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CelticLadee
inactive member
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Posted: Thu Jan 27th, 2005 20:58 |
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DAY 162 - TUES. 3 PM. - WED. 01/25-26/2005.
PH 2 - CYCLE 1 - DAY 5.
Benicar q4h.
Minocycline 50 mg. dose #30
Quercetin 400 mg. at 10 pm & 8 am.
Sleep: Woke up with arrhythemia at 1:30 am. - took Benicar and eventually went back to sleep. Woke up & also had some head pain & cramps so took Tylenol 500 mg.
Sx: Some arrhythemia when meds wear off or just don't do the job completely. Fatigue.
Ex: The usual walk to the paperbox.
DAY 163 - WED. 3 PM. - THURS. 01/26-27/2005.
PH2 CYCLE 1 - DAY 6.
Benicar 40 mg. q6h.
No Minocycline.
No Quercetin.
Sleep: Okay. Woke up a few times and went back to sleep.
Sx: I have felt better today. Just a few little spells of arrhythemia now and I haven't taken Quercetin and I'm back on Benicar q6h. So this is an improvement.
Ex: The usual 
CL 
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Sat Jan 29th, 2005 21:51 |
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DAY 164 - THURS. 3PM. - FRI. 01/27-28/2005.
PH2 - CYCLE 1 OF DAY 7.
Benicar 40 mg. q6h.
Minocycline 50 mg. (edited to take out misleading dose #)
Quercetin at 7:00 pm.
Sleep: Good
Sx: At 6 pm. the arrhythmia started back up ... at 7:00 pm. took quercetin and after another hour the arrhythmia stopped but still had some chest pressure. Pain in legs and arms to varying degree throughout the day. Left leg and foot took on a buzzing sensation when stepping down for hours.
Ex: The usual walk with Cricket to the paperbox before sun up.
DAY 165 - FRI. 3 PM. - SAT. 01/28-29/2005.
PH2 - CYCLE 1 - DAY 8.
Benicar 40 mg. q6h.
No Minocycline.
Quercetin again at 7:00 pm for increasing chest pressure.
Sleep: Not good. Woke up at 12:30 am. with acid reflux. Took MOM at 1 am. Then right leg upper inner thigh had a sensation that felt like a continuous bee sting for a couple of hours. Bee sting sensation also hit right big toe at the end of the ordeal. Took Benicar at 3 am. and finally went back to sleep around 3:30 am. 
Sx: Frequent chest pressure and infrequent heart palpitations. Some small quick heart stabs. Sneezing and irritated bronchial tubes in late afternoon through evening Friday. Some head pains, some coughing and some sore glands in neck also. Woke up feeling very fatigued, sickish and tummy unsettled. Haven't much appetite and eating light to keep tummy settled as much as possible. Forgot to mention in previous reports this past week that emotionally I have been very jumpy.... loud noises or DH quietly walking in room startles me & have made me crazy.
Observations: Chest pressure/arrhythmia worsens prior to 6 hr. Benicar dose as it wears off most of the time & is much worse prior to Minocycline dose. Minocycline improves it for a very short duration and then again it worsens. At 50 mg. Mino am experiencing less arrhythemia but chest pressure is persistent. Quercetin seems to help quite a bit and when all else fails Benicar at q4h is needed but haven't done that the last couple of days.
Ex: None.
 not a good day. But I have had worse.
CL
Last edited on Sat Jan 29th, 2005 23:11 by CelticLadee
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Dr Trevor Marshall
Foundation Staff
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Posted: Sat Jan 29th, 2005 22:44 |
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CL,
you are obviously struggling to ramp the mino. I will see Doc at the conference, but if you see her before that will you ask her to call me? I am thinking you might be best to progress to an abx combo to try and better deal with those arrhythmia and neuroses.
I am confused that you started taking mino in August, but yet are only up to dose 60? I am guessing you must have had to skip some days...
