 |
| Author | Post |
|---|
Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
| Status: |
Offline
|
|
Posted: Thu Nov 18th, 2004 20:56 |
|
Debbie,
I think I misunderstood what you're asking. I thought you were asking about magnesium. Do you mean mino?
I've had very soft, frequent bm's during herx, for many weeks, but it's cleared up now.
When I mentioned this to my MP Dr, he said, 'the majority of your immune system is in the gut,' paraphrased, of course. He was confirming that as my body begins to heal, it's not surprising that my gut would herx.
As for the amount of time you spend outside of your cave due to work and school, you may be getting alot more light and sun than your body can tolerate, which could be causing palpitations or increase in herx-like sxs, if it's not from any of your meds.
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Nov 18th, 2004 21:34 |
|
| Deb, if you are as you say quite sure that you are D avoiding well; the symptoms may be herx.. you can adjust your Benicar and mino accordingly as well to see what difference, if any, it makes.. to see if you are more comfortable. that is the aim... to herx comfortably. best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
| Status: |
Offline
|
|
Posted: Thu Nov 18th, 2004 21:52 |
|
Debbie,
Even if your sxs are from too much light, you can still try taking more Benicar, as long as your Dr approves.
I take Benicar q4h, during the days I have to go out, then drop back down to q6h at night.
Granted, I only go out once or twice a week, while you're out EVERYDAY, but you may need to take that higher dosing to keep the blockade more stable and your Hyper D sxs down, if it's a result of the light exposure and not herx.
|
Foundation Staff
.
| Joined: | Sat Jul 10th, 2004 |
| Location: | |
| Posts: | 17283 |
| Status: |
Offline
|
|
Posted: Fri Nov 19th, 2004 01:39 |
|
Debbie,
CWD bacteria love to inhabit the cells of the gastrointestinal tract. GI Herx symptoms are very common. Anxiety can also be due to Herxing. It's fine to take an occasional Ativan if it's intolerable.
Given your inability to be a total cave dweller, I think you are doing pretty good. It sounds like you're Herxing and are tolerating the Herx reactions.
People who can't completely avoid sun exposure like those who must work or who have small children to look after may have a difficult time with the Marshall Protocol. How much you can cheat on the sun avoidance is an individual matter. If someone is Herxing, then they are responding and progessing. If those Herx reactions are intolerable and uncontrollable because of sun exposure, then the MP may have to be discontinued until a future time when they can be diligent about avoiding sun exposure.
Hang in there. It sounds like you are feeling just as bad as we would expect!
Best,
Meg
|
Debbie D.
Guests visiting Phase 1/2/3
| Joined: | Mon Sep 27th, 2004 |
| Location: | Cleveland, Ohio USA |
| Posts: | 279 |
| Status: |
Offline
|
|
Posted: Fri Nov 19th, 2004 12:11 |
|
Thanks everyone. What I have noticed is that about 3-4 hours after mino (M) I gas up (feel like pregnant) and then comes the "letting go of gas" diahrea et... As far as sun exposure I do live in a not too sunny area and am pretty well covered and wear Noirs, so I am doing the most that I can probably do. I just like to check in to make sure that what I am experiencing is normal.
I am noticing increased itching the second day now which I have never really had. Thanks again to everyone. Deb 
____________________
Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
|
Debbie D.
Guests visiting Phase 1/2/3
| Joined: | Mon Sep 27th, 2004 |
| Location: | Cleveland, Ohio USA |
| Posts: | 279 |
| Status: |
Offline
|
|
Posted: Mon Nov 22nd, 2004 20:20 |
|
Hello to all. 
I continue 50 mino and continue to have the fatigue, sinus, chronic cough, nausea, headache etc. I continue to notice the second day the itching, this time on my hands and my calves are very hard and itchy, the calves are so "tight" it it unconfortable to walk. Other than that, I'm not too bad. I will continue the 50 mino for several weeks or until the herx is pretty mild before I begin 75 mino. 
____________________
Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Mon Nov 22nd, 2004 20:31 |
|
| Hi Debbie, it sounds as if you have the MP management worked out.. may all be well with you, and be in touch if we can help you. thanks for posting, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Debbie D.
Guests visiting Phase 1/2/3
| Joined: | Mon Sep 27th, 2004 |
| Location: | Cleveland, Ohio USA |
| Posts: | 279 |
| Status: |
Offline
|
|
Posted: Sat Nov 27th, 2004 15:56 |
|
Hello all....
