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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
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Posted: Sat Jan 8th, 2005 05:43 |
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Heyy QCL
If the herx from your new mino is too tough, you can drop it back to 75mg for a couple to see how you go.. no sense pushing harder than necessary..
still killing bugs!
best as always, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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CelticLadee
inactive member
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Posted: Sun Jan 9th, 2005 18:33 |
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Dear Barb - Thank you. Things have settled down again so will be okay on the 100 mg. new batch of Mino.
DAY 144 - FRI. 4 PM. - SAT. 01/07-08/2005.
Benicar 40 mg. q6h.
Minocycline 100 mg. dose #21.
No Quercetin.
Sleep: Good. Have needed an early morning nap 9:30-10:30 am. in addition to my afternoon nap 1-2 pm.
Sx: Nothing going on.
Ex: Walked in the 3" of snow around the yard and out to the paperbox with Cricket and hubby. Very quiet & beautiful morning. Walk was exhilarting for us... especially Cricket. She became animated in excitement which caused us to laugh at her antics.
DAY 145 - SAT. 4 PM. - SUN. 01/08-09/2005.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: Good. Again needed an early morning nap 9:30-10:30 am.
Sx: None
Improvements: All the right sided head pressure/sinus pressure/eye irritation sx have gone away. The left sided chest pressure and ache gone too and seldom have heart palps... when do is short & very mild. Feeling good and feeling strong now. Sleeping good again. Whatever was going on has settled down. Have a very strong inclination to believe the new batch of Mino. threw me into a herx. As soon as I started it the 'trouble' began but now I think I've become accustom to it. 
Fascinating to me to think that there were more obscene critters to kill in my two prime trouble areas... head and heart. Don't suppose I'm done even now but will find out as I go along further in the MP. Another week to go through until I have my D test results and MP doc apptmt. in preparation to starting Phase 2. Also I have some more blood tests to do then after we know if my D's are low enough.
Ex: The usual walk to the paperbox with darling little Cricket.
CL 
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Tue Jan 11th, 2005 21:09 |
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DAY 146 - SUN. 4 PM. - MON. - 01/9-10/2005.
Benicar 40 mg. q6h.
Minocycline 100 mg. dose #22
No Quercetin.
Sleep: Good
Sx: Nothing going on.
Ex: Usual
DAY 147 - MON. 4 PM. - TUES. - 01/10-11/2005.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: Very good.
Sx: Nothing going on again.
Ex: The Usual.
Feeling good and waiting for the D test results. Bring on the Zith!
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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dga5000
Guests visiting Phase 1/2/3
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Posted: Fri Jan 14th, 2005 22:46 |
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Hi there. Great to hear that you are doing well. I'm so happy for you. Have just started posting my own progress reports. You'll notice the style is quite similar to yours! Hope you don't mind!
Dan
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CFS dx 1995; FMS 2000; Memory Loss; + Chlamydia Pnemoniae; + LMW Rnase L Protein; Alk Phos 131; MP: 14/01/05: Bolle Swisher w/ 100 lenses + NOIR 707; Betahistine Hrydrochloride 16mg (vertigo); Benicar stopped; Minocycline stopped; Added Quercetin 7/8/5; P
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CelticLadee
inactive member
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Posted: Fri Jan 14th, 2005 23:00 |
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Hey Dan, Good to hear from you. Thanks. No, I don't mind..." there is nothing new under the sun" ..... we all copy each other. 
DAY 148 - TUES. 4PM. - WED. 01/11-12/2005.
Benicar 40 mg. q8h. (I figured while my sx are settled down I would try to use less Beni now and see what happens.)
Minocycline 100 mg. dose #23
No Quercetin.
Sleep: Good
Sx: None
Ex: The usual.
DAY 149 - WED. 4 PM. - THURS. 01/12-13/2005.
Benicar 40 mg. q8h. (doing okay)
No Minocycline.
No Quercetin.
Sleep: Good.
Sx: None.
Ex: The usual.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Sat Jan 15th, 2005 20:38 |
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DAY 150 - THURS. 4 PM. - FRI. 01/13-14/05.
Benicar 40 mg. q8h.
Minocycline 100 mg. dose #24.
No Quercetin.
Sleep: Good.
Sx: None.
Ex: The usual.
DAY 151 - FRI. 4 PM. - SAT. 01/14-15/2005.
Benicar 40 mg. q8h. Had to change dose. Took additional Beni at 6 pm.
