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CelticLadee
inactive member
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Posted: Thu Oct 28th, 2004 22:30 |
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08/03/04 - started Benicar 40 mg. q6h
08/17/04 - started Minocycline 3mg. q48h
Later. Moderators Note: These low Mino doses are no longer recommended.
10/26/04 - started Quercetin 400mg. as needed.
Now at 37.5 Minocycline
Other places to read my progress reports:
Benicar only:
http://www.marshallprotocol.com/forum19/296-1.html
Full protocol:
http://www.marshallprotocol.com/forum20/450-1.html
DAY 71 FULL PROTOCOL + QUERCETIN:
(Tues. night 8 pm. - Wed. - 10/26/04-10-27/04.
8pm. took my second dose of 37.5 mg. of Minocycline
I didn't feel a big impact like the first time I took this dose. I have been noting that the first dose of an increase I can feel a herx from 1-2 hours afterward. Usually woozy head, strange overall body sensation of pressure especially in the abdomen and chest area and my right knee often begins to ache. The right temple area on my head often becomes numbish where prior to and first doing MP it would ache.
Sleep: Could not go to sleep. I was so wired I just tossed and turned. Finally at 11:30 pm. I just couldn't take it NO MORE so decided to try taking Quercetin with the Benicar for the first time. Amazing.... Just Amazing stuff! I really did not know how tightily I was wired until 20-30 minutes later when I began to feel my body slowly unwind like a million little tight springs. It was so heavenly to feel my body relax and soon I was sleeping. I did wake up several times for an instant but fell back to sleep with no trouble. Awesome! 
Next morning: Woke up with tinnitus in my left ear. It went away after I was up for an hour or so. Walked to the paper with Cricket for some exercise. Had to take a morning nap around 9-10 am. feeling fatigued.
Noon: Sinus ache/pressure beginning to increase. Took 400 mg. Quercetin with my noon Benicar and felt better after that. I like the way the Q improves my sinus conditon so far.
Nap: 1-2 pm.
Felt good the rest of the day and evening.
(3 star day) This helps me gauge how I feel overall - 1-5 stars. 3 is an average day for me.
DAY 72 FULL PROTOCOL + QUERCETIN: 10/27-28
Benicar 40 mg. q6h
Minocycline: none tonight.
I am noticing that with the use of Quercetin I don't have to take Tylenol to relieve aches and pain and especially sinus headache pressure so far. Also the time between 2pm. and bedtime is when I have the least sx. Night time I have the most sx. Taking Q. at night is proving to be a wonderful aid for me so far.
Sleep: Trouble getting to sleep. Finally at 11 pm. I took my Benicar along with the Q and soon was sleeping soundly. I slept from 12-6.
Woke up feeling pretty good. Walked Cricket to get the paper for our exercise. Spent the morning catching up on our office work and noticed my head was clear - no brain fog! It has been bad off and on lately.
Took my epsom salt bath and it felt so good - soothed some sore muscles that have been bothering me since my fast dance the other day. 
Nap: 1-2 pm. Woke up feeling very good.
Having a pretty good day. Tonight I will again take 37.5 Minocycline. 
1/2 (3 1/2 star day)
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Sat Oct 30th, 2004 22:13 |
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DAY 73 FULL PROTOCOL + QUERCETIN: (8 pm. Thurs. - Fri. 10/28-29/04)
Benicar 40 mg. q6h
Minocycline: 3rd dose on 37.5 mg. q48h @ 8:00 pm.
Quercetin - 2x 400 mg. - 11pm. & noon.
Sx: Had no initial sx. from Mino. so am getting use to dosage.
Sleep: Took Benicar and 400 mg. Quercetin at 11 pm. slept until 6 am.
Exercise: Walked to the paper with Cricket.
Sx: At noon sinuses began to ache. Took Benicar and 400 mg. Quercetin and felt relief within 30 minutes.
Had stuffy nose, slight sore throat and some fatigue rest of the day & eve.
(3 star day)
DAY 74 FULL PROTOCOL + Q: (8 pm. Fri. - Sat. 10/29-10/30/04) Today is our 34th wedding anniversary! 
Benicar: 40 mg. 6qh
Minocycline: None today.
Quercetin: 2x 400mg. 11:30 pm. and noon.
