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| Author | Post |
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BARNEY
Moderator
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Posted: Tue May 26th, 2009 03:13 |
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Mark,
What a lovely, truly beautiful report of an MPer who is getting a well.
Would you please post the meds you are on/amts? Thank you.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
Last edited on Tue May 26th, 2009 03:14 by BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Markt9452
Member in Phase 3
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Posted: Tue May 26th, 2009 05:12 |
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Thanks Barney
MP meds: Olmesartan 40mg q6h, Minocycline 50mg q48h, Clindymicin 90-100mg q48h, Azithromycin 90--100 mg 10 day cycles.
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Th1 Lyme Symptoms 125D20 D2510 Ph1Feb08 Ph2Apr08 Ph3Oct08 daily med.exp covered up NoIRs| MyStory|
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BARNEY
Moderator
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Posted: Tue May 26th, 2009 05:22 |
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Thank you Mark.
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Markt9452
Member in Phase 3
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Posted: Fri May 29th, 2009 03:48 |
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Posted: Thu Sep 18th, 2008 06:59 at Curemyth1
I'm not quite ready for vigorous excercise yet - as it causes me to herx - but I do have a goal to be playing ultimate frisbee by next spring - we shall see.
I played Ultimate Frisbee for 2 1/2 hours straight this evening. Got kicked in the head a couple of times. Laid out and landed on my shoulder. Twisted my ankle. I was running around all over the place. I am not injured and my knees are not swollen. Some minor pain in right knee where the meniscus was torn.
I'm not as fast or as strong as I was before but I haven't exactly been excercising either.
I used to get hurt really easy just before I started the MP. It got to the point where I would land on my shoulder and it would make a horrible crunching sound followed by pain that would last for weeks. I figured my bones and joints were deteriorating.
I went way better than I expected.
I'll be in some pain tomorrow without a doubt. You just don't start running around after extended non activity without some pain. But no knee swelling and no crunching or damage is really good.
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Th1 Lyme Symptoms 125D20 D2510 Ph1Feb08 Ph2Apr08 Ph3Oct08 daily med.exp covered up NoIRs| MyStory|
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expate
Member in Phase 3
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Posted: Fri May 29th, 2009 05:34 |
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Your post makes me sooooo ready to get back into ballet class... yes, it's that brutal.
But, no way I could face myself in the mirrors in a leotard just yet. It's been a year since I've been in class and ten months on the MP and... I've got 15 - 20 pounds extra. I just can't deal with it yet.
And don't tell me my weight is th1. It's just the diet and being a slug. I shall return to having the body I once had.
Thanks for your update, Mark. Looking forward to getting kicked about.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Markt9452
Member in Phase 3
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Posted: Fri May 29th, 2009 06:04 |
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Thanks dette
With me it was the opposite. I lost muscle mass and went from thin to skinny. I'm about 20 pounds lighter than I would like to be but my bones don't seem to be brittle anymore so now I have something to build on. It's great.
Day 1 of Zith cycle too.
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Th1 Lyme Symptoms 125D20 D2510 Ph1Feb08 Ph2Apr08 Ph3Oct08 daily med.exp covered up NoIRs| MyStory|
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expate
Member in Phase 3
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Posted: Fri May 29th, 2009 06:19 |
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You rock!
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Shari Gold
Member in Phase 3
| Joined: | Sat Dec 27th, 2008 |
| Location: | Los Angeles |
| Posts: | 25 |
| Status: |
Offline
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Posted: Sat May 30th, 2009 06:39 |
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Hi Mark
Like Odette, your post makes me anxious for my "former" exercise junky life. Me, the avid runner, cyclist, inline skater who misses it so ...
I have gone the way of thin to skinny too. Lost so much muscle mass over the the last 10 months. I used to have a runner's butt .. now it just looks "flat".  I am hoping and praying once through this I will be able to get my body back.
I think I read the previous post of yours a while back where you alluded to wanting to play ultimate frisby around now. So great to hear you have reached your goal. It put a big grin on my face when I read it and it stayed there throughout the day when I would think about your success!
Also ... you are around 6 months ahead of me (also Lyme being one of my prime Th1 culprits) so ... I am thinking I am hopefully going to be sitting in your shoes soon enough. I have really turned a corner in these beginning stages of phase 3 ... the light is at the end of the tunnel somewhat .. and your post just made me even more enthused!
Congrats!!!
Shari
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PTLDS 19 years, FM, Chronic Fatigue, Peripheral Neuropathies, Spot of Morphea on Back Ph1 8/08 25D 20 1,25D 58, Ph2 10/08, Ph3 4/09
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Markt9452
Member in Phase 3
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Posted: Mon Jun 8th, 2009 18:23 |
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Phase III, Day 240
MP 480 days
Thank You everyone for your kind words.
MP meds: Olmesartan 40mg q6h, Minocycline 50mg q48h, Clindymicin 100mg q48h, Azithromycin 100 mg 10 day cycles,
Palliative meds: None
Light exposure: 4 hours per day covered with noirs/bolle, Knochen's sunscreen, leather hats, turbans.
Symptoms: significant only
Total Herx - 3.6/10 - General Systemic IP
Comments: I am doing well. Still improving. Very tired right now sleeping a lot.
Teeth sensitivity appears to be completely gone. I have put on 5 pounds over the last two weeks. I seem to be improving at the same rate as when I was at higher levels of ABX but I have more energy and am less confused. I am doing push ups a few sets of ten per day.
Some muscle twitching, tinnitus always in the evening.
Thank You MP Research Team
Mark
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Th1 Lyme Symptoms 125D20 D2510 Ph1Feb08 Ph2Apr08 Ph3Oct08 daily med.exp covered up NoIRs| MyStory|
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BARNEY
Moderator
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Posted: Tue Jun 9th, 2009 00:07 |
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Drink plenty of water, xtra salt (sea) (regular salt is mostly chemicals), lots of rest while avoiding the sun and avoiding Vit D in your foods!!!!!
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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