No Minocycline.
No Quercetin.
Sleep: Good.
Sx: Around 4 pm. I started feeling odd - as in ill - took my bp and pulse. Bp was okay but pulse was at 45. Next couple hours still felt ill with bradycardia so took Benicar at 6 pm. A half hour later I was feeling fine again & continued to feel well.
My new Benicar schedule will be 6 am., 12 pm., 6 pm. and 10 pm. This way I can hopefully sleep an uninterrupted 8 hours. At least I have a chance at it!
Ex: None.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Mon Jan 17th, 2005 21:19 |
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DAY 152 - SAT. 3 PM. - SUN. 01/15-16/2005.
Benicar 40 mg. q6h.
Minocyline 100 mg. dose #25 - changed dose time to 3 pm.
Quercetin 400 mg. x1 @ 2 pm.
Sleep: Okay.
Sx: Slow pulse again from 12-3 pm. Took Quercetin at 2 pm. and by 4 pm. felt fine.
Ex: The usual walk to the paperbox with Cricket.
DAY 153 - SUN. 3 PM. - MON. 01/16-17/2005.
Benicar 40 mg. q4h. (doctor appointment so going out for the day)
No Minocycline.
No Quercetin.
Sleep: Had a little trouble getting to sleep and staying asleep but slept okay in between wake ups.
Ex: The usual
New vitamin D test results: Quest Lab 01/13/05.
D-25 is at 14 ... WooHoo. All the 'D avoidance' is paying off for me. This is a drop from 27.9 in July.
D - 1,25 is at 43 now.... this is a drop from 63.9 in July.
I got my prescription for Zith so feel like I graduated today. hehe.
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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jolbell69
Health Professional
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Posted: Mon Jan 17th, 2005 22:41 |
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Hey Celticladee,
CONGRATULATIONS on your D results!!
I wondered whether you would be continuing to post your progress here even though you will be doing Phase II? I know Reenie and Big John have continued, and I hope you will too, as it gives those on Phase I the inspiration and courage to keep going.
I like to read your progress reports regularly, along with others, and I wish you the best of luck with Phase II!!
Take care,
Jo.
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DX:ChronicBorreliosis&Bartonella,ME/CFS,AutoimmuneThyroid&Hypoadrenia.
TX:Armour90mg,Prozac.Started MP:19may04.
25,D=16.7ng/ml,(Jan05).Benicar,40mg,q6h.Restart 8May09 after 5months break.VitD,25=8ng/ml(May09)
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CelticLadee
inactive member
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Posted: Tue Jan 18th, 2005 02:45 |
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Hey Jo!
I thank you and yes, I will continue to post my progress here as well. I think it is very important to let those following know how it is going. The more examples we can read the more we can learn and yes, hopefully, it will give hope and encouragement to all. I know I certainly appreciate it from those ahead of me. Bless you for your thoughtfulness. Hope your weaning process is going well and you will be able to move on soon but only when ready.
CL
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Wed Jan 19th, 2005 22:21 |
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DAY 154 - MON. 3PM. - TUES. 01/17-18/2005.
Benicar 40 mg q6h.
Minocycline 100 mg. dose #26.
No Quercetin.
Sleep: Good.
Sx: Nothing much going on.
Ex: The usual.
My outing to the doctor Monday did not give me any problems. I seem quite a bit less light intolerant these days which is great. Still wear my protection though. But when I do lower my NoIR's it isn't such a striking shock to my eyes as in previous weeks.
Haven't gotten my Zith yet. My script is for the powder and after reading online what is in it because of the additives I would prefer the tablets so am waiting for a new script. I am on a very strict diet and artificial flavors and sucrose aren't included.
Waiting again.
DAY 155 - TUES. 3 PM. - WED. 01/18-19/2005.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: Good.
Sx: Still nothing much going on.
Ex: The usual. Am looking into getting a Pilates DVD & a Yoga DVD now. Thinking these would be good to slowly work my muscles back into shape. They are totally wasted after 3 years. Hope I can stay motivated to carry it on.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Fri Jan 21st, 2005 21:40 |
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DAY 156 - WED. 3 PM. - THURS. 01/19-20/2005.
Benicar 40 mg. q6h.
Minocycline 100 mg. dose #27.
Quercetin - None needed.
