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egalo
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Posted: Sun Feb 25th, 2007 19:53 |
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I am researching the MP while I am currently being trreated for RA (and FM). I would like to know if guaifenesin, which I take for FM, and brewer's yeart, which I have taken for 30 years, (helps my moods, prevents depression) are allowed.
Thank you.
EG
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egalo
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Posted: Sun Feb 25th, 2007 19:55 |
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Whoops, I meant Brewers' Yeast (not years...)
EGALO
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Aussie Barb
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Posted: Sun Feb 25th, 2007 21:56 |
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Egalo
Welcome to MP.com and Thank you for posting, and for filling your signature line..
ARTHRITIS and Th1 inflammation has links to Member experiences
I note that you are on a number of meds and supplements.. I will post the links to the Information here for you..
Why do I have to stop taking supplements? The aim or the key is for you to achieve and maintain tolerable symptoms (physically, mentally, and emotionally) by adjustment of your meds dosing and schedule as suited individually to you within the guidelines. You may be surprised at how you are able to let go of supplements and use the MP meds.
Unnecessary dietary supplementation and OTC medications are to be avoided because we cannot know how they might interact with the medications on the Marshall Protocol, or how they might affect the immune system. (PHASE ONE GUIDELINE)
Why should I avoid hormone supplementation? The FAQ explains for your information, the effect on your immune system.. but also explains that
If you have intolerable symptoms of a hormone deficiency and your doctor orders supplementation, standard doses of hormone medication will probably not interfere with the immune system. It will be advantageous to wean off this supplementation as soon as symptoms allow.
Should I stop taking any of my medications?
Enbrel
PAIN CONTROL If your Dr has determined your pain medication is safe for you to take, it is not contraindicated on the MP..
Checklist: basic links for MP
ABC of MP in my sig line: Links to all Essential Information under Alphabetized headings.
Let us know if you have any questions.. all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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egalo
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Posted: Mon Feb 26th, 2007 19:07 |
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| Thanks Barb. Now I understand why a) Caltrate w/D made bone density worse. b) vitamins & sun don't make me feel better any more. Have dropped multivit & D, got out my sunglasses, feel less stressed. HRT is at 1/2 dose. If I feel better, might not need it. Hope to talk w/dr soon after looking at DVD pack. Will look into NoIR glasses. Cheers, Ellen
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Christina
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Posted: Fri Mar 2nd, 2007 03:57 |
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Hi Egalo,
I used to take many supplements before I started the MP and I progressively got worse. I don't take any supplements anymore (except probiotics) and I've been getting better. I think they like us to not "muddy the waters" with extra variables as they can modulate the immune system and it makes it harder to feel the immunopathology accurately. With only the MP meds the variables are minimized and it is easier to tell what is making you herx. For palliative effect I take frequent minocycline which really helps my RA symptoms and allows me to really control the immunopathology that results from pulsed antibiotics. feel free to contact me and I can tell you about my experience.
Christina
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Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
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egalo
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Posted: Fri Mar 2nd, 2007 13:41 |
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Hi Christina,
Thanks so much, I was hoping to get feedback from someone else with RA. My RA is not only positive for RF but also positive for anti-CCP antibodies("aggressive"). My biggest concern in switching treatments is: if I had wrist damage within a couple of months of diagnosis, before going on meds, how can I wait "a couple of years" (3?) for the MP to work? I understand about the supplements and will probably be dropping most of them anyway, because some have done more harm than good. I also have "osteopenia" which current articles say, is NOT a "condition" and drs have over-reacted to. When I added D, my bone loss rate got WORSE. I'm not taking the Calcium most of the time, but may need to find magnesium/zinc still - not sure. I can't take any of the traditional DMARDS because my liver jumps up, even with some NSAIDS. Enbrel definitely helps, (Yes, I know the risks and don't like it), but not enough by itself, and the little bit of Celebrex I take (which DOES help, but also is starting to mess up my stomach) is wearing out its welcome, even at the low, paced dose. Due to FM, I seem to be developing sensitivities I didn't have before - like to celphalosporin antibiotics. (I read the MP may help with allergies - didn't used to have ANY!) Already allergic to Levaquin (fluoroquinolones). Antibiotics tend to do a number on my stomach after about 10 days. Don't know how I would react to minocin, but may have to try it, because I may run out of other options. Have not talked with my doctor yet... getting ready to do that.
