 |
| Author | Post |
|---|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Wed Dec 19th, 2007 06:32 |
|
Since the high test result from Test #3
I have made the following changes in my diet:- Dining out more carefully. No caesar salad. Reduced Asian dining to 1x month.
- No Garden of Eatin’ corn chips
- No favorite ginger cookies. (ok, only a couple, one time)
- No bacon.
- Reduced use of non-fortified grass-fed raw milk/cheese/butter.
- Reduced use of non-fortified grass-fed pasturized milk/cheese/butter.
- Reduced use of 1-2 cups per week of non-fortified, whole fat yogurt.
These are the other palliatives I have continued to occasionally use
or have added since the high test result: - Cold-EEZE Zinc Lozenges (used as need for soothing irritated throat)
- Nasaline 99.99% Sodium Chloride (used occasionally for nasal irrigation)
- CamoCare C-Spot cream, very tiny amounts PRN (less than 1x per week in small areas)
- L-Lysine (Solgar) 500mg for canker sores (used as needed)
These are the palliatives I have continued to use regularly before
and after the high test result: - Cranberry sugars (Now Foods D-Mannose) 1 tsp, daily (due to UTI symptoms)
- Trace ionic minerals 1oz, daily
- SteviaPlus ¼ tsp, daily (ingredients: stevia extract, FOS)
If nothing else, this has taught me to assume nothing and read every label every time. Did you know that organic raisins are often coated in sunflower oil? Or that many chips and/or crackers are now made with sunflower oil? It is quite the job to keep a constant guard over pre-packaged foods.
So, I am now happy to have a lower 25D test result again (=27, yeay).
I am a little concerned that my continued use of dairy products (an easy “fast food” in our house) may slow the eventual process of bringing the 25D level down to the point when it is not suppressing my immune system. But I’m not concerned enough that I will completely stop eating those foods. I’m just trying to keep an eye on my intake of dairy on a daily basis.
Last edited on Wed Dec 19th, 2007 06:33 by Joyful
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sat Dec 22nd, 2007 01:36 |
|
Friday, 21Dec07
~ Benicar: 163 days ~ Ph1: 51d, ModPh1: 79d ~ Mod Ph2: 19 days ~
~ Benicar: 40mg, q8/6/5/5h ~ 50mg Abx1 + 75mg Abx2, q48h @ 7am
________________________________________________________________
Light Exposure
Outside, daylight: None.
Indoors, natural light: None.
Outside, after dark: Thu/Fri/Mon/Tue/Fri. Night driving, 15-20 min. 40% or 10% NoIRs.
Indoors, not @ home: Thu, medium lit store, 15 mins.10% NoIRs. Fri, low lux eatery, 30 mins. Fri, medium lit home, 30 mins.10% NoIRs. Mon, fluorescent lit locations, 4 hrs. 10% NoIRs, or Hat + 40% NoIRs. Tue, fluorescent lit location, 10 mins. 10% NoIRs. Fri, low lux, 2 hrs. Hat and/or 40% NoIRs.
Indoors, @ home: Low lux, none or 40% NoIRs. Computer, brighter areas, 40% or 10% NoIRs.
________________________________________________________________
Symptoms • All symptoms tolerable •
3 • neuro (emotionally fragile, slower cognitive only during peak IP period today) 2ndThu only
3 • skin (lower legs itchy w/ dry skin that rashes up if scratched) ThuFriSat:2 TueWed:3
3 • sleep (rhythm disrupted, up until 12am-6am, total 8-13 hrs sleep) Everyday
3 • muscles (tension/pain; mid-back area, increases w/ use) ThuFrSat:2 Sun:3 Tue:2
2 • hormonal (personal rolling heat waves; fever/chills) 2ndThuFri:2
Other Minor Symptoms (pretty much daily)
Light sensitivity; dizzy standing up; various skin eruptions/itchiness; kidney/bladder stuff; chemical sensitivity; eyes gummy mornings; sinus drainage; irritation/sore throat; dry/peeling lips; canker sores (wax/wane); TMJs tight.
________________________________________________________________
Comments
> Since all symptoms seemed to be minimal last week, I tried taking Benicar q8h for some days. Stretching out the time between Benicar doses seemed to be tolerable, but I could detect an increase in inflammation symptoms. I could ‘manage’ with that schedule, but I know I can tolerate more immunopathology with the q6h dosing that I use currently. Good to know.
> Skin seemd to be all calmed down until the second day after the new 50mg dose of Minocycline (Tue). I am continuing to take extra hydroxyzine as needed for it’s antihistamine effect. Yesterday, without notice, almost all itchiness just was gone. Interesting.
> Experienced some previous symptoms (neuro/hormonal) during peak immunopathology (IP) period (28-36 hrs since abx) yesterday. Interesting.
> Hardly any muscle tension and/or pain since this Tuesday. Nice.
________________________________________________________________
Something to Celebrate
 New 25D result from the test taken on 5Dec07 is 27. Last edited on Wed Apr 9th, 2008 01:50 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sun Dec 30th, 2007 10:59 |
|
Friday, 28Dec07
~ Benicar: 170 days ~ Ph1: 51d, ModPh1: 79d ~ Mod Ph2: 26 days ~
~ Benicar: 40mg, q8/6/5/5h ~ 50mg Abx1 + 75mg Abx2, q48h @ 8am
________________________________________________________________
Light Exposure
Outside, daylight: Hat, 2%+10% NoIRs, zinc, covered. Passenger in car on Tue, 30 min.