..Trevor..
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CelticLadee
inactive member
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Posted: Sat Jan 29th, 2005 23:10 |
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Hello Doc Trevor,
I think you may be confused by the fact I am posting here but I am on Phase 2.
It seems my signature line disappeared today which indicates that on 1/21/05 I started Phase 2. Some of the Phase 1 people asked me if I wouldn't mind keeping them posted as to how I am doing so I continue this thread as well as post at the PH 2-3 area.
Also it is confusing because I had been on 100 mg. Mino for 28 doses before dropping to 50 mg. I do need to change that. Sorry.
Initially in PH 2 I was taking 100 mg. of Mino but cut back to 50 mg. due to the arrhythemia... specifically bradycardia. This has helped but I still suffer chest pressure and heart palpitations frequently.
In view of this: Do you still consider a different ABX combo? or do you think I will in time get over this adjustment to Z. I am only in cycle 1 - Day 8.
My best to you,
CelticLadee
PS.... signature line is back now.... (edited to do PS)
Last edited on Sat Jan 29th, 2005 23:13 by CelticLadee
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Dr Trevor Marshall
Foundation Staff
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Posted: Sat Jan 29th, 2005 23:23 |
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Ah yes, now I understand. OK, that is different. But if the arrhythmia start to get to the point where you are stuck at 1/8 tab, or so, of abx 2 then I need to tell Doc that there are less-aggressive alternative abx now. But at this point I agree with getting a few more cycles under your belt.
The arrhythmia is controlled directly by the angiotensin II produced in the inflammation, which is why Benicar deals with it so effectively. A higher level of A-II reduces your pulse rate.
..Trevor..
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CelticLadee
inactive member
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Posted: Sat Jan 29th, 2005 23:45 |
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Okay... then .... good ... Doc Trevor thank you.
Glad that all is cleared up.
Interesting... Goes to show me again that I could not possibly kill the CWD bacteria without Benicar the wonder med. My stabilizer!
A bit confusing though.... why would some on MP have tachycardia then? if inflammation AII slows pulse? I wonder? Hmmmmmmmm?
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Mon Jan 31st, 2005 22:33 |
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DAY 166 - SAT. 3 PM. - SUN. 01/29-30/2005.
PHASE 2 - CYCLE 1 - DAY 9.
Benicar 40 mg. q4h. (to control arrhythemia)
Minocycline 50 mg. @ 3pm.
Quercetin 400 mg. @ 6pm.
Sleep: Good.
Sx: Chest pressure and arrhythemia. Some quick sharp little pains in heart area. Transient aches and pains overall body. Malaise.
Ex: Walked to the paperbox with Cricket twice today.
DAY 167 - SUN. 3 PM. - MON. 1/30-31/2005.
PHASE 2 - CYCLE 1 - DAY 10.
Benicar 40 mg. q4h. (to control arrhythemia)
No Minocycline.
No Quercetin.
Sleep: Okay. Woke up multiple times but went back to sleep fairly soon.
Sx: Sun. eve had burning under skin on legs and arms. Some quick sharp pains in left side of head and left eye. Transient aches & pains overall body. Emotionally moody... cry easily. Today tummy is queasy again... still feeling blah ... not well. When beni wears off heart palpitations around 3-3 1/2 hour. Back of neck is getting stiff and feel headachy but not a headache yet.
Ex: The usual.
CelticLadee
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Wed Feb 2nd, 2005 21:07 |
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DAY 168 - MON. 3 PM. - TUES. 01/31-2/1/2005.
PHASE 2 - CYCLE 1 DAY 11.
Benicar 40 mg q6h night & 20 mg. q2h day.
Minocycline 50 mg.
No Quercetin.
Day 11 but decided too skip Z. until no herxing for a week.
Sleep: Okay... some wake ups but went right back to sleep. Needing shorter nap.