I will probably stay on 50 mino for awhile. Herx are manageable if I rest. Wednesday, went to visit Mom, 70 minute drive each way and when I returned the back spasms returned & severe coughing....too much fun? ha, ha...
Thurday, which was a Thanksgiving, I was able to do usual cooking and around 1 p.m. the headache, nausea, etc... all returned full board. I continue to have the small bumps in my mouth, fatigue, tingling left side of body, especially the left calf and spent most of Thursday resting and almost all of Friday in bed. Friday p.m. after my first real sampling the of holiday meal, I had shortness of breath for three hours even while laying down. I had to elevate my head and eventually was OK & fell asleep. I ate little on Thursday and nothing until Friday dinner when I had the holiday fixins. Immediately felt my chest was uncomfotable. I remember my dad who had lung cancer having more breathing problems after a big meal so I am assuming that this is the same senerio. Went to bed at 8 p.m. and up at 7:30 today. Took my mino and alls well so far. Again, continue to have left leg problems, water retention today. I see dr. on Monday to discuss water retention. Thanks everyone and Happy Holidays.
____________________
Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
|
Debbie D.
Guests visiting Phase 1/2/3
| Joined: | Mon Sep 27th, 2004 |
| Location: | Cleveland, Ohio USA |
| Posts: | 279 |
| Status: |
Offline
|
|
Posted: Sun Nov 28th, 2004 00:30 |
|
| So what does it mean when your body temp is 95.6, no, my thermometer is not broken! I've been chilled all day and took my temp and it read 95.6 BP is 123/83, P 99.
____________________
Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
|
Foundation Staff.
.
| Joined: | Sun Jul 11th, 2004 |
| Location: | |
| Posts: | 1178 |
| Status: |
Offline
|
|
Posted: Sun Nov 28th, 2004 03:02 |
|
Debbie D,
Did you have more stuff going on (cooking, cleaning, entertaining) during the Thanksgiving holidays? That type of activity used to cause me to have fatigue that resulted in low temperature and feeling chilled all the time.
I found that soaking in a hot bath and lying down, resting until I no longer felt chilled helped. It usually took a few hours to get things right again. It might take a couple of days to regain control of your low temperature. Take it easy. A few long, hot baths may be all you need.
My experience was that hot baths could also bring me to a new level of good Herxing. Last edited on Sun Nov 28th, 2004 03:02 by Foundation Staff.
|
Paula Carnes
Guests visiting Phase 1/2/3
|
Posted: Sun Nov 28th, 2004 16:25 |
|
Debbie,
A low body temperature, yes that low, is common in cfs and Lyme. Also it is common to run a low grade fever on occasion. You can do a google search for thyroid and low body temperature as well.
Should you do anything about it? I don't know. I would see an endocrinologist and have thyroid tests run. You need to have TSH, free T 3 and T 4 levels tested. Do not waste your money just getting TSH run.
It is certainly possible that as we progress on the MP and treat the underlying infections the hormone imbalances will clear up.
Paula Carnes
|
Debbie D.
Guests visiting Phase 1/2/3
| Joined: | Mon Sep 27th, 2004 |
| Location: | Cleveland, Ohio USA |
| Posts: | 279 |
| Status: |
Offline
|
|
Posted: Mon Nov 29th, 2004 11:05 |
|
I've always had somewhat low body temp and low blood pressure. My ability to gain weight so easily has led to several checks of my thyroid which they said was OK. I was just wondering if the low temp indicated protocol was working? protocol would not be as effective with low body temp? etc...
Usual yuckiness today. My sinus and cough is back in full force this week, weather changes in Ohio. Will continue 50 mino... Thanks to all, Deb
____________________
Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
|
Foundation Staff.
.
| Joined: | Sun Jul 11th, 2004 |
| Location: | |
| Posts: | 1178 |
| Status: |
Offline
|
|
Posted: Mon Nov 29th, 2004 14:48 |
|
Debbie D. said "I've always had somewhat low body temp and low blood pressure. My ability to gain weight so easily has led to several checks of my thyroid which they said was OK. I was just wondering if the low temp indicated protocol was working? protocol would not be as effective with low body temp? etc..."
Debbie, I had a history of low body temp and low blood pressure before I started the MP. For me, low body temperature and feeling chilled DID indicate the protocol was working. These were previous symptoms I got when I felt bad, and they came and went like my other Herx symptoms. As I said - this did go away, gradually, over two years of treatment.
