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k
Member in Phase 3
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 87 |
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Posted: Wed May 28th, 2008 08:07 |
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Approx 7 months on MP
I am posting the following because I always find it really helpful and encouraging to read about the experiences of others, particularly those with similar diagnoses to me (even though it is all Th1). So hope this helps!
Main health problems:
* CFS/ME diagnosed August 2007 after having been sick since mid-2004
* severe menorrhagia and dysmenorrhoea (since menarche)
* depression and anxiety
* severe hyypoglycemia
* glandular fever when 15 and 21
Key Dates:
30 Oct 2007: Commenced Benicar
23 Nov 2008: Commenced Phase 1
22 Dec 2008: Completely off DHEA (having weaned)
4 Feb 2008: Commenced Phase 2
25D levels:
* Jul 2007: 50
* Oct 2007: 23
* Jan 2008: 13
Improvements experienced:
* increased strength
* increased energy
* increased stamina / endurance
* improved cognitive ability – able to think more clearly, better at problem solving, analysing etc
* fewer mood swings, am calmer and more relaxed, ‘catastrophise’ less
* reduced hypoglyceamic symptoms
* stomach is less sensitive, increased food tolerance
* no longer experience ME/CFS post-exertional fatigue (woo-hoo!)
* no shortness of breath
* menstruation: shorter cycle (less than 5 days for the first time in my life!), no longer completely debilitated as per previously – now just a little bit more tired than usual, no sore or sensitive breasts (previously extremely sore and sensitive 50% of each month)
Immunopathology experienced:
* Fatigue, weakness, sleepiness
* Cold and flu like symptoms: feeling of coming down with chest cold, head cold, flu, chest feels red raw, sore throat, sore glands in neck, phlegm (a constant since beginning MP), sore ears, feeling of having water in my ears, hot and cold, cold and can’t get warm, hot and can’t cool down
* Headaches
* Achiness / soreness / pain: shoulder bones, shoulders, arms, elbows, wrists, hands, fingers, hip bones, knees, legs, ankles feet, neck, jaw, gums, various spots on head, face.
* Low level ‘tingling’ sensation experienced at various times in almost all places that have experienced pain, achiness or soreness.
* Back pain middle of back on either side of my spine (constant dull pain rather than sharp)
* Skin having ‘burning’ sensation – in particular top of head, back
* Skin irritations – red welts and raised dry spots
* Tightness across ribcage, feeling of torso being too tight
* Shortness of breath
* Light-headedness, dizziness
* Insatiable thirst
* Nausea, stomach pain, no appetite, no appetite to the point of a complete aversion to food, insatiable hunger
* Neurological: crankiness, agitated, angry, extreme irritability (all for no apparent reason), complete lack of motivation / apathy, heightened emotional sensitivity, feel like crying / bursting into tears, feeling ‘spaced out’, feeling not myself, cognitively compromised – difficulty concentrating, focussing, articulating thoughts, short term memory compromised, 'depression' (it feels different from pre-MP depression)
* Light sensitivity (generally not too severe , but varies with the severity of the IP)
Notes:
* I follow the MP diet rigorously.
* I follow the sun precaution guidelines rigorously.
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ME/CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil hydralazine Ph1Oct07 25D50Jul07 25D23Oct07 25D13Jan08 NoIRs cover-up low lux home lite exp r/t to work Ph2Feb08
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expate
Member in Phase 2
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Posted: Wed May 28th, 2008 21:46 |
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Thank you for thinking of others and sharing. It does help.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 ng/ml (4/08), 25 - D 34 ng/ml (8/08), started Ph1 7/17/08, Covered up. NoIRs. Home low light.
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Malcolm Jackson
Member in Phase 2
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Posted: Wed Jun 11th, 2008 16:37 |
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Thanks for sharing your experiences, I could almost have written them myself.
It took me fifteen years to descend in health to a diagnosis of CFS in April 2002 and the last month in Phase I has been among the most unpleasant experiences since then. By far the worst being the fatigue leading me to sleep most of the time between Minocycline doses.
Until I read your posting I had started feeling very low but your confirmation of progress has been most uplifting. I know we have to hang in there but when you read of an experience so close to your own it relly helps a lot.
Thanks again.
Malcolm
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CFS10yr+ chronic sinusitus 25D<10 (May08) paroxetine loratidine Zolpidem or Zopiclone NoIRs low lux home light exp max 30min P1May08 P2June08 D25-10 July08
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k
Member in Phase 3
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 87 |
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Offline
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Posted: Sat Jul 26th, 2008 07:24 |
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Quick further update - approx 9 months on the MP
Just wanted to add a few further comments on recent improvements....
Firstly, all the above-mentioned improvements continue. I still have NO (CFS/ME) PAYBACK! My period continues to be only 3 1/2 days and cause me no discomfort (for most of my life it was 7 days and very debilitating).
I am now working 30 HOURS per week and this is not a struggle at all! When I started the MP I was working about 12-15 hours/week but this was a HUGE struggle. The quality of my work was pretty average and its quantity low - both these have improved significantly. Although it is an office job and you would think not particularly physically demanding, I used to dread having to for example, walk the few metres distance to the photocopier or the printer.
But I am not only working... I am also doing social activities... one per week (e.g. a meal with friends, DVD or a movie) and sometimes two such activities.
My activities around the house have also increased - I'm able to keep my house in better shape. I'm also able to spend more time preparing and cooking food (no longer am I restricted to making the quickest and easiest selections from the recipe book due to physical limitations).
An unexpected improvement has been increased libido. I've never had much of a libido at all. In the past I had tended to attribute this to being on anti-depressants (which I went on in my early 20s). Although I'm still on anti-depressants, I now have some libido! (Yay!)
I still have a LONG way to go on the MP, but my commitment to it only grows stronger everyday. On a daily basis I am overjoyed at how well I feel - I had given up hope that I would ever feel this good again. It is astonishing to me.
Thanks always to all the MP team.
regards, k
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ME/CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil hydralazine Ph1Oct07 25D50Jul07 25D23Oct07 25D13Jan08 NoIRs cover-up low lux home lite exp r/t to work Ph2Feb08
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