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ARF's 2006 Conference - LAX on 17/18 June
 Moderated by: Prof Trevor Marshall Page:  First Page Previous Page  ...  4  5  6  7  8  9  10  11  Next Page Last Page  
 

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wrotek
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 Posted: Sun Jun 18th, 2006 05:42

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Great, Thanks for update :)



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Lyme reflux chronic pain fatigue depression 125D36 Ph1Sep05 Ph2Oct06 Ph3Apr07 in low lux NoIRs 25D<7 Oct06
Julia
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 Posted: Sun Jun 18th, 2006 07:05

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Meg,

Thank you so much for taking the time to keep all of us lonely left-behinds posted.  It sounds like a great conference, and the beginning of tomorrow for chronic disease :):)

Julia

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 Posted: Sun Jun 18th, 2006 07:07

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from Belinda:
Hey everyone! I am in the cafe at the conference hotel, about to have breakfast. I am sure more will be joining our table soon.

We are excited about today's line-up, anticipating as much fun and information as yesterday. I guess someone's already told you how entertaining Dr. Blaney was yesterday, describing Th1 symptomatology. Just as good has been the socializing with everyone. There's nothing like seeing everyone in person.

Last night we had dinner with Prof. Eishi and one of our members from Japan. It was kinda funny when he shared how excited he was to have had his photo taken with the celebrity who had been at the conference

Well, the food is here, so I've gotta go. Wish you were here! Breakast looks great.

Belinda

CelticLadee
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 Posted: Sun Jun 18th, 2006 11:56

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Thank you! Thank you! Thank you!  ... It is so great to hear how things are going at the conference!

Especially exciting for me to hear 35 newbies listening and learning the great benefits of the MP and all. It is so gratifying to know more hurting people have a shot at getting well. :D

Awesome to know other doctors are there listening too! The MP is no doubt spreading! So many things to be thankful for and looking forward to hearing more.

So generous of you to take time to let us not there know what a marvelous time you are having there. I can only imagine how wonderful it is to hang out with so many precious people from this board. You are all very lucky indeed. :D

I cannot wait to order the DVD and learn more!

CelticLadee :dude:

 



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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
scooker48
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 Posted: Sun Jun 18th, 2006 15:10

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 How many people registered for the conference?  How many people attended?

Sherry



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D25, Total: 12 measured 11/3/15 Started MP=01/04/05 Diagnosis: Sarc 12/04; "cat scratch disease" or necrotizing graunulomas 10/88; Raynaud's (diagnosed 1980?)
Alayne
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 Posted: Sun Jun 18th, 2006 23:03

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Hi All! Jacks and I just got home from the conference. It was an AMAZING experience, to say the least! Just meeting other MPers in the flesh and blood, sharing stories, knowledge, and cries of, “Is that you! You look so different than your avatar!” would have made the weekend well worth it. But add to that the many newbies from around the US, doctors (a million kudos to Dr. Blaney – he’s fantastic and hysterically funny), eminent and wonderful docs/scientists (Dr. Alan Cantwell, Prof. Eishi from Japan, and of course, Dr. Marshall), and it was over the top great. Plus, what an absolute pleasure to meet the sweetest women in the world, Meg and Belinda, and experience firsthand what a lovely wife and daughter Dr. Marshall has (Liz and Karen). :)

Obviously so much more happened, but we’re absolutely pooped. I can only imagine how knackered the others are, and many flew home tonight. But the fact that so many of us could moderate our meds and smile and walk our way through this weekend, not to mention understand much of what was going on....well, how great is that? Sure, there was some scientific discussion that flew over my head faster than our local hummingbird, but that was just fine. If I don’t exactly understand all the the ins and outs of ribosomes, I will survive. J

Will post more tomorrow when brain’s refreshed.

All best to all! Alayne



____________________
CFS/FM/Lyme - Health challenged 35+yrs. NoIRs/Zinc oxide. 6/05:25D-34, 1,25D-69; 11/07:25D-8 1,25-37. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3. 4/09-10/09 weaned off abx. 2/12: 25D<14, 3:15-25D<7 1,25D-36
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 Posted: Sun Jun 18th, 2006 23:08

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Hi Everyone,

I tried to post a message earlier from the ballroom of the Hilton but lost my Internet connection. I wanted to tell you how great the sessions were. As expected, the healing session testimonials brought tears to many eyes. Prof. Eishi described his work with p.acne and sarcoidosis. Trevor impressed everyone with his slides explaining how the MP antibiotics are chosen. Joyce Waterhouse gave a detailed, yet easy-to-understand presentation on Vitamin D in chronic disease and how the latest studies link it to cancer.

The Working with your Healthcare and Reaching Out Panelists provided many helpful hints and more testimonials for the MP. Thanks to all who participated.