Indoors, natural light: Hat + 10% NoIRs, zinc. Visiting family on Tue, 1 hr.
Outside @ night, car driving: 10% NoIRs. Sat, 30 min.
Outside @ night, car passenger: 10% NoIRs. Tue, 30 min.
Indoors @ fluorescent lit: Hat + 10% NoIRs. Sat, 1 hr.
Indoors @ medium lit: Hat + 40% NoIRs. Tue, 3 hr.
Indoors @ computer/tv: 40% NoIRs. Almost daily, 2-6 hours.
Indoors @ low lux: None or 40% NoIRs. Daily in house.
________________________________________________________________
Symptoms • All symptoms tolerable •
3 • skin (lower legs very itchy intermittently) WedThu:3
2 • neuro (emotionally fragile, slower cognitive intermittently) SatSun:2
2 • muscles (tension/pain; mid-back area, increases w/ use) SatSunMon:2
2 • hormonal (rolling heat waves or fever/chills) SatSun:2
Other Minor Symptoms (pretty much daily)
Light sensitivity; dizzy standing up; sleep rhythm disrupted; mild neuro symptoms; various skin eruptions/itchiness; kidney/bladder stuff; chemical sensitivity; eyes gummy mornings; sinus drainage; irritation/sore throat; dry/peeling lips; canker sores (wax/wane); TMJs tight.
________________________________________________________________
Comments
> I have decided to go back onto a strict Q6H schedule for the Benicar. There just seems to be a build-up of inflammation if I try to stretch even the night dose to 8 hours. I returned to this schedule yesterday and can tell a difference already. Ahhh.
> Following the conversation in the thread: “Bacteria In Cows' Milk May Cause Crohn's Disease,” I stopped using the cranberry sugars (d-mannose) palliatively on 22Dec07.
> Skin still has it's moments of strong itchiness but it is not a constant symptom now.
> New red spots around waist that don’t itch, but look like mosquito bites on Thursday.
> New ‘pinched’ feeling on tummy below skin just to left of appendectomy scar most of Friday.
________________________________________________________________
Something to Celebrate
A big thanks to the moderators & a prosperous new year! Last edited on Wed Apr 9th, 2008 01:50 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sat Jan 5th, 2008 07:41 |
|
Friday, 4Dec08
~ Benicar: 177 days ~ Ph1: 51d, ModPh1: 79d ~ Mod Ph2: 33 days ~
~ Benicar: 40mg, q6h ~ 50mg Abx1 + 113mg Abx2, q48h @ 8am
________________________________________________________________
Light Exposure
Indoors, natural light: No eye protection, light filtered through curtains. Mon, 4 hr
Indoors @ medium lit: No eye protection. Sun/Mon, 3 hr.
Outside @ night, car driving: Hat + 10% NoIRs. Fri, 30 min.
Outside @ night, car passenger: 10% NoIRs. Fri, 20 min.
Indoors @ medium lit: Hat + 10% NoIRs. Fri, 4 hr.
Indoors @ computer/tv: 40% NoIRs. 4-10 hours per day.
Indoors @ low lux: No eye protection. Daily in house.
________________________________________________________________
Symptoms • All symptoms tolerable •
5 • muscles (cramping, feet/legs at bedtime, for a couple of hours) Sun
5 • muscles (tension/pain, mid-back/shoulder/neck) Sun:5 MonTue:3 Remainder:2
Other Minor Symptoms (pretty much daily)
Light sensitivity; dizzy standing up; mild neuro symptoms; sleep rhythm off; various skin eruptions/itchiness; kidney/bladder stuff; chemical sensitivity; eyes gummy mornings; sinus drainage; irritation/sore throat; dry/peeling lips; canker sores (worse this week); TMJs tight.
________________________________________________________________
Comments
> Skin itchiness hasn’t been any major trouble since last week.
> Muscle spasms on my neck & shoulders, along with foot and leg cramps while trying to get to sleep on Sunday. I seemed to get some relief about 30 minutes after rubbing peppermint oil on the bottoms of my feet. A heating pad also seemed to be of some help. I am not sure if this was a result of moving some heavy boxes earlier in the day or not.
> Canker sore inside lip has now been joined by cold sore outside on the lip next to it. Keeps getting my attention whenever I eat or drink anything. Increase in almond/coconut/chocolate consumption over the holidays probably didn’t help. I’ve increased the Lysine to try to get this under control.
> Couple days of a new minor pain in left toe where I broke the bone in three places 2 years ago. The pain is gone now.
________________________________________________________________
Something to Celebrate
It seems like this dose of Abx2 is again a ‘sweet spot’ for me neurologically. I had some real productive times after midnight this week. One night I cleaned up my house in preparation for a visit from family, another night I cleaned up the unruly stacks in my office that have been bugging me for over a year, but didn’t have the executive function to deal with. I am sorry to have my sleep cycles off from the rest of the household, but I was so happy to get these tasks done!Last edited on Wed Apr 9th, 2008 01:51 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sat Jan 12th, 2008 07:03 |
|
Friday, 11Jan08
~ Benicar: 184 days ~ Ph1: 51d, ModPh1: 79d ~ Mod Ph2: 40 days ~
~ Benicar: 40mg, q6h ~ 75mg Abx1 + 113mg Abx2, q48h @ 8am
________________________________________________________________
Light Exposure
Outside, daylight, driving car, to/from bldgs: 2% NoIRs. Tue, 1 hr. 2%+10% NoIRs. Thu, 1 hr.
