 |
| Author | Post |
|---|
Anne Scott
Member in Phase 3
|
Posted: Tue Nov 13th, 2007 15:49 |
|
Dear PB,
this is very helpful information. I have used Armour Thyroid before (many years ago), and I preferred it to anything else because it had a mix of T3, T4, and other things. I'll ask my doctor about this. In the meantime I need to get the bloodtests done to see what's up. I suspect low thyroid function, however.
Thanks again.
Anne
____________________
Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08; D=15 (4/09)
|
Anne Scott
Member in Phase 3
|
Posted: Tue Nov 13th, 2007 22:55 |
|
Dear all,
here are my vit. D tests, and are the first tests I've had. I'd appreciate some help interpreting this number, and will, of course, read posts on this subject as well.
After avoiding sunlight, wearing dark clothes, avoiding vit. D in my diet, etc., for 2 and 1/2 months on the MP, and taking Benicar 4 times a day for 2 and 1/2 months, here are my numbers, which seem high to me:
Vitamin D 25-OH, Total: 36
Vitamin D 25-OH, D3 36
Vitamin D 25-OH, D2 <4
Lab's interpretation: "25-OH D3 indicates both endogenous production and supplementation. 25-OH D2 is an indicator of exogenous sources such as diet or supplemtation."
Regardless of this number, I'm still experiencing significant IP's while on Mino., and seem almost ready to move to Phase 2, given that my IP's on 100mg. of Mino are diminishing.
I'd appreciate understanding how/why my body is producing this high amount of vit. D25 and how I can get the number lower. Quite frankly, however, I don't think that I can get it much lower by means of diet. I might change my Lysine supplement to a different type, or might check into my probiotics, which smell a little "fishy" to me (truly, like kelp). I also eat grass-fed beef two to 3 times a week, and may cut down on this too. But with my food allergies, I'm already very low on food intake as it is, and so I'm hesitant to cut out any more than I already have. I also have very little body fat in which to store any vitamin D, so this number is perplexing to me.
Any suggestions or interpretations? Many thanks.
Anne
____________________
Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08; D=15 (4/09)
|
Anne Scott
Member in Phase 3
|
Posted: Wed Nov 14th, 2007 19:33 |
|
In conjunction with the post of yesterday (with vit. D levels posted), I would appreciate feedback about whether the pro-biotic that I'm taking is ok:
I have learned that this "Syntol" brand probiotic is grown on/in a medium of alfalfa and papaya. This is what gives the substance its "green" smell. However, I have been told that it does not have alfalfa in it; the organisms, once grown on/in the medium, are isolated and then removed in order to make the product. May I safely take this probiotic once in a while to help with digestive issues re: antibiotics?
I would appreciate learning about how I might get my D levels down as well. And I have mailed a completed questionnaire to be assessed for Phase 2 participation.
Thanks.
Anne
____________________
Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08; D=15 (4/09)
|
Foundation Staff
.
| Joined: | Sat Jul 10th, 2004 |
| Location: | |
| Posts: | 17283 |
| Status: |
Offline
|
|
Posted: Thu Nov 15th, 2007 00:47 |
|
Your 25-D of 36ng/ml is high and reflects your previous vitamin D supplementation and food intake. See Measurement of D2 and D3 and Stores of D gradually drop. If you continue your diligence and are patient, your 25-D will come down.
Have you extended the mino dosing schedule to every 72 hours to see if more immunopathology can be provoked. See Is there a right pace for the most effective healing on the Marshall Protocol?
I cannot comment on a particular probiotic but there is extensive information in Should I take probiotics?
Hang in there............
|
Anne Scott
Member in Phase 3
|
Posted: Thu Nov 15th, 2007 01:02 |
|
Dear Meg,
thanks for your posting. I'm relieved to know that my stores of vit. D will gradually come down. (The culpret, for many years, has been Rice Milk enriched with Vitamin D; argh). I stopped taking it as well as fish at the end of August, but I continued eating eggs (3-5 per week), bacon, and kelp products through September until I read the "food" documents more carefully. No wonder the stores have been high...
Yes, I have extended the gap between mino. dosings to 3 days to provoke more herxing/IP, and in fact have adopted a 3-day gap as part of my tool kit because this gap allows either more IP to occur or allows me to see where my symptoms are otherwise. Right now, on 100mg. of Mino., my symptoms, which used to peak on the third day(9 or 10 on a scale of 1 to 10) and would continue strong until I dampened them , now get to a medium level on day 2, stay at a medium level (on a scale of 1 to 10, they'd be 5 or 6) on part of day 3, and then dwindle by the end of the 3rd day so that I notice just minor herxing by the end of that 3rd day (on a scale of 1 to 10, my symptoms at the end of the 3rd day are about a 3 or 4, max.). The last 2 doses of mino. have produced these fairly predictable, static symptoms. So, symptoms seem to be winding down on 100mg. of Mino., or if not winding down, then getting locked into this predictable pattern...perhaps a sign that I could move to Phase 2... (?) I'll await your response.
Anne
____________________
Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08; D=15 (4/09)
|
Anne Scott
Member in Phase 3
|
Posted: Thu Nov 15th, 2007 05:53 |
|
Benicar: 40mg. 4 times a day, or more often.
Mino: 100mg. every 3 days (since 11/1/07).
Sun Light Exposure: 30-60 minutes per day; unavoidable.
Symptoms: neuro symptoms, brain fog, muscle weakness all tolerable; cardiac symptoms also tolerable.
Dear Meg, Aussie Barb, and other members (Joyful, for one):
Thanks for your encouragement and good wishes. I'll be moving to Phase 2 next week, after my doctor orders the right ABX. I've studied all the guidelines for modified Phase 2. After I acquaint my doctor with this information, and the ABX's have arrived, then I will begin posting on the Phase 2 site. This will be about a week or so.
