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Joyful
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| Location: | Restville, Again |
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Posted: Wed Mar 25th, 2009 10:14 |
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Saturday, 21Mar09 ~ 233 days in Phase 3 ~ Cycle 22, day {8}
MP Meds 40mg Beni: q4h ~ 100mg Mino q48h
+ very low doses of the other two main Phase 3 antibiotics
_________________________________________________________________________
Palliative Meds
Extra Benicar: 20mg, sublingual, 1x on day: {4} 
_________________________________________________________________________
Light Exposure
Staying @ home; Most of the time in low to medium lux, rarely NoIRs.
Trips out on days {3}{4}. Direct sun only to/from buildings.
All usual coverings, precautions.
_________________________________________________________________________
Symptoms
4 • muscle (pain, spasms, fatigue)
~ levels by day: 4/2/4/4/4/4/4/4
6 • neuro (hypersensitivity, cognitive, insomnia)
~ levels by day: 6/6/6/6/6/6/6/6
6 • lymph (stiff neck, arms numb a.m., swelling)
~ levels by day: 4/4/4/2/4/6/4/6
• all additional symptoms at level 3 or less •
Additional symptoms (From most to least noticeable)
Numbness on right side of face; right eye droopy or more open than left; very dry skin; word salad (writing or typing wrong letters in words); mid-back pain that increases with activity; numbness in arms upon waking in morning; tire easily from simple activities; short periods of joint pain (fingers, hips); TMJ muscles tight, also clenching of teeth; not rested after sleeping; light sensitivity; watery/stinging eyes after sleeping; post nasal drip; swelling around upper right molar; irritable bladder; dry lips; dizziness on standing; skin: lower legs itchy, various minor eruptions.
Sleep {cycle day} total number hours past 24-hr period
{1} 9, {2} 9, {3} 9, {4} 8, {5} 9, {6} 9, {7} 10, {8} 11.
_________________________________________________________________________
> In follow-up of the high TSH level in January, along with the DEXA bone scan results, I met with an endocrinologist on the 17th. After quite a long discussion of my history and what a high PTH meant (no, not a deficiency of D, a deficiency of Calcium, thank you). I pretty much made my point when their tests of my PTH levels dropped from 78 to 28 in about 2 1/2 weeks--after adding the supplemental calcium. Guess I have enough 1,25-D to properly absorb the calcium even with my measured 'deficiency' of serum 25-D after all!
> Treatment note: For all of my recent doctor visits (especially the E.R.) visit, I have been bringing in a page I typed up that details all of my medications, doses, etc. Because my primary health care provider is now using electronic records, the doctors are required to review each patient's medications during each encounter. Having this sheet to hand them makes their job easier and they then have more time for the interview. They seem to really appreciate it. (I will try to post an example sometime soon.)
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Something to Celebrate
• I seem to be doing a little better this past cycle.
• Thank you for all the support during the 'excitement' recently. 
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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BARNEY
Moderator
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Posted: Wed Mar 25th, 2009 19:06 |
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Joyful,
What a wonderful report, you did great at the er with all the great info you took with youl
Great advice to take written records of meds to er and to our docs, I hope everyone picks up on them.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Joyful
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| Location: | Restville, Again |
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Posted: Thu Apr 2nd, 2009 03:44 |
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Thanks Barney.
Makes me think of my old motto ... "I wasn't born organized, I got this way in self-defense!" 
I think that since my 25-D levels got low enough to get my immune function rolling, I'm really just learning how much I need the 'brakes' on this train. I used to 'get away' with pushing a little bit, but now the word caution has taken on a whole new level of important to me.
It really helps to remember that on the MP, the "big guns" are not the antibiotics, or even the Benicar, it' our own body's immune system. Once that is working, look out!