Indoors @ fluorescent lit: Hat + 10% NoIRs. Tue, 1.5 hr. Thu, 30 min.
Outside @ night, car passenger: 10% NoIRs. Fri, 20 min.
Indoors @ low/medium lit: 10% NoIRs. Fri, 4 hr.
Indoors @ computer/tv: 40% NoIRs. #hrs:day: 7:Sat,6:Sun,6:Mon,2:Tue,5:Wed,8:Thu,4:Fri..
________________________________________________________________
Symptoms • All symptoms tolerable •
5 • muscles (cramping, legs and/or feet) Thu:5 SatWedFri:3
5 • muscles (tension/pain, mid-back/shoulder/neck) Wed:5 TueThu:4 SatSunMonFri:3
1 • GI tract (diarrhea) Sun 5pm – One time 34hr after taking the antibiotics
Other Minor Symptoms (From most to least noticeable)
Sleep rhythm off; light sensitivity; canker sores; dry/peeling lips; eyes gummy mornings; mild neuro symptoms; dizzy standing up; kidney/bladder stuff; TMJs tight; sinus drainage; irritation/sore throat; various skin eruptions/itchiness; chemical sensitivity.
________________________________________________________________
Comments
> Sun exposure twice this week for doctor/dentist (Tue/Thu) appointments made me think I should put off increasing the 2nd antibiotic's dose until Monday. This is so I can try to discern what symptoms are related to the sun exposure and what can be tied to an antibiotic increase.
> I have had muscle spasms on my neck & shoulders, along with foot & leg cramps again this week. They seem to be worse after doing any physical activity including laundry, washing dishes, or moving medium weight items (such as boxes). I could not correlate the increases to the two daylight outings. As far as I know I am getting enough magnesium in my diet. The cramping seems to be rooted more in something going on with the nerves and responds to taking a little extra (1/3 to 2/3mg) Valium as needed.
> A continued canker sore from last week (on the inside of my lip) became even worse, and up to Tuesday was red, inflamed and painful. Lysine didn’t seem to have any effect. I tried eating very low carb starting last week without any change. The sore finally started resolving late Tuesday with the addition of probiotics and drinking organic pastures raw milk, along with using the raw milk as a mouthwash for a couple of days. Maybe it was GI tract related?
> Plan: to keep working up to maximum modified phase 2 doses until my doctor’s appointment on Jan 29th and then it’s on to the full phase 2!
________________________________________________________________
Something to Celebrate
No skin involvement worth mentioning at this point. Since this was such a problem for me before the MP and in phase 1, I am thrilled that the increased antibiotics have not made this symptom an issue for me. Whew!
Last edited on Wed Apr 9th, 2008 01:51 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sat Jan 19th, 2008 07:34 |
|
Friday, 18Jan08
~ Benicar: 191 days ~ Ph1: 51d, ModPh1: 79d ~ Mod Ph2: 47 days ~
~ Benicar: 40mg, q6h ~ 75mg Abx1 + 150mg Abx2, q48h @ 8am
________________________________________________________________
Light Exposure
Computer (day:#hr): Sat:8, Sun:8, Mon:7, Tue:2, Wed:3, Thu:8, Fri:8 w/ 40% NoIRs.
Stayed @ home in medium to low lux all week w/ none or 40% NoIRs.
________________________________________________________________
Symptoms • All symptoms tolerable •
3 • muscles (tension/pain, mid-back/shoulder/neck) Wed:3 Remainder:2
2 • muscles (cramping, legs and/or feet) SatSun:2 MonThuFri:1
Other Minor Symptoms (From most to least noticeable)
Sleep rhythm off; light sensitivity; minor neuro symptoms; eyes gummy mornings; dry/peeling lips; chemical sensitivity; dizzy standing up; kidney/bladder stuff; TMJs tight; canker sores; sinus drainage; irritation/sore throat; various skin eruptions/itchiness.
________________________________________________________________
Comments
> Muscle tension/pain/cramping has been more tolerable after beginning to take more small doses of Valium during the day to address the symptoms.
________________________________________________________________
Something to Celebrate
Dr. Marshall’s new paper: “Vitamin D discovery outpaces FDA decision making” is now available for our reading enjoyment!Last edited on Wed Apr 9th, 2008 01:52 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sat Jan 26th, 2008 07:52 |
|
Friday, 25Jan08
~ Benicar: 198 days ~ Ph1: 51d, ModPh1: 79d ~ Mod Ph2: 54 days ~
________________________________________________________________
Light Exposure
Computer: Sat:7hr, Sun:4, Mon:7, Tue:4, Wed:6, Thu:6, Fri:4 mostly w/ 40% NoIRs.
