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Debbie D.
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Posted: Wed Oct 20th, 2004 01:23 |
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Will start taking Q (four times a day with Benicar)and Mino, 12.5.http://www.marshallprotocol.com/forum19/867-2.html
http://www.marshallprotocol.com/forum20/960.htmlLast edited on Wed Oct 20th, 2004 01:35 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Debbie D.
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Posted: Fri Oct 22nd, 2004 17:57 |
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Hello All,
just wanted to report that I notice more herx on the first day than the second taking M and the use of Q every 4 hours and B every 6 has made everything much more tolerable. I see my doc on Monday, BP and P back to near normal, I continue to avoid D foods (salmon and shrimp is where I overloaded on D's) wear Noir inside/out and limit outside exposure, even when overcast. I am hoping that after a week of 12.5 that I can begin 25 m the first week in November. Still bummed about inability to exercise as my weight keeps going up but I am confident that this is worth the weight struggle (continue to work on Adkins diet). Have a great weekend to everyone and thanks for all that you do. Debbie
Moderators Note: : These low Mino doses are no longer used as starting mino doses.. as they were found to be detrimental to MP progress.. .......................
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Aussie Barb
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Posted: Fri Oct 22nd, 2004 22:35 |
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Debbie  you are doing good work YourSelf  havagoodweekend too  Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Debbie D.
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Posted: Wed Oct 27th, 2004 17:43 |
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Hello everyone,
I decided, after talking it over with my doctor, to begin the 50 mino on 10/26 and to my surprise have not really had much of a problem. In fact, I have had days much worse than the last two days. My BP & P are fine. I find wearing the Noirs (I love them!) and relaxing after work help considerably. I also wonder if taking the mino within the capsule has caused less of a problem for me. When mixing with applesauce, I was having herx quicker, but this time did not seem to have the same nausea, etc... as I have had the last couple of weeks. 
My general YUCK has been an increase in cough, bloating, irratable bowel,Fatigue, shortness of breath, increase in depression, moderate joint pain but I have not had any muscle spasms!!!!!!! I wonder if for me opening the capsule and taking the medicine was more of an irritant???? Doc took some general blood tests yesterday and if a problem I will e-mail results. The fatigue seems to be bothering me the most at this time. The Q really, really helps.
Last edited on Wed Oct 27th, 2004 20:45 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Reenie
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Posted: Wed Oct 27th, 2004 19:06 |
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Debbie,
Please be aware that many Drs are modifying the MP, usually mainly due to lack of respect or understanding for what these small amts of abx can potentially do when used w/Benicar. 
The instructions say to stay at each dose for at least a week and ramp up slowly. Your increase from 12.5mg to 50mg, would not be consistent w/increasing in small increments. (#10 of MP Phase 1)
The rule of thumb for ramping would be 12.5, 25, 50, 75, then 100mg and to stay at each dose for at least one week. Of course, you can go slower, but it's advised NOT to go faster than this.
I would strongly advise you to read the instructions again, and you may want to print and provide a copy for your MP Dr. This is a new, updated version, with much more information.
http://www.sarcinfo.com/phase1.pdf
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Debbie D.
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Posted: Wed Oct 27th, 2004 20:44 |
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| Would I be OK if if was feeling OK to stay on the 50 or should I go on 25?????? My doctor did not suggest this it was me as I feel uncomfortable mixing that mino powder for the proper dose in such small increments. Debbie Last edited on Wed Oct 27th, 2004 20:47 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Reenie
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Posted: Wed Oct 27th, 2004 21:16 |
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Debbie,
Let me ask you this... what will you plan to do then, to increase? Do you have mino caps of 50, 75 and 100mg? Are you going to jump ahead to 100mg, since you are uncomfortable dividing again at the 75mg dose???
IMO, this is NOT a good enough reason to not follow the MP instructions, COMPLETELY, in regards to mino dosing.
Personally, I'm opting to go slow and I'm ramping w/half steps, so I divide my doses ALOT. I figure it's worth the "bother" of going slowly. I have 50mg caps, so at 75mg, I take one cap and divide one cap in half, in applesauce. My next ramped dose will be 87.5mg. (one 50mg cap and 3/4 cap = 87.5mg)
I originally ramped very slowly, from 3mg. If I followed your idea, I would have herxed miserably by jumping ahead and not following the instructions.
You may not have a prob on the first dose or two, but you could have a much stronger herx on a later dose at the same level. IMO, I would strongly encourage you to lower your dose to 25mg, then stay there for a week, as per instructions.
From your sig line, I note you have pulmonary sarc. IMO, you are much more likely to have cardiac/lung involvement w/herx, so please be cautious.