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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BARNEY
Moderator
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Posted: Thu Apr 2nd, 2009 03:57 |
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Amen to that, Joyful.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Joyful
Board Staff
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| Location: | Restville, Again |
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Posted: Thu Apr 2nd, 2009 07:58 |
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Tuesday, 31Mar09 ~ 243 days in Phase 3 ~ Cycle 23, day {10}
MP Meds 40mg Beni: q4h ~ 100mg Mino q48h
+ very low doses of other Phase 2 antibiotic
_________________________________________________________________________
Palliative Meds
Extra Benicar: 20mg, sublingual, 1x on day: {4}{9}
Extra Valium: 0.67mg, 1-2x on day: {5}{7}{9}
Extra Hydroxyzine: 12mg, 1x on day: {8}{9}
Coldeeze Zinc Loz: 1 tablet, disolved in mouth, 2-4x on day: {2}{3}{10}
Freq Mino: 50mg, q12h on day: {4} thru {10}
_________________________________________________________________________
Light Exposure
Staying @ home; Most of the time in low to medium lux, rarely NoIRs.
Trips out on days {4}{9}. Direct sun only to/from buildings.
All usual coverings, precautions.
_________________________________________________________________________
Symptoms
8 • muscle (pain, spasms, fatigue)
~ levels by day: 4/6/6/6/6/6/4/6/6/8
8 • neuro (hypersensitivity, cognitive, insomnia)
~ levels by day: 6/6/6/8/6/6/6/6/6/6
8 • lymph (stiff neck, arms numb a.m., swelling)
~ levels by day: 6/4/8/8/8/8/6/4/6/6
• all additional symptoms at level 3 or less •
Additional symptoms (From most to least noticeable)
Numbness on right side of face; right eye more open than left; very sore throat; right ear swelling/pain; very dry skin; word salad (writing or typing wrong letters in words); mid-back pain that increases with activity; muscle cramps/spasms; numbness in arms upon waking in morning; tire easily from simple activities; TMJ muscles tight, also clenching of teeth; flu-like achyness; trouble getting to sleep; not rested after sleeping; strong need for order; light sensitivity; watery/stinging eyes after sleeping; post nasal drip; swelling around upper right molar; dry lips; dizziness on standing; skin: lower legs itchy, increase in minor eruptions; irritable bladder; short periods of joint pain (fingers, hips).
Sleep {cycle day} total number hours past 24-hr period
{1} 9, {2} 10, {3} 11, {4} 4, {5} 12, {6} 7, {7} 8, {8} 12, {9} 12, {10} 12.
_________________________________________________________________________
> Tried 9mg of 3rd antibiotic on days {1} and {3}. Things started to go intolerable & I had a special event planned for day {7}, so I began frequent Minocycline in the later part of day {4} to see if I could get some relief. It kinda/sorta helped. I think I’m going to drop that antibiotic completely for a couple of cycles just to try to find some relief from the neurological symptoms.
> I discussed with my doctor the difference between Bell’s Palsy and a hemiplegic migraine. He made it quite simple to discern. “It’s the eyebrows,” he stated. If the eyebrows move it’s a migraine—a malfunction in the brain itself. If the eyebrows don’t move, it’s Bell’s Palsy—a malfunction of the nerve bundle outside the brain that controls facial movement. My eyebrows move, so I guess I get to keep the migraine label for a little while longer.
> Following the special event on day {7} there have been three days of complete ‘down.’ I guess it’s time to expect things to start looking up pretty soon.
_________________________________________________________________________
Some things to Celebrate
• Life. Breath. Wonder.
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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Joyful
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Posted: Mon Apr 13th, 2009 05:32 |
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Friday, 10Apr09 ~ 22nd Month on MP ~ Cycle 24, day {10}
MP Meds 40mg Beni: q4h ~ 100mg Mino q48h
+ very low dose of other Phase 2 antibiotic
_________________________________________________________________________
Palliative Meds
Extra Benicar: 20mg, sublingual, 1 on days: {2}{6}{8}
Valium: 0.67mg @ bedtime; plus 1-2 on days: {2}{7}{9}
Hydroxyzine: 12mg @ bedtime; plus 1-2 on days: {2}{9}
Coldeeze Loz: 1-2 on days: {1}{4}{6}{7} for sore throat
_________________________________________________________________________
Light Exposure
Staying @ home with mostly very low lux; NoIRs indoors rarely.
Trips out on days {2}{6}{8}. Usual 98% NoIRs, coverings, etc.
