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P.Bear R.N.
Research Team
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Posted: Thu Feb 15th, 2007 15:59 |
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Diane, The Bolle 100s are not made usually as fit-overs. I would recommend the NOIR large SpectraShields in 2% and 10% for someone who wears large glasses.
re blood pressure pill you mentioned: "Tom is already taking a blood pressure medicine called BISOPH/HCTZ Tab" see Why is my B/P high? Why does it fluctuate? Do not take a thiazide diuretic to control B/P because it is too hard on kidneys that may already be compromised by inflammation. There is a complete list of thiazide diuretics in MEDICATIONS TO AVOID WHILE ON THE MARSHALL PROTOCOL.
This link will I hope answer some of your questions, best, P.B.
What is a therapeutic probe?
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MCS, neuroborreliosis, fatigue, tinnitus, neck/facial/shoulder/lumbar pain, Bells palsy, Prostatitis, blurry vision, dizziness, 1,25D=48, MP2/05 MP3, cytomel, D25<5
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Meg Mangin R.N.
Research Team
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Posted: Fri Feb 16th, 2007 00:20 |
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Tom's B/P med is a combination of bisopropol (a beta blocker) and HCTZ which stands for hydrochlorothiazide which is a thiazide diuretic.
Bolle 100s will not fit over eyeglasses.
A therapeutic probe is simply the MP done to see what will happen. Tom will need to follow the same phase one guideline you did.
Even though Tom does not complain that doesn't mean he isn't having symptoms. He will need to communicate how he is feeling so you can help him understand the anticipated effect of a therapeutic probe. My husband waited 3 days after the start of his therapeutic probe to tell me his teeth were killing him and ask did I think that had anything to do with the MP? Adjustment in mino and Benicar doses relieved the pain which was more proof the probe was effective.
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DianeC
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Posted: Fri Feb 16th, 2007 00:44 |
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Hello P. Bear ,
Thank you for providing the information regarding the Bolles! The only problem is that Tom will not wear the fitovers. One of his friends teases me and calls me "4 eyes" The problem is my desire to get well is much greater than Tom's due to the fact that Tom does not see himself as being ill.
I was wondering if either his glasses could be tinted with the NOIR coating or if he could have his distance prescription put in the Bolles? The only problem I can see with coating his existing glasses would be the light that would enter from the sides of the glasses.
Thank you for the links! I have read them and hope that he will agree to do a therapeutic probe. I have a doctor appt next month and will talk to the doctor more seriously about Tom starting on MP since I have read that all restrictions are not mandatory.
1) If someone is not as seriously ill as most who are desperately seeking resolution to their disease, does that mean that the MP will go along much easier for them and not take the 2-3 years for complete resolution of disease? I think the thought of 2-3 years seems like an eternity to some people who don't think that they are sick in the first place.
2) Is alcohol restricted on MP? Or is one drink or glass of wine allowed before dinner?
Thanks again and best wishes! 
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Fri Feb 16th, 2007 01:08 |
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Hello Meg,
Thanks again! So Tom's blood pressure medicine does have a diuretic which is hard on the kidneys. I think that it is generic for Ziac. So if the doctor puts him on another one to take with the Benicar, it will have to be without the diuretic. What type of Blood Pressure med would that be: a beta blocker or some other type? (My brother in law has elevated blood pressure and he only takes Benicar which works wonderfully in reducing his levels)
Yes, I agree, the hardest part will be in Tom relating to me how he feels. He has never done it so far and we have been together 22 years. I do, however know what signs to look for when he is not feeling well but not always. If he will not communicate with me, this could be the biggest problem.
Is there a way to print out some of the information here to show the doctor? Sometimes if there are links or the Emoticons, the information will not copy and paste correctly.
I have an appt with the doctor next month and I am doing so well that there will probably be nothing for her to do for me. I would like to take that time to talk to her about Tom and how he really needs to be on MP. She is very busy so I am not sure if she will have seen this information and I need to convince her that this is the only way for Tom to achieve complete resolution of disease.