As for the mino divide, you may want to go back and read some suggestions for this, but it seems to me you've already been using the applesauce.
Last edited on Wed Oct 27th, 2004 21:17 by Reenie
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Debbie D.
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Posted: Wed Oct 27th, 2004 22:54 |
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My confusion is that the original info I copied several months ago said to begin with 25 mino and when reading sites I found that others were taking far less(which is why I started with less). I knew that Meg recently said they were re-writing some of this info.... I just checked and the info on line now is not the same info originally printed out. I always thought I was behind to begin with with the mino so I guess that is why I was not afraid to proceed.
I did feel better the last couple of days except for the fatigue but I will follow your suggestion and go to 25 mino. I am grateful for your concern and information.
Take care, Deb
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Aussie Barb
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Posted: Thu Oct 28th, 2004 01:29 |
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Hi Deb,
Re the updated instructions, it is a good idea to print and provide a copy for your MP Dr.
from http://www.sarcinfo.com/phase1.pdf ....
There are other new documents as well.
Letting all MPers know to please keep an eye out for all new information posted on the MP site as you keep in touch with us in your Progress Reports regularly, so that we may help you to do MP with the utmost efficacy...
Thank You Deb, Barb....
The MP Blessing
Deb:
May your herxes be big enough;
for you to be making good progress;
and not too big;
that you may still be able to rise to the challenge!!!
Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Debbie D.
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Posted: Thu Oct 28th, 2004 13:05 |
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Thank you for your help and support!
Is there a way to let people already on protocol know things have been updated as of a certain date? I knew in a previous post that Meg said they were going to makechanges but did not know when and she did not indicate??? I will update my Dr. as she is as excited about this protocol as I am. I am lucky to have her on my side as well as all the people connected with the protocol. I
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Aussie Barb
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Posted: Thu Oct 28th, 2004 19:54 |
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Thank you Deb,
I have posted re the updates to most posting Progress Reports on the Board, so most people should run across it somewhere.
If you think of anything else I can do, you can let me know by message if you like..
Thanks for your Commumity interest as well Deb.... it's what makes for a great Community. Barb...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Debbie D.
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Posted: Mon Nov 1st, 2004 17:57 |
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Hello everyone.... no change in my hx or med's as of last post. Everything is manageable as long as I don't overdo & rest. Was able to shop with a friend this weekend (I never go out) it was a nice change of pace(good for the mind) My mom was hospitalized yesterday (congestive heart failure)and may need to travel out of town so may stop mino for a couple of days to help me deal with her situation. If all is OK, I will start 50 mino on 11/3/04. Deb
Last edited on Mon Nov 1st, 2004 18:08 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Aussie Barb
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Posted: Mon Nov 1st, 2004 19:21 |
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Debbie D. wrote: no change in my hx or med's as of last post. Everything is manageable as long as I don't overdo & rest. ............... If all is OK, I will start 50 mino on 11/3/04. Deb
Deb,
Best wishes re your Mom & your trip.
you say no change to herx... a reminder not to ramp while still herxing... so maybe when you get back to take the 25mg x once to check if herxing before ramping?
Benicar.. keep the Benicar dosing regular too to keep your good blockade. you may need to increase you Benicar to q4h if you are exposed more? driving etcc?
Deb, I highlighted this below to help others too, thank you, it is a very necessary part of the Protocol... thank you, Barb...
Everything is manageable as long as I don't overdo & rest.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Reenie
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Posted: Mon Nov 1st, 2004 23:59 |
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Debbie D. says, "If all is OK, I will start 50 mino on 11/3/04"
Are you sure you want to ramp up this quickly, Debbie? As I look back in your sig line, you say you were at 25mg on 10/28, but never took mino on that date.
As I recall, you went from 12.5mg then jumped ahead to 50mg, then had a rather strong herx. I believe you were going to back up to 25mg, and I suggest you do that, Debbie, especially since you're taking a break.
You may even wish to back up to 12.5mg and start there, for at least one or two doses before proceeding to 25mg.
Would you kindly change your sig lines, to reflect your mino dosing so we can be sure to help you along the way? TIA
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Debbie D.
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Posted: Wed Nov 3rd, 2004 17:36 |
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I started 12.5 on October 9th, took 6 on the 13th of Oct, per suggestions and back to the 12.5 on the 16th. On Oct. 26th took 50 mino and was suggested going back to 25 which I did on the 28th. I noticed very little difference in herx so on Nov. 3rd going back to 50 mino and see how manageable the herx will be. If I feel too uncomfortable I will switch down again. I have found that taking it easy afterwork, laying down etc... I feel considerably less herx. BP today was 102/57, P 104. Extremely tired, depressed, meloncolly (spelling?). Ready to settle down early for a nice good nights rest..... some muscle spasms, headache etc.... but all manageable. My herx is worst on the first day, maybe because I take my mino at 7 a.m.????