Sleep: Woke up at 3 am. and could not get back to sleep. Finally got up at 6:30 am. I started a new bottle of Minocycline in the 100's - saving the 50's to begin P2 so I think it is making me herx a little bit. This occurred but to a greater degree when I started the last bottle of 50's with new colored capsules. (new batch)
Sx: Sinuses are a little stuffy, a little bit of burning and aching in arms and legs. A few little bouts of low pulse. Not feeling too bad though. Is very mild.
Ex: Just the usual
DAY 157 - SAT. 3PM. - SUN. 01/22-23/05.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: Okay.
Sx: A little bit of the same as yesterday but to a even lesser degree.
Ex: The usual.
Got my Zith script filled and will start it at 3 pm. today which will mark the beginning of Phase 2 for me. 
Last edited on Fri Jan 21st, 2005 21:41 by CelticLadee
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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lab99
Member in Phase 3
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Posted: Sat Jan 22nd, 2005 00:21 |
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| Congratulations and Good Luck, CL!! I will be right behind you.
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Sjogren's/Hashimoto's/CFIDS/Hypoglycemia/PCOS/C Pneum
Unithroid 50mcg/Cytomel 5mcg
9/27/04: 1,25D-78.9/25D-24.6 10/30: Ben 6hr 12/13: 1,25D-43/25D-14 1/24: P2 3/14: 1,25D-39/25D-9 6/27: 1,25D-31/25D-5 P3 11/22: 1,25D-17/25D-5.9
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CelticLadee
inactive member
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Posted: Sat Jan 22nd, 2005 01:17 |
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Thanks Lab99 ... I started herxing within a 1/2 hour of taking my first dose and continues to multiply in transient symptoms. Should be interesting by day 5. 
I'll check on your progress report to see how you do. Best of luck to you too.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
| Status: |
Offline
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Posted: Sat Jan 22nd, 2005 19:59 |
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Hi CL,
Congratulations on your Graduation to Phase 2.
Remember, (if you haven't already done so) you can lower your mino down to 50mg qod. Would you kindly update your sig line with your P2 start date?
TIA
PS I was just noticing your 25-D took 6 mos to halve... hmmm. (Reenie ponders) That would mean your 25-D "half life" is/was 6 mos instead of 2, however, if I calculate how many points your D dropped compared to mine, we've BOTH dropped our 25-D 14 points in 6 mos although the "half life" calculation is different since my 25-D started out so much higher... hmmm... interesting... 
Is anyone thinking what I'm thinking? Maybe the half life isn't the issue here, but that we can only metabolize a certain amt of D regardless of the level, OR we can only metabolize a certain maximum amt while keeping the 1,25-D regulated w/cave dwelling and Benicar...?
Last edited on Sat Jan 22nd, 2005 20:14 by Reenie
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CelticLadee
inactive member
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Posted: Sun Jan 23rd, 2005 21:57 |
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Thanks Reenie! I decided since nothing much going on sx wise the last couple of weeks I would try doing 100 mg. If I need to I will cut back to 50 mg. Did ya get a chance to discuss your theory with Doc TM yet? He often has something interesting to add so am wondering what he says about it. Very interesting indeed.
DAY 158 - FRI. 3 PM. - SAT. 01/21-22/2005.
PH2 1st cycle - 1st day.
Benicar 40 mg. q6h.
Minocycline 100 mg. dose #28.
No Quercetin needed.
Initial Sx: Took Zith w/ Mino around 3 pm. By 3:30 pm began to feel sx. First my right front tooth began to feel pressure/numbish sensation which spread to jaw. Transient pains in right ear = 2 piercing stabs of pain in 3 episodes. Woozy head and slight queasy tummy next. Then back of neck started aching and became stiff. Palms of hands & heels of feet became sore and achy. Left side began to have a side ache. Heart area slightily sore and achy. Increase of fatigue. Hips began to ache. Left side became very sore and tender. WOW! Still lots of bugs left! 
This is a lot going on but it was all so mild that it wasn't unbearable... just amazing to feel so much going on after all this time of nothing much. The Zith definitely turbo charges the Mino. for me. Surprised about the quick reaction though and wonder what day 3 or day 5 will be like???
Sleep: Okay. Plus three naps: morning 1hr. /afternoon 1hr. /evening 1/2 hr.
Exercise: None!
DAY 159 - SAT. - SUN. 01/22-23/2005.
PH2 1st cycle - 2nd day.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: Okay. One nap so far usual time 1-2 pm.
Sx: Several areas are sore, aching and burning today: Left leg back of thigh & calf. Right knee & leg. Both forearms. Fingers on both hands are sore and stiff. Transient pain in right side back of head. Not as fatigued today. Feeling better than yesterday.