_________________________________________________________________________
Symptoms
8 • muscle (pain, spasms, fatigue)
~ levels by day: 6/6/6/8/8/6/6/4/4/8
8 • neuro (hypersensitivity, cognitive, insomnia)
~ levels by day: 4/6/8/6/6/6/6/8/8/6
6 • lymph (stiff neck, arms numb a.m., swelling)
~ levels by day: 6/4/6/6/6/4/2/2/6/6
• all additional symptoms at level 3 or less •
Additional symptoms (From most to least noticeable)
Numbness on lower right side of face; light sensitivity; painful muscle cramps and/or spasms; mid-back pain that increases with activity; dizziness after change in elevation; numbness in arms upon waking in morning; very cold feet/hands; feel best if feet are up almost all the time; tire easily from simple activities; word salad (writing or typing wrong letters in words); swelling around upper right molar; dry lips; right eye more open than left; sore throat; right ear swelling/pain; dry skin; TMJ muscles tight; trouble getting to sleep; not rested after sleeping; blurry vision that comes and goes; visual migraines; minor nausea, lowered appetite; desire for things to be in order; crusty eyes after sleeping; post nasal drip; skin: itchy, especially above ankles, increase in minor eruptions; short periods of joint pain (fingers, knees, hips).
Sleep {cycle day} total number hours past 24-hr period
{1} 12, {2} 11, {3} 10, {4} 9, {5} 12, {6} 6, {7} 10, {8} 5, {9} 15, {10} 11.
_________________________________________________________________________
> After discovering that my lowered ability for food prep has left me short of the RDA for calcium & some other minerals, I have added supplementation (calcium, magnesium, selenium, zinc) until I am able to get around enough again to prepare/consume sufficient amounts in my diet.
> I am still trying to find some relief from the higher level of neurological symptoms that I've been experiencing. Stopping just one antibiotic doesn't seemed to be enough. I'll try going to just Minocycline for a while to see if the symptoms ease up. I would like to get to the place where I can lower the Benicar to q6h while staying well within the tolerable range for symptoms.
> All three outings were unavoidable, but it took a lot out of me each time.
_________________________________________________________________________
Some things to Celebrate
• People who help me when I need it.
• Rest in the journey.
• The hope of resurrection.
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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marion villa
Member in Phase 3
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Posted: Mon Apr 13th, 2009 22:40 |
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Go, go, go!!!
marion
____________________
Lupus, RA, erythema nosodum, skin ulcers, MP 11/07, voltaren, paracetamol , ,Tylex w/codeine, NoIRs, limited outings covered up,Ph 2 /20 april 2008, 25D<4ng, ph 3/ 22 oct 2008.
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Joyful
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Posted: Tue Apr 14th, 2009 06:18 |
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Thanks Marion. It is so nice to have friends cheering a person on.
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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Joyful
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Posted: Sun Apr 26th, 2009 08:40 |
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Monday, 20Apr09 ~ 22nd Month on MP ~ cycle 24, day {20}
_________________________________________________________________________
Light Exposure
Staying @ home with mostly very low lux; NoIRs indoors rarely.
Trips out on days {13}{16}{17}, unavoidable. Usual 98% NoIRs, coverings, etc.
_________________________________________________________________________
Symptoms
8 • muscle (pain, spasms, fatigue)
~ levels by day: 8/6/4/6/4/6/2/6/4/4
8 • neuro (hypersensitivity, cognitive, insomnia)
~ levels by day: 8/8/6/6/4/6/4/6/6/6
6 • lymph (stiff neck, arms numb a.m., swelling)
~ levels by day: 6/6/6/4/4/6/4/6/6/4
Additional symptoms (From most to least noticeable)
Numbness on lower right side of face; light sensitivity; painful muscle cramps and/or spasms; mid-back pain that increases with activity; dizziness after change in elevation, also 'heart-beat in ears' sensations; numbness in arms during sleep; very cold feet/hands; temperature dysregulation; feel best if feet are up almost all the time; tire easily from simple activities; word salad (writing or typing wrong letters in words); more frequent periods of joint pain (fingers, knees, hips); dry lips; right eye more open than left; right ear swelling/pain; TMJ muscles tight, jaw tires quickly when chewing; trouble getting to sleep; not rested after sleeping; crusty eyes after sleeping; post nasal drip; blurry vision that comes and goes; visual migraines; desire for things to be in order; minor nausea, lowered appetite; skin: itchy, especially above ankles, increase in minor eruptions.