Sx: Mon. late afternoon & early evening still having heart palpitations, chest pressure & heart area feels raw & tender. Sore throat started & eyes & sinuses are irritated. Overall body aches and pains but mostly are transient.
Mon. 9 pm - 10 pm. the tide is turning.... I am starting to feel better.... the Zith must be decaying enough now to give some relief. 
Ex: The usual.
DAY 169 - TUES. 3 PM. - WED. 02/01-02/2005.
PHASE 2 CYCLE 1 - DAY 12.
Benicar 40 mg q4h.
No Minocycline.
No Quercetin.
No Z.
Sleep: Okay.... a few wake ups but went back to sleep quickly. Needing shorter nap.
Sx: Feeling better today. Heart palpitations are much milder now and infrequent. Chest pressure is gone most of the time. Heart area is very sore. Sore throat, irritated eyes and sinuses. Overall widespread body aches & pains but mostly are transient.
Ex: The usual.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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kgg/mpg
Member
| Joined: | Tue Oct 12th, 2004 |
| Location: | Arizona USA |
| Posts: | 66 |
| Status: |
Offline
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Posted: Wed Feb 2nd, 2005 22:36 |
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CL, glad to hear that you are feeling better. Boy, those bumpy roads. . . .
Karen
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17 yr old, home bound. VitD1,25=38, VitD25=16
DX: Lyme,CFS, HHV6, EBV, mycoplasma pneumoniae, food allergies, learning difficulties and asthma.Current meds: Singulair, Neurontin, Prilosec, Zantac, Lexapro, Testosterone cream
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CelticLadee
inactive member
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Posted: Fri Feb 4th, 2005 21:43 |
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Thank you Karen! Yeh, but if I didn't have any bumpy roads I would wonder IF the MP was working. hehe.
DAY 170 - WED. 3 PM. - THURS. -2/01-03/2005.
PHASE 2 - CYCLE 1 DAY 13.
Benicar q4h.
Minocycline 25 mg.
No Quercetin.
No Z until I do not herx for a week. (2)
Sleep: Okay.
Sx: Mostly have abated but left me with some soreness around heart area. Woke up from afternoon nap with a awful feeling in both knees .... maybe like a tornique to tight around them? Walked it off but it took a 1/2 hour before they felt normal. Late day (6 pm) had a mild headache & fatigue I think was caused from my early morning outing... it was sunny and I didn't wear my NoIR's 100% of the time. Irritated sinuses & eyes. A few mild heart palps.
Outing: Early morning felt perky so drove over to finally have my hair done and pick up a few toiletries at the store.
Ex: The usual walk w/Cricket.
DAY 171 - THURS. 3 PM. - FRI. 02/03-03/2005.
PHASE 2 - CYCLE 1 DAY 14.
Benicar 40 mg. q4h.
No Minocycline.
No Quercetin.
No Z until I don't herx for a week. (3)
Sleep: Slept okay but woke up twice with muscle cramps in my calves. I walked it off each time. Since my outing yesterday my legs have had problems am wondering if the exposure I had caused my 1,25 to soar. Of course, walking all over WalMart was more exercise than I normally get too and would cause a FM flare up. Maybe the combo is too blame.
Sx: Leg cramps, irritated eyes & sinuses. A few mild heart palps.
Ex: None ... well except ... I did vacuum 1/2 the house.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Sun Feb 6th, 2005 22:45 |
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DAY 172 - FRI. 3PM. - SAT. 02/04-05/2005.
PHASE 2 CYCLE 1 DAY 15.
Benicar every four hours. - Mid day change to every six hours. (since cardiac symptom have decreased to almost nothing I will see how it goes on 6 hour dosage.)
Minocycline 25 mg.
No Quercetin.
No Z until I don't herx for a week. (4)
Sleep: Okay. Sat. afternoon 1-2 pm did not need my usual nap. 
Sx: Nothing much going on now. A few very mild heart palps infrequently. A few mild aches and pains. Eyes and sinuses still a little irritated but improving.