Stayed @ home in medium to low lux all week w/ none or 40% NoIRs. ________________________________________________________________
Symptoms • All symptoms tolerable •
6 • muscle spasms (sudden episode of spasms, worst around ribcage; plus hands/legs/other) Tue:6
3 • muscle tension (tension/pain, mid-back/shoulder/neck) SatTueWedThu:3 SunMonFri:2
3 • neuro (coordination, short term memory; hard to manage/juggle tasks) SatSunMonTue:3
2 • joint pain (intermittent; knee, wrist, TMJ, fingers, elbow, hip, ankle) SatTueWed:2 SunMonFri:1
1 • temperature disregulation (intermittent; night sweats, poor circulation) SatSun:1
Other Minor Symptoms (From most to least noticeable)
Sleep rhythm off; light sensitivity; gummy/irritated eyes after sleeping; minor neuro symptoms; dry/peeling lips; various skin eruptions/itchiness; TMJs tight; chemical sensitivity; dizzy standing up; kidney/bladder stuff; canker sores; sinus drainage; irritation/sore throat.
Sleep: Sat:11hr, Sun:11, Mon:12, Tue:9, Wed:11, Thu:9, Fri:10. Not necessarily all at once.
________________________________________________________________
Comments
> Again tried stretching to a 72 hour cycle before increasing the Minocycline last Sunday. I didn’t feel an increase in energy or a decrease in symptoms the way I have in the past. Maybe my immune system is staying ‘on the job’ without the antibiotic’s modulatory effects? Something to note anyway.
________________________________________________________________
Something to Celebrate
ScienceDaily has picked up the AlphaGalileo version of the news release
"Vitamin D Deficiency May Be Symptom Of Disease: Supplements May Make It Worse"
http://www.sciencedaily.com/releases/2008/01/080125223302.htmLast edited on Wed Apr 9th, 2008 01:52 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sat Feb 2nd, 2008 07:13 |
|
Friday, 1Feb08
~ Benicar: 205 days ~ Ph1: 51d, ModPh1: 79d ~ Mod Ph2: 61 days ~
________________________________________________________________
Light Exposure
Computer: Sat:6hr, Sun:6, Mon:7, Tue:3, Wed:7, Thu:7, Fri:4 w/ none or 40% NoIRs.
Stayed @ home in medium to low lux all week, except Tuesday, w/ none or 40% NoIRs.
Outside, daylight, driving in car, to/from bldgs: Tue, 20min, w/ 2% NoIRs.
Outside @ night, car driving: Tue, 30 min, w/ 10% NoIRs.
Indoors @ fluorescent lit stores: Tue, 2 hrs, w/o hat + 10% NoIRs.
________________________________________________________________
Symptoms • All symptoms tolerable •
3 • muscle tension (tension/pain, mid-back/shoulder/neck) SatWedThuFri:3
1 • muscle spasms (cramping, feet/legs) SatSunFri:1
1 • temperature disregulation (night sweats, colder hands/feet) Everyday
1 • GI tract (canker sores; gurgling, gas, discomfort) MonTueWedThu:1
Other Minor Symptoms (From most to least noticeable)
Sleep rhythm off; light sensitivity; body ‘thermostat’ off; canker sores; gummy/irritated eyes after sleeping; minor neuro symptoms; dry/peeling lips; sinus drainage; irritation/sore throat; dizzy standing up; various skin eruptions/itchiness; kidney/bladder stuff; TMJs tight; chemical sensitivity.
Sleep: Sat:9hr, Sun:12, Mon:10, Tue:11, Wed:8, Thu:9, Fri:12.
________________________________________________________________
Comments
> Successfully handled Tuesday afternoon trip to HMO doctor’s office (well lit with fluorescents). The lights didn’t bother me hardly at all (I took Benicar q4h w/ extra 2x20mg sublingual). In fact, I felt so good afterwards that I went out to dinner (after sunset & low lit) and then shopped two brightly lit stores. By the end of the evening I was feeling the fatigue set in, but that was about it.
________________________________________________________________
Something to Celebrate
> All other symptoms are leveling out and I am getting ready to start phase 2 next week!Last edited on Wed Apr 9th, 2008 01:53 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Fri Feb 8th, 2008 05:09 |
|
Thursday, 7Feb08
~ Benicar: 211 days ~ Ph1: 51d, ModPh1: 79d, ModPh2: 62d ~ Phase 2: 01 day ~
________________________________________________________________
Light Exposure
Computer: Fri:4hr, Sat:4, Sun:5, Mon:10, Tue:4, Wed:5, Thu:10, mostly w/ 40% NoIRs.
Stayed @ home in medium to low lux all week, except Tuesday evening, w/ none or 40% NoIRs.
Outside, daylight: Tue, 1min, looking out front door w/ no eye protection (eeek!).
Outside @ night, car driving: Tue, 30 min, w/ 10% NoIRs.
Indoors @ fluorescent lit hospital lab: Tue, 10 mins, w/ ballcap + 10% NoIRs.
Indoors @ low lit resturaunt: Tue, 2 hr, w/ ballcap, but not wearing NoIRs.
________________________________________________________________
Symptoms • All symptoms tolerable •
4 • muscle spasms (cramping, right foot /arm) Tue
2 • muscle tension (tension/pain, mid-back/shoulder/neck) Every evening
Other Minor Symptoms (From most to least noticeable)
Sleep rhythm off; light sensitivity; body ‘thermostat’ off; minor neuro symptoms; dry/peeling lips; sinus drainage; irritation/sore throat; gummy/irritated eyes after sleeping; dizzy standing up; chemical sensitivity; TMJs tight; various skin eruptions/itchiness; canker sores.
