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Joyful
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Posted: Mon Oct 29th, 2007 07:31 |
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Monday, 29Oct07
~ Benicar: 110 days ~ Ph1: 51 days ~ Mod Ph1: 45 days ~
~ Benicar 40mg, q6h ~ 1/2 first abx + 3/8 2nd abx, q48h, together ~ 8am
Just a quick note or two.
Two major issues I had wanted to see addressed on the MP were resolution of continual dental infections (trying to avoid more $root$canals$) and increasing symptoms from hormonal imbalances.
The modified phase 2 antibiotics, even at some of the smallest doses are already going to work in those areas.
I did have a bout of immunopathology two weeks ago that had all the appearances of a pair of abscessed teeth. Those symptoms are cleared now.
Looking back, the decision to use the NuvaRing for birth control has really worked out for me. Before starting with it I was having 60-80 days between cycles with really heavy bleeding. I know my whole system was struggling to send the right hormonal signals to all the right places. Now, with the use of the Benicar (and a little hormonal help from the NuvaRing) my cycles are regular, manageable and reasonable.
I am encouraged by this notable (to me at least) progress even at these very beginning stages of the MP.
abx references edited
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Deb Grabetz
Member in Phase 2
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Posted: Mon Oct 29th, 2007 12:20 |
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Joyful....Congratulations on seeing progress...It feels good, doesn't it? ...each and every time something amazingly new happens for us....
Almost like wrapped gifts under a tree...a delightful surprise inside each "box" as we begin to heal!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D125,42, Ph1,7/07, Ph2,3/08,cover up, NoIRs, low lux home, not working, 4/07D25/11 1/08D25-0 Weaned Pred with MP/ CranialSacral weekly
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Joyful
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Posted: Mon Oct 29th, 2007 20:29 |
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Thanks Deb for the encouraging words! And yes, I am looking forward to many more "gifts" of resolved symptoms.
My eyes are blurry less often even now and it seems like some "work" is going on there too, based on my symptoms.
Also, my left elbow (tendonitus?) no longer hurts constantly. I can't remember when it stopped hurting constantly, but two nights ago it hurt noticeably for about an hour. When it did, I remembered that it hadn't been hurting for quite a while! ... Another area the MP has been at "work" on, bringing healing when I wasn't even looking or paying attention!
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Sun Nov 4th, 2007 05:32 |
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Thursday, 1Nov07
~ Benicar: 113 days ~ Ph1: 51 days ~ Mod Ph1: 48 days ~
~ Benicar 40mg, q6h ~ 75mg 1st abx + 60mg 2nd abx, together, q48h ~ 10pm
________________________________________________________________
Light
Daylight hours: no exposure.
After dark: Friday, low lux, 3 hours; Wednesday, commercially lit; 1 hour.
Indoors: low lux, none or 40% NoIRS; computer, brighter areas, 10% NoIRs.
________________________________________________________________
Symptoms
• All symptoms tolerable •
4 • muscles (tension/pain; mid-back area, when standing or using arms)
4 • sleep (rhythm disrupted, staying up, not getting back to sleep easily)
3 • neuro (low energy, low initiative, low executive function)
3 • sinuses (increased drainage; periodic sneezing; irritation, back of throat)
2 • light sensitivity (10% or 40% NoIRs or none, indoors)
2 • muscles (tension; TMJs)
2 • joints (clicking/popping/pain; transient L elbow, R knee *new*)
2 • skin (peeling off end of nose; couple small sores on nose *new*)
2 • skin rash (red w/ flat rash, neck/throat areas; itchy neck, shins)
1 • dizzy on standing or coming up from bent over position (constant)
1 • dry lips (feeling of dehydration)
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Observations
►Difficulty 'turning off' to sleep at bedtime, up to 1am-4am quite a few nights.
►Sleeping more hours (10-16). Feeling tired, low energy even with extra sleep.
►Emotionally and cognitively improving, but no where near 100%.