Take care and thanks again!!
DianeC
Last edited on Fri Feb 16th, 2007 01:10 by DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Meg Mangin R.N.
Research Team
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Posted: Fri Feb 16th, 2007 01:49 |
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Ziac is a tradename for the combination beta blocker and diuretic that Tom is currently using to control his B/P. He may do well with just a beta blocker and the Benicar blockade.
If Tom will not volunteer information about his physical symptoms, hopefully, he will answer a series of pertinent questions so you can assess his response.
For info to take to his doctor, see:
Downloadable MP Documents (desktop print ready)
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P.Bear R.N.
Research Team
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Posted: Fri Feb 16th, 2007 02:09 |
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Diane, If Tom is so vain as to be afraid to wear fit-overs, he might get by with prescription sunglasses from Hidalgo's that can be ordered with dark glass Kontraster lenses that would be as good as the Bolles.
Order a catalog here:
http://www.hidalgos.com/catalog.html
Many people can tolerate alcohol in moderation on the MP. best, P.B.
____________________
MCS, neuroborreliosis, fatigue, tinnitus, neck/facial/shoulder/lumbar pain, Bells palsy, Prostatitis, blurry vision, dizziness, 1,25D=48, MP2/05 MP3, cytomel, D25<5
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DianeC
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Posted: Fri Feb 16th, 2007 02:22 |
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Thanks again Meg,
Yes, I definitely want to get him off of that blood pressure medicine with the diuretic.
Tom also takes an 81mg aspirin per day as per his doctor and has taken for years. Will he discontinue that too?
Where will these pertinent questions be that Tom can answer? Will they be questions that I will ask him periodically or will the questions change as the time goes on?
Yes, I will download the documents before going to the doctor! I am more determined than ever to get him on MP
One thing I wanted to mention before and that is that earlier this evening I was cutting Tom's hair and on the right side of his head three quarters of the way to the top of his head was this large white gob of something. At first I just thought it was dry flaky scalp which he tends to get more in the winter and it has been very cold. I started picking away at it until it was all gone. The scalp was a little red underneath it...could be from me picking at it.
I am wondering if this could be the result of dead bacteria coming out through his scalp as he has been on the minocycline since January 11th? Then I was thinking about his lapse of memory a few days ago which could suggest a brain herx. Is the memory part of the brain located on the right side of the head?
I am going to have to start a log of all of these things that I notice happening with him.
Thanks again!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Meg Mangin R.N.
Research Team
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Posted: Fri Feb 16th, 2007 11:55 |
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Dead bacteria don't come out of the skin but inflammation causes many abnormal skin conditions.
Ask Tom questions about how he is feeing that require a yes or no answer. And ask him about the symptoms you've observed. Starting a log is a good idea.
The neurological process of memory is pretty complicated.
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DianeC
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Posted: Fri Feb 16th, 2007 12:23 |
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Thanks again Meg!
It means so much to me that you have taken so much time in answering my questions! I will be doing all that I can to get Tom started soon!
Best wishes
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Thu May 3rd, 2007 01:50 |
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Tom has been taking the minocycline 100mg twice a day since early January for the acute bacterial infection which has caused the periodontal disease. He opted against the gum surgery which was a good decision and we are glad that he did not go through with it.
Today he came back from the dentist's office after having an infected tooth pulled. It is the eye tooth on the upper left side of his mouth. He now has no teeth on that upper left side. He had been wearing a bridge. The entire tooth was not pulled. The stump was left which the dentist says has a good root. The dentist wants to do an implant on top of the stump as I believe he said there was enough bone there and then do a root canal starting in 2 weeks (I was not able to be there for his appt due to extreme fatigue) The other choice is that he could wear some type of device that is to be taken in and out of the mouth.
Tom just turned 75 the other day. He still will not commit to doing MP but has agreed to stay on the minocycline.