There was so much valuable information to share that the schedule ran over 2 1/2 hours but no one seemed to mind. And we got it all on tape for those of you who are eager to see the DVDs.

It was tough to say goodbye to so many wonderful 'old' and new friends. The energy in the ballroom and hallway was palpable as folks shared their stories and support.

I'm sure you'll be hearing from many of them.

A special thanks to Jacks for taking professional photos. We will share some online and you should be seeing some new avatars. Also, many thanks to Janet Foutin for her amazing graphic artwork which made the signs, banners and posters that Zach Thompson donated look so professional. Many delegates asked what they could do to help and were put to work in various way to ensure that everything ran smoothly.

This is a high that will last me quite awhile but it's good to be back at the website with all my MP.com family.

Best,

Meg

carol
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 Posted: Sun Jun 18th, 2006 23:24

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Dear Friends:

It’s amazing how much collective energy a bunch of Th1 sufferers can muster under right circumstances.  Wow!

Another highlight of the conference was Joyce Waterhouse’s excellent presentation on “The Vitamins D in Chronic Illness”.  Her explanations were clear and concise and she covered new important information.

The panelists who participated in “what degree of healing is possible”, “working with your healthcare provider” and “letting friends and family know about the MP” were terrific.  Much had happened among our MP membership since the Chicago conference and this was reflected in the insightful comments made by these folks.

Trevor’s talks were the centerpiece of the conference.  No amount of reading about the Marshall Protocol substitutes for hearing it from Dr Marshall himself.


Carol 



____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests: 25-D=32; 1,25-D=65...10/07 entered Phase 5...Xodol daily, Celebrex as needed...last 25-D=7 (5/14)...Benicar 40mg/4 hour, no abx
bookdad
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 Posted: Mon Jun 19th, 2006 05:58

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I can't wait! I can't wait,....did I say I'm a little anxious to see the dvd's???

For those of us who had to stay and hold down the fort, I personally had one of the most fantastic Father's day's ever!!! Thanks to my daughter April who took me into town Saturday to all my favorite bookstores, My daugther Kristina (found after 27 years) calling me Sunday morning and getting to talk with her and my two little sweet grand daughters Soliel and Francesca, and My sweetheart who went all out on the best rib dinner, and my grand daughter Laurelai who kept me busy playing Sunday afternoon. I am full of happiness and content.

Family is what its all about folks and they are my motivation to do the MP. I consider my MP friends as family too! Welcome back, now stop being stingy and share all the details! :D



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Sarcoidosis/lungs RA Ph1Nov05 Ph2Mar06 Ph3Aug06 lite exp r/t to work cover up NoIRs Ph5 Aug 09
Robertrr
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 Posted: Mon Jun 19th, 2006 07:42

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First of all I'd really like to thank Trevor, Meg, Belinda, all the panelist and the guest speakers. This was really a neat conference for me to attend. For those of you who weren't there, let me just tell you that it is very very hard to believe that an all volunteer staff can put on such a professional conference. Kudos to the group!

It is really exciting to look at the last 6-9 months and see everyting that Trevor, et al, have accomplished. In the day to day dealing with Herxing, the magnitude of accomplishment kinda gets lost. I also really appreciated meeting the folks who attended, some of which I've known via the internet for several years such as Fred from West Virginia! I'm not sure how many were there, but all the chairs in a fairly large room were occupied several times during the conference. There were quite a number of folks who are on the MP who attended and to those of you who volunteered to be panelist, Thank you! Each of you did a great job.

The avatars helped me identify "most" of the MP'ers. I got to meet several folks who were looking into the MP and believe me, after this weekend, most of those will have a renewed sense of "I have to find a doctor who can help me".

Dr. Marshall and the other guest speakers were great and I learned a lot. I understand much of that material will be available online fairly soon and I'd urge everyone to go through that material.

Robert



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Sarcoidosis 125D44 25D28 Ph1Jul05 Ph2Sep05 Ph3May06 D25-8(Feb07) May08 NoIRs outside otherwise normal light exposure
aeda007
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 Posted: Mon Jun 19th, 2006 17:16

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All - This was the best experience of my life. I'm pre - MP and attended with my wife. I get to meet Dr. Marshall, Dr. Cantwell, Dr. Blaney, Meg, and many others that I see on the MP website all the time. It was great to meet people you only converse with and it made it so much more personal. The energy generated at this conference and the confidence that I picked up was out of this world. I have been looking for a doctor for a while and had two recommended to me. Marie, Vivi I can't say thank you enough! My hope is that all of you that could not attend but wanted to, can do so next year.

PS - I got to take pictures with the celebrity. Great person and he took the time to discuss his hopes of the MP as well!