Ex: None.
DAY 173 - SAT. 3 PM. - SUN. 02/05-06/2005.
PHASE 2 - CYCLE 1 - DAY 16.
Benicar 40 mg. every six hours.
No Minocycline.
No Quercetin.
Sleep: Okay. Sun. afternoon 1-2 pm. I did need my usual nap. 
Sx: Had some muscle cramps in neck during nap. A little bit of chest pressure and heart palps. Eye irritation and sinuses improving.
Ex: Walked Cricket to get the Sunday paper in a chilly morning wind. Brrrrrrrr.
I was looking at my calendar and realized that if I took my Z this week I would be herxing for my Feb. 14th doctor apptmt. Something my doctor specifically asked me to avoid if possible. Therefore I will decline to take the next Z dose until after Feb. 14th.
I will however work on increasing my Mino back up to 100 mg. as she instructed me to do as I began to feel better.
CL Sending my best & hoping ALL of you MPers are making steady progress!
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Sat Feb 12th, 2005 22:45 |
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DAY 174 - SUN. 3 PM. - MON. 02/06-07-2005.
PHASE 2 - CYCLE 1 - DAY 17.
Benicar 40 mg. q6h. / Minocycline 50 mg./ No Quercetin./ No Z.
Sleep: 10-6 am. Multiple awakenings but went right back to sleep. Nap 1-2 pm.
Sx: Had an initial reaction to increase of Mino from 25 to 50 mg. Increase in heart palps and chest pressure. Same sx appeared to increase 2-5 pm. Mon. Sinuses irritated. Wet nostrils.
Ex: The usual walk with Cricket to the paperbox.
DAY 175 - MON. 3 PM. - TUES. 02/07-08/2005.
PHASE 2 - CYCLE 1 - DAY 18.
Benicar 40 mg. q6h. / No Minocycline. No Quercetin./ No Z.
Sleep: 10-6 am.Multiple awakenings but went right back to sleep. Nap 1-2 pm.
Sx: Tues. 2-3 pm. chest pressurer and heart palps.
Ex: The usual.
DAY 176 - TUES. 3 PM. - WED. 02/08-09/2005.
PHASE 2 - CYCLE 1 - DAY 19.
Benicar 40 mg. q6h. / Minocycline 50 mg. / No Quercetin. / No Z.
Sleep: 10 pm-7 am. Awake from 1:30 pm - 4:30 am. Nap 1-2 pm.
Sx: Initial reaction to Mino was not so strong as last dose. Had some very mild chest pressure and heart palps infrequently. Sinuses still bothering me. Wet nostrils.
Ex: The usual.
DAY 177 - WED. 3 PM. - THURS. 02/09-10/2005.
PHASE 2 - CYCLE 1 - DAY 20.
Benicar 40 mg. q6h. / No Minocycline. / No Quercetin. / No Z.
Sleep: 10 pm - 7 am. Awake from 1:30 - 4:30 am. Nap 1-2 pm.
Sx: Right sinuses continue to be irritated. Wet nostrils. Right jaw aches (upper & lower) Slight headache increases when bending over. Transient sharp jabbing head pain behind left ear toward spine. Occaisonally mild heart palps in short durations.
Ex: The usual
DAY 178 - THURS. 3 PM. - FRI. 02/10-11/2005.
PHASE 2 - CYCLE 1 - DAY 21.
Benicar 40 mg. q6h. / Minocycline 100 mg. / No Quercetin. / No Z. / Tylenol 500 mg.
Sleep: 10 pm - 6 am. Multiple awakening but went right back to sleep. Nap 1-2 pm.
Sx: Sinuses irritated. Wet nostrils. Mild headache. Sharp jabbing transient pain in back of head still occurs infrequently.
Ex: The usual.
Observation: First day since I took Z that I actually feel good overall. Feel relieved and lighter if that makes any sense. Maybe adding the Tylenol huh?