Exercise: Walked Cricket to the paperbox.
CL in PH2.
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Tue Jan 25th, 2005 21:33 |
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DAY 160 - SUN. 3 PM. - MON. 01//23-24/2005.
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Benicar 40 mg. q6h.
Minocycline 100 mg. dose #29.
Quercetin 400 mg. at 10:30 pm Sun. & 3 pm. Mon.
Sleep: Okay = multiple wake ups but go right back to sleep.
Sx: A little bit of aching & burning still going on. Arrhythmia periodically. Less fatigued. Less overall sx.
Ex: The usual.
DAY 161 - MON. 3 PM. - TUES. 01/24-25/2005.
PH2 - cycle 1 - day 4.
Benicar 40 mg. q6h. (4am., 10 am., 4 pm., & 10 pm.)
No Minocycline.
Quercetin at 10:00 pm. Mon. & 4 am. Tues.
Sx: Needed Quercetin to get to sleep last night. Woke up with a lot of widespread body pain but after I got up it disappeared. How odd that was! Guess if I am motionless muscles begins to ache?! Have noted the opposite is true too if I use any muscles for very long they become very sore fast and typing is making my fingers ache. Have been prone to getting chills last night and today too. Have had a few quick bursts of head pain in varied locations.
Arrhythmia is becoming more persistent. Have been warding it off with Quercetin mostly but it doesn't always eliminate it for the 6 hours. Skipped it with morning dose of Benicar and have had arrhythmia most of today. Will take Quercetin next dose of Benicar to see if that helps again. May have to go to Benicar q4h if it continues like this. Don't know where to draw the line on this so could use some input on it. At this point it is just annoying and not causing breathing difficulties. Have had a few little tiny stabs of pain in my heart muscle but not to the point of reacting with gasp or anything major like that. But am just sitting and laying around so no stress.
Ex: The usual.
CL
Last edited on Wed Jan 26th, 2005 01:17 by CelticLadee
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
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Posted: Tue Jan 25th, 2005 23:46 |
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Dear CL
for information about *the line* with arrhthmias see > What is a cardiac Herx? When should I be concerned?
Take Care... and ask if you need any more input than that.. all best as always, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
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Posted: Wed Jan 26th, 2005 01:10 |
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Hi CL,
I would suggest you drop your mino to 50mg qod and see if that relieves some of the cardiac sxs you're having, in addition to the rest of what you're doing.
I didn't address my D "theory" with Dr M, I'm afraid. I found another food source that may be causing my D not to fall as much, so first, I'll have to try that and see what happens.
PS Would you kindly include what Day and what Cycle you're on, so that it's easier to assess where you are, in re to your herxing? TIA
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CelticLadee
inactive member
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Posted: Wed Jan 26th, 2005 01:36 |
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Thanks Barb & Reenie,
I have the cardiac herx info printed & in my notebook and will re-read it. Thanks Barb. How long do you have to have the under 50 beats per minute before you go to the q4h with the Benicar?
Your words rang in my head today Reenie from a previous post you wrote me about Phase 2 and using 50 mg. to help with herxing.... SO.... today at 3 pm. I only took 50 mg. to see if that will calm my heart down. It was strange because I had a strange initial reaction when I took the 50 mg. Mino. After about 1/2 hour to an hour my heart had a strange mild burning sensation and then the arrhythmia stopped. My heart feels a bit sore now but at least it isn't skipping beats and jumping around to catch up.
I took Benicar and Quercetin together at 4 pm. also. Will see what happens next. Thanks so much for your help my good friends.
Yeh, Reenie, when I was reading my notes I realized I had forgotten to put the cycle and day for PH2 in my report and came back online to do it and saw YOU are on TOP of it girl! You're good.... very very good.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Wed Jan 26th, 2005 18:48 |
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Well I understand what I need to do so much better now!
I need to take 50 mg. Mino. for a time, with Benicar q4h and Quercetin three times a day and will stay at the initial Zith dose probably for months.
On Benicar q4h I am just keeping the arrhythmia at bay but it does break through sometimes for short periods now. Hopefully in a day or two this will change and I can go back to q6h.
Taking it easy! I must have been dreaming when I thought I could get a Pilate and Yoga DVD and start exercising a little bit! lol.  Well.... I WAS feeling REALLY good before the Z! hehe.
CelticLadee
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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