I travel to the East Coast (lots of flying and driving; no fun) to be with my partner and his daughter over the Thanksgiving holiday. I've looked at travel tips, etc., and have decided that even though my IP is tolerable and I'm ready to move to Phase 2, it wouldn't be wise to start the Phase 2 ABX until after I return from Massachusetts. I also have to write an introduction to a book that I am publishing, and need my brain to function while I do this writing. Therefore, I don't anticipate starting the ABX for Phase 2 until the first week in December.
Please advise: should I stay on the regular dosing of 100mg. mino plus Benicar for this 2-week period of time, to get through the Thanksgiving holiday and get this writing done? Or perhaps can I stretch out the doses of mino. over the next 2 weeks so as to get the most of a few more herxes, until I start phase 2?
Thanks in advance for any advice...
Anne
____________________
Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08; D=15 (4/09)
|
Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
| Posts: | 2252 |
| Status: |
Offline
|
|
Posted: Thu Nov 15th, 2007 06:50 |
|
Anne,
I know you have explored much of the different dosing options during your time in phase 1. (You are probably more of a "pro" than I am at this point!)
Having read a number of phase 2/3 progress reports of members who have taken a vacation while on the MP. Most seem to do best to stay at their current level or to take the Mino every day at 50mg. I can't remember if you have tried that to use it for it's anti-inflammatory effect. I'm sure you will figure out how to respond as the journey unfolds.
Here's to a memorable and happy holiday time for you and your loved ones!
~Joyful~
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
Anne Scott
Member in Phase 3
|
Posted: Thu Nov 15th, 2007 07:08 |
|
Hi Joyful,
thanks for the advice. I'll probably stay at 100mg. of Mino. during my trip, since I seem to be tolerating it ok.
I don't know about being a "pro" at dosing and recommendations, but I learn a little more every day, probably like you.
Have a good thanksgiving, and hope you too enjoy it with loved ones.
Anne
____________________
Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08; D=15 (4/09)
|
P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
| Location: | USA |
| Posts: | 2125 |
| Status: |
Offline
|
|
Posted: Thu Nov 15th, 2007 07:44 |
|
Anne, I would think that any pro-biotic that is grown in alfalfa might be suspect for D. Vitamin D is found as 4740 International Units per pound of dried alfalfa. From:
http://www.purlife.com/medicago.htm
Alfalfa is also one of the few forage plants that contains appreciable amounts of 1,25-D.
best, P.B.
|
Anne Scott
Member in Phase 3
|
Posted: Thu Nov 15th, 2007 17:21 |
|
I have a feeling you're right, P Bear. It smells strongly of alfalfa.
Too bad; it's a superb probiotic and really really works. That's ok...I'll find a replacement for it.
By the way, how would one test for such a thing? I'd have to send it off to a lab, most likely, right, at great cost...?
Anne
____________________
Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08; D=15 (4/09)
|
P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
| Location: | USA |
| Posts: | 2125 |
| Status: |
Offline
|
|
Posted: Thu Nov 15th, 2007 22:02 |
|
Anne, I suspect it would be expensive; since most foods have never been tested. This site might be able to answer the question and find a lab:
This site has a D calculator for some foods:
http://www.dietandfitnesstoday.com/vitaminD.php
Best, P.B.
|
Anne Scott
Member in Phase 3
|
Posted: Tue Aug 19th, 2008 10:06 |
|
End of Summer Update:
Phase 3
Benicar 40 mg. 4-5 times a day
Sun exposure: 1-2 hours a day, unavoidable; still wearing dark clothes, noir glasses, zinc oxide every single day.
Vit. D intake: no supplemental Vit. D that I'm aware of, but I did learn, much to my dismay, that the zinc oxide sunscreen that I was using used sunflower oil as a carrier. (Question: would my skin have absorbed this oil and therefore absorbed vit. D from this oil?? I hope not, but expect the worst.)
Symtoms: minor neuro pain in hand; annoying but tolerable muscle cramping in lower legs; shoulder/neck fatigue (7 out of 10, subsiding to 4 out of 10 by the end of the 10-day cucle; anxiety/depression (7 out of10, subsiding to 4 out of 10 by the end of the 10-day cycle, dizziness (6 out of 10, fairly constant except for end of 10 day cycle)
Note on my vit. D test: this test was done way back in April. I have had no test done since then because I was suspecting that my levels had gone up, due to the fact that I have spent unavoidable time in the sun this summer, due to the nature of my summer activities and where I live (Arizona). The tests are therefore out of date, but I hope to test again in September once I can hole up in my dark office at the university and avoid the sun most of the time.
Positive changes: I rode my mountain bike regularly (wearing lots of dark clothes of course), could mow my lawn most of the time withhout terrible IP, worked full time, got married, bought a new house, take kung fu lessons once a week, and generally have fewer symptoms than I had a year ago. Other positive changes:
--eyes are less sensitive to light (and I only wear my medium amber glasses now, never the darker ones since I can't see through them very well any more).
--frozen shoulder 70 percent resolved.
--gum issues 100 percent resolved.
--muscle weakness in legs 50 percent resolved.
--thyroid symptoms 80 percent resolved.
--headaches 90 percent resolved.
--heart palpatations 75 percent resolved.
--concentration 50 percent resolved.
Note: I have taken St. John's Wort to help me with anxiety/depression, and it seems to work. I know I may be affecting my immune system, but I'm willing to risk this because the herb seems to be helpful. If there's something better to take that has been tested with the MP, please let me know.
Thanks, and hope all of you have had a good summer and are making good MP progress.
Anne
____________________
Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08; D=15 (4/09)
|
Current time is 10:37 | Page:   1 2 3 4 5 |
|
|
|
|