DAY 179 - FRI. 3 PM. - SAT. 02/11-12/2005.
PHASE 2 - CYCLE 1 - DAY 22.
Benicar 40 mg. q6h. / No Minocycline. / No Quercetin. / No Z. / Tylenol 500 mg.
Sleep: 10 pm - 7 am. Awake from 1-5 am. Nap 1-2 pm.
Sx: Right eye irritated & irritated sinuses continue. Wet nostrils. Post nasal drip and cough. Left chest & back around heart sore when move wrong or yawn big. In the night had achy feet & early AM after up had leg cramps a short time.
Ex: None.
Update: Haven't resumed Z because of doctor apptmt. Mon. morning. Day trip so don't want to be herxing. I aim for Wed. to start again at lower doses by 1/2. Will be getting my blood test results Mon. to see how everything is doing.... BUN, Alk, Creat., etc. Will keep ya posted my wonderful support group! You're the BEST!
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Wed Feb 16th, 2005 22:17 |
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DAY 180 - SAT. 3 PM. - SUN. 02/12-13/2005.
PHASE 2 - CYCLE 1 - DAY 23.
Benicar 40 mg. q6h./Minocycline 100 mg./Tylenol 500 mg./No Q/No Z.
Sleep: 10-6 - woke up at 2 am. restless & achy took Tylenol. Nap 1-2 pm.
Sx: Irritated sinuses & wet nose.
Ex: The usual.
DAY 181 - SUN. 3 PM. - MON. 02/13-14/2005.
PHASE 2 - CYCLE 1 - DAY 24.
Benicar 40 mg. q4h. (traveling today/doc apptmt.)/No Mino/No Q/No Z.
Sleep: 10-6 - Did not sleep much except little naps all night. Was restless again but worse like I drank a pot of coffee.
Sx: Fatigue, aches & pains in morning. Watery eyes all day.
Ex: The usual.
Outing: Went to MP doc and then visited parents and brother. Was gone from home from 9:30 am. - 6:00 pm. Although I did have a lot of outdoor exposure I don't think I suffered any sx. I was fully covered except face, always wore NoIRs & took Benicar q4h. I believe I am somewhat less light sensitive as these trips are becoming less of a hardship over the months.
Lab update: My labs always look pretty good - just a few readings slightily off.
June 2004 the only abnormal readings I had were:
CBC/Plt - Hgb - low - 11.8 g/dL (12.0-15.0)
CBC/Plt - Hct - low - 35.6 % (36.0-45.0)
CBC/Plt - RDW - high - 15.9 % (0-15.1)
Cholesterol - high - 234 mg/dL (200-239 Borderline - High (Adult)
LDL Cholesterol - high - 150 mg/dL <100 optimal
Total Iron - low - 29 ug/dL (35-155)
%Saturation - low - 7 - % sat. 15-55
Ferritin - low - 5 ng/mL 10-291
January 2005 - 6 months later abnormal readings are:
CBC - Hemoglobin - low - 11.4 (11.6-16.1 GM/DL)
(Didn't have the total iron/saturation/ferritin done & wish now I would have thought to ask for them. I did have iron supplementation for one month in June before I ever started the MP in Aug. 2005. It temporatily lifted a lot of my fatigue.)
Cholesterol - high - 202 (120-200 mg/dL) (It is coming down folks! )
LDL Direct - high 139 (0-129 mg/dL) (Hooray for the MP!)
Anyway, I am very pleased my labs look very good. Progressing towards better health! I know that I'm one of the lucky ones that don't have a lot of other issues to deal with. But it probably caused me much more frusteration as one doctor after another told me how healthy my labs are "so why are you feeling so sick".