Sleep: Unlike previous days at my usual bedtime of 9:30 - 10:00 pm. I was feeling very tired and not wired. I went to sleep easily. Slept from 10:00 - 11:30 pm. Woke up so took Benicar & Quercetin then & turned off midnight alarm. Woke up at 5:30 am. so took Benicar then & turned off 6 am. alarm. Slept in until 7:30 am.
Exercise: None
Sx: Peripheral neuropathy is much diminished but quick bursts are more intense. Forming a pattern of sinus pain around noon which Quercetin & Benicar noon dose eliminates. Fatigue has been more noticeable and more frequent since starting Q. Late afternoon and evening my nose is more stuffy and sneezy for short periods of time accompanied by mild sore throat. Noting also this week after I eat upper abdomen feels tight & sore and I feel very slightily breathless as in indigestion sx. I have had trouble with my gall bladder, pancreas, liver in the past getting inflamed and feel this is just a shadow of it like so many sx the MP stirs up. It is mild and tolerable at this stage not anything to be overly concerned about. I feel pretty good otherwise. Took a not too hot epsom salt bath today and that is always so therapeutic! This along with the beautiful bouquet of flowers my sweetie gave me. 
(3 star day)
I will continue with the 37.5 mg. Minocycline tonight at 8 pm.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Dr Trevor Marshall
Foundation Staff
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Posted: Sun Oct 31st, 2004 07:47 |
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CL,
Please accept my congratulations on reaching your 34th! Liz and I were married in 1970, and so we had our 34th last June.
Say "hi" to hubby for me, and drink a (small) toast to the many more anniversaries to come.
..Trevor..
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CelticLadee
inactive member
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Posted: Mon Nov 1st, 2004 23:03 |
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We both thank you Dr. Marshall for your kind & thoughtful words. It is interesting to know we were both married the same year. Perhaps you & Liz can personally appreciate the meaningfulness of a very long marital relationship. Like fine wine it only gets better with time.
DAY 75 FULL PROTOCOL + Q: (Sat. - Sun. 10/30-10/31/04 @ 8 pm.)
Benicar 40 mg. q6h
Minocycline: 4th dose at 37.5 mg. @ 8 pm.
Quercetin as needed.
Sleep: Okay... didn't need any help getting to sleep.
Sx: Some nagging pain under left collar bone that doesn't go away but doesn't hurt badly. Sort of a stiff and sore sensation.
Exercise: Walked Cricket to get the Sunday paper.
Feeling good in general.
1/2 (3 1/2 star day)
DAY 76 FULL PROTOCOL + Q: (Sun. - Mon. 10/31-11/1/04 @ 8 pm.)
Benicar 40 mg. q6h
Minocycline: None tonight.
Sleep: Slept okay without any help again. (no Q.)
Sx: Nothing to speak of today.
Exercise: Walked Cricket to get the morning paper.
This morning I drove to town twice as it is cloudy and I needed to get some errands done. Neither trip took more than an hour and I didn't have any reaction that I can tell. I am feeling quite good today.
(4 star day)
I feel my herx has settled down again so I think it will be safe to raise the level of my Minocycline tonight to 50 mg. I don't have any plans this week and can lay around if I need to do so. So I think I'll go for it and see what happens.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Wed Nov 3rd, 2004 22:40 |
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DAY 77 : (Mon. night - Tues. night 8 pm.)
Benicar q6h
Minocycline: 1st dose 50 mg. at 8 pm. Monday night. 11/01/04
No Q needed.
Didn't have much of an initial reaction to increase which surprised me. Just slight woozy head and no notable sx otherwise. Went on some errands Tues. morning with no notable reaction to sun exposure but it was cloudy and I wore my NoIRs. I forgot my gloves and I didn't wear my NoIRs in the building but was OK afterwards.
4 star day
DAY 78: (Tues. night - Wed. night 8 pm.)
Benicar q6h
No Minocycline tonight.
No Q needed.
Still the same. No notable sx.
4 star day
Will take another 50 mg. dose tonight and see if anything stirs up or not.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Fri Nov 5th, 2004 22:38 |
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DAY 79 (WED.-THURS @8:00 PM. 11/3-4/04
Benicar 40 mg. q6h
Minocycline: 2nd dose 50 mg. @ 8:00 pm.
No Quercetin.