Dr. did a routine chemistry and here are the comparisons 9/13 and 10/25:
Phospherous 4.8 and now 3.8 (2.5-4.5)
Glucose was 95 and now 86 (74-106)
Sodium was 141 and now 131 (136-145)
Potassium was 5.1 and now 4.7 (3.5-5.1)
Chloride was 100 and now 94 (98-107)
bicarbonate was 30 and now 24 (21-32)
anion gap was 16 and now 18 (10-20)
urea nitrogen was 14 and now 25 (6-23)
calcium was 9.7 and now 9.2 (8.5-10.1)
Do they suggest anything positive or negative happening with protocol?
Last edited on Thu Nov 4th, 2004 00:52 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Debbie D.
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Posted: Fri Nov 5th, 2004 13:09 |
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| Doing well on 50 mino, no addtl herx. I am concerned about my blood changes. Is there need to be, specially the urea nitrogen increase?????
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Aussie Barb
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Posted: Fri Nov 5th, 2004 19:12 |
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Debbie D. wrote: I started 12.5 on October 9th, took 6 on the 13th of Oct, per suggestions and back to the 12.5 on the 16th. On Oct. 26th took 50 mino and was suggested going back to 25 which I did on the 28th. I noticed very little difference in herx so on Nov. 3rd going back to 50 mino and see how manageable the herx will be. If I feel too uncomfortable I will switch down again. I have found that taking it easy afterwork, laying down etc... I feel considerably less herx. BP today was 102/57, P 104. Extremely tired, depressed, melancholy. Ready to settle down early for a nice good nights rest..... some muscle spasms, headache etc.... but all manageable. My herx is worst on the first day, maybe because I take my mino at 7 a.m.????
Deb,
"Extremely tired, depressed, melancholy . Ready to settle down early for a nice good nights rest..... some muscle spasms, headache etc.... " is herx too.. and as you say you are *extremely* depressed.... so IMO it would be better to not increase your mino till you feel better emotionally as well as physically... because any addition to extremely depressed is miserable & unneccessary...
also, when you do ramp.... you may be more comfortable if you ramp in smaller increments... to go to half way between 25 & 50mg..... 37.5mg..
I have brought your blood test results to Meg's att, & she will reply.
Deb, I know that you have been so accustommed to being so unwell pre MP, that this is all bearable and managable to you because you are strong that way, especially when it is getting you somewhere.....
MP makes our body work as hard as we push it to... and there is no hurry.. it is best to go a little slower so it is not so hard.
In MP if we push too hard, the somewhere we think we are going to, gets further away.
Phase 1 is a training ground for learning to manage the meds and herxes in a safe manner, ready for the much bigger phase 2...
Best to you always, Barb...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Posted: Sat Nov 6th, 2004 01:07 |
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Deb,
All your bloodwork seems stable or slightly improved with the exception of the BUN which is only slightly elevated. This test is one measurement of kidney function. Many sarcoidosis patients have undiagnosed kidney inflammation. This increase probably reflects temporary increased inflammation due to the Herxheiemer reaction. Benicar will protect the kidneys from inflammatory damage. Your doctor will want to repeat this test regularly along with a creatinine.
Best,
Meg
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Debbie D.
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Posted: Sat Nov 6th, 2004 02:54 |
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| Thanks for e-mailing me your input. I was concerned because it went from 14 to 25 which seemed like a huge jump. I suspected what you had said. Thanks, Deb
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Debbie D.
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Posted: Mon Nov 8th, 2004 17:46 |
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Hello everyone, not too bad of a day . Weekend was sleep city... not too much happening so took the opportunity to rest. We are empty nesters now and staying home is what I do now with hubby and dog Sasha. Took 50 mino yesterday at 7 p.m. Have my usual aches and pains, kidney pain, chest pain, shortness of breath, fatigue etc... Is it wrong for me to take my Ativan (anxiety) and Sonata (sleep) as perscribed by my doctor or should I be relying on the B & Q???? I have had major stressers this year which is why they have been prescribed on an as needed basis by my Dr. and counselor????
Also, is anyone else having a problem with weight gain? I have gained 10 since protocol and have assumed it is because of lack of exercise but I really think some or most of it is water retention. I was on dyazide (used to regulate menniers) and since I do not take it anymore I wonder if this could cause water retention to remain  In the last eight years I had a hysterectomy and all the other problems began emerging which has resulted in a 40 lb weight gain. If that doesn't add to your depresssion.... 
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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