When my orignial 1,25 D came back at 63.9 at a lab that historically had low numbers (they don't keep things frozen as well as Quest) I had my answer. Then I knew why I had chronic inflammation especially around my heart that previously was undetected by every test I took. It also answered why I kept getting sun sick & why dairy products & other foods (they had vit. D) made me sick. I had to give them up long before I started the MP. But I didn't understand why or to what degree they harmed me. I just labeled it as "sun & food intolerant" when asked. I thank God everyday that Dr. Trevor so generously shares his research online. That one day changed my life when I read a post at a CFS/FMS site where Sujay mentioned her interest in his promising treatment and she left his sarc site URL . When I read articles there I was blown away! "My knower" knew I had my answer. I have so much hope now as I experience for myself what he says is true. Thank YOU again Doc Trevor! May God bless you for your good work!
CL
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Wed Feb 16th, 2005 22:43 |
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DAY 182 - MON. 3 PM. - TUES. 3 PM. - 02/14-15/2005.
PHASE 2 - CYCLE 1 - DAY 25.
Benicar 40 mg. q4h (Mon.) / q6h. (Tues.)
Minocycline 100 mg. / No Q. / No Z.
Sleep: 10-7 - Multiple awakenings. 1-1:45 pm nap
Sx: Right sinuses achy & itchy throat & cough.
Ex: The usual.
DAY 183 - TUES. 3 PM. - WED. 3 PM. - 02/15-16/2005.
PHASE 2 - CYCLE 1 - DAY 26.
Benicar 40 mg. q6h./ No Mino/No Q. / No Z.
Sleep: Improved.... some awakenings but went back to sleep quickly and slept soundly.
Sx: Wet nose continues... I feel like I have a dog nose.... it's just always wet but isn't running. Nevertheless, it is bothersome and I am constantly wiping my nose. This has been going on for a couple weeks almost none stop! Irritated sinuses especially the right side.
Ex: The usual.
I am ready to take Z again but 1/2 the dose. No more herxing and no travel plans.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Fri Feb 18th, 2005 21:01 |
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DAY 184 - WED. 3 PM. - THURS. 3 PM. 02/16-17/2005.
PHASE 2 - LEVEL 1 - CYCLE 2 - DAY 1.
Benicar 40 mg. q6h./ Minocycline 25 mg./Z today./No Quercetin.
Initial reaction to M+Z = First hour my head became woozy like when I took Mino for the very first time, within the hour my teeth socket/jaws became tingly and progressed to achy, then backache and fatigue began along with queasy tummy. Fatigue forced me to lay down for 1/2 hour. Had some pain in my right breast. Next couple hours left hip began to ache and left eye burning. Then last few hours before bed the sinuses in my brain began the crackle sensations (only audible to me of course) as if they were shrinking. Then had a few twinges in my heart. All of the above occurred between 3:30 pm - 9:30 pm.
Sleep: Due to increased fatigue I slept okay but my legs and arms were burning all night and when I got up.
Sx: All morning felt fatigued. Cognitive abilities decreased all day. Evening fatigue came and went in waves.
Ex: The usual.
DAY 185 - THURS. 3 PM. - FRI. - 02/17-18/2005.
PHASE 2 - LEVEL 1 - CYCLE 2 - DAY 2.
Benicar 40 mg. q6h. / No M./ No Z./ No Q.
Sleep: Slept good Had strange vivid dreams though. Nap 12:45 - 1:15 pm.
Sx: Right hand & wrist have been very painful at times today. Fatigue still comes and goes in waves. Have had pain in my upper stomach area just under my ribs... would say it is in the pancreas area plus either side of it. Tummy is queasy sometimes. Have had ant bite sensations & itchy spots on legs & feet that become achy. Left shoulder & shoulder blade area are achy. Heart palpitations when laying down to nap. Cognitive ability is a slight degree better than yesterday but still lacking as wave of fatigue increases so does it.
Killing more buggies... but this cycle (with lower doses) so far at a much more tolerable herx.
