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Aussie Barb
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Posted: Mon Nov 8th, 2004 18:53 |
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Deb,
here is a link to check meds>>MEDICATIONS: Medications to avoid when on the Marshall Protocol
I'm pleased you are able to rest and take care of YourSelf. your herx *sounds to be fairly rugged, but if you feel you can manage comfortably..... is up to you 
re weight gain, I'm sure I'm in the same boat as you Deb, but am just waiting to feel better then can do something about it... till then, take care in your diet... be aware that the depression can be herx and don't push yourself too hard that way..
Best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Debbie D.
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| Location: | Cleveland, Ohio USA |
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Posted: Tue Nov 9th, 2004 23:02 |
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Hello to all....
Tonight I take my third dose of 50 mino.... the herx pretty much remain the same, pain:chest, rt lung, kidney area; shortness of breath,back spasms, eye dryness/itchy, achy joints, headache and fatigue. However, my foot pain seems somewhat better, my coughing seems much better and I do not have the constant feeling the urgency (UTI)which I have had the last two years.... So I am not complaining at all and happy to be on my way to wellness.
I used to work in direct sales and had worked with hundreds of people who were not as successful as they would have liked to be. Most people I found were actually afraid to succeed, they did not want to take the extra steps necessary towards success. They would rather do the same old same old, complain and be miserable rather than step out of their "comfort zone" and move to better horizons.
I believe we are all on our way to SUCCESS because we believe that we CAN & are willing to do what is necessary to succeed with the guidance of our physicans/ people afficilated with this site..... Success will be ours! 
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Reenie
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Posted: Tue Nov 9th, 2004 23:46 |
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Hi Debbie,
I can't read that color green w/my NoIRs on, can you???
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Debbie D.
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Posted: Wed Nov 10th, 2004 15:43 |
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I can actually read it better with the Noirs than without. It is amazing how my vision has improved with the Noirs on. I must have had such a sensitivity to light.... Deb 
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Reenie
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Posted: Wed Nov 10th, 2004 16:23 |
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Debbie,
I'm glad you can see more clearly now, however, amber glasses, such as NoIRs, will distort colors and make it hard to read the screen for some of us.
It would make more sense to use colors on the board that everyone can see, so they won't be tempted to take off their NoIRs to read your progress reports, ok? TIA
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Debbie D.
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Posted: Wed Nov 10th, 2004 22:01 |
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 Sorry about the color thing. Believe it or not the color distortations seems to be so much better to me than before. I promise never to use green again.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Debbie D.
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Posted: Fri Nov 12th, 2004 16:06 |
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Hello All,
Decided not to take mino last p.m. as I have been having severe pains on my left side, under rib cage and above pelvic bone. My vision was also extremely blurry last p.m. and I had the chills even though my temp was only 96.4. Went to bed at 9 p.m. and slept though until 7 a.m. BP ok and pulse remains around 104. What does such a high pulse mean? Could that be the indicator of cardiac involvement along with the chest pains? Kind of getting tired of the shortness of breath thing, to walk upstairs to my bedroom slowly still requires me to take deep breaths to resolve the shortness of breath. I think I may return to mino on Saturday if I feel better but not in a hurry...Have a great weekend, Debbie
Last edited on Fri Nov 12th, 2004 23:56 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Foundation Staff
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| Joined: | Sat Jul 10th, 2004 |
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Posted: Sat Nov 13th, 2004 03:41 |
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Debbie,
I'm sorry you were hit by the Herx truck. Stopping the mino was the right thing to do. I suggest that you drop the mino back to 25mg when you start it and don't wait too long. Lots of us report feeling better with the mino on board once we've started it. You may have to stay at the lower dose for longer than a week.
A pulse of 104 is faster than the normal range of 60-90 but it is not a cause for alarm. It probably does mean that you have subclinical sarcoidosis inflammation in your heart. The MP is pretty good at pointing out hidden inflammation. The MP will resolve the inflammation whereever it is.
The left side pain doesn't sound cardiac in origin but if you have any doubt about what is going on and haven't had coronary artery disease ruled out before, please seek medical attention.
Take good care,
Meg
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Debbie D.
