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Chris' questions
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cdimambro75
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 Posted: Mon Nov 6th, 2006 16:38

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I was diagnosed with sarcoidosis two years ago, I haven't seen any signs of it since. I was told it was caught in the very early stages. It was affecting my lungs. I am curious to know if the use of HGH would have an adverse effect to my sarcoidosis. I have been working out doing alot of cardio work and my lung capacity has increased over the past two years.

I guess what i want to know is could the use of hgh be very harmful to my sarcoidosis if taken between 1 and 4 iu's daily five days per week for a four to six month period. thank you for your help.

the hgh i have been using is somatropin injected subcutaniously none of the oral spray stuff. It is perscribed. i didn't know if there were any cases of hgh having adverse affects on sarcoidosis patients. I feel as though if i can increase my lean muscle and reduce my body fat also reducing my overall weight will keep the condition (sarcoidosis) at bay. the only reasons i have chosen to use hgh is because i have had an impossible time losing weight. As i said before the amounts i am using is pretty minimal one to four iu's a day five days on and two days off.

Chris



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chris dimambro
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 Posted: Mon Nov 6th, 2006 19:07

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Chris,
Welcome to the marshallprotocol website. You have chosen your first post to be a good reminder topic for many of us, and I hope you will take some time in the Required Reading section as well as this link on Avoiding Hormone Supplements.

I found a site actually selling HGH (no link given for obvious reasons) that had this interesting HGH side effects information:

"...why the injections should be only taken as a last resort and should only be used on the advice and management of a qualified physician.

One possible side effect of taking the HGH injections is the patient's pituitary gland becoming lazy. The injections provide the body with a full dose of human growth hormone so the pituitary gland will not need to release as much of its own real HGH.

Other possible side effects:
Acromegaly,
Edema and Fluid Retention,
Liver Damage,
Carpal Tunnel Syndrome,
Painful Joints,
Gynecomastia (enlarged breasts in males)

Acromegaly is a dangerous disease with increased incidence of heart attack and death. Other side effects such as fluid retention and carpal tunnel syndrome have also been seen when large doses of the injections were taken."

Your report of Sarcoidosis going away is quite common misinformation after a lung event. Some doctors still tell their patients the disease goes into spontaneous remission, even though the 2003 NIH/NHLBI ACCESS study reveals the true bacterial nature of this systemic, chronic, and killer Th1 disease (average life expectancy after diagnosis is 8-22 years). 

I had wanted so much to believed my Sarc would go away too... for a few years I thought I would not be someone with the chronic version, then like you, I started compensating around the rough edges of my health because the disease was still there. Others here who started with Sarc have had similar dashed hopes before they made it here to get well.  

You might stop and think if your systemic disease really has gone away, why are you doing HGH? This requires some recognition that well people have no need to embrace HGH.

Stay, fill in the REQUIRED SIGNATURE LINE, and get well--Janet



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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
paulalbert
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 Posted: Mon Nov 6th, 2006 19:37

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Chris,

I agree with Janet. There are much safer ways to lose weight than using HGH.

Furthermore, it is definitely NOT a good idea within the specific context of the MP. And I would advise you not to rely on subjective feelings of wellness as a way of determining progress. Around here, you have to feel bad to feel good.

Re: weight control... Have you considered doing some anaerobic work? Is your diet under control? Do you eat late? Do you limit your intake of sugar?

If you are/were on prednisone, discontinuation of that steroid has allowed a number of us to drop pounds.

Paul

Last edited on Mon Nov 6th, 2006 19:39 by paulalbert



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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
cdimambro75
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 Posted: Tue Nov 7th, 2006 00:51

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paul,

thank you for your input.  I am not in denial about my condition but i do want to put myself in the best shape i possibly can, i have always been in great shape up until a couple of years ago and i have alot of knowledge when it comes to exercise and weight loss.  I have hit a wall.  I work out one to two hours a day with cardio taking up half of the time and circuit training with a personal trainer.  I know that my condition is effecting my weight loss or lack of.  I understand the side effects of taking HGH but i am trying to weigh the risks vs. rewards as far as quality of life.  I weigh 290 lbs. now and was always 225 lbs. and in great shape, i didn't take good care of myself as far as diet and exercise,(partying much to much).  Haven't been able to get it back.  The amount of HGH i would be taking wouldn't be enough to suppress my pituitary gland and would only be taken for as much as six months.  What i am trying to find out is if HGH could worsen my condition?   

with regard to my condition, i don't feel the symptoms such as achy fingers and toes and shortness of breath like i did when i was diagnosed.  I feel like i am caught between a rock and a hard place.  Let me know what your thoughts are.

Thank you,

Chris



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chris dimambro
paulalbert
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 Posted: Tue Nov 7th, 2006 01:14

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Chris,

Your weight definitely puts you in a tough spot. The issues about joint pain and other near-term changes are not insignificant, but I was thinking more about long-term unintended consequences.

When you talk about HGH not suppressing your pituarity, how do you know? The MP science is pretty solid-- but when you talk about the MP in conjunction with an anabolic agent, who knows what will happen? Unless I am a world-class biomedical researcher, I would hesitate to take my own word for it on such matters.