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Something to Celebrate
 A very welcome gift of a decent sized bottle of Benicar samples was mailed to me from my doctor's office last week. I am so grateful as this really helped me to stop worrying about my current 'inventory' lasting until next year's insurance plan change.
abx references edited
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Sun Nov 4th, 2007 22:23 |
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Hi, Because I'm dealing with this symptom (3/10), thought I'd drop in a quck list of definitions of EXECUTIVE FUNCTION that I have pulled together:
* A cluster of high-order capacities, which include selective attention, behavioral planning and response inhibition, and the manipulation of information in problem-solving tasks.
http://www.nature.com/focus/neurodegen/glossary/
* The ability to manage organization, priority-setting, time management, and decision making. People with Asperger Syndrome and Learning Disabilities frequently have difficulty with executive functioning; it can also be diagnosed in isolation as a specific nonverbal learning disability.
access.autistics.org/resources/glossary/main.html
* an organizational cognitive brain function that allows for available information to be used in planning, prioritizing, sequencing, self-monitoring, self correcting, inhibiting, initiating, controlling, or altering behavior.
http://www.lcmrehabcentre.com/education/glossary2.html
* The executive system is a theorised cognitive system in psychology that controls and manages other cognitive processes. It is thought to be involved in processes such as planning, cognitive flexibility, abstract thinking, rule acquisition, and inhibiting inappropriate actions and irrelevant sensory information.
en.wikipedia.org/wiki/Executive_function
Most days I seem to be fine with self-monitoring and impulse control. It's more of the managing organization, priority-setting, time management, and decision making that seem to be impacted.
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Fri Nov 9th, 2007 06:10 |
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Thursday, 8Nov07
~ Benicar: 120 days ~ Ph1: 51 days ~ Mod Ph1: 55 days ~
~ Benicar 40mg, q6h ~ 75mg Abx1 + 80mg Abx2, together, q48h ~ 10pm
________________________________________________________________
Light
Daylight hours: Out Sat & Mon, 1 hour. Fairly dark/overcast w/ usual precautions.
After dark: Friday, brightly lit store, 1 hour. Wednesday, low lux; 1 hour.
Indoors: low lux, none or 40% NoIRS; computer, brighter areas, 10% NoIRs.
________________________________________________________________
Symptoms
• All symptoms tolerable •
4 • muscles (tension/pain; mid-back area, increasing towards later part of day)
4 • sleep (rhythm disrupted, staying up; hydroxyzine assisted with staying asleep)
3 • neuro (low energy/initiative/executive function, short term memory worse)
3 • sinuses (continued drainage; periodic sneezing; back of throat irritation)
2 • light sensitivity (low tolerance for bright indoor lights, fluorescents of any kind)
2 • vision (blurry, started using 1.25+ magnification reading glasses)
2 • neuro (numbness in hands/arms upon awakening)
2 • mouth (TMJs seem to be improperly aligned; some inflammation around molars)
2 • muscles (transient ache in calves)
2 • tendon (left Achilles tendon pain, one time, brief)
2 • abdominal (bladder pressure, Sat; gas, Sat; diarrhea, Mon/Wed)
2 • lymph (swelling below jaws, Thu)
1 • hair (serious shedding on Mon, also seems to have lost it’s ‘body’)
1 • mouth (transient sense of inflammation around right molars)
1 • dizzy on standing or coming up from bent over position (constant)
1 • dry lips (mild feeling of dehydration; getting plenty of fluids)
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Observations
►Started this 7 day period tired, low energy/initiative, but this seems to be improving, perhaps due to better sleep patterns.
►Up at 2am-5am some nights. Changed to stopping the use of the computer after 8pm most nights (light/neuro). Also used hydroxyzine to help 5 nights this week.
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Anne Scott
Member in Phase 3
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Posted: Sun Nov 11th, 2007 01:16 |
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Hi Joyful,
hope you are making tolerable progress and hope your symptoms aren't too bad these days. 
Anne
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Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil vit.A D2521 NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08
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Joyful
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Posted: Sun Nov 11th, 2007 02:48 |
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Thanks Anne!
Seems like the "pulsing" of the antibiotics guarantees an interesting set of variations on the themes of herxing and healing!
Today I am experiencing more of the healing side of the coin, for which I am very thankful! I am learning that many of my symptoms improve if I can get myself to spend more time down resting. Hard work, this healing job we have!
The pace of "slow and steady" can truly feel like watching paint dry on a wall, but I usually can get myself out of that set of frustrations with a little bit of distraction... like eating food!
I think I would rather have the boring, tolerable herxing, wouldn't you?