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Posted: Sat Nov 13th, 2004 13:48 |
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| Thanks for the reply. I will resume the mino this p.m. at 25. As far as the heart stuff, they pretty much ruled out a problem other than sarcoidosis. Could it be liver? kidney? etc... especially because my BUN was high (#'s doubled from last test) Thanks again, Debbie
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Foundation Staff
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Posted: Sat Nov 13th, 2004 17:06 |
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Debbie,
You should be comforted by a diagnosis of 'only' sarcoidosis inflammation in your heart because that should resolve. BUN often goes up with the MP as the bacteria are killed and inflammation is temporarily increased. Don't worry, it will go down. You're still in your MP 'infancy'.
Best,
Meg
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Debbie D.
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Posted: Mon Nov 15th, 2004 16:44 |
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I took the 25 M Saturday a.m. so I was only off by 12 hours.By 2 p.m. the fatigue was immense & the foot pain I haven't had for a month came back today.
Sunday the chest pains began but lasted only 1/2 hour, joint pain (felt like I was hit by a truck), fatigue, head fullness, ear pain & dizzy. For example, just turning a page in the newspaper was painful.
This a.m. took my 25 mino at 7 a.m. and by 9:30 a.m. the whole right side of me felt "weird"  , hurt, ached etc... the neck, head, eye, arm, area under left breast etc... mild pain on the right side under rib cage.... I am thankful that you e-mailed me Meg because I am willing to do what is necessary to get better..... I have definitely felt worse the last couple of years, Deb
Last edited on Mon Nov 15th, 2004 16:47 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Reenie
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Posted: Mon Nov 15th, 2004 20:10 |
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Debbie D. says, "Also, is anyone else having a problem with weight gain? I have gained 10 since protocol and have assumed it is because of lack of exercise but I really think some or most of it is water retention. I was on dyazide (used to regulate menniers) and since I do not take it anymore I wonder if this could cause water retention to remain"
The weight gain may be due to hormonal changes/fluctuations. Remember, 1,25-D is powerful and affects every cell in your body. (as Meg says)
Benicar causes sodium wasting, so should not cause water retention. Many ppl eat alot more salt while on Benicar to replace the sodium loss.
It is recommended to eat low carb while on the MP. Low carb helps to reduce inflammation and many ppl lose weight on it.
I've put together an IR Diet, which is a little higher in carbs than most low carb plans and provides aid in maintaining steady insulin/glucose levels.
Here's the link: http://www.marshallprotocol.com/forum27/1287.html
Debbie D. says, "Sunday the chest pains began but lasted only 1/2 hour, joint pain (felt like I was hit by a truck), fatigue, head fullness, ear pain & dizzy."
This definitely sounds like herx, however, are you diligently cave dwelling and wearing NoIRs for TV and PC while indoors? If not, the fluctuation in D can make herx stronger. Then you get a double whammy!
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Foundation Staff
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Posted: Tue Nov 16th, 2004 04:02 |
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Debbie,
It sounds like you're getting some 'nice' Herxheimer reactions. If your Herxheimer reaction becomes intolerable, increase Benicar to every four hours and alter your minocycline schedule as follows.
Minocycline elicits the maximum Herxheimer response as its tissue concentration decays away to zero. When Herxheimer symptoms are intolerable the patient should take minocycline 12.5 every 12 hours or 25mg every 24hrs. This dosing schedule seems to ameliorate the Herxheimer reaction because the dose of mino is maintained at the less effective level. (In the patient is already taking a higher dose, reduce the dose to 25mg every 12 hrs or 50mg every 24 hrs)
Using this dosing schedule until Herxheimer symptoms are again tolerable, the patient can then reduce Benicar to every six hours and begin spacing out the minocycline doses so that the concentration is allowed to decay to maximum therapeutic levels. The immune system will begin to kill bacteria again.
If you discontinued your dyazide to start Benicar and you are now retaining fluid, speak to your doctor about a non-thiazide diuretic to alleviate this problem. Point out that Benicar tends to retain potassium and you might tolerate a non-potassium-sparing diuretic very well.
Best,
Meg
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Debbie D.
