| Author | Post |
|---|
-Dan-
Member in Phase 3
| Joined: | Wed Jan 30th, 2008 |
| Location: | Sandy, Utah USA |
| Posts: | 65 |
| Status: |
Offline
|
|
Posted: Fri Feb 1st, 2008 18:45 |
|
Benicar Forum: http://www.marshallprotocol.com/forum19/11162.html
MP Meds
Benicar 40mg q6hr
Minocycline 25mg q48hr
Palliative Meds
Ibuprofen
Light Exposure
Indoor light less than 30 lux. Wearing NoIRs for Computer and TV.
Outdoor light about 1 hour a day. Covered and wearing NoIRs.
Symptoms Last Week
Fatigue (8)
Insomnia (3)
Pain (3)
Tinnitus (8)
Comments
I started my first 25mg dose of Mino today (Feb 1).
I am not taking any Non MP Meds. Best Regards, DanLast edited on Fri Feb 1st, 2008 19:23 by -Dan-
____________________
Sarcoidosis|Jan08 MP 25D58|Mar08 Ph2|Oct08 Ph3|Mar10 25D5|NoIRs Covered|Home 30LUX|
|
Foundation Staff
.
| Joined: | Sat Jul 10th, 2004 |
| Location: | |
| Posts: | 17283 |
| Status: |
Offline
|
|
Posted: Sat Feb 2nd, 2008 00:56 |
|
Thanks for letting us know you have started minocycline. Please review the information threads pinned to the top of this forum so you will be able to independently locate answers to frequently asked questions. See What should I know about Minocycline?
During Phase One you will learn to identify your immune response symptoms and manage all aspects of the MP....avoiding light and vitamin D, getting adequate rest, pacing activities, eating well, etc. It may take 2 weeks to feel the effects of minocyline when you begin taking it. Until you know, it is best to err on the side of caution.
Stay at each subsequent dose level for a minimum of 3-4 doses with tolerable symptoms at all times before increasing unless experience tells you that an increase would dampen intolerable symptoms. An increase in any symptom that correlates with MP therapy is due to immunopathology. This can be controlled by careful management of MP medications and palliative meds as needed.
Let know how it goes.........
|
-Dan-
Member in Phase 3
| Joined: | Wed Jan 30th, 2008 |
| Location: | Sandy, Utah USA |
| Posts: | 65 |
| Status: |
Offline
|
|
Posted: Thu Feb 14th, 2008 18:47 |
|
MP Meds
Benicar 40mg q6hr
Minocycline 50mg q48hr
Palliative Meds
Ibuprofen
Light Exposure
Indoor light less than 30 lux. Wearing NoIRs for Computer and TV.
Outdoor light about 1 hour a day. Covered and wearing NoIRs.
Symptoms Last Week
Fatigue (7)
Insomnia (3)
Pain (3)
Tinnitus (8)
Comments
I started my first 50mg dose of Mino today (Feb 14).
All IP has been tolerable. Thankyou for your help, Dan
____________________
Sarcoidosis|Jan08 MP 25D58|Mar08 Ph2|Oct08 Ph3|Mar10 25D5|NoIRs Covered|Home 30LUX|
|
Foundation Staff
.
| Joined: | Sat Jul 10th, 2004 |
| Location: | |
| Posts: | 17283 |
| Status: |
Offline
|
|
Posted: Thu Feb 14th, 2008 20:27 |
|
Thanks for letting us know you have ramped to 50mg of minocycline. See How To Identify Immunopathology (Herx) and How to assess symptoms. Finding the low enough/high enough dose level of minocycline that works for you is part of the experience gained throughout the MP journey. You will gain confidence in your knowledge of the actions of your immune response and when to increase as you get more experience in independently adjusting the MP meds.
Stay at each subsequent dose level for a minimun of 3-4 doses with tolerable symptoms at all times before increasing unless experience tells you that an increase would dampen intolerable symptoms.
Let us know how it goes........
|
-Dan-
Member in Phase 3
| Joined: | Wed Jan 30th, 2008 |
| Location: | Sandy, Utah USA |
| Posts: | 65 |
| Status: |
Offline
|
|
Posted: Sun Feb 24th, 2008 19:33 |
|
MP Meds
Benicar 40mg q6hr
Minocycline 75mg q48hr
Palliative Meds
Ibuprofen
Light Exposure
Indoor light less than 30 lux. Wearing NoIRs for Computer and TV.
Outdoor light about 1 hour a day. Covered and wearing NoIRs.
Symptoms Last Week
Fatigue (7)
Insomnia (3)
Pain (3)
Tinnitus (8)
Comments
I started my first 75mg dose of Mino today. I have been working on my "Tool Kit" to see what works for relieving IP and what doesn't. Thanks to Trevor, Moderators, and Staff for helping me with the MP.