Initial reaction: All that happened was about an hour after I took it I had a sudden painful piercing stab like sensation to my heart. Fortunately that was all as it was rather unpleasant.
Sleep: Slept okay.
Sx: Nothing notable. Not feeling quite as good as yesterday because I started my menses and that always makes symptoms worsen. Having some brain fog and slight headaches that the Benicar has taken care of so far. Haven't had to take Quercetin.
Exercise: As usual I walked to get the newspaper with Cricket.
3 star day
Day 80: (THURS. - FRI. @ 8:00 PM. 11/4-5/04
Benicar 40 mg. q6h
Minocycline: none tonight.
No Quercetin needed.
Sx: Forgot to mention I have had some hot flashes this week & some nausea. Thinking it is a hormonal thing. Last night had a mild sore throat and was very thirsty. Back of neck has been stiff off and on and some soreness in shoulders too. Jaws also feeling stiff and pressure in front of ears.
Sleep: Slept okay.
Exercise: Walked to the newspaper and then took Cricket around the back for a little extra exercise.
3 star day
I'm going to stay with 50 mg. again since I'm having menses now and sx seem to be stirring up. Don't want to feel worse for the weekend.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Sun Nov 7th, 2004 22:43 |
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DAY 81 (FRI. 8PM.-SAT. 11/05-06/04 .
Benicar 40 mg. q6h
Minocycline: 3rd dose @ 50 mg.
Quercetin as needed.
Initial sx: Slight woozy head first hour. Right knee ached for a short time. My NoIRs were making above my ears sore which hasn't happened since I broke them in.
Exercise: Been having stiffness and soreness in neck and shoulders the few days. Went for an after dark walk around the property to try and loosen up. It lifted my spirits getting outdoors as I was going crazy penned in the house during the recent rain storms.
Sleep: Because of neck and shoulders aching took 400 mg. Quercetin with my Benicar at midnight which helped me.
Sx: Feeling more fatigued - had to lay down for 15 minutes twice this morning. Took my usual 1-2 pm nap and was better the rest of the day.
Feeling pretty good overall.
3 star day.
DAY 82 (SAT. 8 PM. - SUN. 11/06-07/04)
Benicar 40 mg. q6h
No Minocycline Sat.
Quercetin as needed.
Felt fatigued during the early evening and as bed time approached I began to get wired again. Also my scalp got very sore for a time and then later it changed to being itchy. Had some itchiness chest, arms and legs too.
Sleep: Wide awake.  could not get to sleep. At 11:30 pm. I took Quercetin and Benicar so I could get to sleep. It has been such a wonderful sleep aide and so thankful it takes away the wired feeling plus achy body sensations, etc.
Exercise: Walked Cricket to get the Sunday paper and noticed a lot of dahlias that need cut back from the cold nights ruining them. Maybe at sunset I can go out and cut a few down if I'm up for it and it isn't raining. I try to do a little bit of gardening to keep my spirits up and it is a little bit of exercise anyway for me. I try to walk around the house more than necessary to add up to something more than being a couch potato. It has been hard to go for any after dark walks lately as we have had a lot of rain fall plus my next door neighbor heard a bear in her yard a couple days ago so I've been more cautious lately. DO NOT want to run into it in the dark. 
Sx: Not much going on today. I took my "not too hot" epsom salt bath this afternoon and feel refreshed and relaxed. Sx are almost not existent right now.
Thinking I will increase my mino tonight by 12.5 mg. if I continue to feel this good the rest of the day. Feeling strong and not puny.
3 star day.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Tue Nov 9th, 2004 22:34 |
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DAY 83 (SUN. 8 PM. - MON. 11/7-8/04)
Benicar 40 mg. q6h
Minocycline: 4th dose @ 50 mg.
Quercetin as needed.
Sx: Well, I ended up having a headache and stiff neck Sun. eve so decided I'd better not increase the Mino. yet. I took my Benicar at 6 pm. but the headache just kept on increasing so I took Quercetin at 7 pm. and then it went away. This headache is something I fight during my menses and I chalk it up to a hormonal/spinal type headache. I usually also get the stiff neck with it and have trouble sleeping as at the base of the back of my neck emits pain & little crunchy noises when I move it or lay on it the wrong way. (This is not the same headache from hell I get from FMS)
This dose of Mino. didn't seem to make my head woozy or anything else.