Yesterday I thoroughly *enjoyed* a brisk walk to and from the grocery store, in a strong wind, and I didn't get chilled. My husband and I were both pretty amazed that I no longer have to jump into a hot bath to get warm after such exposure to cool temperature. Last edited on Mon Nov 29th, 2004 14:54 by Foundation Staff.
|
Paula Carnes
Guests visiting Phase 1/2/3
|
Posted: Tue Nov 30th, 2004 17:44 |
|
Debbie D wrote:
My ability to gain weight so easily has led to several checks of my thyroid which they said was OK.
Personally I would not assume their checks of your thryoid were accurate. It is common for endocrinologists to just check TSH levels. Here is the problem with that. Your thyroid produces T 4 which is also what is in Synthroid and Levoxil.
The Th 1 diseases seem to affect the body's ability to convert T 4 to the usable free T 3 hormone. Thus your TSH level will look completely healthy but you will not have enough usable T 3.
To get an accurate evaluation of your thyroid you need to get three tests: TSH, T 4 and free T 3. Be sure that it is FREE T 3. Even with these results you may look low normal and still need replacement. BTW if you are normal in T 4 and low in free T 3 then Synthroid will NOT work for you, as your body cannot convert it to a usable form. You will ned Cytomel or Armor thyroid.
You can do the Mashall Protocol along with this treatment for your thyroid. You should have your thryoid evaluated every 3 months at first, because it may improve as your total health improves.
Please just ignore this message if you already knew all this. LOL
Paula Carnes
|
Linda J
Member in Phase 3
|
Posted: Tue Nov 30th, 2004 18:16 |
|
In my case, testing TSH, T4 and free T3 never indicated a problem. My TSH was always on the very low end of normal, my T4 was in the middle, and my free T3 was on the higher end of normal. I went for years with symptoms of hypothyroidism with supposedly normal test results.
Finally I had reverse T3 tested (was sky high) and thyroid antibodies, which were also sky high. The reverse T3 was literally canceling out the high level of free T3 that I had, causing me to be hypothyroid, in spite of having supposedly more than adequate levels of T3. And my thyroid gland was being destroyed while everyone assumed that everything was normal.
Thyroid problems can be very complex, and TSH, T4 and free T3 are not adequate enough to diagnose every thyroid problem, as my case illustrates.
I don't know why doctors assume that a person can have symptoms of being hypothyroid, and then run only a couple tests and say that everything is okay. That's like using a stethescope to determine if someone has heart problems. There would be plenty of people who would die of heart attacks and have congestive heart failure, and all kinds of heart irregularities while doctors are telling them it's all in their head, and not making any effort to get to the bottom of the problem. I think that if one test turns out normal, a doctor should keep looking, rather than announcing that a patient is normal, in spite of symptoms.
____________________
Lyme thyroiditis IBS MVP PTSD MCS 125D63 SAM-e Claritin probiotics silymarin magnesium 5htp homebound low lux NoIRs 25D8 (Oct08)
|
Debbie D.
Guests visiting Phase 1/2/3
| Joined: | Mon Sep 27th, 2004 |
| Location: | Cleveland, Ohio USA |
| Posts: | 279 |
| Status: |
Offline
|
|
Posted: Wed Dec 1st, 2004 15:46 |
|
| I am still working on 50 mino with herx. How long should I wait before I increase it. At this point, it seems the herx may never stop? I see the dr. on Monday to discuss everything.... Deb
____________________
Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
|
Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
| Status: |
Offline
|
|
Posted: Thu Dec 2nd, 2004 20:10 |
|
Hi Debbie,
Are you saying you feel like you're in a continual herx or the herxing feels strong when it happens?
I looked back up your thread and you said,
"...Wednesday, went to visit Mom, 70 minute drive each way and when I returned the back spasms returned & severe coughing....too much fun? ha, ha..."
I would say too much 'sun,' rather than too much 'fun.' 
Whenever you get too much light, it takes several days to get your 1,25-D level back down and this can make you feel sick, like herx, even without herx.
You may want to read some addtional info and evaluate if you're able to continue to do the MP effectively, and be getting as much light/sun as you are.
Maybe this paper on sun/light will help you to evaluate your situation. You may want to print it out and discuss with your physician:
http://www.marshallprotocol.com/forum2/1427.html
|
Debbie D.