Ex: The usual walk with Cricket .... a gorgeous dark pink sunrise to start the day.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Sun Feb 20th, 2005 21:38 |
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DAY 186 - FRI. 3 PM. - SAT. 3 PM. 02/18-19/2005.
PHASE 2 - LEVEL 1 - CYCLE 2 - DAY 3.
Benicar 40 mg. every six hours./ Minocycline 25 mg. / No Q/ No Z.
Sleep: 10-8 - Okay until... Awake from 4-6 am.
Sx: Widespread aches and pains. Right hand still very painful. Fatigue in waves.
Ex: none.
DAY 187 - SAT. 3 PM. - SUN. 02/19-20/2005.
PHASE 2 - LEVEL 1 - CYCLE 2 - DAY 4.
Benicar 40 mg. every six hours./ No Mino./ Quercetin 400 mg. 3 times daily/ No Z.
Sleep: 10-7 - Okay.
Sx: Widespread aches and pains and stiffness. Pain is dulled with the use of Q. Fatigue a little improved with Q too. Sinuses a little irritated again.... when I first took Z they seemed to temporarily improve.... wondering if increase of Mino may help them? Often it has a day or so and then seems to worsen again.
Ex: The usual.
comments: I am pleased that my herx is much more tolerable this time and I am not having cardiac herxing.
CL
____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Tue Feb 22nd, 2005 21:13 |
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DAY 188 - SUN. 3 PM. - MON. 3 PM. 02/20-21/2005.
PHASE 2 - LEVEL 1 - CYCLE 2 - DAY 5.
Benicar 40 mg. q4h./ 25 mg. Mino./ Q. 400mg. 3 x daily/ No Z./Tylenol 500 mg. @ 11:00 pm.
Sleep: Poor.... very achy all night. Nap: Too restless to take a nap although I did lay down for 1/2 hour.
Sx: Uncomfortable widespread aches & pains begain increasing in the night and when I woke up Mon. morning I felt like I had been hit by a truck. Had some transient heart soreness. Took Benicar every 4 hours through the night and on Mon. to help with body pains which did help considerably.
Ex: The usual.
DAY 189 - MON. 3 PM. - TUES. 02/21-22/2005.
PHASE 2 - LEVEL 1 - CYCLE 2 - DAY 6.
Benicar 40 mg. q6h./No Mino./No Q./No Z.
Sleep: okay.
Sx: The widespread aches and pains have decreased to very mild soreness so went back to Beni q6h. Feeling pretty good today. Nap: Took a 15 min. nap ... not feeling much fatigue yet. Seem to be wired up and restless instead.
Ex: The usual.
CL
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Thu Feb 24th, 2005 22:00 |
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DAY 190 (full protocol) TUES. 3 PM. - WED. 3 PM. - 02/22-23/2005.
PHASE 2 - DAY 33 - LEVEL 1 - CYCLE 2 - DAY 7.
Benicar 40 mg. q6h./25 mg. Mino./No Q./No Z.
Sleep: 10-6. Several awakenings but soon asleep. Nap 1-1:30 pm. restless ... maybe slept for 10 minutes. Unusual for me ... I had to lay down after dinner ... felt very fatigued & like I'm catching a cold. (maybe from sun exposure?)
Sx: Fatigue comes and goes in waves. Mild sore throat and sinus irritation. When first laying down heart palpitations for a brief time. Tranisent soreness in heart area. Irritable bowel... constipated & bloated. Cognitive abilities lacking. ie. (when shifting my car gears I couldn't remember where 3rd was & had to go back to 2nd & think about it for awhile before I remembered! DUH! I have only done it over thousands of times & normally don't even think about it!) kinda scary! Don't worry... I seldom drive when herxing. Round trip was only 10 miles.