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Anne Scott
Member in Phase 3
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Posted: Sun Nov 11th, 2007 03:28 |
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Hi Joyful,
I think I know what you mean by pulsing. I discovered it by accident, trying to fix my runaway IP on a lower dose of Mino. So, now that I'm on the 100mg. of Mino. I have gone back to a 75mg. dosage once or twice, then back up, and now I'm almost (stress on the word "almost") tolerating the 100mg. dosage now. Makes the herxes more tolerable to be sure. Hope I'm understanding your use of the word "pulse." I know the MP website talked about it. Just too lazy/tired to look it up again.
Best of wishes!
Anne
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Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil vit.A D2521 NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08
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Joyful
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Posted: Sun Nov 11th, 2007 08:08 |
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Anne,
I guess we have two different meanings for "pulsing."
I think most often people write about "rocking" the dosage when they are going up a level as you mentioned. The moderators could probably supply a link. (I do remember that they don't recommend doing for too many cycles that way.)
I was thinking of how we don't take the antibiotics daily, but "pulse" them q48h or q72h, giving our bodies time to clear out the debris from the last "battle" with the bugs before having another round.
If we didn't "pulse" the killing of the bugs, I think we would just wear ourselves out and give up!
~Joyful~
(Running on half a brain this week, hope half of this made sense.)
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Anne Scott
Member in Phase 3
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Posted: Sun Nov 11th, 2007 15:15 |
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Hi Joyful,
Ah hah: I was mixing up rocking with pulsing. I see now.
I guess I'm mostly "pulsing," with a little rocking in between to keep the IP from going "runaway."
Anne
See Alternating the ramping schedule
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Lyme babesia HHV-6 Ph1Aug07 progesterone walnut oil vit.A D2521 NoIRs cover up lite exp r/t work ModPh2Dec07 Ph2Jan08 Ph3Apr08
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Joyful
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Posted: Fri Nov 16th, 2007 05:00 |
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Thursday, 15Nov07
~ Benicar: 127 days ~ Ph1: 51 days ~ Mod Ph1: 62 days ~
~ Benicar: 40mg, q8/5/5/6h ~ Abx: 75mg Abx1 + 80mg Abx2, q48h @ 10pm
________________________________________________________________
Light Exposure
Other daylight:  Tue and Wed got accidental ‘flash’ of sunlight when shifting curtains.
Daylight hours: Out Fri, 1½ hours. 2% NoIRs, hat, zinc, protective gear. 20mg Benicar SL twice.
After dark: Out Mon, brightly lit store, ¼ hour. 10% NoIRs, hat.
Indoors: low lux, none or 40% NoIRS; computer, brighter areas, 10% or 40% NoIRs.
________________________________________________________________
Symptoms
• All symptoms tolerable •
5 • muscles (tension/pain; mid-back area, increases w/ use) Mon; 4 • Tue-Thu; 3 • remainder
3 • sleep (rhythm disrupted, staying up; hydroxyzine assisted with staying asleep) Fri-Sun
3 • sinuses (continued drainage; periodic sneezing; back of throat irritation) Everyday
3 • neuro (low initiative/executive function, short term memory) Everyday
2 • mouth (TMJs alignment troubles; some inflammation around molars) Everyday
2 • light sensitivity (low tolerance for bright indoor lights, fluorescents) Everyday
2 • muscles (transient ache in calves, like the beginning of cramps) Sat
1 • dizzy (on standing or coming up from bent over position) Everyday
1 • skin (mild red rash throat/top of chest; few ‘eruptions’ on face/elsewhere) Everyday
________________________________________________________________
Comments
> Changed Benicar schedule to try to get 8 hours sleep uninterrupted at night starting last Friday. I am now taking it at 11pm, 7am, 12pm, and 11pm (q8/5/5/6h). This is good for deeper rest, but the immunopathology last night seemed to peak about 7 hours after my 11pm Benicar dose. So, starting today I am going to move the antibiotic schedule from 10pm to 4pm to see if it shifts the IP to earlier in the day when the Benicar doses are closer together.
> The back tension hit an all time high last Monday and I ended up taking an ‘emergency nap’ to deal with the pain (and it worked).
> Still takes an extra effort to get to sleep at my ‘regular’ time.
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Something to Celebrate
With my increased attention to protecting from computer light exposure in the evening hours and being sure to stay in bed resting a while before getting up at the start of my day, I have found that I have more energy and joy during the hours that I am up and about. Some good evening meals have been made and enjoyed at our house this week!