Sleep: Took Q. again at midnight with Ben. so slept okay.
Exercise: Walked Cricket to get the paper. Later in the morning went to the store and walked for an hour picking up supplies. Wore my NoIR's in building and was covered up except for face. I did need to lay down for 1/2 hour in the morn when I got home besides my usual 1-2 pm. nap.
3 star day.
DAY 84 - MON. 8 PM. - TUES. (11/08-09/04)
Benicar 40 mg. q6h
No Minocycline tonight.
Quercetin as needed.
Sleep: Last night I suddenly got wired around 8:30 pm. and decided to wait until I felt sleepy to go to bed. 11 pm. rolled around and I was still wide awake so I took my Ben. and Q. early then went to bed. I must have tossed and turned until midnight but tehn slept good until 6 am. (my usual bedtime is 9:30 - 10:00 pm.)
Exercise: After I walked Cricket to get the paper then I trimmed back the Dahlias. I worked from 7 am. - 8 am. as there was heavy fog & I was on the shaded side of the house. I wore my NoIR's which made it difficult to see but I managed and I was covered up except my face. I worked up a good sweat and felt good afterward except I got a little fatigued and so laid down for 20 minutes in the morning.
Sx: Headache and stiff neck are almost gone now. If I continue to feel good I will increase the Mino. tonight to 62.5 mg.
3 star day!
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Reenie
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| Location: | Phoenix, Arizona USA |
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Posted: Tue Nov 9th, 2004 23:52 |
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CelticLadee says, "It has been hard to go for any after dark walks lately as we have had a lot of rain fall plus my next door neighbor heard a bear in her yard a couple days ago so I've been more cautious lately. DO NOT want to run into it in the dark. "
Eeek! a bear??? I had a funny episode last night when I went out after dark to dump the garbage.
There was a skunk on my neighbor's front yard, who slowly walked across mine and over to the next neighbor. He knew I had respect not to get too close as he waddled by me.
We've had rain here too. I still think the little critter was lost, although he looked like he trolls the yards for scraps on a regular basis.
I'm glad to see you're doing well.
Last edited on Tue Nov 9th, 2004 23:53 by Reenie
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CelticLadee
inactive member
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Posted: Wed Nov 10th, 2004 23:31 |
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Hey Reenie ... thanks! Took the 62.5 mg. last night and so far so good! Mild herxing.
Turns out the bear is a cougar. It evidently was up a tree with some caught prey, growling and scratching or it was marking territory- the wild life experts have spoken. hehe. We also have skunks & raccoons around but have avoided each other likewise.
Cricket doesn't like going out her doggie door in her little fenced yard at night anymore unless I stand guard on the back porch. Sometimes the raccoons like to visit our little goldfish pond at night. Glad she has good instincts.
Reenie been meaning to ask you ... read a post by you stating we need to take Benicar every 12 hours after the MP is done to keep D inflammation from sun exposure in check. I knew the MP wasn't going to change us genetically so we would continue to have a problem but I guess that didn't add up in my mind to always taking Benicar. Do you mean for the rest of our lives? Where did you get your information if you remember so I can read more about it please. TIA I wonder if Dr. Marshall & the others are taking Benicar every 12 hours now.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Reenie
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Posted: Thu Nov 11th, 2004 01:46 |
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Hi CL,
Now that we have our wildlife update...
I tried to find where I read Dr Marshall mentioning that we may want to continue Benicar q12h, for its effects, but I couldn't find it. I think he was saying that if one wanted to "live as a normal" person, w/o the consequences D dysregulation and the inflammatory response we get from it, this would be a way to do it.
I'm not sure it'll be mandatory to do though. I'm not sure anyone knows the answer yet either, for long term.
Here's a post that relates to this topic:
Meg says, "Periodic short-term treatment with antibiotics to treat any acquired or missed bacteria would include the use of Benicar to enhance the performance of the immune system.
Angiotensin receptor blockers, like Benicar, are being studied extensively in relation to their effect on inflammation. They have been found to be protective of the kidneys and suspected to reduce inflammation in other organs as well. With their great safety profile, many patients will decide to continue Benicar at a lower dose because of these potential benefits, even after they no longer need antibiotics."
http://www.marshallprotocol.com/view_topic.php?id=1150&forum_id=11
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CelticLadee
inactive member
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Posted: Thu Nov 11th, 2004 22:17 |
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Thanks Reenie, I read that thread you offered. Appreciate your quick response and all you do for us here keeping us on the right track.