Sleep: Fri:12hr, Sat:12, Sun:9, Mon:6, Tue:13, Wed:10, Thu:9.
________________________________________________________________
Comments
> Having trouble this past week with seeing well enough to read from the computer screen. The 40% NoIRs are too dark, but taking them off the LCD is too bright and my eyes start to hurt. Some days I’ve just kept the NoIRs off, but I think that was making it harder to sleep. So, today I turned the brightness up on the monitor half-way and now I can see with the NoIRs on a whole lot better. Such a juggling game we must play! 
> Late Tuesday night and early Wednesday morning my foot and leg muscles really started to spasm/cramp again. I suspect the sunlight exposure. The pain calmed down around 2am. Finally got to sleep around 4am. Same old lesson learned one more time. 
> Today I have taken my first small doses of the full phase 2 antibiotics @ 8am.
>I’ll let you know how things go! 
________________________________________________________________
Something to Celebrate
> All the amazing, kind, caring people on the MarshallProtocol.com study site!Last edited on Wed Apr 9th, 2008 01:53 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sun Feb 17th, 2008 04:02 |
|
Saturday, 16Feb08
~ Benicar: 220 days ~ Ph1: 51d, ModPh1: 79d, ModPh2: 62d ~ Phase 2: 10 days ~
________________________________________________________________
Light Exposure
Computer: [1]:10hr, [2]:8, [3]:7, [4]:10, [5]:6, [6]:4, [7]:6, [8]:7, [9]:4, [10]:8. 40% NoIRs.
Stayed @ home in medium to low lux all week, w/ none or 40% NoIRs.
Indoors @ fluorescent lit: [2], 30 min, w/ ballcap + 10% NoIRs.
Outside @ night, car driving: [2], 30 min, w/ 10% NoIRs.
Outside @ night, car passenger: day [9]:30 min, w/ 10% NoIRs.
________________________________________________________________
Symptoms • All symptoms tolerable •
4 • fatigue (body wants more sleep/resting/down time; physical tasks are exhausting) day:[3][4]
2 • mood (hyper-sensitivity, irritability) day:[4]
2 • muscle tension (tension/pain, mid-back/shoulder/neck) day:[1][2][3][5][6]
1 • muscle spasms (an awareness of cramping, but at very low levels) day:[7][8][9][10]
Other Minor Symptoms (From most to least noticeable)
Sleep rhythm off; dizzy standing up; light sensitivity; irregular body ‘thermostat’; various minor skin eruptions/itchiness; dry/peeling lips; sinus drainage; irritation/sore throat; gummy/irritated eyes after sleeping; minor neuro symptoms; chemical sensitivity; stiffness in TMJ area.
Sleep: [1]:9hr, [2]:9, [3]:11, [4]:9, [5]:11, [6]:11, [7]:6, [8]:8, [9]:11, [10]:11.
________________________________________________________________
Comments
> Skin irritation, itchiness returned while at the tail-end of taking 50mg of Minocycline daily prior to starting phase 2. This was mostly resolved by day [3] of this first cycle in phase 2.
> Peak symptoms seemed to be fatigue and irritability on days [3] and [4].
> Light menstrual period days [6] to [9] with the usual faint cramping and minimal flow which is dark (as it has been these past few months) but with a bit more fluid. Still not what I would call a ‘real’ menstruation with appropriate fluid volume and expected brighter red color. It will be interesting to see what happens next month.
> I helped my husband remove our malfunctioning range hood and install a replacement on day [3] of this cycle. Lots of twisting and bending and using out of shape muscles in my arms and back. Had to lay down a couple times for recovery during the two hour long process. Right forearm muscles hurt the most for a couple of days afterwards. 
________________________________________________________________
Something to Celebrate
Things seem to be going along ok!Last edited on Wed Apr 9th, 2008 01:54 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Mon Mar 10th, 2008 08:30 |
|
Sunday, 9Mar08
~ 32 days in Phase 2 ~ 22 days in this cycle ~
________________________________________________________________
Light Exposure
Stayed @ home most of the time in medium to low lux, w/ none or 40% NoIRs.
Indoors @ fluorescent lit: {18}{21}:40 min, w/ hat + 10% NoIRs.
Outside @ night, car driving: {18}:40 min, w/ 10% NoIRs.
Outside @ night, car passenger: {13}{16}{21}:30 min, w/ 10% NoIRs.
Computer use, mostly with 40% NoIRs: {cycle day}:total number hours per day
{1}:12hr, {2}:5, {3}:5, {4}:10, {5}:15, {6}:11, {7}:5, {8}:2, {9}:2,
{10}:3, {11}:6, {12}:6, {13}:6, {14}:4, {15}:6, {16}:2, {17}:7, {18}:4,
{19}:5, {20}:6, {21}:6, {22}:8.