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Fri Nov 16th, 2007 19:40 |
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Correction!
Changed Benicar schedule to try to get 8 hours sleep uninterrupted at night starting last Friday. I am now taking it at 11pm, 7am, 12pm, and 5pm (q8/5/5/6h).
See what I mean about the neuro symptoms? 
Noted
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Thu Nov 22nd, 2007 06:24 |
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Wednesday, 21Nov07
~ Benicar: 133 days ~ Ph1: 51 days ~ Mod Ph1: 68 days ~
~ Benicar: 40mg, q8/5/5/6h ~ 100mg Abx1 + 80mg Abx2, q48h @ 4pm
________________________________________________________________
Light Exposure
Daylight hours: Out Sat, 1 hr. 2% NoIRs, hat, zinc, protective gear.
After dark: Out Fri, medium lit, 1 hr. Out Tue/Wed, medium lit, 3 hrs. 10% NoIRs, hat.
Indoors: Low lux, none or 40% NoIRS. Computer, brighter areas, 40% or 10% NoIRs.
________________________________________________________________
Symptoms • All symptoms tolerable •
4 • hip (pain in left hip with any movement) Tue-Wed:4
4 • neuro (emotionally fragile, low initiative/executive/cognitive function) Everyday
4 • sinuses (continued drainage; periodic sneezing; irritation/sore throat) Fri-Sun:4.Mon-Wed:3
3 • muscles (tension/pain; mid-back area, increases w/ use) Fri:3 Sat-Tue:1 Wed:3
3 • light sensitivity (low tolerance for bright indoor lights, fluorescents) Everyday
3 • sleep (rhythm disrupted, staying up) Fri:3 Sat:1 Sun-Tue:3 We:2
3 • joints (TMJs, alignment does not seem to be working right) Fri:1 Sat:3 Sun-Wed:2
3 • mouth (some inflammation around molars, painful to chew) Fri:1 Sat:3 Sun:2 Mon-Wed:1
NEW:
2 • scents (very uncomfortable to be around, find myself avoiding chemical smells)
1 • vision (geodesic patterns in field of vision) Sun-Mon:1
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Comments
> Last week I tried moving the antibiotic schedule from 10pm to 4pm to see if it shifted the IP to a better part of the day. I found it hard to sleep deeply on this schedule. Next week I am going to move from taking the antibiotics at 4pm to 7am and see if this works better for my schedule.
> Started to get UTI symptoms on Sunday, but symptoms are almost all gone now.
> The tension in my back seemed to be decreasing through most of the week, but now is increasing again today.
> New immunopathology symptom starting yesterday. Pain in left hip with any movement. Symptom cleared after 400mg Ibuprofen this afternoon.
> Interesting occasional new visual effects going beyond the basic after-image kind. Brain must be struggling with sensory integration or something.
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Something to Celebrate
Increase in 1st antibiotic has not lead to any increase in skin symptoms (so far). This is really great because this is what got me into this modified phase 1 track in the first place. I am very hopeful that if I keep this slow and steady pace, I will be able to get through all the levels without any intolerable skin symptoms. ~ Here's hoping! ~
Last edited on Wed Apr 9th, 2008 01:49 by
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Fri Nov 23rd, 2007 05:50 |
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Today I am remembering how very THANKFUL
I am for Dr. Marshall and all of the staff of both the
Autoimmunity Research Foundation and the
MarshallProtocol.com study site.
Your efforts have great significance
not only in the lives of those who are on the MP,
but also the generations to come.
~ THANK YOU! ~ THANK YOU! ~ THANK YOU! ~
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Thu Nov 29th, 2007 09:33 |
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Wednesday, 28Nov07
~ Benicar: 140 days ~ Ph1: 51 days ~ Mod Ph1: 75 days ~
~ Benicar: 40mg, q8/5/5/6h ~ 100mg Abx1 + 100mg Abx2, q48h @ 7am
________________________________________________________________
Light Exposure
Outside, daylight: Fri, looking out back door a few times to supervise the cutting down of a pine tree in yard for a Christmas tree. 10% NoIRs.
Indoors, natural light: None.
Indoors, not @ home: Fri, medium lit, 3 hrs. 10% NoIRs, hat. Mon, well lit, 2 hrs. 40% NoIRs. Tue, medium lit Dr’s Office, 1 hr. 40% NoIRs. Wed, low lux, 1 hr. 40% NoIRs.