-Allen




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Dx=Diabetes 2/94 Sarc 12/96,Meds Actos Glyburide Glucophage. D test-4/17/06. 25D=6, 125,D=37, D Test-7/31/06 25D=5, 125,D=52 Wearing noirs. Started MP 6/29/2006 Benicar only. 7/14/2006 Started Mino.
jcwat101
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 Posted: Mon Jun 19th, 2006 18:23

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I agree that the conference was great fun (loved seeing so many people in person at last, and seeing people I met at the Chicago conference) and I learned a lot. And ditto on the appreciation of Trevor, Liz and Karen and all the volunteers who got everything together.

I also want to thank people who helped me personally with my talk. First, thanks so much to Eurico (Rico) for all the hours he spent preparing my slides (I wasn’t able to use PowerPoint on my computer). He did a great job, plus his doing the slides allowed me to spend more time finding more references and writing and editing my talk. And thanks very much to Janet (jrfoutin), who created the 3 graphical slides (with macrophage, 25D, and kidney and silhouettes to depict patients -- And thanks to all of you who laughed at my joke re the latter slide, "not being actual portraits of patients" -- well, I guess you had to be there :) ).

Thanks also to Meg, who helped in several ways, and Patty and her husband Mike for help making the handouts of the slides and hooking up the laptop. And thanks to all the coauthors on the book chapter (including thanks to Belinda, for all that effort at the library and with the faxing of articles prior to the book chapter).

And of course, thanks to Trevor for making it all possible, not only in providing all the very important insights into vitamin D and answering my questions, but in helping me to get well enough to be able to participate in this wonderful conference.

Sorry everyone couldn’t make it, but hopefully, there will be other opportunities in the future.

Joyce Waterhouse, Ph.D.



____________________
20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.wordpress.com
jrfoutin
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 Posted: Mon Jun 19th, 2006 19:48

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Some things are so hard to put into words. I'm not sure even pictures could explain what I feel or thought, what I felt and think now. The intensity of the event was tangible. The importance of the event in the scientific history of mankind is ... again no words significant enough to describe it.

Meshed and layered in the critical scientific content was this powerful, joyful feeling of human reunion. I met many who have been my safety net, teachers, and support. That was worth attendance for so many reasons.

To be able to tell my children and grandchildren that I was there to see this is important to me, too. It was important to meet all I met and spoke with. Some I was fortunate to have more time with, others I longed for more time. It was an opportunity of a lifetime. Thank you so much. 

I also got to tell Dr Marshall, face to face, "thank you." That meant a lot to me.

Last edited on Mon Jun 19th, 2006 20:52 by jrfoutin



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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
Memoking
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 Posted: Mon Jun 19th, 2006 20:41

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I wasn't able to attend the Conference, due to a lot of important family things that needed to be taken care of, but I am looking forward to purchasing the DVDs as soon as they are available online, and can't wait to see them.
It sounds like a great Conference and a huge success.



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Mary..Sarcoidosis. 1,25D=56..25D=6..Began Benicar 20mg q3hrs..9/4/05. Granulomas in arms, hips,legs. Painful lymph nodes hips, armpits. Pain in chest,back,head. Avoiding sun/bright lights/Vit D. Using NoIRs
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 Posted: Mon Jun 19th, 2006 21:05

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HI,  We have been home for 2 hours now and the "glow" from the conference is still with us.  The gathering and sharing of information combined with the chance to meet the wonderful people that make up the MP family was the greatest experience. It felt like you were seeing old friends rather than meeting folks for the first time. It 's hard to believe how close we felt with our fellow MPers, so many folks just coming up and hugging each other. I really wish everyone one on the board could have been there.  It was so nice meeting the new folks too and we're hoping we hear from them real soon.

The presentations were great. A big thanks to the guests who shared their research, the MP staff who worked so hard to make the conference happen and gave us new insights, and all the panelists who shared their experiences.

Cheers, jill :)and the fisherman:cool:

Reenie
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 Posted: Mon Jun 19th, 2006 23:52

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I didn't think it was possible for this conference to be even better than the first one, since I felt the first one was so very special.  Well, I was mistaken.  This conference was even better and I think one of the highlights for me was to see how much brighter, younger and "weller" (one of my new fav MP-slang words) everyone looked since last year!

If for nothing else than for all of us (MPers) to gather together to see one another, these conferences are WONDERFUL, but they provide so much more than even just that. 

It's hard to quantify what attending an MP conference is like if you've never been able to attend, yet.  I'm so glad I was able to contribute in some small way by helping to "pay forward" what has been and continues to be given to me by Trevor, his family, the medical pros and my fellow MPers. 