I am very concerned about him having a root canal and have the following questions:
1) I am not all that familiar with what actually happens with a root canal. Being that part of the tooth still remains, is that part of the tooth also infected and wouldn't having a root canal introduce or reintroduce that bacteria into the blood stream?
2) Would having the device that is to be taken in and out of the mouth the more healthy choice?
3) Are the chances of developing more severe inflammatory problems greater by having root canal done as opposed to not having it and wearing a device instead? In other words, will a root canal just give the body another place for infection to fester and another route for the infection to enter the body?
4) What possible complications could occur?
3) I am not really sure what else to ask because I am not familiar with this procedure. Any suggestions would be greatly appreciated!!!!
Thank you!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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VEZ R.N.
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Posted: Thu May 3rd, 2007 12:22 |
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DianeC,
Many of your questions regarding root canal have been addressed: Dr Greg Blaney MD wrote: re Antibiotics, Root Canals, Tooth extraction see ABC's of MP.
He has written a lot of information that should answer the questions you have posted. It is clear that people with Th1 inflammatory diseases have ongoing problems with gum recession and gum disease, tooth fractures and other dental problems.
The complication potential for your husband from having dental procedures is high as he already exhibits many signs and symptoms of Th1 inflammatory disease. Unless this underlying cause of these dental problems is addressed he will continue to have difficulty. I hope this helps.
Warm Regards, VEZ
____________________
lung gran x13 yrs neuro cardiac smp chronic cough joint pain TMJ pain tinnitus Factor V Leiden| armour probiotic|lowlux home NoIRs 6/30 Beni q4+prn 8/28 mino| 6/30 1,25D-58.3 25D-33.6| TSH-10.6 12/16/06 25D-9.6 TSH-8.63 8/06-25D=7|
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DianeC
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Posted: Thu May 3rd, 2007 18:55 |
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Hello VEZ,
Thank you for your reply!!
Thank you for your answer to my post! Yes, I had already read much of the information on this site from Dr. Greg Blaney MD and from other posts, but I did not see an answer to my question which is more specific. I am really trying to understand this as best I can.
The way it was explained to me is that the nerve will be removed from the stump and a post will go into the canal where the nerve was and then the root canal will be done. My specific question has to do with the stump.
Tom has 2 choices but the way I understand it, the stump will have to remain in place for either choice be it for the root canal or if he chooses the partial denture, it would need to be there for an anchor.......is this correct?
Now if the stump is infected with cwd bacteria but needs to stay in the mouth for whichever of the 2 procedures is chosen, which of the 2 procedures will keep the most bacteria out of the blood stream? I am still not clear on whether a root canal is just an additional route by which mouth bacteria can enter the body and if this is so, I would suspect that the partial denture would be the safer alternative??
I fully understand that even with these 2 choices there will still be bone resorption due to elevated 1,25D leading to more complications and loss of more bone until the TH1 disease is addressed and treated with the Marshall Protocol.
Thanks again and Best Wishes
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Meg Mangin R.N.
Research Team
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Posted: Thu May 3rd, 2007 19:29 |
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| Your husband's dentist is your best source for exactly what will be done with each option. Our recommendation would be to choose whatever procedure is the least invasive to avoid the need for tissue injury and healing.
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DianeC
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Posted: Thu May 3rd, 2007 19:38 |
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Thank you Meg! I will try to find the answer to that.
Best Wishes....
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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VEZ R.N.
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Posted: Thu May 3rd, 2007 19:58 |
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Hello Diane,
I think you are referring to the shell of the tooth that surrounds the nerve, pulp and blood supply that connects to the jaw bone as the "stump". Since the tooth is already infected with CWD organisms a root canal only removes the pulp and nerves and seals off the canal with a resin like material so the "stump" that remains will still contain CWD organisms. A post is used when an anchor is needed for filling the tooth post root canal procedure.
Looking at both options I believe the end results will be the same regardless of what you choose. The jawbone is still "infected with CWD. Here is a specific quote from Dr. Blaney that may help:
"With regards to root canals, if they were done for infection, to 'save a tooth', that tooth is infected still and is one of the niches of pathogens.
