for instance).
-You will not be able to evaluate your photosensitivity until you get your D-metabolites down into a normal range.
-Stopping the Marshall Protocol will not eliminate photosensitivity. To avoid symptoms, the previously needed level of sun avoidance must be practiced while on an MP break.
-A less-than-ideal compliance with sun avoidance will be better than no MP for many folks who cannot or will not change their lifestyle to avoid the sun.
-Intolerable symptoms resulting from sun exposure should be treated using the guidelines for cardiac immunopathology and/or the runaway immune system reaction.
-Photosensitivity lessens as inflammation resolves on the MP.
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For more indepth explanations, please see:
Photosensitivity During Recovery from Th1 Inflammatory Disease
THE EFFECT OF SUNLIGHT/DAYLIGHT AND BRIGHT LIGHTS
The effect of light on the brain (amygdala)
AVOIDING SUNLIGHT and BRIGHT LIGHTS
INCIDENT RADIATION TUTORIAL
PROTECTING YOUR EYES
Testimonials to the need to avoid light
CELL WALL DEFICIENT BACTERIA AND THE MARSHALL PROTOCOL
Sunscreen Overview -- Updated Feb. 24, 2008
How does ketoconazole cream work?
Last edited on Sat Mar 1st, 2008 01:24 by
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