Indoors, @ home: Low lux, none or 40% NoIRs. Computer, brighter areas, 40% or 10% NoIRs. ________________________________________________________________
Symptoms • All symptoms tolerable •
4 • muscles (tension/pain; mid-back area, stiff/achy feeling all day) Thu-Fri:2 Sat-Mon:4 Tue-Wed:3
3 • neuro (emotionally fragile, low initiative/executive/cognitive function) Thu:3 Fri-Mon:2 Tue-Wed:1
3 • sinuses (continued drainage; periodic sneezing; irritation/sore throat) Fri-Tue:3 Thu, Wed:2
3 • light sensitivity (low tolerance for bright indoor lights, fluorescents) Thu-Mon:3 Tue-Wed:1
2 • sleep (rhythm disrupted, up until 2am-3am, total 9-12 hrs sleep) Everyday
2 • skin (mild rash throat/top of chest; couple ‘eruptions,’ various locations, itchy shins) Everyday
2 • abdominal (kidney/bladder; reduced flow, bubbles/cloudy urine) Fri-Tue:2 Thu, Wed:1
________________________________________________________________
Comments
> This week I moved the antibiotic schedule from 4pm to 7am q48h, and I am much happier with this schedule. The first set of symptoms occur within an hour of taking the antibiotics while I am still in bed after a decent amount of sleep. The second set usually hit right around the time that I am getting up for the day, again following a more restful sleep period. Also, I am taking the antibiotics with a couple of crackers w/ butter to make it easier on my stomach.
> Now that I mentioned how well my skin was doing... the itchiness on my shins has been increasing the past couple of days. 
> The tension in my back muscles seems to be a steady symptom that limits my activities. I look forward to it's exit from my experience!
> Light sensitivity and other neuro symptoms radically dropped starting yesterday morning. I don't know if this improvement is here to stay, but it sure is nice!
________________________________________________________________
Something to Celebrate
Appointment with HMO Doctor this week went very well. While he can't "officially" support me in the MP, he is a supportive listener and has helpful answers to some of my health questions. He was kind enough to provide a prescription for enough capsules of one of the antibiotics I will need more of before moving to Phase 2. Hooray! Last edited on Wed Apr 9th, 2008 01:49 by
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Thu Dec 6th, 2007 08:51 |
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Wednesday, 5Dec07
~ Benicar: 147 days ~ Ph1: 51 days ~ Mod Ph2: 3 days ~
~ Benicar: 40mg, q8/5/6/456h ~ 25mg Abx1 + 38mg Abx2, q48h @ 7am
________________________________________________________________
Light Exposure
Outside, daylight: None.
Outside, after dark: Fri/Mon/Wed. Night driving. 40% or 10% NoIRs.
Indoors, not @ home: Fri, low lux, 3 hrs. 40% NoIRs or none. Mon, brightly lit stores, 1 hr. 40% or 10% NoIRs. Wed, well lit stores, 2 hrs. 10% NoIRs.
Indoors, @ home: Low lux, none or 40% NoIRs. Computer, brighter areas, 40% or 10% NoIRs.
Indoors, natural light: None. ________________________________________________________________
Symptoms • All symptoms tolerable •
5 • skin (reddish skin throat/neck; ‘eruptions’ random locations, both shins itchy w/ rashes) Thu-Sat:4 Sun-Wed:5
4 • muscles (tension/pain; mid-back area, increases w/ use) Thu-Tue:3 Wed:4
3 • sinuses (continued drainage; periodic sneezing; irritation/sore throat) Thu-Sun:4 Mon-Wed:3
3 • sleep (rhythm disrupted, up until 2-5am, total 8-12 hrs sleep) Everyday
1 • lymph nodes (some inflammation below TMJs, both sides) Tue
1 • burning (bottoms of feet) Tue
Other Minor Symptoms (pretty much daily)
Light sensitivity; dizzy standing up; TMJs tight; eyes gummy mornings, kidney/bladder stuff; chemical sensitivity; dry lips ________________________________________________________________
Comments
> Meds change: Starting Monday, I have begun working the levels of a new antibiotic combination. I have decided to call this ModPh2 in my notes to differentiate between last combination and this new one.
> Sleep before 2am still eludes me. Tonight I am going to try the Benedryl option to see how it works for me. (Should have tried it hours ago!)