Did your bone density improve at all? Or at least slow down the loss?
Thanks for your help and support, I really appreciate it!
Ellen
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egalo
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Posted: Fri Mar 2nd, 2007 14:36 |
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P.S. How does one send in a picture to the forum?
Ellen
Moderator note: AVATARS
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egalo
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Posted: Fri Mar 2nd, 2007 14:45 |
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Oh - maybe as attachment? I will try that.... nice to see whom is replying...
Ellen
Moderators' note: The attachment feature of this site is not set up for member's use.
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Posted: Fri Mar 2nd, 2007 17:42 |
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Antibodies are not the cause of the disease state, they are a by-product of the key inflammatory process. Hence the concept of 'autoimmunity' is meaningless.
..Trevor..
The following papers will provide all the info you and your doctor need to know about osteopenia:
Don't I need vitamin D to prevent bone loss?
What does my bone density test mean?
My 25-D is low and/or my 1,25-D is high. Should I be concerned about osteoporosis?
The Importance of Reducing 25-D
Marshall TG: VDR Nuclear Receptor Competence is the Key to Recovery from Chronic Inflammatory and Autoimmune Disease. Abstract presentation, Days of molecular medicine, 2006.
Copy available from URL http://autoimmunityresearch.org/karolinska-handout.pdf
Don't I need to take a calcium supplement?
Calcium Fact Sheet
Osteoporosis, osteopenia and Th1 illness
In the new 2006 medical textbook titled Vitamin D: New Research, published by Nova, you will find a chapter written by Waterhouse JC, Marshall TG, Fenter B, Mangin M, Blaney G on High levels of active 1,25-dihydroxyvitamin D despite low levels of the 25-hydroxyvitamin D precursor - Implications of dysregulated vitamin D for diagnosis and treatment of Chronic Disease A copy of the chapter can be found at this Internet address:
http://winmlm.neostrada.pl/vitamindbook/vitamindnewresearch.pdf
Why are so many doctors ordering vitamin D supplementation?
The backbone antibiotic of the MP is minocycline (Minocin) but it is not used as a DMARD. It is pulsed at low doses to help your immune system kill the intracellular bacteria. The Benicar blockade will provide the protection you need against further joint damage.
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carol
Moderator
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Posted: Sat Mar 3rd, 2007 06:12 |
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egalo wrote: Did your bone density improve at all? Or at least slow down the loss?
Hi Ellen:
I also have RA and have been on the MP for 2 and a half years. I recently posted about my bone density test results in the Phase 1 Alumni Forum. You can read the details there. Anyway, in a nutshell, my recent BMD test showed numerical increases when compared to one I had several years before starting the MP.
This is the right treatment for RA  .
Carol
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rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
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Ival
Moderator
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Posted: Thu Mar 8th, 2007 06:39 |
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Hi egalo
Everybody with rheumatoid arthritis that is on the MP has had different readings on their blood work. So I don’t think you should really be concerned about your blood work because we are all recovering.
You ask a very good question how can I wait three years for the MP to work. If you would have ask me that question in the middle of phase two I would have told you that I was probably going to lose my hips and my right knee before I recover. But now two years into my recovery the benicar has seemed to have protected my joints somehow. All the pain is gone and my hips and right knee seemed to have made close to a total recovery.
I know I have watched my skin get sores similar to Sarcoidosis and then totally recover. I assume the same similar thing is happening in the joints. I cannot say for sure that will happen to anybody else but that has been my experience.
I definitely agree with Carol this is the answer for RA.
Ival
Interview with Ival Meyer - arthritis, dyslexia
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MP 4/12/05/Benicar Q6h Ph1 4/26/05/ 25D13ngml 125D44pgml Ph2/6/1/05 Ph3/1/25/06 diag RA 2001 Male 47
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Christina
Member in Phase 3
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Posted: Fri Mar 9th, 2007 05:36 |
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Meg Mangin R.N. wrote: Antibodies are not the cause of the disease state, they are a by-product of the key inflammatory process. Hence the concept of 'autoimmunity' is meaningless.