________________________________________________________________
Symptoms • All symptoms tolerable •
6 • neuro (emotional fragility, cognitive errors, nausea) day:{9} thru {16}
4 • insomnia (difficulty getting to sleep both at bedtime and after meds alarm) days:{1},{4} thru {19}
4 • neuro (histamine: skin itchy and/or burning, hyper-vigilance, nausea) days:{2}{3}
4 • muscle tension (tension/pain, back/neck/arms) days:{6} thru {8}
2 • muscle spasms (cramping, mostly in legs/back/neck) days:{ 1},{4} thru {8}
2 • joints (lots of clicking from various joints) days:{6} thru {8}
2 • neuro (emotional fragility, cognitive errors) days:{7}{8}
2 • other (intermittent pin prick sensations) days:{1}{19} thru {22}
2 • skin (face is dry, flaky, new bumps, etc.) days:{5} thru {22}
Other Minor Symptoms (From most to least noticeable)
Sleep rhythm off; light sensitivity; chemical sensitivity; sinus drainage; irritation/sore throat; dry/peeling lips; gummy/irritated eyes after sleeping; minor neuro symptoms; dizzy standing up; various minor skin eruptions/itchiness; irregular body ‘thermostat’; stiffness in TMJ area.
Sleep: {cycle day}:total number hours per day
{1}:6hr, {2}:14, {3}:11, {4}:6, {5}:6, {6}:7, {7}:16, {8}:9, {9}:10,
{10}:8, {11}:12, {12}:12, {13}:6, {14}:12, {15}:8, {16}:14, {17}:8,
{18}:11, {19}:7, {20}:12, {21}:11, {22}:5.
________________________________________________________________
Comments
> I have been noticing a pattern where exposure to direct light in my eyes (such as oncoming headlights at night) seems to lead to the onset of muscle spasms about an hour or so later. On the days when I don’t have any bright light inadvertently shine directly into my eyes, the muscles are fine.
> Used a tighter Benicar schedule q4h on days {10} thru {16} for insomnia and other neurological symptom relief. On day {17} I discovered that I could return to the q6h schedule if I added a half tablet of Benicar sublingual at each dose. By day {20} (the day after increasing the Mino dose) I found I no longer needed that either. Boy, I sure miss my brain when it takes an ‘inflammatory/healing vacation’ like it did this cycle!
> Increasing the Minocycline dose to 50mg on day {19} did seem to help modulate the immune response. 
________________________________________________________________
Something to Celebrate
Everything seems to be coming along just about as expected. So far, so good!
Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08
Last edited on Wed Apr 9th, 2008 01:54 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Mon Mar 10th, 2008 09:05 |
|
Palliatives notes:
- I have dropped the probiotics and the trace ionic minerals as of this month.
- I have switched back to the steviaclear liquid drops for my sweetner of choice because the steviaplus (powder w/ inulin) didn't seem to be agreeing with me (maybe?).
- I haven't used the C-Spot cream more than 2 or 3 times over the last four months. However, with my new skin symptoms (mostly dryness), I have used BabySilk lotion a couple of times on my face.
- I continue to use the 'swing machine' and the natural bristle brushing for improved circulation as I am not able to exercise at this point.
- Also, I have not needed the coldeeze, sugarfree, zinc lozenges lately, but the post nasal drip can get to me occasionally, so they remain in my 'toolkit' for now.
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Thu Mar 13th, 2008 01:20 |
|
Just for the record:
I have been having significant difficulty getting to sleep before 6am each morning and it doesn’t really matter when I ‘decide’ I need to go to sleep by. Usually this has not been a problem because I do not work outside the home. But recently I have had a need to be available at an earlier hour due to family circumstances. So, this past two nights I have tried out the use of a larger dose of Valium at bedtime just to see if I really could get to sleep when I need to. Day {1} of this cycle: I first tried 5 tablets of 2mg each (crushed and swallowed) at bedtime. It worked very well to help me get to sleep and stay asleep. In fact, I think a much smaller dose would have been sufficient for the same effect. However, some time in the early morning my muscles in my right leg/foot cramped so hard that I leapt out of bed from a dead sleep. (So much for helping with muscle spasms, but then again, there were light issues involved--as mentioned before.)
Day {2} of this cycle: I then tried a single 10mg tablet (crushed and swallowed). This pill did not pack the same ‘punch’ and I am still convinced that somehow that my 10mg Valium tablets are inferior to the 2mg tablets (but hopefully they are not counterfeit).
I don’t plan to use these high of doses on a regular basis, but I just had to try an experiment like this once to determine what to use if and/or when I experience additional intolerable insomnia.
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Thu Mar 20th, 2008 08:42 |
|
Wednesday, 19Mar08
~ 42 days in Phase 2 ~ 10 days in this cycle ~
________________________________________________________________
Light Exposure
Stayed @ home most of the time in medium to low lux, w/ none or 40% NoIRs.
Indoors @ medium lit: {5}:3 hr, w/ hat + 40% NoIRs.
Outside @ night, car driving: {5}:20 min, w/ hat + 10% NoIRs.
Indoors @ fluorescent lit: {1}:20 min, w/ hat + 10% NoIRs.
Outside @ night, car passenger: {1}:30 min, w/ 10% NoIRs.
Computer use, mostly with 40% NoIRs: {cycle day}:total number hours per day
{1}:3, {2}:10, {3}:5, {4}:6, {5}:10, {6}:6, {7}:7, {8}:6, {9}:6, {10}:6.