Horizontal Time {cycle day} total hours per day
{11} 10, {12} 14, {13} 16, {14} 15, {15} 17,
{16} 13, {17} 15, {18} 17, {19} 16, {20} 12.
_________________________________________________________________________
> The current high level of palliative medications has allowed me to try lowering the Benicar to q6h the last three days of this reporting period.
> I'm starting to feel like the extra "horizontal time" combined with the frequent mino and other palliation is helping me to recover back to more tolerable levels of symptoms.
_________________________________________________________________________
Some things to Celebrate • Love • Joy • Peace
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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BARNEY
Moderator
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Posted: Mon Apr 27th, 2009 04:28 |
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Joyful,
Glad you are getting more tolerable IPs.
I have also had sleep problems, last week I slept for 36hrs....got up for 4hr...then slept for 12 more hours...just could not hold my eyes open and now I am back to your kind of sleep....little sleep but also not rested. Guess, we have to go thru all the sleeping IPs.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Joyful
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Posted: Mon Apr 27th, 2009 06:22 |
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Thank you Barney.
I was tracking hours slept before. But now I'm trying to record hours with my feet up (i.e., laying down) because I'm being more attentive to that. Especially with the new information about weakness in the left ventricle of the heart. I figure it is good to make sure all of the tissues are getting the improved circulation that comes from getting my feet up.
I'm trying to 'adjust' to my new lowered level of activity. I am feeling frustrated today because of how little I can 'get done' right now. Oh well! 
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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BARNEY
Moderator
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Posted: Mon Apr 27th, 2009 07:26 |
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Joy,
You know I think that one IP that is never talked about on the MP site, is PATIENCE.
We are so anxious to get well, that patience is hard to come by. Laying around resting is not how we pictured our lives. But we will be okay and do what we need.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Joyful
Board Staff
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Posted: Fri May 1st, 2009 11:20 |
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Thursday, 30Apr09 ~ 22nd Month on MP ~ cycle 24, day {30}
_________________________________________________________________________
Light Exposure
Staying @ home with mostly very low lux; NoIRs indoors rarely.
Trip out on day {29}. Usual 98% NoIRs, coverings, etc.
_________________________________________________________________________
Symptoms
8 • muscle (pain, spasms, fatigue) ~ levels by day: 4/4/4/4/6/6/4/8/8/6
6 • neuro (hypersensitivity, cognitive) ~ levels by day: 4/4/4/6/6/6/6/4/6/6
6 • lymph (stiff neck, swelling, etc.) ~ levels by day: 4/4/4/6/6/4/4/4/4/4
Additional symptoms (From most to least noticeable)
Physically tire easily from even simple activities; feel best if feet are up all the time; timing of sleep cycles off; not rested after sleeping; muscle cramps, spasms, or tremors; dizziness after change in elevation; hypersensitivity to light, sound, smells, heat, or motion; muscles tight, especially neck, face, shoulders; mid-back pain that increases with even minimal activity; mentally tire quickly; very cold feet/hands; skin: itchy, ‘pin pricks’, minor eruptions, sandy/gritty; blurry vision that comes and goes ; intermittant joint pain (fingers, toes, knees, or hips); heart pounding in ears with or without activity; temperature dysregulation; dry and/or peeling lips; numbness on lower right side of face; right eye seems more blurry than left (visual migraine?); word salad (writing or typing wrong letters in words); swelling around upper right molar; post nasal drip; crusty and/or irritated eyes after sleeping; shortness of breath; numbness in arms upon waking from sleep; minor nausea, lowered appetite; desire for things to be in order.