..Trevor..
Hi Egalo,
I agree with this statement 100%. You can ask any of the RA folks and they will agree I have the most damage from RA than anyone and I have never tested positive for rheumatoid factor or anti-CCP; therefore, my experience proves that one can have severe RA and not even test positive for it. In my opinion my experience pretty much discounts any relevance to any type of "RA test".
To answer your question about bone mass, I have not had it retaken since I've started the MP (a year ago) because I know it takes a few years to really make any difference. In the past I took high amounts of calcium, magnesium and vitamin D ALONG WITH Actonel to build up the bone mass and it made absolutely no difference.
In regard to your question about damage to the joints, I can not say unequivocally that I have or haven't incurred damage since beginning the MP because I am still herxing which makes it difficult to tell the difference between true damage and just plain inflammation. I do expect that once the disease has been eradicated my body will heal itself just like it would in a "normal" person. The major factor is getting the bacteria out of the joints so the body can regenerate the tissues. That is what I am counting on the MP to do for me.
Believe me, I understand your worry. Remicade worked pretty well for me for about a year (to year and a half) and when it finally quit working I found I was infected in more joints than I was before I started. Enbrel/Remicade/Humira/Kineret/Abatacept/Rituximab etc, etc, etc will all get you in the same boat......eventually.
I'm glad you have found the MP.
Christina
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Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
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egalo
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Posted: Fri Mar 9th, 2007 13:56 |
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Hi - got a script from my GP to get the D tests! BTW, just to be clear, I never said the anti-CCP antibodies were CAUSING the problem, they are simply a sign of abnormal proteins (cyclic citrullinated proteins) that show up in the joints of people with this type of RA. It's well know that some people with RF (35 % or so) DON'T have RA and vice versa. I know one person with psoriatic arthritis whom my own doctor wouldn't treat because all her "tests" were "normal". She got another doctor (arthritic himself) to prescribe her methotrexate for the last 20 years. I know that people who have not done well with "standard" treatment of RA often do well on antibiotic treatment - I've read a lot about that. What I'm trying to figure out is, what about people who ARE positive and HAVE done OK, how they do with the switch. I also realize that while the TNF-blockers (Remicade, etc - I have a couple of infusions of Remicade and it was overkill for me) get rid of the inflammation, they also allow the infection to gradually spread (just as cortisone that my grandmother got helped, but caused other problems - she had RA very bad, as did my aunt). This is what is motivating me to research the MP. I've read about Dr. Brown in the earlier part of the century, the "Road Back" and all of that. I know a vet in town here who refused all the immune-suppressing stuff because he works with animals. (Ironically, the Mayo Clinic thinks his RA may have been triggers by a virus from a raccoon bit a year ago.) He told me he is on antibiotics (doxicycline) & homeopathic med &, but i haven't been able to follow up with him since I started looking at the MP to find out who is prescribing for him. He's most likely not on the MP but might like to know about it to check it out.
Thanks for the feedback, every little piece helps!
One other question - does the low dose of abx prevent stomach trouble from abx? I have enough stomach trouble as it is....but if I can get off Celebrex, that would be AWESOME...(along with getting off Enbrel, of course...)
Thanks to you all for your encouragement!
Ellen
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jrfoutin
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Posted: Tue Mar 13th, 2007 00:55 |
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Egalo,
Wow, that's quite the post.
As for all the "sort of" study details and "maybe" protocols, it is probably best for you to look really close at Simple Explanations of the Marshall Protocol, and focus on the phase 1 guidelines to get started. That is the best place to start. Many print out the phase 1 guidelines, make a copy for their doctor, read and re-read, underline pertinent details, write notes in margins and explore links described on the back page.
As for your stomach symptoms, it is common to revisit pre-MP disease symptoms as your as the MP process eradicates pathogens responsible for the initial disease. Do not assume it is the MP that is making you ill. HERX / Immunopathology .... What is it? is a thread that will help you understand better.
Reminder if you haven't already read, re Enbrel see FAQ and link to Meds to avoid Should I stop taking any of my medications? Enbrel is listed as a med to avoid on MP..
Best to you Egalo--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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