Removing that tooth will reduce the load but only a little as the surrounding jaw bone is still infected. Unless it is specifically symptomatic, I would recommend delaying until Th1 disease is under control."
Crowns and bridges can be effective as tooth replacements but remember dental caries and gum recession will still occur at the site under crowns and bridges until the underlying cause is corrected. I know this must be a difficult decision for you and I am sorry there is not clear cut answer but I hope the above will aid you in making the best decision for your situation. Warm Regards, VEZ
____________________
lung gran x13 yrs neuro cardiac smp chronic cough joint pain TMJ pain tinnitus Factor V Leiden| armour probiotic|lowlux home NoIRs 6/30 Beni q4+prn 8/28 mino| 6/30 1,25D-58.3 25D-33.6| TSH-10.6 12/16/06 25D-9.6 TSH-8.63 8/06-25D=7|
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DianeC
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Posted: Thu May 3rd, 2007 20:28 |
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Hello VEZ,
Thank you for your thorough explanation. I do understand it so much better now. Another concern would be if Tom did decide to go on MP....By the time he would be well enough to have a root canal, that option would probably not be available if he no longer had a good nerve in that tooth which would be needed to do the procedure
I just feel hopeless here I just tried to explain it to Tom again in as simple terms as I could stating that over time the bone will gradually be lost with nothing left for anything to hold onto. I cannot force him to do something he is not willing to do
The only consolation I see is the fact that he is taking the minocycline 100mg twice a day so that will take care of some of the bacteria although it will never be a cure.
Thanks again and best wishes!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Thu May 10th, 2007 15:08 |
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Dear Trevor,
I have a question regarding Tom who is only taking 100mg of minocycline twice a day and will not commit to full MP. Back in 10/05 his 25D was 22 and his 1,25D was 54 He is basically on the same diet that I am with NO added Vitamin D although he does get sunshine and he will not give that up.
You had just responded to my last post with the following statement: While you are still harboring the pathogens, the slower your 25-D the better. As long as you are using your Benicar, you can be assured your body is making all the 1,25-D it needs.
I have no idea what Tom's D results are at this time. If his were low to begin with and he is not ingesting D and he is not using Benicar, is he at risk of his D25 going too low based on the fact that he is not on MP? Is his body making enough 1,25D?
His cholesterol and triglycerides are ususally always elevated evidence of bacterial killing.
Thank you!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Dr Trevor Marshall
Research Team
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Posted: Thu May 10th, 2007 15:13 |
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The human body can make all the 1,25-D it needs direct from 7-dehydrocholesterol. It is a systemic process, and needs no exogenous input.
Minocycline alone will not kill all these pathogens. The RoadBack experience has made that quite clear. On the other hand, we have shown that the MP, pursued as written for at least two years, is capable of inducing remission, and, eventually 'full recovery'.
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DianeC
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Posted: Thu May 10th, 2007 15:23 |
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Thank you Trevor for the explanation I am blue in the face from trying to convince Tom to commit to MP 
He is 75 and he feels great although his problems manifest with the elevated chol and tryg and periodontal disease which is evidence of the pathogens. He is going ahead with the root canal and possible bone graph with implant if they feel he is a candidate for it. His first appt for root canal is next week.
I am just hoping for the best but I never give up and hope that one day, if it is not too late, he will reconsider MP.
Thank you for everything
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Dr Trevor Marshall
Research Team
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Posted: Thu May 10th, 2007 15:29 |
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Diane,
Denial is the number 1 problem we face. I had thought our problem would be unwillingness to accept the new paradigm, based on wanting to hold on to the old ideas about how our bodies work, but denial is actually worse than that.
Especially as we come to see that these pathogens are so widespread, indeed, part of the 'flora' of homo sapiens. It seems everybody is carrying some level of load. We upset the balance between the pathogens and the host about half a century ago, with the inappropriate use of Penicillin and Cephalosporins, and the addition of Vitamin D to our diets.
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