I tend to remember to report sx that are painful or uncomfortable but forget to mention less obvious ones... such as for a few months frequently I have had notable unpleasant perspiration odor (like bitter celery). Frequently my urine odor is also very strong although it is almost clear and never dark yellow as I do drink water excessively. I have had sore spots on my scalp periodically that hurt when I brush my hair. Also I have had outbreaks of little bumps on scalp, face or neck filled with waxy matter or a little hard ball of matter. I've noticed some freckles on my face & neck becoming darker although I am never in the sun long enough to cause this. Sometimes I see flashing lights and sometimes my vision is very slightily blurred. For a period of time I had "swimmers" in my eyes but not lately. I have seen others reporting similar sx so thought I'd chime in and let ya know.... hey.... yay.... me too.
Ex: the usual.
Outing: Chauffeured Cricket to her doggie groomer to have her nails done. She loves her new shoes! hehe. Was VERY bright and sunny. Sun was beating down on the side of my face for about 15 minutes. I think I had increased fatigue late yesterday from it but I was alright otherwise.
This morning before I went out with Cricket the stress of getting us ready to go seemed to set off chest pressure, breathing slightily insufficient feeling and fatigue. In the past I have taken my bp and found it to be elevated at times like these so this is probably due to anxiety. I just ignored it and by the time I was driving it was gone.
DAY 191 - (full protocol) - WED. 3 PM - THURS. - 02/23-24/2005.
PHASE 2 - DAY 34 - LEVEL 1 - CYCLE 2 - DAY 8.
Benicar 40 mg. q6h./ No Mino./No Q./No Z.
Sleep: Several awakenings but soon asleep again. Nap 1-1:30 pm. restless and slept for about 15 minutes.
Sx: Mild sore throat, irritated sinuses, cough w/ a little phlegm, irritable bronchials, irritable bowel... constipated & bloated. A little bitty bit of chest pressure occaisonally and a little bitty bit of heart soreness/pain.... some mild heart palps briefly occaisonally. Nothing much going on really.
Feeling pretty good.
Ex: the usual.
CL
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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CelticLadee
inactive member
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Posted: Sat Feb 26th, 2005 18:40 |
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DAY 192 (full protocol) THUR. 3 PM. - FRI. 3 PM. 02/24-25/2005.
PHASE 2 - DAY 35 - LEVEL 1 - CYCLE 2 - DAY 9.
Benicar 40 mg. q6h./ 25 mg. Mino./ No Q. / No Z. / Tylenol 500 mg.
Sleep: 10-7 - Okay... the usual several awakenings but went right back to sleep. Nap time 1-2 pm. Took a Tylenol for neck & head pain and slept hard.
Sx: Stiff & sore neck, mild but sickening headache, ovary pain, also constipated & bloated. Seem to have this sx each month during my menses.
Later Fri. evening was watching a movie that provoked deep emotion and my heart physically started aching from it. It continued the rest of the evening after my emotions were back in check. I guess the inflammation in there became irritated from the muscle constriction from the emotions tensing me up? Just a guess. Maybe it is partly chemical too... I don't know.
Ex: The usual.
DAY 193 - (full protocol) - FRI. 3 PM. - SAT. - 02/25-26/2005.
PHASE 2 - DAY 36 - LEVEL 1 - CYCLE 2 - DAY 10.
Benicar 40 mg. q6h. / No Mino./ No Q. / No Z
Sleep: 10-8 - Same but woke up very tired this morning so after getting up at 7 am. to let Cricket out I went back to bed until 8 am. This is very unusual for me.
Sx: Fatigue. I am feeling very tired today and want to lay down again soon. My right side sinuses are flared up and the chronic flag marker for me that I am herxing: my right front tooth is aching. My lower right jaw at teeth sockets aching too. Neck ache is improved today just slightily bothersome. Yesterdays sx cleared up. Have had a dry throat frequently this week and also a transient sore throat.
Ex: None.
CL
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
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Posted: Sat Feb 26th, 2005 18:44 |
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QCL, dont forget you can take your Benicar Q4H for relief for your Heart. Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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