________________________________________________________________
Symptoms • All symptoms tolerable •
4 • insomnia (difficulty getting to sleep: at bedtime and after meds alarm) days:{7} thru {10}
4 • muscle tension (tension/pain, back/neck/arms) days:{2}{5} thru {9}
4 • lymph (numbness/pain in arms upon waking; swelling under jawbone) days:{8} thru {10}
2 • muscle spasms (cramping, mostly in legs/back/neck) day:{2} (before extra Valium)
2 • eyes (need 1.25+ reading glasses, only right after waking) days:{3} thru {10}
2 • joints (pain in finger joints) days:{1}{9}
Other ‘baseline’ symptoms (From most to least noticeable)
Sleep rhythm off (hard to sleep before 6am); light sensitivity; chemical sensitivity; sinus drainage; irritation/sore throat; dry/peeling lips; gummy/irritated eyes after sleeping; skin: face dry, random itchiness (histamine), various minor eruptions; minor neuro symptoms; dizzy standing up.
Sleep {cycle day}:total number hours per day
{1}:9, {2}:10, {3}:10, {4}:14, {5}:7, {6}:10, {7}:10, {8}:8, {9}:15, {10}:13.
________________________________________________________________
Comments
> I had very little IP on days {1} thru {7} with the lower dose of the phase 2 antibiotic (half of the dose used last cycle). So, on day {7} I increased the Minocycline from 50mg to 75 mg to see if I would get more IP. And it didn’t take long for the symptoms to bump up a notch! … I have had a harder time staying asleep (the only medication that eventually gets me to sleep is 20mg Benicar sublingual), my skin is more itchy—not all the time, but noticeably more often—and my neck and lower back have had less tolerable stiffness/tension/pain.
> Today (Wednesday) is day {10} of this cycle. However, I have decided to move up when I take my antibiotics to 4 pm today to see if it works better for trying to sleep before 6am. So, today is also day {1} of my new cycle.
________________________________________________________________
Something to Celebrate
Positive changes in symptoms...
- much less stiffness in TMJ area;
- menses flow much closer to “normal” last week (days {2} thru {5}) with only minor cramping;
- body ‘thermostat’ seems to be more regular in that there haven’t been the typical ‘heat waves,’ and often my body temperature is better than it’s usual feeling of being cold all the time.
Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08Last edited on Wed Apr 9th, 2008 01:55 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sat Mar 29th, 2008 08:30 |
|
Friday, 28Mar08
~ 52 days in Phase 2 ~ 10 days in this cycle ~
________________________________________________________________
Light Exposure
Stayed @ home most of the time in medium to low lux, w/ none or 40% NoIRs.
Outside @ night, car passenger: {2}{10}:20 min, w/ hat + 10% NoIRs.
Indoors @ fluorescent lit: {2}:10 min, w/ hat + 10% NoIRs.
Outside @ night, car driving: {3}{6}:20 min, w/ hat + 10% NoIRs.
Indoors @ low lit: {3}{6}{10}:3 hr, w/ no NoIRs.
Computer use, mostly with 40% NoIRs: {cycle day} total number hours per day
{1} 13, {2} 2, {3} 14, {4} 10, {5} 6, {6} 10, {7} 10, {8} 9, {9} 7, {10} 11.
________________________________________________________________
Symptoms • All symptoms tolerable •
4 • sleep (difficulty getting to sleep, staying asleep before 6am) days: {2} thru {5}{8} thru {10}
4 • muscles (twitches/tension/pain: neck/back/arms) days: {7} thru {9}
4 • oral (small fistula; above upper right molar) days: {9} thru {10}
2 • dental (swelling around upper right molar; pain when used) days: {5} thru {10}
2 • fatigue (even simple activities are difficult) days: {4} thru {8}
2 • neuro (cognitive errors, some emotional fragility) days: {4} thru {10}
Other ‘baseline’ symptoms (From most to least noticeable)
Sleep rhythm off (awake ~4pm to ~6am); sinus drainage; irritation/sore throat; fatigue; light sensitivity; chemical sensitivity; dry/peeling lips; gummy/irritated eyes after sleeping; skin: face dry, random itchiness (histamine), various minor eruptions; minor neuro symptoms; dizzy standing up.
Sleep {cycle day} total number hours per day
{1} 6, {2} 10, {3} 3, {4} 5, {5} 12, {6} 9, {7} 7, {8} 11, {9} 9, {10} 5.
________________________________________________________________
Comments
> First day of new cycle I had no muscle tension/pain, even while doing the laundry and working in the kitchen. This felt almost too good to be true. Sadly, it did not last past day {6}.
> Short episode of tinnitus just a couple of times in the early part of this cycle.
> Some minor IP around upper right molar with a fistula developing (sort of a lesser repeat of last October’s dental IP).
> I have decided to not fight the sleep cycle issues right now and I am mostly awake ~4pm to ~8am. Kind of like working the night shift.
> My symptoms of IP are kind of subtle and could be overlooked, but they are very real indications that even this tiny amount of antibiotics is enough for forward progress on the MP.
________________________________________________________________
Something to Celebrate
Today is my birthday. I sure have a lot to be grateful for. I'm especially grateful for my better half, who is putting up with so much during these past 9 months I've been on the MP. Today, he made sure that my 'day' arrived with a nice card, 2 dozen red roses and a simple steak dinner at my favorite Argentinian steakhouse.
Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08
Last edited on Wed Apr 9th, 2008 01:55 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Sun Mar 30th, 2008 09:19 |
|
Conditions originally listed in my signature line, progress: - Neuro - biggest area of IP* ~70% improvement when IP is low
- Skin - nonspecific contact dermatitus was my first symptom ~90% improvement all the time
- Fatigue - another strong area of IP ~50% improvement when IP is low
- Dental - two acute episodes of IP on MP ~90% improvement when IP is low
- TMJ - jaw stiff/painful at start of MP ~90% improvement when IP is low
- Bladder - pain, frequency, 2 UTIs last year ~90% improvement when IP is low
- Vision - vision varies over each day ~30% improvement some of the time
- Eyes - blepharitus diagnosis at start of MP ~100% improvement all of the time
*IP = herx, immunopathology
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Tue Apr 8th, 2008 07:53 |
|
Monday, 7Apr08 ~ 62 days in Phase 2 ~ 10 days in this cycle ~
________________________________________________________________
Light Exposure
Stayed @ home most of the time in medium to low lux, without NoIRs.
Nighttime in car: days {5}{7}{8} 20 min, w/ hat + 2% NoIRs.
Indoors, medium lit: day {8} 2 hr, w/ hat only.
Indoors, fluorescent lit: day {8}:20 min, w/ hat + 10% NoIRs.
Computer use, mostly without 40% NoIRs: {cycle day} total number hours per day
{1} 5, {2} 12, {3} 7, {4} 10, {5} 3, {6} 7, {7} 8, {8} 14, {9} 10, {10} 11.
________________________________________________________________
Symptoms • All symptoms tolerable •
4 • sleep (up at night, sleeping during day) days:{all}
4 • muscles (twitches/tension/pain: neck/back/arms) days:{1}{2}{5}{7} thru {10}
4 • joints (pain; different joints at different times; hip, knee, finger, TMJ) days:{1}{2}{5} thru {10}
4 • oral (small fistula; above upper right molar; resolved now) day:{1}
4 • sinuses (heavy drainage; irritated/sore throat) day:{5}
2 • dental (swelling around upper right molar) days:{1} thru {5}
2 • dental (jaw clenching at night, tooth sensitivity after) days:{4} thru {8}
Other ‘baseline’ symptoms (From most to least noticeable)
Sleep rhythm off (up nights, sleep days); minor neuro symptoms; dizzy standing up; jaw clenching; fatigue; sinus drainage; irritation/sore throat; chemical sensitivity; dry/peeling lips; gummy/irritated eyes after sleeping; skin: face dry, random itchiness (histamine), various minor eruptions; light sensitivity.
Sleep {cycle day} total number hours per day
{1} 15, {2} 4, {3} 12, {4} 11, {5} 10, {6} 11, {7} 8, {8} 7, {9} 6, {10} 7.
________________________________________________________________
Comments
> I have given up trying to drive myself, even at night, and have changed from using 10% NoIRs when in car at night to 2% NoIRs. I just can’t take the brightness of the oncoming headlights. Too many neurological symptoms following each incident of this kind of light exposure.
________________________________________________________________
Something to Celebrate
All the great folks that make the MP study site the most
patient accessible, caring, and affordable (donations only)
place to pursue recovery when all the standard medical
tests and methods have failed those of us who are chronically ill !!!
Starting dates: Benicar: 1Jul07, Ph1: 12Jul07, ModPh1: 14Sep07, Ph2: 8Feb08Last edited on Wed Apr 9th, 2008 01:46 by
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Fri Apr 11th, 2008 19:15 |
|
Update: D25 Test Results
Test #1 04Jun07 25D= 32 ng/mL {Pre-MP, D supplemented}
Test #2 06Aug07 25D= 26 ng/mL {2 months, avoid D/sun; 1 month on MP}
Test #3 05Oct07 25D= 39 ng/mL {3 months on MP}
Test #4 05Dec07 25D= 27 ng/mL {5 months on MP}
Test #5 05Feb07 25D= 29 ng/mL {7 months on MP}
Test #6 05Apr07 25D= 18 ng/mL {9 months on MP}
My thoughts:
There were a bunch of posts earlier in this thread about why Test #3 was higher and maybe it was some bad food choices (Caesar salads) possibly combined with a supplement with undeclared D in it. But I guess we will never know for sure.
I haven't felt concerned about small +/-3 unit changes because I think the margin for getting different results, based on handling and storage is probably that large. But I am happy to see it finally make a major move lower this last test.
I've been kind of strict about having this test done exactly every two months apart, mostly because I was curious to see if there was some meaningful type of "curve" to the change in 25D levels. (Didn't happen.)
____________________
Lyme Babs Bart - 125D50 Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 - cal/mag lysine hydroxyzine valium - rarely leave house NoIRs cover up low lux home - 25D17 Jul08
|
Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | West Coast, USA |
| Posts: | 561 |
| Status: |
Offline
|
|
Posted: Thu Apr 17th, 2008 14:50 |
|
This is a mid-cycle update...
Wednesday, 16Apr08 ~ 71 days in Phase 2 ~ 9 days so far in this cycle ~
________________________________________________________________
Light Exposure
Stayed @ home most of the time in medium to low lux, without NoIRs.
Daytime in car: {8} 20 min, w/ hat + 2% NoIRs for doctor appointment.
Indoors, fluorescent lit: {8} 40 min, w/ hat + 10% NoIRs.
Computer use, mostly without 40% NoIRs: {cycle day} total number hours per day
{1} 10, {2} 4, | | |