> Skin on lower part of legs is really itchy and has rashed up where I scratched it a couple of nights ago. Still suspect it was set off by the very spicy soup. I tried some more soup on Sunday and the itchiness kicked up yet another notch.
> Light sensitivity is still there, just much less.
________________________________________________________________
Something to Celebrate
Neuro symptoms seem to be taking a ‘well deserved’ vacation. Mood is up, initiative increased, memory good, cognitive very good. More things on my ‘to-do’ list are done at the end of each day. Hooray! Last edited on Wed Apr 9th, 2008 01:49 by
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Thu Dec 13th, 2007 07:39 |
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Wednesday, 12Dec07
~ Benicar: 154 days ~ Ph1: 51 days ~ Mod Ph2: 10 days ~
~ Benicar: 40mg, q8h ~ 25mg Abx1 + 75mg Abx2, q48h @ 7am
________________________________________________________________
Light Exposure
Outside, daylight: None.
Indoors, natural light: None.
Outside, after dark: Thu/Fri/Sat/Mon. Night driving, 15-20 min. 40% or 10% NoIRs.
Indoors, not @ home: Fri, low lux, 3 hrs. 40% NoIRs or none; Sat, brightly lit store, 10 min. 10% NoIRs; Mon, well lit store, 1 hr. Hat, 10% NoIRs (felt dizzy).
Indoors, @ home: Low lux, none or 40% NoIRs. Computer, brighter areas, 40% or 10% NoIRs.
________________________________________________________________
Symptoms • All symptoms tolerable •
4 • muscles (tension/pain; mid-back area, increases w/ use) Thu-Sun:4 Mon-Wed:3
4 • skin (reddish skin throat/neck, lower legs itchy w/ rashing, itchy elsewhere) Thu-Sun:4 Mon-Wed:2
3 • sinuses (continued drainage; periodic sneezing; irritation/sore throat) Sat-Wed:3 Thu-Fri:2
2 • sleep (rhythm disrupted, up until 12am-6am, total 8-13 hrs sleep) Everyday
Other Minor Symptoms (pretty much daily)
Light sensitivity; dizzy standing up; TMJs tight; kidney/bladder stuff; various skin ‘eruptions’; chemical sensitivity; eyes gummy mornings; dry/peeling lips; canker sores (wax/wane) ________________________________________________________________
Comments
> Benadryl did not work for me. It didn’t help me sleep and once I did get to sleep, it was only a couple hours before I awoke with very itchy lower legs. I immediately thought ‘rebound’ and decided to not experiment with Benadryl anymore.
> Canker sores gave me some trouble this week and increasing the Lysine dose seemed to help.
> Skin on lower part of legs has been really itchy, but seems to be calming down. The rash is also still present and slow to heal.. At the beginning of the week I took small amounts of hydroxyzine 2-3 times per day for it’s antihistamine effect. This did calm the itchiness and since I wasn’t scratching, this will probably will help with the healing of the skin.
> I found that I can get to sleep much more quickly if the first thing I do when lying down is dissolve 20mg of Benicar under my tongue. (Probably brings down neuro inflammation?)
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Something to Celebrate
First matching grant for Autoimmunity Research met! New matching grant challenge offered! Last edited on Wed Apr 9th, 2008 01:48 by
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
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Posted: Wed Dec 19th, 2007 06:18 |
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History of 25D levels…
Test #1 04Jun07 25D= 32 ng/mL {Pre-MP, D supplemented}/Quest Labs
Test #2 06Aug07 25D= 26 ng/mL {2 months, avoid D/sun; 1 month on MP}/HMO lab
Test #3 05Oct07 25D= 39 ng/mL {3 months on MP}/HMO lab
Test #4 05Dec07 25D= 27 ng/mL {5 months on MP}/HMO lab
Sun exposure. I very rarely (once/twice a week for one/two hours) go out during the day. When I do, I use the zinc oxide cream on my face and hands, I wear a broad-brimmed hat and cover over all over. My only sun exposure is between the car and the store/office I am going to. Because of the increased sun sensitivity I have actually gone out about half as much during the daytime hours since Test #2.
Note that at 1 month into the MP, the 25D level was on a downward trend and I was feeling pretty good about my sun avoidance and dietary compliance. And then, 3 months into the MP my 25D threw itself into reverse and came up 7 units higher than pre-MP!