Guests visiting Phase 1/2/3
| Joined: | Mon Sep 27th, 2004 |
| Location: | Cleveland, Ohio USA |
| Posts: | 279 |
| Status: |
Offline
|
|
Posted: Fri Dec 3rd, 2004 21:35 |
|
There is not a doubt in my mind that I am NOT getting too much sun! When visiting my mom we had torrential showers, dark,gloomy,cloudy and I wore my Noir glasses, covered my head, etc... I literally have no tolerance for light and proceed accordingly.
On a regular day I have the bumps in the mouth, mild depression, fatigue,disorient easily, headache, cough, sinus drainage, pain in calves/legs/feet, achy all over with pain and tenderness in my elbows, tingling arms, legs, etc... I have breathing problems when I walk upstairs or walk a short distance. I usually lay down for an hour at lunch time and prefer not to talk to anyone, close my eyes and try to rest.
When I herx, all of the above are heightened, I have spasms in my back, leg and feet cramps, unbearable headache, ringing in the ears, ear pressure, dizzy, increased depression and sleep as much as I can. I am so tired that sitting increases my breathing problems and laying down with my head proped up is the only way I do not feel short of breath. The mino gives me almost immediate gas and loose stools. Are these not herx symptoms?
I watch my consumption of D's, eat little processed foods and try to follow a low carb diet. In fact, I have had to omit seafood which really is where most of my D's came from (salmon, tuna, shrimp). I never was a milk drinker, etc... I really believe that I am following protocol.
I have not life!!!! I get up at 6 a.m. to get ready for work and take care of the dog, work from 8-3:30 p.m. and come home to a dark house where I usually have to lay down or sit in a recliner with legs propped. I have lost interest in cooking and eating many of the foods I used to enjoy. I am uncomfortable shopping because of the lights in the stores, uncomfortable driving because of the fatigue, dizziness, etc... I even have a hard time being with people and have pretty much withdrawn from a social life because it means I have to be out and feel terrible when I am out. My brain does not function as well as it did, I am always foggy. My mom/sisters live out of town, I am now an empty nester and I feel isolated. On weekends I try to do some housework and sleep or lay aroung most of the time. I feel like a slug... I feel like I am just existing, dealing with a disease that most people do not understand and do not care too. People who believe that what I have does not exist and "will get better by itself". So I do not feel that I am ouside too much getting too much D's. Sorry for the depressing note but I feel like my body has given up on me. I feel like an empty shell of a person who is totally numb and can't see the end of the tunnel. Deb Last edited on Fri Dec 3rd, 2004 22:04 by Debbie D.
____________________
Sarcoidosis/lungs,COPD, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety,diabetic,high BP, MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
|
Paula Carnes
Guests visiting Phase 1/2/3
|
Posted: Sat Dec 4th, 2004 02:11 |
|
Debbie,
I don't know how you are able to work. I applaud you and hope you will be kind to yourself and keep up hope. I am on disability, yet in the past six months I have felt very down at times. I am well into my 7th month and in phase 2. I am just now seeing improvement with a good day now and then. This protocol is not easy for the first few months.
I'm trying to learn to distinguish between situations that are depressing in my life and physical symptoms that make me feel depressed. It has helped me a lot when I start feeling emotionally down to stop and think, "Hum, I really feel sick today. That may be why I am so depressed. " Don't know if this will help you but I hope my progress will encourage you that there are brighter days ahead.
Paula Carnes
|
Big John
Guests visiting Phase 1/2/3
|
Posted: Sat Dec 4th, 2004 05:13 |
|
Ho Debbie!
I found that 50 mg. was the hardest for me too, I thought I would never get over the "50's herx". I am not an expert on the protocol, just a guy who has been there. I was to the point of my wits end.. Frustrated, tired, confused, etc. I decided I needed a break. I continued the Benicar and stopped the Mino. within several days I noticed the depression that I was experiencing had mellowed, and I was able to take some time just to reflect on where I had come from. I had been on MP for 45 days without a break. that is a good amount of time to be working without a break. Unlike a regular job, the MP is an around the clock "job"! I am not sure what the sure what the consensus is about this idea. however, from a professional point of view I highly suggest it. It helped me refocus and adjust my attitude!
John
____________________
Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
|
Current time is 23:50 | Page:   1 2 3 4   |
|
|
|
|