LOL ... now that you are updated on the wild life its time for an update on the "wild beasties within".
DAY 85 - TUES. 8 PM. - WED. 11/09-10/04)
Benicar: 40 mg. q6h
Minocycline: 1st dose of 62.5 mg. @ 8 pm.
No Quercetin needed.
Sx: The initial herx I felt from Mino. this time was a glowing warm sensation in my shoulder blade area for a couple hours.
Sleep: Slept okay. Walked Cricket to get the paper and took a hot epsom salt bath.
Sx: Today my left pelvic bone area has pain. Unusual burning pain - feels like a burning string ready to snap when I move wrong. This pain went away around 6 pm.
Feeling pretty good otherwise.
3 star day.
DAY 86 (WED 8 PM. - THURS. 11/10-11/04)
Benicar 40 mg. q6h
No Minocycline.
No Quercetin needed.
Sleep: Before bedtime I started feeling energetic and was concerned I wouldn't sleep but gratefully I didn't have any trouble.
This morning I still felt very energetic so after taking Cricket for her walk to get the paper and after breakfast I started doing some cleaning. I ended up cleaning house for 3 hours non-stop catching up on the dusting. That is just not like me to have this kind of energy! I know I'm not suppose to run with it but I can't help it! I need to catch up on things!!!
When I was making lunch my feet started hurting on the bottoms. Especially the left heel. I was so relieved to sit down for lunch ... it felt SO good to get off my feet. After lunch I was READY for my 1-2 pm. nap! Felt very fatigued. Slept very well for 45 minutes when the ants starting biting. hehe. that is what it feels like. Ants biting randomly... first my right hip, then my right pointer finger.... etc. I got up and my arms and legs started burning, my neck at the back at the base started aching, the bones in my buttocks ache, my left arm pit aches and on top of all that my skin itches. I know this will all go away as it is mild and probably my morning cleaning exercise stirred things up not to mention the increase in Mino. I can only smile as I visualize all the "wild beasties within" dying off. WooHoo!  Kill them buggers! LOL.
Well, anyway .... inspite of this herxing I am feeling very good! Euphoric! (this could be a bad sign I know .... UP then crash and burn) But ever the optomist... maybe this is just wellness I'm experiencing!!! I'll just enjoy it while it lasts.
4 star day!
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Reenie
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Posted: Fri Nov 12th, 2004 00:01 |
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As for exercise, Dr Marshall says,
"At ILADS, one of the presentations suggested that the endogenous cortisol (corticosteroid) produced by the adrenals during exercise might not only be fuelling the feelings of euphoria, but also protecting the bacteria. I don't know that I fully agree with him, but it is an interesting postulate. So please make sure you keep the abx dosage up at a point where you are herxing nicely..."
http://www.marshallprotocol.com/view_topic.php?id=1255&forum_id=11
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CelticLadee
inactive member
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Posted: Sat Nov 13th, 2004 22:08 |
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Thanks again Reenie.... did not know of the possibility of exercise protecting bacteria! DO NOT want to do that! Enjoyed the euphoria though although short lived. Pleasant memory anyway.
DAY 87 - THURS 8PM. - FRI. 11/11-12/04
Benicar: 40 mg. 6qh
Minocycline: 2nd dose @ 62.5 mg. @ 8 pm.
Initial reaction to Mino. Head & face felt slightily numbish for about 2 hours. (styrofoam head?)
Quercetin: None needed.
Sleep: Slept okay - usual wake ups x2 but went back to sleep fairly soon.
1-2 pm nap.
Sx: Right knee and hip pain and stiffness. Fatigue worse. Afternoon sneezing and right sinus irritation/slight ache. Right eye also irritated/slight burning. Feeling moody today kind of down but trying to push through it.
Exercise: Just walked Cricket to get the paper. Didn't do anything else! To tired today.
Overall I feel okay but miss that euphoric bubble and extra energy.
3 star day.
DAY 88 - FRI. 8PM. - SAT. 11/12-13/04
Benicar: 40 mg. q6h
Minocycline: None today.
Quercetin: None needed.
Sleep: Slept hard. Woke up with a stiff neck (knot in left side) and brain fog.