____________________
Sarcoidosis|Jan08 MP 25D58|Mar08 Ph2|Oct08 Ph3|Mar10 25D5|NoIRs Covered|Home 30LUX|
|
Foundation Staff
.
| Joined: | Sat Jul 10th, 2004 |
| Location: | |
| Posts: | 17283 |
| Status: |
Offline
|
|
Posted: Sun Feb 24th, 2008 21:12 |
|
Thanks for letting us know you did okay with 50mg mino, have ramped to 75mg. and have begun to comply your toolkit....
In phase one, it's a good idea to experiment with minocycline and Benicar to see how they work for you. Extend the mino dosing schedule to every 72 hours to see if symptoms are dampened or if more immunopathology is provoked. And conversely, when symptoms peak (not necessarily intolerable), reduce or stop the mino dose to see if that dampens symptoms. You could also try taking lower dose minocycline every six or 12 hours to see if mino has an anti-flammatory effect for you.
When a symptom approaches intolerable try an extra Benicar, both oral and sublingual. If that is not effective, increase to every four hours around the clock (set an alarm) to see if that measure is effective to quell the symptom. The resulting information can be added to your personal tool kit.
You will gain experience adjusting MP meds to maintain tolerable immune system reactions. This skill will carry you smoothly through the protocol; when you have learned to manage on a day-to-day basis, you will be equipped to handle a crisis if it occurs.
Keep up the good work...........
|
-Dan-
Member in Phase 3
| Joined: | Wed Jan 30th, 2008 |
| Location: | Sandy, Utah USA |
| Posts: | 65 |
| Status: |
Offline
|
|
Posted: Thu Mar 6th, 2008 03:26 |
|
MP Meds
Benicar 40mg q6hr
Minocycline 100mg q48hr
Palliative Meds
Ibuprofen
Light Exposure
Indoor light less than 30 lux. Wearing NoIRs for Computer and TV.
Outdoor light about 1 hour a day. Covered and wearing NoIRs.
Symptoms Last Week
Fatigue (7)
Insomnia (3)
Pain (3)
Tinnitus (8)
Comments
I have worked on my "tool kit" and found the following to work for me. I extended the Mino Abx cycle to 72 hours and my IP decreased and in some cases stopped. Also, while IP was peaking, increased the Abx to 6-12 hours. This helped reduce IP at first, but then my symptoms increased and become worse. I also just stopped the Abx. My IP went away and I felt fine.
For my "Tool Kit" , I like using the 20mg Beni and/or extending to the 72 hour cycle with the Abx. If necessary, I would take Beni q4hr and/or skip a dose of Abx. I also found that rest during the "Herx" time does help me. From what I read on the Website, not taking Benicar during any of the IP would be a big mistake. Please correct me if I'm wrong on my "Tool Kit".
I have scheduled an appointment with my physician concerning phase 2 medications and will send for the "MP Questionnaire". My recent 25D Test in March was 32. A nice drop from 51 at the start of phase 1.
Thanks for everyone's help. Dan
Last edited on Thu Mar 6th, 2008 03:31 by -Dan-
____________________
Sarcoidosis|Jan08 MP 25D58|Mar08 Ph2|Oct08 Ph3|Mar10 25D5|NoIRs Covered|Home 30LUX|
|
Foundation Staff
.
| Joined: | Sat Jul 10th, 2004 |
| Location: | |
| Posts: | 17283 |
| Status: |
Offline
|
|
Posted: Thu Mar 6th, 2008 05:23 |
|
Dan, excellent work on your 'tool kit'.
Regarding the same issue, Chris had some good advice for Mark yesterday, "Just don't expect the same result at other dose levels or other antibiotics, or other stages in the process. It's your body, and your unique problems. Get used to being proactive in figuring out what works and doesn't for you. And don't exceed the guidelines; they are there for a reason (max dose, no supplements, light discipline, etc.)."
Based on your report, it looks like you should be thinking about progressing to phase two. Please see How do I know if I'm ready for phase two? for information on how to request the questionnaire. Before you proceed to phase two, ask your doctor about the tests you need to monitor your progress on the MP.
You're doing a good job...........
|
-Dan-
Member in Phase 3
| Joined: | Wed Jan 30th, 2008 |
| Location: | Sandy, Utah USA |
| Posts: | 65 |
| Status: |
Offline
|
|
Posted: Tue Nov 11th, 2008 22:16 |
|
Phase 3
MP Meds
+ Benicar (40mg q6h)
Palliative Meds Last Week
Advil (3 nights)
Light Exposure Last Week
Driving (1 hour)
Symptoms Last Week
Fatigue 7, Insomnia 7, Tinnitus 7
Comments
IP was tolerable so I have now increased. No dramatic changes with my fatigue, insomnia, or tinnitus. Over the past 10 months my leg pain has decreased from an 8 to a 4. I feel that is significant. Thanks to Trevor for the MP.
Over the past 10 months my coughing has decreased from a 9 to a 3. Thanks to Trevor for the MP
____________________
Sarcoidosis|Jan08 MP 25D58|Mar08 Ph2|Oct08 Ph3|Mar10 25D5|NoIRs Covered|Home 30LUX|
|
Current time is 02:18 | |
|
