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Dr Trevor Marshall
Foundation Staff
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Posted: Sun Apr 26th, 2009 15:35 |
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Deb Grabetz
Member in Phase 3
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Posted: Sun Apr 26th, 2009 17:37 |
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k...
Many thanks for sharing these huge improvements...Just reading of you progress, put a big smile on my face this morning! Deb
Keep up the good work, there's more to come!
Last edited on Sun Apr 26th, 2009 17:38 by Deb Grabetz
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D125,42,D125,18 (5/09) Ph1,7/07, Ph2,3/08,cover up, NoIRs, low lux home,Back to work after 2 yrs; 4/07D25/11 1/08D25-0 Weaned Pred with MP/Massage
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k
Member in Phase 3
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 309 |
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Posted: Sun Apr 26th, 2009 23:14 |
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Thanks Vicky, Deb and Dr Marshall. Reading of others positive progress gave me hope and continues to give me hope (and much sustenance when I am herxing badly ; ) ). So I try to do the same for others.
But also, I get so overjoyed and happy I just want to shout it from all the roof tops and go running through the streets singing/shouting "do the MP! do the MP!" (appropriately MP-covered of course). ; )
Thanks always.
regards, k
May 09:
Although I am non-objective judge of my own cognitive abilities, I feel/believe that my cognitive abilities have gone beyond what I have had in the past. I have no doubt of this. (That is on the good, non-herxing days). (I'm about 17-18 months into the MP). The difference I experience is just too significant to be attributed to anything other than the MP. (e.g. maturity, result of counselling etc).
I started having panic attacks at about aged 10. This developed into full-blown 'panic disorder'/'anxiety disorder' and severe depression in my mid-teens. These symptoms didn't come under some kind of control until my early to mid 20s as a result of paxil and CBT (obviously neither of these are curative). I'm now in my early 30s, so I've had Th1 inflammation for a long time.
On my good days, I have clarity of thought that I've never had before, problem solving abilities that seriously startle me. My people skills are much better. I used to be a very angry and also emotional person. I am much less this way these days. And I have somewhat objective judges of this (friends and family), including my best friend who is candidly honest with me. She has been literally astonished at some of the ways I've dealt with situations in recent months. She's like, "WOW! You were so calm and logical... previously you would have been furious and untameable for at least a week".
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CFS menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept09:10 NoIRs cover-up low lux home lite exp r/t to work
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Scarlett
Member in Phase 3
| Joined: | Mon Mar 3rd, 2008 |
| Location: | Ohio USA |
| Posts: | 127 |
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Posted: Mon Apr 27th, 2009 14:52 |
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k,
Your post came at a wonderful time in my MP journey as I have been having a rough go of it and you have given me much needed encouragement to go on!!!
It is wonderful to read of your improvements and I am so happy for you. It looks as if I am about seven months behind you so I just need to keep hammering away at the "bugs" with the abx and be grateful for the MP. Also, I know what you mean when you want to shout "do the MP, do the MP".
Again, so happy for you .
Scarlett
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Sarcoidosis, gastric paresis, osteopenia, hypotension, migraines, dry eye,insomnia, transient global amnesia,endometrosis. Initial 125D48, 25D58, MP-3/3/08, PhaseII-3/28, Phase III 11/08 D Level 18 as of 5/09
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k
Member in Phase 3
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 309 |
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Posted: Sun Jan 17th, 2010 07:07 |
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I haven't posted in this thread for a long time. Basically because the MP hadn't gone as I had hoped in my second year. I had rapid improvements in the first 12 months. The road was a lot more rocky in the second year. The not infrequent claims on this site that people who don't post regularly are doing fantastic and off living wonderful busy, uninhibited lives has prompted me to post. I have no doubt that this is the case for some. But it is not the case for all.
There is no doubt that the MP has significantly improved my health and my life. I have experienced significant improvements. Without the MP there is no way I would currently be working 30 hours/week in a stressful job, doing my own cooking, own washing, having one social outing each week, have enough energy to read for pleasure after work etc. Prior to the MP I was ostensibly housebound. (I live on my own.)
But there is also no doubt that in my second year particularly, I have gone through hell. The IP for me in the second year was much worse than the first year and pushed me right to the edge. It was very close to being back to my worst CFS days. I very seriously consider quitting the MP - not because I 'wanted to', but I couldn't take the herx any more.