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Posted: Tue Nov 16th, 2004 16:03 |
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I AM A CAVE DWELLER, WEAR NOIRS ALWAYS AND WATCH VITAMIN D intake.
I try to do low carb but sometimes depression gets the best of me and the carbs give me that pick me up (I know it doesn't but I think it does). I will copy the diet & try to follow more deligently. What is the amount of carbs per serving that your suggest? (I am usually on low carb 5 days of the week, usually having 2 days of off-time) Also, I noticed I had an unusual odor last week and read that it could be OD? I was glad it was not in my head, my BUN went from 13 before I began to 25 several weeks ago.
Last p.m. I was extremely itchy all over, particularly the legs..., anxiety, etc. Today I feel achy, glands hurt, fevorish, chills, sweaty, cough and nasal this a.m. How do you handle meds when you have the flu (I work in a middle school)? It could also be my herx, who knows. Thanks Deb
Last edited on Tue Nov 16th, 2004 16:58 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Nov 16th, 2004 18:07 |
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Dear Deb,
By the sound of your symptoms: the unusual odor, itching, high BUN> gives off a sweet Nitrous Oxide odor; from killing the bacteria;......... you are needing to slow down the herx as Meg said above.
The advice is:
increase Benicar to Q4H
and alter your minocycline to:
12.5 x 12 hourly or 25mg every 24hrs (you choose which way suits you best)
This schedule is helping me to feel better,
Keep in touch Deb, and let us know how that feels, Best to you Deb, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Reenie
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Posted: Tue Nov 16th, 2004 18:36 |
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Hi Debbie,
The IR Diet link I provided is a modified carb diet. This is higher in carbs than a low carb diet. You'll have to find which works best for you.
The IR diet is more about spacing out your carbs throughout the day, never eating more than 2 carb servings at a time, (15 grams/serving) and eating carbs that don't spike your blood sugar and insulin.
A low carb diet will do that too.
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Debbie D.
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Posted: Wed Nov 17th, 2004 11:59 |
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Thanks for the info. When I eat "carbs" other than vegetables, I usually use low carb wraps (5 carbs), low carb candy bars, cookies etc.. which say they have 3 carbs. Basically, I will begin adding fruit back into my diet. Thanks for the info.
Went back to 50 mino this a.m., I will take B/Q every 4 hours & if herx too much, will begin 25M every other day for awhile... I am so "hyper" this a.m. that I can hardly stand it or sit for that matter Is this a new herx????
Thank You, Deb
Last edited on Wed Nov 17th, 2004 15:56 by Debbie D.
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Debbie D.
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Posted: Thu Nov 18th, 2004 16:09 |
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I am still "hyper" today. Had to take an Ativan last night to calm down. Thought I had heart palpitations but no real change in BP or pulse... which has been usual. Today is the same as yesterday. Also, does anyone else have problem with their bowels taking M. Causing a problem with hemorroids which I do not usually have a problem with.  thanks to all. Deb
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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Reenie
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Posted: Thu Nov 18th, 2004 18:32 |
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Hi Debbie,
Are you diligent cave dwelling? How much are you going out? What is your indoor environment like? Fluorescents? Working on PC? Are you exercising? working?
Hemorroids wouldn't be "caused" by taking magnesium. Hemorroids are a condition that are often caused by the straining and pressure associated w/constipation sxs. Is it that they're more noticeable or painful? I would imagine you may be experiencing some pain, in any area of your body, including hemorroids, if you're herxing, due to the rise in D.
There have been many that have reported in increase in cardiac sxs from too much light along w/herxing, so please be careful to stay in your cave.
PS I just noticed in your sig line you take Wellbutrin. (I'm not familiar w/the others) Some of your sxs could be due to your meds and may need to be adjusted. You may want to discuss w/Dr.
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Debbie D.
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Posted: Thu Nov 18th, 2004 20:14 |
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Actually, the M seems to be giving loose stools... As far as the cave dweller, I leave for work at 7:30 a.m., rather dark and wear my Noirs, I work with flourescents, I am completely covered except for my hands in school and wear my Noirs. Come home with glasses on and when home very, very low lights...
Deb
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Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
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