You might imagine the shock I felt when the nurse read the number off the report from Test #3 to me. I have been trying so hard to do this right and this number was higher that at the start. Higher than when I was taking 2-4 Krill Oil per day. Higher than after a month of supplementation with a Women's multi-vitamin. Higher than when I was out in the sun without a hat or sunscreen a couple times a week for hours at a time working in my garden or yard. Just a feeling of pure shock. I had attempted to strictly follow the MP guidelines for sun avoidance and dietary D avoidance … and all the time the 25D level was climbing up 13 points behind my back!
This was very confusing and put me into detective mode, trying to ferret out what I could be doing wrong.
Here is my list of frequently used supplements that might have gotten me into trouble (all stopped now):- Re-reading the label, I realized that the probiotic I have used for years had sunflower oil in it (used on the MP twice before Test #2 and then semi-daily after Test #2– until I noticed the ingredient on the label 20Sept) After that I changed to taking a different probiotic, S. Boulardii, from Jarrow Formulas (15Sep to 15Oct). I finally dropped all the probiotics in pill form for now.
- For about a month I was using a magnesium powder for leg cramps (Natural Calm: used 2-5x per week, 19 Aug until 19Sept).
- Also, in September I was using peppermint oil for GI spasms (2-4 drops/day from 5Sept to 24Sept)
During the period when the 25D levels went up, I had also used these items, but have not used them since getting my higher results back:- Macrobid 100mg Q12H for seven days to treat bladder infection (27Aug to 2Sept)
- AZO Standard 190mg 2x day for three days (1 Sept to 3Sept)
- L-Lysine (Source Naturals) 1000mg for canker sores (total 5 between 4Jun and 5Oct)
- Chamomile tea (used twice: 10Aug and 19Aug)
Here is my list of dietary errors during the period between Test #2 and #3 (gotta read the labels AND think!):- Cooked up a ½ flat of bacon because I needed the grease for my cast iron pan, and well, I ate quite a lot of it… tasted good too! (single big time offense over a month before the Test #3)
- Dining out two times: caesar salad (anchovies in the dressing!)
- Dining out two times: chicken curry from Japanese grill (fish sauce?)
- Almost daily enjoyed some Garden of Eatin’ corn chips (sunflower oil?)
- Read the label on my favorite ginger cookie box. (Contains eggs!) So sad!
- Used older stock from freezer that probably was made with chicken organ parts in the pot.
- Maybe 2-3 cups per week of non-fortified, whole fat yogurt.
- Non-fortified grass-fed dairy products. Yummy! Was it the milk? The cheese? Or maybe all that lovely butter I cook with almost every day? (Dr. Weston Price studied the D content of butter from cows during different times of the year and found that butter from cows feeding off of green growing grass had a significantly higher vitamin D content than cows fed with cut hay or other feed.)
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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Joyful
Research Team
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
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Posted: Wed Dec 19th, 2007 06:22 |
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Joyce Waterhouse [jcwat101] made these helpful comments in response to my questions concerning my dietary intake:
Have you been consuming the grass fed dairy products at the same rate throughout? Personally, I do think they could be contributing to the 25D levels. I found, during the time I was highly sensitive to vitamin D that so-called natural or organic beef and chicken had more vitamin D than the non natural, or non grass fed types.
In fact, I appreciate your posting that quote [from Dr. Weston Price], since it confirms what I found. So, if you really want to bring it down maximally, you might want to at least cut back on those dairy products, particularly the fat component or switch to a non grass fed type. Of course, if you were consuming those continuously at the same level, the decline in your levels prior to the second test, suggests you could bring the 25D down through changing the supplements.
So, if you wanted to do it in stages you could, if you really don't want to change the dairy consumption. You could see if the change in supplements alone does the job and if not, you could go farther with a change with regard to the dairy consumption. But if you reduce dairy products overall, you need to replace the calcium with a supplement to get the RDA level (Solgar's calcium chelate is what I use).
Although, I think the supplements are the most likely cause, it could also occur that your body's own regulatory mechanisms are affecting your 25D to cause this sudden shift. But even if that is involved, I think you do need to try the above suggestions to try to help bring it down.
I wouldn't get too upset though, since you have been having immunopathology reactions. The Benicar is displacing enough 25D and other VDR blockers that you are killing bacteria.
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Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
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