Thank you all for allowing me the opportunity to be able to be a part of such a fantastic group of people. :cool::cool::cool: 

VEZ R.N.
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 Posted: Tue Jun 20th, 2006 04:31

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I got home last night at 11PM exhausted from a long flight from LA but renewed with confidence that this protocol is the answer to years of suffering. What a wonderful group of people I had the privilege of meeting this weekend. Dr. Marshall's presentations were fantastic as were Dr's Eishi and Cantwell. I really needed to hear the hard core scientific facts around this protocol and I got EXACTLY what I needed to move ahead. I had the privilege of meeting and talking with Dr's. Cantwell and Eishi and was able to discuss several questions with each of them. I do love the science of this and am convinced this is the only solution for me. The people there.......well there just aren't words to express how caring and willing to share each of them were. "Getting Better" gave a wonderful presentation on how she is getting through the protocol and shared much of her journey...that was a real booster for me. LeAnne and so many others were so friendly and caring and willing to share where they have come from. I wish I had had more time to meet everyone.

Thanks so much for making me feel so welcome and Meg...is just as warm and dear as she is in her postings! I am hopeful I will find a doctor this week to start this...after this conference I realize that I need it YESTERDAY!!!

GOD BLESS ALL..........Warm Regards, VEZ

sunflower
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 Posted: Tue Jun 20th, 2006 05:11

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hi everyone,

well, after sleeping for almost 20 hrs straight (i'm not kidding--i didn't even get up to go potty), i'm ready to post.  the travel,  all of the excitement of meeting everyone, listening very intently to the presentations, and not sleeping well or long at the conference just drained every ounce of energy that i had--but it was so worth it:D!

i want to heartily thank dr marshall, liz, all the staff and everyone who worked so hard to put together such a wonderful experience for all of us.  all of the presentations by the various drs were interesting and informative.  as i mentioned to a couple people at the time, i wish we could clone dr blaney, so we could all have a great doc who is sold on the MP (he is so down to earth and hilarious, too!).

the panel presentations were excellent;  my gratitude goes out to all of you who shared your experiences for our benefit.  the success stories were especially moving--it's absolutely amazing how far some of these folks have come on the MP!  everyone needs to get the dvds to hear their stories.

the hotel was beautiful, comfortable and especially amenable to the needs of us MP'rs.  sharon (my roomie) and i didn't have to leave the hotel the whole weekend, as everything we needed was right there.

my favorite part of the whole trip was meeting so many people from the website. some people i recognized and others i didn't, but everyone was really nice.  i was fortunate to be able to spend some quality time visiting with a few people, but there were quite a few others i would love to have gotten to spend more time getting to know.  meeting dr marshall, liz, meg, belinda, carole was surreal!  they are all so wonderful!  we really are one big MP family.

a special thanks goes to aussie barb and lottie for holding down the fort while the rest of staff was gone.  we missed you both and everyone else who wasn't able to make it....hopefully next year.....love to all....sun

 



____________________
lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
Frans
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 Posted: Tue Jun 20th, 2006 05:41

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Hi all,

Well, I'm back at home too. I am staying at Ellen's btw, she lives close to the airport in amsterdam.

I want to thank all for your warmth and insights and personal stories and your genuine concern for Ellen and me.

For the ones who are wondering: Ellen is doing fine. Herxing a lot, but all very tolerable and dr Marshall has given me some ideas about how Ellen can proceed to the benicar, which I hope and believe will work out good for her.

For the ones who weren't at the conference I can only say you should buy the DVDs as soon as they are out, which will be in about 2 months. But for the ones that can't wait, I will try to put the notes I have made into something intelligible.

I have a lot of notes however and the information was quite abundant, so it may take me a couple of days to put something together.

I think the most important thing I learned at the conference and from talks with dr Marshall and others is that the MP is here to stay and is gaining momentum, even with regard to NIH and FDA. They will succumb, believe me.

Another important thing was that prof. Eishi is arriving at a lot of the same conclusions as dr Marshall, which gives me even more faith and conviction that the people on the MP have chosen wisely.

And last but not least, it was startling to see the overlap between the MP, prof. Eishi's work AND that of dr Alan Cantwell, who must have been blown away when prof. Eishi showed some photographs of bacteria he found with the so-called acid-fast stain, which is key to dr Cantwell's work. I hope dr Cantwell will come out of his retirement and share his knowledge with dr Marshall and prof. Eishi.

That's all for now, I have slept in the plane for about 8 hours during my 11 hour flight and need a shower pretty badly  :D:D

Hugs and love from Ellen and me for everyone !


PS For the ones that love numbers: dr Blaney has 75 !!!!!!! people on the MP at the moment...

Last edited on Tue Jun 20th, 2006 05:43 by Frans



____________________
Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
LeAnne
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 Posted: Tue Jun 20th, 2006 05:50

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Hey Yall. ;)

This conference is something that I will always cherish. It was so refreshing and emotionally uplifting to be able to be around others who dress like you do, think like you do, and understand you. I really enjoyed going to dinner with many of you and taking the trolly to Manhattan. I am going to miss everyone. I especially enjoyed the presentations on vitamin d, cancers and aids. I will never forget this experience.

LeAnne



____________________
Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07

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