Time w/ feet up ~ total hours by day: / 20 / 20/ 20 / 20 / 20 / 22 / 23 / 23 / 22 / 22 /
_________________________________________________________________________
> Lowering the Benicar to q6h turned out to be a bad idea. The symptoms levels were far too high, especially with what is apparently some heart involvement in the IP/herx. So, I'm following the wisdom in the MP guidelines and returning to Benicar q4h until these symptoms are no longer evident. Also early in this period I was so tired I slept through my alarms and went over 8 hours between doses. This must have added to my higher symptom levels too
> Now that I am either in bed, or sitting where I can have my feet up all of the time, it seems like the migraine symptom levels are starting to back down slightly. It probably helps that my home is very quiet and very low lux, and that I only had one very short trip out this week.
> The dosing of the Minocycline varied from every 24 hours to one 48 hour period (skipped day 5), to every 12 hours (starting on day 6). It seems like the Minocycline is not actually providing the anti-inflammatory effect as strongly as it has in the past.
_________________________________________________________________________
Plan: Continue with only Benicar plus Minocycline for a little while longer.
_________________________________________________________________________
Some things to Celebrate
• Enduring hope • A loving family • The truth prevailing
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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Joyful
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Posted: Mon May 11th, 2009 04:17 |
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Sunday, 10May09 ~ 23rd Month on MP ~ cycle 24, day {40}
Light Exposure
Staying @ home with mostly very low lux; NoIRs indoors rarely.
Trip out on day {32}{34}{36}. Usual 98% NoIRs, coverings, etc.
_________________________________________________________________________
Symptoms
8 • muscle (pain, spasms, fatigue) ~ levels by day: / 6 / 4 / 2 / 4 / 6 / 6 / 8 / 8 / 8 / 8 /
10 • neuro (hypersensitivity, cognitive) ~ levels by day: / 6 / 4 / 6 / 6 / 6 / 8 / 10/ 10/ 10/ 10/
8 • lymph (stiff neck, swelling, etc.) ~ levels by day: / 6 / 4 / 4 / 4 / 4 / 6 / 4 / 8 / 8 / 8 /
Additional symptoms (From most to least noticeable)
Physically tire easily from even simple activities; feel distressed when feet are not kept elevated; mid-back pain that increases with even minimal activity; heart pounding in ears with or without activity; muscles tight, especially neck, face, shoulders; not rested after sleeping; mentally tire quickly; temperature dysregulation; word salad (writing or typing wrong letters in words); dizziness after change in elevation; muscle cramps, spasms, or tremors; hypersensitivity to light, sound, smells, heat, or motion; GI upset, minor nausea, or lowered appetite; intermittent joint pain (fingers, toes, knees, or hips); skin: itchy, ‘pin pricks’, minor eruptions, sandy/gritty; timing of sleep cycles off; numbness in arms upon waking from sleep; dry and/or peeling lips; blurry vision that comes and goes; shortness of breath; migraine: visual, numbness, tightness at back of head; emotional fragility; very cold feet/hands; post nasal drip; crusty and/or irritated eyes after sleeping; desire for things to be in order.
Time w/ feet up ~ total hours by day: / 23 / 20 / 22 / 20 / 23 / 22 / 24 / 24 / 24 / 23 /
_________________________________________________________________________
> Started this 10 day period with Minocycline dosing of q12h. On the forth day I only took the first (4am) dose and then did not take the second as part of the plan to return to q48h dosing. However, I had a major GI upset late Wednesday night (day 6) and so did not take any more Minocycline until I resumed the q12h dosing today (day 10).
> My symptom levels have been pretty high since late Wednesday night. I can’t sort out if it was a stomach flu, a bad food reaction, a migraine triggered by fluorescent lights at a local store I briefly shopped at late in the evening, or a very unusual IP/herx flare. All I know is that I ache all over and have stayed in bed just about all the time since then.
> I stopped taking everything ‘extra’ since the GI upset. I did not stop the hydroxyzine and valium because I simply don’t go to sleep or stay asleep without them.
_________________________________________________________________________
Some things to Celebrate
• Ice cream in the freezer • Power bill paid up so the ice cream stays cold
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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BARNEY
Moderator
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Posted: Mon May 11th, 2009 04:29 |
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Hello Joyful,
Is your Benicar 40mg/4hrs and 20mg sublingual?