12:30 - 1:30 pm nap
Sx: Scalp has sore spots. Legs (calves) keep trying to have muscle cramps. Feeling fatigued and depressed. Kind of cranky too. Widespread achy, burning, sore body sensations come and go.
Exercise: zero today.
Well, it looks like my 3 hour cleaning session on Thursday has caught up with me. Yeh, I know. I should know better by now. But if I did not do things when I felt really good my house would be a wreck and I would be very uncomfortable and unhappy. It felt so good to move around like normal on Thurs. - it was worth the price I'm paying now. I'll be back!
2 star day.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Tue Nov 16th, 2004 01:50 |
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DAY 89 - SAT. 8 PM. - SUN. 11/13-14/04
Benicar: 40 mg. q6h
Minocycline: 1st dose 75 mg.
No Quercetin
Int. Sx: No initial reaction other than previous sx relief.
Sleep: Slept good.
Sx: Left shoulder blade pain all day and some fatigue during dinner hour.
Feeling better from increase dose of Minocycline. Less pain, more energy.
3 star day.
DAY 90 - SUN. 8 PM. - MON. 11/14-15/04
Benicar: 40 mg. q4h
No Minocycline.
Quercetin 400 mg. @ 11:00 pm. and 3:30 pm.
Sleep: Not so good. Restless and wakeful. Took Quercetin with Benicar at 11 pm. and finally got to sleep after midnight. Woke up around 3 am. and again around 5 am. Took Benicar at 6 am. and slept until 6 am.
Sx: Lots of sx going on. Widespread body aches, chest pressure, fatigue. Seem to be mildly herxing plus got more outdoors exposure than normal.
Today was my MP doctor apptmt. at 10:30 am. so took Benicar q4h & quercetin to help out with sun exposure, herxing, etc. After doctor apptmt. did some shopping and visited my parents. By the time I got done with all this and got home at 4 pm. I was exhausted. Rested for a 1/2 hour and ate dinner so am feeling quite a bit better now. Glad to be back in my cave resting. I was out from 9 am. - 4:00 pm. which seemed like a very long day for me. 
3 star day. (Really it is a 2 star day but it was so good to finally see my parents that I have to add another star for how good that made me feel. Great morale booster for me.)
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Wed Nov 17th, 2004 22:32 |
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DAY 91 MON. 8 PM. - TUES. 11/15-16/04:
Benicar: 40 mg. q6h
Minocycline: 2nd dose @ 75 mg. @ 8 pm.
Quercetin 400 mg. @ 12:00 am & 12:00 pm. & 6 pm.
Sleep: Slept good.
Sx: Morning fatigue took 1/2 hr. nap. Left sinuses irritated, left chest & shoulder blade pain. Queasy tummy, no appetite at noon. Had an apple for lunch and some decafe tea. Left side of scalp has sore spot and left ear was tiny bit achy plus the back of my head was sore. Left eye also was irritated.
Afternoon nap 1-2 pm.
4 pm. chest pressure/ breathing slightily labored/ heart palpitations. Left jaw ache.
5 pm. feeling somewhat better. 6 pm. Benicar + Quercetin. 7 pm. Okay now.
Exercise: Walked Cricket to the paper box and around the parking lot this am.
Since my outing on Monday my herxing has increased so I attribute some sx to the outdoor exposure and some to the increase of Mino.
2 star day.
DAY 92 - TUES. 8 PM. - WED. 11/16-17/04:
Benicar: 40 mg. q6h
No Minocycline today.
Quercetin 400 mg. at 12:00 am and 12:00 pm.
Sleep: Slept from 10 pm. - 12 am. Stayed awake until 3 am. Slept from 3 am.-6am. Took Benicar and slept until 7:00 am.
Sx: After breakfast had that slight difficulty breathing again with the chest pressure. Been noticing since increased to 75 mg. more activity around the heart as far as feeling inflammation but it isn't a cardiac herx. Peripheal neuropathy has bloomed today. I don't know what will hit me from moment to moment. ie. right elbow felt like it was stung by a bee for a couple hours off and on, arms burning off and on, skin itching off and on, numbish head, etc. Queasy off and on. Not feeling as fatigued as I did yesterday.... feeling more wired like I felt between 12-3 am. Been having twinges of muscle cramps in my legs frequently today also. My right front tooth bothered me today and my sinuses are still irritated. Have some post nasal drip, tiny bit sore throat & cough. Eyes are extra sensitive today and I know if I didn't have Benicar I would have a splitting headache as it wears off it starts to surface. Sometimes my shoulders, back of right thigh, right hip and back ache. Sounds like a lot going on but it is all mild enough or shortlived thankfully. I feel stronger than yesterday anyway. Hope I'm killing lots of bugs!