I had gotten the impression that IP would lessen over time. I guess this is true in a broad sense. But for me and others I know on the MP, year 2 has been a lot tougher than year one. For me in particular I experienced a lot of physical pain. Unfortunately this was not relieved by the several options available for managing IP (not for many months anyway). My doctor at this time also decided he/she* no longer believes in the MP. Whilst he/she continues to give me the prescriptions to continue, he/she will not give me any MP-compliant pain relief medication! Very frustrating. Each time I see him/her, I fear he/she is going to completely pull the plug.
Since people typically want to know about sun and light sensitivity, I am generally still quite sun sensitive. When I am on holidays (i.e. not working and hence much less stress on my body) and am not herxing strongly, I can cope with a little bit of sun /light exposure (like my forearms for a couple of hours) or a couple of hours without NOIRS and hat if in the shade, without ill effect other than needing to sleep a few hours longer that night. When I am working (i.e. most of the time), I am quite sun sensitive, and when I am herxing, I cannot tolerate sun or light exposure at all. (Over the last 4 weeks is the first time I have experimented with sun and light exposure since being on the MP). My house is still totally blacked out. And apart from the recent experiments with light exposure, and VERY occasionally not wearing my NOIRS on a date, I follow the sun and light guidelines rigorously.
Diet-wise, I follow the MP regime rigorously in terms of Vit D, soy etc. I eat lean meat (including ham), low-fat cheese (I'd guess 1/8 cup 5 days/week), butter maybe twice/week, and low fat milk in my tea/coffee. On average I have two weak cups of tea/day. When I'm herxing badly, I tend to have one coffee/day (to try and help suppress IP). Otherwise I do my best to avoid it. Though on stressful days at work, I tend to have one. At the moment I probably average 2 per week. I have a low-carb (but not no carb) diet and generally don't eat sugar or fruit. (I occasionally indulge in a wheat free, egg free etc biscuit containing sugar).
I intend to continue with the MP, so long as I have a doctor to provide the prescriptions and am able to endure the IP. The MP has brought me a significant distance already and I know it has a lot further to take me. I am still a fair distance from a 'normal life'. I would like to get to where I was before I got sick.... working full time, exercising regularly, social activities, etc. I suspect this is a number of years away yet.
My biggest frustration/difficulty with the MP is that when you get hit with a strong herx, it's a matter of trial and error of a number of different options to get relief. Sure, sometimes this comes within a couple of hours, or a couple of days. But sometimes it doesn't come for weeks, or even months (particularly with runaway herx). This is very very difficult. (The only way I'm aware of to minimise the chance of this is to go as slow as possible on the MP). And also, for us CFSers, that there is limited diagnostic indicators/tools to mark our progress, other than how we feel. (But obviously that's not to do with the MP).
All the best,
regards, k
* I am not identifying the gender of my doctor to protect his/her identity.
Last edited on Sun Jan 17th, 2010 07:08 by k
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CFS menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept09:10 NoIRs cover-up low lux home lite exp r/t to work
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BARNEY
Moderator
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Posted: Sun Jan 17th, 2010 17:26 |
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Hello K,
So sorry you are having such a hard time. The last 25D I see you reported was 10, which is below the 12 that Dr M recommends. That is good.
What meds are you taking? What amt of Benicar are you taking? It is hard to suggest help, not knowing for sure where you are. Maybe we could help you live a better life while on MP.
K, I just started year 6 and am still somewhat light sensitive (sleep the deadest sleep when I get in the house). I still have IP and ocassionally have to take some Mino to calm one. (just a little Mino) I too, have a little while longer to go, but I had sarc for 40+ years, so I don't figure 6 yrs is that bad so far. I have come a long way.
The other day, I had a man call me, and this was one bit of information that I gave him..........write down (now) all that is bothering you, then you can look back on how you have healed on MP and hopefully not get so discouraged when times are tough. I did not do this and I only remember all of my healing when someone else posts it. Darn, hindsight is always better.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
Last edited on Sun Jan 17th, 2010 17:30 by BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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k
Member in Phase 3
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 309 |
| Status: |
Offline
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Posted: Sun Jan 17th, 2010 20:31 |
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Hi Barney
This is my alumni thread. My weekly progress thread is at:
http://www.marshallprotocol.com/forum35/11261-12.html
reagrds, k
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CFS menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept09:10 NoIRs cover-up low lux home lite exp r/t to work
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BARNEY
Moderator
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Posted: Mon Jan 18th, 2010 00:08 |
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k,
Replied to your thread link.
Barney
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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