I think I share your sentiment that the good things in life are worth taking a risk for. But, I really don't see why even before starting the MP you need to take this kind of risk.

Have you read, for example, that a number of people (such as myself) LOST weight on the MP? Trevor is one. As for me, I barely had any extra body mass to give and I lost 10% of my it fourteen months into the MP. Furthermore, within days of starting the Benicar, I lost my craving for sugar almost entirely. Your results may vary, of course.

My point is, give the MP a shot, and then see what happens. Keep up with the exercise. Watch what you eat. Get a lot of sleep.

Are you good about portion control?

Paul

Last edited on Tue Nov 7th, 2006 01:18 by paulalbert



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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
wytnez
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 Posted: Tue Nov 7th, 2006 01:34

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Hi Chris,

Welcome to the MP.  You never said whether or not you presently or in the past had taken prednisone to treat the sarcoidosis.  It seems to me with such a drastic increase in weight, (225lbs to 290lbs) that the prednisone would surely be the cause.  Are you taking prednisone or any immunosuppressants?  If not then maybe you could try a low glycemic (good carbs) high protein diet in addition to your cardio workouts.  We do know that sugar feeds the bacteria that causes sarcoid so you really want to avoid refined sugars, breads, cakes, pasta etc. You also want to eliminate vitamin D and any foods that contain vitamin D from your diet.  You certainly don't need to suppress your immune system with supplemental or dietary hormones such as vitamin D.  (Yes there is new evidence that isn't so new that vitamin D is a hormone).

I never took prednisone and I am eating a low carb diet and exercising and I have lost 23lbs.  I had gained because of lack of activity and a lot of emotional eating after my diagnosis.  You have one great thing going for you and that is you are working out.  Another great thing is that you have found the MP.  But there are a lot of factors that need to be in place to be successful on the MP.  You have to decide if you want to get rid of the bacteria because believe me, diet and exercise is not going to get rid of sarcoid or keep it at bay.  You may not have any symptoms now but they will surely return and with a vengence.

We are all here to help you recover as we are recovering ourselves.  Keep us posted when you find a physician to treat you.  Read the success stories and the progress reports.  Take good care.

Saj



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sarc lymph nodes. ph1 1/05,125D 33,25D 10,ph2 5/05,ph3 12/05,125D 21, 25D less than 7
wwspic36
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 Posted: Tue Nov 7th, 2006 03:37

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I worked out every other day to feel better.  If fact I couldn't function if I didn't workout.  I lifted weights, went to aerobics, went to yoga, went to spinning classes, etc.  I made myself do it.  

When I got sicker I continued to workout harder to get better.  It worked for awhile.  When I started the MP, I had gained weight, in fact, up to 218 lbs.  I started walking after dark and not working out every other day.  Guess what, I lost weight.  I'm now at 192 lbs.  I feel better on the MP.  I don't have to compulsively workout to feel better. 

Now I go to a spinning class that is in the dark at my gym.  I also go to a yoga class in the dark at another gym.  I workout with free weights and machines once a week at yet another gym with a dark corner.  I do it when I feel I want to and not because I have to.  I'm I lot healthier, and I'm a lot happier.    



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Fatique, headaches, hives, flush skin, sore muscles & joints 125D44 MP1Jul04 Ph2Aug04 Ph3Jul06 NoIRs lite exp r/t to commute covered 25D13Jul07
Gary
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 Posted: Tue Nov 7th, 2006 13:37

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Chris -

We often use the phrase "health and fitness" as though the two were somehow the same.   They are different.   Health is the absence of disease, and fitness is a level of physical ability.   You can be healthy but not fit (most of us who are sick would love being in this condition), but you cannot be fit without being healthy.  For TH1, the level of your disease will put a limit on your level of fitness, no matter how much you work out (been there).   And that limit will get lower and lower over the years as you get sicker - as you will.

Since we use the phrase "health and fitness" so much, I guess we shouldn't be surprised that folks assume they are interchangeable.   Some of us have been blamed for being sick because we didn't exercise enough, ate the wrong food, or participated in certain vices.  Of course that is just due to the ignorance of the folks who are trying to help, but didn't know the root cause of the problem was bacteria, not behavior.    Fitness cannot cure chronic infection.

Your attempts to get fit without first becoming healthy are doomed to disappoint you, and will in fact waste valuable time needed to kill the bacteria that are keeping you from becoming healthy, and thus keeping you from becoming fit.

Once you start killing those bacteria, exercise will not be your top priority, the herxheimer reactions will show you how sick you are, and you'll just want to kill the bacteria.   After about three years of killing bacteria you will begin to want to exercise again (thats where I am) and you will find it easy and that it does result in fitness.

Gary
Gary eyesight improvement
Gary: Sarcoidosis: Phase 3 Progress
Gary functioning and productive, mentally and physically.



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Sarcoidosis/neuro, lymph, eyes, fatigue, liver, kidney Ph1May04 Ph2Aug04 Ph3Dec04. 25D<4 Mar05 Cover & NOIR in sun ~45 min/day No nonMP meds

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