Exercise: Walked Cricket to the paper box and around the parking lot this am.
2 star day.
CL
Last edited on Wed Nov 17th, 2004 22:33 by CelticLadee
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Wed Nov 17th, 2004 23:02 |
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| HRMajesty QCL, you sound to be getting your teeth into it now!!! best, Barb xox ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
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Posted: Wed Nov 17th, 2004 23:08 |
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CelticLadee says, "Hope I'm killing lots of bugs! "
LOL... I love it!
I noticed you're taking more Quercetin and having some nausea. Are you taking the Q w/food? Some ppl find they need to do this, so the Q doesn't upset them.
BTW, I noticed more "herxing" when I got more light too. IMO, it wasn't more herx, but more sxs. I can see how we need to be careful, especially as we ramp up, so as not to have too much of a D flare, "combo" (herx and sun) going on.
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CelticLadee
inactive member
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Posted: Thu Nov 18th, 2004 02:10 |
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Hey my MP buddies HRH Barb & HRH Reenie...
Good to hear from both of you. I just took Benicar and Quercetin after dinner 6 pm. to soothe my flames. Feels like that bee is stinging me again but now in my right thigh, etc. moves around.
Well, that is a good thought Reenie, but I don't believe it is the Q. making me queasy. It is hormonal I think cause it is ovulation time for me and I am having trouble to with cramps, tiny bit of spotting, etc. I've had this happen before when hormones shift ... feels like mild morning sickness but only in the afternoon or whenever. Also I do take Q. at midnight often on an empty tummy and it never does make me feel sick thankfully.
We are having company this weekend so I hope I get over the herxing/disease flare up/sun exposure sx before they get here. This last week has been a good test to see where I am at now. When I stay in my box I am fine but if I do anything extra my sxs get worse. This all started with the 3 hour house cleaning last Tues. (I'm talking dusting for crying out loud! Washing knick knacks, etc. nothing that strenuous, just took time on my feet moving around a lot.) The increases of Mino and then the trip to the doc, etc. just added to what I was dealing with so I'm thinking I have those three possibilities causing this event. I am happy if any of it is bug killing cause when I'm killing them... they aren't killing me. Right on! Just so glad I can stay in my cave and rest now. Thanks so much for your thoughts and encouragement Queenies.
CL
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Fri Nov 19th, 2004 22:09 |
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DAY 93 - WED. 8PM. - THURS. 11/17-18/04.
Benicar: 40 mg. q6h
Minocycline: 3rd dose @ 75 mg.
Quercetin: None needed.
Sleep: Slept hard and woke up with brain fog.
Sx: Brain fog and sneezing. Peripheal neuropathy has decreased considerably. Late in day my right hand began to ache.
Exercise: Walked to the paper box with Cricket.
2 1/2 star day
DAY 94 - THURS. 8 PM. - FRI. 11/18-19/04.
Benicar: 40 mg. q6h
No Minocycline today.
No Quercetin needed.
Sleep: Other than Benicar doses at 12 am. and 6 am. woke up once at 3 am. and went back to sleep after 1/2 hour. I must comment that I have slept better the last couple of months than I have in the entire length of time I've been ill.
Sx: Last night I had a very strange sudden dizzy spell that was simultaneous with a weird boring type pain in my head. Lasted only a minute or so thankfully. Morning chest pressure and heart palpitations. Afternoon left side chest pains and little stab like sensations in my heart area. When I took my nap 1-2 pm. I had heart papitations for awhile when I lay on my left side. Peripheal neuropathy is almost gone now. Right hip & left shoulder are achy and stiff but took a hot epsom salt bath so am feeling somewhat better now.
Exercise: Walked to the paper box with Cricket. Cleaned house for an hour or two but took lots of breaks so I don't flare up or crash hopefully.
Feeling better today and stronger.
3 star day!
CL
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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