HANG IN THERE, WE WILL MAKE IT!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Joyful
Board Staff
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Posted: Mon May 11th, 2009 05:51 |
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Hi Barney!
Yes, it's Benicar q4h (every 4 hours), plus between 10mg to 20mg sublingual when I've really got to do more than just lay in bed waiting to feel better. 
I guess I'd better follow the guidelines if I'm going to try to give support to others in the same kettle!
After the dust settles a little more I hope to experiment around with the Minocycline to try to see more clearly where my immune system status really is at.
Any words of wisdom from someone with as much experience as you is very, very welcome!
____________________
Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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BARNEY
Moderator
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Posted: Mon May 11th, 2009 06:10 |
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Joyful,
Sometimes things will come to me when I read....so I am going to reread your last few posts and see if anything comes to mind that might help you.
In the meantime...enjoy that bed break you are getting...if we come up with an answer, it may be the last rest you get. LOL
HANG IN THERE, WE WILL MAKE IT!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Limburg
Member in Phase 2
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Posted: Mon May 11th, 2009 21:34 |
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Hi Joyful !
I don't have as much experience as many here, especially Barney, but Im glad your ice cream stays cold Hope you'll soon enjoy it!
I wish you all the strength you need,
Annemarie
____________________
MS,DX 1997,Auto-immune hepatitis,DX 2008, MP start jan.2009. 25D: 20.4 (october 7,2009)
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BARNEY
Moderator
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Posted: Tue May 12th, 2009 03:01 |
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Joyful,
I chuckled when I read your Things to Celebrate
Ice Cream Paid electric bill to keep ice cream cold
You are thinking on the same wave as me. I buy Breyers Low Carb (no eggs). Can't live w/o it. lol
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
|
Joyful
Board Staff
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Posted: Tue May 12th, 2009 03:38 |
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Hi Barney & Annemarie.
Glad we are on common ground when it comes to the finer things in life!
Barney: As for looking over my history, you may want to look at my phase 3 thread too.
I'm going to try to type a quick summary here as well...
All 25D Test Results:
Test #1 04Jun07 25D= 32 ng/mL {Pre-MP, D supplemented}
Test #2 06Aug07 25D= 26 ng/mL {1 month on MP}
Test #3 05Oct07 25D= 39 ng/mL {3 months on MP}
Test #4 05Dec07 25D= 27 ng/mL {5 months on MP}
Test #5 05Feb08 25D= 29 ng/mL {7 months on MP}
Test #6 05Apr08 25D= 18 ng/mL {9 months on MP}
Test #7 12Jul08 25D= 17 ng/mL {11 months on MP}
Test #8 24Oct08 25D= 15 ng/mL (16 months on MP)
Test #9 07Jan09 25D= 11 ng/mL (18 months on MP)
Test #10 05Apr09 25D= 9 ng/mL (21 months on MP)
MP history:
Phase 1 – M only, 2.5 months from July07-Sep07 [25D very high]
ModPh1 – De+C, 2.5 months from Sep07-Nov07 [25D very high]
ModPh2 – M+C, 2 months from Dec07-Jan08 [25D very high]
Phase2 – M+Z, 2.5 months from Feb08-Apr08 [25D high]
Break – Benicar only, end of Apr08 [25D coming down]
Restart – M+Z, 1.5 months from Jun08-Jul08 [25D same]
Phase 3 - Z+M+C, extremely low doses Aug08-now [25D dropping]
Since the 25D has come into the optimal theraputic range (below 12) around the start of the year, my symptoms during IP have strongly increased.
I have always suspected neuro and cardio involvement. Now that the IP/herx has brought those symptoms above the 'subclinical' levels that only I seemed to detect, they now have actually shown up on tests (MRI showing lesions, ECG showing abnormalities, Cardio showing low stroke and volume output).
These kinds of IP are actually a welcome thing to me because I really want to reverse this disease process now... before it gets worse.
I'm willing to go back to the begining in a way by returning to 'phase 1' at this point. I don't feel this incredible need to push my body beyond it's ability to flush out the debris left from all of this 'trench warfare' at the cellular level.
Thanks again.
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Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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